Disability: social aspects Books

Book SynopsisThe devolution of social care policy has led to key differences emerging between the UK's four care systems. This book presents research on the perspectives of social care policy makers within the UK's four care systems, concluding that when given equal capacity to reform, the systems in each nation may take radically different shapes.

Read more less

Book SynopsisThis new edition of the milestone book Education, Disability and Social Policy outlines critical debates in education concerning the position and experiences of disabled children and young people within a contemporary policy context.

Read more less

Book SynopsisDrawing on oral history interviews, correspondence, material objects, and archival sources, Susan Burch reframes the histories of institutionalized people and the places that held them. In so doing, Committed expands the boundaries of Native American history, disability studies, and US social and cultural history generally.

Read more less

Book SynopsisFor almost sixty years, media technologies have promised users the ability to create sonic safe spaces for themselves-from bedside white noise machines to Beats by Dre's Hear What You Want ad campaign, in which Colin Kaepernick's headphones protect him from taunting crowds. In Hush, Mack Hagood draws evidence from noise-canceling headphones, tinnitus maskers, LPs that play ocean sounds, nature-sound mobile apps, and in-ear smart technologies to argue the true purpose of media is not information transmission, but rather the control of how we engage our environment. These devices, which Hagood calls orphic media, give users the freedom to remain unaffected in the changeable and distracting spaces of contemporary capitalism and reveal how racial, gendered, ableist, and class ideologies shape our desire to block unwanted sounds. In a noisy world of haters, trolls, and information overload, guarded listening can be a necessity for self-care, but Hagood argues our efforts to shield ourselves can also decrease our tolerance for sonic and social difference. Challenging our self-defeating attempts to be free of one another, he rethinks media theory, sound studies, and the very definition of media.Trade Review"Hagood points out that we now often talk about personal freedom in terms of what we don’t have to listen to, and he focusses, in the book, on our efforts to navigate sonic nuisances, and also the paradox of combating sound with more sound, in a world that has become loud enough to damage our health. . . . The stakes of Hush might seem small . . . But, once you begin to think about the relationship between the sound waves that constantly pass through us and the potential loss of self, you become more attuned to all the beckoning noises of modern life." -- Hua Hsu * The New Yorker *"Hush is provocative and insightful." -- Stephen Phillips * The Wire *"Hagood leaves us rethinking media theory, sound studies, and the definition of media." -- John F. Barber * Leonardo Reviews *"Hush is an important addition to the emerging field of sound studies. . . . Scholars of sound studies, digital media, broadcast media, disability studies, and those interested in the intersection of gender and race with media will find this book insightful." -- Jennifer Hyland Wang * Journal of Radio & Audio Media *Table of ContentsAcknowledgments vii Introduction. Hearing What We Want 1 Part I. Suppression 29 1. Tinnitus and Its Aural Remedies 31 Part II. Masking 73 2. Sleep-Mates and Sound Screens: Sound, Speed, and Circulation in Postwar America 75 3. The Ultimate Seashore: Environments and the Nature of Technology 116 4. A Quiet Storm: Orphic Apps and Infocentrism 148 Part III. Cancellation 175 5. Bose QuietComfort and the Mobile Production of Personal Space 177 6. Beats by Dre: Race and the Sonic Interface 198 Conclusion. Wanting What We Hear 220 Notes 235 References 245 Index 261

Read more less

Book SynopsisFor people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.Trade Review“In this exciting work Arseli Dokumacı offers compelling ethnographic interviews, journal entries, and her own experiences of difficulties with rheumatoid arthritis. Her accounts of the lives of her interlocutors are rich and evocative and form the basis for her idea of activist affordances: the everyday hacks that allow disabled people to manage the simplest of daily activities as they face a diminishing world of possible action and imaginaries. Addressing what it means to live with bodily challenges, Activist Affordances is critical disability studies at its intersectional best.” -- Faye Ginsburg, David B. Kriser Professor of Anthropology, New York University“Arseli Dokumacı reveals how people living with illnesses and disabilities navigate an inaccessible and ableist world by identifying the creativity, innovation, and resilience that goes into such navigation. Refusing the still-too-common notion that knowledge about disability is the province of medical experts rather than disabled people themselves, she brilliantly theorizes the accumulation of skills, negotiations, and hacks that disabled people discover to make their way in this world. And in this way, Dokumacı persuasively argues, they help concretize more accessible and just worlds.” -- Alison Kafer, author of * Feminist, Queer, Crip *"This book strikes a balance between academic rigor (i.e., theory) and practical relevance (i.e., practice). Readers will appreciate that many of the hacks discussed also come with pictures to help readers visualize the affordances. The book draws on a range of disciplines, including disability studies, anthropology, and design, to provide a comprehensive understanding of the complexities of disability activism. Recommended. Advanced undergraduates through faculty; professionals." -- G. Colosi * Choice *"Activist Affordances attunes readers to individual, everyday acts that could teach us how to create more habitable futures. Such a perspective opens new spaces for scholarly and political debates on activism, disability, and the preservation of the planet." -- Kostadin Karavasilev * LSE Review of Books *“[A] generative, thought provoking text … it will be exciting to follow how readers ‘make up, make real, and make do with’ this book’s innovative contributions.” -- Christine Sargent * American Ethnologist *Table of ContentsAcknowledgments ix Introduction 1 Part I. Shrinkage 1. Affordance Encounters Disability 31 2. Chronic Pain, Chronic Disease 55 3. The Habitus of Ableism 71 4. Planetary Shrinkage 87 Part II. Performance 5. A Theory of Activist Affordances 99 6. An Archive of Activist Affordances 119 7. Always in-the-Making 191 8. People as Affordances 205 9. Disability Repertoires 227 10. Speculations for a Shrinking Planet 237 Notes 253 Bibliography 293 Index 311

Read more less

Book SynopsisContends that disability is a central but misunderstood element of global austerity politics. Broadly attentive to the political and economic shifts of the last several decades, Robert McRuer asks how disability activists, artists and social movements generate change and resist the dominant forms of globalization in an age of austerity, or crip times. Throughout Crip Times, McRuer considers how transnational queer disability theory and cultureactivism, blogs, art, photography, literature, and performanceprovide important and generative sites for both contesting austerity politics and imagining alternatives. The book engages various cultural flashpoints, including the spectacle surrounding the London 2012 Olympic and Paralympic Games; the murder trial of South African Paralympian Oscar Pistorius; the photography of Brazilian artist Livia Radwanski which documents the gentrification of Colonia Roma in Mexico City; the defiance of Chilean students demanding a Trade ReviewA powerful, inventive, galvanizing book, explicitly and insistently theorizing the centrality of disability to the politics of austerity, without ever resorting to polemic, yet never satisfied with mere critique. Crip Times is a necessary book for our times. * Journal of Literary & Cultural Disability *Although neoliberalism constantly tells us There Is No Alternative, McRuer meticulously documents and analyzes those who, as the late Manning Marable urged, celebrate our passionate discontent with the way things are. * American Literary History *Crip Times demonstrates the hallmarks of Robert McRuers scholarship, highlighting his formidable skills as a writer and theorist. Weve needed a text like Crip Times to unpack the cultural logics of neoliberalism as it attends to disability and austerity, and McRuer does so with an approach that transcends disciplines and national contexts. -- Alison Kafer,author of Feminist, Queer, CripA brilliant, ambitious, and wide-ranging book, Crip Times reveals the centrality of notions of disability to global austerity politics. McRuer has crafted new, original, and dazzling theoretical architectures with which to move forward. -- Jack Halberstam,author of In a Queer Time and Place: Transgender Bodies, Subcultural Lives

Read more less

Book SynopsisHospital aesthetics: Disability, medicine, activism argues that contemporary disabled artists are offering a new hospital aesthetics, where artists are taking health and care into their own hands and body-minds. Disabled artists are contributing to a type of disability activism that can simultaneously improve mainstream bioethics and ableist museum and gallery culture. -- .

Read more less

Book Synopsis‘Oliver Sacks is a perfect antidote to the anaesthetic of familiarity. His writing turns brains and minds transparent’ - ObserverWhen Oliver Sacks, a physician by profession, injured his leg while climbing a mountain, he found himself in an unusual position – that of patient. The injury itself was severe, but straightforward to fix; the psychological effects, however, were far less easy to predict, explain, or resolve: Sacks experienced paralysis and an inability to perceive his leg as his own, instead seeing it as some kind of alien and inanimate object, over which he had no control.A Leg to Stand On is both an account of Sacks’ ordeal and subsequent recovery, and an exploration of the ways in which mind and body are inextricably linked.Trade ReviewOliver Sacks is a neurologist, a man of humane eloquence, and a genuine communicator. The value of this book lies in its willingness to combine the technical and the demonic, to admit poetry and philosophy and the religious impulse. It is also intensely personal, and affirms the community of human experience. * Observer *In every way a marvellously rich and thoughtful tale. * Sunday Telegraph *A remarkable, generous, vivid and thoroughly intelligent piece of writing. * Sunday Times *

Read more less

Book SynopsisLeading ethicist and pastoral theologian Brian Brock reflects on the challenge of disability, refuting widely held misconceptions and helping readers respond well to the pastoral implications of disability. Brock, the father of a child with special needs, weaves together theological commentary with narrative reflection, offering rich theological wisdom for shepherding people with disabilities. He shows pastors and ministers-in-training that thinking more closely and theologically about disability is a doorway into a more vibrant and welcoming church life for all Christians.Table of ContentsContentsSeries PrefaceIntroduction1. Nobody with Disabilities in Our Church2. Jesus Heals Everyone He Meets3. God Chose You Because He Knew You Could Handle It4. Disability Is a Tragic Effect of the Fall5. We Don't Know Where to StartAfterwordIndex

Read more less

Book SynopsisThis book describes the Moulster and Griffiths nursing model and demonstrates how learning disability nurses can use it in practice. It provides an effective framework to assess, plan, reflect on and evaluate person-centred care, considering the complex needs of people who have learning disabilities, their families and their carers.Trade ReviewThe authors have produced a book that will not just help nurses practice in a person centred, evidence based and outcome focused way but to also articulate and be explicit about their contribution and the evidence on which they base their practice. This book gives you the tools to apply the model in practice and demonstrate the impact of the learning disability nurse. A key text for nurses and students, this will be a go-to-guide for many years to come. -- Hazel Powell, Nursing Officer for Mental Health and Learning Disability, Welsh Government / Nurse Director Mental Health and Learning Disability, Abertawe Bro Morgannwg University Health BoardIt is great to have a text that is entirely focused on learning disability nursing and, most importantly, on supporting practitioners to improve and enhance their practice in a person-centred, reflective and evidence based manner. A must read for all those involved in learning disability nursing. -- Ruth Northway, Professor of Learning Disability Nursing, University of South WalesThis book provides a refreshing and contemporary focus on the Moulster-Griffiths Model of Nursing. It shines a timely spotlight on the skills and knowledge of the learning disability nurse providing person centred, systematic support to individuals. It will equip students with a clear framework for meeting the holistic health needs of the people they serve but also a useful guide to reflection and personal development. This guarantees its pertinence to learning disability nurses throughout their career. A fantastic resurgence of a nursing model. -- Jo Lay, Associate Director of Student Education, School of Healthcare, University of LeedsI thoroughly enjoyed reading this book which demonstrates the person centred and holistic care which are the hallmarks of learning disability nursing. The evolution of the model and the development of the Health Equalities Framework could not have been better timed. The case students are especially poignant and bring the model to life. The combination of this well thought out model with the latest research will assist nurses improve the healthcare, experience and health outcomes for people with learning disabilities. It is the book to go to for learning disability nurses and students. -- Professor Ben Thomas, London South Bank UniversityWhat does a learning disability nurse do? The Moulster and Griffiths book speaks with passion and integrity, clearly articulating the role of the learning disability nurse and how they support people with learning disabilities to access health care and overcome health inequalities.If you want to understand person and family centred nursing practice, this is the book for you. The Moulster and Griffiths Nursing Model provides a road map for person and family centred nursing practice. It speaks with passion and integrity from the perspective of a person with learning disabilities, family members and experts from practice. A must read for anyone working to reduce the health inequalities that people with learning disabilities face. -- Rebecca Chester MBE, MSC, Post Graduate certificate Academic Practice, RNLD, DiPSWTable of Contents1. Introduction. 2. The Model. 3. Using the Model in Practice. 4. Summary.

Read more less

Book SynopsisDefining the role of a job coach, this book sets out EU-wide training standards for helping people with disabilities gain and maintain meaningful employment.The book includes the perspectives of both people with disabilities and their job coaches, offering first-hand experience of the specific issues faced by those who want to enter the competitive open jobs market. It describes how to provide bespoke support for people with an intellectual disability, physical disability, as well as for autistic people and individuals with mental health conditions. Guidance on functional assessment, task analysis, collaborating with employers and training for new and student job coaches is also included.Trade ReviewThis book offers a unique combination of expertise and personal experiences from a broad range of stakeholders...I wholeheartedly recommend this book to all those interested in the subject area of job coaching. -- From the Foreword by Norman Sterritt DMS, MBA, Progression to Employment Service Manager, Triangle Housing Association and Chair, Northern Ireland Union of Supported EmploymentThis book brings us closer to the world of people with disabilities and the work of job coaches. -- From the Foreword by Blazej Piasek, Warsaw, PolandTable of ContentsForeword by Blazej Piasek. Foreword by Norman Sterrit. Preface. 1. What is a job coach for adults with disabilities? Dr Ewa Matuska, Chair of Management, Pomeranian University, Poland. 2. Having a job coach: An insider perspective. Dr Lyn McKerr, Centre for Behaviour Analysis, Queen's University Belfast, UK, and Caterina Metje, Fachhochschule Münster, Germany 3. Job coaches for adults with mental health conditions. Professor Hanns-Rüdiger Röttgers, Fachhochschule Münster, Germany. 4. Job coaches for adults with physical and sensory disabilities. Trish MacKeogh, Dublin Institute of Technology, Ireland, and Marcia Scherer, Centre for Behaviour Analysis, Queen's University Belfast, UK. 5. Job coaches for adults with intellectual disabilities. Dr Ewa Matuska. 6. Job coaches for adults on the autism spectrum. Dr Lyn McKerr and Professor Karola Dillenburger, Centre for Behaviour Analysis, Queen's University Belfast, UK. 7. On-the-job functional assessments. Angelika Anderson, School of Psychology, Faculty of Arts and Social Sciences, The University of Waikato, New Zealand. 8. Dealing with crisis and challenging behaviours. Dr Brian Fennell, Curry College, Milton, MA, USA and Professor Karola Dillenburger. 9. Collaborating with employers. Dr Lucie Procházková, Institute for Research in Inclusive Education, Masaryk University, Czechia, and Dr Helena Vadurová, Institute for Research in Inclusive Education, Masaryk University, Czechia. 10. Being a job coach: An insider perspective. Dr Lyn McKerr and Karola Dillenburger. 11. Guidelines for training job coaches. Marea de Bruijn, Beroepsvereniging Jobcoaches Nederland, Netherlands.

Read more less

Book SynopsisThis collection of narratives from autistic adults is structured around their decades of experience of life, covering 20s, 30s, 40s, 50s, 60 and 70s+. These are varied and diverse, spanning different continents, genders, sexualities and ethnicities, yet the author highlights the common themes that unite them and skilfully draws out these threads. Each chapter is based on accounts from one age group and includes accounts from people of that age, giving an insight into the history of autism and signifying how gaining a diagnosis (or not) has changed people's lives over time. The book is about ageing with an autistic mind, and helping the reader find connections between neurotypical and neurodiverse people by acknowledging the challenges we all face in our past, present and futures.Trade ReviewUniquely covering a lifespan and intersecting a range of communities and cultures; This book adds to the growing voice of an enormously diverse population of people who've spent a lifetime suppressing who they are, in order to fit into a world that fears difference. -- Kieran Rose, theautisticadvocate.comToo often, we forget that roughly 75% of Autistic people are adults. Our Autistic Lives is invaluable because it offers intimate insights from Autistic adults in every decade of life, to their seventies and beyond. Ratcliffe's book is crucial reading for understanding autism across the lifespan. -- Maxfield Sparrow, author of The ABCs of Autism Acceptance and No You Don’t: Essays from an Unstrange MindTable of Contents1. Introduction; 2. Our 20's; 3. Our 30's; 4. Our 40's; 5. Our 50's; 6. Our 60's; 7. Our 70's and Beyond

Read more less

Book SynopsisThis honest, to-the-point guide illuminates the experience of young Autistic girls and explores the situations they can easily fall victim to.Powerful case studies show how easily misunderstandings can arise for Autistic girls and help the reader to identify common patterns of abuse.Providing professionals with access to safeguarding strategies that are straightforward to implement and highly effective, this is essential reading for everyone who wants to better understand the challenges faced by this vulnerable group, and ensure they have access to the same opportunities to secure a good education and build safe and happy relationships as their peers.Trade ReviewAs a super proud Nana and advocate to my awesome autistic 11 year old grandson Carly's insight, lived experience and practical strategies, all delivered with empathy, humour and a 'you can do it' attitude have been invaluable. You might not have Carly on speed text like me, but you do now have this book. A must read for any parent, carer, friend or professional who wants to better understand safeguarding in a wider context to protect an autistic young person. -- Melanie Bryan OBE, DL, HFIOEE, FRSACarly Jones MBE packs this book with her personal insights in autism and her extensive, professional experience as an advocate for autistic girls and women. Her passion to enable each and everyone of us to safeguard autistic people, is evident throughout the book, which is written with compassion and creativity. Safeguarding Autistic Girls is a frank call to action, that cannot be ignored. -- Oriana Morrison-Clarke, Neurodevelopmental Services Manager (NHS)Alive with personal insights and the experiences of many, Carly's much-needed book illuminates the vulnerability of autistic girls and young women in modern society. The range of tested tips and strategies provided - from an autistic insider's perspective - make this a must-read for any professional in the field. -- Dr Ruth Moyse, Institute of Education, University of ReadingTable of ContentsChapter 1 - The Current Situation; 1 Why Are Autistic Girls Vulnerable?; 2 Team Diagnosed Vs Team Undiagnosed; 3The Autistic lens Vs the Mental Health lens; 4 The Problem with the Educational System; 5 We Can't Carry On this way; Chapter 2 The Risk To Autistic Girls' Safety; 1 Sexual Abuse; 2 Bullying and Mate Crime; 3 Teen Pregnancy; 4 Radicalisation and Gangs; 5 Childhood Marriage and Domestic Violence; Chapter 3 How to Identify a Girl at Risk; 1 Masking; 2 Drink and Drug Use; 3 Eating Disorders; 4 The Common Scapegoat; 5 Burnout; Chapter 4 Tried and Tested Strategies for Support; 1 Working With Individuals; 2 Working with other Professionals; 3 Keeping an Intersectional Mindset; 4 Working with the Family; 5 The Lifesaving Gift of a Peer Group; Chapter 5 Designing and Sustaining a New Blueprint ; 1 The Untapped Oil; 2 Ideas for the Educational System; 3 Employment and Media4 Equal Access to Safeguarding in Healthcare; 5 Access to Justice and Legislation Loopholes

Read more less

Book SynopsisThis unique monograph, based on empirical research, used the oral history approach to explore the careers of 31 intellectual disability nurses from England and the Republic of Ireland; each with at least 30 years' experience. We sought to understand motives for such long service to nursing practice. Some had worked in the intellectual disability hospitals of the 19th and 20th Centuries. In both jurisdictions these have almost closed and been replaced with smaller living configurations; subsequently few such nurses have experience of these institutions. This makes it important to hear their stories, which were digitally recorded; now forming a unique collection in the Royal College of Nursing's archives. These oral histories when synthesised with prevailing discourse of intellectual disability nursing from literature, and research put into perspective contemporary nursing workforce challenges faced by these nurses in both jurisdictions. Their stories are testament, amongst other things, to a strong 'sense of justice… doing the right thing and making a difference'. Some reported a 'very early interest in working with people with intellectual disabilities'. And at 'journey’s end' sadly, almost universally, they reported a sense of being 'undervalued'. Their narratives articulate enormous health and social care change witnessed over three decades or more. But above all else they give voice to commitment, dedication, and kindness to a vulnerable, and often marginalised people, those with intellectual disabilities, as such it gives voice to otherwise 'Untold Stories'.Table of ContentsChapter 1. Introduction Chapter 2. Background literature and research Chapter 3. Method and methodological Issues Chapter 4. Findings Chapter 5. Discussion Chapter 6. Conclusions, limitations and observations

Read more less

Book SynopsisHow can health and social care services better serve people with disabilities? How can we meaningfully challenge ableist practice? What would a truly inclusive system look like?Georgia Vine answers these questions and more as she charts her journey from her experience of children''s services to occupational therapist and disability activist. Discussing stigma, independence, and the transition to adulthood, Georgia provides vital insight into the challenges she has faced and the communities she has built along the way.Each chapter includes a reflection log enabling health and social care workers to think critically and practically about what they''ve learnt and how best to apply it to their role.

Read more less

Book SynopsisAt the beginning of the 1990s, Linda Grant's mother, Rose, was diagnosed with Dementia. In Remind Me Who I Am, Again Linda Grant tells the story of Rose's illness and tries to reconstruct the history of their Jewish immigrant family, stalking them from Russia and Poland to New York and London. Writing with humour and great tenderness, Grant explores profound questions about memory, autonomy and identity, and asks if we can ever really know our parents.

Read more less

Book SynopsisChallenging existing approaches to autism that limit, and sometimes damage, the individuals who attract and receive the label, this book questions the lazy prejudices and assumptions that can surround autism as a diagnosis in the 21st Century.Arguing that autism can only be understood through examining 'it' as a socially or culturally produced phenomenon, the authors offer a critique of the medical model that has produced a perpetually marginalising approach to autism, and explain the contradictions and difficulties inherent in existing attitudes. They examine and dispute the scientific validity of diagnosis and 'treatment', asking whether autism actually exists at the biological level, and question the value of diagnosis in the lives of those labelled with autism. The book recognises that there are no easy answers but encourages engagement with these essential questions, and looks towards service provision and practice that moves beyond a reliance on all-encompassing labels.This unique contribution to the growing field of critical autism studies brings together authors from clinical psychiatry, clinical and community psychology, social sciences, disability studies, education and cultural studies, as well as those with personal experiences of autism. It is essential and challenging reading for anyone with a personal, professional or academic interest in 'autism'.Trade ReviewImpressive! This book inaugurates both Critical Autism Studies and a crucial unsettling of all previous accounts of the meaning of autism. In chapters that unpack the label, its diagnosis and use, autism treatments, politics, identities, Re-Thinking Autism vibrantly demonstrates that it is time to begin our lives with autism as an integral part of human life rather than treating it as an unnatural condition. This book is an antidote to the normative violence that regularly surrounds lives lived with the label of autism, inviting all people to affirm a more complex version of humanity. -- Tanya Titchkosky, Professor, OISE, University of Toronto and author of 'The Question of Access', 'Reading and Writing Disability Differently' and 'Disability, Self and Society'The authors and editors of Re-Thinking Autism wear their radical hearts on their sleeves. They promise to thoroughly deconstruct the conventional wisdom about this new "epidemic" in our midst, and, by the book's end, to have prompted readers to think anew about what could be done to help those who struggle in ways that lead to this diagnosis. Their writing is clear, their manner authoritative, and they succeed admirably in achieving their goal. -- Robert Whitaker, author of 'Anatomy of an Epidemic: Magic Bullets, Psychiatric Drugs and the Astonishing Rise of Mental Illness in America'This three part volume has something for everyone - parents of children with autism, practitioners... researchers and academics... [The] assemblage of disciplinary perspectives and geographic locations provides important insights into the scope and depth of how researchers are thinking about autism through a critical lens... this volume brings much needed attention to alternative ways of knowing autism and critiques of the social construction of autism in relation to what it means to be 'normal' and 'human'. -- Jennifer S. Singh * Assistant Professor of Sociology at Georgia Tech *Table of ContentsIntroduction. Katherine Runswick-Cole, Rebecca Mallett and Sami Timimi. Part 1. What is autism? 1. Understanding this thing called autism. Katherine Runswick-Cole. 2. What have we learned from the science of autism? Sami Timimi and Brian McCabe. 3. Does everybody with autism have the same underlying condition? Richard Hassall. 4. The Biopolitics of autism in Brazil. Francisco Ortega, Rafaela Zorzanelli and Clarice Rios. Part 2. Deconstructing autism. 5. Life without autism: A cultural logic of violence. Anne McGuire. 6. The commodification of autism: What's at stake? Rebecca Mallett and Katherine Runswick-Cole. 7. How rude! Autism as a study in ability. Kim Davies. 8. Autism and the human. Dan Goodley. 9. Autism screening and diagnostic tools. Sami Timimi and Brian McCabe. Part 3. Changing practice. 10. Schools without labels. Nick Hodge. 11. Questions of treatment: Does a diagnosis of Autistic Spectrum Disorder help us to help a person with Intellectual Disabilities? Graham Collins. 12. Critical Systemic Therapy: Autism stories and disabled people with learning difficulties. Mark Haydon Laurelut. 13. Critical autism and critical neuroscience: Towards a science of research and practice. Tom Billington. 14. Early diagnosis of autism: Is earlier always better? Ginny Russell. 15. Thinking systems: Mind as a relational activity. Gail Simon. 16. The ethics and consequences of making Autism Spectrum diagnosis. Saqib Latif. 17. Examining language and communication in Autism Spectrum Disorder. Tom Muskett.

Read more less

Book SynopsisNeurodiversity in the workplace can be a gift. Yet only 15% of adults with an autism spectrum condition (ASC) are in full-time employment. This book examines how the working environment can embrace autistic people in a positive way.The author highlights common challenges in the workplace for people with ASC, such as discrimination and lack of communication or the right kind of support from managers and colleagues, and provides strategies for changing them. Setting out practical, reasonable adjustments such as a quiet room or avoiding disruption to work schedules, this book demonstrates how day to day changes in the workplace can make it more inclusive and productive for all employees.Autism in the Workplace is intended for any person with an interest in changing working culture to ensure equality for autistic people. It is an essential resource for employers, managers, trade unionists, people with ASCs and their workmates and supporters.Trade ReviewThis book is essential reading for all those who want to challenge discrimination faced by workers with autism. Janine Booth is an active trade unionist and so her book is packed with practical advice and information that union reps, and autistic workers, need to improve working lives. Workers are better off in a trade union and this book will help make sure that this is true too for autistic workers. -- Frances O’Grady, General Secretary of the Trade Union CongressAutism Equality in the Workplace has a new employment perspective on autism, which promises to bring out the best in everyone. This book is both a call to action and a highly practical guide to taking effective action. It's useful, entertaining, informative and easy to read. -- Dr Dinah Murray, Coming Out Asperger: Diagnosis, Disclosure and Self-Confidence and Getting IT: Using information technology to empower people with communication difficultiesThis must-have resource is a revelation: full of practical tips and examples that present an exciting new approach to dealing with autism in the workplace. -- Asha Wije, Head of Employment, UnionLineIn this book, Janine Booth takes a refreshing look at the employment of autistic people through using a social model of disability to analyse how working environments can change to make the most out of autistic employees...this book contains very useful insights into common problems faced by autistic people in the workplace, as well as practical strategies for helping with them. Problems cited range from a lack of understanding from colleagues, to inappropriate support from managers. The author goes beyond the concept of reasonable adjustments however, and suggests that society needs to ask fundamental questions about how the work is organised. This book will be of interest to all who want to work toward making society, and workplaces in particular, more autism-friendly. I would highly recommend it to employers, politicians, researchers, and of course autistic people and their families. -- Damian Milton * Aspergers United *Table of ContentsAcknowledgements. Foreword by John McDonnell MP. Introduction. 1. Autism in the Workplace. 2. Ten Barriers in the Way of Autistic Workers. 3. Remove those Barriers. 4. Autism, Work and the Law. 5. Organising for Change. References. Index.

Read more less

Book SynopsisMeet Nikolai - a man with Parkinson's disease. Nikolai invites readers to learn about Parkinson's from his perspective, helping them to understand how Parkinson's affects his daily life and why some tasks can be especially challenging for him. He also gives advice on how to help someone with Parkinson's when they have difficulties with physical movements and memory.This illustrated book is full of useful information and will be an ideal introduction for children from the age of 7, as well as older readers. It will help family, friends and carers better understand and explain the condition, and will be an excellent starting point for group discussions.Trade ReviewAlan M. Hultquist provides a wealth of accessible information about a very complicated disease through the eyes of Nikolai, a man with Parkinson's disease. This book is a great guide to share with family, friends and colleagues looking for personal insight into this illness. -- Diane L. Church, PhD, Coordinator, American Parkinson Disease Association Information and Referral Center, Dartmouth-Hitchcock Medical CenterTable of ContentsAcknowledgements. 1. Introducing Nikolai, who has Parkinson's disease. 2. Parkinson's disease is a medical problem. 3. Shaking. 4. Moving slowly and stiff muscles. 5. Balance. 6. Freezing. 7. Memory. 8. Organization. 9. Sleep. 10. The treatments aren't perfect. 11. Exercise and being positive. 12. Feelings and pain. 13. Ways people can help. 14. More information about Parkinson's disease. 15. Words to know. 16. Some helpful materials. 17. Some exercise resources. 18. International websites.

Read more less

Book SynopsisWith increasing numbers of students with invisible disabilities attending college and university, faculty and staff find themselves faced with new challenges. This practical handbook provides lecturers, tutors, disability services, and administrative staff with an overview of the invisible disabilities they may encounter, dispelling common myths and offering practical advice to support the needs of these students.Students with invisible disabilities are often academically talented but struggle with certain aspects of higher education such as keeping track of appointments or maintaining concentration in lecture halls. By providing detailed information on a range of disabilities including autism, AD/HD, dyslexia, OCD, and affective disorders, this book facilitates a better understanding of the unique needs of these students and what their strengths and limitations may be. With ideas for adapting teaching methods, offering suitable accommodations, and improving institutional policy, this is vital reading for all university faculty and staff.Trade ReviewSupporting College and University Students with Invisible Disabilities provides clear and focused explanations of important concepts in the field of disability. This is information that all administrators and faculty should know when working with students with invisible disabilities. The chapters provide necessary legal explanations, address the myths around invisible disability, and provide useful guides and strategies to help administrators and faculty work with students. As an administrator and faculty member, I found this text invaluable. I highly recommend it. -- K. Alex Ilyasova, Director of the Professional and Technical Writing program in the English Department at the University of Colorado at Colorado SpringsThis book is an invaluable guide for understanding and including students with disabilities in post-secondary institutions. The descriptive information about developmental and emotional issues truly enables the reader to identify with someone struggling with a particular issue, while simultaneously learning scientific and practical applications. The author convincingly identifies the social imperative to improve the way we include students with learning and emotional challenges, and offers provocative ideas for institutional changes that feel doable and make sense. -- Sarita Freedman, PhD, Licensed Psychologist and author of Developing College Skills in Students with Autism and Asperger's SyndromeIn this book, Dr. Christy Oslund uses academic research, pedagogical experience, and common sense to help faculty, administrators, and staff in academic settings navigate one of the most prevalent issues in higher education today: understanding and accommodating invisible disabilities. Employing a gentle humor immediately relatable to other educators, Oslund provides practical information on how these invisible disabilities affect students, parents, and colleagues while providing actionable ideas for making campuses better environments for everyone. -- Casey J Rudkin, PhD, Department of Writing, Linguistics and Creative Process, Western Connecticut State UniversityThis book should be required reading for all higher education instructors. In thoughtful yet practical terms, Dr. Oslund illustrates how to recognize and respond to diverse learners, which is an ethical and moral necessity too often neglected during new teacher orientations and the competing demands of ongoing professional life. -- Dr. Moe Folk, Assistant Professor of English, Kutztown University of PennsylvaniaTable of ContentsIntroduction. 1. Dispelling Myths. 2. How Legalities and New Students will Change Post-Secondary Work. 3. Autism Spectrum Disorder including Asperger's Syndrome. 4. Attention Deficit/Hyperactive Disorder. 5. Language Processing Disorders including Dyslexia. 6. Generalized Anxiety Disorder and Obsessive Compulsive Disorder. 7. Affective/Mood Disorders. 8. Universal Design and Lecture Hall Based Classes. 9. Universal Design in the Smaller Classroom. 10. Institutional Policy. References.

Read more less

Book Synopsis

Read more less

Book SynopsisI was written off is an insight into the lives of six talented women: their dreams and aspirations, achievements and constant struggles and the challenges they faced in Pakistan. Through their real-life stories, author Dr Talat Azad presents a snapshot of how these inspirational women, against all odds, overcame their disabilities and today are an example of the resourcefulness of the human spirit and what can be achieved with resolve and determination. “I am passionate that these real-life stories be heard”, says Dr Talat, “for they turn the spotlight on to the rights of the disabled within Pakistan and the world.” “These women are an example to anyone, telling them that despite their circumstances, not to give up but to take hope and push through.”

Read more less

Book SynopsisJohn Barton used to live in the non-disabled world. Then he developed symptoms of an obscure inherited condition that affected his mobility, closely followed by Parkinson’s disease. And suddenly he found himself propelled into the kingdom of the disabled. There are two worlds, he writes: ‘In one lies power, privilege and validity, in the other, the supposed lack, shame and misery of the invalids. The barriers that separate them – physical, political and psychological – diminish us all. They cripple our societies.’ This is a book not about disability but about our shared humanity. Barton takes us on a journey through history, politics, sociology, medical science and psychology, to explore the meanings of disability. Why do we, as a species, find it so hard to share our common world with people who are different from us? When you meet a disabled person in the street, socially, or in your work, do you pass the Humanity Test? Read this book. You may learn something.Trade Review'This is a wise and fascinating account, written accessibly by someone who is a reliable guide to the worlds of disability and psychotherapy, because it’s exactly where he lives. I trusted him immediately and recommend this book to all.' Tom Shakespeare, Professor of Disability Research, London School of Hygiene and Tropical Medicine – 'The Humanity Test is a great book. John Barton has found a balance between being candid and learned about disability. This book acknowledges the emotional aspects of disability in an sensitive and intelligent manner. Each chapter is an accessible primer on interesting and relevant topics relating to disability, while bringing everything together in a carefully structured argument for social justice. There are many different ways of thinking about disability, Barton manages to acknowledge this while finding universalities for all disabled people.' Josh Hepple, disability equality activist and consultant – 'Barton shows how disability exposes us to ourselves in all our vulnerability, loneliness, incompetence and fear of disappearing. His research demonstrates how this can paradoxically lead to a deeper, more soulful humanity, so lacking in our contemporary world. The Humanity Test should be part of all therapeutic training.' Professor Emmy van Deurzen, existential psychotherapist and writer, Principal of the New School of Psychotherapy and Counselling and Director of the Existential AcademyTable of ContentsPreface, 1. Introduction: Failing the Humanity Test, 2. Biography: Getting on my nerves, 3. Disability: Who and what is disabled?, 4. Therapy: The search for a soulful life, 5. Spirituality: The transcendental turn, 6. Society: Uncivilization and its discontents, 7. Humanity: Passing the test

Read more less

Book SynopsisFor Satyadasa the Buddhist path has been fulfilling and often joyous, but also full of doubts and obstacles. What does it mean to be a Buddhist in the West in the twenty-first century? And is being born with one hand a curse - or a blessing? "I'm just pretending to be a Buddhist. I'm only on this solitary retreat because I've heard it's a good idea ... successful people don't need to meditate in damp huts ... they go on proper holidays. I am not successful, ergo, here I am."Trade ReviewThis beautifully written memoir goes surprisingly deep because it is so exceptionally honest....' - Vishvapani Blomfield, Buddhist contributor to BBC's Thought for the Day; '...absolutely wonderful - there were times when I laughed out loud, it's utterly delightful, very funny, touching, full of gorgeous details and wonderful characters.' - Mimi Khalvati, poet and founder of The Poetry School; '...both profound and moving as well as hilariously funny in places.... I recommend it wholeheartedly.' - Vidyamala Burch, OBETable of ContentsAbout the author xi Publisher's acknowledgements xii Preface to the second edition xiii 1 Stumped 1 2 The breakfast table 10 3 Ontology 25 4 Out of my head 44 5 A long way to go 60 6 Buddhists in Bethnal Green 71 7 Very strange, very okay 83 8 Cult 91 9 Freedom within 103 10 Moon metaphors 111 11 My guru reads the Daily Telegraph 128 12 Funny teeth 137 13 The Middle Way 147 14 Cats and dogs 163 15 After the ecstasy, the laundry basket 174 16 On solitary 181 17 It makes sense at every level, except the one on which I live 190 18 Prosthetics 205 19 We are where we are 217 20 Big mind 230 21 Making merit 242 22 In the bardo 255 23 Death and rebirth 262 24 Lineage 279 Author's Note 292

Read more less

Book SynopsisDementia presents immense challenges – both for individuals as well as for society as a whole. More than 35 million people all over the world currently live with dementia, a number that is expected to double by 2050. This also has implications for architecture and urban planning because dementia often affects people’s sense of orientation and their ability to perceive space. How can homes, apartments, public buildings, outdoor spaces, neighbourhoods and cities, as well as environments and infrastructure, be designed to meet the needs of people with dementia as well as those of their caregivers? And can a consideration of the problems of dementia lead to a better understanding of space that can improve architecture and the built environment for us all? This book addresses these and other questions in a series of professional essays that examine the specific requirements for different disciplines. In addition, international case study projects illustrate the breadth of current actual solutions. The book is intended as a guide for all those involved in the design and planning process – architects, interior designers, engineers, town planners, local authorities and clients – and as a reader for the users themselves: for people with dementia, their family and friends, and all those in their social environment.

Read more less

Book SynopsisEveryone has the right a standard of living adequate for ... health and well-being..., including food, clothing, housing and medical care and necessary social services, and the right to security in the event of ... sickness, disability, widowhood, old age.... Universal Declaration of Human Rights , Articles 2, 22, and 25. There are an estimated one billion people, or 15 percent of the world's population, living with a disability, according to the World Health Organization. Despite this, people with disabilities face barriers to inclusion and their needs are often given low priority. Women and children with disabilities are particularly vulnerable to discrimination. They experience multiple discriminationboth from their disability and their age or gender. In many parts of the world, it is common practice to isolate, abuse, and deny basic human rights to these particularly vulnerable groups.

Read more less

Book SynopsisTrade Review"Winner of the Catholic Media Book Award, History Category""An excellent demonstration of what is possible when one marshals the skills of a historian of religion to 'make room for the creative apperception of sickness and disability beyond the measure of the norm'."---Mark Brians, Reading Religion

Read more less

Book SynopsisA radical exploration of disability praxis from an experienced disability activistTrade Review'A masterful intervention in disability theory and praxis that is particularly pertinent for an age of austerity, pandemic, and rising living costs.' -- Robert Chapman, author of 'Empire of Normality: Neurodiversity and Capitalism''[A] brilliant and much needed contribution to current debates in Disability Politics - offering a timely corrective to the most recent approaches to disability that have taken a neoliberal turn'. -- Ioana Cerasella Chis, social researcher, University of Birmingham'An essential read for the activist and the lay person who is interested in disability. Bob offers a Marxist materialist critique, identifying the limitations of the movement's emphasis on decontextualised legal rights rather than a deeper resistance to wider oppression of disabled people within capitalist society.The book clarified a lot of the main issues for me.' -- Marian Brooks-Sardinha, carer and retired lecturer'Look no further for a comprehensive analysis of the disabled movement which also intelligently looks at how disability can fit into the modern world.' -- Josh Hepple, activist, writer, and Disability Equality TrainerTable of ContentsPart I: Are there four cornerstones of disability politics? 1. The first cornerstone: the fundamental principles of disability 2. The second cornerstone: the self-organisation of disabled people 3. The third cornerstone: self-determination, deinstitutionalisation and promotion of self-directed living 4. The fourth cornerstone: disability culture and identity Part II: Towards a new disability praxis? 6. Impairment and oppression: the battleground reviewed 7. Location of impairment effects within disability politics: interrogating impairment effects and impairment reality 8. Disability praxis: some unanswered questions 9. Developing a radical eco-social approach towards producing and sustaining community-based services 10. From the ashes: a new disability praxis?

Read more less

Book SynopsisTrade Review"The Capacity Contract brings much-needed insights to both political theory and disability studies. Its original analysis calls for the fuller recognition of the contributions of the intellectually disabled and their social inclusion as citizens."—Kristin Bumiller, Amherst College"Most political theorists would agree with Rawls that citizens need to possess cognitive capacities ‘within some normal range,’ but Stacy Clifford Simplican argues that such a ‘capacity contract’ is wrong. She provokes us to disrupt these norms."—Joan Tronto, University of Minnesota"A very interesting read."—Catholic Medical Quarterly"Simplican presents a rich analysis of the role of capacity in classic political philosophy and offers a significant contribution to the field. "—Disability Studies Quarterly"The Capacity Contract should be required reading not just for political theorists but for everybody conscientious about being alerted to unconscious patterns of bias and exclusion in their everyday lives and practices."—The Review of PoliticsTable of ContentsContentsAbbreviationsIntroduction: Anxiety, Democracy, and Disability1. Locke’s Capacity Contract and the Construction of Idiocy2. Manufacturing Anxiety: The Medicalization of Mental Defect3. The Disavowal of Disability in Contemporary Contract Theory4. Rethinking Political Agency: Arendt and the Self-Advocacy Movement5. Self-Advocates and Allies Becoming EmpoweredAcknowledgmentsNotesIndex

Read more less

Book Synopsis

Read more less

Book SynopsisJonathan Sterne offers a sweeping cultural study and theorization of impairment, in which experience is understood from the standpoint of a subject that is not fully able to account for itself.Trade Review“In this intimate critical phenomenology, Jonathan Sterne shows us that the agential subject of disability studies is interpretive, nonstandard, somewhat unreliable, and nevertheless political. Diminished Faculties is at once an account of the lived experience of impairment and an inventory of what it can engender. Crip humor, technological hacks, imaginary archives, and material metaphors form the myriad registers of Sterne's authorial voice.” -- Aimi Hamraie, author of * Building Access: Universal Design and the Politics of Disability *“Offering a compelling account of the phenomenology of impairment, this fascinating, brilliant, and witty book will take disability studies in at least three new directions.” -- Michael Bérubé, author of * The Secret Life of Stories: From Don Quixote to Harry Potter, How Understanding Intellectual Disability Transforms the Way We Read *“With its capacious, unpressured mode of being, theorizing, and storytelling, this profound book teaches us how to think and how to be.” -- Kathleen Stewart, coauthor of * The Hundreds *"Diminished Faculties is a lyric, genre-bending book, that is forcefully argued, rendered beautifully, and will open the path for further research. It is deeply generous both to reader and future scholar, as Sterne’s work always is. But additionally, this is a book that so many have needed, and need now, a way of situating the present emergency in a much longer, political history." -- Hannah Zeavin * boundary 2 *"A new book by Sterne is a seismic event, an idea drop so heavy that it takes time to fully process. Sterne is preternaturally skilled at taking apart prosaic, everyday objects . . . connecting them to history and culture and formulating elegant arguments that make you see and hear the world in new ways. His scholarship is rigorous, but he also maintains a fluid, approachable style that isn’t dry, as much academic prose tends to be. . . . His wide-ranging, cross-disciplinary outlook is not only instructive, but also empowering and inspiring." -- Geeta Dayal * 4Columns *"An intimate and rigorous journey, indispensable for anybody who wants to engage with the issue of disability in media and reflect on its importance for organisations, accessibility and inclusion." -- Domenico Napolitano * punt0org *"So often disabled people are expected to clarify to others what is wrong with them, a pedagogical task that more sophisticated critical explorations of disability can’t quite accomplish. But through his multi-genre approach, Sterne is able to assert and justify his existence while studying the cultural and technological forces that shape it. This is why it’s gratifying to read disability scholarship written by disabled scholars." -- Sophia Stewart * The Baffler *"A triumph from beginning to end. . . . The use of humility and humor, specifically sourced from the collective and individual lived experiences of disabled people (i.e. crip humor), is a major strength of the manuscript. Sterne is also skillful at bringing disability scholars into conversation with one another and engaging readers interactively as interlocutors." -- Meryl Alper * New Media & Society *"A thoughtful analysis of originality and imagination in the midst of so-called diminished faculties. . . . Sterne’s exploration of what constitutes valued labor within the academy is particularly illuminating. Sterne also provides useful resources on impairment theory and extensive notes and references providing an excellent foundation for future research in the subject area." -- Nancy Hansen * H-Disability, H-Net Reviews *"Diminished Faculties offers a new theoretically and methodologically accessible impairment theory as a political phenomenology of bodies and technologies. The book provides a rigorous study of technology, hearing, and voice with respect to impairment. In addition, Sterne engages with his own lived experiences of diminished faculties in speech, voice, hearing, and the feeling of wellness. . . . The book is not only insightful, but also funny and quite quirky." -- Slava Greenberg * Film Quarterly *"Sterne’s exploration of experiences of speech and hearing across theory, autoethnography, art practice, and activism makes Diminished Faculties a rigorous yet personal account of impairment as an inherent part of human embodiment." -- Dorothy R. Santos * Public *Table of Contents1. Degrees of Muteness 1 2. Meet the Dork-o-Phone 41 3. In Search of New Vocalities: An Imaginary Exhibition 69 4. Audile Scarification: On Normal Impairments 117 5. There Are Never Enough Spoons 157 Impairment Theory: A User's Guide 193 Credits 209 Notes 217 Bibliography 249 Index 281

Read more less

Book SynopsisWhat does the term "reading" mean? Matthew Rubery's exploration of the influence neurodivergence has on the ways individuals read asks us to consider that there may be no one definition. This alternative history of reading tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their ability to make sense of the printed word: from dyslexia, hyperlexia, and alexia to synesthesia, hallucinations, and dementia. Rubery's focus on neurodiversity aims to transform our understanding of the very concept of reading. Drawing on personal testimonies gathered from literature, film, life writing, social media, medical case studies, and other sources to express how cognitive differences have shaped people's experiences both on and off the page, Rubery contends that there is no single activity known as reading. Instead, there are multiple ways of reading (and, for that matter, not reading) despite the ease with which we use the term. Pushing us to rethink what it means to read, Reader's Block moves toward an understanding of reading as a spectrum that is capacious enough to accommodate the full range of activities documented in this fascinating and highly original book. Read it from cover to cover, out of sequence, or piecemeal. Read it upside down, sideways, or in a mirror. For just as there is no right way to read, there is no right way to read this book. What matters is that you are doing something with it—something that Rubery proposes should be called "reading."Trade Review"By constructing a detailed map of mis-reading, Rubery argues for the value of non-normative reading experiences. Some differences are disabling, he recognizes, but others make visible aspects of reading that go unnoticed and unappreciated when they function smoothly."—Paul Armstrong, author of Stories and the Brain"Rubery uncovers the hidden history of neurodiverse reading (and non-reading). Drawing upon everything from clinical studies to life writing, this is a brilliant and remarkably original work that challenges and subverts a whole set of received wisdoms about how readers engage with books. After Reader's Block, you will never again make cozy assumptions about how and why people read."—Shafquat Towheed, coeditor of The History of Reading"An inclusive, beautifully formulated invitation to think of reading as a cluster of practices as prolific as the minds and the texts nourished in their combination. Rubery is one of the most sensitive and original scholars working with literature today."—Christina Lupton, author of Love and the Novel"This is a fascinating, innovative, and skillful book which presents its deep research and learning fluently and lightly. Thought-provoking, timely, and moving, Reader's Block is essential reading for those interested in disability studies and the history of the book."—Sophie Ratcliffe, author of The Lost Properties of Love"A thoughtful and timely survey of neuro-divergent readers' singular, complex, sometimes fraught relationship with the written word."—Daniel Tammet, author of Every Word is a Bird We Teach to Sing"Rubery gives us fresh eyes to grasp the semi-miraculous nature of the reading act in all its complexity and potential for transforming the life of every reader and the species itself."—Maryanne Wolf, author of Reader, Come Home"By its very nature, Reader's Block is designed for casual reading—and particularly for people interested in science, history, literature and neurodiversity."—Matthew Rozsa, Salon"Thinking about reading in terms of the different reading behaviors these essays about atypical readers document can help one achieve a broader, more inclusive understanding of what read actually means.... Recommended."—J. F. Andrews, CHOICE"Matthew Rubery's... remarkably well-researched catalogue of neurodivergent reading experiences reveals how many different ways brains can engage with texts, demonstrating that this seemingly quotidian activity is neither unitary nor widely understood."—Timothy Aubry, American Literary HistoryTable of ContentsIntroduction: The Unideal Reader 1. Dyslexia 2. Hyperlexia 3. Alexia 4. Synesthesia 5. Hallucinations 6. Dementia Epilogue

Read more less

Book Synopsis“All too often,” wrote disabled architect Ronald Mace, “designers don’t take the needs of disabled and elderly people into account.” Building Access investigates twentieth-century strategies for designing the world with disability in mind. Commonly understood in terms of curb cuts, automatic doors, Braille signs, and flexible kitchens, Universal Design purported to create a built environment for everyone, not only the average citizen. But who counts as “everyone,” Aimi Hamraie asks, and how can designers know? Blending technoscience studies and design history with critical disability, race, and feminist theories, Building Access interrogates the historical, cultural, and theoretical contexts for these questions, offering a groundbreaking critical history of Universal Design. Hamraie reveals that the twentieth-century shift from “design for the average” to “design for all” took place through liberal political, economic, and scientific structures concerned with defining the disabled user and designing in its name. Tracing the co-evolution of accessible design for disabled veterans, a radical disability maker movement, disability rights law, and strategies for diversifying the architecture profession, Hamraie shows that Universal Design was not just an approach to creating new products or spaces, but also a sustained, understated activist movement challenging dominant understandings of disability in architecture, medicine, and society.Illustrated with a wealth of rare archival materials, Building Access brings together scientific, social, and political histories in what is not only the pioneering critical account of Universal Design but also a deep engagement with the politics of knowing, making, and belonging in twentieth-century United States.Trade Review"Building Access is a seminal text that will be received with acclaim and become well-known for its reconstruction of how we think about access, disability, and design."—Rob Imrie, Goldsmiths University of London"Aimi Hamraie gifts us with a rare kind of book, one that skillfully weaves critical disability studies together with technology studies and architectural history to unpack the American project of designing and making built environments purportedly usable by all. They ask us to think harder about who counts as the everyone of Universal Design, and how knowledge of body variability is created. Crucially, the book probes the ways disability access politics is deeply entangled with race through whiteness, bodily norms, activism, and practices material segregation. Anyone who cares about the built environment, technoscience, or disability politics will want to read this important book."—Michelle Murphy, University of Toronto"Building Access is a persuasive, beautiful, and intrepidly researched book."—New Books Network"Hamraie’s skill in detailing the struggle, triumphs and ironies of this history makes this book a valuable addition to any critical architecture reading list."—Journal of Design HistoryTable of ContentsContentsPrefaceIntroduction: Critical Access Studies1. Normate Template: Knowing-Making the Architectural Inhabitant2. Flexible Users: From the Average Body to a Range of Users3. All Americans: Disability, Race, and Segregated Citizenship4. Sloped Technoscience: Curb Cuts, Critical Frictions, and Disability (Maker) Cultures5. Epistemic Activism: Design Expertise as a Site of Intervention6. Barrier Work: Before and After the Americans with Disabilities Act7. Entangled Principles: Crafting a Universal Design MethodologyConclusion: Disability JusticeAcknowledgmentsNotesIndex

Read more less

Book SynopsisIn Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rap

Read more less

Book SynopsisDeveloping a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling, Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood. Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic—texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life. Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as “quality of life” to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts.Trade Review"Unraveling is a work of cultural reimagination. Matthew J. Wolf-Meyer knits together neurological, psychiatric, and neuroscientific theories about ‘the brain’ in this broad-based inquiry into ‘communicative disorders.’ He insists that the many possibilities and blocked channels of communication depend on the interdependency of subject, personhood, family, community, and polity. He joins leading scholars in disability studies and feminist theory, illuminating the thoroughly social nature of all embodied communication and thus its ethical and political reliance on making a world where differences are welcome."—Rayna Rapp, New York University"This is a book for our times—a deep dive into the problematics of personhood in relationship to the neurological. This book, alluringly readable, vigorously challenges our conceptions of what makes a human being human and advocates for an anti-neoliberal vision of complex selfhood that is not dependent on predictable norms. While this subject could lend itself to predictable advocacy, Matthew J. Wolf-Meyer stays ahead of the reader's assumptions and provides a new and thoughtful way of conceiving big questions concerning the very definitions of life, thought, value, and ethics. A must read for anyone interested in neurodivergence and disability in general."—Lennard J. Davis, author of Obsession: A HistoryTable of ContentsContentsPreface: Blind-Man-and-WorldIntroduction: Let’s Build a New Nervous System1. Neurological Subjectivity: How Neuroscience Makes and Unmakes People through Neurological Disorder2. Symbolic Subjectivity: How Psychoanalysis and the Communication of Meaning Disable Individuals3. Materialist Subjectivity: How Technology and Material Environments Make Personhood Possible4. Cybernetic Subjectivity: The Fusion of Body, Symbol, and Environment in the Facilitated Person5. Facilitated Subjectivity, Affective Bioethics, and the Nervous SystemEpilogue: Living and Dying in the Nervous System AcknowledgmentsNotesIndex

Read more less

Book SynopsisDisability Studies and the Inclusive Classroom integrates knowledge and practice from the fields of disability studies and special education to provide readers with a comprehensive understanding of inclusive education. Now in its third edition, this critical volume has been revised and updated to include expanded discussion of disability models and contemporary perspectives on disability. Each chapter features a dilemma to capture the complexities of the field of educational practice to inspire critical thinking and contemplation of inclusive education. Table of ContentsPart I: Disability and Society 1. What is Inclusive Education? 2. Perspectives on Disability 3. Cultures of Exclusion 4. Cultures of Inclusion Part II: Disability in Schools 5. Overview of How Schools Respond to Student Diversity 6. Definitions of Disability in Schools 7. Collaborative Planning and Practice Part III: Constructing an Inclusive Classroom 8. Organizing Instruction for Inclusive Education 9. Addressing Disability in Inclusive Practice 10. Including Disability in Curriculum

Read more less

Book SynopsisThis edition bring up-to-date the author's seminal study of mental retardation. Focusing on the role of stigma and the efforts of the mentally handicapped to pass normal lives, the text explores such areas as social competence, independence and quality of life.Table of ContentsACKNOWLEDGMENTS FOR THE REVISED EDITION INTRODUCTION TO THE REVISED EDITION FOREWORD PREFACE 1 The Study and Its Background 2 Detailed Portraits of Selected Persons 3 Some Central Concerns of "Life on the Outs" 4 Passing and Denial: The Problem of Seeming To Be Normal 5 The Benevolent Conspiracy: The Role of the Benefactor 6 Stigma and the Cloak of Competence 7 The Follow-up Studies 8 Conclusion BIBLIOGRAPHY INDEX

Read more less

Book SynopsisIn The Invented State, Emily Thorson argues that a problematic and understudied aspect of political misinformation reflects widespread public misperception about what the government does. Because much of public policy is invisible to the public, there is fertile ground for false beliefs to flourish, leading to the creation of what Thorson terms the invented state: systematic misperceptions about public policy. However, people get the facts wrong not because they are lazy, stupid, or blinded by partisan loyalty. Rather, misperceptions are created when three conditions are met: when citizens have incomplete information about an issue, when their own biases color their understanding of it, and when they feel that the issue is important. In other words, the invented state is created not just by exposure to explicit misinformation, but also by individuals'' cognitive errors. Correcting these policy misperceptions is highly effective at reducing false beliefs. In addition, providing people w

Read more less

Book Synopsis

Read more less

Book SynopsisDisability history exists outside of the institutions, healers, and treatments it often brings to mind. It is a history where the disabled live not just as patients or cure-seekers, but rather as people living differently in the world--and it is also a history that helps define the fundamental concepts of identity, community, citizenship, and normality. The Oxford Handbook of Disability History is the first volume of its kind to represent this history and its global scale, from ancient Greece to British West Africa. The twenty-seven articles, written by thirty experts from across the field, capture the diversity and liveliness of this emerging scholarship. Whether discussing disability in modern Chinese cinema or on the American antebellum stage, this collection provides new and valuable insights into the rich and varied lives of the disabled across time and place.Table of ContentsAcknowledgments List of Contributors Introduction Michael Rembis, Catherine J. Kudlick, and Kim E. Nielsen Part I. CONCEPTS AND QUESTIONS 1. The Perils and Promises of Disability Biography Kim E. Nielsen 2. Disability History and Greco-Roman Antiquity C.F. Goodey and M. Lynn Rose 3. Intellectual Disability in the European Middle Ages Irina Metzler 4. Disability in the Pre-modern Arab World Sara Scalenghe 5. Disability and the History of Eugenics Michael Rembis 6. Social History of Medicine and Disability History Catherine J. Kudlick 7. Material Culture, Technology, and the Body in Disability History Katherine Ott 8. Designing Objects and Spaces: A Modern Disability History Bess Williamson 9. Documents, Ethics, and the Disability Historian Penny Richards and Susan Burch Part II. WORK 10. Disability and Work during the Industrial Revolution in Britain Daniel Blackie 11. Disability and Work in South Asia and the United Kingdom Jane Buckingham 12. Disability and Work in British West Africa Jeff Grischow 13. Race, Work, and Disability in Progressive Era United States Paul Lawrie 14. Organized Labor and Disability in Post-World War II United States Audra Jennings Part III. INSTITUTIONS 15. Deaf-blindness and the Institutionalization of Special Education in Nineteenth-Century Europe Pieter Vierestraete and Ylva Söderfeldt 16. Disability and Madness in Colonial Asylum Records in Australia and New Zealand Catharine Coleborne 17. Madness, Transnationalism, and Emotions in Nineteenth and Early-Twentieth Century Australia and New Zealand Angela McCarthy 18. Institutions for People with Disabilities in North America Steven Noll Part IV. REPRESENTATIONS 19. Picturing Disability in Eighteenth-Century England David M. Turner 20. Disability, Race, and Gender on the United States Antebellum Stage Jenifer L. Barclay 21. Polio and Disability in Cold War Hungary Dora Vargha 22. Monstrous Births, Birth Defects, Unusual Anatomy, and Disability in Europe and North America Leslie J. Reagan 23. Disability in Modern Chinese Cinema Steven L. Riep Part V. MOVEMENTS AND IDENTITIES 24. Transnational Interconnections in Nineteenth Century Western Deaf Communities Joseph J. Murray 25. The Disability Rights Movement in the United States Lindsey Patterson 26. The Rise of Gay Rights and the Disavowal of Disability in the United States Regina Kunzel 27. Disabled Veterans and the Wounds of War David A. Gerber Index

Read more less

Book SynopsisIf teachers want to educate deaf learners effectively, they have to apply evidence-informed methods and didactics with the needs of individual deaf students in mind. Education in general -- and education for deaf learners in particular -- is situated in broader societal contexts, where what works within the Western world may be quite different from what works beyond the Western world. By exploring practice-based and research-based evidence about deaf education in countries that largely have been left out of the international discussion thus far, this volume encourages more researchers in more countries to continue investigating the learning environment of deaf learners, based on the premise of leaving no one behind. Featuring chapters centering on 19 countries, from Africa, Asia, Latin America, and Central and Eastern Europe, the volume offers a picture of deaf education from the perspectives of local scholars and teachers who demonstrate best practices and challenges within their respective regional contexts. This volume addresses the notion of learning through the exchange of knowledge; outlines the commonalities and differences between practices and policies in educating deaf and hard-of-hearing learners; and looks ahead to the prospects for the future development of deaf education research in the context of recently adopted international legal frameworks. Stimulating academic exchange regionally and globally among scholars and teachers who are fascinated by and invested in deaf education, this volume strengthens the foundation for further improvement of education for deaf children all around the world.Table of ContentsChapter 1. Deaf Education Beyond the Western World: An Introduction Harry Knoors, Maria Brons, and Marc Marschark Chapter 2. Contemporary Practices in Deaf Education in Nigeria Julius Abiola Ademokoya Chapter 3. The Evolution of Deaf Education in Namibia Beausetha J. Bruwer and Pamela J. February Chapter 4. Deaf Education in Ghana Alexander Mills Oppong and Daniel Fobi Chapter 5. Practices and Challenges in Deaf Education in Kenya Peter Oracha Adoyo and Everline Nyokabi Maina Chapter 6. Deaf Education in Ethiopia Tadesse Abera Tedla Chapter 7. The State of Educating Deaf and Hard of Hearing Learners in Inclusive Classrooms in Tanzania Bernadette Namirembe Chapter 8. Discourses in Deaf Education Policies in Zimbabwe Martin Musengi Chapter 9. Educational Challenges for Deaf and Hard-of-Hearing Children in Morocco Abdelhadi Soudi and Corinne Vinopol Chapter 10. Deaf Education in Jordan: Current Situation, Obstacles, and Future Aspirations Eman Al-Zboon Chapter 11. Education and Services for Deaf People in Viet Nam Nguyen Thi Hoa and James Woodward Chapter 12. 'Free But Not Fair': A Critical Review of Access to Equal Education to Deaf Children in Sri Lanka Shyamani Hettiarachchi, M. Dumini K. de Silva, Thilanka Wijesinghe, Brayan Susantha, Geshani Amila, Pubhoda Sarani, and Mohamed Rasak Chapter 13. Deaf Education in Taiwan: History, Policies, Practices and Outcomes Chun Jung Liu, Hsiu Tan Liu, and Jean F. Andrews Chapter 14. Deaf Education: A Bird's Eye View of India Kalyani Mandke and Prerna Chandekar Chapter 15. Deaf Education and The Use of Sign Language in China Dingqian Gu, Ying Liu, and Xirong He Chapter 16. Best Practices and Challenges of Deaf Education in Mexico Mercedes Obregón Rodríguez and Maribel Valero Weeke Chapter 17. When Inclusion Jeopardizes the Learning Opportunities of Deaf Students: The Case of Chile María Rosa Lissi, Christian Sebastián, Martín Vergara, and Cristián Iturriaga Chapter 18. Deaf Education in Brazil: Contexts, Challenges, and Perspectives Cátia de Azevedo Fronza, Lodenir Becker Karnopp, and Marjon Tammenga-Helmantel Chapter 19. Deaf Education in Croatia: Challenges and Perspectives Iva Hrastinski Chapter 20. More Alike than Different: Educational and Social Aspirations and Paths to Successful Adulthood of Polish Deaf and Hard of Hearing Adolescents Ewa Domagala-Zysk Chapter 21. Deaf Education Beyond the Western World: Knowledge Exchange, Good Practices, and Challenges Maria Brons, Harry Knoors, and Marc Marschark

Read more less

Book SynopsisTrade ReviewNews nerds are the data journalists, news app developers, and web designers transforming how news stories are discovered and told. Allie Kosterich skillfully uses interviews, employment histories, trade press coverage, and conference proceedings to describe how these newsroom innovators have augmented reporting and changed accountability reporting for the better. If you've ever wondered who's behind the graphs, stats, and apps at news sites, this is the book that tells their tale. * James T. Hamilton, Hearst Professor of Communication, Stanford University *News Nerds is an ambitious and exciting book that reveals just how much the profile, roles, and skills of the professional journalist has fundamentally changed. Through an innovative mix of network career analysis, interviews, and analysis of the trade press, Allie Kosterich shows how news organizations have increasingly fashioned those wielding data, analytics, and technological skills into journalists creating new forms of journalism. Kosterich shows us how this has augmented the institution of journalism in the U.S., with sweeping implications for how the press navigates changing economic and technological contexts and its increasingly contested relationship with the public. * Daniel Kreiss, Edgar Thomas Cato Distinguished Professor, UNC Hussman School of Journalism and Media *News Nerds is an engagingly written and methodologically innovative analysis of an important ongoing transformation affecting the institution of journalism. Kosterich brings an incredibly impressive range of data sources and analytical approaches to bear to demonstrate how journalism has been restructuring itself in response to technological and economic change. This is institution-level scholarship of the highest order. * Philip M. Napoli, James R. Shepley Professor of Public Policy and Director of the DeWitt Wallace Center for Media & Democracy, Duke University *The rise of the news nerd is not so much a story of the revenge of the nerds saving journalism through data but is instead a reminder that institutions and professions adapt to change, and change doesn't just happen when new technologies emerge. Kosterich develops the concept of "institutional augmentation," moving beyond tired binaries of change outcomes in organizations, a theoretical contribution relevant to all industries that find themselves in the throes of technological upheaval. * Nikki Usher, author of News for the Rich, White, and Blue: How Place and Power Distort American Journalism *This book assesses the institutionalization of new types of editorial positions in US news organizations... The book is an excellent companion to Jason Whittaker's Tech Giants, Artificial Intelligence, and the Future of Journalism. Recommended for higher education journalism, mass communication, and visual arts programs. * Choice *Table of ContentsIntroduction: News Nerds Chapter 1: Institutional Change and the Profession of Journalism Chapter 2: Destabilization of Established Journalism Practices Chapter 3: Experimentation and Evaluation in the Profession of Journalism Chapter 4: Legitimization of News Nerds Chapter 5: Diffusion of News Nerds Chapter 6: Institutional Augmentation and the Future of News Nerds Appendix: Data and Methods Notes References Index

Read more less

Book SynopsisIn The Invented State, Emily Thorson argues that a problematic and understudied aspect of political misinformation reflects widespread public misperception about what the government does. Because much of public policy is invisible to the public, there is fertile ground for false beliefs to flourish, leading to the creation of what Thorson terms the invented state: systematic misperceptions about public policy. However, people get the facts wrong not because they are lazy, stupid, or blinded by partisan loyalty. Rather, misperceptions are created when three conditions are met: when citizens have incomplete information about an issue, when their own biases color their understanding of it, and when they feel that the issue is important. In other words, the invented state is created not just by exposure to explicit misinformation, but also by individuals'' cognitive errors. Correcting these policy misperceptions is highly effective at reducing false beliefs. In addition, providing people w

Read more less

Book SynopsisA comprehensive introduction to the concept of the intact mind and how it affects disability policy and practice.The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Emerging largely out of psychoanalytic theory dating back to the end of the 19th century, the intact mind was later amplified in memoirs, where parents wrote of their tireless efforts to free their children from the grip of autism. Though the idea gives hope to parents devastated by a child''s diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families.In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current poliTrade ReviewThis is a fascinating book: It is forthright, it is honest, it is comprehensive, it is evidence-based. Importantly, this work tees up essential discussion of 'inclusion,' and how often it too relies on false hope, and distracts from our urgent need as a society to face the demands of guardianships and life-time supports we should be building for our autism community. * Bryna Siegel, PhD, Founder & Executive Director, Autism Center of Northern California; Professor, Child & Adolescent Psychiatry, University of California (Ret.) *Reading this brave, well-researched book I felt myself making a mental list of all the people to whom I'd recommend it. Lutz shows us the perilous seduction of the 'intact mind,' moving us through historic landmarks to the contested landscape in which we find ourselves today. With clarity of style and argument she shows how rhetoric transforms into policy, harming the very people those policies are meant to help. Her approach is one of deep empathy and understanding for those with severe autism, and their caregivers. * Deborah R. Barnbaum, PhD, author of The Ethics of Autism: Among Them but Not of Them and Professor of Philosophy, Kent State University *Amy Lutz bravely tackles the myth of the intact mind that has become so prevalent in modern autism dialogue. Lutz acknowledges that the intact mind mantra provides families critical 'high octane hope,' but also poignantly emphasizes the real-life consequences of blind adherence to dogma in terms of vastly reduced critical life opportunities for some of the most vulnerable individuals along the autism spectrum. A must-read for anyone truly committed to seeing all the faces of autism and optimizing care and long-term outcomes for everyone. * Lee Elizabeth Wachtel, MD, Professor of Psychiatry, Johns Hopkins School of Medicine *Table of ContentsPART I: THE HISTORY OF THE INTACT MIND Introduction Chapter 1: Valuing the Disabled Child: The Emergence of Disability Parent Memoirs Chapter 2: Whose Fault Is It? Psychoanalysis and the First Autism Parent Memoirs Chapter 3: Is There a "Key"? Biomedical Discourse and Second-Generation Autism Memoirs PART II: THE CASE STUDIES Chapter 4: The Battle Against Sheltered Workshops Chapter 5: The Erosion of Guardianship Chapter 6: The Resurgence of Facilitated Communication Conclusion

Read more less

Book Synopsis

Read more less