Disability: social aspects Books

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Book SynopsisA groundbreaking work that explores human size as a distinctive cultural marker in Western thoughtTrade Review“A compelling and innovative account of why size matters. . . Brings much-needed height and breadth to a neglected field.”—Louisa Yates, THES"A pleasure to read. Vallone constantly pushes her inquiries beyond period- or genre-boundaries to ask broad questions that concern us all, as human beings as well as professional specialists. Big & Small should rank alongside the best, most far-reaching studies of childhood and human culture available today."—Professor Rachel Falconer, University of Lausanne"Size matters. Whether our bodies are classed as "ordinary" or "extraordinary", such evaluations have a major impact on how we move through the world. Lynne Vallone's mediations on bodily size are both delightful and insightful. She has a formidable grasp of literary, scientific, and historical approaches to bodies, which she tackles with political as well as personal engagement. I loved reading this book."—Professor Joanna Bourke, Birkbeck, University of London.​"Big and Small is a fascinating and innovative work which deals with a topic we tend to overlook – size and human measure. Through a careful and thorough analysis of literature, art, and science from the eighteenth century to the present Vallone demonstrates that size matters in all aspects of our lives. Convincing and highly significant, her book will change our views of how we determine all aspects and values of bodies."—Jack Zipes, University of Minnesota"Vallone’s skill in moving between divergent bodies of material with such assured interdisciplinary gusto means that this is something of a magnum opus: the type of major scholarly achievement that only the best kind of critical mind is capable of producing after years of searching inquiry into a very broad range of sources drawn from literature, art history, sociology, and gender studies. An outstanding and resourceful work."—Prof. Joseph Bristow, Distinguished Professor of English, University of California, Los Angeles

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Book SynopsisA much-needed guide to dating--from apps to hooking up, sex, long-term relationships and more--from disabled essayist and author Jessica Slice and bioethicist Caroline Cupp.Disabled people date, have casual sex, marry, and parent. Yet our romantic lives are conspicuously absent from the media and cultural conversation. Sexual education does not typically address the specific information needed by disabled students. Mainstream dating apps fail to include disability as an aspect of one''s identity alongside race, ethnicity, gender identity, and sexual orientation. The few underutilized disability-focused apps are paternalistic and unappealing. Bestselling dating books do not address disability, and the few relationship books marketed to disabled people focus on the mechanics of sex rather than the complex interactions that create the conditions for it.In Dateable, disabled authors Jessica Slice Caroline Cupp team up to address the serious gap in the datin

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Book SynopsisPULITZER PRIZE FINALIST • NEW YORK TIMES BESTSELLER • “Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism.”—Walter Isaacson, #1 New York Times bestselling author of The Code Breaker “Remarkable . . . A riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape.”—The Wall Street Journal (Ten Best Nonfiction Books of the Year) The inspiration for the PBS documentary, In a Different Key In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierc

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Book SynopsisOliver Sacks was born in 1933 in London and was educated at Queen's College, Oxford. He completed his medical training at San Francisco's Mount Zion Hospital and at UCLA before moving to New York, where he soon encountered the patients whom he would write about in his book Awakenings.Dr Sacks spent almost fifty years working as a neurologist and wrote many books, including The Man Who Mistook His Wife for a Hat, Musicophilia, and Hallucinations, about the strange neurological predicaments and conditions of his patients. The New York Times referred to him as 'the poet laureate of medicine', and over the years he received many awards, including honours from the Guggenheim Foundation, the National Science Foundation, the American Academy of Arts and Letters, and the Royal College of Physicians. In 2008, he was appointed Commander of the British Empire. His memoir, On the Move, was published shortly before his death in August 2015.Trade ReviewThe Mind's Eye is about the possibility of recovery and the inexorable decline of the ageing individual. From this collision of incompatible truths, tragedy is made . . . making this Sacks's most powerful book to date. * Sunday Telegraph *Packed with wisdom, humour, extraordinary human stories and reflections on how we all perceive the world . . . He ends with a brilliant discussion of blindness and the ways in which blind people develop visual concepts. Heartily recommended’. * Reader’s Digest *

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Book Synopsis* Why has 'the discursive turn' been sidelined in the development of a social theory of disability, and what has been the result of this?* How might a social theory of disability which fully incorporates the multidimensional and multifunctional role of language be described?* What would such a theory contribute to a more inclusive understanding of 'discourse' and 'culture'?The idea that disability is socially created has, in recent years, been increasingly legitimated within social, cultural and policy frameworks and structures which view disability as a form of social oppression. However, the materialist emphasis of these frameworks and structures has sidelined the growing recognition of the central role of language in social phenomena which has accompanied the 'linguistic turn' in social theory. As a result, little attention has been paid within Disability Studies to analysing the role of language in struggle and transformation in power relations and the engineering oTrade Review"Most new books recycle existing thought, but occasionallya book comes along which offers a new set of ideas and a fresh perspective. This international compilation does both: it provides the familiar alongside the normal." - The Times Educational Supplement "Disability and the Dilemmas of Education and Justice pulls no punches. It is a relentless critique of our current special educational needs system and of those who work in it." - Special Children "A thought provoking and interesting book, that raises many valuable issues. Certainly worth a read for all involved in special education." - Education Review "I have for over 30 years been concerned with the education of students with a variety of disabilities and of various degrees of disability, andbelieved that I had acquired a knowledge of most of theproblems experienced by disabled people. However, after reading the essays containedin this book my eyes have been opened to a myriad of other problems experienced by them, and for me the essays have opened up new avenues of thought on education as it affects disabled students.The writing of this book has long been overdue." - EducationToday "...a must for students...It brings special needs into the wide cultural arena which seems to me to be where it must be located as we moveinto the twenty-first century." - British Educational Research Journal "This book is stronglyrecommendedto anyone involved in special education." - Educational Research "...a book that will inform and enlighten even the most veteran and knowledgeable members of the special education profession...At the same time, it is written in sufficient detail and with enough background information to allow its ideas to be accessible to newcomers or lay readers. Its authors'perspectives are fresh, informed by multiple sources and disciplines." - Qualitative Studies in EducationTable of ContentsSeries editor's prefaceIntroductionreclaiming language in disability studiesPart one: Personal narrativesInside aphasiaThe wind gets in my wayI am more than my wheelsDepressed and disabledsome discursive problems with mental illnessNarrative identity and the disabled selfPart two: The social creation of disability identityWhy can't you be normal for once in your life? From a problem with no name to the emergency of a new category of differenceUnless otherwise stateddiscourses of labelling and identity in coming outCarving out a place to actacquired impairment and contested identityDiscourse and identitydisabled children in mainstream high schoolsTransforming disability identity through critical literacy and the cultural politics of languageTalking 'tragedy'identity issues in the parental story of disabilityPart three: Cultural discoursesStudying disability rhetoricallyModern slogan, ancient scriptdisability in the Chinese languageBodies, brains and behaviourthe return of the three stooges in learning disabilityJoseph F. Sullivan and the discourse of 'crippledom' in progressive AmericaArt and lies? Representations of disability on filmWhat they don't tell people with learning difficultiesFinal accounts and the parasite peopleDisability discourse, the principle of optimization and social changeBiographical notesReferencesIndex.

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Book SynopsisFINALIST FOR THE 2023 PULITZER PRIZE FOR MEMOIR''An exquisite exploration of disability, identity and the human capacity to do (and be) more than we''ve ever dreamed'' Time''Gorgeously, vividly alive'' New York Times''Challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths'' Lit HubBorn with sacral agenesis, a visible congenital disability that affects her stature and gait, Chloé Cooper Jones had always found solace in what she thought of as ''the neutral room'' - a dissociative space in her mind that offered her solace and self-protection, but also kept her isolated. When she became pregnant (disproving her doctor, who had assumed it impossible), something necessary in her started to crack, forcing her to reckon with her defensive positionality to the world and the people in it. This prompted an odyssey across time andTrade ReviewEasy Beauty is bold, honest, and superbly well-written. Chloé Cooper Jones is ruthless in probing our weakest and darkest areas, and does so with grace, humor, and ultimately, with something one seldom finds: kindness and humanity. * André Aciman, author of Call Me By Your Name *Graceful, soul-baring * Melanie Reid, The Times *Gorgeous, vividly alive... In rejecting the dismissive gaze of others, Jones stands in the light of her own extremely able self -- Books of the Year * New York Times *What a gift of a book ... Easy Beauty has the rigor and precision of Joan Didion and Maggie Nelson and a forthright humor and naked truth all its own. * Sarah Ruhl, author of Smile *Perceptive, stylish, and darkly funny, Easy Beauty is an act of grace, and a reckoning. Chloé Cooper Jones is a remarkable writer - I would follow her mind anywhere. * Anna Wiener, author of Uncanny Valley *Chloé Cooper Jones is a writer whose work I don't read, but enter: she weaves her brainy, crackling interior into the sinews of a reality that is forever reminding its participants of the difficulty of living inside a body. Easy Beauty is the most humane book I have read in a long time: in her insistence that we bear witness to each other, Jones calls forth a better, and indeed more beautiful world. I loved this book. * Kristen Radtke, author of Seek You: A Journey Through American Loneliness *I recommend Easy Beauty to anyone who has wanted beauty badly, even without knowing quite what it is, but who could never seem to access it. At least, I'm that sort of anyone, and I could feel and recognize parts of myself in every moment of this book. Chloé Cooper Jones' writing pierces right through and lets a light in. * Mitski, singer-songwriter *In this ambitious and elegant book about seeing and being seen, Chloé Cooper Jones invokes thorny, theoretical material about identity, the social order, and how we measure human value, but her clarity and compassion invite all readers in. She has created a forceful and fresh point of view from which to anatomize power, access, and perception in her precise, unsparing prose. A necessary, relentlessly honest book that feels both of the moment and timeless. * Whiting Foundation Judges citation *Jones is a magnificent guide, fiercely sharp and fiercely human. This book is for anyone who wants to immerse into a world of beauty, who wants to get real about the roots of their desire, and who can't quite kick the habit of admiring the structures-and humans-who harm them. The questions she raises will resound in your head for a long time to come. * Lulu Fisher, author of Why Fish Don't Exist and host of Radiolab *This book is utterly remarkable. I was spellbound by the style, the ideas, the vulnerability, the talent. * Lydia Kiesling, author of The Golden State *Dazzling . . . Chloe Cooper Jones challenges society's rules of attraction with razor-sharp wit and intellect . . .[and) makes a brilliant case for the beauty of complexity * Starred Publishers Weekly *Exquisite. Here Pulitzer finalist Jones reflects on our standards of beauty from the perspective of a disabled woman whose rare congenital condition affects her stature and gait, and leaves her in constant pain. But it's ultimately motherhood that liberates her, and prompts her to re-examine the limitations she has accepted as givens. * O Magazine *Jones challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths. Blending journalism, philosophy, and memoir, it's a book that everyone will be talking about. * Lit Hub *A memoir full of insight as the author tries to wrestle understanding and ownership of herself from a world still eager to assert its sovereignty over the female body. * Jarred McGinnis, author of The Coward *A soul-stretching, breathtaking existential memoir chronicles her reclaiming of body, mind, and self . . . Superlative writing, rendering complex emotion and unparalleled insight in skilfully precise language. Her debut is a game-changing gift to readers. * Booklist, starred review *Despite doctors' dire predictions that she wouldn't live, walk or have children, she has done these things and more. Here, she probes the ways a culture determines a person's value and embarks on a journey to understand the myth of beauty and her own unintentional complicity in it. * Washington Post *The multiple depths that Jones plumbs in Easy Beauty results in a memoir that can't easily be classified. The same can be said for the book's author. Jones is a Pulitzer Prize finalist, a philosophy professor and a writer, who delves into her journey as a daughter, mother, wife and her search for a new way of seeing the world. In other words, her story is about the complexity of the human experience and the questions of identity and belonging that plague us all. * People Magazine *Inspired in part by the shift Jones saw in others' perceptions of her during her pregnancy, Easy Beauty challenges deep-seated assumptions about who gets to be capable, trustworthy, and desirable. * Bustle Magazine *Candid and truth-seeking, this memoir charts the act of refocusing and realigning the ways we view and interpret ourselves * NB Magazine *Achingly felt, Jones's writing is a revelation * Publishers Weekly, Best Books of 2022 *Easy Beauty is an exquisite exploration of disability, identity, and the human capacity to do (and be) more than we've ever dreamed * Time *Touching and often humorous... explores life from the perspective of those who don't conform to conventional beauty standards -- Charlotte Heathcote * Daily Record *Genius... Shifted my understanding of a world I've only experienced while able-bodied -- Best Memoirs of 2022 * Vulture *Moving, incisive... Jones resists sentimentality and is as unsparing of herself as she is of other people, and yet she writes with such graciousness. A wonderful debut -- Tomi Obaro * Buzzfeed News *Gorgeous, concise and often very funny... a gripping memoir about parenting, disabilities and figuring out what to do next... a philosophical masterpiece, written in the tradition of those who see philosophy not as a dry academic subject but as a way of life * Coachella Review *A masterpiece ... Cooper Jones uses the particulars of her own experience to formulate ideas that are at once universally applicable and genuinely profound * Irish Times *

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Book Synopsis''GORGEOUS, VIVIDLY ALIVE'' NEW YORK TIMES''BOLD, HONEST AND SUPERBLY WELL-WRITTEN'' ANDRÉ ACIMAN, AUTHOR OF CALL ME BY YOUR NAME''GRACEFUL AND SOUL-BARING'' MELANIE REID, THE TIMES''WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.'' SARAH RUHL, AUTHOR OF SMILEI am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living.So begins Chloé Cooper Jones''s bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others.It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey acrossTrade ReviewEasy Beauty is bold, honest, and superbly well-written. Chloé Cooper Jones is ruthless in probing our weakest and darkest areas, and does so with grace, humor, and ultimately, with something one seldom finds: kindness and humanity. * André Aciman, author of Call Me By Your Name *Graceful, soul-baring * Melanie Reid, The Times *Gorgeous, vividly alive... In rejecting the dismissive gaze of others, Jones stands in the light of her own extremely able self -- Books of the Year * New York Times *What a gift of a book ... Easy Beauty has the rigor and precision of Joan Didion and Maggie Nelson and a forthright humor and naked truth all its own. * Sarah Ruhl, author of Smile *Perceptive, stylish, and darkly funny, Easy Beauty is an act of grace, and a reckoning. Chloé Cooper Jones is a remarkable writer - I would follow her mind anywhere. * Anna Wiener, author of Uncanny Valley *Chloé Cooper Jones is a writer whose work I don't read, but enter: she weaves her brainy, crackling interior into the sinews of a reality that is forever reminding its participants of the difficulty of living inside a body. Easy Beauty is the most humane book I have read in a long time: in her insistence that we bear witness to each other, Jones calls forth a better, and indeed more beautiful world. I loved this book. * Kristen Radtke, author of Seek You: A Journey Through American Loneliness *I recommend Easy Beauty to anyone who has wanted beauty badly, even without knowing quite what it is, but who could never seem to access it. At least, I'm that sort of anyone, and I could feel and recognize parts of myself in every moment of this book. Chloé Cooper Jones' writing pierces right through and lets a light in. * Mitski, singer-songwriter *In this ambitious and elegant book about seeing and being seen, Chloé Cooper Jones invokes thorny, theoretical material about identity, the social order, and how we measure human value, but her clarity and compassion invite all readers in. She has created a forceful and fresh point of view from which to anatomize power, access, and perception in her precise, unsparing prose. A necessary, relentlessly honest book that feels both of the moment and timeless. * Whiting Foundation Judges citation *Jones is a magnificent guide, fiercely sharp and fiercely human. This book is for anyone who wants to immerse into a world of beauty, who wants to get real about the roots of their desire, and who can't quite kick the habit of admiring the structures-and humans-who harm them. The questions she raises will resound in your head for a long time to come. * Lulu Fisher, author of Why Fish Don't Exist and host of Radiolab *This book is utterly remarkable. I was spellbound by the style, the ideas, the vulnerability, the talent. * Lydia Kiesling, author of The Golden State *Dazzling . . . Chloe Cooper Jones challenges society's rules of attraction with razor-sharp wit and intellect . . .[and) makes a brilliant case for the beauty of complexity * Starred Publishers Weekly *Exquisite. Here Pulitzer finalist Jones reflects on our standards of beauty from the perspective of a disabled woman whose rare congenital condition affects her stature and gait, and leaves her in constant pain. But it's ultimately motherhood that liberates her, and prompts her to re-examine the limitations she has accepted as givens. * O Magazine *Jones challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths. Blending journalism, philosophy, and memoir, it's a book that everyone will be talking about. * Lit Hub *A memoir full of insight as the author tries to wrestle understanding and ownership of herself from a world still eager to assert its sovereignty over the female body. * Jarred McGinnis, author of The Coward *A soul-stretching, breathtaking existential memoir chronicles her reclaiming of body, mind, and self . . . Superlative writing, rendering complex emotion and unparalleled insight in skilfully precise language. Her debut is a game-changing gift to readers. * Booklist, starred review *Despite doctors' dire predictions that she wouldn't live, walk or have children, she has done these things and more. Here, she probes the ways a culture determines a person's value and embarks on a journey to understand the myth of beauty and her own unintentional complicity in it. * Washington Post *The multiple depths that Jones plumbs in Easy Beauty results in a memoir that can't easily be classified. The same can be said for the book's author. Jones is a Pulitzer Prize finalist, a philosophy professor and a writer, who delves into her journey as a daughter, mother, wife and her search for a new way of seeing the world. In other words, her story is about the complexity of the human experience and the questions of identity and belonging that plague us all. * People Magazine *Inspired in part by the shift Jones saw in others' perceptions of her during her pregnancy, Easy Beauty challenges deep-seated assumptions about who gets to be capable, trustworthy, and desirable. * Bustle Magazine *Candid and truth-seeking, this memoir charts the act of refocusing and realigning the ways we view and interpret ourselves * NB Magazine *Achingly felt, Jones's writing is a revelation * Publishers Weekly, Best Books of 2022 *Easy Beauty is an exquisite exploration of disability, identity, and the human capacity to do (and be) more than we've ever dreamed * Time *Touching and often humorous... explores life from the perspective of those who don't conform to conventional beauty standards -- Charlotte Heathcote * Daily Record *Genius... Shifted my understanding of a world I've only experienced while able-bodied -- Best Memoirs of 2022 * Vulture *Moving, incisive... Jones resists sentimentality and is as unsparing of herself as she is of other people, and yet she writes with such graciousness. A wonderful debut -- Tomi Obaro * Buzzfeed News *Gorgeous, concise and often very funny... a gripping memoir about parenting, disabilities and figuring out what to do next... a philosophical masterpiece, written in the tradition of those who see philosophy not as a dry academic subject but as a way of life * Coachella Review *A masterpiece ... Cooper Jones uses the particulars of her own experience to formulate ideas that are at once universally applicable and genuinely profound * Irish Times *

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Book Synopsis''Incredible insight with a transgressive, witty, spirit.'' COURTNEY LOVE''The most sensational read of 2022!'' GEMMA COLLINS''A breath of fresh air... I want so many people to read this!'' TRAVIS ALABANZA''Visionary'' VIV ALBERTINEA STYLIST MUST-READ FOR 2022Wellness is oppressive, self-love is a trap, hustling is a health risk and it''s all the patriarchy''s fault. Poor Little Sick Girls is THE book for femmes who are online and want more from activism and life.Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find Trade ReviewA crystal-clear mirror held up to contemporary feminism . . . Ione Gamble examines feminism's fourth wave and its intersections with the internet and capitalism, to brilliant effect . . .Gamble inventively and accessibly explores the roots of feminism as it exists materially today. * i News *A clear-sighted, critically needed skewering of hustle culture, wellness and modern feminism's blind spots, Ione pulls no punches in Poor Little Sick Girls. Everyone - and I mean everyone - should read this book. -- Yomi AdegokeA sizzling insight into how tropes about sick women and unacceptable bodies have been constructed throughout history through a cultural and personal lens. Ione writes with warmth, honesty and nuance, inviting the reader into a conversation that has, up until now, been afforded little space for exploration. -- Liv LittleI inhaled Poor Little Sick Girls in one sitting. This book is smart, addictive, wry and insightful. At a time when online discourse feels so muddled, Ione manages to pick through the weeds with characteristic humour and nuance. This is the anti-girlboss Bible and I love it. -- Daisy JonesA thrilling exploration of the relationships between bodies, abstract forces like language and stereotypes, and the material conditions that shape young adults' lives. Ione Gamble's incisive analysis of the last 15 years of social media, pop culture, and online feminism both illuminate the sources of present-day challenges and model a more liberatory way forward. By tracing the pieces of her self to facets of her environment, she demonstrates how much of a responsibility we have to one another - and that, for all the cynical powers that make our world, we also have the power to remake ourselves. -- Tavi GevinsonWhere so much online is generic and conformist, Ione Gamble's aesthetic and vision is anything but. A style icon and writer who seamlessly blends the esoteric and the obscure with popular culture as well as a commitment to many forms of social justice, her forthcoming book Poor Little Sick Girls is bound to be a treat! -- Emma DabiriOne of the sharpest, wittiest and most incisive thinkers of her generation. I always want to hear Ione's perspective on feminism, culture, and art - or just about anything -- Sirin KaleIone is fiercely unapologetic and a defining voice of our generation. It's especially powerful to see how her own experiences of living as a sick person intersect with her discussions on feminism. This will resonate with anyone who has ever been seen as "unacceptable" and decided to think critically about that. -- Cat White

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Book SynopsisThe Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, Trade Review"Covers an impressive range of topics. . . [and] a wealth of diversity in issues, perspectives, and arguments . . . . Overall, this book is an excellent resource, and should be considered by those designing university courses relating to bioethics [and] medical law and ethics."Heloise Robinson in Medical Law Review Table of Contents1. A Short History of Modern Medicine and Disability 2. Eugenics, Disability, and Bioethics 3. Theories of Disability 4. A Critical History of Bioethics 5. Methods of Bioethics 6. Disability Bioethics 7. Disability and the Definition of Health 8. The Lived Experiences of Illness and Disability 9. Abortion, Disability Rights, and Reproductive Justice 10. A Fatal Attraction to Normalizing 11. Being Disabled and Contemplating Disabled Children 12. The Wrongs of Wrongful Birth 13. Disability, Ideology, and Quality of Life 14. The Challenge of Chronic Pain 15. Chronic Illness and Well-Being 16. Disability and Aging Studies 17. Death, Pandemic, and Intersectionality 18. Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic 19. Bioethical Issues in Dementia and Alzheimer's Disease 20. Between “Aid in Dying” and “Assisted Suicide” 21. Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates 22. Disability Bioethics and Race 23. Bioethics and the Deaf Community 24. Hunger Always Wins 25. Trans Care within and against the Medical-Industrial Complex 26. Defining Mental Illness & Psychiatric Disability 27. Research Ethics and Intellectual Disability 28. Inconvenient Complications to Patient Choice and Psychiatric Detention 29. Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments 30. Feminist Theorizing and Disability Bioethics 31. Disability Bioethics and Epistemic Injustice 32. Disability Studies Meets Animal Studies 33. Improving Access within the Clinic 34. The Goals of Medical Technology 35. "Why insist on justice, why not settle for kindness?" Kindness, justice, and cognitive disability 36. Selections of Brilliant Imperfection

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Book SynopsisWhat happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capTrade Review'Making no humanist friends, Altermark's outstanding book disseminates the very ideals of citizenship that are peddled in the name of social inclusion but are revealed to be of the most pernicious kinds of thought that render people with intellectual disabilities surplus to requirements. Read this. Read it now.' - Daniel Goodley, Director of Research, The Universtiy of SheffieldTable of ContentsAcknowledgements; Part I: Introduction; Chapter 1. Post-Institutional; Chapter 2. Pathology; Part II: Citizenship; Chapter 3. Philosophy; Chapter 4. Discourse; Chapter 5. Control; Part III: Resistance; Chapter 6. Vulnerability; Chapter 7. Representation; Chapter 8. Ethics; Conclusions: Post-Institutional Critique; Appendix 1 References; Index

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Book SynopsisBuilding on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and âothersâ, including dyslexics, autistics and ADHDers.This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questTrade Review"This must-read research-based text represents a step-change in our understanding of neurodiversity; challenging old assumptions, generating new knowledge and understandings of importance to us all. Written by editors and authors who really know what they are talking about, and organised around five key themes, it builds on critical race theory, feminist and queer studies, connects with disability and Mad Studies, to explore a new and important field – Neurodiversity Studies."Peter Beresford, Professor of Citizen Participation at the University of Essex, UK, and Co-Chair of Shaping Our Lives, the national user led organisation."The increasing recognition that there is no 'normal' brain type against which all others must be judged pathological is having a transformative effect on every aspect of society: on employment, education, research, public policy, and how we conceive of the minds of other people. This book makes an important contribution to the evolving scholarly discourse around neurodiversity by centering the voices and experiences of neurodivergent people."Steve Silberman, author of the prize-winning "NeuroTribes: The Legacy of Autism and the Future of Neurodiversity". "There is SO MUCH here. The essays by Alyssa Hillary and Matthew Belmonte alone are worth the cost of the book. Neurodiversity advances, less like an army than like an ecosystem after a fire. Growth and renewal beyond measure."Ralph James Savarese, Professor of English, Grinnell College and author of "See It Feelingly: Classic Novels, Autistic Readers, and the Schooling of a No-Good English Professor"."Neurodiversity Studies: A New Critical Paradigm is interesting, enjoyable and thought provoking, and I think its theoretical discourse and positions have clear constructive practical implications which really matter."Dinah Murray, autism researcher and campaigner productiveirritant.org. "Neurodiversity Studies: A New Critical Paradigm provides a deep-dive into the complex world of autism and the neurologically different. Ranging through the humanities, social sciences, philosophy, ethics, and communication studies, among other areas, the book breaks new ground in the academic study of the inner worlds and sensoria of a significant portion of the population too often ignored politically while over-treated medically."Lennard J. Davis, Distinguished Professor of English at the University of Illinois at Chicago, School of Arts and Sciences, and also Professor of Disability and Human Development in the School of Applied Health Sciences and Professor of Medical Education in the University of Illinois College of Medicine, USA."This superb collection builds upon previous efforts of scholars and activists to decentre normative assumptions of what it is to be human and create an interdisciplinary discursive space, formulating neurodiversity studies as a new field of enquiry ... highly recommended would be an understatement!" Dr Damian Milton, Lecturer in Intellectual and Developmental Disabilities, University of Kent, National Autistic Society as Autism Knowledge and Expertise Consultant and chair of the Participatory Autism Research Collective (PARC). Table of ContentsIntroduction Curing Neurodivergence/Eugenics1. The Production of the ‘Normal’ Child: Neurodiversity and the Commodification of Parenting 2. Language Games Used to Construct Pathological Autism 3. Is There an Ethical Case for the Prevention and/or Cure of Autism? Neurodivergent Wellbeing4. Neurodiversity, Disability, Wellbeing 5. Neurodiversity in a Neurotypical World: An Enactive Framework for Investigating Autism and Social Institutions Cross-Neurotype Communication6. Neurodiversity and Cross-Cultural Communication 7. Understanding Empathy Through a Study of Autistic Life Writing: On the Importance of Neurodiverse Morality 8. Sensory Strangers: Travels in Normate Sensory Worlds Neurodiversity at Work9. Practical Scholarship: Optimising Beneficial Research Collaborations Between Autistic Scholars, Professional Services Staff and ‘Typical Academics’ in UK Universities 10. Designing an Autistic Space for Research: Exploring the Impact of Context, Space, and Sociality in Autistic Writing Processes 11. How Individuals and Institutions Can Learn to Make Room for Human Cognitive Diversity: A Personal Perspective from My Life in Neuroscience Challenging Brain-Bound Cognition12. Understanding Autistic Individuals: Cognitive Diversity not Theoretical Deficit Moving Forwards 13. Neuronormativity in Theorising Agency: An Argument for a Critical Neurodiversity Approach 14. Defining Neurodiversity for Research and Practice 15. A New Alliance? The Hearing Voices Movement and Neurodiversity Conclusion

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Book SynopsisThis book examines the role of disability in the right to political and social participation, an act of citizenship that many disabled people do not enjoy.The disability rights movement does not accept the use of disability to create limits on citizenship, which poses challenges for contemporary societies that will become ever greater as the science and technology of enhancing human abilities evolves. Comprised of eight chapters, three interludes, and a postscript written by leading scholars and disability rights activists, the book explores citizenship for people with disabilities from an interdisciplinary perspective using the United Nations Convention on the Rights of Persons with Disabilities (CRPD) as a point of departure and the concept of universal design as a strategy for actualizing full citizenship for all. Situating disability in its historical and cultural contexts, the authors offer directions for rethinking citizenship, including implications for access to the built environment, information and communication systems, education, work, community life and politics.This book will be of interest to all scholars and students working in disability studies, planning, architecture, public health, rehabilitation, social work, and education.

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Book SynopsisThis handbook provides an authoritative and up-to-date overview of Critical Autism Studies and explores the different kinds of knowledges and their articulations, similarities, and differences across cultural contexts and key tensions within this subdiscipline. Critical Autism Studies is a developing area occupying an exciting space of development within learning and teaching in higher education. It has a strong trajectory within the autistic academic and advocate community in resistance and response to the persistence of autism retaining an identity as a genetic disorder of the brain. Divided into four parts Conceptualising autism Autistic identity Community and culture Practice and comprising 24 newly commissioned chapters written by academics and activists, it explores areas of education, Critical Race Theory, domestic violence and abuse, sexuality, biopolitics, health, and social care practices. It will be of interest to all scholars and stude

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Book SynopsisThis handbook provides authoritative and cutting-edge analyses of various aspects of the rights and lives of disabled children around the world.Taking the UN Convention on the Rights of Persons with Disabilities (CRPD) and the UN Convention of the Rights of the Child (CRC) as conceptual frameworks, this work appraises the current state of affairs concerning the rights of disabled children across different stages of childhood, different life domains, and different socio-cultural contexts.The book is divided into four sections: Legislation and Policy Childrenâs Voice The Life Course in Childhood Life Domains in Childhood Comprised of 37 newly commissioned chapters featuring analyses of UN documents and case studies from Australia, Brazil, Ethiopia, Hong Kong, Italy, the Netherlands, Norway, Papua New Guinea, Serbia, South Africa, Spain, Sweden, the United Kingdom, the United States, and Vanuatu, its multidisciplinary approach reflects the complexities of the lives of disabled children and the multifarious nature of the strategies needed to ensure their rights are upheld.It will be of interest to researchers and students working in disability studies, education, allied health, law, philosophy, play studies, social policy, and the sociology of childhood. It will also be a valuable resource for professionals/practitioners, allowing them to consider future directions for ensuring that disabled childrenâs rights are realised and their well-being and dignity are assured.

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Book SynopsisThis book will be of interest to undergraduates, postgraduates and researchers in disability studies, childhood studies, medicine and health sciences, and sociology. It also provides insights that will be of use and value to professionals working with disabled children and adolescents in education, health and in disability-specific services.Opening with four narratives that offer the reader a window into the lived experience of disabled children, adolescents and their families, subsequent chapters explore a range of issues facing disabled children from early childhood through to late adolescence. Topics include family life, early intervention, inclusive and post-secondary education, the right to play, digital participation, the effects of labelling and matters relating to agency and sexuality.With chapters discussing research from Australia, Canada, Ireland, Italy, Malta, Mexico, New Zealand, Sweden and the UK amongst others, this book:contributes to the exTable of Contents1.The Lives of Children and Adolescents with Disabilities: An Introduction. 2.Kia ora from Ralph. 3.Childhood: magic or misery? Childhood: happy or sad? 4.The Tale of the Dancing Eyes. 5.The Trouble with ‘Normal’: Finding hope through resistance. 6.Disabled Children’s Active Participation in Early Childhood Education: A story of love, rights and solidarity from Aotearoa New Zealand. 7.Positioning the Views of Children with Developmental Disabilities at the Centre of Early Interventions. 8.A Minority Within the Family: Disabled children and parental perceptions. 9.Nature Play for Disabled Children – Muddy puddles for all? 10.Disabled Children’s Recreational Uses of Digital Technologies in the Context of Children’s Digital Rights. 11.The Individual Education Programme: Who knows best? 12.Digital Participation and Competencies for Young People with Intellectual or Developmental Disabilities. 13.Autistic Youth as Active Agents for Societal Change. 14.'Normal, different, or something in between’. Young people with autism and Down syndrome and psycho-emotional disablism. 15.We are Sexual Too: Sexuality in the lives of disabled adolescents. 16.Challenges of the Somos Uno Más [We are one of the same] Programme in the Access to Higher Education and Preparation for Adulthood of Young Persons with Intellectual Disability in Mexico.

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Book SynopsisThis handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks.Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people''s sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, froTrade Review"The study of disability and sexuality is thriving and this handbook is one of the most important volumes to date for scholars, students, and activists interested in the field. Focusing on a diverse, interdisciplinary range of issues from impressively global perspectives, the volume is indispensable for thinking about sexuality and disability in theory, representation, and policy." Robert McRuer is Professor of English at George Washington University in Washington, DC, USA."It is a pleasure for me to offer my full endorsement of The Routledge Handbook of Disability and Sexuality by Russell Shuttleworth and Linda Mona. Although issues relating to sexuality and disability have been in the literature for many years, this collection provides an astonishing array of current cultural, disability affirmative perspectives on the topic. This is must reading for anyone interested in understanding the linkage between these concepts." Stanley Ducharme, Ph.D., Professor of Rehabilitation Medicine and Urology, Boston University School of Medicine, Boston, MA. USA.Table of ContentsIntroduction: Contextualising Disability and Sexuality Studies. PART 1 Theoretical frames and intersections. 1 Theorising disabled people’s sexual, intimate and erotic lives/current theories for disability and sexuality. 2 Theoretical developments: Queer theory meets crip theory. 3 Thinking differently about the sexual capacities of bodies with Deleuze and the case of infertility amongst men with Down syndrome. 4 A critical rethinking of sexuality and dementia: A prolegomenon to future work in critical dementia studies and critical disability studies. 5 Combating old ideas and building identity: Sexual identity development in people with disabilities. 6 Sexuality and disability in Brazil: Contributions to the promotion of agency and social justice. PART 2: Subjugated histories and negotiating traditional discourses. 7 Sexuality, disability, and madness in California’s eugenics era. 8 Disability rights through reproductive justice: Eugenic legacies in the abortion wars. 9 Sexuality and the disregard of lived reality: The sexual abuse of children and young people with disabilities. 10 Sexuality and physical disability: Perspectives and practice within Orthodox Judaism. PART 3: Politics, policies and legal frames across the world. 11 Sexual citizenship, Disability policy and facilitated sex in Sweden. 12 Access to sexual and reproductive health for people with disabilities in Zimbabwe. 13 "Tick the straight box": Lesbian, gay, bisexual & transgender (LGBT+) people with intellectual disabilities in the UK. 14 Sexuality and sexual rights of young adults with intellectual disability in Central Java, Indonesia. 15 Advance consent and network consent. PART 4: Representation, performance and media. 16 Missing in action: Desire, dwarfism and getting it on/off/up…A critique and extension of disability aesthetics. 17 Sex, love and disability on screen. 18 Dynamics of disability and sexuality: Some African literary representations. 19 Flaunting towards otherwise: Queercrip porn, access intimacy and leaving evidence. 20 Desexualising disabled people in the news media. PART 5 Sexual narratives and (inter)personal perspectives. 21 Understanding the lived experience of transgender youth with disabilities. 22 Flowing desires underneath the chastity belt: Sexual re-exploration journeys of women with changed bodies. 23 (Il)licit sex among PWDs in Trinidad & Tobago: Sexual negotiation or compromise. 24 Reimaging sexuality in the disability discourse in South Asia. 25 Disability and asexuality? 26 Through a personal lens: A participatory action research project challenging myths of physical disability and sexuality in South Africa. 27 "That’s my story": Transforming sexuality education by, for and with people with intellectual disabilities. PART 6: Accommodation, support and sexual well being. 28 Sexual wellness for older persons with a disability: A life-course perspective. 29 Toward sexual autonomy and well-being for persons with upper limb mobility limitations: The role of masturbation and sex toys. 30 Paid sexual services available for people with disability: Exploring the range of modalities offered throughout the world. 31 Promoting sexual well-being for women with disabilities through family-centred integrated behavioural healthcare. 32 Occupational therapy’s engagement with empowering disability and sexuality. 33 Disability and social work: Partnerships to promote sexual well-being. 34 Intersections of disability, sexuality, and spirituality within psychological treatment of people with disabilities.

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Book SynopsisSocial Research and Disability argues that the contemporary rules of sociological methods outlined in numerous research methods texts make a number of assumptions concerning the researcher including ambulance, sight, hearing and speech. In short, the disabled researcher is not considered when outlining the requirements of particular methods. Drawing upon these considerations, the volume emphasizes how disabled researchers negotiate the empirical process, in light of disability, whilst retaining the scientific rigour of the method. It also considers the negative consequences arising from disabled researchers' attempts at passing and the benefits that can emerge from a reflexive approach to method. This innovative and original text will, for the first time, bring together research-active academics, who identify as being disabled, to consider experiences of being disabled within a largely ableist academy, as well as strategies employed and issues faced when conducting eTable of ContentsIntroduction Part 1: Navigating the Academy 1. Owning My Room: Building a Safe, Accessible and Productive Space for Student Researchers with Complex Communication Disabilities 2. On the Outside Looking In?: Reflections on Being a Disabled Social and Feminist Geographer 3. A Closer Look at ‘Wheelchair’ Ethnography: Ableism and the Insights Disabled Scholars Generate with - not despite - Their Impairments and Disabilities 4. Dilemmas of Identity Disclosure and Provision of Disability Support Part 2: Conducting Research "In the Field" 5. The Continuing Adventures of a Four-Legged Female Academic 6. 10 Affects of Hidden, Mental Dis/Abilities and the Act of Disclosure 7. Lived Experience Researchers: The Power of Recovery from Mental Health Challenges Part 3: Shifting Methodologies 8. Unsettling Ableism in Research Traditions: Toward Establishing Blind Methodologies 9. Deaf Research Methodologies? Confronting Epistemological Silences and Challenges in Qualitative Research 10. "Repeat After Me": Gestalt, Fluency and Biographical Research Editorial Reflections

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Book SynopsisThis book provides insight into the globally interlinked disability rights community and its political efforts today. By analysing what disability rights activism contributes to a global power apparatus of disability-related knowledge, it demonstrates how disability advocacy influences the way we categorise, classify, distribute, manipulate, and therefore transform knowledge.By unpacking the mutually constitutive relations between (practical) moral knowledge of international disability advocates and (formal) disability rights norms that are codified in international treaties such as the UN Convention on the Rights of Persons with Disabilities (CRPD), the author shows that the disability rights movement is largely critical of statements that attempt to streamline it. At the same time, cross-cultural disability rights advocacy requires images of uniformity to stabilise its global legitimacy among international stakeholders and retain a common meta-code that visibly identifTable of Contents1. Introduction PART I 2. Theory with unstable referents 3. Methodical approach PART II 4. Reflecting languages and symbols 5. Paradigmatic lines and actor relationships 6. Reconciling multiple knowledges 7. Categorising and explaining as knowledge change 8. Advocacy knowledge as political-legal intervention 9. Final discussion

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Book SynopsisThis book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies.Table of ContentsPreface; Chapter One: The ‘ignored minority’; Introduction; Why terms and definitions are important; UK and International terms; PMLD > PIMD; Research issues; Definitions; PIMD Definition; Prevalence; PIMD overlooked; Bibliography; Chapter Two: Policy Frameworks; Introduction; Representation or overlooked?; Normalisation; Social model and ‘embodiment’ or second wave social model; Post-structural social model and ‘brute facts’ of genetics; Personalisation; Self-advocacy aka Speaking Up; Acknowledging difference in service provision; Beyond social model frameworks; Bibliography; Chapter Three: Disrupting the Illusion; The New Vision: Rights, Independence, Choice and Inclusion; Overview of storyline with reference to PIMD; Construction of target population; Spreading the Word, Advocacy, Personalisation and Employment; Implications for services for services for people with PIMD; Informal Family Carers; Formal Care Workers; Bibliography; Chapter Four: All In The Same Direction; Introduction; Background; Communication Communication Communication; Culture of personalised support; Consistency & Clarity =Trust; Routine = Consistency of approach; When ‘no’ means’no’; Echoed words rather than language; Guidelines, Charts, Feedback sheets; Physical Intellectual and Sensory access; Food and eating; Water and Aloe Vera juice / digestion and elimination; Physiotherapy and deep tissue massage; Blood tests; Music therapy; Behavioural Support Needs: Where does the ‘challenge’ lie?; Containment; Building a team; Training/Development; Goals; Task Breakdown; Conclusion; Resources; Bibliography; Chapter Five: Raising our Sights; Introduction; Settings and services; Personalisation; Why film is important; Raising our Sights; Families; ‘R’espite or ‘r’espite; Day / respite services; Still fighting; Community Specialist Health teams; Training; Bespoke training; Conclusion; Resources; Bibliography; Chapter Six: Raising The Bar: beyond the ‘burden of non productiveness’; Introduction; Abuse; Death by Indifference; Improving Health and Lives; CIPOLD > :LeDR; Advocacy Advocacy Advocacy; Core and Essential Service Standards: Raising The Bar; Conclusion; Resources; Bibliography; Index

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Book SynopsisImagine being able to consult with Jay Haley about difficult therapy cases.

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Book SynopsisDisability sport is a relatively recent phenomenon, yet it is also one that, particularly in the context of social inclusion, is attracting increasing political and academic interest. The purpose of this important new text  the first of its kind  is to introduce the reader to key concepts in disability and disability sport and to examine the complex relationships between modern sport, disability and other aspects of wider society. Drawing upon original data from interviews, surveys and policy documents, the book examines how disability sport has developed and is currently organised, and explores key themes, issues and concepts including: disability theory and policy the emergence and development of disability sport disability sport development in local authorities mainstreaming disability sport disability, physical education and school sport elite disability sport and the Paralympic Games disTrade Review'Thomas and Smith have delivered a much-needed critical examination of the opportunities and challenges facing the modern Paralympic and disability sport movement. In the run-up to London 2012 this is a book that should be read by all students, academics, administrators and policy-makers with an interest in disability sport.' - Dame Tanni Grey-Thompson "There is a real need for this book. It provides a unique and valuable sociological analysis of disability sport." Karen P DePauw, Virginia Polytechnic Institute and State University Table of Contents1. Disability theory and policy 2. The emergence and development of disability sport 3. Local authorities and disability sport development 4. Mainstreaming disability sport: a case study of four sports 5. Disability, physical education and school sport 6. Elite disability sport: the Paralympic Games 7. Disability sport and the media

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Book SynopsisMichel Foucaultâs The History of Sexuality is one of the most influential philosophical works of the twentieth century and has been instrumental in shaping the study of Gender, Feminist Theory and Queer Theory. But Foucaultâs writing can be a difficult book to grasp as Foucault assumes a familiarity with the intellectually dominant theories of his time which renders many passages obscure for newcomers to his work. The Routledge Guidebook to Foucaultâs The History of Sexuality offers a clear and comprehensive guide to this groundbreaking work, examining: The historical context in which Foucault wrote A critical discussion of the text, which examines the relationship between The History of Sexuality, The Use of Pleasure and The Care of The Self The reception and ongoing influence of The History of Sexuality Offering a close reading of the text, this is essential reading for anyone studying this enormously influential work.Trade ReviewTaylor’s well-written guide to Foucault’s History of Sexuality promises to become a welcome companion for students delving into Foucault’s influential text, as it provides historical context and clarifies points of reference that may require some explanation and background for the new reader of Foucault.Claudia Schippert, University of Central Florida, USAIn this invaluable guide to Foucault’s History of Sexuality Volume 1, Taylor offers a lucid explication of one of the most consistently misread books of our time. Without sacrificing nuance or depth, Taylor frames Foucault’s History of Sexuality within the history of eugenics. This text will be especially illuminating for students who have looked to Foucault for a theory of sexual liberation. The chapters on Foucault’s uptake by feminists and queer theorists are a tour de force! Highly recommended for beginners and experts alike. Lynne Huffer, Emory University, USATable of ContentsIntroduction Chapter One: The Will to Know Questioning the Repressive HypothesisConfessionThe Social Construction of SexualitiesThe Perverse ImplantationChapter Two: Power Over Life Objective: RegicideMethod: or How to Theorize Power without the KingPower is everywherePower is warPower is relational Power is immanentPower comes from belowPower relations are intentional and non-subjectivePower produces resistanceChapter Three: Women, Children, Couples and ‘Perverts’ Denaturalizing SexDomain: The FamilyWomenChildrenCouples‘Perverts’Periodization: Retelling the History of SexualityChapter Four: Sex, Racism, and Death From Sanguinity to SexualityFoucault’s Genealogy of Modern RacismFrom Spectacles of Death to the Management of MorbidityExecutionsSuicideWarLetting DieDe-sexing sexualityChapter Five: The History of Sexuality and Feminist TheoryFeminist TensionsThe Repressive Hypothesis, Identity Politics, and the Feminist Sex WarsConsciousness Raising, Confession, and ExperienceFeminist Bodies and Pleasures Chapter Six: The History of Sexuality and Queer Theory From Feminism to Queer Theory‘A Queer Voice’Canonizing Foucault ‘The Imperial Prude’Chapter Seven: A Genealogy of the Desiring Subject Revising the ProjectSexual Austerity and the Monogamous IdealUsing SexSexual Anxiety‘The antimony of the boy’A Male EthicsEthics versus CodesScalePositions and PartnersSexual BinariesSex and HealthSex without PsychologyThe Use of The Use of PleasureBibliography

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Book SynopsisIn this ground-breaking new work, Dan Goodley makes the case for a novel, distinct, intellectual, and political project dis/ability studies an orientation that might encourage us to think again about the phenomena of disability and ability. Drawing on a range of interdisciplinary areas, including sociology, psychology, education, policy and cultural studies, this much needed text takes the most topical and important issues in critical disability theory, and pushes them into new theoretical territory. Goodley argues that we are entering a time of dis/ability studies, when both categories of disability and ability require expanding upon as a response to the global politics of neoliberal capitalism. Divided into two parts, the first section traces the dual processes of ableism and disablism, suggesting that one cannot exist without the other, and makes the case for a research-driven and intersectional analysis of dis/ability. The second section applies this new analytical framTrade Review“Dis/Ability Studies: Theorizing Disableism and Ableism, is a compelling text in which readers are invited to engage with, build upon, and weave together important theoretical contributions made by activist scholars in disableism, ableism, queer theory, crip theory, and poststructural and postconventional disability studies research. Goodley himself does much of the weaving for us as he illustrates, rather masterfully I think, how multiple theoretical perspectives might be brought together and expanded in order to open new spaces for theorizing how we might disrupt the intractable nature of ableism and disableism and their entrenched capacity to shape modern neoliberal responses to disability.” - Cynthia Bruce, PhD(C) Part-Time Faculty, Education, Acadia University, Canadian Journal of Disability Studies'Dis/Ability Studies brings together a dizzying array of new theoretical concepts, tools and lenses with which to activate a dis/ability imagination. What makes Dis/Ability Studies an exciting read is the incredible volume of theory and empirical research that Goodley reviews, synthesis, dissects and analyses.' - Imogen Tyler, Disability and Society, April 2015'The author's thesis is that disability and ability are both worthy of study and they cannot be separated. The messy bits between this binary is what complicates the current state of disability studies, and is really the heart of the entire book ... Particularly enjoyable is his suggestion that so-called "normals" need therapy to combat the psychopathology of ableism ... Summing Up: Highly recommended. Upper-division undergraduates and above.' - P.A. Murphy, University of Toledo, in CHOICE, December 2014‘Dis/ability Studies proposes a new dialectic in which the twins disability and ability – separated at birth – are re-united in a confrontation whereby the alienated siblings come to terms with their distinctive experiences; one, comfortable in the lap of privilege; the other, mired, deep down amongst the wretched of the earth. Professor Goodley breaks new ground and re-sets the template for the disability debate.’ – Professor Bill Hughes, Glasgow School for Business and Society, Glasgow Caledonian University, UK. ‘"Dis/ability studies" is a remarkable synthesis of the most distinctive strands of Goodley’s thought, and yet, expands current scholarly thinking. Goodley offers a clear signal for a change of direction, if not a revolution, in disability thought.’– Dr Karen Soldatic, School of Social Sciences, University of New South Wales, Australia.‘With radical vitality, Dan Goodley’s latest invites us to inhabit the slash between able/disabled in order to re-encounter the constitution of the human. Exposing the "normal’s" confused engagement with dis/ability, readers are offered a transformative praxis opposing ideals of ableism while respecting our desire to thrive in disability-as-life. Goodley addresses the often unquestioned and deadly normative demands of our "austere" times as a way to work toward what he takes as the heart of being human, namely, alliance, connections and interdependence. In the midst of disability studies, queer and post-colonial theory, Goodley invites us to imagine politics as the actualization of a committed interrelatedness affirming life that has been made marginal by stark neo-liberal practices that feed markets trading in degradation. Critical of rigid models, this book is an essential read and a rallying cry for anyone who desires to put the question of embodiment into the heart of what it means to be human.’ – Professor Tanya Titchkosky, Ontario Institute for Studies in Education, University of Toronto, Canada.‘With both the rigor and wit that marks all of his work, Dan Goodley maps the landscape of contemporary critical disability studies in his comprehensive new book. Dis/ability Studies: Theorising Disablism and Ableism, moreover, makes clear to readers the urgent and innovative directions in which disability studies needs to move. This book is not only an invaluable resource surveying the models of disability that structure (and can transform) our culture, it is—in its attention to a global austerity politics and the workings of what Goodley terms neoliberal-ableism—an important part of the global turn that the interdisciplinary field is taking. Through stories of oppression and resistance in multiple locations, Dis/ability Studies ultimately welcomes critically disabled "becomings" that can dismantle the structures of ableism that Goodley theorises.’ – Professor Robert McRuer, Department of English, George Washington University, USA.Table of ContentsPreface Part 1: Finding Dis/ability Studies 1. Disablism 2. Ableism 3. Intersectionality 4. Dis/ability Studies 5. Researching Dis/ability Part 2: Exemplifying Dis/ability Studies 6. Precarious Bodies: The Biopolitics of Dis/ability and Debility 7. Becoming Inclusive Education: Cripping Neoliberal-able Schooling 8. The Psychopathology of the Normals: Why People are so Messed up Around Dis/ability 9. Markets, Cruel Optimism and Civil Society: Producing Dis/ability 10. Critical Dis/ability Studies

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Book SynopsisExamining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of normal and to establish a social environment in which the expression of full lives will prevail.Trade Review"I think the audience for this book would be very wide from interested lay persons to medical anthropologists/sociologists. Also this is an important topic for medical professionals and public health scholars. It does offer a critical perspective as well – which does not dominate the book - but is very important for many scholars. I also think it is highly readable and would be of interest to students – upper level undergraduates to graduate students (for example I would use this book in my Medical anthropology course - 300 level)." Michael J. Oldani, Anthropology, University of Wisconsin, WhitewaterTable of Contents1: Introduction 2: Doing Everything Right: Choice, Control and Mother Blame 3: Diminished Motherhood 4: Mothers, Doctors and Developmental Delays: On Personhood and the Emplotment of Children’s Lives 5: The Child as Giver: Mothers’ Critique of the Commodification of Babies 6: Mothers, Models, and Disability Rights

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Book SynopsisToday the Paralympic Movement is recognised as a global sporting phenomenon attracting thousands of athletes from an ever-increasing number of countries. Athlete First provides a thoroughly researched history and analysis of the Paralympic Movement, including the development and organisation of the International Paralympic Committee. As well as recounting factual achievements and events, the book examines the position of sport and international competition for people with a disability within their changing historical context and in relation to the Olympic Movement and able-bodied sport. The first history of the origins and development of the Paralympic movement Examines disabled sport and international competition within their changing historical context Includes details of key players in the movement on and off the field Written in an accessible style by a recognised historian Athlete First will prove invaluTrade Review“All in all this is an indispensable guide to the labyrinthine origins of disability and Paralympic sport and this book will be an absolutely vital source text for other scholars working in this area.” (Sport in History, 28 June 2012) “The book is the first cohesive history of the Paralympic Movement.” (Idrottsforum.org, June 2009) "This book successfully takes on the task of chronicling the story of the paralympic movement. Along the way, readers are introduced to some of the strong characters who have helped get the paralympians to their current position on the international sports stage." (Doody's, January 2009)Table of ContentsList of Figures and Boxes. Foreword: Sir Philip Craven. Foreword: Prof. Dr Gudrun Doll-Tepper. International Council of Sport Science and Physical Education. Preface. List of Abbreviations. Chapter 1. A Showcase of Ability. Chapter 2. An Air of Hopelessness. Chapter 3. The Era of Development: 1960 to 1980. Chapter 4. Fair, not Equal: 1980 to 1988. Chapter 5. Building Bridges not Walls: 1988 to 1992. Chapter 6. Spirit in Motion: 1992 to 1996. Chapter 7. Repair What Needs Repair? 1996 to 2000. Chapter 8. Sport is About Emotion: 2000 to 2004. Bibliography and Resources. Index.

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Book SynopsisRisk Assessment in People with Learning Disabilities, Second Edition reflects legislative updates made over the past decade while continuing to demystify the process of assessing risk for people with intellectual impairment (previously called 'learning disabilities').Table of ContentsPreface: Introduction to Second Edition vii Chapter 1 Assessing Risks in the Lives of People with Intellectual Impairment 1 Chapter 2 The Problem of Predicting Risk 13 Chapter 3 Assessing Risks and Establishing Care Plans 27 Chapter 4 Everyday Risks 47 Chapter 5 Parents with Intellectual Impairment 69 Chapter 6 Self-harm, Mental Illness and Risk 89 Chapter 7 Other Mental Disorders and Associated Risks 103 Chapter 8 Violence and Offending in People with Intellectual Impairment 123 Chapter 9 Sex Offenders with Intellectual Impairment 141 Chapter 10 Assessment of Risk with Those You Care For: the Way Forward 155 References and Suggested Further Reading 167 Index 171

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Book SynopsisThis book is based on the premise that counseling and psychotherapy services are useful and effective interventions with the mental retardation and borderline populations. The chapters focus on issues relevant to intervention (assessment, characteristics of emotional problems), specific techniques and adaptations of techniques for use with this population. The outstanding contributors are all scholars and practitioners with experience in working with individuals with mental retardation and borderline intelligence. The volume provides a comprehensive overview of issues and applications and will serve as the standard counseling and therapy reference work in this area.Table of ContentsIssues in Counseling and Psychotherapy (H. Prout & D.Strohmer). An Overview of Psychopathology (J. Sevin & J. Matson). Assessment in Counseling and Psychotherapy (H. Prout & D.Strohmer). Individual Counseling Approaches (H. Prout & R. Cale). Individual Behavioral Counseling Approaches (D. Strohmer & P.Spengler). Group Counseling and Psychotherapy (D. Brown). Family Interventions (H. Cobb & W. Gunn). Vocational Counseling with Persons with Mental Retardation (E.Levinson, et al.). Index.

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Book SynopsisThis book explores the care of mentally ill patients--psychiatric and geriatric--in community settings. It addresses the implications for hospitals, community services and staff, and patients. It examines the central issues of patient outcomes, service provision and effectiveness, economics of provision and impact on staff and community.Table of ContentsPartial table of contents: THE RISE AND FALL OF THE PSYCHIATRIC HOSPITAL. Evolution of Policy (J. Carrier I. Kendall). Lessons from the American Experience in Providing Community-BasedServices (L. Bachrach). PERSPECTIVES ON COMMUNITY CARE: PATIENTS, STAFF AND PUBLIC. Residential Care for the Mentally Ill in the Community (N.Trieman). Costing Care in Hospital and in the Community (J. Beecham, etal.). The Effect of Reprovision on the Acute Services (R. Sammut J.Leff). Training Level and Training Needs of Staff (V. Senn, et al.). Attitudes of the Media and the Public (G. Wolff). THE PITFALLS AND HOW TO AVOID THEM. The Downside of Reprovision (J. Leff). Patients Who are too Difficult to Manage in the Community (N.Trieman). Providing a Comprehensive Community Psychiatric Service (J. Leff N.Trieman). The Future of Community Care. (J. Leff). Index.

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Book SynopsisExplores the long-neglected history of those who have sustained lasting injuries or chronic illnesses while serving in uniform. The contributors to this volume cover an impressive range of countries in Europe and North America as well as a wide sweep of chronology from the Ancient World to the present.Trade Review...more than introducing readers to a little-explored corner of the past, Disabled Veterans in History forces readers to think differently about war itself." — American Historical Review"By identifying and exploring what makes the disabled veteran 'different', the volume accomplishes historiographically what many twentieth-century policy-makers sought: to bring the war-disabled back into the mainstream of social and economic life." — Social History of Medicine"The wide thematic and chronological range of this collection, and the thorough introductory essay, make it invaluable to anyone with an interest in the history of war and medicine, the history of social policy, or of disability in general." — Medical History"Disabled Veterans in History nicely demonstrates the possibilities for studying how societies treat men wounded in the service of the state. . . . This anthology marks an excellent beginning and the questions raised here and the sources uncovered point to the exciting possibilities for further scholarship." — H-Disability"The quality of the scholarship ranges from good to magnificent, and the material is sufficiently engaging to keep the average student reading." — Journal of World History

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Book SynopsisTrade Review“[A]n important, prescient, and necessary contribution…a kind of litmus test for the efficacy of Foucault’s concepts in the study of disability, concepts that lead to a refusal of the biological essentialism implied in the disability/impairment binary.” - Foucault Studies“Tremain has done an exceptional job at organizing and procuring important, rigorously argued, and entertaining essays…. This book should be a mandatory read for anyone interested in contemporary philosophical debates surrounding the experience of disability.” - Essays in Philosophy

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Book SynopsisDrawing on extensive fieldwork and a variety of original sources, Katharina C. Heyer examines three case studies - Germany, Japan, and the United Nations - to trace the evolution of a disability rights model from its origins in the US through its adaptations in other democracies to its current formulation in international law.

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Book SynopsisCharting the divergent paths of paranoid and reparative affects through illness narratives, academic work, queer life, noise pollution, sonic torture, and other touchy subjects, William Cheng exposes a host of stubborn norms in our daily orientations toward scholarship, self, and sound. Cheng contends that reparative attitudes toward music and musicology can serve as barometers of better worlds.Trade Review“Just Vibrations is without question a groundbreaking book, bothaccessible to a wide readership (including undergraduate students) andtheoretically nuanced. Cheng elegantly balances clarity of explanationwith a depth and breadth of scholarship that encourage the reader todive more deeply into the theoretical underpinnings of his readings andinterpretative approaches. All this is accomplished through a writing stylethat is eminently readable, borderline poetic at times.” - Andrew Dell’Antonio, the University of Texas at Austin

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Book SynopsisThrough an analysis of experimental theater, dance theater, performance art, and gallery-based installation art across eight countries, Analola Santana explores the theoretical issues shaped by the encounters and negotiations between different bodies in the current Latin American landscape.Trade ReviewSantana cleverly locates her study in defining and re-defining abject bodies within the heavy weight of colonization that Latin America has suffered from the time of the conquest to today . . . [She] finds how these ‘freak' bodies have encountered, resisted, and hoped for a better present and future."" - Paola Hernández, University of Wisconsin""An important contribution to the scholarly debates around colonialism, coloniality, and neoliberalism through the prism of aesthetics, performance, embodiment, abjection, race, gender, sexuality, and ableisms . . . a theoretically sophisticated and eminently readable analysis of how the ‘freak' comes to embody a broad range of deviant and non-normative positions: the queer, the colonial, the abject, the criminal, the neoliberal."" - Diana Taylor, New York University

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Book SynopsisHow the UN's right to inclusive education has resulted in school segregation for disabled students

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Book SynopsisWhile the loss of sight may be understood as a disability, blind people in the Tokugawa period (1600-1868) could thrive because of disability. The blind of the era were prominent across a wide range of professions. Blind in Early Modern Japan illustrates the breadth and depth of those occupations.Table of Contents List of Illustrations List of Tables Map of Japan in the Tokugawa (Edo) Period (1600–1868) Map of Japan: Modern Regions and Prefectures Abbreviated List of Historical Periods A Note on Japanese Terminology and Names AcknowledgmentsPreface: A Personal NoteIntroductionChapter 1 Japanese Ophthalmology: Medical Studies of Eye ConditionsChapter 2 Eye Medicines: The Popular Culture of CureChapter 3 The Blind Guild: Status and PowerChapter 4 Non-Membership and the Challenge of AuthorityChapter 5 Texts and Performances: The Significance of One Blind Musician’s CareerChapter 6 Healing by Touch: Blind Acupuncturists and MasseursEpilogue Onward to the Meiji PeriodBibliographyIndex

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Book SynopsisBrings together scholars, musicians, and family members of people with disabilities to collectively recount years of personal experiences, research, and perspectives on the societal and community impact of inclusive musical improvisation.Trade ReviewImprovising Across Abilities is perhaps the only manuscript of its kind: one that explores the applications of one adaptive music technology, AUMI, in extraordinary depth through multivalent perspectives and scenarios via the words and metaphors of an extraordinarily varied collective of writers, students, teachers, social justice workers, technologists, community activists, group home directors, and creatives. While most scholarly essay collections feature chapters by academics from a narrow range of fields (if not a single one), this volume’s editorial team has consciously drawn writing from members of the public community who might not ordinarily contribute to such a collection, as well as from artists, scientists, and professors who write as part of their profession. The variation in writers and voices not only adds to the value of the book, but reinforces its argument that everyone, no matter what shape, size, or ability, should have a voice." - Stephanie Jensen-Moulton, Brooklyn College"The awe-inspiring creator and thinker Pauline Oliveros is recognized for her pioneering electronic compositions, the astonishing diversity of her musical creations, her multifaceted poetic and expository writing, and her dedicated teaching of Deep Listening over many years. Some of her best-known work, the Sonic Meditations and Deep Listening Pieces, offers brief verbal instructions to allow groups to create musical experiences together, regardless of the musical training or experience of the people involved. An extension of this inclusiveness came in her later years with the Adaptive Use Musical Instrument (AUMI), now a freely downloadable app that allows users, including people with limited physical mobility, to participate in music making in new and provocative ways. This well-conceived book makes available a stunning wealth of information about AUMI by writers from many different backgrounds." - Fred Maus, University of VirginiaTable of Contents Introduction Section I: Dreaming of AUMI Chapter 1 Going Deep: AUMI Since Before the Beginning Leaf Miller Illustrations by Ty Dykema Chapter 2 From Punk Philosophy to Musical Accessibility Zane Van Dusen Chapter 3 My Transformation into a Masterpiece Musical Instrument and Musician Clara Tomaz Chapter 4 The Gift of Expression: Playing AUMI with My Son Julie Brocklehurst Chapter 5 AUMI as a Model for Social Justice George Lipsitz Chapter 6 The Dream of AUMI IONE Section II: Software for All People: Improvising AUMI’s Development Chapter 7 AUMI in the Context of Adaptive Music Alex Lubet Chapter 8 AUMI Among the ADMIs: The Adaptive Digital Context Grace Shih-en Leu Chapter 9 AUMI Development and Developers: The DLI Years (2007-2012) Sherrie Tucker Chapter 10 AUMI Technology Development at McGill (2012-2019) John Sullivan, Ivan Franco, Ian Hattwick, Thomas Ciufo, Eric Lewis Chapter 11 How Adaptive, How Useful? Technological Design Solutions in AUMI for iOS Henry Lowengard Chapter 12 Pauline’s World of Virtuosos: Expanded Instruments, Deep Listening, and Stretched Boundaries Jonas Braasch Section III, Part 1:AUMI Communities Chapter 13 Exploring AUMI’s Potential in the Thunder Bay Community An Interview between Nicola Oddy and Lise Vaugeois Chapter 14 Building and Sustaining Ethical Communities Together An Interview with Rebecca Caines by Ellen Waterman Chapter 15 There’s No Place Like AUMI: Building a Community Partnership in Lawrence, Kansas Jim Barnes, Kip Haaheim, Ray Mizumura-Pence, Sherrie Tucker, and Ranita Wilks Chapter 16 Love, Actually: Using AUMI to Transgress Ableist Directing Habits Nicole Hodges Persley Chapter 17 Wooden Snapdragon Julie Unruh Chapter 18 Improvising Inclusive Communities: Shared Reflections on the Jesse Stewart Residency in Lawrence, Kansas Abbey Dvorak, Kip Haaheim, Ray Mizumura-Pence, and Sherrie Tucker Chapter 19 Sending and Receiving: AUMI Bodies and Dance Improvisation Michelle Heffner Hayes and Sherrie Tucker Chapter 20 Communities of Generosity and Gratitude: AUMI-KU InterArts’ First Decade Ray Mizumura-Pence Section III, Part 2:AUMI Performance Chapter 21 WAAM + AUMI: The We Are All Musicians Project and the Adaptive Use Musical Instrument Jesse Stewart Chapter 22 “To Me, Dance is a Home”: An Interview with Jessie Huggett Jessie Huggett Interviewed by Jack Hui Litster Chapter 23 “I Am Here”: AUMI Sings and Choral Participation Ellen Waterman, Laurel Forshaw, Gillian Siddall, Henry Lowengard, Gale Franklin, Teresa Connors, and Karen Berglander Chapter 24 AUMI, Theremin, and Sonic Witnessing Li Harris Chapter 25 AUMI in Practice: The Mills AIE Matt Robidoux Chapter 26 Knowing as Feeling: Five Meditations on the Planets Kip Haaheim Section IV, Part 1: AUMI Classrooms Jennifer Hurst and Grace Shih-en Leu Chapter 27 Working with AUMI in Classroom Settings in a Center School for Students with Severe Cognitive and Physical Challenges Deborah A. Nelson and Nancy Patterson Chapter 28 AUMI and ‘Improvise Approach’ Backing Tracks Carrie Lennard Chapter 29 AUMI and the Ethics of Technology: A Personal Encounter Eric Lewis Section IV, Part 2: AUMI and Music Therapy: Supporting Independent Musicking Abbey Dvorak and Nicola Oddy Chapter 30 Clinical Applications Using AUMI in Music Therapy Practice Abbey L. Dvorak, James Maxson, and David Knott Chapter 31 Use of AUMI in Clinical Music Therapy for Hospitalized Patients with Complex Neurological Disabilities Sergio Hazard Chapter 32 AUMI and Musical Empowerment in a Pediatric Environment John Mulcahy Section V: Dreaming AUMI Futures Chapter 33 Dream Music Julie Unruh Chapter 34 Dreaming AUMI’S Future IONE References Editorial Team and Chapter Contributors

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Book SynopsisThis groundbreaking collection imagines disabled bodies as ""bodies in commotion"" - bodies that dance across artistic and discursive boundaries, challenging our understanding of both disability and performance.Trade ReviewA testament to the synergy of two evolving fields. From the study of staged performances to examinations of the performing body in everyday life, this book demonstrates the enormous profitability of moving beyond disability as metaphor. . . . It's a lesson that many of our cultural institutions desperately need to learn." —Martin F. Norden, University of Massachusetts-Amherst

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