Disability: social aspects Books

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Book SynopsisTrade Review"Already Doing It is consistent and radical in its insistence on pleasure as a gauge for thinking about discourses of intellectual disability. It is an indispensable contribution to the burgeoning scholarship on sex and disability."—Robert McRuer, author of Crip Theory: Cultural Signs of Queerness and Disability"This book will provide new and interesting ideas for many people (LGBT or not) working at all levels of primary and secondary school, whether as teachers or otherwise...If lessons and ideas from this book were fully taken on board, I could see a real difference being made to the way sexuality is viewed in school."—Sex Education"An accessible and interesting read."—CHOICE"Michael Gill’s Already Doing It: Intellectual Disability and Sexual Agency is an important book at an important time in the history of sexuality and people with intellectual disability."—PsycCritiques"Provocative and thought provoking, the text, through specific examples, urges the reader to examine actual individuals and their varied sexual expression in a new light. A successful argument for rights of the intellectually disabled."—Lavender Magazine"A powerful call for the necessity of supporting sexual citizenship for persons with disability through liberatory action efforts that challenge sexual ableism."—H-NetTable of ContentsContentsPreface: Violations of Sexual LifeIntroduction: Sexual Ableism Exposed 1. Questions of Consent: Rethinking Competence and Sexual Abuse2. Pleasure Principles: From Harm Reduction to Diversity in Sex Education3. Sex Can Wait, Masturbate: The Politics of Masturbation Training4. Reproductive Intrusions: The Fight against Forced Sterilization5. Not Just an Able-Bodied Privilege: Toward an Ethics of Parenting6. Screening Sexuality: Media Representations of Intellectual Disability7. Smashing Disability: Sexual Transgression and the Lady Boys of BangkokConclusion: Dismantling Ableist AssumptionsAcknowledgmentsNotesIndex

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Book Synopsis“Nothing about us without us” has been a core principle of American disability rights activists for more than half a century. It represents a response by people with disabilities to being treated with scorn and abuse or as objects of pity, and to having the most fundamental decisions relating to their lives—where they would live; if and how they would be educated; if they would be allowed to marry or have families; indeed, if they would be permitted to live at all—made by those who were, in the parlance of the movement, “temporarily able-bodied.” In What We Have Done: An Oral History of the Disability Rights Movement, Fred Pelka takes that slogan at face value. He presents the voices of disability rights activists who, in the period from 1950 to 1990, transformed how society views people with disabilities, and recounts how the various streams of the movement came together to push through the Americans with Disabilities Act of 1990, the most sweeping civil rights legislation since passage of the Civil Rights Act of 1964. Beginning with the stories of those who grew up with disabilities in the 1940s and ’50s, the book traces how disability came to be seen as a political issue, and how people with disabilities—often isolated, institutionalised, and marginalised—forged a movement analogous to the civil rights, women’s rights, and gay rights movements, and fought for full and equal participation in American society.

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Book SynopsisThe seminal study of the antecedents of Deaf culture is now back in print. Edited by renowned scholar Harlan Lane, "The Deaf Experience: Classics in Language and Education" presents a selection of the earliest essays written by members of the nascent French Deaf community at the time of the Enlightenment, a rich period of education for deaf people. The fourth volume in the "Gallaudet Classics in Deaf Studies" series features works written from 1764 up to 1840. Pierre Desloges offers a stirring paean to sign language in an excerpt from his book, the first ever published by a deaf person. Saboureux de Fontenay and Jean Massieu, two prominent leaders, relate their respective experiences in autobiographical accounts. In separate essays, Charles-Michel de l'Epee and Roch-Ambroise Sicard describe systems for teaching manual French, followed by a critique of these methods by Roch-Ambroise Bebian, a well-known hearing friend of Deaf people during that era. Ferdinand Berthier, a renowned Deaf teacher and writer in the 19th century, concludes with a history of Deaf people up to that time. "The Deaf Experience" shows clearly how this extraordinary era of French deaf education influenced the adoption of the manual method by the first schools for deaf students in America, in sharp contrast to the oral movement that repressed sign-language centered education for nearly a century afterward. Deaf studies scholars and students alike will welcome the return of this invaluable resource.

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Book SynopsisConventional wisdom dictates that individuals who learn American Sign Language (ASL) at a young age possess a higher level of proficiency than those who acquire ASL later, but Joseph Christopher Hall shows how diversity in the deaf community belies such generalization. Hall dissects affective, cognitive, and behavioral responses to ASL, Signed English, and contact signing across variables of generation, race, and age of language acquisition to identify differing conceptions of a signing standard that, in turn, results in differing perceptions of language proficiency.

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Book SynopsisIncludes the cultural perceptions by and of deaf people, the assimilation of deaf children to surrounding communities, the role that society's view of deaf people plays in affecting how deaf people view themselves, the impact of bilingualism in deaf communities, and transliteration.

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Book SynopsisAustralian scholar Donna McDonald has achieved a successful career in social work policy focusing on disadvantage and disability, yet, until now, her work has never directly addressed the personal challenges she faced having been part of a generation of children in Australia and around the world who were born deaf, but assimilated into oral education programs in the 1950s and '60s. In The Art of Being Deaf, McDonald tells her story and describes the process of reconciling her deaf-self and her hearing persona. When she was five, McDonald was placed in an oral deaf school. There, she was trained to communicate only in spoken English. Her determination led to achievements that caused many to identify her as a "deaf girl that had made good." Yet, as McDonald describes in her memoir, despite her constant focus on fitting into the hearing world, she soon realized that she was closing-off an essential part of her identity-that of being deaf. Through the writing of the book, she comes to embrace that part of herself and to acknowledge that the art of being deaf has many crucial parallels to the art of life in general. This moving personal story will not only appeal to those who have shared similar experiences within the deaf community, but anyone who has struggled with disadvantages and questions of identity.Trade Review"There's a generational story to be told here that is important-McDonald was part of a 'between' generation of deaf kids/students around the globe (but especially in the UK, Australia, developed Europe, and US) who now had access to 'regular' schools but who were still struggling in the shadow-land between deaf schools/lives/identities and the public/regular schools." (Brenda Jo Brueggeman, Ohio State University)"

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Book SynopsisThe term deaf often sparks heated debates about authority and authenticity. The concept of Deaf identity and affiliation with the DEAF-WORLD are constantly negotiated social constructions that rely heavily on the use of American Sign Language. However, given the incredible diversity of Deaf people, these constructions vary widely. From Deaf people born into culturally Deaf families and who have used ASL since birth, to those born into hearing families and for whom ASL is a secondary language (if they use it at all), to hearing children of Deaf adults whose first language is ASL, and beyond, the criteria for membership in the Deaf community is based on a variety of factors and perspectives. Bryan K. Eldredge seeks to more precisely understand the relationship between ASL use and Deaf identity using the tools of linguistic anthropology. In this work, he presents research resulting from fieldwork with the Deaf community of Utah Valley. Through informal interactions and formal interviews, he explores the role of discourse in the projection and construction of Deaf identities and, conversely, considers how ideas about language affect the discourse that shapes identities. He finds that specific linguistic ideologies exist that valorize some forms of language over others and that certain forms of ASL serve to establish a culturally Deaf identity. My Mother Made Me Deaf demonstrates that the DEAF-WORLD consists of a multitude of experiences and ways of being even as it is bound together by certain essential elements that are common to Deaf people.

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Book SynopsisWhen ethnomethodologist Albert Robillard began to suffer the symptoms of motor-neuron disease, he realized he was a living laboratory for revealing the countless taken-for-granted methods people use to produce being together. Meaning of a Disability is a detailed autobiography of the experiences and trained observations of a university professor who became paralyzed in mid-life. With his loss of speech, Robillard was forced to communicate through a lip-reading system developed by his wife and student assistants. Restricted by this form of communication and his paralysis, he soon learned the frustrations of making his meaning known. Hospital nurses wrongly anticipated his words. Those who translated for him inevitably distorted his meaning. Most of all, the casual pace of conversational give-and-take was disrupted. Old friends would leave before Robillard could provide the expected interactional response. Finding himself isolated due to his lack of both mobility and vocalization, Robillard threw himself into his academic work and began to develop settings and methods where he could satisfactorily interact with others. A researcher and writer experienced in describing the bodily and verbal methods used to coordinate and construct the most ordinary of social forms, Robillard joins in this book both his years of sociological training and his time with illness to talk with moving and illuminating analysis about a broad range of matters. Moving gracefully from examinations of narratives about disability and illness, the stigmatizing things that healthcare providers unwittingly say to their patients, and communication problems in the intensive care unit, to more personal reflections on anger, isolation, and stories of tragedy, Robillard also discusses disability in the workplace and such seemingly simple topics as computers and vacations. Meaning of a Disability is the personal story of a highly trained observer forced to confront simultaneously the limits of the disabled person's social world and the unspoken assumptions about meaningful interaction -- as he struggles with the daily difficulties of maintaining his identity. Meaning of a Disability will interest a wide audience, including healthcare professionals, disabled people, and caretakers as well as academics studying ethnomethodology, health and illness, conversation, symbolic interaction, storytelling, and most aspects of lived experience.Trade Review"[Robillard] writes with great preciseness and accuracy... This book should be read by those working with people with disabilities, those teaching in the area of Disability Studies, and by people with disabilities." -Disability Studies QuarterlyTable of ContentsCONTENTSAcknowledgments1 Telling the Story2 You Are Lucky Your Wife Stuck with You3 Communicating in Intensive Care4 Anger5 Isolation6 Tragic Narratives7 Bionic Man8 Can He Think?9 The TripReferencesIndex

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Book SynopsisNow that curb cuts, braille elevator buttons, and closed caption television are commonplace, many people assume that disabled people are now full participants in American society. This book tells a rather different story. It tells how America's disabled mobilized to effect sweeping changes in public policy, not once but twice, and it suggests that the struggle is not yet over. The first edition of From Good Will to Civil Rights traced the changes in federal disability policy, focusing on the development and implementation of Section 504 of the Rehabilitation Act of 1973. Richard K. Scotch's extensive interviews with policymakers, leaders of the disability rights movement, and other advocates, supplemented the sketchy official history of the legislation with the detailed, behind-the-scenes story, illuminating the role of the disability rights movement in shaping Section 504. Charting the shifts in policy and activist agendas through the 1990's, this new edition surveys the effects and disappointments associated with the Americans with Disabilities Act, passed in 1990, in the context of the continuing movement to secure civil rights for disabled people.Trade Review"An excellent case study of the enactment and implementation of Section 504...this book will interest students of the American public policy-making processes as well as those with a special interest in civil rights and disability policy." -Choice "This analysis...is almost certain to become a classic work in the literature that will eventually emerge in this field." -Contemporary Sociology "The best thing about Scotch's book is that it shows why, despite the broad rights language of the legislation and its regulations, Section 504 exists in a vacuum, with this country still, for the most part, unconcerned about disability rights... Advocates should read Scotch's book... It's a good place to start on the future." -The Disability Rag "[P]resents the effects and disappointments associated with civil rights legislation including the ADA, and the continuing effort of the civil rights movement for persons with disabilities to secure access and integration into American society. From Good Will to Civil Rights (2nd ed.) is highly recommended for those seeking to understand the civil rights movement for persons with disabilities and the impact that legislation has on this new minority group." -Journal of Social Work in Disability and Rehabilitation "A particular strength of this work, aside from the analysis itself, is the author's reliance on the testimony of people involved in developing the policy [of Section 504]." -H-Net OnlineTable of ContentsAcknowledgments 1. A Civil Rights Law for Disabled People 2. From Good Will to Civil Rights 3. The Genesis of Section 504 4. Writing the Regulation for Section 504 5. Advocacy and the HEW Regulation 6. Policy Dissemination 7. Symbolic Victories: The Evolution of Section 504 Epilogue Appendixes Notes Index

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Book SynopsisThis wide-ranging book shows why Paul Longmore is one of the most respected figures in disability studies today. Understanding disability as a major variety of human experience, he urges us to establish it as a category of social, political, and historical analysis in much the same way that race, gender, and class already have been. The essays here search for the often hidden pattern of systemic prejudice and probe into the institutionalized discrimination that affects the one in five Americans with disabilities.Whether writing about the social critic Randolph Bourne, contemporary political activists, or media representations of people with disabilities, Longmore demonstrates that the search for heroes is a key part of the continuing struggle of disabled people to gain a voice and to shape their destinies. His essays on bioethics and public policy examine the conflict of agendas between disability rights activists and non-disabled policy makers, healthcare professionals, euthanasia advocates, and corporate medical bureaucracies. The title essay, which concludes the book, demonstrates the necessity of activism for any disabled person who wants access to the American dream.Trade Review"Paul Longmore's sharp and cogent criticism has always sought and found the soul of the disability rights movement. But these essays go far beyond activism and constitute a cultural document for a people adrift. Longmore's refreshing views represent an intellectual Ellis Island for people with disabilities, hampered by bureaucracy, myth and sentiment, trying to find a place in America. His stories are as important to this nation's sense of self as the Mayflower's landing at Plymouth Rock."—John Hockenberry, author of A River Out Of Eden and Moving Violations"Paul Longmore is simply the best historian now writing about disabilities. This volume collects a series of major essays that have shaped the academic and public discourse about disabilities inside of and beyond the university. From the unwritten history of disabled people to questions of assisted suicide, and the public face of disability culture, Longmore writes intelligently, compassionately, and readably. Read these essays and learn!"—Sander L. Gilman, Distinguished Professor of the Liberal Arts and Sciences and of Medicine, The University of Illinois-Chicago"Longmore offers poignant observations about images of disability in American culture....A major strength of Longmore's essays is calling our attention to historical antecedents, so that current disability issues can be put in the context of developments in society and technology."—New Political Science"[A] fine introduction to the contemporary study of disability."—Reviews in American History"Longmore's newest work provides an engaging discussion of some of the major issues and concerns within the disability community as well as a scholarly review of the major events in disability history.... The book provides an in-depth accounting of disability rights history, scholarship, activism, and advocacy. It is lively and very accessible and is an important contribution to the files of disability studies, as well as broadening and deepening our national understanding of the complexity of our history, one the author's stated goals."—The Journal of Sociology and Social Welfare"Why I Burned My Book is a must-read for anyone seeking to understand the history and the current issues of disability."—The Progressive"Why I Burned My Book and Other Essays on Disability is a collection of some of his best writing on both history and policy. The combination of scholarship and activism displayed in this book is exciting."—H-Net"The strength of Longmore's work [is] in remembering the ongoing marginalization of millions[.] Longmore challenges and disrupts dominant ideologies of 'normality' and disability. Furthermore, he offers an alternative in writing the study of disability as social history.... Longmore's text is a worthy read for its intellectual sensibility."—Metapsychology OnlineTable of ContentsForeword – Robert DawidoffIntroductionPart I: Analyses and Reconstructions1. Disability Watch2. The Life of Randolph Bourne and the Need for a History of Disabled People3. Uncovering the Hidden History of Disabled People4. The League of the Physically Handicapped and the Great Depression: A Case Study in the New Disability History5. The Disability Rights Moment: Activism in the 1970s and BeyondPart II: Images and Reflections6. Film Reviews7. Screening Stereotypes: Images of Disabled People in Television and Motion PicturesPart III: Ethics and Advocacy8. Elizabeth Bouvia, Assisted Suicide, and Social Prejudice9. The Resistance: The Disability Rights Movement and Assisted Suicide10. Medical Decision Making and People with Disabilities: A Clash of CulturesPart IV: Protests and Forecasts11. The Second Phase: From Disability Rights to Disability Culture12. Princeton and Peter Singer13. Why I Burned My BookIndex

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