Terminal care nursing Books

Book SynopsisNEW YORK TIMES BESTSELLER • Passionate advocate for end-of-life care and TikTok star Hadley Vlahos shares moving stories of joy, wisdom, and redemption from her patients’ final moments in this “brilliant” (Zibby Owens, Good Morning America) memoir. “This extraordinary book helps dispel fear around death and dying—revealing it to be a natural part of our soul’s evolution.”—Laura Lynne Jackson, New York Times bestselling author of Signs and The Light Between UsTalking about death and dying is considered taboo in polite company, and even in the medical field. Our ideas about dying are confusing at best: Will our memories flash before our eyes? Regrets consume our thoughts? Does a bright light appear at the end of a tunnel? For most people, it will be a slower process, one eased with preparedness, good humor, and a bit of faith. At the forefront of changing attitudes around palliative care is hospice nurse Hadley Vlahos, who shows that end-of-life care can teach us just as much about how to live as it does about how we die. Vlahos was raised in a strict religious household, but began questioning her beliefs in high school after the sudden death of a friend. When she got pregnant at nineteen, she was shunned by her community and enrolled herself in nursing school to be able to support herself and her baby. But nursing soon became more than a job: when she focused on palliative care and hospice work, it became a calling.  In The In-Between, Vlahos recounts the most impactful experiences she’s had with the people she’s worked with—from the woman who never once questioned her faith until she was close to death, to the older man seeing visions of his late daughter, to the young patient who laments that she spent too much of her short life worrying about what others thought of her—while also sharing her own fascinating journey. Written with profound insight, humility, and respect, The In-Between is a heartrending memoir that shows how caring for others can transform a life while also offering wisdom and comfort for those dealing with loss and providing inspiration for how to live now.

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Book SynopsisResearch literacy is now a requirement for Board-Certified chaplains in the US and a growing field in the UK. This reader gives an overview and introduction to the field of healthcare chaplaincy research. The 21 carefully chosen articles in this book illustrate techniques critical to chaplaincy research: case studies; qualitative research; cross-sectional and longitudinal quantitative research, and randomized clinical trials. The selected articles also address wide-ranging topics in chaplaincy research for a comprehensive overview of the field.To help readers engage with the research, each article includes a discussion guide highlighting crucial content, as well as important background information and implications for further research. This book is the perfect primary text for healthcare chaplaincy research courses, bringing together key articles from peer-reviewed journals in one student-friendly format.Table of ContentsSection I. Healthcare Chaplains: Where They Work & What They Do .1. The Provision of Hospital Chaplaincy in the United States: A National Overview (2008). Wendy Cadge, Department of Sociology, Brandeis University, Jeremy Freese, Department of Sociology, Northwestern University and Nicholas A. Christakis, Department of Health Care Policy, Harvard Medical School. 2. "He Needs to Talk!": A Chaplain's Case Study of Nonreligious Spiritual Care (2016). Steve Nolan, Princess Alice Hospice; University of Winchester. 3. What do I do? Developing a taxonomy of chaplaincy activities and interventions for spiritual care in intensive care unit palliative care (2015). Kevin Massey, Advocate Health Care, Marilyn JD Barnes, Dana Villines, Julie D Goldstein, Anna Lee Hisey Pierson, Cheryl Scherer, Betty Vander Laan and Wm Thomas Summerfelt. 4. Communicating Chaplains' Care: Narrative Documentation in a Neuroscience-Spine Intensive Care Unit (2016). Rebecca Johnson, Buehler Center On Aging, Health & Society, Northwestern University, M. Jeanne Wirpsa, Northwestern Memorial Hospital, Lara Boyken, Buehler Center On Aging, Health & Society, Northwestern University, Matthew Sakumoto, Northwestern University Feinberg School Of Medicine, George Handzo, Healthcare Chaplaincy Network, Abel Kho, Northwestern University Feinberg School Of Medicine and Linda Emanuel, Buehler Center On Aging, Health & Society. 5. Determining best methods to screen for religious/spiritual distress (2017). Stephen D. W. King, Chaplaincy, Child Life, & Clinical Patient Navigators, Seattle Cancer Care Alliance, George Fitchett and Patricia E. Murphy, Department of Religion, Health & Human Values, Rush University Medical Center, Kenneth I. Pargament, Department of Psychology, Bowling Green State University, David A. Harrison, Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine and Elizabeth Trice Loggers, Clinical Research Division, Fred Hutchinson Cancer Research Center. 6.The spiritual distress assessment tool: an instrument to assess spiritual distress in hospitalised elderly persons (2010). Stefanie M Monod, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center, Etienne Rochat, Service of Geriatric Medicine & Geriatric Rehabilitation and Chaplaincy Service, University of Lausanne Medical Center, Christophe J Büla, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center, Guy Jobin, Faculty of Theology and Religious Sciences, University of Laval, Estelle Martin, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center and Brenda Spencer, Institute of Social and Preventive Medicine (IUMSP), University Hospital Center and University of Lausanne. Section II Patient/Family Spiritual Needs & Spiritual Care Interest. 7. The Spiritual and Theological Challenges of Stillbirth for Bereaved Parents (2017). Daniel Nuzum, Department of Obstetrics and Gynaecology, University College Cork, Cork University Maternity Hospital, Sarah Meaney, National Perinatal Epidemiology Centre, University College Cork and Keelin O'Donoghue, Irish Centre for Fetal and Neonatal Translational Research (INFANT), Department of Obstetrics and Gynaecology, University College Cork, Cork University Maternity Hospital. 8. Identifying Religious and/or Spiritual Perspectives of Adolescents and Young Adults Receiving Blood and Marrow Transplants: A Prospective Qualitative Study (2014). Judith R. Ragsdale, Mary Ann Hegner, Mark Mueller and Stella Davies, Cincinnati Children's Hospital. 9. Adolescents' Spirituality and Cystic Fibrosis Airway Clearance Treatment Adherence: Examining Mediators (2016). Daniel H. Grossoehme. Division of Pulmonary Medicine, Rhonda D. Szczesniak, Division of Pulmonary Medicine and Division Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Sylvie Mrug, Department of Psychology, University of Alabama, Sophia M. Dimitriou, Alec Marshall and Gary L. McPhail, Division of Pulmonary Medicine.10. Hospital Chaplains: Through the Eyes of Parents of Hospitalized Children (2017). Pamela K. Donohue, Department of Pediatrics, Johns Hopkins School of Medicine and Department of Population Family and Reproductive Health, Johns Hopkins School of Public Health, Matt Norvell, Department of Spiritual Care and Chaplaincy, Johns Hopkins Hospital, Renee D. Boss, Department of Pediatrics, Johns Hopkins School of Medicine and Berman Institute of Bioethics, Jennifer Shepard, Department of Pediatrics, Johns Hopkins School of Medicine, Karen Frank, Department of Acute and Chronic Care, Johns Hopkins University School of Nursing, Christina Patron, Department of Pediatrics, Johns Hopkins School of Medicine and Thomas Y. Crowe, Department of Spiritual Care and Chaplaincy, Johns Hopkins Hospital. 11. Service user views of spiritual and pastoral care (chaplaincy) in NHS mental health services: a co-produced constructivist grounded theory investigation (2016). Julian Raffay, Spiritual and Pastoral Care, Mersey Care NHS Foundation Trust, Emily Wood and Andrew Todd, Cardiff Centre of Chaplaincy Studies, St Michael's College.12. Cultural differences in spiritual care: findings of an Israeli oncologic questionnaire examining patient interest in spiritual care (2014). Michael Schultz, Division of Oncology, Rambam-Health Care Campus, Technion-Israel Institute of Technology, Doron Lulav-Grinwald, Division of Oncology, Rambam-Health Care Campus, Technion-Israel Institute of Technology and Gil Bar-Sela, Faculty of Medicine, Technion-Israel Institute of Technology. 13. The Frequency and Correlates of Spiritual Distress Among Patients With Advanced Cancer Admitted to an Acute Palliative Care Unit (2011). David Hui, Maxine de la Cruz, Steve Thorney, Henrique A. Parsons, Marvin Delgado-Guay, and Eduardo Bruera, Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center. Section III. Chaplaincy Interventions & Their Impact. 14. Relationship Between Chaplain Visits and Patient Satisfaction (2015). Deborah B. Marin and Vanshdeep Sharma, Department of Psychiatry, Icahn School of Medicine at Mount Sina, Eugene Sosunov, Office for Excellence in Patient Care, Mount Sinai Hospital, Natalia Egorova, Department of Health Evidence and Policy, Icahn School of Medicine at Mount Sinai, Rafael Goldstein, Department of Spiritual Care and Education, Mount Sinai Hospital and George F. Handzo, HealthCare Chaplaincy, New York. 15. The association of spiritual care providers' activities with family members' satisfaction with care after a death in the ICU (2014). Jeffrey R. Johnson, Ruth A. Engelberg, Elizabeth L. Nielsen and Erin K. Kross, Harborview Medical Center, Division of Pulmonary and Critical Care Medicine, Department of Medicine, University of Washington, Nicholas L. Smith, Department of Epidemiology, School of Public Health, University of Washington, Seattle Epidemiologic Research and Information Center and Group Health Research Institute, Julie C. Hanada and Sean K Doll O'Mahoney, Department of Spiritual Care, Harborview Medical Center and J. Randall Curtis, Harborview Medical Center, Division of Pulmonary and Critical Care Medicine, Department of Medicine, University of Washington.16. The Effect of Pastoral Care Services on Anxiety, Depression, Hope, Religious Coping, and Religious Problem Solving Styles: A Randomized Controlled Study (2008). Paul S. Bay, Chaplaincy and Pastoral Education, Clarian Health Partners, Daniel Beckman, CORVAS Cardiothoracic & Vascular Solutions, Clarian Health Partners, James Trippi, The Care Group, Clarian Health Partners, Richard Gunderman, School of Medicine, Indiana University and Colin Terry, Methodist Research Institute, Clarian Health Partners. 17. A Novel Picture Guide to Improve Spiritual Care and Reduce Anxiety in Mechanically Ventilated Adults in the Intensive Care Unit (2016). Joel N. Berning, NewYork-Presbyterian Hospital, Pastoral Care and Education Department, Armeen D. Poor, Sarah M. Buckley and Komal R. Patel, Division of Pulmonary, Allergy, and Critical Care, Columbia University, David J. Lederer, Division of Pulmonary, Allergy, and Critical Care, Columbia University and Department of Epidemiology, Columbia University Mailman School of Public Health, Nathan E. Goldstein, Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, and Geriatrics Research Education and Clinical Center, James J. Peters VA Medical Center, Daniel Brodie and Matthew R. Baldwin, Division of Pulmonary, Allergy, and Critical Care, Columbia University. 18. The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons (2017). Katherine M. Piderman, Chaplain Services, Mayo Clinic Rochester, Carmen Radecki Breitkopf, Division of Health Care Policy and Research, Health Sciences Research, Mayo Clinic Rochester, Sarah M. Jenkins, Biostatistics and Informatics, Mayo Clinic Rochester, Maria I. Lapid, Psychiatry and Psychology, Mayo Clinic Rochester, Gracia M. Kwete, Mayo Medical School, Mayo Clinic Rochester, Terin T. Sytsma, Internal Medicine, Mayo Clinic Rochester, Laura A. Lovejoy, Chaplain Services, Mayo Clinic Rochester, Timothy J. Yoder, Chaplain Services, Mayo Clinic Rochester and Aminah Jatoi, Medical Oncology, Mayo Clinic Rochester. 19. What Impact Do Chaplains Have? A Pilot Study of Spiritual AIM for Advanced Cancer Patients in Outpatient Palliative Care (2017). Allison Kestenbaum, Doris A. Howell Palliative Care Service, University of California, The Rev. Michele Shields, Spiritual Care Department, University of California San Francisco Medical Center and UCSF Benioff Children's Hospital, Jennifer James, Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco, The Rev. Will Hocker, Spiritual Care Department, University of California San Francisco Medical Center and UCSF Benioff Children's Hospital, Stefana Morgan, Department of Psychiatry, University of California, Shweta Karve, Department of Psychiatry and Behavioral Sciences, Stanford University, Michael W. Rabow, Department of Medicine, University of California and Laura B. Dunn, Department of Psychiatry and Behavioral Sciences, Stanford University. 20. Patient Reported Outcome Measure of Spiritual Care as Delivered by Chaplains (2017). Austyn Snowden, School Of Health And Social Care, Edinburgh Napier University and Iain Telfer, The Royal Infirmary Of Edinburgh. 21. A national study of chaplaincy services and end-of-life outcomes (2012). Kevin J Flannelly, The Spears Research Institute, HealthCare Chaplaincy, Linda L Emanuel, Buehler Center on Aging, Health & Society, Northwestern University Feinberg School of Medicine, George F Handzo, HealthCare Chaplaincy, Kathleen Galek, The Spears Research Institute, HealthCare Chaplaincy, Nava R Silton, Department of Psychology, Marymount Manhattan College and Melissa Carlson, Mount Sinai School of Medicine.

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Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.

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Book SynopsisWith the number of people requiring palliative and end of life care steadily increasing, it is the responsibility of every nurse, regardless of specialism, to know how to provide high quality care to this group of people. Yet caring for those nearing the end of life can throw up complex issues, including handling bereavement, cultural and ethical issues, delivering care in a wide variety of settings, symptom management and also ensuring your own emotional resilience. This book is specifically designed to equip nursing students and non-specialists with the essential knowledge in relation to the care and management of people nearing the end of life.Table of ContentsIntroduction The idea of living, dying, life and death Communication in palliative and end of life care Exploring loss, grief and bereavement Understanding cultural issues in palliative and end of life care Rehabilitation in palliative and end of life care Ethical issues in palliative and end of life care Palliative and end of life care in a critical care setting Legal aspects of palliative and end of life care

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Book SynopsisHospice chaplains have traditionally played a unique part in palliative care, providing human compassion and support to help ease life's final chapter. This book thoughtfully tackles the question at the heart of modern hospice chaplaincy: do chaplains have a distinctive role in an increasingly secular society?A comprehensive look at why and how this work needs to be done, each chapter will be a rich resource for hospice chaplains and anyone working within a hospice multi-disciplinary team. Taking the form of reflections by chaplains and other professionals, they examine the tension between sacred and secular space, explore how spiritual care works in a changing society, and look at what voice a chaplain has within the hospice team.Essential reading for chaplains, this insightful book reflects on the important work undertaken by hospice chaplaincies and explains why they continue to be a vital resource for end-of-life care.Trade ReviewThis book explores the chaplain's unique role and the privilege of being involved in the lives of those who approach death. Varied contributors helpfully probe the inner life of the chaplain and her relationships with staff and volunteers. It explores the changing role of the hospice chaplain, but has great relevance for all involved in End of Life care. I wholeheartedly commend it to all who have an interest in healthcare chaplaincy. -- Revd Mark Burleigh, Head of Chaplaincy & Bereavement Services, University Hospitals of Leicester NHS Trust and President, College of Health Care ChaplainsChallenged by the exigencies of health economies and the demands of secularists, chaplaincy is in transition. The diverse voices brought together by Murphy and Whorton speak to that transition with harmony and clarity about the 'traditional' values that shape chaplaincy identity and care, and that determine the distinctive contribution chaplains make to multi-professional team working. -- Revd Dr Steve Nolan, Princess Alice Hospice, Esher, and The University of WinchesterFifty years after Dame Cicely Saunders founded the first modern hospice in 1967, this book is a timely and fitting tribute to her legacy. It consists of a series of reflections by chaplains and allied professionals, and is packed with inspiration, experience, and good practice. -- Revd Ann Fulton, Spiritual Care Co-ordinator for St Margaret's Hospice, Somerset * Church Times *Anyone who is involved in hospice work, or anyone working with people who are ill and lost, will find much in this book which is of value. -- The Revd John Lampard * Methodist Recorder *Table of ContentsForeword by Baroness Finlay of Llandaff. Introduction. Part One: Locating the Work of Palliative Care Chaplaincy. 1. Then and Now. The Most Reverend Dr Richard Clarke, The Archbishop of Armagh and Primate of All Ireland and Judy Davies, Methodist Minister and Chaplain at Sue Ryder - Duchess of Kent Hospice, Reading, UK. 2. What Kind of Place is a Hospice? Karen Murphy, President of the Association of Hospice and Palliative Care Chaplains (AHPCC), UK and Julian Abel, Weston Area Health Trust and Vice President of Public Health Palliative Care International, and Chair of the UK Branch. 3. Many Faiths, No Faith. Abbas Khalifa, Imam, Healthcare Chaplain, UK, The Revd Stig Graham, Hospice and Palliative Care Chaplain, UK, Kathryn Morrison, Bank Chaplain, LOROS Hospice, Leicester, UK, Martin T. Hill, St. Giles Hospice, Lichfield, UK and Simon O' Donoghue, The Non-Religious Pastoral Support Network, UK. 4. The Contribution of Volunteers. Karen Murphy. Part Two: Reflecting Theologically. 5. A Good Death? Revd Canon Dr Margaret Whipp, Oxford University Hospital, UK and Jonathan Wittenberg, Rabbi, New North London Synagogue, UK. 6. Towards a Theology of Palliative Care Chaplaincy. Revd Canon Helen Newman, Spiritual Care Lead Chaplain, LOROS Hospice, Leicester, UK and Revd Dr Jonathan H. Pye, Chair of the Bristol District of the Methodist Church, Hon. Research Fellow, Centre for Ethics in Medicine, Research Associate, School of Social and Community Medicine, University of Bristol. Part Three: Who Are We? 7. Our Unique Role. Margery Collin, Chaplain, Strathcarron Hospice, Stirlingshire, UK and Jacki Thomas, PhD, Retired Hospice Chaplain. 8. Do We Have a Voice? Revd Caroline McAfee, Chaplaincy and Spiritual Care Lead, Northern Ireland Hospice, Belfast, UK, David Buck, Spiritual Care Co-Ordinator, Sue Ryder - Wheatfields Hospice, Leeds, UK and Ruth White, CEO, Rowans Hospice, UK. 9. Mirror, Mirror. Jessica Rose, Senior Accredited Member, Association of Pastoral Supervisors and Educators, Member of the Institute of Pastoral Supervision and Reflective Practice and Andy Edmeads, Anglican Priest and Chaplain to Children And Young Adults Hospice, UK. 10. Holding the Tension. Lousie Adey Huish, Chaplain, Myton Hospice, Warwick, UK and Gary Windon, Chaplain, Nightingale House Hospice, Wrexham, UK. 11. Our Place in the Shadows. Margaret Jill Brown, Psychoanalytic Psychotherapist, Member of Severnside Institute for Psychotherapy, Founding Patron of The Harbour, UK and Bob Whorton, Chaplain, Sit Michael Sobell House, UK. 12. Our Own Nourishment. The Revd Matthew Hagan, M.Phil, Southern Area Hospice, Newry, County Down, Northern Ireland, President, Northern Ireland Healthcare Chaplains Association, UK and Dawn M. Allan, Spiritual Care Lead Chaplain, NHS Orkney and NHS Shetland, UK. 13. A Creative Resource. The Revd Sally Bedborough, Chaplain, Weldmar Hospicecare, Dorset, UK, Liza Waller, Chaplain, Hospice in the Weald, Kent, UK and Nell Mellerick, Creative Artist and Hospice Day Service Manager, UK. 14. Looking to the Future. Ewan Kelly, Visiting Professor, Research Co-Ordinator, European Research Institute for Chaplains, Academic Centre for Practical Theology, University of Leuven, Belgium. Appendices.

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Book SynopsisTable of ContentsPart I: Symptom Management Section A PAIN 1 How Should Opioids Be Started and Titrated? 2 What Principles Should Guide Opioid Dose Conversions? 3 How Is Patient-Controlled Analgesia Best Used to Control Pain? 4 Which Opioids Are Safest and Most Effective in Patients With Renal or Hapatic Failure? 5 How Should Mathadone Be Started and Titrated in Opioid-Naive and Opioid-Exposed Patients? 6 What Is Neuropathic Pain and How Is It Best Managed? 7 How Are Adjuvant Medications Such as Corticosteroids and NSAIDs Used for Pain Management? 8 What Are the Approaches to Pain in Skeletal Bone Disease? 9 When and How Should Radiotherapy Be Considered for Pain Management? 10 What Principles Should guide the Prescribing of Opioids for Noncancer Pain? 11 How Does the Opioid Epidemic Impact Palliative Medicine Practice? 12 How Does One Approach the Patient With an Opioid Use Disorder? 13 When Should Epidural or Intrathecal Medications and Pumps Be Considered for Pain Management? 14 When Should Nerve Blocks Be Used for Pain Management? Section B DYSPNEA 15 What Interventions Are Effective for Managing Dyspnea in People With Cancer? 16 What Interventions Are Effective for Managing Dyspnea in COPD? 17 What Interventions Are Effective for Managing Dyspnea in Heart Failure? Section C GASTROINTESTINAL 18 What Medications Are Effective in Preventing and Relieving Constipation in the Setting of Opioid Use? 19 How Should Medications Be Initiated and Titrated to Reduce Acute and Delayed Nausea and Vomiting in the Setting of Chemotherapy? 20 How Should Medications Be Initiated and Titrated to Prevent and Treat Nausea and Vomiting in the Clinical Situations Unrelated to Chemotherapy? 21 What Interventions Are Effective for Relieving Acute Bowel Obstruction in Cancer and Other Conditions? Section D ANOREXIA/CACHEXIA/FEEDING DIFFICULTIES 22 What Therapies Are Effective in Improving Anorexia and Weight Loss in Cancer? 23 What Therapeutic Strategies Are Effective in Improving Anoerexia and Weight Loss in Nonmalignant Disease? 24 What Is the Role of Parenteral and Enteral Nutrition in Patients With Cancer and With Noncancer Illness? Section E PSYCHIATRIC SYMPTOMS 25 What Treatments Are Effective for Depression in Palliative Care Settings? 26 How Are Anxiety and Fear Best Treated in Patients With Serious Illness and in Those Facing the End of Life? 27 What Is the Approach to the Patient Seeking a Hastened Death? Section F DELIRIUM 28 What Is Delirium and How Should It Be Managed? 29 What Are Effective Pharmacological and Nonpharmacological Treatments for Delirium? 30 How Do Symptoms Change for Patients in the Last Days/Hours of Life? PART II: Communication 31 Prognosis in Palliative Care: Estimating Prognosis in Serious Illness and Communication Strategies 32 What Are the Key Elements to Having a Conversation About Communicating Serious News and Setting Goals? 33 What Are the Elements of Advance Care Planning and What Is the Evidence That Advance Care Planning Changes Patient Outcomes? 34 What Are the Special Communication Issues Involved in Caring for Pediatric Patients? Part III: Disease-Specific Topics Section A CANCER 35 What Is the Role for Palliative Care in Patients With Advanced Solid-Tumor Malignancies? 36 What Is the Clinical Course of Advanced Solid-Tumor Cancers 37 What Is the Role for Palliative Care in Patients With Advanced Hematologic Malignancies? 38 What Is the Clinical Course of Hematologic Malignancies? 39 What is the Role for Palliative Care in Children With Cancer? 40 What Is the Clinical Course of Pediatric Cancers? Section B DEMENTIA 41 What Is the Clinical Course of Advanced Dementia? 42 What Are Appropriate Palliative Interventions for Patients With Advanced Dementia? Section C ADVANCED LIVER DISEASE 43 What Are the Causes and Complications of Chronic Liver Disease and What Is the Evidence for Palliative Care Delivery to Those Affected by It? 44 What Do We Know About the Symptoms and Palliative Care Needs of People Affected by Liver Disease? Section D BRAIN FUNCTION 45 What Is the Role of Palliative Care and Stroke? 46 What Special Considerations Are Needed for Individuals With Amyotrophic Lateral Sclerosis, Parkinson's Disease, and Multiple Sclerosis? Section E HEART FAILURE 47 What Is the Clinical Course of Advanced Heart Failure and How Do Implanted Cardiac Devices Alter This Course? Section F CHRONIC CRITICAL ILLNESS 48 What Is Chronic Critical Illness and What Outcomes Can Be Expected? Section G HEAD AND NECK CANCER 49 What Special Considerations Are Needed in Patients With Head and Neck Cancer? Section H END-STAGE RENAL DISEASE 50 What Special Considerations Are Needed in Treating Symptoms in Patients With End-Stage Renal Disease, and How Should Patients Who Stop Dialysis Be Managed? 51 What Are Palliative Alternatives to Renal Replacement Therapy for People With Advanced Kidney Failure? Section I PULMONARY 52 What Special Considerations Are Needed for Patients With Advanced Lung Disease? Section J GERIATRICS 53 What Are the Special Needs of Older Adults With Serious Illness? 54 What Are Multimorbidity and Frailty and How Do They Affect the Care of Older Adults? Section K PEDIATRICS 55 What Are Special Considerations for Pediatric Palliative Care? 56 What Are Special Considerations for Dosing Medications in Pediatric Populations? 57 How Are Children With Developmental Diseases and Delays Best Managed in Palliative Care? 58 What Are Special Considerations for Perinatal Palliative Care? 59 What Are Special Considerations for Patients With Cystic Fibrosis? PART IV: Special Topics Section A PALLIATIVE CARE EMERGENCIES 60 What Are the Signs, Symptoms, and Treatments of Spinal Cord Compression? 61 What Framework Can Be Used to Address Uncontrolled Symptoms at the End of Life? Section B FINANCIAL ASPECTS OF PALLIATIVE CARE 62 What Are the Arguments That Show That Palliative Care Is Beneficial to Hospitals? 63 What Are the Arguments That Show That Outpatient Palliative Care Is Beneficial to Medical Systems? Section C CAREGIVERS 64 How Does Serious illness Affect Family Caregivers? 65 What Can Be Done to Improve Outcomes for Caregivers of People With Serious Illness? 66 What Is Prolonged Grief Disorder and How Can Its Likelihood Be Reduced? Section D SETTINGS FOR PALLIATIVE CARE DELIVERY 67 What Are the Models for Delivering Palliative Care in Hospitals? 68 What Models Exist for Delivering Palliative Care and Hospice in Nursing Homes? 69 What Are the Models for Delivering Palliative Care in the Ambulatory Practice Setting? 70 What Are the Models for Delivering Palliative Care in the Home? 71 What Are the Models for Delivering Palliative Care in Rural Areas? 72 How Is Palliative Care Best Integrated Into Surgical Services? 73 What Models Exist to Deliver Palliative Care via Telemedicine? 74 What Are National Strategies and Frameworks for Palliative Care? 75 What Are Sources of Spiritual and Existential Suffering for Patients With Advanced Illness? 76 What Are the Racial and Ethnic Health Disparities That Exist in Palliative Care? 77 What Are the Palliative Care Needs of LGBTQ+ People? 78 What Is the Evidence for Integrative and Alternative Therapies in Palliative Care? 79 What Is the Evidence Supportng the Use of Mobile Health Technologies in Palliative Care? 80 How Can Clinician Well-Being Be Improved and Sustained in Palliative Care?

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Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice

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Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased

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Book SynopsisPart of the Psycho-Oncology Care: Companion Guides for Clinicians series, Psycho-Oncology in Palliative and End-of-Life Care provides expert advice and clinical management guidelines on the impact of advanced cancer and its treatment on the life and wellbeing of a patient in palliative and end-of-life care.Table of ContentsContributors 1. Communication about Advanced Progressive Disease, Prognosis, and Advance Care Plans Natasha Michael and Rajvi Shah 2. Anxiety Disorders Daniel McFarland, William Pirl, and Maggie Watson 3. Adjustment Disorders and Demoralization David Kissane, Luigi Grassi, and Chun-Kai Fang 4. Depressive Disorders Daisuke Fujisawa, Tatsuo Akechi, and Yosuke Uchitomi 5. Delirium and Cognitive Impairment Yesne Alici, Soenke Boettger, and William Breitbart 6. Diagnosing Dying, Accompaniment, and Assessing Death Wishes Cristina Monforte-Royo, Josep Porta-Sales, and Albert Balaguer 7. Carer, Partner, and Family-Centered Support Hannah-Rose Mitchell, Alison Applebaum, and Talia Zaider 8. Care of Dependent Children When a Parent Dies of Cancer Jane Turner and Melissa Henry 9. Spiritually and Culturally Sensitive Care Jayita Deodhar, Mark Lazenby, and Crystal Park 10. Bereavement Care Wendy Lichtenthal, William Rosa, and Robert Neimeyer 11. Staff Support Brian Kelly, Maria Die Trill, and Christian Ntizimira Appendix 1: Example of a Question Prompt List for Palliative Care Appendix 2: Example of an Advance Care Plan Appendix 3: Demoralization Scale-II (DS-II) Appendix 4: Psycho-Existential Symptom Assessment Scale (PeSAS) Index

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Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet

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Book SynopsisA resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families. It addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and more. It also includes content on trauma and developmental issues for children, adults, and the aging who are dying.Trade ReviewBerzoff's and Silverman's text is a compendium of educational material uniquely edited to facilitate social workers' understanding of how to think about, talk with and practice caring for people with life-limiting illness, their caregivers and themselves. It should be required reading for all healthcare professionals who provide end-of-life care. From its use of personal narratives to its emphasis on the theoretical underpinnings of social work practice and research, this resource models excellence in teaching. It is authoritative, comprehensive, practical and readable. Although each of the chapters could stand alone, together they carefully weave the complex elements of what healthcare professionals need to know to be both competent and compassionate in providing end-of-life care. This resource thoroughly addresses the educational challenges set forth in the three Institute of Medicine reports calling for the education of healthcare professionals to facilitate improved care to people with life-limiting illness.Kathleen M. Foley, MDProfessor of Neurology, Neuroscience & Clinical PharmacologyWeill Medical School of Cornell University Attending NeurologistMemorial Sloan-Kettering Cancer CenterPalliative Care Initiative Network PublicHealth ProgramOpen Society Institute -- Kathleen M. Foley, MD I would highly recommend Living with Dying. -- Reverend Francis C. Zanger American Journal of Hospice and Palliative Care This text offers a successful interdisciplinary approach to understanding suffering, the vital relationship of self to others (and the importance of self-care), and the competencies needed to promote compassionate, professional palliative care...Recommended. Choice This text is an excellent resource. -- Katherine Miller Palliative Medicine It beautifully encapsulates the profession of social work and the care that social workers provide for the dying and bereaved. -- Cheryl-Anne Cait Smith College Studies in Social Work Living with Dying is the first comprehensive resource on end-of-life care... Social workers will find this text indispensable. -- Carole A. Winston Journal of Social Work in End-of-Life & Palliative CareTable of ContentsContents List of Contributors Acknowledgments Foreword, by Thomas R. Egnew Introduction Part I Narratives in End-of-Life Care 1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving, by David Browning 2. The Symptom Is Stillness: Living with and Dying from ALS, by Ellen Pulleyblank Coffey 3. The Loss of a Child to Cancer: From Case to Caseworker, by Roberta Hoffman 4. September 11: Reflections on Living with Dying in Disaster Relief, by es Gallo-Silver and Penny Damaskos Part II Theoretical Aspects of Death and Dying Introduction: Theory 5. What Is a Respectful Death? by Stu Farber, Thomas Egnew, and Annalu Farber 6. Dying and Bereavement in Historical Perspective, by Phyllis R. Silverman 7. The History of Social Work in Hospice, by Mary Raymer and Dona Reese 8. The Interdisciplinary Team: An Oxymoron? by Inge B. Corless and Patrice K. Nicholas 9. Ethical issues in End-of-Life Care: Social Work and Facilitation and Proactive Intervention, by Patricia O'Donnell 10. Spirituality and End-of-Life Care Practice for Social Workers, by Carolyn Jacobs 11. Gender and Death: Parallel and Intersecting Pathways, by Illene C. Noppe 12. Bereavement: A Time of Transition and Changing Relationships, by Phyllis R. Silverman 13. Psychodynamic Theories in Grief and Bereavement, by Joan Berzoff Part III Clinical Practice Issues in End-of-Life Care Introduction: Clinical Practice 14. The Trajectory of Illness, by Allen Levine and Wendy Karger 15. Clinical Social Work Practice at the End of Life, by Felice Zilberfein and Elizabeth Hurwitz 16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families, by Nancy Cincotta 17. Working with Dying and Bereaved Older People, by Sue Thompson and Neil Thompson 18. Assessing Mental Health Risk in End-of-Life Care, by Katherine Walsh-Burke 19. Pain and Symptom Management: An Essential Role for Social Work, by Terry Altilio

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Book SynopsisOffers a process-based, patient-centered approach to palliative care that substantiates a radical reconsideration of our transition to deathTrade ReviewA pioneering work on research about dying and a treasury of knowledge about dying processes, this book will promote our understanding, care, and guidance of terminally ill persons. -- Pim van Lommel, cardiologist and author of Consciousness Beyond Life: The Science of the Near-Death Experience Monika Renz is able to partially lift the veil shrouding the mystery of death. Based on her vast experience with the dying, her book provides an intimate and rich account of the phenomenological experience of the dying process. -- Paul T. P. Wong, Trent University, president of the Meaning-Centered Counselling Institute A bold, probing investigation into how analogies and metaphors provide fresh access to dying as the ultimate mystery of human potential. A skillful analysis of patient vignettes render palpable many ineffable and unconscious dynamics of patients' experiences as they move from conventional ego-based schema through personal, transformative, beautiful, and even painful transitions. This insightful work is a compass for reducing suffering among the dying and the living. -- Bruce L. Arnold, University of Calgary This powerful book plumbs the existential depths of our ultimate transformation. Network ReviewTable of ContentsAcknowledgments Introduction: In Search of Inner Experiences of Dying 1. Dying and the Transformation of Perception 2. The Three Stages of Transition and Dignity 3. What Is Primordial Fear? "The 'I' Dies Into a 'Thou'" 4. Other Hearing: Beyond Space and Time 5. Metaphors of Transition 6. The Sites of Transition: Fear, Struggle, Acceptance, Family Processes, Maturation 7. Dying with Dignity: Indication-Oriented End-of-Life Care Epilogue Appendix Notes References Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThrough drawings, paintings, and poetic, prayerful affirmations grounded firmly in the Jewish experience, the author offers a creative response to her mother’s final illness and death. Trade Review“Life Support exemplifies the genre of graphic medicine. Spare and raw, we are thrust into the physicality of health and illness, bodies and fluids, as well as emotions deep and intense. She offers us feelings, ugly and unrepentant at times, with moments of grace at others, and in the process of the work, reveals a healing balm, years in the making.”—Joel L. Kushner,Director, Kalsman Institute on Judaism and Health“As she attended to her mother’s declining days, Judith Margolis instinctively, deeply recorded them in art and text that have the quality of prayer. One sees in this work the profound tenderness of attention. From within the great hollow of loss, this book offers unexpected comfort. Margolis lifts up an art and practice that attend to the ineffable, and in whose spirit loss becomes presence.”—Elizabeth Robinson,author of On Ghosts“In charting her ‘trajectory from brokenness to wholeness’ through drawing and writing, Margolis offers a uniquely consoling but also affirmative narrative of love and loss.”—Lois Perelson-Gross Graphic Medicine“Margolis’s brief book tackles a hard subject by facing the unpretty reality head-on, giving the reader a window into a world usually whispered about in hushed tones, if at all. Beyond being a sensitive tribute to her parents, there is much to consider for families similarly situated. The deft title Life Support can be understood both as the physical machinery used in critical care and as the act of the book’s creation serving as an emotional life preserver buoying the book’s author, while benefiting us all.”—Heddy Breuer Abramowitz Jerusalem Post“Margolis, in reviving a combination of art and literature that is religious at its core, has created a deeply original and moving work.”—Julia Stein Rain Taxi Review of Books“Life Support, a book of prayer, is a solicitation. It is an invitation to sit quietly and pay attention: to the pain of a dying mother and her grieving daughter; to the bonds of life, and grief, that all of us ultimately share, just by dint of still being here.”—Tahneer Oksman Shofar“Life Support reminded me that reading can be about more than words. A good book can be a fully sensory experience: The smell of the pages, the crackle of the spine, the texture of the cover, the delights of a good font or drawing. Life Support is all of that and more.”—Susan Sered Nashim

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Book SynopsisThis easy-to-use guide provides a quick reference to the principles of palliative and end-of-life care for adults, to help you enable your patients to not only die peacefully but also live until they die. The Nursing & Health Survival Guides have evolved - take a look at our our app for iPhone and iPad.Table of ContentsWhat is palliative care?The patient journeyRole of the nurseCommunication in palliative careHolistic assessmentSymptom management in palliative and end of life carePain managementNausea and vomitingBreathlessnessConstipationFatigueCare at end of lifeSymptoms at end of lifeA good deathCare in the last few weeks and daysSupporting family and carersLooking after self

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Book Synopsis "To those of us who have been aware of the innovative service to families facing death and bereavement that has been developed by David W. Kissane and Sidney Bloch this book has been eagerly awaited. Their work is a logical development in the field of Palliative Care in which it has long been recognized that, when life is threatened, it is the family (which includes the patient) which is, or ought to be, the unit of care.The work also has great relevance for the wider field of bereavement care...all who work to help families at times of death and bereavement will find much to learn from this book which represents a useful addition to our understanding of the losses which, sooner or later, we all have to face." - Colin Murray Parkes Family members are often intimately involved in the care of dying people and themselves require support through both their experience of palliative care and bereavement. This innovative book describes a comprehensive model of famTrade Review"Kissane and Bloch demonstrate an extraordinary commitment to improving the quality of family life in this moving are readable account of a research project using Family Focussed Grief Therapy (FFGT). I recommend it to anyone working with seriously ill and dying patients." - Jeni WebsterTable of ContentsSeries editor's prefaceForeword by Colin Murray ParkesIntroductionFamily care and family griefA typology of family functioningConducting family focused grief therapy (FFGT)Common themes that arise during FFGTA typical encounter of therapyChallenges and problems in the delivery of FFGTThe impact of specific life events upon familiesThe ethical dimensionClinical application of the FFGT modelAppendix 1The Family Relationships Index (FRI)Appendix 2Tables of results from the Melbourne Family Grief StudiesBibliographyIndex.

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Book SynopsisThis beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness. This book is also available to buy as part of the Therapeutic Fairy Tales pack. Therapeutic Fairy Tales is a series of short modern tales dedicated to exploring challenging life situations that might be faced by young children. Each short story is designed to be used by professionals and caregivers as they use stories therapeutically to support childrenâs mental and emotional health.Other books in the series include: Storybook Manual: Introduction To Working With Storybooks Therapeutically And Creatively The Night Crossing: A Lullaby For Children On Lifeâs Last Journey The Island: For Children With A Parent Living With Depression Designed to be used with children aged 7+, each story has an accompanying online resource, offering therapeutic prompts and creative exercises to support the practitioner. These resources can also be adapted for wider use with siblings and other family members. The Night Crossing - from the Therapeutic Fairy Tales series â is born out of a creative collaboration between Pia Jones and Sarah Pimenta Trade ReviewA sensitive and poignant tale to aid and support children who may be facing an untreatable illness. The Night Crossing can help soften the fear about the journey into the unknown. Hephzibah Kaplan, Art Therapist, Director, London Art Therapy Centre The Night Crossing is so sensitively written, with beautiful illustrations. I found it honest and touching, a sympathetic aid that could be revisited whenever needed. In our experience, children take in as little or as much as they feel comfortable to deal with when they are ready. I also feel this book could help siblings of a child who is very ill and for parents or carers to help gauge other children's questions and emotions.Family member, AnonymousAs children are so naturally at ease with metaphor, I imagine The Night Crossing could answer some of the unspoken fears of a child and families at this time with honesty and kindness. It acknowledges the wisdom of the child who in his heart knows what is happening. I would also hope that this story could open up the possibility of conversations between parent and child. A touching and sensitive work, with beautiful illustrations. Anna Ledgard, Arts Producer, End of Life doula trainerA sensitively written and delightfully illustrated book that provides support and comfort to both a seriously ill child or siblings. The Night Crossing provides a safe space for parents and professionals to explore the fears and emotions a child may experience but also provides the opportunity for a child to ask difficult questions. Janey Treharne, from Jigsaw (South East)This book has done something very beautiful and reassuring with a very difficult topic. Taylor Smart, Art PsychotherapistTable of ContentsA Word of Caution The Night Crossing: A lullaby for children on life's last journey

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Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181

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Book SynopsisWhether residing at home, in assisted living or in a nursing facility, older adults have unique nutrition needs. Like the previous edition, this hands-on reference encompasses the total perspective on person-driven nutrition care of older adults, from nutrition and disease states to regulatory compliance in health care settings.

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Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

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Book SynopsisWith contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.Trade Review"An inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients." (Journal of the American Academy of Child and Adolescent Psychiatry)"Table of ContentsList of Contributors Preface Part I: Societal and Institutional IssuesChapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of CareChapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient PopulationsChapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic ConditionChapter 17. Integrating Palliative Care with HIV Care and TreatmentChapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology Index

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Book Synopsis'Warm, wise and practical' Cressida Cowell, MBEAn invaluable reference for parents of sick or hospitalised children by an experienced and eminent psychologist. To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalised, severely sick, or terminally ill. In When Your Child is Sick, psychologist Joanna Breyer distils decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes.Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilise friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death.When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.Trade ReviewNFAA Book Award Winner -- Gold AwardJoanna Breyer balances profound compassion with pragmatism to provide an extraordinarily valuable guide to the management and care of sick children... This book should be compulsory reading for anyone facing these terrifying conundrums and life-altering decisions. * Siddhartha Mukherjee, author of 'The Emperor of All Maladies: A Biography of Cancer', winner of the 2011 Pulitzer Prize in general nonfiction *[This book] is a wonder. I stand in awe at how comprehensive it is in guiding parents through maintaining confidence and alleviating fear during what can be an extremely challenging experience. A great clinician, [Joanna Breyer] is above all an inspired teacher who provides a treasure trove of advice for those facing the greatest fear parents have-that of losing a child. * David G. Nathan, President/Physician-in-Chief Emeritus, Dana-Farber Cancer Institute and Boston Children's Hospital; Professor of Pediatrics, Harvard Medical School *A compassionate, informative, and clear-eyed guide [that] lights the way for parents of children with cancer [and] provides comfort during a confusing, shocking, and despairing time. * Nancy Goodman, Executive Director, Kids v Cancer *This is definitely the book to read if you have a sick child... also an excellent guide for paediatric medical staff, who will learn working tools that improve the quality of their work and the quality of their patients´ lives. I recommend it without hesitation and wish I´d had it earlier in my professional career. * Maria Die Trill, Ph.D., President, International Psycho-Oncology Society *An incredibly important contribution for families with a child who has a serious illness. * Dr. Michael Yogman, Chief, Division of Ambulatory Pediatrics, Mt. Auburn Hospital, Harvard Medical School *[Breyer] proves to be the expert friend and advocate everyone needs: informative, steady, sympathetic, and - if treatment fails - unflinching at the prospect of loss. * Harvard Magazine *[This book lists] every possible resource that might help parents with meticulous care, but its greatest value may lie in its sympathetic understanding of the psychological problems that arise during this stressful time and how to resolve them. * Joanna Lane *A fantastic book that compassionately and sensitively prepares parents for the emotional and practical demands of caring for a child within the hospital system. * Dr Janie Donnan, Consultant Clinical Psychologist, Lead for Paediatric Psychology Royal Hospital for Children, Glasgow *

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Book SynopsisA Nurse’s Life tells the remarkable story of one woman’s devotion to a life of care in the medical profession. Beginning her career as a midwife, Geralyn later became an authority in palliative care, but throughout her goal has always been about understanding what it means to truly care for another person. That is precisely what she does in this book: portray the essence of nursing.After years in the hospital wards Geralyn decided it was time for a change and volunteered to work for Concern Worldwide in a two-year post among the most needy in Bangladesh. Here she learned first-hand about the link between poverty and health care. Upon her return to Ireland she returned to academia and enrolled in an MsC programme at Trinity College Dublin. Eventually she became Assistant Professor in the School of Nursing at Trinity.Interspersed between her highly entertaining personal stories as a nurse, Geralyn expounds on many of the key issues in the nursing profession today: the changing nature of nursing and environment of care; challenges in providing person-centred care in the hospital setting, the essential qualities needed to be a good nurse; the problematic doctor/nurse/administration relationship; the future of nursing and possible ways to address the current challenges; and much more.More recently, Geralyn experienced nursing from the other side when she was diagnosed with a brain tumour that while benign meant surgery, radiotherapy and several new chronic conditions as a result. This has given her a deeper, first-hand understanding of nursing and the extraordinary reality of loving care.

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Book SynopsisPublishing on the 50th anniversary of the opening of St Christopher's Hospice - widely thought of to be the first modern hospice, combining pain and symptom management with education and training - this edited collection discusses what motivates professionals and volunteers to provide spiritual care. This book shows how the world of hospice care is moving on from Cicely Saunder's, founder of St Christopher's Hospice, legacy to providing spiritual care in a more integrated manner. With entries from doctors, nurses and CEOs among others, this book informs good practice for professionals and volunteers providing spiritual care for patients and their families. It looks at how, for many of these professionals, spirituality does not have to be grounded in organised religion, but stems from understanding and providing for our human needs.Trade ReviewThis book opens up the idea of what 'spiritual' means in wholly original ways, finding it in the lived human experience of dying people and those who accompany them. Honest, open and moving, it takes the questions way beyond the hospice. Valuable reading for anyone involved in providing - or receiving - healthcare. -- Jessica Rose, writer and psychotherapistThis new look at spiritual care demonstrates the importance of a multi-professional approach. It seeks to re-integrate spirituality with other aspects of care by professional care-givers and volunteers recognising and responding to spiritual needs through developing a compassionate and attentive relationship with the patient and family. Practical examples help clarify the how and why of spiritual care and its relevance for carers. -- Prebendary Dr Peter Speck, Hon Senior Lecturer (Palliative Care), Cicely Saunders Institute, King’s College LondonThis book brings together a compelling blend of personal reflection, practical experience, and conceptual exploration of a profoundly important area. Its contributors are often movingly and refreshingly honest, and their collected breadth of experience comes together into a whole that will be deeply thought-provoking for practitioners and non-specialists alike. -- Bishop Christopher, Portsmouth DioceseTable of Contents1. What is Spiritual Pain? Nigel Hartley, East Mountbatten Hospice. 2. The Need to Be Present to the Patient. Andrew Goodhead, St Christopher's Hospice. 3. Relationship, not Intervention. Ros Taylor, Hospice UK. 4. Offering Hope in Healthcare. Becky McGregor, Physiotherapist Early Mountbatten Hospice. 5. Relationship and Resilience. Pippa Hashemi, Volunteer, St Christopher's Hospice. 6. Total Pain and Diversity. Linda McEnhill, Educationalist, St Joseph's Hospice. 7. Exploring Spiritual Pain through the Arts. Olwen Minford, Psychotherapist, Kings College London. 8. Working with the Tension of Spirituality and Religion, Bob Whorton, Chaplain, Sir Michael Sobell House Hospice. 9. Spirituality and Vocation, Liz Arnold, Nurse, Earl Mountbatten Hospice. 10. Practicing Spiritual Care, Kostas Kontelias, Sally Mercer, Ninon VanDerKroft, Social Workers. 11. Conclusion, Andrew Goodhead and Nigel Hartley.

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