Terminal care nursing Books

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Book SynopsisChristopher Kerr is a hospice doctor. All of his patients die. Yet he has tended thousands of patients who, in the face of death, speak of love, meaning and grace. They reveal that there is hope beyond cure as they transition to focus on personal meaning. In this extraordinary and beautiful book, Dr. Kerr shares his patients' stories and his own research pointing to death as not purely the end of life, but as a final passage of humanity and transcendence.Drawing on interviews with over 1,200 patients and more than a decade of quantified data , Dr. Kerr reveals why pre-death dreams and visions are remarkable events that bring comfort and exemplify human resilience. These are not regular dreams. Described as "more real than real," they frequently include loved ones long gone and mark the transition from distress to acceptance. These end-of-life experiences help patients restore meaning, make sense of the dying process and assist in reclaiming it as an experience in which they have a say. They also benefit the bereaved who get relief from seeing their loved ones pass with a sense of calm closure.Beautifully written with astonishing stories, this book, at its heart, celebrates the power to reclaim how we die, while soothing the bereaved who witness their loved ones go with unqualified grace.Trade ReviewThis comforting guide will reassure the dying and their loved ones while providing instructive portraits of end-of-life patients for those who work in medical and healing professions * Publisher's Weekly *Whether you have a loved one nearing the end, or are contemplating what may lie beyond this life, you'll find that Dr Kerr's book brings meaning and even beauty to our final stage. I recommend it highly for anyone with a finite lifespan * Dale Bredesen, MD *Based on deep experience, this loving, emotionally wise book will help many people find the path to love, acceptance and meaning as they face life's end * Katy Butler *This reality is shared with us by a hospice physician who, himself, learned so much from the dying. And what did he learn? That by being truly present with those who are dying, one learns how to live * James Doty, MD *A beautiful portrait of the human capacity for transcendence at the end of life. This book will inspire you reflect on the love and meaning you have experienced in your own life, and help you listen to, and be with, those nearing the end of their lives * Kelly McGonigal, PhD *[A] sympathetic and intriguing book. [Death is But a Dream is] an uplifting and reassuring work testifying to the deep restorative and spiritual - though not necessarily religious - nature of pre-death visions * Kirkus Reviews *

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Book SynopsisTable of ContentsPreface 1. Primary ED Palliative Care 2. Trajectories and Prognostication 3. Goals of Care Discussions 4. Advance Directives and Advance Care Planning 5. Dyspnea 6. Nausea and Vomiting 7. Cancer Pain 8. Last Hours of Living 9. Non-malignant and chronic pain 10. Devices and Therapies 11. Family Presence During Resuscitation 12. Ventilator Withdrawal 13. Death of a Child 14. Hospice Referral from the ED 15. Hospice Patient in the ED 16. Cultural and Spiritual Considerations 17. Ethical Aspects of Care 18. Global Aspects of Palliative Care 19. Prehospital Palliative Care 20. Models of Care/Implementation of Palliative Care in the ED 21. Palliative Care Consultation in the ED

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Book SynopsisThis book guides clinicians through the management of common situations found in palliative medicine. Using patient case scenarios, it gives students and medical professionals an accessible, evidence-based entryway to gain the skills and knowledge needed to provide high quality palliative and end of life care to patients and their families.Table of Contents1: Jessica Simon and Jeff Myers: Advance care planning and goals of care discussions 2: Pippa Hawley: Opioids overview 3: Sharon Watanabe, Yoko Tarumi, and Megan Sellick: Somatic pain 4: Michael Downing: Visceral pain 5: Srini Chary, Susan MacDonald, Leonie Herx, and Anne Boyle: Neuropathic pain 6: Danielle Kain, Susan MacDonald, and Shalini Nayar: Dyspnea and lung disease 7: Bernard J. Lapointe: Nausea and vomiting 8: Tim Hiebert and Stefan Riel: Constipation 9: Carl Bromwich: Malignant bowel obstruction 10: Neil Macdonald and Vickie Baracos: Anorexia-cachexia 11: Ravi Bhargava and Martin Chasen: Cancer fatigue 12: Shirley H. Bush, Bruno Gagnon, and Peter G. Lawlor: Delirium 13: Madeline Li, Gilla K. Shapiro, and Gary Rodin: Anxiety and depression 14: Alexandra Farag: Grief and bereavement 15: Cheryl Hurley and Vincent Maida: Wounds in advanced illness 16: José Pereira: Urological symptoms and complications in palliative care 17: Samir Azzaria, Marie-Andrée Fournier, and Mélanie Simard: Mouth care 18: Anna Towers and Marie-Eve Letellier: Lymphedema 19: Dave Henderson and Leonie Herx: The last days and hours 20: Leonie Herx: Continuous palliative sedation therapy (CPST) 21: Crystal Hann, Anand Swaminath, and Jonathan Sussman: Radiation therapy: Advancing technologies 22: Rachel Rudney and Paul J. Daeninck: Chemotherapy 23: Michael Slawnych: Palliative care in heart failure 24: Tenille Gofton: Neurological disorders 25: Hasitha Welihinda: Renal failure 26: Tim Hiebert: Cirrhosis and diseases of the gastrointestinal tract 27: Anne Boyle and Dave Henderson: Palliative care in the community 28: Valerie N. Schultz and James Downar: Palliative care in the intensive care unit (ICU) 29: Dave Lysecki and Christina Vadeboncoeur: Pediatric palliative care 30: Naheed Dosani and Anna Voeuk: Palliative care for structurally vulnerable populations (SVPs) 31: Pippa Hawley: Methadone 32: Pippa Hawley and Vincent Maida: Medical cannabis 33: Philip Chan and Kelly Shinkaruk: Interventional analgesic techniques 34: Stephen B. Singh: Useful apps and websites 35: Deborah Dudgeon, Leonie Herx, and Susan MacDonald: Response to suffering 36: Denise Marshall and Doris Barwich: Public health palliative care

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Book SynopsisThis sixth edition of the Oxford Textbook of Palliative Medicine takes us now into the third decade for this definitive award-winning textbook. It has been rigorously updated to offer a truly global perspective, highlighting the best current evidence-based practices, and collective wisdom from more than 200 experts around the world. This leading textbook covers all the new and emerging topics, updated and restructured to reflect major developments in the increasingly widespread acceptance of palliative medicine as a fundamental public health need. The sixth edition includes new sections devoted to family and caregiver issues, cardio-respiratory symptoms and disorders, and genitourinary symptoms and disorders. In addition, the multi-disciplinary nature of palliative care is emphasized throughout the textbook, covering areas from ethical and communication issues, the treatment of symptoms, and the management of pain.The Oxford Textbook of Palliative Medicine is a truly comprehensive textTrade ReviewReview from previous edition Featured as an essential purchase on Doody's Core Titles List for 2018This book is an excellent resource, full with information from leaders in the field of palliative medicine [...] An essential textbook for all professionals working within the palliative care arena. * Helen Reeves, Clinical Nurse Manager, St Giles Walsall Hospice, Nursing Times *This is an expertly informed text that remains authoritative and detailed. Seeing all these chapter titles in print also illustrates how broad palliative care is, providing a useful reminder of how many different areas and topics are part of its practice [...] Those new to the book will find what the editors hope to have created: an authoritative reference text with a global perspective on the field. * Guy Schofield, Clinical Research Fellow, Imperial College, London; in the European Journal of Palliative Care, Vol 23, No. 1 (2016) *Updated, well organised, and the coverage is good [...] I think it remains the best book on palliative medicine on the market. * Roger Woodruff; Hospicecare.com, January 2016 *Table of ContentsSection 1: The worldwide status of palliative care 1.1: Carlos Centeno, Sheila Payne, and Eduardo Garralda: International progress in the development of palliative care 1.2: Lukas Radbruch and Liliana De Lima: Essential medicines for palliative care 1.3: Frank Brennan and Liz Gwyther: Human rights issues 1.4: Stephen R. Connor: Policy in palliative care Section 2: The challenge of palliative medicine 2.1: Russell K. Portenoy: Building definitional consensus in palliative care 2.2: Nathan I. Cherny and Russell K. Portenoy: Core concepts in palliative care 2.3: Davinia Seah, David Marco, Jennifer Philip, and Megan B. Sands: The epidemiology of death and symptoms: planning for population-based palliative care 2.4: Barry Laird, Erna Haraldsdottir, and Charlie Hall: Barriers to the delivery of palliative care 2.5: Jonathan Koffman and Natalia Calanzani: Ethnic and cultural aspects of palliative and end of life care 2.6: Peter S. Hall, Katharina Diernberger, and Liz Grant: Health economics for palliative care Section 3: Service delivery issues in palliative care 3.1: Breffni Hannon, Stein Kaasa, and Camilla Zimmermann: Specialist palliative care along the trajectory of illness: issues in the early integration of palliative care 3.2: Irene J. Higginson: Palliative care delivery models 3.3: Sharon Einav, Nathan I. Cherny, and J. Randall Curtis: Palliative medicine in the intensive care unit 3.4: Naomi George and Corita Grudzen: Palliative care in the emergency department 3.5: Jane Phillips and Annmarie Hosie: Palliative care in the nursing home Section 4: Healthcare professionals in palliative care 4.1: Dagny Faksvåg Haugen, Friedemann Nauck, and Deborah Witt Sherman: The core team and the extended team 4.2: Nathan I. Cherny, Batsheva Werman, and Michael Kearney: Burnout, compassion fatigue, and moral distress in palliative care 4.3: Betty R. Ferrell, Polly Mazanec, Pam Malloy, and Rose Virani: Nursing Education in palliative care 4.4: Terry Altilio, Bridget Sumser, and Nina Laing: Social work in palliative care 4.5: George Handzo and Christina Puchalski: The role of the chaplain in palliative care 4.6: Maria Denise Pessoa Silva, Fiona Rolls, Lynne White, Tamsin Longley, Jane Murphy, and Jill Cooper: Occupational therapy in palliative care 4.7: Nigel Hartley: The role of the creative arts in palliative care 4.8: Samantha Cushen and Aoife Ryan: The role of the dietitian in palliative care 4.9: Lucy Fettes and Matthew Maddocks: Physiotherapy in palliative care 4.10: Tim Luckett and Katherine L.P. Reid: Speech and language therapy in palliative care 4.11: E. Alessandra Strada: Clinical psychology in palliative care 4.12: Ebtesam Ahmed: The contribution of the clinical pharmacist in palliative care 4.13: Andrew M. Cole: Medical rehabilitation and the palliative care patient Section 5: Communication and palliative medicine 5.1: Thomas W. LeBlanc and James Tulsky: Communication with the patient and family 5.2: Susan D. Block: Practical considerations including difficult conversations 5.3: Judith Rietjens, Ida Korfage, and Jane Seymour: Advance care planning Section 6: Family and caregiver issues 6.1: Carrie Lethborg and David W. Kissane: Family dynamics in the context of serious illness 6.2: Rinat Nissim, Sarah Hales, and Gary Rodin: Caregiver burden and distress Section 7: Pain 7.1: Lucy N. Wyld, Clare Rayment, and Mike I. Bennett: Definition and assessment of chronic pain in advanced disease 7.2: Anthony H. Dickenson and Richard Gordon-Williams: Pathophysiology of pain in cancer and other terminal illnesses 7.3: Nathan I. Cherny: Acute cancer pain syndromes 7.4: Nathan I. Cherny: Chronic cancer pain syndromes 7.5: Ruth Miles, Steven Wanklyn, and Joy Ross: Principles of drug therapy 7.6: Nathan I. Cherny and Marie T. Fallon: Opioid therapy: optimizing analgesic outcomes 7.7: Joseph V. Pergolizzi, Jr., Jo Ann LeQuang, Flaminia Coluzzi, Dean Mariano, Andrew Nicolaou, and Christopher Gharibo: Opioid therapy: managing risks of abuse, addiction, and diversion 7.8: Per Sjøgren, Frank Elsner, and Stein Kaasa: Non-opioid analgesics 7.9: Russell K. Portenoy, Ebtesam Ahmed, and Mona Patel: Adjuvant analgesics: principles of use 7.10: Robert A. Swarm, Menelaos Karanikolas, Lesley K. Rao, and Rajiv K. Shah: Interventional approaches for chronic pain 7.11: Helena Knotkova: Neurostimulation in pain management 7.12: Joseph Winger, Carolyn E. Keeler, and Francis Keefe: Behavioral and psychosocial interventions for pain management 7.13: Noah Samuels and Eran Ben-Arye: Integrative medicine therapies in pain management 7.14: Peter Hoskin: Management issues in bone pain 7.15: Lise Ventzel and Nanna Finnerup: Management issues in neuropathic pain 7.16: Victor T. Chang: Management issues in visceral pain 7.17: Judith A. Paice: Management issues in chronic pain following cancer therapy 7.18: Renee McCulloch: Paediatric pain control Section 8: Gastrointestinal symptoms and disorders 8.1: Katherine Clark: Dysphagia, dyspepsia, and hiccups 8.2: Saskie Dorman: Nausea and vomiting 8.3: Philip J. Larkin: Constipation and diarrhoea 8.4: Alexandra Shingina and Anne M. Larson: Jaundice, ascites, and encephalopathy 8.5: Vickie Baracos and Sharon M. Watanabe: Aetiology, classification, assessment, and treatment of the anorexia-cachexia syndrome 8.6: Jann Arends and Florian Strasser: Parenteral nutrition Section 9: Cardio-respiratory symptoms and disorders 9.1: Miriam J. Johnson and David C. Currow: Breathlessness and other respiratory symptoms in palliative care 9.2: Doris Tse and Kin-Sang Chan: Cough and other pulmonary symptoms Section 10: Skin and oral symptoms and disorders 10.1: Sebastian Probst and Georgina Gethin: Skin problems in palliative care 10.2: Charles P. Tilley, Mei R. Fu, Janet H. Van Cleave, Allison R. Most, and Christopher Comfort: Palliative wound and ostomy care 10.3: Vaughan Keeley: Lymphoedema and oedema of advanced disease 10.4: Andrew N. Davies: Oral care Section 11: Genitourinary symptoms and disorders 11.1: Jennifer G. Rothschild, Noah E. Canvasser, Frederick J. Meyers, and Christopher Evans,: Dysuria, frequency, and bladder spasm 11.2: Noah E. Canvasser, Jennifer G. Rothschild, Frederick J. Meyers, and Christopher P. Evans: Obstructive urinary disorders Section 12: Constitutional symptoms and related disorders 12.1: Sriram Yennurajalingam and Eduardo Bruera: Fatigue 12.2: Lauren Kadwell, Jane Ussher, Emilee Gilbert, Janette Perz, and Amanda Hordern: Sexuality in palliative care: discussing patient sexuality and intimacy in palliative care 12.3: Kyriaki Mystakidou, Efi Parpa, and Eleni Tsilika: Sleep disorders 12.4: Simon Noble, Nicola Pease, and Nicholas Chinn-Yee: Assessment and management of thrombotic complications 12.5: Bill Hulme, Sarah Wilcox, Paul Ashwood, Laura Deacon, Hazel Gilkes, and Victoria Montgomery: Assessment and management of bleeding complications in the medically ill Section 13: Psychiatric and psychological symptoms and disorders 13.1: Tzeela Cohen and Simon Wein: Coping and resilience in palliative medicine 13.2: David W. Kissane: Depression, demoralization, and suicidality 13.3: Kerry A. Sherman and Christopher J. Kilby: Fear, anxiety, and adjustment disorder in palliative care 13.4: Meera Agar, Yesne Alici, Augusto Caraceni, and William Breitbart: Delirium 13.5: David W. Kissane: Bereavement Section 14: Palliative care in cancer 14.1: Nathan I. Cherny and Stein Kaasa: The oncologist s role in delivering palliative care 14.2: Olav Dajani and Karin Jordan: Disease-modifying therapies in advanced cancer-medical treatment 14.3: Peter Hoskin: Radiotherapy in symptom management 14.4: Robert Krouse and Brian Badgwell: The role of general surgery in the palliative care of patients with cancer 14.5: Mohamed Yakoub and John Healey: Orthopaedic surgery in the palliation of cancer 14.6: Eran Ben-Arye and Noah Samuels: Integrative oncology in palliative medicine 14.7: Tarun Sabharwal, Nicos I. Fotiadis, and Andy Adam: Interventional radiology in the palliation of cancer 14.8: Augusto Caraceni, Fabio Simonetti, and Cinzia Martini: Neurological problems in advanced cancer 14.9: Richella Ryan and Ruth Casey: Endocrine and metabolic complications of advanced cancer 14.10: Jason W. Boland and Elaine G. Boland: Malignant Bowel obstruction 14.11: Catriona R. Mayland and Simon N. Rogers: Palliative care issues in head and neck cancers 14.12: Thomas W. LeBlanc and Arjee El-Jawahri: Palliative care issues in populations with haematological malignancies 14.13: Nancy Zhu and Cynthia Wu: Anaemia, cytopenias, and thrombosis in palliative medicine Section 15: Issues in populations with non-cancer illnesses 15.1: Meera Pahuja and Peter Selwyn: HIV/AIDS 15.2: Natasha Smallwood and Nicole Goh: Advanced diseases of the lung 15.3: Steve Pantilat, Patricia Davidson, and Mitch Psotka: Advanced heart disease 15.4: Eric Widera, Shaida Talebreza, and Rachelle E. Bernacki: Dementia 15.5: Stefan Lorenzl and Raymond Voltz: Neurological disorders other than dementia 15.6: Arpan Patel and Anne Walling: Palliative care and end-stage liver disease 15.7: Fliss E.M. Murtagh: End-stage kidney disease 15.8: Anne Wilkinson and Marianne Matzo: Palliative care in catastrophic disasters and humanitarian crises Section 16: Issues of the very young and the very old 16.1: Erna Haraldsdottir and Sally Paul: Involving children and families when someone important is dying or has died 16.2: Myra Bluebond-Langner, Richard W. Langner, and Ignasi Clemente: Care of children with advanced illness 16.3: Meera Agar and Jane Phillips: Palliative medicine and care of the elderly Section 17: Spiritual issues in palliative medicine 17.1: Susan McClement, Genevieve Thompson, and Jamie Penner: Spiritual issues in palliative medicine 17.2: Yvan Beaussant, Alexandra Nichipor, and Tracy A. Balboni: Integration of spiritual care into palliative care service delivery models Section 18: The terminal phase 18.1: Christian T. Sinclair: Predicting survival in patients with advanced disease 18.2: David Hui and Masanori Mori: Physiology of dying 18.3: Judith Lacey and Nathan I. Cherny: Management of the actively dying patient Section 19: Ethical issues 19.1: Robert C. Macauley: Practical bioethics in the care of patients with advanced illness 19.2: Alexander A. Kon: Requests for futile or inappropriate interventions near the end of life 19.3: Nathan I. Cherny: Autonomy and shared decision making in a multi-cultural world 19.4: Linda Emanuel, Rebecca Johnson, and Lara Boyken: Truth-telling and consent 19.5: Richard D.W. Hain: Ethics in paediatric palliative care 19.6: Lars Johan Materstvedt: Ethical issues in physician aid-in-dying 19.7: Danielle Ko, Hannah Evans-Barns, and Craig Blinderman: Withholding and withdrawing life-sustaining treatment (including artificial nutrition and hydration) 19.8: Eric L. Krakauer: Medical and ethical considerations in palliative sedation at the end of life Section 20: Assessment tools and Informatics 20.1: Afaf Girgis, Amy Waller, and Breanne Hobden: Palliative care needs assessment tools 20.2: Jennifer Tieman and David C. Currow: Informatics and literature search 20.3: Madeline Li, Tracy A. Balboni, Rinat Nissim, and Gary Rodin: Validated assessment tools for psychological, spiritual, and family issues Section 21: Teaching and training in palliative medicine 21.1: Karen Forbes and Jane Gibbins: Physicians 21.2: Geana Paula Kurita and Philip J. Larkin: Nurses 21.3: Myra Glajchen, George Handzo, and Ebtesam Ahmed: Teaching and training in palliative social work, chaplaincy, and pharmacy Section 22: Research in palliative medicine 22.1: Marianne J. Hjermstad and Stein Kaasa: Research in palliative care 22.2: Miriam J. Johnson and David C. Currow: The principles of evidence-based medicine 22.3: Pål Klepstad and Stein Kaasa: Understanding clinical trials in palliative care research 22.4: Kate Flemming: Qualitative research 22.5: David K. Kissane, Christopher H. Grossman, and Clare O'Callaghan: Research into psychosocial issues 22.6: Tyler Tate and David Casarett: Ethical issues in palliative care research 22.7: Jon Håvard Loge and Stein Kaasa: Quality of life and patient-reported outcome measures 22.8: Tinne Smets and Luc Deliens: Health services research in palliative and end-of-life care 22.9: Irene J. Higginson and Mevhibe B. Hocaoglu: Clinical audit in palliative medicine

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Book SynopsisBy bridging the gap between conventional medical interventions and complementary approaches using aromatherapy, palliative care nurse and clinical aromatherapist, Carol Rose, demonstrates how an integrated and evidence-based approach can have the most significant impact on quality-of-life in patients with life-limiting illness.Aromatherapy is already a fundamental practice in many palliative care settings but its benefits remain under-researched and under-represented. Each chapter of this book incorporates a person-centred focus to consider the integration of various aromatherapy approaches for a range of end-of-life symptoms, alongside conventional medical options. The specificity of this approach and the emphasis of empowering patients to be involved in the process of choosing oils and applications, allows for improved results in the palliation of common symptoms.Integrating Clinical Aromatherapy in Palliative Care has a foundation in research from the patient's point of view. The result is a fresh perspective that prioritises support of patient choices, skilful communication and individualised care, alongside the judicious use of essential oils and other botanical products. Collectively, aromatherapy can completely reframe holistic care to allow for greater emotional, social and spiritual expression.Trade ReviewThe most authoritative text to date for the specialist aromatherapy world...a detailed, empathetic and dedicated path that stems from a place of rich experience, knowledge and the unwavering determination to keep the patient at the heart of every therapeutic encounter. -- Rhiannon Lewis, International Journal of Clinical AromatherapyCarol Rose carefully constellates within these pages a vital resource of clinical wisdom and compassionate expertise in aromatic palliative care. This labour of love - in terms of both practice and scholarship - is a professional object lesson in contemporary clinical aromatherapy, and will enrich and empower the aromatherapy student and clinical practitioner alike. Unreservedly recommended! -- Gabriel Mojay, Institute of Traditional Herbal Medicine and AromatherapyThis holistic, integrative resource needs to be read by every palliative care clinician. Truly inspiring. -- Jenny Coleman RN, cancer support nurse specialistCarol Rose draws on her extensive clinical experience to create a bridge between research and its applications, while keeping the individual's unique narrative at the core of all aromatherapeutic interventions. This beautifully written book transcends symptom management in the clinical domain, and it is grounded in an uncompromisingly holistic philosophy, evident in the inspiring case studies. This book will empower those experiencing cancer and terminal illness, and also their families, loved ones and caregivers, at all stages of their journey and beyond - but most importantly, Carol Rose's words will touch your heart. -- Jennifer Peace Rhind, writer, author and essential oils consultant

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Book SynopsisWith the number of people requiring palliative and end of life care steadily increasing, it is the responsibility of every nurse, regardless of specialism, to know how to provide high quality care to this group of people. Yet caring for those nearing the end of life can throw up complex issues, including handling bereavement, cultural and ethical issues, delivering care in a wide variety of settings, symptom management and also ensuring your own emotional resilience. This book is specifically designed to equip nursing students and non-specialists with the essential knowledge in relation to the care and management of people nearing the end of life.Table of ContentsIntroduction The idea of living, dying, life and death Communication in palliative and end of life care Exploring loss, grief and bereavement Understanding cultural issues in palliative and end of life care Rehabilitation in palliative and end of life care Ethical issues in palliative and end of life care Palliative and end of life care in a critical care setting Legal aspects of palliative and end of life care

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Book SynopsisTable of ContentsPart I: Symptom Management Section A PAIN 1 How Should Opioids Be Started and Titrated? 2 What Principles Should Guide Opioid Dose Conversions? 3 How Is Patient-Controlled Analgesia Best Used to Control Pain? 4 Which Opioids Are Safest and Most Effective in Patients With Renal or Hapatic Failure? 5 How Should Mathadone Be Started and Titrated in Opioid-Naive and Opioid-Exposed Patients? 6 What Is Neuropathic Pain and How Is It Best Managed? 7 How Are Adjuvant Medications Such as Corticosteroids and NSAIDs Used for Pain Management? 8 What Are the Approaches to Pain in Skeletal Bone Disease? 9 When and How Should Radiotherapy Be Considered for Pain Management? 10 What Principles Should guide the Prescribing of Opioids for Noncancer Pain? 11 How Does the Opioid Epidemic Impact Palliative Medicine Practice? 12 How Does One Approach the Patient With an Opioid Use Disorder? 13 When Should Epidural or Intrathecal Medications and Pumps Be Considered for Pain Management? 14 When Should Nerve Blocks Be Used for Pain Management? Section B DYSPNEA 15 What Interventions Are Effective for Managing Dyspnea in People With Cancer? 16 What Interventions Are Effective for Managing Dyspnea in COPD? 17 What Interventions Are Effective for Managing Dyspnea in Heart Failure? Section C GASTROINTESTINAL 18 What Medications Are Effective in Preventing and Relieving Constipation in the Setting of Opioid Use? 19 How Should Medications Be Initiated and Titrated to Reduce Acute and Delayed Nausea and Vomiting in the Setting of Chemotherapy? 20 How Should Medications Be Initiated and Titrated to Prevent and Treat Nausea and Vomiting in the Clinical Situations Unrelated to Chemotherapy? 21 What Interventions Are Effective for Relieving Acute Bowel Obstruction in Cancer and Other Conditions? Section D ANOREXIA/CACHEXIA/FEEDING DIFFICULTIES 22 What Therapies Are Effective in Improving Anorexia and Weight Loss in Cancer? 23 What Therapeutic Strategies Are Effective in Improving Anoerexia and Weight Loss in Nonmalignant Disease? 24 What Is the Role of Parenteral and Enteral Nutrition in Patients With Cancer and With Noncancer Illness? Section E PSYCHIATRIC SYMPTOMS 25 What Treatments Are Effective for Depression in Palliative Care Settings? 26 How Are Anxiety and Fear Best Treated in Patients With Serious Illness and in Those Facing the End of Life? 27 What Is the Approach to the Patient Seeking a Hastened Death? Section F DELIRIUM 28 What Is Delirium and How Should It Be Managed? 29 What Are Effective Pharmacological and Nonpharmacological Treatments for Delirium? 30 How Do Symptoms Change for Patients in the Last Days/Hours of Life? PART II: Communication 31 Prognosis in Palliative Care: Estimating Prognosis in Serious Illness and Communication Strategies 32 What Are the Key Elements to Having a Conversation About Communicating Serious News and Setting Goals? 33 What Are the Elements of Advance Care Planning and What Is the Evidence That Advance Care Planning Changes Patient Outcomes? 34 What Are the Special Communication Issues Involved in Caring for Pediatric Patients? Part III: Disease-Specific Topics Section A CANCER 35 What Is the Role for Palliative Care in Patients With Advanced Solid-Tumor Malignancies? 36 What Is the Clinical Course of Advanced Solid-Tumor Cancers 37 What Is the Role for Palliative Care in Patients With Advanced Hematologic Malignancies? 38 What Is the Clinical Course of Hematologic Malignancies? 39 What is the Role for Palliative Care in Children With Cancer? 40 What Is the Clinical Course of Pediatric Cancers? Section B DEMENTIA 41 What Is the Clinical Course of Advanced Dementia? 42 What Are Appropriate Palliative Interventions for Patients With Advanced Dementia? Section C ADVANCED LIVER DISEASE 43 What Are the Causes and Complications of Chronic Liver Disease and What Is the Evidence for Palliative Care Delivery to Those Affected by It? 44 What Do We Know About the Symptoms and Palliative Care Needs of People Affected by Liver Disease? Section D BRAIN FUNCTION 45 What Is the Role of Palliative Care and Stroke? 46 What Special Considerations Are Needed for Individuals With Amyotrophic Lateral Sclerosis, Parkinson's Disease, and Multiple Sclerosis? Section E HEART FAILURE 47 What Is the Clinical Course of Advanced Heart Failure and How Do Implanted Cardiac Devices Alter This Course? Section F CHRONIC CRITICAL ILLNESS 48 What Is Chronic Critical Illness and What Outcomes Can Be Expected? Section G HEAD AND NECK CANCER 49 What Special Considerations Are Needed in Patients With Head and Neck Cancer? Section H END-STAGE RENAL DISEASE 50 What Special Considerations Are Needed in Treating Symptoms in Patients With End-Stage Renal Disease, and How Should Patients Who Stop Dialysis Be Managed? 51 What Are Palliative Alternatives to Renal Replacement Therapy for People With Advanced Kidney Failure? Section I PULMONARY 52 What Special Considerations Are Needed for Patients With Advanced Lung Disease? Section J GERIATRICS 53 What Are the Special Needs of Older Adults With Serious Illness? 54 What Are Multimorbidity and Frailty and How Do They Affect the Care of Older Adults? Section K PEDIATRICS 55 What Are Special Considerations for Pediatric Palliative Care? 56 What Are Special Considerations for Dosing Medications in Pediatric Populations? 57 How Are Children With Developmental Diseases and Delays Best Managed in Palliative Care? 58 What Are Special Considerations for Perinatal Palliative Care? 59 What Are Special Considerations for Patients With Cystic Fibrosis? PART IV: Special Topics Section A PALLIATIVE CARE EMERGENCIES 60 What Are the Signs, Symptoms, and Treatments of Spinal Cord Compression? 61 What Framework Can Be Used to Address Uncontrolled Symptoms at the End of Life? Section B FINANCIAL ASPECTS OF PALLIATIVE CARE 62 What Are the Arguments That Show That Palliative Care Is Beneficial to Hospitals? 63 What Are the Arguments That Show That Outpatient Palliative Care Is Beneficial to Medical Systems? Section C CAREGIVERS 64 How Does Serious illness Affect Family Caregivers? 65 What Can Be Done to Improve Outcomes for Caregivers of People With Serious Illness? 66 What Is Prolonged Grief Disorder and How Can Its Likelihood Be Reduced? Section D SETTINGS FOR PALLIATIVE CARE DELIVERY 67 What Are the Models for Delivering Palliative Care in Hospitals? 68 What Models Exist for Delivering Palliative Care and Hospice in Nursing Homes? 69 What Are the Models for Delivering Palliative Care in the Ambulatory Practice Setting? 70 What Are the Models for Delivering Palliative Care in the Home? 71 What Are the Models for Delivering Palliative Care in Rural Areas? 72 How Is Palliative Care Best Integrated Into Surgical Services? 73 What Models Exist to Deliver Palliative Care via Telemedicine? 74 What Are National Strategies and Frameworks for Palliative Care? 75 What Are Sources of Spiritual and Existential Suffering for Patients With Advanced Illness? 76 What Are the Racial and Ethnic Health Disparities That Exist in Palliative Care? 77 What Are the Palliative Care Needs of LGBTQ+ People? 78 What Is the Evidence for Integrative and Alternative Therapies in Palliative Care? 79 What Is the Evidence Supportng the Use of Mobile Health Technologies in Palliative Care? 80 How Can Clinician Well-Being Be Improved and Sustained in Palliative Care?

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Book Synopsis

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Book Synopsis

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Book SynopsisSupporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.Trade ReviewA book with practical ideas, supported by references from the literature and the findings of recent research projects. -- Educational Book ReviewThe book will be invaluable to anyone thinking of working in this area and will also service those already established in this field. I highly recommend it. -- Nursing StandardUseful practical help is offered on the support of children and families as they make difficult choices at very stressful times, this will be appreciated by all professionals working in this area... Supporting the Child and the Family in Pediatric Care is a most helpful and accessible book... The multi disciplinary approach would make it a useful tool to all medical, pastoral or support staff. -- Evelyn Cairns, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword. Introduction. Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children's Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements When a Child Dies. 7. The Child's Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children's Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children's Hospices. References. Subject Index. Author Index.

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Book SynopsisOffers a process-based, patient-centered approach to palliative care that substantiates a radical reconsideration of our transition to deathTrade ReviewA pioneering work on research about dying and a treasury of knowledge about dying processes, this book will promote our understanding, care, and guidance of terminally ill persons. -- Pim van Lommel, cardiologist and author of Consciousness Beyond Life: The Science of the Near-Death Experience Monika Renz is able to partially lift the veil shrouding the mystery of death. Based on her vast experience with the dying, her book provides an intimate and rich account of the phenomenological experience of the dying process. -- Paul T. P. Wong, Trent University, president of the Meaning-Centered Counselling Institute A bold, probing investigation into how analogies and metaphors provide fresh access to dying as the ultimate mystery of human potential. A skillful analysis of patient vignettes render palpable many ineffable and unconscious dynamics of patients' experiences as they move from conventional ego-based schema through personal, transformative, beautiful, and even painful transitions. This insightful work is a compass for reducing suffering among the dying and the living. -- Bruce L. Arnold, University of Calgary This powerful book plumbs the existential depths of our ultimate transformation. Network ReviewTable of ContentsAcknowledgments Introduction: In Search of Inner Experiences of Dying 1. Dying and the Transformation of Perception 2. The Three Stages of Transition and Dignity 3. What Is Primordial Fear? "The 'I' Dies Into a 'Thou'" 4. Other Hearing: Beyond Space and Time 5. Metaphors of Transition 6. The Sites of Transition: Fear, Struggle, Acceptance, Family Processes, Maturation 7. Dying with Dignity: Indication-Oriented End-of-Life Care Epilogue Appendix Notes References Index

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Book SynopsisNEW YORK TIMES BESTSELLER • Passionate advocate for end-of-life care and TikTok star Hadley Vlahos shares moving stories of joy, wisdom, and redemption from her patients’ final moments in this “brilliant” (Zibby Owens, Good Morning America) memoir. “This extraordinary book helps dispel fear around death and dying—revealing it to be a natural part of our soul’s evolution.”—Laura Lynne Jackson, New York Times bestselling author of Signs and The Light Between UsTalking about death and dying is considered taboo in polite company, and even in the medical field. Our ideas about dying are confusing at best: Will our memories flash before our eyes? Regrets consume our thoughts? Does a bright light appear at the end of a tunnel? For most people, it will be a slower process, one eased with preparedness, good humor, and a bit of faith. At the forefront of changing attitudes around palliative care is hospice nurse Hadley Vlahos, who shows that end-of-life care can teach us just as much about how to live as it does about how we die. Vlahos was raised in a strict religious household, but began questioning her beliefs in high school after the sudden death of a friend. When she got pregnant at nineteen, she was shunned by her community and enrolled herself in nursing school to be able to support herself and her baby. But nursing soon became more than a job: when she focused on palliative care and hospice work, it became a calling.  In The In-Between, Vlahos recounts the most impactful experiences she’s had with the people she’s worked with—from the woman who never once questioned her faith until she was close to death, to the older man seeing visions of his late daughter, to the young patient who laments that she spent too much of her short life worrying about what others thought of her—while also sharing her own fascinating journey. Written with profound insight, humility, and respect, The In-Between is a heartrending memoir that shows how caring for others can transform a life while also offering wisdom and comfort for those dealing with loss and providing inspiration for how to live now.

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Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.

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Book SynopsisHospice chaplains have traditionally played a unique part in palliative care, providing human compassion and support to help ease life's final chapter. This book thoughtfully tackles the question at the heart of modern hospice chaplaincy: do chaplains have a distinctive role in an increasingly secular society?A comprehensive look at why and how this work needs to be done, each chapter will be a rich resource for hospice chaplains and anyone working within a hospice multi-disciplinary team. Taking the form of reflections by chaplains and other professionals, they examine the tension between sacred and secular space, explore how spiritual care works in a changing society, and look at what voice a chaplain has within the hospice team.Essential reading for chaplains, this insightful book reflects on the important work undertaken by hospice chaplaincies and explains why they continue to be a vital resource for end-of-life care.Trade ReviewThis book explores the chaplain's unique role and the privilege of being involved in the lives of those who approach death. Varied contributors helpfully probe the inner life of the chaplain and her relationships with staff and volunteers. It explores the changing role of the hospice chaplain, but has great relevance for all involved in End of Life care. I wholeheartedly commend it to all who have an interest in healthcare chaplaincy. -- Revd Mark Burleigh, Head of Chaplaincy & Bereavement Services, University Hospitals of Leicester NHS Trust and President, College of Health Care ChaplainsChallenged by the exigencies of health economies and the demands of secularists, chaplaincy is in transition. The diverse voices brought together by Murphy and Whorton speak to that transition with harmony and clarity about the 'traditional' values that shape chaplaincy identity and care, and that determine the distinctive contribution chaplains make to multi-professional team working. -- Revd Dr Steve Nolan, Princess Alice Hospice, Esher, and The University of WinchesterFifty years after Dame Cicely Saunders founded the first modern hospice in 1967, this book is a timely and fitting tribute to her legacy. It consists of a series of reflections by chaplains and allied professionals, and is packed with inspiration, experience, and good practice. -- Revd Ann Fulton, Spiritual Care Co-ordinator for St Margaret's Hospice, Somerset * Church Times *Anyone who is involved in hospice work, or anyone working with people who are ill and lost, will find much in this book which is of value. -- The Revd John Lampard * Methodist Recorder *Table of ContentsForeword by Baroness Finlay of Llandaff. Introduction. Part One: Locating the Work of Palliative Care Chaplaincy. 1. Then and Now. The Most Reverend Dr Richard Clarke, The Archbishop of Armagh and Primate of All Ireland and Judy Davies, Methodist Minister and Chaplain at Sue Ryder - Duchess of Kent Hospice, Reading, UK. 2. What Kind of Place is a Hospice? Karen Murphy, President of the Association of Hospice and Palliative Care Chaplains (AHPCC), UK and Julian Abel, Weston Area Health Trust and Vice President of Public Health Palliative Care International, and Chair of the UK Branch. 3. Many Faiths, No Faith. Abbas Khalifa, Imam, Healthcare Chaplain, UK, The Revd Stig Graham, Hospice and Palliative Care Chaplain, UK, Kathryn Morrison, Bank Chaplain, LOROS Hospice, Leicester, UK, Martin T. Hill, St. Giles Hospice, Lichfield, UK and Simon O' Donoghue, The Non-Religious Pastoral Support Network, UK. 4. The Contribution of Volunteers. Karen Murphy. Part Two: Reflecting Theologically. 5. A Good Death? Revd Canon Dr Margaret Whipp, Oxford University Hospital, UK and Jonathan Wittenberg, Rabbi, New North London Synagogue, UK. 6. Towards a Theology of Palliative Care Chaplaincy. Revd Canon Helen Newman, Spiritual Care Lead Chaplain, LOROS Hospice, Leicester, UK and Revd Dr Jonathan H. Pye, Chair of the Bristol District of the Methodist Church, Hon. Research Fellow, Centre for Ethics in Medicine, Research Associate, School of Social and Community Medicine, University of Bristol. Part Three: Who Are We? 7. Our Unique Role. Margery Collin, Chaplain, Strathcarron Hospice, Stirlingshire, UK and Jacki Thomas, PhD, Retired Hospice Chaplain. 8. Do We Have a Voice? Revd Caroline McAfee, Chaplaincy and Spiritual Care Lead, Northern Ireland Hospice, Belfast, UK, David Buck, Spiritual Care Co-Ordinator, Sue Ryder - Wheatfields Hospice, Leeds, UK and Ruth White, CEO, Rowans Hospice, UK. 9. Mirror, Mirror. Jessica Rose, Senior Accredited Member, Association of Pastoral Supervisors and Educators, Member of the Institute of Pastoral Supervision and Reflective Practice and Andy Edmeads, Anglican Priest and Chaplain to Children And Young Adults Hospice, UK. 10. Holding the Tension. Lousie Adey Huish, Chaplain, Myton Hospice, Warwick, UK and Gary Windon, Chaplain, Nightingale House Hospice, Wrexham, UK. 11. Our Place in the Shadows. Margaret Jill Brown, Psychoanalytic Psychotherapist, Member of Severnside Institute for Psychotherapy, Founding Patron of The Harbour, UK and Bob Whorton, Chaplain, Sit Michael Sobell House, UK. 12. Our Own Nourishment. The Revd Matthew Hagan, M.Phil, Southern Area Hospice, Newry, County Down, Northern Ireland, President, Northern Ireland Healthcare Chaplains Association, UK and Dawn M. Allan, Spiritual Care Lead Chaplain, NHS Orkney and NHS Shetland, UK. 13. A Creative Resource. The Revd Sally Bedborough, Chaplain, Weldmar Hospicecare, Dorset, UK, Liza Waller, Chaplain, Hospice in the Weald, Kent, UK and Nell Mellerick, Creative Artist and Hospice Day Service Manager, UK. 14. Looking to the Future. Ewan Kelly, Visiting Professor, Research Co-Ordinator, European Research Institute for Chaplains, Academic Centre for Practical Theology, University of Leuven, Belgium. Appendices.

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Book Synopsis "To those of us who have been aware of the innovative service to families facing death and bereavement that has been developed by David W. Kissane and Sidney Bloch this book has been eagerly awaited. Their work is a logical development in the field of Palliative Care in which it has long been recognized that, when life is threatened, it is the family (which includes the patient) which is, or ought to be, the unit of care.The work also has great relevance for the wider field of bereavement care...all who work to help families at times of death and bereavement will find much to learn from this book which represents a useful addition to our understanding of the losses which, sooner or later, we all have to face." - Colin Murray Parkes Family members are often intimately involved in the care of dying people and themselves require support through both their experience of palliative care and bereavement. This innovative book describes a comprehensive model of famTrade Review"Kissane and Bloch demonstrate an extraordinary commitment to improving the quality of family life in this moving are readable account of a research project using Family Focussed Grief Therapy (FFGT). I recommend it to anyone working with seriously ill and dying patients." - Jeni WebsterTable of ContentsSeries editor's prefaceForeword by Colin Murray ParkesIntroductionFamily care and family griefA typology of family functioningConducting family focused grief therapy (FFGT)Common themes that arise during FFGTA typical encounter of therapyChallenges and problems in the delivery of FFGTThe impact of specific life events upon familiesThe ethical dimensionClinical application of the FFGT modelAppendix 1The Family Relationships Index (FRI)Appendix 2Tables of results from the Melbourne Family Grief StudiesBibliographyIndex.

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Book Synopsis

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Book Synopsis

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Book Synopsis

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Book Synopsis

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Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice

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Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased

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Book SynopsisThe syringe driver is a simple and cost-effective method of delivering a continuous subcutaneous infusion (CSCI). A CSCI provides a safe and effective way of drug administration and can be used to maintain symptom control in patients who are no longer able to take oral medication. There have been several developments in this field since the third edition of this highly successful book. The text in this edition has been completely revised, incorporating new treatment options and an extensive list of new compatibility data. This book serves as a valuable reference source, providing comprehensive review of syringe driver use and administration of drugs by CSCI. The first chapter provides an overview of syringe drivers and CSCIs, including a useful array of frequently asked questions. The second chapter provides information about the chemistry of drug incompatibility and degradation. The third chapter comprises revised and referenced information relating to most drugs likely to be administTrade ReviewAndrew Dickman and Jennifer Schneider [have] produced a well-written, well-referenced, and efficient treatment of the modern syringe driver for subcutaneous infusions as used in palliative care. Importantly and distinctively, the authors combined laboratory data with clinical observations to produce both a useable and practical text. This book serves well as a reference for any medical professional who commonly or uncommonly interacts with, orders, or adjusts syringe drivers with drugs for CSCI, even if not for use in palliative care. * R. Ryan Field, Anesthesia & Analgesia *... an important addition to the bookshelf of any palliative care clinician, nursing or medical, whose patients require continuous subcutaneous infusion. * John Haberecht, Director of Learning & Development, Centre for Palliative Care Research and Education *This book should be available in any hospice or palliative care service where CSCIs are used, which probably means nearly all of them. * IAHPC, Roger Woodruff *Table of ContentsLIST OF ABBREVIATIONS

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Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet

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Book SynopsisThis beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness. This book is also available to buy as part of the Therapeutic Fairy Tales pack. Therapeutic Fairy Tales is a series of short modern tales dedicated to exploring challenging life situations that might be faced by young children. Each short story is designed to be used by professionals and caregivers as they use stories therapeutically to support childrenâs mental and emotional health.Other books in the series include: Storybook Manual: Introduction To Working With Storybooks Therapeutically And Creatively The Night Crossing: A Lullaby For Children On Lifeâs Last Journey The Island: For Children With A Parent Living With Depression Designed to be used with children aged 7+, each story has an accompanying online resource, offering therapeutic prompts and creative exercises to support the practitioner. These resources can also be adapted for wider use with siblings and other family members. The Night Crossing - from the Therapeutic Fairy Tales series â is born out of a creative collaboration between Pia Jones and Sarah Pimenta Trade ReviewA sensitive and poignant tale to aid and support children who may be facing an untreatable illness. The Night Crossing can help soften the fear about the journey into the unknown. Hephzibah Kaplan, Art Therapist, Director, London Art Therapy Centre The Night Crossing is so sensitively written, with beautiful illustrations. I found it honest and touching, a sympathetic aid that could be revisited whenever needed. In our experience, children take in as little or as much as they feel comfortable to deal with when they are ready. I also feel this book could help siblings of a child who is very ill and for parents or carers to help gauge other children's questions and emotions.Family member, AnonymousAs children are so naturally at ease with metaphor, I imagine The Night Crossing could answer some of the unspoken fears of a child and families at this time with honesty and kindness. It acknowledges the wisdom of the child who in his heart knows what is happening. I would also hope that this story could open up the possibility of conversations between parent and child. A touching and sensitive work, with beautiful illustrations. Anna Ledgard, Arts Producer, End of Life doula trainerA sensitively written and delightfully illustrated book that provides support and comfort to both a seriously ill child or siblings. The Night Crossing provides a safe space for parents and professionals to explore the fears and emotions a child may experience but also provides the opportunity for a child to ask difficult questions. Janey Treharne, from Jigsaw (South East)This book has done something very beautiful and reassuring with a very difficult topic. Taylor Smart, Art PsychotherapistTable of ContentsA Word of Caution The Night Crossing: A lullaby for children on life's last journey

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Book SynopsisIn June 2000 Peter Houghton, a counselor in palliative care, was weeks from death due to cardiomyopathy. He had made his preparations and had said most of his good-byes. Then he was offered the chance to participate in a clinical trial. Six months later he was not only still alive, but planning a long distance walk for charity and writing this book about his experiences.With humor and honesty, his story chronicles the uneven path back from the brink of death. Combining knowledge drawn from his counseling work with other dying people and his unique personal experience, he describes what dying really feels like and explains the physical processes it involves. He also raises profound questions about medical trials and palliative care, and especially about our attitudes to life and death, and the way we approach death.Trade ReviewDrawing upon his extensive professional experience as a counselor in palliative care, Houghton raises many profound questions in each of the areas he discusses, and is not afraid to admit his own previous misconceptions…this is a book that contributes significantly to our knowledge of the natural dying process. -- Journal of Beliefs and ValuesTo me, the strength of the book was about its ability to refocus and question the care provided, as a recipient rather than a provider. This presented me with some thought-provoking questioning and reasoning induced in my own reflective practice. -- British Journal of Occupational TherapyPeter Houghton gives us an education on the process of dying and death itself. He witnesses dying and death from the outside as a counselor in palliative care and observing those who were dying, their death and their carers. He then through his own seemingly terminal illness, experienced the process first hand, to the point of death. Then as a participant in a new clinical trial he was given a return to life.With humour and honesty he relays his own bumpy path on moving towards death and back from the brink, together with his counseling work with other peoples' dying processes. He gives an in-depth picture of the physical deterioration processes of the body and resultant physical pain leading to death, also detailing the medical processes involved. Equally well described is what it feels like: the psychological processes and emotional pain, through the stages of denial, anger and hopelessness to acceptance and transformation. -- Towards WholenessWith great honesty, sensitivity and humor Peter Houghton has chronicled and reflected upon his physical, mental and spiritual journey, which was far from being without set backs and deep self-questioning... This is a deep and challenging book and offers a rewarding read. -- PlusPeter Houghton had been a counselor in palliative care, Then he experienced what appeared to be a mild heart attack but which turned out to be cardiomyopathy, a chronic disorder affecting the muscle of the heart. Although drugs could control his condition to some extent, slowly, imperceptibly, it worsened until he was weeks from death. At the 11th hour, a doctor friend read a notice of a clinical trial of the Jarvik Heart Assist Device for end stage cardiomyopathy patients, which led to a pioneering operation to install a pump to take over the failing left ventricle of Peter's heart. I was eager to read Peter's resulting book because of the probably unique set of experiences he brought to the writing of it. Not only had he no doubt derived many insights from working for many years with dying patients but also he had actually experienced the final stages of dying himself-yet was able to report back on that experience. As someone who has cared for a dying relative and worked as a volunteer in a hospice, I was hoping to learn something from Peter's account. I did indeed learn much from it…Houghton personally is still struggling to make sense of his restored life and the renewal of his relationships. At 60 he doesn't want to return to work, and he never wants to counsel a dying person again. Unsure why, he suggests that it might be because of having seen the things from the perspective of the counseled. That is a particularly salutary reflection to take away from this book -- Human GivensIn On Death, Dying and Not Dying, Peter Houghton tells his own story. A palliative care counselor, he was given weeks to live. This book tells how he prepared for dying, until a new clinical trial gave him his life back. In the midst of this moving tale, there is much useful information. -- Church TimesThis book is appropriate for the general public as well as students and clinicians. The author has a conversational style of writing that is both easy to read and refreshing. The insight he is able to offer is unique. He identifies not only his emotions during subsequent events, but is able to link these to appropriate interventions that clinicians can make.Perhaps the most intriguing feature of this book is the connection the author is able to make with the reader. Although the subject matter is difficult, the style in which the information is presented places appropriate emphasis on the emotional and technical aspects.Although this topic is not new, this is the only book that provides clinicians with an insight into a patients experience while also providing direction for clinical practice. -- Lisa Stepp PhD, RN, APN, AOCN, CRNH (Private Practice)This book was written after his surgery, although it has much more than a simple account of his recovery and subsequent events. As a counselor in palliative care, he has experience and knowledge of death and the dying process; much of the book is taken up his thoughts on the subject, illustrated with various anecdotes. He also describes the actual process of dying, and outlines treatment strategies for symptom control. -- Bulletin of Medical EthicsTable of ContentsPreface. 1. My Own Story. 2. The physical process of dying. 3. The last days and death itself. 4. How Dying People Feel about Death and Dying. 5. Thoughts about life, death and dying. 6. The patient and the clinical trial. 7. Wider implications and the future. Appendix 1: Patient Care - The physician's role, Adrian Banning. Appendix 2. The Operation, Stephen Westaby. Glossary of Medical Terms. Index.

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Book Synopsis`The combined practice area of the contributors to this book include social work, psychotherapy, sociology, counselling psychology, creative writing, nursing, and medicine. Several of the authors have multiple professions, and have come to palliative care later in their careers. Indeed, the combined skill of this group is impressive. Each chapter is unique and each story worthy in its own right. The commonalities are remarkable also. I recommend it to all palliative care professionals, when feeling a little-jaded about what we are doing and being swept along with the winds of changing technology and evidenced based practice, and to other health-care workers who feel an inclination to bring a little humanity to their care'.-Omega Vol 51 (1) 77-86, 2005`This book offers unique way of looking at caring for palliative parents by using the influence of the self. It also offers an opportunity for reflection how our experiences can enrich the experience of patient's faced with the prospect of dying. Professionals who enjoy reading stories will thoroughly enjoy this book.'-International Journal of Palliative Nursing`In a way it is surprising that palliative care has not produced more books like this: collections in which those engaged in the daily work of caring for dying and bereaved people share something of their motivations for entering this particular world, their experiences along the way, and their reasons for staying in or quitting it…Christina Mason was right to embark on this project. She has edited a book that deserves to be widely read.'-Palliative Medicine 2003`This is a delightful book. Although its focus is on professionals working in specialist palliative care, it would be useful for any practitioner wanting to learn more about reflective practice or their motivations for caring.'- Journal of Community NursingThis rich collection of accounts explores the personal and professional experiences of palliative care workers. Contributors from a variety of disciplines associated with care at the end of life - among them social workers, a nurse, a doctor, a counselling psychologist, an academic researcher, a psychotherapist and a creative writing therapist - explain how and why they came to work in palliative care, what they bring to the work and the ways in which it has enriched their own lives.Including descriptive examples of their work with clients and families, they discuss the spiritual needs of patients, how to manage personal boundaries and power relations, the use of narrative and story telling in care work and the impact of working with people who are very ill and grieving on every day life.This thoughtful and positive book presents a variety of experience-based perspectives on working in palliative care. Emphasising the use of self and the importance of reflective practice in professional work, this book will be of relevance to all professionals in medical and social care who want to gain a deeper understanding of their work and of the motivation underlying it.Table of ContentsIntroduction. Christina Mason, St Joseph's Hospice, London.1. Basic Themes. Christina Mason, St Joseph's Hospice, London .2. Medicine and Palliative Care: The bronze serpent. Louis Heyse-Moore, Medical Director, St Joseph's Hospice, London. 3. Early Challenges in Palliative Care from a Social Work Perspective: The gift of serendipity. Julia Franklin, Retired Social Worker and now Supervisor and Consultant to a number of Hospices. 4. On becoming a Practitioner: The view of a psychologist Robin Trewartha, Psychologist and former Probation Officer. 5. Explorations in Creative Writing: `I recharge myself from my experience'. Gillie Bolton, Senior Research Fellow in Medical Humanities, Sheffield University. 6. Learning in Palliative Care: Stories from and for my journey. David Oliviere, Principal Lecturer, Middlesex University. 7. Accompanying the Dying. Lois Pollock, Social Worker, St Christopher's Hospice. 8. The Loss of Children: Thinking the unthinkable. Gordon Riches. 9. Reflections on my Roots and Personal Journey. Christina Mason, St Joseph's Hospice, London. 10. The Nursing Perspective: Pain is the breaking of the shell that encases your understanding. Kevin Yates, Director of Nursing, St Joseph's Hospice, London. 11. Overview. Christina Mason, St Joseph's Hospice, London. Index.

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Book SynopsisDying, Bereavement and the Healing Arts describes a range of successful programmes pioneered by artists, writers, nurses, musicians, therapists, social workers, and chaplains in palliative care settings. These range from simple painting and writing activities to organized communal activities like writing and performing a play.The arts are shown to offer a means to reflect on memories, hopes, fears and anxieties, and gently explore the emotional, spiritual, and psychological issues which can aid a fuller understanding of oneself and one's condition. The arts also serve as a way to communicate difficult and complex feelings to professionals or family members not possible in everyday conversation.Dying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting.Trade ReviewThis book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKBolton's collection serves up national and international sources of inspiration in the healing arts...This text...can be seen not only as offering accounts of the role of creativity in varying context of palliative care, but also as a collation of creative acts in their own right. Poetry, photographs, painting, excerpts from dialogue and profoundly moving reflexive writing are all presented to inspire the reader to consider their own creative responses to the world and their part in it...This book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKThe writing is blunt, the topics heart-wrenching, and the words poignant, addressing issues such as the death of a beloved child, spouse, parent or friend; the pain of illness and treatment; and the helplessness of watching a loved one suffer. Although these are hard topics to consider, it can also be a relief to have difficult subjects acknowledged... DYING BEREAVEMENT AND THE HEALING ARTS reminds readers that creative expression is available to everyone as a means to understanding and growing through life's changes and challenges. -- Journal of the American Art Therapy AssociationGillie Bolton has been an inspirational voice and a practitioner in the involvement which has simulated a wider appreciation of what "makes" health. This volume of twenty essays is a delight - rather like a well-prepared buffet - something to nourish those seeking deeper food for thought and practice. This book will both feed any reader who wishes to be enriched by listening to experience and also find a way to express what is humane in the face of human frailty. -- The Christian ParapsychologistFor anyone curious about how it is that the arts can evoke, enliven, reassure, educate, recount and then enable us to share with others, this is the place to start. -- Bereavement CareEach chapter is very diverse with contributions from patients, survivors, professional healthcare workers and artists. I would recommend this book to all. As healthcare professionals we can never stop trying to understand our fellow human beings hopes and fears. -- Journal of Community NursingDying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting. In my opinion, this is a rare case of something doing exactly what it says on the tin. -- DramatherapyThis is a thought provoking book which invites the reader to consider how art can be healing for the patient, the bereaved and the healthcare professional... The common thread throughout the chapters is how being creative often speaks new leases of life in both patient and those surround her. At the end of the day the book shows how the creative arts have hidden health benefits for patients, the bereaved and healthcare professionals whether that comes from looking at Van Gogh, listening to Bach, writing a poem or moulding some clay. -- Ian Stirling, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword, Baroness Professor Ilora Finlay of Llandaff.Preface Poem: Nest, Penelope Shuttle 1: Introduction: Dying,Bereavement and the Healing Arts, Gillie Bolton. 2: A Death Photographed: Michael Willson's Story, Paul Schatzberger and Gillie Bolton 3: Arts, Electronic Media, Movement: Rosetta Life, Filipa Pereira-Stubbs and Chris Rawlence. 4: Theatre for Professional Development, Ashley Barnes 5: Visual Art for Professional Development, Sandra Bertman 6: Healing Arts in Palliative Care, Christina Mason. 7: Imagination and Health in Cancer Care and Palliative Care, John Graham-Pole 8: Visual Art in Cancer Care and Palliative Care, Anna Lidzey, Michele Angelo Petrone, Julie Sanders and Gillie Bolton 9: Making Music in Children's Hospices, Lesley Schatzberger 10: Healing Writing in Palliative Care, Sheelagh Gallagher, Kate D'Lima, Kaichiro Tamba, Hilary Elfick, with David Head and Gillie Bolton 11: Creating The Tuesday Group: A Palliative Care Play, Bobbie Farsides and Sue Eckstein 12: The Power of Music, Diana Greenman, Frans Meulenberg and Mike White 13: Writing through Bereavement: River Wolton, Haifa Al Sanousi, Amy Kuebelbeck, Judy Clinton and Robert Hamberger 14: A Legacy of Understanding, Monica Suswin 15: Reading to Help Practitioners and Patients, Ted Bowman and Rogan Wolf 16: Artists: Survivors, Tim Jeeves, Mitzi Blennerhassett and Michele Angelo Petrone, Artist 17: Professionals: Artists, Steve Seagull, Tim Metcalf, Oliver Samuel, Kieran Walsh and Christopher Johns 18: Spiritual and Artistic Care: Memorial Services, Mark Cobb and Giles Legood 19: The Art of Care, Yvonne Yi-Wood Mak , Ann Williams, Corine Koppenol and Sinead Donnelly 20: Reflections Towards the Future, Nigel Hartey. List of Contributors. References. Subject Index. Author Index.

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Book SynopsisUse of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care.The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved.This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.Trade Review`The book is a brave and sensible move by Hartley and Payne. Brave, in encouraging more "group think" from professions often in conflict regarding issues of funding or professional boundaries. Sensible, because the common ground for these professions, creativity, has so much to offer palliative care: a book of this kind has long been needed to celebrate and promote the potential of the work these professions do.' -- British Journal of Music Therapy, Julian O'Kelly, day hospice manager and music therapists at the Princess Alice Hospice, Esher, Surrey, UK`This book would be useful to those who are hoping to establish creative arts practices in this field in a range of locations, and would be of particular help to those who may be managing such projects and who fell they have little or no experience or expertise in this field.` -- hospice information bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, ColchesterI highly recommend this book to anyone involved in palliative care: administrators, nurses, social workers, caregivers, families, creative artists, therapists, and students...This book is moving, practical, and inspiring to all those dealing with chronic illness, pain, death, and dying. -- Art TherapyThis book was incredibly informative. It strove to inform, inspire and educate 'artists' to work in palliative care, and gave the tools and strategies to us for success... I recommend this book to any creative arts therapists who wish to work in palliative care, or want to brush up on some strategies for wearing their 'business hats' and increasing their practice hours. -- Canadian Art Therapy Association JournalThis book provides a credible and informative account of the contribution of the creative arts in palliative care. It is an accessible read for those with experience in this field, and will be of interest to people studying therapeutic media beyond standard medical approaches in a palliative care context, as well as those keen to explore and understand more about the life-affirming and life-enhancing potential of creative art. -- Writing in EducationThis book is an invaluable starting point, and hopefully a catalyst for more of the kind, bridging the gap between the paucity of literature and the richness of opportunities that the creative arts offer for personal transformation, increased well-being and social inclusion in palliative care. -- European Journal of Palliative CareThe Creative Arts in Palliative Care is a forward-thinking text which integrates management, treatment and community building aspects of creative arts in palliative care. I highly recommend The Creative Arts in Palliative Care. This book is a must read for artists, therapists, volunteers, managers and directors who specialize in working with patients and caregivers who are facing end of life. -- Nordic Journal of Music TherapyThis book is a valuable resource giving information in a collection of articles that, taken together, support the justification for including creative arts in the services offered to those who are facing the end of life. -- Journal of Palliative CareTable of ContentsAcknowledgements. Part I: Developing Creative Arts in Palliative Care. 1. Introduction - The Creative Arts in Palliative Care. Nigel Hartley and Malcolm Payne, St Christopher's Hospice, London. 2. Managing Creative Arts and Artists in Healthcare Settings. Nigel Hartley. 3. The Palliative Care Community - Using the Arts in Different Settings. Nigel Hartley. 4. Exhibiting, Promoting and Funding the Arts in Healthcare Settings. Nigel Hartley. 5. Research and Audit in Palliative Care Creative Arts. Malcolm Payne. Part II: Experiences of Creative Arts in Palliative Care. 6. Experiences of Creative Arts in Palliative Care - Introduction to Part II. Malcolm Payne. 7. Pottery and Painting. Lynn Harmer, St Christopher's Hospice, London; Greenwich Community College, South London. 8. Craft Work. Adrian Butchers, St Christopher's Hospice, London. 9. Digital Arts. Marion Tasker, St Christopher's Hospice, London. 10. Art Therapy. Samantha Dobbs, St Christopher's Hospice, London. 11. Community Arts. Virginia Hearth, St Christopher's Hospice, London.. 12. Beginning to Work as a Community Artist in Palliative Care. Mick Sands, St Christopher's Hospice, London. 13. Music Therapy in the Community. Tamsin Dives, St Christopher's Hospice, London. 14. Music and Music Therapy at St Christopher's Hospice - An Evaluation Study. Abi Gill, National Society for Epilepsy, Buckinghamshire. 15. Conclusion. Malcolm Payne and Nigel Hartley. Bibliography. Contributors. Suppliers. Subject Index. Author Index.

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