Terminal care nursing Books

Book SynopsisNEW YORK TIMES BESTSELLER • Passionate advocate for end-of-life care and TikTok star Hadley Vlahos shares moving stories of joy, wisdom, and redemption from her patients’ final moments in this “brilliant” (Zibby Owens, Good Morning America) memoir. “This extraordinary book helps dispel fear around death and dying—revealing it to be a natural part of our soul’s evolution.”—Laura Lynne Jackson, New York Times bestselling author of Signs and The Light Between UsTalking about death and dying is considered taboo in polite company, and even in the medical field. Our ideas about dying are confusing at best: Will our memories flash before our eyes? Regrets consume our thoughts? Does a bright light appear at the end of a tunnel? For most people, it will be a slower process, one eased with preparedness, good humor, and a bit of faith. At the forefront of changing attitudes around palliative care is hospice nurse Hadley Vlahos, who shows that end-of-life care can teach us just as much about how to live as it does about how we die. Vlahos was raised in a strict religious household, but began questioning her beliefs in high school after the sudden death of a friend. When she got pregnant at nineteen, she was shunned by her community and enrolled herself in nursing school to be able to support herself and her baby. But nursing soon became more than a job: when she focused on palliative care and hospice work, it became a calling.  In The In-Between, Vlahos recounts the most impactful experiences she’s had with the people she’s worked with—from the woman who never once questioned her faith until she was close to death, to the older man seeing visions of his late daughter, to the young patient who laments that she spent too much of her short life worrying about what others thought of her—while also sharing her own fascinating journey. Written with profound insight, humility, and respect, The In-Between is a heartrending memoir that shows how caring for others can transform a life while also offering wisdom and comfort for those dealing with loss and providing inspiration for how to live now.

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Book SynopsisResearch literacy is now a requirement for Board-Certified chaplains in the US and a growing field in the UK. This reader gives an overview and introduction to the field of healthcare chaplaincy research. The 21 carefully chosen articles in this book illustrate techniques critical to chaplaincy research: case studies; qualitative research; cross-sectional and longitudinal quantitative research, and randomized clinical trials. The selected articles also address wide-ranging topics in chaplaincy research for a comprehensive overview of the field.To help readers engage with the research, each article includes a discussion guide highlighting crucial content, as well as important background information and implications for further research. This book is the perfect primary text for healthcare chaplaincy research courses, bringing together key articles from peer-reviewed journals in one student-friendly format.Table of ContentsSection I. Healthcare Chaplains: Where They Work & What They Do .1. The Provision of Hospital Chaplaincy in the United States: A National Overview (2008). Wendy Cadge, Department of Sociology, Brandeis University, Jeremy Freese, Department of Sociology, Northwestern University and Nicholas A. Christakis, Department of Health Care Policy, Harvard Medical School. 2. "He Needs to Talk!": A Chaplain's Case Study of Nonreligious Spiritual Care (2016). Steve Nolan, Princess Alice Hospice; University of Winchester. 3. What do I do? Developing a taxonomy of chaplaincy activities and interventions for spiritual care in intensive care unit palliative care (2015). Kevin Massey, Advocate Health Care, Marilyn JD Barnes, Dana Villines, Julie D Goldstein, Anna Lee Hisey Pierson, Cheryl Scherer, Betty Vander Laan and Wm Thomas Summerfelt. 4. Communicating Chaplains' Care: Narrative Documentation in a Neuroscience-Spine Intensive Care Unit (2016). Rebecca Johnson, Buehler Center On Aging, Health & Society, Northwestern University, M. Jeanne Wirpsa, Northwestern Memorial Hospital, Lara Boyken, Buehler Center On Aging, Health & Society, Northwestern University, Matthew Sakumoto, Northwestern University Feinberg School Of Medicine, George Handzo, Healthcare Chaplaincy Network, Abel Kho, Northwestern University Feinberg School Of Medicine and Linda Emanuel, Buehler Center On Aging, Health & Society. 5. Determining best methods to screen for religious/spiritual distress (2017). Stephen D. W. King, Chaplaincy, Child Life, & Clinical Patient Navigators, Seattle Cancer Care Alliance, George Fitchett and Patricia E. Murphy, Department of Religion, Health & Human Values, Rush University Medical Center, Kenneth I. Pargament, Department of Psychology, Bowling Green State University, David A. Harrison, Department of Psychiatry and Behavioral Sciences, University of Washington School of Medicine and Elizabeth Trice Loggers, Clinical Research Division, Fred Hutchinson Cancer Research Center. 6.The spiritual distress assessment tool: an instrument to assess spiritual distress in hospitalised elderly persons (2010). Stefanie M Monod, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center, Etienne Rochat, Service of Geriatric Medicine & Geriatric Rehabilitation and Chaplaincy Service, University of Lausanne Medical Center, Christophe J Büla, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center, Guy Jobin, Faculty of Theology and Religious Sciences, University of Laval, Estelle Martin, Service of Geriatric Medicine & Geriatric Rehabilitation, University of Lausanne Medical Center and Brenda Spencer, Institute of Social and Preventive Medicine (IUMSP), University Hospital Center and University of Lausanne. Section II Patient/Family Spiritual Needs & Spiritual Care Interest. 7. The Spiritual and Theological Challenges of Stillbirth for Bereaved Parents (2017). Daniel Nuzum, Department of Obstetrics and Gynaecology, University College Cork, Cork University Maternity Hospital, Sarah Meaney, National Perinatal Epidemiology Centre, University College Cork and Keelin O'Donoghue, Irish Centre for Fetal and Neonatal Translational Research (INFANT), Department of Obstetrics and Gynaecology, University College Cork, Cork University Maternity Hospital. 8. Identifying Religious and/or Spiritual Perspectives of Adolescents and Young Adults Receiving Blood and Marrow Transplants: A Prospective Qualitative Study (2014). Judith R. Ragsdale, Mary Ann Hegner, Mark Mueller and Stella Davies, Cincinnati Children's Hospital. 9. Adolescents' Spirituality and Cystic Fibrosis Airway Clearance Treatment Adherence: Examining Mediators (2016). Daniel H. Grossoehme. Division of Pulmonary Medicine, Rhonda D. Szczesniak, Division of Pulmonary Medicine and Division Biostatistics and Epidemiology, Cincinnati Children's Hospital Medical Center, Sylvie Mrug, Department of Psychology, University of Alabama, Sophia M. Dimitriou, Alec Marshall and Gary L. McPhail, Division of Pulmonary Medicine.10. Hospital Chaplains: Through the Eyes of Parents of Hospitalized Children (2017). Pamela K. Donohue, Department of Pediatrics, Johns Hopkins School of Medicine and Department of Population Family and Reproductive Health, Johns Hopkins School of Public Health, Matt Norvell, Department of Spiritual Care and Chaplaincy, Johns Hopkins Hospital, Renee D. Boss, Department of Pediatrics, Johns Hopkins School of Medicine and Berman Institute of Bioethics, Jennifer Shepard, Department of Pediatrics, Johns Hopkins School of Medicine, Karen Frank, Department of Acute and Chronic Care, Johns Hopkins University School of Nursing, Christina Patron, Department of Pediatrics, Johns Hopkins School of Medicine and Thomas Y. Crowe, Department of Spiritual Care and Chaplaincy, Johns Hopkins Hospital. 11. Service user views of spiritual and pastoral care (chaplaincy) in NHS mental health services: a co-produced constructivist grounded theory investigation (2016). Julian Raffay, Spiritual and Pastoral Care, Mersey Care NHS Foundation Trust, Emily Wood and Andrew Todd, Cardiff Centre of Chaplaincy Studies, St Michael's College.12. Cultural differences in spiritual care: findings of an Israeli oncologic questionnaire examining patient interest in spiritual care (2014). Michael Schultz, Division of Oncology, Rambam-Health Care Campus, Technion-Israel Institute of Technology, Doron Lulav-Grinwald, Division of Oncology, Rambam-Health Care Campus, Technion-Israel Institute of Technology and Gil Bar-Sela, Faculty of Medicine, Technion-Israel Institute of Technology. 13. The Frequency and Correlates of Spiritual Distress Among Patients With Advanced Cancer Admitted to an Acute Palliative Care Unit (2011). David Hui, Maxine de la Cruz, Steve Thorney, Henrique A. Parsons, Marvin Delgado-Guay, and Eduardo Bruera, Department of Palliative Care and Rehabilitation Medicine, The University of Texas MD Anderson Cancer Center. Section III. Chaplaincy Interventions & Their Impact. 14. Relationship Between Chaplain Visits and Patient Satisfaction (2015). Deborah B. Marin and Vanshdeep Sharma, Department of Psychiatry, Icahn School of Medicine at Mount Sina, Eugene Sosunov, Office for Excellence in Patient Care, Mount Sinai Hospital, Natalia Egorova, Department of Health Evidence and Policy, Icahn School of Medicine at Mount Sinai, Rafael Goldstein, Department of Spiritual Care and Education, Mount Sinai Hospital and George F. Handzo, HealthCare Chaplaincy, New York. 15. The association of spiritual care providers' activities with family members' satisfaction with care after a death in the ICU (2014). Jeffrey R. Johnson, Ruth A. Engelberg, Elizabeth L. Nielsen and Erin K. Kross, Harborview Medical Center, Division of Pulmonary and Critical Care Medicine, Department of Medicine, University of Washington, Nicholas L. Smith, Department of Epidemiology, School of Public Health, University of Washington, Seattle Epidemiologic Research and Information Center and Group Health Research Institute, Julie C. Hanada and Sean K Doll O'Mahoney, Department of Spiritual Care, Harborview Medical Center and J. Randall Curtis, Harborview Medical Center, Division of Pulmonary and Critical Care Medicine, Department of Medicine, University of Washington.16. The Effect of Pastoral Care Services on Anxiety, Depression, Hope, Religious Coping, and Religious Problem Solving Styles: A Randomized Controlled Study (2008). Paul S. Bay, Chaplaincy and Pastoral Education, Clarian Health Partners, Daniel Beckman, CORVAS Cardiothoracic & Vascular Solutions, Clarian Health Partners, James Trippi, The Care Group, Clarian Health Partners, Richard Gunderman, School of Medicine, Indiana University and Colin Terry, Methodist Research Institute, Clarian Health Partners. 17. A Novel Picture Guide to Improve Spiritual Care and Reduce Anxiety in Mechanically Ventilated Adults in the Intensive Care Unit (2016). Joel N. Berning, NewYork-Presbyterian Hospital, Pastoral Care and Education Department, Armeen D. Poor, Sarah M. Buckley and Komal R. Patel, Division of Pulmonary, Allergy, and Critical Care, Columbia University, David J. Lederer, Division of Pulmonary, Allergy, and Critical Care, Columbia University and Department of Epidemiology, Columbia University Mailman School of Public Health, Nathan E. Goldstein, Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, and Geriatrics Research Education and Clinical Center, James J. Peters VA Medical Center, Daniel Brodie and Matthew R. Baldwin, Division of Pulmonary, Allergy, and Critical Care, Columbia University. 18. The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons (2017). Katherine M. Piderman, Chaplain Services, Mayo Clinic Rochester, Carmen Radecki Breitkopf, Division of Health Care Policy and Research, Health Sciences Research, Mayo Clinic Rochester, Sarah M. Jenkins, Biostatistics and Informatics, Mayo Clinic Rochester, Maria I. Lapid, Psychiatry and Psychology, Mayo Clinic Rochester, Gracia M. Kwete, Mayo Medical School, Mayo Clinic Rochester, Terin T. Sytsma, Internal Medicine, Mayo Clinic Rochester, Laura A. Lovejoy, Chaplain Services, Mayo Clinic Rochester, Timothy J. Yoder, Chaplain Services, Mayo Clinic Rochester and Aminah Jatoi, Medical Oncology, Mayo Clinic Rochester. 19. What Impact Do Chaplains Have? A Pilot Study of Spiritual AIM for Advanced Cancer Patients in Outpatient Palliative Care (2017). Allison Kestenbaum, Doris A. Howell Palliative Care Service, University of California, The Rev. Michele Shields, Spiritual Care Department, University of California San Francisco Medical Center and UCSF Benioff Children's Hospital, Jennifer James, Department of Social and Behavioral Sciences, School of Nursing, University of California, San Francisco, The Rev. Will Hocker, Spiritual Care Department, University of California San Francisco Medical Center and UCSF Benioff Children's Hospital, Stefana Morgan, Department of Psychiatry, University of California, Shweta Karve, Department of Psychiatry and Behavioral Sciences, Stanford University, Michael W. Rabow, Department of Medicine, University of California and Laura B. Dunn, Department of Psychiatry and Behavioral Sciences, Stanford University. 20. Patient Reported Outcome Measure of Spiritual Care as Delivered by Chaplains (2017). Austyn Snowden, School Of Health And Social Care, Edinburgh Napier University and Iain Telfer, The Royal Infirmary Of Edinburgh. 21. A national study of chaplaincy services and end-of-life outcomes (2012). Kevin J Flannelly, The Spears Research Institute, HealthCare Chaplaincy, Linda L Emanuel, Buehler Center on Aging, Health & Society, Northwestern University Feinberg School of Medicine, George F Handzo, HealthCare Chaplaincy, Kathleen Galek, The Spears Research Institute, HealthCare Chaplaincy, Nava R Silton, Department of Psychology, Marymount Manhattan College and Melissa Carlson, Mount Sinai School of Medicine.

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Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.

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Book SynopsisHospice chaplains have traditionally played a unique part in palliative care, providing human compassion and support to help ease life's final chapter. This book thoughtfully tackles the question at the heart of modern hospice chaplaincy: do chaplains have a distinctive role in an increasingly secular society?A comprehensive look at why and how this work needs to be done, each chapter will be a rich resource for hospice chaplains and anyone working within a hospice multi-disciplinary team. Taking the form of reflections by chaplains and other professionals, they examine the tension between sacred and secular space, explore how spiritual care works in a changing society, and look at what voice a chaplain has within the hospice team.Essential reading for chaplains, this insightful book reflects on the important work undertaken by hospice chaplaincies and explains why they continue to be a vital resource for end-of-life care.Trade ReviewThis book explores the chaplain's unique role and the privilege of being involved in the lives of those who approach death. Varied contributors helpfully probe the inner life of the chaplain and her relationships with staff and volunteers. It explores the changing role of the hospice chaplain, but has great relevance for all involved in End of Life care. I wholeheartedly commend it to all who have an interest in healthcare chaplaincy. -- Revd Mark Burleigh, Head of Chaplaincy & Bereavement Services, University Hospitals of Leicester NHS Trust and President, College of Health Care ChaplainsChallenged by the exigencies of health economies and the demands of secularists, chaplaincy is in transition. The diverse voices brought together by Murphy and Whorton speak to that transition with harmony and clarity about the 'traditional' values that shape chaplaincy identity and care, and that determine the distinctive contribution chaplains make to multi-professional team working. -- Revd Dr Steve Nolan, Princess Alice Hospice, Esher, and The University of WinchesterFifty years after Dame Cicely Saunders founded the first modern hospice in 1967, this book is a timely and fitting tribute to her legacy. It consists of a series of reflections by chaplains and allied professionals, and is packed with inspiration, experience, and good practice. -- Revd Ann Fulton, Spiritual Care Co-ordinator for St Margaret's Hospice, Somerset * Church Times *Anyone who is involved in hospice work, or anyone working with people who are ill and lost, will find much in this book which is of value. -- The Revd John Lampard * Methodist Recorder *Table of ContentsForeword by Baroness Finlay of Llandaff. Introduction. Part One: Locating the Work of Palliative Care Chaplaincy. 1. Then and Now. The Most Reverend Dr Richard Clarke, The Archbishop of Armagh and Primate of All Ireland and Judy Davies, Methodist Minister and Chaplain at Sue Ryder - Duchess of Kent Hospice, Reading, UK. 2. What Kind of Place is a Hospice? Karen Murphy, President of the Association of Hospice and Palliative Care Chaplains (AHPCC), UK and Julian Abel, Weston Area Health Trust and Vice President of Public Health Palliative Care International, and Chair of the UK Branch. 3. Many Faiths, No Faith. Abbas Khalifa, Imam, Healthcare Chaplain, UK, The Revd Stig Graham, Hospice and Palliative Care Chaplain, UK, Kathryn Morrison, Bank Chaplain, LOROS Hospice, Leicester, UK, Martin T. Hill, St. Giles Hospice, Lichfield, UK and Simon O' Donoghue, The Non-Religious Pastoral Support Network, UK. 4. The Contribution of Volunteers. Karen Murphy. Part Two: Reflecting Theologically. 5. A Good Death? Revd Canon Dr Margaret Whipp, Oxford University Hospital, UK and Jonathan Wittenberg, Rabbi, New North London Synagogue, UK. 6. Towards a Theology of Palliative Care Chaplaincy. Revd Canon Helen Newman, Spiritual Care Lead Chaplain, LOROS Hospice, Leicester, UK and Revd Dr Jonathan H. Pye, Chair of the Bristol District of the Methodist Church, Hon. Research Fellow, Centre for Ethics in Medicine, Research Associate, School of Social and Community Medicine, University of Bristol. Part Three: Who Are We? 7. Our Unique Role. Margery Collin, Chaplain, Strathcarron Hospice, Stirlingshire, UK and Jacki Thomas, PhD, Retired Hospice Chaplain. 8. Do We Have a Voice? Revd Caroline McAfee, Chaplaincy and Spiritual Care Lead, Northern Ireland Hospice, Belfast, UK, David Buck, Spiritual Care Co-Ordinator, Sue Ryder - Wheatfields Hospice, Leeds, UK and Ruth White, CEO, Rowans Hospice, UK. 9. Mirror, Mirror. Jessica Rose, Senior Accredited Member, Association of Pastoral Supervisors and Educators, Member of the Institute of Pastoral Supervision and Reflective Practice and Andy Edmeads, Anglican Priest and Chaplain to Children And Young Adults Hospice, UK. 10. Holding the Tension. Lousie Adey Huish, Chaplain, Myton Hospice, Warwick, UK and Gary Windon, Chaplain, Nightingale House Hospice, Wrexham, UK. 11. Our Place in the Shadows. Margaret Jill Brown, Psychoanalytic Psychotherapist, Member of Severnside Institute for Psychotherapy, Founding Patron of The Harbour, UK and Bob Whorton, Chaplain, Sit Michael Sobell House, UK. 12. Our Own Nourishment. The Revd Matthew Hagan, M.Phil, Southern Area Hospice, Newry, County Down, Northern Ireland, President, Northern Ireland Healthcare Chaplains Association, UK and Dawn M. Allan, Spiritual Care Lead Chaplain, NHS Orkney and NHS Shetland, UK. 13. A Creative Resource. The Revd Sally Bedborough, Chaplain, Weldmar Hospicecare, Dorset, UK, Liza Waller, Chaplain, Hospice in the Weald, Kent, UK and Nell Mellerick, Creative Artist and Hospice Day Service Manager, UK. 14. Looking to the Future. Ewan Kelly, Visiting Professor, Research Co-Ordinator, European Research Institute for Chaplains, Academic Centre for Practical Theology, University of Leuven, Belgium. Appendices.

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Book SynopsisTable of ContentsPart I: Symptom Management Section A PAIN 1 How Should Opioids Be Started and Titrated? 2 What Principles Should Guide Opioid Dose Conversions? 3 How Is Patient-Controlled Analgesia Best Used to Control Pain? 4 Which Opioids Are Safest and Most Effective in Patients With Renal or Hapatic Failure? 5 How Should Mathadone Be Started and Titrated in Opioid-Naive and Opioid-Exposed Patients? 6 What Is Neuropathic Pain and How Is It Best Managed? 7 How Are Adjuvant Medications Such as Corticosteroids and NSAIDs Used for Pain Management? 8 What Are the Approaches to Pain in Skeletal Bone Disease? 9 When and How Should Radiotherapy Be Considered for Pain Management? 10 What Principles Should guide the Prescribing of Opioids for Noncancer Pain? 11 How Does the Opioid Epidemic Impact Palliative Medicine Practice? 12 How Does One Approach the Patient With an Opioid Use Disorder? 13 When Should Epidural or Intrathecal Medications and Pumps Be Considered for Pain Management? 14 When Should Nerve Blocks Be Used for Pain Management? Section B DYSPNEA 15 What Interventions Are Effective for Managing Dyspnea in People With Cancer? 16 What Interventions Are Effective for Managing Dyspnea in COPD? 17 What Interventions Are Effective for Managing Dyspnea in Heart Failure? Section C GASTROINTESTINAL 18 What Medications Are Effective in Preventing and Relieving Constipation in the Setting of Opioid Use? 19 How Should Medications Be Initiated and Titrated to Reduce Acute and Delayed Nausea and Vomiting in the Setting of Chemotherapy? 20 How Should Medications Be Initiated and Titrated to Prevent and Treat Nausea and Vomiting in the Clinical Situations Unrelated to Chemotherapy? 21 What Interventions Are Effective for Relieving Acute Bowel Obstruction in Cancer and Other Conditions? Section D ANOREXIA/CACHEXIA/FEEDING DIFFICULTIES 22 What Therapies Are Effective in Improving Anorexia and Weight Loss in Cancer? 23 What Therapeutic Strategies Are Effective in Improving Anoerexia and Weight Loss in Nonmalignant Disease? 24 What Is the Role of Parenteral and Enteral Nutrition in Patients With Cancer and With Noncancer Illness? Section E PSYCHIATRIC SYMPTOMS 25 What Treatments Are Effective for Depression in Palliative Care Settings? 26 How Are Anxiety and Fear Best Treated in Patients With Serious Illness and in Those Facing the End of Life? 27 What Is the Approach to the Patient Seeking a Hastened Death? Section F DELIRIUM 28 What Is Delirium and How Should It Be Managed? 29 What Are Effective Pharmacological and Nonpharmacological Treatments for Delirium? 30 How Do Symptoms Change for Patients in the Last Days/Hours of Life? PART II: Communication 31 Prognosis in Palliative Care: Estimating Prognosis in Serious Illness and Communication Strategies 32 What Are the Key Elements to Having a Conversation About Communicating Serious News and Setting Goals? 33 What Are the Elements of Advance Care Planning and What Is the Evidence That Advance Care Planning Changes Patient Outcomes? 34 What Are the Special Communication Issues Involved in Caring for Pediatric Patients? Part III: Disease-Specific Topics Section A CANCER 35 What Is the Role for Palliative Care in Patients With Advanced Solid-Tumor Malignancies? 36 What Is the Clinical Course of Advanced Solid-Tumor Cancers 37 What Is the Role for Palliative Care in Patients With Advanced Hematologic Malignancies? 38 What Is the Clinical Course of Hematologic Malignancies? 39 What is the Role for Palliative Care in Children With Cancer? 40 What Is the Clinical Course of Pediatric Cancers? Section B DEMENTIA 41 What Is the Clinical Course of Advanced Dementia? 42 What Are Appropriate Palliative Interventions for Patients With Advanced Dementia? Section C ADVANCED LIVER DISEASE 43 What Are the Causes and Complications of Chronic Liver Disease and What Is the Evidence for Palliative Care Delivery to Those Affected by It? 44 What Do We Know About the Symptoms and Palliative Care Needs of People Affected by Liver Disease? Section D BRAIN FUNCTION 45 What Is the Role of Palliative Care and Stroke? 46 What Special Considerations Are Needed for Individuals With Amyotrophic Lateral Sclerosis, Parkinson's Disease, and Multiple Sclerosis? Section E HEART FAILURE 47 What Is the Clinical Course of Advanced Heart Failure and How Do Implanted Cardiac Devices Alter This Course? Section F CHRONIC CRITICAL ILLNESS 48 What Is Chronic Critical Illness and What Outcomes Can Be Expected? Section G HEAD AND NECK CANCER 49 What Special Considerations Are Needed in Patients With Head and Neck Cancer? Section H END-STAGE RENAL DISEASE 50 What Special Considerations Are Needed in Treating Symptoms in Patients With End-Stage Renal Disease, and How Should Patients Who Stop Dialysis Be Managed? 51 What Are Palliative Alternatives to Renal Replacement Therapy for People With Advanced Kidney Failure? Section I PULMONARY 52 What Special Considerations Are Needed for Patients With Advanced Lung Disease? Section J GERIATRICS 53 What Are the Special Needs of Older Adults With Serious Illness? 54 What Are Multimorbidity and Frailty and How Do They Affect the Care of Older Adults? Section K PEDIATRICS 55 What Are Special Considerations for Pediatric Palliative Care? 56 What Are Special Considerations for Dosing Medications in Pediatric Populations? 57 How Are Children With Developmental Diseases and Delays Best Managed in Palliative Care? 58 What Are Special Considerations for Perinatal Palliative Care? 59 What Are Special Considerations for Patients With Cystic Fibrosis? PART IV: Special Topics Section A PALLIATIVE CARE EMERGENCIES 60 What Are the Signs, Symptoms, and Treatments of Spinal Cord Compression? 61 What Framework Can Be Used to Address Uncontrolled Symptoms at the End of Life? Section B FINANCIAL ASPECTS OF PALLIATIVE CARE 62 What Are the Arguments That Show That Palliative Care Is Beneficial to Hospitals? 63 What Are the Arguments That Show That Outpatient Palliative Care Is Beneficial to Medical Systems? Section C CAREGIVERS 64 How Does Serious illness Affect Family Caregivers? 65 What Can Be Done to Improve Outcomes for Caregivers of People With Serious Illness? 66 What Is Prolonged Grief Disorder and How Can Its Likelihood Be Reduced? Section D SETTINGS FOR PALLIATIVE CARE DELIVERY 67 What Are the Models for Delivering Palliative Care in Hospitals? 68 What Models Exist for Delivering Palliative Care and Hospice in Nursing Homes? 69 What Are the Models for Delivering Palliative Care in the Ambulatory Practice Setting? 70 What Are the Models for Delivering Palliative Care in the Home? 71 What Are the Models for Delivering Palliative Care in Rural Areas? 72 How Is Palliative Care Best Integrated Into Surgical Services? 73 What Models Exist to Deliver Palliative Care via Telemedicine? 74 What Are National Strategies and Frameworks for Palliative Care? 75 What Are Sources of Spiritual and Existential Suffering for Patients With Advanced Illness? 76 What Are the Racial and Ethnic Health Disparities That Exist in Palliative Care? 77 What Are the Palliative Care Needs of LGBTQ+ People? 78 What Is the Evidence for Integrative and Alternative Therapies in Palliative Care? 79 What Is the Evidence Supportng the Use of Mobile Health Technologies in Palliative Care? 80 How Can Clinician Well-Being Be Improved and Sustained in Palliative Care?

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Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice

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Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased

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Book SynopsisPart of the Psycho-Oncology Care: Companion Guides for Clinicians series, Psycho-Oncology in Palliative and End-of-Life Care provides expert advice and clinical management guidelines on the impact of advanced cancer and its treatment on the life and wellbeing of a patient in palliative and end-of-life care.Table of ContentsContributors 1. Communication about Advanced Progressive Disease, Prognosis, and Advance Care Plans Natasha Michael and Rajvi Shah 2. Anxiety Disorders Daniel McFarland, William Pirl, and Maggie Watson 3. Adjustment Disorders and Demoralization David Kissane, Luigi Grassi, and Chun-Kai Fang 4. Depressive Disorders Daisuke Fujisawa, Tatsuo Akechi, and Yosuke Uchitomi 5. Delirium and Cognitive Impairment Yesne Alici, Soenke Boettger, and William Breitbart 6. Diagnosing Dying, Accompaniment, and Assessing Death Wishes Cristina Monforte-Royo, Josep Porta-Sales, and Albert Balaguer 7. Carer, Partner, and Family-Centered Support Hannah-Rose Mitchell, Alison Applebaum, and Talia Zaider 8. Care of Dependent Children When a Parent Dies of Cancer Jane Turner and Melissa Henry 9. Spiritually and Culturally Sensitive Care Jayita Deodhar, Mark Lazenby, and Crystal Park 10. Bereavement Care Wendy Lichtenthal, William Rosa, and Robert Neimeyer 11. Staff Support Brian Kelly, Maria Die Trill, and Christian Ntizimira Appendix 1: Example of a Question Prompt List for Palliative Care Appendix 2: Example of an Advance Care Plan Appendix 3: Demoralization Scale-II (DS-II) Appendix 4: Psycho-Existential Symptom Assessment Scale (PeSAS) Index

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Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet

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Book SynopsisA resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families. It addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and more. It also includes content on trauma and developmental issues for children, adults, and the aging who are dying.Trade ReviewBerzoff's and Silverman's text is a compendium of educational material uniquely edited to facilitate social workers' understanding of how to think about, talk with and practice caring for people with life-limiting illness, their caregivers and themselves. It should be required reading for all healthcare professionals who provide end-of-life care. From its use of personal narratives to its emphasis on the theoretical underpinnings of social work practice and research, this resource models excellence in teaching. It is authoritative, comprehensive, practical and readable. Although each of the chapters could stand alone, together they carefully weave the complex elements of what healthcare professionals need to know to be both competent and compassionate in providing end-of-life care. This resource thoroughly addresses the educational challenges set forth in the three Institute of Medicine reports calling for the education of healthcare professionals to facilitate improved care to people with life-limiting illness.Kathleen M. Foley, MDProfessor of Neurology, Neuroscience & Clinical PharmacologyWeill Medical School of Cornell University Attending NeurologistMemorial Sloan-Kettering Cancer CenterPalliative Care Initiative Network PublicHealth ProgramOpen Society Institute -- Kathleen M. Foley, MD I would highly recommend Living with Dying. -- Reverend Francis C. Zanger American Journal of Hospice and Palliative Care This text offers a successful interdisciplinary approach to understanding suffering, the vital relationship of self to others (and the importance of self-care), and the competencies needed to promote compassionate, professional palliative care...Recommended. Choice This text is an excellent resource. -- Katherine Miller Palliative Medicine It beautifully encapsulates the profession of social work and the care that social workers provide for the dying and bereaved. -- Cheryl-Anne Cait Smith College Studies in Social Work Living with Dying is the first comprehensive resource on end-of-life care... Social workers will find this text indispensable. -- Carole A. Winston Journal of Social Work in End-of-Life & Palliative CareTable of ContentsContents List of Contributors Acknowledgments Foreword, by Thomas R. Egnew Introduction Part I Narratives in End-of-Life Care 1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving, by David Browning 2. The Symptom Is Stillness: Living with and Dying from ALS, by Ellen Pulleyblank Coffey 3. The Loss of a Child to Cancer: From Case to Caseworker, by Roberta Hoffman 4. September 11: Reflections on Living with Dying in Disaster Relief, by es Gallo-Silver and Penny Damaskos Part II Theoretical Aspects of Death and Dying Introduction: Theory 5. What Is a Respectful Death? by Stu Farber, Thomas Egnew, and Annalu Farber 6. Dying and Bereavement in Historical Perspective, by Phyllis R. Silverman 7. The History of Social Work in Hospice, by Mary Raymer and Dona Reese 8. The Interdisciplinary Team: An Oxymoron? by Inge B. Corless and Patrice K. Nicholas 9. Ethical issues in End-of-Life Care: Social Work and Facilitation and Proactive Intervention, by Patricia O'Donnell 10. Spirituality and End-of-Life Care Practice for Social Workers, by Carolyn Jacobs 11. Gender and Death: Parallel and Intersecting Pathways, by Illene C. Noppe 12. Bereavement: A Time of Transition and Changing Relationships, by Phyllis R. Silverman 13. Psychodynamic Theories in Grief and Bereavement, by Joan Berzoff Part III Clinical Practice Issues in End-of-Life Care Introduction: Clinical Practice 14. The Trajectory of Illness, by Allen Levine and Wendy Karger 15. Clinical Social Work Practice at the End of Life, by Felice Zilberfein and Elizabeth Hurwitz 16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families, by Nancy Cincotta 17. Working with Dying and Bereaved Older People, by Sue Thompson and Neil Thompson 18. Assessing Mental Health Risk in End-of-Life Care, by Katherine Walsh-Burke 19. Pain and Symptom Management: An Essential Role for Social Work, by Terry Altilio

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Book SynopsisOffers a process-based, patient-centered approach to palliative care that substantiates a radical reconsideration of our transition to deathTrade ReviewA pioneering work on research about dying and a treasury of knowledge about dying processes, this book will promote our understanding, care, and guidance of terminally ill persons. -- Pim van Lommel, cardiologist and author of Consciousness Beyond Life: The Science of the Near-Death Experience Monika Renz is able to partially lift the veil shrouding the mystery of death. Based on her vast experience with the dying, her book provides an intimate and rich account of the phenomenological experience of the dying process. -- Paul T. P. Wong, Trent University, president of the Meaning-Centered Counselling Institute A bold, probing investigation into how analogies and metaphors provide fresh access to dying as the ultimate mystery of human potential. A skillful analysis of patient vignettes render palpable many ineffable and unconscious dynamics of patients' experiences as they move from conventional ego-based schema through personal, transformative, beautiful, and even painful transitions. This insightful work is a compass for reducing suffering among the dying and the living. -- Bruce L. Arnold, University of Calgary This powerful book plumbs the existential depths of our ultimate transformation. Network ReviewTable of ContentsAcknowledgments Introduction: In Search of Inner Experiences of Dying 1. Dying and the Transformation of Perception 2. The Three Stages of Transition and Dignity 3. What Is Primordial Fear? "The 'I' Dies Into a 'Thou'" 4. Other Hearing: Beyond Space and Time 5. Metaphors of Transition 6. The Sites of Transition: Fear, Struggle, Acceptance, Family Processes, Maturation 7. Dying with Dignity: Indication-Oriented End-of-Life Care Epilogue Appendix Notes References Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThrough drawings, paintings, and poetic, prayerful affirmations grounded firmly in the Jewish experience, the author offers a creative response to her mother’s final illness and death. Trade Review“Life Support exemplifies the genre of graphic medicine. Spare and raw, we are thrust into the physicality of health and illness, bodies and fluids, as well as emotions deep and intense. She offers us feelings, ugly and unrepentant at times, with moments of grace at others, and in the process of the work, reveals a healing balm, years in the making.”—Joel L. Kushner,Director, Kalsman Institute on Judaism and Health“As she attended to her mother’s declining days, Judith Margolis instinctively, deeply recorded them in art and text that have the quality of prayer. One sees in this work the profound tenderness of attention. From within the great hollow of loss, this book offers unexpected comfort. Margolis lifts up an art and practice that attend to the ineffable, and in whose spirit loss becomes presence.”—Elizabeth Robinson,author of On Ghosts“In charting her ‘trajectory from brokenness to wholeness’ through drawing and writing, Margolis offers a uniquely consoling but also affirmative narrative of love and loss.”—Lois Perelson-Gross Graphic Medicine“Margolis’s brief book tackles a hard subject by facing the unpretty reality head-on, giving the reader a window into a world usually whispered about in hushed tones, if at all. Beyond being a sensitive tribute to her parents, there is much to consider for families similarly situated. The deft title Life Support can be understood both as the physical machinery used in critical care and as the act of the book’s creation serving as an emotional life preserver buoying the book’s author, while benefiting us all.”—Heddy Breuer Abramowitz Jerusalem Post“Margolis, in reviving a combination of art and literature that is religious at its core, has created a deeply original and moving work.”—Julia Stein Rain Taxi Review of Books“Life Support, a book of prayer, is a solicitation. It is an invitation to sit quietly and pay attention: to the pain of a dying mother and her grieving daughter; to the bonds of life, and grief, that all of us ultimately share, just by dint of still being here.”—Tahneer Oksman Shofar“Life Support reminded me that reading can be about more than words. A good book can be a fully sensory experience: The smell of the pages, the crackle of the spine, the texture of the cover, the delights of a good font or drawing. Life Support is all of that and more.”—Susan Sered Nashim

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Book SynopsisThis easy-to-use guide provides a quick reference to the principles of palliative and end-of-life care for adults, to help you enable your patients to not only die peacefully but also live until they die. The Nursing & Health Survival Guides have evolved - take a look at our our app for iPhone and iPad.Table of ContentsWhat is palliative care?The patient journeyRole of the nurseCommunication in palliative careHolistic assessmentSymptom management in palliative and end of life carePain managementNausea and vomitingBreathlessnessConstipationFatigueCare at end of lifeSymptoms at end of lifeA good deathCare in the last few weeks and daysSupporting family and carersLooking after self

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Book Synopsis "To those of us who have been aware of the innovative service to families facing death and bereavement that has been developed by David W. Kissane and Sidney Bloch this book has been eagerly awaited. Their work is a logical development in the field of Palliative Care in which it has long been recognized that, when life is threatened, it is the family (which includes the patient) which is, or ought to be, the unit of care.The work also has great relevance for the wider field of bereavement care...all who work to help families at times of death and bereavement will find much to learn from this book which represents a useful addition to our understanding of the losses which, sooner or later, we all have to face." - Colin Murray Parkes Family members are often intimately involved in the care of dying people and themselves require support through both their experience of palliative care and bereavement. This innovative book describes a comprehensive model of famTrade Review"Kissane and Bloch demonstrate an extraordinary commitment to improving the quality of family life in this moving are readable account of a research project using Family Focussed Grief Therapy (FFGT). I recommend it to anyone working with seriously ill and dying patients." - Jeni WebsterTable of ContentsSeries editor's prefaceForeword by Colin Murray ParkesIntroductionFamily care and family griefA typology of family functioningConducting family focused grief therapy (FFGT)Common themes that arise during FFGTA typical encounter of therapyChallenges and problems in the delivery of FFGTThe impact of specific life events upon familiesThe ethical dimensionClinical application of the FFGT modelAppendix 1The Family Relationships Index (FRI)Appendix 2Tables of results from the Melbourne Family Grief StudiesBibliographyIndex.

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Book SynopsisThis beautifully illustrated and sensitive storybook is designed to be used therapeutically by professionals and caregivers supporting children with an untreatable illness. With engaging, gentle and colourful illustrations that can be used to prompt conversation, it tells the story of the final journey made by a Boy with a Bear, as the Boy says his goodbyes and comes to terms with his life-ending illness. This book is also available to buy as part of the Therapeutic Fairy Tales pack. Therapeutic Fairy Tales is a series of short modern tales dedicated to exploring challenging life situations that might be faced by young children. Each short story is designed to be used by professionals and caregivers as they use stories therapeutically to support childrenâs mental and emotional health.Other books in the series include: Storybook Manual: Introduction To Working With Storybooks Therapeutically And Creatively The Night Crossing: A Lullaby For Children On Lifeâs Last Journey The Island: For Children With A Parent Living With Depression Designed to be used with children aged 7+, each story has an accompanying online resource, offering therapeutic prompts and creative exercises to support the practitioner. These resources can also be adapted for wider use with siblings and other family members. The Night Crossing - from the Therapeutic Fairy Tales series â is born out of a creative collaboration between Pia Jones and Sarah Pimenta Trade ReviewA sensitive and poignant tale to aid and support children who may be facing an untreatable illness. The Night Crossing can help soften the fear about the journey into the unknown. Hephzibah Kaplan, Art Therapist, Director, London Art Therapy Centre The Night Crossing is so sensitively written, with beautiful illustrations. I found it honest and touching, a sympathetic aid that could be revisited whenever needed. In our experience, children take in as little or as much as they feel comfortable to deal with when they are ready. I also feel this book could help siblings of a child who is very ill and for parents or carers to help gauge other children's questions and emotions.Family member, AnonymousAs children are so naturally at ease with metaphor, I imagine The Night Crossing could answer some of the unspoken fears of a child and families at this time with honesty and kindness. It acknowledges the wisdom of the child who in his heart knows what is happening. I would also hope that this story could open up the possibility of conversations between parent and child. A touching and sensitive work, with beautiful illustrations. Anna Ledgard, Arts Producer, End of Life doula trainerA sensitively written and delightfully illustrated book that provides support and comfort to both a seriously ill child or siblings. The Night Crossing provides a safe space for parents and professionals to explore the fears and emotions a child may experience but also provides the opportunity for a child to ask difficult questions. Janey Treharne, from Jigsaw (South East)This book has done something very beautiful and reassuring with a very difficult topic. Taylor Smart, Art PsychotherapistTable of ContentsA Word of Caution The Night Crossing: A lullaby for children on life's last journey

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Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181

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Book SynopsisWhether residing at home, in assisted living or in a nursing facility, older adults have unique nutrition needs. Like the previous edition, this hands-on reference encompasses the total perspective on person-driven nutrition care of older adults, from nutrition and disease states to regulatory compliance in health care settings.

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Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

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Book SynopsisWith contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.Trade Review"An inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients." (Journal of the American Academy of Child and Adolescent Psychiatry)"Table of ContentsList of Contributors Preface Part I: Societal and Institutional IssuesChapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of CareChapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient PopulationsChapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic ConditionChapter 17. Integrating Palliative Care with HIV Care and TreatmentChapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology Index

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Book Synopsis'Warm, wise and practical' Cressida Cowell, MBEAn invaluable reference for parents of sick or hospitalised children by an experienced and eminent psychologist. To many parents, it is hard to imagine a more upsetting reality than one where their child is hospitalised, severely sick, or terminally ill. In When Your Child is Sick, psychologist Joanna Breyer distils decades of experience working with sick children and their families into a comprehensive guide for navigating the uncharted and frightening terrain. She provides expert advice to guide them through the hospital setting, at-home care, and long-term outcomes.Breyer's actionable techniques and direct advice will help parents feel more in-control of a circumstance that has upended their life. She alerts parents to key personnel in the hospital, gives dialogue prompts to help parents ask for the help they need, addresses the needs of their other children at home, offers advice on how to best utilise friends and family who want to help, includes stories from other families who have been there, and teaches coping techniques to help both parents and children weather the stress of prolonged illness and even death.When Your Child is Sick is a valuable guide to managing the myriad practical and emotional complications of an impossible situation.Trade ReviewNFAA Book Award Winner -- Gold AwardJoanna Breyer balances profound compassion with pragmatism to provide an extraordinarily valuable guide to the management and care of sick children... This book should be compulsory reading for anyone facing these terrifying conundrums and life-altering decisions. * Siddhartha Mukherjee, author of 'The Emperor of All Maladies: A Biography of Cancer', winner of the 2011 Pulitzer Prize in general nonfiction *[This book] is a wonder. I stand in awe at how comprehensive it is in guiding parents through maintaining confidence and alleviating fear during what can be an extremely challenging experience. A great clinician, [Joanna Breyer] is above all an inspired teacher who provides a treasure trove of advice for those facing the greatest fear parents have-that of losing a child. * David G. Nathan, President/Physician-in-Chief Emeritus, Dana-Farber Cancer Institute and Boston Children's Hospital; Professor of Pediatrics, Harvard Medical School *A compassionate, informative, and clear-eyed guide [that] lights the way for parents of children with cancer [and] provides comfort during a confusing, shocking, and despairing time. * Nancy Goodman, Executive Director, Kids v Cancer *This is definitely the book to read if you have a sick child... also an excellent guide for paediatric medical staff, who will learn working tools that improve the quality of their work and the quality of their patients´ lives. I recommend it without hesitation and wish I´d had it earlier in my professional career. * Maria Die Trill, Ph.D., President, International Psycho-Oncology Society *An incredibly important contribution for families with a child who has a serious illness. * Dr. Michael Yogman, Chief, Division of Ambulatory Pediatrics, Mt. Auburn Hospital, Harvard Medical School *[Breyer] proves to be the expert friend and advocate everyone needs: informative, steady, sympathetic, and - if treatment fails - unflinching at the prospect of loss. * Harvard Magazine *[This book lists] every possible resource that might help parents with meticulous care, but its greatest value may lie in its sympathetic understanding of the psychological problems that arise during this stressful time and how to resolve them. * Joanna Lane *A fantastic book that compassionately and sensitively prepares parents for the emotional and practical demands of caring for a child within the hospital system. * Dr Janie Donnan, Consultant Clinical Psychologist, Lead for Paediatric Psychology Royal Hospital for Children, Glasgow *

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Book SynopsisA Nurse’s Life tells the remarkable story of one woman’s devotion to a life of care in the medical profession. Beginning her career as a midwife, Geralyn later became an authority in palliative care, but throughout her goal has always been about understanding what it means to truly care for another person. That is precisely what she does in this book: portray the essence of nursing.After years in the hospital wards Geralyn decided it was time for a change and volunteered to work for Concern Worldwide in a two-year post among the most needy in Bangladesh. Here she learned first-hand about the link between poverty and health care. Upon her return to Ireland she returned to academia and enrolled in an MsC programme at Trinity College Dublin. Eventually she became Assistant Professor in the School of Nursing at Trinity.Interspersed between her highly entertaining personal stories as a nurse, Geralyn expounds on many of the key issues in the nursing profession today: the changing nature of nursing and environment of care; challenges in providing person-centred care in the hospital setting, the essential qualities needed to be a good nurse; the problematic doctor/nurse/administration relationship; the future of nursing and possible ways to address the current challenges; and much more.More recently, Geralyn experienced nursing from the other side when she was diagnosed with a brain tumour that while benign meant surgery, radiotherapy and several new chronic conditions as a result. This has given her a deeper, first-hand understanding of nursing and the extraordinary reality of loving care.

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Book SynopsisPublishing on the 50th anniversary of the opening of St Christopher's Hospice - widely thought of to be the first modern hospice, combining pain and symptom management with education and training - this edited collection discusses what motivates professionals and volunteers to provide spiritual care. This book shows how the world of hospice care is moving on from Cicely Saunder's, founder of St Christopher's Hospice, legacy to providing spiritual care in a more integrated manner. With entries from doctors, nurses and CEOs among others, this book informs good practice for professionals and volunteers providing spiritual care for patients and their families. It looks at how, for many of these professionals, spirituality does not have to be grounded in organised religion, but stems from understanding and providing for our human needs.Trade ReviewThis book opens up the idea of what 'spiritual' means in wholly original ways, finding it in the lived human experience of dying people and those who accompany them. Honest, open and moving, it takes the questions way beyond the hospice. Valuable reading for anyone involved in providing - or receiving - healthcare. -- Jessica Rose, writer and psychotherapistThis new look at spiritual care demonstrates the importance of a multi-professional approach. It seeks to re-integrate spirituality with other aspects of care by professional care-givers and volunteers recognising and responding to spiritual needs through developing a compassionate and attentive relationship with the patient and family. Practical examples help clarify the how and why of spiritual care and its relevance for carers. -- Prebendary Dr Peter Speck, Hon Senior Lecturer (Palliative Care), Cicely Saunders Institute, King’s College LondonThis book brings together a compelling blend of personal reflection, practical experience, and conceptual exploration of a profoundly important area. Its contributors are often movingly and refreshingly honest, and their collected breadth of experience comes together into a whole that will be deeply thought-provoking for practitioners and non-specialists alike. -- Bishop Christopher, Portsmouth DioceseTable of Contents1. What is Spiritual Pain? Nigel Hartley, East Mountbatten Hospice. 2. The Need to Be Present to the Patient. Andrew Goodhead, St Christopher's Hospice. 3. Relationship, not Intervention. Ros Taylor, Hospice UK. 4. Offering Hope in Healthcare. Becky McGregor, Physiotherapist Early Mountbatten Hospice. 5. Relationship and Resilience. Pippa Hashemi, Volunteer, St Christopher's Hospice. 6. Total Pain and Diversity. Linda McEnhill, Educationalist, St Joseph's Hospice. 7. Exploring Spiritual Pain through the Arts. Olwen Minford, Psychotherapist, Kings College London. 8. Working with the Tension of Spirituality and Religion, Bob Whorton, Chaplain, Sir Michael Sobell House Hospice. 9. Spirituality and Vocation, Liz Arnold, Nurse, Earl Mountbatten Hospice. 10. Practicing Spiritual Care, Kostas Kontelias, Sally Mercer, Ninon VanDerKroft, Social Workers. 11. Conclusion, Andrew Goodhead and Nigel Hartley.

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Book SynopsisChristopher Kerr is a hospice doctor. All of his patients die. Yet he has tended thousands of patients who, in the face of death, speak of love, meaning and grace. They reveal that there is hope beyond cure as they transition to focus on personal meaning. In this extraordinary and beautiful book, Dr. Kerr shares his patients' stories and his own research pointing to death as not purely the end of life, but as a final passage of humanity and transcendence.Drawing on interviews with over 1,200 patients and more than a decade of quantified data , Dr. Kerr reveals why pre-death dreams and visions are remarkable events that bring comfort and exemplify human resilience. These are not regular dreams. Described as "more real than real," they frequently include loved ones long gone and mark the transition from distress to acceptance. These end-of-life experiences help patients restore meaning, make sense of the dying process and assist in reclaiming it as an experience in which they have a say. They also benefit the bereaved who get relief from seeing their loved ones pass with a sense of calm closure.Beautifully written with astonishing stories, this book, at its heart, celebrates the power to reclaim how we die, while soothing the bereaved who witness their loved ones go with unqualified grace.Trade ReviewThis comforting guide will reassure the dying and their loved ones while providing instructive portraits of end-of-life patients for those who work in medical and healing professions * Publisher's Weekly *Whether you have a loved one nearing the end, or are contemplating what may lie beyond this life, you'll find that Dr Kerr's book brings meaning and even beauty to our final stage. I recommend it highly for anyone with a finite lifespan * Dale Bredesen, MD *Based on deep experience, this loving, emotionally wise book will help many people find the path to love, acceptance and meaning as they face life's end * Katy Butler *This reality is shared with us by a hospice physician who, himself, learned so much from the dying. And what did he learn? That by being truly present with those who are dying, one learns how to live * James Doty, MD *A beautiful portrait of the human capacity for transcendence at the end of life. This book will inspire you reflect on the love and meaning you have experienced in your own life, and help you listen to, and be with, those nearing the end of their lives * Kelly McGonigal, PhD *[A] sympathetic and intriguing book. [Death is But a Dream is] an uplifting and reassuring work testifying to the deep restorative and spiritual - though not necessarily religious - nature of pre-death visions * Kirkus Reviews *

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Book SynopsisBy bridging the gap between conventional medical interventions and complementary approaches using aromatherapy, palliative care nurse and clinical aromatherapist, Carol Rose, demonstrates how an integrated and evidence-based approach can have the most significant impact on quality-of-life in patients with life-limiting illness.Aromatherapy is already a fundamental practice in many palliative care settings but its benefits remain under-researched and under-represented. Each chapter of this book incorporates a person-centred focus to consider the integration of various aromatherapy approaches for a range of end-of-life symptoms, alongside conventional medical options. The specificity of this approach and the emphasis of empowering patients to be involved in the process of choosing oils and applications, allows for improved results in the palliation of common symptoms.Integrating Clinical Aromatherapy in Palliative Care has a foundation in research from the patient's point of view. The result is a fresh perspective that prioritises support of patient choices, skilful communication and individualised care, alongside the judicious use of essential oils and other botanical products. Collectively, aromatherapy can completely reframe holistic care to allow for greater emotional, social and spiritual expression.Trade ReviewThe most authoritative text to date for the specialist aromatherapy world...a detailed, empathetic and dedicated path that stems from a place of rich experience, knowledge and the unwavering determination to keep the patient at the heart of every therapeutic encounter. -- Rhiannon Lewis, International Journal of Clinical AromatherapyCarol Rose carefully constellates within these pages a vital resource of clinical wisdom and compassionate expertise in aromatic palliative care. This labour of love - in terms of both practice and scholarship - is a professional object lesson in contemporary clinical aromatherapy, and will enrich and empower the aromatherapy student and clinical practitioner alike. Unreservedly recommended! -- Gabriel Mojay, Institute of Traditional Herbal Medicine and AromatherapyThis holistic, integrative resource needs to be read by every palliative care clinician. Truly inspiring. -- Jenny Coleman RN, cancer support nurse specialistCarol Rose draws on her extensive clinical experience to create a bridge between research and its applications, while keeping the individual's unique narrative at the core of all aromatherapeutic interventions. This beautifully written book transcends symptom management in the clinical domain, and it is grounded in an uncompromisingly holistic philosophy, evident in the inspiring case studies. This book will empower those experiencing cancer and terminal illness, and also their families, loved ones and caregivers, at all stages of their journey and beyond - but most importantly, Carol Rose's words will touch your heart. -- Jennifer Peace Rhind, writer, author and essential oils consultant

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Book SynopsisIn June 2000 Peter Houghton, a counselor in palliative care, was weeks from death due to cardiomyopathy. He had made his preparations and had said most of his good-byes. Then he was offered the chance to participate in a clinical trial. Six months later he was not only still alive, but planning a long distance walk for charity and writing this book about his experiences.With humor and honesty, his story chronicles the uneven path back from the brink of death. Combining knowledge drawn from his counseling work with other dying people and his unique personal experience, he describes what dying really feels like and explains the physical processes it involves. He also raises profound questions about medical trials and palliative care, and especially about our attitudes to life and death, and the way we approach death.Trade ReviewDrawing upon his extensive professional experience as a counselor in palliative care, Houghton raises many profound questions in each of the areas he discusses, and is not afraid to admit his own previous misconceptions…this is a book that contributes significantly to our knowledge of the natural dying process. -- Journal of Beliefs and ValuesTo me, the strength of the book was about its ability to refocus and question the care provided, as a recipient rather than a provider. This presented me with some thought-provoking questioning and reasoning induced in my own reflective practice. -- British Journal of Occupational TherapyPeter Houghton gives us an education on the process of dying and death itself. He witnesses dying and death from the outside as a counselor in palliative care and observing those who were dying, their death and their carers. He then through his own seemingly terminal illness, experienced the process first hand, to the point of death. Then as a participant in a new clinical trial he was given a return to life.With humour and honesty he relays his own bumpy path on moving towards death and back from the brink, together with his counseling work with other peoples' dying processes. He gives an in-depth picture of the physical deterioration processes of the body and resultant physical pain leading to death, also detailing the medical processes involved. Equally well described is what it feels like: the psychological processes and emotional pain, through the stages of denial, anger and hopelessness to acceptance and transformation. -- Towards WholenessWith great honesty, sensitivity and humor Peter Houghton has chronicled and reflected upon his physical, mental and spiritual journey, which was far from being without set backs and deep self-questioning... This is a deep and challenging book and offers a rewarding read. -- PlusPeter Houghton had been a counselor in palliative care, Then he experienced what appeared to be a mild heart attack but which turned out to be cardiomyopathy, a chronic disorder affecting the muscle of the heart. Although drugs could control his condition to some extent, slowly, imperceptibly, it worsened until he was weeks from death. At the 11th hour, a doctor friend read a notice of a clinical trial of the Jarvik Heart Assist Device for end stage cardiomyopathy patients, which led to a pioneering operation to install a pump to take over the failing left ventricle of Peter's heart. I was eager to read Peter's resulting book because of the probably unique set of experiences he brought to the writing of it. Not only had he no doubt derived many insights from working for many years with dying patients but also he had actually experienced the final stages of dying himself-yet was able to report back on that experience. As someone who has cared for a dying relative and worked as a volunteer in a hospice, I was hoping to learn something from Peter's account. I did indeed learn much from it…Houghton personally is still struggling to make sense of his restored life and the renewal of his relationships. At 60 he doesn't want to return to work, and he never wants to counsel a dying person again. Unsure why, he suggests that it might be because of having seen the things from the perspective of the counseled. That is a particularly salutary reflection to take away from this book -- Human GivensIn On Death, Dying and Not Dying, Peter Houghton tells his own story. A palliative care counselor, he was given weeks to live. This book tells how he prepared for dying, until a new clinical trial gave him his life back. In the midst of this moving tale, there is much useful information. -- Church TimesThis book is appropriate for the general public as well as students and clinicians. The author has a conversational style of writing that is both easy to read and refreshing. The insight he is able to offer is unique. He identifies not only his emotions during subsequent events, but is able to link these to appropriate interventions that clinicians can make.Perhaps the most intriguing feature of this book is the connection the author is able to make with the reader. Although the subject matter is difficult, the style in which the information is presented places appropriate emphasis on the emotional and technical aspects.Although this topic is not new, this is the only book that provides clinicians with an insight into a patients experience while also providing direction for clinical practice. -- Lisa Stepp PhD, RN, APN, AOCN, CRNH (Private Practice)This book was written after his surgery, although it has much more than a simple account of his recovery and subsequent events. As a counselor in palliative care, he has experience and knowledge of death and the dying process; much of the book is taken up his thoughts on the subject, illustrated with various anecdotes. He also describes the actual process of dying, and outlines treatment strategies for symptom control. -- Bulletin of Medical EthicsTable of ContentsPreface. 1. My Own Story. 2. The physical process of dying. 3. The last days and death itself. 4. How Dying People Feel about Death and Dying. 5. Thoughts about life, death and dying. 6. The patient and the clinical trial. 7. Wider implications and the future. Appendix 1: Patient Care - The physician's role, Adrian Banning. Appendix 2. The Operation, Stephen Westaby. Glossary of Medical Terms. Index.

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Book Synopsis`The combined practice area of the contributors to this book include social work, psychotherapy, sociology, counselling psychology, creative writing, nursing, and medicine. Several of the authors have multiple professions, and have come to palliative care later in their careers. Indeed, the combined skill of this group is impressive. Each chapter is unique and each story worthy in its own right. The commonalities are remarkable also. I recommend it to all palliative care professionals, when feeling a little-jaded about what we are doing and being swept along with the winds of changing technology and evidenced based practice, and to other health-care workers who feel an inclination to bring a little humanity to their care'.-Omega Vol 51 (1) 77-86, 2005`This book offers unique way of looking at caring for palliative parents by using the influence of the self. It also offers an opportunity for reflection how our experiences can enrich the experience of patient's faced with the prospect of dying. Professionals who enjoy reading stories will thoroughly enjoy this book.'-International Journal of Palliative Nursing`In a way it is surprising that palliative care has not produced more books like this: collections in which those engaged in the daily work of caring for dying and bereaved people share something of their motivations for entering this particular world, their experiences along the way, and their reasons for staying in or quitting it…Christina Mason was right to embark on this project. She has edited a book that deserves to be widely read.'-Palliative Medicine 2003`This is a delightful book. Although its focus is on professionals working in specialist palliative care, it would be useful for any practitioner wanting to learn more about reflective practice or their motivations for caring.'- Journal of Community NursingThis rich collection of accounts explores the personal and professional experiences of palliative care workers. Contributors from a variety of disciplines associated with care at the end of life - among them social workers, a nurse, a doctor, a counselling psychologist, an academic researcher, a psychotherapist and a creative writing therapist - explain how and why they came to work in palliative care, what they bring to the work and the ways in which it has enriched their own lives.Including descriptive examples of their work with clients and families, they discuss the spiritual needs of patients, how to manage personal boundaries and power relations, the use of narrative and story telling in care work and the impact of working with people who are very ill and grieving on every day life.This thoughtful and positive book presents a variety of experience-based perspectives on working in palliative care. Emphasising the use of self and the importance of reflective practice in professional work, this book will be of relevance to all professionals in medical and social care who want to gain a deeper understanding of their work and of the motivation underlying it.Table of ContentsIntroduction. Christina Mason, St Joseph's Hospice, London.1. Basic Themes. Christina Mason, St Joseph's Hospice, London .2. Medicine and Palliative Care: The bronze serpent. Louis Heyse-Moore, Medical Director, St Joseph's Hospice, London. 3. Early Challenges in Palliative Care from a Social Work Perspective: The gift of serendipity. Julia Franklin, Retired Social Worker and now Supervisor and Consultant to a number of Hospices. 4. On becoming a Practitioner: The view of a psychologist Robin Trewartha, Psychologist and former Probation Officer. 5. Explorations in Creative Writing: `I recharge myself from my experience'. Gillie Bolton, Senior Research Fellow in Medical Humanities, Sheffield University. 6. Learning in Palliative Care: Stories from and for my journey. David Oliviere, Principal Lecturer, Middlesex University. 7. Accompanying the Dying. Lois Pollock, Social Worker, St Christopher's Hospice. 8. The Loss of Children: Thinking the unthinkable. Gordon Riches. 9. Reflections on my Roots and Personal Journey. Christina Mason, St Joseph's Hospice, London. 10. The Nursing Perspective: Pain is the breaking of the shell that encases your understanding. Kevin Yates, Director of Nursing, St Joseph's Hospice, London. 11. Overview. Christina Mason, St Joseph's Hospice, London. Index.

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Book SynopsisSupporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.Trade ReviewA book with practical ideas, supported by references from the literature and the findings of recent research projects. -- Educational Book ReviewThe book will be invaluable to anyone thinking of working in this area and will also service those already established in this field. I highly recommend it. -- Nursing StandardUseful practical help is offered on the support of children and families as they make difficult choices at very stressful times, this will be appreciated by all professionals working in this area... Supporting the Child and the Family in Pediatric Care is a most helpful and accessible book... The multi disciplinary approach would make it a useful tool to all medical, pastoral or support staff. -- Evelyn Cairns, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword. Introduction. Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children's Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements When a Child Dies. 7. The Child's Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children's Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children's Hospices. References. Subject Index. Author Index.

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Book SynopsisDying, Bereavement and the Healing Arts describes a range of successful programmes pioneered by artists, writers, nurses, musicians, therapists, social workers, and chaplains in palliative care settings. These range from simple painting and writing activities to organized communal activities like writing and performing a play.The arts are shown to offer a means to reflect on memories, hopes, fears and anxieties, and gently explore the emotional, spiritual, and psychological issues which can aid a fuller understanding of oneself and one's condition. The arts also serve as a way to communicate difficult and complex feelings to professionals or family members not possible in everyday conversation.Dying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting.Trade ReviewThis book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKBolton's collection serves up national and international sources of inspiration in the healing arts...This text...can be seen not only as offering accounts of the role of creativity in varying context of palliative care, but also as a collation of creative acts in their own right. Poetry, photographs, painting, excerpts from dialogue and profoundly moving reflexive writing are all presented to inspire the reader to consider their own creative responses to the world and their part in it...This book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKThe writing is blunt, the topics heart-wrenching, and the words poignant, addressing issues such as the death of a beloved child, spouse, parent or friend; the pain of illness and treatment; and the helplessness of watching a loved one suffer. Although these are hard topics to consider, it can also be a relief to have difficult subjects acknowledged... DYING BEREAVEMENT AND THE HEALING ARTS reminds readers that creative expression is available to everyone as a means to understanding and growing through life's changes and challenges. -- Journal of the American Art Therapy AssociationGillie Bolton has been an inspirational voice and a practitioner in the involvement which has simulated a wider appreciation of what "makes" health. This volume of twenty essays is a delight - rather like a well-prepared buffet - something to nourish those seeking deeper food for thought and practice. This book will both feed any reader who wishes to be enriched by listening to experience and also find a way to express what is humane in the face of human frailty. -- The Christian ParapsychologistFor anyone curious about how it is that the arts can evoke, enliven, reassure, educate, recount and then enable us to share with others, this is the place to start. -- Bereavement CareEach chapter is very diverse with contributions from patients, survivors, professional healthcare workers and artists. I would recommend this book to all. As healthcare professionals we can never stop trying to understand our fellow human beings hopes and fears. -- Journal of Community NursingDying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting. In my opinion, this is a rare case of something doing exactly what it says on the tin. -- DramatherapyThis is a thought provoking book which invites the reader to consider how art can be healing for the patient, the bereaved and the healthcare professional... The common thread throughout the chapters is how being creative often speaks new leases of life in both patient and those surround her. At the end of the day the book shows how the creative arts have hidden health benefits for patients, the bereaved and healthcare professionals whether that comes from looking at Van Gogh, listening to Bach, writing a poem or moulding some clay. -- Ian Stirling, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword, Baroness Professor Ilora Finlay of Llandaff.Preface Poem: Nest, Penelope Shuttle 1: Introduction: Dying,Bereavement and the Healing Arts, Gillie Bolton. 2: A Death Photographed: Michael Willson's Story, Paul Schatzberger and Gillie Bolton 3: Arts, Electronic Media, Movement: Rosetta Life, Filipa Pereira-Stubbs and Chris Rawlence. 4: Theatre for Professional Development, Ashley Barnes 5: Visual Art for Professional Development, Sandra Bertman 6: Healing Arts in Palliative Care, Christina Mason. 7: Imagination and Health in Cancer Care and Palliative Care, John Graham-Pole 8: Visual Art in Cancer Care and Palliative Care, Anna Lidzey, Michele Angelo Petrone, Julie Sanders and Gillie Bolton 9: Making Music in Children's Hospices, Lesley Schatzberger 10: Healing Writing in Palliative Care, Sheelagh Gallagher, Kate D'Lima, Kaichiro Tamba, Hilary Elfick, with David Head and Gillie Bolton 11: Creating The Tuesday Group: A Palliative Care Play, Bobbie Farsides and Sue Eckstein 12: The Power of Music, Diana Greenman, Frans Meulenberg and Mike White 13: Writing through Bereavement: River Wolton, Haifa Al Sanousi, Amy Kuebelbeck, Judy Clinton and Robert Hamberger 14: A Legacy of Understanding, Monica Suswin 15: Reading to Help Practitioners and Patients, Ted Bowman and Rogan Wolf 16: Artists: Survivors, Tim Jeeves, Mitzi Blennerhassett and Michele Angelo Petrone, Artist 17: Professionals: Artists, Steve Seagull, Tim Metcalf, Oliver Samuel, Kieran Walsh and Christopher Johns 18: Spiritual and Artistic Care: Memorial Services, Mark Cobb and Giles Legood 19: The Art of Care, Yvonne Yi-Wood Mak , Ann Williams, Corine Koppenol and Sinead Donnelly 20: Reflections Towards the Future, Nigel Hartey. List of Contributors. References. Subject Index. Author Index.

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Book SynopsisUse of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care.The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved.This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.Trade Review`The book is a brave and sensible move by Hartley and Payne. Brave, in encouraging more "group think" from professions often in conflict regarding issues of funding or professional boundaries. Sensible, because the common ground for these professions, creativity, has so much to offer palliative care: a book of this kind has long been needed to celebrate and promote the potential of the work these professions do.' -- British Journal of Music Therapy, Julian O'Kelly, day hospice manager and music therapists at the Princess Alice Hospice, Esher, Surrey, UK`This book would be useful to those who are hoping to establish creative arts practices in this field in a range of locations, and would be of particular help to those who may be managing such projects and who fell they have little or no experience or expertise in this field.` -- hospice information bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, ColchesterI highly recommend this book to anyone involved in palliative care: administrators, nurses, social workers, caregivers, families, creative artists, therapists, and students...This book is moving, practical, and inspiring to all those dealing with chronic illness, pain, death, and dying. -- Art TherapyThis book was incredibly informative. It strove to inform, inspire and educate 'artists' to work in palliative care, and gave the tools and strategies to us for success... I recommend this book to any creative arts therapists who wish to work in palliative care, or want to brush up on some strategies for wearing their 'business hats' and increasing their practice hours. -- Canadian Art Therapy Association JournalThis book provides a credible and informative account of the contribution of the creative arts in palliative care. It is an accessible read for those with experience in this field, and will be of interest to people studying therapeutic media beyond standard medical approaches in a palliative care context, as well as those keen to explore and understand more about the life-affirming and life-enhancing potential of creative art. -- Writing in EducationThis book is an invaluable starting point, and hopefully a catalyst for more of the kind, bridging the gap between the paucity of literature and the richness of opportunities that the creative arts offer for personal transformation, increased well-being and social inclusion in palliative care. -- European Journal of Palliative CareThe Creative Arts in Palliative Care is a forward-thinking text which integrates management, treatment and community building aspects of creative arts in palliative care. I highly recommend The Creative Arts in Palliative Care. This book is a must read for artists, therapists, volunteers, managers and directors who specialize in working with patients and caregivers who are facing end of life. -- Nordic Journal of Music TherapyThis book is a valuable resource giving information in a collection of articles that, taken together, support the justification for including creative arts in the services offered to those who are facing the end of life. -- Journal of Palliative CareTable of ContentsAcknowledgements. Part I: Developing Creative Arts in Palliative Care. 1. Introduction - The Creative Arts in Palliative Care. Nigel Hartley and Malcolm Payne, St Christopher's Hospice, London. 2. Managing Creative Arts and Artists in Healthcare Settings. Nigel Hartley. 3. The Palliative Care Community - Using the Arts in Different Settings. Nigel Hartley. 4. Exhibiting, Promoting and Funding the Arts in Healthcare Settings. Nigel Hartley. 5. Research and Audit in Palliative Care Creative Arts. Malcolm Payne. Part II: Experiences of Creative Arts in Palliative Care. 6. Experiences of Creative Arts in Palliative Care - Introduction to Part II. Malcolm Payne. 7. Pottery and Painting. Lynn Harmer, St Christopher's Hospice, London; Greenwich Community College, South London. 8. Craft Work. Adrian Butchers, St Christopher's Hospice, London. 9. Digital Arts. Marion Tasker, St Christopher's Hospice, London. 10. Art Therapy. Samantha Dobbs, St Christopher's Hospice, London. 11. Community Arts. Virginia Hearth, St Christopher's Hospice, London.. 12. Beginning to Work as a Community Artist in Palliative Care. Mick Sands, St Christopher's Hospice, London. 13. Music Therapy in the Community. Tamsin Dives, St Christopher's Hospice, London. 14. Music and Music Therapy at St Christopher's Hospice - An Evaluation Study. Abi Gill, National Society for Epilepsy, Buckinghamshire. 15. Conclusion. Malcolm Payne and Nigel Hartley. Bibliography. Contributors. Suppliers. Subject Index. Author Index.

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Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.

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Book Synopsis*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards*The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction.This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.Trade Review*Highly Commended in the Popular Medicine category of the 2012 BMA Medical Book Awards*'provides thoughtful and evidence based advice and tuition on working with this client group, and a reminder of the importance of seeing a person as a "whole" and not just their condition.' -- College of Occupational Therapy Specialist Section, Older People NewsletterThis is a clever little book in that it carefully balances Eastern philosophy of the body-energy-spirit system of integrative care with evidence-based studies focusing on the effectiveness and benefits of hand massage... Take My Hand is a book that we can all use - practitioners, daughters and sons, husbands and wives, sisters and brothers - to provide those we care for with the gift that is free but most valuable: our comforting touch. -- Dementia UK and Inside Palliative CareWhile massage and yoga may seem a little bit too "alternative" to some readers, these two books make a very good case for their use in care homes. They both put forward simple and unthreatening exercises that can be led by staff at any level. I would recommend starting any such program (massage or yoga) by getting staff to learn and appreciate the techniques by practicing on each other - a good way to begin a team meeting. -- Caring TimesGoldschmidt and van Meines' book will give new hope, direction and skills to those who want to help their fellow human beings as they face some of life's greatest challenges. Caregivers will find practical information on ways to use touch and hand massage to ease the suffering and enhance the quality of life for those who are terminally ill or who have advanced dementia. With its exceptionally clear and straightforward directions (and edifying illustrations) for carrying out the hand massage, this book is a natural for inclusion in long-term care in-service classes. -- Nanette A. Kramer, Ph.D., Clinical Geropsychologist, Brooklyn, New YorkFor family members who wonder 'what can I do?' [this book] offers profound information about a simple yet deeply meaningful way to connect with loved ones who have dementia or are at the end of life. -- Megan Haungs, licensed acupuncturist and massage therapist, and former Dean of the Acupuncture Program at Swedish Institute, College of Health Sciences, New YorkMuch more than a how-to book, Comforting Touch in Dementia and End of Life Care is really an open invitation to the transformative experience of providing simple, conscious touch to loved ones who are in one way or another slipping away from us. Drawing from sources as varied as mindfulness practices, research, Chinese Medicine, and moving personal stories, the authors provide caregivers with a clear path to offering simple hand massage, and to the benefits and profound sense of connection that often result. -- Lucy Liben, Dean of the Massage Therapy Program at Swedish Institute, College of Health Sciences, New YorkIn my work at the nursing home I found that when I used a hand massage it helped residents feel calm and cared for. It was like meditating, or taking a drink of cool water, creating a sense of peace and quiet. We discovered that when we share touch we not only send a message, we also receive one. That's what this approach is all about. -- Hermine Mitchell, certified nursing assistant, St. Alban's, New YorkTable of ContentsAcknowledgements. Part 1. A Sense of Connection. 1. Your Radiant Sea. 2. Sharing the Benefits of Touch. 3. The Body as Particles and Waves. 4. A Tangible Spirit. Part 2. Focusing Your Touch. 5. Physical and Energetic Qualities of the Hand. 6. Before You Begin: Observing Best Practices. 7. Elements of a Session. 8. A Hand Massage Sequence. 9. At a Glance: The Sequence and Reminders. Part 3: The Reality of Practicing. 10. Ten Challenges to Sharing Touch. 11. Adapting for Different Needs. 12. Comforting Touch in End of Life Care. Resources. References. Index.

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Book Synopsis*Highly Commended in the Psychiatry category at the 2012 British Medical Association Book Awards*A near-death experience (NDE) is a phenomenon whereby powerful physical and emotional sensations and visions are experienced by someone who is either close to death or has been declared clinically dead. This is an accessible guide to the theory and evidence underlying the phenomenon of NDEs. With contributions from leading international experts in the field, it provides an overview of the research into NDEs, the nature of NDEs and how they have been experienced around the world, and the physiological, psychological and medical bases of the phenomenon. The book also discusses children's NDEs, NDEs from a religious perspective, the role of light in NDEs, the assessment and management of NDEs, and the future of research into the phenomenon.This essential handbook will provide all those who may encounter someone who has had an NDE with the knowledge and understanding they need, including nurses, doctors, palliative care workers, psychologists, psychiatrists and pastoral workers.Trade Review*Highly Commended in the Psychiatry category of the 2012 BMA Medical Book Awards*'This book is particularly strong on cross-cultural comparisons. It can be warmly recommended.' -- Journal of the Society for Psychical ResearchThis is a truly thought-provoking read. -- The British Journal of Psychiatryit is illustrated throughout by case vignettes from people who have had near-death experiences. This brings the book alive and makes it accessible for non-clinical specialists as well as for those with a more academic interest in the subject. -- The Journal of Health Care ChaplaincyThis book is subtitled "a handbook for clinicians", but it is going to be welcomed by anyone who is seriously interested in the scientific research into NDEs, particularly clergy and those with a pastoral ministry. This is a collection of essays or papers, and this is both a strength and a drawback. For people who wish to look at specific aspects of the research, whether it is to compare NDEs in the East and West, or different cultures, religious affiliations, or those of adults and children, these are topics covered here. -- The SignMaking Sense of Near-Death Experiences is an invaluable resource for clinicians and other health care professionals who need to inform themselves about the nature and profound personal significance of NDEs. Presenting the latest research and clinical findings representing over 30 years of work, leading experts in the field provide a comprehensive and illuminating overview of one of the most important and transformative experiences of modern times, one that has affected many millions of people. For everyone who comes into contact with such people and hopes to help and understand them, this book is a must. -- Kenneth Ring, Ph.D., Professor Emeritus of Psychology at the University of Connecticut, Co-founder and past President of the International Association for Near-Death StudiesUndergraduates, journalists and healthcare providers all point to the need for resources that familiarize and inform about NDEs. Making Sense of Near-Death Experiences offers readers just such a resource. ... [R]eaders will come away from this book with not only an understanding of diverse viewpoints about NDEs but also an awareness of the complexity of the field of near-death studies and an appreciation for the value of continued research in the field. -- From the Foreword by Janice Holden, Editor, Journal of Near Death Studies and Chair, Department of Counseling and Higher Education, University of North Texas, USATable of ContentsForeword by Janice Holden, Editor, Journal of Near Death Studies and Chair, Department of Counseling and Higher Education, University of North Texas, USA. Acknowledgements. Introduction. 1. Near-Death Experiences: An Overview and Early Studies. P.M.H. Atwater, investigative researcher and author. 2. A Critical Review of Epidemiological Studies of Near Death Experiences 2001-2010. Mahendra Perera, University of Melbourne, Australia and Rohan Jayasuriya, University of New South Wales, Australia. 3. Phenomenology of Near-Death Experiences. Karuppiah Jagadheesan and John Belanti, North West Area Mental Health Service, Victoria, Australia. 4. Dealing with Diversity: Cross-Cultural Aspects of Near-Death Experiences. Ornella Corrazza, University of Hertfordshire, UK and K.A.L.A. Kuruppuarachchi, University of Kelaniya, Sri Lanka. 5. Near-Death Experiences of Children. Cherie Sutherland, author, researcher, educator and sociologist. 6. Pathophysiological Aspects of Near-Death Experiences. Pim van Lommel, Hospital Rijnstate, Arnhem, The Netherlands. 7. Psychological Aspects of Near-Death Experiences. Satwant K. Pasricha, National Institute of Mental Health and Neurosciences, Bangalore, India. 8. Light and Near-Death Experiences. Anthony Peake, Giordano Bruno University. 9. Religious Significance of Near-Death Experiences. Paul Badham, University of Wales, UK.10. Assessment and Management of Near-Death Experiences. Peter Fenwick, Institute of Psychiatry, University of London, UK. 11. Prospecting in The Light: The Future of Near-Death Experiences Research. David J. Wilde, University of Manchester, UK and Craig D. Murray, University of Lancaster, UK. Conclusion. Appendices. The Contributors. Index.

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Book SynopsisAs someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.Trade ReviewThis book draws on the rich experience and combined expertise of the authors to offer a resource for all those supporting people on their end of life pathway…[G]lobally we find a remarkable consistency across cultures of what people want when they are dying. They want care which manages distressing symptoms in the most effective way; they want to be treated with compassion, dignity and respect; they want to have the opportunity to set their affairs in order and to be surrounded by those people who are important to them. The implication of meeting those needs, as the core message of this book proclaims, is that end of life care is everybody's business. -- From the Foreword by Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission, UKThis clearly written and comprehensive book will be a valuable source of information and resource for any professional or student interested in improving the practical delivery of end of life care. It describes the methodologies, development and successes of the ground breaking national strategy for End of Life Care launched in England in 2008. The material is brought to life with case studies and best practice examples and reflection is encouraged through the use of 'stop and think' questions. -- Barbara Monroe, Chief Executive, St Christopher's Hospice, UKThis book provides a comprehensive, up-to-date, research-based account of multi-professional practice in end-of-life care from different professional perspectives. Its authoritative knowledge base relies on the work of the National End of Life Care Programme in England's Department of Health over several years. Its strong focus on flexible, holistic quality of care will make it valuable for specialist and general practitioners in hospital and community health and social care services. -- Malcolm Payne, consultant in social work and end-of-life care and author of Social Work in End-of-Life and Palliative CareThis book elegantly captures how the relatively new focus on 'end of life care' provides a conceptual framework with which to think in a different way about meeting these new needs and has led to change on a wide front…Readers can find interesting synopses of interdisciplinary perspectives on death, dying and epidemiological transition, together with up to date advice about best practice in care planning, communication and coordination of services; all set out in a highly accessible manner. In their discussions, the authors do not shy away from delineating new challenges ahead that will require all of us to work together to continue to transform end of life care so that it better meets the needs of all those facing death, whatever their age or diagnosis, and wherever they are cared for. -- Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham, UKTable of ContentsAcknowledgements. 1. The Context and Philosophy of End of Life Care. 2. Discussions as the End of Life Approaches 3. Assessing Need and Planning Care. 4. Co-ordination of Care. 5. Delivery of High Quality Care in Different Settings. 6. Care in the Last Days of Life. 7. Care after Death. 8. Quality End of Life Care for All. References. Index.

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Book SynopsisWhat do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.Trade Review...I was left a little in awe at what these people were managing to do. I was pleased to see Nash's statement that his team's work was not in the interests of some multicultural political correctness, but because they believed their paediatric patients and their families would get better care. This book has got a lot to offer anybody who works in palliative care in a multifaith setting, not just the chaplaincy team. -- Roger Woodruff, International Association for Hospice and Palliative Care NewsletterThe book is full of cultural and religious helps that concern the entire healthcare treatment team from routine care to palliative and end-of-life care...the book is truly a resource for all bedside clinicians, including professional chaplains, nursing, medicine and other therapeutic specialty clinicians, too. Each chapter focuses on care for a child and family from each of the faith traditions. A Buddhist mother's reflection on spiritual and religious care needs during the premature birth of her twins was particularly enlightening and informative. Then in the final chapter, Paul Nash does a nice job of highlighting spiritual assessment tools and setting up spiritual care that is reflective of pathway care. This book will help new chaplains and seasoned chaplains who need a thorough resource and guide for pediatric palliative and end-of-life care, and the care preceding those difficult and trying times. -- George M. Rossi MA MDiv BCC, clinical chaplain, Pastoral Care Services, Medical University of South Carolina * APC Forum, Association of Professional Chaplains *This is a well written book that is easy to refer to when needed and can be used by any level of chaplain or health care professional. Having been a chaplain for several years and worked and specialized in paediatric settings I found this book refreshing, educational and both uplifting and encouraging. I know I will be re-reading it again and again in my work. -- Revd Philip Wright * Health and Social Care Chaplaincy, Issue 4.1 (June) 2016 *Table of ContentsIntroduction. Revd. Paul Nash, Birmingham Children's Hospital, UK. 1. 5 key objectives and values of multifaith care. Paul Nash. 2. Care of a Buddhist child and their family. Keith Munnings, Buddhist Healthcare Chaplaincy Group, UK. Madeleine Parkes, Birmingham and Solihull Mental Health NHS Foundation Trust and Birminghan Children's Hospital, UK. 3. Care of a Christian child and their family. Paul Nash. Madeleine Parkes 4. Care of a Hindu child and their family. Madeleine Parkes. Rakesh Bhatt, Hindu Chaplaincy Services, Paediatric, Acute and Mental Health NHS Foundation Trusts, UK. 5. Care of a Jewish child and their family. Madeleine Parkes. Rabbi Naomi Kalish, NYP Morgan Stanley Children's Hospital, US. 6. Care of a Muslim child and their family. Zamir Hussain, Birmingham Children's Hospital. Madeleine Parkes 7. Care of a Sikh child and their family. Madeleine Parkes. Parkash Sohal, Sikh Chaplaincy Services, Paediatric and Acute NHS Services, West Midlands, UK. Surinder Sidhu, Birmingham Children's Hospital, UK. 8. Spiritual care - Christmas in July for a Hindu family. Revd. Claire Carson, Hospital Chaplain, London, UK. 9. A Buddhist mother's reflections on spiritual and religious care. Kusumavarsa Hart, therapist and writer, West Midlands, UK. 10. Engaging health care and religious care. Paul Nash. Appendix 1. BCH Palliative, End of Life and Bereavement Issues in Religious Care of Children. Appendix 2. Key festivals. Appendix 3. Example of a religious care pathway and care plan.

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Book SynopsisThis is a comprehensive account of the psychology of death and bereavement, which places the subject within the contexts of the major world religions and their associated mourning and funeral customs. Clearly written, well referenced and carefully organized, the book examines the thinking of Freud and Jung and of modern psychiatrists, and also discusses those aspects of death - bereavement visions, euthanasia, grief for a pet and suicide - which are not covered elsewhere.The second edition has enabled the contents to be updated and enlarged. There are five new chapters, including one dealing with the scientific assessment of death: another looks at the psychological insights provided by Shakespeare, whilst a third deals with the beliefs and customs of minority groups - the Bahais, Jehovah's Witnesses, Mormons, Quakers, Spiritualists and Seventh-day Adventists. The text is highly accessible and uses case histories to bridge the gap between theory and experience in an novel and creative way.Table of Contents1 - What is Death? 2 - Western Attitudes to Death. 3 - Reincarnation and Rebirth. 4 - The Cult of The Ancestors. 5 - African and Afro-caribbean beliefs and Customs. 6 - Jewish and Muslim Funeral and Mourning Customs. 7 - The funeral Rites of Christians. 8 - New Religions and new Sects. 9 - The Reburial issue. 10 - Freud, Mourning and Death. 11 - Jung and Self-realization. 12 - Shakespeare, Death and Grief . 13 - Dying, The Last Months . 14 - Caring for The dying. 15 - Bereavement, The Basics. 16 - Bereavement, Medical and Social Issues. 17 - The Death of a Child. 18 - A Child's Response to Death. 19 - Suicide. 20 - Euthanasia and Assisted Suicide. 21 - The Death of a pet. 22 - The Bereaved and the Living Dead. 23 - Near Death Experiences. 24 - The Significance of death.

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Book Synopsis"A searingly honest tale of love, life and death" – Sarah Wootton, Dignity in Dying Die Smiling is a rare and intimate account of one man’s journey to Dignitas in Zurich and his ultimate triumph over suffering and disease. Told with wit and candour, Julie Casson traces her husband Nigel’s extraordinary journey from diagnosis of motor neurone disease to his death.Successful businessman and father of three, Nigel battles the degenerative disease with boundless courage and gritty good humour, until, faced with the unimaginable torture of a slow, living death – his spirit crushed, his body a tomb – he takes control. He decides to go to Dignitas to end his life, while he is still able to die smiling.The family prepares for this enormous logistical and emotional challenge: the gruelling Dignitas process and the eight-hundred-mile road trip to Switzerland. They complete it with pragmatism and humour. Denying the disease its victory and choosing his own cure, Nigel dies happily, in the arms of his wife and children.This is a thought-provoking and deeply moving book, where love, family, dignity and choice conquer adversity. It sits in the heart of the debate on assisted dying and raises questions about the right to put an end to suffering and the right to choose how life should end.'Julie Casson lays bare the devastating human impact of the UK’s ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in DyingContents1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356Trade Review'Julie Casson lays bare the devastating human impact of the UK’s ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in DyingTable of Contents1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356

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Book Synopsis

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