Palliative medicine Books
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£31.12
Scribner Book Company This Is Assisted Dying: A Doctor's Story of
Book Synopsis
£16.00
Hammersmith Health Books Overcoming Self-Harm and Suicidal Thoughts
Book SynopsisA practical guide for parents, teachers, youth workers and others caring for and working with teenagers/young adults who engage in self-harming and have suicidal thoughts - or even attempt suicide. Filled with tips on how to support vulnerable teenagers and increase their self-esteem and resilience, Liz Quish's book: offers a uniquely integrative and holistic approach, focusing on all aspects of well-being: social, emotional and physical outlines the purpose and function of self-harming behaviours and dispels the myths about self-harm while also offering strategies to support a teenager who self-harms offers key insights into suicide risk factors and preventative measures while also providing guidance for those who have lost a loved one through suicide and advice for those supporting a person through a suicide bereavementTable of ContentsUnderstanding self-harm, its purpose and function; Understanding and responding to a suicidal teenager; Appropriate interventions: cognitive behavioural therapy, solution focused therapy and motivational interviewing; Supporting those bereaved by suicide; Parenting a vulnerable teenager; Understanding adolescent development; Importance of diet and nutrition for teenage mental health; Complimentary therapies for supporting teenage mental health
£15.19
Springer International Publishing AG Textbook of Palliative Care
Book SynopsisTextbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care.Table of ContentsApproach and Nature of Palliative Care.- Quality of Life.- Global Aspects of Palliative Care.- Challenges and Future Directions of Palliative Care.- Organization of Palliative Care in Different Parts of the World.- Policies on Palliative Care in Different Parts of the World.- Palliative Care, Towards a New Definition.- Physical, Psychological/Psychiatric, Social and Spiritual Problems and Symptoms.- Pain and Pain Management.- Palliative Management of Breathlessness.- Fatigue.- Edema and Lymphedema.- Gastrointestinal Symptoms: Constipation, Diarrhea, and Intestinal Obstruction.- Gastrointestinal Symptoms: Nausea and Vomiting.- Cachexia/Anorexia and Feeding Difficulties.- Mouth.- Skin Symptoms.- Swallowing Difficulties.- Sleep Difficulties.- Psychological Symptoms.- Delirium and Palliative Care.- Neurological Symptoms.- Genitourinary Symptoms.- End-of-life Symptoms.- Gastroparesis and Cancer-Related Gastroparesis.- Advance Care Planning in Palliative Care.- Prognostication in Palliative Care.- Spirituality in Palliative Care.- Access to Palliative Care.- Integrated Palliative Care: Clinical, Organizational, and Health System Perspectives.- Family Focused Care Span.- Grief and Bereavement.- Rehabilitation in Palliative Care.- Dietetics and Nutrition in Palliative Care.- Mouth Care.- Creative Art Making in Palliative Care.- Music Engagement and Therapeutic Music.- Sexuality and Intimacy.- Interprofessional Practice in Palliative Care.- Generalists and Specialist Palliative Care.- Nursing and Palliative Care.- Self-Care and Palliative Care.- End of Life Care.- Self-management in Palliative Care.- Education and Palliative Care, Overview.- Palliative Care in Rural Settings.- Home Care, Primary Care.- Palliative Care in Residential Settings.- Hospital Care.- Palliative Care in the Intensive Care Unit (ICU).- Volunteers in Palliative Care.- Palliative Care and Cancer.- Palliative Care and Neurodegenerative Diseases.- Palliative Care and Stroke.- Palliative Care in Heart Failure.- Palliative care of Respiratory Disease in Primary Care.- Palliative Care and Liver Diseases.- Palliative Care in Kidney Disease.- Palliative Care and Endocrine Diseases.- Palliative Care in Chronic Illness and Multimorbidity.- Palliative care in dementia.- Dealing with a Wound in Palliative Care.- Pressure Area Management in Palliative care.- End of Life Health Care Experiences of Indigenous People and Ethnic Minorities; the example of Canada.- Palliative Care, Frailty and Older People.- Palliative Care of Pediatric Populations.- Palliative Care and Intellectual Disability.- Palliative Care of Indigenous Peoples and Peoples of Different Ethnicity.- Hypercalcemia of Malignancy.- Thromboembolism and bleeding.- Spinal Cord Compression.- Superior Vena Cava Obstruction.- Acute Cancer Pain Syndromes in Palliative Care Emergencies.- Acute Dyspnoea.- Neutropenic Sepsis.- Seizures.- Tumor Lysis Syndrome.- Suicide and Attempted Suicide.- Transfer to a Preferred Place of Death.- Challenging Family Dynamics.- Delirium as a Palliative Care Emergency.- Distinguishing and Managing Severe Psychological and Psychiatric Distress.- End-Of-Life Decisions.- Sedation and Terminal Sedation.- Nutrition and Hydration in Palliative Care.- Ethics of home-coming.- Request for Assisted Suicide.- Public Health and Epidemiological Research in Palliative Care.- Development and Evaluation of Complex Interventions in Palliative Care.- Mixed Method Research in Palliative Care.- Ethics in Palliative Care Research.- Evidence based Practice in Palliative Care.- New Public Health Approaches to End of Life Care.- A public health approach to integrate palliative care into a country’s health care system: guidance as provided by the WHO.- Measuring Cost-Effectiveness in Palliative Care.- Financial Aspects of Inpatient Palliative Care.- Financial Aspects of Outpatient Palliative Care.- Serious Illness and Out-of-Pocket Spending.
£807.49
Oxford University Press Drugs in Palliative Care
Book SynopsisWhile palliative care has adopted a holistic approach to treatment, medication driven symptom management ostensibly forms the critical aspect of care. Prescribing in palliative care can be extremely complex because the patient may often have comorbidity, or occasionally multimorbidity. The associated polypharmacy further complicates the pharmacological management of symptoms being caused by the palliative condition. This can be daunting for healthcare professionals and can negatively impact upon the effectiveness of care provided.Fully revised and updated, the third edition of Drugs in Palliative Care provides an accessible and succinct overview of the main drugs that are encountered in palliative care clinical practice. The text begins by providing a clinical pharmacology overview and prescribing guidance, then contains over 160 monographs of palliative care drugs, in an easy to access A-Z format.Trade ReviewReview from previous edition I like the handy pocket-size and the drug monographs are organised in an easy-to-use A-Z format. This book would be very useful as a quick reference on any palliative care unit. * IAHPC Newsletter *Table of ContentsDetailed contents Symbols and abbreviations 1: Clinical pharmacology overview 2: Prescribing guidance 3: Drug Monograph A-Z Index
£37.99
Taylor & Francis Ltd (Sales) Life at Home for People with a Dementia
Book SynopsisLife at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships â that is, the diversity of people living with a dementia â enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved. Trade Review‘This is an exciting, innovative and hugely informative book that is not afraid to face up to the symbolism of home and its place in the everyday lives of people with dementia and their families’. - Professor John Keady, The University of Manchester, UK Table of ContentsList of figures; List of tables; Foreword – a poem; Foreword; Acknowledgements; Chapter 1: Introduction; Part One: Understanding Life at Home; Chapter 2: Citizenships: The diversity of people living at home; Chapter 3: Enabling life at home; Chapter 4: Rethinking self-management and dementia; Part Two: Towards Social Justice; Chapter 5: Ethics and care for people with a dementia at home; Chapter 6: Technological enhanced care and citizenship; Chapter 7: Sharing responsibilities; Chapter 8: Care Manifesto; Index
£36.99
Jessica Kingsley Publishers Integrating Clinical Aromatherapy in Palliative
Book SynopsisBy bridging the gap between conventional medical interventions and complementary approaches using aromatherapy, palliative care nurse and clinical aromatherapist, Carol Rose, demonstrates how an integrated and evidence-based approach can have the most significant impact on quality-of-life in patients with life-limiting illness.Aromatherapy is already a fundamental practice in many palliative care settings but its benefits remain under-researched and under-represented. Each chapter of this book incorporates a person-centred focus to consider the integration of various aromatherapy approaches for a range of end-of-life symptoms, alongside conventional medical options. The specificity of this approach and the emphasis of empowering patients to be involved in the process of choosing oils and applications, allows for improved results in the palliation of common symptoms.Integrating Clinical Aromatherapy in Palliative Care has a foundation in research from the patient's point of view. The result is a fresh perspective that prioritises support of patient choices, skilful communication and individualised care, alongside the judicious use of essential oils and other botanical products. Collectively, aromatherapy can completely reframe holistic care to allow for greater emotional, social and spiritual expression.Trade ReviewThe most authoritative text to date for the specialist aromatherapy world...a detailed, empathetic and dedicated path that stems from a place of rich experience, knowledge and the unwavering determination to keep the patient at the heart of every therapeutic encounter. -- Rhiannon Lewis, International Journal of Clinical AromatherapyCarol Rose carefully constellates within these pages a vital resource of clinical wisdom and compassionate expertise in aromatic palliative care. This labour of love - in terms of both practice and scholarship - is a professional object lesson in contemporary clinical aromatherapy, and will enrich and empower the aromatherapy student and clinical practitioner alike. Unreservedly recommended! -- Gabriel Mojay, Institute of Traditional Herbal Medicine and AromatherapyThis holistic, integrative resource needs to be read by every palliative care clinician. Truly inspiring. -- Jenny Coleman RN, cancer support nurse specialistCarol Rose draws on her extensive clinical experience to create a bridge between research and its applications, while keeping the individual's unique narrative at the core of all aromatherapeutic interventions. This beautifully written book transcends symptom management in the clinical domain, and it is grounded in an uncompromisingly holistic philosophy, evident in the inspiring case studies. This book will empower those experiencing cancer and terminal illness, and also their families, loved ones and caregivers, at all stages of their journey and beyond - but most importantly, Carol Rose's words will touch your heart. -- Jennifer Peace Rhind, writer, author and essential oils consultant
£25.64
HarperCollins Publishers With the End in Mind How to Live and Die Well
Book SynopsisTHE SUNDAY TIMES BESTSELLERImpossible to read with dry eyes or an unaltered mindset' Sunday TimesIlluminating and beautiful' Cathy RentzenbrinkWhat if everything you thought you knew about death was wrong?How should we prepare for the facts of dying and saying our goodbyes?And what if understanding death improved your life?By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.Trade Review‘It is incredibly moving, of course, but what it isn’t is miserable. Yes this is a book about death, but it is also a book about joy. There aren’t all that many books that change the way you see the world. This book really might. It will make you want to do a better job of loving and living. It will make you want to be kinder. And it will make you want to cherish every precious moment of your precious life.’Sunday Times ‘Extraordinary and profoundly moving. … Any reader will come away with the wish that they will be cared for at the end by someone with Mannix’s imaginative sympathy and matter-of-fact generosity of perception’Rowan Williams, New Statesman ‘Illuminating and beautiful … I shed a few tears but it’s not gut wrenching and Mannix weaves the light and dark strands of her experience with finesse. It’s essential reading for anyone who will encounter death, and that means all of us.’Cathy Rentzenbrink, The Times ‘I got to the end of Kathryn Mannix’s book with just one thought – I wish I’d been a palliative consultant … A reminder that talking about death is an Act of Love’Greg Wise ‘In the last few years, there has been a crowd of books by doctors, scientists and writers that have sought to show us different, kinder ways of ending: Atul Gawande, Oliver Sacks, Henry Marsh… the list is long. Now Kathryn Mannix joins this distinguished group. Mannix’s aim is to shed a soft, clear light on a subject too often avoided. Mild, tender and conciliatory, I would like her to be my compassionate, wise doctor when I lie dying.’Observer
£8.49
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£28.50
Juggernaut Publication A Good Life
a huge range and FREE tracked UK delivery on ALL orders.
£19.94
Oxford University Press Inc Palliative Care in Emergency Medicine WHAT DO I
Book SynopsisTable of ContentsPreface 1. Primary ED Palliative Care 2. Trajectories and Prognostication 3. Goals of Care Discussions 4. Advance Directives and Advance Care Planning 5. Dyspnea 6. Nausea and Vomiting 7. Cancer Pain 8. Last Hours of Living 9. Non-malignant and chronic pain 10. Devices and Therapies 11. Family Presence During Resuscitation 12. Ventilator Withdrawal 13. Death of a Child 14. Hospice Referral from the ED 15. Hospice Patient in the ED 16. Cultural and Spiritual Considerations 17. Ethical Aspects of Care 18. Global Aspects of Palliative Care 19. Prehospital Palliative Care 20. Models of Care/Implementation of Palliative Care in the ED 21. Palliative Care Consultation in the ED
£39.83
Oxford University Press Cicely Saunders
a huge range and FREE tracked UK delivery on ALL orders.
£52.70
Oxford University Press 50 Pharmacotherapy Studies Every Palliative Practitioner Should Know
Book Synopsis50 Pharmacotherapy Studies Every Palliative Practitioner Should Know is a compilation of key pharmacotherapy studies that form the foundation of evidence-based practice. The studies cover topics including: agitation and delirium, fatigue, nausea and vomiting, pain, anorexia and cachexia, ALS, seizure, dyspnea, anxiety, pruritis, symptom clusters, COPD, cancer, and more. For each study, a concise summary is presented with an emphasis on the results and limitations of the study, and its implications for practice. Brief information on other relevant studies is provided, and an illustrative clinical case offers readers the opportunity to conceptualize findings. As with all books in the 50 Studies series, each study was selected using an objective selection criterion that included citations per year, high levels of evidence, clinical studies and trials, and a 3-stage Delphi review by international experts in the field. This book is a must-read for palliative practitioners, pharmacists, advance practice nurses, and physician assistants, and anyone who wants to learn more about the data behind clinical practice.
£37.04
Oxford University Press Paediatric Intensive Care
Book SynopsisOne in 70 children are admitted to paediatric intensive care (PIC) at some time during childhood. Most paediatric junior doctors will rotate through PIC, and will be involved in organising acute intensive care for critically ill children. The range of children and their illnesses going through PIC is vast, making it a hugely diverse specialty. A critically ill child will end up there regardless of their underlying disease, and as a result consultants in PIC must be true generalists and need to acquire knowledge and skills in all areas of paediatrics, as well as acquiring significant knowledge of anaesthesia and surgery. From setting up the ventilator, to managing low cardiac output, Paediatric Intensive Care gives practical and realistic advice for children''s doctors and nurses in intensive care. Information is presented in easily-accessible ''5 minute chunks'' to enable you to quickly get the answers you need, with extensive cross-referencing ensuring that different aspects of a particular clinical problem are fully covered. With detailed answers to specific problems and expert guidance on how to manage the complex issues faced in PIC, this handbook is an indispensible guide for all those who provide care to sick children.Trade ReviewThis very condensed but detailed handbook describes in its 43 chapters the anatomy, pathophysiology and treatment of conditions necessitating intensive medical care in neonates, infants and children... As the editors write this book is not just for intensivists, but should help also paediatric clinicians. * Inbar Kushnir, Editorial Manager; PER Volume 15 no.2 *Table of ContentsGENERAL INTRODUCTION TO PAEDIATRIC INTENSIVE CARE; ORGAN SYSTEM SUPPORT AND RELATED PRACTICAL PROCEDURES; SPECIFIC SPECIALTIES; COMPASSIONATE AND FAMILY-ORIENTATED CARE
£58.90
Taylor & Francis Ltd Textbook of Palliative Medicine and Supportive
Book SynopsisThis new edition provides the essential clinical guidance both for those embarking upon a career in palliative medicine and for those already established in the field. A team of international experts here distil what every practitioner needs to know into a practical and reliable resource.Trade Review'Many programs are discussed in detail, which enable readers to understand palliative medicine trends throughout the world and have an understanding of impactful strategies that have been helpful to patients, families, and clinicians. The history of the profession is also covered beautifully, invoking pride in how far the profession has advanced over thepast 50 years, starting with the early work of Dame Cicely Saunders.'Leah D Ward, MSN, MA, A-GNP-C, ACHPN (Aspire Health), Doody EnterprisesTable of ContentsList of contributors. The development of hospice and palliative care. Palliative care as a public health issue. Palliative care as a primary care issue. The future of palliative medicine. Palliative care and supportive care. Ethics in the practice of palliative care. Undergraduate education in palliative medicine. Graduate education for nonspecialists. Challenges of research in palliative and supportive medicine. The population: Who are the subjects in palliative medicine research?. Study designs in palliative medicine. Outcome measurement in palliative care. Ethics in palliative care research. Adoption of palliative care: The engineering of organizational change. Principles of measuring the financial outcomes of specialist palliative care programs. Population-based needs assessment for patients and those important to them, such as families. Models of palliative care delivery. Home palliative care. Palliative care unit. Multidimensional patient assessment. Tools for pain and symptom assessment. Quality of life assessment in palliative care. Pathophysiology of chronic pain. Causes and mechanisms of pain in palliative care patients. Opioid analgesics. Assessment and management of opioid side effects. Adjuvant analgesic medications. Alternative routes for systemic opioid delivery. Interventional pain procedures in palliative care. Pain management in pediatrics. Pain in the older adult. Neuropathic pain. Bone cancer pain and skeletal complications. Breakthrough (episodic) pain in cancer patients. Somatic symptoms, symptom clusters, and symptom burden. Pain in patients with alcohol and drug dependence. Cachexia–anorexia syndrome. Nausea/vomiting. Constipation. Jaundice. Malignant bowel obstruction. Endoscopic treatment of digestive symptoms. Mechanism, assessment, and management of fatigue. Breathlessness. Other respiratory symptoms (cough, hiccup, and secretions). Depression/anxiety. Delirium. Sleep disturbances in advanced cancer patients. Counseling in palliative care. Hope in end-of-life care. Dehydration and rehydration. Fever, sweats, and hot flashes. Pruritus. Infections in palliative care. Pediatric palliative wound care: The unique anatomy and physiology of neonatal skin. Mouth care. Fistulas. Assessment and management of lymphedema. Hypercalcemia. Hemorrhage. Spinal cord compression. Clinical features and management of superior vena cava syndrome. Acute pain and management. Suicide. Cancer: Radiotherapy. Chemotherapy, hormonal therapy, targeted agents, and immunotherapy. Integrative medicine in supportive and palliative care. Neurological diseases. End-stage congestive heart failure. Geriatric palliative care. Advanced chronic obstructive pulmonary disease. Other infectious diseases: Malaria, rabies, tuberculosis. Practical resources for palliative care development in countries with limited resources: An IAHPC perspective. Prognostic indicators of survival. Palliative sedation. Staff stress and burnout in palliative care. Spiritual care. Family caregivers and cultural sensitivity. Bereavement. Children of palliative care patients. Neutropenic fever. Side effects of radiation therapy. Cardiac and pulmonary toxicities of treatments. Oral complications of cancer therapies. Dermatologic side effects. Peripheral neuropathy and neurotoxicity. Sex and sexuality. Managing communication challenges with patients and families. Supportive and palliative care for patients with HIV infection. Implantable cardiac devices. Supportive care for patients with advanced chronic kidney disease. Palliative care in the emergency department. Optimal Symptom Management in Hematopoietic Stem Cell Transplantation. The end of therapy: Building the psychosocial and spiritual bridges to survivorship. Rehabilitation in the acute and chronic care setting. Long-term cognitive function. Gonadal functions and reproductive health. Pulmonary rehabilitation. Index.
£210.00
Johns Hopkins University Press The Medical Care of Terminally Ill Patients The
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£56.95
Johns Hopkins University Press The Medical Care of Terminally Ill Patients
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£29.70
Taylor & Francis Ltd Harnessing Hope in Managing Chronic Illness
Book SynopsisHarnessing hope is fundamental to adapting to a chronic illness or palliative illness, and this fascinating book provides a new framework that will enable physiotherapists and other healthcare professionals to engage with patients to create better interactions and outcomes for rehabilitation.Based on extensive research into how patients express their experiences, it identifies those factors that influence how hope can be used to benefit an interaction. It also considers central questions to illustrate how interactions can be psychologically mapped to assess emotions, adjustment, and hope. The book then features practical guidance on how to integrate the idea of hope into therapeutic conversations with patients, fostering acceptance and adaptation to the present, and looking towards the future.This book will interest any practitioner working with patients experiencing chronic pain or palliative illness, as well as students across physiotherapy, occupational therapy, and
£63.04
Taylor & Francis Ltd End of Life Communication
Book SynopsisThis book examines the dialectic between fictional death as depicted in the media and real death as it is experienced in a hospital setting. Using a Terror Management theoretical lens, Davis and Crane explore the intersections of life and death, experience and fiction, to understand the relationship between them. The authors use complementary perspectives to examine what it means when we speak and think of death as it is conceived in cultural media and as it is constructed by and circulates between patients, health professionals, and supportive family members and friends.Layering analysis with evocative narrative and an intimate tone, with characters, plot, and action that reflect the voices and experiences of all project participants, including the authors' own, Davis and Crane reflect on what it means to pass away. Their medical humanities approach bridges health communication, cultural studies, and the arts to inform medical ethics and care.Table of Contents1. A Mortality Tale: Narrative Management of Death 2. Death as Vertigo: The Day Time Stood Still 3. Death as Disequilibrium: Things that Go ‘Bump’ in the Night 4. Death as a Cry for Help: An Unimaginable Prayer 5. Death as a Horrible Other: A Relationship with the Other Side 6. An Ode to Childhood’s Joy: An Antidote to the Hyperreality of Death 7. Death as a Jokester: The Last Laugh 8. Death as a Relationship: Death, Love, and Loss 9. Death as a Lover: Eternal Flame 10. Death as a Weapon: Dying for a Cause 11. Death as a Foe: Waging War on Death 12. Death as a Roommate: Living with Death 13. Death as a Way of Life: Living Death 14. Death as a Threshold: Letting Go Coda
£33.29
Class Publishing Ltd Palliative and End of Life Care for Paramedics
Book SynopsisSo much emphasis in paramedic practice is placed on saving lives, and so how can you provide the best care for patients who are approaching the end of theirs? Knowing when it is appropriate to transfer palliative and end of life patients to hospital can be challenging as there are often many complex factors at stake which can have an impact on both patients and their families. Digging deep into the ethical and clinical aspects of working with palliative patients as a paramedic, this book is the go-to resource to enable you to act within the patient's best interests and provide the most appropriate and effective care. Key features include: Twenty-four case studies covering a range of relevant topics to help apply principles to your own practice Clinical information on symptom control and pain management Written specifically for paramedics, by a range of specialist authors Designated chapters on the role of the paramedic in palliative care, palliative care emergencies and personal resilience Full-colour diagrams throughout. Since the onset of the COVID-19 pandemic, we are all more aware of the importance of patient-centred palliative care; this book is full of tips and techniques to help you feel more confident in ensuring patients not only die 'well' but also live with dignity and comfort.Table of ContentsChapter 1: Death and Dying in Society Chapter 2: Defining Palliative Care Chapter 3: Palliative Care Emergencies Chapter 4: Symptom Management Chapter 5: Enhanced Communication Skills Chapter 6: Care of the Dying patient Chapter 7: Ethics Chapter 8: Professional Resilience Chapter 9: The Paramedic as an End of life Specialist
£35.76
Taylor & Francis Ltd Against Physician Assisted Suicide: A Palliative Care Perspective
Book SynopsisThe majority of doctors and nurses involved in specialist palliative care reject the legalisation of physician assisted suicide (PAS). This book explores the reasons why the healthcare professionals who have the most experience of caring for dying patients should object to a change in the law. Debate about euthanasia and PAS often arises in response to a well publicised tragic case of unrelieved suffering. Such heart rending stories do not reflect the fact that the majority of people dying have a dignified death. There is a marked disparity between medical intuitions and the philosophers' arguments about euthanasia and PAS. It seems that part of the moral constitution of a doctor is a commitment not to intend the death of a patient and to protect them from harm. The perspective of those who are privileged to care for thousands of dying patients and their families should inform the debate about PAS.This book will enable those who are not working within palliative care to gain an insight into the scope of this speciality and to understand why legalisation of PAS should be resisted to maintain and improve care of dying patients.Trade Review'Fitting and timely...particularly useful for those practicing in the U.K. because of the chapter on legislation in the U.K., but it will also be valuable to those practicing in the United States because of its examination of the experience of both Oregon and the Netherlands...a concise overview of the issues as well as a notable starting point for further research...5 Stars' DOODY'S REVIEW SERVICE "A clearly written review, concise but thorough, of the pros and cons of legalising physician-assisted suicide (PAS) in the UK - Anybody who has an interest in the debate about PAS and euthanasia should read this book." IAHPC NEWSLETTERTable of ContentsBackground to the debate. The language of the debate. The problem of unrelieved suffering. Palliative care. Ethical arguments. Legislation in UK. Learning from experience. Physician assisted suicide in Clinical Practice. The patient’s story. Positive approaches to care of the dying.
£29.60
Class Publishing Ltd Enhanced Palliative Care: A handbook for
Book SynopsisSpecifically designed to enhance your knowledge and skills within generalist palliative care, this informative textbook provides a comprehensive overview of the principle areas you may encounter whilst working with adult palliative and end-of-life patients, and their families. The development of the text has been backed by Macmillan Cancer Support and each chapter has been written by a range of specialist and generalist authors. The topics covered include approaches to palliative care and symptom management in a wide range of conditions and populations, with chapters linked to case studies to encourage interactive learning and understanding. Communication skills are also highlighted to help aid confidence when engaging in open and difficult conversations. The text is in line with Scottish Palliative Care Guidelines and the NES Framework for Palliative and End of Life Care. The book may either be used as course reading for relevant training programmes, such as the Enhanced Palliative Care course, as well as by healthcare professionals hoping to develop their skills and practice. It is aimed at anyone involved in management and prescribing within non-specialist palliative care, both in hospitals and in the community, including paramedics, nurses, doctors, pharmacists, and other key health professionals.Trade ReviewPut together by contributors with high hopes and feet firmly on the ground, the Enhanced Palliative Care programme will be an invaluable resource to many and a direct benefit to many, many more who will receive care that has been influenced and improved by it. -- David Clark – Professor Emeritus, University of Glasgow.This manual is packed full of evidence-based wisdom and insight that will prove invaluable to so many people wishing to improve their palliative care practice. -- David Clark – Professor Emeritus, University of Glasgow.
£37.99
Oxford University Press Inc Navigating Life with Amyotrophic Lateral
Book SynopsisTrade Review"This is a marvelous book for patients, families and caregivers dealing with one of the most devastating disorders that we encounter. The Brombergs have a unique perspective on the disease- Dr. Bromberg is internationally recognized expert in the clinical care of patients with ALS and his wife, Diane is a lawyer who has personally dealt with the disease in her family. The book is remarkable in its comprehensive approach. Not only dealing with the scientific, medical, emotional, functional aspects of the progressive weakness, but also about end-of-life decisions, legal concerns, spirituality, intimacy and other issues that are all part of dealing with the ever changing condition. For anyone having to deal with ALS, this book is a tremendous resource that will answer questions, relieve anxieties and give some comfort to all involved." -Richard A. Lewis, MD, Director, Electromyography Laboratory, Professor of Neurology, Cedars-Sinai, Los Angeles, CATable of ContentsAbout the ANN's Neurology NowTM Books Series Lisa M. Shulman, MD Dedication Preface Acknowledgements Chapter 1- Introduction What are the Basic Features of ALS? How it Starts - Patient Stories How to Use this Book Chapter 2 -ALS Origins Why the Name ALS? Is ALS Different from Motor Neuron Disease? Is ALS a New or Old Disease? How Common Is ALS? Who Was Lou Gehrig? Who Else had ALS? Chapter 3 - The Diagnosis of ALS Diagnosis What Features Make the Diagnosis? What Does the Neurologist Look For? What Are the Symptoms and Signs of ALS? Bulbar Difficulties Upper Extremity Difficulties Lower Extremity Difficulties Why So Many Tests? What Are the El Escorial Criteria? What Are "Rule Out" Tests? Why Does it Take So Much Time to Make the Diagnosis? Do I Really Have ALS; What Diseases Mimic ALS? Multifocal Motor Neuropathy with Conduction Block (MMN) Inclusion Body Myositis (IBM) Kennedy Disease Cervical Spondylitic Myelopathy Lumbosacral Spondylitic Radiculopathy Lyme Disease Carpal Tunnel Syndrome Ulnar Neuropathy at the Elbow Should I Get a Second Opinion? How Was the Diagnosis Given and Received? Chapter 4 - Causes of ALS What Causes ALS? Why Do Neurons Die in ALS? Glutamate Excitotoxicity Oxidative Stress Mitochondrial Dysfunction Protein Aggregation Immune Dysfunction Gene Mutations Challenging Facts About ALS Why Do I Have ALS? Environmental factors Clusters Military Service What Is Familial ALS? How Is ALS Passed On? Autosomal Dominant Inheritance Autosomal recessive Inheritance X-linked Inheritance How Many Genes are Associated with Familial ALS? Are There Genes Associated with Frontotemporal Dementia? Are Genetic Causes of ALS and Frontotemporal Lobe Dementia Related? How Do I Know if I Have Familial ALS? Should I Have Genetic Testing for ALS? Should Family Members of Individuals with Familial ALS Have Genetic Testing? Chapter 5 - Motor Progression of ALS How Does ALS Progress? How Is Progression Measured? Muscle Strength Functional Rating Scale How Fast Am I Progressing? Does ALS Ever Get Better? Are There Staging Scales for ALS? Chapter 6 -Non-Motor Features of ALS What Is Frontotemporal Lobe Dementia? What Are the Features of Frontotemporal Lobe Dementia? How Is Frontotemporal Lobe Dementia Diagnosed? Why Is It Important to Diagnose Frontotemporal Lobe Dementia? How Are Symptoms of Frontotemporal Lobe Dementia Treated? What Is Pseudobulbar Affect (PBA)? What Are the Features of Pseudobulbar Affect? How Is Pseudobulbar Affect Diagnosed? Why Is it Important to Diagnose Pseudobulbar Affect? How Is Pseudobulbar Affect Treated? Can ALS Cause Changes in Bowel and Bladder Function? Why Do I Feel so Fatigued? ALS Can be Depressing; How Do I Know if I Am Depressed? Why Have I Noticed Changes to My Skin? Why Do I Have Scaly Skin? Why Do I Sweat so Much? Why Do My Eyes Sting? Why Do I Bite My Cheek? Why Are My Hands or Feet Red, Swollen or Cold? Do I Have to Worry About a Deep Venous Thrombosis (Blood Clot)? Do I Have to Worry About Skin Pressure Sores? Chapter 7 - Treatment of ALS Do I Need a Primary Care Physician? Should I Continue with My Current Medications? Where Can I Get the Most Comprehensive Care? What Happens in a Multidisciplinary ALS Clinic? Neurologist Nurse Speech-language Pathologist Occupational Therapist Physical Therapist Respiratory Therapist Dietitian Social Worker Genetics Counselor Palliative Care and Hospice Pulmonologist Gastroenterologist Psychiatrist Psychologist Orthotist How Often Should I Be Seen in Clinic? Should I Attend a Support Group? What Is Available on the Internet? What Should I Take for My ALS? What About Rilutek or Riluzole? What Else Is Available? What About Stem Cells for ALS? What Can Stem Cells Do? How Are Stem Cells Delivered in ALS? Where Can I Get Stem Cells? What About Dietary Supplements and Alternative Therapies? Will Protein Supplements Build Muscle? Can Creatine Give Me More Strength? Can Chelation Therapy Get Rid of Toxins? Should I Replace My Amalgam (Silver) Dental Fillings? What About Massage and Acupuncture? Can Exercise Improve Strength? If I Don't Exercise Will I Lose Strength Faster? Can Exercise Be Harmful? Chapter 8 - Living with ALS What Will Be My Quality of Life? What Can I Still Do? Can I Travel? Can I Still Have Intimacy? Can I Have a Baby? What Is My Legacy to My Family? Chapter 9 - Nutrition in ALS Why Is Nutrition Important in ALS? Why Do I Lose Weight? What Foods Are Harder or Easier to Swallow? How Much Weight Loss Is Too Much? How Do I Stop Weight Loss? High Calorie Foods Supplements What Is Patient-Caregiver Stress over Food? What if I Can't Maintain My Weight Despite Supplements? How Are Feeding Tubes Placed? Percutaneous Endoscopic Gastrostomy (PEG) Radiologically Inserted Gastrostomy (RIG) Surgically Placed Gastrostomy How Do I Use a Feeding Tube? How Do I Take My Medications if I Have a Feeding Tube? What Can I Expect From a Feeding Tube? Can I Still Eat if I Have a Feeding Tube? Chapter 10 -Breathing and ALS How Does ALS Affect Breathing? How Does the Diaphragm Work? How Will I Know My Breathing Is Affected? What Does High Carbon Dioxide Do? How Is Breathing Measured in Clinic? What Can I Do To Help My Breathing on My Own? What Is Air or Breath Stacking? Stopping Smoking What Will Supplemental Oxygen Do? What Breathing Numbers Concern Doctors? Why Is My Cough Weak? What Is a CoughAssist Device? What Causes My Throat to Tighten and Make It Hard to Breathe? What Happens When My Breathing Becomes Weaker? What Is Non-invasive Ventilation? What Can I Expect with Non-invasive Bi-level Ventilation? What Is Diaphragm Pacing? How Is Progressive Respiratory Failure Managed? What Is Invasive Ventilation? What Can I Expect with Invasive Ventilation? How Do I Make the Choice For or Against Invasive Ventilation? What Does Locked-in Mean? What If I No Longer Want to Continue Invasive Ventilation? Chapter 11 - Communication and ALS How Does ALS Affect Speech? How Can Speech Be Optimized? What Are Low-Tech Speech Aids? Handwriting Alphabet Board What Are Medium-Tech Aids? Speech Amplification Mobile Telephones Digital Tablets What Are High-tech Speech and Writing Aids? Head and Eye Tracking Devices What Is Voice Banking? What Is Brain-Computer Interface Communication? Chapter 12 - Mobility and ALS How Can I Pursue Athletic Activities? How Can I Manage Dressing? Button Hooks Velcro Zippers Loose-Fitting Clothes Shoes How Can I Get On and Off the Toilet? How Can I Get In and Out of the Shower and Tub? Showers Bathtubs How Do I Manage Personal Hygiene? How Do I Manage Brushing My Teeth with Weak Hands? How Can I Turn Over in Bed? Blanket Tent Satin Bed Clothes Bed Handholds How Can I Support My Head and Back? Why Do I Feel Unsteady and Fall? What Can Be Done to Aid Walking? Ankle-foot Arthosis Cane or Walking Stick Walker Lift Chairs Medications for Spasticity What If I Fall and Cannot Get Up - Medical Alert Signaling Systems? What About Wheelchairs? Manual Wheelchairs Power Wheelchairs How Do I Get a Power Wheelchair In/Out of the House and Car? Does Insurance Pay for a Wheelchair? How Do I Order a Wheelchair? What About a Scooter? Why Are Patients Frequently Reluctant to Use Mobility Aids? How Can I Transfer Safely? What Is a Lift? Floor Lifts Ceiling Lifts What About Changes to the Home and Renovations? Can I Still Drive? Chapter 13 - Managing ALS Symptoms How Can I Manage My Saliva? How Can I Manage Thick Phlegm? What Can I Do About Muscle Cramps? How Can I Stop Muscle Twitches (Fasciculations)? How Can I Reduce Leg Stiffness? How Can I Manage Sudden Urges to Urinate? How Do I Manage Constipation? What Are Anticholinergic Side Effects of Medications? How Can I Manage Pain? How Can I Treat Depressed? How Can I Treat Anxiety? How Can I Get Better Sleep? What If I Can't Swallow Pills? Chapter 14 - The Caregiver and ALS Who Provides Care? How Does Providing Care Change with ALS Progression? What Is the Best Way to Offer Help? How Do Patients and Caregiver Manage? How Do Caregivers Manage Changes in Roles? What Can Caregivers Do to Ease the Care Burden? Does Providing Care Affect Caregiver's Health? What Do Caregivers Really Feel? Is Depression Common Amongst Caregivers? How Can a Caregiver Manage Stress? What Are Respites? What Is Bereavement While the Patient Is Alive? Can a Caregiver Have Survivors' Guilt? How Should the Caregiver Prepare for Being Alone? Chapter 15 - Events at the End of ALS How Do People with ALS Die? What if I Want to Continue Living? What if I Can't Make Up My Mind About Ventilation? What if I Don't Want to Continue Living? Do ALS Patients Take Their Own Lives? What Are Palliative Care and Hospice? When Should Hospice Be Considered? How Can Spirituality Help? Chapter 16 - Planning Ahead Who Should I Tell? How and What Should I Tell My Family? What Should I Tell My Children? What Are Medical Directives? Living Will Power Of Attorney for Health Care Do Not Resuscitate Order What Do I Need to Know About Estate Planning? Will Trust Agreement Power of Attorney Lifetime Gift What About Computer Passwords and Safety Deposit Boxes? What About Health Insurance? Medicare Military Veteran Benefits Should I Keep Working? What Is Family and Medical Leave? What Are Other Financial Considerations? Chapter 17 - Research in ALS What Is Going on in ALS Research? How Are Drugs Discovered and Tested? Where Can I Get More Information About Trials? Should I Participate in a Trial? What is Informed Consent? Let Me Try It; What Do I Have to Lose? Chapter 18 - Concluding Thoughts Neurologist's Perspective Caregiver's Perspective Glossary Index
£18.99
The University of Chicago Press And a Time to Die How American Hospitals Shape
Book Synopsis
£23.00
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£105.30
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£15.68
John Wiley and Sons Ltd Monitoring the Critically Ill Patient
Book SynopsisMonitoring the Critically Ill Patient is an invaluable, accessible guide to caring for critically ill patients on the general ward. Now fully updated and improved throughout, this well-established and handy reference guide text assumes no prior knowledge and equips students and newly-qualified staff with the clinical skills and knowledge they need to confidently monitor patients at risk, identify key priorities, and provide prompt and effective care. This new edition includes the followingfive new chapters: Monitoring the critically ill child Monitoring the critically ill pregnant patient Monitoring the patient with infection and related systemic inflammatory response Monitoring a patient receiving a blood transfusion Monitoring pain Trade Review“This would be a helpful guide for nurses working in any acute setting; acute wards, coronary care, critical care outreach or the emergency department. It is also a good introductory tool for critical care nurses explaining the principles of assessment, different types of invasive monitoring and waveforms and so on.” (Nursing Times, 17 October 2012)Table of ContentsForeword vii Preface ix Contributors xi 1 Recognition and Management of the Deteriorating Patient 1 2 Assessment of the Critically Ill Patient 25 3 Monitoring Respiratory Function 39 4 Monitoring Cardiovascular Function 1: ECG Monitoring 91 5 Monitoring Cardiovascular Function 2: Haemodynamic Monitoring 115 6 Monitoring Neurological Function 154 7 Monitoring Renal Function 177 8 Monitoring Gastrointestinal Function 197 9 Monitoring Hepatic Function 209 10 Monitoring Endocrine Function 218 11 Monitoring Nutritional Status 231 12 Monitoring Temperature 244 13 Monitoring Pain 258 14 Monitoring a Patient Receiving a Blood Transfusion 267 15 Monitoring the Patient with Infection and Related Systemic Inflammatory Response 281 16 Monitoring the Critically Ill, Pregnant Patient 302 17 Monitoring the Critically Ill Child 320 18 Monitoring During Transport 336 19 Record Keeping 346 Index 355
£24.65
Simon & Schuster The Art of Dying Well
Book SynopsisThis “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe).“A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explTrade Review“Butler’s factual, no-nonsense tone is surprisingly comforting, as are her stories of how ordinary folks confronted difficult medical decisions… Her thoughtful book belongs on the same shelf as Atul Gawande’s best-selling Being Mortal and Barbara Ehrenreich’s Natural Causes.” —The Washington Post“A roadmap to the end… combines medical, practical, and spiritual guidance.” —Kate Tuttle, The Boston Globe"A commonsense path to define what a 'good' death looks like." —USA Today“An empowering guide that clearly outlines the steps necessary to avoid a chaotic end in an emergency room and to prepare for a beautiful death without fear.” —Shelf Awareness“Straightforward, well-organized, nondepressing… Free of platitudes, Butler’s voice makes the most intimidating of processes—that of dying—come across as approachable. Her reasonable, down-to-earth tone makes for an effective preparatory guide.” —Publishers Weekly“I unwrap new books about end-of-life issues with a certain world-weariness. That changed when I received a copy of Katy Butler’s The Art of Dying Well… For all of us boomers who have wondered how we might apply what we learned from the passing of our parents, and make the process smoother -- and yes, profound -- for our children, here are some really good answers.” —Barbara Peters Smith, Sarasota Herald-Tribune“This book is filled with deep knowledge and many interesting experiences. It is a guide for staying as healthy and happy as possible while aging, and also shows how important it is to be medically informed and know our rights in the communities where we live, in order to stay in charge of our lives and therefore less afraid of the future. Katy Butler has written a very honest book. I just wish I had read it ten years ago. You can do it now!” —Margareta Magnusson, author of The Gentle Art of Swedish Death Cleaning“The Art of Dying Well is a guide to just that: how to face the inevitable in an artful way. Katy Butler has clear eyes and speaks plainly about complicated decisions. This book is chock-full of good ideas.” —Sallie Tisdale, author of Advice for Future Corpses“In plain English and with plenty of true stories to illustrate her advice, Katy Butler provides a brilliant map for living well through old age and getting from the health system what you want and need, while avoiding what you don't. Armed with this superb book, you can take back control of how you live before you die.” —Diane E. Meier, MD, Director, Center to Advance Palliative Care “Katy Butler has given us a much needed GPS for navigating aging and death. The Art of Dying Well is a warm, wise and straightforward guide, hugely helpful to anyone—everyone—who will go through the complex journey to the end of life.” —Ellen Goodman, Founder, The Conversation Project “No, you won’t survive your death, but you can live until the very last moment without the pain and humiliation that inevitably accompany an over-medicalized dying process. Katy Butler shows how, and I am profoundly grateful to her for doing so.” —Barbara Ehrenreich, author of Natural Causes“This is a book to devour, discuss, dog-ear, and then revisit as the years pass. Covering matters medical, practical, financial and spiritual – and, beautifully, their intersection – Katy Butler gives wise counsel for the final decades of our ‘wild and precious’ lives. A crucial addition to the bookshelves of those seeking agency, comfort and meaning, The Art of Dying Well is not only about dying. It’s about living intentionally and in community.” —Lucy Kalanithi, MD, FACP, Clinical Assistant Professor of Medicine, Stanford School of Medicine“The Art of Dying Well is the best guidebook I know of for navigating the later stages of life. Katy Butler’s counsel is simple and practical, but the impact of this book is profound. A remarkable feat.” —Ira Byock, MD, author of Dying Well and The Best Care Possible, Active Emeritus Professor of Medicine, the Geisel School of Medicine at DartmouthPraise for Katy Butler and Knocking on Heaven's Door“This is a book so honest, so insightful and so achingly beautiful that its poetic essence transcends even the anguished story that it tells. Katy Butler’s perceptive intellect has probed deeply, and seen into the many troubling aspects of our nation’s inability to deal with the reality of dying in the 21st century: emotional, spiritual, medical, financial, social, historical and even political. And yet, though such valuable insights are presented with a journalist’s clear eye, they are so skillfully woven into the narrative of her beloved parents’ deaths that every sentence seems to come from the very wellspring of the human spirit that is in her." —Dr. Sherwin B. Nuland, author of How We Die: Reflections of Life's Final Chapter“Knocking on Heaven’s Door is a thoroughly researched and compelling mix of personal narrative and hard-nosed reporting that captures just how flawed care at the end of life has become." —Abraham Verghese, New York Times Book Review“This is some of the most important material I have read in years, and so beautifully written. It is riveting, and even with parents long gone, I found it very hard to put down. ... I am deeply grateful for its truth, wisdom, and gorgeous stories—some heartbreaking, some life-giving, some both at the same time. Butler is an amazing and generous writer. This book will change you, and, I hope, our society." —Anne Lamott, author of Help, Thanks, Wow"Shimmer[s] with grace, lucid intelligence, and solace." —Lindsey Crittenden, Spirituality and Health Magazine"[A] deeply felt book...[Butler] is both thoughtful and passionate about the hard questions she raises — questions that most of us will at some point have to consider. Given our rapidly aging population, the timing of this tough and important book could not be better." —Laurie Hertzel, Minneapolis Star Tribune"This braid of a book...examines the battle between death and the imperatives of modern medicine. Impeccably reported, Knocking on Heaven's Door grapples with how we need to protect our loved ones and ourselves." —More Magazine"A forthright memoir on illness and investigation of how to improve end-of-life scenarios. With candidness and reverence, Butler examines one of the most challenging questions a child may face: how to let a parent die with dignity and integrity. Honest and compassionate..." —Kirkus Reviews“Katy Butler’s science background and her gift for metaphor make her a wonderfully engaging storyteller, even as she depicts one of our saddest but most common experiences: that of a slow death in an American hospital. Knocking on Heaven’s Door is a terrible, beautiful book that offers the information we need to navigate the complicated world of procedure and technology-driven health care.” —Mary Pipher, author of Reviving Ophelia and Seeking Peace: Chronicles of the Worst Buddhist in the World"Katy Butler's new book—brave, frank, poignant, and loving—will encourage the conversation we, as a society, desperately need to have about better ways of dying. From her own closely-examined personal experience, she fearlessly poses the difficult questions that sooner or later will face us all.” —Adam Hochschild, author of King Leopold's Ghost and To End All Wars"This is the most important book you and I can read. It is not just about dying, it is about life, our political and medical system, and how to face and address the profound ethical and personal issues that we encounter as we care for those facing dying and death. [This book's] tenderness, beauty, and heart-breaking honesty matches the stunning data on dying in the West. A splendid and compassionate endeavor." —Joan Halifax, PhD, Founding Abbot, Upaya Institute/Zen Center and Director, Project on Being With Dying: Cultivating Compassion and Fearlessness in the Presence of Death"This beautifully written and well researched book will take you deep into the unexplored heart of aging and medical care in America today. With courage, unrelenting honesty, and deepest compassion, ... Knocking on Heaven’s Door makes it clear that until care of the soul, families, and communities become central to our medical approaches, true quality of care for elders will not be achieved." —Dennis McCullough, author of My Mother, Your Mother: Embracing "Slow Medicine," the Compassionate Approach to Caring"Butler’s advice is neither formulaic nor derived from pamphlets... [it] is useful, and her challenge of our culture of denial about death necessary... Knocking on Heaven’s Door [is] a book those caring for dying parents will want to read and reread. [It] will help those many of us who have tended or will tend dying parents to accept the beauty of our imperfect caregiving." —Suzanne Koven, Boston Globe"Knocking on Heaven's Door is more than just a guide to dying, or a personal story of a difficult death: It is a lyrical meditation on death written with extraordinary beauty and sensitivity." —San Francisco Chronicle"[Knocking on Heaven's Door is] a triumph, distinguished by the beauty of Ms. Butler's prose and her saber-sharp indictment of certain medical habits. [Butler offers an] articulate challenge to the medical profession: to reconsider its reflexive postponement of death long after lifesaving acts cease to be anything but pure brutality." —Abigail Zuger, MD, The New York Times -- Abigail Zuger, MD * New York Times *
£12.99
Large Print Press Being Mortal: Medicine and What Matters in the
Book Synopsis
£22.35
Jessica Kingsley Publishers Music Therapy in Palliative Care: New Voices
Book SynopsisWithin the last decade music therapists have developed their work with people who have life-threatening illnesses and with those who are dying. This book presents some of that work from music therapists working in different approaches, in different countries, showing how valuable the inclusion of music therapy in palliative care has already proved to be.It is important for the dying, or those with terminal illness, that approaches are used which integrate the physical, psychological, social and spiritual dimensions of their being. The contributors to this book emphasize the importance of working not only with the patient but with the ward situation, friends and family members. By offering patients the chance to be creative they become something other than patients - they become expressive beings, and there is an intimacy in music therapy that is important for those who are suffering. Many of the contributors write in their own personal voice, providing a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. Contributors describe their work with both children and adults living with HIV/AIDS, cancer and other chronic degenerative diseases.Trade ReviewMusic therapy is still in the process of establishing its role in the UK palliative care movement. On balance, this publication can only help to inspire more therapists to work in the field, and to communicate their experiences to a wider audience. The personal approach to writing adopted by many of the authors is both highly accessible and absorbing. With this publication the voice of music therapy speaks clearly, providing a highly recommended account of this exciting and challenging area of work. -- British Journal of Music TherapyIn this pioneering book, David Aldridge presents chapters by an international range of music therapists who have extended the field to include work with patients suffering from the final stages of life-limiting illness. The result is an attractive volume that charts a fresh and innovative approach to problems faced by palliative care patients which will appeal to health care professionals as well as music therapists…I woud highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It offers a well-referenced, accessible and sensitively written contribution to the field. -- European Journal of Palliative CareThis book brings together the first published volume of many music therapists working with different approaches in different countries. It provides an extremely comprehensive insight into the approaches used by music therapists working within a variety of palliative care settings and a diversity of client groups and life-threatening conditions. The text is supplemented by very moving case studies. The book indicates clearly the power of music, its effect and the associations we hold with music throughout our lives. It is a multidimensional medium which has tremendous impact on our past, present and future lives. It provides a therapeutic tool within palliative care which by its varying dimensions has a potential value for individuals who are struggling with their present life-threatening or life-limiting circumstance. It is an essential read for anyone wishing to discover the potential value of music therapy within palliative care. -- British Journal of Occupational Therapy`Here is a book for the therapist, musician or student seeking a broard perspective on the practical application of music therapy. It is written by a range of practioners working in a variety of settings, each bringing a new vision to the interested reader. All aspects of music therapy are here represented, icluding listening, performance, composition (music and words) and milieu. Examples abound of different approaches to this most personal of therapeutic strategies - whether to complement pain relief, to provide an enjoyable undertaking for patients to join with each other and with their families and friends or as a diversionary activity. The thought provoking methods described from the practioner's view allow the reader to sit on sessions of music-making with patients turned musicians in a most exciting manner. It is this readability which will encourage the non-music therapist and non-therapist musician. Here are clear descriptions of successful methods in listening to music, in performning and composing with children and with older people. Lively imprtomptu 'jam' sessions are explored, carefully recalling instrumentation's and levels of musical expertise. Planned programmes of considerable complexity are described, allowing the reader to develop an understanding of the processes involved. A patient who wants me to compile a tape of his favourite music as a parting gift for his family, or the woman who has written words for a song but needs some help in composing a special tune. These cameos of practice are well presented and organised into a readable collection. They offer sufficient detail to encourage the well endowed music therapist while having sufficent non-technical material to allow access to the less musically inclined reder. This book is well referenced, offering a clear path to follow for those wishing to learn more. The subject and author indexes allow access to any vaguely recalled part of the book. -- RostrumI would highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It is slim (160 pages), well-written and highly readable, even to those who have no previous experience in the field. -- Marie Curie NewsThis book explores music therapy's enhancement of palliative care - giving voice to nine currently unpublished Music Therapists. The writers work in many settings - hospices, hospitals, paediatric oncology wards, AIDS support centres - in diverse countries throughout the world. But this diversity blends into a harmonious and inspiring book. -- Grief MattersThis book presents clinical writing from music therapists working using different approaches in various countries. It introduces the reader to different aspects of music therapy. The book contains in-depth case discussions rather than quantitative research analysis… Although entitled Palliative Care the book covers a wide spectrum of cancer stages, degenerative illnesses, HIV/AIDS, as well as, working with children and adults. The book illustrates the different areas where Music Therapy could work as part of a multi-disciplinary team. -- Irish Social WorkerThe contributors seek to emphasise the importance of working not only with the patient but with the ward situation, friends and family members; many write in their own personal voice, offering a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. -- Progress in Palliative CareTable of ContentsIntroduction, David Aldridge. 1. Music Therapy and the Creative Act, David Aldridge, Chair of Qualitative Research in Medicine, University of Witten/Herdecke, Germany. 2. Music Therapy as Milieu in the Hospice and Paediatric Oncology Ward, Tryge Aasgaard, Asistant Professor, Oslo College; Music Therapist, Ullevl, The National Hospital, Hospice Louisenberg, Oslo, Norway. 3. Lyrical Themes in Songs Written by Palliative Care Patients, Clare O'Callaghan. 4. Creativity and Communication Aspects of Music Therapy in a Children's Hospital, Beth Dun, Senior Music Therapist, Royal Children's Hospital, Melbourne. 5. Music Therapy at the End of Life: Searching for the Rite of Passage, Bridget Hogan. 6. Music Therapy in Chronic Degenerative Illness: Reflecting the Dynamic Sense of Self, Wendy Magee. 7. Music: A Means of Comfort, Susan Weber, Music Therapist, Johannes Hospiz der Barmherzigen, Munich; Lecturer in Music Therapy, Ludwigs Maximilian University, Munich. 8. Music Therapists' Personal Reflections on Working with Those Who Are Living with HIV/AIDS: `Almost the Definition of God', Nigel Hartley, Senior Music Therapist, Sir Michael Sobell House; London Lighthouse; Nordoff Robbins Centre, London. 9. Music Therapy with HIV Positive and AIDS Patients, Lutz Neugebauer. 10. The Implications of Melodic Expression for Music Therapy with a Breast Cancer Patient, Gudrun Aldridge, Lecturer, University of Witten/Herdecke, Germany. 11. Writing and Therapy: Into a New Tongue, Rob Finlayson.
£31.87
Springer-Verlag Berlin and Heidelberg GmbH & Co. KG Palliative Care: Praxis, Weiterbildung, Studium
Book SynopsisMenschen in ihrer letzten Lebensphase begleitenAlle beruflich Pflegenden und ehrenamtlich Begleitenden von schwerstkranken und sterbenden Menschen und deren Zugehörigen finden in diesem Buch die notwendigen Kenntnisse zu Themen und Fragestellungen rund um Sterben, Tod und Trauer: Prophylaxen, Therapien, Schmerzlinderung Kommunikation und Ethik Psychosoziale Betreuung Gesetzliche Grundlagen und Hinweise zur Finanzierung durch die Krankenkassen Besondere Situationen bei Kindern, Menschen im Wachkoma, mit geistigen Behinderungen und Demenz Psychosoziale Begleitung von Sterbenden und ihren Angehörigen Palliative Sedierung Besonderheiten im Sterben von Männern Palliative Care für Menschen am Rande der Gesellschaft Vom Wunsch zu Sterben und der Verantwortung der Betreuenden Suizidassistenz Existenzielle Verzweiflung Haltung im palliativen Kontext Akupressur, Hypnotherapie, Musiktherapie, Kunsttherapie, Trauer Die 7. Auflage ist komplett überarbeitet und aktualisiert.Table of ContentsSektion I – Grundlagen: Geschichte, Selbstverständnis und Zukunftsstrategien von Palliative Care. - Grundlagen -Sektion II - Der sterbende Mensch und seine Angehörigen: Wenn nichts mehr zu machen ist.- Psychosoziale Begleitung.- Biographisches Arbeiten.- Vorsorgende Verfügungen.- Ethische Entscheidungen am Lebensende.- Sterbenden Menschen begegnen.- Sektion III - Netzwerk Palliative Care: Organisationsformen.- Qualitätsmanagement.- Multidisziplinäres Arbeiten im Team.- Selbstpflege.- Sektion IV - Palliative Pflege und komplementäre Therapien: Grundlagen und Besonderheiten der Pflege.- Symptomlinderung.- Palliative Pflege bei Kindern.- Neuro-Palliative Care.- Demenz und Palliative Care.- PC bei Menschen im Wachkoma.- PC bei Menschen mit geistiger Behinderungen.- PC für Menschen am Rande der Gesellschaft.- Sektion V – Trauer: Abschiedsrituale.- Umgang mit Verstorbenen.- Bestattung.- Das Wesen der Trauer.- Das Undenkbare denken lernen.
£44.99
Oxford University Press Care of the Imminently Dying
Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice
£49.21
Oxford University Press 50 Studies Every Palliative Care Doctor Should Know Fifty Studies Every Doctor Should Know
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£68.01
Oxford University Press Dignity Therapy
Trade ReviewThis is truly a remarkable book - it simultaneously brings together the best we know of the science of palliative care with the essence and best of compassionate care. * Jimmie C. Holland, Memorial Sloan-Kettering Cancer Centre *For all health professionals who find themselves struggling to help patients face the complex process of dying, this book is both a detailed roadmap and an extraordinary guide that dispels the myth that 'there is nothing else they can do.' Most importantly, the book sets a high standard for creating an environment that enables patients' exploration of personhood and suffering and enhances their dignity in the final days of their lives. * Kathleen M. Foley, Memorial Sloan-Kettering Cancer Centre *[This book] gives us all clear guidance to help our patients and their families to make meaning of their lives in a consistent and standardized manner. Because it will help us to better help our patients and their families, his work is a gift to palliative care clinicians everywhere. * Diane E. Meier, Director, Hertzberg Palliative Care Institute and Mount Sinai School of Medicine *Dignity Therapy is a rich blend of a deep understanding of the existential concerns of the seriously ill and dying, and an incredibly practical resource for clinicians. * Betty Ferrell, City of Hope Medical Centre *This is not your usual medical text - it is written with profound sensitivity, humanity, and wisdom that is both inspiring and practical. * Nathan I. Cherny, Shaare Zedek Medical Centre, Israel *In this elegant book, Harvey Chochinov shows how the interrelatedness of one human being with another affects an individual's intrinsic sense of dignity, and he examines the implications of this on the care environment. Every palliative care service will find this book enriching and will look with refreshed eyes on the work of providing care to others. * Baroness Ilora Finlay of Llandaff, Cardiff University, and Member, House of Lords, UK *[It] offers unique insight into the process of psychological dying and the opportunity for growth. I recommend it to anyone who is working in the helping professions and has the unique opportunity to be present as individuals create their own last chapter. * J. Donald Schumacher, National Hospice and Palliative Care Organization *This book is valuable to clinicians from all settings and fields, those involved in medical and nursing education, and those undertaking research to improve patient and family experience and care. * Irene J. Higginson, King's College, London *Dr. Chochinov's Dignity Therapy provides a practical way to implement one of the essential elements of any healthcare system and any relationship between a clinician or caregiver and patient who is seriously ill honouring the dignity of each and every individual. His book provides practical, evidence-based, yet sacred, interventions that allow for healing in the midst of suffering. * Christina M. Puchalski, The George Washington University School of Medicine and Health Sciences *Whether you are a professional who, like me, works in palliative care or in another setting, I recommend Chochinov's book as one to put on your reading list for the coming year. sDignity Therapy is an engaging read distinguished by its depth of insight and vibrant perspective. sDignity Therapy: Final Words for Final Days is a comprehensive, well-written, and engaging book, which provides a clear background and implementation guide for Dignity Therapy. It would probably be most useful for palliative care and hospice providers and for those of us in palliative care who are in a position to either implement or advocate for the implementation of a Dignity Therapy program. * Mercedes Pacheco, Journal of Palliative Medicine *What I like about it particularly is that it presents a subtle and powerful argument against euthanasia without in any way being overtly religious. * Francis Phillips, Catholic Herald d *Table of ContentsChapter 1: Dignity and the End of Life ; Why Study Dignity? ; Dignity and Empirical Research ; The Model of Dignity in the Terminally Ill ; Illness-Related Concerns ; - Level of Independence ; - Symptom Distress ; Dignity-Conserving Repertoire ; - Dignity-Conserving Perspectives ; - Dignity-Conserving Practices ; Social Dignity Inventory ; - Privacy Boundaries ; - Social Support ; - Care Tenor ; - Burden to Others ; - Aftermath Concerns ; References ; Chapter 2: Moving Dignity into Care ; How the Dignity Model Informs Dignity Therapy ; - Form ; - Tone ; - Content ; Dignity Therapy Revealed ; The First Clinical Trial is Published ; What about Families? ; Gold Standard Evidence ; Time to Move On ; References ; Chapter 3: Introducing Dignity Therapy to Patients and Families ; Patient Selection for Dignity Therapy ; Who Should Not Take Part in Dignity Therapy? ; Chapter 4: Doing Dignity Therapy ; Setting up the Dignity Therapy Session ; The Role of the Dignity Therapist ; References ; Chapter 5: The Generativity Document ; The Rationale for Editing Dignity Therapy Transcripts ; Transcribing the Audio-Recorded Interview ; Editing the Verbatim Transcript ; - Cleaning Up the Transcript ; - Clarifying the Transcript ; - Finding a Suitable Ending ; - The Patient Has the Final Say ; Chapter 6. From Start to Finish ; Chapter 7. Moving Forward
£76.00
Oxford University Press The Weeping Willow
Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased
£33.40
Oxford University Press The Syringe Driver
Book SynopsisThe syringe driver is a simple and cost-effective method of delivering a continuous subcutaneous infusion (CSCI). A CSCI provides a safe and effective way of drug administration and can be used to maintain symptom control in patients who are no longer able to take oral medication. There have been several developments in this field since the third edition of this highly successful book. The text in this edition has been completely revised, incorporating new treatment options and an extensive list of new compatibility data. This book serves as a valuable reference source, providing comprehensive review of syringe driver use and administration of drugs by CSCI. The first chapter provides an overview of syringe drivers and CSCIs, including a useful array of frequently asked questions. The second chapter provides information about the chemistry of drug incompatibility and degradation. The third chapter comprises revised and referenced information relating to most drugs likely to be administTrade ReviewAndrew Dickman and Jennifer Schneider [have] produced a well-written, well-referenced, and efficient treatment of the modern syringe driver for subcutaneous infusions as used in palliative care. Importantly and distinctively, the authors combined laboratory data with clinical observations to produce both a useable and practical text. This book serves well as a reference for any medical professional who commonly or uncommonly interacts with, orders, or adjusts syringe drivers with drugs for CSCI, even if not for use in palliative care. * R. Ryan Field, Anesthesia & Analgesia *... an important addition to the bookshelf of any palliative care clinician, nursing or medical, whose patients require continuous subcutaneous infusion. * John Haberecht, Director of Learning & Development, Centre for Palliative Care Research and Education *This book should be available in any hospice or palliative care service where CSCIs are used, which probably means nearly all of them. * IAHPC, Roger Woodruff *Table of ContentsLIST OF ABBREVIATIONS
£58.12
Oxford University Press Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care Oxford American Handbooks in Medicine
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£66.50
Oxford University Press, USA Care of the Dying
Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet
£60.10
Oxford University Press Individual MeaningCentered Psychotherapy for Patients with Advanced Cancer
Book SynopsisThe importance of spiritual well-being and the role of meaning in moderating depression, hopelessness and desire for death in terminally-ill cancer and AIDS patients has been well-supported by research, and has led many palliative clinicians to look beyond the role of antidepressant treatment in this population. Clinicians are focusing on the development of non-pharmacologic interventions that can address issues such as hopelessness, loss of meaning, and spiritual well-being in patients with advanced cancer at the end of life. This effort led to an exploration and analysis of the work of Viktor Frankl and his concepts of logotherapy, or meaning-based psychotherapy. While Frankl''s logotherapy was not designed for the treatment of patients with life-threatening illnesses, his concepts of meaning and spirituality have inspired applications in psychotherapeutic work with advanced cancer patients, many of whom seek guidance and help in dealing with issues of sustaining meaning, hope, and uTrade ReviewThis is a priceless resource for those working with patients with advanced cancer and other terminal illnesses. It expertly applies scientifically validated existential treatments in an accessible workbook format for busy practicing clinicians... Unlike so much literature on existential psychotherapy with its grand theories, this book shows how to work with dying patients step by step. Readers will be rewarded with a new-found confidence when working with dying patients... 5 stars! * Doody's Notes *Few would argue with the importance of helping patients sustain a sense of meaning, particularly in the last months of life as they confront death... Well, that's what these little treatment manuals are all about. A carefully developed and structured 8-week psychotherapeutic intervention, for individuals or groups, shown to be of benefit in randomized clinical trials... I was impressed by the potential value of these interventions. In the palliative care setting they could be facilitated by experienced nurses, social workers, counsellors, and pastoral care workers as well as physicians. * IAHPC News *Table of ContentsIntroduction: Treatment Overview ; a. General Guidelines ; b. Intervention Purpose and Goals ; c. Intervention Overview ; d. How to Use the Manual ; 1. Session 1. Concepts & Sources of Meaning: Introductions and Meaning ; 2. Session 2. Cancer & Meaning: Identity Before and After Cancer Diagnosis ; 3. Session 3. Historical Sources of Meaning: Life as Legacy that has been given [past] and Life as Legacy that one lives [present] and gives [future] ; 4. Session 4. Attitudinal Sources of Meaning: Encountering Life's Limitations ; 5. Session 5. Creative Sources of Meaning: 'Creativity, Courage & Responsibility ; 6. Session 6. Experiential Sources of Meaning: Connecting with Life ; 7. Session 7. Transitions: Reflection & Hopes for Future ; References ; Handouts ; Exercises ; Homework
£52.18
Oxford University Press Listening to Pain A Clinicians Guide to Improving Pain Management Through Better Communication
Book SynopsisIn this groundbreaking book, Dr. Fishman shows how communicating better with patients about their pain can help physicians create safer and more effective treatment strategies. Listening to Pain offers physicians a wealth of practical guidance about asking the right questions and assessing patient responses, including:-What questions to ask pain patients when they first present with pain-Using functional goals as outcome measures-Educating patients about the risks and benefits of treatment-Documenting patient consent and compliance with treatment regimens-How to manage difficult patientsTrade Review"This well-written book drives home the concepts that communication between physicians and pain patients is absolutely crucial and how necessary it is to adequately monitor these patients and maintain appropriate records. 100 - 5 Stars!" -- DOODY'STable of ContentsIntroduction: The Healing Art of Communication ; Chapter 1: Asking the Right Questions ; Step 1: Slow Down ; Step 2: Focus on the Whole Patient, Not Just the Pain ; Step 3: Use Reflective Listening Skills ; The Importance of Taking a Comprehensive ; History ; Focusing on Function ; The Balancing Act of Compassion and Vigilance ; Chapter 2: Focusing on Function ; The Myth of Zero Pain ; A Different Approach ; Monitoring Functional Changes ; 'Universal Precautions' in Pain Management ; Chapter 3: Keeping Track of Treatment ; Why Documentation is a Doctor's (and Patient's) Best Friend ; Elements of Effective Documentation ; Assessment ; Patient Education About Risks and Benefits of Therapy ; Physician-Patient Treatment Agreements ; Monitoring Functional Progress, Adherence, and Adverse Events ; Modifying Treatments Over Time ; Chapter 4: Dealing With Difficult Patients ; The Sources of Aberrant Behaviors ; Managing Aberrant Patient Behavior ; Coping With Specific Aberrant Behaviors ; Terminating a Relationship ; The Rewards of Perseverance ; Chapter 5: Clinician Survival ; Appendix: Resources for Pain Management ; Acknowledgments ; About the Author
£25.99
Oxford University Press Nature of Clinical Medicine
Book SynopsisClinical medicine, as a thinking discipline, is concerned not only with what clinicians do, but why. When physicians act in medicine they have some purpose or goal in mind. What they actually do and how they go about it is in the service of their purposes and their goals. Such goals cover a wide range of topics centering on patients, the doctor-patient relationship, the acts of doctoring patients, and the goals involved in being a physician among other physicians working within the institutions of medicine.The Nature of Clinical Medicine takes its direction from a catalog of goals of medicine that range from the expected diagnosis and treatment of diseases to wider concerns for patients, for physicians, and for medicine itself. The chapters are specific in teaching the kinds of knowledge that clinicians require in order to be able to achieve these goals. The central focus of the clinician and of this book is the patient. According to Eric Cassell, everything else, including the diseaseTrade ReviewReading Eric Cassells latest contribution to the medical humanities The Nature of Clinical Medicine is like sipping a fine glass of claret. It requires slow savoring in order to benefit fully from the insights that Dr. Cassell has distilled over a professional lifetime of clinical practice and careful reflection. Cassells book is full of deep insights and human wisdom borne from his rewarding career of treating and caring deeply for patients. * Hillel D. Braune, Theoretical Medicine and Bioethics, Vol. 36, No. 2 (2015) *Table of ContentsAcknowledgments ; Introduction ; Chapter 1. The Goals of Medicine ; Chapter 2. A Story about a Patient with Aortic Stenosis ; Chapter 3. What are Facts in Medicine? ; Chapter 4. Clarify the Chain of Events that Led to the Present State: The Case as a Narrative ; Chapter 5. The Case of Myra Manner ; Chapter 6. Examine Your Presuppositions and Preconceptions ; Chapter 7. Separate and Examine the Values at Issue ; Chapter 8. A Question of Judgment ; Chapter 9. The Patient, the Doctor, And the Relationship ; Chapter 10. Observation, Prognosis, and Prognosticating ; Chapter 11. Thinking in Medicine ; Chapter 12. Accepting the Challenge
£59.11
Cambridge University Press Handbook of Advanced Cancer Care
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£98.99
Cambridge University Press EndofLife Care and Pragmatic Decision Making
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£71.24
Cambridge University Press EndOfLife Care and Pragmatic Decision Making
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£29.46
Cambridge University Press Palliative Neurology
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£79.99
Boone Publishing, LLC Fixing You Neck Pain and Headaches
£15.98
People with Passion Publishing CONVERSATIONS ABOUT DEATH A Practical Guide to Talking about EndofLife Care and Dying
£16.95
Taylor & Francis Rising to the Challenge of Life After Cancer
Book SynopsisRising to the Challenge of Life After Cancer: Expert Advice for Finding Wellness is an easy-to-read self-help guide for people facing cancer diagnosis and treatment. Following an effective Q&A format and based on a unique Wellbeing Essentials framework, it offers a valuable âdip in and outâ approach with signposting to evidence-based guidance on major challenges that those diagnosed with cancer and their family and friends may face. If you or someone close to you has had a cancer diagnosis, then this book is for you.With a focus on wellness and taking control, questions addressed include âIs there a best way to cope with cancer?â, âWhat strategies can help me make an informed decision about treatment?â, âWhat is prehabilitation and how can this help me?â, and âWho am I now?â. The book covers an array of essential guidance from maintaining social health and wellbeing, to accessing care and support in the community. It is written for both those living with or beyond canc
£19.99
