Palliative medicine Books
HarperCollins Publishers With the End in Mind How to Live and Die Well
Book SynopsisTHE SUNDAY TIMES BESTSELLERImpossible to read with dry eyes or an unaltered mindset' Sunday TimesIlluminating and beautiful' Cathy RentzenbrinkWhat if everything you thought you knew about death was wrong?How should we prepare for the facts of dying and saying our goodbyes?And what if understanding death improved your life?By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.Trade Review‘It is incredibly moving, of course, but what it isn’t is miserable. Yes this is a book about death, but it is also a book about joy. There aren’t all that many books that change the way you see the world. This book really might. It will make you want to do a better job of loving and living. It will make you want to be kinder. And it will make you want to cherish every precious moment of your precious life.’Sunday Times ‘Extraordinary and profoundly moving. … Any reader will come away with the wish that they will be cared for at the end by someone with Mannix’s imaginative sympathy and matter-of-fact generosity of perception’Rowan Williams, New Statesman ‘Illuminating and beautiful … I shed a few tears but it’s not gut wrenching and Mannix weaves the light and dark strands of her experience with finesse. It’s essential reading for anyone who will encounter death, and that means all of us.’Cathy Rentzenbrink, The Times ‘I got to the end of Kathryn Mannix’s book with just one thought – I wish I’d been a palliative consultant … A reminder that talking about death is an Act of Love’Greg Wise ‘In the last few years, there has been a crowd of books by doctors, scientists and writers that have sought to show us different, kinder ways of ending: Atul Gawande, Oliver Sacks, Henry Marsh… the list is long. Now Kathryn Mannix joins this distinguished group. Mannix’s aim is to shed a soft, clear light on a subject too often avoided. Mild, tender and conciliatory, I would like her to be my compassionate, wise doctor when I lie dying.’Observer
£7.99
Springer Publishing Co Inc Handbook of Perinatal and Neonatal Palliative
Book SynopsisThe first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care.Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings.Other chapters focus on the prenat
£53.09
Oxford University Press Oxford Handbook of Oncology 4e Flexicover Oxford
Book SynopsisNow fully revised and in its fourth edition, the Oxford Handbook of Oncology has been the essential go-to guide for students and practitioners in oncology for over a decade. The scientific basis and diagnosis of cancers is covered, as well as drugs, biomarkers, and the presentation and psychosocial aspects of oncology. Concise, practical, and comprehensive, there is no better companion for both common conditions and challenging emergencies.The field of oncology has surged forward since the last edition was published and the Oxford Handbook of Oncology has been fully revised and updated to reflect these recent advances so you can be sure that the vital information you need is in your hands. This handbook incorporates changes such as the understanding of the science of cancer, novel therapies in breast, lung, renal, and melanoma, molecular sub-classification of common solid cancers, personalized therapy approaches, new agents in hard to treat cancers, the benefits of new technologies in Trade ReviewWritten by experts in the field to ensure that it is grounded in real life clinical practice, this Handbook provides a concise guide to all aspects of oncology for all students, nurses, and junior faculty responsible for the care of cancer patients, while also providing further reading and highlighting areas of controversy for those who need a more detailed understanding. * Anticancer Research *Table of Contents1. Multidisciplinary approach to cancer ; 2. Aetiology and epidemiology ; 3. Genetics of cancer ; 4. Surgical oncology ; 5. Principles of radiation oncology ; 6. Principles of chemotherapy ; 7. Principles of symptom control in palliative care ; 8. Late effects of radiotherapy and chemotherapy ; 9. Hormone therapy ; 10. Biological and targeted therapies ; 11. Clinical trials ; 12. Cancer prevention ; 13. Population screening for cancer ; 14. Thoracic cancer ; 15. Breast cancer ; 16. Colorectal cancer ; 17. Anal cancer ; 18. Upper gastrointestinal cancer ; 19. Endocrine cancers ; 20. Genitourinary cancers ; 21. Gynaecological cancer ; 22. Head and neck cancer ; 23. Tumours of the central nervous system ; 24. Skin cancer ; 25. Haematological malignancies ; 26. Bone and soft tissue malignancies ; 27. Cancer of unknown primary site ; 28. Paraneoplastic syndromes ; 29. AIDS-related malignancies ; 30. Childhood cancers presenting in adulthood ; 31. Overview of Acute Oncology ; 32. Spinal cord compression and bone marrow suppression ; 33. Superior vena cava obstruction and raised intracranial pressure ; 34. Stridor ; 35. Thromboembolic and cardiac emergencies ; 36. Obstruction ; 37. Biochemical crises ; 38. Complications of long-term central venous lines and chemotherapy extravasation ; 39. Novel therapeutic strategies ; 40. Gene therapy and immunotherapy for cancer ; 41. Biomarkers and Cancer ; Appendices
£36.09
Scribner Book Company This Is Assisted Dying: A Doctor's Story of
Book Synopsis
£17.00
Oxford University Press Oxford Textbook of Spirituality in Healthcare
Book SynopsisThe relationship between spirituality and healthcare is historical, intellectual and practical, and it has now emerged as a significant field in health research, healthcare policy and clinical practice and training. Understanding health and wellbeing requires addressing spiritual and existential issues, and healthcare is therefore challenged to respond to the ways spirituality is experienced and expressed in illness, suffering, healing and loss. If healthcare has compassionate regard for the humanity of those it serves, it is faced with questions about how it understands and interprets spirituality, what resources it should make available and how these are organised, and the ways in which spirituality shapes and informs the purpose and practice of healthcare? These questions are the basis for this resource, which presents a coherent field of enquiry, discussion and debate that is interdisciplinary, international and vibrant.There is a growing corpus of articles in medical and healthcare journals on spirituality in addition to a wide range of literature, but there has been no attempt so far to publish a standard text on this subject. Spirituality in Healthcare is an authoritative reference on the subject providing unequalled coverage, critical depth and an integrated source of key topics. Divided into six sections including practice, research, policy and training, the project brings together international contributions from scholars in the field to provide a unique and stimulating resource.Trade ReviewThis book is remarkable in its range and in its depth. The contributors are all leading experts in their particular fields, and anyone who masters the richness and detail of the 64 chapters will have acquired a genuinely comprehensive knowledge of the increasingly important area of the intersection between spirituality and healthcare. * Brendan Callaghan, SJ, from The Way, Vol. 55, No. 1, Jan 2016 *Table of ContentsForward ; Preface ; I Traditions ; 1. Medicine and Religion: A historical perspective ; 2. Buddhism: Perspectives for the contemporary world ; 3. Chinese Religion: Taoism ; 4. Christianity ; 5. Feminist Spirituality ; 6. Indian Religion and the Ayurvedic Tradition ; 7. . The Western Humanist Tradition ; 8. Indigenous Spiritualties ; 9. Islam ; 10. Judaism ; 11. 'New Age' Spirituality ; 12. Philosophy ; 13. Secularism ; 14. Sikhism ; II Concepts ; 15. Healthcare spirituality: A question of knowledge ; 16. Personhood ; 17. Belief ; 18. Hope ; 19. Meaning Making ; 20. Compassion: Luxury or Necessity? ; 21. Dignity: A Novel Path into the Spiritual Landscape of the Human Heart ; 22. Cure and Healing ; 23. Suffering ; 24. Ritual ; 25. Culture and Religion ; III Practice ; 26. Models of Spiritual Care ; 27. Healthcare Chaplaincy ; 28. Complementary, Alternative and Integrative Medicine ; 29. Restorative Medicine ; 30. Nursing ; 31. Faith Community (Parish) Nursing ; 32. Psychiatry and Mental Health Treatment ; 33. Social Work ; 34. Care of Children ; 35. Care of elderly people ; 36. Palliative Care ; 37. Spirituality and the arts: Discovering what really matters ; 38. Care of the Soul ; 39. Counselling ; 40. Dignity Conserving Care ; 41. Pastoral Theology in healthcare settings: Blessed irritant for holistic human care ; 42. Next Steps for spiritual assessment in healthcare ; IV Research ; 43. Methodology ; 44. Measures ; 45. On the links between religion and health: What has empirical research taught us? ; 46. Quality of Life ; 47. Cognitive Sciences: A perspective on spirituality and religious experience ; 48. Spiritual Well-Being Scale: Mental and Physical Health Relationships ; 49. Prayer and Meditation ; 50. Resiliency and Coping ; 51. Spiritual experience, practice and community ; 52. Policy ; 53. Healthcare Organizations: Corporate spirituality ; 54. Utility and Commissioning of Spiritual Carers ; 55. Social Care ; 56. Curriculum Development, Courses and CPE ; 57. Competences in spiritual care education and training ; 58. Guidance from the Humanities for Professional Formation ; 59. Training and Formation: A case study ; 60. Interdisciplinary teamwork ; 61. Ethical Principles for Spiritual Care ; VI Challenges ; 62. Contemporary Spirituality ; 63. The Future of Religion ; 64. The Future of Spirituality and Healthcare
£104.70
Health Professions Press,U.S. Transitions in Dying and Bereavement: A
Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.
£52.00
Hay House UK Ltd The Soul Midwives' Handbook: The Holistic and
Book SynopsisSoul Midwives, a movement begun by Felicity Warner, has changed the face of modern holistic and spiritual palliative care in the UK and abroad.Soul Midwives are holistic and spiritual companions to the dying. They draw on traditional skills, now largely forgotten, applying them to our modern world to ease the passage of those who are dying. Their services are used within people's own homes, in hospices and in care homes.Anyone with an open and compassionate heart and a desire to help others can train to become a Soul Midwife. This book will guide you through the core principles and techniques of this practice.Trade ReviewA guide to help people prepare for death just as they might for a birth - and achieve a peaceful end to their lives. You magazine A gift for bringing comfort and peace to those who are about to pass away. The Daily Express Offers guidance and practical advice on how to offer support and care to those on the final journey. Yoga and Health magazine In this moving book, Felicity has encapsulated the wisdom of the ages into practical examples of how to BE with the dying; how to honour and hold that sacred space for everyone as they prepare to make the journey that we all must take. Anita Moorjani, author of Dying to Be Me It is wonderful that Felicity Warner's Soul Midwives now have a handbook for practical use. As vigiling reclaims its rightful place at the bedside, The Soul Midwives' Handbook emerges as a useful and timely tool for those who are called to this sacred work. Megory Anderson PhD, author of Sacred Dying Well, don't they do fantastic work? Not just for the dying, but for those left behind. Brian Blessed, actor The work of Felicity Warner and the Soul Midwives is absolutely crucial for those of us who believe that death is one of the most important moments of our life. By providing loving and gentle support, Felicity and the Soul Midwives support people to have the death that they want. What could be more important? Jon Underwood, pioneer of the Death Cafe movement Soul midwives make it their mission to help the dying pass away with dignity and in peace. Sunday Express The woman who wants to make dying more dignified. Woman's Weekly The concept of 'being there' for someone at the end of life is central to the soul midwife and I applaud the role for this concept. Cancer Nursing Practice
£14.24
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£35.28
Oxford University Press Inc Intentionally Interprofessional Palliative Care
Book SynopsisStrong professional identities are key to healthy interprofessional teams. When each professional knows their distinctive role within the team, misunderstandings and defensiveness diminish and curiosity and supportiveness about the others'' unique contributions blossoms. This book explores the state of the art related to interprofessional palliative care practice and education and focuses on the unique synergy of interprofessional palliative care teams. It explores both the unique specialty contributions of each profession and the shared specialty palliative care activities that all professions on the team are expected to perform. With chapters written and edited by chaplains, nurses, physicians, social workers, and other professionals, this book includes in-depth literature review, theoretical frameworks for research, education, and practice, practical guidance for implementing educational and clinical program development, and inspiring descriptions of an aspirational future for intentionally interprofessional palliative care. Spanning three comprehensive sections, the first provides an overview of the discipline of palliative care, terminology, roles of team members, and theories of interprofessional collaboration. The second explores interprofessional palliative care education, beginning with theory and evidence and then application in academic settings, clinical learning environments, and continuing education. The third examines interprofessional practice in a variety of settings including hospice, hospital, outpatient clinics, and home.Readers from any profession or discipline who are interested in the essence of interprofessional education and practice will find value in the interprofessional approach to palliative care. Professors and teachers of pre-licensure health professions, graduate level courses, and continuing education courses will find Intentionally Interprofessional Palliative Care to be a valuable resource, both for profession-specific and interprofessional learner cohorts.
£55.00
HarperCollins Publishers Inc No Good Deed
Book Synopsis
£14.24
Oxford University Press Inc Palliative Care in Emergency Medicine WHAT DO I
Book SynopsisTable of ContentsPreface 1. Primary ED Palliative Care 2. Trajectories and Prognostication 3. Goals of Care Discussions 4. Advance Directives and Advance Care Planning 5. Dyspnea 6. Nausea and Vomiting 7. Cancer Pain 8. Last Hours of Living 9. Non-malignant and chronic pain 10. Devices and Therapies 11. Family Presence During Resuscitation 12. Ventilator Withdrawal 13. Death of a Child 14. Hospice Referral from the ED 15. Hospice Patient in the ED 16. Cultural and Spiritual Considerations 17. Ethical Aspects of Care 18. Global Aspects of Palliative Care 19. Prehospital Palliative Care 20. Models of Care/Implementation of Palliative Care in the ED 21. Palliative Care Consultation in the ED
£32.99
Oxford University Press Inc Navigating Life with Amyotrophic Lateral
Book SynopsisTrade Review"This is a marvelous book for patients, families and caregivers dealing with one of the most devastating disorders that we encounter. The Brombergs have a unique perspective on the disease- Dr. Bromberg is internationally recognized expert in the clinical care of patients with ALS and his wife, Diane is a lawyer who has personally dealt with the disease in her family. The book is remarkable in its comprehensive approach. Not only dealing with the scientific, medical, emotional, functional aspects of the progressive weakness, but also about end-of-life decisions, legal concerns, spirituality, intimacy and other issues that are all part of dealing with the ever changing condition. For anyone having to deal with ALS, this book is a tremendous resource that will answer questions, relieve anxieties and give some comfort to all involved." -Richard A. Lewis, MD, Director, Electromyography Laboratory, Professor of Neurology, Cedars-Sinai, Los Angeles, CATable of ContentsAbout the ANN's Neurology NowTM Books Series Lisa M. Shulman, MD Dedication Preface Acknowledgements Chapter 1- Introduction What are the Basic Features of ALS? How it Starts - Patient Stories How to Use this Book Chapter 2 -ALS Origins Why the Name ALS? Is ALS Different from Motor Neuron Disease? Is ALS a New or Old Disease? How Common Is ALS? Who Was Lou Gehrig? Who Else had ALS? Chapter 3 - The Diagnosis of ALS Diagnosis What Features Make the Diagnosis? What Does the Neurologist Look For? What Are the Symptoms and Signs of ALS? Bulbar Difficulties Upper Extremity Difficulties Lower Extremity Difficulties Why So Many Tests? What Are the El Escorial Criteria? What Are "Rule Out" Tests? Why Does it Take So Much Time to Make the Diagnosis? Do I Really Have ALS; What Diseases Mimic ALS? Multifocal Motor Neuropathy with Conduction Block (MMN) Inclusion Body Myositis (IBM) Kennedy Disease Cervical Spondylitic Myelopathy Lumbosacral Spondylitic Radiculopathy Lyme Disease Carpal Tunnel Syndrome Ulnar Neuropathy at the Elbow Should I Get a Second Opinion? How Was the Diagnosis Given and Received? Chapter 4 - Causes of ALS What Causes ALS? Why Do Neurons Die in ALS? Glutamate Excitotoxicity Oxidative Stress Mitochondrial Dysfunction Protein Aggregation Immune Dysfunction Gene Mutations Challenging Facts About ALS Why Do I Have ALS? Environmental factors Clusters Military Service What Is Familial ALS? How Is ALS Passed On? Autosomal Dominant Inheritance Autosomal recessive Inheritance X-linked Inheritance How Many Genes are Associated with Familial ALS? Are There Genes Associated with Frontotemporal Dementia? Are Genetic Causes of ALS and Frontotemporal Lobe Dementia Related? How Do I Know if I Have Familial ALS? Should I Have Genetic Testing for ALS? Should Family Members of Individuals with Familial ALS Have Genetic Testing? Chapter 5 - Motor Progression of ALS How Does ALS Progress? How Is Progression Measured? Muscle Strength Functional Rating Scale How Fast Am I Progressing? Does ALS Ever Get Better? Are There Staging Scales for ALS? Chapter 6 -Non-Motor Features of ALS What Is Frontotemporal Lobe Dementia? What Are the Features of Frontotemporal Lobe Dementia? How Is Frontotemporal Lobe Dementia Diagnosed? Why Is It Important to Diagnose Frontotemporal Lobe Dementia? How Are Symptoms of Frontotemporal Lobe Dementia Treated? What Is Pseudobulbar Affect (PBA)? What Are the Features of Pseudobulbar Affect? How Is Pseudobulbar Affect Diagnosed? Why Is it Important to Diagnose Pseudobulbar Affect? How Is Pseudobulbar Affect Treated? Can ALS Cause Changes in Bowel and Bladder Function? Why Do I Feel so Fatigued? ALS Can be Depressing; How Do I Know if I Am Depressed? Why Have I Noticed Changes to My Skin? Why Do I Have Scaly Skin? Why Do I Sweat so Much? Why Do My Eyes Sting? Why Do I Bite My Cheek? Why Are My Hands or Feet Red, Swollen or Cold? Do I Have to Worry About a Deep Venous Thrombosis (Blood Clot)? Do I Have to Worry About Skin Pressure Sores? Chapter 7 - Treatment of ALS Do I Need a Primary Care Physician? Should I Continue with My Current Medications? Where Can I Get the Most Comprehensive Care? What Happens in a Multidisciplinary ALS Clinic? Neurologist Nurse Speech-language Pathologist Occupational Therapist Physical Therapist Respiratory Therapist Dietitian Social Worker Genetics Counselor Palliative Care and Hospice Pulmonologist Gastroenterologist Psychiatrist Psychologist Orthotist How Often Should I Be Seen in Clinic? Should I Attend a Support Group? What Is Available on the Internet? What Should I Take for My ALS? What About Rilutek or Riluzole? What Else Is Available? What About Stem Cells for ALS? What Can Stem Cells Do? How Are Stem Cells Delivered in ALS? Where Can I Get Stem Cells? What About Dietary Supplements and Alternative Therapies? Will Protein Supplements Build Muscle? Can Creatine Give Me More Strength? Can Chelation Therapy Get Rid of Toxins? Should I Replace My Amalgam (Silver) Dental Fillings? What About Massage and Acupuncture? Can Exercise Improve Strength? If I Don't Exercise Will I Lose Strength Faster? Can Exercise Be Harmful? Chapter 8 - Living with ALS What Will Be My Quality of Life? What Can I Still Do? Can I Travel? Can I Still Have Intimacy? Can I Have a Baby? What Is My Legacy to My Family? Chapter 9 - Nutrition in ALS Why Is Nutrition Important in ALS? Why Do I Lose Weight? What Foods Are Harder or Easier to Swallow? How Much Weight Loss Is Too Much? How Do I Stop Weight Loss? High Calorie Foods Supplements What Is Patient-Caregiver Stress over Food? What if I Can't Maintain My Weight Despite Supplements? How Are Feeding Tubes Placed? Percutaneous Endoscopic Gastrostomy (PEG) Radiologically Inserted Gastrostomy (RIG) Surgically Placed Gastrostomy How Do I Use a Feeding Tube? How Do I Take My Medications if I Have a Feeding Tube? What Can I Expect From a Feeding Tube? Can I Still Eat if I Have a Feeding Tube? Chapter 10 -Breathing and ALS How Does ALS Affect Breathing? How Does the Diaphragm Work? How Will I Know My Breathing Is Affected? What Does High Carbon Dioxide Do? How Is Breathing Measured in Clinic? What Can I Do To Help My Breathing on My Own? What Is Air or Breath Stacking? Stopping Smoking What Will Supplemental Oxygen Do? What Breathing Numbers Concern Doctors? Why Is My Cough Weak? What Is a CoughAssist Device? What Causes My Throat to Tighten and Make It Hard to Breathe? What Happens When My Breathing Becomes Weaker? What Is Non-invasive Ventilation? What Can I Expect with Non-invasive Bi-level Ventilation? What Is Diaphragm Pacing? How Is Progressive Respiratory Failure Managed? What Is Invasive Ventilation? What Can I Expect with Invasive Ventilation? How Do I Make the Choice For or Against Invasive Ventilation? What Does Locked-in Mean? What If I No Longer Want to Continue Invasive Ventilation? Chapter 11 - Communication and ALS How Does ALS Affect Speech? How Can Speech Be Optimized? What Are Low-Tech Speech Aids? Handwriting Alphabet Board What Are Medium-Tech Aids? Speech Amplification Mobile Telephones Digital Tablets What Are High-tech Speech and Writing Aids? Head and Eye Tracking Devices What Is Voice Banking? What Is Brain-Computer Interface Communication? Chapter 12 - Mobility and ALS How Can I Pursue Athletic Activities? How Can I Manage Dressing? Button Hooks Velcro Zippers Loose-Fitting Clothes Shoes How Can I Get On and Off the Toilet? How Can I Get In and Out of the Shower and Tub? Showers Bathtubs How Do I Manage Personal Hygiene? How Do I Manage Brushing My Teeth with Weak Hands? How Can I Turn Over in Bed? Blanket Tent Satin Bed Clothes Bed Handholds How Can I Support My Head and Back? Why Do I Feel Unsteady and Fall? What Can Be Done to Aid Walking? Ankle-foot Arthosis Cane or Walking Stick Walker Lift Chairs Medications for Spasticity What If I Fall and Cannot Get Up - Medical Alert Signaling Systems? What About Wheelchairs? Manual Wheelchairs Power Wheelchairs How Do I Get a Power Wheelchair In/Out of the House and Car? Does Insurance Pay for a Wheelchair? How Do I Order a Wheelchair? What About a Scooter? Why Are Patients Frequently Reluctant to Use Mobility Aids? How Can I Transfer Safely? What Is a Lift? Floor Lifts Ceiling Lifts What About Changes to the Home and Renovations? Can I Still Drive? Chapter 13 - Managing ALS Symptoms How Can I Manage My Saliva? How Can I Manage Thick Phlegm? What Can I Do About Muscle Cramps? How Can I Stop Muscle Twitches (Fasciculations)? How Can I Reduce Leg Stiffness? How Can I Manage Sudden Urges to Urinate? How Do I Manage Constipation? What Are Anticholinergic Side Effects of Medications? How Can I Manage Pain? How Can I Treat Depressed? How Can I Treat Anxiety? How Can I Get Better Sleep? What If I Can't Swallow Pills? Chapter 14 - The Caregiver and ALS Who Provides Care? How Does Providing Care Change with ALS Progression? What Is the Best Way to Offer Help? How Do Patients and Caregiver Manage? How Do Caregivers Manage Changes in Roles? What Can Caregivers Do to Ease the Care Burden? Does Providing Care Affect Caregiver's Health? What Do Caregivers Really Feel? Is Depression Common Amongst Caregivers? How Can a Caregiver Manage Stress? What Are Respites? What Is Bereavement While the Patient Is Alive? Can a Caregiver Have Survivors' Guilt? How Should the Caregiver Prepare for Being Alone? Chapter 15 - Events at the End of ALS How Do People with ALS Die? What if I Want to Continue Living? What if I Can't Make Up My Mind About Ventilation? What if I Don't Want to Continue Living? Do ALS Patients Take Their Own Lives? What Are Palliative Care and Hospice? When Should Hospice Be Considered? How Can Spirituality Help? Chapter 16 - Planning Ahead Who Should I Tell? How and What Should I Tell My Family? What Should I Tell My Children? What Are Medical Directives? Living Will Power Of Attorney for Health Care Do Not Resuscitate Order What Do I Need to Know About Estate Planning? Will Trust Agreement Power of Attorney Lifetime Gift What About Computer Passwords and Safety Deposit Boxes? What About Health Insurance? Medicare Military Veteran Benefits Should I Keep Working? What Is Family and Medical Leave? What Are Other Financial Considerations? Chapter 17 - Research in ALS What Is Going on in ALS Research? How Are Drugs Discovered and Tested? Where Can I Get More Information About Trials? Should I Participate in a Trial? What is Informed Consent? Let Me Try It; What Do I Have to Lose? Chapter 18 - Concluding Thoughts Neurologist's Perspective Caregiver's Perspective Glossary Index
£17.99
Oxford University Press Care of the Imminently Dying
Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice
£37.34
Oxford University Press Inc Advancing the Science of Implementation across
Book SynopsisWhile many effective interventions have been developed with the potential to significantly reduce morbidity and mortality from cancer, they are of no benefit to the health of populations if they cannot be delivered. In response to this challenge, Advancing the Science of Implementation across the Cancer Continuum provides an overview of research that can improve the delivery of evidence-based interventions in cancer prevention, early detection, treatment, and survivorship. Chapters explore the field of implementation science and its application to practice, a broad synthesis of relevant research and case studies illustrating each cancer-focused topic area, and emerging issues at the intersection of research and practice in cancer. Both comprehensive and accessible, this book is an ideal resource for researchers, clinical and public health practitioners, medical and public health students, and health policymakers.Table of ContentsForeword: The Implementation of Cancer Control in the 21st Century (Part 1) Otis W. Brawley Foreword: The Implementation of Cancer Control in the 21st Century (Part 2) Electra D. Paskett Section I: An Introduction to Implementation Science Across the Cancer Control Continuum 1A. An Orientation to Implementation Science in Cancer David A. Chambers, Wynne E. Norton, and Cynthia A. Vinson 1B. A History of the National Cancer Institute's Support for Implementation Science Across the Cancer Control Continuum: Context Counts Jon Kerner, Russell E. Glasgow, and Cynthia A. Vinson 2. Evidence-Based Cancer Practices, Programs, and Interventions Maria E. Fernandez, Patricia Dolan Mullen, Jennifer Leeman, Timothy J. Walker, and Cam Escoffery 3. Theories, Frameworks, and Models in Implementation Science in Cancer Ted A. Skolarus, Rachel G. Tabak, and Anne E. Sales 4. Measures and Outcomes in Implementation Science Cara C. Lewis, Kayne D. Mettert, Caitlin N. Dorsey, and Bryan J. Weiner 5. Study Design, Data Collection, and Analysis in Implementation Science Marisa Sklar, Joanna C. Moullin, and Gregory A. Aarons 6. Implementation Strategies Byron J. Powell, Krystal G. Garcia, and Maria E. Fernandez Section II: Implementation Case Studies in Cancer Prevention and Control 7. Cancer Prevention and Public Health Promotion: Overview of Case Studies Lisa M. Klesges Case Study 7A: Implementation Strategies for Increasing Rates of Human Papillomavirus Vaccination Robin C. Vanderpool, Heather M. Brandt, and Meagan R. Pilar Case Study 7B: Cancer Prevention Through Scaling-Up the Process of Evidence-Based Decision-Making in a State Health Department Peg M. Allen, Linda J. Ahrendt, Kiley A. Hump, and Ross C. Brownson Case Study 7C: Implementing Evidence-Based Media Engagement Practices to Address Cancer Disparities Racquel E. Kohler, Shoba Ramanadhan, and K. Viswanath Case Study 7D: Dissemination and Implementation Science in Retail Tobacco Control Policy Todd B. Combs, Laura Brossart, Kurt M. Ribisl, and Douglas A. Luke 8. Cancer Detection and Screening: Overview of Case Studies Gloria D. Coronado Case Study 8A: The FluFIT Program: A Colorectal Cancer Screening Intervention Designed and Tested for Successful Implementation Michael B. Potter, Debbie Kirkland, Judith M.E. Walsh, Carol P. Somkin, Vicky Gomez, and Lawrence W. Green Case Study 8B: Implementation of an Evidence-Based Tobacco Use Treatment Intervention in the Context of Lung Cancer Screening Jaime Ostroff and Donna Shelley 9. Provider-Level Factors Influencing Implementation: Overview of Case Studies Alex H. Krist and Vivian Jiang Case Study 9A: Treatment for Early Stage Prostate Cancer: The Need to Implement Shared Decision-Making Sarah C. Kobrin and Alex Conway Case Study 9B: Integrating Concurrent Palliative Care into Cancer Care Delivery Settings Meagan Whisenant and Kathi Mooney Case Study 9C: Enhancing Fidelity to Cancer Treatment Guidelines Kathy J. Helzlsouer and Arti Patel Varanasi 10. Organization- and System-Level Factors Influencing Implementation: Overview of Case Studies Stephanie B. Wheeler Case Study 10A: Integrating Patient-Reported Outcomes into Routine Cancer Care Delivery Angela M. Stover Case Study 10B: Patient Navigation and Cancer Care Delivery Harold P. Freeman and Melissa A. Simon Case Study 10C: Implementing Distress Screening in a Community and Veteran's Administration Oncology Clinic Paul Montgomery, Nicole Thurston, Michelle Betts, and C. Scott Smith Case Study 10D: Implementing Lynch Syndrome Screening in the Veterans Health Administration Maren T. Scheuner, Marcia Russell, Jane Peredo, Alison B. Hamilton, and Elizabeth M. Yano Chapter 11: Cancer Survivorship: Overview of Case Studies Julia H. Rowland Case Study 11A: Implementing an Evidence-Based Exercise Program for Breast Cancer Survivors Kathryn H. Schmitz and Rinad Beidas Case Study 11B: Using an Implementation Science Approach to Study and Improve Cancer Survivors' Employment Outcomes Janet S. de Moor, Catherine M. Alfano, Erin E. Kent, Lynne Padgett, and Melvin Grimes Case Study 11C: The Challenge of Implementing Survivorship Care Plans Sarah A. Birken, Erin E. Hahn, Yan Yu, Emily Haines, Deborah K. Mayer, and Brian Mittman 12. Cancer in the Global Health Context: Overview of Case Studies Sudha Sivaram Case Study 12A: Adopting the PREVENTABLE Model: A Multistep Approach to Changing a Secondary Cervical Cancer Prevention Paradigm in El Salvador Mauricio Maza, Karla Alfaro, Julia Gage, and Miriam Cremer Case Study 12B: Implementing Evidence-Based Tobacco Use Treatment in Community Health Centers in Vietnam Mark Parascandola and Donna Shelley Case Study 12C: Assessing the Community Context when Implementing Cervical Cancer Screening Programs Prajakta Adsul and Purnima Madhivanan Section III: Emerging Issues in Implementation Science across the Cancer Control Continuum 13. Using Precision Medicine to Improve Health and Healthcare: The Role of Implementation Science Mindy Clyne, Amy Kennedy, and Muin J. Khoury 14. Harnessing Big Data-Based Technologies to Improve Cancer Care Gurvaneet S. Randhawa and Edwin A. Lomotan 15. Scaling-Up Cancer Control Innovations Nancy C. Edwards, Barbara L. Riley, and Cameron D. Willis 16. Sustainability of Cancer Practices and Programs Shannon Wiltsey Stirman and James W. Dearing 17. Overuse and De-Implementation of Inappropriate Cancer Screening, Diagnosis, and Treatment Practices Maryam Doroudi, Barnett S. Kramer, and Paul F. Pinsky 18. Partnerships and Networks to Support Implementation Science K. Vish Viswanath, Racquel Kelly Kohler, and Shoba Ramanadhan 19. Cost-Effectiveness Analysis in Implementation Science Heather Taffet Gold 20. Future Directions in Implementation Science Across the Cancer Continuum Wynne E. Norton, Cynthia A. Vinson, and David A. Chambers Resources Glossary Index
£119.59
Oxford University Press Dignity Therapy
Trade ReviewThis is truly a remarkable book - it simultaneously brings together the best we know of the science of palliative care with the essence and best of compassionate care. * Jimmie C. Holland, Memorial Sloan-Kettering Cancer Centre *For all health professionals who find themselves struggling to help patients face the complex process of dying, this book is both a detailed roadmap and an extraordinary guide that dispels the myth that 'there is nothing else they can do.' Most importantly, the book sets a high standard for creating an environment that enables patients' exploration of personhood and suffering and enhances their dignity in the final days of their lives. * Kathleen M. Foley, Memorial Sloan-Kettering Cancer Centre *[This book] gives us all clear guidance to help our patients and their families to make meaning of their lives in a consistent and standardized manner. Because it will help us to better help our patients and their families, his work is a gift to palliative care clinicians everywhere. * Diane E. Meier, Director, Hertzberg Palliative Care Institute and Mount Sinai School of Medicine *Dignity Therapy is a rich blend of a deep understanding of the existential concerns of the seriously ill and dying, and an incredibly practical resource for clinicians. * Betty Ferrell, City of Hope Medical Centre *This is not your usual medical text - it is written with profound sensitivity, humanity, and wisdom that is both inspiring and practical. * Nathan I. Cherny, Shaare Zedek Medical Centre, Israel *In this elegant book, Harvey Chochinov shows how the interrelatedness of one human being with another affects an individual's intrinsic sense of dignity, and he examines the implications of this on the care environment. Every palliative care service will find this book enriching and will look with refreshed eyes on the work of providing care to others. * Baroness Ilora Finlay of Llandaff, Cardiff University, and Member, House of Lords, UK *[It] offers unique insight into the process of psychological dying and the opportunity for growth. I recommend it to anyone who is working in the helping professions and has the unique opportunity to be present as individuals create their own last chapter. * J. Donald Schumacher, National Hospice and Palliative Care Organization *This book is valuable to clinicians from all settings and fields, those involved in medical and nursing education, and those undertaking research to improve patient and family experience and care. * Irene J. Higginson, King's College, London *Dr. Chochinov's Dignity Therapy provides a practical way to implement one of the essential elements of any healthcare system and any relationship between a clinician or caregiver and patient who is seriously ill honouring the dignity of each and every individual. His book provides practical, evidence-based, yet sacred, interventions that allow for healing in the midst of suffering. * Christina M. Puchalski, The George Washington University School of Medicine and Health Sciences *Whether you are a professional who, like me, works in palliative care or in another setting, I recommend Chochinov's book as one to put on your reading list for the coming year. sDignity Therapy is an engaging read distinguished by its depth of insight and vibrant perspective. sDignity Therapy: Final Words for Final Days is a comprehensive, well-written, and engaging book, which provides a clear background and implementation guide for Dignity Therapy. It would probably be most useful for palliative care and hospice providers and for those of us in palliative care who are in a position to either implement or advocate for the implementation of a Dignity Therapy program. * Mercedes Pacheco, Journal of Palliative Medicine *What I like about it particularly is that it presents a subtle and powerful argument against euthanasia without in any way being overtly religious. * Francis Phillips, Catholic Herald d *Table of ContentsChapter 1: Dignity and the End of Life ; Why Study Dignity? ; Dignity and Empirical Research ; The Model of Dignity in the Terminally Ill ; Illness-Related Concerns ; - Level of Independence ; - Symptom Distress ; Dignity-Conserving Repertoire ; - Dignity-Conserving Perspectives ; - Dignity-Conserving Practices ; Social Dignity Inventory ; - Privacy Boundaries ; - Social Support ; - Care Tenor ; - Burden to Others ; - Aftermath Concerns ; References ; Chapter 2: Moving Dignity into Care ; How the Dignity Model Informs Dignity Therapy ; - Form ; - Tone ; - Content ; Dignity Therapy Revealed ; The First Clinical Trial is Published ; What about Families? ; Gold Standard Evidence ; Time to Move On ; References ; Chapter 3: Introducing Dignity Therapy to Patients and Families ; Patient Selection for Dignity Therapy ; Who Should Not Take Part in Dignity Therapy? ; Chapter 4: Doing Dignity Therapy ; Setting up the Dignity Therapy Session ; The Role of the Dignity Therapist ; References ; Chapter 5: The Generativity Document ; The Rationale for Editing Dignity Therapy Transcripts ; Transcribing the Audio-Recorded Interview ; Editing the Verbatim Transcript ; - Cleaning Up the Transcript ; - Clarifying the Transcript ; - Finding a Suitable Ending ; - The Patient Has the Final Say ; Chapter 6. From Start to Finish ; Chapter 7. Moving Forward
£68.40
Oxford University Press The Weeping Willow
Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased
£25.64
Oxford University Press Inc Loss and Grief Personal Stories of Doctors and
Book SynopsisThis unique collection of personal narratives from doctors and other healthcare professionals humanizes the loss experience in medicine and illuminates opportunities for education, research, and intervention to better prepare healthcare professionals for loss and grief.Trade ReviewThis exceptional volume on loss and grief should be required reading for all health professionals and their students. The valuable and, at times, surprising insights expressed by the authors in their efforts to make sense of loss in their own lives makes this a must read. * Jeffrey S. Akman, MD, Former Vice President for Health Affairs and Dean, School of Medicine and Health Sciences, George Washington University *Loss and grief will affect all of us. These courageous contributors describe their own very personal experiences with loss so we can all benefit from their insight and take comfort that these journeys are a normal yet unavoidable part of the wonder of life. * Barry D. Bultz, PhD, Head, Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary and Officer, Order of Canada *This is a warm and empathic book about loss and grief which should be read by all health professionals and their students. It comprises reflections from health professionals about grieving in their own lives, which brings genuine reflection and depth often not seen in textbooks. * Phyllis N. Butow, PhD, Emeritus Professor, School of Psychology, University of Sydney, Australia *Loss and Grief delivers a concentrated dose of unthinkable losses-a family suicide, deaths of young children, abusive upbringings. Reading the essays plunges me into a borrowed darkness. Did writing the essays expose fresh light or meaning for the authors? Does learning of their shipwrecks deepen our attention to the losses of our patients and ourselves? The book is a transparency of suffering, trustworthiness, and hope-a radical experiment in the value of truth in the living of a life. * Rita Charon, MD, PhD, Columbia Narrative Medicine *These courageous authors invite us into their deeply personal stories about loss, grief, and the struggle to find meaning and purpose in the aftermath. Honest and raw, grief emerges as the crucible in which love and loss forge our humanity, fragility, and inevitable transformation. * Harvey Max Chochinov, MD, PhD, Distinguished Professor of Psychiatry, University of Manitoba, and Senior Scientist, CancerCare Manitoba Research Institute *Although there is no definitive end to suffering, loss, and death, pain is a universal experience. At the age of 20, I suffered for the first time when I lost my father. I am certain that reading about the power of narratives would have been extremely beneficial at the time. This one-of-a-kind book tells us that we are not alone, even though there are no universal cures for illness, agony, and death. * Dégi L. Csaba, PhD, MSW, Board Member, European Cancer Organization; Secretary, International Psycho-Oncology Society; Associate Professor, Babels-Bolyai University, Romania; and Member, ECO-ASCO Special Network on the Impact of the War in Ukraine on Cancer *This unique publication serves as the starting point for new thinking about the meaning of loss and the care of those who experience it. Profoundly personal and reflective, this edited collection of compelling and courageous narratives by physicians and other healthcare professionals models a new world, providing the evidence base for the expert editors' call to action with a new definition of loss, an expanded research agenda, and a challenge to healthcare systems to create supportive programs for professionals experiencing personal loss. * Kathleen M. Foley, MD, Emeritus Member, Memorial Sloan Kettering Cancer Center, and Emeritus Professor of Neurology, Weill Cornell Medical College *This book catalogues instances in which healthcare professionals confront the death of someone dear. It describes how caring for others who have lost someone close turns into caring for themselves, and offers the insights that medical professionals may offer when they mourn. * Holly G. Prigerson, PhD, Irving Sherwood Wright Professor in Geriatrics, Professor of Sociology in Medicine, and Co-Director for the Cornell Center for Research on End-of-Life Care, Weill Cornell Medicine *We all walk through the valley of the shadow of loss and grief. This exquisite compilation of heartfelt, thoughtful narratives, by and about healers searching for meaning through personal loss-experiences, gives language and courage for all who enter the unmarked trek from loss and confusion towards clarity and restoration. * Andrew J. Roth, MD, Attending Psychiatrist, Memorial Sloan Kettering Cancer Center, and Professor, Clinical Psychiatry, Weill Cornell Medical College *Loss and Grief is a heartfelt and moving book by outstanding leaders in health care who display their strength by revealing their vulnerabilities. Healing is not a battle but a journey, and when you read this book, you will travel in excellent company. * David Spiegel, MD, Director, Center on Stress and Health, Stanford University School of Medicine *A challenge for those of us working in oncology is how to face personal loss. This excellent book shares in a most candid way the authors' own experiences and struggles when faced with death and illness. Each of us can profit by learning from these poignant stories of shared vulnerability. * J. William Worden, PhD, ABPP, Psychologist, Harvard Medical School and Massachusetts General Hospital *Table of ContentsAcknowledgments About the Editors Contributors Introduction Marshall Forstein 1. An Oncologist Reflects on Loss and the Culture of Medicine Lidia Schapira 2. On "Doing" Loss Wendy S. Harpham 3. "Will You Take Me In?": A Story of Loss, Restoration, and Success Damon Madison 4. Losing Them Amy Ship 5. When the Loss Is Not Just Personal, but Is of One's Self Julia H. Rowland 6. Speechless Matthew Loscalzo 7. "Did Your Mother Ever Die?" Fredda Wasserman 8. Panel 19, Number 9, East: In Memoriam to Larry Insel, 01 May 1967 Mitch Golant 9. Five Decades Steven T. Rosen 10. Lost and Found Susan D. Block 11. "In Sickness and in Health, 'Til Death Do Us Part" Marshall Forstein 12. With This Ring Cheryl Krauter 13. Good Times, Brother John Halporn 14. For Better or for Worse: A Couple Reconfigures Life After Loss Joan Heller Miller and Ken Miller 15. Watching My Wife Move Joseph V. Simone and Patricia Ann Sheahan Simone 16. Life Is Loss (. . . and How I Tolerated It when I Became a House Officer): A Personal Memoir Cy A. Stein 17. Mourning and Restoration Craig D. Blinderman Conclusion Loss: We Can Do Better Matthew Loscalzo, Marshall Forstein, and Linda A. Klein Suggested Reading
£44.56
Oxford University Press Inc The Hospice Companion
Book SynopsisThe Hospice Companion is a guide to the processes of care during the intensive, interpersonal experiences of hospice work. This resource highlights the mission and values of modern-day hospice through the individual and combined efforts of the field''s most valuable asset, the hospice professional. This easy-to-navigate clinical decision support tool for caregivers of those with life-limiting illnesses allows for personal and professional growth and a deeply gratifying sense of accomplishment as they proceed in the all-important work of caring for the dying. The fourth edition of The Hospice Companion features a thoroughly current guide to clinical processes and symptom management, providing hospice professionals with a concise summary of changes that have influenced clinical practice over the last several years.Table of Contents1. General Processes Palliative Care at the End of Life: Blending Structure and Function The Interdisciplinary Team (IDT) Documentation 2. Personal, Social, and Environmental Processes Abuse in the Home Advance Care Planning and Directives for Health-Care Interventions Changes in Body Image and Loss of Independence Changes in Family Dynamics Completing Worldly Business and Life Closure Controlled Substances: Misuse and Abuse Cultural Differences: Respect, Understanding, and Adapting Care Denial Grief Reactions Living Environment, Finances, and Support Systems Basic Home Safety Suicide: Risk Assessment, Prevention, and Coping If It Happens 3. Clinical Processes and Symptom Management Agitation and Anxiety Air Hunger (Dyspnea) Anorexia and Cachexia Belching and Burping (Eructation) Bleeding, Draining, and Malodorous Lesions Confusion/Delirium Constipation Coughing Depression Diarrhea and Anorectal Problems Dysphagia and Oropharyngeal Problems Edema: Peripheral Edema, Ascites, and Lymphedema Fatigue, Weakness (Aesthenia), and Excessive Sedation Fever, Flushing, and Diaphoresis Hiccups (Singultus) Imminent Death Insomnia and Nocturnal Restlessness Nausea and Vomiting Pain Pruritus Seizures Skeletal Muscle and Bladder Spasms Skin Breakdown: Prevention and Treatment Urinary Problems Xerostomia (Dry Mouth) 4. Appendices Appendix 1: Ketamine Protocol Appendix 2: Clinical/Functional Assessment and Staging Appendix 3: Lidocaine Infusions for Refractory Neuropathic Pain Appendix 4: Cannabis and Cannabinoids
£46.07
Oxford University Press Inc Palliative Care Perspectives
Book SynopsisPalliative Care Perspectives is a guide to the art and science of palliative care that links real stories of illness with practical advice to delineate clinical practice in a way that reflects the daily concerns of clinicians. Clearly and compassionately written, this book emphasizes important topics often neglected in formal clinical training, including the history and evolution of palliative care in the United States, as well as how clinicians can better understand aging and dying from both a physiological and human perspective. Written by a recognized pioneer in the field of palliative care, each chapter highlights this human approach to illness with narratives and anecdotes drawn from decades of practice experience. This new edition features thoroughly updated research and citations, a new chapter on burnout and compassion fatigue, and a significant expansion of the topic of intercultural communication. Well-grounded in the academic literature, Palliative Care Perspectives is an ideal introduction to the emerging field of palliative care for care providers new to practice, as well as lay readers seeking to learn more about chronic and terminal illness, presented in a personal and accessible format.Table of Contents1. Chronic Illness, Death, and Dying in Modern Times 2. Dying Trajectories and Prognostication 3. Symptom Management-Overview 4. Pain Management 5. Non-Pain Symptom Management 6. Special Therapeutic Issues: Hydration, Nutrition, and Antibiotics in End-of-Life Care 7. Psychosocial and Spiritual Aspects of Care 8. Communication 9. Working the System and Making a Difference 10. Palliative Care Consults 11. Burnout 12. The Last 48 hours
£57.46
Oxford University Press Drugs in Palliative Care
Book SynopsisWhile palliative care has adopted a holistic approach to treatment, medication driven symptom management ostensibly forms the critical aspect of care. Prescribing in palliative care can be extremely complex because the patient may often have comorbidity, or occasionally multimorbidity. The associated polypharmacy further complicates the pharmacological management of symptoms being caused by the palliative condition. This can be daunting for healthcare professionals and can negatively impact upon the effectiveness of care provided.Fully revised and updated, the third edition of Drugs in Palliative Care provides an accessible and succinct overview of the main drugs that are encountered in palliative care clinical practice. The text begins by providing a clinical pharmacology overview and prescribing guidance, then contains over 160 monographs of palliative care drugs, in an easy to access A-Z format.Trade ReviewReview from previous edition I like the handy pocket-size and the drug monographs are organised in an easy-to-use A-Z format. This book would be very useful as a quick reference on any palliative care unit. * IAHPC Newsletter *Table of ContentsDetailed contents Symbols and abbreviations 1: Clinical pharmacology overview 2: Prescribing guidance 3: Drug Monograph A-Z Index
£36.09
Oxford University Press Paediatric Intensive Care
Book SynopsisOne in 70 children are admitted to paediatric intensive care (PIC) at some time during childhood. Most paediatric junior doctors will rotate through PIC, and will be involved in organising acute intensive care for critically ill children. The range of children and their illnesses going through PIC is vast, making it a hugely diverse specialty. A critically ill child will end up there regardless of their underlying disease, and as a result consultants in PIC must be true generalists and need to acquire knowledge and skills in all areas of paediatrics, as well as acquiring significant knowledge of anaesthesia and surgery. From setting up the ventilator, to managing low cardiac output, Paediatric Intensive Care gives practical and realistic advice for children''s doctors and nurses in intensive care. Information is presented in easily-accessible ''5 minute chunks'' to enable you to quickly get the answers you need, with extensive cross-referencing ensuring that different aspects of a particular clinical problem are fully covered. With detailed answers to specific problems and expert guidance on how to manage the complex issues faced in PIC, this handbook is an indispensible guide for all those who provide care to sick children.Trade ReviewThis very condensed but detailed handbook describes in its 43 chapters the anatomy, pathophysiology and treatment of conditions necessitating intensive medical care in neonates, infants and children... As the editors write this book is not just for intensivists, but should help also paediatric clinicians. * Inbar Kushnir, Editorial Manager; PER Volume 15 no.2 *Table of ContentsGENERAL INTRODUCTION TO PAEDIATRIC INTENSIVE CARE; ORGAN SYSTEM SUPPORT AND RELATED PRACTICAL PROCEDURES; SPECIFIC SPECIALTIES; COMPASSIONATE AND FAMILY-ORIENTATED CARE
£58.90
Oxford University Press Practical Management of Complex Cancer Pain
Book SynopsisThis new edition of the Practical Management of Complex Cancer Pain has been fully updated and expanded, with five new chapters on novel interventional techniques in cancer pain amelioration. The book provides advice on advanced pain management, emphasising the suitability and selection of patients for different invasive and complex procedures based on patient history. Case histories are included throughout the text to give the reader insight into the complexities of holistic management, with pain being only one component in the distress that cancer causes for both patients and families. The book also covers cancer pain management for patients in a community setting, and the collaboration between pain and palliative medicine. Concise, practical, and evidence-based, this guide is essential reading for all pain and palliative care specialists in the community, hospital, and hospice settings.Trade ReviewReview from previous edition Crisp and to the point. * Dr. Roger Woodruff, IAHPC Book Reviews *Winner of the BMA Medical Book of the Year Award 2015Table of ContentsA. Introduction and clinical cases 1: Michael Bennett: Definition and pathophysiology of complex cancer pain 2: Michael Bennett and Paul Farquhar Smith: Evidence based pharmacological approaches to management 3: Mahesh Choudhary: Neurolytic blocking agents 4: Paul Eldridge and Deepti Bhargava: Role of surgery in cancer pain management 5: Chinnamani Eswar: Oncological management of cancer pain 6: Arun Bhaskar: Pelvic pain 7: Manohar Sharma, Sanjeeva Gupta, and Lakshmi Vas: Chest wall pain from mesothelioma or lung cancer 8: Lakshmi Vas: Unilateral upper limb plexopathy pain caused by cancer 9: Kate Marley: Unilateral lower limb plexopathy related cancer pain 10: Hemkumar Pushparaj: Upper GI pain from invasive pancreatic cancer 11: Manohar Sharma and Sanjeeva Gupta: Multiple bone metastases/bone fracture related 12: JJohn Titterington, Louise Lynch, and Hemkumar Pushparaj: Intrathecal pump case history 13: Kate Marley and Manohar Sharma: Cancer survivor with pain progression B. Details of interventional techniques 14: Samyadev Datta: Basic procedure safety and patient considerations for cancer pain interventions 15: Dhanalakshmi Koyyalagunta and Arun Bhaskar: Sympathectomy for cancer pain 16: Kumar S V Das and Shubhabrata Biswas: Kyphoplasty and vertebroplasty for spinal metastasis pain 17: Manohar Sharma and Ashwin Vishwanathan: Cervical cordotomy (Fluroscopic and CT Guided technique) 18: John Titterington: Intrathecal drug delivery for cancer pain 19: Mahesh Chaudhari: Spinal neurolysis 20: Manohar Sharma and Lakshmi Vas: Interventions for head and neck cancer related pain 21: Paul Eldridge and Deepti Bhargava: Neurosurgical techniques for cancer pain 23: Dmitry Kruglov and Simon Thomson: Spinal cord stimulation for cancer related pain 24: Gaurav Sundar: Radiological tumour ablative techniques 25: Erlick Pereira and Abteen Mostafi: Radiofrequency brain lesioning for cancer related pain 26: Samyadev Datta: Radiofrequency ablation technique for metastatic spine disease 27: Mathew Brown: The role of High Intensity Focused Ultrasound (HIFU) in cancer pain management C. Collaboration between services 28: Kate Marley and Hemkumar Pushparaj: Role of collaboration between pain medicine and palliative care 29: Mathew Brown: Pain in cancer survivors 30: Eugene Choi, Priya Krishaswamy, and Umesh K. Gidwani: Control of complex pain at the end of life in hospice or community setting
£63.11
Oxford University Press, USA Nutrition and the Cancer Patient
Book SynopsisThis comprehensive reference book provides both background information and practical, clinical advice on all areas of nutrition for the cancer patient at all stages of their disease trajectory.Table of Contents1 - BASIC PRINCIPLES; 2 - THE CACHEXIA/ANOREXIA SYNDROME; 3 - THE TREATMENT OF PRIMARY CACHEXIA; 4 - THE TREATMENT OF SECONDARY CACHEXIA; 5 - NUTRITIONAL COUNSELLING; 6 - ARTIFICIAL NUTRITIONAL SUPPORT; 7 - ETHICS, CULTURE AND SPIRITUALITY; 8 - NUTRITION AND COMPLEMENTARY AND ALTERNATIVE MEDICINE (CAM) IN CANCER; 9 - EXERCISE; 10 - CLINICAL GROUPS; 11 - SPECIAL OPULATIONS
£119.00
Oxford University Press, USA Care of the Dying
Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet
£48.45
Oxford University Press Individual MeaningCentered Psychotherapy for Patients with Advanced Cancer
Book SynopsisThe importance of spiritual well-being and the role of meaning in moderating depression, hopelessness and desire for death in terminally-ill cancer and AIDS patients has been well-supported by research, and has led many palliative clinicians to look beyond the role of antidepressant treatment in this population. Clinicians are focusing on the development of non-pharmacologic interventions that can address issues such as hopelessness, loss of meaning, and spiritual well-being in patients with advanced cancer at the end of life. This effort led to an exploration and analysis of the work of Viktor Frankl and his concepts of logotherapy, or meaning-based psychotherapy. While Frankl''s logotherapy was not designed for the treatment of patients with life-threatening illnesses, his concepts of meaning and spirituality have inspired applications in psychotherapeutic work with advanced cancer patients, many of whom seek guidance and help in dealing with issues of sustaining meaning, hope, and uTrade ReviewThis is a priceless resource for those working with patients with advanced cancer and other terminal illnesses. It expertly applies scientifically validated existential treatments in an accessible workbook format for busy practicing clinicians... Unlike so much literature on existential psychotherapy with its grand theories, this book shows how to work with dying patients step by step. Readers will be rewarded with a new-found confidence when working with dying patients... 5 stars! * Doody's Notes *Few would argue with the importance of helping patients sustain a sense of meaning, particularly in the last months of life as they confront death... Well, that's what these little treatment manuals are all about. A carefully developed and structured 8-week psychotherapeutic intervention, for individuals or groups, shown to be of benefit in randomized clinical trials... I was impressed by the potential value of these interventions. In the palliative care setting they could be facilitated by experienced nurses, social workers, counsellors, and pastoral care workers as well as physicians. * IAHPC News *Table of ContentsIntroduction: Treatment Overview ; a. General Guidelines ; b. Intervention Purpose and Goals ; c. Intervention Overview ; d. How to Use the Manual ; 1. Session 1. Concepts & Sources of Meaning: Introductions and Meaning ; 2. Session 2. Cancer & Meaning: Identity Before and After Cancer Diagnosis ; 3. Session 3. Historical Sources of Meaning: Life as Legacy that has been given [past] and Life as Legacy that one lives [present] and gives [future] ; 4. Session 4. Attitudinal Sources of Meaning: Encountering Life's Limitations ; 5. Session 5. Creative Sources of Meaning: 'Creativity, Courage & Responsibility ; 6. Session 6. Experiential Sources of Meaning: Connecting with Life ; 7. Session 7. Transitions: Reflection & Hopes for Future ; References ; Handouts ; Exercises ; Homework
£37.39
Oxford University Press Listening to Pain A Clinicians Guide to Improving Pain Management Through Better Communication
Book SynopsisIn this groundbreaking book, Dr. Fishman shows how communicating better with patients about their pain can help physicians create safer and more effective treatment strategies. Listening to Pain offers physicians a wealth of practical guidance about asking the right questions and assessing patient responses, including:-What questions to ask pain patients when they first present with pain-Using functional goals as outcome measures-Educating patients about the risks and benefits of treatment-Documenting patient consent and compliance with treatment regimens-How to manage difficult patientsTrade Review"This well-written book drives home the concepts that communication between physicians and pain patients is absolutely crucial and how necessary it is to adequately monitor these patients and maintain appropriate records. 100 - 5 Stars!" -- DOODY'STable of ContentsIntroduction: The Healing Art of Communication ; Chapter 1: Asking the Right Questions ; Step 1: Slow Down ; Step 2: Focus on the Whole Patient, Not Just the Pain ; Step 3: Use Reflective Listening Skills ; The Importance of Taking a Comprehensive ; History ; Focusing on Function ; The Balancing Act of Compassion and Vigilance ; Chapter 2: Focusing on Function ; The Myth of Zero Pain ; A Different Approach ; Monitoring Functional Changes ; 'Universal Precautions' in Pain Management ; Chapter 3: Keeping Track of Treatment ; Why Documentation is a Doctor's (and Patient's) Best Friend ; Elements of Effective Documentation ; Assessment ; Patient Education About Risks and Benefits of Therapy ; Physician-Patient Treatment Agreements ; Monitoring Functional Progress, Adherence, and Adverse Events ; Modifying Treatments Over Time ; Chapter 4: Dealing With Difficult Patients ; The Sources of Aberrant Behaviors ; Managing Aberrant Patient Behavior ; Coping With Specific Aberrant Behaviors ; Terminating a Relationship ; The Rewards of Perseverance ; Chapter 5: Clinician Survival ; Appendix: Resources for Pain Management ; Acknowledgments ; About the Author
£22.09
Oxford University Press Nature of Clinical Medicine
Book SynopsisClinical medicine, as a thinking discipline, is concerned not only with what clinicians do, but why. When physicians act in medicine they have some purpose or goal in mind. What they actually do and how they go about it is in the service of their purposes and their goals. Such goals cover a wide range of topics centering on patients, the doctor-patient relationship, the acts of doctoring patients, and the goals involved in being a physician among other physicians working within the institutions of medicine.The Nature of Clinical Medicine takes its direction from a catalog of goals of medicine that range from the expected diagnosis and treatment of diseases to wider concerns for patients, for physicians, and for medicine itself. The chapters are specific in teaching the kinds of knowledge that clinicians require in order to be able to achieve these goals. The central focus of the clinician and of this book is the patient. According to Eric Cassell, everything else, including the diseaseTrade ReviewReading Eric Cassells latest contribution to the medical humanities The Nature of Clinical Medicine is like sipping a fine glass of claret. It requires slow savoring in order to benefit fully from the insights that Dr. Cassell has distilled over a professional lifetime of clinical practice and careful reflection. Cassells book is full of deep insights and human wisdom borne from his rewarding career of treating and caring deeply for patients. * Hillel D. Braune, Theoretical Medicine and Bioethics, Vol. 36, No. 2 (2015) *Table of ContentsAcknowledgments ; Introduction ; Chapter 1. The Goals of Medicine ; Chapter 2. A Story about a Patient with Aortic Stenosis ; Chapter 3. What are Facts in Medicine? ; Chapter 4. Clarify the Chain of Events that Led to the Present State: The Case as a Narrative ; Chapter 5. The Case of Myra Manner ; Chapter 6. Examine Your Presuppositions and Preconceptions ; Chapter 7. Separate and Examine the Values at Issue ; Chapter 8. A Question of Judgment ; Chapter 9. The Patient, the Doctor, And the Relationship ; Chapter 10. Observation, Prognosis, and Prognosticating ; Chapter 11. Thinking in Medicine ; Chapter 12. Accepting the Challenge
£45.90
The University of Chicago Press And a Time to Die How American Hospitals Shape
Book Synopsis
£21.85
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£93.60
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£25.50
University of Notre Dame Press The Anticipatory Corpse
Book SynopsisBishop argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death.Trade Review“The book’s interdisciplinary nature, along with its careful analyses combined with concrete stories of real human struggles with death and dying, no doubt, will be of interest to those engaged in medicine, bioethics, philosophy, theology, and debates concerning public health policies; but all those interested in the place of the body in modern technoscientific culture will find it engaging and cogent.” —Per Caritatem". . . this book will prove to be a seminal, conversation-changing monograph especially in bioethics and philosophy of medicine. . . . It will challenge the fundamental presuppositions that structure most courses in bioethics or death and dying. It is certainly a must-read for scholars and graduate students in these fields, but with guidance, it is an accessible and important text to use with undergraduates interested in bioethics or theology and medicine as well." —Modern Theology"This is a genuinely novel approach that invites one to completely reassess why healthcare institutions and professionals function as they do. It also invites us to question how our lives are shaped by our anticipated deaths. . . . This is not an easy book, but it is worth devoting time to reading it and thinking about the questions it poses. It is beautifully written and carefully argued, and instead of shying away from difficult and potentially disruptive issues in modern medicine it exposes them and challenges us to think again." —Times Higher Education“In this evocatively titled book, physician Bishop joins his Catholic sensibility with a Foucaldian analysis of medicine and power to expose the ambiguities and complexities of contemporary end-of-life issues. . . . Bishop examines issues such as how the need for donated organs since the 1950s has shaped care of the dying in troubling ways, the contesting passions surrounding the Terri Schiavo case, and the trivialization of the religious lives of caregivers and dying patients as wrought by the professionalization of palliative care.” —Library Journal"The Anticipatory Corpse: Medicine, Power, and the Care of the Dying [is] a compelling read and a groundbreaking work in philosophy and bioethics. Written by physician, bioethicist, and philosopher Jeffrey P. Bishop, the book presents an eloquent argument as to how the profession’s care of dying persons has evolved as well as a provocative and insightful critique of the present state of such care. . . . The Anticipatory Corpse . . . is engaging, provocative, and difficult to put down. . . . For physicians, lawyers, philosophers, chaplains, nurses, and other professionals whose work is centered on life’s final chapter, I wholeheartedly recommend this book." —Journal of the American Medical Association“Jeffrey Bishop . . . takes the reader on a journey into the past to provide insight into how the dead body plays an integral and unrecognized role in the present state of medicine in his book . . . . He argues that the corpse is the end of the practice of medicine.” —Journal of Medical Humanities“It is hard to overestimate the importance of Bishop’s book, not least because of the unchallenged, well-nigh hegemonic place occupied by medicine in western culture . . . . The theological acuteness and pastoral warmth that flow through Jeffrey Bishop’s book make it the most compelling argument for the superiority of this type of humane medicine over the ubiquitous and utterly flaccid ‘biopsychosociospiritual’ pretensions of modern medical practice. But as a challenge to the story of western liberalism, and the central place of medicine within it, The Anticipatory Corpse is also the most important book of 2011.” —ABC Religion and Ethics“The Anticipatory Corpse is interesting, provocative and important—one of the most novel contributions to the field of bioethics of the last several decades. Bishop has many illuminating new things to say about the ethics of medical care for the dying. In the process, he helps to explain why bioethics itself is in such a sad state.” —America"In this brilliant book, Jeffrey Bishop, who is both a physician and a philosopher, turns his clinical and analytical gaze on medicine. His diagnosis is bleak: 'There is something rotten in the heart of medicine.' Nine of the ten chapters are devoted to the diagnosis, showing the source and history of the disease and some of its symptoms, always focusing on how medicine approaches death and care for the dying. . . . In the last chapter, he turns his attention to therapeutic possibilities for medicine and raises a series of provocative questions, the most provocative of which is the last line of his book: Might it not be that only theology can save medicine?" —The Christian Century“The Anticipatory Corpse has the potential to become a classic in the field of medicine. . . . Bishop’s critique of contemporary medical practices and the fundamental philosophical questions underlying them are a stark reminder that the practices of medicine—many of them very good indeed—should not become ends in themselves.” —Ethics and Medicine
£105.40
Little, Brown Spark With the End in Mind
Book Synopsis
£16.99
Open University Press A Practical Guide to End of Life Care
Book SynopsisAre you involved in caring for people at the end of their life? Do you have a role in supporting the families of those who are dying, or is this an area of your work you find personally difficult?This book is an accessible guide for all those working in health or social care and caring for people at the end of their lives. This will include people in roles such as healthcare assistant, hospice worker, volunteer, nurse or other carers.Written by experts with extensive experience in delivering high quality end of life care, this book is full of real life examples, reflection exercises and case studies. It also includes insights into what can help make a good death, and how to help support families at the end of life.The easy to read chapters emphasise treating people who are dying with dignity using a person centred approach.The book supports the delivery of quality care by recognising physical and non-physical symptoms, and thinking about various emotional and phTable of ContentsForewords Contributors 1. Thinking about dying – setting the scene 2. What does end of life care mean? 3. Where are people cared for and who is involved? 4. How can we communicate with people about dying? 5. What are the common physical symptoms at the end of life and how can we help? 6. What are the common non-physical symptoms at the end of life and how can we help? 7. How can we help families and carers? 8. How do people’s beliefs and values influence their dying? 9. What happens in the last hours of life? 10. What to do when someone dies and afterwards 11. How can we look after ourselves? 12. Frequently asked questions Glossary of helpful termsUseful websites, books and other resourcesReferences
£21.84
Taylor & Francis Ltd The Dying Patient in Psychotherapy
Book SynopsisThe Dying Patient in Psychotherapy is a powerful account of love and death within a psychotherapeutic relationship. The narrative traces one man's journey in psychotherapy and that of the analyst who accompanies him. The full-length description of an analysis demonstrates the developmental path of an erotic transference from its origins in infancy, through fantasies of sex and violence to mature erotic intimacy. The countertransference is considered with exceptional honesty as the analysis intensifies following the diagnosis of a life-threatening illness. A series of dreams rich in symbolic imagery traces the psychological situation as death approaches. A precursor to Schaverien's acclaimed book Boarding School Syndrome, the single case study demonstrates the enduring impact of early boarding. This second edition also includes an updated literature review, and new material regarding training and supervision, making it a valuable resource for training inTrade Review"The author is a wonderful story teller and the journey she describes is an excellent representation of the experiences of a psychoanalyst working effectively with a dying patient. She captures the challenges of this special analytic situation and describes the counter transferences that treating a dying patient elicits exceptionally well. She recommends supervision to aid the analyst with the problematic counter transference reactions. She also recommends flexibility with regard to the analytic frame and a focus on the here and now of the patient’s struggle to live. Finally she permits the relationship to become more real by revealing more about her reactions to the work but with great care not to burden the patient with her grief." Norman Straker MD, DLFAPA, Clinical Professor Weill Cornell Department of Psychiatry, Consultant at Sloan Kettering Cancer Center"This…excellent book…combines in a unique way theoretical issues, clinical insights, analytic technique, therapeutic skills in the context of a most moving and human story of life, love and death. This book is the finest example of Joy Schaverien’s characteristic style of writing which includes all these facets of an analytical encounter in a touching and most readable way."Professor Renos Papadopoulos, Jungian psychoanalyst, University of Essex and Tavistock clinic"A detailed account of a successful psychoanalysis with a dying patient… Because death is an extreme event that brings all of life into focus, Dr Schaverien’s examples of transference and dream interpretations reach far beyond the case she recounts. I recommend this book to any psychotherapist who wants to understand the therapeutic uses of the erotic transference."Polly Young-Eisendrath, PhD, author of Women and Desire, editor of The Cambridge Companion to Jung"Once again, Joy Schaverien has provided a brilliant combination of a rarely discussed subject, the case of a dying patient in psychoanalysis, together with an in depth examination and commentary of psychoanalytic theory and practice. Joy includes exploration and analysis of dreams, a Jungian perspective, throughout the analysis. Her valuable modern up-dated theories of boarding school trauma, and of course her expertise on countertransference and erotic transference. This 2nd edition surpasses the first in all respects and will appeal to experienced practitioners, trainees from many professions and populations, and participants in therapy."Professor Helen Odell-Miller OBE, PhD, Director of The Cambridge Institute for Music Therapy Research Anglia Ruskin UniversityReviews from the first edition"The importance of this book lies in bringing work with the dying into the mainstream of our work ... This humane and careful text is a tribute to the courage of both Schaverien and [the client] and a gift for the reader."Jeremy Weinstein, BACP-registered trainer, UKCP Gestalt psychotherapist: Counselling and Psychotherapy Journal'"... Joy Schaverien has risked having her heart … as well as her technique and intellect, open for scrutiny in a way that is both brave and inspiring ... One of the most instructive aspects of this book is that it enables the reader to enter into a detailed account of the management of an intense, at times merged, involvement with a patient, whilst being provided with intermittent glimpses of how the analyst's mind is working, how she is building her frame, and patrolling the boundaries ... The book is well structured. Its clear chapter headings and sub-headings, as well as a chronological list of the patient's dreams, are containing and form a useful reference guide.'"Hilary Lester, Training Analyst with the Society of Analytical Psychology: Journal of Analytical Psychology"In this book Joy Schaverien has given us one of the most moving accounts of an analysis that I have encountered ... she demonstrates a considerable gift for explaining the analytical process in terms that are accessible to the well-educated lay person in a way that does not detract from the account for the professional clinician ... I found the dream material and the way in which it was presented particularly moving and thought-provoking. I liked the way in which each dream was presented in its own right and the reader was given the opportunity to think about it, before encountering the patient's associations and the analyst's comments ... The book from first to last chapter contains a deeply moving and sensitive account of the analyst's inner process of holding the analytical frame in the most adverse of circumstances... this is a book, that …should not be missed."Margaret Wilkinson, retired Training Analyst with the Society of Analytical Psychology, Author of Coming into Mind: Journal of the West Midlands Institute of PsychotherapyTable of ContentsPart 1: 1. Psychotherapy with the Dying Patient 2. Intimacy Revealed: Establishing a Therapeutic Relationship 3.The House and Boarding School: Intimacy and Exile Part 2: 4. Dreams 5. Dreams and Diagnosis 6. Dreams and the Erotic Transference 7. The Erotic Transference and Countertransference 8. Sexual Attractions and Erotic Violence: Men Who Leave Too Soon Revisited 9. The Inner-World Parents: The Paternal Function and the Maternal Realm 10. Talking about Love, Sex and Death Part 3: 11. Boundaries and the Bereavement of Dying 12. Envy, Contamination and Countertransference 13. The Link Between Psychotherapy and Cancer 14. The Problems of Ending When the End is Death Part 4: 15. Breakdown, Boundaries and Hospital 16. The Hospice and Medication 17. Home 18. Supervision, Training and Countertransference Bereavement: Research Questions
£25.64
Taylor & Francis Ltd Textbook of Palliative Medicine and Supportive
Book SynopsisThis new edition provides the essential clinical guidance both for those embarking upon a career in palliative medicine and for those already established in the field. A team of international experts here distil what every practitioner needs to know into a practical and reliable resource.Trade Review'Many programs are discussed in detail, which enable readers to understand palliative medicine trends throughout the world and have an understanding of impactful strategies that have been helpful to patients, families, and clinicians. The history of the profession is also covered beautifully, invoking pride in how far the profession has advanced over thepast 50 years, starting with the early work of Dame Cicely Saunders.'Leah D Ward, MSN, MA, A-GNP-C, ACHPN (Aspire Health), Doody EnterprisesTable of ContentsList of contributors. The development of hospice and palliative care. Palliative care as a public health issue. Palliative care as a primary care issue. The future of palliative medicine. Palliative care and supportive care. Ethics in the practice of palliative care. Undergraduate education in palliative medicine. Graduate education for nonspecialists. Challenges of research in palliative and supportive medicine. The population: Who are the subjects in palliative medicine research?. Study designs in palliative medicine. Outcome measurement in palliative care. Ethics in palliative care research. Adoption of palliative care: The engineering of organizational change. Principles of measuring the financial outcomes of specialist palliative care programs. Population-based needs assessment for patients and those important to them, such as families. Models of palliative care delivery. Home palliative care. Palliative care unit. Multidimensional patient assessment. Tools for pain and symptom assessment. Quality of life assessment in palliative care. Pathophysiology of chronic pain. Causes and mechanisms of pain in palliative care patients. Opioid analgesics. Assessment and management of opioid side effects. Adjuvant analgesic medications. Alternative routes for systemic opioid delivery. Interventional pain procedures in palliative care. Pain management in pediatrics. Pain in the older adult. Neuropathic pain. Bone cancer pain and skeletal complications. Breakthrough (episodic) pain in cancer patients. Somatic symptoms, symptom clusters, and symptom burden. Pain in patients with alcohol and drug dependence. Cachexia–anorexia syndrome. Nausea/vomiting. Constipation. Jaundice. Malignant bowel obstruction. Endoscopic treatment of digestive symptoms. Mechanism, assessment, and management of fatigue. Breathlessness. Other respiratory symptoms (cough, hiccup, and secretions). Depression/anxiety. Delirium. Sleep disturbances in advanced cancer patients. Counseling in palliative care. Hope in end-of-life care. Dehydration and rehydration. Fever, sweats, and hot flashes. Pruritus. Infections in palliative care. Pediatric palliative wound care: The unique anatomy and physiology of neonatal skin. Mouth care. Fistulas. Assessment and management of lymphedema. Hypercalcemia. Hemorrhage. Spinal cord compression. Clinical features and management of superior vena cava syndrome. Acute pain and management. Suicide. Cancer: Radiotherapy. Chemotherapy, hormonal therapy, targeted agents, and immunotherapy. Integrative medicine in supportive and palliative care. Neurological diseases. End-stage congestive heart failure. Geriatric palliative care. Advanced chronic obstructive pulmonary disease. Other infectious diseases: Malaria, rabies, tuberculosis. Practical resources for palliative care development in countries with limited resources: An IAHPC perspective. Prognostic indicators of survival. Palliative sedation. Staff stress and burnout in palliative care. Spiritual care. Family caregivers and cultural sensitivity. Bereavement. Children of palliative care patients. Neutropenic fever. Side effects of radiation therapy. Cardiac and pulmonary toxicities of treatments. Oral complications of cancer therapies. Dermatologic side effects. Peripheral neuropathy and neurotoxicity. Sex and sexuality. Managing communication challenges with patients and families. Supportive and palliative care for patients with HIV infection. Implantable cardiac devices. Supportive care for patients with advanced chronic kidney disease. Palliative care in the emergency department. Optimal Symptom Management in Hematopoietic Stem Cell Transplantation. The end of therapy: Building the psychosocial and spiritual bridges to survivorship. Rehabilitation in the acute and chronic care setting. Long-term cognitive function. Gonadal functions and reproductive health. Pulmonary rehabilitation. Index.
£199.50
John Wiley & Sons Inc Occupational Therapy in Oncology and Palliative
Book SynopsisNow in its second edition, this is the only book on occupational therapy in oncology and palliative care. It has been thoroughly updated, contains new chapters, and like the first edition will appeal to a range of allied health professionals working with patients with a life-threatening illness.Trade Review"I would recommend this practical text to both students and professionals in the field." (British Journal of Occupational Therapy, 2007)Table of ContentsList of Contributors ix Foreword xi Derek Doyle, MD, OBE Preface xiii Acknowledgements xiv Introduction xvii 1 What is Cancer? 1 Jill Cooper 2 Challenges Faced by Occupational Therapists in Oncology and Palliative Care 11 Jill Cooper 3 Occupational Therapy Approach in Symptom Control 27 Jill Cooper 4 Occupational Therapy in Anxiety Management and Relaxation 41 Jill Cooper 5 Occupational Therapy in the Management of Breathlessness 51 Jill Cooper 6 Occupational Therapy and Cancer-Related Fatigue 61 Daniel Lowrie 7 Client-centred Approach of Occupational Therapy Programme – Case Study 83 Gemma Lindsell 8 Occupational Therapy in Paediatric Oncology and Palliative Care 107 Claire Tester 9 Occupational Therapy in HIV-related Cancers and Palliative Care 125 Will Chegwidden and Camilla Hawkins 10 Occupational Therapy in Neuro-oncology 145 Helen Barrett and Julie Watterson 11 Occupational Therapy in Hospices and Day Care 161 Anne Bostock, Shelley Ellis, Sara Mathewson and Lilias Methven 12 The Use of Creativity as a Psychodynamic Activity 175 Kathryn Boog 13 Measuring Occupational Therapy Outcomes in Cancer and Palliative Care 189 Gail Eva Appendices 201 Glossary 239 Glossary-Abbreviations 247 Index 249
£51.26
John Wiley & Sons Inc Palliative Care An Integrated Approach
Book SynopsisAspects include psychosocial, spiritual and physical needs of the patient. Care and treatment are considered in a multidisciplinary and complementary way. Patient centered coverage considers treatment and care of the dying in all settings in major diseases. A highly integrated approach to pain and symptom control, including complementary therapies.Trade Review“However, I have found myself referring to this book in recent months far more than some of the bigger, more established, textbooks – and if the measure of a good book is how well-thumbed the pages become, then the author is on to a winner. (European Journal of Palliative Care, 2010) "The author's warmth, enthusiasm and concern for patients, their families and the professionals who care for them, combined with her scholarship, shine throughout this book. I recommend it to anyone with an interest in the care of people approaching the end of their lives in any setting." (Palliative Medicine, 2009) "This book will be a very welcome addition to the undergraduate curriculum for clinicians seeking to specialize in palliative care." (International Journal of Palliative Nursing, 2009) "There is a wealth of knowledge and experience for nursing students and newly qualified nurses seeking direction.... I would recommend this for reference on general medical wards and units where patients are receiving end of life care." (Nursing Standard, April 2009) Table of ContentsForeword x Contributors’ biographies xii Acknowledgements xv Dedications xvi 1 Historical and cultural perspectives on the evolution of palliative care 1 Key points 1 Introduction 2 Death in society 2 Dame Cicely Saunders and the origins of contemporary palliative care 3 An international perspective 6 Defi nitions 8 End-of-life care national programme 12 Culture 15 Service user involvement 18 Conclusion 19 Main implications for practice 19 Suggested further reading 19 2 Facing progressive disease and death 21 Key points 21 Psychosocial care 22 Partnership – maintaining the balance 23 Approaches to care 24 Giving the bad news 26 Denial/avoidance 29 Anger 32 Anxiety 33 Depression 33 Social pain 35 Conclusion 35 Main implications for practice 36 Suggested further reading 36 3 Communication skills 37 Key points 37 The impact of good communication 38 The impetus to teach communication skills 38 Facilitative styles 40 What Howard taught me about nursing dying people 45 Helpful strategies 46 Communicating with people with dementia 56 Conclusion 57 Main implications for practice 57 Suggested further reading 58 4 Self-awareness and self-care 59 Key points 59 Saving a life versus stealing a death 60 Facing death 62 Making space for decision-making 64 Self-awareness 66 How much did Nicky impact on my life? 68 Self-care 69 Main implications for practice 72 Suggested further reading 72 5 The sick role and partnership working 73 Key points 73 Introduction 73 Partnership care – what does it mean? 75 The sick role 76 Face-to-face partnership: attention to information giving 78 Written information 81 Decision aids 82 Special needs 83 Conclusion 83 Main implications for practice 83 Suggested further reading 84 6 Hope and spirituality 85 Key points 85 Introduction 86 Hope research 86 Spirituality 94 Religious practices concerned with death 100 Conclusion 104 Main implications for practice 104 Suggested further reading 105 7 Finding resilience together 106 Key points 106 Resilience in health care 107 Patient groups 108 Psychoneuroimmunology 108 The expert patient 111 Conclusion 114 Main implications for practice 115 Suggested further reading 115 8 Living with dying 116 Key points 116 Introduction 117 Social death 118 Vulnerable groups 119 Informational needs 121 Being heard and feeling supported 122 Companionship 123 Intimacy and caring 125 Health needs 125 Diffi cult thoughts and letting go 127 Conclusion 128 Main implications for practice 128 Suggested further reading 129 9 Bereavement 130 Key points 130 Defi nitions 131 Untimely deaths 131 Bereavement and health 132 Grief theorists 134 Mourning practices in different cultures 141 Bereaved children 143 Old age 143 Bereavement and dementia 143 Solitary grief 144 Bereavement services 145 Conclusion 148 Main implications for practice 149 Suggested further reading 149 10 Pain and other major symptoms: an integrated approach 150 Key points 150 Pain theories 152 Psychological approaches 154 Physical approaches 158 Complementary therapies 163 Creative therapies 170 Conclusion 172 Main implications for practice 172 Suggested further reading 172 11 The history of the use of strong opioids for cancer pain 173 Key points 173 Studies and narratives 174 WHO analgesia ladder 177 Side effects 182 Alternative routes for administration of strong opioids 184 Conclusion 187 Main implications for practice 188 Suggested further reading 188 12 Concordance and advance care planning 189 Key points 189 Patient-centred care: concordance 190 Advance care planning 192 The Mental Capacity Act 2005 196 Main implications for practice 196 Suggested further reading 197 13 Eleven prevalent symptoms 198 Key points 198 History 198 Pain 199 Nausea and vomiting 206 Constipation 212 Diarrhoea 216 Anorexia 218 Fatigue 223 Breathlessness 227 Confusion 232 Insomnia 236 Anxiety 238 Depression 240 Conclusion 244 Main implications for practice 244 Suggested further reading 245 Addendum: Doloplus 2 Scale 245 14 Palliative issues in some common diseases 248 Key points 248 Gold standard for all 248 Doing the right thing at the right time 249 Conclusion 280 Main implications for practice 280 Suggested further reading 280 Contents ix 15 Palliative emergencies 282 Key points 282 Palliative emergencies 282 Other symptoms 286 Main implications for practice 287 Suggested further reading 287 References 288 Index 315
£41.36
John Wiley & Sons Inc Palliative Care
Book SynopsisPalliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness. Diane E. Meier, M.D., one of the field''s leaders and a recipient of a MacArthur Foundation genius award in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care. Dr. Meier''s essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field''s pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kübler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including: Why the care of the seriously iTable of ContentsForeword (Risa Lavizzo-Mourey Editors'). Introduction (Diane E. Meier, Stephen L. Isaacs, and Robert G. Hughes). Acknowledgments. Part I Review of the Palliative Care Field: Original Article. 1. The Development, Status, and Future of Palliative Care (Diane E. Meier). Reprints of Key Articles and Book Chapters. Part II Care of the Seriously Ill: Why Is It an Important Issue? Approaching Death: Improving Care at the End of Life (Marilyn J. Field and Christine K. Cassel, editors, for the Committee on Care at the End of Life, Institute of Medicine). 3. Decisions Near the End of Life. Council on Ethical and Judicial Affairs, American Medical Association. Part III Efforts to Cope with Death and Provide Care for the Dying. 4. Hope (Elisabeth Kübler-Ross). 5. The Nature of Suffering and the Goals of Medicine (Eric J. Cassell). 6. The Nature of Suffering and the Goals of Nursing (Betty R. Ferrell and Nessa Coyle). 7. Death: “The Distinguished Thing” (Daniel Callahan). 8. The Philosophy of Terminal Care (Cicely Saunders). 9. Access to Hospice Care: Expanding Boundaries, Overcoming Barriers (Bruce Jennings, True Ryndes, Carol D’Onofrio, and Mary Ann Baily). Part IV Social, Legal, and Ethical Issues. 10. The Health Care Proxy and the Living Will (George J. Annas). 11. Terri Schiavo: A Tragedy Compounded (Timothy E. Quill). Part V Research into End-of-Life Care. 12. A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT) SUPPORT Principal Investigators. 13. Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care Providers (Karen E. Steinhauser, Nicholas A. Christakis, Elizabeth C. Clipp, Maya McNeilly, Lauren McIntyre, and James A Tulsky). 14. Use of Hospitals, Physician Visits, and Hospice Care During Last Six Months of Life Among Cohorts Loyal to Highly Respected Hospitals in the United States (John E. Wennberg, Elliott S. Fisher, Thérèse A. Stukel, Jonathan S. Skinner, Sandra M. Sharp, and Kristen K. Bronner). 15. Family Perspectives on End-of-Life Care at the Last Place of Care (Joan M. Teno, Brian R. Clarridge, Virginia Casey, Lisa C. Welch, Terrie Wetle, Renee Shield, and Vincent Mor). Part VI Palliative Care. 16. The Treatment of Cancer Pain (Kathleen M. Foley). 17. Responding to Intractable Terminal Suffering: The Role of Terminal Sedation and Voluntary Refusal of Food and Fluids (Timothy E. Quill and Ira R. Byock, for the ACP-ASIM End-of-Life Care Consensus Panel). 18. Response to Quill and Byock, “Responding to Intractable Suffering” (Daniel P. Sulmasy, Wayne A. Ury, Judith C. Ahronheim, Mark Siegler, Leon Kass, John Lantos, Robert A. Burt, Kathleen Foley, Richard Payne, Carlos Gomez, Thomas J. Krizek, Edmund D. Pellegrino, and Russell K. Portenoy). 19. Challenges in Palliative Care: Four Clinical Areas That Confront and Challenge Hospice Practitioners (Balfour M. Mount). 20. Outcomes from a National Multispecialty Palliative Care Curriculum Development Project (David E. Weissman, Bruce Ambuel, Charles F. von Gunten, Susan Block, Eric Warm, James Hallenbeck, Robert Milch, Karen Brasel, and Patricia B. Mullan). 21. Negotiating Cross-Cultural Issues at the End of Life: “You Got to Go Where He Lives” (Marjorie Kagawa-Singer and Leslie J. Blackhall). 22. Variability in Access to Hospital Palliative Care in the United States (Benjamin Goldsmith, Jessica Dietrich, Qingling Du, and R. Sean Morrison). 23. Do Palliative Care Consultations Improve Patient Outcomes (David Casarett, Amy Pickard, F. Amos Bailey, Christine Ritchie, Christian Furman, Ken Rosenfeld, Scott Shreve, Zhen Chen, Judy A. Shea)? 24. Cost Savings Associated with U.S. Hospital Palliative Care Consultation Programs (R. Sean Morrison, Joan D. Penrod, J. Brian Cassel, Melissa Caust-Ellenbogen, Ann Litke, Lynn Spragens, Diane E. Meier, for the Pallative Care Leadership Centers' Outcomes Group). 25. The Loneliness of the Long-Term Care Giver (Carol Levine). 26. Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their Caregivers (Ezekiel J. Emanuel, Diane L. Fairclough, Julia Slutsman, Linda L. Emanuel). Part VII The Ends of Medicine and Society. 27. Finding Our Way: Perspectives on Care at the Close of Life (Stephen J. McPhee, Michael W. Rabow, Steven Z. Pantilat, Amy J. Markowitz, and Margaret A. Winker). The Editors. Name Index. Subject Index.
£64.80
John Wiley and Sons Ltd Palliative and End of Life Care for Children and
Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181
£32.36
Harvard University Press Values at the End of Life
Book SynopsisOnce defiant of death—or even in denial—many American families and health care professionals are embracing the notion that a life consumed by suffering may not be worth living. Sociologist Roi Livne documents the rise and effectiveness of hospice and palliative care, and the growing acceptance that less treatment may be better near the end of life.Trade ReviewMost of us think that money and death belong to opposite moral terrains. Roi Livne demolishes that boundary as he traces the deeply moral roots of a new economy of dying. Drawing from vivid interviews and observations of physicians, patients, and family, Values at the End of Life will not only shape scholarly debates but also fascinate a broad audience eager to understand twenty-first-century death practices. -- Viviana Zelizer, author of Economic Lives: How Culture Shapes the EconomyRoi Livne’s eye-opening investigation reveals a pervasive regime of valuation embedded in medical treatment today. By scrutinizing the history and practice of palliative care, Livne artfully outlines the battle of economization over whether to do less or more when life is at stake. -- Sharon Kaufman, author of Ordinary Medicine: Extraordinary Treatments, Longer Lives, and Where to Draw the LineLivne addresses the personal, intimate concerns of every reader in this uncommonly deep sociological study. Combining ethnographic ‘thick description’ with precise, accessible argument, this book explores the interconnection between the morally-oriented project of palliative care and its seemingly inescapable economic imperatives. Values at the End of Life sheds light on that interconnection, rendering explicit an awareness that is implicit in the interactions among clinicians, patients, and families. -- Steven Lukes, author of Moral Relativism[A] masterfully researched work…Likely to have staying power as an important contribution to the sociological literatures on medicine, healthcare, health financing, death and dying, and professionalization. It will also surely be of interest to economists, health policymakers, and clinicians who navigate every day the structures of this new economy of dying…Provides food for thought about one’s own wishes at the end-of-life, long after the last page is turned. -- Tania M. Jenkins * Social Forces *If you work in palliative care and have an interest in the sociological angles, you will enjoy this book and it will give you a lot to think about. -- Roger Woodruff * IAHPC Book Reviews *While still acknowledging the issue of power differentials between end-of-life care clinicians and the people they serve, he disentangles the relationship in a way that brings to light the importance of patient agency within a much larger cultural context…Provides an in-depth descriptive analysis of end-of-life care…A highly informative read. -- Courtney R. Petruik * Canadian Journal of Sociology *Sheds light on the institutional history of the rise of hospice and palliative care in the U.S., and provides an honest and richly documented account of the inner workings of hospital care for patients at the end of life…Should be widely read not only by academic sociologists, but by policymakers, patient advocates, health professionals, and even members of the general public. No one can predict what their last weeks or days are going to be like…[but] learning about how these decisions are made is of great practical value to us all. -- Alya Guseva * European Journal of Sociology *By studying a new economy of death and dying, Livne contributes both to the field of economic sociology…and to the sociological study of death. -- Lucas Faial Soneghet * International Sociology *A substantial and thought‐provoking contribution to a complex and highly sensitive topic…Illuminates the normalization processes in a key ethical area and brilliantly perpetuates the critical legacy of the discipline. It is also an indispensable reading for economic scholars, sociologists or not, to stimulate new insights and promote in‐depth approaches that focus on the issue of ambivalence, dissensus, and moral perplexity. -- Natasia Hamarat * Sociology of Health and Illness *This powerful work is poised to be a future classic in economic sociology, medical sociology, and health policy. Livne provides a fascinating glimpse into the challenges that nearly every American will face, as they and their loved ones grapple with end-of-life decision-making. The book’s important conclusions extend beyond the case of hospice and palliative care; they reveal how economies can emerge in morally contested areas and the role that stakeholders can play in this emergence. -- Deborah Carr * Contemporary Sociology *A sweeping and cohesive narrative of how economic and moral values were brought into alignment through public pressure, professional advocacy, and financial incentives to create both a supply and demand for an economizing palliative care gaze. This book is a worthwhile read for a broad audience and provides fascinating insight into the moral, ethical, and financial roots of a bourgeoning field. -- Elizabeth Dzeng * American Journal of Sociology *Amid the coronavirus pandemic, questions about how to ethically ration medical treatment have become a practical concern for those working on the front lines…But, as Values at the End of Life demonstrates, health care has always been a service that has to be rationed…In a time when many people are wondering how to rebuild the economy, Values at the End of Life makes a compelling case for the merit of treating economization not as an abstract domain but as a set of practices through which our work and our lives become valued in particular ways. -- Katherine Gibson * Social Service Review *Livne accomplishes a lot for a study of palliative care. -- Barbara Kiviat * British Journal of Sociology *
£35.66
Penguin Putnam Inc That Good Night
Book Synopsis
£14.40
McGill-Queen's University Press Tuberculosis Then and Now
Book SynopsisOne-third of the world's population is infected with the TB bacillus and up to ten per cent of these individuals will go on to develop tuberculosis. This title focuses on the changing medical, social, and cultural understanding of the disease and engages in a wider debate about the role of narrative in the social history of medicine.
£30.39
Johns Hopkins University Press The Medical Care of Terminally Ill Patients The
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£67.00
Johns Hopkins University Press The Medical Care of Terminally Ill Patients
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£29.70
Rutgers University Press Prelude to Hospice Florence Wald Dying People
Book SynopsisViewing death as a natural event, hospices seek to enable people approaching mortality to live as fully and painlessly as possible. Award-winning medical historian Emily K. Abel provides insight into several important issues surrounding the growth of hospice care. Using a unique set of records, Prelude to Hospice expands our understanding of the history of US hospices.Trade Review"For those doing research on death and dying, this book is a must read; it provides a quick and easy-to-understand testimony from people experiencing hospice. Readers may gain inspiration on how to make death a more comfortable process for their patients, their families, or themselves." * Choice *"Emily Abel is a distinguished scholar of medicine, nursing, and caregiving. Her latest book, Prelude to Hospice, offers powerful testimony from patients at the moment when many realized that medical progress had limits, and that technology sometimes needs to give way to care. Her portrayal of Florence Wald shows her deep understanding of the changing role of nurses in the second half of the twentieth century. Anyone who wants to understand the origins of hospice in the United States, the challenges of caregiving, and the ways that today's dilemmas at the end of life were present at the origins of the palliative care movement should read her compelling new book." -- Carla C. Keirns, MD, PhD * historian and palliative care physician *"Emily Abel is one of the most respected, influential historians working on family care giving and now, more recently, death and dying." -- Patricia D'Antonio * director, Barbara Bates Center for the Study of the History of Nursing *"If you’re looking for a case study on a dysfunctional research and clinical team, hamstrung by hierarchy and hobbled by boundary violations, this book will leave your mouth ajar." * The Gerontologist *"Partly inspired by Cicely Saunders, [Florence Wald] knew there was a better way to care for the terminally ill and their families. But it was anything but an easy road. This book describes the personal, professional, institutional and societal hurdles she came up against." * IAHPC Newsletter/HospiceCare.com *"New Scholarly Books: Weekly Book List, June 8" by Nina C. Ayoub * Chronicle of Higher Education *“Abel’s book is a timely portrayal of one of the founders of the modern hospice movement. In learning about Ms. Wald, it is our responsibility as the reader to take the good, learn from the bad, and continue to build upon and evolve Ms. Wald’s legacy to embrace suffering, loss, and hurt with compassion and empathy.” * Omega *Table of ContentsContents Introduction 1 Setting the Stage 2 Doctor and Nurse 3 Caring across Cultures 4 Hope, Blame, and Acceptance 5 Making Sense of the Findings Conclusion
£33.30
Springer Publishing Company Certified Hospice and Palliative Nurse CHPN Exam
Book Synopsis
£54.89
Springer Publishing Company Palliative Care Nursing
Book Synopsis
£96.89
Springer Publishing Company Handbook of Supportive Oncology and Palliative
Book Synopsis
£42.29