Palliative medicine Books
Springer Publishing Company Communication and Care Coordination for the
Book Synopsis
£32.39
University of Missouri Press The Care of the Dying Patient
Book SynopsisOffers advice and solutions to professional caregivers or family members confronted with incurable illness and death. This title covers diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, and special concerns regarding the elderly.
£21.80
Boone Publishing, LLC Fixing You Neck Pain and Headaches
£15.14
Taylor & Francis Ltd Modern Hospice Design
Book SynopsisThe new edition of this acclaimed book comprehensively updates its timely advocacy of the need for good quality palliative care, today more necessary than ever. Rooted in the social history of the care of the elderly and terminally ill, Modern Hospice Design: The Architecture of Palliative and Social Care takes cognisance of the new conditions of social care in the 21st century, principally in the UK, Europe and North America. It does so with regard to the development of new building types, but also in response to new philosophies of palliative care and the status of the elderly and the dying. Benefitting from a clearer methodological approach and conceptual framework, the expanded book allows a broad section of readers to navigate the text more easily. At its core is a public discussion of a philosophy of design for providing care for the elderly and the vulnerable, taking the importance of architectural aesthetics, the use of quality materials, the porousness of deTrade ReviewWhat reviewers have said about Ken Worpole's most recent books:Last Landscapes: the architecture of the cemetery in the West'One of the most thought-provoking books of the year.'THE INDEPENDENT'An intensely personal analysis, supported by wonderful photographs.' THE ARCHITECTS' JOURNAL, BOOKS OF THE YEAR'A richly humane and engrossing book which incorporates a huge range of sources: he quotes anthropologists, novelists and a wealth of thinkers. The result is a work that is warm, compassionate, intelligent and thought-provoking.'BUILDING DESIGNModern Hospice Design: the architecture of palliative care‘Ken Worpole traces a path out of the darkness and into the light: from the Victorian asylum or sanatorium, devised to punish the sick, to the hospice movement and its assertion that even those who can't be made well by clinical medicine are entitled to be treated by the medical profession with not just dignity but something like love.’THE TIMES LITERARY SUPPLEMENT‘This concise, well-referenced book encourages the reader to consider whether design can foster hope…Worpole’s book speaks directly to designers and health care professionals to take this opportunity to engage with the deeper issues of ritual and occasion.’JOURNAL OF DESIGN HISTORYTable of Contents1. A new world of palliative and social care 2. A house at the end of life 3. Be kind quickly: how the modern hospice movement changed (nearly) everything 4.The brief is everything 5. Public faces and private places 6. Everything gathered in one room 7. Open to the world and to life 8. In a hospice garden 9. The evening land
£121.50
Taylor & Francis Rising to the Challenge of Life After Cancer
Book SynopsisRising to the Challenge of Life After Cancer: Expert Advice for Finding Wellness is an easy-to-read self-help guide for people facing cancer diagnosis and treatment. Following an effective Q&A format and based on a unique Wellbeing Essentials framework, it offers a valuable âdip in and outâ approach with signposting to evidence-based guidance on major challenges that those diagnosed with cancer and their family and friends may face. If you or someone close to you has had a cancer diagnosis, then this book is for you.With a focus on wellness and taking control, questions addressed include âIs there a best way to cope with cancer?â, âWhat strategies can help me make an informed decision about treatment?â, âWhat is prehabilitation and how can this help me?â, and âWho am I now?â. The book covers an array of essential guidance from maintaining social health and wellbeing, to accessing care and support in the community. It is written for both those living with or beyond canc
£18.99
Taylor & Francis Ltd Harnessing Hope in Managing Chronic Illness
Book SynopsisHarnessing hope is fundamental to adapting to a chronic illness or palliative illness, and this fascinating book provides a new framework that will enable physiotherapists and other healthcare professionals to engage with patients to create better interactions and outcomes for rehabilitation.Based on extensive research into how patients express their experiences, it identifies those factors that influence how hope can be used to benefit an interaction. It also considers central questions to illustrate how interactions can be psychologically mapped to assess emotions, adjustment, and hope. The book then features practical guidance on how to integrate the idea of hope into therapeutic conversations with patients, fostering acceptance and adaptation to the present, and looking towards the future.This book will interest any practitioner working with patients experiencing chronic pain or palliative illness, as well as students across physiotherapy, occupational therapy, and
£47.49
Independently Published OriginalEra
Book SynopsisLady's who have require and erectile dysfunctions discover comfort from Lady time. Lady time has been a diminishing word for the trademark update of straightforwardness among Lady's particularly
£12.32
John Wiley and Sons Ltd Palliative Care Nursing at a Glance
Book SynopsisPalliative Care Nursing at a Glance is the perfect companion for nursing students, health and social care practitioners, and all those involved in palliative care delivery, both in the clinical and home setting.Table of ContentsContributors viii Preface xi List of Abbreviations xii About the companion website xiv Part 1 Introduction 1 1 Setting the scene 2Christine Ingleton 2 Managing the needs of family caregivers 4Philip J. Larkin 3 Principles of effective communication 6Alison Pilsworth and Martyn Geary 4 Advance care planning 8Christine Ingleton 5 Delivering palliative approaches in different care contexts 10Christine Ingleton 6 Integrated care pathways 12Christine Ingleton Part 2 Clinical applications 15 7 Principles of symptom management 16Philip J. Larkin 8 Best practice in pain management 18Pat Schofield 9 Managing pain 20Pat Schofield 10 Complex pain problems and treatment challenges 22Pat Schofield 11 Managing nausea and vomiting 24Jackie Robinson 12 Managing constipation 26Philip J. Larkin 13 Understanding depression 28Mari Lloyd-Williams 14 Understanding delirium and confusion 30Peter Lawlor and Katie Marchington 15 Managing myoclonus, tremors and muscle spasms 32Jackie Robinson 16 Managing lymphoedema 34Lorna Malcolm 17 Managing hypercalcaemia of malignancy 36Geraldine Tracey 18 Assessing and managing oral hygiene 38Philip J. Larkin 19 Caring for people with dysphagia 40Philip J. Larkin 20 Managing breathlessness 42Liz Darlison 21 Cough and haemoptysis 44Jackie Robinson 22 Explaining and exploring cachexia, anorexia and fatigue 46Cathy Payne 23 Continual subcutaneous infusion: using a syringe pump 48Philip J. Larkin 24 Emergencies: superior vena cava obstruction 50Joanna De Souza 25 Emergencies: haemorrhage 52Joanna De Souza 26 Emergencies: malignant spinal cord compression 54Joanna De Souza 27 Chemotherapy 56Clare Warnock 28 Radiotherapy 58Clare Warnock Part 3 Palliative care for all 61 29 Palliative care approaches in heart failure 62Gill Horne and Sarah Human 30 Palliative care approaches to chronic obstructive pulmonary disease 64Clare McVeigh 31 Palliative care approaches in motor neurone disease 66David Oliver 32 Palliative care approaches for people receiving dialysis 68Rachel Lewis and Helen Noble 33 Palliative care approaches for people with progressive kidney disease: a non-dialytic pathway 70Helen Noble and Rachel Lewis 34 Care of the patient following a stroke 72Tony Ryan 35 Principles of palliative care for older people 74Amanda Clarke and Paula Smith 36 Care of the person with dementia 76Tony Ryan 37 Care for people with mental illness 78Ann Sheridan 38 Care for people with learning disabilities 80Dorry McLaughlin 39 Care for the homeless person 82Brian Nyatanga 40 Care for people in prison 84Mary Turner and Marian Peacock Part 4 Professional roles in palliative care 87 41 Understanding rehabilitation in palliative care 88Cathy Payne 42 The social worker 90Niamh Finucane 43 The occupational therapist 92Deirdre Rowe 44 The physiotherapist 94Helena Talbot-Rice 45 Complementary and supportive therapy 96Philip J. Larkin 46 The clinical nurse specialist 98Liz Bryan 47 The advanced nurse practitioner 100Geraldine Tracey 48 The nurse consultant 102Jo Hockley 49 The chaplain 104Mark Cobb 50 The medical consultant 106Bill Noble Part 5 Ethical challenges in palliative care practice 109 51 Stress in palliative care nursing 110Liz Bryan 52 Responses to euthanasia and physician-assisted suicide 112Joanna De Souza 53 Withholding and withdrawing life-sustaining care 114Joanna De Souza 54 Recognising and planning for the terminal phase of life 116Pauline Ui Dhuibhir Part 6 Managing end-of-life care 119 55 Changing goals of care at the end of life 120Deborah Hayden 56 Managing respiratory secretions at the end of life 122Jackie Robinson 57 Care at the moment of death 124Michael Connolly 58 Spiritual perspectives at the end of life 126Mark Cobb 59 Bereavement 128Pam Firth Index 131
£38.49
Taylor & Francis Ltd (Sales) Life at Home for People with a Dementia
Book SynopsisLife at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships â that is, the diversity of people living with a dementia â enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved. Trade Review‘This is an exciting, innovative and hugely informative book that is not afraid to face up to the symbolism of home and its place in the everyday lives of people with dementia and their families’. - Professor John Keady, The University of Manchester, UK Table of ContentsList of figures; List of tables; Foreword – a poem; Foreword; Acknowledgements; Chapter 1: Introduction; Part One: Understanding Life at Home; Chapter 2: Citizenships: The diversity of people living at home; Chapter 3: Enabling life at home; Chapter 4: Rethinking self-management and dementia; Part Two: Towards Social Justice; Chapter 5: Ethics and care for people with a dementia at home; Chapter 6: Technological enhanced care and citizenship; Chapter 7: Sharing responsibilities; Chapter 8: Care Manifesto; Index
£35.14
Taylor & Francis The International Handbook of Art Therapy in
Book SynopsisThe International Handbook of Art Therapy in Palliative and Bereavement Care offers a multicultural and international perspective on how art therapy can be of help to individuals, groups, families, communities, and nations facing death and dying as well as grief and loss.Over 50 art therapists from around the world write about the transforming power of art therapy in the lives of those facing terminal illness, dementia, loss, and grief. They offer practical descriptions and techniques for working with adults and children to guide professionals, including those new to using art therapy and creative approaches in end-of-life care services. This international handbook is essential reading for arts therapists, social workers, medical personnel, faith leaders, and psychologists interested in a collaborative and accessible approach to working with patients and families affected by loss.Trade Review"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's Kids"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's KidsTable of ContentsList of Figures List of Tables Preface Foreword SECTION ONE: ART THERAPY WITH INDIVIDUALS Chapter 1 Deepening the Inner World: When Art Therapy Meets Spiritual Needs Chapter 2 The Spiritual in Art Therapy at the End Of Life Chapter 3 Snapshot of Practice: Art Therapy and Acquired Visual Loss Chapter 4 Art Therapy and Juvenile NCL Chapter 5 Blurry Vision: Introducing Art Therapy to Palliative Care Patients Chapter 6 Snapshot of Practice: A Case of Individual Art Therapy Chapter 7a Religious Practice in Russia, Medical Settings, And End of Life Rituals Chapter 7b Addressing End of Life Care, Loss, And Bereavement in The Russian Federation Chapter 8 Stillbirth: Mourning Unspeakable Loss with Art Therapy And EMDR Chapter 9 The Empathic Mirror: Healing Grief and Loss Through Portrait Therapy at End of Life Chapter 10 Utilizing Tablet Computers in Art Therapy for Young People with Chronic and Life-Limiting Illnesses Chapter 11 Connecting and Belonging: Using Technology for Art Therapy in Palliative Care Chapter 12 Snapshot of Practice: Art Therapy in Hospice: The Florence Experience in Italy SECTION TWO: ART THERAPY FOR GROUPS, FAMILIES AND COMMUNITIES Chapter 13 Snapshot of Practice: Art Therapy in Paediatric Oncology Chapter 14 Art Therapy, Community Engagement, & Living and Dying Chapter 15 A Chorus of Angels, the Ripple of Water, and the Weight of Stone: Art Therapy and Artwork which Cradle both Family Carers and their Relative with Dementia Chapter 16 Snapshot of Practice: Researching the Outcomes of Art Therapy For Caregivers Of Patients At End-Of-Life Chapter 17 Wading in Knee Deep – The Art Therapist in Different End-Of-Life Settings Chapter 18 Coming Up for Air: Art Therapy with Children Affected by Childhood Cancer Chapter 19 An Art Therapist’s Approach to Total Pain Chapter 20 The Power of Creative Expression and Ritual: Integrating Art Therapy into A Bereavement Camp Chapter 21 Saying Goodbye: Grieving Families Chapter 22 ‘Time to Unwind’: Meitheal at the Crossroads - An Open Art Therapy and Music Therapy Group on the Specialist Palliative Care Inpatient Unit Chapter 23 Group Art Therapy using Telemedicine Technology for Patients Undergoing Chemotherapy Chapter 24 Snapshot of Practice: Mind-Body Art Grief Group Chapter 25 Beginning at The End SECTION THREE: ART THERAPY FOR CROSS-CULTURAL ENCOUNTERS, NATIONAL TRAGEDIES, AND DISENFRANCHISED GRIEF Chapter 26 Snapshot of Practice: Private Practice Art Therapy in Dubai Chapter 27 Art Therapy in Prison Hospice: A Compassionate Bridge Chapter 28 Killing Time: The Dying Art Therapy Group in A High Secure Hospital Chapter 29 Disenfranchised Grief: The Impact of Grief In The Military Chapter 30 Feeling the Pulse: An Art Therapist’s Response To Tragedy Chapter 31 Communitas & Soul-Healing: Arts Therapy Within the Loss-Upon-Loss of Natural Disaster Chapter 32 Snapshot of Practice: Notes on Palliative Care Art Therapy in Singapore Chapter 33 Healing Wounds - Meeting Māori At End of Life Chapter 34 Art Therapy’s Contribution to Alleviating the HIV Burden in South Africa Chapter 35 Narratives East West – Art Therapy in A Hospice in Northern India: A Patchwork of Cross-Cultural Encounters GLOSSARY Appendix ART THERAPY ASSOCIATIONS WORLDWIDE LIST OF CONTRIBUTORS Index
£90.24
Taylor & Francis Ltd End of Life Communication
Book SynopsisThis book examines the dialectic between fictional death as depicted in the media and real death as it is experienced in a hospital setting. Using a Terror Management theoretical lens, Davis and Crane explore the intersections of life and death, experience and fiction, to understand the relationship between them. The authors use complementary perspectives to examine what it means when we speak and think of death as it is conceived in cultural media and as it is constructed by and circulates between patients, health professionals, and supportive family members and friends.Layering analysis with evocative narrative and an intimate tone, with characters, plot, and action that reflect the voices and experiences of all project participants, including the authors' own, Davis and Crane reflect on what it means to pass away. Their medical humanities approach bridges health communication, cultural studies, and the arts to inform medical ethics and care.Table of Contents1. A Mortality Tale: Narrative Management of Death 2. Death as Vertigo: The Day Time Stood Still 3. Death as Disequilibrium: Things that Go ‘Bump’ in the Night 4. Death as a Cry for Help: An Unimaginable Prayer 5. Death as a Horrible Other: A Relationship with the Other Side 6. An Ode to Childhood’s Joy: An Antidote to the Hyperreality of Death 7. Death as a Jokester: The Last Laugh 8. Death as a Relationship: Death, Love, and Loss 9. Death as a Lover: Eternal Flame 10. Death as a Weapon: Dying for a Cause 11. Death as a Foe: Waging War on Death 12. Death as a Roommate: Living with Death 13. Death as a Way of Life: Living Death 14. Death as a Threshold: Letting Go Coda
£35.14
St. Martin's Griffin Modern Death
Book SynopsisWarraich''s elegant and poignant book takes us on an unforgettable journey....He succeeds in humanizing a complex topic. Siddhartha Mukherjee, New York Times bestselling author of The GeneThere is no more universal truth in life than death. No matter who you are, it is certain that one day you will die, but the mechanics and understanding of that experience will differ greatly in today's modern age. Dr. Haider Warraich is a young and brilliant new voice in the conversation about death and dying. Dr. Warraich takes a broader look at how we die today, from the cellular level up to the very definition of death itself. The most basic aspects of dyingthe whys, wheres, whens, and howsare almost nothing like what they were mere decades ago. Beyond its ecology, epidemiology, and economics, the very ethos of death has changed. Modern Death, Dr. Warraich's debut book, explores the rituals and language of dying that have develope
£17.99
St. Martin's Griffin The Inevitable
Book SynopsisA riveting, incisive, and wide-ranging book about the Right to Die movement, and the doctors, patients, and activists at the heart of this increasingly urgent issue.*Finalist for the New York Public Library''s 2022 Helen Bernstein Book Award for Excellence in Journalism A remarkably nuanced, empathetic, and well-crafted work of journalism.Brooke Jarvis, The New YorkerMore states and countries are passing right-to-die laws that allow the sick and suffering to end their lives at pre-planned moments, with the help of physicians. But The Inevitable moves beyond margins of the law to the people who are meticulously planning their final hoursfar from medical offices, legislative chambers, hospital ethics committees, and polite conversation. Further still, it shines a light on the people who help them: loved ones and, sometimes, clandestine groups on the Internet that together form the euthanasia underground.Katie Engelhart, a veteran j
£17.09
John Wiley and Sons Ltd Palliative Nursing
Book SynopsisPalliative Nursing is an evidence-based practical guide for nurses working in areas of practice where general palliative care is provided. This may be in hospitals, nursing homes, dementia units, the community and any other clinical areas which are not classified as specialist palliative care. This book first explores the history and ethos of palliative care, and then looks at palliative nursing across various care settings. It then looks at palliative nursing care for people with specific illnesses, including heart failure, dementia, chronic obstructive pulmonary disease, cancer, and neurological conditions. Palliative care for children and young people is discussed, and then the book finally looks at education and research in palliative nursing. Palliative Nursing will be essential reading for all nurses working with palliative care patients in a non specialist role, i.e. in hospitals, primary care and nursing homes, as well as nursing students. SPECIALTrade Review“The book provides the reader with a good understanding of how to provide effective palliative care and how to apply it to practice; I have found the reference to specific illnesses particularly helpful and informative for within practice.” Faye Elliott, 3rd year nursing student, University of ManchesterTable of ContentsPreface. Contributors. Introduction. PART 1 – ADULT PALLIATIVE CARE. SECTION 1 – HISTORY AND ETHOS OF PALLIATIVE CARE. 1. The History of Palliative Care. 2. Definitions and Aims of Palliative Care. 3. Providing Palliative Care for Marginalised and Disenfranchised People. SECTION 2 – PALLIATIVE NURSING CARE ACROSS CARE SETTINGS. 4. Palliative Nursing Care in the Acute Hospital. 5. Palliative Nursing Care in the Community. 6. Palliative Nursing Care in Nursing and Residential Care Homes. 7. Palliative Nursing Care in Hospices. SECTION 3 – PALLIATIVE NURSING CARE FOR PEOPLE WITH SPECIFIC ILLNESSES. 8. Palliative Nursing Care in Heart Failure. 9. Palliative Care in Chronic Obstructive Pulmonary Disease. 10. Palliative Care for People Who Have a Dementia. 11. Palliative Nursing Care in Other Neurological Conditions. 11.1 – Huntington’s Disease. 11.2 – Motor Neurone Disease. 11.3 – Multiple Sclerosis. 11.4 – Parkinson’s Disease. 12. Palliative Care for People in End Stage Renal Disease. 13. Palliative Care Issues for People with Cancer. 14. Palliative Care for People with Human Immunodeficiency Virus (HIV) and Acquired Imunodeficiency Syndrome (AIDS). . PART 2 – PALLIATIVE CARE FOR CHILDREN AND YOUNG PEOPLE. 15. The History and Ethos of Palliative Care for Children and Young People. 16. Challenges of Paediatric Palliative Care in The Hospital Setting. 17. Children’s Palliative Care in the Hospice and the Community. . PART 3 – EDUCATION AND RESEARCH. 18. Palliative Nursing Education and Continuing Professional Development. 19. Palliative Care Research.
£42.26
John Wiley and Sons Ltd Care of the Dying and Deceased Patient
Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.
£30.56
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£15.68
Johns Hopkins University Press A Gift of Time
Book SynopsisNow updated and expandeda gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experiencefrom receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: Expands the content substantially to incorporate new research and guidelines Features additional vignettes from more tTable of ContentsIntroduction1. The New: Receiving Your Baby's Diagnosis2. What Now? Making Decisions about Continuing Your Pregnancy3. The Emotional Journey: Grieving and Adjusting to Your New Path4. Waiting with Your Baby: Settling in for the Rest of your Pregnancy5. Making Medical Decisions: Choosing Care for Your Baby6. Getting Ready: Preparing for Your Baby's Birth, Life, and Death7. Welcoming Baby: Birth Experiences and Meeting Your Baby8. Saying Goodbye: Holding On and Letting Go9. Continuing Your Journey: After Your Baby Dies10. ReflectionsAppendix: Sample Outline for a Perinatal Palliative Care Birth PlanNotesIndex
£22.50
Elsevier Health Sciences Textbook of Interdisciplinary Pediatric
Book SynopsisIntends to inform interdisciplinary teams about palliative care of children with life-threatening illness. This title addresses domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families.Table of ContentsFundamentals Needs Assessment Interdisciplinary Care and Symptom Control The Team Approach and the Family Research and education
£60.29
Rowman & Littlefield Hospice Voices
Book SynopsisAs a part-time hospice volunteer, Eric Lindner provides companion care to dying strangers. They're chatterboxes and recluses, religious and irreligious, battered by cancer, congestive heart failure, Alzheimer's, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he's not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lTrade ReviewIn this endearing and personal book, Attorney and entrepreneur Lindner details his experiences volunteering in hospice with colorful storytelling, practical advice, and encouragement for those coming to terms with the end of life. As a new volunteer, Lindner learns that there are 5300 hospices in the U.S. and they rely heavily on volunteers. While Lindner’s early training included “dos and don’ts,” he tends to follow his own path, causing some raised eyebrows and, in one case, nearly landing himself in a lawsuit. Still, Lindner’s heart is in the right place and he soldiers on with a positive attitude, especially given that a hospice volunteer never knows what he’s stepping into. One thing is for certain, a hospice volunteer must deal with profound moral dilemmas and emotional issues. Lindner’s open access to patients combined with his hectic travel schedule has him receiving calls at all times of day and night and on various continents and he’s frank about these life and death issues. Lindner takes on this heavy subject from a special perspective and he does so eloquently, providing insight and inspiration to those who read along. * Publishers Weekly *Author Eric Lindner's debut is somewhat like an Irish wake. There are tears, but also joy and surprising levity. His writing honors and gives voice to those intensely personal moments that patients and their loved ones endure and find reasons to celebrate. . . .Lindner urges us to be still, present and listen with all our sensory antennae to the winks and whispers, hugs and mumbles, sighs and chuckles of those on the cusp of the Hereafter. The unspoken, the look, the long deep breath, the tear in the corner of the eye, and the tight grip of the hand—these are the unspoken things that speak volumes. As a 'companion caregiver,' he ushers us into the lives of seven special patients, illuminating what's relevant to and for the dying—and the living. As far as the dying are concerned, Lindner observes, one of the most relevant things 'is preserving a shred of privacy and dignity, which can be tough when you're incontinent, your wig's on backward, or you can't find your false teeth.' . . . Lindner is an honest teacher, not one to shy away from highlighting his own foibles. Yet he demonstrates how all of us, even the most 'unskilled,' can help alleviate pain and suffering -- while learning great lessons in the process. He brings to us patients with whom we can all sympathize and identify. Lindner's stories echo Khalil Gibran, who said, 'Pain breaks the shell that encloses understanding.' * The Huffington Post *Hospice Voices: Lessons For Living at the End of Life is a memoir written by a lay hospice volunteer who shares with us his moving story of spending time with those facing their mortality. It's a beautiful book, deeply instructive to the professional and layperson alike. ... Hospice Voices is a truly beautiful work of love, written in heartfelt and genuine prose that clearly demonstrates Lindner's love and respect for his clients, as well as his clear-eyed views on mortality and illness, not to mention his own internal process during the course of his volunteering. Rather than the words of a professional, Lindner's book is a love song written by a layperson; a love song infused with understanding, pathos, authenticity and raw honesty. Sharing deeply about his family, his own life, as well as his young daughter's experience of being diagnosed with thyroid cancer, the author's personality shines brilliantly through his flowing, simple yet moving prose. I highly recommend Hospice Voices for anyone who has experienced the death of a loved, expects to experience the death of a loved one, or who thinks that they themselves may die one day. Does that seem like I'm recommending it to everyone? I most certainly am. * Digital Doorway *This is an honest, pull no punches look at coming to terms with the one thing we will all do—die. In this well-documented and highly-readable book, Lindner proves an adept chronicler of the individual human stories that make up his journey to understand that beauty and grace can exist at the end stages of life. Lindner deftly reminds us of the power of the small things, the simple gestures and the importance of dignity for those that face a terminal situation. Throughout the book, we meet people approaching the end of life in their own individual ways, with different measures of love, faith and family. This book simultaneously opened my heart and broke it as each story taught me how hope and dignity can exist even in terminal situations. As a hospice volunteer, Lindner teaches us all that the ability to ease and bear witness to someone’s journey at the end stage of life is perhaps the ultimate gift one human can give another. -- Lee Woodruff, NY Times #1 Bestselling AuthorHeart attacks, strokes, and heart failure claim more lives than any other disease state. Over my career I've seen my share of sadness due to the ravages of end-stage cardiovascular disease. But I've also seen terminal patients and their loved ones wring out great joy and meaning in the final months of life. This book is joyful, insightful, witty, and truly meaningful. It tugged at my heart, tickled my funny bone, and served up numerous insights and tips that had escaped me when trying to advise patients and their families. What a marvelous set of stories that should be read by all adults. It inspires us to live life to the fullest and respect and learn from the past in order to better deal with future uncertainty. -- Roger S. Blumenthal, M.D., FAHA, FACC, Kenneth Jay Pollin Professor of Cardiology; director at Johns Hopkins Ciccarone Center for the Prevention of Heart Diseas; author of many works including Preventive Cardiology: Companion to Braunwald’s Heart DiseaseAs a physician who cares for the chronically ill and dying I all too often see people who are alone in the midst of their suffering. Trained volunteers, like Eric Lindner, play such an immensely important role in providing that companionship to the patient. His book reminds all of us that we are invited to attend to others – not to change them, not to judge them, not to fix them. We are there simply to listen and to be witnesses to the suffering and joy of others in their living and in their dying. Presence to others, as Lindner describes so poignantly in his book, is a transformative sacred act for the patient and for the companion. Eric Lindner’s book inspires all of us to enter the sacredness of living and dying with openness and courage. -- Christina M. Puchalski, MD, MS, FACP; director of George Washington University’s Institute for Spirituality and Health; professor of George Washington University School of Medicine and Health SciencesThis book intrigued me because of the author’s pledge to donate 100% of his profits to charity. His book moved me because it's an illustration that there are many ways we can provide love and justice in this world. We think of love in our daily affections for those close to us. We think of justice in the work of social movements. But all religions teach that at the heart of justice is love, hospitality, and kindness to strangers. It is hard to imagine a better example of exactly that than this book, and in reading it, one comes away knowing that as in sacred scripture, Lindner has encountered and served angels themselves. -- Timothy L. Fort, PhD, JD, Everleigh Professor of Business Ethics, Kelley School of Business, Indiana University; author of many works including Business, Integrity, and Peace: Beyond Geopolitical and Disciplinary BoundariesEric Lindner gives voice to those in their final days so that we may better listen, love, and learn from their example. A must read for any caregiver - volunteer or family. -- Vince Evans, MSW, Vice President of Patient Services, Hospice of the ValleyBeautiful, funny, poignant. I was mesmerized. -- Sen. Mark Warner (D-VA)I started Hospice Voices and read it straight through. I was deeply moved by the extraordinary people I met in the book. -- Will Schwalbe, author of the New York Times bestseller, The End of Your Life Book ClubI love this book! It’s a brilliant story…well-told. -- John Toal, BBC RadioEric Lindner’s book Hospice Voices: Lessons for Living at the End of Life is a powerful testament to hospice volunteers. The Post’s article and Lindner’s book are the best gifts one can give to a family suffering through one of life’s most difficult moments. * The Instrumentalist *"This book may be of interest to anybody who works in palliative care, and of particular value to those who coordinate our volunteers and to the volunteers (and trainee volunteers) themselves." * International Association for Hospice & Palliative Care *Table of ContentsAcknowledgements Preface 1: An Aptly Named Caregiver 2: Find the Key That Unlocks Empathy 3: Adversity Crumbles When Laughed At 4: Ownership Isn’t All That it’s Cracked Up to Be 5: Talk Less, Communicate More 6: We’re Only as Sick as Our Secrets 7: Have Guns, Will Travel 8: Live Discharge 9: DOs and DON’Ts
£11.69
John Wiley and Sons Ltd Monitoring the Critically Ill Patient
Book SynopsisMonitoring the Critically Ill Patient is an invaluable, accessible guide to caring for critically ill patients on the general ward. Now fully updated and improved throughout, this well-established and handy reference guide text assumes no prior knowledge and equips students and newly-qualified staff with the clinical skills and knowledge they need to confidently monitor patients at risk, identify key priorities, and provide prompt and effective care. This new edition includes the followingfive new chapters: Monitoring the critically ill child Monitoring the critically ill pregnant patient Monitoring the patient with infection and related systemic inflammatory response Monitoring a patient receiving a blood transfusion Monitoring pain Trade Review“This would be a helpful guide for nurses working in any acute setting; acute wards, coronary care, critical care outreach or the emergency department. It is also a good introductory tool for critical care nurses explaining the principles of assessment, different types of invasive monitoring and waveforms and so on.” (Nursing Times, 17 October 2012)Table of ContentsForeword vii Preface ix Contributors xi 1 Recognition and Management of the Deteriorating Patient 1 2 Assessment of the Critically Ill Patient 25 3 Monitoring Respiratory Function 39 4 Monitoring Cardiovascular Function 1: ECG Monitoring 91 5 Monitoring Cardiovascular Function 2: Haemodynamic Monitoring 115 6 Monitoring Neurological Function 154 7 Monitoring Renal Function 177 8 Monitoring Gastrointestinal Function 197 9 Monitoring Hepatic Function 209 10 Monitoring Endocrine Function 218 11 Monitoring Nutritional Status 231 12 Monitoring Temperature 244 13 Monitoring Pain 258 14 Monitoring a Patient Receiving a Blood Transfusion 267 15 Monitoring the Patient with Infection and Related Systemic Inflammatory Response 281 16 Monitoring the Critically Ill, Pregnant Patient 302 17 Monitoring the Critically Ill Child 320 18 Monitoring During Transport 336 19 Record Keeping 346 Index 355
£24.65
House of Anansi Press Death Interrupted
£16.19
Simon & Schuster The Art of Dying Well
Book SynopsisThis “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe).“A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explTrade Review“Butler’s factual, no-nonsense tone is surprisingly comforting, as are her stories of how ordinary folks confronted difficult medical decisions… Her thoughtful book belongs on the same shelf as Atul Gawande’s best-selling Being Mortal and Barbara Ehrenreich’s Natural Causes.” —The Washington Post“A roadmap to the end… combines medical, practical, and spiritual guidance.” —Kate Tuttle, The Boston Globe"A commonsense path to define what a 'good' death looks like." —USA Today“An empowering guide that clearly outlines the steps necessary to avoid a chaotic end in an emergency room and to prepare for a beautiful death without fear.” —Shelf Awareness“Straightforward, well-organized, nondepressing… Free of platitudes, Butler’s voice makes the most intimidating of processes—that of dying—come across as approachable. Her reasonable, down-to-earth tone makes for an effective preparatory guide.” —Publishers Weekly“I unwrap new books about end-of-life issues with a certain world-weariness. That changed when I received a copy of Katy Butler’s The Art of Dying Well… For all of us boomers who have wondered how we might apply what we learned from the passing of our parents, and make the process smoother -- and yes, profound -- for our children, here are some really good answers.” —Barbara Peters Smith, Sarasota Herald-Tribune“This book is filled with deep knowledge and many interesting experiences. It is a guide for staying as healthy and happy as possible while aging, and also shows how important it is to be medically informed and know our rights in the communities where we live, in order to stay in charge of our lives and therefore less afraid of the future. Katy Butler has written a very honest book. I just wish I had read it ten years ago. You can do it now!” —Margareta Magnusson, author of The Gentle Art of Swedish Death Cleaning“The Art of Dying Well is a guide to just that: how to face the inevitable in an artful way. Katy Butler has clear eyes and speaks plainly about complicated decisions. This book is chock-full of good ideas.” —Sallie Tisdale, author of Advice for Future Corpses“In plain English and with plenty of true stories to illustrate her advice, Katy Butler provides a brilliant map for living well through old age and getting from the health system what you want and need, while avoiding what you don't. Armed with this superb book, you can take back control of how you live before you die.” —Diane E. Meier, MD, Director, Center to Advance Palliative Care “Katy Butler has given us a much needed GPS for navigating aging and death. The Art of Dying Well is a warm, wise and straightforward guide, hugely helpful to anyone—everyone—who will go through the complex journey to the end of life.” —Ellen Goodman, Founder, The Conversation Project “No, you won’t survive your death, but you can live until the very last moment without the pain and humiliation that inevitably accompany an over-medicalized dying process. Katy Butler shows how, and I am profoundly grateful to her for doing so.” —Barbara Ehrenreich, author of Natural Causes“This is a book to devour, discuss, dog-ear, and then revisit as the years pass. Covering matters medical, practical, financial and spiritual – and, beautifully, their intersection – Katy Butler gives wise counsel for the final decades of our ‘wild and precious’ lives. A crucial addition to the bookshelves of those seeking agency, comfort and meaning, The Art of Dying Well is not only about dying. It’s about living intentionally and in community.” —Lucy Kalanithi, MD, FACP, Clinical Assistant Professor of Medicine, Stanford School of Medicine“The Art of Dying Well is the best guidebook I know of for navigating the later stages of life. Katy Butler’s counsel is simple and practical, but the impact of this book is profound. A remarkable feat.” —Ira Byock, MD, author of Dying Well and The Best Care Possible, Active Emeritus Professor of Medicine, the Geisel School of Medicine at DartmouthPraise for Katy Butler and Knocking on Heaven's Door“This is a book so honest, so insightful and so achingly beautiful that its poetic essence transcends even the anguished story that it tells. Katy Butler’s perceptive intellect has probed deeply, and seen into the many troubling aspects of our nation’s inability to deal with the reality of dying in the 21st century: emotional, spiritual, medical, financial, social, historical and even political. And yet, though such valuable insights are presented with a journalist’s clear eye, they are so skillfully woven into the narrative of her beloved parents’ deaths that every sentence seems to come from the very wellspring of the human spirit that is in her." —Dr. Sherwin B. Nuland, author of How We Die: Reflections of Life's Final Chapter“Knocking on Heaven’s Door is a thoroughly researched and compelling mix of personal narrative and hard-nosed reporting that captures just how flawed care at the end of life has become." —Abraham Verghese, New York Times Book Review“This is some of the most important material I have read in years, and so beautifully written. It is riveting, and even with parents long gone, I found it very hard to put down. ... I am deeply grateful for its truth, wisdom, and gorgeous stories—some heartbreaking, some life-giving, some both at the same time. Butler is an amazing and generous writer. This book will change you, and, I hope, our society." —Anne Lamott, author of Help, Thanks, Wow"Shimmer[s] with grace, lucid intelligence, and solace." —Lindsey Crittenden, Spirituality and Health Magazine"[A] deeply felt book...[Butler] is both thoughtful and passionate about the hard questions she raises — questions that most of us will at some point have to consider. Given our rapidly aging population, the timing of this tough and important book could not be better." —Laurie Hertzel, Minneapolis Star Tribune"This braid of a book...examines the battle between death and the imperatives of modern medicine. Impeccably reported, Knocking on Heaven's Door grapples with how we need to protect our loved ones and ourselves." —More Magazine"A forthright memoir on illness and investigation of how to improve end-of-life scenarios. With candidness and reverence, Butler examines one of the most challenging questions a child may face: how to let a parent die with dignity and integrity. Honest and compassionate..." —Kirkus Reviews“Katy Butler’s science background and her gift for metaphor make her a wonderfully engaging storyteller, even as she depicts one of our saddest but most common experiences: that of a slow death in an American hospital. Knocking on Heaven’s Door is a terrible, beautiful book that offers the information we need to navigate the complicated world of procedure and technology-driven health care.” —Mary Pipher, author of Reviving Ophelia and Seeking Peace: Chronicles of the Worst Buddhist in the World"Katy Butler's new book—brave, frank, poignant, and loving—will encourage the conversation we, as a society, desperately need to have about better ways of dying. From her own closely-examined personal experience, she fearlessly poses the difficult questions that sooner or later will face us all.” —Adam Hochschild, author of King Leopold's Ghost and To End All Wars"This is the most important book you and I can read. It is not just about dying, it is about life, our political and medical system, and how to face and address the profound ethical and personal issues that we encounter as we care for those facing dying and death. [This book's] tenderness, beauty, and heart-breaking honesty matches the stunning data on dying in the West. A splendid and compassionate endeavor." —Joan Halifax, PhD, Founding Abbot, Upaya Institute/Zen Center and Director, Project on Being With Dying: Cultivating Compassion and Fearlessness in the Presence of Death"This beautifully written and well researched book will take you deep into the unexplored heart of aging and medical care in America today. With courage, unrelenting honesty, and deepest compassion, ... Knocking on Heaven’s Door makes it clear that until care of the soul, families, and communities become central to our medical approaches, true quality of care for elders will not be achieved." —Dennis McCullough, author of My Mother, Your Mother: Embracing "Slow Medicine," the Compassionate Approach to Caring"Butler’s advice is neither formulaic nor derived from pamphlets... [it] is useful, and her challenge of our culture of denial about death necessary... Knocking on Heaven’s Door [is] a book those caring for dying parents will want to read and reread. [It] will help those many of us who have tended or will tend dying parents to accept the beauty of our imperfect caregiving." —Suzanne Koven, Boston Globe"Knocking on Heaven's Door is more than just a guide to dying, or a personal story of a difficult death: It is a lyrical meditation on death written with extraordinary beauty and sensitivity." —San Francisco Chronicle"[Knocking on Heaven's Door is] a triumph, distinguished by the beauty of Ms. Butler's prose and her saber-sharp indictment of certain medical habits. [Butler offers an] articulate challenge to the medical profession: to reconsider its reflexive postponement of death long after lifesaving acts cease to be anything but pure brutality." —Abigail Zuger, MD, The New York Times -- Abigail Zuger, MD * New York Times *
£16.10
Nova Science Publishers Inc Palliative Care: Oncology Experience from Hong
Book Synopsis
£78.39
Nova Science Publishers Inc Palliative Care: The Role and Importance of
Book SynopsisThe incidence of cancer is alarmingly increasing worldwide. The major problem that the medical profession is currently facing refers to "late presentation" patients who, for the most part, have reached the terminal stage of the illness. For these people, the only treatment option left is palliative care. Various patterns of palliation have been in practice in every culture and in every ethnic group for generations. Unfortunately, we still lack significant and sustained investment in research related to the practice of palliative care. Authors from around the globe seek more investment of public and private funds to investigate ways to improve the bedside practice of palliative care. Modern palliative care concepts were established by Dame Cicely Saunders, from London, UK, right after World War II. It is only in the past 15 to 20 years that this new discipline started to develop in the developing world. However, we still lack the essential basic biological processes involved in relieving the suffering of cancer patients while receiving palliative measures throughout the trajectory of the disease. This book owes its origins in large measure to physicians and nurses in 30 countries globally, who decided to devote their time, energy, compassion and goodwill, to the promotion of palliative care in their countries and communities, yet they lack solid evidence-based data to rely upon while extending their treatment to both patients and family members. The goal, in part, is to bridge the gap between scientists and clinicians from developed countries and those in developing countries. We have been aware of the variances between cultures, traditions, beliefs and practices. I am continually struck by the seemingly diametrical views of "knowing" and cultures and the strong overlaps that might give rise to new ideas. We hope that these new volumes will serve to inspire health professionals'' and administrators'' interests and appreciation for the investment in basic and clinical research that will serve to advance our understanding of the underlying physical and emotional factors involved while extending palliative care to patients suffering from cancer and other non-communicable illnesses.
£163.19
Nova Science Publishers Inc Palliative Care: The Role and Importance of
Book SynopsisThe incidence of cancer is alarmingly increasing worldwide. The major problem that the medical profession is currently facing refers to "late presentation" patients who, for the most part, have reached the terminal stage of the illness. For these people, the only treatment option left is palliative care. Various patterns of palliation have been in practice in every culture and in every ethnic group for generations. Unfortunately, we still lack significant and sustained investment in research related to the practice of palliative care. Authors from around the globe seek more investment of public and private funds to investigate ways to improve the bedside practice of palliative care. Modern palliative care concepts were established by Dame Cicely Saunders, from London, UK, right after World War II. It is only in the past 15 to 20 years that this new discipline started to develop in the developing world. However, we still lack the essential basic biological processes involved in relieving the suffering of cancer patients while receiving palliative measures throughout the trajectory of the disease. This book owes its origins in large measure to physicians and nurses in 30 countries globally, who decided to devote their time, energy, compassion and goodwill, to the promotion of palliative care in their countries and communities, yet they lack solid evidence-based data to rely upon while extending their treatment to both patients and family members. The goal, in part, is to bridge the gap between scientists and clinicians from developed countries and those in developing countries. We have been aware of the variances between cultures, traditions, beliefs and practices. I am continually struck by the seemingly diametrical views of "knowing" and cultures and the strong overlaps that might give rise to new ideas. We hope that these new volumes will serve to inspire health professionals'' and administrators'' interests and appreciation for the investment in basic and clinical research that will serve to advance our understanding of the underlying physical and emotional factors involved while extending palliative care to patients suffering from cancer and other non-communicable illnesses.
£163.19
Rowman & Littlefield Dealing with Doctors, Denial, and Death: A Guide
Book SynopsisOften when death is the inevitable and impending outcome of a health diagnosis, doctors are reluctant to discuss alternatives to treatment, feeding into a culture of denial that can result in expensive, ineffective, and unnecessary over treatment that may or may not extend life but almost always damages the quality of life. Here, a seasoned doctor and researcher looks at the ways in which we are accustomed to treating illness at all costs, even at the expense of the quality of a patient’s life. He considers our culture of denial, the medical profession’s role in over treating patients and end of life care, and the patient’s options and role in these decisions. The goal is to help patients and families make informed decisions that may help the seriously ill live better with their illnesses. This profoundly empowering book will help people make informed decisions about their lives and medical care, especially those who have a life-threatening or life-changing illness themselves or have a family member living with one. Incorporating specific questions for patients to ask their doctors and discuss with their families, the book provides an analysis of various forces that influence our decision-making. The book also examines the professional, psychological, economic, and social pressures that influence physicians treating seriously ill patients, including those that lead doctors to recommend treatments that may be futile. The book concludes with resources that seriously ill patients and their families can call upon to give them support and assist with the logistical, emotional, and spiritual challenges of end-of-life care.Trade Review'Accepting death and making the time before death peaceful and comforting is one of the best gifts we can give to ourselves, our family, and our loved ones,' says oncologist and medical ethicist Mangalik as he takes on a big and often avoided topic in his debut book. His goal is to empower patients to avoid unnecessary medical treatments and to 'prepare you and your family for you to have a comfortable, peaceful death.' He educates readers on all aspects of the end of life, including accepting the inevitability of death, understanding why doctors over-treat—one reason is their 'refusal to accept failure'; another is 'competitiveness and ambition'—and resisting the urge to demand unrealistic treatments. There is a great deal of helpful information in these pages, on topics such as interpreting statistics and end-of-life directives. Among many good points the author makes is that patients may 'go for a treatment based on the best possible scenario' without understanding that 'improvement of heart function by x percent' might not actually make the patient feel better.... Readers will find much of value. * Publishers Weekly *Mangalik, who spent 50 years as an oncologist, radiates compassion in this common-sense guide to planning a 'good death.' People can take charge of how they want to die, ideally free of pain and surrounded by family and friends. 'Why do we not prepare for our own death?' Mangalik asks. Doctors tend to overdo treatment for many reasons, including financial incentives and fear of lawsuits, but patients don’t need to just say yes. He notes that patients can legally refuse feeding tubes and intravenous fluids. This thought-provoking book is meant for the healthy as well as those who are ill. 'The best time to ask yourself what you do, and don’t, want is when you are in good health,' Mangalik advises. He discloses that one big reason for his advocacy for honesty and openness is memories of how his own family stayed mum when his mother died in her thirties of an acute gallbladder infection. Mangalik provides invaluable information everyone can use to be prepared to face the inevitability of death and celebrate each life. * Booklist *Dealing with Doctors, Denial, and Death is a life-affirming, holistic look at approaches to pain, quality of life, treatment, and death. Mangalik examines these topics from multiple perspectives—the patient’s (and their family), the physician’s, differing world views, and the medical-industrial complex’s influence on the marketing and ‘incentivization’ of advanced medical technology and pharmacology. Central to this discussion is the patient-physician dyad, which is informed by sharing information and values, but which is often fraught by opposing understandings of what is considered reasonable treatment. Complicating these interactions are beliefs that reasonable means to treat at all costs, or that the judgment that deciding less treatment is equated with failure. Mangalik’s exploration of hidden influences ranges across world views of life and death, incentives fostering overtreatment, the downside of medical specialization, and most notably, personal denial. The reader is invited to consider what could be expressed as the long view, wherein death is part of life (exemplified by psychiatrist Elisabeth Kübler-Ross) and that death is the final act of living (a belief of Buddha). Mangalik’s humane and humble treatment of people, doctors, and death is strongly recommended.... Summing Up: Highly recommended. All readers. * CHOICE *Dying in America has become, unfortunately, much more complicated and fraught with hazards than it needs to be. Dr. Mangalik has given us a much needed, and very practical, guide to navigating the process for ourselves and our loved ones. His insights and advice provide concrete strategies for ensuring that end-of-life care is compassionate, appropriate, and dignified. -- Robert Truog, MD, Frances Glessner Lee Professor of Medical Ethics, Anaesthesia, & Pediatrics; Director, Center for Bioethics, Harvard Medical School; Executive Director, Institute for Professionalism & Ethical Practice; Senior Associate in Critical Care Medicine, Boston Children's HospitalDr. Aroop Mangalik’s book is a masterful, sensitive, and eminently readable discussion of one of life’s great, and always changing, problems: how to think about suffering, dangerous illness, and death. Like it or not, almost all of us will face that situation. His book brings considerable experience and insight to an ancient problem that is forever inescapable. -- Daniel Callahan, cofounder and President Emeritus, The Hastings CenterDrawing on five decades of experience, oncologist Aroop Mangalik succinctly describes the steps patients and families can take to ease the end-of-life passage. With great clarity he shows readers why doctors are prone to over-treat and why the goal of comfort has become so elusive for so many. Dealing with Doctors, Denial and Death is a necessary, welcome guide through the maze of our problematic health care system. Readers will find useful information about CPR, hospice and palliative care, how to reduce non-beneficial treatments and most importantly, what to ask doctors when facing difficult medical choices. -- Sharon R. Kaufman, author of Ordinary Medicine: Extraordinary Treatments, Longers Lives, and Where to Draw the LineTable of ContentsPreface Introduction 1: Dealing with the Inevitability of Death 2: Communication, Hope and Honesty 3: Religion, Healing and Death 4: Patient Autonomy and Medical Expertise: How to Find a Balance 5: Planning for Your Life, Illness and Death 6: Do No Harm 7: Statistics: They Help and They Fool 8: Why Doctors Over-Treat: Training and Mindset 9: Why Doctors Over-Treat: Pressure from Society and the Medical Establishment 10: Why Doctors Over-Treat: Flaws in the Way They Deal with Patients 11: When Doctors Say “No” 12: Why Patients Demand Unrealistic Treatments 13: How to Reduce Over-Treatment 14: How to Proceed toward Comfort
£18.99
Rowman & Littlefield Demystifying Hospice: Inside the Stories of
Book SynopsisHospice care is available to patients and families dealing with terminal illness. People often do not avail themselves of hospice care because they don’t understand what it entails. Many wait until their last few days to request this extraordinary comfort care instead of using the full six months available to them through Medicare and other insurance options. Demystifying Hospice describes through stories good news about end-of-life issues. Written from the perspective of a licensed social worker with experience in public and private hospitals, hospice, and the American Cancer Society, these first-hand accounts of patients, family members, hospice workers and others will lift spirits, touch hearts, and illustrate the advantages of hospice care. These are real-life examples of personalized comfort care, offered by an interdisciplinary team, where ever the patient lives. Each story addresses some aspect of helping families through the caregiving and grieving process, which are part-and-parcel of a serious illness, and offers comfort and understanding to readers who may be going through similar experiences. This book describes hope, healing, and support through difficult times. Trade Review[Clayton’s] stories address when hospice is appropriate, how and where hospice care is given, the needs of the dying and their caregivers, how care is personalized, and most importantly the benefits of meaningful relationships between all involved—patients, families, and their lay and professional care providers. An added benefit of the story format is that it demonstrates through examples how to establish meaningful relationships, making the book valuable not only to people and families approaching the end of life but also professional healthcare providers, who often lack experience giving end of life care and who may themselves be grappling with their own uncertainties * CHOICE *“Hospice is extraordinary!” With this opening line, Clayton, a social worker and sociologist, declares her advocacy. In what she calls “a gentle book about a difficult subject,” she spells out the benefits of compassionate care for people who can’t get more “curative” treatment, or who don’t want more of it.... Clayton offers useful advice, including good tips on how to make last days more pleasant for both the patient and caregivers. Deepened by Clayton's feeling that it is an honor to find ways to help people say goodbye to their loved ones, this guide is invaluable. * Booklist *Demystifying Hospice is an excellent addition to the hospice literature. Clayton has detailed wonderful stories about the hospice experience. It is well written and filled with compassion. I strongly recommend this book for all those who are interested in Hospice and learning more about the Hospice philosophy of care. -- Robert W. Buckingham, Professor of Public Health, University of Michigan-FlintKaren Clayton invites us into the world of hospice through stories that reflect her passion for her patients and families and a rare view into the role of the hospice social worker. It provides a missing piece for the training of interdisciplinary team members regarding creating conversations focused on the psychosocial and emotional issues, an easy read, and filled with resources and information. -- Carla Jolley, Palliative Care Nurse Practitioner/Coordinator of Palliative Care Consult Service, WhidbeyHealth Medical CenterDemystifying Hospice provides incredibly useful and easily accessible information for patients and families facing incurable illness, including detailed description of hospice services and philosophy. Karen "Kay" Clayton's use of compelling stories, gathered throughout a career of service, demonstrates the healing power that can be harnessed through the hospice approach. Any person who feels the challenge to help a loved one through terminal illness would find this reading a blessed gift, with equal doses of practical wisdom and inspirational stories. This introduction to hospice care displays delicate conversations with those facing fear and uncertainty, alongside whispered stories of exceptional daily service that is the 'stuff' of hospice. The reader will grow to understand through this reading the reasons and ways to access hospice, the teams that fuel hospice service, and the societal, economic, and institutional barriers that limit and delay hospice services for many. I strongly recommend this book as a 'stocking stuffer' to those many who encounter loss, challenge, or discomfort through advanced illness or aging. -- Daniel L. Handel, Professor, University of Colorado School of MedicineTable of ContentsINTRODUCTION “Why have I written this Book?”WHAT IS HOSPICE and HOW DOES IT WORK?CHAPTER 1 FIRST VISITS BY THE SOCIAL WORKERCHAPTER 2 HOSPICE CARE AT HOMECHAPTER 3 CARING FOR THE CAREGIVERCHAPTER 4 HOSPICE IN A PLACE YOU CALL HOMECHAPTER 5 FINDING MEANINGCHAPTER 6 DRAMATIC CHALLENGESCHAPTER 7 SOCIAL ISOLATIONCHAPTER 8 SAYING GOODBYECHAPTER 9 REMEMBERINGCHAPTER 10 MIXED FEELINGS ABOUT END-OF-LIFE CARECHAPTER 11 MAKING GOOD END-OF-LIFE DECISIONSCHAPTER 12 REFLECTIONS
£17.09
Rowman & Littlefield The Journey's End: An Investigation of Death and
Book SynopsisIn the tradition of Atul Gwande’s Being Mortal, this compassionate work helps individuals develop a more accepting view of dying while teaching them what to expect and how to navigate the healthcare system at end of life.The health care system has a narrow view of how to care for patients in elderhood. That view focuses on extending life with machines and procedures, not caring holistically for the patient. As such, patients will likely spend the last years of their lives in long-term care facilities and their final weeks in an ICU. Our fear of death contributes to this model for health. Dying at home, peacefully, and surrounded by family is almost impossible in our world. Fittingly, the central idea of this book is that in old age, or when facing a terminal diagnosis, it is more important to understand your life rather than to extend it. While this may seem simple, its implications are profound. A natural death means accepting that, at some point, we are old enough or sick enough to die without trying to interrupt that natural process beyond being kept comfortable. In our cynical and overly clinical age, it is difficult to reflect on the meaning of one’s life, but that kind of honest introspection is exactly what we need. Accordingly, The Journey’s End seeks to help people manage their healthcare, their expectations, and their decisions in the final phase of life. Table of ContentsTable of ContentsAcknowledgments: Forward By Professor David B. Nash, MD, MBA Introduction: Chapter 1: Preparing for the Last Phase of Life Chapter 2: Agony: the Default Option Chapter 3: The Fiction of Living Forever Chapter 4: The Art and Science of Medicine Chapter 5: The Economics and Ethics of Dying Chapter 6: The Physicians’ Burden Chapter 7: Patient Autonomy - A Double-Edged Sword Chapter 8: Who’s Afraid of the Big GR? Chapter 9: Disappearing Chapter 10: Options for End-of-Life Care Chapter 11: Preparing the Paperwork for Elderhood Chapter 12: Understanding the FFS Payment System Chapter 13: Fixing Primary Care Physicians Payments Chapter 14: Making Comfort Care More Accessible Chapter 15: Funding Options for End-of-Life Care Chapter 16: Reinstituting the Role of Care Coordination And Creating A Home for End-of-Life Conversations Chapter 17: Accepting Life’s Limits Chapter 18: The Importance of Trade-Offs. Chapter 19: Concluding Observations Appendix: Summary Recommendations
£23.75
Prometheus Books The Case of Terri Schiavo: Ethics at the End of
Book SynopsisAfter the Nancy Cruzan case was decided by the Supreme Court in 1990, and ultimately resolved by the Courts of the State of Missouri, the decision to withhold or withdraw life-prolonging nutrition and hydration appeared to many to be as noncontroversial as decisions to refuse respirators or dialysis. Even the Catholic Church held that, although there should be a presumption in favor of providing nutrition and hydration, the patient or the patient's surrogate could overrule this presumption, if either believed the treatment was disproportionate or burdensome. The Schiavo case changed all that. Although the decision to remove Terri Schiavo's nutrition and hydration was made by her husband - her legal surrogate - based on his wife's belief that such treatment was disproportionate, Schiavo's immediate family protested so much that the case took years to resolve. It eventually involved all branches of government at both the state and federal levels. The ethical dilemmas that such cases pose continue to stir great controversy. This in-depth examination of these dilemmas provides information and documentation from many perspectives. The editors have included a foreword by Dr. Jay Wolfson, Terri Schiavo's court-appointed guardian ad litem, as well as Dr. Wolfson's report to Gov. Jeb Bush on the case and Gov. Bush's reply; public statements by President George Bush and Senators David Weldon, Rick Santorum, Tom DeLay, Bill Frist, and Barney Frank; statements by the pope and other representatives of the Catholic Church on this issue; plus much medical and legal background material on both precedents to the Schiavo case and its aftermath, including the results of the autopsy report. For anyone wishing an in-depth understanding of these complex ethical issues, issues many of us will have to confront in our own families, this volume is indispensable.
£15.29
Large Print Press Being Mortal: Medicine and What Matters in the
Book Synopsis
£15.20
Shambhala Publications Inc Contemplative Caregiving: Finding Healing,
Book SynopsisIntegrating two decades of hospice care and social science research, this heartfelt book offers practical lessons on the transformative possibilities of end-of-life caregiving. Contemplative Caregiving is an indispensable guide for end-of-life caregivers and for anyone seeking to transform experiences of caregiving and grief. Rather than leading to burnout and despair, caring for those who are suffering and dying can enrich our lives with meaning and further our own spiritual growth and resilience. Whether you are caring for a loved one with cancer or dementia, grieving a sudden traumatic loss, or even serving time in prison, Contemplative Caregiving offers encouragement for showing up to the fullness of life in whatever those circumstances may be. Healing, compassion, and spiritual growth are available to us all, in this lifetime, right now. Baugher’s unique style of integrating social scientific research on caregiving and grief with teachings from Buddhist, contemplative Christian, and other wisdom traditions illuminates how we each can transform experiences of loss and suffering into a path of compassion. Contemplative Caregiving weaves together powerful stories from interviews with diverse hospice caregivers—Vietnam veterans, nurses, housewives, Catholic nuns, those convicted of murder—with the author’s own journey toward wholeness in the face of grief and traumatic loss, including the murder of his own mother. Through rich storytelling, teachings on compassion, and skillful contemplative exercises, Baugher invites you to join him in exploring the healing power of contemplative caregiving.
£16.19
Nova Science Publishers Inc Palliative Care to the Cancer Patient: The Middle
Book SynopsisIn the Middle East, as in other countries in the developing world, there is now a wide acceptance that palliative care is an important public health issue that should be integrated into the mainstream of cancer care as well as other life-threatening diseases. Nowadays, it is recognised as a human right issue that patients and families have the right to receive this care. The WHO defined palliative care as the active total care of the patient''s body, mind and spirit; whereby health care providers need to evaluate and alleviate the patient''s physical, psychological and social distress. Such care encompasses a broad, multidisciplinary approach that includes both the family and the community and is provided in a range of settings, from the hospital, to the community health centre, to home. This unique and timely book captures the progress and vision of many dedicated groups throughout the Middle East and the USA who have been working to advocate for and develop palliative care services in the region. Each of the book''s chapters describes the efforts and challenges professionals have been experiencing as they address the palliative care needs of patients with life-limiting illnesses. Each country''s specific chapter details the current state of palliative care services and describes the various approaches that led to the development of a range of services in hospital-based sites to community and home-based care services.
£159.74
Hammersmith Health Books Overcoming Self-Harm and Suicidal Thoughts
Book SynopsisA practical guide for parents, teachers, youth workers and others caring for and working with teenagers/young adults who engage in self-harming and have suicidal thoughts - or even attempt suicide. Filled with tips on how to support vulnerable teenagers and increase their self-esteem and resilience, Liz Quish's book: offers a uniquely integrative and holistic approach, focusing on all aspects of well-being: social, emotional and physical outlines the purpose and function of self-harming behaviours and dispels the myths about self-harm while also offering strategies to support a teenager who self-harms offers key insights into suicide risk factors and preventative measures while also providing guidance for those who have lost a loved one through suicide and advice for those supporting a person through a suicide bereavementTable of ContentsUnderstanding self-harm, its purpose and function; Understanding and responding to a suicidal teenager; Appropriate interventions: cognitive behavioural therapy, solution focused therapy and motivational interviewing; Supporting those bereaved by suicide; Parenting a vulnerable teenager; Understanding adolescent development; Importance of diet and nutrition for teenage mental health; Complimentary therapies for supporting teenage mental health
£15.19
Jessica Kingsley Publishers Hope and Grace: Spiritual Experiences in Severe
Book SynopsisConventional coping strategies can be pushed to their limits when people find themselves in situations of suffering, illness, and dying. Moved beyond their everyday consciousness, individuals often have spiritual experiences of grace and encounters with the transcendent or the divine. The author shows how care providers can support patients in their suffering and how they can recognize patients' spiritual experiences. Explaining different types of experiences of transcendence such as seeing angels or feelings of otherness and presence, this book will be of valuable use to professionals working in palliative and spiritual care, such as spiritual caregivers, therapists, nurses, and physicians. The book entails a new approach to spiritual care which opens a space of hope wherein grace may happen even amid pain, suffering, illness and dying.Trade ReviewEvery word of this rich and profound account of Renz's important and valuable research with the dying rings true. Monika is a courageous and inspirational pioneer. Her challenging work is worthy of the closest attention, extending the boundaries of human wisdom where we all need to go. -- Larry Culliford, author of ‘The Psychology of Spirituality’, and, ‘Much Ado about Something: a vision of Christian maturity’.A bold ethnographic inquiry into palliative care patients' experiences of hope and grace that transcends conventional reason, language, and cultural boundaries of the ego-based self. Hope and grace are not specific states or goals but contemplative processes of belonging with recognizable qualities that can inform compassionate palliative practices. -- Bruce L. Arnold, Ph.D., University of Calgary, Canada.There is a great value for the patient in these theological musings from this music therapist, psychotherapist, and spiritual counsellor. They have the power to lift us beyond fear and pain. Renz unravels this mode of thinking. it can assist carers and medical staff, because it facilitates the work of injecting new hope and comfort into the milieu of the dying.This book is not always an easy read, owing to its academic approach to dying. But it has a positive spin. It shows that dying and the proximity of death can flow into a close relationship with God and his holy angels. That said, it could perhaps benefit from having fewer patient-related case studies and more analytic material from Renz. -- Revd David Bryant * Church Times *Table of ContentsIntroduction. 1. Spirituality is Experience. 2. Between Two Worlds: The Liminal Sphere and Its Laws. 3. Hope for Grace. 4. Experience of Transcendence as Reality and Grace. 5. Experiences of Angels and Darkness. 6. Experiences of God and the Divine. 7. Being or Relationship?. 8. Spiritual Care between Psychotherapy and Pastoral Care. 9. Spiritual Care Interventions. Appendix. References.
£21.24
Jessica Kingsley Publishers Portrait Therapy: Resolving Self-Identity
Book SynopsisPortrait therapy reverses the traditional roles in art therapy, utilising Edith Kramer's concept of the art therapist's 'third hand' to collaboratively design and paint their clients' portraits. It addresses 'disrupted' self-identity, which is common in serious illness and characterised by statements like 'I don't know who I am anymore' and 'I'm not the person I used to be'. This book explores the theory and practice of portrait therapy, including Kenneth Wright's theory of 'mirroring and attunement'. Case studies, accompanied by colour portraits, collages and prose-poems, provide insight into the intervention and the author highlights the potential for portrait therapy to be used with other client groups in the future.Trade ReviewThis intriguing book turns the art therapy lens in the reverse direction - the art therapist painting portraits co-created with seriously ill clients, to help revalidate their self-identities. It is a fascinating book, thoroughly researched and well written. -- Marian Liebmann, art therapistTable of ContentsForeword. Acknowledgements. Part I. Focusing the Gaze. 1. Setting the Scene: Introducing Portraiture as a 'Third Hand' Intervention. 2. Priming the Canvas: A Phenomenological Approach to Depicting Subjectivity. 3. Selecting the Medium: Portraiture as a Therapeutic Tool. Part II. Collaborative Case-Studies. 4. Portrait Therapy as a Collaborative Intervention: Paint Me This Way! 5. Increasing the Patients' Creative Capacity to Adapt to Illness. 6. Mirroring and Attunement through Portraiture: Intersubjective and Symbolic Ways of Knowing, Being and Relating. 7. Making Special, Making Meaning: Increasing the Lived Experience of Homelike-Being-in-the-World and Ontological Security. Part III. Portrait Therapy Protocol and Evaluation Methods. 8. A Therapist's Manual: The Three Phases of Portrait Therapy. 9. Making Connections: Evaluating Portrait Therapy. 10. Afterword: Drawing Conclusions. Appendix 1. Images used in the Portrait Reference Album (PRA). 2. Semi-structured end of project interview (EPI) questions used to evaluate portrait therapy. References.
£25.64
Jessica Kingsley Publishers Music Therapy in Children and Young People's
Book SynopsisThis book brings together music therapists who have worked in the challenging and rewarding world of children's palliative care. Examining techniques from working just with the breath, to technological advances in music therapy such as assistive recording and electronic downloading, it highlights the benefits music therapy can bring when working alongside children and young people. Drawing on the knowledge of expert music therapists, the book provides accessible guidance that practitioners can apply to their own work, including on professional development as part of a multi-disciplinary team, service evaluation, and managing publicity in the hospice setting. It addresses work with different client groups, such as teenagers, and discusses therapy with family members, including siblings. Music therapists and healthcare practitioners will be provided with the tools to reflect on their own professional challenges and deepen their understanding of the important role of music therapy in this sector.Trade ReviewMusic Therapy in Children's Palliative Care illustrates very strongly how music therapists use the strength of music to support children and families who are experiencing challenging and life changing circumstances. This book demonstrates how well music therapists offer the opportunity to create lasting memories when a child is dying. Both the child and the family are having to come to terms with loss. This book portrays the complexity of anticipatory grief and discusses offering a safe place to fully face and feel the pain and helplessness of bereavement. Music therapy allows children and families to express their feelings without words. I strongly believe the benefits from music therapy are unlimited creating a bond between child and family. This is only achieved by the amazing flexibility demonstrated by the music therapists in this book. I learnt a great deal when reading this book. -- Beverley Barclay MBE, Clinical Lead for ellenor's Children Hospice at Home serviceAs Patron of Jessie's Fund, I am so pleased to see this second book on music therapy and children's palliative care following in the footsteps of 'Jessie's Fund In Action'. It's heart-warming to know that this fantastic work carries on in the UK and that it continues to develop to meet the growing needs of a very complex client group. The dedicated music therapist contributors clearly love working in hospice and palliative care, and are a real inspiration - just like the children they work with. -- Maxine PeakeTable of ContentsIntroduction. 1. I'm here, I'm with you, I see you, I'm listening. Working with the breath with life limited and life threatened children. 2. Balancing the Public and Private: Music Therapy in a Children's Hospice. 3. Working in the Multi-Disciplinary Team. 4. Evaluating music therapy services in children's hospices. 5. Are we singing from the same song sheet?: The scope and provision of music therapy in children's hospices. 6. Fostering the relationship between parent and child using music therapy. 7. From small beginnings: Music therapy in the community setting for children and young people with cancer. 8. Performing, sharing and celebrating life: An exploration of the value of performance in a joint music therapy and community music project in a children's hospice. 9. Continuing to Sing: Music therapy, Identity and Empowerment in Young Adult's Palliative Care. 10. The screams crashed into silence: A therapeutic songwriting project for young adults with life-limiting illnesses.
£23.74
Quercus Publishing Death is But a Dream: Hope and meaning at life's
Book SynopsisChristopher Kerr is a hospice doctor. All of his patients die. Yet he has tended thousands of patients who, in the face of death, speak of love, meaning and grace. They reveal that there is hope beyond cure as they transition to focus on personal meaning. In this extraordinary and beautiful book, Dr. Kerr shares his patients' stories and his own research pointing to death as not purely the end of life, but as a final passage of humanity and transcendence.Drawing on interviews with over 1,200 patients and more than a decade of quantified data , Dr. Kerr reveals why pre-death dreams and visions are remarkable events that bring comfort and exemplify human resilience. These are not regular dreams. Described as "more real than real," they frequently include loved ones long gone and mark the transition from distress to acceptance. These end-of-life experiences help patients restore meaning, make sense of the dying process and assist in reclaiming it as an experience in which they have a say. They also benefit the bereaved who get relief from seeing their loved ones pass with a sense of calm closure.Beautifully written with astonishing stories, this book, at its heart, celebrates the power to reclaim how we die, while soothing the bereaved who witness their loved ones go with unqualified grace.Trade ReviewThis comforting guide will reassure the dying and their loved ones while providing instructive portraits of end-of-life patients for those who work in medical and healing professions * Publisher's Weekly *Whether you have a loved one nearing the end, or are contemplating what may lie beyond this life, you'll find that Dr Kerr's book brings meaning and even beauty to our final stage. I recommend it highly for anyone with a finite lifespan * Dale Bredesen, MD *Based on deep experience, this loving, emotionally wise book will help many people find the path to love, acceptance and meaning as they face life's end * Katy Butler *This reality is shared with us by a hospice physician who, himself, learned so much from the dying. And what did he learn? That by being truly present with those who are dying, one learns how to live * James Doty, MD *A beautiful portrait of the human capacity for transcendence at the end of life. This book will inspire you reflect on the love and meaning you have experienced in your own life, and help you listen to, and be with, those nearing the end of their lives * Kelly McGonigal, PhD *[A] sympathetic and intriguing book. [Death is But a Dream is] an uplifting and reassuring work testifying to the deep restorative and spiritual - though not necessarily religious - nature of pre-death visions * Kirkus Reviews *
£11.69
Class Publishing Ltd Palliative and End of Life Care for Paramedics
Book SynopsisSo much emphasis in paramedic practice is placed on saving lives, and so how can you provide the best care for patients who are approaching the end of theirs? Knowing when it is appropriate to transfer palliative and end of life patients to hospital can be challenging as there are often many complex factors at stake which can have an impact on both patients and their families. Digging deep into the ethical and clinical aspects of working with palliative patients as a paramedic, this book is the go-to resource to enable you to act within the patient's best interests and provide the most appropriate and effective care. Key features include: Twenty-four case studies covering a range of relevant topics to help apply principles to your own practice Clinical information on symptom control and pain management Written specifically for paramedics, by a range of specialist authors Designated chapters on the role of the paramedic in palliative care, palliative care emergencies and personal resilience Full-colour diagrams throughout. Since the onset of the COVID-19 pandemic, we are all more aware of the importance of patient-centred palliative care; this book is full of tips and techniques to help you feel more confident in ensuring patients not only die 'well' but also live with dignity and comfort.Table of ContentsChapter 1: Death and Dying in Society Chapter 2: Defining Palliative Care Chapter 3: Palliative Care Emergencies Chapter 4: Symptom Management Chapter 5: Enhanced Communication Skills Chapter 6: Care of the Dying patient Chapter 7: Ethics Chapter 8: Professional Resilience Chapter 9: The Paramedic as an End of life Specialist
£29.99
Jessica Kingsley Publishers Integrating Clinical Aromatherapy in Palliative
Book SynopsisBy bridging the gap between conventional medical interventions and complementary approaches using aromatherapy, palliative care nurse and clinical aromatherapist, Carol Rose, demonstrates how an integrated and evidence-based approach can have the most significant impact on quality-of-life in patients with life-limiting illness.Aromatherapy is already a fundamental practice in many palliative care settings but its benefits remain under-researched and under-represented. Each chapter of this book incorporates a person-centred focus to consider the integration of various aromatherapy approaches for a range of end-of-life symptoms, alongside conventional medical options. The specificity of this approach and the emphasis of empowering patients to be involved in the process of choosing oils and applications, allows for improved results in the palliation of common symptoms.Integrating Clinical Aromatherapy in Palliative Care has a foundation in research from the patient's point of view. The result is a fresh perspective that prioritises support of patient choices, skilful communication and individualised care, alongside the judicious use of essential oils and other botanical products. Collectively, aromatherapy can completely reframe holistic care to allow for greater emotional, social and spiritual expression.Trade ReviewThe most authoritative text to date for the specialist aromatherapy world...a detailed, empathetic and dedicated path that stems from a place of rich experience, knowledge and the unwavering determination to keep the patient at the heart of every therapeutic encounter. -- Rhiannon Lewis, International Journal of Clinical AromatherapyCarol Rose carefully constellates within these pages a vital resource of clinical wisdom and compassionate expertise in aromatic palliative care. This labour of love - in terms of both practice and scholarship - is a professional object lesson in contemporary clinical aromatherapy, and will enrich and empower the aromatherapy student and clinical practitioner alike. Unreservedly recommended! -- Gabriel Mojay, Institute of Traditional Herbal Medicine and AromatherapyThis holistic, integrative resource needs to be read by every palliative care clinician. Truly inspiring. -- Jenny Coleman RN, cancer support nurse specialistCarol Rose draws on her extensive clinical experience to create a bridge between research and its applications, while keeping the individual's unique narrative at the core of all aromatherapeutic interventions. This beautifully written book transcends symptom management in the clinical domain, and it is grounded in an uncompromisingly holistic philosophy, evident in the inspiring case studies. This book will empower those experiencing cancer and terminal illness, and also their families, loved ones and caregivers, at all stages of their journey and beyond - but most importantly, Carol Rose's words will touch your heart. -- Jennifer Peace Rhind, writer, author and essential oils consultant
£25.64
Jessica Kingsley Publishers The Creative Arts in Palliative Care
Book SynopsisUse of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care.The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved.This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.Trade Review`The book is a brave and sensible move by Hartley and Payne. Brave, in encouraging more "group think" from professions often in conflict regarding issues of funding or professional boundaries. Sensible, because the common ground for these professions, creativity, has so much to offer palliative care: a book of this kind has long been needed to celebrate and promote the potential of the work these professions do.' -- British Journal of Music Therapy, Julian O'Kelly, day hospice manager and music therapists at the Princess Alice Hospice, Esher, Surrey, UK`This book would be useful to those who are hoping to establish creative arts practices in this field in a range of locations, and would be of particular help to those who may be managing such projects and who fell they have little or no experience or expertise in this field.` -- hospice information bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, ColchesterI highly recommend this book to anyone involved in palliative care: administrators, nurses, social workers, caregivers, families, creative artists, therapists, and students...This book is moving, practical, and inspiring to all those dealing with chronic illness, pain, death, and dying. -- Art TherapyThis book was incredibly informative. It strove to inform, inspire and educate 'artists' to work in palliative care, and gave the tools and strategies to us for success... I recommend this book to any creative arts therapists who wish to work in palliative care, or want to brush up on some strategies for wearing their 'business hats' and increasing their practice hours. -- Canadian Art Therapy Association JournalThis book provides a credible and informative account of the contribution of the creative arts in palliative care. It is an accessible read for those with experience in this field, and will be of interest to people studying therapeutic media beyond standard medical approaches in a palliative care context, as well as those keen to explore and understand more about the life-affirming and life-enhancing potential of creative art. -- Writing in EducationThis book is an invaluable starting point, and hopefully a catalyst for more of the kind, bridging the gap between the paucity of literature and the richness of opportunities that the creative arts offer for personal transformation, increased well-being and social inclusion in palliative care. -- European Journal of Palliative CareThe Creative Arts in Palliative Care is a forward-thinking text which integrates management, treatment and community building aspects of creative arts in palliative care. I highly recommend The Creative Arts in Palliative Care. This book is a must read for artists, therapists, volunteers, managers and directors who specialize in working with patients and caregivers who are facing end of life. -- Nordic Journal of Music TherapyThis book is a valuable resource giving information in a collection of articles that, taken together, support the justification for including creative arts in the services offered to those who are facing the end of life. -- Journal of Palliative CareTable of ContentsAcknowledgements. Part I: Developing Creative Arts in Palliative Care. 1. Introduction - The Creative Arts in Palliative Care. Nigel Hartley and Malcolm Payne, St Christopher's Hospice, London. 2. Managing Creative Arts and Artists in Healthcare Settings. Nigel Hartley. 3. The Palliative Care Community - Using the Arts in Different Settings. Nigel Hartley. 4. Exhibiting, Promoting and Funding the Arts in Healthcare Settings. Nigel Hartley. 5. Research and Audit in Palliative Care Creative Arts. Malcolm Payne. Part II: Experiences of Creative Arts in Palliative Care. 6. Experiences of Creative Arts in Palliative Care - Introduction to Part II. Malcolm Payne. 7. Pottery and Painting. Lynn Harmer, St Christopher's Hospice, London; Greenwich Community College, South London. 8. Craft Work. Adrian Butchers, St Christopher's Hospice, London. 9. Digital Arts. Marion Tasker, St Christopher's Hospice, London. 10. Art Therapy. Samantha Dobbs, St Christopher's Hospice, London. 11. Community Arts. Virginia Hearth, St Christopher's Hospice, London.. 12. Beginning to Work as a Community Artist in Palliative Care. Mick Sands, St Christopher's Hospice, London. 13. Music Therapy in the Community. Tamsin Dives, St Christopher's Hospice, London. 14. Music and Music Therapy at St Christopher's Hospice - An Evaluation Study. Abi Gill, National Society for Epilepsy, Buckinghamshire. 15. Conclusion. Malcolm Payne and Nigel Hartley. Bibliography. Contributors. Suppliers. Subject Index. Author Index.
£26.74
Jessica Kingsley Publishers Speaking of Dying: A Practical Guide to Using
Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.
£25.17
Taylor & Francis Ltd The Psychiatry of Palliative Medicine: The
Book SynopsisThis title contains foreword by Ian Maddocks, formerly Foundation President, Australian Association of Hospice and Palliative Care and Foundation President, Australian and New Zealand Society of Palliative Medicine. This book is a practical and pragmatic distillation of the psychiatry of relevance to the terminally ill. It reviews the major psychiatric syndromes encountered in palliative care - depression, anxiety, delirium - and examines psychopharmacological and psychological interventions in detail. It considers the psychiatric aspects of pain, sleep, cognitive impairment, terminal neurodegenerative diseases, sedation and artificial feeding. The dying chronically ill psychiatric patient is also discussed. The author has drawn on his great experience in both consultation-liaison psychiatry and palliative medicine to produce an essential guide for all healthcare professionals involved in palliative care, including consultants and senior nurses, as well as psychiatrists, especially consultation-liaison psychiatrists, and trainees. 'Illness that threatens imminent death challenges the mental and social well-being of affected individuals and their families. Consistent specialist psychiatric care has nevertheless not been readily available to the dying. Because there may never be sufficient numbers of psychiatrists interested in bringing their expertise to this field, working with the dying mind depends on staff with limited training in behavioural medicine and psychiatry. To redress the inadequate engagement of psychiatry, Sandy Macleod has concentrated on those important areas in palliative medicine where a pragmatic knowledge of psychiatry can make a difference. Here is sensible guidance that will enable staff to serve their client patients and families more adequately. I find this an immensely sympathetic book, beautifully written. It is a testimony to the summation of specialist psychiatric knowledge, broad scholarship and a rich personal practice in bedside palliation.' - Ian Maddocks in the Foreword.Trade Review'A relevant, highly readable and reasonably priced book which will be of interest to all, whether from a psychiatric or palliative care background, who seek to improve the care of dying patients.' ANDREW MOGG, INTERNATIONAL PSYCHOGERIATRICSTable of ContentsPsychiatry and palliative medicine * Adjustment and anxiety * Psychological issues and dying * Pain and Psychiatry * Other symptoms * Depression * Delirium * Sleep, sedation and coma * Neoplastic disease * Cognition and dementia * Terminal neurological disorders * Chronic mental disorder * Euthanasia * Psychopharmacology
£35.14
Taylor & Francis Ltd Perspectives on Palliative Care for Children and
Book SynopsisAdvances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.Table of ContentsSection 1: A Global overview. Section 2: Focusing on families — hearing the evidence. Section 3: Minimizing Crisis Points in Paediatric Palliative Care. Section 4: Supporting transitions. Section 5: Evidence / knowledge transfer into practice.
£46.54
Taylor & Francis Ltd Enhancing Compassion in End-of-Life Care Through
Book Synopsis'Healthcare professionals spend much of their time listening to stories of sickness related by patients and their families. It thus seems appropriate that drama, which is primarily concerned with exploring narratives, change and crises and relies, like the clinical situation, on communication, is an ideal medium for healthcare professionals to gain new insights into care.' From the Introduction Good communication forms the heart of patient-centred care and is the cornerstone of a trusting relationship. Enhancing Compassion in End-of-Life Care Through Drama explores a broad range of plays from Greek tragedy to the present day and investigates how particular theatrical dynamics help to understand complexities in the setting of end-of-life care. It examines fresh ways to interpret the action and subtext represented on the stage and finds symmetries in a clinical context. It is ideal for use in a range of educational contexts, with practical ideas for workshops and summaries of key concepts in each chapter. This book will motivate all members of the multidisciplinary palliative care team including palliative care professionals, doctors, nurses, psychologists, spiritual advisers and social workers. Although based in the setting of palliative care, the learning points are relevant to all areas of clinical practice.Table of ContentsForeword. Introduction. Communication: King Lear. Care : The Caretaker. Connection: Journey's End. Choice: Antigone. Change: Little Eyolf. Concealment: All my Sons. Crises: Blasted. Complexity: Cloud9. Culture: Behzti. Cooperation: Drama and healthcare education. Combination: Virtue ethics: The Good Doctor. Acknowledgements.
£40.84
Taylor & Francis Ltd Palliative Care within Mental Health: Principles
Book SynopsisIs there a place for palliative care within mental health? This inspirational book offers an excellent foundation for integrating best-practice specialist palliative care into serious and enduring mental health service delivery. The shared practice values and vision between these two disciplines provide an optimistic starting point from which to address the lack of palliative care service delivery in mental health practice. Focusing on the similarity in philosophy between palliative care and mental health practice, it incorporates: . person-centred practice . relationship-based connectedness . a belief in compassionate care . respect for autonomy and choice . quality-of-life issues. The book addresses the practice skills needed in preparation for competent intervention and treatment. Each chapter develops a theoretical framework which is supported by practical application. Both professionals and students of palliative care will find the interactive text and practical case studies especially valuable, as will the professional working in substance use. Its userfriendly approach will appeal to a wide range of readers in various related disciplines. 'While it could be assumed that mental health has a lot to offer palliative care, we both [feel] that palliative care could offer more to mental health practice...It is a neglected area. There is little or no literature related to palliative care within serious mental health practice, and that which does exist relates to care of the dying in terms of cancer.' From the PrefaceTrade Review'Overall this is an impressive book that has the potential to be immensely helpful to generalists as well as specialist practitioners in both fields. It will serve to open up the debate and clarify the reality surrounding the consistent misunderstandings that still exist in both areas of practice, and as such it deserves to be widely read.' Robert Becker, Independent lecturer and author in palliative care, International Journal of Palliative NursingTable of ContentsPreface. About the editors. List of contributors. Terminology. Cautionary note. Other books by the editors. Acknowledgements. Dedication. Embracing palliative care-mental health. The Tidal Model. Application of transcultural theory to practice: the Purnell Model. Ethics. Psychological impact of serious and enduring mental health. Caring relationships. Hope and coping. Spirituality. All of me: embracing sexuality as a dimension of care. Assessment. Pain management. Managing restlessness and agitation at the end-of-life. End-of-life. Living with loss. Serious substance use problems and palliative care. Looking after yourself and colleagues. Index.
£40.84
Taylor & Francis Ltd Palliative Care Within Mental Health: Care and
Book SynopsisThis thought provoking and highly practical book is not just about caring for the dying within mental health, but also applying the quality care and practice of palliative care within mental health practice. Multidisciplinary in its approach, it focuses on intervention, treatment, care and practice, and the similarities in practice between palliative care and mental health. This common ground is an excellent foundation for integrating palliative care into mental health care, practice and service delivery, succinctly covering all aspects of psychological, physical, social, spiritual, sexual and emotional health. Featuring authoritative contributions from international experts, each chapter develops a theoretical framework before broadening its scope to include application in practice - addressing what, when, where and why with a definite focus on implementation in practice. Self-assessment exercises, advice for further reading, ideas for reflective practice and summaries of key points are also included, aiming above all else to improve the relationships, responses, care and practice necessary to be effective in interventions and treatment with those experiencing mental health concerns and dilemmas. Ideal for all health, social, psychological, legal and spiritual care students and professionals wanting sound theoretical and practical guidance, this book is highly recommended for General Practitioners and General Practice Registrars, healthcare assistants studying NVQ and health visitors. Educationalists, managers and service developers in health and social care will also appreciate its solution-focused, practical approach.Trade Review"…a useful read for all adult and mental health nurses…"—Nursing TimesTable of ContentsPreface. About the editors. List of contributors. Terminology. Cautionary note. Other books by the editors. Acknowledgements. Dedication. Palliative care within mental health: the need. Compassion, respect and dignity. Overcoming ethical dilemmas. Overcoming cultural dilemmas. The family. End-of-life. Assessment. Pain management. The young person and suicide. Long-term mental health. Dementia, Alzheimer's and confusion. Creutzfeldt-Jakob Disease and palliative care. Euthanasia, assisted suicide and mental health. Palliative care and substance use: special considerations. The heart of care and caring. Index.
£44.64
Jessica Kingsley Publishers Hospice and Palliative Care Acupuncture
Book SynopsisA handbook for acupuncturists and healthcare practitioners on the use of acupuncture for end-of-life care. The book covers the major hospice and palliative care diagnoses from a Chinese medicine perspective, as well as grief and loss, and includes the roots of Chinese historical perspectives on death and dying. The acupuncturist is introduced to the working medical model of hospice care and the interdisciplinary team approach and provided with evidence-based strategies for the use the acupuncture in symptom management.Trade ReviewTorii Black has expertly combined history and modern research with ancient medical theory to create an essential resource for anyone interested in integrating acupuncture services into end-of-life care. Hospice organizations will appreciate the detailed introduction to acupuncture and herbal medicine, while acupuncture providers will find the suggested treatment protocols helpful and insightful. -- Cole Alexander, DAOM, LAc – Executive Director at Free Range HealthA must read for both new and seasoned Acupuncturists. Descriptions of the treatment protocols used to assist in the dying process are extremely valuable and can be readily utilized. A well researched reference on the systems of hospice and palliative care, Hospice and Palliative Care Acupuncture is a foundational handbook for treating hospice clients and their families. -- Whitney Madden, Lic Ac, CBHC (Certified Brain Health Coach)Evidence shows acupuncture to be both valuable and lacking as a complement to conventional palliative and hospice care. This book offers practitioners context, clinical support and the necessary language to bridge the gap in this particularly wonderful continuum of care. -- Paula McPhail, practitioner, Lic Ac, MSc(Res)Table of ContentsIntroduction; 1. Hospice and Palliative Care History/Philosophy; 2. Chinese Culture Influences Modern Death and Dying Issues; 3. East Meets West - The Face of Modern Palliative Care; 4. Palliative Performance Scale (PPS); 5. Assessment, Diagnosis, and Treatment of the Patients at the End of Life; 6. Channel Points for Consideration; 7. Final Thoughts; References; Glossary for Point Nomenclature
£26.59
Jessica Kingsley Publishers End of Life Care for People with Dementia: A
Book SynopsisPeople with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals working with them. This book describes not only what can be done to ensure maximum quality of life for those in the final stages of the illness, but also how best to support those involved in caring for them.Emphasising the importance of being attuned to the experiences and needs of the person with dementia, the authors explain why and how they should be included in decisions relating to their end of life care. Practical strategies for ensuring physical and emotional wellbeing are provided, drawing on useful examples from practice and providing solutions to potential challenges that carers and family members will face. Dilemmas surrounding end of life care are explored in detail, including the moral dilemma of medical intervention, and the authors suggest ways of supporting family members through the process in terms of providing information, helping them adjust to change and loss, and involving them in their relative's care, and at how care staff can be supported through appropriate education and training, team building and information-giving.This is an essential resource for anyone who wishes to provide compassionate, person-centred care for a person with dementia as they approach the end of life, including care staff, nurses, social workers and related professionals.Trade ReviewThis splendid book contains practical information - clinical, psychological, social, legal, social, spiritual and ethical - which is combined with wisdom and background understanding so that a thoroughly holistic picture emerges. It also encourages thought about training in the complex field of end of life care for people living with dementia. -- Julian C. Hughes, RICE Professor of Old Age Psychiatry, University of BristolThis book offers concise and practical guidance on caring for people with dementia who are reaching the end of their lives, promoting dignity and the needs of lay (family and friend) and professional carers. It offers clear learning outcomes, case studies and examples of good practice to bring this knowledge into every day care. -- Dr Elizabeth Sampson, Reader, Marie Curie Palliative Care Research Department, University College LondonThe care of people with advanced dementia is an increasingly important area of end-of-life care. This book provides a practical and well referenced overview of the key issues, using accessible case studies to illustrate key points. I look forward to using it in palliative care education and as an excellent source for reference. -- Jane Seymour, Professor of Palliative and End of Life Care, School of Nursing and Midwifery, University of SheffieldThere are lots of books being published about dementia right now and most do add value to the body of literature available but not all are as readable and accessible as the new offering from the University of Bradford's School of Dementia Studies. [...] Murna Downs and her team should be commended for this book [...]. -- Celia Di Cicco * Princess Alice Hospice *Table of ContentsForeword. Introduction. 1. Transitions. 2. Promoting Dignity and Physical Wellbeing at the End of life. 3. Promoting Dignity and Emotional Wellbeing at the End of Life. 4. Supporting Families through Advanced Dementia and End of Life. 5. Supporting the Health and Social Care Workforce to Provide End of Life Care for People with Dementia. References. Index.
£22.81