Palliative medicine Books

Book SynopsisThe many unfounded myths and fears that surround working with people at the end of their lives are dispelled in this thoughtful book, and the authors provide both practical and emotional support for those involved in caring for dying patients. The book covers everything from the philosophy behind the practice to the diverse roles in the multi-disciplinary team, as well as current challenges and opportunities facing end of life care, with an emphasis on how therapy and arts therapies can be integrated effectively. It also looks at palliative care models that address all aspects of a patient's wellbeing and conveys the latest research and challenges in the field, bridging the gap between theory and the realities of working with patients on a daily basis. Using material from artists and therapists working in the field, the varying demands of inpatient, outpatient and home care are described, as well as the processes of bereavement, how to handle the practicalities of loss and the help that therapists can give at this stage. How artists and therapists with experience of working at the end of life can be involved in other areas of care such as supporting older people in care homes and those living with dementia is also discussed. The book also introduces the important area of health promotion, and how there is a growing responsibility to change people's attitudes towards death, dying and bereavement. Clear, practical examples are given as to how this might be achieved. Full of professional advice and career guidance, this book will be an invaluable tool for those working with patients nearing the end of life and those considering working in this area, as well as students in training.Trade ReviewThis important book describes practical ways for therapists, artists and arts therapists to set about delivering an effective professional offering in a wide variety of end of life care settings; ranging from outpatient services, inpatient units, the community and care homes and across all illnesses including dementia. The book is a pragmatic, realistic and forthright guide to the difficulties and rewards of being a rather unusual, sometimes isolated, often poorly understood professional; a sort of mythical tiger burning bright in the sometimes impenetrable forest of the efficient demands of medical and nursing structures…This is a brave book and now, more than ever, all practitioners in the field of end of life care need to initiate courageous conversations if we are to meet ever growing need. -- from the foreword by Professor Dame Barbara Monroe, Chief Executive, St Christopher's GroupHartley has produced a poignant, compelling and practical guide for therapists, artists and arts therapists who work, or wish to work, with people at the end of life. This book blends concerns about history and policy, with practical discussions about inter-professional working, self-care, and evaluation in work with dying, death, and bereavement. An essential reference for practitioners. -- Allan Kellehear, PhD, AcSS, Professor of Community Health, Middlesex University, UKIn this wonderfully honest and realistic book, Nigel Hartley uses the experience of arts therapists working in end of life care to pose crucial questions for therapists, organisations and society in building a patient-led and effective service. He faces head on the particular issues raised by the current political and economic climate, and offers a wealth of practical advice. -- Jessica Rose, psychotherapist and author of Psychology for Pastoral Contexts: A Handbook (SCM) and Sharing Spaces?: Prayer and the Counselling Relationship (DLT)Nigel Hartley's book brushes aside the mystique of music and arts therapy, showing clearly how and why they work. As well as providing a full overview of current practice, he makes positive suggestions for encouraging teamwork and communication, and his highly readable style is shot through with compassion for patients, families and therapists themselves. -- Sarah Walker PhD, broadcaster, musician and writerAn important account stemming from the Anniversary Centre at St Christopher's Hospice - open daily for 13 hours for patients, family, friends and the public. An amazing development from the traditional nurse-led 10am-3pm, Monday-Friday Day Centre. A great example of TEAM-work - Together Everyone Achieves More. For anyone who wants to get beyond the bedpan and the drug round, this is essential reading. -- Dr Robert Twycross DM FRCP, Director of palliativedrugs.com Ltd.This book would serve as a useful introduction to anyone working in end-of-life care or considering it. The first section of the book deals with history, policy and current challenges... The second part is a series of chapters that discuss most aspects of end-of-life care in a variety of settings... This is an insightful review of what working in end-of-life care is all about. Whilst directed to those from the creative arts, anyone who works in end-of-life care, or is considering it, will be better off for reading it. -- IAHPC (International Association for Hospice & Palliative Care)Table of ContentsPart 1: History, Policy and Current Challenges. 1. Introduction. 2. The Model and Philosophy of Hospice and End of Life Care. 3. Strategic and Current Challenges. Part 2: Teamwork, Communication and Working in Different Contexts. 4. Working as Part of a Multi-disciplinary Team. Tamsin Dives and Nigel Hartley. 5. Working with Inpatients. Andy Ridley and Nigel Hartley. 6. Working with Day and Outpatients. Mick Sands and Nigel Hartley. 7. Working in Community Settings. Gerry Prince and Nigel Hartley. 8. Bereavement and Loss. Gini Lawson and Nigel Hartley. Part 3: Starting Out, Looking After Yourself, Research and Development. 9. Getting Started. Roberto Sanchez-Camus and Nigel Hartley. 10. Looking After Yourself. Marion Tasker and Nigel Hartley. 11. Research and Evaluation. Giorgos Tsiris and Nigel Hartley. 12. Final Thoughts and Some Handy Hints and Tips. Index.

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Book SynopsisThis sensitive and compassionate book provides older people who are nearing the end of life and their loved ones, as well as the professionals who work with them, with a greater depth of understanding of spiritual issues surrounding death and dying. Illustrated with the experiences of many older people, it explores important themes such as grief and loss; fear; pain, distress and suffering; acceptance; transcendence; prayer; the healing of relationships; and intimacy, and shows that the final journey towards death can be one of the most spiritually meaningful times in the life of an older person - a time in which there is still hope, and in which the person who is dying and their loved ones can grow spiritually, strengthened by the difficult times they face together. Spiritual issues for older people with dementia who are nearing the end of life are also explored, as are ethical and moral issues in death and dying, and the ways in which bereaved partners and relatives may come to terms with the loss of a loved one.This concise and accessible book will be a valuable resource for those in the caring professions and a rich source of guidance and support for older people who are nearing the end of life and their families.Trade Review(...) this book provides a gentle but emotive introduction into preparing for the final journey of life. -- Journal of Community Nursing...both of these books (Spirituality and Personhood in Dementia by Albert Jewell and Palliative Care, Ageing and Spirituality by Elizabeth Mackinlay), (...) are infused with glimpse of grace and courage, can inspire the reader to give thanks and cherish all that is good, and to live life as fully as we are able, even in the midst of frailty. -- The Waythis is a book which anyone involved in this area could read with real profit - and pass on to others. Strongly recommended. -- PlusMacKinlay's skills as a nurse and priest are reflected in the simple and compassionate opening up of the questions and some of the consequent feelings that surround this important dimension of our living. -- Church TimesIn a culture that tends to assume that the only meanings that can be associated with death are profoundly negative, the idea of a good death for elderly people is not always apparent. Elizabeth MacKinlay sees things differently. In this book she teases out a different way of looking at and understanding death and dying. Death is not an enemy or even something that necessarily has to be feared. Rather, death is a meaningful movement towards a positive goal. Religion and spirituality are vital aspects for the achievement of such a goal. This book helps us all to see death and dying differently and in seeing these things differently, we can learn to practise more compassionately. -- Professor John Swinton, Chair in Divinity and Religious Studies and Professor in Practical Theology and Pastoral Care, University of Aberdeen, ScotlandThe phrase 'a good death' seems ridiculous, but what is really meant is a good approach to death, with minimal physical pain, and the best chance of mental and spiritual calm to face the end. Not an easy task and therefore a book such as this containing helpful advice and real examples can be a useful aid to not only professionals perhaps facing palliative care for the first time, but also to families and friends who can have much to offer in bringing comfort and ease... This book, by being non-technical is also of value to the relatives and friends of those approaching the end of their mortal life. -- GoodBookStall.org.ukTable of ContentsPreface. Introduction: About growing older, dying and death. 1. Grief and loss: A part of life. 2. Fear of dying. 3. The final life career: Is this only a time of waiting for death? Or is there something more? 4. Acceptance that death will come. 5. Pain, distress and suffering. 6. Prayer. 7. Responding to meaning: symbol and ritual. 8. Transcendence in the process of death and dying. 9. Healing of relationships. 10. Intimacy and dying. 11. Dementia and dying. 12. Ethical and moral issues in death and dying. 13. The final days and hours of the journey. 14. Learning to live without my partner. Further reading. Appendices. Index.

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Book SynopsisAs someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.Trade ReviewThis book draws on the rich experience and combined expertise of the authors to offer a resource for all those supporting people on their end of life pathway…[G]lobally we find a remarkable consistency across cultures of what people want when they are dying. They want care which manages distressing symptoms in the most effective way; they want to be treated with compassion, dignity and respect; they want to have the opportunity to set their affairs in order and to be surrounded by those people who are important to them. The implication of meeting those needs, as the core message of this book proclaims, is that end of life care is everybody's business. -- From the Foreword by Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission, UKThis clearly written and comprehensive book will be a valuable source of information and resource for any professional or student interested in improving the practical delivery of end of life care. It describes the methodologies, development and successes of the ground breaking national strategy for End of Life Care launched in England in 2008. The material is brought to life with case studies and best practice examples and reflection is encouraged through the use of 'stop and think' questions. -- Barbara Monroe, Chief Executive, St Christopher's Hospice, UKThis book provides a comprehensive, up-to-date, research-based account of multi-professional practice in end-of-life care from different professional perspectives. Its authoritative knowledge base relies on the work of the National End of Life Care Programme in England's Department of Health over several years. Its strong focus on flexible, holistic quality of care will make it valuable for specialist and general practitioners in hospital and community health and social care services. -- Malcolm Payne, consultant in social work and end-of-life care and author of Social Work in End-of-Life and Palliative CareThis book elegantly captures how the relatively new focus on 'end of life care' provides a conceptual framework with which to think in a different way about meeting these new needs and has led to change on a wide front…Readers can find interesting synopses of interdisciplinary perspectives on death, dying and epidemiological transition, together with up to date advice about best practice in care planning, communication and coordination of services; all set out in a highly accessible manner. In their discussions, the authors do not shy away from delineating new challenges ahead that will require all of us to work together to continue to transform end of life care so that it better meets the needs of all those facing death, whatever their age or diagnosis, and wherever they are cared for. -- Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham, UKTable of ContentsAcknowledgements. 1. The Context and Philosophy of End of Life Care. 2. Discussions as the End of Life Approaches 3. Assessing Need and Planning Care. 4. Co-ordination of Care. 5. Delivery of High Quality Care in Different Settings. 6. Care in the Last Days of Life. 7. Care after Death. 8. Quality End of Life Care for All. References. Index.

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Book SynopsisWithin the last decade music therapists have developed their work with people who have life-threatening illnesses and with those who are dying. This book presents some of that work from music therapists working in different approaches, in different countries, showing how valuable the inclusion of music therapy in palliative care has already proved to be.It is important for the dying, or those with terminal illness, that approaches are used which integrate the physical, psychological, social and spiritual dimensions of their being. The contributors to this book emphasize the importance of working not only with the patient but with the ward situation, friends and family members. By offering patients the chance to be creative they become something other than patients - they become expressive beings, and there is an intimacy in music therapy that is important for those who are suffering. Many of the contributors write in their own personal voice, providing a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. Contributors describe their work with both children and adults living with HIV/AIDS, cancer and other chronic degenerative diseases.Trade ReviewMusic therapy is still in the process of establishing its role in the UK palliative care movement. On balance, this publication can only help to inspire more therapists to work in the field, and to communicate their experiences to a wider audience. The personal approach to writing adopted by many of the authors is both highly accessible and absorbing. With this publication the voice of music therapy speaks clearly, providing a highly recommended account of this exciting and challenging area of work. -- British Journal of Music TherapyIn this pioneering book, David Aldridge presents chapters by an international range of music therapists who have extended the field to include work with patients suffering from the final stages of life-limiting illness. The result is an attractive volume that charts a fresh and innovative approach to problems faced by palliative care patients which will appeal to health care professionals as well as music therapists…I woud highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It offers a well-referenced, accessible and sensitively written contribution to the field. -- European Journal of Palliative CareThis book brings together the first published volume of many music therapists working with different approaches in different countries. It provides an extremely comprehensive insight into the approaches used by music therapists working within a variety of palliative care settings and a diversity of client groups and life-threatening conditions. The text is supplemented by very moving case studies. The book indicates clearly the power of music, its effect and the associations we hold with music throughout our lives. It is a multidimensional medium which has tremendous impact on our past, present and future lives. It provides a therapeutic tool within palliative care which by its varying dimensions has a potential value for individuals who are struggling with their present life-threatening or life-limiting circumstance. It is an essential read for anyone wishing to discover the potential value of music therapy within palliative care. -- British Journal of Occupational Therapy`Here is a book for the therapist, musician or student seeking a broard perspective on the practical application of music therapy. It is written by a range of practioners working in a variety of settings, each bringing a new vision to the interested reader. All aspects of music therapy are here represented, icluding listening, performance, composition (music and words) and milieu. Examples abound of different approaches to this most personal of therapeutic strategies - whether to complement pain relief, to provide an enjoyable undertaking for patients to join with each other and with their families and friends or as a diversionary activity. The thought provoking methods described from the practioner's view allow the reader to sit on sessions of music-making with patients turned musicians in a most exciting manner. It is this readability which will encourage the non-music therapist and non-therapist musician. Here are clear descriptions of successful methods in listening to music, in performning and composing with children and with older people. Lively imprtomptu 'jam' sessions are explored, carefully recalling instrumentation's and levels of musical expertise. Planned programmes of considerable complexity are described, allowing the reader to develop an understanding of the processes involved. A patient who wants me to compile a tape of his favourite music as a parting gift for his family, or the woman who has written words for a song but needs some help in composing a special tune. These cameos of practice are well presented and organised into a readable collection. They offer sufficient detail to encourage the well endowed music therapist while having sufficent non-technical material to allow access to the less musically inclined reder. This book is well referenced, offering a clear path to follow for those wishing to learn more. The subject and author indexes allow access to any vaguely recalled part of the book. -- RostrumI would highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It is slim (160 pages), well-written and highly readable, even to those who have no previous experience in the field. -- Marie Curie NewsThis book explores music therapy's enhancement of palliative care - giving voice to nine currently unpublished Music Therapists. The writers work in many settings - hospices, hospitals, paediatric oncology wards, AIDS support centres - in diverse countries throughout the world. But this diversity blends into a harmonious and inspiring book. -- Grief MattersThis book presents clinical writing from music therapists working using different approaches in various countries. It introduces the reader to different aspects of music therapy. The book contains in-depth case discussions rather than quantitative research analysis… Although entitled Palliative Care the book covers a wide spectrum of cancer stages, degenerative illnesses, HIV/AIDS, as well as, working with children and adults. The book illustrates the different areas where Music Therapy could work as part of a multi-disciplinary team. -- Irish Social WorkerThe contributors seek to emphasise the importance of working not only with the patient but with the ward situation, friends and family members; many write in their own personal voice, offering a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. -- Progress in Palliative CareTable of ContentsIntroduction, David Aldridge. 1. Music Therapy and the Creative Act, David Aldridge, Chair of Qualitative Research in Medicine, University of Witten/Herdecke, Germany. 2. Music Therapy as Milieu in the Hospice and Paediatric Oncology Ward, Tryge Aasgaard, Asistant Professor, Oslo College; Music Therapist, Ullevl, The National Hospital, Hospice Louisenberg, Oslo, Norway. 3. Lyrical Themes in Songs Written by Palliative Care Patients, Clare O'Callaghan. 4. Creativity and Communication Aspects of Music Therapy in a Children's Hospital, Beth Dun, Senior Music Therapist, Royal Children's Hospital, Melbourne. 5. Music Therapy at the End of Life: Searching for the Rite of Passage, Bridget Hogan. 6. Music Therapy in Chronic Degenerative Illness: Reflecting the Dynamic Sense of Self, Wendy Magee. 7. Music: A Means of Comfort, Susan Weber, Music Therapist, Johannes Hospiz der Barmherzigen, Munich; Lecturer in Music Therapy, Ludwigs Maximilian University, Munich. 8. Music Therapists' Personal Reflections on Working with Those Who Are Living with HIV/AIDS: `Almost the Definition of God', Nigel Hartley, Senior Music Therapist, Sir Michael Sobell House; London Lighthouse; Nordoff Robbins Centre, London. 9. Music Therapy with HIV Positive and AIDS Patients, Lutz Neugebauer. 10. The Implications of Melodic Expression for Music Therapy with a Breast Cancer Patient, Gudrun Aldridge, Lecturer, University of Witten/Herdecke, Germany. 11. Writing and Therapy: Into a New Tongue, Rob Finlayson.

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Book SynopsisA Long Walk Home is Rachel Clark’s evocative and moving account of her treatment and experiences with health professionals in Britain and Australia while she was living with, and dying from, cancer. It includes an Epilogue by her twin sister Naomi Jefferies, and learning points for health professionals by John Hasler and David Pendleton.Table of ContentsIntroduction: orienteering and oncology. Inside out and upside down – diagnosis. Ice magic – chemotherapy. Pick 'n' mix - alternative therapies and options. Roots and roses - origins and image. All the King's horses – surgery. Tattoos and technology – radiotherapy. England's pastures green - coming home. A panoramic view - the background picture. The messages for health professionals. Epilogue.

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Book SynopsisThe quality of cancer and palliative care is going through unprecedented change and development as a result of policy initiatives. The impact of these policies on education is unparalleled and it is essential that clinicians and educationalists are aware of the policy formation processes and educational strategies that meet the demands of these changing times. This book takes a holistic approach to patient care and draws on the diverse experience in hospices and highlights best practice to present a comprehensive and practical guide. However, it does more. New topics are given an educational perspective; those with limited educational experience are given sound advice; the implication of policy change is outlined. This is an important book and one which should be read by all clinicians, educators and managers responsible for improving services in cancer and palliative care. Table of ContentsThe impact of health and social policy on cancer and palliative care education. Clinical governance in 'face to face' and 'on-line space' palliative care education. Public education. Specialist and advanced nursing practice. Post Shipman - the impact on developing education in cancer and palliative care pain management. Death anxiety and death education: a brief analysis of the key issues. Nurses perceptions of spirituality and the implications for nursing care and education. Art and artistry in practice - a reflective account. The role of psycho-neuroimmunology in cancer and palliative care education. Complementary therapies and community nurses - implications for educational planning. Cancer and palliative care - evidence-based practice. Life review - an educational perspective. Humour in cancer and palliative care: an international perspective. An overview of hospice education.

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Book SynopsisSpecifically designed to enhance your knowledge and skills within generalist palliative care, this informative textbook provides a comprehensive overview of the principle areas you may encounter whilst working with adult palliative and end-of-life patients, and their families. The development of the text has been backed by Macmillan Cancer Support and each chapter has been written by a range of specialist and generalist authors. The topics covered include approaches to palliative care and symptom management in a wide range of conditions and populations, with chapters linked to case studies to encourage interactive learning and understanding. Communication skills are also highlighted to help aid confidence when engaging in open and difficult conversations. The text is in line with Scottish Palliative Care Guidelines and the NES Framework for Palliative and End of Life Care. The book may either be used as course reading for relevant training programmes, such as the Enhanced Palliative Care course, as well as by healthcare professionals hoping to develop their skills and practice. It is aimed at anyone involved in management and prescribing within non-specialist palliative care, both in hospitals and in the community, including paramedics, nurses, doctors, pharmacists, and other key health professionals.Trade ReviewPut together by contributors with high hopes and feet firmly on the ground, the Enhanced Palliative Care programme will be an invaluable resource to many and a direct benefit to many, many more who will receive care that has been influenced and improved by it. -- David Clark – Professor Emeritus, University of Glasgow.This manual is packed full of evidence-based wisdom and insight that will prove invaluable to so many people wishing to improve their palliative care practice. -- David Clark – Professor Emeritus, University of Glasgow.

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Book SynopsisIn a heartbeat, you or someone you love may be rapidly transformed from a life of health and wellness to one of critical illness. Over the past four decades, Ronald Kotler, M.D., has treated patients who have become critically ill. He has seen patients recover and go on to lead long, healthy lives. He has also treated patients who did not survive. In this medical memoir, Dr. Kotler takes readers to the frontlines of caring for critically ill patients who are “breathless”—having trouble breathing. Dr. Kotler shares compelling stories of patients who were near death or who were facing the end-of-life. He takes readers behind the scenes as he describes the importance of compassion in the care for these patients. Dr. Kotler’s inspiring stories will educate readers as well as salute doctors, nurses, and other healthcare professionals who make up the American healthcare system.

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Book SynopsisThis volume is a practical resource for all those responsible for caring for older people across health and social care. It provides a comprehensive and holistic approach helping nurses, therapists and social care professionals to better understand the impact of ageing upon the person and wider society. A unique feature of this text is the focus upon positive ageing and the attempt to dispel and challenge some of the myths, prejudices and negative attitudes that still prevail towards ageing and older people. A key objective of the book is to introduce practitioners to some of the neglected or under-addressed aspects of ageing such as spirituality, sexuality, and LGBT.Chapters are written in an engaging and interactive style and where appropriate draw upon case studies and scenarios to maximize engagement developing competence, by informing knowledge, attitudes and skills. The text introduces the practitioner to key dimensions of what it is to be a person, physically, psychologically, socially and spiritually and how these contribute to the ageing process and can enhance the quality of life of older people.Irrespective of whether one cares for older people in an acute hospital setting or domiciliary, home care, this text will be of relevance. The material and content transcend health and social care boundaries, providing valuable, contemporary evidence that can inform and shape practice. Above all this text will encourage reflection, dialogue and engagement with some fundamental aspects of ageing, challenging, attitudes, values and behaviour so that a more positive and balanced insight towards ageing is fostered. This book will ensure that self-awareness and professional practice are enriched and informed and the practitioner has a holistic understanding of ageing that will enable them to care for older people with compassion, dignity and respect.Table of ContentsForeword: Prof. Brendan McCormackPreface Dr Wilfred McSherry, Linda Rykkje, Susan ThorntonHolistic approach/person centredDignity and respectComparing different health care settings policies across countriesChapter 1. Physiology and ageingProf. Roger Watson, UK Aims of chapter – overall purpose Learning outcomes – what the nurse/therapist will be able to do at the end of the chapterWhat the nurse should know about: Healthy ageing, Positive aging, successful ageing, Active ageingSummary of the main points for learningSuggested further studyChapter 2. Life history of older peopleSue Thornton UK Social TheoriesSociology of ageingChapter 3. Spiritual care/existential careProf Wilf McSherry & Dr Linda Rykkje Meaning, purpose and fulfillmentPersonal, Religious, spiritual beliefsChapter 4. The psychology of ageing Linn-Heidi LundeCognitive functionDementia/DepressionChapter 5. LBG/Sexuality and ageing Dawn Garrett RCN UK Attitudes towardsAddressing these issues in practiceChapter 6. Acute care settings Dr John McKay UK Frailty, comorbidity, polypharmacy, DeconditioningDelirium/DepressionChapter 7. Nutrition, thriving, mealtimes Joanne Lancaster Dietician UK Chapter 8. Continuity of careJames BrockieCarolyn GairAssessment/Care planningCommunity based settings, social care:HousingChapter 9. Palliative care and end of life care Prof Sarah Kagan USA Chapter 10. Social issues and ageing Lesley Hayes UK VulnerabilityLoneliness/IsolationSelf-neglect Positive aging Chapter 11. Legal and ethical aspects Paul Buka & David Atkinson SafeguardingMental CapacityLasting power of attorney Chapter 12. Inspection, governance and quality Prof Robert McSherry and Patrick PearceChapter 13. Contemporary developmentsMari Synnøve BergeCaring for the carerAssistive technologyThe voice of older people in research Afterword

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Book SynopsisThis open access book has been written by ten Belgian health care professionals, nurses, university professors and doctors specializing in palliative care and ethicists who, together, raise questions concerning the practice of euthanasia. They share their experiences and reflections born out of their confrontation with requests for euthanasia and end-of-life support in a country where euthanasia has been decriminalized since 2002 and is now becoming a trivial topic.Far from evoking any militancy, these stories of life and death present the other side of a reality needs to be evaluated more rigorously.Featuring multidisciplinary perspectives, this though-provoking and original book is intended not only for caregivers but also for anyone who questions the meaning of death and suffering, as well as the impact of a law passed in 2002. Presenting real-world cases and experiences, it highlights the complexity of situations and the consequences of the euthanasia law.This book appeals to palliative care providers, hematologists, oncologists, psychiatrists, nurses and health professionals as well as researchers, academics, policy-makers, and social scientists working in health care. It is also a unique resource for those in countries where the decriminalization of euthanasia is being considered. Sometimes shocking, it focuses on facts and lived experiences to challenge readers and offer insights into euthanasia in Belgium.Table of ContentsForeword Professor Eugene Wesley Ely and Professor Margaret Somerville Preface Jacques Ricot 1. The Slippery Slope Syndrome Eric Vermeer Decriminalization – Ignorance – Trivialization - Perverted sense of duty – Suffering and silence – Economic context – Psychiatric context – After euthanasia - Euthanasia of minors – Euthanasia of remorse 2. The Doctor Turned into an Instrument Dr Catherine Dopchie The therapeutic alliance 3. When Conscience Wavers. Some Reflections on the Normalization of Euthanasia in Belgium Professor Willem Lemmens The embarrassment of the law – Euthanasia: medical act or transgression? - Euthanasia as transgression – Between law and conscience – Conclusion 4. Euthanasia for Unbearable Psychological Suffering Dr An Haekens What does the law say? – Lack of prospect of improvement - Incurable disorder – Persistent and unbearable psychologic suffering – What is empathy? – Decision-making capacity – Conclusion 5. People Facing the Question of Euthanasia: Patients, Family and Friends, Health-care Workers Dr. Rivka Karplus Personal suffering - Physical suffering - Psychological suffering - Emotional and relational suffering - Existential and spiritual suffering – How can one respond to a request of euthanasia? – Reaction of family and friends – How can the medical staff act or react? 6. Surrendering to vs. Inducing Death. Artificial Feeding as Paradigm Dr Marie Frings Framework of this reflective study – Why use feeding tubes? – First approach of the ethical question – Distinguishing between ordinary and extraordinary - Three levels of ethical judgment – Conclusion 7. The Meaning of Suffering or the Meaning of Life Despite Suffering Professor Dr Benoit Beuselinck Viktor Frankl: the question of meaning at the heart of medicine – How can we apply Viktor Frankl theories to helping patients? – What happens in a country where euthanasia has been decriminalised? 8. Resisting Dr Julie Blanchard The request for euthanasia - Family pressure - Explaining euthanasia – The trap of ‘integrated palliative care' - Sedation: misunderstanding and confusion – Contradiction and ambiguity 9. Behind the Scenes of Euthanasia François Trufin Distress of the healthcare worker - Euthanasia: a ‘de-humanising’ act - When conscience competes against law and bureaucracy - Euthanasia, a stage in accepting one’s illness - Euthanasia as a wake-up call from indifference – When trust meets professional integrity Postface Professor Timothy DevosLexiconThe following authors have contributed to the book, each with one chapter:• Eric Vermeer was a practicing nurse for more than 20 years in oncology and palliative care. A teacher and psychotherapist for the last 10 years, he works with nursing students in the services of palliative care and psychiatry. An ethicist by training, he is part of an ethics committee in a neuropsychiatric hospital in Namur, Belgium.• Dr Catherine Dopchie is a medical oncologist specialized in palliative care. Author of numerous articles and conferences.• Professor Willem Lemmens is a professor of ethics and modern philosophy. He is also the president of the Faculty of Philosophy at the University of Antwerp, Belgium.• Dr An Haekens is a psychiatrist and psychotherapist. She is the Chief Medical Officer of Alexianen, a psychiatric clinic in Tienen, Belgium.• Dr Rivka Karplus specialized in internal medicine, infectious diseases and haematology. Currently she works as a general practitioner and consultant in infectious diseases outside the hospital. Her interest in ethical issues was born out of the concrete reality of her work and multicultural encounters.• Dr Marie Frings is a general practitioner specializing in palliative care and clinical ethics and lives in France.• Professor Dr Benoit Beuselinck is a medical oncologist, appointed since 2010 at the Leuven University Hospitals. His research focuses on kidney carcinomas and anti-angiogenic treatments. In 2015 he was appointed professor of medicine at KU Leuven and he has a special interest in palliative care.• Dr Julie Blanchard was trained in France. She worked there in a mobile team of palliative care as well as in a palliative care unit. In Belgium since 2015 as a general practitioner, she works in a hospital mobile palliative team today in Namur, Belgium.• François Trufin is a nurse and head of a palliative care unit. He is secretary of the Palliative Care Platform of the German-speaking community in Belgium.

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Book SynopsisTextbook of Palliative Care is a comprehensive, clinically relevant and state-of-the art book, aimed at advancing palliative care as a science, a clinical practice and as an art. Palliative care has been part of healthcare for over fifty years but we still find ourselves having to explain its nature and practice to colleagues and to the public in general. Healthcare education and training has been slow to recognize the vital importance of ensuring that all practitioners have a good understanding of what is involved in the care of people with serious or advanced illnesses and their families. However, the science of palliative care is advancing and our understanding concerning many aspects of palliative care is developing rapidly. The book is divided into separate sections for ease of use. Over 100 chapters written by experts in their given fields provide up-to-date information on a wide range of topics of relevance to those providing care towards the end of life no matter what the disease may be. We present a global perspective on contemporary and classic issues in palliative care with authors from a wide range of disciplines involved in this essential aspect of care. The Textbook includes sections addressing aspects such as symptom management and care provision, organization of care in different settings, care in specific disease groups, palliative care emergencies, ethics, public health approaches and research in palliative care. This Textbook will be of value to practitioners in all disciplines and professions where the care of people approaching death is important, specialists as well as non-specialists, in any setting where people with serious advanced illnesses are residing. It is also an important resource for researchers, policy-and decision-makers at national or regional levels. Neither the science nor the art of palliative care will stand still so we aim to keep this Textbook updated as the authors find new evidence and approaches to care.Table of ContentsApproach and Nature of Palliative Care.- Quality of Life.- Global Aspects of Palliative Care.- Challenges and Future Directions of Palliative Care.- Organization of Palliative Care in Different Parts of the World.- Policies on Palliative Care in Different Parts of the World.- Palliative Care, Towards a New Definition.- Physical, Psychological/Psychiatric, Social and Spiritual Problems and Symptoms.- Pain and Pain Management.- Palliative Management of Breathlessness.- Fatigue.- Edema and Lymphedema.- Gastrointestinal Symptoms: Constipation, Diarrhea, and Intestinal Obstruction.- Gastrointestinal Symptoms: Nausea and Vomiting.- Cachexia/Anorexia and Feeding Difficulties.- Mouth.- Skin Symptoms.- Swallowing Difficulties.- Sleep Difficulties.- Psychological Symptoms.- Delirium and Palliative Care.- Neurological Symptoms.- Genitourinary Symptoms.- End-of-life Symptoms.- Gastroparesis and Cancer-Related Gastroparesis.- Advance Care Planning in Palliative Care.- Prognostication in Palliative Care.- Spirituality in Palliative Care.- Access to Palliative Care.- Integrated Palliative Care: Clinical, Organizational, and Health System Perspectives.- Family Focused Care Span.- Grief and Bereavement.- Rehabilitation in Palliative Care.- Dietetics and Nutrition in Palliative Care.- Mouth Care.- Creative Art Making in Palliative Care.- Music Engagement and Therapeutic Music.- Sexuality and Intimacy.- Interprofessional Practice in Palliative Care.- Generalists and Specialist Palliative Care.- Nursing and Palliative Care.- Self-Care and Palliative Care.- End of Life Care.- Self-management in Palliative Care.- Education and Palliative Care, Overview.- Palliative Care in Rural Settings.- Home Care, Primary Care.- Palliative Care in Residential Settings.- Hospital Care.- Palliative Care in the Intensive Care Unit (ICU).- Volunteers in Palliative Care.- Palliative Care and Cancer.- Palliative Care and Neurodegenerative Diseases.- Palliative Care and Stroke.- Palliative Care in Heart Failure.- Palliative care of Respiratory Disease in Primary Care.- Palliative Care and Liver Diseases.- Palliative Care in Kidney Disease.- Palliative Care and Endocrine Diseases.- Palliative Care in Chronic Illness and Multimorbidity.- Palliative care in dementia.- Dealing with a Wound in Palliative Care.- Pressure Area Management in Palliative care.- End of Life Health Care Experiences of Indigenous People and Ethnic Minorities; the example of Canada.- Palliative Care, Frailty and Older People.- Palliative Care of Pediatric Populations.- Palliative Care and Intellectual Disability.- Palliative Care of Indigenous Peoples and Peoples of Different Ethnicity.- Hypercalcemia of Malignancy.- Thromboembolism and bleeding.- Spinal Cord Compression.- Superior Vena Cava Obstruction.- Acute Cancer Pain Syndromes in Palliative Care Emergencies.- Acute Dyspnoea.- Neutropenic Sepsis.- Seizures.- Tumor Lysis Syndrome.- Suicide and Attempted Suicide.- Transfer to a Preferred Place of Death.- Challenging Family Dynamics.- Delirium as a Palliative Care Emergency.- Distinguishing and Managing Severe Psychological and Psychiatric Distress.- End-Of-Life Decisions.- Sedation and Terminal Sedation.- Nutrition and Hydration in Palliative Care.- Ethics of home-coming.- Request for Assisted Suicide.- Public Health and Epidemiological Research in Palliative Care.- Development and Evaluation of Complex Interventions in Palliative Care.- Mixed Method Research in Palliative Care.- Ethics in Palliative Care Research.- Evidence based Practice in Palliative Care.- New Public Health Approaches to End of Life Care.- A public health approach to integrate palliative care into a country’s health care system: guidance as provided by the WHO.- Measuring Cost-Effectiveness in Palliative Care.- Financial Aspects of Inpatient Palliative Care.- Financial Aspects of Outpatient Palliative Care.- Serious Illness and Out-of-Pocket Spending.

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Book SynopsisThis comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.Trade Review“The authors have done a marvelous job identifying common gaps in the care of patients with neurological illness and offer practical advice on addressing those gaps through a palliative care approach.” (Nina Leyson Martinez, Doody's Book Reviews, March, 22 , 2019) ​Table of ContentsChapter 1. Neuropalliative Care - Introduction Section I: Disease and Symptom-Specific Considerations Chapter 2. Severe Acute Brain Injury Chapter 3. Prolonged Coma and Early Disorders of Consciousness Chapter 4. Chronic Disorders of Consciousness Chapter 5. Parkinson’s Disease and Related Disorders Chapter 6. Dementia Chapter 7. Multiple Sclerosis Chapter 8. Neuromuscular Diseases Chapter 9. Malignant Brain Tumors Chapter 10. Child Neurology Section II: Improving Communication and Treatment Decisions Chapter 11. Communicating Effectively Chapter 12. Prognostication Chapter 13. Improving Medical Decisions Chapter 14. Addressing and Managing Requests to Hasten Death Chapter 15. Withholding and Withdrawing Life-Sustaining Treatments Section III: Crosscutting Issues in Palliative Care Chapter 16. Hospice and End of Life Care in Neurologic Disease Chapter 17. Pain Assessment and Management Chapter 18. Spiritual Care Chapter 19. Clinician Self-Care Chapter 20. Caregiver Assessment and Support Chapter 21. Practical Implementation Strategies for Outpatient Neurology Palliative Care Chapter 22. The Future of Neuropalliative Care

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Book SynopsisCarmen Birkholz zeigt, dass die subjektiven Spiritualitätskonzepte von Pflegenden und Begleitenden wesentlich für sie selbst und für ihr Sorgehandeln in Bezug auf Menschen mit Demenz am Lebensende sind. Dazu untersucht sie in vier Pflegeeinrichtungen mit unterschiedlichem religiösem und weltanschaulichem Hintergrund die subjektiven Spiritualitätskonstruktionen und beschreibt, dass diese unabhängig von der Religionszugehörigkeit sind. Unterschiede ergeben sich nicht in erster Linie von der Personenstruktur, sondern insbesondere durch die Rolle und den jeweiligen Handlungsspielraum in der Organisation.Table of ContentsSpiritualität und Spiritual Care als offene Konzepte.- Palliative Care bei Demenz und die spirituelle Sorge.- Die Erhellung subjektiver Spiritualitätskonzepte von Sorgenden.- Logbuch als Methode zur Erforschung vulnerabler Personengruppen.

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Book SynopsisMenschen in ihrer letzten Lebensphase begleitenAlle beruflich Pflegenden und ehrenamtlich Begleitenden von schwerstkranken und sterbenden Menschen und deren Zugehörigen finden in diesem Buch die notwendigen Kenntnisse zu Themen und Fragestellungen rund um Sterben, Tod und Trauer: Prophylaxen, Therapien, Schmerzlinderung Kommunikation und Ethik Psychosoziale Betreuung Gesetzliche Grundlagen und Hinweise zur Finanzierung durch die Krankenkassen Besondere Situationen bei Kindern, Menschen im Wachkoma, mit geistigen Behinderungen und Demenz Psychosoziale Begleitung von Sterbenden und ihren Angehörigen Palliative Sedierung Besonderheiten im Sterben von Männern Palliative Care für Menschen am Rande der Gesellschaft Vom Wunsch zu Sterben und der Verantwortung der Betreuenden Suizidassistenz Existenzielle Verzweiflung Haltung im palliativen Kontext Akupressur, Hypnotherapie, Musiktherapie, Kunsttherapie, Trauer Die 7. Auflage ist komplett überarbeitet und aktualisiert.Table of ContentsSektion I – Grundlagen: Geschichte, Selbstverständnis und Zukunftsstrategien von Palliative Care. - Grundlagen -Sektion II - Der sterbende Mensch und seine Angehörigen: Wenn nichts mehr zu machen ist.- Psychosoziale Begleitung.- Biographisches Arbeiten.- Vorsorgende Verfügungen.- Ethische Entscheidungen am Lebensende.- Sterbenden Menschen begegnen.- Sektion III - Netzwerk Palliative Care: Organisationsformen.- Qualitätsmanagement.- Multidisziplinäres Arbeiten im Team.- Selbstpflege.- Sektion IV - Palliative Pflege und komplementäre Therapien: Grundlagen und Besonderheiten der Pflege.- Symptomlinderung.- Palliative Pflege bei Kindern.- Neuro-Palliative Care.- Demenz und Palliative Care.- PC bei Menschen im Wachkoma.- PC bei Menschen mit geistiger Behinderungen.- PC für Menschen am Rande der Gesellschaft.- Sektion V – Trauer: Abschiedsrituale.- Umgang mit Verstorbenen.- Bestattung.- Das Wesen der Trauer.- Das Undenkbare denken lernen.

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Book SynopsisBelgium and the Netherlands - the Low Countries - are the first countries in the world to have legalized euthanasia. Physicians who terminate life at the patient's request no longer have to fear criminal prosecution. However, end-of-life legislation in the Low Countries has provoked diverse responses and sparked vigorous and divisive ethical debate. For some, the new legislation has become a shining example; for others it is a lamentable materialization of a culture of death. A"Euthanasia and Palliative Care in the Low CountriesA" provides an overview and comparison of the legal specifics of the Belgian and Dutch Euthanasia Acts, a discussion of palliative care initiatives and an ethical examination of the new legislation. In addition, the book provides an in-depth analysis of the arguments used in the end-of-life debate and a critical examination of the positions taken by the churches. The book concludes with an overview of how Christian health-care institutions accommodate to this new legal situation.

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Book Synopsis

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Book SynopsisPalliative care supports patients suffering from life-limiting illnesses by providing relief from physical, emotional and spiritual suffering, improving the quality of life for them and their families. It is an important component of good patient care, an integral part of the continuum of support for patients suffering with advanced cancer and end stage organ diseases. Providing good palliative care requires both sound clinical knowledge and compassion.With new chapters on end stage organ diseases, spiritual care and medical ethics, all healthcare professionals will find wisdom and practical advice in this book by the patient's bedside. The editors and contributors of the 2nd Edition of The Bedside Palliative Medicine Handbook have taken great care to provide readers with an evidence-based, updated guide to the practice of palliative medicine.

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