Palliative medicine Books

Book SynopsisDer Mensch und seine Leiderfahrung sind nicht eindimensional auf den Körper bezogen, sondern vielschichtig zu begreifen. Schmerzen treffen uns in unserer ganzen Existenz. Josef Raischl und Dorothea Bergmann weiten das Verständnis von Schmerzen und definieren Dimensionen des spirituellen Schmerzes, die jeweils Erfahrungen des Mangels oder der Entfremdung umfassen. Wesentlich geht es um spirituelle Themen wie Sinnverlust, Versöhnung mit anderen und mit sich selbst, Hoffnung, transzendentale Verankerung. Spiritualität wird dabei als ein weit über religiöse Bindung hinausreichendes Phänomen aufgefasst. Auf Basis des Konzepts der Gestalttherapie und dem umfassenden System des mittelalterlichen Philosophen und Theologen Bonaventura zeigen die Autoren Wege, in der Begleitung Schwerkranker mit spirituellem Schmerz umzugehen.

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Book SynopsisPalliative medicine and hospice work have developed in many ways over the past few years. This has also led to dying, death and mourning being perceived and discussed more intensively in society. When meeting and accompanying seriously ill and dying people, including those around them, topics such as pain, physical symptoms, psychosocial problems, experiences of suffering, parting, death and grief are omnipresent. One of the main tasks of those working in the palliative and hospice sectors is dealing with grief. The manual explains the possibilities and limits of grief encounters and grief counseling and provides answers to numerous questions about the phenomenon of grief.In addition to imparting basic theoretical knowledge to understand grief, practical ways and strategies for dealing with grief are shown as well as questions of guilt, despair, search for meaning and longing that arise again and again.

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisBishop argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death.Trade Review“The book’s interdisciplinary nature, along with its careful analyses combined with concrete stories of real human struggles with death and dying, no doubt, will be of interest to those engaged in medicine, bioethics, philosophy, theology, and debates concerning public health policies; but all those interested in the place of the body in modern technoscientific culture will find it engaging and cogent.” —Per Caritatem". . . this book will prove to be a seminal, conversation-changing monograph especially in bioethics and philosophy of medicine. . . . It will challenge the fundamental presuppositions that structure most courses in bioethics or death and dying. It is certainly a must-read for scholars and graduate students in these fields, but with guidance, it is an accessible and important text to use with undergraduates interested in bioethics or theology and medicine as well." —Modern Theology"This is a genuinely novel approach that invites one to completely reassess why healthcare institutions and professionals function as they do. It also invites us to question how our lives are shaped by our anticipated deaths. . . . This is not an easy book, but it is worth devoting time to reading it and thinking about the questions it poses. It is beautifully written and carefully argued, and instead of shying away from difficult and potentially disruptive issues in modern medicine it exposes them and challenges us to think again." —Times Higher Education“In this evocatively titled book, physician Bishop joins his Catholic sensibility with a Foucaldian analysis of medicine and power to expose the ambiguities and complexities of contemporary end-of-life issues. . . . Bishop examines issues such as how the need for donated organs since the 1950s has shaped care of the dying in troubling ways, the contesting passions surrounding the Terri Schiavo case, and the trivialization of the religious lives of caregivers and dying patients as wrought by the professionalization of palliative care.” —Library Journal"The Anticipatory Corpse: Medicine, Power, and the Care of the Dying [is] a compelling read and a groundbreaking work in philosophy and bioethics. Written by physician, bioethicist, and philosopher Jeffrey P. Bishop, the book presents an eloquent argument as to how the profession’s care of dying persons has evolved as well as a provocative and insightful critique of the present state of such care. . . . The Anticipatory Corpse . . . is engaging, provocative, and difficult to put down. . . . For physicians, lawyers, philosophers, chaplains, nurses, and other professionals whose work is centered on life’s final chapter, I wholeheartedly recommend this book." —Journal of the American Medical Association“Jeffrey Bishop . . . takes the reader on a journey into the past to provide insight into how the dead body plays an integral and unrecognized role in the present state of medicine in his book . . . . He argues that the corpse is the end of the practice of medicine.” —Journal of Medical Humanities“It is hard to overestimate the importance of Bishop’s book, not least because of the unchallenged, well-nigh hegemonic place occupied by medicine in western culture . . . . The theological acuteness and pastoral warmth that flow through Jeffrey Bishop’s book make it the most compelling argument for the superiority of this type of humane medicine over the ubiquitous and utterly flaccid ‘biopsychosociospiritual’ pretensions of modern medical practice. But as a challenge to the story of western liberalism, and the central place of medicine within it, The Anticipatory Corpse is also the most important book of 2011.” —ABC Religion and Ethics“The Anticipatory Corpse is interesting, provocative and important—one of the most novel contributions to the field of bioethics of the last several decades. Bishop has many illuminating new things to say about the ethics of medical care for the dying. In the process, he helps to explain why bioethics itself is in such a sad state.” —America"In this brilliant book, Jeffrey Bishop, who is both a physician and a philosopher, turns his clinical and analytical gaze on medicine. His diagnosis is bleak: 'There is something rotten in the heart of medicine.' Nine of the ten chapters are devoted to the diagnosis, showing the source and history of the disease and some of its symptoms, always focusing on how medicine approaches death and care for the dying. . . . In the last chapter, he turns his attention to therapeutic possibilities for medicine and raises a series of provocative questions, the most provocative of which is the last line of his book: Might it not be that only theology can save medicine?" —The Christian Century“The Anticipatory Corpse has the potential to become a classic in the field of medicine. . . . Bishop’s critique of contemporary medical practices and the fundamental philosophical questions underlying them are a stark reminder that the practices of medicine—many of them very good indeed—should not become ends in themselves.” —Ethics and Medicine

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Book SynopsisNow in its second edition, this is the only book on occupational therapy in oncology and palliative care. It has been thoroughly updated, contains new chapters, and like the first edition will appeal to a range of allied health professionals working with patients with a life-threatening illness.Trade Review"I would recommend this practical text to both students and professionals in the field." (British Journal of Occupational Therapy, 2007)Table of ContentsList of Contributors ix Foreword xi Derek Doyle, MD, OBE Preface xiii Acknowledgements xiv Introduction xvii 1 What is Cancer? 1 Jill Cooper 2 Challenges Faced by Occupational Therapists in Oncology and Palliative Care 11 Jill Cooper 3 Occupational Therapy Approach in Symptom Control 27 Jill Cooper 4 Occupational Therapy in Anxiety Management and Relaxation 41 Jill Cooper 5 Occupational Therapy in the Management of Breathlessness 51 Jill Cooper 6 Occupational Therapy and Cancer-Related Fatigue 61 Daniel Lowrie 7 Client-centred Approach of Occupational Therapy Programme – Case Study 83 Gemma Lindsell 8 Occupational Therapy in Paediatric Oncology and Palliative Care 107 Claire Tester 9 Occupational Therapy in HIV-related Cancers and Palliative Care 125 Will Chegwidden and Camilla Hawkins 10 Occupational Therapy in Neuro-oncology 145 Helen Barrett and Julie Watterson 11 Occupational Therapy in Hospices and Day Care 161 Anne Bostock, Shelley Ellis, Sara Mathewson and Lilias Methven 12 The Use of Creativity as a Psychodynamic Activity 175 Kathryn Boog 13 Measuring Occupational Therapy Outcomes in Cancer and Palliative Care 189 Gail Eva Appendices 201 Glossary 239 Glossary-Abbreviations 247 Index 249

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Book SynopsisAspects include psychosocial, spiritual and physical needs of the patient. Care and treatment are considered in a multidisciplinary and complementary way. Patient centered coverage considers treatment and care of the dying in all settings in major diseases. A highly integrated approach to pain and symptom control, including complementary therapies.Trade Review“However, I have found myself referring to this book in recent months far more than some of the bigger, more established, textbooks – and if the measure of a good book is how well-thumbed the pages become, then the author is on to a winner. (European Journal of Palliative Care, 2010) "The author's warmth, enthusiasm and concern for patients, their families and the professionals who care for them, combined with her scholarship, shine throughout this book. I recommend it to anyone with an interest in the care of people approaching the end of their lives in any setting." (Palliative Medicine, 2009) "This book will be a very welcome addition to the undergraduate curriculum for clinicians seeking to specialize in palliative care." (International Journal of Palliative Nursing, 2009) "There is a wealth of knowledge and experience for nursing students and newly qualified nurses seeking direction.... I would recommend this for reference on general medical wards and units where patients are receiving end of life care." (Nursing Standard, April 2009) Table of ContentsForeword x Contributors’ biographies xii Acknowledgements xv Dedications xvi 1 Historical and cultural perspectives on the evolution of palliative care 1 Key points 1 Introduction 2 Death in society 2 Dame Cicely Saunders and the origins of contemporary palliative care 3 An international perspective 6 Defi nitions 8 End-of-life care national programme 12 Culture 15 Service user involvement 18 Conclusion 19 Main implications for practice 19 Suggested further reading 19 2 Facing progressive disease and death 21 Key points 21 Psychosocial care 22 Partnership – maintaining the balance 23 Approaches to care 24 Giving the bad news 26 Denial/avoidance 29 Anger 32 Anxiety 33 Depression 33 Social pain 35 Conclusion 35 Main implications for practice 36 Suggested further reading 36 3 Communication skills 37 Key points 37 The impact of good communication 38 The impetus to teach communication skills 38 Facilitative styles 40 What Howard taught me about nursing dying people 45 Helpful strategies 46 Communicating with people with dementia 56 Conclusion 57 Main implications for practice 57 Suggested further reading 58 4 Self-awareness and self-care 59 Key points 59 Saving a life versus stealing a death 60 Facing death 62 Making space for decision-making 64 Self-awareness 66 How much did Nicky impact on my life? 68 Self-care 69 Main implications for practice 72 Suggested further reading 72 5 The sick role and partnership working 73 Key points 73 Introduction 73 Partnership care – what does it mean? 75 The sick role 76 Face-to-face partnership: attention to information giving 78 Written information 81 Decision aids 82 Special needs 83 Conclusion 83 Main implications for practice 83 Suggested further reading 84 6 Hope and spirituality 85 Key points 85 Introduction 86 Hope research 86 Spirituality 94 Religious practices concerned with death 100 Conclusion 104 Main implications for practice 104 Suggested further reading 105 7 Finding resilience together 106 Key points 106 Resilience in health care 107 Patient groups 108 Psychoneuroimmunology 108 The expert patient 111 Conclusion 114 Main implications for practice 115 Suggested further reading 115 8 Living with dying 116 Key points 116 Introduction 117 Social death 118 Vulnerable groups 119 Informational needs 121 Being heard and feeling supported 122 Companionship 123 Intimacy and caring 125 Health needs 125 Diffi cult thoughts and letting go 127 Conclusion 128 Main implications for practice 128 Suggested further reading 129 9 Bereavement 130 Key points 130 Defi nitions 131 Untimely deaths 131 Bereavement and health 132 Grief theorists 134 Mourning practices in different cultures 141 Bereaved children 143 Old age 143 Bereavement and dementia 143 Solitary grief 144 Bereavement services 145 Conclusion 148 Main implications for practice 149 Suggested further reading 149 10 Pain and other major symptoms: an integrated approach 150 Key points 150 Pain theories 152 Psychological approaches 154 Physical approaches 158 Complementary therapies 163 Creative therapies 170 Conclusion 172 Main implications for practice 172 Suggested further reading 172 11 The history of the use of strong opioids for cancer pain 173 Key points 173 Studies and narratives 174 WHO analgesia ladder 177 Side effects 182 Alternative routes for administration of strong opioids 184 Conclusion 187 Main implications for practice 188 Suggested further reading 188 12 Concordance and advance care planning 189 Key points 189 Patient-centred care: concordance 190 Advance care planning 192 The Mental Capacity Act 2005 196 Main implications for practice 196 Suggested further reading 197 13 Eleven prevalent symptoms 198 Key points 198 History 198 Pain 199 Nausea and vomiting 206 Constipation 212 Diarrhoea 216 Anorexia 218 Fatigue 223 Breathlessness 227 Confusion 232 Insomnia 236 Anxiety 238 Depression 240 Conclusion 244 Main implications for practice 244 Suggested further reading 245 Addendum: Doloplus 2 Scale 245 14 Palliative issues in some common diseases 248 Key points 248 Gold standard for all 248 Doing the right thing at the right time 249 Conclusion 280 Main implications for practice 280 Suggested further reading 280 Contents ix 15 Palliative emergencies 282 Key points 282 Palliative emergencies 282 Other symptoms 286 Main implications for practice 287 Suggested further reading 287 References 288 Index 315

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Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181

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Book SynopsisViewing death as a natural event, hospices seek to enable people approaching mortality to live as fully and painlessly as possible. Award-winning medical historian Emily K. Abel provides insight into several important issues surrounding the growth of hospice care. Using a unique set of records, Prelude to Hospice expands our understanding of the history of US hospices.Trade Review"For those doing research on death and dying, this book is a must read; it provides a quick and easy-to-understand testimony from people experiencing hospice. Readers may gain inspiration on how to make death a more comfortable process for their patients, their families, or themselves." * Choice *"Emily Abel is a distinguished scholar of medicine, nursing, and caregiving. Her latest book, Prelude to Hospice, offers powerful testimony from patients at the moment when many realized that medical progress had limits, and that technology sometimes needs to give way to care. Her portrayal of Florence Wald shows her deep understanding of the changing role of nurses in the second half of the twentieth century. Anyone who wants to understand the origins of hospice in the United States, the challenges of caregiving, and the ways that today's dilemmas at the end of life were present at the origins of the palliative care movement should read her compelling new book." -- Carla C. Keirns, MD, PhD * historian and palliative care physician *"Emily Abel is one of the most respected, influential historians working on family care giving and now, more recently, death and dying." -- Patricia D'Antonio * director, Barbara Bates Center for the Study of the History of Nursing *"If you’re looking for a case study on a dysfunctional research and clinical team, hamstrung by hierarchy and hobbled by boundary violations, this book will leave your mouth ajar." * The Gerontologist *"Partly inspired by Cicely Saunders, [Florence Wald] knew there was a better way to care for the terminally ill and their families. But it was anything but an easy road. This book describes the personal, professional, institutional and societal hurdles she came up against." * IAHPC Newsletter/HospiceCare.com *"New Scholarly Books: Weekly Book List, June 8" by Nina C. Ayoub * Chronicle of Higher Education *“Abel’s book is a timely portrayal of one of the founders of the modern hospice movement. In learning about Ms. Wald, it is our responsibility as the reader to take the good, learn from the bad, and continue to build upon and evolve Ms. Wald’s legacy to embrace suffering, loss, and hurt with compassion and empathy.” * Omega *Table of ContentsContents Introduction 1 Setting the Stage 2 Doctor and Nurse 3 Caring across Cultures 4 Hope, Blame, and Acceptance 5 Making Sense of the Findings Conclusion

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Book SynopsisPalliative Care Nursing at a Glance is the perfect companion for nursing students, health and social care practitioners, and all those involved in palliative care delivery, both in the clinical and home setting.Table of ContentsContributors viii Preface xi List of Abbreviations xii About the companion website xiv Part 1 Introduction 1 1 Setting the scene 2Christine Ingleton 2 Managing the needs of family caregivers 4Philip J. Larkin 3 Principles of effective communication 6Alison Pilsworth and Martyn Geary 4 Advance care planning 8Christine Ingleton 5 Delivering palliative approaches in different care contexts 10Christine Ingleton 6 Integrated care pathways 12Christine Ingleton Part 2 Clinical applications 15 7 Principles of symptom management 16Philip J. Larkin 8 Best practice in pain management 18Pat Schofield 9 Managing pain 20Pat Schofield 10 Complex pain problems and treatment challenges 22Pat Schofield 11 Managing nausea and vomiting 24Jackie Robinson 12 Managing constipation 26Philip J. Larkin 13 Understanding depression 28Mari Lloyd-Williams 14 Understanding delirium and confusion 30Peter Lawlor and Katie Marchington 15 Managing myoclonus, tremors and muscle spasms 32Jackie Robinson 16 Managing lymphoedema 34Lorna Malcolm 17 Managing hypercalcaemia of malignancy 36Geraldine Tracey 18 Assessing and managing oral hygiene 38Philip J. Larkin 19 Caring for people with dysphagia 40Philip J. Larkin 20 Managing breathlessness 42Liz Darlison 21 Cough and haemoptysis 44Jackie Robinson 22 Explaining and exploring cachexia, anorexia and fatigue 46Cathy Payne 23 Continual subcutaneous infusion: using a syringe pump 48Philip J. Larkin 24 Emergencies: superior vena cava obstruction 50Joanna De Souza 25 Emergencies: haemorrhage 52Joanna De Souza 26 Emergencies: malignant spinal cord compression 54Joanna De Souza 27 Chemotherapy 56Clare Warnock 28 Radiotherapy 58Clare Warnock Part 3 Palliative care for all 61 29 Palliative care approaches in heart failure 62Gill Horne and Sarah Human 30 Palliative care approaches to chronic obstructive pulmonary disease 64Clare McVeigh 31 Palliative care approaches in motor neurone disease 66David Oliver 32 Palliative care approaches for people receiving dialysis 68Rachel Lewis and Helen Noble 33 Palliative care approaches for people with progressive kidney disease: a non-dialytic pathway 70Helen Noble and Rachel Lewis 34 Care of the patient following a stroke 72Tony Ryan 35 Principles of palliative care for older people 74Amanda Clarke and Paula Smith 36 Care of the person with dementia 76Tony Ryan 37 Care for people with mental illness 78Ann Sheridan 38 Care for people with learning disabilities 80Dorry McLaughlin 39 Care for the homeless person 82Brian Nyatanga 40 Care for people in prison 84Mary Turner and Marian Peacock Part 4 Professional roles in palliative care 87 41 Understanding rehabilitation in palliative care 88Cathy Payne 42 The social worker 90Niamh Finucane 43 The occupational therapist 92Deirdre Rowe 44 The physiotherapist 94Helena Talbot-Rice 45 Complementary and supportive therapy 96Philip J. Larkin 46 The clinical nurse specialist 98Liz Bryan 47 The advanced nurse practitioner 100Geraldine Tracey 48 The nurse consultant 102Jo Hockley 49 The chaplain 104Mark Cobb 50 The medical consultant 106Bill Noble Part 5 Ethical challenges in palliative care practice 109 51 Stress in palliative care nursing 110Liz Bryan 52 Responses to euthanasia and physician-assisted suicide 112Joanna De Souza 53 Withholding and withdrawing life-sustaining care 114Joanna De Souza 54 Recognising and planning for the terminal phase of life 116Pauline Ui Dhuibhir Part 6 Managing end-of-life care 119 55 Changing goals of care at the end of life 120Deborah Hayden 56 Managing respiratory secretions at the end of life 122Jackie Robinson 57 Care at the moment of death 124Michael Connolly 58 Spiritual perspectives at the end of life 126Mark Cobb 59 Bereavement 128Pam Firth Index 131

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Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

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Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex

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Book SynopsisThis unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader.Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care.Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.Table of ContentsIntroduction Definition of palliative care in general Difference between palliative care and hospice Definition and description of perinatal palliative care Overview of book and its’ intended uses/audience Section 1: Parent Experiences with Life-limiting Fetal Diagnoses 1. Theoretical Perspectives a. Prenatal Attachment b. Fetal Personhood c. Bereavement theories d. Developmental Tasks of Pregnancy in Life-limiting Fetal Diagnoses (LLFD) 2. Parental Needs a. Parental decision-making b. Parental needs from health care c. Working with families Section 2: Clinical Care of Families with LLFD 3. Scope of Care of Interdisciplinary Team (Overview) a. Obstetrics b. Genetics counseling c. Neonatology d. Palliative care e. Nursing care (obstetrics, labor and delivery, neonatal) f. Social work g. Specialists (cardiology, surgery, mental health, etc) 4. Palliative Care Specialist Management a. Family meetings b. Talking about goals of care c. Pain & Symptom management (role of palliative care, details in chapters 6, 7) d. Concurrent palliative and life-sustaining care 5. Obstetrical Management a. Prenatal care – routine and specialized for LLFD b. Ultrasounds (frequency, goal), testing c. Intrapartum management and special considerations i. Monitoring ii. C-section vs vaginal delivery d. Postpartum care – routine and specialized for LLFD 6. Neonatal Pain Management a. Pain perception in neonates b. Pain management approaches i. Nonpharmacologic (including nursing and parent role) ii. Pharmacologic (including opioids) 7. Non-Pain Symptom Management a. Nursing role b. Parental involvement c. Agitation and irritability (nonpharmacological, pharmacologic) d. Increased work of breathing e. Constipation f. Seizures g. Feeding and nutrition 8. Care in the Community a. Home care and hospice b. Community resources (bereavement, support groups, etc.) 9. Spiritual Care in the Perinatal Period (chaplain) a. Spiritual Assessment b. Rituals/Baptism? 10. Ethical Considerations in the Perinatal Period a. Ethics of provider presenting options (termination, continuation, palliative care) b. Borders of viability c. Futility d. Feeding and nutrition e. Limiting life-sustaining treatment 11. Bereavement Care a. What does it consist of b. Where is it provided 12. Considerations in Special Populations a. Underserved and minority populations b. Cultural perspectives on perinatal palliative care c. Complex family structure d. Parents who have struggled to conceive i. Prior loss ii. Infertility iii. LGBT couples e. Multiples f. Infants at the borders of viability g. When the mother is the one with the life-limiting illness Section 3: Perinatal Palliative Care Programs 13. Structure of PPC Programs + Starting a PPC Program 14. Interdisciplinary Care a. Communication within interdisciplinary care team b. Birth Planning and Birth Plans c. Care coordination d. Self-care of care team 15. Education and Training in PPC

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Book SynopsisThis comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.Trade Review“The authors have done a marvelous job identifying common gaps in the care of patients with neurological illness and offer practical advice on addressing those gaps through a palliative care approach.” (Nina Leyson Martinez, Doody's Book Reviews, March, 22 , 2019) ​Table of ContentsChapter 1. Neuropalliative Care - Introduction Section I: Disease and Symptom-Specific Considerations Chapter 2. Severe Acute Brain Injury Chapter 3. Prolonged Coma and Early Disorders of Consciousness Chapter 4. Chronic Disorders of Consciousness Chapter 5. Parkinson’s Disease and Related Disorders Chapter 6. Dementia Chapter 7. Multiple Sclerosis Chapter 8. Neuromuscular Diseases Chapter 9. Malignant Brain Tumors Chapter 10. Child Neurology Section II: Improving Communication and Treatment Decisions Chapter 11. Communicating Effectively Chapter 12. Prognostication Chapter 13. Improving Medical Decisions Chapter 14. Addressing and Managing Requests to Hasten Death Chapter 15. Withholding and Withdrawing Life-Sustaining Treatments Section III: Crosscutting Issues in Palliative Care Chapter 16. Hospice and End of Life Care in Neurologic Disease Chapter 17. Pain Assessment and Management Chapter 18. Spiritual Care Chapter 19. Clinician Self-Care Chapter 20. Caregiver Assessment and Support Chapter 21. Practical Implementation Strategies for Outpatient Neurology Palliative Care Chapter 22. The Future of Neuropalliative Care

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Book SynopsisCarmen Birkholz zeigt, dass die subjektiven Spiritualitätskonzepte von Pflegenden und Begleitenden wesentlich für sie selbst und für ihr Sorgehandeln in Bezug auf Menschen mit Demenz am Lebensende sind. Dazu untersucht sie in vier Pflegeeinrichtungen mit unterschiedlichem religiösem und weltanschaulichem Hintergrund die subjektiven Spiritualitätskonstruktionen und beschreibt, dass diese unabhängig von der Religionszugehörigkeit sind. Unterschiede ergeben sich nicht in erster Linie von der Personenstruktur, sondern insbesondere durch die Rolle und den jeweiligen Handlungsspielraum in der Organisation.Table of ContentsSpiritualität und Spiritual Care als offene Konzepte.- Palliative Care bei Demenz und die spirituelle Sorge.- Die Erhellung subjektiver Spiritualitätskonzepte von Sorgenden.- Logbuch als Methode zur Erforschung vulnerabler Personengruppen.

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Book SynopsisMenschen in ihrer letzten Lebensphase begleitenAlle beruflich Pflegenden und ehrenamtlich Begleitenden von schwerstkranken und sterbenden Menschen und deren Zugehörigen finden in diesem Buch die notwendigen Kenntnisse zu Themen und Fragestellungen rund um Sterben, Tod und Trauer: Prophylaxen, Therapien, Schmerzlinderung Kommunikation und Ethik Psychosoziale Betreuung Gesetzliche Grundlagen und Hinweise zur Finanzierung durch die Krankenkassen Besondere Situationen bei Kindern, Menschen im Wachkoma, mit geistigen Behinderungen und Demenz Psychosoziale Begleitung von Sterbenden und ihren Angehörigen Palliative Sedierung Besonderheiten im Sterben von Männern Palliative Care für Menschen am Rande der Gesellschaft Vom Wunsch zu Sterben und der Verantwortung der Betreuenden Suizidassistenz Existenzielle Verzweiflung Haltung im palliativen Kontext Akupressur, Hypnotherapie, Musiktherapie, Kunsttherapie, Trauer Die 7. Auflage ist komplett überarbeitet und aktualisiert.Table of ContentsSektion I – Grundlagen: Geschichte, Selbstverständnis und Zukunftsstrategien von Palliative Care. - Grundlagen -Sektion II - Der sterbende Mensch und seine Angehörigen: Wenn nichts mehr zu machen ist.- Psychosoziale Begleitung.- Biographisches Arbeiten.- Vorsorgende Verfügungen.- Ethische Entscheidungen am Lebensende.- Sterbenden Menschen begegnen.- Sektion III - Netzwerk Palliative Care: Organisationsformen.- Qualitätsmanagement.- Multidisziplinäres Arbeiten im Team.- Selbstpflege.- Sektion IV - Palliative Pflege und komplementäre Therapien: Grundlagen und Besonderheiten der Pflege.- Symptomlinderung.- Palliative Pflege bei Kindern.- Neuro-Palliative Care.- Demenz und Palliative Care.- PC bei Menschen im Wachkoma.- PC bei Menschen mit geistiger Behinderungen.- PC für Menschen am Rande der Gesellschaft.- Sektion V – Trauer: Abschiedsrituale.- Umgang mit Verstorbenen.- Bestattung.- Das Wesen der Trauer.- Das Undenkbare denken lernen.

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Book SynopsisThe Dying Patient in Psychotherapy is a powerful account of love and death within a psychotherapeutic relationship. The narrative traces one man's journey in psychotherapy and that of the analyst who accompanies him. The full-length description of an analysis demonstrates the developmental path of an erotic transference from its origins in infancy, through fantasies of sex and violence to mature erotic intimacy. The countertransference is considered with exceptional honesty as the analysis intensifies following the diagnosis of a life-threatening illness. A series of dreams rich in symbolic imagery traces the psychological situation as death approaches. A precursor to Schaverien's acclaimed book Boarding School Syndrome, the single case study demonstrates the enduring impact of early boarding. This second edition also includes an updated literature review, and new material regarding training and supervision, making it a valuable resource for training inTrade Review"The author is a wonderful story teller and the journey she describes is an excellent representation of the experiences of a psychoanalyst working effectively with a dying patient. She captures the challenges of this special analytic situation and describes the counter transferences that treating a dying patient elicits exceptionally well. She recommends supervision to aid the analyst with the problematic counter transference reactions. She also recommends flexibility with regard to the analytic frame and a focus on the here and now of the patient’s struggle to live. Finally she permits the relationship to become more real by revealing more about her reactions to the work but with great care not to burden the patient with her grief." Norman Straker MD, DLFAPA, Clinical Professor Weill Cornell Department of Psychiatry, Consultant at Sloan Kettering Cancer Center"This…excellent book…combines in a unique way theoretical issues, clinical insights, analytic technique, therapeutic skills in the context of a most moving and human story of life, love and death. This book is the finest example of Joy Schaverien’s characteristic style of writing which includes all these facets of an analytical encounter in a touching and most readable way."Professor Renos Papadopoulos, Jungian psychoanalyst, University of Essex and Tavistock clinic"A detailed account of a successful psychoanalysis with a dying patient… Because death is an extreme event that brings all of life into focus, Dr Schaverien’s examples of transference and dream interpretations reach far beyond the case she recounts. I recommend this book to any psychotherapist who wants to understand the therapeutic uses of the erotic transference."Polly Young-Eisendrath, PhD, author of Women and Desire, editor of The Cambridge Companion to Jung"Once again, Joy Schaverien has provided a brilliant combination of a rarely discussed subject, the case of a dying patient in psychoanalysis, together with an in depth examination and commentary of psychoanalytic theory and practice. Joy includes exploration and analysis of dreams, a Jungian perspective, throughout the analysis. Her valuable modern up-dated theories of boarding school trauma, and of course her expertise on countertransference and erotic transference. This 2nd edition surpasses the first in all respects and will appeal to experienced practitioners, trainees from many professions and populations, and participants in therapy."Professor Helen Odell-Miller OBE, PhD, Director of The Cambridge Institute for Music Therapy Research Anglia Ruskin UniversityReviews from the first edition"The importance of this book lies in bringing work with the dying into the mainstream of our work ... This humane and careful text is a tribute to the courage of both Schaverien and [the client] and a gift for the reader."Jeremy Weinstein, BACP-registered trainer, UKCP Gestalt psychotherapist: Counselling and Psychotherapy Journal'"... Joy Schaverien has risked having her heart … as well as her technique and intellect, open for scrutiny in a way that is both brave and inspiring ... One of the most instructive aspects of this book is that it enables the reader to enter into a detailed account of the management of an intense, at times merged, involvement with a patient, whilst being provided with intermittent glimpses of how the analyst's mind is working, how she is building her frame, and patrolling the boundaries ... The book is well structured. Its clear chapter headings and sub-headings, as well as a chronological list of the patient's dreams, are containing and form a useful reference guide.'"Hilary Lester, Training Analyst with the Society of Analytical Psychology: Journal of Analytical Psychology"In this book Joy Schaverien has given us one of the most moving accounts of an analysis that I have encountered ... she demonstrates a considerable gift for explaining the analytical process in terms that are accessible to the well-educated lay person in a way that does not detract from the account for the professional clinician ... I found the dream material and the way in which it was presented particularly moving and thought-provoking. I liked the way in which each dream was presented in its own right and the reader was given the opportunity to think about it, before encountering the patient's associations and the analyst's comments ... The book from first to last chapter contains a deeply moving and sensitive account of the analyst's inner process of holding the analytical frame in the most adverse of circumstances... this is a book, that …should not be missed."Margaret Wilkinson, retired Training Analyst with the Society of Analytical Psychology, Author of Coming into Mind: Journal of the West Midlands Institute of PsychotherapyTable of ContentsPart 1: 1. Psychotherapy with the Dying Patient 2. Intimacy Revealed: Establishing a Therapeutic Relationship 3.The House and Boarding School: Intimacy and Exile Part 2: 4. Dreams 5. Dreams and Diagnosis 6. Dreams and the Erotic Transference 7. The Erotic Transference and Countertransference 8. Sexual Attractions and Erotic Violence: Men Who Leave Too Soon Revisited 9. The Inner-World Parents: The Paternal Function and the Maternal Realm 10. Talking about Love, Sex and Death Part 3: 11. Boundaries and the Bereavement of Dying 12. Envy, Contamination and Countertransference 13. The Link Between Psychotherapy and Cancer 14. The Problems of Ending When the End is Death Part 4: 15. Breakdown, Boundaries and Hospital 16. The Hospice and Medication 17. Home 18. Supervision, Training and Countertransference Bereavement: Research Questions

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Dying and Disabled Children by Harold M. Dick | BookCurl

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Book SynopsisThe new edition of this acclaimed book comprehensively updates its timely advocacy of the need for good quality palliative care, today more necessary than ever. Rooted in the social history of the care of the elderly and terminally ill, Modern Hospice Design: The Architecture of Palliative and Social Care takes cognisance of the new conditions of social care in the 21st century, principally in the UK, Europe and North America. It does so with regard to the development of new building types, but also in response to new philosophies of palliative care and the status of the elderly and the dying. Benefitting from a clearer methodological approach and conceptual framework, the expanded book allows a broad section of readers to navigate the text more easily. At its core is a public discussion of a philosophy of design for providing care for the elderly and the vulnerable, taking the importance of architectural aesthetics, the use of quality materials, the porousness of deTrade ReviewWhat reviewers have said about Ken Worpole's most recent books:Last Landscapes: the architecture of the cemetery in the West'One of the most thought-provoking books of the year.'THE INDEPENDENT'An intensely personal analysis, supported by wonderful photographs.' THE ARCHITECTS' JOURNAL, BOOKS OF THE YEAR'A richly humane and engrossing book which incorporates a huge range of sources: he quotes anthropologists, novelists and a wealth of thinkers. The result is a work that is warm, compassionate, intelligent and thought-provoking.'BUILDING DESIGNModern Hospice Design: the architecture of palliative care‘Ken Worpole traces a path out of the darkness and into the light: from the Victorian asylum or sanatorium, devised to punish the sick, to the hospice movement and its assertion that even those who can't be made well by clinical medicine are entitled to be treated by the medical profession with not just dignity but something like love.’THE TIMES LITERARY SUPPLEMENT‘This concise, well-referenced book encourages the reader to consider whether design can foster hope…Worpole’s book speaks directly to designers and health care professionals to take this opportunity to engage with the deeper issues of ritual and occasion.’JOURNAL OF DESIGN HISTORYTable of Contents1. A new world of palliative and social care 2. A house at the end of life 3. Be kind quickly: how the modern hospice movement changed (nearly) everything 4.The brief is everything 5. Public faces and private places 6. Everything gathered in one room 7. Open to the world and to life 8. In a hospice garden 9. The evening land

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Book SynopsisRising to the Challenge of Life After Cancer: Expert Advice for Finding Wellness is an easy-to-read self-help guide for people facing cancer diagnosis and treatment. Following an effective Q&A format and based on a unique Wellbeing Essentials framework, it offers a valuable âdip in and outâ approach with signposting to evidence-based guidance on major challenges that those diagnosed with cancer and their family and friends may face. If you or someone close to you has had a cancer diagnosis, then this book is for you.With a focus on wellness and taking control, questions addressed include âIs there a best way to cope with cancer?â, âWhat strategies can help me make an informed decision about treatment?â, âWhat is prehabilitation and how can this help me?â, and âWho am I now?â. The book covers an array of essential guidance from maintaining social health and wellbeing, to accessing care and support in the community. It is written for both those living with or beyond canc

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Book SynopsisThe International Handbook of Art Therapy in Palliative and Bereavement Care offers a multicultural and international perspective on how art therapy can be of help to individuals, groups, families, communities, and nations facing death and dying as well as grief and loss.Over 50 art therapists from around the world write about the transforming power of art therapy in the lives of those facing terminal illness, dementia, loss, and grief. They offer practical descriptions and techniques for working with adults and children to guide professionals, including those new to using art therapy and creative approaches in end-of-life care services. This international handbook is essential reading for arts therapists, social workers, medical personnel, faith leaders, and psychologists interested in a collaborative and accessible approach to working with patients and families affected by loss.Trade Review"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's Kids"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's KidsTable of ContentsList of Figures List of Tables Preface Foreword SECTION ONE: ART THERAPY WITH INDIVIDUALS Chapter 1 Deepening the Inner World: When Art Therapy Meets Spiritual Needs Chapter 2 The Spiritual in Art Therapy at the End Of Life Chapter 3 Snapshot of Practice: Art Therapy and Acquired Visual Loss Chapter 4 Art Therapy and Juvenile NCL Chapter 5 Blurry Vision: Introducing Art Therapy to Palliative Care Patients Chapter 6 Snapshot of Practice: A Case of Individual Art Therapy Chapter 7a Religious Practice in Russia, Medical Settings, And End of Life Rituals Chapter 7b Addressing End of Life Care, Loss, And Bereavement in The Russian Federation Chapter 8 Stillbirth: Mourning Unspeakable Loss with Art Therapy And EMDR Chapter 9 The Empathic Mirror: Healing Grief and Loss Through Portrait Therapy at End of Life Chapter 10 Utilizing Tablet Computers in Art Therapy for Young People with Chronic and Life-Limiting Illnesses Chapter 11 Connecting and Belonging: Using Technology for Art Therapy in Palliative Care Chapter 12 Snapshot of Practice: Art Therapy in Hospice: The Florence Experience in Italy SECTION TWO: ART THERAPY FOR GROUPS, FAMILIES AND COMMUNITIES Chapter 13 Snapshot of Practice: Art Therapy in Paediatric Oncology Chapter 14 Art Therapy, Community Engagement, & Living and Dying Chapter 15 A Chorus of Angels, the Ripple of Water, and the Weight of Stone: Art Therapy and Artwork which Cradle both Family Carers and their Relative with Dementia Chapter 16 Snapshot of Practice: Researching the Outcomes of Art Therapy For Caregivers Of Patients At End-Of-Life Chapter 17 Wading in Knee Deep – The Art Therapist in Different End-Of-Life Settings Chapter 18 Coming Up for Air: Art Therapy with Children Affected by Childhood Cancer Chapter 19 An Art Therapist’s Approach to Total Pain Chapter 20 The Power of Creative Expression and Ritual: Integrating Art Therapy into A Bereavement Camp Chapter 21 Saying Goodbye: Grieving Families Chapter 22 ‘Time to Unwind’: Meitheal at the Crossroads - An Open Art Therapy and Music Therapy Group on the Specialist Palliative Care Inpatient Unit Chapter 23 Group Art Therapy using Telemedicine Technology for Patients Undergoing Chemotherapy Chapter 24 Snapshot of Practice: Mind-Body Art Grief Group Chapter 25 Beginning at The End SECTION THREE: ART THERAPY FOR CROSS-CULTURAL ENCOUNTERS, NATIONAL TRAGEDIES, AND DISENFRANCHISED GRIEF Chapter 26 Snapshot of Practice: Private Practice Art Therapy in Dubai Chapter 27 Art Therapy in Prison Hospice: A Compassionate Bridge Chapter 28 Killing Time: The Dying Art Therapy Group in A High Secure Hospital Chapter 29 Disenfranchised Grief: The Impact of Grief In The Military Chapter 30 Feeling the Pulse: An Art Therapist’s Response To Tragedy Chapter 31 Communitas & Soul-Healing: Arts Therapy Within the Loss-Upon-Loss of Natural Disaster Chapter 32 Snapshot of Practice: Notes on Palliative Care Art Therapy in Singapore Chapter 33 Healing Wounds - Meeting Māori At End of Life Chapter 34 Art Therapy’s Contribution to Alleviating the HIV Burden in South Africa Chapter 35 Narratives East West – Art Therapy in A Hospice in Northern India: A Patchwork of Cross-Cultural Encounters GLOSSARY Appendix ART THERAPY ASSOCIATIONS WORLDWIDE LIST OF CONTRIBUTORS Index

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Book SynopsisPalliative Care Perspectives is a guide to the art and science of palliative care that links real stories of illness with practical advice to delineate clinical practice in a way that reflects the daily concerns of clinicians. Clearly and compassionately written, this book emphasizes important topics often neglected in formal clinical training, including the history and evolution of palliative care in the United States, as well as how clinicians can better understand aging and dying from both a physiological and human perspective. Written by a recognized pioneer in the field of palliative care, each chapter highlights this human approach to illness with narratives and anecdotes drawn from decades of practice experience. This new edition features thoroughly updated research and citations, a new chapter on burnout and compassion fatigue, and a significant expansion of the topic of intercultural communication. Well-grounded in the academic literature, Palliative Care Perspectives is an ideal introduction to the emerging field of palliative care for care providers new to practice, as well as lay readers seeking to learn more about chronic and terminal illness, presented in a personal and accessible format.Table of Contents1. Chronic Illness, Death, and Dying in Modern Times 2. Dying Trajectories and Prognostication 3. Symptom Management-Overview 4. Pain Management 5. Non-Pain Symptom Management 6. Special Therapeutic Issues: Hydration, Nutrition, and Antibiotics in End-of-Life Care 7. Psychosocial and Spiritual Aspects of Care 8. Communication 9. Working the System and Making a Difference 10. Palliative Care Consults 11. Burnout 12. The Last 48 hours

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Book SynopsisIntegrating two decades of hospice care and social science research, this heartfelt book offers practical lessons on the transformative possibilities of end-of-life caregiving. Contemplative Caregiving is an indispensable guide for end-of-life caregivers and for anyone seeking to transform experiences of caregiving and grief. Rather than leading to burnout and despair, caring for those who are suffering and dying can enrich our lives with meaning and further our own spiritual growth and resilience. Whether you are caring for a loved one with cancer or dementia, grieving a sudden traumatic loss, or even serving time in prison, Contemplative Caregiving offers encouragement for showing up to the fullness of life in whatever those circumstances may be. Healing, compassion, and spiritual growth are available to us all, in this lifetime, right now. Baugher’s unique style of integrating social scientific research on caregiving and grief with teachings from Buddhist, contemplative Christian, and other wisdom traditions illuminates how we each can transform experiences of loss and suffering into a path of compassion. Contemplative Caregiving weaves together powerful stories from interviews with diverse hospice caregivers—Vietnam veterans, nurses, housewives, Catholic nuns, those convicted of murder—with the author’s own journey toward wholeness in the face of grief and traumatic loss, including the murder of his own mother. Through rich storytelling, teachings on compassion, and skillful contemplative exercises, Baugher invites you to join him in exploring the healing power of contemplative caregiving.

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Book SynopsisIn a heartbeat, you or someone you love may be rapidly transformed from a life of health and wellness to one of critical illness. Over the past four decades, Ronald Kotler, M.D., has treated patients who have become critically ill. He has seen patients recover and go on to lead long, healthy lives. He has also treated patients who did not survive. In this medical memoir, Dr. Kotler takes readers to the frontlines of caring for critically ill patients who are “breathless”—having trouble breathing. Dr. Kotler shares compelling stories of patients who were near death or who were facing the end-of-life. He takes readers behind the scenes as he describes the importance of compassion in the care for these patients. Dr. Kotler’s inspiring stories will educate readers as well as salute doctors, nurses, and other healthcare professionals who make up the American healthcare system.

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Book SynopsisBelgium and the Netherlands - the Low Countries - are the first countries in the world to have legalized euthanasia. Physicians who terminate life at the patient's request no longer have to fear criminal prosecution. However, end-of-life legislation in the Low Countries has provoked diverse responses and sparked vigorous and divisive ethical debate. For some, the new legislation has become a shining example; for others it is a lamentable materialization of a culture of death. A"Euthanasia and Palliative Care in the Low CountriesA" provides an overview and comparison of the legal specifics of the Belgian and Dutch Euthanasia Acts, a discussion of palliative care initiatives and an ethical examination of the new legislation. In addition, the book provides an in-depth analysis of the arguments used in the end-of-life debate and a critical examination of the positions taken by the churches. The book concludes with an overview of how Christian health-care institutions accommodate to this new legal situation.

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