Coping with / advice about Alzheimer’s and dementia Books

Book SynopsisPowerful, humane and wise' JULIA SAMUELEveryone should read it' NIGELLA LAWSONBeautiful This is a book for everyone. You feel held by it' PHILIPPA PERRYMost of us have a conversation we're avoiding.From the bestselling author of With the End in Mind, this is a book about the conversations that matter and how to have them better more honestly, more confidently and without regret.A child coming out to their parent. A family losing someone to terminal illness. A friend noticing the first signs of someone's dementia. A careers advisor and a teenager with radically different perspectives.There are moments when we must talk, listen and be there for one another. Why do we so often come away from those times feeling like we could have done more, or should have been braver in the face of discomfort? Why do we skirt the conversations that might matter most?By bringing together stories with a lifetime's experience working in medicine and the newest psychology, Mannix offers lessons for how we can better speak our mind and help when others need to.Kathryn Mannix's With the End in Mind' was a Sunday Times bestseller the weeks ending 6 January 2018, 13 January 2018 and 3 February 2018.Trade Review‘This gentle-hearted, engaging and intimately readable book is so full of wisdom and compassion. Everyone should read it’Nigella Lawson ‘Kathryn Mannix has a gift for cutting through the noise and helping us realise what is most important. In a world that never stops talking, this book celebrates and demonstrates the curative power of listening. It is powerful, humane and wise’Julia Samuel ‘This is a beautiful book … Too often people want their friends and relations to take all the difficult talk to a therapist, there has to be more than the professional listeners who know how to have a mutually impactful beautiful, tender conversation. This is a book for everyone … I actually feel listened to by reading it’Philippa Perry ‘Kathryn Mannix is our modern-day prophet … This is an essential book for anyone interested in themselves and their fellow humans’Greg Wise ‘I adore Kathryn's writing. Always sensitive, always thoughtful, an essential read for those looking to connect’Cariad Lloyd ‘Kathryn Mannix is a natural born storyteller, and there is so much wisdom, tenderness and love packed into this profoundly beautiful book … Her words brim with grace. I loved this book so very much.’Rachel Clarke ‘It’s amazing that a book like this has not been written before – such is the need for it … Intensely humane and reassuring … Full of wisdom and compassion’Sue Stuart-Smith ‘This is a beautiful book and I found almost every page taught me something in a gentle, but powerful way’Annalisa Barbieri ‘The book’s greatest strength is not just the information it shares, but the pure humanity it shows; the halting, fearful, imperfect conversations between people who are all doing their best and sometimes not getting it right. The gems of wisdom apply to all situations, whether someone is at the end of their life or has had a bad day at work … Compassionate, warm and wise’The Times

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Book SynopsisYou left the doctor''s surgery before you could ask the things you really wanted to know.You''ve googled your question about dementia and had 75 answers, all contradicting each other.You asked your best friend - but they looked at you strangely.You have so many questions, but no idea where to start finding the answers. Here they are. In this book you''ll find the definitive, expert responses to all your FAQs: On Dementia. No question is too simple, too embarrassing, too rude or too offbeat to be included, and each one has been asked by thousands of people just like you.Will my partner stop loving me now they have dementia?Does my mum have to go into a home now?Is dementia a terminal illness?All these questions, and hundreds more, are covered in this short but powerful, helpful, practical guide to understanding the nature, and impact, of dementia. Read at your leisure, or dip in and out when you most need the support or to shine a

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Book Synopsis Afterword by Alzheimer's Research UK. 'Shobna Gulati is the Northern heroine of a nation' - Lemn Sissay'Lucid and probing' - Guardian'Wonderful and emotional, a masterpiece of resilience.' - Emma Kennedy Remember Me? is a memoir about caring for a parent with dementia and the memories that resurface in the process. In her first book, Shobna Gulati sets out to reclaim her mother's past after her death, and in turn, discovers a huge amount about herself and their relationship. Remember Me? captures the powerful emotions that these memories hold to both Shobna and her mother; secrets they had collectively buried and also the concealment of her mother's condition. What ensues is a story of cultural assimilation, identity and familial shame.'A raw, honest, moving and wry account of the complexity of a mother daughter relationship convoluted by the torment of dementia.' - Sanjeev Bhaskar'Gulati's book not only describes the complexities of caring (we must not forget its joys, she says, alongside its difficulties) and her mother's dementia, it is also an exploration of identity.' - Guardian'You'll find yourself not wanting to leave her trusted embrace.' - Desiree Burch'Beautifully written. Heartfelt.' - Kate Robbins 'I laughed, I cried ... a relationship like no other.' - Ferne Mccann

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Book Synopsis**Winner of the Sunday Times Sports Book of the Year Award 2023****Winner of the Rugby Book of the Year Award 2023****Longlisted for the William Hill Sports Book of the Year Award 2022****A perfect gift for Father's Day**'Powerful, moving' - The Guardian'A deeply affecting read [...] among the most important ever' - Daily Mail'So powerful. This book might just change the way you think about sport forever' - Sir Clive Woodward'As brave as they come' - Gareth Thomas'Moving and profound' - The Times'Heartbreaking' - Owen Slot, The Times'I'm in my early forties. There are days when I don't remember the names of my wife and four kids . . .'RUGBY, DEMENTIA AND THE FIGHT OF MY LIFEIn 2003, England won the Rugby World Cup. Steve Thompson was in England's front row, at the heart of the match, and at the heart of the scrum - one of sport's most violent battlegrounds. But triumph came at a cost. Today, he remembers nothing about playing in that final. In his words, watching the tape back is like watching a ghost. The years of hurt, and the culture of sucking up punishment and coming back for more, have taken a terrible toll. Steve has been diagnosed with early onset dementia, and serious progressive brain damage. Steve and his wife Steph had a happy family life planned, with decades ahead of them. Now he needs to capture these elusive memories for the sake of his children, before they disappear forever. With stories contributed by his world-cup winning teammates and his former manager, Sir Clive Woodward, Unforgettable is raw, powerful storytelling. This tale of hope and courage stands as testament to the ultimate strength of the human mind - and to a man no longer pushing himself to the limit for competition, but for his own place in the world.Trade ReviewPowerful, moving * The Guardian *A deeply affecting read [...] among the most important ever * Daily Mail *Moving and profound [...] heartbreaking * The Times *So powerful. This book might just change the way you think about sport forever -- Sir Clive WoodwardAs brave as they come -- Gareth Thomas

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Book SynopsisThis is an account of a year in the life of Peter Berry, an ordinary man living in a sleepy Suffolk village. Happily married and running a successful business, Peter's life changes when, at the age of fifty, he is given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'. Peter has now raised thousands of pounds for dementia charities, cycling hundreds of miles in his quest to show that life is always worth living. When Peter meets Deb, recently retired, they embark on regular cycle rides and, as their friendship grows, Deb is able to look at her own life through the lens of Peter's dementia. In 'Slow Puncture', Peter tells the world what it is really like to live with a terminal condition and Deb learns to enjoy each day more fully. With a foreword by best-selling author Wendy Mitchell, author of 'Somebody I Used to Know', this is an inspirational look at both living in the present and coping with dementia.Trade Review"The way Peter and his wife have come to terms with the dementia that has descended on him is both humbling and uplifting. Millions of people witnessed on television the raw honesty of Peter’s pain, as well as the extraordinary positivity he found from deep within his spirit. His story is an inspiration." Hugh Bonneville, film and television actor.

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Book SynopsisInvesting in brain health will cost you nothing but time and effort - the brain-healthy recommendations in this book can all be followed for free! The steps are simple to follow and within your control so can be integrated into daily life with ease for the next 100 days.The aim of living a brain healthy life is not just to reduce the risk of dementia and other serious health issues but also to improve the quality of your life and brain performance NOW. Sabina provides all the essential information you need to empower you to make informed choices everyday about your sleeping, eating and lifestyle habits that will benefit all aspects of your life from work to relationships and achieving your personal goals. This motivating book proves that you don''t need to understand complicated neuroscience in order to look after your brain, inspiring you to do at least one small thing every day to radically improve your brain health.

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Book Synopsis'A lovely tribute' Joan Baez 'Fascinating' The Dylan Review  Izzy Young was a distinctive figure in the folk music and beatnik world. He set up the Folklore Center in New York’s Greenwich Village, where Patti Smith, Emmylou Harris and Allen Ginsburg performed, and he produced Bob Dylan’s first show in New York in the 1960s. In 1973, Izzy moved to Sweden, where he opened up a similar cultural centre. In Stockholm, the young Philomène and her father resided in the basement of the folklore centre, living a bohemian life, rich in culture and love. Thirty years later Izzy is fighting dementia. In a raw and unembellished manner, Philomène depicts the emotional rollercoaster of losing a beloved parent and a larger-than-life personality to an invisible, invincible foe. Interspersed are small moments of joy as the fog briefly parts to allow for a reconnection. Philomene masterfully intertwinTrade Review'A lovely tribute' -- Joan Baez'Fascinating' * The Dylan Review *‘A beautiful and poetic depiction of the powerful bond between a father and his daughter. Full of love and empathy, with a streak of pain and vulnerability hidden between the lines. Utterly fascinating' -- Sofia Lundberg‘I really, really, really love this book’ -- Malin Persson Giolito, author of Quicksand

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Book Synopsis''A beautiful and moving book that vividly brings home the challenges faced by those with dementia and their carers'' Sir Tony RobinsonA moving and beautifully illustrated book that captures the real life tales of people living with dementia, as told by their loved ones caring for them.This humorous, heartwarming and often heartbreaking collection will be relatable and supportive for anyone touched by dementia in their lives, and provides insight and information for anyone wanting to know more.The stories reflect on: the impact of receiving a diagnosis, the importance of person-centred care and social inclusion; the power of meaningful engagement, partnerships, peer support and much, much more.Trade ReviewA beautiful and moving book that vividly brings home the challenges faced by those with dementia and their carers -- Sir Tony RobinsonI would highly recommend this book ... Beautiful illustrations and moving stories -- Vicky McClureI know of no other book in the dementia field ... In seven deftly distilled life stories, each vividly illustrated to animate key moments in the narrative, Awad identifies the essential, take-home lessons of caring for a person with cognitive impairments in a variety of unique circumstances ... This book simultaneously instructs and inspires. In one sitting, one can gain a lifetime of insights -- Michael Verde, founder of Memory Bridge USAFrom the devastating moment of diagnosis to the years of isolation, grief and frustration, Gina Awad's book is a must-read for all those caring for someone with dementia. Wonderfully illustrated by renowned cartoonist Tony Husband, it is easy to read yet exceptionally informative. Both Awad and Husband have personal experience of this cruel condition and it shows. United is a book written with love, gentle humour and fathomless insight. I can't recommend it highly enough -- Pippa Kelly, award-winning dementia campaigner, journalist and podcasterWhat a compelling read, so skilfully written and with a deep understanding of the condition. The insight and 'tips' were invaluable and many chimed with me as challenges (and opportunities!) I faced with my own mum. An excellent piece of work -- Kate Lee, Chief Executive Officer, Alzheimer’s SocietyA beautiful, stunning way to communicate the complexity of dementia while offering subtle tips on how we can understand how a person experiences the world and what we can do to help. United shows how life doesn't stop when someone has dementia but also stresses the importance of relationships and what has helped people, such as connecting with dementia-related charities and communities. The diversity of experience is beautifully illustrated, leaving the reader immersed in the worlds of the individuals in the book. Highly emotive, memorable and informative; a very much needed book -- Dr Jane Mullins, dementia nurse specialist, author of 'Finding the Light in Dementia'United is THE most beautiful and impactful piece of work. I read it with tears in my eyes, not due to sadness, but due to overwhelming relief that finally all our journeys are now clearly and lovingly explained. Gina Awad has masterly woven the stories together and it makes for a very powerful read. She is a magician and I hope that those who find this book will extract the sense of hope from it at a time when all seems quite overwhelming -- Nicola Baker, daughter of Michael and Pam who both lived with dementiaThis lovely book brings to life the lived experiences of people with dementia and carers. These personal stories portray the reality of living with dementia but each situation is peppered with hope, optimism and love -- Rachael Litherland, director of Innovations in DementiaWhen dementia comes into your family, it changes life forever. This book, with its wonderful illustrations, is a helpful reminder that we are not alone. There are so many stories of people struggling along, trying to find some light even in the darkest of times. We should be proud as carers and people living with dementia that we are somehow muddling though. I hope this book raises awareness of all our journeys, all different but somehow connected -- Suzy Webster, daughter and carer of her mum Barbara, diagnosed with Alzheimer's in 2012We make sense of our lives using interlocking stories. In this book, Gina Awad has captured a series of vignettes, sharing stories of the lives of people living with dementia and their families. Sympathetically and extensively supported with illustrations by Tony Husband, United all too clearly demonstrates the hopes, fears, frustrations and disappointments and alerts us so clearly to the impact dementia has on the lives of so many people -- Dr David Kernick, GPAs a former carer myself, I know that nothing impacts quite as much as reading about the lived experience of those caring for a loved one with dementia. The fact that all the stories not only showcase, sensitively, the challenges and issues surrounding a dementia diagnosis, but that they also highlight positive outcomes and illustrate practical solutions, with love, care and commitment running as a common thread through all of them, is heartwarming -- Sarah Merriman, head of TIDE (Together In Dementia Everyday) deliveryWhile this book does not skirt the difficulties of living with a diagnosis of dementia, it reminds us of what is most important in all relationships: empathy; caring; understanding; love and, for our carers, support and resilience. In this short but poignant book, Gina's words and Tony's illustrations beautifully and sweetly convey all of the above. This is a moving and highly effective format for raising awareness of some of the most difficult and painful issues while constantly affirming and nurturing the personhood of the people living with dementia and their carers -- Lynda Everman and Don Wendorf, PsyD, former caregivers, Alzheimer’s activists, senior editors of 'Dementia-Friendly Worship' and co-authors of 'Stolen Memories'This delightful and empowering book highlights how each person with dementia and their loved ones experience their own individual dementia encounter. It is a thought-provoking read and offers readers with no experience of dementia the opportunity to enter into the dementia world. For those that may have experience but struggle in a caring role, it offers hope and reassurance by providing practical tips and coping strategies ... A mesmerising read around the realities and challenges for all those affected by dementia and illustrated beautifully in cartoon form by the brilliant Tony Husband -- Lorraine Burgess, Macmillan dementia nurse consultantThis beautiful book ... helps to give a slice of life for carers, families and those living with the disease ... By reading stories of others with warm, light illustrations to accompany them, we get an insight into real people and real situations. It will help elucidate to those who feel isolated dealing with dementia whilst reassuring them that there are others in the same boat. It hints at what is to come but it reminds us that, for the most part, dementia doesn't rob us of everything. There is hope and unity in shared memories and experiences -- Denise Wilton, daughter and carer for her father living with dementiaUnited is a must read for any one who has a connection with someone living with dementia and for any one who hasn't, because the more information we know, the better our world can become more inclusive. This book is written with gentleness and honesty and the illustrations are super. Humility and humour go hand in hand in this book. It is wonderful -- Philippa Hodge, dementia trainer and carerThis book is beautiful to read; it is light, informative and through its narrative and pictures, it manages to encompass so many different experiences and challenges for the person living with dementia and for the carer ... This book is a brilliant resource and a reminder of the need for person-centred support - whether that's for the needs of the person with dementia or their carer. It's a book you can pick up again and again and be reminded of new ways of doing things and ways to adapt to an everchanging situation -- Sue Hinds, head of services, Dementia Carers CountThe word or feeling that most strongly comes across from the book is 'heart'; there are moments of anguish and sadness, alongside stories of deep love and compassion ... The stories are expressed with such sensitivity, warmth and humanity through a combination of word and image. They capture some of the issues that, as an occupational therapist, I saw time and time again ... I think this book will be an immensely helpful source of support to those caring for loved ones living with dementia. It has such universal appeal; I'd like to see it being made available to carers of those recently diagnosed with dementia, to schoolchildren, health and care students - everyone should read it! -- Carrie Clarke, retired NHS occupational therapist (dementia services)This is a must read book for anyone connected with dementia in any way. Beautifully illustrating the stories of people with dementia, their families and carers, the book is full of thoughtful insights into the opportunities and challenges of living with dementia. ... The many different perspectives in the individual stories chimed in so many ways for me. It is an incredibly special book that will be of great help and comfort to many -- Jennie Stephens MBEI can totally relate to every story in [United] and to the hardships that carers go through ... I am so impressed how it kept my attention and was transfixed throughout with humour and heartache, because that is exactly what dementia is all about, highs and lows. Everyone that has dementia and those who have yet to be diagnosed, as well as their carers, need to read this book to give them hope and inspiration -- Tommy Dunne BEM, dementia activist and campaigner diagnosed with young onset dementia in 2011, aged 58A wonderful book full of powerful stories that are engaging and insightful. A must-read for families and carers impacted by dementia -- Alex Winstanley, award-winning children’s author of ‘My Grandma Has Dementia'United is a wonderful little book about dementia, containing real stories about the condition and how it impacts relationships, all beautifully illustrated with care and empathy. The book is heart-breaking and poignant, revealing the devastation that this progressive, neurodegenerative and incurable condition brings to families. It is also informative and uplifting, with tips on how to help those with dementia and those who provide care, from medication to music to respite care, bringing hope and sometimes moments of joy. Overall, it is a moving book about love, care and connection -- Professor Victoria Tischler, University of ExeterThe beauty of this book is in part due to the illustrations, which capture your interest and imagination effortlessly, and in part due to the very real, very honest and heart-touching stories shared within the pages. Each story offers the reader so much: a different window through which to view the realities of life with dementia, from the highs to the lows, from the creative use of technology and the evident love to the struggles and challenges that are all too familiar. This book really does illustrate perfectly how if you love someone living with dementia, you are living with it too -- Vic Lyons, Dementia UK[United] is a delight, showing the lengths that families go to protecting their loved ones as the disease progresses. The beautiful illustrations bring it to life! Dementia has no boundaries and the book deals with sporting injury, ethnicity, problems of caring and mindful techniques to alleviate stress. It also highlights the difficult lives of carers who are giving their all in a world recently shattered by the diagnosis and the devastating change that brings ... United gives a balanced look into the lives of families dealing with dementia and shows that, if you learn about dementia, take advice and find your own unique ways to respond to situations, there is much joy to be found -- Jane Moore, co-founder, Purple Angel Global Dementia AwarenessA really well thought-through marriage of narratives with supporting illustration ... I can see how this book could provide a non-threatening but still very informative and insightful introduction for anyone who may be just beginning their journey as a care partner, family or friend to a person with dementia ... At the heart of the book is a very welcome emphasis on diversity and a message about the importance of inclusivity when it comes to care and support. All too often in dementia care policy and practice we talk of 'people with dementia' as a singular category and this book challenges that thinking and approach while reminding us of some of the shared and even universal aspects to living with dementia -- Dr Richard Ward, senior lecturer in dementia studies, University of StirlingGives poignant insights into the lives of people affected by dementia. The short stories capture some of the challenges, difficult decisions, rewards and happy memories, while providing useful knowledge for others embarking on this journey. The experience of caring for someone living with dementia can be isolating. These sensitively illustrated personal accounts demonstrate that you're not on your own -- Julia Powell, former carer of mum, JuneTurns a poignant, sad subject into an emotional, encompassing journey of love and, dare I say, hope ... United shows that hope to the world and to those who need that bit of reminding that they are not alone -- Ann Smith, caring for Maureen SmithMovingly told and illustrated stories of caring and dementia experience. This heartfelt sharing opens up space for compassion and connection; so important for carers and people living with dementia -- Dr Martha Pollard, dementia/care researcher, counsellor, and daughter in family affected by dementiaWhat a delightful and touching experience ... United is such an accessible window into the lived experience ... not only for carers but for those living with dementia as well -- Ryan Harrison, Executive Director, Center for Older Adult Community Health, California

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Book SynopsisAn All Black's memoir of rugby, dementia, and the hidden cost of success 'The best sports book I have read in decades' - Kevin Norquay, Stuff'Startlingly honest' - Phil Gifford'A brilliant read. Bold, brave and honest' - Mike Hosking, Newstalk ZBCarl Hayman, All Black #1000, once the most highly prized player in world rugby and a giant of the game in every sense - someone who was always respected, even feared. But at the end of seventeen years as a professional rugby player, the last eight played with the sole aim of setting up his family's future, Hayman's life began to unravel in nightmarish fashion.Head On is about the pressures on the modern athlete, where physical performance and commerce collide, and players become victims of their own success.Exploited then left out in the cold, Hayman is now left counting the hidden cost of the achievements that would have exceeded any young rugby player's dreams. He now fears both the known and the unknown with equal trepidation. as he looks for answers to dementia and a degenerative brain condition called CTE. In Head On, Hayman relives a remarkable rugby career, with revelations about the shock All Blacks loss to France in the 2007 Rugby World Cup, the decisions to leave New Zealand and play for the Newcastle Falcons in England, in doing so becoming one of the best-paid players on the planet, and how being put on the fast track to the All Blacks as a youngster combined with the Southern Man rugby ethos in Dunedin caused him to develop a dangerous relationship with alcohol.This book is about how we can better understand the unintended consequences of the decisions we make, and how we can better serve the next generation.

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Book SynopsisThis wide-ranging book takes a person-centred approach to supporting the person and their families/carers to live with dementia and challenge the stigma attached to the condition. Divided into four parts, it starts with the voices of people with dementia themselves, as they describe their own experience and how they are living with the disease. It moves on to look at how the range of caring and support professions can help people living with dementia and their families plan and prepare for and cope better with their deteriorating condition. It then turns to practical aspects of living with dementia - dementia in the workplace, communication, safety and the role of technology and design in prolonging independence - and day-to-day considerations, such as managing insomnia and eating well. It ends with an inspiring section on the many imaginative ways people with dementia can be helped to discover and continue to enjoy cultural and creative activities that celebrate their lives and promote their abilities.Trade ReviewA rich recipe of ideas and thoughts on how to enable others to live with dementia. As we all should know, one size doesn’t fit all, and this book offers the holistic support for which many would be grateful. --Wendy Mitchell, author of Somebody I Used to Know and What I Wish People Knew About Dementia; A brilliant example of what can be achieved when those living with dementia, their carers and specialists collaborate… an important contribution to the literature of dementia and person-centred-care. --Rod Kersh, consultant community physician, Rotherham NHS Foundation Trust; Far too often, people living with dementia and their carers are left with nothing to tell them how to move forward. This unique, invaluable book succeeds in filling the void. --Nori Graham, emeritus consultant in the psychiatry of old age, Vice President of the Alzheimer’s SocietyTable of ContentsForeword - Steven Sabat, Introduction, Part 1: The voices of people with dementia and their carers, 1. The me in dementia - Keith Oliver, 2. Poetry and crafting as helpful activities for people living with dementia - Gail Gregory, 3. Using poetry to support my granny when she had dementia - Isla Parker, 4. The practical realities of caring for a loved one with dementia - Marianne Talbot, 5. The challenge of supporting an elderly parent with dementia - Gary Lockhart, 6. The difficulties and triumphs of the single carer - Peter Hemsley, Part 2: Caring for people with dementia, 7. Dementia and living at home: what can your general practitioner do for you? - Marieke Perry, 8. Providing person-centered spiritual care for people living with dementia - Kathy Fogg Berry, 9. Early onset dementia - Anthea Innes, John O'Doherty and Helen Rochford-Brennan, 10. Open Dialogue: A social network perspective in dementia care - Amy Jebreel, Rachel Butterfield and Robert Freudenthal, 11. Values-based practice in dementia care - Toby Williamson, 12. Planning now for your future: Advance care planning for people with dementia - Dylan Harris, 13. Palliative and end-of-life care in dementia - what would good care look like? - Karen Harrison Dening, 14. Palliative care options in dementia - Sascha R. Bolt, Judith M.M. Meijers and Jenny T. van der Steen, Part 3: Supporting people to live well with dementia, 15. Nutrition in dementia - Nina Herrington and Deborah Thompson, 16. I was finding it hard to eat and drink and got referred to Speech and Language Therapy! What's that all about? - Dara Brown, 17. Alternative treatments for insomnia for those with dementia and mild cognitive impairment - Lisa Austin, 18. Being in hospital when you have dementia: Providing person-centred care experiences in practice - Rachael Kelley, 19. Validation builds relationships and communication - Vicki de Klerk-Rubin, 20. Rapport-based communication: A practical approach to social inclusion and mutual wellbeing - Matt Laurie, 21. Dementia in the workplace - Louise Ritchie, Debbie Tolson and Mike Danson, 22. Does technology have a role in meeting the care and support needs of people living with dementia and their families? - John Woolham, 23. Improving independence, self-esteem and safety with better design for people with dementia - Mary Marshall, 24. How can gardening enrich the lives of people with dementia? - Sarah Swift and Margaret Brown, 25. Nature's role as a coping mechanism for people living with dementia - Wendy Brewin, 26. 'Finding safety: a monthly Rainbow Memory Cafe meeting for LGBT+ people affected by dementia - Sally Knocker and Lucy Whitman, 27. Supporting people living with dementia from Black, Asian and minority ethnic communities - David Truswell, Part 4: Creative approaches to dementia, 28. Mindfulness for people living with dementia and their carers - Cath Arakelian, Jonathan Barker, 29. Trauma-informed yoga for older people living with dementia - Josephine Norrbo and Eleonore Wesen, 30. Improvisatory movement and dance for family carers and others - Richard Coaten, 31. Frames of mind: Bringing memories to life with stop frame animation - Bo Chapman and Zoe Flynn, 32. Digital life story work with people living with dementia - Kathryn Barham, 33. Music therapy in dementia care - Ming-Hung Hsu, 34. Poetry: Telling it like it is - John Killick, 35. The magic of paint - Susan Liggett and Megan Wyatt, 36. Teleplay: Approaches to digital clowning for dementia care - Richard Talbot and Claire Dormann, 37. Dementia-friendly museums: How cultural activity benefits people with dementia, carers and communities - Rosie Barker and Louise Deakin, 38. 'Our friends can't believe all the things we're doing': The role of culture in supporting people to live well with dementia - Nicky Taylor and Gabrielle Hamilton, Afterword - Julian C. Hughes, Conclusion

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Book Synopsis‘A third presence has arrived in my marriage. Ms Alzheimer’s – I think of her as a hideous, brain-eating monster – has come to live with us. Permanently.’ In April 2017, Susan’s husband Nicholas was diagnosed with Alzheimer’s. This was followed by 28 months of relentless, rapid decline culminating in Nicholas’ death in August 2019. The Alzheimer’s Diaries (originally published as a blog) charts the progression of his illness, from diagnosis to the funeral. Susan dubbed the illness ‘Ms Alzheimer’s’ and describes the hateful impact on the man she loves. According to Alzheimer’s Research UK one person in 14 over the age of 65 has dementia, and in this thought-provoking account, Susan unflinchingly shares her story.

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Book SynopsisSlow and delay the symptoms of Alzheimer''s disease and other forms of dementia, from memory loss to disorientation, with this practical activity book.Using step-by-step ideas designed to stimulate and entertain, dementia care specialist Helen Lambert explains how engaging in a variety of simple activities can benefit different parts of the brain and help to keep your mind fitter for longer.What''s more, everyone can join in: each activity contains hints and tips that not only show you how to do it, but also include ways to adapt the various physical exercises, games, and craft projects for different abilities, or to include family and friends. Dive straight in to discover:-Over 50 activities to choose from accordingly relating to mood, ability and energy level-Panels include a range of advice and highlight the reactions activities may trigger and how to deal with them -Includes general guidance on the nature of memory loss and dementiaTrade ReviewI'm impressed by this eminently practical book * The Bookseller *The book is bright, positive, fun and easy to follow * Sixtyplussurfers *What a fantastic book! * Steve Wright, BBC Radio 2 *

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Book Synopsis• Cites multiple clinical studies to show how Alzheimer’s is critically bound with the sense of smell and how the loss of this sense is often the first symptom of onset • Details how to use essential oils to stimulate memory, prevent cognitive loss, and counter the isolation, withdrawal, and depression of Alzheimer’s patients • Reveals the striking results seen in several French hospitals and senior living homes where aromatherapy has been used as a therapy for Alzheimer’s While there is still no known cure for Alzheimer’s, new research and trials from France reveal that it is possible to slow its progression, ameliorate some of its effects, and improve the quality of life for those suffering from this degenerative condition, using the sense of smell. Citing years of clinical evidence, Jean-Pierre Willem, M.D., shows how Alzheimer’s is critically bound with the sense of smell. He explains how the olfactory system is connected to the limbic area of the brain, which holds the keys to memory and emotion and is the area of the brain most severely afflicted by Alzheimer’s. He reveals how one of the very first signs of Alzheimer’s is typically the loss of the sense of smell. Sharing the striking results seen in French hospitals and senior living homes where aromatherapy has been used as a therapy for Alzheimer’s for more than 10 years, Dr. Willem details how to use essential oils to stimulate memory, prevent cognitive loss, and counter the isolation, withdrawal, and depression these patients are likely to feel. He explains how essential oils make a direct connection with the cerebral structures involved in emotion and memory and make it possible for the patient to bring deeply buried memories back to the thinking surface. This allows the patient to recover a portion of their identity, which can become the foundation for additional healing, including regaining the ability to communicate and reducing behavioral issues. Tracing the evolutionary links between smell and taste, he also explores the effects of diet and nutrition on Alzheimer’s and other forms of dementia, explaining the benefits of raw foods, what foods to avoid, and what supplements can help. Offering a hands-on and medication-free way to help those suffering from Alzheimer’s, this guide provides a way for Alzheimer’s patients and their families to recover the joy of living again.Trade Review“Alzheimer’s, Aromatherapy, and the Sense of Smell thoroughly decodes and describes Alzheimer’s disease, its complexities, potential causes, consequences, and considerations. Relating to current research and personal and professional experience, Jean-Pierre Willem presents a clear, easy-to-assimilate holistic overview of this debilitating condition in a way that is honest, enlightening, and especially hopeful, revealing both supportive and preventive strategies to proactively engage. As well as exploring the associated cognitive and emotional virtues of familiar essential oils, such as rosemary, lavender, and frankincense, Jean-Pierre also introduces less commonly known exotic oils that are native to Madagascar-- such as butterfly ginger, grains of paradise, and herbe des rois (herb of kings)--to provide an invaluable repertoire of useful essential oils and synergistic blends. This timely book is a valuable resource, not only for those affected by Alzheimer’s disease but also for anyone interested in maintaining their cognitive alertness, function, and well-being.” * Heather Dawn Godfrey P.G.C.E., B.Sc. author of Healing with Essential Oils *Table of ContentsINTRODUCTION Understanding Alzheimer’s 1 Alzheimer’s Disease Decoded Evolution of the Human Olfactory System 2 Cerebral Lesions and Their ConsequencesA Look inside the Anomalies of the Alzheimer’s Brain3 How to Establish the DiagnosisA Multidisciplinary Approach4 Laboratory AnalysisBiochemical Factors for Diagnosis, Prevention, and Treatment 5 The Brain and Its Neurons A Primer6 A Stroll Down Memory Lane The Systems and Stages of Memory7 Development of the DiseaseThe Stages and Progression of Alzheimer’s 8 The Multiple Causes of Alzheimer’s DiseaseMedications, Mitochondria, and More9 Additional Risk Factors and ConsiderationsKnowledge Is Power 10 The Body’s Five Protective Barriers And What Happens When They Rupture 11 Neuroplasticity Caring for the Brain 12 Alzheimer’s Disease and the Sense of Smell A Closer Look at Our Primary Sense 13 Finding Help from Essential Oils The Benefits and Practice of Olfactory Therapy 14 The Cooking of FoodProblems and Solutions 15 Return to the Raw Establishing an Olfactory-Friendly Diet 16 PreventionTips for Maintaining a Healthy Mental State17 We Are What We Eat Brain Food Supplements 18 Navigating Alzheimer’s Disease A Guide for Families and Caregivers CONCLUSION Writing a New Page of Medical HistoryAPPENDIX 1 Diseases Akin to Alzheimer’s APPENDIX 2 The Nose Knows Learning from Man’s Best Friend BibliographyIndex

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Book SynopsisPowerful, humane and wise' JULIA SAMUELEveryone should read it' NIGELLA LAWSONBeautiful This is a book for everyone. You feel held by it' PHILIPPA PERRYMost of us have a conversation we're avoiding.From the bestselling author of With the End in Mind, this is a book about the conversations that matter and how to have them better more honestly, more confidently and without regret.A child coming out to their parent. A family losing someone to terminal illness. A friend noticing the first signs of someone's dementia. A careers advisor and a teenager with radically different perspectives.There are moments when we must talk, listen and be there for one another. Why do we so often come away from those times feeling like we could have done more, or should have been braver in the face of discomfort? Why do we skirt the conversations that might matter most?By bringing together stories with a lifetime's experience working in medicine and the newest psychology, Mannix offers lessons for how we cTrade Review‘This gentle-hearted, engaging and intimately readable book is so full of wisdom and compassion. Everyone should read it’Nigella Lawson ‘Kathryn Mannix has a gift for cutting through the noise and helping us realise what is most important. In a world that never stops talking, this book celebrates and demonstrates the curative power of listening. It is powerful, humane and wise’Julia Samuel ‘This is a beautiful book … Too often people want their friends and relations to take all the difficult talk to a therapist, there has to be more than the professional listeners who know how to have a mutually impactful beautiful, tender conversation. This is a book for everyone … I actually feel listened to by reading it’Philippa Perry ‘Kathryn Mannix is our modern-day prophet … This is an essential book for anyone interested in themselves and their fellow humans’Greg Wise ‘I adore Kathryn's writing. Always sensitive, always thoughtful, an essential read for those looking to connect’Cariad Lloyd ‘Kathryn Mannix is a natural born storyteller, and there is so much wisdom, tenderness and love packed into this profoundly beautiful book … Her words brim with grace. I loved this book so very much.’Rachel Clarke ‘The book’s greatest strength is not just the information it shares, but the pure humanity it shows; the halting, fearful, imperfect conversations between people who are all doing their best and sometimes not getting it right. The gems of wisdom apply to all situations, whether someone is at the end of their life or has had a bad day at work … Compassionate, warm and wise’The Times ‘Like having a long and rewarding conversation with a really good friend … Perhaps the most important component in all of the chapters, however, is the telling of stories … As with Mannix’s first book, there are many moving tales within these pages … Wise, gentle and profound’Joanna Cannon, The Guardian, Book of the Day

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Book SynopsisAn intimate and moving graphic memoir by cartoonist Nate Fakes, dedicated to his stepdad Ron, a larger-than-life personality who gradually becomes affected by a rare form of dementia.Editor's Picks, Honorable Mention at Publishers Weekly's US Book Show"A Fade of Light is a rare story that is both deeply heartbreaking and heartwarming. Nate Fakes is an observant writer and artist, with a good memory and an eye for small, revealing details. In his clear cartooning style, Fakes shows he and his family navigating a rare disease imperfectly but as well as they can. He captures the confusion and frustration of knowing something's wrong but not what, of desperately wanting to fix something that can't be fixed."—Brian Fies, Eisner Award–winning author of Mom's Cancer"A Fade of Light is a graphic memoir centered on [Nate] Fakes’s stepdad, Ron, who came into Nate’s life in the 1990s and brought light into their family—until progressive dementia caused Ron’s own light to begin to fade."—Publishers Weekly, Fall 2022 Announcements: Comics & Graphic NovelsThe first time Nate met his future stepdad in the summer of 1994, he thought Ron was nice, goofy, and kind, the type of guy who wasn't afraid to be himself. Ron liked to honk at other Jeeps while driving his own, bang on the drums without abandon, and order practically the whole menu at drive-thrus. It was alternatively embarrassing, annoying, and funny, though one thing was for sure: life with Ron was never dull.But as years passed, Nate noticed Ron's behavior becoming erratic and strange. He forgot obvious things and seemed more stubborn and irritable than before. Finally Ron received a diagnosis: he has frontotemporal dementia, a progressive disorder that affects about 10 percent of all dementia cases. There is no cure.Stylized in black-and-white drawings, A Fade of Light is a graphic memoir capturing the fullness of a life well lived—the ups and downs, the laughter and tears, the joys and heartaches, and the treasured moments that will always be cherished, if not remembered.

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Book SynopsisIn 2003, England won the Rugby World Cup. Steve Thompson was there, in England's front row, at the heart of the match, and at the heart of the scrum - one of sport's most destructive, repetitive impacts.But the triumphs came at a cost. When rugby union turned professional, Steve was plunged into a game where raw power meant everything. Today, he remembers nothing about playing in that final. In his words, watching the tape back is like watching a ghost.The years of hurt in an era of professional meat shields, and the culture of sucking up punishment and coming back for more, have taken a terrible toll. Steve has been diagnosed with early onset dementia, and probable chronic traumatic encephalopathy. He is in his early forties. There are days when he doesn't remember the names of his wife and four kids.Unforgettable is part sports memoir - with stories contributed by his world-cup winning teammates and his former manager, Sir Clive Woodward - and part raw human storytelling. In it, Steve will make memories for himself and for his children, and will relive the biggest battle of his life, with his toughest opponent - his own mind.Despite the constant reminders of what has been lost, and what is still to lose, Steve's powerful story is one of hope and courage. Unforgettable stands as testament to the ultimate strength of the human mind - and to a man no longer pushing himself to the limit for competition, but for his own place in the world.

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Book Synopsis¿Cómo mantener una amistad intacta cuando el Alzheimer se va llevando consigo las bases del lenguaje, la memoria y las experiencias compartidas?La narradora visita casi diariamente a ML., con quien compartió una estrecha amistad y ahora padece mal de Alzheimer. A partir de esos encuentros y los fragmentos de memoria de ML. va construyendo un relato poderosamente conmovedor sobre la desarticulación de una mente que progresivamente va borrando todo de una manera peculiar.Un intento, a través de la escritura, de “hacer durar una relación que continúa pese a la ruina, que subsiste aunque apenas queden palabras”. “¿Cómo dice yo el que no recuerda…?”, se pregunta la narradora frente a esa mujer que le muestra la casa como si la visitara por primera vez o que es incapaz de decir que ha sufrido un mareo, pero puede traducir al inglés perfectamente un mensaje donde se dice que ella ha sufrido un mareo.Pasajes de un pasado y un presente compartidos que se transforman en ficción frente a un olvido que no puede contradecirlos. Un libro que opone al derrumbe una prosa precisa y vital y la sensibilidad única de una de las mejores escritoras latinoamericanas.In brief, sharply drawn moments, Sylvia Molloy’s Dislocations records the gradual loss of a beloved friend, M.L., a disappearance in ways expected (forgotten names, forgotten moments) and painfully surprising (the reversion to a formal, proper Spanish from their previous shared vernacular). There are occasions of wonder, too—M.L. can no longer find the words to say she is dizzy, but can translate that message from Spanish to English, when it's passed along by a friend.This loss holds Molloy’s sense of herself too—the person she is in relation to M.L. fades as her friend’s memory does. But the writer remains: 'I’m not writing to patch up holes and make people (or myself) think that there’s nothing to see here, but rather to bear witness to unintelligibilities and breaches and silences. That is my continuity, that of the scribe.'How do you keep a friendship intact, when Alzheimer's has stolen the common ground of language, memory, and experience, that unites you?In brief, sharply drawn moments, Sylvia Molloy’s Dislocations records the gradual loss of a beloved friend, M.L., a disappearance in ways expected (forgotten names, forgotten moments) and painfully surprising (the reversion to a formal, proper Spanish from their previous shared vernacular). There are occasions of wonder, too—M.L. can no longer find the words to say she is dizzy, but can translate that message from Spanish to English, when it's passed along by a friend. This loss holds Molloy’s sense of herself too—the person she is in relation to M.L. fades as her friend’s memory does. But the writer remains: 'I’m not writing to patch up holes and make people (or myself) think that there’s nothing to see here, but rather to bear witness to unintelligibilities and breaches and silences. That is my continuity, that of the scribe.'Trade Review"Gleaming . . . A graceful study of memory, identity, and relationships, this is one to cherish." —Publishers Weekly, starred review"A masterclass in writing, with a brevity and clarity which is both rare and welcome, and firmly situates Molloy as an outstanding talent." —The Skinny

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Book SynopsisWhether you have a close relative with dementia, a history of high-risk factors for this condition, or a diagnosis of MCI (mild cognitive impairment) you may be concerned to know how personally 'at risk' you or a loved one is, and what you can do to 'dodge' what is definitely not inevitable. In this second edition of her highly regarded Essential Guide to Avoiding Dementia, Mary Jordan guides readers through the many factors associated with developing dementia and the science behind our current understanding, including: diet, exercise, trauma, pharmaceuticals, genetics, social isolation, sleep, neurological deficits such as hearing loss, insulin resistance and diabetes type 2. Based on her professional and personal experience of working, Mary offers a programme from which the individual reader can choose what works for them and their individual risks and circumstances.Trade ReviewWhilst there may be more questions than answers when it comes to dementia, this book certainly gives you a much clearer idea of likely contributing factors, and the many practical steps each of us can take to minimise the risks - and to make the best of circumstances if we, or someone we care for, develops the condition. Frances Leckie, Independent Living's EditorTable of ContentsPart I: What we know about the risk factors: Age, personality, social factors; Trauma, physical and mental; Miscellaneous factors; Drugs and medication (to be contributed by Dr J Thompson); Nutritional factors; Part II: Assessing personal risk factors: Past history; Physical status; Lifestyle; Current status; Part III: What you can do: Nutrition; Exercise; Confounding factors to avoid; Sleep, stress and social lilfe; Planning ahead; Resources

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Book SynopsisAll three books (Iris, Iris and the Friends, and Widower's House) are now available in a single edition, told by the person who knew her best, with gentle humour - at times unbearably moving - in Bayley's portrayal of a remarkable woman.Trade Review'The greatest love story of our age' Observer'A unique glimpse into the alchemy of marriage... a work of art’ Victoria Glendinning, Daily Telegraph'Love has everything and nothing to do with it. John Bayley has set the gold standard for a debased currency' Guardian'It is hard to do justice to the tenderness with which, in exquisite, measured prose and surprising detail, he evokes their marriage' Sunday Times

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Book SynopsisIn 2004 Rachel Hadas''s husband, George Edwards, a composer and professor of music at Columbia University, was diagnosed with early-onset dementia at the age of sixty-one. Strange Relation is her account of "losing" George. Her narrative begins when George''s illness can no longer be ignored, and ends in 2008 soon after his move to a dementia facility (when, after thirty years of marriage, she finds herself no longer living with her husband). Within the cloudy confines of those difficult years, years when reading and writing were an essential part of what kept her going, she "tried to keep track... tried to tell the truth".

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Book SynopsisThis publication aims, in plain English, to identify the main issues affecting individuals with Down Syndrome who develop Dementia. It is an awareness raising book aimed at stimulating discussions that will hopefully encourage the reader to find out more, using the websites provided. It takes the form of questions and answers. All the questions raised are actual questions raised many times in training courses run by the author.Table of ContentsIntroduction; 1.What is Down syndrome?; 2.Are there different types of Down syndrome?; 3.What are the characteristics of Down syndrome?; 4.Why are people with Down syndrome living longer?; 5.What are common health issues for the person with Down syndrome?; 6.Why are so many people with Down syndrome overweight?; 7.What is dementia?; 8.Is Alzheimer's the same as dementia, or are there different types?; 9.Is dementia on the increase?; 10. How common is dementia in Down syndrome?; 11.Why is the percentage much higher in people Down syndrome?; 12.What are the early warning signs of dementia in this group?; 13.What is the life expectancy of the person with dementia?; 14.How is dementia diagnosed?; 15.How does the Mental Capacity Act affect Down syndrome and dementia practice?; 16.How can we help in supplying information that aids diagnosis?; 17.How does dementia affect memory?; 18.Do people with Down syndrome age more quickly?; 19.Are some colours an issue for some individuals with dementia?; 20.Is lighting an issue for some individuals with dementia?; 21.Are there any communication tips during the early stage of dementia?; 22.Are there any communication tips as the dementia advances?; 23.What are the signs of dementia as it progresses?; 24.How important is a good diet for the individual with dementia?; 25.Is there any medication for dementia?; 26.Why do some individuals with dementia become aggressive?; 27.Does medication used to control aggression work?; 28.Are there other ways to control aggression other than medication?; 29.Why do some people with dementia walk purposefully; 30.How do we support someone who walks purposefully?; 31.Why do some people with dementia show inappropriate sexual behaviours?; 32.How should we support individuals who show inappropriate sexual behaviours?; 33.How can you support someone who asks cyclical/repetitive questions?; 34.Should you collude/agree with someone with dementia when you know they are wrong?; 35.What activities are useful for people with Down syndrome and dementia?; 36.Where should people with dementia live?; Appendix; Afterword;

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Book SynopsisHow to live a full and rewarding life after a dementia diagnosis.Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness.Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.Trade ReviewA candid, moving account from a courageous man - this book gives thoughtful and at times heart-breaking insight into living with dementia. -- Victoria Derbyshire, award-winning journalist and broadcaster

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Book SynopsisThis volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need.Trade ReviewWill directly benefit both researchers and practitioners committed to dementia care and support. -- Nina M. Silverstein Ageing and Society 2007 This compact volume provides an invaluable resource for professionals in the field. -- Elizabeth Beattie Research and Theory for Nursing Practice 2007 This work should be on the bookshelf of any clinician serving caregivers and persons with dementia. -- James J. Callahan Gerontologist 2007Table of ContentsPrefaceList of Contributors Part I: IntroductionChapter 1. The History of Caregiving in DementiaPart II: Individual Aspects of CaregivingChapter 2. The Caregiver in DementiaChapter 3. From Home to Nursing Home: A Continuum of Care for Persons with DementiaChapter 4. Caregiver BurdenPart III: Interpersonal Aspects of CaregivingChapter 5. The Affective Interpersonal Bond in CaregivingChapter 6. Religious Participation and Caregiving: A Psychodynamic PerspectiveChapter 7. Caregiving and the Sexual Relationship in DementiaChapter 8. Grief and Loss in DementiaPart IV: Implications for Treatment: The Multidisciplinary ApproachChapter 9. The Role of Pharmacotherapy for Dementia Patients with Behavioral DisturbancesChapter 10. Care of the Caregiver: Individual and Family InterventionsChapter 11. Social Supports for the CaregiverPart V: Societal Issues of CaregivingChapter 12. Health Care Policies and CaregiversChapter 13. Ethnic Elders and CaregivingChapter 14. The Ethics of Dementia CaregivingIndex

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Book Synopsis

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Book Synopsis

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