Disability: social aspects Books
Jessica Kingsley Publishers The Family Experience of PDA: An Illustrated
Book SynopsisEliza Fricker gets it. Describing her perfectly imperfect experience of raising a PDA child, with societal judgements and internal pressures, it is easy to feel overwhelmed, resentful and alone. This book's comedic illustrations explain these challenging situations and feelings in a way that words simply cannot, will bring some much-needed levity back into PDA parenting. Humorous anecdotes with a compassionate tone remind parents that they are not alone, and they're doing a great job. If children are safe, happy, and you leave the house on time, who cares about some smelly socks? A light-hearted and digestible guide to being a PDA parent covering everything from tolerance levels, relationships and meltdowns to collaboration, flexibility, and self care to dip in and out as your schedule allows to help get to grips with this complex condition. This book is an essential read for any parent with a PDA child, to help better understand your child, build support systems and carve out some essential self care time guilt free.Trade ReviewIn The Family Experience of PDA Eliza Fricker shares her heartfelt insights through an accessible illustrated volume that will be helpful to parents as they support, encourage, and manage their children who may have features of PDA. The book through words and pictures provides the important lessons she has learned about the sensitivities and regulatory capacity of her child. Eliza shares the basic principles that enabled her child and family to feel safer and to mutually enjoy daily interactions. We learn the power of softening the edges of restrictive parenting, which may function in more resilient children with higher thresholds to be reactive but is disastrous with a child with feature of PDA. We learn that a gentler less demanding, accepting, and positive playful parental strategy will lead to more cooperative behaviors and mutually rewarding co-regulatory interactions. -- Stephen W. Porges, PhD, Professor Department of Psychiatry, University of North Carolina at Chapel HillThis book is the perfect tonic for frazzled loved ones of children with PDA. Perfectly imperfect, quirky and always en pointe, Eliza will make you nod and smile with her descriptions and illustrations whilst also providing you with a tonne of practical ideas without once seeming preachy. -- Dr Pooky Knightsmith, Child and Adolescent Mental Health ExpertTable of ContentsForeword by Ruth Fidler; Introduction; Tolerance Levels; Meltdowns; Relationships; Sensory; Anxiety; Collaboration; Flexibility; Prioritising; Positives; Self Care
£12.99
Jessica Kingsley Publishers PDA by PDAers: From Anxiety to Avoidance and
Book Synopsis"To think of PDA as merely involving demand avoidance is to me akin to thinking of tigers as merely having stripes."This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition.Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.Trade ReviewWith good humour and banter, this book demonstrates "the positive power of self-awareness" and understanding. Everyone should read it to appreciate what life is like for PDAers. Skilful Sally Cat enables PDAers to realise that other people feel the same. Shared experiences and coping strategies open the door to the realisation that they are not alone and feeling "different is ok". -- Anne Waterhouse, lifelong educationalist, self-identified as relating to PDA in her 70s after reading Sally Cat’s memesUnlike usual factual guides, this book brings a 'human touch' with moving tales, experiences and support from Sally Cat and her fellow PDAers. Alongside this are easy to follow and simple to understand graphs, memes and insights into the world of PDA. A wonderfully relatable book, full of humour and hope. -- Victoria Power, mother of two special needs children, self-diagnosed with PDAI think this is a great resource for understanding adult PDA. The NAS's website is all good, but it's only relevant to children. This book lifts the curtain. There are nuances to this condition! It itself is a spectrum I think. The parts of this book I've read have helped me to better understand some of my past behaviours. It was like looking in a mirror! -- Josh Bremner, 23-year-old sound engineering student exploring PDA through the Facebook Adult DA Support NetworkTable of ContentsIntroduction. 1: Demand Avoidance. 2: What sort of things are we driven to avoid?. 3: Anxiety and PDA. 4: PDA and Masking. 5: Intolerance of Uncertainty. 6: Control. 7: Meltdowns. 8: Overload. 9: PDA and People. 10: Hierarchy and Rules. 11: Fantasy and Role Play. 12: Wordplay. 13: Impulsiveness. 14: Routine. 15: School. 16: Work. 17: Coping Strategies. 18: Reasonable Accommodations. 19: Parenting. 20: Our Achievements
£14.99
Canelo Explaining AuDHD
Book SynopsisNew to the world of AuDHD?You're probably familiar with autism or with ADHD by now: an increase of information online has helped more people advocate for assessments. However, much of the discussion around the two conditions centres on their neurological differences. But what about those diagnosed with both? Where do the two conditions intersect and overlap?Explaining AuDHD is a straight-talking guide for those trying to understand Autism and ADHD as a combined diagnosis. Using real-life stories of people living with AuDHD, this book offers advice for those grappling with a diagnosis, and provides a framework for readers to advocate for themselves and discuss it with loved ones.Written in accessible prose by Dr Khurram Sadiq, Explaining AuDHD is a worthwhile read for anyone questioning their own neurodiversity, undergoing assessment, or making sense of their recent diagnosis.
£11.69
Haymarket Books Capitalism and Disability: Selected Writings by
Book SynopsisSpread out over many years and many different publications, the late author and activist Marta Russell wrote a number of groundbreaking and insightful essays on the nature of disability and oppression under capitalism. In this volume, Russell’s various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a “human category” rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely “civil rights approach” to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.Trade Review"Discovering Marta Russell’s work was a watershed moment for my family, changing not just how we saw ourselves as able-bodied or disabled individuals but how we understood the modern world. It led us to a new understanding of disability as a political issue, a social condition embedded in economic structures of exploitation and oppression, not simply a product of personal embodiment. To have any hope of building an accessible future, more people are going to need to read Russell and this collection is the place to begin.” —Astra Taylor
£16.14
Pan Macmillan Seeing Voices
Book SynopsisOliver Sacks is a physician and the author of many books, including The Man Who Mistook His Wife for a Hat, Awakenings (which inspired the Oscar-nominated film) and Musicophilia. Born in London and educated at Oxford, he held positions at Albert Einstein College of Medicine, New York University School of Medicine and was Professor of Neurology and Psychiatry at Columbia University. He is the first, and only, Columbia University Artist, and is also a Fellow of the Royal College of Physicians. In 2008, he was appointed Commander of the British Empire. His memoir, On the Move, was published shortly before his death in August 2015.Trade ReviewSeeing Voices is a manifesto, characteristically humane and impassioned; once more, Sacks proves he is the doyen of science with a human face. * Sunday Times *Empathetic, intelligent and compassionate. * Guardian *A passionate meditation on the richness of sign language. * Independent *Scholarly and carefully documented, Seeing Voices makes the gigantic leap so essential to understanding total deafness. * Sunday Telegraph *
£9.89
The New Press Beasts of Burden: Animal and Disability
Book SynopsisA beautifully written, deeply provocative inquiry into the intersection of animal and disability liberationand the debut of an important new social criticHow much of what we understand of ourselves as human” depends on our physical and mental abilitieshow we move (or cannot move) in and interact with the world? And how much of our definition of human” depends on its difference from animal”?Drawing on her own experiences as a disabled person, a disability activist, and an animal advocate, author Sunaura Taylor persuades us to think deeply, and sometimes uncomfortably, about what divides the human from the animal, the disabled from the nondisabledand what it might mean to break down those divisions, to claim the animal and the vulnerable in ourselves, in a process she calls cripping animal ethics.”Beasts of Burden suggests that issues of disability and animal justicewhich have heretofore primarily been presented in oppositionare in fact deeply entangled. Fusing philosophy, memoir, science, and the radical truths these disciplines can bringwhether about factory farming, disability oppression, or our assumptions of human superiority over animalsTaylor draws attention to new worlds of experience and empathy that can open up important avenues of solidarity across species and ability. Beasts of Burden is a wonderfully engaging and elegantly written work, both philosophical and personal, by a brilliant new voice.Trade ReviewPraise for Beasts of Burden:"From one of the foremost chroniclers of the twentieth century’s other great dilemma, we now have this powerful set of reflections on climate change—they set in useful and vivid context this great crisis, and will be of use to all as we try to think our way through it."Bill McKibben, author of The End of Nature"I am not the same animal I was before I read this book."Alison Kafer, author of Feminist, Queer, Crip"Finally, finally someone has come along to undo all the damage Peter Singer has done. Beasts of Burden is a brave and brilliant book."Michael Bérubé, author of Life as We Know It and The Secret Life of Stories"Beasts of Burden is a game-changer."Marc Bekoff, author of Rewilding Our Hearts and The Animals’ AgendaFeminist, Queer, Crip"This is a profound and wondrous book. Sunaura Taylor challenges us to rethink what is normal, what is natural, how to measure the value of a lifeand how to imagine a world in which both human and nonhuman animals, resplendent in their differences and multiplicity, might flourish."Claire Jean Kim, author of Dangerous Crossings"A powerful blend of sometimes poignant, sometimes funny, personal stories and sharp, passionate writing."Lori Gruen, author of Entangled Empathy and Ethics and AnimalsSunaura Taylor will shake up your categories, turn your world inside-out, and tell you a lot of fascinating and important things you didn’t know yet, about your own body and the bodies of others, human and nonhuman, under an inhumane regime. A startling, readable, sometimes hilarious inquiry into the human condition from a whole new direction, this book might be very, very important, a book to stand alongside The Body in Pain and The Human Condition.”Rebecca SolnitSunaura Taylor has written an amazing book that acts both as an intervention into widely held beliefs about disability and animals and an invitation to reimagine ourselves. Her thoroughly original, brilliant narrative transformed my imagination.”Carol J. Adams, author of The Sexual Politics of Meat
£18.99
Footnote Press Ltd Moving Mountains: Writing Nature through Illness
Book Synopsis'An anthology to treasure and return to' ELINOR CLEGHORN'Uniquely compelling, dynamic and powerful' LUCY JONES'Deeply affecting' TOM SHAKESPEARE'Promises to change the landscape of nature writing' LIZZIE HUXLEY-JONESA first-of-its-kind anthology of nature writing by authors living with chronic illness and physical disabilityWITH A FOREWORD BY SAMANTHA WALTONThrough twenty-five pieces, the writers of Moving Mountains offer a vision of nature that encompasses the close up, the microscopic, and the vast.From a single falling raindrop to the enormity of the north wind, this is nature experienced wholly and acutely, written from the perspective of disabled and chronically ill authors.Moving Mountains is not about overcoming or conquering, but about living with and connecting, shifting the reader's attention to the things easily overlooked by those who move through the world untroubled by the body that carries them.Contributors: Isobel Anderson, Kerri Andrews, Polly Atkin, Khairani Barokka, Victoria Bennett, Feline Charpentier, Cat Chong, Eli Clare, Dawn Cole, Lorna Crabbe, Kate Davis, Carol Donaldson, Alec Finlay, Jamie Hale, Jane Hartshorn, Hannah Hodgson, Sally Huband, Rowan Jaines, Dillon Jaxx, Louise Kenward, Abi Palmer, Louisa Adjoa Parker, Alice Tarbuck, Nic WilsonTrade ReviewBringing together startlingly original voices, Moving Mountains invites us not only to look at nature, but to live alongside it in community and collaboration. Privileging the experiences, perceptions, and perspectives of disabled and chronically ill writers and poets, this anthology is both an urgent call for justice, and an endlessly moving exploration of what it means to be human. Compelling, challenging, contemplative and curious, Moving Mountains is an anthology to treasure and return to -- Elinor Cleghorn * author of UNWELL WOMEN *Moving Mountains is a rich gift of much-needed stories and cosmologies that help us see the earth, our world and interdependence, and our ideas of "nature" and the "natural" with greater clarity. I found each of the narratives uniquely compelling, dynamic and powerful. Beautifully curated and edited with a moving introduction by Louise Kenward, Moving Mountains is a generative and profound anthology that I know I will return to - and it will help us untangle ourselves from many of the modern myths which separate and sever -- Lucy Jones * author of LOSING EDEN and MATRESCENCE *Personal involvements with nature are exposed in this deeply affecting collection, which will stay with you -- Tom ShakespeareSome of my favourite writers and artists are collected here. Together they present a strong argument for the expansion of nature writing into the realm of illness and disability - whether from bed, chair, balcony or close neighbourhood. What if your illness and/or disability - or for that matter ableism and lack of access - restricts your capacity to "immerse" yourself in nature? What can experiencing nature through an unsteady, uneven body reveal? In Eli Clare's words, a world that "relishes crookedness, wholeness and brokenness" -- Alice Hattrick * author of ILL FEELINGS *An important, vital, questing collection of words, stories and experiences of wild green space which asks what it means to lose oneself in nature and explores how acquaintance with living landscapes both urban and rural can earth, galvanise and inspire. An anthology to open eyes, minds and hearts, I loved it -- Dan Richards * author of HOLLOWAY and OUTPOST *A stunning anthology that promises to change the landscape of nature writing. Challenging who gets to write about nature, Moving Mountains is an ambitious, beautiful collection of work -- Lizzie Huxley-Jones * author and editor of STIM *Moving Mountains is a stunning book that captures the experience of living with a disability or chronic illness. Through the beautifully described narratives I felt seen, known and far less alone. Moving Mountains raises the voices of disabled authors but it offers insights to everyone, because illness impacts us all -- Claire Wade * author of The Choice *This is a beautiful collection of stories & poems by a variety of authors. The authors will feel like they are old friends sharing their deepest thoughts with you. As someone living with chronic illness, it was comforting and validating to be heard through these stories too -- Jeannie Di Bon * Hypermobility Movement Therapist *Nature might not heal disabled bodies, but it does connect and soothe. Just like this beautiful, raw book did for me -- Rachel Charlton-DaileyNature and pain have always been caught up together; in this lively anthology, nature and pain shine light on one another and both come out transformed -- Noreen Masud * author of A FLAT PLACE *This polyphonic exploration of bodies, minds and the natural world brings together fascinatingly diverse writing to create something magical. A collection that fuses fierce strength with lyricism, vulnerability with exciting prose, it's a moving testament to resilience and hope, and to celebrating joy wherever we can find it -- Lulah Ellender * author of GROUNDING *
£14.44
Penguin Books Ltd Stigma Notes on the Management of Spoiled
Book SynopsisThe acclaimed sociologist''s landmark, compassionate work on how society treats those who are different''By definition, of course, we believe the person with a stigma is not quite human''In ancient times stigma were physical marks branded on people considered unfit to be in society. Today social stigma shames those seen as ''abnormal'' in more insidious ways. Erving Goffman''s defining sociological study draws extensively on the lived experiences of those who have found themselves on the edges of society to look at the complex ways in which stigmatized individuals see and project themselves, the strategies they use to deal with rejection, and how stigma can shatter their relationships with others.''His brilliant book'' Guardian
£10.44
Jessica Kingsley Publishers Camouflage: The Hidden Lives of Autistic Women
Book SynopsisAutism in women and girls is still not widely understood, and is often misrepresented or even overlooked. This graphic novel offers an engaging and accessible insight into the lives and minds of autistic women, using real-life case studies. The charming illustrations lead readers on a visual journey of how women on the spectrum experience everyday life, from metaphors and masking in social situations, to friendships and relationships and the role of special interests.Fun, sensitive and informative, this is a fantastic resource for anyone who wishes to understand how gender affects autism, and how to create safer supportive and more accessible environments for women on the spectrum.Trade ReviewAs a medical comic, an educational comic, it's really well done, imparting knowledge with ease, simple, clear, effective. Using comics for this (and make no mistake, this is, definitely, a comic), is a perfect fit, getting factual information through to many who simply either wouldn't be able to, or more likely, wouldn't wish to, access it through plain text... When it comes to autism, no matter how aware we think we are, there's always more to discover. Which is just what Camouflage does very well, breaking down the subject with a clarity and simplicity, yet without sparing any factual details or the personal experiences of women with autism. I guarantee that you'll finish Camouflage with a better understanding of an important issue. And in that sense, Camouflage is a hugely successful thing... Hopefully, this will be something that will be embraced by schools, libraries, medical practices, and should be an essential read for anyone with autism, or anyone affected by autism.And frankly, given that we're all on the spectrum somewhere, you will, definitely, know someone affected by autism. Isn't it time you knew a little more? -- Richard Bruton * Comicon *Using a combination of intriguing science facts and moving personal accounts, psychologist Bargiela explains why doctors more rarely identify autism in women than in men. Beginning with the history of autism research, Bargiela shows that studies don't focus enough on the differences between men's and women's brains and skills, such as women's greater talent for 'social mimicry,' and therefore miss the ways autism manifests in women. Bargiela ensures that the medical information is understandable, and when potentially confusing terms arise, quick and concise footnotes are provided. She includes interviews with three autistic women, in which she asked each the same four questions about her life experiences. The responses are revealing; one woman says her assumption that her romantic partners are truthful makes her vulnerable to those who want to take advantage of her. Standing's art is subtle, enhancing the information being shared without distracting from the subject matter. The artwork is reminiscent of art deco, with distinct illustrations and a calming color palette. This informative work has insights for those familiar with or new to autism studies, and readers will feel the interviews add an important perspective. -- Publishers WeeklyA fantastic, easy-to-digest book for anyone hoping to understand how we can create a safer, more accommodating environment for women on the spectrum. -- Bonnie Gifford * Happiful *Table of Contents1. Introducing Autism and Gender 2. 'You're not autistic' 3. Pretending to be Normal 4. From Passive to Assertive 5. Identity and Interests 6. Future Research
£12.99
HarperCollins Publishers Inc Sitting Pretty
Book SynopsisTrade Review"Rebekah writes in a way that is somehow both world-shakingly profound and beautifully intimate. Her voice is unforgettable in its power to make you feel, question, learn, and grow. There aren't words for how much the world needs this book." — Megan Jayne Crabbe, bestselling author of Body Positive Power “A disability advocate debuts with a collection offering potent rejoinders to ableism…..A fierce and fabulous revision to entrenched ableist scripts.” — Kirkus Reviews [Starred Review] "Sitting Pretty is the book I needed years ago as I grappled with my sense of self and my identity as a disabled woman. I put it down while reading only long enough to collect myself each time waves of emotion crashed over me. Rebekah's spunky, self-aware wit, combined with education that never feels didactic, make this book a worthwhile and rewarding read." — Emily Ladau, writer, speaker, and disability rights activist "Rebekah Taussig's writing is a gift that keeps giving. Her voice is honest, vulnerable and welcoming...It was a joy to read and listen to Rebekah's words. This beautiful book helped me ask questions, open my heart, and remind me to look more closely at the world around me and what small part we can all have in making it a better, more accessible one." — Grace Bonney, founder of Design*Sponge and author of In the Company of Women "A compelling personal book whose confidential voice leads the reader into the author’s vividly lived world of disability. Smart and funny, [Sitting Pretty] does double duty revealing not only the intimate life of a disabled woman but the flaws of the world around her that seeks to repress and contain her." — Lennard J. Davis, Distinguished Professor at the University of Illinois at Chicago and author of Enforcing Normalcy and My Sense of Silence: Memoirs of a Childhood with Deafness “An invaluable, eye-opening look at disability from a firsthand perspective.” — Booklist “Her smart and witty observations about living with disabilities will be enlightening and eye-opening for readers.” — Publishers Weekly “Reflecting on her journey toward disability advocacy, Rebekah Taussig's memoir in essays will make you rethink everything you've previously believed about disabled people and their lives. Reflecting on Taussig's personal experiences, and on disability representation more broadly, Sitting Pretty is a rare book from a powerful, new voice.” — Bustle "A groundbreaking and candid memoir" — Shelf Awareness “Taussig’s narrative style is highly conversational, making it feel like one is chatting with a lifelong friend. Her ability to bring levity to a topic some may find taboo is certain to help spread her message of acceptance and love.” — Library Journal (starred review)
£11.39
Scribe Publications We’ve Got This: essays by disabled parents
Book SynopsisThe first major anthology by parents with disabilities. ‘Being a disabled parent is a rebellious act. Disabled people should have the same right to parent as anyone else, but often when we decide to start a family we are met with judgement and discrimination. We are questioned rather than supported. We have to push up against the medical system. And we have to confront society’s model of parenting. Yet, despite all this, we still choose to parent. And we are damn good at it too!’ When writer and musician Eliza Hull was pregnant with her first child, like most like most parents-to-be she felt a mix of nerves and excitement. But as a disabled person, she faced added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? In We’ve Got This, thirty parents who identify as Deaf, disabled, neurodivergent, or chronically ill discuss the highs and lows of their parenting journeys and show that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory, and empowering anthology that celebrates the richness of disabled parenting in the twenty-first century. ‘Such an important book. Joyous, eye-opening, and deeply moving, these powerful stories will challenge long-held assumptions and hopefully shift societal attitudes towards disabled parents. Everyone should read this.’ Francesca Martinez, author of What the **** Is Normal?!Trade Review‘Moving … the essays are at their richest when the authors describe what ought to be mundane (for example, discussing how to adjust the height of a kitchen counter for a wheelchair) or when they are brutally honest.’ -- James Coney, The Sunday Times‘A brilliant, positive, and empowering read full of inspirational stories … really eye-opening.’ -- Anita Rani, Woman’s Hour on BBC Radio 4‘A luminous collection filled with stories of resistance, innovation, joy, and love, We’ve Got This shows that the biggest challenge disabled parents face is not their disability, but how ableist society is. I’m so glad this book exists!’ -- Eloise Rickman, author of Extraordinary Parenting‘We’ve Got This shows what’s possible — that disabled people make brilliant parents. Eliza Hull is a skilful curator. This book should be mandatory reading for healthcare professionals, educators, and everyone wanting to be a better disability ally.’ -- Carly Findlay OAM, writer, speaker and appearance activist‘We’ve Got This sparkles with insight that will make sense to every parent trying to figure out a way to live with whatever curveball the universe has thrown their way. Surprise is a constant. There is no such thing as normal. And it's not a sin to admit that you don’t always know what you are doing. The stories of disabled parents in this book prove that love and ingenuity are a powerful combination.’ -- Al Etmanski, author of The Power of Disability‘Eliza is a legend — and a great advocate for our community. This book will help a lot of people!’ -- Dylan Alcott, Paralympian‘We’ve Got This is the book I needed many years ago when I was considering whether to have children. Now, as I embark on motherhood, these stories from these incredible parents will teach me so much.’ -- Nas Campanella, journalist‘Such an important book. Joyous, eye-opening, and deeply moving, these powerful stories will challenge long-held assumptions and hopefully shift societal attitudes towards disabled parents. Everyone should read this.’ -- Francesca Martinez, author of What the **** Is Normal?!‘All parenting is a leap of faith: with a disability it’s a powerful affirmation of life — as the stories in We’ve Got This demonstrate.’ -- Virginia Trioli, journalist and radio/TV presenter ‘We’ve Got This challenges the narrow stereotype of what disability looks like. It shows that disabled people are parents too — and bloody good ones at that! Thank you, Eliza, for disrupting the discourse.’ -- Lisa Cox, media professional and disability advocate‘Full of deep, beautiful, important stories. I’ve learnt so much from this book.’ -- Clare Bowditch, musician, actress, and radio presenter‘Eye-opening and heartwarming, We’ve Got This will make you laugh, cry, and rethink disability entirely. A must-read.’ -- Holly Ransom, public speaker and author of The Leading Edge‘This is the book I needed on my pregnancy journey. It’s a source of affirmation and representation that disabled parents deserve.’ -- Alexis Hillyard, disability advocate, keynote speaker, and creator of Stump Kitchen‘An important and necessary read.’ * The Bookseller *‘Something I admire about Hull is that … She wants to do the best for the disability community as a whole.’ * The Saturday Paper *‘Everyone should find something empowering in this first major anthology by parents with disabilities. They show what’s achievable: disabled people make exceptional parents.’ * PS News *‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit — disabled parents exist.’ -- Rebekah Taussig‘We’ve Got This attests to the capacities of disabled parents and to the joys of parenting in an authentic way.’ * ArtsHub *‘Eliza Hull begins the book by stating that “being a disabled parent is a rebellious act”. What follows are riveting essays that explain why, all brimming with creativity and pluck.’ -- Louise Kinross, Editor of BLOOM and Special Projects Manager at Holland Bloorview Kids Rehabilitation Hospital in Toronto, Canada‘There are many myths and misconceptions surrounding disabled parents. One of ableism’s greatest myths questions our capacity to bring a child into our lives. For this reason there is so much joy in reading this book. Reading so many wonderful essays addressing how parenting plays out for other disabled parents opens doors to my own joy parenting. So open the book already!’ -- Neil Hughes, Paralympic snowboarder and disability advocate‘Being a disabled parent is a “rebellious act”, which is why We’ve Got This is so important. Although disabled parents exist in substantial numbers, they remain in the shadows. This groundbreaking anthology confronts this phenomenon by telling the stories of parents with disabilities and their families — in their voices. We’ve Got This is a must-read!’ -- Robyn M. Powell, disability advocate and Associate Professor at the University of Oklahoma College of Law‘As the mother of a daughter with a disability I am grateful for Eliza Hull’s We’ve Got This: essays by disabled parents. There is a lot I can give to my daughter, but perspective on what it’s like to be a disabled parent is not one of those things. Of course, these stories aren’t just for her: they’re for everyone! The world needs to become more deeply acquainted with the breadth and depth of humanity found within the stories and experiences of disabled individuals, including disabled parenthood. This book is a revelation and full of beauty, humour, and grace. It’s hard to be what you can’t see — thank you to Eliza and all the parents in this book sharing their stories to help my daughter, and others, see ever more possibility.’ -- Amy Webb, disability advocate and author of When Charley Met Emma and Awesomely Emma‘The rawness, vulnerability, and authenticity in these stories is refreshing! Too often in the disability community we don't feel reflected accurately in TV, news, and the media, and these stories shine a light on that. The need to be heard and respected is something we can all relate to, disabled or not, and these messages are exactly what we need to hear more of.’ -- Marco Pasqua, public speaker and accessibility consultant‘The collection includes authors from a wide variety of backgrounds and experiences … it also includes essays and interviews from parents with intellectual disabilities, a frequently missing discourse in disability spaces … As a disabled parent, this was such an affirming and moving read for me, though I think all parents will benefit from reading it.’ -- Margaret Kingsbury * Book Riot *‘[M]uch-needed … [W]onderfully intersectional … Eliza Hull has done a fantastic job of curating this book. The essays themselves are brilliant, written from the heart and are very informative … The wealth of experiences, knowledge and sense of community that We’ve Got This offers is invaluable … [A] necessary read.’ -- Heather T. * Just Geeking By *‘Beautiful.’ * PosAbility Magazine *
£9.49
Duke University Press Disability Worlds
Book SynopsisIn Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rap
£19.79
Pluto Press Empire of Normality
Book SynopsisThis is the rise of the anti-capitalist neurodiversity movementTrade Review'This groundbreaking book fills a crucial gap in the discourse about neurodiversity, providing a deep history of the invention of the 'normal' mind as one of the most damaging and oppressive tools of capitalism, while not succumbing to the myths of the 'anti-psychiatry' movement. To read it is to see the world more clearly.' -- Steve Silberman, author of 'NeuroTribes: The Legacy of Autism and the Future of Neurodiversity''A vital book that kindles the flames of a Marxist neurodivergent revolution. Chapman boldly challenges us to envision a world liberated from neuronormative oppression, where dismantling capitalism is central to disabled, Mad, and neurodivergent liberation—a new radical approach to neurodiversity that is explicitly anti-capitalist.' -- Beatrice Adler-Bolton, co-author of 'Health Communism''An instant seminal text, Empire of Normality takes on the huge task of crafting a coherent, radical, Marxist approach to neurodivergence. Chapman impressively and critically assembles disparate philosophical, scientific and activist currents across time to carve out a new politics that pushes beyond liberal rights-based approaches, and guides us towards a liberated future.' -- Micha Frazer-Carroll, author of 'Mad World: The Politics of Mental Health''Empire of Normality argues that a radical politics of neurodiversity needs to be central to the struggle against capitalism. Chapman explains why this is necessary, not only for neurodivergent folk, but for our collective liberation. Thought provoking, challenging and compelling.' -- Professor Hel Spandler, Editor, 'Asylum: the radical mental health magazine''Engaging, impeccably researched, and a vital step in the emergence of a new social paradigm. Chapman uncovers the origins of the stifling norms that limit our collective potentials, and points the way toward a better and more creative future.' -- Nick Walker, author of 'Neuroqueer Heresies'Table of ContentsPreface Introduction 1 Rise of the machines 2 The invention of normality 3 Galton’s paradigm 4 The eugenics movement 5 The myths of anti-psychiatry 6 Fordist normalisation 7 The return of Galtonian psychiatry 8 Post-Fordism as a mass disabling event 9 The neurodiversity movement 10 Cognitive contradictions 11 After normality Notes Bibliography Acknowledgements Index
£13.49
Little, Brown Book Group Driving Forwards
Book Synopsis''A book that''ll change your perspective on life. You''ll not be able to put it down.'' Fearne Cotton''Everyone should read this book. Sophie Morgan is the epitome of grit and determination. Her writing is thought provoking, honest and in parts hilarious.'' Katie Piper OBE''Wrenchingly honest...eye-opening and deeply moving. *****'' Mail on SundayAs seen on ''Living Wild; How to Change your Life'' a two-part prime-time series on Channel 4, Loose Women and The Great Celebrity Bake Off for SU2COn the precipice of starting her adult life, aged eighteen, Sophie, a rebellious and incorrigible wild child, crashed her car and was instantly paralysed from the chest down. Rushed to hospital, everything she had dreamed for her life was instantly forgotten and her journey to rediscover herself and build a different life began. But being told she would never walk again would come to be the least of her concerns.Over the next eighteen years, as she strived to come to terms with the change in her body, her relationships were put to the test; she has had to learn to cope with the many unexpected and unpredictable setbacks of living with paralysis; she has had to overcome her own and other people''s perceptions of disability and explore the limits of her abilities, all whilst searching for love, acceptance, meaning, identity, and purpose.Driving Forwards is a remarkable and powerful memoir, detailing Sophie''s life-changing injury, her recovery, and her life since. Strikingly honest, her story is unusual and yet relatable, inspiring us to see how adversity can be channelled into opportunity and how ongoing resilience can ultimately lead to empowerment.''Raw, life affirming and gorgeously written - this book is filled with extraordinary honesty, courage and warmth. Sophie''s words will make us all braver and more hopeful.'' Daisy Buchanan''A truly astonishing read about the power of never giving up.'' Sun''F***king hell!! This book is absolutely brilliant . . . One of the best memoirs I''ve ever read. Honest and so blooming human, it''s fantastic.'' Kathy BurkeTrade ReviewA book that'll change your perspective on life. You'll not be able to put it down. * Fearne Cotton *What I love about this book is it's not about "overcoming disability". Instead, it's about learning how to live a good disabled life - one full of friends, love, opportunities and fun. Disabled joy is so rarely seen, but Sophie Morgan has it in spades. * Lucy Webster, Political journalist, writer and disability advocate *Wrenchingly honest...inspirational, eye-opening and deeply moving * Mail on Sunday *A searing read * The Guardian *
£12.36
Duke University Press The Terrible We
Book SynopsisIn The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development.Table of ContentsPreface/Acknowledgments vii Introduction: On Staying with the Terrible We 1 1. Disabled Histories of Trans 31 Holding Space 61 2. Trans, Feminism: Or, Reading Like a Depressed Transsexual 67 3. Some Dissociative Trans Masc Poetics 89 4. We's Company 117 Afterword/Elegy 143 Notes 151 Bibliography 171 Index 187
£17.99
Jessica Kingsley Publishers Employment for Individuals with Asperger Syndrome
Book SynopsisMost people with Non-Verbal Learning Disorder (NLD) or Asperger Syndrome (AS) are underemployed. This book sets out to change this. With practical and technical advice on everything from job hunting to interview techniques, from 'fitting in' in the workplace to whether or not to disclose a diagnosis, this book guides people with NLD or AS successfully through the employment mine field. There is also information for employers, agencies and careers counsellors on AS and NLD as 'invisible' disabilities, including an analysis of the typical strengths of somebody with NLD or AS, and how to use these positively in the workplace. Practical information and lists of career resources are supported by numerous case studies to inspire and advise. An essential resource for people with NLD or AS seeking or in employment and their existing or potential employers.Trade ReviewThis book is very suitable for people with Asperger syndrome who are conducting their job search independently or semi-independently, and who are interested in finding a career, not just a job. The author herself has a Non-Verbal Learning disorder and a large part of the book is devoted to contributions from other people with Non-Verbal learning disorder of Asperger syndrome, describing their experiences of employment. The later chapters look in depth at the issues, and provide lots of information and advice on the application procedure and dealing with your employers. Interestingly, the author recommends non-disclosure to employers, and instead suggests being honest about yourself and how you are without giving people labels. This is definitely a book for people who want to be taken seriously. -- Asperger Information.netEmployment for Individuals with Asperger Syndrome or Non-Verbal Learning Disability is the best book I have read on AS/NLD and career issues. I also highly recommend it for the parents and other family members of people with AS/NLD, educators, vocational rehabilitation personnel, mental health professionals, employers, and even the general public. It is essential that more people learn about AS and NLD, and on how both disorders affect employment. Hopefully in the future, the prognosis for those with Asperger's Syndrome and Nonverbal Learning Disorder in the workplace will be more positive. This book is the first step on that journey. -- Asperger's Association of New England NewsletterTable of ContentsIntroduction. NLD and AS: Descriptions, Differences and Similarities. Part I. Career Voices. NLD Voices. 1. I Should have Listened. 2. The Lawyer. 3. The Long Road. Charlene A. Derby. 4. The Research Associate. 5. The Professor. 6. For the Love of Books. 7. Try, Try, Try Again. Kim Stocum. 8. The Corporate Backpacker. Lisa Marti. 9. Teaching. Debbie Green. AS Voices. 10. The Prodigal Son. 11. The Eccentric. 12. The Transcriptionist. 13. Great Expectations. 14. Survival in the Workplace. Stephen Shore. 15. The Salesman. Jeff G. 16. The Graduate. 17. In Pursuit of Approval. 18. The Entrepreneur. Part II. Career Strategies. Planning for a Career. 19. Career Planning for the AS/NLD Individual. 20. The Professional Voice: Career Counseling for the NLD/AS World. Marcia Brown Rubinstien. 21. Transitioning from School to Work. James Emmett, Karen Steffan and Yvona Fast. 22. Finding a Job. 23. A Short Intro to Job Hunting. 24. Presenting Yourself: In Print. 25. Showcase your Work. 26. Presenting Yourself: In Person. 27. The Professional Voice: How to Survive the Job Interview. Lawrence M. Blim, CPA, CGFM. 28. Questions to ask in the Interview. Maintaining a Career. 29. The Professional Voice: The Employer's Perspective on Hiring People with NLD/AS. Lawrence M. Blim, CPA, CGFM. 30. Your First Hundred Days. 31. Work Issues. 32. Major Hurdles: Sociability and Communication. 33. More Hurdles. 34. A Few Lists. 35. Disclosing: If, how and when to do it. 36. Some Commandments for an employer who is working with an NLD employee. Jennifer Lerner. 37. Strategies for Successful Employment. Debbie Green. 38. Workplace Bullying and the AS/NLD Individual. Lana Kapchinsky. 39. You have a Bad Attitude. Alice E. Gerard. 40. Vocational Rehabilitation Programs and the NLD/AS Individual. 41. Individualized Employee Plan.Judy Lewis and Debbie Green. 42. I Have a Dream. List of Jobs. Part III. Resources. Disability Resources. Career Resources. Bibliography. Index.
£19.99
Brookes Publishing Co Learning Disabilities and Challenging Behaviors:
Book SynopsisWhy do students in Grades K–12 struggle with social and academic skills, and how can teachers help them develop the competence and confidence they need to succeed? Get practical answers in the new edition of this bestselling book, a staple of teacher training since 2001. It’s structured like the popular previous editions: a detailed questionnaire pinpoints each student’s individual strengths and needs, and an updated version of the highly effective Building Blocks model helps educators target 12 school success factors with proven strategies and guidelines they can use right away. Reliable, up-to-date research makes this a perfect preservice textbook, and the classroom-ready strategies are a lifeline for in-service teachers as they work toward better outcomes for struggling students.HELP STUDENTS MASTER 12 BUILDING BLOCKS OF LEARNING: Self-Regulation Behaviour Emotions Resilience Phonological Orthographic Memory Motor Automaticity/Efficiency Verbal Nonverbal Executive Functions WHAT’S NEW: New in-depth information on today’s most critical topics, including school climate, multi tiered systems of support (MTSS), positive behaviour interventions and supports (PBIS), social emotional learning, and student—teacher interactions. You’ll also get fresh contributions from experts on learning disabilities and behaviour challenges, plus lists of helpful apps and other online resources.
£52.00
Coach House Books Disfigured: On Fairy Tales, Disability, and
Book SynopsisA CBC BOOKS BEST NONFICTION OF 2020AN ENTROPY MAGAZINE BEST NONFICTION 2020/21A NEW YORK PUBLIC LIBRARY BOOK OF THE DAY (07/23/2022)Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty?If every disabled character is mocked and mistreated, how does the Beast ever imagine a happily-ever-after? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference."Historically we have associated the disabled body image and disabled life with an unhappy ending” – Sue Carter, Toronto Star"Leduc persuasively illustrates the power of stories to affect reality in this painstakingly researched and provocative study that invites us to consider our favorite folktales from another angle." – Sara Shreve, Library Journal"She [Leduc] argues that template is how society continues to treat the disabled: rather than making the world accessible for everyone, the disabled are often asked to adapt to inaccessible environments." – Ryan Porter, Quill & Quire"Read this smart, tenacious book." – The Washington Post"A brilliant young critic named Amanda Leduc explores this pernicious power of language in her new book, Disfigured … Leduc follows the bread crumbs back into her original experience with fairy tales – and then explores their residual effects … Read this smart, tenacious book." – The Washington Post"Leduc investigates the intersection between disability and her beloved fairy tales, questioning the constructs of these stories and where her place is, as a disabled woman, among those narratives." – The Globe and Mail"It gave me goosebumps as I read, to see so many of my unexpressed, half-formed thoughts in print. My highlighter got a good workout." – BookRiot"Disfigured is not just an eye-opener when it comes to the Disney princess crew and the Marvel universe – this thin volume provides the tools to change how readers engage with other kinds of popular media, from horror films to fashion magazines to outdated sitcom jokes." – Quill & Quire“It’s an essential read for anyone who loves fairy tales.” – Buzzfeed Books"Leduc makes one thing clear and beautifully so – fairy tales are fundamentally fantastic, but that doesn’t mean that they are beyond reproach in their depiction of real issues and identities." – Shrapnel Magazine"As Leduc takes us through these fairy tales and the space they occupy in the narratives that we construct, she slowly unfolds a call-to-action: the claiming of space for disability in storytelling." – The Globe and Mail"A provocative beginning to a thoughtful and wide-ranging book, one which explores some of the most primal stories readers have encountered and prompts them to ponder the subtext situated there all along." – LitHub"a poignant and informative account of how the stories we tell shape our collective understanding of one another.” – BookMarks "What happens when we allow disabled writers to tell stories of disability within fairytales and in magical and supernatural settings? It is a reimagining of the fairytale canon we need. Leduc dares to dream of a world that most stories envision is unattainable." – Bitch MediaTrade Review"She [Leduc] argues that template is how society continues to treat the disabled: rather than making the world accessible for everyone, the disabled are often asked to adapt to inaccessible environments." —Ryan Porter, Quill & Quire"Historically we have associated the disabled body image and disabled life with an unhappy ending” —Sue Carter, Toronto Star"Leduc persuasively illustrates the power of stories to affect reality in this painstakingly researched and provocative study that invites us to consider our favorite folktales from another angle." —Sara Shreve, Library Journal
£12.34
University of Minnesota Press Unraveling: Remaking Personhood in a Neurodiverse
Book SynopsisDeveloping a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling, Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood. Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic—texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life. Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as “quality of life” to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts.Trade Review"Unraveling is a work of cultural reimagination. Matthew J. Wolf-Meyer knits together neurological, psychiatric, and neuroscientific theories about ‘the brain’ in this broad-based inquiry into ‘communicative disorders.’ He insists that the many possibilities and blocked channels of communication depend on the interdependency of subject, personhood, family, community, and polity. He joins leading scholars in disability studies and feminist theory, illuminating the thoroughly social nature of all embodied communication and thus its ethical and political reliance on making a world where differences are welcome."—Rayna Rapp, New York University"This is a book for our times—a deep dive into the problematics of personhood in relationship to the neurological. This book, alluringly readable, vigorously challenges our conceptions of what makes a human being human and advocates for an anti-neoliberal vision of complex selfhood that is not dependent on predictable norms. While this subject could lend itself to predictable advocacy, Matthew J. Wolf-Meyer stays ahead of the reader's assumptions and provides a new and thoughtful way of conceiving big questions concerning the very definitions of life, thought, value, and ethics. A must read for anyone interested in neurodivergence and disability in general."—Lennard J. Davis, author of Obsession: A HistoryTable of ContentsContentsPreface: Blind-Man-and-WorldIntroduction: Let’s Build a New Nervous System1. Neurological Subjectivity: How Neuroscience Makes and Unmakes People through Neurological Disorder2. Symbolic Subjectivity: How Psychoanalysis and the Communication of Meaning Disable Individuals3. Materialist Subjectivity: How Technology and Material Environments Make Personhood Possible4. Cybernetic Subjectivity: The Fusion of Body, Symbol, and Environment in the Facilitated Person5. Facilitated Subjectivity, Affective Bioethics, and the Nervous SystemEpilogue: Living and Dying in the Nervous System AcknowledgmentsNotesIndex
£20.69
Jessica Kingsley Publishers The PDA Paradox: The Highs and Lows of My Life on
Book SynopsisDiagnosed with Pathological Demand Avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol.By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the "scenic route" in order to flourish and reach their full potential. The memoir brings to life Harry's past experiences and feelings, from his torrid time at school to the peaceful and meaningful moments when he is alone with a book, writing or creating YouTube videos.Eloquent and insightful, The PDA Paradox will bring readers to shock, laughter and tears through its overwhelming honesty. It is a turbulent memoir, but it ends with hope and a positive outlook to the future.Trade ReviewBeing a mum to a teenage PDA son is life-changing, and at times, utterly heart-wrenching experience. Seeing Harry through his own candid, entertaining and diplomatic lens, fills me with hope, quiet optimism, and (most importantly) confidence for my own son's future. Thank you Harry for your insight. -- Natasha, PDA mumAs a clinician who has worked with complex young people and adults with Autism throughout my working life, I was delighted to be asked to review this book. I read it in one sitting. It is the most articulate, honest, entertaining (and sometimes funny) book about PDA I have read. I would highly recommend it to anyone who wants to gain an insight into how this profile impacts upon individuals, their families and those who work with or are involved in their education. -- Dr Judy Eaton, Consultant Clinical PsychologistIn this book Harry has told the fascinating story of his interesting and inspiring life. With great use of humour, grace, and emotion he gives brilliant insight into his Pathological Demand Avoidance, which I'm sure reading it would be helpful to many people. -- Liam Ragless, Autism Support Advisor, Assert Brighton and HoveTable of Contents1. Gratitude? I Think Not! 2. So What the Devil is this PDA Malarkey Anyway? 3. Mother & The Beast. 4a. "School". 4b. A Brief, Yet Necessary, Digression. 4c. (Resumed). 5. "Pretending to be Something I'm Not in Pursuit of Green, Rectangular Pieces of Paper". 6. Coexisting with Other Living Things on a Blue and Green Speck of Dust Hurtling Through Space. 7. Inhale and Exhale. Denouement. End: A Final Note from the Author's Mother.
£13.99
University of Minnesota Press Decarcerating Disability: Deinstitutionalization
Book SynopsisThis vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.Trade Review"Decarcerating Disability is a groundbreaking feminist study of the affinities, interrelations, and contradictions between prison abolition and psychiatric deinstitutionalization. Emphasizing the need for a more expansive field of critical carceral studies, Liat Ben-Moshe compellingly demonstrates the important lessons we can discover through serious engagements with radical disability movements. Scholars and activists alike should read this book without delay!"—Angela Y. Davis, University of California, Santa Cruz"In Decarcerating Disability, Liat Ben-Moshe carefully and incisively models an intersectional approach to abolition grounded in feminist, queer, and crip of color critique. Moving beyond demands for inclusion and critiques of overrepresentation, Ben-Moshe makes a powerful and persuasive case for a disability studies that recognizes state violence as central to its work and the carceral industrial complex as a site for queer coalitions for racial and disability justice. In so doing, she paves the way for thinking not only disability and disability studies differently, but also liberation itself."—Alison Kafer, University of Texas at Austin"Decarcerating Disability is a must-read for anyone interested in understanding and dismantling the interlocking systems of incarceration that shape the contemporary political landscape and shorten so many lives. Liat Ben-Moshe shows how the effectiveness of abolitionist work has been limited by the marginalization of disability and anti-sanism analysis and advocacy. She not only exposes how much contemporary abolitionists have to learn from historical struggles for deinstitutionalization, she also demonstrates a more truly intersectional method of abolitionist scholar-activism that we urgently need. This book is both a corrective intervention and a path-breaking tool for developing better strategy toward the world that those who seek liberation are fighting to build."—Dean Spade, Seattle University School of Law"Ben-Moshe outlines how people fought for a new paradigm in mental health treatment before. Beginning in the 1960s, widespread deinstitutionalization sparked by disability activists shut down asylums across the country. Many see this movement now as a failure because it led to more people with mental illness being herded into jails and prisons. But Ben-Moshe argues that this was a pivotal step in abolition by grassroots organizing."—Teen Vogue"Examining decarceration and deinstitutionalisation within the same frame is vitally important...the book challenges us to think about the range of carceral facilities that exist."—Race & Class"A groundbreaking connection between disability justice and prison abolition."—Public Books "Decarcerating Disability should be read not only by students and scholars of African-American studies, criminology, critical theory, gender studies, law, or sociology, nor only by policy makers, but by all who are concerned about disability, gender, or racial justice."—American Journal of Sociology "Each chapter of Decarcerating Disability serves as a fantastic example of the knowledges, perspectives, and genealogies that are made possible when disability and madness are the lenses through which a queer of color critique is engaged."—Disability Studies Quarterly"Decarcerating Disability is an impressive text that powerfully argues for robust coalitional politics to challenge the logic of incarceration. Entire syllabi and reading groups can be structured around this text as Ben-Moshe opens up much to consider, especially how to effectively demand carceral-free futures, while also valuing disability. "—Ethnic Studies Review"Decarcerating disability: Deinstitutionalization and prison abolition is abold and challenging critical intervention, which puts critical disability studies, deinstitutionalisation, decarceration, and abolition theory and scholarship into closer conversation with each other. In so doing, the book has pushed these fields forward in new and, interesting ways. The book’s strongest contribution is its attempt to transform, redefine, and reframe what disability studies is and can be about, its appeal to frame and address issues of incarceration and decarceration as disability and carceral abolition issues, and the generative groundwork laid for fostering coalitional, liberatory politics and ideas."—Australian & New Zealand Journal of Criminology"[A]n important book that offers both a sweeping genealogy of disability and itsentangled history with race and incarceration, and rallying cry for abolitionism."—Journal of Constructivist Psychology"Ben-Moshe offers a detailed history of institutionalization and incarceration primarily in the United States. In putting institutionalization and incarceration in conversation, Ben-Moshe offers a larger consideration around the systems that keep certain individuals enclosed and the implications of deinstitutionalization as a movement versus louder for total prison abolition. A major intervention of Ben-Moshe’s book is the different approaches to and opinions of institutions as opposed to prison systems across the United States."—Work in Critical and Cultural TheoryTable of ContentsContentsList of Abbreviations Introduction: The Case for Intersecting Disability, Imprisonment, and Deinstitutionalization1. The Perfect Storm: Origin Stories of Deinstitutionalization2. Abolition in Deinstitutionalization: Normalization and the Myth of Mental Illness 3. Abolition as Knowledge and Ways of Unknowing4. Why Prisons Are Not “the New Asylums”5. Resistance to Inclusion and Community Living: NIMBY, Desegregation, and Race-Ability6. Political and Affective Economies of Closing Carceral Enclosures7. Institutional and Prison Reform Litigation: From Politicization to the Governable Iron CageEpilogue: Abolition NowAcknowledgmentsNotesIndex
£23.39
University of Minnesota Press Deaf Gain
Book SynopsisTrade ReviewI don’t have Deaf Gain, but I am one of the fortunate hearing people who has been able to witness it, so I know something of what I’m missing. I believe that I am made richer by the simple fact of having witnessed the merit present in what most people still presume to be a deficit. This book elucidates that argument elegantly.—Andrew Solomon, from the Foreword"Bauman and Murray. . . remind us that deafness is a part of, not apart from humanity."—Journal of Deaf Studies and Deaf Education"The overwhelming approach is positive, optimistic, and even heroic. The concept of Deaf Gain turns on its head the usual idea that deafness should be defined through narratives of suffering and isolation. . . an excellent addition to the understanding of deafness and to the promotion of Deaf culture."—Medical HumanitiesTable of ContentsContentsForeword: Deaf LossAndrew SolomonDeaf Gain: An IntroductionH-Dirksen L. Bauman and Joseph J. MurrayEditors’ Note on TerminologyI. Philosophical Gains 1. Armchairs and Stares: On the Privation of Deafness Teresa Blankmeyer Burke2. Identifying the “Able” in a Vari-able World: Two LessonsJames Tabery3. The Case for Deaf Legal Theory through the Lens of Deaf GainAlison Bryan and Steve EmeryII. Language Gains4. Three Revolutions: Language, Culture, and BiologyLaura-Ann Petitto5. Deaf Gain in Evolutionary PerspectiveDavid Armstrong6. Deaf Gains in the Study of Bilingualism and Bilingual EducationOfelia García and Debra Cole7. What We Learned from Sign Languages When We Stopped Having to Defend ThemCindee CaltonIII. Language Gains in Action8. Advantages of Learning a Signed LanguagePeter C. Hauser and Geo Kartheiser9. Baby Sign as Deaf GainKristin Snoddon10. Manual Signs and Gestures of the Inuit of Baffin Island: Observations during the Three Voyages Led by Martin FrobisherClara Sherley-Appel and John D. Bonvillian11. Bulwer’s Speaking Hands: Deafness and RhetoricJennifer NelsonIV. Sensory Gains12. Seeing the World through Deaf EyesMatthew Dye13. A Magic Touch: Deaf Gain and the Benefits of Tactile SensationDonna Jo Napoli14. Senses and Culture: Exploring Sensory OrientationsBenjamin Bahan15. The Deaf Gain of Wladislav Zeitlin, Jewish Scientist and InventorMark Zaurov16. The Hidden Gain: A New Lens of Research with d/Deaf Children and AdultsKatherine D. Rogers and Hilary SutherlandV. Social Gains17. Deaf Gain and Shared Signing CommunitiesAnnelies Kusters18. Gainful Employment: Historical Examples from Akron, OhioKati Morton19. Effective Deaf Action in the Deaf Community in UruguayElizabeth M. Lockwood20. Deaf Gains in Brazil: Linguistic Policies and Network EstablishmentRonice Müller de Quadros, Karin Strobel, and Mara Lúcia Masutti21. Deaf Gain: Beyond Deaf CultureIrene W. Leigh, Donna A. Morere, and Caroline Kobek PezzarossiVI. Creative Gains22. DeafSpace: An Architecture toward a More Livable and Sustainable WorldHansel Bauman23. Co-Design from Divergent ThinkingAntti Raike, Suvi Pylvänen, and Päivi Rainò24. The Hearing Line: How Literature Gains from Deaf PeopleChristopher Krentz25. Deaf Music: Embodying Language and RhythmSummer Loeffler26. Deaf Gain and Creativity in Signed LiteratureRachel Sutton-Spence27. Deaf Gain and the Creative Arts: Interviews with Deaf ArtistsJennifer Grinder WitteborgAfterword. Implications of Deaf Gain: Linguistic Human Rights for Deaf CitizensTove Skutnabb-KangasAcknowledgmentsContributorsIndex
£26.59
Jessica Kingsley Publishers The Neurodiverse Workplace: An Employer's Guide
Book SynopsisEstimates suggest that up to 20% of employees, customers and clients might have a neurodivergent condition - such as dyslexia, autism, Asperger's, ADHD or dyspraxia - yet these individuals often struggle to gain and maintain employment, despite being very capable. This practical, authoritative business guide will help managers and employers support neurodiverse staff, and gives advice on how to ensure workplaces are neuro-friendly. The book demonstrates that neurodiversity is a natural aspect of human variation to be expected and accepted, rather than a deficit to be accommodated. Employer responsibilities are highlighted, including the 2010 Equality Act, and a range of strategies and policies are provided, including recruitment advice and the benefits of neurodiverse employees, along with advice on physical environments, interaction and communication, and working with clients and customers. This book is an ideal resource for all employers wanting to support and empower people with specific needs to help create a more inclusive workplace, benefiting both neurodiverse individuals and the companies employing them.Trade ReviewAs an HR Adviser in a University, I have become more aware of neurodiverse colleagues and students and consideration of reasonable adjustments. This book provides practical guidance on developing policies and processes which support neurodiverse employees by making simple adjustments to facilitate participation in a variety of tasks and situations. -- Anne Spence, HR AdviserThis is an excellent and very informative book celebrating and supporting diversity of people in one of our adult lives' most visited places, the workplace. It includes everything professionals, managers and neurodiverse people need to know about how to survive the demands of the workplace. It is a great follow up to The Neurodiverse Classroom and it is easy to read and follow the information. A must-read for all the professions who support and accept neurodiversity. -- Ioannis Voskopoulos, Psychologist, Social And Organisational Psychologist, SF practitioner TNA Space CliniqueTable of Contents1. Introduction2. Understanding neurodiversity3. Neurodivergent individuals4. Employer responsibilities5. Inclusive recruitment6. Communicating for neurodiversity7. Policies and practice for neurodiversity8. Neurodiverse-friendly environments9. Working with neurodivergent customers and clients10. Further resources11. References
£20.89
WW Norton & Co Mermaid A Memoir of Resilience
Book SynopsisA gorgeously crafted memoir about resilience, family, and forging your own way, by a woman born without legs.Trade Review"Extraordinarily courageous; [Cronin] chronicles her journey to fit in and thrive with bravery and wit." -- O, The Oprah Magazine"Compelling... [Cronin’s] grit, grace, and optimism are a lesson to anyone confronted by a severe challenge..." -- The Washington Post"Mermaid is studded with searing moments…" -- The Boston Globe
£11.99
The University of Michigan Press Points of Contact
Book Synopsis
£24.65
Pan Macmillan The Island of the Colourblind
Book SynopsisOliver Sacks was born in 1933 in London and was educated at Queen's College, Oxford. He completed his medical training at San Francisco's Mount Zion Hospital and at UCLA before moving to New York, where he soon encountered the patients whom he would write about in his book Awakenings.Dr Sacks spent almost fifty years working as a neurologist and wrote many books, including The Man Who Mistook His Wife for a Hat, Musicophilia, and Hallucinations, about the strange neurological predicaments and conditions of his patients. The New York Times referred to him as 'the poet laureate of medicine', and over the years he received many awards, including honours from the Guggenheim Foundation, the National Science Foundation, the American Academy of Arts and Letters, and the Royal College of Physicians. In 2008, he was appointed Commander of the British Empire. His memoir, On the Move, was published shortly before his death in August 2015.Trade ReviewThis is a wonderful book, made better by Sacks' exceptionally gentle descriptions of patients. He also captures the unimaginable sadness of the Pacific. * Spectator *There is no one at the present time who writes like Oliver Sacks . . . He is a superb clinician who can take a seemingly arid and obscure medical condition, and convert it into a moving, personal odyssey, a testament of tenacity, courage and will. * Literary Review *Dr Sacks is an elegant and beguiling writer, and when he describes a condition such as achromatopsia (total colour-blindness), he is not content merely to describe it from the outside, but he tries to imagine what the world is like to a person with the condition. * Sunday Telegraph *
£9.89
Ohio University Press Aquamarine Blue 5 Personal Stories of College
Book SynopsisThis is the first book to be written by autistic college students about the challenges they face. Aquamarine Blue 5 details the struggle of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole.DawnTrade Review“This is the first book to be written by autistic college students who have been diagnosed with Aspergers Syndrome or with High Functioning Autism. It demonstrates their unique way of looking at and solving problems and the challenges they face. Aquamarine Blue 5 details the struggles of these highly sensitive students and shows that there are gifts specific to autistic students that enrich the university system, scholarship, and the world as a whole. "Her unusual approach to understanding human behavior leads to powerfully clear analysis of the problems faced by people with Autism.” * ForeWord *“These essays… exhibit a level of awareness, effective writing, and sophisticated understanding of the world they must cope with that are usually thought beyond the capabilities of even the highest-functioning people with autism.” * author of Exiting Nirvana: A Daughter’s Life with Autism *
£13.49
Taylor & Francis Ltd Disability Studies and the Inclusive Classroom
Book SynopsisDisability Studies and the Inclusive Classroom integrates knowledge and practice from the fields of disability studies and special education to provide readers with a comprehensive understanding of inclusive education. Now in its third edition, this critical volume has been revised and updated to include expanded discussion of disability models and contemporary perspectives on disability. Each chapter features a dilemma to capture the complexities of the field of educational practice to inspire critical thinking and contemplation of inclusive education. Table of ContentsPart I: Disability and Society 1. What is Inclusive Education? 2. Perspectives on Disability 3. Cultures of Exclusion 4. Cultures of Inclusion Part II: Disability in Schools 5. Overview of How Schools Respond to Student Diversity 6. Definitions of Disability in Schools 7. Collaborative Planning and Practice Part III: Constructing an Inclusive Classroom 8. Organizing Instruction for Inclusive Education 9. Addressing Disability in Inclusive Practice 10. Including Disability in Curriculum
£47.49
Nova Science Publishers Inc Life Skills Instruction in a Time of
Book Synopsis
£36.74
Jessica Kingsley Publishers Active Support: Enabling and Empowering People
Book SynopsisActive Support is a proven model of care that enables and empowers people with intellectual disabilities to participate fully in all aspects of their lives. This evidence-based approach is particularly effective for working with people with more severe disabilities, and is of growing interest to those responsible for providing support and services. The authors provide a comprehensive overview of Active Support and how it can be used in practice, based on the theory and research underpinning the methods involved. They describe how to engage people with intellectual disabilities in meaningful activity as active participants, and look at the communication style needed to foster positive relationships between carers and the people they are supporting. Highlighting the main issues for those trying to put Active Support into practice, they explain what is needed on a day-to-day basis to support the implementation, improvement and maintenance of the approach, along with possible solutions for the difficulties they may encounter. Finally, they look at how to integrate Active Support with other person-centred approaches, drawing on examples from various organisations and individual case studies. The definitive text on Active Support, this book will be essential reading for anyone professionally concerned with the quality of life of people with intellectual disabilities, including psychologists, behaviour specialists, social workers, care managers, occupational therapists and inspectors and regulators of services, as well as families.Trade ReviewMansell and Beadle-Brown have created a thorough handbook of AS and how to implement it successfully. Readers of this book will also obtain different perspectives of challenges faced with AS, and how to resolve these. The book is a stimulating read, with a strong evidence base referenced to research and government papers. The authors explain their material clearly, and offer ideas for future research. This is a book to buy for any student or practitioner in a relevant field. -- British Journal of Occupational Therapyexcellent and accessible book... It provides a concise explanation of active support - meaningful, engaging and fulfilling daily activities by carers providing intensive support - and how to set about providing this. -- Nursing StandardThe book is comprehensive and essentially provides a value base and structure to support service users positively. It will be useful for families, care providers and health and social care practitioners who work or care for people with intellectual disabilities. -- International Journal of Developmental DisabilitiesThis book is drawn from international sources and sits within social policy and social work values of social inclusion, choice, participation, respect and dignity. Its great value is that by drawing on research as to what works in practice then it is both a key source of evidence and a call of action to effect change at different levels... Each chapter manages to discuss and analyse issues and challenges with which we are all familiar. The evidence is used to highlight what works and to recommend best practice at different levels. This is an important book that deserves to be read by students, social workers, team leaders, senior managers, policy makers and inspectorate staff and its recommendations acted upon. -- RostrumThis landmark book is an authoritative text on the organisation of support and methods of direct practice with people with severe intellectual disability. Written by two outstanding academic leaders, it draws together the significant body of research that forms the evidence base for person centred active support. Its unique contribution and thus immense value is the clarity with which this knowledge is translated into a comprehensive guide to every day practice for staff, front line leaders and senior managers. This book is a key source of theory and evidence for students, researchers and policy makers, as well providing practitioners and organisations with a blueprint for action. -- Professor Christine Bigby, LaTrobe University, AustraliaMansell and Beadle-Brown have pulled together, in one place, a readable, practical yet research-based guide to improving supports for people with significant intellectual disabilities. I recommend this concise volume for any service provider or policymaker who supports this population. It is well worth the read. -- Steven M. Eidelman, H. Rodney Sharp Professor of Human Services Policy and Leadership, University of DelawareThis is a really helpful book for anyone wishing not only to understand the place of person centred active support in enabling people with complex support needs to exercise control over their own lives, but to implement it effectively. It is meticulously researched and distils experience gained from implementation really well. -- Bob Tindall, Managing Director, United Response and former Chair and current board member of the Association of Supported Living (ASL)In my 35 years of working with people with a disability I have not come across anything as important as Person-Centred Active Support. It is now at the core of almost all the work that I do. -- Gary Radler, Clinical Psychologist, Positive Behaviour Support Services, AustraliaPerson Centred Active Support has been an essential core element of what we do for more than 10 years; it takes energy and tenacity to implement and maintain but the difference it makes in people's lives makes it very worthwhile. -- Ian McLean, CEO, Golden City Support Services (GCSS), AustraliaTable of ContentsAcknowledgements. Preface. Introduction. 1. Engagement in Meaningful Activity and Relationships. 2. The Enabling Relationship. 3. Organising Staff Support. 4. Practice Leadership. 5. The Organisational Context. 6. Integrating Active Support with Other Person-centred Approaches. Conclusion. Appendix I: Summary of the Levels of Engagement Reported in Available Studies and Additional Analysis of Available Data, with Adaptive Behaviour Scale Part 1 (ABS) Score Where Available. Appendix II: Summary of Data on Engagement and Support from Staff Following Implementation of Active Support. References. Index.
£23.74
Jessica Kingsley Publishers Understanding Pathological Demand Avoidance
Book SynopsisPathological Demand Avoidance Syndrome (PDA) is a developmental disorder that is being increasingly recognised as part of the autism spectrum. The main characteristic is a continued resistance to the ordinary demands of life through strategies of social manipulation, which originates from an anxiety-driven need to be in control.This straightforward guide is written collaboratively by professionals and parents to give a complete overview of PDA. Starting with an exploration into the syndrome, it goes on to answer the immediate questions triggered when a child is first diagnosed, and uses case examples throughout to illustrate the impact of the condition on different areas of the child's life. Early intervention options and workable strategies for managing PDA positively will make day-to-day life easier for the child, their family and peers. New problems faced in the teenage years and how to assist a successful transition from adolescence to adulthood are also tackled. The book concludes with a valuable resources list.Full of helpful guidance and support, this user-friendly introductory handbook is essential reading for families, carers and anyone who knows a child with PDA.Trade Review[This book] written by professionals and parents, it is highly accessible, illustrated by a wealth of case studies and provides practical strategies and approaches covering both the home and school context for managing children with PDA. In terms of addressing the underlying anxiety-driven need of these children, there is a useful section on developing emotional well-being and self-awareness in children with PDA. This book provides a very useful overview and practical resource which all educational psychologists should find helpful -- DebateThis book is a useful addition to the literature available on understanding and managing PDA in children and will be an excellent resource for those working and living with children with PDA on a daily basis. -- Child and Adolescent Mental HealthProfessionals working with children presenting PDA behaviour would be able to use the book as a "bible", since the sub-headings allow access to information quickly and easily... This book offers good guidance, understanding, advice and solutions to parents, teachers and everyone involved with a child presenting PDA. -- Special ChildrenThis book is full of helpful guidance and support for anyone caring for, or working with, children with Pathological Demand Avoidance Syndrome (PDS)... This is a comprehensive, user-friendly introductory handbook that offers practical advice for overcoming difficulties from diagnosis through to adulthood. -- CerebraPathological Demand Avoidance Syndrome, as a sub-group on the autism spectrum, is now recognised, as are the implications for management and support, particularly in education settings. This book is invaluable in helping parents and professionals identify, understand and support this very complex group. -- Dr Jacqui Ashton Smith, Principal, Helen Allison School, National Autistic SocietyTable of ContentsAcknowledgements. Introduction. 1. What is PDA? 2. Positive Everyday Strategies. 3. Living with PDA. 4. Providing the Best Education for a Child with PDA. 5. Developing Emotional Well-being and Self-awareness in Children with PDA. 6. Summing Up and Questions for the Future. Appendix 1: Useful Websites and Links. Appendix 2: Book List. References. Index.
£13.99
University of California Press The Cloak of Competence Revised and Updated
Book SynopsisThis edition bring up-to-date the author's seminal study of mental retardation. Focusing on the role of stigma and the efforts of the mentally handicapped to pass normal lives, the text explores such areas as social competence, independence and quality of life.Table of ContentsACKNOWLEDGMENTS FOR THE REVISED EDITION INTRODUCTION TO THE REVISED EDITION FOREWORD PREFACE 1 The Study and Its Background 2 Detailed Portraits of Selected Persons 3 Some Central Concerns of "Life on the Outs" 4 Passing and Denial: The Problem of Seeming To Be Normal 5 The Benevolent Conspiracy: The Role of the Benefactor 6 Stigma and the Cloak of Competence 7 The Follow-up Studies 8 Conclusion BIBLIOGRAPHY INDEX
£22.95
Scribner Book Company Far from the Tree
Book Synopsis
£21.60
Floris Books The Spirit of Camphill: Birth of a Movement
Book SynopsisFleeing from Nazi Europe in the late 1930s, Austrian-born Karl König and his colleagues founded the first Camphill community, for children with special needs, outside Aberdeen in the north of Scotland. The seven essays by König in this book explain the principles behind what would grow to become a worldwide movement.The insights in this book reveal the inner motivations that drove König and his team to persevere with their social project, and help modern-day readers to understand how they succeeded in building a network that now numbers over one hundred communities in twenty countries around the world.Includes extensive diary excerpts, documents and photographs from the Karl König Archive.Trade Review'We are not only looking into an historical archive but have here a book which aims to clarify the present through the past and into the future... [the book] offers inspiration to take up the baton and continue the legacy of Konig's three-star personalities, of Steiner and Konig himself to decide for the positive when surrounded by negativity, to create good out of tragedy and to have faith in one's ideals.'-- New View
£13.49
Lexington Books The Bioethics of Enhancement
Book SynopsisIn a critical intervention into the bioethics debate over human enhancement, philosopher Melinda Hall tackles the claim that the expansion and development of human capacities is a moral obligation. Hall draws on French philosopher Michel Foucault to reveal and challenge the ways disability is central to the conversation. The Bioethics of Enhancement includes a close reading and analysis of the last century of enhancement thinking and contemporary transhumanist thinkers, the strongest promoters of the obligation to pursue enhancement technology. With specific attention to the work of bioethicists Nick Bostrom and Julian Savulescu, the book challenges the rhetoric and strategies of enhancement thinking. These include the desire to transcend the body and decide who should live in future generations through emerging technologies such as genetic selection. Hall provides new analyses rethinking both the philosophy of enhancement and disability, arguing that enhancement should be a matter of Trade ReviewIn The Bioethics of Enhancement, Melinda Hall powerfully argues that disability underpins debates over genetic enhancement, and in turn these debates anchor contemporary bioethics, making disability, and questions over which lives are worth living, the fulcrum of bioethics. Bringing Michel Foucault’s notion of biopower to bear on the transhumanist discourses of Julian Savulescu and Nick Bostrom (among others) this book is a game changer, and a must read for anyone interested in enhancement literature, disability studies, or bioethics more generally. -- Kelly Oliver, W. Alton Jones Professor of Philosophy, Vanderbilt UniversityMelinda Hall’s The Bioethics of Enhancement: Transhumanism, Disability, and Biopolitics is both a unique contribution to philosophy of disability and a bold intervention into philosophical bioethics. It is also an important addition to the growing body of work that uses Foucault to interrogate the role that academic philosophy and bioethics play in the subordination of disabled people. The innovative arguments that Hall persuasively advances throughout the book demonstrate the prescience of Foucault’s insights and the relevance of his claims for critical philosophical analyses of disability, as well as show how critical scholarship on disability can expand our understanding of Foucault’s oeuvre. -- Shelley Tremain, editor of Foucault and the Government of DisabilityTable of ContentsIntroduction: Enhancement, Disability, and Biopolitics Chapter 1: Dragon Slayers: Exploring Transhumanism Chapter 2: Rethinking Disability: Dodging Definitions, Muddying Models Chapter 3: Rethinking Enhancement: A Genealogical Approach Chapter 4: Choosing, For Choice’s Sake: A Case Study Chapter 5: Disability as/at Risk: The Biopolitics of Disability Conclusion: Rethinking the Future
£32.40
Australian Council for Educational Research (ACER) Children of Parents with Mental Illness
Book SynopsisA groundbreaking book based on research carried out in Australia by the author on the needs of children whose parents experience periods of mental illness. Other profesional contributors encompass areas such as the effects of mental illness on children; service provision for children and their parents; foster care and child protection.
£28.46
Jessica Kingsley Publishers Letters to the Home Front: Positive Thoughts and
Book SynopsisBringing up a child with developmental disabilities, especially autism, presents many challenges for parents, and the focus of attention is almost invariably on the child. This practical and compassionate book looks at a range of issues from the parents' point of view - from whether their child really loves them, to challenging received wisdom on matters such as sensory integration and boarding school. The author's many decades of experience of working with families provide the basis for this practical support and help in thinking about and approaching some of the most difficult and intractable issues.One, often unvoiced, concern for parents is whether their children love or care about them. The first section of the book consists of three letters from young people to their parents, showing clearly that though they may never have been able to say so directly, they do love and appreciate their parents, and what they have done for them - a strong message for all parents in a similar situation. Clements goes on to look at how the parenting agenda changes over time, how to see beyond the diagnoses and the constant need to deal with immediate problems, to see the real people who make up the family, the impact on siblings, how to manage the system and the multiple professional agencies over long periods of time, and how to think about the offer of medication to control behaviour. An important section addresses some of the most distressing behavioural challenges: physical aggression, verbal abuse, long-term severe self-injury, property damage, and obsessions. Finally, Clements offers objective and open-minded reflections on received wisdom about two other unchallenged topics - sensory integration, and the usefulness or otherwise of boarding schools. The book is practical, compassionate, and above all, useful. It will be of ongoing use to parents, and equally useful to professionals working with families encountering the issues covered.Trade ReviewEmpowering, hard-hitting, honest. Letters to the Home Front offers parents bringing up children with developmental/intellectual disabilities invaluable insights, practical strategies- a wealth of information and wisdom. The author John Clements also puts forward a down to earth and realistic view of the situations many families and individuals find themselves in and with regard to accessing and receiving services from multi-disciplinary providers. Truly a book to reflect on from a multi-dimensional perspective. -- Sue Telkamp, mother of a young man diagnosed with ASDJohn Clements has been a very popular and successful professional who has helped parents and caregivers over the past four decades to better understand and remediate behavioral challenges in children with ASD. This book presents a helpful, interesting and easy to read summary of this work. The format involving a series of letters between him and various constituents makes for fascinating reading and adds a note of reality. This is a pragmatic book that parents and professionals will enjoy reading and greatly appreciate because it fills many of the gaps in our understanding of ASD and how to work more successfully with these individuals on day-to-day concerns in the home, the classroom, and the community. -- Dr Gary Mesibov, Professor Emeritus of Psychology, Departments of Psychiatry and Psychology, University of North CarolinaIn this extremely accessible book, John Clements draws on his extensive knowledge of the problems that families of children with autism and other conditions may face, to offer much needed advice. In “user-friendly” letters, he neither preaches nor judges, but discusses in un-sensationalist terms just what those problems may involve and some of the ways that they may be tackled. His compassion and empathy are clearly evident in his approach, and, although he makes it clear that there are no magic answers, I feel sure that many families will find his words very comforting and of immense practical help. -- Jane Asher, President of the National Autistic SocietyTable of ContentsAcknowledgements. Introduction. Preview. Letters Home: 1. Letters to My Family. Three young people on the autistic spectrum reflect on their growing up. A. Dean's Letter. B. Hannah's Thoughts. C. Alex's Letter. Letters Home: 2. Dear All. Considering some general topics and decisions that come up in the parenting process. A. The Road Ahead. Looking at how the parenting agenda changes over time. B. Who are you? Reflecting on how to see real people in the midst of significant and widespread differences in abilities and the diagnostic labels that often accompany these differences. C. Brothers and Sisters. Considering the impact on siblings of growing up with a brother or sister who has significant developmental disabilities. D. Managing the System. Thoughts about dealing with the challenges that arise for parents having to deal with multiple professional agencies over long periods of time. E. Got Behaviour – Get Drugs? A guide to help parents think through the issues that arise when they are offered medication to help control their son or daughter's behaviour. Letters Home: 3. Thinking About Some of the Behavioural Challenges Presented by Children and Young People on the Autistic Spectrum. A. Charlene. 'Obsessions'. B. Marcus. Physical aggression. C. Tyrone. Verbal abuse, physical aggression, property damage. D. Charlie…conversations that you never want to have. A danger to himself and others. E. Rudy…the long haul. Long term severe self-injury and physical aggression. Section Comments. Letters Home: 4. Idol Speculations. An attempt to show how to challenge in a constructive way 'received wisdom' that is passed to parents as statements of fact. A. Sensory Integration – brain changer or licence to twiddle? B. Boarding schools – a solution for difficult problems or a British disease? A Few Last Thoughts. Appendix 1: Constructive Behavioural Support – Service Evaluation Guide. Index.
£10.99
Jessica Kingsley Publishers Autism Spectrum Disorder in Mid and Later Life
Book SynopsisBringing together international academics and professionals who are actively researching and working in the field, this pioneering scholarly volume covers the issues faced by individuals with Autism Spectrum Disorder(ASD) in mid and later life.Including a range of personal, academic and clinical perspectives, the book considers historical and contemporary perspectives on autism, including diagnosis, developmental outcomes and life course issues. Attention is given to medical, care and psychological issues that arise as people with ASD age, such as declining cognitive function and speech and communication issues. Family, community support, housing, advocacy, and socio-cultural considerations for older adults with ASD are also given careful consideration, and there are chapters on relationship and sexuality issues and on environmental design.Trade ReviewThis new textbook provides an important introduction to the broad range of issues faced by mid- and later-life adults with an autism spectrum disorder. It links the personal experiences of affected individuals and their families with the perspectives of researchers from genetics and psychology through policy. Many of the chapters acknowledge that, unfortunately, we are only at the start of research efforts to understand the challenges faced by this aging population. Nevertheless Scott Wright has produced the first comprehensive textbook on this topic and it will undoubtedly frame this critical conversation going forward. -- Joseph Piven M.D., Thomas E. Castelloe Distinguished Professor of Psychiatry, Pediatrics and Psychology, Director, Carolina Institute for Developmental Disabilities, University of North Carolina at Chapel HillThere is a significant lack of knowledge about adults, particularly older adults, with autism. This book, on the challenges and promises of autism in later life, sets out to redress this situation, with contributions from individuals with autism, parents, clinicians and researchers from many disciplines. It focuses not just on the difficulties of growing older, but also on positive ways in which the future for older individuals with autism can be improved. It should be essential reading for anyone involved with adults with autism, and for those seeking to improve the transition from childhood to adult life. -- Patricia Howlin, Emeritus Professor of Clinical Child Psychology, King’s College, London; Professor of Developmental Disorders, University of SydneyThis is an important book on an essential topic... Scott Wright has managed to gather together a wonderful array of perspectives: cultural as well as biological; self-advocacy alongside clinical and research voices; family, community and societal viewpoints... This volume is a vital first step towards a better future for people with ASD growing old. -- from the foreword by Professor Francesca HappéTable of ContentsIntroduction. Scott D. Wright and Amy Maida Wadsworth, University of Utah, United States. Part I: Overview. 1. Adults with Autism Spectrum Disorders: Past, Present, and Future. William McMahon, Department of Psychiatry, University of Utah School of Medicine, United States, Kristina Cottle, University of Utah, United States, and Megan Farley, Waisman Center, University of Wisconsin-Madison, United States. Part II: Biosystem. 2. Genetic, Epigenetic, and Environmental Issues. Hilary Coon, Department of Psychiatry, University of Utah School of Medicine, United States, Christopher Gregg, University of Utah School of Medicine, United States, and Amanda Bakian, Department of Psychiatry, University of Utah School of Medicine, United States. Part III: Chronosystem - Historical, Contemporary, and Personal Perspectives on Aging with Autism Spectrum Disorder. 3. Ability Improves with Age. Temple Grandin, Colorado State University, United States. 4. Laying the Groundwork: How to Honor Autistic Essence Toward the Betterment of Society. Judy Endow, Common Threads Family Resource Center, United States. 5. Ageing with Autism: Improving Health, Improving Rights. Michael Baron, National Autistic Society, United Kingdom, and Saskia Baron, United Kingdom. 6. Aging and Autism Spectrum Disorders: Experiential and Social Perspectives. Digby Tantam, Fellow of the Royal College of Psychiatrists, United Kingdom. Part IV: The Person - Aging and the Aging Individual. 7. Ageing in People with ASD: Liaison Old Age Psychiatry Perspective. Elizabeta Mukaetova-Ladinska, Institute of Neuroscience, Newcastle University, United Kingdom, and Mick Coppock, Tyne and Wear NHS Foundation Trust, United Kingdom. 8. Challenges for Speech-Language Pathologists Working with Older Adults with Autism. Pamela A. Smith, Bloomsburg University, United States. 9. Autism and Age-related Cognitive Decline. Hilde Geurts, d'Arc (Dutch Autism & ADHD research center), University of Amsterdam, the Netherlands. 10. Diagnosis and Assessment of Autism in Later Life. Bas van Alphen, Free University of Brussels, Belgium, R. C. Oude Voshaar, University Medical Center Groningen, the Netherlands, and Sylvia Heijnen, Mondriaan Mental Hospital, Department of Old Age Psychiatry, Heerlen-Maastricht, the Netherlands. 11. Clear Sailing: Aging Optimally on the Autism Spectrum. Bruce Parsons, Clinical Psychologist, United States. 12. Psychotherapy with Older Adults on the Autism Spectrum. Valerie Gaus,Private Practice, United States. 13. Ageing and Psychological Functioning in Autism Spectrum Disorder. Amanda Roestorf, Department of Psychology, City University London, United Kingdom, and Dermot Bowler, City University London, United Kingdom. Part V: Microsystem - Aging and Dyadic and Family Issues. 14. The Pursuit of Happiness: Older Parents' Views on Inclusion for their Adult Son or Daughter with Autism. Monique Hines, University of Sydney, Australia, and Susan Balandin, Deakin University, Australia. 15. It Takes a Village: Communication and Management in Caretaking for Adults with Autism. Ben DiCicco-Bloom, Department of Sociology, Hamilton College, United States. 16. Sexual Wellbeing and Relationships in Adults with Autism Spectrum Disorder. Shana Nichols, ASPIRE Center for Learning and Development, United States, and Sandra Byers, Department of Psychology, University of New Brunswick, Canada. Part VI: The Mesosystem - Community Issues. 17. Aging Out and Aging Forward into the Community: Looking Ahead into the Journey of Growing Older with Autism. Denise D. Resnik, Southwest Autism Research & Resource Center, United States. 18. Design Empathy for Autism in Adulthood and Aging. A.J. Paron-Wildes, American Society of Interior Designers (ASID), United States. 19. How Can We Learn More About the Lives of Aging Adults on the Autism Spectrum and their Relatives? Jeremy Parr, Newcastle University, United Kingdom. 20. Housing is the Hub of the Wheel. Gregory and JaLynn Prince, Madison House Autism Foundation, United States. 21. Community Support Needs of Adults with Autism. Valerie D'Astous, Karen Glaser, and Karen Lowton, Institute of Gerontology, King's College London, United Kingdom. 22. Psychosocial Interventions and Community-Based Services for Adults with Autism in the United States: Understanding What We Know Now and Charting a Course for the Future. Lauren Bishop Fitzpatrick, University of Wisconsin-Madison, United States. Part VII: The Macrosystem - The Aging Experience and Social Policy-Advocacy. 23. Autism and Aging: Epidemiology and Demographics. Terry Brugha, Department of Health Sciences, University of Leicester, United Kingdom. 24. Listen to the Experts: Autistic Adults Tell us What They Need. Carol Povey, Centre for Autism, National Autistic Society, United Kingdom,and Cos Michael, Autism Age, United Kingdom. 25. Through the Glass Wall: A Voice for Autism Advocacy and Social Policy. Robert MacBean, National Autistic Society Scotland, United Kingdom, and Stella Macdonald, Fife Council, United Kingdom. Part VIII: The Chronosystem Revisited - Future Directions. 26. Aging and ASD: Future Directions. Peter Gerhardt and Angela Rodriguez, The EPIC School, United States. 27. Current and Future Perspectives: How Do We Measure Up? Valerie Paradiz, Autistic Global Initiative, United States, and Xenia Grant, Global Regional Asperger Syndrome Partnership (GRASP), United States. 28. Quality of Life Outcomes of Aging Adults with Autism and their Families. Elizabeth A. Perkins, Florida Center for Inclusive Communities, University of South Florida, United States. Summary. List of Contributors. Index.
£42.46
Jessica Kingsley Publishers Group Homes for People with Intellectual
Book SynopsisGroup homes are the dominant form of residential accommodation for people with severe learning or intellectual disabilities, and yet there are significant problems within these living environments. This book seeks to highlight the key issues for both residents and staff, and offers practical suggestions for improving community living.Based on original empirical research and drawing on extensive field notes, the book paints a picture of life in group homes today. The authors propose a framework for increasing community presence and participation, and consider the barriers to be overcome if progress is to be made in achieving these key goals. The notion of 'homeliness', the challenge of maintaining a balance between individual and group needs and the concept of practice leadership are all explored. Group Homes for People with Intellectual Disabilities is essential reading for anyone working with people with learning or intellectual disabilities in residential services, as well as academics and students of disability studies, social work and health and social care programmes.Trade ReviewThis highly readable book provides a balanced and thoughtful analysis of the complex dynamics involved in providing homes for people with intellectual disabilities. -- British Journal of Social WorkClements and Bigby have written a well organised and highly readable book that draws together pertinent literature and their own considerable insight and research. In focusing attention on the heterogeneity of disability, they question generic disability policy rhetoric and confront the reader with the barriers and challenges inherent in policy implementation for people who have severe and profound intellectual disabilities living in group homes. -- Australian Social WorkI will say no more other than please read this excellent book. -- British Journal of Learning DisabilitiesThis book needs to be read by everyone interested in improving services for people with learning disabilities so that the great ideals of Valuing People and Valuing People Now can be realised. It takes seriously the very real challenges of making community presence and participation meaningful for people with higher support needs and seeks to translate high-flown rhetoric into practical advice for service-providing organizations, group home managers and workers in residential services. -- British Journal of Learning DisabilitiesThe book is easy to read, well-structured and provides a clear and sometimes saddening insight into the lives of people with severe and profound intellectual disabilities. However the overall message is one of hope and suggests realistic and achievable changes that can be made at all levels of service provision. -- The British Journal of Developmental Disabilities, Ewan CullingThis book can appeal to a wide range of readers... Throughout the book they use a wealth of field notes and excerpts from interviews with staff that help to illustrate their arguments and will resonate with the reader's own experiences in services. In addition, at the end of each chapter there is a list of important topics and questions for further consideration. The book is also an excellent source of information for students and researchers of learning disability services, because each chapter provides a review of the literature and research relevant to the topic. -- Tizard Learning Disability ReviewTable of ContentsForeword. 1. Introduction. 2. Living and Working in Group Homes. 3. Homeliness. 4. Planning and Action for Individualised Outcomes. 5. Participating in Your Own Home. 6. Building Inclusive Communities. 7. Practice Leadership. 8 The Organisational Context. 9. Final Thoughts. References. Index
£27.99
Duke University Press Crip Spacetime
Book SynopsisIn Crip Spacetime, Margaret Price intervenes in the competitive, productivity-focused realm of academia by sharing the everyday experiences of disabled academics. Drawing on more than three hundred interviews and survey responses, Price demonstrates that individual accommodations-the primary way universities address accessibility-actually impede access rather than enhance it. She argues that the pains and injustices encountered by academia's disabled workers result in their living and working in realities different from nondisabled colleagues: a unique experience of space, time, and being that Price theorizes as crip spacetime. She explores how disability factors into the exclusionary practices found in universities, with multiply marginalized academics facing the greatest harms. Highlighting the knowledge that disabled academics already possess about how to achieve sustainable forms of access, Price boldly calls for the university to move away from individualized models of accommodation and toward a new system of collective accountability and care.
£18.89
Oxford University Press Inc The Invented State
Book SynopsisIn The Invented State, Emily Thorson argues that a problematic and understudied aspect of political misinformation reflects widespread public misperception about what the government does. Because much of public policy is invisible to the public, there is fertile ground for false beliefs to flourish, leading to the creation of what Thorson terms the invented state: systematic misperceptions about public policy. However, people get the facts wrong not because they are lazy, stupid, or blinded by partisan loyalty. Rather, misperceptions are created when three conditions are met: when citizens have incomplete information about an issue, when their own biases color their understanding of it, and when they feel that the issue is important. In other words, the invented state is created not just by exposure to explicit misinformation, but also by individuals'' cognitive errors. Correcting these policy misperceptions is highly effective at reducing false beliefs. In addition, providing people w
£18.99
University of California Press An Ordinary Future
Book SynopsisThis vivid portrait of contemporary parenting blends memoir and cultural analysis to explore evolving ideas of disability and human difference. An Ordinary Future is a deeply moving work that weaves an account of Margaret Mead's path to disability rights activism with one anthropologist's experience as the parent of a child with Down syndrome. With this book, Thomas W. Pearson confronts the dominant ideas, disturbing contradictions, and dramatic transformations that have shaped our perspectives on disability over the last century. Pearson examines his family's story through the lens of Mead's evolving relationship to disabilitya topic once so stigmatized that she advised Erik Erikson to institutionalize his son, born with Down syndrome in 1944. Over the course of her career, Mead would become an advocate for disability rights and call on anthropology to embrace a wider understanding of humanity that values diverse bodies and minds. Powerful and personal, An Ordinary Future reveals why this call is still relevant in the ongoing fight for disability justice and inclusion, while shedding light on the history of Down syndrome and how we raise children born different.Trade Review"[A] moving meditation on difference, disability, and humanity. In 2015, when his newborn daughter, Michaela, was diagnosed with Down syndrome, [Pearson] and his wife were shocked. Soon, though, he asked himself whether that initial response was generated by ideas about normalcy deeply embedded in the culture. . . . Sensitive reflections on human value." * Kirkus Reviews *"In a new book, an anthropologist and father of three, including a daughter with Down syndrome, reflects on the pressures of parenting." * Sapiens *Table of ContentsContents Preface 1. Becoming 2. Features 3. Institutions 4. Potential 5. Belonging 1 6. Vulnerability Epilogue Acknowledgments Notes Bibliography Index
£21.60
Hot Key Books The Vanishing of Margaret Small
Book Synopsis'An evocative, endearing, entertaining and thoroughly delicious character portrait and a terrific first novel' - Donal MacIntyre, TV presenter'A tender, thought-provoking and totally gripping novel from a wonderful storyteller...deserves to be a huge hit!' - Matt Cain, author of The Secret Life of Albert EntwistleMeet Margaret Small: 75, plain spoken, Whitstable native and a Cilla Black super fan. Shortly after the death of her idol, Margaret begins receiving sums of money in the post, signed simply 'C'.She is convinced it must be Cilla, but how can it be? To solve the mystery of her benefactor Margaret must go back in her memories almost 70 years, to the time when she was 'vanished' to a long-stay institution for children with learning disabilities.An absorbing and page-turning mystery with a dual timeline, The Vanishing of Margaret Small takes readers into a fascinating past, and introduces an unforgettable literary heroine.Perfect for fans of Libby Page and Gail Honeyman.Praise for The Vanishing of Margaret Small:'A captivating and charming story' - Imogen Clark'Funny, sad and uplifting all at once' - Frances Quinn'A beautiful story of human spirit and its power to thrive against the odds' - Anstey Harris'A fantastic, feel-good story . . . rich in nostalgia and a joy to read' - Matson Taylor'Beautifully observed and poignant. An outstanding debut.' Alex Brown'Compelling and authentic . . . Margaret's story is quiet but her voice is mighty' - Julietta Henderson
£8.99
Routledge How Does Disability Performance Travel
Book Synopsis
£40.84
Baylor University Press Autism and Worship
Book SynopsisOffers an in-depth analysis of the absence and ignoring of, but also the presence of, autistic people in worship. Armand Leon Van Ommen recounts the experiences of autistic people and considers how those experiences might reframe liturgical theology and the worship practices of the church.Table of Contents Foreword Acknowledgments Introduction Starting the Conversation on Autism and Worship 1. Setting the Scene: Language, Autism Theology, and Autistic Experiences of Worship 2. How Autism Came to Be: The Problem of "Autism Is..." 3. The Tyranny of the Normal: Exposing the Cause of Absence and Ignoring 4. Presence and Participation: Toward a Theology of Availability 5. A Temple Community: A Liturgical-Theological Redrawing of "Normal" 6. Availability in Practice: Autistic Worship in Singapore Conclusion: A Church That "Gets You"
£35.06
Springer Publishing Co Inc The Psychological and Social Impact of Chronic
Book SynopsisReflects the most significant and fundamental shifts in the experience of disability in human historyWith the release of its eighth edition, this bestselling text remains the most comprehensive and current text addressing the psychological and social issues dealt with by persons with disabilities. The new edition is almost completely rewritten and expanded by expert voices in disability and rehabilitation policy, research, and lived experience. It presents many new chapters covering topics such as disability identity, the impact of US laws and policies, the impact of micro-aggressions and discrimination, applications of well-being and positive psychology, and mental health implications of social media usage for people with disabilities. The eighth edition also includes new Personal Perspectives from individuals with various disabilities.The text provides an informed, critical, and engaging exploration of the impact of chronic illness and disab
£77.39
Baker Publishing Group My Body Is Not a Prayer Request – Disability
Book SynopsisMidwest Book Review 2023 Silver Book Award (Nonfiction - Religion/Philosophy) "A convincing case for all Christians to do more to meet access needs and embrace disabilities as part of God's kingdom. . . . Inclusivity-minded Christians will cheer the lessons laid out here."--Publishers Weekly "A book the church desperately needs."--Sojourners Much of the church has forgotten that we worship a disabled God whose wounds survived resurrection, says Amy Kenny. It is time for the church to start treating disabled people as full members of the body of Christ who have much more to offer than a miraculous cure narrative and to learn from their embodied experiences. Written by a disabled Christian, this book shows that the church is missing out on the prophetic witness and blessing of disability. Kenny reflects on her experiences inside the church to expose unintentional ableism and cast a new vision for Christian communities to engage disability justice. She shows that until we cultivate church spaces where people with disabilities can fully belong, flourish, and lead, we are not valuing the diverse members of the body of Christ. Offering a unique blend of personal storytelling, fresh and compelling writing, biblical exegesis, and practical application, this book invites readers to participate in disability justice and create a more inclusive community in church and parachurch spaces. Engaging content such as reflection questions and top-ten lists are included.Table of ContentsContentsA Note on LanguagePreface1. Disability CurativesTop Ten Recommended Remedies2. Disability DiscriminationTop Ten "At Leasts" 3. Disability DoubtersTop Ten Disability Denials4. Disability JusticeTop Ten Reasons I'm Disabled5. Disability BlessingsTop Ten "I Know How You Feels" 6. Disability MosquitosTop Ten Mosquito Swatters7. Disability LessonsTop Ten Disability Icebreakers8. Disabled FoundationsTop Ten Disability Accolades9. Disabled GodTop Ten Disability Theologies10. Disabled ChurchTop Ten Disability DreamsBenecription for Nondisabled PeopleBenecription for Disabled PeopleFurther Reading
£12.59
University of Minnesota Press Eco Soma: Pain and Joy in Speculative Performance
Book SynopsisModeling a disability culture perspective on performance practice toward socially just futures In Eco Soma, Petra Kuppers asks readers to be alert to their own embodied responses to art practice and to pay attention to themselves as active participants in a shared sociocultural world. Reading contemporary performance encounters and artful engagements, this book models a disability culture sensitivity to living in a shared world, oriented toward more socially just futures.Eco soma methods mix and merge realities on the edges of lived experience and site-specific performance. Kuppers invites us to become moths, sprout gills, listen to our heart’s drum, and take starships into crip time. And fantasy is central to these engagements: feeling/sensing monsters, catastrophes, golden lines, heartbeats, injured sharks, dotted salamanders, kissing mammoths, and more. Kuppers illuminates ecopoetic disability culture perspectives, contending that disabled people and their co-conspirators make art to live in a changing world, in contact with feminist, queer, trans, racialized, and Indigenous art projects. By offering new ways to think, frame, and feel “environments,” Kuppers focuses on art-based methods of envisioning change and argues that disability can offer imaginative ways toward living well and with agency in change, unrest, and challenge.Traditional somatics teach us how to fine-tune our introspective senses and to open up the world of our own bodies, while eco soma methods extend that attention toward the creative possibilities of the reach between self, others, and the land. Eco Soma proposes an art/life method of sensory tuning to the inside and the outside simultaneously, a method that allows for a wider opening toward ethical cohabitation with human and more-than-human others.Trade Review "Petra Kuppers breathes us through connections between embodiment and the earth, weaving queer studies and disability studies into self-guided explorations. Her imagistic text evokes dancing—the pull of gravity and the shifting perspectives of bodies in flow. She moves, she writes, we respond to her autobiographical narratives of environmental spaces and social places."—Anita Gonzalez, Georgetown University (cofounder of Georgetown University’s Racial Justice Institute) "There is absolutely nothing like Eco Soma in any field. Petra Kuppers provides a much-needed model for what interdisciplinary arts-based research can be, and her work is always put into the context of the lived reality of minoritized communities. She shows us how to write about bodies as she does—unflinchingly, while maintaining respect and dignity."—Carrie Sandahl, director, Program on Disability Art, Culture, and Humanities, University of Illinois at Chicago "Petra Kuppers’s grounded and reflective investigation encourages generative dialogue within and beyond disability performance studies. Sharing many vivid examples drawn from diverse community scales and sites, her eco soma method both illuminates and prompts creative reimaginings of relations between self, land, other humans, and more-than-humans. Answering the urgent call for multidisciplinary work to address climate catastrophe, she reveals the profound power of art-based methods to engage the body, forge connection, and enact change."—Kirsty Johnston, University of British Columbia (located on the traditional, ancestral, and unceded territories of the Musqueam (xʷməθkʷəy̓əm) people) "Kuppers's spectral disability approach makes this book an ideal companion for revising older canons and theories, through embodied encounters with activist community performance... The labour of reading this layered and performative text generates new research trajectories through realms of sense, affect, and relation."—Research in Drama Education "Kuppers animates the concepts of disability culture with unexplored ways of witnessing performances through uncertain being and identifying. The fundamental questions Kuppers gently invites the readers to explore about their own encounters and identifications with the human, nonhuman and fantastic worlds are especially important for a world grappling with the continued realities of a global pandemic, of reassessing one’s place and purpose, privileges and uncertainties."—Synapsis "Engaging with the intersection of the self and the environment in the wide array of well-chosen performances it analyses, Petra Kuppers’s Eco Soma substantially invites a rethinking of material enmeshments embodied in the self that is marked by various agencies—be they geographical, historical, or cultural."—Ecocene "Relevant and grounding."—Wordgathering "The text models a form of inquiry, inviting the reader to take a journey through the author’s collection of embodied performance witnessing and become aware of how one encounters the world through the discovery of involved witnessing."—Synapsis Journal "Eco Soma reads like a historical recipe for imagined futures, one that invites you to add a pinch of your favorite spice to make it smell of home and taste like possibility."—Research in Arts and Education "Kuppers’s book puts forward appropriate ways for diverse bodyminds to access the spaciousness as well as the peacefulness of being with nature, subsequently offering revolutionary ways of thinking about complex embodiment and issues of belonging and accessibility in cultural work."—Journal of Literary & Cultural Disability Studies "Petra Kuppers moves in a refreshing worldscape of academic writing. In the introduction to Eco Soma, I am invited into her private space, her own study, her nest on the ground. From here, she takes me by the hand and guides me through stories and reflections from her personal and artistic life and practice as an academic, mover, facilitator and performance witness."—Journal of Dance and Somatic Practices Table of ContentsContentsPreface: From Ecosomatics to Eco Soma1. Social Somatics: Tentacular Methods on the Horizon2. Edges of Water and Land: Indigenous/Settler Eco Soma Collaborations3. Un/Bounding: Writing Water Worlds4. Crip Time, Rhythms, and Slow Rays: Speculative EmbodimentCoda: OraclesAcknowledgmentsBibliographyIndex
£21.59
