Terminal care nursing Books

Book SynopsisChristopher Kerr is a hospice doctor. All of his patients die. Yet he has tended thousands of patients who, in the face of death, speak of love, meaning and grace. They reveal that there is hope beyond cure as they transition to focus on personal meaning. In this extraordinary and beautiful book, Dr. Kerr shares his patients' stories and his own research pointing to death as not purely the end of life, but as a final passage of humanity and transcendence.Drawing on interviews with over 1,200 patients and more than a decade of quantified data , Dr. Kerr reveals why pre-death dreams and visions are remarkable events that bring comfort and exemplify human resilience. These are not regular dreams. Described as "more real than real," they frequently include loved ones long gone and mark the transition from distress to acceptance. These end-of-life experiences help patients restore meaning, make sense of the dying process and assist in reclaiming it as an experience in which they have a say. They also benefit the bereaved who get relief from seeing their loved ones pass with a sense of calm closure.Beautifully written with astonishing stories, this book, at its heart, celebrates the power to reclaim how we die, while soothing the bereaved who witness their loved ones go with unqualified grace.Trade ReviewThis comforting guide will reassure the dying and their loved ones while providing instructive portraits of end-of-life patients for those who work in medical and healing professions * Publisher's Weekly *Whether you have a loved one nearing the end, or are contemplating what may lie beyond this life, you'll find that Dr Kerr's book brings meaning and even beauty to our final stage. I recommend it highly for anyone with a finite lifespan * Dale Bredesen, MD *Based on deep experience, this loving, emotionally wise book will help many people find the path to love, acceptance and meaning as they face life's end * Katy Butler *This reality is shared with us by a hospice physician who, himself, learned so much from the dying. And what did he learn? That by being truly present with those who are dying, one learns how to live * James Doty, MD *A beautiful portrait of the human capacity for transcendence at the end of life. This book will inspire you reflect on the love and meaning you have experienced in your own life, and help you listen to, and be with, those nearing the end of their lives * Kelly McGonigal, PhD *[A] sympathetic and intriguing book. [Death is But a Dream is] an uplifting and reassuring work testifying to the deep restorative and spiritual - though not necessarily religious - nature of pre-death visions * Kirkus Reviews *

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Book SynopsisBy bridging the gap between conventional medical interventions and complementary approaches using aromatherapy, palliative care nurse and clinical aromatherapist, Carol Rose, demonstrates how an integrated and evidence-based approach can have the most significant impact on quality-of-life in patients with life-limiting illness.Aromatherapy is already a fundamental practice in many palliative care settings but its benefits remain under-researched and under-represented. Each chapter of this book incorporates a person-centred focus to consider the integration of various aromatherapy approaches for a range of end-of-life symptoms, alongside conventional medical options. The specificity of this approach and the emphasis of empowering patients to be involved in the process of choosing oils and applications, allows for improved results in the palliation of common symptoms.Integrating Clinical Aromatherapy in Palliative Care has a foundation in research from the patient's point of view. The result is a fresh perspective that prioritises support of patient choices, skilful communication and individualised care, alongside the judicious use of essential oils and other botanical products. Collectively, aromatherapy can completely reframe holistic care to allow for greater emotional, social and spiritual expression.Trade ReviewThe most authoritative text to date for the specialist aromatherapy world...a detailed, empathetic and dedicated path that stems from a place of rich experience, knowledge and the unwavering determination to keep the patient at the heart of every therapeutic encounter. -- Rhiannon Lewis, International Journal of Clinical AromatherapyCarol Rose carefully constellates within these pages a vital resource of clinical wisdom and compassionate expertise in aromatic palliative care. This labour of love - in terms of both practice and scholarship - is a professional object lesson in contemporary clinical aromatherapy, and will enrich and empower the aromatherapy student and clinical practitioner alike. Unreservedly recommended! -- Gabriel Mojay, Institute of Traditional Herbal Medicine and AromatherapyThis holistic, integrative resource needs to be read by every palliative care clinician. Truly inspiring. -- Jenny Coleman RN, cancer support nurse specialistCarol Rose draws on her extensive clinical experience to create a bridge between research and its applications, while keeping the individual's unique narrative at the core of all aromatherapeutic interventions. This beautifully written book transcends symptom management in the clinical domain, and it is grounded in an uncompromisingly holistic philosophy, evident in the inspiring case studies. This book will empower those experiencing cancer and terminal illness, and also their families, loved ones and caregivers, at all stages of their journey and beyond - but most importantly, Carol Rose's words will touch your heart. -- Jennifer Peace Rhind, writer, author and essential oils consultant

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Book SynopsisIn June 2000 Peter Houghton, a counselor in palliative care, was weeks from death due to cardiomyopathy. He had made his preparations and had said most of his good-byes. Then he was offered the chance to participate in a clinical trial. Six months later he was not only still alive, but planning a long distance walk for charity and writing this book about his experiences.With humor and honesty, his story chronicles the uneven path back from the brink of death. Combining knowledge drawn from his counseling work with other dying people and his unique personal experience, he describes what dying really feels like and explains the physical processes it involves. He also raises profound questions about medical trials and palliative care, and especially about our attitudes to life and death, and the way we approach death.Trade ReviewDrawing upon his extensive professional experience as a counselor in palliative care, Houghton raises many profound questions in each of the areas he discusses, and is not afraid to admit his own previous misconceptions…this is a book that contributes significantly to our knowledge of the natural dying process. -- Journal of Beliefs and ValuesTo me, the strength of the book was about its ability to refocus and question the care provided, as a recipient rather than a provider. This presented me with some thought-provoking questioning and reasoning induced in my own reflective practice. -- British Journal of Occupational TherapyPeter Houghton gives us an education on the process of dying and death itself. He witnesses dying and death from the outside as a counselor in palliative care and observing those who were dying, their death and their carers. He then through his own seemingly terminal illness, experienced the process first hand, to the point of death. Then as a participant in a new clinical trial he was given a return to life.With humour and honesty he relays his own bumpy path on moving towards death and back from the brink, together with his counseling work with other peoples' dying processes. He gives an in-depth picture of the physical deterioration processes of the body and resultant physical pain leading to death, also detailing the medical processes involved. Equally well described is what it feels like: the psychological processes and emotional pain, through the stages of denial, anger and hopelessness to acceptance and transformation. -- Towards WholenessWith great honesty, sensitivity and humor Peter Houghton has chronicled and reflected upon his physical, mental and spiritual journey, which was far from being without set backs and deep self-questioning... This is a deep and challenging book and offers a rewarding read. -- PlusPeter Houghton had been a counselor in palliative care, Then he experienced what appeared to be a mild heart attack but which turned out to be cardiomyopathy, a chronic disorder affecting the muscle of the heart. Although drugs could control his condition to some extent, slowly, imperceptibly, it worsened until he was weeks from death. At the 11th hour, a doctor friend read a notice of a clinical trial of the Jarvik Heart Assist Device for end stage cardiomyopathy patients, which led to a pioneering operation to install a pump to take over the failing left ventricle of Peter's heart. I was eager to read Peter's resulting book because of the probably unique set of experiences he brought to the writing of it. Not only had he no doubt derived many insights from working for many years with dying patients but also he had actually experienced the final stages of dying himself-yet was able to report back on that experience. As someone who has cared for a dying relative and worked as a volunteer in a hospice, I was hoping to learn something from Peter's account. I did indeed learn much from it…Houghton personally is still struggling to make sense of his restored life and the renewal of his relationships. At 60 he doesn't want to return to work, and he never wants to counsel a dying person again. Unsure why, he suggests that it might be because of having seen the things from the perspective of the counseled. That is a particularly salutary reflection to take away from this book -- Human GivensIn On Death, Dying and Not Dying, Peter Houghton tells his own story. A palliative care counselor, he was given weeks to live. This book tells how he prepared for dying, until a new clinical trial gave him his life back. In the midst of this moving tale, there is much useful information. -- Church TimesThis book is appropriate for the general public as well as students and clinicians. The author has a conversational style of writing that is both easy to read and refreshing. The insight he is able to offer is unique. He identifies not only his emotions during subsequent events, but is able to link these to appropriate interventions that clinicians can make.Perhaps the most intriguing feature of this book is the connection the author is able to make with the reader. Although the subject matter is difficult, the style in which the information is presented places appropriate emphasis on the emotional and technical aspects.Although this topic is not new, this is the only book that provides clinicians with an insight into a patients experience while also providing direction for clinical practice. -- Lisa Stepp PhD, RN, APN, AOCN, CRNH (Private Practice)This book was written after his surgery, although it has much more than a simple account of his recovery and subsequent events. As a counselor in palliative care, he has experience and knowledge of death and the dying process; much of the book is taken up his thoughts on the subject, illustrated with various anecdotes. He also describes the actual process of dying, and outlines treatment strategies for symptom control. -- Bulletin of Medical EthicsTable of ContentsPreface. 1. My Own Story. 2. The physical process of dying. 3. The last days and death itself. 4. How Dying People Feel about Death and Dying. 5. Thoughts about life, death and dying. 6. The patient and the clinical trial. 7. Wider implications and the future. Appendix 1: Patient Care - The physician's role, Adrian Banning. Appendix 2. The Operation, Stephen Westaby. Glossary of Medical Terms. Index.

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Book Synopsis`The combined practice area of the contributors to this book include social work, psychotherapy, sociology, counselling psychology, creative writing, nursing, and medicine. Several of the authors have multiple professions, and have come to palliative care later in their careers. Indeed, the combined skill of this group is impressive. Each chapter is unique and each story worthy in its own right. The commonalities are remarkable also. I recommend it to all palliative care professionals, when feeling a little-jaded about what we are doing and being swept along with the winds of changing technology and evidenced based practice, and to other health-care workers who feel an inclination to bring a little humanity to their care'.-Omega Vol 51 (1) 77-86, 2005`This book offers unique way of looking at caring for palliative parents by using the influence of the self. It also offers an opportunity for reflection how our experiences can enrich the experience of patient's faced with the prospect of dying. Professionals who enjoy reading stories will thoroughly enjoy this book.'-International Journal of Palliative Nursing`In a way it is surprising that palliative care has not produced more books like this: collections in which those engaged in the daily work of caring for dying and bereaved people share something of their motivations for entering this particular world, their experiences along the way, and their reasons for staying in or quitting it…Christina Mason was right to embark on this project. She has edited a book that deserves to be widely read.'-Palliative Medicine 2003`This is a delightful book. Although its focus is on professionals working in specialist palliative care, it would be useful for any practitioner wanting to learn more about reflective practice or their motivations for caring.'- Journal of Community NursingThis rich collection of accounts explores the personal and professional experiences of palliative care workers. Contributors from a variety of disciplines associated with care at the end of life - among them social workers, a nurse, a doctor, a counselling psychologist, an academic researcher, a psychotherapist and a creative writing therapist - explain how and why they came to work in palliative care, what they bring to the work and the ways in which it has enriched their own lives.Including descriptive examples of their work with clients and families, they discuss the spiritual needs of patients, how to manage personal boundaries and power relations, the use of narrative and story telling in care work and the impact of working with people who are very ill and grieving on every day life.This thoughtful and positive book presents a variety of experience-based perspectives on working in palliative care. Emphasising the use of self and the importance of reflective practice in professional work, this book will be of relevance to all professionals in medical and social care who want to gain a deeper understanding of their work and of the motivation underlying it.Table of ContentsIntroduction. Christina Mason, St Joseph's Hospice, London.1. Basic Themes. Christina Mason, St Joseph's Hospice, London .2. Medicine and Palliative Care: The bronze serpent. Louis Heyse-Moore, Medical Director, St Joseph's Hospice, London. 3. Early Challenges in Palliative Care from a Social Work Perspective: The gift of serendipity. Julia Franklin, Retired Social Worker and now Supervisor and Consultant to a number of Hospices. 4. On becoming a Practitioner: The view of a psychologist Robin Trewartha, Psychologist and former Probation Officer. 5. Explorations in Creative Writing: `I recharge myself from my experience'. Gillie Bolton, Senior Research Fellow in Medical Humanities, Sheffield University. 6. Learning in Palliative Care: Stories from and for my journey. David Oliviere, Principal Lecturer, Middlesex University. 7. Accompanying the Dying. Lois Pollock, Social Worker, St Christopher's Hospice. 8. The Loss of Children: Thinking the unthinkable. Gordon Riches. 9. Reflections on my Roots and Personal Journey. Christina Mason, St Joseph's Hospice, London. 10. The Nursing Perspective: Pain is the breaking of the shell that encases your understanding. Kevin Yates, Director of Nursing, St Joseph's Hospice, London. 11. Overview. Christina Mason, St Joseph's Hospice, London. Index.

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Book SynopsisSupporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.Trade ReviewA book with practical ideas, supported by references from the literature and the findings of recent research projects. -- Educational Book ReviewThe book will be invaluable to anyone thinking of working in this area and will also service those already established in this field. I highly recommend it. -- Nursing StandardUseful practical help is offered on the support of children and families as they make difficult choices at very stressful times, this will be appreciated by all professionals working in this area... Supporting the Child and the Family in Pediatric Care is a most helpful and accessible book... The multi disciplinary approach would make it a useful tool to all medical, pastoral or support staff. -- Evelyn Cairns, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword. Introduction. Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children's Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements When a Child Dies. 7. The Child's Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children's Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children's Hospices. References. Subject Index. Author Index.

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Book SynopsisDying, Bereavement and the Healing Arts describes a range of successful programmes pioneered by artists, writers, nurses, musicians, therapists, social workers, and chaplains in palliative care settings. These range from simple painting and writing activities to organized communal activities like writing and performing a play.The arts are shown to offer a means to reflect on memories, hopes, fears and anxieties, and gently explore the emotional, spiritual, and psychological issues which can aid a fuller understanding of oneself and one's condition. The arts also serve as a way to communicate difficult and complex feelings to professionals or family members not possible in everyday conversation.Dying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting.Trade ReviewThis book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKBolton's collection serves up national and international sources of inspiration in the healing arts...This text...can be seen not only as offering accounts of the role of creativity in varying context of palliative care, but also as a collation of creative acts in their own right. Poetry, photographs, painting, excerpts from dialogue and profoundly moving reflexive writing are all presented to inspire the reader to consider their own creative responses to the world and their part in it...This book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKThe writing is blunt, the topics heart-wrenching, and the words poignant, addressing issues such as the death of a beloved child, spouse, parent or friend; the pain of illness and treatment; and the helplessness of watching a loved one suffer. Although these are hard topics to consider, it can also be a relief to have difficult subjects acknowledged... DYING BEREAVEMENT AND THE HEALING ARTS reminds readers that creative expression is available to everyone as a means to understanding and growing through life's changes and challenges. -- Journal of the American Art Therapy AssociationGillie Bolton has been an inspirational voice and a practitioner in the involvement which has simulated a wider appreciation of what "makes" health. This volume of twenty essays is a delight - rather like a well-prepared buffet - something to nourish those seeking deeper food for thought and practice. This book will both feed any reader who wishes to be enriched by listening to experience and also find a way to express what is humane in the face of human frailty. -- The Christian ParapsychologistFor anyone curious about how it is that the arts can evoke, enliven, reassure, educate, recount and then enable us to share with others, this is the place to start. -- Bereavement CareEach chapter is very diverse with contributions from patients, survivors, professional healthcare workers and artists. I would recommend this book to all. As healthcare professionals we can never stop trying to understand our fellow human beings hopes and fears. -- Journal of Community NursingDying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting. In my opinion, this is a rare case of something doing exactly what it says on the tin. -- DramatherapyThis is a thought provoking book which invites the reader to consider how art can be healing for the patient, the bereaved and the healthcare professional... The common thread throughout the chapters is how being creative often speaks new leases of life in both patient and those surround her. At the end of the day the book shows how the creative arts have hidden health benefits for patients, the bereaved and healthcare professionals whether that comes from looking at Van Gogh, listening to Bach, writing a poem or moulding some clay. -- Ian Stirling, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword, Baroness Professor Ilora Finlay of Llandaff.Preface Poem: Nest, Penelope Shuttle 1: Introduction: Dying,Bereavement and the Healing Arts, Gillie Bolton. 2: A Death Photographed: Michael Willson's Story, Paul Schatzberger and Gillie Bolton 3: Arts, Electronic Media, Movement: Rosetta Life, Filipa Pereira-Stubbs and Chris Rawlence. 4: Theatre for Professional Development, Ashley Barnes 5: Visual Art for Professional Development, Sandra Bertman 6: Healing Arts in Palliative Care, Christina Mason. 7: Imagination and Health in Cancer Care and Palliative Care, John Graham-Pole 8: Visual Art in Cancer Care and Palliative Care, Anna Lidzey, Michele Angelo Petrone, Julie Sanders and Gillie Bolton 9: Making Music in Children's Hospices, Lesley Schatzberger 10: Healing Writing in Palliative Care, Sheelagh Gallagher, Kate D'Lima, Kaichiro Tamba, Hilary Elfick, with David Head and Gillie Bolton 11: Creating The Tuesday Group: A Palliative Care Play, Bobbie Farsides and Sue Eckstein 12: The Power of Music, Diana Greenman, Frans Meulenberg and Mike White 13: Writing through Bereavement: River Wolton, Haifa Al Sanousi, Amy Kuebelbeck, Judy Clinton and Robert Hamberger 14: A Legacy of Understanding, Monica Suswin 15: Reading to Help Practitioners and Patients, Ted Bowman and Rogan Wolf 16: Artists: Survivors, Tim Jeeves, Mitzi Blennerhassett and Michele Angelo Petrone, Artist 17: Professionals: Artists, Steve Seagull, Tim Metcalf, Oliver Samuel, Kieran Walsh and Christopher Johns 18: Spiritual and Artistic Care: Memorial Services, Mark Cobb and Giles Legood 19: The Art of Care, Yvonne Yi-Wood Mak , Ann Williams, Corine Koppenol and Sinead Donnelly 20: Reflections Towards the Future, Nigel Hartey. List of Contributors. References. Subject Index. Author Index.

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Book SynopsisUse of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care.The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved.This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.Trade Review`The book is a brave and sensible move by Hartley and Payne. Brave, in encouraging more "group think" from professions often in conflict regarding issues of funding or professional boundaries. Sensible, because the common ground for these professions, creativity, has so much to offer palliative care: a book of this kind has long been needed to celebrate and promote the potential of the work these professions do.' -- British Journal of Music Therapy, Julian O'Kelly, day hospice manager and music therapists at the Princess Alice Hospice, Esher, Surrey, UK`This book would be useful to those who are hoping to establish creative arts practices in this field in a range of locations, and would be of particular help to those who may be managing such projects and who fell they have little or no experience or expertise in this field.` -- hospice information bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, ColchesterI highly recommend this book to anyone involved in palliative care: administrators, nurses, social workers, caregivers, families, creative artists, therapists, and students...This book is moving, practical, and inspiring to all those dealing with chronic illness, pain, death, and dying. -- Art TherapyThis book was incredibly informative. It strove to inform, inspire and educate 'artists' to work in palliative care, and gave the tools and strategies to us for success... I recommend this book to any creative arts therapists who wish to work in palliative care, or want to brush up on some strategies for wearing their 'business hats' and increasing their practice hours. -- Canadian Art Therapy Association JournalThis book provides a credible and informative account of the contribution of the creative arts in palliative care. It is an accessible read for those with experience in this field, and will be of interest to people studying therapeutic media beyond standard medical approaches in a palliative care context, as well as those keen to explore and understand more about the life-affirming and life-enhancing potential of creative art. -- Writing in EducationThis book is an invaluable starting point, and hopefully a catalyst for more of the kind, bridging the gap between the paucity of literature and the richness of opportunities that the creative arts offer for personal transformation, increased well-being and social inclusion in palliative care. -- European Journal of Palliative CareThe Creative Arts in Palliative Care is a forward-thinking text which integrates management, treatment and community building aspects of creative arts in palliative care. I highly recommend The Creative Arts in Palliative Care. This book is a must read for artists, therapists, volunteers, managers and directors who specialize in working with patients and caregivers who are facing end of life. -- Nordic Journal of Music TherapyThis book is a valuable resource giving information in a collection of articles that, taken together, support the justification for including creative arts in the services offered to those who are facing the end of life. -- Journal of Palliative CareTable of ContentsAcknowledgements. Part I: Developing Creative Arts in Palliative Care. 1. Introduction - The Creative Arts in Palliative Care. Nigel Hartley and Malcolm Payne, St Christopher's Hospice, London. 2. Managing Creative Arts and Artists in Healthcare Settings. Nigel Hartley. 3. The Palliative Care Community - Using the Arts in Different Settings. Nigel Hartley. 4. Exhibiting, Promoting and Funding the Arts in Healthcare Settings. Nigel Hartley. 5. Research and Audit in Palliative Care Creative Arts. Malcolm Payne. Part II: Experiences of Creative Arts in Palliative Care. 6. Experiences of Creative Arts in Palliative Care - Introduction to Part II. Malcolm Payne. 7. Pottery and Painting. Lynn Harmer, St Christopher's Hospice, London; Greenwich Community College, South London. 8. Craft Work. Adrian Butchers, St Christopher's Hospice, London. 9. Digital Arts. Marion Tasker, St Christopher's Hospice, London. 10. Art Therapy. Samantha Dobbs, St Christopher's Hospice, London. 11. Community Arts. Virginia Hearth, St Christopher's Hospice, London.. 12. Beginning to Work as a Community Artist in Palliative Care. Mick Sands, St Christopher's Hospice, London. 13. Music Therapy in the Community. Tamsin Dives, St Christopher's Hospice, London. 14. Music and Music Therapy at St Christopher's Hospice - An Evaluation Study. Abi Gill, National Society for Epilepsy, Buckinghamshire. 15. Conclusion. Malcolm Payne and Nigel Hartley. Bibliography. Contributors. Suppliers. Subject Index. Author Index.

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Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.

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Book Synopsis*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards*The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction.This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.Trade Review*Highly Commended in the Popular Medicine category of the 2012 BMA Medical Book Awards*'provides thoughtful and evidence based advice and tuition on working with this client group, and a reminder of the importance of seeing a person as a "whole" and not just their condition.' -- College of Occupational Therapy Specialist Section, Older People NewsletterThis is a clever little book in that it carefully balances Eastern philosophy of the body-energy-spirit system of integrative care with evidence-based studies focusing on the effectiveness and benefits of hand massage... Take My Hand is a book that we can all use - practitioners, daughters and sons, husbands and wives, sisters and brothers - to provide those we care for with the gift that is free but most valuable: our comforting touch. -- Dementia UK and Inside Palliative CareWhile massage and yoga may seem a little bit too "alternative" to some readers, these two books make a very good case for their use in care homes. They both put forward simple and unthreatening exercises that can be led by staff at any level. I would recommend starting any such program (massage or yoga) by getting staff to learn and appreciate the techniques by practicing on each other - a good way to begin a team meeting. -- Caring TimesGoldschmidt and van Meines' book will give new hope, direction and skills to those who want to help their fellow human beings as they face some of life's greatest challenges. Caregivers will find practical information on ways to use touch and hand massage to ease the suffering and enhance the quality of life for those who are terminally ill or who have advanced dementia. With its exceptionally clear and straightforward directions (and edifying illustrations) for carrying out the hand massage, this book is a natural for inclusion in long-term care in-service classes. -- Nanette A. Kramer, Ph.D., Clinical Geropsychologist, Brooklyn, New YorkFor family members who wonder 'what can I do?' [this book] offers profound information about a simple yet deeply meaningful way to connect with loved ones who have dementia or are at the end of life. -- Megan Haungs, licensed acupuncturist and massage therapist, and former Dean of the Acupuncture Program at Swedish Institute, College of Health Sciences, New YorkMuch more than a how-to book, Comforting Touch in Dementia and End of Life Care is really an open invitation to the transformative experience of providing simple, conscious touch to loved ones who are in one way or another slipping away from us. Drawing from sources as varied as mindfulness practices, research, Chinese Medicine, and moving personal stories, the authors provide caregivers with a clear path to offering simple hand massage, and to the benefits and profound sense of connection that often result. -- Lucy Liben, Dean of the Massage Therapy Program at Swedish Institute, College of Health Sciences, New YorkIn my work at the nursing home I found that when I used a hand massage it helped residents feel calm and cared for. It was like meditating, or taking a drink of cool water, creating a sense of peace and quiet. We discovered that when we share touch we not only send a message, we also receive one. That's what this approach is all about. -- Hermine Mitchell, certified nursing assistant, St. Alban's, New YorkTable of ContentsAcknowledgements. Part 1. A Sense of Connection. 1. Your Radiant Sea. 2. Sharing the Benefits of Touch. 3. The Body as Particles and Waves. 4. A Tangible Spirit. Part 2. Focusing Your Touch. 5. Physical and Energetic Qualities of the Hand. 6. Before You Begin: Observing Best Practices. 7. Elements of a Session. 8. A Hand Massage Sequence. 9. At a Glance: The Sequence and Reminders. Part 3: The Reality of Practicing. 10. Ten Challenges to Sharing Touch. 11. Adapting for Different Needs. 12. Comforting Touch in End of Life Care. Resources. References. Index.

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Book Synopsis*Highly Commended in the Psychiatry category at the 2012 British Medical Association Book Awards*A near-death experience (NDE) is a phenomenon whereby powerful physical and emotional sensations and visions are experienced by someone who is either close to death or has been declared clinically dead. This is an accessible guide to the theory and evidence underlying the phenomenon of NDEs. With contributions from leading international experts in the field, it provides an overview of the research into NDEs, the nature of NDEs and how they have been experienced around the world, and the physiological, psychological and medical bases of the phenomenon. The book also discusses children's NDEs, NDEs from a religious perspective, the role of light in NDEs, the assessment and management of NDEs, and the future of research into the phenomenon.This essential handbook will provide all those who may encounter someone who has had an NDE with the knowledge and understanding they need, including nurses, doctors, palliative care workers, psychologists, psychiatrists and pastoral workers.Trade Review*Highly Commended in the Psychiatry category of the 2012 BMA Medical Book Awards*'This book is particularly strong on cross-cultural comparisons. It can be warmly recommended.' -- Journal of the Society for Psychical ResearchThis is a truly thought-provoking read. -- The British Journal of Psychiatryit is illustrated throughout by case vignettes from people who have had near-death experiences. This brings the book alive and makes it accessible for non-clinical specialists as well as for those with a more academic interest in the subject. -- The Journal of Health Care ChaplaincyThis book is subtitled "a handbook for clinicians", but it is going to be welcomed by anyone who is seriously interested in the scientific research into NDEs, particularly clergy and those with a pastoral ministry. This is a collection of essays or papers, and this is both a strength and a drawback. For people who wish to look at specific aspects of the research, whether it is to compare NDEs in the East and West, or different cultures, religious affiliations, or those of adults and children, these are topics covered here. -- The SignMaking Sense of Near-Death Experiences is an invaluable resource for clinicians and other health care professionals who need to inform themselves about the nature and profound personal significance of NDEs. Presenting the latest research and clinical findings representing over 30 years of work, leading experts in the field provide a comprehensive and illuminating overview of one of the most important and transformative experiences of modern times, one that has affected many millions of people. For everyone who comes into contact with such people and hopes to help and understand them, this book is a must. -- Kenneth Ring, Ph.D., Professor Emeritus of Psychology at the University of Connecticut, Co-founder and past President of the International Association for Near-Death StudiesUndergraduates, journalists and healthcare providers all point to the need for resources that familiarize and inform about NDEs. Making Sense of Near-Death Experiences offers readers just such a resource. ... [R]eaders will come away from this book with not only an understanding of diverse viewpoints about NDEs but also an awareness of the complexity of the field of near-death studies and an appreciation for the value of continued research in the field. -- From the Foreword by Janice Holden, Editor, Journal of Near Death Studies and Chair, Department of Counseling and Higher Education, University of North Texas, USATable of ContentsForeword by Janice Holden, Editor, Journal of Near Death Studies and Chair, Department of Counseling and Higher Education, University of North Texas, USA. Acknowledgements. Introduction. 1. Near-Death Experiences: An Overview and Early Studies. P.M.H. Atwater, investigative researcher and author. 2. A Critical Review of Epidemiological Studies of Near Death Experiences 2001-2010. Mahendra Perera, University of Melbourne, Australia and Rohan Jayasuriya, University of New South Wales, Australia. 3. Phenomenology of Near-Death Experiences. Karuppiah Jagadheesan and John Belanti, North West Area Mental Health Service, Victoria, Australia. 4. Dealing with Diversity: Cross-Cultural Aspects of Near-Death Experiences. Ornella Corrazza, University of Hertfordshire, UK and K.A.L.A. Kuruppuarachchi, University of Kelaniya, Sri Lanka. 5. Near-Death Experiences of Children. Cherie Sutherland, author, researcher, educator and sociologist. 6. Pathophysiological Aspects of Near-Death Experiences. Pim van Lommel, Hospital Rijnstate, Arnhem, The Netherlands. 7. Psychological Aspects of Near-Death Experiences. Satwant K. Pasricha, National Institute of Mental Health and Neurosciences, Bangalore, India. 8. Light and Near-Death Experiences. Anthony Peake, Giordano Bruno University. 9. Religious Significance of Near-Death Experiences. Paul Badham, University of Wales, UK.10. Assessment and Management of Near-Death Experiences. Peter Fenwick, Institute of Psychiatry, University of London, UK. 11. Prospecting in The Light: The Future of Near-Death Experiences Research. David J. Wilde, University of Manchester, UK and Craig D. Murray, University of Lancaster, UK. Conclusion. Appendices. The Contributors. Index.

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Book SynopsisAs someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.Trade ReviewThis book draws on the rich experience and combined expertise of the authors to offer a resource for all those supporting people on their end of life pathway…[G]lobally we find a remarkable consistency across cultures of what people want when they are dying. They want care which manages distressing symptoms in the most effective way; they want to be treated with compassion, dignity and respect; they want to have the opportunity to set their affairs in order and to be surrounded by those people who are important to them. The implication of meeting those needs, as the core message of this book proclaims, is that end of life care is everybody's business. -- From the Foreword by Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission, UKThis clearly written and comprehensive book will be a valuable source of information and resource for any professional or student interested in improving the practical delivery of end of life care. It describes the methodologies, development and successes of the ground breaking national strategy for End of Life Care launched in England in 2008. The material is brought to life with case studies and best practice examples and reflection is encouraged through the use of 'stop and think' questions. -- Barbara Monroe, Chief Executive, St Christopher's Hospice, UKThis book provides a comprehensive, up-to-date, research-based account of multi-professional practice in end-of-life care from different professional perspectives. Its authoritative knowledge base relies on the work of the National End of Life Care Programme in England's Department of Health over several years. Its strong focus on flexible, holistic quality of care will make it valuable for specialist and general practitioners in hospital and community health and social care services. -- Malcolm Payne, consultant in social work and end-of-life care and author of Social Work in End-of-Life and Palliative CareThis book elegantly captures how the relatively new focus on 'end of life care' provides a conceptual framework with which to think in a different way about meeting these new needs and has led to change on a wide front…Readers can find interesting synopses of interdisciplinary perspectives on death, dying and epidemiological transition, together with up to date advice about best practice in care planning, communication and coordination of services; all set out in a highly accessible manner. In their discussions, the authors do not shy away from delineating new challenges ahead that will require all of us to work together to continue to transform end of life care so that it better meets the needs of all those facing death, whatever their age or diagnosis, and wherever they are cared for. -- Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham, UKTable of ContentsAcknowledgements. 1. The Context and Philosophy of End of Life Care. 2. Discussions as the End of Life Approaches 3. Assessing Need and Planning Care. 4. Co-ordination of Care. 5. Delivery of High Quality Care in Different Settings. 6. Care in the Last Days of Life. 7. Care after Death. 8. Quality End of Life Care for All. References. Index.

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Book SynopsisWhat do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.Trade Review...I was left a little in awe at what these people were managing to do. I was pleased to see Nash's statement that his team's work was not in the interests of some multicultural political correctness, but because they believed their paediatric patients and their families would get better care. This book has got a lot to offer anybody who works in palliative care in a multifaith setting, not just the chaplaincy team. -- Roger Woodruff, International Association for Hospice and Palliative Care NewsletterThe book is full of cultural and religious helps that concern the entire healthcare treatment team from routine care to palliative and end-of-life care...the book is truly a resource for all bedside clinicians, including professional chaplains, nursing, medicine and other therapeutic specialty clinicians, too. Each chapter focuses on care for a child and family from each of the faith traditions. A Buddhist mother's reflection on spiritual and religious care needs during the premature birth of her twins was particularly enlightening and informative. Then in the final chapter, Paul Nash does a nice job of highlighting spiritual assessment tools and setting up spiritual care that is reflective of pathway care. This book will help new chaplains and seasoned chaplains who need a thorough resource and guide for pediatric palliative and end-of-life care, and the care preceding those difficult and trying times. -- George M. Rossi MA MDiv BCC, clinical chaplain, Pastoral Care Services, Medical University of South Carolina * APC Forum, Association of Professional Chaplains *This is a well written book that is easy to refer to when needed and can be used by any level of chaplain or health care professional. Having been a chaplain for several years and worked and specialized in paediatric settings I found this book refreshing, educational and both uplifting and encouraging. I know I will be re-reading it again and again in my work. -- Revd Philip Wright * Health and Social Care Chaplaincy, Issue 4.1 (June) 2016 *Table of ContentsIntroduction. Revd. Paul Nash, Birmingham Children's Hospital, UK. 1. 5 key objectives and values of multifaith care. Paul Nash. 2. Care of a Buddhist child and their family. Keith Munnings, Buddhist Healthcare Chaplaincy Group, UK. Madeleine Parkes, Birmingham and Solihull Mental Health NHS Foundation Trust and Birminghan Children's Hospital, UK. 3. Care of a Christian child and their family. Paul Nash. Madeleine Parkes 4. Care of a Hindu child and their family. Madeleine Parkes. Rakesh Bhatt, Hindu Chaplaincy Services, Paediatric, Acute and Mental Health NHS Foundation Trusts, UK. 5. Care of a Jewish child and their family. Madeleine Parkes. Rabbi Naomi Kalish, NYP Morgan Stanley Children's Hospital, US. 6. Care of a Muslim child and their family. Zamir Hussain, Birmingham Children's Hospital. Madeleine Parkes 7. Care of a Sikh child and their family. Madeleine Parkes. Parkash Sohal, Sikh Chaplaincy Services, Paediatric and Acute NHS Services, West Midlands, UK. Surinder Sidhu, Birmingham Children's Hospital, UK. 8. Spiritual care - Christmas in July for a Hindu family. Revd. Claire Carson, Hospital Chaplain, London, UK. 9. A Buddhist mother's reflections on spiritual and religious care. Kusumavarsa Hart, therapist and writer, West Midlands, UK. 10. Engaging health care and religious care. Paul Nash. Appendix 1. BCH Palliative, End of Life and Bereavement Issues in Religious Care of Children. Appendix 2. Key festivals. Appendix 3. Example of a religious care pathway and care plan.

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Book SynopsisThis is a comprehensive account of the psychology of death and bereavement, which places the subject within the contexts of the major world religions and their associated mourning and funeral customs. Clearly written, well referenced and carefully organized, the book examines the thinking of Freud and Jung and of modern psychiatrists, and also discusses those aspects of death - bereavement visions, euthanasia, grief for a pet and suicide - which are not covered elsewhere.The second edition has enabled the contents to be updated and enlarged. There are five new chapters, including one dealing with the scientific assessment of death: another looks at the psychological insights provided by Shakespeare, whilst a third deals with the beliefs and customs of minority groups - the Bahais, Jehovah's Witnesses, Mormons, Quakers, Spiritualists and Seventh-day Adventists. The text is highly accessible and uses case histories to bridge the gap between theory and experience in an novel and creative way.Table of Contents1 - What is Death? 2 - Western Attitudes to Death. 3 - Reincarnation and Rebirth. 4 - The Cult of The Ancestors. 5 - African and Afro-caribbean beliefs and Customs. 6 - Jewish and Muslim Funeral and Mourning Customs. 7 - The funeral Rites of Christians. 8 - New Religions and new Sects. 9 - The Reburial issue. 10 - Freud, Mourning and Death. 11 - Jung and Self-realization. 12 - Shakespeare, Death and Grief . 13 - Dying, The Last Months . 14 - Caring for The dying. 15 - Bereavement, The Basics. 16 - Bereavement, Medical and Social Issues. 17 - The Death of a Child. 18 - A Child's Response to Death. 19 - Suicide. 20 - Euthanasia and Assisted Suicide. 21 - The Death of a pet. 22 - The Bereaved and the Living Dead. 23 - Near Death Experiences. 24 - The Significance of death.

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Book Synopsis"A searingly honest tale of love, life and death" – Sarah Wootton, Dignity in Dying Die Smiling is a rare and intimate account of one man’s journey to Dignitas in Zurich and his ultimate triumph over suffering and disease. Told with wit and candour, Julie Casson traces her husband Nigel’s extraordinary journey from diagnosis of motor neurone disease to his death.Successful businessman and father of three, Nigel battles the degenerative disease with boundless courage and gritty good humour, until, faced with the unimaginable torture of a slow, living death – his spirit crushed, his body a tomb – he takes control. He decides to go to Dignitas to end his life, while he is still able to die smiling.The family prepares for this enormous logistical and emotional challenge: the gruelling Dignitas process and the eight-hundred-mile road trip to Switzerland. They complete it with pragmatism and humour. Denying the disease its victory and choosing his own cure, Nigel dies happily, in the arms of his wife and children.This is a thought-provoking and deeply moving book, where love, family, dignity and choice conquer adversity. It sits in the heart of the debate on assisted dying and raises questions about the right to put an end to suffering and the right to choose how life should end.'Julie Casson lays bare the devastating human impact of the UK’s ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in DyingContents1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356Trade Review'Julie Casson lays bare the devastating human impact of the UK’s ban on assisted dying, capturing precisely why true choice at the end of life is a movement whose time has come for this country. By turns uplifting and heart-wrenching, Die Smiling is a searingly honest tale of love, life and death, and a powerful contribution to a historic debate.' - Sarah Wootton, CEO Dignity in DyingTable of Contents1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356

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Book SynopsisThis innovative care program blends nursing care and meaningful activities to promote peaceful and relaxing end-of-life experiences for older adults with late-stage dementia. The first program created specifically for this hardest-to-serve population, Namaste Care also meets the latest regulatory guidelines for person-centered activity programming. The author has developed the program to be adaptable to individual as well as group settings, from nursing home to bedside at home. With this practical guide, skilled nursing facilities, assisted living settings, memory care communities, and hospices can easily and affordably implement a Namaste Care program not only to improve resident quality of life but also to increase family involvement and strengthen staff morale. New to the revised edition: Detailed descriptions of Namaste Care (NC) Group Program and the NC Individual Program, and instructions for implementing NC in any setting More case studies and stories to illustrate creative uses of Namaste Care and effective results Further international focus, incorporating programs and perspectives from Australia, the U.K., Europe, as well as Singapore and Indonesia. In-depth description of the physical setting and supplies needed for an effective NC program. Completely updated references Trade Review“Voted ‘Book of the Year, in 2013 by the American Journal of Nursing, Professor Joyce Simard’s 3rd edition of Namaste Care has been eagerly awaited. Full of the wisdom and practicalities of its original purpose for people isolated with advanced dementia, it has been expanded to include individual care at the bedside in the last days of life and at home. It remains a 'must.'" - Jo Hockley, RN, Ph.D., OBE Senior Research Fellow, University of Edinburgh“It is with great pleasure and honor that I endorse Joyce Simard’s 3rd edition of The End-of-Life Namaste Care Program for People with Dementia. Namaste began at the Vermont Veterans’ Home in Bennington, VT over 20 years ago, and was developed to meet the unique needs of people with advanced dementia who often fall through the cracks in long-term care. This sacred programs embraces the person’s humanity and ensures that the person living with advanced dementia or end of life issues fully lives until their last breath.” - Christina M. Cosgrove, LICSW, Behavioral Health Director, Vermont Veterans’ Home, and designated Namaste Care International Champion in the U.S.Table of ContentsAbout the AuthorForeword, by Rishi JawaheerPrefaceAcknowledgmentsIntroduction: The BeginningPART I: THE NEED FOR NAMASTE CAREWhat is Namaste Care?End-of-Life Dementia Care and HospicePART II: NAMASTE CARE IN PRACTICEBeginning the Namaste Care DayThe Namaste Care Group ProgramThe Namaste Care Individual ProgramThe Physical SettingPlanning and Implementing Namaste CarePART III: DEATH AND DYING CAREQuality of Life at the End of LifeMaking the TransitionAfter a DeathAppendixesNamaste Care Nursing SuppliesNamaste Care Activity SuppliesNamaste Care ResourcesNamaste Care Activities of Daily Living ChecklistDementia Bill of RightsPain Assessment in Advanced Dementia (PAINAD) ScaleReferencesIndex

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Book SynopsisRapid advances in modern medicine and diagnostic techniques have revolutionized the way we think about death and the processes of dying. Where once death was defined as the absence of respiration or heartbeat, today patients can be kept alive for months or even years hooked up to a respirator and feeding tube. Ivan and Melrose carefully explain the various medical processes involved in death and dying. In so doing they also face the many ethical, moral and legal dilemmas that confront doctors today, as well as the decisions that may have to be taken by relatives. What, they ask, is the meaning of "life" when large areas of a person's brain have suffered irreversible damage? And what of the economic quandary when valuable hospital beds are occupied by people in a persistent vegetative state with no hope of recovery?Table of ContentsHistory of the definitions of death Coma Persistent vegetative state The "Do not resuscitate" order Brain death Harvesting and transplanting organs Dying with dignity and palliative care The living will The right to die Euthanasia and assisted suicide Near-death experiences Life after death? Body, Mind and Soul

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Book SynopsisPalliative care supports patients suffering from life-limiting illnesses by providing relief from physical, emotional and spiritual suffering, improving the quality of life for them and their families. It is an important component of good patient care, an integral part of the continuum of support for patients suffering with advanced cancer and end stage organ diseases. Providing good palliative care requires both sound clinical knowledge and compassion.With new chapters on end stage organ diseases, spiritual care and medical ethics, all healthcare professionals will find wisdom and practical advice in this book by the patient's bedside. The editors and contributors of the 2nd Edition of The Bedside Palliative Medicine Handbook have taken great care to provide readers with an evidence-based, updated guide to the practice of palliative medicine.

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