Terminal care nursing Books

Book SynopsisThis innovative care program blends nursing care and meaningful activities to promote peaceful and relaxing end-of-life experiences for older adults with late-stage dementia. The first program created specifically for this hardest-to-serve population, Namaste Care also meets the latest regulatory guidelines for person-centered activity programming. The author has developed the program to be adaptable to individual as well as group settings, from nursing home to bedside at home. With this practical guide, skilled nursing facilities, assisted living settings, memory care communities, and hospices can easily and affordably implement a Namaste Care program not only to improve resident quality of life but also to increase family involvement and strengthen staff morale. New to the revised edition: Detailed descriptions of Namaste Care (NC) Group Program and the NC Individual Program, and instructions for implementing NC in any setting More case studies and stories to illustrate creative uses of Namaste Care and effective results Further international focus, incorporating programs and perspectives from Australia, the U.K., Europe, as well as Singapore and Indonesia. In-depth description of the physical setting and supplies needed for an effective NC program. Completely updated references Trade Review“Voted ‘Book of the Year, in 2013 by the American Journal of Nursing, Professor Joyce Simard’s 3rd edition of Namaste Care has been eagerly awaited. Full of the wisdom and practicalities of its original purpose for people isolated with advanced dementia, it has been expanded to include individual care at the bedside in the last days of life and at home. It remains a 'must.'" - Jo Hockley, RN, Ph.D., OBE Senior Research Fellow, University of Edinburgh“It is with great pleasure and honor that I endorse Joyce Simard’s 3rd edition of The End-of-Life Namaste Care Program for People with Dementia. Namaste began at the Vermont Veterans’ Home in Bennington, VT over 20 years ago, and was developed to meet the unique needs of people with advanced dementia who often fall through the cracks in long-term care. This sacred programs embraces the person’s humanity and ensures that the person living with advanced dementia or end of life issues fully lives until their last breath.” - Christina M. Cosgrove, LICSW, Behavioral Health Director, Vermont Veterans’ Home, and designated Namaste Care International Champion in the U.S.Table of ContentsAbout the AuthorForeword, by Rishi JawaheerPrefaceAcknowledgmentsIntroduction: The BeginningPART I: THE NEED FOR NAMASTE CAREWhat is Namaste Care?End-of-Life Dementia Care and HospicePART II: NAMASTE CARE IN PRACTICEBeginning the Namaste Care DayThe Namaste Care Group ProgramThe Namaste Care Individual ProgramThe Physical SettingPlanning and Implementing Namaste CarePART III: DEATH AND DYING CAREQuality of Life at the End of LifeMaking the TransitionAfter a DeathAppendixesNamaste Care Nursing SuppliesNamaste Care Activity SuppliesNamaste Care ResourcesNamaste Care Activities of Daily Living ChecklistDementia Bill of RightsPain Assessment in Advanced Dementia (PAINAD) ScaleReferencesIndex

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisThrough drawings, paintings, and poetic, prayerful affirmations grounded firmly in the Jewish experience, the author offers a creative response to her mother’s final illness and death. Trade Review“Life Support exemplifies the genre of graphic medicine. Spare and raw, we are thrust into the physicality of health and illness, bodies and fluids, as well as emotions deep and intense. She offers us feelings, ugly and unrepentant at times, with moments of grace at others, and in the process of the work, reveals a healing balm, years in the making.”—Joel L. Kushner,Director, Kalsman Institute on Judaism and Health“As she attended to her mother’s declining days, Judith Margolis instinctively, deeply recorded them in art and text that have the quality of prayer. One sees in this work the profound tenderness of attention. From within the great hollow of loss, this book offers unexpected comfort. Margolis lifts up an art and practice that attend to the ineffable, and in whose spirit loss becomes presence.”—Elizabeth Robinson,author of On Ghosts“In charting her ‘trajectory from brokenness to wholeness’ through drawing and writing, Margolis offers a uniquely consoling but also affirmative narrative of love and loss.”—Lois Perelson-Gross Graphic Medicine“Margolis’s brief book tackles a hard subject by facing the unpretty reality head-on, giving the reader a window into a world usually whispered about in hushed tones, if at all. Beyond being a sensitive tribute to her parents, there is much to consider for families similarly situated. The deft title Life Support can be understood both as the physical machinery used in critical care and as the act of the book’s creation serving as an emotional life preserver buoying the book’s author, while benefiting us all.”—Heddy Breuer Abramowitz Jerusalem Post“Margolis, in reviving a combination of art and literature that is religious at its core, has created a deeply original and moving work.”—Julia Stein Rain Taxi Review of Books“Life Support, a book of prayer, is a solicitation. It is an invitation to sit quietly and pay attention: to the pain of a dying mother and her grieving daughter; to the bonds of life, and grief, that all of us ultimately share, just by dint of still being here.”—Tahneer Oksman Shofar“Life Support reminded me that reading can be about more than words. A good book can be a fully sensory experience: The smell of the pages, the crackle of the spine, the texture of the cover, the delights of a good font or drawing. Life Support is all of that and more.”—Susan Sered Nashim

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Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

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Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.

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Book SynopsisA resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families. It addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and more. It also includes content on trauma and developmental issues for children, adults, and the aging who are dying.Trade ReviewBerzoff's and Silverman's text is a compendium of educational material uniquely edited to facilitate social workers' understanding of how to think about, talk with and practice caring for people with life-limiting illness, their caregivers and themselves. It should be required reading for all healthcare professionals who provide end-of-life care. From its use of personal narratives to its emphasis on the theoretical underpinnings of social work practice and research, this resource models excellence in teaching. It is authoritative, comprehensive, practical and readable. Although each of the chapters could stand alone, together they carefully weave the complex elements of what healthcare professionals need to know to be both competent and compassionate in providing end-of-life care. This resource thoroughly addresses the educational challenges set forth in the three Institute of Medicine reports calling for the education of healthcare professionals to facilitate improved care to people with life-limiting illness.Kathleen M. Foley, MDProfessor of Neurology, Neuroscience & Clinical PharmacologyWeill Medical School of Cornell University Attending NeurologistMemorial Sloan-Kettering Cancer CenterPalliative Care Initiative Network PublicHealth ProgramOpen Society Institute -- Kathleen M. Foley, MD I would highly recommend Living with Dying. -- Reverend Francis C. Zanger American Journal of Hospice and Palliative Care This text offers a successful interdisciplinary approach to understanding suffering, the vital relationship of self to others (and the importance of self-care), and the competencies needed to promote compassionate, professional palliative care...Recommended. Choice This text is an excellent resource. -- Katherine Miller Palliative Medicine It beautifully encapsulates the profession of social work and the care that social workers provide for the dying and bereaved. -- Cheryl-Anne Cait Smith College Studies in Social Work Living with Dying is the first comprehensive resource on end-of-life care... Social workers will find this text indispensable. -- Carole A. Winston Journal of Social Work in End-of-Life & Palliative CareTable of ContentsContents List of Contributors Acknowledgments Foreword, by Thomas R. Egnew Introduction Part I Narratives in End-of-Life Care 1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving, by David Browning 2. The Symptom Is Stillness: Living with and Dying from ALS, by Ellen Pulleyblank Coffey 3. The Loss of a Child to Cancer: From Case to Caseworker, by Roberta Hoffman 4. September 11: Reflections on Living with Dying in Disaster Relief, by es Gallo-Silver and Penny Damaskos Part II Theoretical Aspects of Death and Dying Introduction: Theory 5. What Is a Respectful Death? by Stu Farber, Thomas Egnew, and Annalu Farber 6. Dying and Bereavement in Historical Perspective, by Phyllis R. Silverman 7. The History of Social Work in Hospice, by Mary Raymer and Dona Reese 8. The Interdisciplinary Team: An Oxymoron? by Inge B. Corless and Patrice K. Nicholas 9. Ethical issues in End-of-Life Care: Social Work and Facilitation and Proactive Intervention, by Patricia O'Donnell 10. Spirituality and End-of-Life Care Practice for Social Workers, by Carolyn Jacobs 11. Gender and Death: Parallel and Intersecting Pathways, by Illene C. Noppe 12. Bereavement: A Time of Transition and Changing Relationships, by Phyllis R. Silverman 13. Psychodynamic Theories in Grief and Bereavement, by Joan Berzoff Part III Clinical Practice Issues in End-of-Life Care Introduction: Clinical Practice 14. The Trajectory of Illness, by Allen Levine and Wendy Karger 15. Clinical Social Work Practice at the End of Life, by Felice Zilberfein and Elizabeth Hurwitz 16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families, by Nancy Cincotta 17. Working with Dying and Bereaved Older People, by Sue Thompson and Neil Thompson 18. Assessing Mental Health Risk in End-of-Life Care, by Katherine Walsh-Burke 19. Pain and Symptom Management: An Essential Role for Social Work, by Terry Altilio

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Book SynopsisOffers a process-based, patient-centered approach to palliative care that substantiates a radical reconsideration of our transition to deathTrade ReviewA pioneering work on research about dying and a treasury of knowledge about dying processes, this book will promote our understanding, care, and guidance of terminally ill persons. -- Pim van Lommel, cardiologist and author of Consciousness Beyond Life: The Science of the Near-Death Experience Monika Renz is able to partially lift the veil shrouding the mystery of death. Based on her vast experience with the dying, her book provides an intimate and rich account of the phenomenological experience of the dying process. -- Paul T. P. Wong, Trent University, president of the Meaning-Centered Counselling Institute A bold, probing investigation into how analogies and metaphors provide fresh access to dying as the ultimate mystery of human potential. A skillful analysis of patient vignettes render palpable many ineffable and unconscious dynamics of patients' experiences as they move from conventional ego-based schema through personal, transformative, beautiful, and even painful transitions. This insightful work is a compass for reducing suffering among the dying and the living. -- Bruce L. Arnold, University of Calgary This powerful book plumbs the existential depths of our ultimate transformation. Network ReviewTable of ContentsAcknowledgments Introduction: In Search of Inner Experiences of Dying 1. Dying and the Transformation of Perception 2. The Three Stages of Transition and Dignity 3. What Is Primordial Fear? "The 'I' Dies Into a 'Thou'" 4. Other Hearing: Beyond Space and Time 5. Metaphors of Transition 6. The Sites of Transition: Fear, Struggle, Acceptance, Family Processes, Maturation 7. Dying with Dignity: Indication-Oriented End-of-Life Care Epilogue Appendix Notes References Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisAn on-the-go reference for hospice nurses and those interested in end-of-life care, this practical guide covers the essential elements in the compassionate and holistic care of terminally ill patients and their families. This book is an invaluable resource that provides emotional, administrative, and palliative support, whether in a hospice, long-term care facility, or acute care settings.

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Book SynopsisPublishing on the 50th anniversary of the opening of St Christopher's Hospice - widely thought of to be the first modern hospice, combining pain and symptom management with education and training - this edited collection discusses what motivates professionals and volunteers to provide spiritual care. This book shows how the world of hospice care is moving on from Cicely Saunder's, founder of St Christopher's Hospice, legacy to providing spiritual care in a more integrated manner. With entries from doctors, nurses and CEOs among others, this book informs good practice for professionals and volunteers providing spiritual care for patients and their families. It looks at how, for many of these professionals, spirituality does not have to be grounded in organised religion, but stems from understanding and providing for our human needs.Trade ReviewThis book opens up the idea of what 'spiritual' means in wholly original ways, finding it in the lived human experience of dying people and those who accompany them. Honest, open and moving, it takes the questions way beyond the hospice. Valuable reading for anyone involved in providing - or receiving - healthcare. -- Jessica Rose, writer and psychotherapistThis new look at spiritual care demonstrates the importance of a multi-professional approach. It seeks to re-integrate spirituality with other aspects of care by professional care-givers and volunteers recognising and responding to spiritual needs through developing a compassionate and attentive relationship with the patient and family. Practical examples help clarify the how and why of spiritual care and its relevance for carers. -- Prebendary Dr Peter Speck, Hon Senior Lecturer (Palliative Care), Cicely Saunders Institute, King’s College LondonThis book brings together a compelling blend of personal reflection, practical experience, and conceptual exploration of a profoundly important area. Its contributors are often movingly and refreshingly honest, and their collected breadth of experience comes together into a whole that will be deeply thought-provoking for practitioners and non-specialists alike. -- Bishop Christopher, Portsmouth DioceseTable of Contents1. What is Spiritual Pain? Nigel Hartley, East Mountbatten Hospice. 2. The Need to Be Present to the Patient. Andrew Goodhead, St Christopher's Hospice. 3. Relationship, not Intervention. Ros Taylor, Hospice UK. 4. Offering Hope in Healthcare. Becky McGregor, Physiotherapist Early Mountbatten Hospice. 5. Relationship and Resilience. Pippa Hashemi, Volunteer, St Christopher's Hospice. 6. Total Pain and Diversity. Linda McEnhill, Educationalist, St Joseph's Hospice. 7. Exploring Spiritual Pain through the Arts. Olwen Minford, Psychotherapist, Kings College London. 8. Working with the Tension of Spirituality and Religion, Bob Whorton, Chaplain, Sir Michael Sobell House Hospice. 9. Spirituality and Vocation, Liz Arnold, Nurse, Earl Mountbatten Hospice. 10. Practicing Spiritual Care, Kostas Kontelias, Sally Mercer, Ninon VanDerKroft, Social Workers. 11. Conclusion, Andrew Goodhead and Nigel Hartley.

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Book Synopsis`The combined practice area of the contributors to this book include social work, psychotherapy, sociology, counselling psychology, creative writing, nursing, and medicine. Several of the authors have multiple professions, and have come to palliative care later in their careers. Indeed, the combined skill of this group is impressive. Each chapter is unique and each story worthy in its own right. The commonalities are remarkable also. I recommend it to all palliative care professionals, when feeling a little-jaded about what we are doing and being swept along with the winds of changing technology and evidenced based practice, and to other health-care workers who feel an inclination to bring a little humanity to their care'.-Omega Vol 51 (1) 77-86, 2005`This book offers unique way of looking at caring for palliative parents by using the influence of the self. It also offers an opportunity for reflection how our experiences can enrich the experience of patient's faced with the prospect of dying. Professionals who enjoy reading stories will thoroughly enjoy this book.'-International Journal of Palliative Nursing`In a way it is surprising that palliative care has not produced more books like this: collections in which those engaged in the daily work of caring for dying and bereaved people share something of their motivations for entering this particular world, their experiences along the way, and their reasons for staying in or quitting it…Christina Mason was right to embark on this project. She has edited a book that deserves to be widely read.'-Palliative Medicine 2003`This is a delightful book. Although its focus is on professionals working in specialist palliative care, it would be useful for any practitioner wanting to learn more about reflective practice or their motivations for caring.'- Journal of Community NursingThis rich collection of accounts explores the personal and professional experiences of palliative care workers. Contributors from a variety of disciplines associated with care at the end of life - among them social workers, a nurse, a doctor, a counselling psychologist, an academic researcher, a psychotherapist and a creative writing therapist - explain how and why they came to work in palliative care, what they bring to the work and the ways in which it has enriched their own lives.Including descriptive examples of their work with clients and families, they discuss the spiritual needs of patients, how to manage personal boundaries and power relations, the use of narrative and story telling in care work and the impact of working with people who are very ill and grieving on every day life.This thoughtful and positive book presents a variety of experience-based perspectives on working in palliative care. Emphasising the use of self and the importance of reflective practice in professional work, this book will be of relevance to all professionals in medical and social care who want to gain a deeper understanding of their work and of the motivation underlying it.Table of ContentsIntroduction. Christina Mason, St Joseph's Hospice, London.1. Basic Themes. Christina Mason, St Joseph's Hospice, London .2. Medicine and Palliative Care: The bronze serpent. Louis Heyse-Moore, Medical Director, St Joseph's Hospice, London. 3. Early Challenges in Palliative Care from a Social Work Perspective: The gift of serendipity. Julia Franklin, Retired Social Worker and now Supervisor and Consultant to a number of Hospices. 4. On becoming a Practitioner: The view of a psychologist Robin Trewartha, Psychologist and former Probation Officer. 5. Explorations in Creative Writing: `I recharge myself from my experience'. Gillie Bolton, Senior Research Fellow in Medical Humanities, Sheffield University. 6. Learning in Palliative Care: Stories from and for my journey. David Oliviere, Principal Lecturer, Middlesex University. 7. Accompanying the Dying. Lois Pollock, Social Worker, St Christopher's Hospice. 8. The Loss of Children: Thinking the unthinkable. Gordon Riches. 9. Reflections on my Roots and Personal Journey. Christina Mason, St Joseph's Hospice, London. 10. The Nursing Perspective: Pain is the breaking of the shell that encases your understanding. Kevin Yates, Director of Nursing, St Joseph's Hospice, London. 11. Overview. Christina Mason, St Joseph's Hospice, London. Index.

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Book SynopsisDying, Bereavement and the Healing Arts describes a range of successful programmes pioneered by artists, writers, nurses, musicians, therapists, social workers, and chaplains in palliative care settings. These range from simple painting and writing activities to organized communal activities like writing and performing a play.The arts are shown to offer a means to reflect on memories, hopes, fears and anxieties, and gently explore the emotional, spiritual, and psychological issues which can aid a fuller understanding of oneself and one's condition. The arts also serve as a way to communicate difficult and complex feelings to professionals or family members not possible in everyday conversation.Dying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting.Trade ReviewThis book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKBolton's collection serves up national and international sources of inspiration in the healing arts...This text...can be seen not only as offering accounts of the role of creativity in varying context of palliative care, but also as a collation of creative acts in their own right. Poetry, photographs, painting, excerpts from dialogue and profoundly moving reflexive writing are all presented to inspire the reader to consider their own creative responses to the world and their part in it...This book should be sought by anyone interested in the potential of their own creativity and others to help them discover fresh and fulfilling ways to heal in the complex situations surrounding serious illness and loss. It can also be recommended to students and researchers in the palliative field to help them develop a truly holistic mode to investigate this field. -- Hospice Information Bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, Colchester, UKThe writing is blunt, the topics heart-wrenching, and the words poignant, addressing issues such as the death of a beloved child, spouse, parent or friend; the pain of illness and treatment; and the helplessness of watching a loved one suffer. Although these are hard topics to consider, it can also be a relief to have difficult subjects acknowledged... DYING BEREAVEMENT AND THE HEALING ARTS reminds readers that creative expression is available to everyone as a means to understanding and growing through life's changes and challenges. -- Journal of the American Art Therapy AssociationGillie Bolton has been an inspirational voice and a practitioner in the involvement which has simulated a wider appreciation of what "makes" health. This volume of twenty essays is a delight - rather like a well-prepared buffet - something to nourish those seeking deeper food for thought and practice. This book will both feed any reader who wishes to be enriched by listening to experience and also find a way to express what is humane in the face of human frailty. -- The Christian ParapsychologistFor anyone curious about how it is that the arts can evoke, enliven, reassure, educate, recount and then enable us to share with others, this is the place to start. -- Bereavement CareEach chapter is very diverse with contributions from patients, survivors, professional healthcare workers and artists. I would recommend this book to all. As healthcare professionals we can never stop trying to understand our fellow human beings hopes and fears. -- Journal of Community NursingDying, Bereavement and the Healing Arts offers valuable insights and inspiration for any practitioner working in a palliative care setting. In my opinion, this is a rare case of something doing exactly what it says on the tin. -- DramatherapyThis is a thought provoking book which invites the reader to consider how art can be healing for the patient, the bereaved and the healthcare professional... The common thread throughout the chapters is how being creative often speaks new leases of life in both patient and those surround her. At the end of the day the book shows how the creative arts have hidden health benefits for patients, the bereaved and healthcare professionals whether that comes from looking at Van Gogh, listening to Bach, writing a poem or moulding some clay. -- Ian Stirling, Scottish Journal of Healthcare ChaplaincyTable of ContentsForeword, Baroness Professor Ilora Finlay of Llandaff.Preface Poem: Nest, Penelope Shuttle 1: Introduction: Dying,Bereavement and the Healing Arts, Gillie Bolton. 2: A Death Photographed: Michael Willson's Story, Paul Schatzberger and Gillie Bolton 3: Arts, Electronic Media, Movement: Rosetta Life, Filipa Pereira-Stubbs and Chris Rawlence. 4: Theatre for Professional Development, Ashley Barnes 5: Visual Art for Professional Development, Sandra Bertman 6: Healing Arts in Palliative Care, Christina Mason. 7: Imagination and Health in Cancer Care and Palliative Care, John Graham-Pole 8: Visual Art in Cancer Care and Palliative Care, Anna Lidzey, Michele Angelo Petrone, Julie Sanders and Gillie Bolton 9: Making Music in Children's Hospices, Lesley Schatzberger 10: Healing Writing in Palliative Care, Sheelagh Gallagher, Kate D'Lima, Kaichiro Tamba, Hilary Elfick, with David Head and Gillie Bolton 11: Creating The Tuesday Group: A Palliative Care Play, Bobbie Farsides and Sue Eckstein 12: The Power of Music, Diana Greenman, Frans Meulenberg and Mike White 13: Writing through Bereavement: River Wolton, Haifa Al Sanousi, Amy Kuebelbeck, Judy Clinton and Robert Hamberger 14: A Legacy of Understanding, Monica Suswin 15: Reading to Help Practitioners and Patients, Ted Bowman and Rogan Wolf 16: Artists: Survivors, Tim Jeeves, Mitzi Blennerhassett and Michele Angelo Petrone, Artist 17: Professionals: Artists, Steve Seagull, Tim Metcalf, Oliver Samuel, Kieran Walsh and Christopher Johns 18: Spiritual and Artistic Care: Memorial Services, Mark Cobb and Giles Legood 19: The Art of Care, Yvonne Yi-Wood Mak , Ann Williams, Corine Koppenol and Sinead Donnelly 20: Reflections Towards the Future, Nigel Hartey. List of Contributors. References. Subject Index. Author Index.

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Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.

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Book Synopsis*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards*The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction.This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.Trade Review*Highly Commended in the Popular Medicine category of the 2012 BMA Medical Book Awards*'provides thoughtful and evidence based advice and tuition on working with this client group, and a reminder of the importance of seeing a person as a "whole" and not just their condition.' -- College of Occupational Therapy Specialist Section, Older People NewsletterThis is a clever little book in that it carefully balances Eastern philosophy of the body-energy-spirit system of integrative care with evidence-based studies focusing on the effectiveness and benefits of hand massage... Take My Hand is a book that we can all use - practitioners, daughters and sons, husbands and wives, sisters and brothers - to provide those we care for with the gift that is free but most valuable: our comforting touch. -- Dementia UK and Inside Palliative CareWhile massage and yoga may seem a little bit too "alternative" to some readers, these two books make a very good case for their use in care homes. They both put forward simple and unthreatening exercises that can be led by staff at any level. I would recommend starting any such program (massage or yoga) by getting staff to learn and appreciate the techniques by practicing on each other - a good way to begin a team meeting. -- Caring TimesGoldschmidt and van Meines' book will give new hope, direction and skills to those who want to help their fellow human beings as they face some of life's greatest challenges. Caregivers will find practical information on ways to use touch and hand massage to ease the suffering and enhance the quality of life for those who are terminally ill or who have advanced dementia. With its exceptionally clear and straightforward directions (and edifying illustrations) for carrying out the hand massage, this book is a natural for inclusion in long-term care in-service classes. -- Nanette A. Kramer, Ph.D., Clinical Geropsychologist, Brooklyn, New YorkFor family members who wonder 'what can I do?' [this book] offers profound information about a simple yet deeply meaningful way to connect with loved ones who have dementia or are at the end of life. -- Megan Haungs, licensed acupuncturist and massage therapist, and former Dean of the Acupuncture Program at Swedish Institute, College of Health Sciences, New YorkMuch more than a how-to book, Comforting Touch in Dementia and End of Life Care is really an open invitation to the transformative experience of providing simple, conscious touch to loved ones who are in one way or another slipping away from us. Drawing from sources as varied as mindfulness practices, research, Chinese Medicine, and moving personal stories, the authors provide caregivers with a clear path to offering simple hand massage, and to the benefits and profound sense of connection that often result. -- Lucy Liben, Dean of the Massage Therapy Program at Swedish Institute, College of Health Sciences, New YorkIn my work at the nursing home I found that when I used a hand massage it helped residents feel calm and cared for. It was like meditating, or taking a drink of cool water, creating a sense of peace and quiet. We discovered that when we share touch we not only send a message, we also receive one. That's what this approach is all about. -- Hermine Mitchell, certified nursing assistant, St. Alban's, New YorkTable of ContentsAcknowledgements. Part 1. A Sense of Connection. 1. Your Radiant Sea. 2. Sharing the Benefits of Touch. 3. The Body as Particles and Waves. 4. A Tangible Spirit. Part 2. Focusing Your Touch. 5. Physical and Energetic Qualities of the Hand. 6. Before You Begin: Observing Best Practices. 7. Elements of a Session. 8. A Hand Massage Sequence. 9. At a Glance: The Sequence and Reminders. Part 3: The Reality of Practicing. 10. Ten Challenges to Sharing Touch. 11. Adapting for Different Needs. 12. Comforting Touch in End of Life Care. Resources. References. Index.

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Book Synopsis

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