Terminal care nursing Books

Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.

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Book Synopsis*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards*The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction.This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.Trade Review*Highly Commended in the Popular Medicine category of the 2012 BMA Medical Book Awards*'provides thoughtful and evidence based advice and tuition on working with this client group, and a reminder of the importance of seeing a person as a "whole" and not just their condition.' -- College of Occupational Therapy Specialist Section, Older People NewsletterThis is a clever little book in that it carefully balances Eastern philosophy of the body-energy-spirit system of integrative care with evidence-based studies focusing on the effectiveness and benefits of hand massage... Take My Hand is a book that we can all use - practitioners, daughters and sons, husbands and wives, sisters and brothers - to provide those we care for with the gift that is free but most valuable: our comforting touch. -- Dementia UK and Inside Palliative CareWhile massage and yoga may seem a little bit too "alternative" to some readers, these two books make a very good case for their use in care homes. They both put forward simple and unthreatening exercises that can be led by staff at any level. I would recommend starting any such program (massage or yoga) by getting staff to learn and appreciate the techniques by practicing on each other - a good way to begin a team meeting. -- Caring TimesGoldschmidt and van Meines' book will give new hope, direction and skills to those who want to help their fellow human beings as they face some of life's greatest challenges. Caregivers will find practical information on ways to use touch and hand massage to ease the suffering and enhance the quality of life for those who are terminally ill or who have advanced dementia. With its exceptionally clear and straightforward directions (and edifying illustrations) for carrying out the hand massage, this book is a natural for inclusion in long-term care in-service classes. -- Nanette A. Kramer, Ph.D., Clinical Geropsychologist, Brooklyn, New YorkFor family members who wonder 'what can I do?' [this book] offers profound information about a simple yet deeply meaningful way to connect with loved ones who have dementia or are at the end of life. -- Megan Haungs, licensed acupuncturist and massage therapist, and former Dean of the Acupuncture Program at Swedish Institute, College of Health Sciences, New YorkMuch more than a how-to book, Comforting Touch in Dementia and End of Life Care is really an open invitation to the transformative experience of providing simple, conscious touch to loved ones who are in one way or another slipping away from us. Drawing from sources as varied as mindfulness practices, research, Chinese Medicine, and moving personal stories, the authors provide caregivers with a clear path to offering simple hand massage, and to the benefits and profound sense of connection that often result. -- Lucy Liben, Dean of the Massage Therapy Program at Swedish Institute, College of Health Sciences, New YorkIn my work at the nursing home I found that when I used a hand massage it helped residents feel calm and cared for. It was like meditating, or taking a drink of cool water, creating a sense of peace and quiet. We discovered that when we share touch we not only send a message, we also receive one. That's what this approach is all about. -- Hermine Mitchell, certified nursing assistant, St. Alban's, New YorkTable of ContentsAcknowledgements. Part 1. A Sense of Connection. 1. Your Radiant Sea. 2. Sharing the Benefits of Touch. 3. The Body as Particles and Waves. 4. A Tangible Spirit. Part 2. Focusing Your Touch. 5. Physical and Energetic Qualities of the Hand. 6. Before You Begin: Observing Best Practices. 7. Elements of a Session. 8. A Hand Massage Sequence. 9. At a Glance: The Sequence and Reminders. Part 3: The Reality of Practicing. 10. Ten Challenges to Sharing Touch. 11. Adapting for Different Needs. 12. Comforting Touch in End of Life Care. Resources. References. Index.

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Book SynopsisAs someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.Trade ReviewThis book draws on the rich experience and combined expertise of the authors to offer a resource for all those supporting people on their end of life pathway…[G]lobally we find a remarkable consistency across cultures of what people want when they are dying. They want care which manages distressing symptoms in the most effective way; they want to be treated with compassion, dignity and respect; they want to have the opportunity to set their affairs in order and to be surrounded by those people who are important to them. The implication of meeting those needs, as the core message of this book proclaims, is that end of life care is everybody's business. -- From the Foreword by Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission, UKThis clearly written and comprehensive book will be a valuable source of information and resource for any professional or student interested in improving the practical delivery of end of life care. It describes the methodologies, development and successes of the ground breaking national strategy for End of Life Care launched in England in 2008. The material is brought to life with case studies and best practice examples and reflection is encouraged through the use of 'stop and think' questions. -- Barbara Monroe, Chief Executive, St Christopher's Hospice, UKThis book provides a comprehensive, up-to-date, research-based account of multi-professional practice in end-of-life care from different professional perspectives. Its authoritative knowledge base relies on the work of the National End of Life Care Programme in England's Department of Health over several years. Its strong focus on flexible, holistic quality of care will make it valuable for specialist and general practitioners in hospital and community health and social care services. -- Malcolm Payne, consultant in social work and end-of-life care and author of Social Work in End-of-Life and Palliative CareThis book elegantly captures how the relatively new focus on 'end of life care' provides a conceptual framework with which to think in a different way about meeting these new needs and has led to change on a wide front…Readers can find interesting synopses of interdisciplinary perspectives on death, dying and epidemiological transition, together with up to date advice about best practice in care planning, communication and coordination of services; all set out in a highly accessible manner. In their discussions, the authors do not shy away from delineating new challenges ahead that will require all of us to work together to continue to transform end of life care so that it better meets the needs of all those facing death, whatever their age or diagnosis, and wherever they are cared for. -- Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham, UKTable of ContentsAcknowledgements. 1. The Context and Philosophy of End of Life Care. 2. Discussions as the End of Life Approaches 3. Assessing Need and Planning Care. 4. Co-ordination of Care. 5. Delivery of High Quality Care in Different Settings. 6. Care in the Last Days of Life. 7. Care after Death. 8. Quality End of Life Care for All. References. Index.

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Book SynopsisWhat do you need to know in order to provide the best possible care for sick children of different faiths? What, in the context of the young person's faith, might it be helpful to know to support the child and the family, improve care, communicate sensitively and avoid causing offence? Drawing on extensive, evidence-based research and practice, this practical resource addresses the multi-faith needs of sick and dying children and young people in hospitals and the wider community. Covering Islam, Christianity, Hinduism, Sikhism, Judaism and Buddhism, it provides the key information needed to help multi-disciplinary healthcare staff offer the best, culturally-appropriate care to sick children and their families. The book discusses daily, palliative, end of life and bereavement care in a range of settings, including hospitals, hospices, schools and home. The information provided covers those aspects of the religions discussed that are essential for healthcare staff to understand, including modesty and hygiene, taboos, food and prohibited products, age-related issues, sacred objects, visitors, and the expectations of the family. It includes important information on the issues of disability and mental health in each faith as well as addressing the significance within different faith traditions of the transitions from childhood to adolescence to adulthood. A comprehensive resource that uniquely focuses on the care needs of sick children from different faiths, this book will be of immeasurable value to multi-disciplinary healthcare professionals including doctors, nurses, bereavement support and palliative care workers, carers, counsellors, chaplains and arts therapists.Trade Review...I was left a little in awe at what these people were managing to do. I was pleased to see Nash's statement that his team's work was not in the interests of some multicultural political correctness, but because they believed their paediatric patients and their families would get better care. This book has got a lot to offer anybody who works in palliative care in a multifaith setting, not just the chaplaincy team. -- Roger Woodruff, International Association for Hospice and Palliative Care NewsletterThe book is full of cultural and religious helps that concern the entire healthcare treatment team from routine care to palliative and end-of-life care...the book is truly a resource for all bedside clinicians, including professional chaplains, nursing, medicine and other therapeutic specialty clinicians, too. Each chapter focuses on care for a child and family from each of the faith traditions. A Buddhist mother's reflection on spiritual and religious care needs during the premature birth of her twins was particularly enlightening and informative. Then in the final chapter, Paul Nash does a nice job of highlighting spiritual assessment tools and setting up spiritual care that is reflective of pathway care. This book will help new chaplains and seasoned chaplains who need a thorough resource and guide for pediatric palliative and end-of-life care, and the care preceding those difficult and trying times. -- George M. Rossi MA MDiv BCC, clinical chaplain, Pastoral Care Services, Medical University of South Carolina * APC Forum, Association of Professional Chaplains *This is a well written book that is easy to refer to when needed and can be used by any level of chaplain or health care professional. Having been a chaplain for several years and worked and specialized in paediatric settings I found this book refreshing, educational and both uplifting and encouraging. I know I will be re-reading it again and again in my work. -- Revd Philip Wright * Health and Social Care Chaplaincy, Issue 4.1 (June) 2016 *Table of ContentsIntroduction. Revd. Paul Nash, Birmingham Children's Hospital, UK. 1. 5 key objectives and values of multifaith care. Paul Nash. 2. Care of a Buddhist child and their family. Keith Munnings, Buddhist Healthcare Chaplaincy Group, UK. Madeleine Parkes, Birmingham and Solihull Mental Health NHS Foundation Trust and Birminghan Children's Hospital, UK. 3. Care of a Christian child and their family. Paul Nash. Madeleine Parkes 4. Care of a Hindu child and their family. Madeleine Parkes. Rakesh Bhatt, Hindu Chaplaincy Services, Paediatric, Acute and Mental Health NHS Foundation Trusts, UK. 5. Care of a Jewish child and their family. Madeleine Parkes. Rabbi Naomi Kalish, NYP Morgan Stanley Children's Hospital, US. 6. Care of a Muslim child and their family. Zamir Hussain, Birmingham Children's Hospital. Madeleine Parkes 7. Care of a Sikh child and their family. Madeleine Parkes. Parkash Sohal, Sikh Chaplaincy Services, Paediatric and Acute NHS Services, West Midlands, UK. Surinder Sidhu, Birmingham Children's Hospital, UK. 8. Spiritual care - Christmas in July for a Hindu family. Revd. Claire Carson, Hospital Chaplain, London, UK. 9. A Buddhist mother's reflections on spiritual and religious care. Kusumavarsa Hart, therapist and writer, West Midlands, UK. 10. Engaging health care and religious care. Paul Nash. Appendix 1. BCH Palliative, End of Life and Bereavement Issues in Religious Care of Children. Appendix 2. Key festivals. Appendix 3. Example of a religious care pathway and care plan.

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Book SynopsisRapid advances in modern medicine and diagnostic techniques have revolutionized the way we think about death and the processes of dying. Where once death was defined as the absence of respiration or heartbeat, today patients can be kept alive for months or even years hooked up to a respirator and feeding tube. Ivan and Melrose carefully explain the various medical processes involved in death and dying. In so doing they also face the many ethical, moral and legal dilemmas that confront doctors today, as well as the decisions that may have to be taken by relatives. What, they ask, is the meaning of "life" when large areas of a person's brain have suffered irreversible damage? And what of the economic quandary when valuable hospital beds are occupied by people in a persistent vegetative state with no hope of recovery?Table of ContentsHistory of the definitions of death Coma Persistent vegetative state The "Do not resuscitate" order Brain death Harvesting and transplanting organs Dying with dignity and palliative care The living will The right to die Euthanasia and assisted suicide Near-death experiences Life after death? Body, Mind and Soul

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Book SynopsisA resource on end-of-life care for healthcare practitioners who work with the terminally ill and their families. It addresses practice with people who have specific illnesses such as AIDS, bone marrow disease, and cancer and more. It also includes content on trauma and developmental issues for children, adults, and the aging who are dying.Trade ReviewBerzoff's and Silverman's text is a compendium of educational material uniquely edited to facilitate social workers' understanding of how to think about, talk with and practice caring for people with life-limiting illness, their caregivers and themselves. It should be required reading for all healthcare professionals who provide end-of-life care. From its use of personal narratives to its emphasis on the theoretical underpinnings of social work practice and research, this resource models excellence in teaching. It is authoritative, comprehensive, practical and readable. Although each of the chapters could stand alone, together they carefully weave the complex elements of what healthcare professionals need to know to be both competent and compassionate in providing end-of-life care. This resource thoroughly addresses the educational challenges set forth in the three Institute of Medicine reports calling for the education of healthcare professionals to facilitate improved care to people with life-limiting illness.Kathleen M. Foley, MDProfessor of Neurology, Neuroscience & Clinical PharmacologyWeill Medical School of Cornell University Attending NeurologistMemorial Sloan-Kettering Cancer CenterPalliative Care Initiative Network PublicHealth ProgramOpen Society Institute -- Kathleen M. Foley, MD I would highly recommend Living with Dying. -- Reverend Francis C. Zanger American Journal of Hospice and Palliative Care This text offers a successful interdisciplinary approach to understanding suffering, the vital relationship of self to others (and the importance of self-care), and the competencies needed to promote compassionate, professional palliative care...Recommended. Choice This text is an excellent resource. -- Katherine Miller Palliative Medicine It beautifully encapsulates the profession of social work and the care that social workers provide for the dying and bereaved. -- Cheryl-Anne Cait Smith College Studies in Social Work Living with Dying is the first comprehensive resource on end-of-life care... Social workers will find this text indispensable. -- Carole A. Winston Journal of Social Work in End-of-Life & Palliative CareTable of ContentsContents List of Contributors Acknowledgments Foreword, by Thomas R. Egnew Introduction Part I Narratives in End-of-Life Care 1. Fragments of Love: Explorations in the Ethnography of Suffering and Professional Caregiving, by David Browning 2. The Symptom Is Stillness: Living with and Dying from ALS, by Ellen Pulleyblank Coffey 3. The Loss of a Child to Cancer: From Case to Caseworker, by Roberta Hoffman 4. September 11: Reflections on Living with Dying in Disaster Relief, by es Gallo-Silver and Penny Damaskos Part II Theoretical Aspects of Death and Dying Introduction: Theory 5. What Is a Respectful Death? by Stu Farber, Thomas Egnew, and Annalu Farber 6. Dying and Bereavement in Historical Perspective, by Phyllis R. Silverman 7. The History of Social Work in Hospice, by Mary Raymer and Dona Reese 8. The Interdisciplinary Team: An Oxymoron? by Inge B. Corless and Patrice K. Nicholas 9. Ethical issues in End-of-Life Care: Social Work and Facilitation and Proactive Intervention, by Patricia O'Donnell 10. Spirituality and End-of-Life Care Practice for Social Workers, by Carolyn Jacobs 11. Gender and Death: Parallel and Intersecting Pathways, by Illene C. Noppe 12. Bereavement: A Time of Transition and Changing Relationships, by Phyllis R. Silverman 13. Psychodynamic Theories in Grief and Bereavement, by Joan Berzoff Part III Clinical Practice Issues in End-of-Life Care Introduction: Clinical Practice 14. The Trajectory of Illness, by Allen Levine and Wendy Karger 15. Clinical Social Work Practice at the End of Life, by Felice Zilberfein and Elizabeth Hurwitz 16. The End of Life at the Beginning of Life: Working with Dying Children and Their Families, by Nancy Cincotta 17. Working with Dying and Bereaved Older People, by Sue Thompson and Neil Thompson 18. Assessing Mental Health Risk in End-of-Life Care, by Katherine Walsh-Burke 19. Pain and Symptom Management: An Essential Role for Social Work, by Terry Altilio

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisSpirituality and Hospice Social Work helps practitioners understand various forms of spiritual assessment for use with their clients. The book teaches practitioners to recognize a client’s spiritual needs and resources, as well as signs of spiritual suffering.Trade ReviewSpirituality frequently becomes more salient as clients approach death. Spiritual needs, for instance, often become more acute. Yet relatively little guidance exists on this critical topic. This important new text addresses this gap in the literature and equips social work practitioners and other hospice workers to navigate the often difficult process of providing spiritual care in hospice settings. Indeed, anyone involved in end-of-life care will likely benefit from this significant contribution. -- David R. Hodge, Arizona State University Callahan's Spirituality in Hospice Social Work is a scholarly yet practical resource for social workers to better recognize and attend to the spiritual needs and distresses of patients suffering from chronic health conditions. This book integrates research and practicality, and provides ways for social workers to facilitate and enhance interprofessional spiritual care while working with spiritual care professionals. The multidimensional systems and relational perspectives of social worker training enhances other clinical team members understanding and implementation of spiritual care, and is a valuable resource not only for social workers, but for other clinicians and students. -- Christina M. Puchalski, Director, George Washington Institute for Spirituality and Health Ann Callahan has integrated insights from social work and other helping professions dedicated to compassionate and skillful end-of-life care. Thus she provides an excellent framework for spiritually sensitive assessment and practice that honors the diversity of worldviews, highlights qualities necessary for a caring therapeutic relationship, and supports people's resilience and growth even while dying. This will prepare social workers well for their direct work with clients and for their partnership in palliative care and hospice teams. -- Edward R. Canda, The University of Kansas School of Social WelfareTable of ContentsIntroduction Part I. Understanding Key Components 1. Champion of Spiritual Care 2. Spiritual Diversity 3. Spiritual Needs 4. Spiritual Suffering Part II. Facilitating Quality Spiritual Care 5. Relational Spirituality 6. Spiritual Care 7. Spiritual Sensitivity 8. Spiritual Competence Works Cited Index

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

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Book SynopsisThrough drawings, paintings, and poetic, prayerful affirmations grounded firmly in the Jewish experience, the author offers a creative response to her mother’s final illness and death. Trade Review“Life Support exemplifies the genre of graphic medicine. Spare and raw, we are thrust into the physicality of health and illness, bodies and fluids, as well as emotions deep and intense. She offers us feelings, ugly and unrepentant at times, with moments of grace at others, and in the process of the work, reveals a healing balm, years in the making.”—Joel L. Kushner,Director, Kalsman Institute on Judaism and Health“As she attended to her mother’s declining days, Judith Margolis instinctively, deeply recorded them in art and text that have the quality of prayer. One sees in this work the profound tenderness of attention. From within the great hollow of loss, this book offers unexpected comfort. Margolis lifts up an art and practice that attend to the ineffable, and in whose spirit loss becomes presence.”—Elizabeth Robinson,author of On Ghosts“In charting her ‘trajectory from brokenness to wholeness’ through drawing and writing, Margolis offers a uniquely consoling but also affirmative narrative of love and loss.”—Lois Perelson-Gross Graphic Medicine“Margolis’s brief book tackles a hard subject by facing the unpretty reality head-on, giving the reader a window into a world usually whispered about in hushed tones, if at all. Beyond being a sensitive tribute to her parents, there is much to consider for families similarly situated. The deft title Life Support can be understood both as the physical machinery used in critical care and as the act of the book’s creation serving as an emotional life preserver buoying the book’s author, while benefiting us all.”—Heddy Breuer Abramowitz Jerusalem Post“Margolis, in reviving a combination of art and literature that is religious at its core, has created a deeply original and moving work.”—Julia Stein Rain Taxi Review of Books“Life Support, a book of prayer, is a solicitation. It is an invitation to sit quietly and pay attention: to the pain of a dying mother and her grieving daughter; to the bonds of life, and grief, that all of us ultimately share, just by dint of still being here.”—Tahneer Oksman Shofar“Life Support reminded me that reading can be about more than words. A good book can be a fully sensory experience: The smell of the pages, the crackle of the spine, the texture of the cover, the delights of a good font or drawing. Life Support is all of that and more.”—Susan Sered Nashim

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Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181

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Book SynopsisWhether residing at home, in assisted living or in a nursing facility, older adults have unique nutrition needs. Like the previous edition, this hands-on reference encompasses the total perspective on person-driven nutrition care of older adults, from nutrition and disease states to regulatory compliance in health care settings.

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Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

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Book SynopsisThis is a comprehensive account of the psychology of death and bereavement, which places the subject within the contexts of the major world religions and their associated mourning and funeral customs. Clearly written, well referenced and carefully organized, the book examines the thinking of Freud and Jung and of modern psychiatrists, and also discusses those aspects of death - bereavement visions, euthanasia, grief for a pet and suicide - which are not covered elsewhere.The second edition has enabled the contents to be updated and enlarged. There are five new chapters, including one dealing with the scientific assessment of death: another looks at the psychological insights provided by Shakespeare, whilst a third deals with the beliefs and customs of minority groups - the Bahais, Jehovah's Witnesses, Mormons, Quakers, Spiritualists and Seventh-day Adventists. The text is highly accessible and uses case histories to bridge the gap between theory and experience in an novel and creative way.Table of Contents1 - What is Death? 2 - Western Attitudes to Death. 3 - Reincarnation and Rebirth. 4 - The Cult of The Ancestors. 5 - African and Afro-caribbean beliefs and Customs. 6 - Jewish and Muslim Funeral and Mourning Customs. 7 - The funeral Rites of Christians. 8 - New Religions and new Sects. 9 - The Reburial issue. 10 - Freud, Mourning and Death. 11 - Jung and Self-realization. 12 - Shakespeare, Death and Grief . 13 - Dying, The Last Months . 14 - Caring for The dying. 15 - Bereavement, The Basics. 16 - Bereavement, Medical and Social Issues. 17 - The Death of a Child. 18 - A Child's Response to Death. 19 - Suicide. 20 - Euthanasia and Assisted Suicide. 21 - The Death of a pet. 22 - The Bereaved and the Living Dead. 23 - Near Death Experiences. 24 - The Significance of death.

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Book SynopsisThis innovative care program blends nursing care and meaningful activities to promote peaceful and relaxing end-of-life experiences for older adults with late-stage dementia. The first program created specifically for this hardest-to-serve population, Namaste Care also meets the latest regulatory guidelines for person-centered activity programming. The author has developed the program to be adaptable to individual as well as group settings, from nursing home to bedside at home. With this practical guide, skilled nursing facilities, assisted living settings, memory care communities, and hospices can easily and affordably implement a Namaste Care program not only to improve resident quality of life but also to increase family involvement and strengthen staff morale. New to the revised edition: Detailed descriptions of Namaste Care (NC) Group Program and the NC Individual Program, and instructions for implementing NC in any setting More case studies and stories to illustrate creative uses of Namaste Care and effective results Further international focus, incorporating programs and perspectives from Australia, the U.K., Europe, as well as Singapore and Indonesia. In-depth description of the physical setting and supplies needed for an effective NC program. Completely updated references Trade Review“Voted ‘Book of the Year, in 2013 by the American Journal of Nursing, Professor Joyce Simard’s 3rd edition of Namaste Care has been eagerly awaited. Full of the wisdom and practicalities of its original purpose for people isolated with advanced dementia, it has been expanded to include individual care at the bedside in the last days of life and at home. It remains a 'must.'" - Jo Hockley, RN, Ph.D., OBE Senior Research Fellow, University of Edinburgh“It is with great pleasure and honor that I endorse Joyce Simard’s 3rd edition of The End-of-Life Namaste Care Program for People with Dementia. Namaste began at the Vermont Veterans’ Home in Bennington, VT over 20 years ago, and was developed to meet the unique needs of people with advanced dementia who often fall through the cracks in long-term care. This sacred programs embraces the person’s humanity and ensures that the person living with advanced dementia or end of life issues fully lives until their last breath.” - Christina M. Cosgrove, LICSW, Behavioral Health Director, Vermont Veterans’ Home, and designated Namaste Care International Champion in the U.S.Table of ContentsAbout the AuthorForeword, by Rishi JawaheerPrefaceAcknowledgmentsIntroduction: The BeginningPART I: THE NEED FOR NAMASTE CAREWhat is Namaste Care?End-of-Life Dementia Care and HospicePART II: NAMASTE CARE IN PRACTICEBeginning the Namaste Care DayThe Namaste Care Group ProgramThe Namaste Care Individual ProgramThe Physical SettingPlanning and Implementing Namaste CarePART III: DEATH AND DYING CAREQuality of Life at the End of LifeMaking the TransitionAfter a DeathAppendixesNamaste Care Nursing SuppliesNamaste Care Activity SuppliesNamaste Care ResourcesNamaste Care Activities of Daily Living ChecklistDementia Bill of RightsPain Assessment in Advanced Dementia (PAINAD) ScaleReferencesIndex

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a huge range and FREE tracked UK delivery on ALL orders.

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Book SynopsisThis easy-to-use guide provides a quick reference to the principles of palliative and end-of-life care for adults, to help you enable your patients to not only die peacefully but also live until they die. The Nursing & Health Survival Guides have evolved - take a look at our our app for iPhone and iPad.Table of ContentsWhat is palliative care?The patient journeyRole of the nurseCommunication in palliative careHolistic assessmentSymptom management in palliative and end of life carePain managementNausea and vomitingBreathlessnessConstipationFatigueCare at end of lifeSymptoms at end of lifeA good deathCare in the last few weeks and daysSupporting family and carersLooking after self

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a huge range and FREE tracked UK delivery on ALL orders.

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a huge range and FREE tracked UK delivery on ALL orders.

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Book SynopsisWith contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.Trade Review"An inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients." (Journal of the American Academy of Child and Adolescent Psychiatry)"Table of ContentsList of Contributors Preface Part I: Societal and Institutional IssuesChapter 1. Epidemiology and Health Services Research Chapter 2. Goals, Values, and Confl ict Resolution Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions Chapter 4. Educational Initiatives Chapter 5. The Art of Advocacy Part II: The Cycle of CareChapter 6. Decision Making Chapter 7. Communication Skills and Relational Abilities Chapter 8. Psychosocial Needs of the Child and Family Chapter 9. Spiritual Dimensions Chapter 10. Holistic Management of Symptoms Chapter 11. Bereavement Chapter 12. The Other Side of Caring: Caregiver Suffering Part III: Special Care Environments and Patient PopulationsChapter 13. Palliative Care in the Neonatal-Perinatal Period Chapter 14. Palliative Care in the Pediatric Intensive Care Setting Chapter 15. Palliative Care in the Home, School, and Community Chapter 16. Palliative Care for the Child Who Has a Genetic ConditionChapter 17. Integrating Palliative Care with HIV Care and TreatmentChapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology Index

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Book SynopsisA Nurse’s Life tells the remarkable story of one woman’s devotion to a life of care in the medical profession. Beginning her career as a midwife, Geralyn later became an authority in palliative care, but throughout her goal has always been about understanding what it means to truly care for another person. That is precisely what she does in this book: portray the essence of nursing.After years in the hospital wards Geralyn decided it was time for a change and volunteered to work for Concern Worldwide in a two-year post among the most needy in Bangladesh. Here she learned first-hand about the link between poverty and health care. Upon her return to Ireland she returned to academia and enrolled in an MsC programme at Trinity College Dublin. Eventually she became Assistant Professor in the School of Nursing at Trinity.Interspersed between her highly entertaining personal stories as a nurse, Geralyn expounds on many of the key issues in the nursing profession today: the changing nature of nursing and environment of care; challenges in providing person-centred care in the hospital setting, the essential qualities needed to be a good nurse; the problematic doctor/nurse/administration relationship; the future of nursing and possible ways to address the current challenges; and much more.More recently, Geralyn experienced nursing from the other side when she was diagnosed with a brain tumour that while benign meant surgery, radiotherapy and several new chronic conditions as a result. This has given her a deeper, first-hand understanding of nursing and the extraordinary reality of loving care.

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Book Synopsis

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