Description
Book SynopsisSupporting the Child and the Family in Paediatric Palliative Care provides a comprehensive overview of good practice in caring for terminally-ill children, young people and their families.
Drawing from extensive personal experiences of working in paediatric palliative care, the author provides guidance on issues including symptom management and pain relief; cultural, religious and spiritual aspects of care; and the role of education for life-limited children. Addressing the importance of individual needs, the book looks at emotional, social and cognitive support at different stages of the illness, how parents and professionals can respond to children's own questions about death, and the impact of life-limiting illness on the whole family - including grandparents and siblings. The material offers helpful suggestions on how to support families in making informed choices during distressing periods, such as where their child will die and how to prepare for the funeral.
This book is a practical and invaluable tool for nurses, paediatricians, hospice care staff, bereavement counsellors and all those caring for life-limited children.
Trade ReviewA book with practical ideas, supported by references from the literature and the findings of recent research projects. -- Educational Book Review
The book will be invaluable to anyone thinking of working in this area and will also service those already established in this field. I highly recommend it. -- Nursing Standard
Useful practical help is offered on the support of children and families as they make difficult choices at very stressful times, this will be appreciated by all professionals working in this area... Supporting the Child and the Family in Pediatric Care is a most helpful and accessible book... The multi disciplinary approach would make it a useful tool to all medical, pastoral or support staff. -- Evelyn Cairns, Scottish Journal of Healthcare Chaplaincy
Table of ContentsForeword. Introduction. Introduction to Paediatric Palliative Care. 1. The Historical Background of Paediatric Palliative Care. 2. Working Collaboratively. Responding to Holistic Needs from Diagnosis through to Terminal Care and Bereavement. 3. Assessment of Needs and Models of Care. 4. Managing Children's Pain. 5. The End of Life Phase of Care. 6. Administrative and Practical Requirements When a Child Dies. 7. The Child's Funeral. 8. Counselling Support. 9. The Financial Impact of Caring. Meeting Individual Needs. 10. Children's Developmental Understanding and Emotional Response to Death and Dying. 11. The Impact of Life-limiting Illness on the Family. 12. Continuing Bonds. 13. Working with Siblings of Life-limited Children. 14. Grandparent Support. 15. Religious, Cultural, Secular and Spiritual Aspects of Care. 16. Post Mortem, Organ Donation and Tissue Retention. 17. The Education of the Life-limited Child. 18. Transition from Paediatric Palliative Care to Adult Services. 19. Acknowledging Staff Stress and Providing Support. The Way Forward. 20. Maintaining the Quality of Care. 21. The Role of Research and Development in Children's Hospices. References. Subject Index. Author Index.
