Description
Book SynopsisWith contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
Trade Review"An inspiring and accessible look at what end-of-life care for children should be - it is a text that should grace the shelf of every clinician facing the death of young patients." (Journal of the American Academy of Child and Adolescent Psychiatry)"
Table of ContentsList of Contributors
Preface
Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research
Chapter 2. Goals, Values, and Confl ict Resolution
Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions
Chapter 4. Educational Initiatives
Chapter 5. The Art of Advocacy
Part II: The Cycle of Care
Chapter 6. Decision Making
Chapter 7. Communication Skills and Relational Abilities
Chapter 8. Psychosocial Needs of the Child and Family
Chapter 9. Spiritual Dimensions
Chapter 10. Holistic Management of Symptoms
Chapter 11. Bereavement
Chapter 12. The Other Side of Caring: Caregiver Suffering
Part III: Special Care Environments and Patient Populations
Chapter 13. Palliative Care in the Neonatal-Perinatal Period
Chapter 14. Palliative Care in the Pediatric Intensive Care Setting
Chapter 15. Palliative Care in the Home, School, and Community
Chapter 16. Palliative Care for the Child Who Has a Genetic Condition
Chapter 17. Integrating Palliative Care with HIV Care and Treatment
Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology
Index
