Disability: social aspects Books
Demeter Press Disabled Mothers: Stories and Scholarship By and
Book SynopsisThis collection of 18 scholarly works and personal accounts from Canada, the U.S., and Australia explores and analyzes issues of parenting by mothers with a variety of physical and mental disabilities. The book delves into pregnancy, birth, adoption, child custody, discrimination, and disability politics. Noticing dominant ideas, meanings, and narratives about mothering and disability, as the contributors of this book do, exposes how the actual lives and experiences of mothers with disabilities are key to challenging cultural norms and therefore discrimination.
£24.69
West Virginia University Press Stuttering Meets Sterotype, Stigma, and
Book SynopsisMore than a century of research has sought to identify the causes of stuttering, describe its nature, and enhance its clinical treatment. By contrast, studies directly focused upon public and professional attitudes toward stuttering began in the 1970s. Recent work has taken this research to new levels, including the development of standard attitude measures; addressing the widely reported phenomena of teasing, bullying, and discrimination against people who stutter; and attempting to change public opinion toward stuttering to more accepting and sensitive levels.Stuttering Meets Stereotype, Stigma, and Discrimination: An Overview of Attitude Research is the only reference work to date devoted entirely to the topic of stuttering attitudes. It features comprehensive review chapters by St. Louis, Boyle and Blood, Gabel, Langevin, and Abdalla; an annotated bibliography by Hughes; and experimental studies by other seasoned and new researchers. The book leads the reader through a maze of research efforts, emerging with a clear understanding of the important issues involved and ideas of where to go next. Importantly, the evidence base for stuttering attitude research extends beyond research in this fluency disorder to such areas as mental illness, obesity, and race. Thus, although of interest primarily to those who work, interact, or otherwise deal with stuttering, the book has potential for increasing understanding, ameliorating negative attitudes, and informing research on any of a host of other stigmatized conditions.
£42.00
Gallaudet University Press,U.S. My Life of Language
Book SynopsisPaul W. Ogden has dedicated his life to educating young deaf and hard of hearing people and raising awareness of what it means to be deaf in a hearing world. He has taught and mentored a generation of teachers, and his classic volume, The Silent Garden, has served as a guide for parents and educators for over thirty years. Now he tells his personal story of challenges faced and lessons learned, revealing that the critical, guiding factors for him have always been language and successful communication. Born in a time when many deaf children had no access to language, Paul learned spoken and written language skills at a young age through the painstaking efforts of his mother. His tight-knit family, which included one deaf and two hearing older brothers, facilitated open and constant communication using a variety of methods. His father was a pastor who was involved in the civil rights movement. Despite the family's closeness, his father struggled with depression, an illness that would take the life of one of Paul's brothers. As a student at a residential deaf school where the use of American Sign Language (ASL) was suppressed, Paul continued to build on the speech and lipreading skills he had learned at home. He returned home for high school and graduated as co-valedictorian unaware of the standing ovation he received as he walked to the podium. Following a rewarding experience as an undergraduate at Antioch College, Paul went on to earn a PhD from the University of Illinois, a rare accomplishment for a deaf person at that time. During his graduate studies, he finally had the opportunity to learn ASL. As an award-winning professor of Deaf Studies at California State University, Fresno, he successfully petitioned for the university to recognize ASL as a language, and he established the Silent Garden program, which has grown into a flourishing provider of training and resources to support the Deaf community. In My Life of Language, Paul offers eloquent reflections on both the joyful and difficult periods of his life as he navigated relationships, faced discrimination, questioned his faith, and found great happiness in his marriage.
£22.50
Gallaudet University Press,U.S. Silent Life and Silent Language – The Inner Life
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£23.75
Gallaudet University Press,U.S. Paris in America – A Deaf Nanticoke Shoemaker and
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£25.65
Gallaudet University Press,U.S. Elements of French Deaf Heritage
Book SynopsisFrench Deaf culture is regarded as a major influence on the formation of other Deaf cultures around the world, notably American Deaf culture. In Elements of French Deaf Heritage, Ulf Hedberg and Harlan Lane document the development of Deaf culture in France by way of Deaf schools, Deaf associations, private and professional networks, publishing, and the arts. This highly visual work captures these forces from the late 18th century through the end of the 19th century, when cultural formation began to shift to cultural maintenance. Encyclopedic in scope, this examination of the evolution of Deaf ethnicity in France aims to disseminate an extensive amount of archival information, now available for the first time in the English language.Trade Review"Readers can relish the richness of French Deaf heritage by reading about early Deaf founders of schools, teachers, artists, writers, and publishers who formed Deaf associations, Deaf congresses and Deaf presses. Maps, tables, and photographic illustrations (both black-and-white and color) enhance the book’s encyclopedic format. An appendix titled 'Ethnicity in the Deaf-World' offers a primer on the book's underlying premise that Deaf minorities constitute unique ethnic groups worldwide...Highly recommended. All readers." -- J. F. Andrews * CHOICE Reviews *
£44.00
Gallaudet University Press,U.S. Controlling Our Destiny – A Board Member′s View
Book SynopsisIn March 1988, students at Gallaudet University led a successful protest to demand the selection of the university’s first deaf president. The Deaf President Now (DPN) movement was a watershed event in American deaf history; it achieved self-governance for the deaf community and placed Gallaudet in the center of a national media spotlight. Controlling Our Destiny is Philip Bravin’s personal perspective of these momentous events. A lifelong member of the deaf community and proud Gallaudet alumnus, Bravin was a member of the Gallaudet University Board of Trustees and the chair of the presidential search committee during DPN. Although the deaf community had been strongly advocating for a deaf president to lead the university, the board (which had a hearing majority) selected the lone hearing candidate. Bravin recounts the discussions and decision-making that happened behind the scenes leading up to and following the ill-fated announcement. He reflects on the integrity of the process and the internal conflict he experienced as a deaf person who supported a deaf president yet felt compelled to abide by his duties as a board member. After the protests, his leadership was recognized when he was selected as the first deaf chair of the board. Photographs and documents add depth to Bravin’s account, many of which will be seen by the public for the first time. I. King Jordan, the first deaf president of Gallaudet, provides a foreword in which he shares his own unique insight into these events. Controlling Our Destiny captures the energy and the urgency of DPN. Readers will understand the complexities of the presidential search process and the cultural and historical contexts that triggered the protest. Bravin’s memoir contemplates power, access, community, and the enduring legacy of a movement that inspired deaf people around the world.Trade Review“In this essential telling of a unique perspective of DPN, Bravin reveals the power of Deaf leadership and the quest for self-determination. I hope his book inspires more people to share their stories and insights. We keep moving forward with humility and gratitude for those who paved the way for us.” * Roberta Cordano, President, Gallaudet University *“To read Controlling Our Destiny is to be a fly that time travels to 1988 and is on the wall during Gallaudet Board of Trustee deliberations—those that triggered the Deaf President Now movement as well as those that brought it to a favorable end. This book provides an opportunity for readers to gain insights into a part of history previously unavailable to anyone not directly involved in the board deliberations. Phil Bravin does an excellent job of outlining the process by which the presidential search began, moved, and ended—as well as how the board dealt with the aftermath. As Bravin makes clear, the board's actions unintentionally led to a historic civil rights shift for Deaf people in the USA and around the world, shattering glass ceilings for many Deaf people as well as people with disabilities. This book is also timely in emphasizing that self-representation of any group is an absolute requirement, and that every board director has an obligation to ensure their composition reflects the population they serve.” * Howard A. Rosenblum, CEO, National Association of the Deaf *“This book provides a unique firsthand account from a former board member of how the Deaf President Now (DPN) movement toppled hearing domination within the deaf community. This will be an important blueprint for readers on how a minority group and marginalized community controlled by the majority liberated themselves from years of oppression to control its own destiny.” * Benro Ogunyipe, Former President of the National Black Deaf Advocates *“In Phil Bravin’s marvelous book, we learn about the selection process for a new president at Gallaudet that was chaired by Bravin. Out of 87 candidates, his committee sent three names to the board—two deaf candidates and a hearing candidate. The board, overwhelmingly hearing members, chose the hearing candidate by a 10-4 vote with only one hearing board member voting for the deaf candidate. Bravin, who is also deaf, joined the minority deaf members in voting for I. King Jordan. Days later, overcoming long odds, Bravin and Jordan were key players in the Deaf President Now (DPN) movement that included students, faculty, staff, alumni, and other civil rights activists to insist on a deaf president, the resignation of the hearing board chair, and a plan for a majority deaf board. The DPN protesters closed the university, marched on the White House and the U.S. Capitol, and told their compelling story to the world. The newly elected hearing candidate withdrew, and Jordan was elected president and Bravin the chair of the board. Jordan and Bravin went on to compile an amazing record of achievements for Gallaudet and the deaf community. Their wisdom and courage was matched by the leadership of the DPN movement and their followers. Together they made history and paved the way two years later for the Americans with Disabilities Act (ADA).” * David Bonior, Former Member of Congress (D-Michigan) *"Bravin adds a vital perspective not shared previously. He provides an insider’s perspective of the Board of Trustees’ decision process during an event that eventually became a watershed moment for Gallaudet University and the Deaf community...The organization of this book will appeal to educators, members of the Deaf community, and those new to Deaf culture." -- Janice Smith Warshaw * Journal of Deaf Studies and Deaf Education *
£20.70
Leaning Rock Press LLC Yes: The Story of a Dreamer
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£19.00
Ink & Magick A Very Witchy Yuletide
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£14.87
Strategic Book Publishing Live Life From The Heart: 52 Weeks to a Life of
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£20.63
Small Batch Books Look Both Ways
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£35.85
Bellevue Literary Press Your Hearts, Your Scars
Book SynopsisEngaging, funny, and unflinching essays about coming of age as a transplant patient and living each day as a giftAdina Talve-Goodman was born with a congenital heart condition and survived multiple operations over the course of her childhood, including a heart transplant at age nineteen. In these seven essays, she tells the story of her chronic illness and her youthful search for love and meaning, never forgetting that her adult life is tied to the loss of another person—the donor of her transplanted heart.Whether writing about the experience of taking her old heart home from the hospital (and passing it around the Thanksgiving table), a summer camp for young transplant patients, or a memorable night on the town, Talve-Goodman’s writing is filled with curiosity, humor, and compassion. Published posthumously, Your Hearts, Your Scars is the work of a writer wise beyond her years, a moving reflection on chance and gratitude, and a testament to hope and kindness.Trade ReviewWingate Prize ShortlistReading Group Choices “Top Picks” selectionJewish Women’s Archive Book Club PickShelf Unbound “Recommended Reading” selectionHadassah Magazine “Reading List” selectionBook Riot “New Releases” selection“Compelling. . . . [Talve-Goodman] is a sharp observer, funny, grateful and very likeable. . . . Her essays will reverberate in many hearts.” —Hadassah Magazine“Deeply felt, beautifully expressed essays . . . provide rare insight forged by years of coping with illness.” —St. Louis Post-Dispatch“Talve-Goodman blends humor, humility and compassion so seamlessly, you can’t help but be captivated. The book reads like she is speaking to you.” —St. Louis Jewish Light “Packs a punch. . . . A raw, deeply honest collection of writing that looks squarely at the hard stuff but also celebrates life.” —Book Riot“A frank, incisively charismatic text. . . . The mind at work in these pages is sharp and funny.” —Washington Square Review“Crisp, unpretentious.” —DIAGRAM“Thoughtful and sensitive.” —LitMed Database“[Talve-Goodman] transformed her physical limitations into an outward source of strength, and her vividly drawn essays effectively enlighten and educate. . . . Heartfelt and richly passionate.” —Kirkus Reviews“Reflective and forthright. . . . Illustrating the complex experience of organ transplantation and chronic illness, the essays of Your Hearts, Your Scars . . . explore what it means to be alive, to have a body, and to come back from the brink of death.” —Foreword Reviews“Ponders the precariousness of life for the chronically ill and disabled [in] seven poignant autobiographical essays about living joyfully and looking for love in spite of chronic illness.” —Shelf Awareness“Adina Talve-Goodman walked a tightrope, for much of her thirty-one years, between life and death. Perhaps for this reason, Adina embodied life more than any person I’ve ever met. She lit up rooms with pure joy and kindness and, although this phrase is often overused, to know Adina was to love her. I’m grateful this beautiful book exists, so everyone else can know her, too. Adina was a brilliant writer, and these pages are imbued with her exuberance, her sharp humor, and both versions of her spectacular heart.” —Ann Napolitano, author of Dear Edward and Hello Beautiful“This book is so full of life that it’s hard to believe the amazing young woman who wrote it is no longer walking among us. Adina has left an indelible mark on this world. Her extraordinary gifts, her irrepressible spirit, live on.” —Dani Shapiro, author of Inheritance and Signal Fires“Your Hearts, Your Scars tells of hearts broken and whole, hearts always shared—by families, by lovers, by transplant recipients and their donors. The book’s incisions expose all these beating hearts and the hearts of Adina’s reading public, who can only imagine what this visionary artist would have created next.” —Rita Charon, MD, PhD, author of Narrative Medicine and The Principles and Practice of Narrative Medicine“Adina’s writing is incisive and inventive. The energy coursing through her prose is positively contagious. This is not a book to be missed!” —Danielle Ofri, MD, PhD, Editor-in-Chief of Bellevue Literary Review and author of When We Do Harm
£12.34
Gallaudet University Press A Phone of Our Own – The Deaf Insurrection
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£28.50
Gallaudet University Press International Perspectives on Sign Language
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£98.55
Gallaudet University Press Vibrant Mosaic
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£23.83
Scribe Us We've Got This: Essays by Disabled Parents
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£18.70
Rowman & Littlefield God, Suffering, and Disability: A Trinitarian
Book SynopsisGod, Suffering, and Disability: A Trinitarian Theodicy of the Cross utilizes both Christological and pneumatological perspectives of Luther’s theology of the cross to address the complexities of suffering and disability. Through the lens of the cross, the God who suffers enables humans to “call a thing what it is” by recognizing the suffering that often accompanies disability. Rather than asking “why” the Triune God allows people to suffer, this theodicy of disability focuses on “where” the Father, Son, and Spirit are in that very human experience. As a new theodic construct, “a Trinitarian theodicy of the cross” responds to both the theological concerns of the church and the theoretical apprehensions of society. It encourages Christians to live as theologians of the cross, empowers the faith community by informing both its theology and praxis, and provides a theoretical response to secular society that will enrich the field of disability studies.Trade ReviewThe question of “suffering” is a scandalous one in the disability community, treated as a test of spirituality among pietistic Christian believers, and presumed to be a medicalized and privatized matter for the rest of us. Mary Fast’s Trinitarian approach to theologia crucis reconfigures “us” and “them” along these three fronts that have been historically siloed and by so doing invites richer consideration of, conversation about, and engagement with the human experience of suffering that, if we are honest, touches, connects, and binds us all together. -- Amos Yong, Fuller Theological SeminaryThis engaging book addresses the Trinitarian reality of God’s love in the experience of suffering. It connects this reality with disability through a theology of the cross that aims to avoid common, simplistic, and problematic ways of equating disability with suffering, instead issuing a call toward cruciform discipleship that resists the marginalization of persons with disabilities in churches and society. I hope this book is read in church groups and seminaries. -- Thomas Reynolds, University of TorontoThis study is an important contribution to the literature on theology and ministry. The somewhat provocative, yet fair discussion about disability in the church is something that needs to be clearly shared in a non-apologetic manner such that those who are theological leaders are challenged with this perspective. I believe too many Christian leaders may not fully understand or reflect the solutions the author proposes, and may instead embody the concerns raised. One might take a theological perspective different than the ones described, however, the author’s clearly articulated argument is desperately needed. -- Jeff McNair, California Baptist UniversityRooted in Luther’s theologia crucis, Mary Fast proposes a trinitarian theodicy of the cross that speaks to suffering in experiences of disability. With honesty and grace, this book makes an important contribution not only for people with disabilities and their families, but also for churches, pastors and caregivers, and theologians. -- Lois Malcolm, Luther SeminaryDisability theologians have quite correctly been wary of the language of suffering. There is no inherent reason why people should assume that all people living with disabilities must inevitably frame their experiences as suffering. People may suffer because of responses to their lives, but there is nothing inherent within many forms of disability that necessitates suffering. But for some people their disability clearly does involve suffering at a number of levels. How are we to draw the sharp edges of suffering into the disability conversion without losing the proper concerns of those who want to avoid its hegemony? In this book, Mary Schaefer Fast offers some important and fascinating theological perspectives that can enable us to think faithfully about suffering and disability without making that the primary motif that drives our understanding. This book is an important contribution to the theology of disability. -- John Swinton, University of AberdeenTable of ContentsAn Introduction: God, Suffering, and Disability 1. Interpreting Disability and Suffering: The Quadrilateral Model 2. Assessing Existing Theodicies: Toward a Theodicy of Suffering and Disability 3. Exploring Christological Contours: Toward a Theodicy of the Cross 4. Evaluating Pneumatological Approaches: Toward a Trinitarian Theodicy of the Cross 5. Discovering God in Disability and Suffering: A Trinitarian Theodicy of the Cross In Conclusion: The Mission Continues
£76.50
Rowman & Littlefield Matthew, Disability, and Stress: Examining
Book SynopsisIn Matthew, Disability, and Stress: Examining Impaired Characters in the Context of Empire, Jillian D. Engelhardt examines four Matthean healing narratives, focusing on the impaired characters in the scenes. Her reading is informed by both empire studies and social stress theory, a method that explores how the stress inherent in social location can affect psychosomatic health. By examining the Roman imperial context in which common folk lived and worked, she argues that attention to social and somatic circumstances, which may have accompanied or caused the described disabilities/impairments, destabilizes readings of these stories that suggest the encounter with Jesus was straightforwardly good and the healing was permanent. Instead, Engelhardt proposes various new contexts for and offers more nuanced characterizations of the disabled/impaired people in each discussed scene, resulting in ambiguous interpretations that de-center Jesus and challenge able-bodied assumptions about embodiment, disability, and healing.Trade ReviewCentering the impaired bodies of Gospel characters allows Jillian D. Engelhardt to move the focus of the Matthean “miracle” stories away from Jesus and to the somatic-societal circumstances of these characters who are often given minimal textual attention. Her multifaceted hermeneutic that foregrounds stressors exposes the ambiguities of the healing stories whether by removing and/or intensifying and/or introducing new ones. Refusing “spiritualized” readings and attending to the somatic-societal-imperial circumstances of these impaired characters, she rejects optimistically unrealistic readings with the recognition of ambiguities and nuances. This is an important book. -- Warren Carter, Phillips Theological SeminaryTable of Contents1. Locating an Impairment-Focused Reading2. Foundations for Investigation3. Rome’s Disabling Slave System (Matthew 8:5–13)4. Demons and Colonization (Matthew 8:28–34)5. The Labor Market, Poverty, and Impairment (Matthew 12:9–14)6. Women, Families, and Grief (Matthew 15:21–28)7. Conclusion
£69.30
Rutgers University Press Metamorphosis: Who We Become after Facial
Book SynopsisLosing her smile to synkinesis after unresolved Bell’s palsy changed how Faye Linda Wachs was seen by others and her internal experience of self. In Metamorphosis, interviewing over one hundred people with acquired facial difference challenged her presumptions about identity, disability, and lived experience. Participants described microaggressions, internalizations, and minimalizations and their impact on identity. Heartbreakingly, synkinesis disrupts the ability to have shared moments. When one experiences spontaneous emotion, wrong nerves trigger misfeel and misperception by others. One is misread by others and receives confusing internal information. Communication of and to the self is irrevocably damaged. Wachs describes the experience as a social disability. People found a host of creative ways to reinvigorate their sense of self and self-expression. Like so many she interviewed, Wachs experiences a process of change and growth as she is challenged to think more deeply about ableism, identity, and who she wants to be.Trade Review“Metamorphosis is an important contribution to sociology of the body, critical disability, and sociology of emotion scholarship, as well as being of interest and use to anyone interested in understanding more about the nuts and bolts of face-to-face communication; Wachs is a gifted writer.”— Travers, author of The Trans Generation: How Trans Kids (and Their Parents) are Creating a Gender Revolution “Metamorphosis is a groundbreaking, nuanced study of the experience of facial paralysis (FP) and synkinesis. This is the first academic book on synkinesis or facial paralysis, and Wachs is the perfect person to write it.”— Kathleen Bogart, director of the Disability and Social Interaction Lab at Oregon State UniversityTable of ContentsContents 1 When Life Gives You Lemons…. Interview Lots of Other People Also With Lemons 2 Theorizing Change: Culture, Identity, and the Face 3 Microaggressions, Internalizations, and Contested Ideological Terrain 4 It's My Face—Why That Matters 5 Disrupted Selves 6 Someone I Would Rather Be 7 Walking Away: The Challenge of Change Acknowledgments Appendix A Appendix B Appendix C Notes References Index
£26.35
Rutgers University Press Metamorphosis: Who We Become after Facial
Book SynopsisLosing her smile to synkinesis after unresolved Bell’s palsy changed how Faye Linda Wachs was seen by others and her internal experience of self. In Metamorphosis, interviewing over one hundred people with acquired facial difference challenged her presumptions about identity, disability, and lived experience. Participants described microaggressions, internalizations, and minimalizations and their impact on identity. Heartbreakingly, synkinesis disrupts the ability to have shared moments. When one experiences spontaneous emotion, wrong nerves trigger misfeel and misperception by others. One is misread by others and receives confusing internal information. Communication of and to the self is irrevocably damaged. Wachs describes the experience as a social disability. People found a host of creative ways to reinvigorate their sense of self and self-expression. Like so many she interviewed, Wachs experiences a process of change and growth as she is challenged to think more deeply about ableism, identity, and who she wants to be.Trade Review“Metamorphosis is an important contribution to sociology of the body, critical disability, and sociology of emotion scholarship, as well as being of interest and use to anyone interested in understanding more about the nuts and bolts of face-to-face communication; Wachs is a gifted writer.”— Travers, author of The Trans Generation: How Trans Kids (and Their Parents) are Creating a Gender Revolution “Metamorphosis is a groundbreaking, nuanced study of the experience of facial paralysis (FP) and synkinesis. This is the first academic book on synkinesis or facial paralysis, and Wachs is the perfect person to write it.”— Kathleen Bogart, director of the Disability and Social Interaction Lab at Oregon State UniversityTable of ContentsContents 1 When Life Gives You Lemons…. Interview Lots of Other People Also With Lemons 2 Theorizing Change: Culture, Identity, and the Face 3 Microaggressions, Internalizations, and Contested Ideological Terrain 4 It's My Face—Why That Matters 5 Disrupted Selves 6 Someone I Would Rather Be 7 Walking Away: The Challenge of Change Acknowledgments Appendix A Appendix B Appendix C Notes References Index
£107.20
Rutgers University Press Families We Need: Disability, Abandonment, and
Book SynopsisSet in the remote, mountainous Guangxi Autonomous Region and based on ethnographic fieldwork, Families We Need traces the movement of three Chinese foster children, Dengrong, Pei Pei, and Meili, from the state orphanage into the humble, foster homes of Auntie Li, Auntie Ma, and Auntie Huang. Traversing the geography of Guangxi, from the modern capital Nanning where Pei Pei and Meili reside, to the small farming village several hours away where Dengrong is placed, this ethnography details the hardships of social abandonment for disabled children and disenfranchised, older women in China, while also analyzing the state’s efforts to cope with such marginal populations and incorporate them into China’s modern future. The book argues that Chinese foster families perform necessary, invisible service to the Chinese state and intercountry adoption, yet the bonds they form also resist such forces, exposing the inequalities, privilege, and ableism at the heart of global family making.Trade Review"Families We Need is a brilliant and warmly empathic book. Written with grace and lucidity, it elevates readers’ understanding of the need for family, and of how neediness can be a source of strength, and even abundance."— Kathie Carpenter, Author of Life in a Cambodian Orphanage "Raffety’s work provides a rare and precious view on foster care and other kinship practices in mountainous Southwest China, showing us their deep entanglements with forces of urbanization and globalization. It reveals how life-transforming care could emerge where the most vulnerable individuals encounter each other, quietly resisting the deeply-seated biases of ableism, classism, and even imperialism. The book exemplifies the most empathic and humanizing type of ethnography."— Zhiying Ma, Assistant Professor at The University of Chicago "Raffety’s work provides a rare and precious view on foster care and other kinship practices in mountainous Southwest China, showing us their deep entanglements with forces of urbanization and globalization. It reveals how life-transforming care could emerge where the most vulnerable individuals encounter each other, quietly resisting the deeply-seated biases of ableism, classism, and even imperialism. The book exemplifies the most empathic and humanizing type of ethnography."— Zhiying Ma, Assistant Professor at The University of Chicago "Families We Need is a brilliant and warmly empathic book. Written with grace and lucidity, it elevates readers’ understanding of the need for family, and of how neediness can be a source of strength, and even abundance."— Kathie Carpenter, Author of Life in a Cambodian OrphanageTable of ContentsPrologue Glossary of People, Places, and Concepts Introduction: Needy Kinship 1 Abandonment, Affinity, and Social Vulnerability 2 Fostering (Whose) Family? 3 Needy Alliances 4 Envying Kinship 5 Replaceable Families? 6 Disruptive Families Conclusion: Families We Need Epilogue Acknowledgments Notes Bibliography Index
£25.19
Rutgers University Press Families We Need: Disability, Abandonment, and
Book SynopsisSet in the remote, mountainous Guangxi Autonomous Region and based on ethnographic fieldwork, Families We Need traces the movement of three Chinese foster children, Dengrong, Pei Pei, and Meili, from the state orphanage into the humble, foster homes of Auntie Li, Auntie Ma, and Auntie Huang. Traversing the geography of Guangxi, from the modern capital Nanning where Pei Pei and Meili reside, to the small farming village several hours away where Dengrong is placed, this ethnography details the hardships of social abandonment for disabled children and disenfranchised, older women in China, while also analyzing the state’s efforts to cope with such marginal populations and incorporate them into China’s modern future. The book argues that Chinese foster families perform necessary, invisible service to the Chinese state and intercountry adoption, yet the bonds they form also resist such forces, exposing the inequalities, privilege, and ableism at the heart of global family making.Trade Review"Families We Need is a brilliant and warmly empathic book. Written with grace and lucidity, it elevates readers’ understanding of the need for family, and of how neediness can be a source of strength, and even abundance."— Kathie Carpenter, Author of Life in a Cambodian Orphanage "Raffety’s work provides a rare and precious view on foster care and other kinship practices in mountainous Southwest China, showing us their deep entanglements with forces of urbanization and globalization. It reveals how life-transforming care could emerge where the most vulnerable individuals encounter each other, quietly resisting the deeply-seated biases of ableism, classism, and even imperialism. The book exemplifies the most empathic and humanizing type of ethnography."— Zhiying Ma, Assistant Professor at The University of Chicago "Raffety’s work provides a rare and precious view on foster care and other kinship practices in mountainous Southwest China, showing us their deep entanglements with forces of urbanization and globalization. It reveals how life-transforming care could emerge where the most vulnerable individuals encounter each other, quietly resisting the deeply-seated biases of ableism, classism, and even imperialism. The book exemplifies the most empathic and humanizing type of ethnography."— Zhiying Ma, Assistant Professor at The University of Chicago "Families We Need is a brilliant and warmly empathic book. Written with grace and lucidity, it elevates readers’ understanding of the need for family, and of how neediness can be a source of strength, and even abundance."— Kathie Carpenter, Author of Life in a Cambodian OrphanageTable of ContentsPrologue Glossary of People, Places, and Concepts Introduction: Needy Kinship 1 Abandonment, Affinity, and Social Vulnerability 2 Fostering (Whose) Family? 3 Needy Alliances 4 Envying Kinship 5 Replaceable Families? 6 Disruptive Families Conclusion: Families We Need Epilogue Acknowledgments Notes Bibliography Index
£107.20
Springer Nature Switzerland AG End of Life and People with Intellectual and
Book SynopsisThis book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services.The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planningTable of ContentsChapter 1: Current and New Developments in Death, Dying and End-Of-Life Care Policies and Practices.- Chapter 2: Experience of End-of-Life Issues by People with Intellectual Disability.- Chapter 3: Suicide and Autism: A Lifespan Perspective.- Chapter 4: Advance Care Planning with and for People who have Intellectual and Developmental Disabilities.- Chapter 5: Decision-Making at the End of Life: Challenges and Opportunities for People with Intellectual and Multiple Disabilities in Residential Homes in Germany.- Chapter 6: How People with Intellectual Disability are Dying and Implications for Quality Care.- Chapter 7: Living and Dying Well with Dementia.- Chapter 8: Building shared end-of-life supports and cross-training for hospice/palliative and intellectual disability services providers.- Chapter 9: Supporting People with Intellectual Disability at End of Life: Moral Distress among Staff Caregivers During COVID-19.- Chapter 10: Accessible Funerals and People with Intellectual Disability.- Chapter 11: End-of-Life Doulas and People Living with Intellectual and Developmental Disability.- Chapter 12: Palliative and End-of-Life Care for Children with Intellectual Disabilities.- Chapter 13: End-of-life Issues and Support Needs of People with Profound Intellectual and Multiple Disability.- Chapter 14: The Process of Dying.- Chapter 15: Use of Do-Not-Resuscitate Orders.- Chapter 16: Positioning the Issues: An Agenda for Future End-of-life Research, Policy and Practice.- Chapter 17 End-of Life Resources.
£113.99
Springer International Publishing AG Technology and Disability: 50 Years of Trace R&D Center Contributions and Lessons Learned
Book SynopsisThis book outlines the development of the Trace R&D Center as an institution for furthering accessible and assistive technologies. The book walks readers through the Center’s nascent attempts to solve individual challenges with augmentative communication devices through contemporary efforts to establish global frameworks and infrastructures for accessibility. This book is premised on the Center’s mission to maximize the potential of people with disabilities by harnessing evolving technologies while at the same time dismantling the barriers created by those same technological advancements. Readers will learn how this has been done in the past and why this practice should be a fundamental and integrated feature in new technology planning and implementation. The book touches on pre-internet technologies before exploring the huge implications of, first, the personal computer and, second, the Internet. In parallel with the massive growth in scale rendered by the launch of the Web, the book traces the expansion of the Center’s focus from the individual to the universal, particularly in working to establish accessibility standards and infrastructures. Learning from the successes and failures of the Center, the book outlines many past challenges and future directions for the development of technologies for people with disabilities from the research and industry perspectives.Table of ContentsTrace Center Origin and Evolution.- Augmentative Communication (1971–).- Pre-Internet/Pre-Web Summative Information (1970s–1990s).- Computer Access (1980–).- Electronic Consumer Products and General Accessibility (1990–).- Web Access (1990–).- Telecommunication Access (1990–).- Kiosks and Information—Transaction Machine Access (1999–).- Accessibility Infrastructure (2010 –).- Move to University of Maryland (2016).- Elements that Have Defined the Trace Center.- Some Lessons Learned from Trace’s First 50 Years.- Trace’s Focus for the Next Decade(s) (2021–).
£53.99
Birkhauser lost in space: Architecture and Dementia
Book SynopsisDementia presents immense challenges – both for individuals as well as for society as a whole. More than 35 million people all over the world currently live with dementia, a number that is expected to double by 2050. This also has implications for architecture and urban planning because dementia often affects people’s sense of orientation and their ability to perceive space. How can homes, apartments, public buildings, outdoor spaces, neighbourhoods and cities, as well as environments and infrastructure, be designed to meet the needs of people with dementia as well as those of their caregivers? And can a consideration of the problems of dementia lead to a better understanding of space that can improve architecture and the built environment for us all? This book addresses these and other questions in a series of professional essays that examine the specific requirements for different disciplines. In addition, international case study projects illustrate the breadth of current actual solutions. The book is intended as a guide for all those involved in the design and planning process – architects, interior designers, engineers, town planners, local authorities and clients – and as a reader for the users themselves: for people with dementia, their family and friends, and all those in their social environment.
£23.40
De Gruyter Vorurteile
Book Synopsis
£89.62
De Gruyter Barriers to Play and Recreation for Children and
Book Synopsis This report reviews international research into the barriers to play for children with disabilities. The authors come from different disciplinary backgrounds, in Sociology, Social Policy, Anthropology, Occupational Health and Education and bring different concerns to this review. They are united, however, in their adoption of a rights-based perspective. The UNCRC and UNCRPD emphasise the right to play for children with disabilities. Play is vital for child development. The problem of 'play deprivation' for many children with disabilities is very real. Yet the right to, and value of 'play for the sake of play', for fun and recreation, must not be forgotten in relation to the lives of children with disabilities. The focus in this report is upon barriers to play that exist beyond the minds and bodies of individual children, within a 'disabling' environment. Barriers include those associated with the design of the built environment, social attitudes and professional practices. The report maps an agenda for further research in this area, emphasising the need for participatory methodologies that capture the views and voices of children with disabilities, their friends and families, on this important issue of play. ABSTRACTING & INDEXING Barriers to Play and Recreation for Children and Young People with Disabilities is covered by the following services: Baidu ScholarBarnes & NobleBayerische StaatsbibliothekBDSBoDBowker Book DataCNKI Scholar (China National Knowledge Infrastructure)DimensionsDOAB (Directory of Open Access Books)EBSCOElsevier – Scopus BooksExLibrisGoogle BooksGoogle ScholarNavigaReadCubeSemantic ScholarTDOne (TDNet)WorldCat (OCLC)X-MOLAdditionally, the proceedings volume is registered and indexed in the Crossref database and accessible on Amazon.
£20.00
De Gruyter Arts & Dementia: Interdisciplinary Perspectives
Book SynopsisDementia is a term that encompasses a wide range of symptoms. In Europe alone about 10 million people live with dementia. Where health policy and medical approaches reach their limits, art and design strategies can open up new perspectives for people living with dementia – in terms of their abilities and circumstances and their social environment. This interdisciplinary handbook is aimed at people working and researching in the field of dementia. It offers insights into the possibilities and limitations of artistic and art-related interventions in relation to dementia. This publication brings together contributions from the disciplines of design, architecture, and art, music, and museum education, providing a variety of insights into this multifaceted syndrome.
£36.98
Kohlhammer Selbstbestimmte Lebensfuhrung Und Teilhabe:
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£28.90
Kohlhammer Der Umgang Mit Behinderung: Besonderheit Und
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£19.80
Kohlhammer Schon Immer 'Irgendwie Anders': 12
Book Synopsis
£33.15
Kohlhammer Der Verstellte Blick: Verhaltensauffalligkeiten
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£38.40
Saage Books ADHS und Asperger Syndrom
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£19.76
Duncker & Humblot Die Durchsetzungsfahigkeit Der Interessenverbande
Book Synopsis
£79.92
Vandenhoeck & Ruprecht GmbH & Co KG und nichts vergessen?!: Die gesellschaftliche
Book SynopsisDemenz ist eine gesellschaftliche Herausforderung! Wir dürfen den Umgang damit nicht in die Pflegeheime verbannen und nicht in den Familien verstecken. Wir reden viel über Demenz. Mehr über Menschen mit Demenz als mit ihnen. Mehr über eine ungewisse Zukunft als darüber, was in der Gegenwart zu tun ist. Mehr über befürchtete Einschränkungen als über verbleibende Möglichkeiten. Allerorten wird die alternde Gesellschaft beschworen, wird das Bild einer zunehmend verwirrten und pflegebedürftigen Bevölkerung der Öffentlichkeit präsentiert, für die immer weniger Pflegepersonen bereitstehen werden, geschweige denn das Geld, sie als Dienstleister zu bezahlen. Burkhard Plemper setzt sich aus einem anderen Blickwinkel mit der Demenz auseinander. Er stellt gesellschaftliche Reaktionen in den Mittelpunkt. Der Soziologe lässt die Leser teilhaben am ersten öffentlichen Auftritt einer inzwischen bekannten Aktivistin, die ihr Pseudonym ablegt hat und nun offen mit ihrer Demenz umgeht, an der Verzweiflung und der Hoffnung des Juristen, der trotz der mitunter erdrückenden Fürsorglichkeit seiner Frau noch ein gutes Leben haben will. Eine Demenz weckt Ängste, vor allem, wenn keine Ursache erkennbar ist. Das macht das, was als Alzheimer bezeichnet wird, so unheimlich: die Furcht vor dem Kontrollverlust, vor Veränderung, gar Verfall der Persönlichkeit. Diese Angst gipfelt in der Aussage Lieber tot als dement, vor allem, wenn Symptome wie Verwirrtheit nicht erst in hohem Lebensalter auftreten. Wie leben Menschen mit Demenz und ihre Angehörigen? Demenz ist eine gesellschaftliche Herausforderung und geht alle an. Sie ist eine Aufgabe der Zivilgesellschaft. Burkhard Plemper stellt Mut machende Ideen vor und Mut machende Menschen, die sich ihrer Demenzstellen. Gemeinsame Sorge ist so viel mehr als Pflege.
£20.89
Campus Verlag Re/imaginations of Disability in State Socialism:
Book SynopsisAn interdisciplinary survey of disability in socialist states throughout global history. In Re/imaginations of Disability in State Socialism, an interdisciplinary group of scholars examines how disability has been conceptualized and treated in socialist states throughout global history. Drawing on intersectional theories that set disability in conversation with other identity categories such as race, age, gender, and sexuality, this book offers a unique approach to this crucial issue.
£38.00
Lit Verlag Dynamic Tensions, Civil Society and Development
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£28.80
Springer Fachmedien Wiesbaden Inklusion für Menschen mit Demenz:
Book SynopsisBirgit Schuhmacher analysiert typische Exklusionsrisiken von Menschen mit Demenz und zeigt auf, wie der in menschenrechtlicher, aber auch in systemtheoretischer Hinsicht universal zu denkende Anspruch auf Inklusion für sie umgesetzt werden kann. Die Autorin untersucht den Bedeutungsgehalt der Begriffe Inklusion, Integration und Teilhabe in unterschiedlichen Disziplinen. In Bezug auf Demenz werden Ausgrenzung und Einbeziehung im (hohen) Alter, in der Familie, im Sozialraum, in rechtlicher Hinsicht und am Ende des Lebens diskutiert.Table of ContentsSozialgeschichte der Demenz.- Demenz als Behinderung des Alters.- Inklusion, Integration oder Teilhabe?.- Container-Begriff Inklusion.- Sozialraum und Demenz
£47.49
Vdf Hochschulverlag AG Accessible research and teaching at universities
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£18.90
BoD - Books on Demand Wie inklusiv ist Deutschland
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£19.12
Transcript Verlag Culture - Theory - Disability: Encounters Between
Book SynopsisWhich theoretical and methodological approaches of contemporary cultural criticism resonate within the field of disability studies? What can cultural studies gain by incorporating disability more fully into its toolbox for critical analysis? Culture - Theory - Disability features contributions by leading international cultural disability studies scholars which are complemented with a diverse range of responses from across the humanities spectrum. This essential volume encourages the problematization of disability in connection with critical theories of literary and cultural representation, aesthetics, politics, science and technology, sociology, and philosophy. It includes essays by Lennard J. Davis, Rosemarie Garland-Thomson, Dan Goodley, Robert McRuer and Margrit Shildrick.
£28.89
Transcript Verlag Memoirs of Well-Being: Rewriting Discourses of
Book SynopsisAs the body politics of life writing in the United States change, illness and disability memoirs receive considerable attention. Although these narratives are framed by a lack of health, they abundantly present health and do so beyond its binary relationship to the pathological. This book departs from previous scholarship by bringing into focus the writers' representations of cure, recovery, and healing as well as their reluctance to bring closure to their narratives and align their stories with traditional notions of health. These memoirs thus partake in the construction of alternative narratives of illness and disability.
£38.24
Transcript Verlag Epilepsy Metaphors – Liminal Spaces of
Book SynopsisBetween 1990 and 2015, American literature saw the emergence of a new corpus of epilepsy metaphors which tackle the stigma of epilepsy within three areas: society, body, and language. Eleana Vaja introduces concepts such as protometaphors, relational metaphors, epileptic texts, and metastability to categorize and examine these foci further. Applying philosophy as well as "hard sciences" (i.e. mathematics, medicine, physics) to disability studies, her study of selected works by Siri Hustvedt, Thom Jones, Reif Larsen, Dennis Mahagin, Audrey Niffenegger, Rodman Philbrick, and Lauren Slater shows how epilepsy metaphors redefine the notion of the "liminal" and the "normal".
£33.14
ibidem-Verlag, Jessica Haunschild u Christian Schon Non–Visual Landscape – Landscape Planning for
Book SynopsisLandscape is the impression given by a place. The five senses construct five landscapes: there is not only the visual landscape but also non-visual landscapes such as smell, touch, sound ("sound-scape"), and taste landscapes. The visual landscape is experienced by most people, while the remaining four non-visual landscapes mainly construct the non-visual world of the blind. In their innovative study, Angeliki Koskina and Nikolas Hasanagas explore this non-visual world on an empirical basis. What land-scapes do blind people prefer? Is the natural or built environment most attractive for them? How differently do blind people perceive the landscape" compared to sighted people? Which feelings does the landscape evoke in blind people, and which values do they attach to these feelings? How satisfied do they feel with the urban or natural landscapes where they live? Spatial Planning and Land-scape Design for handicapped people constitute a much-discussed academic and social issue. Koskina's and Hasanagas' study in the Anthropology of Senses and in Landscape Sociology can be used as an aid tool for planners and designers as well as researchers in various areas such as Architecture, Medicine, Social Sciences, or Psychology.Table of ContentsIndex of Diagrams, Figures, and Tables Preface 1. Introduction 2. Methodology 3. Results and Discussion 4. Conclusions, Suggestions, and Limitations Summary References Appendix
£23.79
Verlag Barbara Budrich In the Shadow of Disability: Reconnecting
Book SynopsisHow can one write the history of disability, and what are the consequences for the disabled themselves? This is the key question that Pieter Verstraete addresses in this pioneering book that tries to rethink the possible bonds between disability, history and politics. Since the 1990’s the concept of disability has gained in prominence. Perhaps more than in other branches of historical enquiry, disability historians have attributed a crucial place to the notion ‘identity’. Re-cently, however, the suitability of identity for the realization of libera-ting and emancipatory politics for people with disabilities has been questioned. This book aims to incorporate some of the critical approaches towards identity and to suggest a complementary connection between history and political reform.Trade ReviewUsing disability to unmask education and its history is what [...] makes this book relevant. H-Disability, H-Net Reviews 11/2015 Dies führt dann weiter zu der Frage, ob der Mensch an sich behindert ist oder durch die Strukturen und Organisationen der jeweiligen Gesellschaft erst behindert wird - eine entscheidende Frage, wenn es darum geht, über die Bildungsstrukturen für Menschen mit Behinderungen zu diskutieren. pw-portal, 29.01.2015
£14.36
Verlag Barbara Budrich Health Among the Elderly in Germany: New Evidence
Book SynopsisWhether increasing life expectancy leads to better health remains still controversial. Three topics are explored: (1) vanguard groups which inform about possible levels of health if the general social and environmental conditions were to approach those of the vanguard group; (2) the social and behavioral determinants of health differentiated into proximal and distal factors; (3) vulnerable groups such as migrants and the health differences between migrant groups. Newly available population-based data as well as new study designs and advanced stati¬stical modelling form the basis for the empirical analyses.Trade ReviewDie in diesem Band versammelten Ergebnisse zeigen deutlich, dass die Gesundheitspolitik sich insbesondere um die Bewohner ländlicher Gebiete kümmern muss, denn Spezialisten sind dort rar gesät. Außerdem müssen weniger gut gestellte Bevölkerungsgruppen sowie Migranten stärker in den Fokus rücken. Nur so können im demografischen Wandel mehr Menschen als bisher von der Tendenz zur Verschiebung alterstypischer Erkrankungen ins höhere Alter profitieren. Newsletter Demos 2/2015 Aus welchen Gründen leben manche Menschen länger und gesünder und andere nicht? Welche Einflüsse und Faktoren wirken sich auf ein langes Leben und den Gesundheitszustand aus? Gibt es Unterschiede bei der Lebenserwartung und dem Gesundheitsstatus im Vergleich zwischen Deutschen und Migranten und warum? Diese Fragen stehen im Zentrum des Bandes, der einen Beitrag zur Diskussion über Trends und Muster der Gesundheit Älterer in Deutschland liefern möchte. Bevölkerungsforschung Aktuell 6/2014 Basierend auf neueren Daten und innovativen Forschungsdesigns wird der folgenden Frage nachgegangen: Which reasons make some people live longer and healthier and which do not? Socialnet.de, 07.05.2014Table of ContentsFrom the Contents: Welfare State and Disability. The relationship between stroke and disability depends on the health care system Spatial Patterns of Dementia Prevalence and its Vascular Risk Factors in Germany Does Education Matter for Incidence and Prevalence in Long-term Care Among the Elderly in Germany? Evidence from German Micro Census Panel data (2001-2004) Spatial Patterns in German Long-term Care and their Relationship with Socioeconomic Factors Mental Health Among Immigrants. Is there a disadvantage in later life?
£27.16
Verlag Barbara Budrich International Perspectives on Inclusive
Book SynopsisInternationale Entwicklungen und Impulse fordern dazu auf, Bildungssysteme gerecht und inklusiv auszugestalten. Das vorliegende Buch greift dies auf und fokussiert das häufig unscharf diskutierte Verhältnis zwischen inklusiver Bildung und Bildungsgerechtigkeit. Durch die Zusammenstellung von aktuellen Forschungsergebnissen und theoretischen Beiträgen aus mehreren europäischen Ländern zu dem Thema schaffen die Autor*innen einen übergreifenden Diskussionsrahmen.Table of ContentsMel Ainscow, Gottfried Biewer, Vera Moser: Preface – International Perspectives on Inclusion and Educational Justice Simone Seitz, Petra Auer, Rosa Bellacicco: Introduction – In the Light of Educational Justice: International Perspectives on Inclusion Part I: Conceptualisations Underpinning Research on Diversity, Equity, and Inclusion Mai-Anh Boger: Political Ontologies of Difference and Their Trilemmatic Structure Anja Tervooren: The Social Category of ‘Disability’ as a Desideratum of Intersectional Childhood Studies Alessandra Imperio, Simone Seitz: Positioning of Children in Research on Assessment Practices in Primary School Michaela Kaiser, Simone Seitz: Giftedness and Achievement within Discourses Part II: Educational Justice within Different Education Systems – Some Empirical Evidence Simone Seitz, Francesca Berti, Catalina Hamacher: Throughout the Day on the Way to More Educational Justice? Children’s Voices on All Day-primary Schooling Petra Auer: On the Inclusiveness of the Education System in a Multination State from the Perspective of Primary School Children and Teachers’ Values Rosa Bellacicco, Silver Cappello: Evidence on Analysis and Reflections of Available Statistical Data in Italy Joanne Banks, Silver Cappello, Heidrun Demo, Rune Hausstätter, Simone Seitz: Funding Models of Inclusion in an International Perspective Part III: Doing Inclusion – Doing Difference Valentina Migliarini: Inclusive Education from the DisCrit Perspective Anna Frizzarin: Adolescents’ Attitudes Towards and Representation of Otherness Petra Auer, Rosa Bellacicco, Dario Ianes: Individual Education Plans as Instruments and Practices for Inclusion: Problems and Dilemmas Heidrun Demo: Conclusion – The Challenge of Integrating Antinomies Around Inclusive Education About the Authors Index of Terms
£45.00
Verlag Barbara Budrich Inclusive Localities
Book SynopsisThe contributions in this book shed critical light on the shaping, negotiation, and creation of inclusive conditions of local authorities and localities. The authors analyse policy programs and reflect on their inclusive or exclusive effects in European and non-European contexts. Despite a number of global effects, which come about through supra-locally made decisions and influence the scope of action on the ground, many contributions emphasize the crucial role of the municipal level for a successful realisation of inclusion.
£43.50
