Coping with / advice about physical impairments / disability Books

Book SynopsisHow do you create an ordinary family life, while dealing with the extraordinary needs of an autistic child?Meet Mickey - charming, funny, compassionate, and autistic. In this unflinching portrait of family life, Liane Kupferberg Carter gives us a mother's insight into what really goes on in the two decades after diagnosis. From the double-blow of a subsequent epilepsy diagnosis, to bullying and Bar Mitzvahs, Mickey's struggles and triumphs along the road to adulthood are honestly detailed to show how one family learned to grow and thrive with autism.Trade ReviewIt's rare for someone to be able to write about life with a special needs child and make it an enjoyable read, but Liane's prose is so good - so smart and funny and lucid and elegant - that even when she's exploring the fears and anxieties a parent faces, she makes it all somehow entertaining. There's real information in these pages for parents going through similar journeys, but it's accompanied by so much empathy and warmth that even those whose lives are untouched by this kind of thing will enjoy reading this. I would recommend it to every parent I know. -- Claire LaZebnik, author of Overcoming AutismI will always remember the day that Liane Carter first emailed me an essay for the New York Times blog, Motherlode. I knew from the first few paragraphs that I was in the company of a special writer. Her words shine a bright but embracing light on life with a grown son with autism. Never treacly, often funny, always direct and honest, she speaks to parents who have and will walk her specific road. That companionship is a gift to families who are navigating autism. But she's also a gift to parents of all children in every variety. This parenting stuff is joyous and hard, whatever the particulars. Liane captures the whole of that, and gives us all permission to struggle and celebrate at the same time. -- Lisa Belkin, Senior National Correspondent at Yahoo, former reporter and columnist at the New York TimesLiane Carter's lovingly written memoir should be required reading for every parent raising a child with autism, particularly those who have been told "your child will never...", because, Wow! does her son Mickey ever! Liane's journey, for better AND for worse, brings hope to our entire community. -- Alison Singer, President of the Autism Science FoundationIn Ketchup is My Favorite Vegetable, Liane Kupferberg Carter gracefully articulates the hopes, the disappointments, the frustrations, and the triumphs that are inherent to raising a child on the spectrum and negotiating with the powers that be. The reality of life in a household dominated by autism is artfully conveyed. By the end of the book you are rooting for Mickey and his family, and hoping to read a sequel. Highly recommended! -- Chantal Sicile-Kira, author of A Full Life with AutismThis honest and forthright portrayal of how families cope, build resilience and, yes, sometimes break down when the going gets rough, will bring you laughter, tears and the fortitude that comes from knowing that we all share so much in this life journey. -- Susan Axelrod, Founding Chair, CURE/Citizens United for Research in EpilepsyLiane Kupferberg Carter's Ketchup is My Favorite Vegetable is both moving and instructive. It will serve as a helpful and inspirational guide for all parents of special needs children as they transition to the adult world. -- Priscilla Gilman, author of The Anti-Romantic Child: A Memoir of Unexpected JoyLiane does a masterful job leading us up the twisted stairway from denial to acceptance; chaos to freedom. Raising a child with autism can at times feel like we've been thrown in at the deep end. But as we learn in Ketchup is My Favorite Vegetable, the waters eventually recede and we can stand on dry land again. -- Arthur Fleischmann, parent of an adult daughter living with severe autism and author of the bestselling Carly's Voice - Breaking Through AutismKetchup is my Favorite Vegetable is the best kind of autism memoir because it is a family story. Even the pets are included. After all, autism is a family experience. -- from the Foreword by Susan Senator, author and mother of three boys, one of whom has severe autismLiane Kupferberg Carter's book is a touching, compelling and ultimately uplifting account of parenting an autistic son. It is breathtakingly honest about the emotional upheaval and about the many practical and legal difficulties, but also warm and funny. The observations are constantly astute and the book importantly demolishes some of the myths surrounding autism. -- Adam Feintstein, Editor, Looking Up (The International Autism Magazine) and author of A History of Autism: Conversations with the Pioneers...Carter, a marvelous writer, details both the struggles and joys of parenting with pathos and humor. Her engaging style makes this book a page turner, and I hope there will be a sequel someday. ...Ketchup is My Favorite Vegetable is a validation of the phrase, 'love conquers all.' -- Books is Wonderful blogCarter's writing has sometimes taken my breath away. Her memoir about raising a son with autism is honest, brave and oh so real, and I would think it would be a bright light for every other parent in that community. With humor and wisdom, she reveals the struggles and triumphs that come with the diagnosis, and she shows the importance of being your child's biggest advocate. She shares the emotional toll life with a special needs child can take on a family but is unwavering in her love for her son. As a reader, you will also fall in love with Mickey - and his Mama Bear of a mother. -- Midlife at the Oasis blogLiane Kupferberg Carter has written a memoir of a modern American family....Carter covers the entire arc of parenting a child with ASD, giving other families with special needs children a candid view into what they might anticipate on their own road ahead....Carter has written her son's unique story with great honesty, self-awareness and love. -- Grown and Flown: parenting never endsKetchup is My Favorite Vegetable by Liane Kupferberg Carter is a real, raw, and very powerful memoir about a family growing up with Autism...I loved this book, and it really taught me a lot. Mostly it taught me to be understanding, to be observant and to just be patient. This was one of my favorite books of the year, I haven't read a memoir that wrapped me up in the world of the writer as much as this one did, I give this 5 out of 5 stars. Inspirational and a great read. -- Comfy Reading blogThere are books written about families, and there are books written about autism, and in 'Ketchup is My Favorite Vegetable,' author Liane Kupferberg Carter seamlessly weaves the two together to create a beautiful and heart-tugging story that will stay with you for a long time. In its purest sense, this is a love story-about two parents and the love they share for each other and for their sons, one of whom has autism -- Better After 50Table of Contents1. Prologue: Don't Stop Believin'. 2. 1992: Diagnosis. 3. Child's Play. 4. Desperation. 5. Dizzy with Love. 6. Besieged. 7. Healing Our World. 8. Family Legacy. 9. Those Kids, Those Parents. 10. Sticking Out My Neck. 11. Moments of Agitation. 12. Behavior is Communication. 13. Consumed. 14. Zones of Comfort. 15. Brothers' Bonds. 16. Learning to Soar.

Read more less

Book SynopsisProviding everything you need to know about the use of weighted blankets to help with sensory integration, improve sleep, ease chronic pain and more, this book includes:· What a weighted blanket is and how it works· An exploration of deep pressure and how weight on the body affects the mind· Guidelines for using weighted blankets at home and in professional environments· Studies into the effectiveness of weighted blankets· Advice on how to select an appropriate weighted blanket or sew your own.Based on the latest research, this book dispels the online myths surrounding weighted blankets. It delivers clear information for occupational therapists and anyone considering using a weighted blanket to help with sensory processing disorder, autism, sleep disorders, fibromyalgia, post-traumatic stress disorder, and more.Trade ReviewWhen I was a child, I craved deep pressure and I liked lots of blankets on the bed to help me sleep. When I got older, I built a squeeze machine to apply deep pressure to help calm me. Sensory problems are very variable. A weighted blanket is likely to be most effective for children or adults who seek deep pressure. For children with an autism diagnosis, some individuals will respond well to a weighted blanket and for others it will have little effect. This book contains lots of good practical advice on how to use and make weighted blankets. It will be a great resource for individuals who are calmed by deep pressure. -- Temple Grandin, author of ‘The Autistic Brain’ and ‘Thinking in Pictures’Cara Koscinski and Eileen Parker have written the definitive guide to weighted blankets. As an Autism Mom and an individual with fibromyalgia, I wish I'd had this book years ago! I finally understand the symptoms of Sensory Processing Disorder and how pressure can counteract those symptoms. I especially loved the detailed instructions on how to sew my own weighted blanket, including smart color choices for individuals with Autism Spectrum Disorder. This book is a must for anyone thinking about using a weighted blanket! -- Shannon Penrod, Host of Autism LiveI am thrilled to see this much needed weighted blanket guide. It answers so many questions that people have about weighted blanket therapy. There is no one more suited to write it than Eileen, a onetime fellow weighted blanket maker and a user of weighted blankets for her own autism. -- Donna Chambers, Founder, SensaCalm Weighted BlanketsTable of Contents1. What Is a Weighted Blanket? 1.1. What Is a Weighted Blanket? 1.2. What Are They Used For? 1.2.1. Sleep. 1.2.2. Chronic Pain. 1.2.3. Anxiety. 1.2.4. Autism. 1.2.5. Alzheimer's/Dementia/Seniors. 1.2.6. Mental Illnesses. 1.2.7. Special Education. 2. Where Did the Concept Come From? 2.1. The Old Meeting the New. 2.2. Others' Stories. 2.3. Origins. 3. How They Work. 3.1. Your Sensory System. 3.1.1. What Problems Result from SPD? 3.2. Exploring Deep Pressure. 3.3. Massage. 3.4. Neuroscience. 4. Professional Settings. 4.1. Occupational Therapy. 4.1.1. What is Occupational Therapy? 4.1.2. How are Weighted Blankets Used at an OT Clinic? 4.1.3. How Does OT Work for SPD? 4.2. Hospital Use. 4.2.1. Restraint Reduction. 4.2.2. Actual Use in a Hospital Setting. 4.3. Comfort/Multi-Sensory Rooms. 4.4. Helping Patients Getting Weighted Blankets Covered by Medical Insurance. 5. Considerations/Guidelines for Use. 5.1. Can They Create Dependence? 5.2. How Long to Use the Blanket? 5.3. Safety. 5.4. Drawbacks/Concerns. 5.5. Medical Insurance Coverage. 6. Choosing or Making Your Own. 6.1. Choosing a Weighted Blanket. 6.2. Weight Chart. 6.3. On a Budget. 6.4. Sewing Your Own.

Read more less

Book SynopsisSharing the personal stories of individuals with disabilities who describe both the challenges and successes of their time in higher education, and with a major section on the findings of broad ranging research into the experiences of such students, the book explores the current situation, what works, and how things can be improved. "You are not college material" or "you don't belong in college" are comments frequently heard by students with disabilities. Despite this, college education is now an expected part of the transition to adulthood for many individuals with disabilities. The book includes practical advice to encourage self-advocacy in students with disabilities, and to support the professionals who are facing the challenges alongside them.Covering cerebral palsy, autism spectrum disorders, intellectual disabilities, and much more, this is vital reading for parents, individuals with disabilities, school teachers, college professors, and professionals working with adults with disabilities.Trade ReviewPavan John Antony and Stephen M. Shore give captivating insight into students with disabilities' college experience. This book will be a valuable source of information for students with disabilities preparing for their transition from high school to college, and also for all those who want to increase their awareness of disability and higher education. -- Cristina Popescu, Ph.D., Associate Researcher, National Higher Institute for Training and Research on Special Needs Education (INS HEA), FranceTable of Contents1. Introduction. Pavan John Antony and Stephen M. Shore. 2. Experiences of Individuals with Cerebral Palsy. Pavan John Antony. 3. Experiences of Individuals with Autism in Higher Education. Stephen M. Shore. 4. Experiences of Individuals with Attention Deficit Hyperactivity Disorder. Francine Conway, Kelsey McLaughlin, Chanelle Tyler Best, and Sonia Minutella. 5. Experiences of Individuals with Intellectual Disability. Karleen M. Haines. 6 Experiences of Individuals with Learning Disability. Anita W. Frey. 7. The Myth of Equal Opportunity: A Personal Perspective. Ehrin McHenry. 8. Bridging the Gap between High School and College. Mitchell Nagler, Diana Damilatis, Ehrin McHenry and Alyssa L. Conigliaro. 9. Struggling with Disability and Dealing with Family. Melissa Mooney. 10. The Oops Baby. Dena L. Gassner, MSW. 11. Best Decision Ever. Patrick Kelty. 12. College Dreams. Kerry Magro. 13. Conclusion. Pavan John Antony and Stephen M. Shore.

Read more less

Book SynopsisThe late teens and twenties are exciting times, but filled with potential pitfalls as young people navigate the transition into independent adult life. This handbook is filled with the information that young people with ASD say they want (and need) to know about alcohol and drugs, social media and online safety, relationship types and boundaries, safe sex, stress and emotional health, and independent living. It includes real life examples, coping strategies and practical tips to help young adults with ASD stay safe while living life to the full. Informal and frank, this will be a go-to guide for young people on the autism spectrum.Trade ReviewThe authors are respectful and informative in explaining concepts that may be socially confusing and cloaked in non-verbal cues for young adults on the spectrum. This manual fills a gap in resources and, for that, we parents and young adults on the spectrum are grateful. -- from the foreword by Jane Thierfeld-Brown, Ed.D, Director, College Autism Spectrum, and Assistant Clinical Professor, Yale Child Study, Yale UniversitySensitive and hard to discuss issues (often glossed over for individuals with ASD) such as dating, measuring the stages of relationships, sex, and drinking are covered frankly, bluntly, and thoroughly. While of the utmost importance to everyone, these tough discussions affect young adults on the spectrum differently, often times due to the awkwardness of the topic, and the social faux pas that happen during everyday spectrum living. -- from the foreword by Aaron Schatzman, young adult with ASDTable of ContentsForeword by Jane Thierfeld-Brown. Foreword by Aaron Schatzman. Social Aspects of Adult Life. 1. Socializing Safely. 2. "Friend Me" - Safe and Healthy friendships and Relationships. 3. Let's talk about Sex: Sexuality, Sexual Relationships and Safe Sex. 4. Safely Navigating the Web: Social Media and Online Safety. Health Concerns in Adulthood. 5. Drinking and Drugs: Danger zone!. 6. Stressing Out: Managing Stress and Health. Independent Living. 7. Don't touch my things: Independent Living and Roommates. 8. Preventing "Oops": Household Safety Concerns. 9. Keeping track of the dough: Safe Money Management.

Read more less

Book SynopsisPresenting a revolutionary lifestyle approach for the whole family, this step-by-step guide will help you to reduce your child's stress and anxiety levels by regulating their environment, eating and nutrition, energy, and encouraging emotional self-regulation.Children with autism often experience very high stress levels in learning and social environments, which can exacerbate problem behaviors and damage their physical and emotional health. This book demonstrates that lowering stress levels through regulating a child's experiences and environments, and giving them the tools to cope when stressful situations are unavoidable, can make a huge and very positive difference to their behavior, physical health, socialisation and happiness. Brimming with exercises, recipes, tips and real-life examples, this warm and supportive guide will help you transform the life of your child with autism and benefit the whole family.Trade ReviewAutism and the Stress Effect is a welcome book that distills much of the information about the internal noise of stress, pain or perhaps the chemical effects of a terrible diet and delivers a useful and digestible guide for our autism community to use to improve the care and nurturing of our children. -- Timothy Buie MD, Director of Gastroenterology and Nutrition, Lurie Center for Autism, Massachusetts General Hospital for ChildrenTable of ContentsPart One. Introduction. Introduction to Autism and The Stress Effect. 1. A New Way Foreword. 2. Decades of Cumulative Knowledge. 3. Autism and The Stress Effect. Part Two. A Word About Regulating. 4. Environmental Regulation. 5. Eating and Nutritional Regulation. Co-written by Jennifer Frank, R.D. 6. Emotional Self-Regulation. Co-written by Johanna Lantz, Ph.D. 7. Energy Regulation. Co-written by John Ratey, M.D. and Nicole Kinney, D.P.T. 8. What to Track. 9. Where to Begin. Epilogue. About the Center for Discovery. Appendices.

Read more less

Book SynopsisTessie Regan's collection of short stories, poems and quirky illustrations reveal the world as seen through the haze of alcohol addiction, the eccentricity of Asperger's and the ups and downs of an unconventional spiritual journey. Her honest and witty observations tell of moments of elation, confusion and hopeless desperation felt throughout her life, from the backbreaking pursuit of $100 in 'Lawnmower' to contemplating the start of her alcoholism at age 13 in 'The Jumping Off Place.' These brief, insightful accounts paint the truthful, warm-hearted, and wryly humorous portrait of a soul in search of reconciliation. This collection is essential reading for anyone on the autism spectrum dealing with alcoholism, substance addiction or mental health issues, and for their friends and families, as well as the professionals working with them.Trade ReviewTessie Regan's colorful, Aspergerian adventures are presented in an eclectic series of stories, poems and sketches. In turns, raw, funny, off-the-wall, and poignant, this collection invites the reader into her spiritual journeys with alcoholism, madness, religion, and her own ultimate spirituality. Evocative of the best-seller, The Curious Incident Of The Dog In The Night Time, Tessie Regan's artistic works in Shorts are both informative for those living with or working with those on a similar journey, but just as equally a "fun read". -- Donna Williams, BA Hons, Dip Ed, author, autism consultant and lecturerTable of Contents1. Ass Burgers. 2. Restoration of Sanity. 3. Lawnmower. 4. Spiritual? 5. Woodworking. 6. Shrapnel. 7. Winter. 8. Blindside. 9. I Throw Jesus Under the Bus. 10. Mark 7. 11. The Jumping Off Place. 12. Collect From County. 13. Gone. 14. Gone puppet, 2012. 15. Shame. 16. One Ounce. 17. The Witch. 18. Two Loves. 19. Cube Farm. 20. Ghost Writer. 21. Sheep.

Read more less

Book SynopsisThe ultimate guide to cracking the social code of dating!The rules of dating are a conundrum for many men, but for men with Asperger Syndrome (Autism Spectrum Disorder) who often have difficulty understanding social communication, they can be almost indecipherable. This book methodically breaks down the steps of dating giving advice on the best places to meet women - whether on or offline, getting ready for the big date, where to go and what to talk about, and how to tell if a second date is on the cards. Written for those with little or no prior experience on the dating scene, the book discusses how to know if you are ready for a relationship, what qualities to look for in a potential girlfriend, and if dating goes well how to make a relationship work.Trade ReviewWhile it's not always obvious in our behavior, dating can be a baffling experience for many men. Author John Miller demystifies many challenges related to dating by providing what's needed by everyone, including men living on the autism spectrum - he gives us information! Miller discusses very personal aspects of relationship building and provides practical advice related to confusing aspects of dating, such as self-disclosure, flirting behavior, dating rituals, and the pitfalls that can sometimes accompany relationships. Through anecdotes and the sharing of his personal journey, Miller reminds men living on the spectrum that dating can be a successful and enjoyable experience. -- Dr. Marc Ellison, Interim Executive Director, West Virginia Autism Training Center, Marshall UniversityA wonderfully practical and helpful book on a very important issue. This volume is full of helpful suggestions and will be of great interest to individuals with social disabilities navigating the complex world of social relationships. -- Dr. Fred Volkmar, Director of Child Study Center at Yale University School of Medicine and Editor-in-Chief of Journal of Autism and Developmental DisordersIn Decoding Dating John Miller strips bare the intricacies of dating and relationships that can be elusive to all adults. With a style that is brutally honest and embedded with humor and personal experience, John provides a thorough set of basic instructions for the aspiring dater. Decoding Dating is a particularly rich guidebook for men with Autism Spectrum Disorder. -- Professor Lindee Morgan, Florida State University Autism InstituteJohn Miller takes on the difficult terrain of dating with objectivity and sensitivity. John patches up the twists and turns that follow the ever-evasive art of dating and courting, with practical ideas and clear explanations that will help everyone (on the autism spectrum or not) understand the nuances and importance of dating with grace and class. I'm going to strongly suggest my husband read this book! -- Liane Holliday Willey, author of Pretending to be Normal, Safety Skills for Asperger Women, Asperger Syndrome in the Family, and editor of Asperger Syndrome in AdolescenceJohn Miller's book is aimed at the male with autism seeking a female partner. John is an adult with autism himself who is married with a child... He shares some of his personal experiences and professional practice as a teacher of students with Autism Spectrum Conditions along with his guidance and advice... Sections of the book are extremely valuable, particularly in the realms of teaching and awareness in social expectations and making the relationship work... There is much that any adult with autism can learn from this book, regardless of whether they are seeking a partner or not. -- Sarah Hendrickx, author * GAP - Good Autism Practice *Table of ContentsAcknowledgments. Introduction. 1. To Disclose or Not to Disclose: The Positives and Pitfalls of Autism Disclosure. 2. Entering the Dating Arena. 3. Flirting: Giving and Reading Signals. 4. Caution: Read Before Dating. 5. Getting Ready for the Big Night. 6. Interview or Interrogation. 7. She Likes Me, She Likes Me Not: Assessing the Aftermath of the Date. 8. Dating Pointers. 9. What is a Relationship? 10. Are All Relationships Created Equally? 11. What Type of Woman is Right for Me? 12. Qualities Found in an Ideal Girlfriend. 13. Communication is the Key. 14. Aspie and Autie Pitfalls in Relationships. 15. How to Attempt to Make a Relationship Work. 16. Meeting Her Family and Friends. 17. Sex: The Double Edged Sword. Conclusion. Autism and Relationships Glossary. Useful Resources.

Read more less

Book SynopsisParenting a child with autism can be isolating, draining, and stressful. Parenting a neurotypical child alongside them is even more complicated and confusing. Coach Yourself through the Autism Spectrum offers an opportunity to access your inner creativity, resourcefulness, strengths, and abilities in order to create positive change in your family. Short sections on common problems such as visits to the doctor, community outings, bullying and child care make this book easy to read from start to finish, or dip into as needed. There are tips for taking care of your own physical and emotional health, and each section features relevant examples from other families in the same situation, and practical and thought-provoking coaching exercises to help you decide on an action plan that's right for you. This book offers hope and support for anyone parenting or caring for a child on the autism spectrum.Table of ContentsSection I: Parenting Children with Autism. Chapter 1. Meltdowns. Chapter 2. Outings. Chapter 3. Childcare. Chapter 4. Doctor Visits. Chapter 5. “Invisible” Autism – the Unique Isolation of “High Functioning”. Chapter 6. Parenting Your Child's Strengths (Children with Autism Spectrum Disorder. Chapter 7. Educational Decisions. Chapter 8. Sleeplessness. Chapter 9. Extended Family. Chapter 10. Bullying. Chapter 11. Stuck Spots. Section II: Parenting Neurotypical Siblings. Chapter 12. Asymmetrical Development. Chapter 13. “Autism-Free” Zones. Chapter 14. Parenting Your Child's Strengths (Neurotypical Children) Chapter 15. Fairness. Chapter 16. Message from a Grown Sibling. Positive Outcomes. Section III: Parent-Care and Long-Term Health. Chapter 17. Comparison. Chapter 18. Finding Your Parent-Strengths. Chapter 19. Parent Care. Chapter 20. What Fills your Tank? Chapter 21. “I'm a Dad, What Can I Do?” Chapter 22. Marriage Building. Chapter 23. For Husbands. Chapter 24. Single Parenting. Chapter 25. Laugh a Little. Appendix 1: Note to Grandparents. Appendix 2: Quiz: “How do I Know if I'm Ready for a Coach?” Appendix 3: Checklist for Choosing a Coach. Appendix 4: How Can I Help? [a Brief Coaching Exercise for Friends and Family]. “Autism-ese” Glossary. Index.

Read more less

Book SynopsisCan you imagine not being able to recognize those you know if they wore glasses, changed their hairstyle, or perhaps put on a hat?Prosopagnosia is a severe facial recognition disorder that is thought to impact around two per cent of the population. Frequently found in children on the autism spectrum, those with the condition have difficulties distinguishing between one face and the next, meaning that they may not recognize even those who are closest to them. Nancy L. Mindick provides parents, teachers, and other professionals with an accessible explanation of the different types, causes, and characteristics of prosopagnosia. Providing an insider's perspective on the condition, she suggests ways to recognize the signs of facial recognition difficulties in children, and offers specific ideas for ensuring that they are properly supported in their learning and social development. The issues of diagnosis and disclosure are explored, and the author offers practical management strategies for helping children to cope with the condition and to navigate the many different social situations they will encounter at home, at school, and in the community. This book offers specific, practical information for parents, teachers, child psychologists, and anyone else who wishes to support the learning and development of a child with a facial recognition disorder.Trade ReviewEducator Nancy L. Mindick, who also suffers from prosopagnosia, attempts to fill an information hole with her important book, Understanding Facial Recognition Difficulties in Children... As one who suffers from the disorder she's writing about, Mindick has obvious insight into the emotions that go along with the condition and is brave enough to use her own history as a guide in her writing... It's also evident that Mindick has spent countless hours studying her condition. She offers lucid explanations of the science behind face blindness and explores the differences between developmental prosopagnosia, which starts in childhood, and situational, which occurs as a result of brain injury or illness. Perhaps most importantly, she encourages celebrating the individual talents and personal successes of any person learning to live with prosopagnosia. People suffering from its effects will welcome this accessible, concise, practical book. -- ForeWord Digital ReviewTable of ContentsAcknowledgements. Foreword by Glenn Alperin. Introduction. 1. The World of Prosopagnosia 2. Seeing Faces. 3. Benefits to Children of Face Recognition. 4. Faces, Math, and Motion: The Clustering of Talent and Impairment Areas. 5. Recognizing Non-recognition. 6. How Prosopagnosics Recognize. 7. Supporting the Child in Elementary School. 8. The Older Child and Teen in School. 9. Working with Parents and Teachers. 10. Helping the Child to Thrive Socially. 11. Disclosure of Prosopagnosia. 12. Facial Expressions and Prosopagnosia. 13. Diagnosis of Prosopagnosia. 14. Looking Toward the Future. Afterword. Appendix. Glossary. Bibliography. Index.

Read more less

Book SynopsisAutism Spectrum Disorder, or ASD, is the umbrella term used to describe a whole family of related conditions. Within this group, there is a subgroup of conditions known as PDD (NOS) - Pervasive Developmental Disorder (not otherwise specified) - which do not quite meet the diagnostic criteria of Autism or Asperger Syndrome. Written specifically for parents, this fully-updated second edition sets out what it means for a child to be diagnosed with ASD, PDD (NOS), autism or Asperger Syndrome, and explains where parents should go from there. The authors describe the signs and symptoms of each condition, what a diagnosis means, how a child fits into the diagnostic terminology, and what the diagnostic procedures involve. Associated disorders such as Rett Syndrome, Childhood Disintegrative Disorder and OCD are reviewed, and the authors describe the various treatments, therapies, and educational approaches available. The book also includes new information on medication and on the evolving concept of diagnosis, as well as a list of frequently asked questions and new interviews with parents of children on the autism spectrum. Accessible, informative, and supportive, this book is an essential guide for parents of children with an autism spectrum disorder.Trade ReviewParents of the newly diagnosed may feel isolated and burdened; the new edition of Autism, Asperger Syndrome and Pervasive Developmental Disorder by Barbara Quinn and Anthony Malone offers answers, explanations, and - perhaps most importantly - a community of parents who've walked this same path...Throughout the book, with precise, supportive wording, the authors encourage parents to trust themselves, listen to their children, and relish the people their sons and daughters grow to be... The bulk of the book focuses on specific questions parents may have about their own child's diagnosis. The authors begin with a discussion of normal development and the ways children might differ from this baseline... Using anecdotal examples, they do an excellent job illustrating the difference between children with a diagnosis and children who are simply slower than average. -- ForeWord ReviewsI would recommend it to parents of newly diagnosed children with autism, PDD, or Asperger's. It is easy to read and touches on all the key subjects to help a parent understand the basics of what they are up against. Parents will learn a lot from the personal accounts of other children with ASD and will also get a good idea of what they may want to pursue next in their journey. -- Help! S-O-S for ParentsThe authors use easy to understand language to attempt to explain what may cause autism, pointing out the complex interplay between genetics and brain functioning and the possibility of an "epidemic" of autism, pointing out that may not be the case... each chapter is highlighting that particular concept the chapter is discussing, to give the reader an idea of just how complex and variable ASD really is. -- Newsletter of the Autism Society of MichiganTable of ContentsForeword. Acknowledgements. About the Authors. Sam Likes Trains. Eric is a Soldier. Introduction. 1. What is Autism Spectrum Disorder? 2. Social Reciprocity. 3. Communication. 4. Impairment in Play Style. 5. More Characteristics and Areas of Uniqueness. 6. The Evaluation Process. 7. What Can Be Done? Medical Perspective. 8. What Can Be Done? Educational Perspective. 9. Additional Options. 10. Up Close and Personal. Resources. References. Index.

Read more less

Book Synopsis*Bronze Medal Winner in the Education / Academic / Teaching Category of the 2011 IPPY Awards** Bronze Medal Winner in the 2010 BOTYA Awards Education Category *Graduating high school and moving on to further education or the workplace brings with it a whole new set of challenges, and this is especially true for students with disabilities. This useful book provides a complete overview of the issues such students and their families will need to consider, and outlines the key skills they will need in order to succeed once they get there. The authors describe the legal landscape as it applies to students with disabilities in the USA, and how to obtain the proper disability documentation to ensure that the student receives the right support and accommodations in college. Focussing specifically on the issues that affect students with disabilities, they offer advice on everything from dealing with college entrance exams and the college application process, to selecting the right college, visiting the campus, and achieving medical and financial independence away from home. A list of further resources guides students and their families towards additional sources of information and support, and stories of students with disabilities who have made the transition from high school to further education or the workplace are included throughout. This accessible and thoroughly readable book offers help and support to students with disabilities of all kinds, and their families, both before and during the transition to life after high school.Trade ReviewBoth authors are well placed to to write this book. Yellin is an attorney and the mother of a child of difference and was inspired by her own experiences to create a centre for learning differences. Bertsch has worked as Director od Disabilities at a university and as a counsellor. She also set up and runs a centre to help find supportive colleges for students with different needs...The book is business like and serious in it's approach with no patronising banter; the reader is treated at all times with intelligence and respect. It is apparent from the introduction that the authors understand that disabilities are varied and complex and that each person has their own assets and needs... To start a book with the law is a brave move because most parents find the laws on disability confusing, frustrating and hard to grasp but the chapter is accessible and easy to read. It was also comforting to see an attorney recognise that such laws sound incredibly positive, inclusive and progressive but that the reality behind them, is, for many, not matched by the thetoric... At the end of each sub-section the authors have summarised the text with a few bullet points which I found very useful as it helped me to check that I had understood the text and could easily recall and later find areas of particular relevance to me...The authors help the student to break what can be an over whelming task into a process that narrows the multitude of options down to a functional level so that the student can choose from a small, select list...I would highly recommend this book for the US audience as it appears to cover all aspects of attaining an appropriate education for one's child There are many bits of advice that apply equally to those in Europe but because the laws and services differ across countries some of the information does not translate well. It si clearly written and ordered and for a book focusing, of necessity, so much on the law, it was surprisingly readable. We now need an equivalent book for the UK. -- AS Teens and BFK BooksHere, Yellin, attorney and fouder of the nonprofit Center for Learning Differences, and Bertsch (former director, disability svcs., Fordham Univ.) provide students with disabilities and their parents an outstanding and highly readable guide to preparing for and transitioning to life after high school...An excellent resource for students with disabilities and their families; at this price, within reach for most people and libraries. Highly recommended. -- Library Journal"Life After High School" provides guidance to assist disabled young people in their efforts to pursue education, independence, and competency in life skills...This book is a useful resource for helping disabled students and their families plan for continuing education after high school. It addresses the specific needs of physical, mental, and learning disabilities, covering how to work with guidance counselors, how and when to take standarized tests, and the specific attributes that a college or university needs to have to help the disabled learner succeed...Perhaps most valuable is the book's overall approach: it addresses the whole person, and not just the disability. -- ForeWord ReviewsTable of ContentsIntroduction. 1. The Legal Landscape. 2. Getting Started. 3. What's a Disability? 4. Creating a Paper Trail. 5. College Admissions Tests. 6. Selecting a College. 7. Application Advice. 8. The Campus Visit. 9. It's Off to Work We Go. 10. Medical Management without Mom. 11. Keys to Competence. 12. Pulling it all Together. 13. Money Matters. Resources. Notes. Index

Read more less

Book SynopsisWhat is it like to grow up with a sibling on the autism spectrum? What kind of relationship do such siblings have? How does that relationship change as the siblings get older? In this moving collection of beautifully-written personal accounts, siblings from a variety of backgrounds, and in different circumstances, share their experiences of growing up with a brother or sister with autism. Despite their many differences, their stories show that certain things are common to the "sibling experience": the emotional terrain of looking on or being overlooked; the confusion of accommodating resentment, love, and helplessness; and above all the yearning to connect across neurological difference. Siblings and Autism is a thought-provoking book that will appeal to anyone with a personal or professional interest in autism, including parents of siblings of children on the spectrum, teachers, counsellors, and psychologists.Trade ReviewIt has something for everyone... It's the academia to xenophobia of autistic tales The book uses siblings of children with autism as sources of these tales, who are incredibly diverse in terms of their professions, approaches to the storytelling, and cultural perspectives. While themes vary from story to story, they are never over serious or over pious. The collection is here to remind us of the multiple faces of autism... as a description of sibling experience and role in autism, autism development, and intervention, and these are "things" I needed to know. -- Journal of Autism Developmental DisordersSiblings and Autism: Stories Spanning Generalisations and Cultures is the collected tales written by siblings of children with autism, told now by those siblings in their adulthood. It has something for everyone, including tales of institutionalisation as seen from the outside (Visiting Becky), to culture clashes (Life with Runi), to blood oxygenation (Autism Connects Us). It's the academia to xenophobia of autistic tales. The book uses siblings of children with autism as sources of these tales, who are incredibly diverse in terms of their professions, approaches to the storytelling, and cultural perspectives. While themes vary from story to story, they are never over serious or over pious. The collection is here to remind us of the multiple faces of autism. -- Journal of Autism and Developmental DisordersIt is very readable, the different approaches to story telling is like unwrapping a sweet and never knowing what will be inside, but knowing you will like it nonetheless. -- AS TeensThere is much to recommend and to learn in this important collection of voices. -- Handicaps InfoMoving and true-to-life, the essays are troubling and yearning, full of fear and also hope and in many cases, full of love and understanding too. A book for the whole family. -- healthyBooksEditors Debra Cumberland and Bruce Mills have compiled a moving collection of sixteen narratives by authors growing up with siblings who have autism... There is much to recommend and to learn in this important collection of voices. In "This Night Will Pass," Thomas Caramagno poetically reflects upon the development of his brother, whose family sought effective intervention and support: "Joe David has blossomed. As I look back over the years, I realize he had been slowly blossoming all along. It was I who underestimated him, and myself, for the capacity to find solace simply in being oneself." May this memorable set of stories help others do likewise. -- ForeWord ReviewsI really appreciate that this book addresses the siblings of Autistic kids. They are often overlooked and they need support in their unique role. I love that this book acknowledges that their lives ARE different from many of their friends. Having a sibling with Autism certainly changes the dynamic of a family. I enjoyed reading from the many different perspectives and seeing the unique ways in which various people coped with their Autistic siblings. I thought the book was well written and easy to understand. -- Tara's View on Books BlogTable of ContentsIntroduction. 'House on the Meadow', Catherine Anderson. 'Family Resemblance', Erika Nanes. 'Visiting Becky', Anne Barnhill. 'On the Way to the Sky', Katie Harrington Stricklin. 'Victim of Silence', Ann Damiano. 'Life with Runi', Aparna Das. 'Autism Connects Us', Matthew Belmonte. 'My Brother's Speaker', Debra Eder. 'We Were Beautiful, Once: My Autistic-American Family', Maureen McDonnell. 'Holding On', Lindsey Fisch. 'Our Family Has Two Hearts: Me and My Older Sister Ge', Helen McCabe and Chuan Wu. 'Robie', Erika Reich Giles. 'Everyone is Different', Cara Murphy Watkins'. 'Sisters Aren't Doing It for Themselves: Negotiating Special Identities in a Disabled Family', Alison Wilde. 'This Night Will Pass', Thomas Caramagno. 'Sirens', Debra Cumberland.

Read more less

Book Synopsis"Your child has autism" - four small words with the power to leave parents feeling helpless, overwhelmed, and confused. This concise, no-nonsense book will enable parents to regain control of the situation and take the first practical steps towards a calm and happy life with their newly-diagnosed child.Dr. Larson Kidd's approach draws from the vast amount of information available on parenting a child with autism and distils it into ten manageable steps. It covers the key aspects of life with a child on the autism spectrum, including the basics such as sleeping, eating, and toileting, through adapting the home, creating routines, and exploring therapy. Ready-to-implement strategies are outlined simply and clearly, and are firmly grounded in the author's extensive experience of supporting children with autism.This practical book will be essential and empowering reading for every parent whose child has recently been diagnosed with autism or for parents still struggling with where to begin to help their child.Trade ReviewA must for any parent overwhelmed by the new world they have entered into. -- The Midwest Book ReviewAs a generalist speech and language therapist working in community clinic I ground this slim book to be clear and structured with a friendly tone throughout... I have no doubts that many parents will find this a good starting point for early reading without being overwhelmed by jargon and theory. Undergraduate students and practising therapists may also find it a handy little book for immediate reference.The advice given is grounded within commonly known approaches. I found the sections on "visual support", "creating routines" and "simplifying areas in the home" particularly useful. Each chapter or "step" has a helpful "to learn more" section at the end with references for further reading. At £9.99 this book is good value for money. -- Speech & Language Therapy in PracticeI have to confess that when I first held this slim volume in my hand I wondered whether so few words could make a difference, but as the saying goes, "less is more". Dr Susan Larson Kidd has her finger entirely on the button. She offers tiny gold nuggets of support, arranged neatly in ten sections, which help everyone involved in supporting children on the autistic spectrum with everyday living and learning issues. Susan's no-nonsense approach to sleeping, eating and toileting can only be good news. There are sensible strategies to using visual supports, simplifying home and school and building basic support team... As an academic I was pleased to discover the depth of research underpinning this book. Especially rewarding is Susan's citation of Mahoney and McDonald, (2007) who show that parents have a greater impact on their child's development than any known professional. If parents spend, as a low estimate, just two hours of time interacting with their child daily, they will influence their child's progress two to three times more than any teacher or therapist! -- Montessori International MagazineThis slim volume is an ideal first read for parents and carers of children who have just found out about autism. Susan Larson Kidd's book demonstrates her years of experience in a forthright manner, avoiding jargon and with many practical examples, hints and tips... Many parents are completely overwhelmed and do what I did-hit the internet for information with thousands of entries, become distracted by the adverts down the side claiming cures-and experience anxiety. We're buried in information, too much. We need a primer and a starting point and that is what this book provides. -- Whitterer on Autism blogKidd's book, My Child Has Autism, Now What? is a terrific first step on the pathway to education and adaptation. A diagnosis of autism spectrum disorder is not the end of the world, but the beginning; Kidd's clear, matter-of-fact explanations of terms and ideas on how to teach and communicate with autistic children can make those first few weeks and months a positive learning experience instead of time wasted on confusion and guilt.... Kidd writes in a welcoming, conversational manner and includes further resources at the end of each chapter. Her book is less like a manual and more like a conversation; above all her advice is friendly and easy to follow. By focusing on the practical aspects of dealing with a diagnosis of autism instead of delving into extensive theory she keeps her book appropriate for family members and educators who are new to this arena and need concrete information to improve daily life. Her book is perfect for families on the cusp of a new world. -- ForeWord ReviewsI think this would be the perfect book to give to every parent right after they get the diagnosis. It is an excellent starting point. It is very practical and very user friendly. I wish I had been given this book after my son Aiden was first diagnosed with Autism! I had no idea what to do or where to start and this book provides that. It is well written and easy to read. Even if not every step relates to every case it is still a very handy guide... I would certainly recommend this book to anyone just starting out on the path of parenting an Autistic child. -- Tara's View on Books BlogTable of ContentsIntroduction: Beginning the Path. Step One: Help Your Child with Sleeping, Eating, and Toileting. Step Two: Help Your Child by Using Visual Supports. Step Three: Incorporate Sensory Integration Strategies. Step Four: Simplify Areas in Your Home. Step Five: Use Music to Help Your Child. Step Six: Create Routines. Step Seven: Take Your Child to Speech/Language Therapy. Step Eight: Start Educational Services. Step Nine: Start with the Basic Biomedical Interventions. Step Ten: Build a Support Team. Afterword: You Are on Your Way. Appendix A: Sensory Plan Format. Appendix B: Samples of IEP Goals and Services. Appendix C: Educational Services Information in the United States. Bibliography. Index.

Read more less

Book SynopsisThe book is an honest, first-hand account of how people with autism deal with the loss of someone in their life. Unlike the non-autistic response, people with autism, when faced with overwhelming or stressful situations, will favour solitude over sharing their emotions, tend to focus on special interests, and become extremely logical, often not expressing any emotion. This behaviour often leads to the belief that people with autism lack empathy, which is far from the case. Through the description of personal experience, and case studies, the book explores how people with autism feel and express the loss of a loved one, how they process and come to terms with their feelings of grief, and offers practical and detailed advice to parents and carers on a range of sensitive issues. These include clear instructions on how best to support someone with autism through the grieving process, how to prepare them for bad news, how to break the bad news, how to involve them in the funeral or wake, and how best to respond to later reactions. The final chapter explores the issue of why children and teens with autism can be drawn to death as a special interest, and explains that the interest is not normally a morbid one.Trade ReviewLipsky uses personal experience and case studies to explore how people with autism feel and express the loss of a loved one, and how they process and come to terms with their feelings of grief…...She offers advice to parents and carers on how to prepare someone with autism for the bad news. -- Autism eyeA fine survey on how people with autism handle loss of people in their lives, and explores how they come to terms with grief. From various coping behaviors such as turning to solitude over sharing feelings to their ability to show no emotional turmoil and to turn their focus to other things, this explains the different reactions of autistic people to their environment and experiences, and comes from a high-functioning autistic individual with a basic background in emergency services and education alike. -- Midwest Book ReviewMy Aspie father never showed an ounce of emotional turmoil, not when he talked about being on the front line in WWII, not when he talked about his beloved parents' deaths, not when he talked about the Great Depression. He offered reasons for why these events occurred, insight into how to move beyond the obvious holes they left, and advice meant to prepare for future inevitable tragedies. Most marked my father as a cold and unfeeling man, but Deborah Lipsky's understanding of the way many with autism handle grief, show my father to be a man who simply processes loss and sadness in a different way, not in a lesser or insignificant way. Just as this book explains how some with autism respond to grief, it also expresses how most of society does grieve. Sharing the points of view will help people on and not on the spectrum learn to respect individual reactions to the things that fill life with woe. -- Liane Holliday-Willey, author of Safety Skills for Females with Asperger Syndrome, Pretending to be Normal, Asperger Syndrome in the Family, and Asperger Syndrome in AdolescenceLipsky, an autistic woman who has worked as a firefighter, emergency medical technician, and reserve police officer, is the author of two other similar titles: Managing Meltdowns and From Anxiety to Meltdowns. She expertly brings the disability motto "Nothing about us without us" to life in this behind-the-spectrum perspective of death and grieving. Lipsky discusses how autistic people view the end of life, which entails literal thinking and problem solving that are not in step with our (neurotypical) emotional responses. Her matter-of-fact approach and examples shine a light on just how different the process is for those on the spectrum. Strategies surrounding cultural expectations for wakes, funerals, and other social events are included. VERDICT An eye-opening work that is truly illuminating and thought-provoking. Essential for anyone who loves, lives with, or works with people on the spectrum, and highly recommended reading for those in the mortuary, counseling, and education fields. -- Library JournalThis book is a good insider guide and gave me a better understanding about how people with autism cope with grief and loss. The gap between ASD and NT reaction to grief remains but hopefully it will enable those that are seeking support to begin bridging the gap. -- Side by SideTable of ContentsIntroduction. 1. Differences in Dealing with Problems. 2. Emotional Expressions of Grief in Autism. 3. Cultural Expectations and Autism. 4. Knowing What to Say. 5. How to Tell a Person with Autism Someone Died. 6. Death as a Special Interest.

Read more less

Book SynopsisThis comprehensive guide enables parents of children with an autism spectrum disorder (ASD) to play an active and effective role in their child's medical care from diagnosis to early adulthood. With a focus on working with health care providers to ensure the best treatment for your child's unique needs, it includes:- a description of the developmental and medical conditions faced by children with ASDs in lay terms- an explanation of common diagnostic tests- a presentation of conventional and alternative therapies and how they work- tips for managing day-to-day medical or behavioral problems- advice for parents considering enrolling their child in a research project- and all the latest medical information.This authoritative and accessible book provides parents of children with an ASD with the foundation of knowledge they need to become an active partner in the medical care of their child and the map that will allow them to navigate the complex medical world.Trade ReviewHere, in a single volume, Ming and Pletcher provide families with an authoritative and in-depth review of what is known today about the diagnosis, causes and treatments of the autism spectrum disorders. Issues important to toddlers, older children and adults are well covered. The book is comprehensive and should be of interest to healthcare providers and teachers, as well as parents. -- Gary W. Goldstein, M.D., President and CEO, Kennedy Krieger Institute, Professor of Pediatrics and Neurology, Johns Hopkins School of Medicine, Baltimore, MD, and board member of Autism SpeaksThis important book is a gold mine of authoritative practical information that will make real improvements in the lives of people with autism. -- Martha Herbert, PhD, MD, Assistant Professor of Neurology, Harvard Medical School, Pediatric Neurologist, Massachusetts General Hospital, and author of 'The Autism Revolution'Ming and Pletcher have conceived and brought to fruition a very important, practical and useful book that fills a definite need. It brings together all facets of clinical care for autism, along with the background scientific principles. The authors provide up-to-date, accurate and thorough coverage of all the important medical aspects of ASD, along with topics related to various therapies, educational planning and legal aspects. The chapters are written by authorities in their fields and are very readable in everyday language. At the same time, the depth and breadth of coverage of the topics make the book a valuable resource for professionals as well as parents and families. Most notably, in each chapter sound advice is based on the analysis of what is known and carefully balanced with the unknown. This book will become common ground for the whole community, including families, therapists, educators and medical professionals of all types who work with children and adults with ASD. -- Andrew W. Zimmerman, M.D., Clinical Professor of Pediatrics (Neurology), Center for Autism and Neurodevelopmental Disorders, UMass Memorial Medical Center, Worcester, MATable of ContentsPreface. 1. When Your Child is Diagnosed with an Autism Spectrum Disorder (ASD). Sue X. Ming, MD, PhD, Pediatric Neurologist and Professor of Neurosciences and Neurology, Rutgers New Jersey Medical School, Newark, NJ. 2. Co-occurrence of Neurological Disorders with Autism Spectrum Disorders (ASDs). Sue X. Ming, MD, PhD. 3. Co-occurrence of Psychiatric Disorders with Autism Spectrum Disorders (ASDs) and Their Management. Lisa Ford, MD, Pediatric Neurologist and Associate Professor of Neuroscience and Neurology, Rutgers New Jersey Medical School. 4. Gastrointestinal Disorders That Can Lead to Both Physical and Behavioral Problems. Iona M. Monteiro, MD, Pediatric Gastroenterologist and Associate Professor of Pediatrics, Rutgers New Jersey Medical School. 5. Allergies and Immune Mediated Conditions in Children with Autism Spectrum Disorders (ASDs). Harumi Jyonouchi, MD, Pediatric Allergist/Immunologist and Associate Professor of Pediatrics, Rutgers New Jersey Medical School. 6. Oral and Dental Issues for the Person with an Autism Spectrum Disorder (ASD). Evan Spivack, DDS, Professor of Pediatric Dentistry, Rutgers School of Dental Medicine, Mark D. Robinson, DMD, Assistant Professor of Pediatric Dentistry, Rutgers School of Dental Medicine, and Tomas J. Ballesteros, DMD, Clinical Instructor, Department of Pediatric Dentistry, Rutgers School of Dental Medicine. 7. Genetic Considerations for the Individual with an Autism Spectrum Disorder (ASD). Beth A. Pletcher, MD, Pediatric and Medical Geneticist and Associate Professor of Pediatrics, Rutgers New Jersey Medical School. 8. Traditional Treatment Options for the Child with an Autism Spectrum Disorder (ASD). Caroline Hayes-Rosen, MD, Pediatric Neurologist and Assistant Professor of Neurosciences and Neurology, Rutgers New Jersey Medical School. 9. Complementary and Alternative Therapies in the Child with an Autism Spectrum Disorder (ASD). Jeffrey Kornitzer, MD, Pediatric Neurology Fellow, Department of Neurosciences and Neurology, Rutgers New Jersey Medical School. 10. Environmental Risk Factors and Autism Spectrum Disorders (ASDs). Sue X. Ming, MD, PhD. 11. Tests for Individuals with Autism Spectrum Disorders (ASDs) and Their Associated Medical or Behavioral Conditions. Devorah Segal, MD, PhD, Pediatric Neurology Fellow, Department of Neurosciences and Neurology, Rutgers New Jersey Medical School. 12. The Medical Home for Your Child with an Autism Spectrum Disorder (ASD). Jennifer Bain, MD, PhD, Child Neurology Fellow, Department of Neurology, Columbia University Medical Center, New York, NY. 13. Working with Non-Physician Members of Your Child's Treatment Team. Caroline Hayes-Rosen, MD, Pediatric Neurologist and Assistant Professor of Neurosciences and Neurology, Rutgers New Jersey Medical School. 14. Puberty and Sexuality. Susan R. Brill, MD, Clinical Associate Professor of Pediatrics, Drexel University College of Medicine and Chief, Adolescent Medicine, Saint Peter's University Hospital, New Brunswick, NJ, Tishi Shah, MD, Pediatric Resident, Department of Pediatrics, Saint Peter's University Hospital, and Barbie Zimmerman-Bier, MD, Associate Professor of Pediatrics, Drexel University College of Medicine, and Chief, Developmental Pediatrics, Saint Peter's University Hospital. 15. Bridging the Gap to Adulthood: Navigating the Transition to Your Child's Future. Susan L. Connors, MD, Internist, Lurie Center, Massachusetts General Hospital for Children, Lexington, MA, and Julie O'Brien, MEd, LMHC, Lurie Center, Massachusetts General Hospital for Children. 16. Autism Spectrum Disorders (ASDs) and the Law. Gary McAbee, DO, JD, Professor of Neuroscience, New Jersey Neuroscience Institute, JFK Medical Center, Seton Hall University, Edison, NJ and Chief of Pediatric Neurology, Meadowlands Hospital Medical Center, Secaucus, NJ. 17. Participating in a Research Project. Sue X. Ming, MD, PhD.

Read more less

Book SynopsisThis straight-talking and accessible guide for parents of teenagers on the autism spectrum provides down-to-earth advice on coping with the more difficult issues that can arise at home and school during the adolescent years.Andrew Schlegelmilch discusses common parenting challenges and offers advice drawn from his extensive experience working with teenagers with autism and their families as Head Psychologist at a college preparatory school. He offers parents professional guidance on what to do about falling grades, how to handle adolescent tantrums, how to talk about sex and sexuality with your child, how to help your child with peer relationships, how to keep your child safe online, and what to do if you suspect your child has mental health problems. Integral to the discussion is how to set realistic expectations and encourage independence in ways that work for both your child with autism and the rest of the family, as well as how to make the best use of the help professionals can offer.Trade ReviewThe strength of Schlegelmilch's writing is in his not-the-typical-autism-professional voice-one that is no-nonsense, down-to-earth, and clear as a bell. Mix that in with his deep understanding of ASD and the whole teenage "thing", seasoned with wry asides and warmed with compassion, and you have a highly useful, compelling and unusual book. -- Susan Senator, blogger, parent, and author of The Autism Mom's Survival GuideAndrew Schlegelmilch's new book, Parenting ASD Teens is a clear, detailed, and a much-needed look at parenting of teens on the spectrum. His years of experience with ASD teens and their parents at Orion Academy come through in the realistic information and the thoughtful, professional discussion. This is a must-read book for both parents and clinicians living and working with this population. -- Kathryn Stewart, PhD, Executive Director and Founder of Orion Academy and author of Helping a Child with Nonverbal Learning Disorder or Asperger's DisorderWhile the title of Dr Schlegelmilch's book is Parenting ASD Teens, this volume is a wealth of information and advice useful to any parent or professional who works with teens or adults. He is extremely knowledgeable and obviously cares for these kids. I would recommend the book as a preparation for parents for the many challenges and changes that life will bring. It covers a breadth of topics, both outside and inside of the classroom. This is stuff we as parents and professionals need to know. He has a subtle sense of humor that will hit home with any parent or teacher. -- Luby Aczel, parent of a son with Asperger Syndrome and Executive Director of The Specialists GuildEducational, insightful, and encouraging. In Parenting ASD Teens, Dr Schlegelmilch gives valuable information regarding the challenges facing adolescent ASD teens and young adults. Dr. Schlegelmilch offers practical advice about how ASD teens learn and grow towards independence. I would strongly recommend this book to parents. -- Karra M. Barber, author of The Social and Life Skills MeNu...for any parent of a teen on the Autism Spectrum and comes from a psychologist who offers guidance on difficult issues that go beyond adolescent rebellion and include ASD special concerns. From behavior problems and school struggles to helping a child develop social consideration, this is a 'must' for any who have an ASD child and are looking ahead to the turbulent teen years and how to cope with an Autism child entering these years. -- The Midwest Book ReviewThis book is full of advice on raising a teen with autism. The author acknowledges how difficult it can be for a parent to get it right...This can be very helpful for a parent who wants to understand what is being said about their son or daughter...Different terms for Autism are explained... This book is full of practical advise for parents and carers of autistic teens. -- Alex Lowery speaks about autism blogWith Andrew Schlegelmilch's book I found he gave a brilliant insight into the whys and wherefores of children's behaviours who were both ASD and Neurotypical... It clarified many things for me... This book is relevant to anybody who would like a better understanding of teenagers with ASD. -- Special Needs Jungles blogTable of ContentsAcknowledgements. Preface. Section A: Getting to Know Your Teen. 1. What are Autism Spectrum Disorders? 2. Assessing Strengths and Deficits. 3. Why Your Brilliant Child is Struggling in High School. 4. What Should You Expect from Your ASD Teen? Section B: Growth and Development. 5. What Happens When a Child Becomes an Adolescent (Who is Bigger than You)? 6. Rules, Justice, and the Search for Peace. 7. Morality and Being a Good Person. 8. The Adolescent Fixation, Being Stuck, and the Freeze Response. Section C: Relationships: 9. Sex, Sexuality, and Romantic Relationships. 10. Vertical Relationship Management. 11. Peers, Friends, and Enemies (Lateral Relationship Management). 12. Social Media and Text-Based Communication. Section D: Parents and Professionals. 13. Mental Health. 14. Transitions. References.

Read more less

Book SynopsisThe innovative drama therapy programme develops social skills in children and teens on the autism spectrum by looking to the mirror neuron system as the key to social connection and interaction.Lee R. Chasen provides an accessible explanation of the approach's grounding in neuroscience, followed by a thirty-session program involving creative tools such as guided play, sociometry, puppetry, role-play, video modeling and improvisation. Scenarios drawn from his own practice provide useful insights into both the practicalities and positive results of this unique approach. This ground-breaking book will be of interest to drama and creative arts therapists, as well as teachers, school psychologists, counsellors and other professionals who work with children on the autism spectrum.Trade ReviewLee Chasen brilliantly connects current brain research with the challenges of autism to demonstrate why drama therapy works neurologically and practically as a powerful, motivating therapy for children and youth on the autism spectrum...Pragmatic and playful, this is a valuable resource able to be replicated successfully by other clinicians. I know that I will use it! -- Sally Bailey, Past President of the National Association for Drama Therapy and Director of the Drama Therapy Program at Kansas State UniversityTable of ContentsPreface. Foreword: Mirrors and Bridges. Robert J. Landy, Ph.D., RDT-BCT, LCAT. Introduction: Mirror, Mirror on the Wall. Part I. Behind the Scenes: Theoretical Constructs. 1. Dramatic Encounters. 2. Engaging Autism Spectrum Disorder (ASD). The diagnoses. Possible causes. Treatment approaches. Developmental considerations. Positive intervention. Back through the looking glass. 3. Drama: Mirroring the Neurological Soul. Part II. Center Stage: Theory in Action. 4. Constructing a Process Reflective Enactment Approach to Social Skills. 5. Recognition: Establishing Roles. 6. Unity: Building Ensemble. 7. Character: Reflecting Goodness and Appropriateness. 8. Plot: Organizing Events. 9. Diction and Reasoning: Social Scripting, Facial Cues and Body Language. 10. Complication and Resolution: Interactive Language Skills. 11. Comedy and Plot: Broadening Perspectives and Constructing Solutions. 12. Actions and Life: Simulating Events. 13. Reversal: Individualized Scripting. 14. Episodic Outline: Tools for Reflection and Celebration. 15. The Teen Experience. 16. Reflections: I See You. References. Subject Index. Author Index.

Read more less

Book SynopsisWritten for parents, carers and professionals who have responsibilities for people with profound intellectual and multiple disabilities, Listen to Me focuses on two crucial issues:- How to cope with the complex problems of someone with this level of disability, interpret their needs successfully, and maintain effective contact with all the professionals and organisations who deal with them.- How to enrich that person's experience and ensure that others value him or her as a distinct individual with a right to a meaningful life.Highly practical, and using examples from the author's experience with her own daughter, each chapter deals with communicating such rights and needs in particular situations, and includes references for further information and reading. The author explains how to prepare a Care Book which includes the essential personal information, not simply about medication and physical procedures but about the individual's interests, preferences and background. She explains how it can be used to communicate effectively with busy professionals.Trade ReviewThis book would be of great value to all who have contact with a person with profound and multiple learning disabilities. Apart from the insight into the needs from the person's and carers' point of view, it provides a wealth of information including useful addresses and further references that may be of value. -- PhysiotherapyTo those parents who see no end to their toil, anxieties and battles it will provide much comfort and information. The author begs from all of us who are involved with severe disability to `see the person first, rather than the disability' and to ask of parents: "what does your child enjoy doing" rather than concentrating on his or her medical problems. It gave me much food for thought. -- Newsletter of the National Association of Paediatric Occupational TherapistsMany mothers have wondered if there was a book that could serve as a blueprint in their battle to do their best for their son/daughter - something which would outline what services are available and what support groups are out there for them and their child. Pat Fitton's book... takes on this task very well, using the story of her own battle to support her daughter Kathy, who had severe and multiple disabilities. Ms Fitton does this with a refreshing lack of mawkishness - a trap not always avoided by other authors. This book seeks to advise parents on strategies for clear communications; as such it should be of benefit to all parties. Ms Fitton does not stray from her goal - to encourage us to 'listen' to the severely, multiply disabled non-verbal person. -- FrontlineThe book is, I believe, modern in concept and in its argument. Pat Fitton gives us a thoughtful and clear account of what is demanded of the parent and carer, and also of what they might reasonably expect our education, welfare benefits, health, leisure and social services to provide when someone has a disability... very moving and very informative at the same time: it is difficult to recall many books which have such a powerful effect... An important source of support mentioned by many parents is the information, advice and empathy received from other parents and carers. Listen to Me is a major contribution to that tradition of mutual support and understanding. -- From the Foreword by Harry Marsh, Director, Contact a FamilyTable of ContentsAcknowledgements. This Book is not… This Book is for… Foreword by Harry Marsh. Introduction: Kathy. Part One: Learn About Me. 1. Diagnosis and First Contact with Hospitals. Part Two: We Need to Communicate. 2. We Need to Communicate. 3. Writing to People. 4. Telephoning. 5. Talking to People. Part Three: Tell Them About Me. 6. The Care Book. 7. Diaries. 8. Information Sheets. 9. Medication. Part Four: 10. In Nursery, School or Centre. 11. Respite and Residential Services. 12. Independent Living Arrangements. 13. Wheelchairs. 14. Mobility, Equipment and Adaptations. 15. Benefits. Part Five: Doctors and Hospitals. 16. Your G.P. 17. In Casualty. 18. In Hospital. 19. Things Can Only Get Better… Part Six: 20. Leisure Activities. 21. Families and Friends. 22. The Future - Wills, Trusts and Guardians. Part Seven: Conclusion. 23. Who Cares for the Carers?

Read more less

Book SynopsisThe book contains a range of important messages in highlighting some of the complexities involved in the adaptation of housing for disabled people. The book is also progressive in calling for user-centred approaches in the development and delivery of social and welfare services. The book will be best used as a source of information (by professionals) and will be of particular use on training courses for occupational therapists in raising their awareness of methods and mechanisms of assessing the housing needs of disabled people. The structure of each chapter will, in part, help to do this given that they provide useful bibliographies and information about follow-up contacts and addresses, and a wealth of information about relevant statutes, legislation, practices and organisations.'- Disability & Society'The book is full of examples, which bring life and clarity to the subject matter and help relate theory to practice. It also provides intersting snapshots of innovative practice going on across the UK, which are both reassuring professionally and a good source of ideas for those involved in service development. It draws together much disparate information which any therapist working in this field needs to have at his or her fingertips. It is good to see a book on housing that looks beyond door widths and ramp gradients to issues that are much more fundamental to providing a well-informed and proactive service.'- British Journal of Occupational TherapyWhen a person with a disability seeks to live at home in the community but is blocked by the limitations of the building, adaptations or rehousing can provide an enhanced quality of life. This book describes the processes involved in rehousing or adapting existing accomodation, identifying the professionals who may contribute and highlighting the role of the occupational therapist. It focuses on:- innovative ways of working out solutions to problems- user-centred services - how users can be informed and empowered- multi-disciplinary co-operation to overcome problems- principles of good practice in adapting existing property- effective planning of a new housing project, from choosing the site to completion- improving housing stock through government legislation and local planning department practices- the key role of occupational therapists in successful community care.The book will be of interest and practical use not only to occupational therapists but also to a range of other professionals, including access and planning officers, architects, environmental health officers and social workers.Table of ContentsPreface, Baroness Masham. 1. The Legislative and Policy Context, Ruth Bull, London Borough of Redbridge, and Veronica J. Watts, College of Occupational Therapists Specialist Section in Housing. 2. Making the Most of an Occupational Therapist's Skills in Housing for People with Disabilities, Ruth Bull, Disability Community Care, London Borough of Redbridge. 3. The Adaptation Process, Ian Bradford, Community Care Advisor, Care and Repair. 4. Ways of Obtaining Appropriate Adapted Housing, Jackie Parsons, Sheffield Disability Housing Service. 5. Regulations, Standards, Design Guides and Plans, Trevor Dodd, Greenwich Council. 6. New Build Developments, Madeleine Middle, Walbrook Housing Association Ltd, Derby. 7. Living Independently, Veronica Watts, College of Occupational Therapists Specialist Section in Housing, and Christine Galbraith, Lewisham Community Team. 8. Specific Areas of Work, Research or Investigation, Jan Jensen, Kent Occupational Therapy Bureau, Jenni Mace, London Borough of Tower Hamlets, Zeenat Meghani-Wise, freelance, Brenda Parkes, Suffolk County Council, and Jeremy Porteous, RNIB Housing Service. The Contributors. Index.

Read more less

Book SynopsisMark Priestley addresses the relationship between the politics of disability and community care policies. Guided by his direct work with representatives of the disabled people's movement, he argues that although the ideas behind social policy and practice have started to reflect values such as participation, integration and equality, the current policy and its implementation often undermine those goals. `Community care' still contributes to the view of disabled people as dependent and different, thus reinforcing their social exclusion and marginalisation.Disability Politics and Community Care encourages health and welfare professionals and policy makers to start working much more closely with disabled people themselves. Priestley argues that involving disabled people in the design and production of their own welfare will break down the disabling boundary between service `provider' and `user' and will result in the reality of integrated living. He presents practical suggestions for the changes necessary for the proposed reorganisation of service provision which will re-define direct work with disabled people.Trade ReviewThis is an important book for those engaged in the delivery or study of welfare. Priestley's study confirms many others which have attempted to examine the impact of individual model approaches to the delivery of `care' services, and his analysis of the importance of the disabled people's movement to redefining the role of welfare is a strong and welcome addition to the growing body of literature in this field. He started the study by putting the research agenda clearly within the hands of disabled people and has succeeded in putting the case that this is what should should be done with the welfare agenda. -- Sociological Research OnlineIn a clear and well-organised text, the author offers a careful assessment of the kinds of change needed for the construction of genuinely emancipatory services…Taken as a whole, the suggestions for restructuring community care may be radical, but they are by no means Utopian. Priestley is eminently realistic about the difficulties that confront disabled people in their relations with a public sector still dominated by medical or `personal tragedy' understandings of disability, and he is careful to ground his arguements in the experience and achievements of disabled people in real-life examples…The author's unique perspective arises…from close co-operation with the Derbyshire CDP, so that the book benefits from the direct input of disabled people. The particular strength of this approach is that theory, values and power are discussed not merely as abstract concepts of interest only to academics, but as much more tangible factors which carry direct consequences for environmental change and integrated living. Priestley achieves, therefore, not only a cogent and powerful analysis of community care policy, its principles and outcomes, but also an assessment of the changes required if the exclusion of disabled people is to end. -- International Social Work…[this] may well be a set book for the near future, when disabled people's experience has become the model and inspiration for tackling barriers of exclusion. In the way that Colin Barnes' Disabled People in Britain and Discrimination in 1991 helped to break the deadlock in progress towards anti-discrimination legislation, Priestley's book could help take a step nearer to a "new profession" of the kind envisaged by Finkelstein and Stuart (1996). -- Disability and SocietyTable of Contents1. Introduction i.Some General Hypotheses. ii.Some Specific Questions. iii.Towards a Model for Disability Research. iv.Case Study Methods. v.Structure of the Book. 2. Disabling Values: Disabling Policies. i.Disabling Values. ii.An Agenda for Change? iii.Disabling Values and Community Care. iv.Conclusions. 3. An Enabling Counter-Culture. i.Social Movements. ii. The Disabled People's Movement. iii.The Movement for Independent Living. iv.Conclusions. 4. From Principles to Practice. i.Personal Assistance and Independent Living. ii.`Care' Assessments and Self-Assessment. iii. `Care' Management and Self-Management. iv.Conclusions. 5. Marketing the Social Model. i.A Market for Independent Living. ii.The Politics of Contracting. iii. The Impact of Contracting. iv. Conclusions. 6. Improving Services. i.In Search of Standards. ii. Some Experience of Quality. iii.Improving Service Quality. iv. Towards a Measure of Participation. v. Conclusions. 7. Beyond Services. i. What Kind of Outcomes? ii. Some Examples of Service Outcomes. iii. Quality of Life. iv. Quality and Equality. v. Conclusions. 8. Barriers and Strategies. i. Bridging the Implementing Gap. ii. The Scope of Legislative Change. iii. Social Change. Summary and Conclusions. Index.

Read more less

Book SynopsisThe books are short, simply laid out, easy to use with practical advice and exercises. The case studies seem to be taken from real life scenarios. Clients, staff and families would find these books very useful. They put in print the ordinariness of community living and how seemingly small incidences can impact on people. They may remind us to be more conscious and aware in our practice and to be creative in finding solutions and developing programmes.'- Irish Social WorkerFocusing on the nature of relationships with other people, Helping People with a Learning Disability Explore Relationships continues the story of John, Danny, Terry, Lucy and Liz - the five people with learning disabilities who share a house - from where Helping People with a Learning Disability Explore Choice ended. In this book, Lucy grieves when her old friend Mrs Coles dies, Terry learns to stand up for himself in the factory where he works, and Danny falls in love. Sections for the carer draw out the issues raised in each chapter - friendships, bullying, loss, depression and romance - and suggest ways of exploring them in discussions and exercises for groups and individuals.The book is designed for adults with learning disabilities to read alone or with a carer. It can also be used as a teaching aid for workshops, group work or drama sessions; and can be read in conjunction with its companion volume, Helping People with a Learning Disability Explore Choice, or alone. Illustrations by Tim Baker help the reader to visualise the characters and engage with the topics raised.Table of ContentsIntroduction. 1. Are we still friends? 2. Why does everyone have to die? 3. Has anyone ever hit you? 4. But you do love me, don't you? 5. Why is he leaving? Questions to ask yourself and others.

Read more less

Book SynopsisThe use of lifemaps with people who have learning disabilities has proved particularly effective for a better understanding of their emotional perceptions and needs. In this book, Barry Gray and Geoff Ridden have collected fourteen biographies written by people of all ages who have a learning disability. The authors discuss how these stories might be representative of other people with learning disabilities and what key themes may be identified from the stories. Such material has not been well documented in the past and is particularly appropriate for analysis which is not narrowly prescriptive.The pictorial form provides a simple and accessible means of self-reflection upon significant life experiences for people with learning disabilities. This flexible and educational tool of analysis will enable carers, educators, care managers and wokers in day and residential services to work more closely with their clients, to ensure that more choice is made available today to those whose voices have not always been heard. Lifemaps of People with Learning Disabilities will appeal not only to social workers and other health care practitioners, but also to families of people with learning difficulties.Table of Contents1. Introduction. 2. Mary. 3. Margaret. 4. Peter. 5. Len. 6. Lisa. 7. Madge. 8. Tim. 9. Colin. 10. Sue. 11. Jane. 12. Mat. 13. Matthew. 14. Michael. 15. Adam. 16. Conclusion. Index

Read more less

Book SynopsisThe books are short, simply laid out, easy to use with practical advice and exercises. The case studies seem to be taken from real life scenarios. Clients, staff and families would find these books very useful. They put in print the ordinariness of community living and how seemingly small incidences can impact on people. They may remind us to be more conscious and aware in our practice and to be creative in finding solutions and developing programmes.'- Irish Social WorkerHow can you make an informed choice when you have never had to decide anything for yourself? How can a carer help someone with a learning disability to a greater degree of autonomy? Helping People with a Learning Disability Explore Choice is an enjoyable and accessible resource to aid the improvement of social skills. Following the experiences of five adults with learning disabilities - John, Terry, Danny, Lucy and Liz - and their carers, it comprises a series of short stories focusing on different areas of decision-making. Sections for the carer explore the issues raised in the story, while Tim Baker's illustrations help the reader to engage imaginatively with the stories and the issues involved.The book is designed for adults with learning disabilities to read by themselves or with a carer, and can also be used as a teaching aid or as a resource for workshops, group work or drama sessions.Table of ContentsIntroduction. 1. Moving out. 2. Which room is mine? 3. Which colour? 4. Which wallpaper? 5. Whose job is that? 6. Whose job is that? 7. Whose garden is it? 8. What's in the garden? 9. Which person? 10. Questions to ask yourself and others. Glossary of terms used.

Read more less

Book SynopsisDuring a routine parent-teacher conference in November 1991, Echo Fling was told by her son's teacher that his behaviour in class was `not normal'. After two years at the pre-school, five-year-old Jimmy had failed to make any friends, had recently started to act aggressively towards his classmates, and was beginning to react violently to any changes in his routine. Echo was not taken completely by surprise: she had suspected for some time that her son was different from other children. Over the next five years, she and her husband accompanied Jimmy to doctors, medical specialists, learning consultants and psychologists. Finally, at the age of ten, Jimmy was diagnosed with Asperger Syndrome.This is the book that Echo Fling needed when she first set out to have Jimmy diagnosed, and it will enable parents and teachers to understand and help other children with Asperger Syndrome.Trade ReviewIn this meaningful and heartfelt book, the author clearly explains Asperger Syndrome and its impact on children and their families. She disscuses the daily joys and challenges of living with a person with Asperger Syndrome in such detail that one almost feels part of the family. This book is a must read for parents and teachers who are interested in learning more about Asperger Syndrome. -- ContactThis is a fascinating account of the tortuous path a mother had to follow in order to learn what was wrong with her son. It begins with the author being summoned to her son's nursery school to be met with the ominous words: 'I think that I need to tell you that I feel something isn't right with your son and you may want to consider having Jimmy evaluated by a specialist.' Jimmy at the age of five, having spent two years at nursery school, had failed to make friends, had started to behave aggressively towards classmates and was beginning to react violently if any of his routine was changed. The teacher's comments reinforced the mother's suspicions that she had a child that took different cues from his environment, whose conversation was peppered with obscure extracts from his favourite film and who had a frenetic obsession to acquire everything in sight that interested him. Echo Fling explains the reasons for writing this book: to record how she learnt to cope, and how it took five years before this American family were finally told what was wrong with Jimmy… The book ends with a sensitive and practical narrative of how Jimmy's family learned to manage, how the author learned about Asperger Syndrome and practiced strategies, based partly on trial and error, partly on knowledge. The enormous stresses on Jimmy's family, and their struggles are potent reminders that the earlier the recognition and intervention, the better the chances for developing productive lives and independent living. -- Seen and HeardOne of the most poignant moments in this truly wonderful book occurs when Echo's son, Jimmy, who has Asperger Syndrome, says to his mother, “You promised to help me learn what things mean in life, and I promised to help you learn what life means.” This profound statement captures the essence of Asperger Syndrome and should give all who live and work with individuals who have this exceptionality a sense of joy, hope and the potential for accomplishment. In this meaningful and heartfelt book, the author clearly explains Asperger Syndrome and its impact on children and their families. She discusses the daily joys and challenges of living with a person with Asperger Syndrome in such detail that one almost feels a part of the family. This book is a must read for parents and teachers who are interested in learning more about Asperger Syndrome. -- Brenda Smith MylesFor clinicians and educators, this book is a valuable source of insight into the challenges faced by the families of the children with whom they work. For parents, this book may simply be an inspiration. -- Journal of the International Neuropsychological SocietyAn inside look at Asperger Syndrome in the life of Jimmy Fling, a boy who begins life speaking in dialogue memorized from his beloved videotapes. His mother recounts her daily efforts to teach Jimmy the language of love and friendship. The world has always had Jimmys: with Echo Fling as our guide we can begin to understand the sometimes baffling, sometimes heartbreaking, yet always human challenges they face. A beautiful book. -- Catherine Johnson, Trustee of National Alliance for Autism ResearchJimmy Fling was three years old when his preschool teacher suggested that his mother take him to a specialist for an evaluation; six years later he was finally diagnosed with Asperger Syndrome, a form of autism. Jimmy's mother, Echo Fling, begins her journal with the devastating sentence from the teacher: “I have been in this business for many years and based on my experience, I think I need to tell you that I feel something isn't right with your son.” Fling's own fears were thus confirmed. She had noticed that Jimmy had no friends, was aggressive toward other children, didn't know his classmates' names, spouted dialogue from videos rather than conversing, and adhered compulsively to the same routines. She goes on to chronicle what has been an all-too-familiar litany of problems for parents of children with special needs: misdiagnoses, inadequate insurance, difficulties finding knowledgeable medical care and educational support, cruelties of other children. When Jimmy was finally correctly diagnosed by a pediatric neurologist, Fling learned that Asperger Syndrome is characterized by “impairment in social functioning; obsessive interests and rigidity; ability to use language to communicate yet poor social and pragmatic skills, repetitive motor mannerisms, and no peer relationships.” Coping and teaching strategies Fling had devised over the years with various therapists were validated, and Jimmy is doing well today. A modest and informative account. -- Kirkus ReviewsAn extraordinary book, it is written as an autobiographical account – and is excellent if read as an autobiography – but is so much more. It gives an accessible and informative insight into Asperger syndrome. On an emotional level the account is a moving depiction of the struggle life can be, while highlighting the many positive facets of living with a son with Asperger syndrome. The author manages to integrate humour into her writing while never belittling the serious nature of the subject. It will appeal to parents and professionals, both for the valuable information about Asperger syndrome and for the honest depiction of the thoughts and feelings of a parent. As a perspective on Asperger syndrome it is stimulating and encouraging, presented in an intelligent and clear style which lends itself to the reader. This read will be of value to any parent of a child with Asperger syndrome, and any professional who has an interest in the field. It raises issues that are common to many families of children with an autistic spectrum disorder. As a reflection on living with Asperger syndrome it is a useful guide; as a human story it is moving and open. -- CommunicationEating an Artichoke is a straightforward journalistic account by a mother determined to surmount the many hurdles she faces as a parent-advocate of a son with Asperger's Syndrome. This book will be of interest to parents and educators who face similar challenges in their efforts to provide positive environmental situations and facilitative learning strategies to address the lifelong challenges posed by this illness. -- Psychiatric ServicesThis book... enlightening and encouraging parents with similar experiences, and it has great value from this perspective. -- Contemporary Psychology, APA Review of BooksTable of ContentsForeword, by Tony Attwood. Preface. Acknowledgments. 1. There's Something Wrong with Your Son. 2. Looking Back. 3. Now What Do We Do? 4. Back to Basics. 5. Kitchen Classroom. 6. Reality Check. 7. Away at School. 8. Just a Lonely Boy. 9. Drugs? 10. Out to Lunch. 11. Light at the End of the Tunnel. 12. The Heart of my Artichoke. 13. Cha… Cha… Cha… Changes. 14. Making Sense of the Sensory. 15. Holla-daze. 16. Of Things Motoric. 17. My Girly. 18. Finding His Passion - and Beyond. Resources.

Read more less

Book SynopsisWritten by the mother of Stefan, a boy diagnosed with ADHD, Marching to a Different Tune is a day-by-day, moment-by-moment account of how his unusual and difficult behaviour affects and disrupts their family life inside and outside the home. Jacky Fletcher describes in intimate detail the struggles, embarrassments and triumphs her family experiences throughout a four year period of Stefan's childhood. The diary ends with an expression of the family's love for Stefan - as he approaches adolescence, they will learn new ways to cope with the challenges of his behaviour, applying the knowledge they have gained through experience.Marching to a Different Tune gives an essential new perspective to the understanding of Attention Deficit Hyperactivity Disorder - it describes this complex set of behaviours from the inside. It complements and deepens the clinical presentation of Attention Deficit Hyperactivity Disorder, at a time when this diagnosis is being applied to more and more children. The last chapter of the book gives a clinical description of ADHD; the appendix contains useful addresses for more information and support networks, and a list of recommended reading. This book will inform the practice of teachers and psychologists who work with ADHD children, and guide and support these children's parents and families.Trade ReviewThe author's description are beautiful and her style is elegant and compassionate. She conveys an honest view of her son that evokes emotions in the reader…Overall, a very thought provoking, stimulating (ADHD term) account of a mother's acceptance of and compassion for her son'. -- Book ReviewsJacky Fletcher's diary of her son who has ADHD provides an emotive insight into the relentless onslaught of challenging behaviour that can frequently render any carer feeling impotent. The vignettes provide clear examples of the traits of someone with ADHD. -- British Journal of Occupational TherapyThe diary could usefully be read by professionals as it gives an insight into the full, awesome experience of living with ADHD, and by parents who desperately need to know that they are not alone in their struggles to cope with their endearing but exasperating child. -- Therapy WeeklyThe title of this book accurately describes its intent and its product. It is a series of entries over a period of four years as the main actor, Stefan, moves from childhood to early adolescence. The book details the activities of Stefan as well as the frustrations of his parents and siblings with dealing with his amazing repertoire of adventures…For families seeking conformation that they are not alone in dealing with a child with ADHD, this book is useful. -- Disability Studies QuarterlyDescriptions of his daily activities are extremely illuminating and witty, giving the reader an insight into the constant challenges of living with a child with ADHD -- NAPOT JournalWhilst not a serious text book on ADHD, it is a very easy and entertaining read. Nevertheless I feel that this is a very important book which makes a valuable contribution to the subject. Text books can increase one's knowledge and learning about a subject. This book does the same but does so by telling how the experience is lived, not through facts or figures. Like most people I particularly enjoy a book that makes me feel something. This book did just that. I found myself fluctuate between sadness, anger and tears of laughter, classic elements of a good book. It offers a glimpse of what it is like to live day-to-day with a child with ADHD…Raising a child with ADHD is obviously difficult at times and whilst bearing in mind that Stefan's story may not be typical of every child with ADHD, there is no sense of despair in this book. I was left with a feeling of hope. Amid the difficulties there is love and affection. At the centre is a boy, a son, a unique personality who happens to have ADHD. -- Rostrum, The Voice of Social Work in ScotlandStefan, diagnosed with a severe form of ADHD, creates havoc on an almost daily basis. His mother, Jacky Fletcher, has written a diary about their family life. There is no doubt that turmoil follows wherever he treads but, in a funny, moving and inspirational account, the reader gains a unique insight into the frustrations of living with ADHD. Although admiration and compassion must go to Stefan's exhausted and endlessly patient family, Stefan's personality shines through. He is charming, difficult, unpredictable, intelligent and very much loved. -- JuniorTable of ContentsPreface. Chapter One: 1995. Chapter Two: 1996. Chapter Three: 1997. Chapter Four: 1998. Chapter Five: ADHD. Appendix: Recommended Reading and Useful Addresses.

Read more less

Book SynopsisWe mourn the death of the child we had assumed I had given birth to, yet dearly love the baby we have. We want our child, but don't want her to have Down Syndrome...'Since their initial shock at their daughter's disability, Karina's parents have experienced the challenges and joys of raising a child with special needs. Gun Dolva and Rodney Potter have taken advantage of available services and programmes, and their own imaginations, to devise stimulating activities to assist her to develop to her full potential. They aim to provide her with every opportunity to fully participate in the community.This is the account of Karina's first six years, as told to Cheryl Rogers. Karina Has Down Syndrome is a valuable resource for the families of Down Syndrome children, teachers and disability service workers.Trade ReviewThis is the story of how two parents coped with the birth of their daughter who was born with Down's Syndrome. It recounts very objectively their feelings, fears and hopes as they tried to come to terms with their situation. This is a very inspiring story, told in a mixture of diary extracts and personal feelings. It also contains a very useful glossary and a list of resource addresses and reading materials. -- RostrumThe reviewer gave this book to the mother of a one year old girl with Downs Syndrome for a parent's perspective. She described the book as the best she had read and found it amusing and relatively light-hearted, while true to life. She was impressed at how the book examined their experiences without being melodramatic or depressing and was heartened by the fact that Karina's parents did not set themselves up as experts, just parents recounting their story. Overall she found it positive and thoroughly enjoyable, and on a practical note, took on board some of the exercises done with Karina. A recommended good read. -- Irish Social WorkerThis book is one family's account of the early years with a child who has special needs. It is intended as a resource book for the families of children with Down Syndrome, teachers and disability service workers. -- Frontline of Learning DisabilityReading this book provides an excellent insight into some of the difficulties faced in balancing the needs of a young child with down's syndrome with that of other members of the family. It also discusses some solutions which this family found helpful. It is not a textbook to be used by therapists to understand the full implications of a diagnosis of down's syndrome but, the insight gained might assist in planning interventions appropriate to an individual family. The book is an honest account of disappointments and difficulties as well as pleasures, although the overall tone is extremely positive. The diary excerpts demonstrate the practical ways Karina's parents use to help her and the underpinning theory. I found this book a pleasure to read. It's lack of jargon and easy to read format was a refreshing change for a book that was of professional interest. -- OTPLD NewsletterThis is a delightful little book written by a journalist and Karina's mother, who is herself a university lecturer. Karina's mother vividly, but not over-emotionally, records the family's first six years of Karina's life. In her mother's words: "We mourn the death of the child that we had assumed i had given birth to, yet dearly love the baby we have. We want our child, but don't want her to have Down Syndrome". I very much enjoyed reading this book, and recommend it as an additional resource regarding the early management of a child with Down Syndrome -- NAPOTTable of ContentsForeword, Carol Bower. Introduction. 1. Daffodils and Tears. 2. Keeping Us Afloat - Family and Friends. 3. Help. 4. Reminders on the Fridge. 5. Babies are Not Born Walking. 6. Listen to Me. 7. Another Baby. 8. Karina Starts School. 9. What About Dad? 10. Let's Party. Glossary. National Resource List.

Read more less

Book SynopsisI recommend this book to anyone engaged in working collaboratively with people with the label 'learning difficulty', particularly in women's; groups, self advocacy or rights bases/citizenship concerns. The plain English accounts are accessible, but I also found the main bulk of the text easily translatable and used it extensively in my recent research. For the women involved in this project it provided a framework of reference in which they recognized similar life events and experiences.Not only does this book fill this gap by providing a frame in which women can examine this exclusion, it also questions the marginalized position of women classified as having 'learning difficulties' in feminist and disability literature.'- Disability and Society'This is such a good read that it is difficult to be objective about the content, criticism was suspended! It is divided into parts and each part is helpfully introduced by the editors. There is also a short straightforward description of the content at the beginning of each chapter so that women with intellectual disabilities can be included in the readership.This book gives us a valuable insight into the lives of women with learning disabilities. It changes an often discriminated group into individuals of considerable interest and value. It is to be recommended to everyone who feels that difference is important in our community.'- Ann Craft Trust BulletinThis book provides the first comprehensive exploration of the issues affecting the lives of women with intellectual disabilities. Women from all over the world, with and without intellectual disabilities, have collaborated to write about their lives, their experiences and their hopes for the future. Different aspects of life - work, family, relationships and community involvement - are discussed. Some of the women have found, or are finding, fulfilling, happy, creative lifestyles. One message which emerging from many of their stories is that their intellectual disability is less of a problem than the social and economic discrimination these women experience. This book thus raises important questions about society's attitudes to women with intellectual disabilities. It is also a place where these women's stories - from the sad or disturbing to the happy, moving or inspirational - can be heard. The book's unique plain English versions of chapters will ensure that it is accessible to other women with intellectual disabilities. It is an important, interesting and readable addition to literature about intellectual disabilities and about women's lives across the world.Table of ContentsFinding a place... PART ONE: FINDING A PLACE IN FAMILIES 1.What is life like? 2.Discovering a sister. 3.Coming home. 4.Unhappy families: Violence in the lives of girls and women. 5.Life without parents: Experiences of older women with intellectual disabilities. PART TWO: FINDING A PLACE IN RELATIONSHIPS 6.Family, marriage, friends and work: This is my life. 7.Learning from and with women; The story of Jenny. 8.Friendship: Love or work. 9.Consent and choices: Women with intellectual disabilities and sexuality. PART THREE: FINDING A PLACE IN WORK 10.We like working. 11.Gina's story. 12.My leadership career. 13.The social meaning of work: Listening to women's own experiences. 14.Caring: A place in the world? PART FOUR: FINDING A PLACE IN COMMUNITIES 15.My life in L'Arche. 16.Intersecting cultures: Women of colour with intellectual disabilities. 17.Thirty nine months under the Disability discrimination act. 18.Motherhood, family and community life. ...in the World. References. Index.

Read more less

Book SynopsisWhen I'm Away From Home is a workbook designed to provide specific information about the individual care requirements of a disabled child for anyone responsible for their care. It includes the child's medical and physical needs, their daily routine and a section which they can fill in themselves about their personality, preferences and habits. The workbook will benefit everyone involved: it will be an invaluable resource for the carer; the child, who may find it particularly difficult to understand and adapt to change, will benefit from the continuation of their everyday routine; and it may help to alleviate the anxieties of a parent or carer when they entrust their child into someone else's care.This clear and comprehensive workbook will help ensure that children's mental, physical, medical and emotional needs are met whenever they are being looked after by someone other than their primary carer.Trade ReviewThis is a book which makes one wonder just why it hasn't been done before. When I'm Away From Home is a workbook designed to provide specific information about the individual care requirements of a disabled child for anyone responsible for them. As a mother of a child who has a disability, I, and my daughter, would be pleased and reassured to complete the book and pass it on to another carer whenever the situation was necessary. Overall, a very useful book, one which all children with disabilities should have with them when staying away from home. It should reassure the parents and the carers. -- Adoption TodayTable of ContentsIntroduction. Part One. Child Profile: "About Me." Part Two. Child Profile: Completed by parent or carer. Part Three. Child Profile: Weekday and weekend diaries. Directory.

Read more less

Book SynopsisThis music CD from is now available through Jessica Kingsley Publishers. It features poems written or co-written by Donna Williams set to music which she has composed. The poems provide a personal insight, revealing to the non-autistic how the world appears to the autistic person. They are also a celebration of the creative talents of Donna Williams, whose autobiography, Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl also available from Jessica Kingsley Publishers) reached the bestseller lists when published as a trade paperback.Table of ContentsTrack Listing: 1. Sometimes. 2. Stormy Weather. 3. Nobody Nowhere. 4. Too Sensitive. 5. Stray Children. 6. Shadows. 7. Beyond the When. 8. Shoes. 9. Enemy Lines. 10. Today Starts Now. 11. Ocean Deep. 12. Just a Little Bit of Time. 13. Movin On. 14. Still Awake.

Read more less

Book SynopsisWendy Lawson has an autism spectrum disorder. Considered to be intellectually disabled and 'almost incapable of doing as she is told' at school, she was later misdiagnosed as schizophrenic - a label that stuck with her for more than 25 years.Her sense of self was then non-existent, but Wendy is now a mother of four with two university degrees; she is a social worker and adult educator, and operates her own business. She is also a poet and a writer, sharing her understanding of autism with others to help 'build a bridge from my world to theirs'. Life Behind Glass is part of that bridge.Trade ReviewWendy Lawson, the author of this book, was diagnosed with Asperger's syndrome and, because of this, the content is enriched with fascinating personal insights. -- The British Journal of Occupational TherapyTable of ContentsForeword by Patricia Howlin, Senior Lecturer in Psychology, St George's Hospital, London. Introduction: This is my story. 1. My world behind glass. 2. Love and feelings are a mystery. 3. My first take on life. 4. School intrudes. 5. A bumpy road to recovery. 6. Teenage dreams and fears. 7. Where to after school? 8. Farewell to childhood. 9. Children of my own. 10. The middle years. 11. My coming of age. 12. Learning to cope. 13. The anguish of change. 14. Finding love and friendship. 15. It's my world too.

Read more less

Book SynopsisKenneth Hall was diagnosed with Asperger Syndrome at the age of eight. His early school years had been difficult, as although he is bright and articulate, his behaviour could be challenging and easily misread. After his diagnosis, the Local Education Board intervened and provided him with a laptop computer, to encourage him to express himself. This book is the result.Kenneth Hall was diagnosed with Asperger Syndrome at the age of eight. He is in a unique position to describe some of the inner experiences and perceptions of autism in childhood. He has a warm and positive attitude to Asperger Syndrome which other children will find inspiring. Insights, struggles and joys are recounted vividly in a frank and humorous way. His book is for anyone interested in understanding more about autism, including parents, siblings, teachers and professionals.Trade ReviewThis book may be good to use as a introduction to discussing Aspergers Syndrome with other children with AS. It may be reassuring for other children to see that other people have similar difficulties to them and also see how someone else has come to terms and/or overcome some of these difficulties. Worth reading. -- Cathy McNeill, ConsultantTo say that this book was simple or child-like would be an insult. Kenneth Hall writes with an innocence, sincerity and insight that perhaps only a child could. This book is essential reading for other young people with Asperger's Syndrome (AS) and those living and working with them. Kenneth describes with great honesty the difficulties he has as a result of his AS, including those at school. Yet, he remains positive about his condition and sees it as a gift. Kenneth is able to explain clearly the many emotions he feels: depression, frustration, joy and appreciation. He is also able to explain why he feels them, perhaps making the reader review their own understanding of AS. Other topics that Kenneth covers are: living without a diagnosis, experiences of home tutoring, women and fashion, the importance of `jammie days', his passion for reading, applied behaviour analysis (ABA), sensory issues and life as a `pringlearian'. Kenneth Hall is a boy who obviously greatly values his life and he clearly has much to offer to other, whether or not they are involved with AS. -- Arlene Cassidy, Director, PAPA, the Northern Ireland Autism CharityKenneth Hall is a ten-year-old boy who has Asperger Syndrome. He is also exceptionally gifted and has written Asperger Syndrome, the Universe and Everything so that we can see and understand the world through his eyes. This book gives a clear insight into what it must be like to view the world in this special way. Hall tells us of his day to day struggles, and joys. -- www.family2000.org.ukChildren with Asperger Syndrome are the best experts on AS. They can tell adults what seems unusual to them about the world. If they tell this to the adults, the adults should do all in their power to make things right for the child. They should try to make their child feel at home. -- Kenneth HallParents, family members and professionals will find that Kenneth's story offers a fascinating insight into the life of an individual with AS this book is a must. -- Ken P. KerrKenneth's book will go some way to raising awareness of the problems and possibilities of highly gifted children with a known learning difficulty. -- Gill RowleyTable of ContentsSECTION ONE: WHO AM I? 1. A few things about Me. 2. Me and Asperger Syndrome. 3. About my life. 4. My favourite things. SECTION TWO: WHAT IS DIFFERENT ABOUT ME. 5. My difficulties. 6. How I feel things. 7. I like being alone. 8. I don't go to school. 9. How I feel about being different. SECTION THREE: MY STRENGTHS. 10. Honesty. 11. Personality. 12. ABA. 13. Taking on challenges. 14. `That shrinking feeling.' SECTION FOUR: MY BELIEFS. 15. Gifts. 16. Intelligence. 17. Nature. 18. Animals. 19. Churches fighting. 20. The media. 21. The news. 22. Gravity and dimensions. 23. Understanding people with AS. 24. Helping AS kids. 25. Titanic. 26. Rules. 27. AS and autism. 28. My future.

Read more less

Book SynopsisDo you know a child who is bright, charming and articulate, but has no friends? A child who showed early signs of intelligence, but is now floundering, academically and emotionally? Children with Nonverbal Learning Disabilities (NLD) are an enigma. They're children with extraordinary gifts and heartbreaking challenges that go far beyond the classroom. Nonverbal Learning Disabilities at Home explores the variety of daily life problems children with NLD may face, and provides practical strategies for parents to help them cope and grow, from preschool age through their challenging adolescent years. The author, herself the parent of a child with NLD, provides solutions to the everyday challenges of the disorder, from early warning signs and self-care issues to social skills and personal safety. User-friendly and highly practical, this book is an essential guide for parents in understanding and living with NLD, and professionals working with these very special children.Trade ReviewAs a record of the personal experiences of one child with NLD, this book is comprehensive and detailed, with many examples that will undoubtedly be of interest and of use to parents/teachers of children with NLD and /or other disorders. The content provides an interesting and informative insight into one mother's devoted work on her child's disorder. -- British Journal of Educational PsychologyThis book presents the problems NLD Children will face in their everyday life, as well as suggesting strategies doe helping them to cope and grow. It addresses NLD Children from pre-school to adolescence. Older teens and young adults may also benefit from much of the content. -- ACE BulletinAn essential volume for parents that incorporates a wide variety of issues, from managing buttons and zippers to using deodorant and shaving cream. Having a daughter that was diagnosed with the the disability has helped Tanguay to include helpful hints and expert opinions in the book. This volume is a surefire way to help tackle the puzzling world of NLD. -- Georgia Family MagazinePamela Tanguay's daughter was diagnosed at the age of nine as having Nonverbal Learning disability (NLD). Since, she has become active in advocating for people with this condition, she wrote this book in order to help parents and adults caring for children with NLD. The author's advice is sensible and straightforward. In addition to helping parents cope it will also help enlighten teachers and other professionals working with such children. The book emphasises the extraordinary gifts children with NLD often possess and rewards to those who work with them. Diagnosis of NLD is becoming more common so this, the first accessible work on the subject to be written by someone active in this area, is doubly welcome. -- Disability TimesParent and advocate extraordinaire, Pamela Tanguay has contributed immensely to the presently limited literature on NLD… Her advice is straightforward, sensible, cohesive and easily understood. This guide will not only serve as a welcome blueprint to the overwhelmed and under-supported parents of children with NLD, but also as an eye-opener to educators and other professionals working with individuals with NLD in helping them to recognize just how much effort it actually takes to parent a child with NLD. -- Sue Thompson, MA, CET, Learning and Behavior Specialist. Author of The Source for Nonverbal Learning Disorders (formerly I Shouldn't Have To Tell You)The author has provided a book that is essential reading for caregivers of children and adolescents with NLD. It should not only be read but kept on hand for easy reference as the youngster develops. It should be valued as a rich source of helpful suggestions, and as a springboard for the creativity of the concerned caregiver. Pamela Tanguay has done all of us involved with the syndrome of NLD a great favor by providing this book. -- From the Foreword by Byron P. Rourke, FRSCDuring my search to understand Asperger's Syndrome (AS) I was fortunate enough to discover Pamela Tanguay and the world she knows best - the world of Nonverbal Learning Disorders (NLD). Though there might be subtle differences between these two syndromes, there is very little doubt in my mind that one echoes the other in terms of what works to help those diagnosed with either AS or NLD. Pamela Tanguay's book, Nonverbal Learning Disabilities at Home, is a must-have for anyone wanting to know more about either of these developmental delays. It is absolutely stuffed full with astutely sound reasoning and incredibly perceptive advice based on the research of the top names in the NLD field. I cannot imagine my library without it. Go get it. Now! -- Liane Holliday Willey, EdD., author of Pretending to be Normal: Living with Asperger's Syndrome and Asperger's Syndrome in the Family: Redefining NormalTable of ContentsForeword. Introduction. 1. NLD - What is it? 2. Early warning signs. 3. The parent's role. 4. Self-help skills. 5. Fine motor skills. 6. Coordination, athletics and team sports. 7. Managing the environment. 8. Organization. 9. Thinking skills. 10. Communication skills. 11. Social skills. 12. Independent living skills. 13. Coping with change. 14. Safety issues. Afterword. Glossary of terms. References. Internet resources. Organizations. Index.Alternative blurb:Nonverbal Learning Disability (NLD) is an increasingly recognised complex neurological syndrome consisting of a cluster of skill deficits and which affects children in many different ways. Although a child with NLD may be bright, charming and articulate and have shown early intellectual promise, they may also have coordination or fine motor skills difficulties and social skills deficits. Pamela Tanguay is the mother of a child with NLD and in this book she provides solutions to the everyday problems children with NLDs face. She covers everything from bathing and dressing to social skills and personal safety issues. Nonverbal Learning Disabilities at Home also explains how to spot early warning signs and contains an indispensable appendix which lists support networks, organisations and internet resources. User-friendly and highly practical, this book is an essential guide for parents and carers of children with NLDs, as well as the professionals who work with them.

Read more less

Book SynopsisMost teachers will at some point come across a child with nonverbal learning disabilities, and this practical and informative book will be invaluable in helping them to help such children to achieve their full potential in the classroom.Topics such as finding the right school, curriculum modifications, and social and emotional issues experienced by children with NLD are covered. However, the bulk of the book outlines specific teaching strategies, from how to deal with essay questions, to tips on helping the student master long division and ideas for improving reading comprehension. The author defines and discusses concepts such as frontloading and a cooperative learning environment, and discusses how they benefit the student with NLD.Trade Review[this book] will undoubtedly be of interest and of use to parent and teachers of children with NLD and/or other disorders. The content provides an interesting and informative insight into one mother's devoted work on her child's disorder. -- British Journal of Educational PsychologyPamela Tanquay writes from the heart (she too is a parent of a child with NvLD) though she clearly grasps the subtle, complex and challenging features of NvLD. It describes the most practical of approaches to the debilitating syndrome. This is an excellent companion to her other text: Nonverbal Learning Disabilities at Home: a Parent's guide, with a forword by Byron Rourke FRSC. Both are highly readable, practical texts on NvLD. This book should be on the shelf of every Senco, teacher of specific needs and diagnostician. -- Assessment MattersTable of ContentsForeword 1. NLD - What is it? 2. Anxiety, depression and behaviour. 3. School placement and environment. 4. Communication and social skills. 5. Learning style. 6. Motor Skills 7. Spatial challenges. 8. Arithmetic and math. 9. Reading, spelling and vocabulary. 10. Penmanship, writing and composition. 11. Study skills and homework. 12. Quizzes, exams and standardized testing. References. Index

Read more less

Book SynopsisThis book makes a critical case for advocacy in the lives of people with learning difficulties. This can only be applauded.' - Disability & Society'I found this book to be a thoughtful, interesting and challenging read and I would recommend it to anyone working in the field of advocacy or involved in any capacity with people with learning disabilities. It raises many questions about advocacy in all its different forms and asks those of us involved in this field to reflect on our own practice and that of our funding bodies. It also challenges and invites reflection on prevailing attitudes towards learning disability more generally and the way in which services are provided. Finally it leaves the reader in no doubt of the benefit and necessity of advocacy services, to ensure that people with learning disabilities are able to have their voices heard and their needs understood and met.'-The British Journal of Developmental Disabilities'This is designed for advocacy practitioners and staff working in agencies who come into contact with advocacy services. It is aimed at more experienced practitioners, and service planners, who are serious about developing effective advocacy services within a social inclusion framework.'- Care and Health magazine'This book continues to raise questions about advocacy throughout. It asks questions of those who are advocates and those who have the duty of funding such services. It is a very thoughtful and practical collection of essays on a whole range of issues and ranges, and seeks to provide, some answers. In addition to all this, it is very readable and provides a quite comprehensive bibliography, which in itself is worth the cost of the book.'- Rostrum'Advocacy and Learning Disability is a sound collection of perspectives with an interesting international flavour. Barry Gray and Robin Jackson have collected insightful contributions from Britain, the USA, New Zealand and Australia to create a useful overview exploring a very wide range of self-advocacy issues directly related to learning disability delivery.'-The British Journal of Special EducationAdvocacy is a critically important element in the development of effective services for people with a learning disability. It is seen by many as the critical link between theory and practice in creating a truly inclusive society. This book presents an in-depth examination of the historical, legal and philosophical contexts within which advocacy services have developed. The kind of professional and practical issues and problems confronting those running and using advocacy services are discussed, and the role of advocacy is examined. Chapters covering advocacy with families and with people with communication difficulties contain helpful information for practitioners. A survey of the development of advocacy services in the USA, Australia and New Zealand provides an international perspective.Practical and informative, Advocacy and Learning Disability will be essential reading for advocacy practitioners and those working in agencies in the statutory and voluntary sectors who come into contact with advocacy services.Table of Contents1. Advocacy and learning disability, Barry Gray, King Alfred's College, Winchester and Robin Jackson, Camphill Scotland. 2. Principles and types of advocacy, Jan Walmsley, The Open University. 3. Integrity and advocacy, Michael Kendrick, Independent Consultant. 4. Exploring the role of values in the management of advocacy schemes, Tim Clement, The Open University. 5. Professional consciousness and conflict in advocacy Colin Goble, King Alfred's College, Winchester. 6. The legal context of the advocacy service, Deborah Baillie, The Open University and Veronica Strachan, Robert Gordon University. 7. Thoughts from a UK citizen advocacy scheme, Mike Pochin, Dorset Advocacy. 8. Self advocacy and research, Dorothy Atkinson, The Open University. 9. The role of self advocacy: stories from a self advocacy group through the experiences of its members, Fred Spedding, Elizabeth Harkness, Louise Townson, Andy Docherty, Niall McNulty and Rohhss Chapman, Carlisle People First. 10. The neglected dimension - advocacy and the families of children with learning difficulties, Nick Pike, Annie Lawson School, Berkshire. 11. Advocacy with people with communication difficulties, Janet Scott, Southern General Hospital, Glasgow and Janet Larcher, Independent Consultant. 12. Some observations on the American advocacy scene, Michael Kendrick, Independent Consultant. 13. Better and worse: overview of formal advocacy for people with intellectual disabilities in Australia, Dimity Peter, Flinders University of South Australia. 14. Advocacy - the last frontier in special education? Colleen Brown, Manakau Institute of Technology, Auckland, New Zealand. The Contributors. References. Index.

Read more less

Book SynopsisA comprehensive introduction to working with people with learning disabilities, this guide provides the theoretical understanding needed to inform good practice and to help improve the quality of life of people within this group. Using accessible language and case examples, the authors discuss both psychological and practical theories, including:* person-centred and behavioural approaches* anti-discriminatory and anti-oppressive approaches* systems theory* task centred approach* role theory.Emphasising empowerment and inclusion of those with learning disabilities, they relate theory to issues such as loss and bereavement, sexuality and social stigma. They also provide guidance for practitioners on social policy and legislation and explore crisis intervention, values and ethics, advocacy and joint agency work, making this an extremely useful resource for social workers, nurses, teachers care workers and others working with people with learning disabilities.Trade ReviewReaders of this Journal will find the book of value in helping them to understand the social model of care and gain a sound awareness of the strategies, potential dilemmas and barriers to effective practice. -- Children, Young People and FamiliesThis is a straightforward and accessible text and an invaluable resource to people with limited experience of working with adults with learning disability. It would also be beneficial as a reference book for experienced occupational therapists who wish to improve their knowledge on different learning disability theories. -- British Journal of Occupational TherapyThe style is user friendly, with many telling vignettes to illustrate practical points of intervention and support. Valuable to students and those practising in the field who wish to update their approaches to the people and families with whom they work. -- British Journal of Developmental DisabilitiesThis book is written in clear and understandable language, examples from practice, illustrating the theory are of additional help -- Wspolne TematyTable of ContentsIntroduction. 1. What is a learning disability? 2. Application of theory. 3. Anti discriminatory practice and anti oppressive practice. 4. What is normalization? 5. Communication methods. 6. Advocacy, empowerment, participation and choice. 7. Universal experiences in the lives of people with learning disabilities. 8. Values, ethics and contrasting approaches. 9. Practical theories and methods. 10. Society's influence on practice. 11. The way forward. References. Index.

Read more less

Book SynopsisFinding out that your child has Asperger's Syndrome or Autism can be devastating enough, but when you discover that he or she won't eat 99.9 per cent of all food and drink in the known universe, the fun really starts. This was the situation the author found herself in a decade ago when her son first took a dislike to milk, and then to virtually every other substance she attempted to feed him. Her book was written to reassure other parents that there are lots of people out there in the same boat, and to suggest practical methods of dealing with the problem. As well as drawing on her own experience, the author has spoken to parents, children, and professionals with first-hand knowledge of dietary difficulties, and their advice and comments form a key part of the book.Trade ReviewChildren on the autistic spectrum can be fussy as well as sensitive eaters. This book aims to provide parents facing these particular sort of difficulties with support and advice. I identified with a lot things in this book. If you think that other parents, teachers, and health professionals don't, can't and won't understand what it is to have a child so fussy that they would rather starve than eat something the wrong shape or colour, then if nothing else this book will show you that you are not alone. -- Asperger Information.netI am a mother of a child recently diagnosed with AS. However, I have had feeding problems with him since birth. I feel so wonderful finally realizing that I am not the only crazy parent out there. -- Melissa GrattanLegge provides countless ideas, tips and techniques for helping the child with eating problems. These include a variety of behaviour techniques , bribery, exploiting the child's interests etc. These ideas are wide ranging and probably the most valuable part of the book. They are interspersed throughout the book and are provided by healthcare professionals, the author herself and multiple parents who completed surveys sent out by the author…Overall the book is a valuable resource for parents and professionals interested in helping children with eating difficulties. It is well written, straightforward and easy to read. Ther case studies are interesting, the case studies and suggestions from professionals and other parents is valid and the author's compassion for children struggling with these issues is obvious. -- Metapsychology online book reviewsThis book would almost certainly be helpful for the intended reader as a struggling parent and may be useful for dietitians working with children affected by ASD as it provides an interesting insight into complex obstacles faced by both their parents and the individuals themselves…It offers a wide range of practical strategies. -- Dietetics TodayWritten by the mother of a child with Asperger's Syndrome, this easy to read book is primarily aimed at other parents of children with autistic spectrum disorders (ASD) who have also experienced feeding difficulties with their child. -- The British Dietetic AssociationThis is one of a valuable series of books from Jessica Kingsley Publishers on Autism and Asperger's Syndrome. This particular volume, although dealing with some of the horrendous eating problems of children with autistic spectrum disorders, would make enlightening reading for the parents of any 'fussy' eater.The book is based on Brenda's own experience with her 11 year old Asperger's son, but also describes tips and strategies to persuade children to eat, culled from wide ranging surveys of autistic families. Other sections include interviews with autistic children about their food fads, suggestions for dealing with social situations and valuable advice from respected health care professionals working in the field, including the head teacher of a special school. -- The Inside-Story NewsletterBrenda Legge provides a candid account of family life in which her child's comprehensive and unpredictable hostility towards food occupies centre stage…Harry has a highly restricted range of acceptable foods…Only specific brand names, packaging and flavours are tolerated…Change the colour of the container, attempt to sneak in vitamin supplements, and previously accepted food is shunned…There is a grim humour and pragmatism in this mother's approach: forget idealistic notions about nutrition and balanced diets; exploit bribery, reward systems and star charts…I am sure many parents will find this book reassuring, whilst the creative problem-solving required to get reluctant eaters to consume more frequently and more diversely is very much in evidence. -- www.escalate.ac.ukThis book is written with the necessary humour of a parent faced with her child's unabated aversion to the vast majority of foods... Readable, jargon free and pragmatic... This book offers supportive information and suggestions to families. It is also a source of invaluable insight for professional stakeholders. -- RostrumTable of ContentsDedication. Acknowledgements. 1. Beyond faddiness. 2. Improvements and setbacks. 3. I blame the parents. 4. Throw out the rule book. 5. Survey results. 6. Hints and tips. 7. More hints and tips. 8. What we think of food. 9. Social difficulties. 10. Exclusion diets. 11. Doctors and dentists. 12. Professional advice. 13. Great Ormond Street. 14. Back to school. 15 All food is good for you. Epilogue. References.

Read more less

Book SynopsisThe author presented a fair and balanced picture of the eight syndromes reviewed in this book. Living with Genetic Syndromes Associated with Intellectual Disabilities is easy to read. I would recommend this book to a genetic professional who is looking to learn about different aspects from a more personalized perspective.' - Journal of Genetic CounsellingIn this book the author explores the impact of various genetic syndromes on children's lives. She describes conditions such as Down's Syndrome, Williams Syndrome, Angelman Syndrome and Prader-Willi Syndrome, discussing their practical implications for daily life and the physical and behavioural symptoms associated with them.An accessible introduction to genetics precedes detailed investigations of the ways in which young people are affected by genetic conditions: the extent to which their behaviour is determined, the difficulties they face and the ways in which they can achieve independence and fulfilment. Case studies of individuals the author has worked with add to the personal approach of this book and help to ensure 'the child behind the syndrome' is always visible.Health and education professionals, parents and carers will find this readable and informative book invaluable in understanding the worlds of those who live with a genetic syndrome linked to an intellectual disability.Table of Contents1. Introduction. 2. An oasis of Humanity. 3. Genes and Behaviour. 4. The First Smile. 5. Down Syndrome. 6. Williams Syndrome. 7. Rubenstein Taybi Syndrome. 8. Fragile X Syndrome: A Constitutional Threshold Experience. 9. Foetal Alcohol Syndrome. 10. Prader-Willi Syndrome. 11. Angelman Syndrome. 12. Angelman and Prader-Willi: A Polarity. 13. Wolf-Hirshhorn Syndrome. 14. The Suncross. References. Index.

Read more less

Book SynopsisMany would balk at the idea of a white woman traveling India aloneand in particular, a blind woman. Throughout her childhood Nicola Naylor had been fascinated by images of the subcontinent and was determined both to realize her dream of visiting and to push back the stifling constraints imposed by perceptions of her disability. While depending on her third eyeor sixth senseshe explores India from the inside. Her account is both sensuous and enormously visual as she gradually rebuilds her shattered self-confidence, regains her desire to live life, and rediscovers her almost forgotten love of writing."Trade Review"Inspiring story." "--Daily Mail" "Beautifully told with both insight and compassion, this remarkable story of one woman's triumph over adversity will be an inspiration to all its readers." "Woman and Home"" "Inspiring story." "Daily Mail""

Read more less

Book SynopsisThe true and moving story of a family's adoption of a little boy with cerebral palsy.

Read more less

Book SynopsisRoy lost his first leg at six years of age and his second leg at twenty-one. He had little schooling and walked with artificial legs, refusing to use a wheelchair until he was forty-six. As told through conversations with Richard Dunn, the reader gets to know Roy's fulfilled and incredible life-story and how he has, over the years, helped those less fortunate than himself.

Read more less

Book Synopsis

Read more less

Book SynopsisOffers insight and comfort to individuals caring for a loved one and is useful for health care professionals. This book describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. It provides a bibliography of various memoirs.Trade ReviewReadable and well researched... The Caregiver's Tale: Loss and Renewal in Memoirs of Family Life is a useful book. -- Delese Wear, PhD Journal of the American Medical Association A unique and useful contribution to the knowledge of the family caregiver experience... A useful educational tool. -- Nicole A. Graves Journal of Marriage and Family A unique and valuable contribution to the social work literature and offers a deeply human view of... of caregiving. -- Michelle Estile The New Social Worker Online

Read more less

Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

Read more less

Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

Read more less

Book SynopsisRachel Adams' life had always gone according to plan. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome. In this book, she chronicles the first three years of Henry's life and her own transformative experience of becoming the mother of a disabled child.Trade Review"An important, hopeful book."—Susannah Meadows, New York Times"In this quietly moving memoir, Adams writes about coming to terms with her son's diagnosis, education, limitations, and identity. . . . Generous and honest."—Boston Globe"In this quietly moving memoir, Adams writes about coming to terms with her son's diagnosis, education, limitations, and identity. . . . Generous and honest, Adams politely rejects some of the frames others want to put on her family. Henry isn't an angel, she isn't a saint."—Boston GlobeWinner of the 2014 Delta Kappa Gamma Society's Educator's Award“This is a terrific book—gorgeously written, beautifully realized.”—Michael Bérubé, author of Life as We Know It: A Father, a Family, and an Exceptional Child“. . . this book is a composite of the challenges and enjoyments of the first few years of a child with special needs and the family. . . . very useful for parents, family members, but also professionals including physicians, nurses, therapists, and genetic counselors.”—Fran Hickey, M.D., Director of the Sie Center for Down Syndrome, Colorado Children’s Hospital“Adams succeeds in the difficult task of rendering intensely personal material in a way that makes any reader reflect on larger cultural questions . . . This book should be mandatory reading for all medical students, especially those entering the fields of obstetrics and gynecology.”—Georgina Kleege, author of Sight Unseen and Blind Rage: Letters to Helen Keller"Rachel Adams’ Raising Henry: A Memoir of Motherhood, Disability, and Discovery is a must-read, moving, thought-provoking, important. I highly recommend."—Jon Colman, President, National Down Syndrome Society "Raising Henry is not just a forthright and poetic family chronicle; it is a provocative exploration of Down syndrome, disability, and what it means to be human. Adams is feisty, compassionate, and brilliant."—Penny Wolfson, author of Moonrise: One Family, Genetic Identity and Muscular Dystrophy

Read more less

Book SynopsisUp-to-date, reliable information about Tourette Syndrome and related disorders for teachers and parents Children with TS are often teased and punished for the unusual yet uncontrollable symptoms of their disorder. Academic failure is common. The Tourette Syndrome/OCD Checklist helps parents and teachers to better understand children and youth with TS and/or OCD and provide the support and interventions these children need. Presented in a simple, concise, easy-to-read checklist format, the book is packed with the latest research, practical advice, and information on a wide range of topics. Provides a wealth of information on Tourette Syndrome, Obsessive-Compulsive Disorder, and related conditions Includes strategies for discipline and behavior management, advice on supporting and motivating kids with TS and OCD, homework tips, and more Shows how to educate peer students about TS and OCD Loaded with practical information, strategies,Table of ContentsAbout This Book. About the Author. Foreword. Preface. Introduction. Section 1: Basic Information About TS, OCD, and Associated Disorders. 1.1. What Is Tourette Syndrome (TS)? 1.2. Manifestations of Motor Tics. 1.3. Manifestations of Vocal Tics. 1.4. Waxing and Waning of Symptoms. 1.5. Suppression of Symptoms. 1.6. Other Related Tic Disorders. 1.7. Medical Treatment of TS. 1.8. Associated Disorders. 1.9. What Is Attention Deficit Hyperactivity Disorder (ADHD)? 1.10. Dysgraphia. 1.11. Executive Dysfunction. 1.12. Depression. 1.13. Sleep Disorders. 1.14. Sensory Processing. 1.15. Learning Disabilities. 1.16. Auditory Processing Difficulties. 1.17. Social Skills Deficits. 1.18. Behavioral Issues. 1.19. What Is Obsessive-Compulsive Disorder (OCD)? 1.20. Manifestations of OCD. 1.21. Medical Treatments for OCD. 1.22. Behavioral Interventions for OCD. Section 2: Understanding the Impact of TS and OCD. 2.1. Why It Can Be Difficult to Recognize TS and OCD. 2.2. The Impact of TS and OCD on the Family. 2.3. The Impact of TS on School Performance. 2.4. The Impact of OCD on School Performance. 2.5. Tips for Accentuating the Positive. 2.6. Tips for Ensuring Success at School. Section 3: Checklists for Parents. 3.1. What Parents Can Do at Home and at School to Support Children with TS and OCD. 3.2. Preventing Meltdowns and Other Behaviors Through Positive Behavioral Management and Supports. 3.3. Accommodations, Tips, and Environmental Changes. 3.4. Managing Homework. 3.5. Suggestions for School Breaks, Rainy Weekends, and Summer Vacation. 3.6. School Issues. 3.7. Synopsis of an Individualized Education Plan (IEP). 3.8. Tips for Being an Effective Advocate. 3.9. Sample Letter for Requesting an IEP Section 4: Checklist for Teachers. 4.1. Top Ten Things Teachers Need to Know About Tourette Syndrome. 4.2. Tips for Working with Students with TS and OCD in the Classroom. 4.3. Tips for Training Staff on Working with Students with TS and OCD. 4.4. Tips for Educating Peers About TS and OCD. 4.5. A Peer in-Service Model. 4.6. Strategies for Dealing with Motor and Vocal Tics in the Classroom. 4.7. Accommodating Motor Tics. 4.8. Dealing with Vocal Tics. 4.9. Accommodating Vocal Tics. 4.10. Attitude Is Everything. 4.11. Classroom Observation Form. 4.12. Tips for Addressing Challenging Behaviors. 4.13. Functional Behavioral Assessment and Positive Behavior Intervention Plan for Students with TS, OCD, and ADHD. 4.14. Accommodations for Associated Disorders. Section 5: Other Helpful Checklists for Parents and Teachers. 5.1. Educational Rights of Students with TS and OCD. 5.2. Individuals with Disabilities Education Act (IDEA). 5.3. What Is a 504 Accommodation Plan? 5.4. Requesting Services. 5.5. Sample Physician's Letter. 5.6. How to Proceed If You Disagree with the School's Evaluation. 5.7. Being a Role Model for Children with TS and OCD—and for Their Peers. 5.8. Relaxation Techniques. 5.9. School Placement. 5.10. Sources of Help and Support. 5.11. Recommended Organizations, Web Sites, Books, Videos, Articles, and Brochures. Appendix: Real-Life Scenarios. Motor and Vocal Tics. Tap, Tap, Tap. “I Have a Chicken in My Pants”. PB and J. The Dreaded Cursing. Head, Shoulders, Knees, and Toes. Where Should Jeannie Sit? No Applause Necessary. Self-Abusive Tics. OCD and Anxiety. The Clipboard Chronicle. Dairy Dilemma. Locker Phobia. Toeing the Line. Why Theresa Feels Trapped. Can You Hear Me Now? What If I Choke? “But You Promised Chicken”. Kids Don't Tell. To the Point. Thank God for Purell. Scantron Saga. Dysgraphia. When Writing Hurts. Photo Op. To See or Not to See. Behavior Plans. Hash Browns, French Fries, or Tater Tots: Any Kind of Potatoes Will Do. The X Box Does It. Miscellaneous. I Like Ben Better. Executive Dysfunction. A Shoe Will Do. Circling the Wagons. Index.

Read more less

Book SynopsisThe compelling story of Walker Stacey - a child who triumphed over his autistic tendencies with the dedicated help of his family When in 1996, Patricia Stacey gave birth to her second child, a baby boy, she quickly noticed an emptiness in his gaze a vacant quality that emphasized her sense that he was ill at ease in his own body. By the time Walker was five months old, his gaze was obsessively directed towards windows - light had become his true north. Despite the reassurance of many health professionals that Walker was fine, during the weeks and months that followed the family continued to question the experts, who finally arrived at a diagnosis of sensory integration problems; a term inextricably linked with autism. Refusing to accept that this diagnosis would lead to the finality of an autistic disorder, the family dedicated four years to incessantly drawing Walker away from the sirens that seemed to call him inwards, using the latest play-based techniques.Trade Review“… describes how a mother embraced the latest brain research and alternative therapies to help her son overcome autism…” (Young Minds, January 2004) “This is a remarkable and moving book… Stacey writes with an honesty and modesty that is wholly beguiling…” (Zero2Nineteen, March 2004) “…beautifully told story…” (Human Givens Journal, July 04)Table of ContentsAcknowledgments. Part 1. Sirens. You’ll Have to Wait. Grasping. Part 2. What’s in a Face. The World Is Too Much. Reciprocity. The Brain Doesn’t Wait. The Game. The Body Is a Map. Part 3. The Questions That Haunted Us. New Clues. A Walk Around the Driveway. The Epidemic. Part 4. Through a Door in the Wall. A Challenge, a Game, a Vocation, a Sentence. Begin with Desire. Tyranny of Attention. Partly Heard Song. Words. The Specter of Loss. Ways to Make a Salad. The Ladder. To Paradise Pond. Exotic Poisons, Unusual Connections. Through Another Door in the Wall. Part 5. Imagining the World. A Close Call. Companions. A Searchlight. The Senses Revisited. Part 6. I Have a Prob’em. Epiphany. What Wrecks This World. A Car Turning Off the Road. Eyes of a Stranger. The Fate of Babies and Pirates. Epilogue. About the Author.

Read more less

Book SynopsisThe new edition of Dyslexia is written for parents of dyslexic children and the professionals who work with them, and provides information on the role parents can play in supporting their dyslexic child. This updated edition contains new material and up-to-date discussions of current research and programs.Trade Review"The book itself is easy to navigate: chapters are effectively summarised and well sign-posted, the index is comprehensive, and there is a useful glossary ... Gavin Reid's book offers the reader a glimpse of a gold standard, which, sadly, many parents will still not find, even in this post-Rose Review environment." (Dyslexia Review, 2011) Table of ContentsAbout the author. Introduction and acknowledgments. Chapter 1 What is dyslexia? Chapter 2 Finding out about dyslexia. Chapter 3 Finding out if my child is dyslexic. Chapter 4 Learning to read and why it is difficult for children with dyslexia. Chapter 5 Supporting my child with dyslexia. Chapter 6 Overlapping difficulties: Dyscalculia. Chapter 7 Overlapping difficulties: Dyspraxia and dysgraphia. Chapter 8 Attention difficulties. Chapter 9 Self-esteem and emotional development. Chapter 10 Empowering parents. Chapter 11 Parents’ and children's voices. Chapter 13 Issues for parents to consider. Appendix 1 Assessment. Appendix 2 Programs. Appendix 3 DSM-IV and DSM-V: Criteria. Appendix 4 Information: Sources, resources and organizations. Appendix 5 Selected glossary. References. Index.

Read more less