Coping with / advice about physical impairments / disability Books

Book Synopsis`I didn't even recognize my own face in the mirror. Nothing felt right. Dazed. Paralyzed by fear, my first instinct was to run but I had nowhere to hide...Voices echoed, ricocheting across the room. I wished they sounded familiar.'At the age of 14, Lynsey Calderwood suffered a traumatic brain injury that left her physically unmarked but destroyed her memory. Thrust back into an apparently nonsensical world of which she had no recollection, Lynsey spiralled downwards into depression and eating disorders as she became socially ostracized.This is the story, in her own words, of Lynsey's quest to discover her identity and, eventually, to come to terms with her disability. She faces devastating setbacks and her sense of loss, grief and rage is movingly recalled. Courage and perseverance, coupled with her engaging sense of humour, see her through; and her tale will be an inspiration to anyone who has faced similar obstacles.Trade ReviewIt's written by a young person, in a young person's language, however it will still hold appeal across the board to people who have been affected by brain injury, and should be a must read for all professionals involved in the care and support of children and young people. -- Encephalitis Society NewsletterThis is a remarkable and unique narrative by a woman who has suffered a brain injury when she was 14 years old, and covers an 8-year post-concussion time span. She has lost all childhood memories, and her new learning is limited and inconsistent...The stigma and lack of understanding associated with having a hidden disability is conveyed evocatively. Nevertheless, the book is not intended to elicit sympathy but to allow her expression of both the frustration and the ironies of coping with a brain injury...Clinicians who work with clients who have brain injuries will feel humbled and can but learn from this book...It is rare for anyone with or without a brain injury to accomplish such an excellent book. -- Journal of Mental HealthImagine it, if you can. Well, you probably wouldn't get close to imagining how dreadful it could be to find your brain has suddenly messed up big style after a head injury. This revealing story tells what happened to one not so ordinary adolescent in November 1992... This is her story. The account of a reconstructed identity. Read it and experience the regrowth of an adolescent spirit. -- from the Foreword by Dr Robert McCabe, Consultant Adolescent Psychiatrist, Gartnavel Royal HospitalTable of ContentsForeword, Dr Robert McCabe. 1. How I Felt in the Beginning. 2. The Behavioural Unit. 3. Diagnosis. 4. The Mental Hospital, Rebellion + Bullying. 5. Back to School + More Bullying. 6. New School + New Friends. 7. Anorexia, the Gym + Exercise Addiction. 8. My Gran. 9. The Brain Injured Community. 10. Sexual Identity. 11. Rehab + College. 12. Work. 13. Inspiration + The Road Ahead.

Read more less

Book SynopsisDevelopmental Coordination Disorder (DCD) is a term used to describe children who have difficulty with movement and specific aspects of learning, and includes dyspraxia, Asperger Syndrome and associated conditions. This easy-to-read booklet answers commonly asked questions about DCD and presents all the necessary information to aid parents, carers and professionals in selecting the best options for their child; sometimes correcting the little things can lead to big results.In clearly laid out chapters, the author describes the features of Developmental Coordination Disorder and provides practical solutions ranging from maintaining posture and personal care through to the more complex tasks of learning. Practical exercises to help improve the DCD child's motor and sensory skills are included, plus an extensive list of useful addresses and resources.Trade ReviewThis is a practical, pocketsize book giving many useful common- sense hints and ideas that can be used to optimise occupational performance of children with DCD. The book begins with a brief and simple description of what DCD is, and stresses the importance of using a positive approach with these children. -- Napot JournalThis book contains lots of useful information. The features of the condition - co-ordination, perceptual, organisational, language and behaviour difficulties - are clearly outlined. Tips are offered for schoolwork and personal care. The simple format and diagrams are generally user friendly. A list of useful contacts and resources is also included at the back of the publication. This is a useful book, and I'm sure many paediatric occupational therapists will find it worth recommending to parents even after long-awaited intervention has started. -- Afasic NewsTable of Contents1. Introduction. 2. Developmental Coordination Disorder explained. 3. Posture. 4. Writing. 5. Scissor skills. 6. Reading. 7. Feeding. 8. Personal care. 9. Dressing. 10. Attention. 11. Organisation. 12. Learning new or difficult tasks. 13. When behaviour is a problem. 14. Activity suggestions for developing motor skills. 15. Final note. 16. Helpful addresses. 17. Bibliography. 18. Acknowledgements. Index

Read more less

Book SynopsisDrawing on one-to-one guided conversations with disabled children and follow-up interviews with their parents and siblings, this volume takes an in-depth look at the effects of disability on disabled children. Approaching this neglected subject through the disabled child's perspective, it considers:* disabled children's understanding of disability* the ways in which children negotiate the experience of disability in their everyday lives* children's perceptions of their relationships with professionals and their knowledge and views of service provision* children's aspirations for the future and their views on the type of support which might help achieve them* siblings' perceptions of the effects on them of having a disabled brother or sister.Informed by the social model of disability, Clare Connors and Kirsten Stalker identify and draw out the implications of their findings for social work and health services. Illustrating effective ways of communicating directly with disabled children, this will prove an invaluable resource for academics, policy makers and practitioners working with disabled children in health and social care settings.Trade ReviewI found this a very readable book and one that I wished had been available in the past for students working with young people, siblings and families in short break situations. I would recommend this book to all social workers and students to ensure that understanding of disability and the impact on young people, their siblings and families is understood and the service offered improved. -- RostrumDrawing on in-depth interviews with disabled children, their parents, and siblings, this well-written book explores disabled children's understandings of disability, how they negotiate disability in their day-to day lives, including their experience of professionals and services, as well as exploring their relationships with their siblings.The bulk of the book is concerned with the practice by children with impairments of negotiating disability whether at home or at school and how it is mediated by the key relationships with parents, siblings, and professionals.In drawing out implications for health and social work services the authors concentrate on health and education, the result of the low level involvement with social services of the majority of families participating in the study. Indeed those comments relating directly to social work come from parents rather than children and were largely negative, in contrast to generally affirmative views presented by children in relation to other (medical and educational) professionals. However, this does not limit the significance of the findings of this research for social work practitioners and educators. The emphasis placed on external-and particularly psycho-emotional-barriers, rather than on the practicalities of managing impairment, coupled with the growing development of good practice around seeking and acting upon disabled children's preferences and aspirations have real implications, not least in relation to resources, for how we engage with disabled children and their families in both practice and research. -- British Journal of Social WorkThe special strength of this book is that the children's narratives are carefully interwoven with interpretation and comments from related literature and theorizing, all contributing to the development of a childhood model of social disability. The authors have specific messages for different groups of professionals in health, education and social work, most significantly to work in partnership with children and their families with difference viewed positively. It is hoped that professionals and students from all sectors will heed the careful analysis of this book. What is also clearly demonstrated is that adults cannot speak for disabled children and their siblings as their views and priorities are frequently dissimilar in subtle but important ways. -- Child and Family Social WorkThis study refutes the stereotype of families with disabled children and emphasises the potential for reciprocal relationships that nearly all disabled children have. The message, for all professionals and families involved with disability, is that it is not only possible to be equal and different but also to feel equal. -- Adoption & Fostering JournalThis book will be a key resource for all policy makers working with disabled children. -- ChildRightDespite government exhortations for services to find out the views of disabled children, many professionals seem to have ambivalent and diffident attitudes towards hearing those children's voices. But here is a book that will not only boost the confidence of professionals unsure how to begin such conversations, but will convince them of the rewards of doing so. -- Community CareThis book provides health and social care practitioners, service planners and providers with a fascinating in-depth look at how disabled children feel about and experience their relationships with professionals, and with the wider world. There is a refreshing amount of first-hand accounts from the children, which should perhaps be mandatory reading for all health and social care staff who are in contact with disabled children. -- Care & Health MagazineThis book was rich in information and was well referenced with a subject and an author index. It was well researched with theoretical support for statements that challenged conclusions or findings by other researchers. It was also informative and made the materials used in the study openly available. -- The Canadian Child and Adolescent Psychiatry ReviewTable of ContentsGlossary. 1. The Policy and Research Background. 2. Conducting the Research. 3. Children Negotiating Day to Day Life at Home. 4. Children Negotiating Day to Day Life at School. 5. Services and Professionals. 6. Brothers and Sisters. 7. Children's Understanding of Disability. 8. Conclusions. References. Appendices. Index.

Read more less

Book SynopsisFollowing the success of their many years' social skills work with children and adolescents with Asperger Syndrome and other moderate learning difficulties, Ursula Cornish and Fiona Ross have compiled a set of imaginative training sessions and workshops for teachers. Based on a multi-sensory cognitive-behavioural approach, the sessions cover pre- and post-intervention evaluation schedules, interview and observation tools, and specification of materials that can be used and adapted by teachers.With direct links to the four main stages of development at Key Stages 3 and 4 of the National Curriculum, especially PSHE (Personal Social and Health Education), the training sessions form an effective tool to help teenagers develop skills in social interaction, communication and conflict resolution and to build their confidence and self-esteem. The ten detailed session plans incorporate role play, discussion and rehearsal to equip participants with the ability to interpret other people's body language, control their own feelings, express views, ask for support and show concern for others.Educators, parents and carers of adolescents with Asperger Syndrome, general learning difficulties or other behavioural problems will welcome this book's practical examples and useful tips on how to set up and run social skills development groups.Trade Reviewa useful guide for teachers and group leaders which is flexible enough to be used in many different ways. -- Good Autism PracticeThe authors are clinical psychologist who have been working with adolescents with moderate learning difficulties in a special school for several years. The focus of their work was on developing Social Skills Training (SST) to enable the students to understand and manage social situations better so that they might be included in mainstream schools. -- Support for LearningThis book is based on the authors' (successful) work changing adolescents' behaviour. Primarily aimed at teachers setting up Social Skills Training sessions for 13-17 year olds (with references to KS3 and KS4 National Curriculum), it still has much to offer parents, especially those who home educate. Even if you don't want to complete the Social Skills checklist, it's a reminder of skills which medical professionals often ask about (eg: "Makes appropriate eye contact") and the Possible Questions for Parents could highlight areas to work on. The ten sessions of the training programme make up most of the book: starting with "Listening and Paying Attention", it goes through controlling feelings, body language, resolving conflict, recognizing strengths and more. -- Education OtherwiseThe book provides useful information on how to do a basic evaluation to the individual's strengths and weaknesses in the area of social skills. The course is split into 10 'lessons'. Topics have been linked closely with PSHE (Personal, Social and Health Education) at key stages 3 and 4 of the National Curriculum. A useful resource for parents of children where the school is willing to allocate time for a social skills group. -- PeachThis publication is aimed primarily at teaching staff, and links to the four main stages of development at Key Stage 3 and 4 of the national curriculum, especially PHSE. However, the training sessions and workshops are likely to interest social care staff, and parents or carers as well... the material is clearly and accessibly presented. -- Care &Health MagazineTable of ContentsPreface. Introduction. Part 1 - How to Start. Needs Analysis. Social Skills Checklist. Interviews. Observations. Sociograms. Part 2 - The Training Programme. Introduction: Planning the Sessions. Session 1. Listening and Paying Attention. Session 2. Listening and Turn-taking. Session 3. Monitoring Own Body Language and Reading Body Language in Others. Session 4. Recognising Own and Others' Strengths. Session 5. Learning to Say No to Unreasonable Demands and to Cope with Peer Pressure. Session 6. Recognizing and Describing Feelings. Session 7. Learning to Control Own Feelings. Session 8. Being Confident to Explain Own Views and to Ask for Support When Needed. Session 9. Recognizing and Learning to Resolve Conflict. Session 10. Showing Care and Concern for Others.

Read more less

Book SynopsisThis accessible and valuable introduction to caring for a child with autism is an ideal resource for teachers and members of a child with autism's immediate and extended family. In clear and simple language, with many illustrations, the authors tackle common problems experienced in everyday routines such as eating, sleeping and going to the toilet, as well as how to cope with aggression and tantrums, preoccupations and compulsions and how to enable better communication and socialising. Based on up-to-date research and using many case examples, the authors consider step-by-step why each problem may be happening and suggest a number of solutions.Trade ReviewThis book is a solid and accessible guide to what to look for, what to expect -as well as what not to expect-and how to handle situations with children with autism spectrum disorders.The clear organization, matter of fact and accessible writing (although some "Britishisms" might take getting used to) and the respectful attitude toward children with ASD make this a good pick for teen parenting collections. Newly diagnosed teens looking for information would also be well served by this title, particularly the middle section, which could provide insight into some of the issues they face. -- KLIATTI would recommend this book warmly to what presumably is its primary target audience of parents of children with ASD. The level of writing is pitched at what I would guess is 'mainstream TV science programme' standard (no mean feat given some of the complex issues described), so it should be widely accessible. Students (postgraduate and undergraduate) should also find the book useful, not for 'academic' information, but for gaining an understanding of the emotional and practical issues involved (something easy to overlook when studying the nth permutation of the sally-Anne task). -- Good Autism PracticeChris Williams and Barry Wright have done well to write an extremely useful practical guide for parents and professionals alike. This book has a clear layout... I would highly recommend this book to anyone with an interest in autism spectrum disorders'. -- The PsychologistConsultant clinical child psychologists at the National Health Service in York, England, Williams and Wright offer non-technical advice to parents on how to understand their children with autism, to manage common problems, and how best to encourage their children's development. They also describe behaviours that might alert parents that their child might have autism, and overview how researchers believe children with autism think and experience the world. -- Book NewsThis useful book is aimed at parents of children with autistic spectrum disorders as well as professionals. It is very readable and sets out to address in clear logical fashion three important questions: 1. Does my child have autistic spectrum disorder? 2. How do children with ASD view the world? 3. How can we help? The authors suggest a wide range of strategies for parents and professionals to select from to help the child with an ASD. A particular strength of the book is the emphasis on analysing problems in an effort to understand why they are happening so that the optimal response can be employed - a wise and effective philosophy in the care and management of any child with ASD! -- Communication, Brenda Boyd author of Parenting a Child with Asperger SyndromeIn clear and simple language the authors (Christine Williams and Barry Wright) tackle common problems experienced in everyday routines. -- Autism usTable of ContentsPart 1: Does my child have autism spectrum disorder? 1. First worries. 2. Assessment. 3. Emotional impact on the family. Part 2: How do children with autism view the world? 4. Mindblindness. 5. Getting the gist. 6. Sensory interests and sensetivities. 7. Imagination, time perception, planning and memory. 8. Language. Part 3: How can we help? 9. Managing behaviour. 10. Developing social skills. 11. Developing communication skills. 12. Tantrums, aggression and frustration. 13. Feeding. 14. Toileting. 15. Soiling. 16. Sleeping. 17. Preoccupations. 18. Compulsions, routines and rituals. 19. Mannerisms and repetitive movement. 20. Other Interventions. 21. Final thoughts. References and resources. Index.

Read more less

Book SynopsisLooking at the positive influences, great talents and unique thought processes of individuals with Autism Spectrum Disorders, this book is a celebration of those who have used their autism to shine in life. Writers from all over the world at different stages in their careers, and from very different backgrounds, share their experiences of creating a successful life on the autism spectrum. Each explains how it is possible to draw on autistic strengths not just to make your way in the world, overcoming challenges and obstacles, but also to make your life a real success. Education, the world of work, and relationships are the focus of the first part of the book, which then goes on to look at exceptional creativity, and the use of special interests.The autobiographical stories in this book are full of wisdom and humour, and will be an inspiration for anyone with high-functioning autism or Asperger Syndrome, their family and friends, and the professionals who work alongside them.Trade ReviewLooking at the positive influences, great talents and unique thought processes of individuals with Autism Spectrum Disorder, this book includes auto-biographical stories and is a celebration of those who have used their autism to shine in life and is an inspiration to others.; -- Books from our backyard, Queensland Writers Centre, AustraliaThis is an inspirational book for parents wondering what will happen to their ASD children in later life. 19 individuals have written a piece describing how being on the autism spectrum has been a gift for them, rather than a disability... Writing as adults, a lot of these individuals didn't have a diagnosis in childhood and just thought of themselves as different. Once they did get a diagnosis, things from their past started making sense, especially in understanding how they relate to other people. But it is their stories of how they have succeeded and excelled in their chosen paths that is so inspirational. -- Cerebra NewsweekThis gem is a set of essays by adults who were often diagnosed later on, some even in their 50's, such as Roger Meyer, and they have found ways to shine in life, using their ASD traits to full advantage....As more and more awareness of autism in adulthood surfaces, books like this are even more important, as the brain dynamics of ASD in adults are still not very well understood, but we can now see that there is indeed hidden treasure in among the folds and convolutions! -- Autism Society of MichiganFor any newly-diagnosed autistic person, the silver lining is in your hands. Accentuating the positive aspects of the traits experienced by various individuals, "Autism All-Stars" emerges as one of few books for readers of all ages to examine the benefits of being neurologically "atypical."... The book is an excellent resource for parents, librarians, teachers, guidance counselors and anyone else who would like to hear more from real people who have lived under the autism umbrella... Overall, "Autism All-Stars" is an encouraging, and well-rounded book. -- ForeWord ReviewThis book presents moving and inspirational stories for anyone who has a person with autism in his or her life. In addition, it provides practical advice for those on the spectrum: Temple Grandin contributes a chapter on how to get hired and keep a good job, while other writers discuss how they achieved their goals in education, careers, relationships, creativity, and other areas despite--or because of--the quirks of their disability. -- Library JournalThe book should encourage those on the spectrum to be resilient and to have hope that with time, effort and the right support they too can find their place in the world and share their unique talents. The accounts were all well written and easy to read with a good mix to keep everything fresh. I would recommend the book for anyone aged 12 upwards who are on the spectrum as well as parents and educators. It is an enjoyable and easy read and there is a story for everyone. The book gives realistic hope and inspiration. It is not just for the highly gifted. Whether a person is super talented or more challenged they can take something away from the book - with the right support and encouragement plus hard work most people can lead productive and fulfilling lives, ideally doing what they enjoy and are good at. -- asteensRoger Meyer, a contributor to this likeable book of life stories by adults with autism and Asperger's, says it with perfection: 'I am a curious and interested person'. If you are curious and interested in what autism and Asperger's looks like and feels like from the inside, you will surely enjoy this compilation assembled by author and parent, Josie Santomauro. -- Veronica Zysk, co-author of 1001 Great Ideas for Teaching and Raising Children with Autism or Asperger's, USAAutism All-Stars is a wonderful book. I thoroughly enjoyed reading the essays of friends who explain how they use their strengths and perspectives to make their way in the world. These individuals are a constant inspiration to us all! Anyone wishing to understand the spectrum and the potential in ASD should read this book. -- Brenda Smith Myles, Ph.D., Consultant, The Ziggurat Group, Autism Research Institute, Ohio Center for Autism and Low Incidence, USAThe book is an anthology of people on the spectrum who have often endured tremendous struggles in a world ill-equipped to meet their needs but have managed, in adulthood, to find a niche where they can shine and use their assets. With age and experience many have developed strategies which enable them to function in the nuero typical world and to self advocate so that their needs are understood and met... Any child who has been bullied can take heart from the stories in the book. I liked that each person was successful in a different way, some by the conventional definition of success and others on their own terms... The book should encourage those on the spectrum to be resilient and to have hope that with time, effort and the right support they too can find their place in the world and share their unique talents. The accounts were all well written and easy to read with a good mix to keep everything fresh. I would recommend the book for anyone aged 12 upwards as well as parents and educators. It is an enjoyable and easy read, and there is a story for everyone. The book gives realistic hope and inspiration. It is not just for the highly gifted. Whether a person is super talented or more challenged they can take something away from the book – with the right support and encouragement plus hard work most people can lead productive and fulfilling lives, ideally doing what they enjoy and are good at. -- BFK BooksTable of ContentsForeword by Tony Attwood. Introduction. Josie Santomauro. Part 1: Education. 1. An Education in Doodling. Jessica Peers. 2. The Ugly Duckling. Stan Hood. 3. Studying through Diagnosis. Iain Payne. Part 2: Careers. 4. Talented People Getting Employed. Temple Grandin. 5. Counseling that Works. Roger N. Meyer. 6. To Be or Not to Be. Damian Santomauro. 7. Successful Management – Savant Style. Malcolm Johnson. 8. Super Strengths. Sondra Williams. Part 3: Relationships. 9. Friendships – Aspie Style. Dr Wendy Lawson. 10. A Different Order of Being. Stephen Shore. 11. Talking to the Animals. Deborah Lipsky. Part 4: Creativity. 12. Life on Stage. Robert McLachlan. 13. Donna Williams and The Aspinauts. Donna Williams. 14. Portraits – Learning Honesty in Art. Jeanette Purkis. 15. Asperger Syndrome: How It and Art Influence Me. Peter Myers. 16. Aural Sculpting – Before and After. Colin Webber. Part 5: Special Interests. 17. Musical Creativity. Leith McMurray. 18. The Recordings of a Rock Wiz. Mark Boerebach. 19. Sci-Fi Reality. Will Hadcroft.

Read more less

Book SynopsisEveryday Heaven is the much-awaited fourth installment in Donna Williams' series of best-selling autobiographies about her life with autism. A humorous, riveting, roller-coaster of a book, Everyday Heaven covers the monumental nine years from the time Ian left their accidental, 'autistic marriage', to Donna's candid, funny, often bumbling explorations of sexuality and orientation, the challenge of coming to terms with the sudden deaths of those closest to her and finally knowing what life was like without the invisible cage of her 'Exposure Anxiety'. Described as enthralling, deeply moving and gripping, this book will strike a lasting chord not only with autistic readers and professionals seeking to better understand those on the autism spectrum but all of us who simply dream of daring to love deeply, to adventure and to deal triumphantly with the losses along the way.Trade ReviewEveryday Heaven is a book that will appeal to anyone interested in people and what makes them tick. Donna's style and insight grab you from the very first page and leave you wanting to know more about this fascinating woman, the hurdles she finds before her, and the strategies she develops to overcome them. Donna's style and ability to engage an audience have developed over the years, making this her best book yet. I would recommend the book to anyone wanting to explore the experience of autism from the inside and to gain a greater understanding of concepts, such as `difficulty with flexible thinking' and `exposure anxiety', from the point of view of those who live within the reality on a daily basis. -- Good Autism PracticeA humorous, riveting, roller-coaster of a book. Enthralling, deeply moving and gripping, this book will stike a lasting chord not only with autistic readers and professionals seeking to better understand those on the autism spectrum but all of us who simply dream of daring to love deeply, to adventure and to deal triumphantly with the looses along the way. -- Link

Read more less

Book SynopsisWritten by an 'insider', an openly gay autistic adult, Wendy Lawson writes frankly and honestly about autism, sex and sexuality. In her new book, she draws upon her own experience to examine the implications of being autistic on relationships, sex and sexuality. Having discussed subjects such as basic sex education and autism, the author goes further to explore the wider issues of interpersonal relationships, same sex attraction, bisexuality and transgender issues. She also examines the unspoken rules that exist between people in relationships and explains why these rules can be difficult and confusing for people with autism. This book will give courage and information to adults with autism or Asperger Syndrome and provide essential insights to those living and working with them.Trade ReviewThis book will give courage and information to adults with autism or Asperger Syndrome and provide essential insights to those living and working with them. -- The SpectrumIn many ways this book is quite remarkable both for the professional reader and for the person with autism. In the first case it serves as an antidote to the sterile professional literature on diagnosis, management of anxiety symptoms, social stories and so on. In the second case I imagine this book could be like the switching on of a brilliant light to a person with autism, allowing them across to a world that might be incomprehensible, in a way that they can grasp and mull over and apply.The liberating potential of this book is obviously even more the case if this person is struggling with their sexual identity. -- Australian and New Zealand Journal of Family TherapyA thought-provoking introduction to a whole range of issues related to the building of friendships and relationships, intimacy, sexual orientation, and maintaining relationships. -- Community CareMother of four Wendy Lawson writes frankly about autism, sex and sexuality; and the many issues that can make these subjects so complicated for autistic people. She draws upon her own experiences as an autistic adult to attempt to address everyday questions that face autistic people regarding sexuality, love and relationships. The book provides essential insights to people with autism or Aspergers Syndrome and to those living and working with them. -- Autism UsTable of ContentsAcknowledgements. Foreword by Glenys Jones. Introduction. Part I. 1 Foundations of who we are: ASD and Sexuality. 2. Sex Education. 3. What is a relationship? Part 2. 4. Being in a partnership. 5. Discovering bi-sexuality, homosexuality or transgender dispositions. 6. What is Family? 7.Building a safe place. 8. Maintaining our safe place. 9. Accepting and celebrating who I am. References. Resources. Index.

Read more less

Book Synopsis`Brain Injury and Returning to Employment attempts to give the professional a broad introduction to dealing with clients who have suffered a brain injury of some sort. Although aimed at a wide range of professionals, from careers guidance workers through to social workers, the focus of the book is always on how the injury incurred affects the person's ability to return to work…This book certainly provides the reader with a thorough introduction to this complex area. The information provided is detailed and holistic; never does Japp focus on just the physical implications of an injury. He sees the injury in the broadest sense how it affects the person emotionally and then how this impacts on their ability to work…It provides good practical advice: for example, when to pass to other professionals, such as occupational psychologists. There is also an excellent section on health and safety that takes the guidance worker through the items that would need thinking about when helping a person back to the working world.' - Newscheck`Japp has a talent for cutting straight through to the heart of a particular problem for a TBI client and for their case manager. He helps us to understand the problem and offers practical suggestions…He describes the importance of introducing appropriate strategies to overcome potential difficulties. This is where Japp admirably fills the gap between the assessment and the practice. It is in this respect that Japp's book is so exceptional. He takes a factor such as concentration - a problem which the practitioner invariably encounters in cases of TBI - and he helps to unpick some of the difficulties in understanding its effects and how to help a client…Japp goes on with many valuable suggestions about working with employers. He remains positive and encouraging to the client and the practitioner throughout…It is especially gratifying to find such an exceptional book in the British canon of brain injury vocational rehab where the market has tended to be dominated for so long by American studies.' - Rehabilitation Network (www.rehabilitation-network.org)`This is thought to be the first ever guide on how healthcare and professionals from other sectors can support people with acquired brain injury to return to employment…In this publication, Japp offers effective occupational techniques to address impaired memory, attention and cognitive functions, the difficulties people have with planning and organising themselves, and speech and communication difficulties. He also deals with the environmental, emotional, physical and psychological barriers to work re-integration. This should be of use not only to healthcare professionals, but also to professionals in social care, careers and training settings in general.' - Care and Health MagazineThe multi-disability nature of acquired brain injury and its complex effects make the return to employment particularly problematic. Brain Injury and Returning to Employment provides a clear overview of the cognitive and psychological difficulties associated with brain injury and discusses how people affected by it can prepare for and remain in employment.The author offers effective occupational techniques to address impaired memory, attention and executive functions, and difficulties with organisation and planning skills, as well as the speech impairments commonly associated with acquired brain injury. He also examines the environmental, emotional, physical and psychological barriers to work reintegration and offers a range of solutions to these problems, including mentoring relationships with colleagues.This book will be essential reading for professionals working with brain-injured individuals in the fields of psychology, occupational therapy, employment advisory services and human resources.Trade ReviewAlthough written for practitioners working with people with brain injury, this book provides excellent reading for a wider readership. For the specialist and non-specialist professional, and service user alike, this book offers a concise, lucid and accessible account of the nature of brain injury and the challenges to consider when planning a return to employment… I would have no hesitation in suggesting that those new to this area should read the first three chapters of this book: Neurological Impairment; The Broader Picture, Acquired Brain (Head) Injury; and Brain Injury Problems.' The remaining chapters, including very informative studies, provide a comprehensive and very useful checklist for practitioners involved with brain injury and rehabilitation. Overall a superb book with a bonus added at the end – the glossary of terms which give sound and comprehensible definitions. -- Community CareTable of ContentsPreface. 1. Introduction. 2. Neurological impairment: the broader picture. 3. Acquired brain (head) injury. 4. Brain injury problems. 5. Vocational assessment. 6. Vocational rehabilitation. 7. Enhancing brain functioning. 8. Occupational techniques. 9. Workplace reintegration. 10. Case Studies. Postscript. Reducing Risk. Common terms associated with brain injury. Bibliography. Further reading. Index.

Read more less

Book SynopsisDisability and Impairment introduces professionals working with families to the everyday issues faced by disabled people of all ages in family life.Peter C Burke shows how social attitudes shape the world of the 'disabled family' either positively or negatively and the effects of stigma. He demonstrates the normality of disability - that children are children whatever their label - and the need for a sensitive professional understanding of the impact of both physical and learning disabilities on family members, in order to improve their quality of life.This book covers the spectrum of disability issues, and offers information and advice for professionals working with families and disability, explaining the value of family support, how to validate the feelings of siblings with disabled brothers and sisters, tackling social exclusion and understanding the role of lifelong professional help.Case studies and practice notes make this an accessible reference for social work students and practitioners.Trade ReviewThis book is written for social workers but would prepare less experience speech and language therapists for common issues faced by families. Experienced therapists could read it as a way to reflect on their caseload. The author's interest in families reultrs from his experience of having disabled children. Based on his research, he views assessing the needs of the whole family as the best way to support disabled children. He examines the impact of disability on families, particularly siblings being stigmatised. Some helpful ideas about how to gain children's views are provided. Importance is given to gaining these views as a way to promote self-advocacy... It would be useful reading for speech and language therapists who are planning to set one up. -- Speech & Language Therapy in Practice, Abigail Mance , Speech and Language Therapist in LondonDisability and Impairment offers an important perspective on families coping with disability, Burke raises critical questions about the current state of professional assessment and the delivery of support services to families in need. Signicantly, Burke give a voice to his subjects, which makes Disability and Impairment an indispensable contribution to the literature on disability and adolescents. -- Journal of Youth and AdolescenceWritten to introduce professionals working with families to the everyday issues faced by disabled people of all ages in family life. -- Current Awareness ServiceDisability and Impairment is a book which will be of help to many professionals who are beginning work with families who have a disabled child.truly becomes a 'family matter' and offers advice on how professionals can best work with all family members to ensure realistic assessments and meaningful packages of care. -- Professional Social WorkThis book allows us an holistic insight into the lives of families with a disabled child. It is an informative resource for all professionals due to its comprehensive exploration into everyday life. This text has useful practical advice included to assist families and professionals. The case studies and evidence-based approach make this a welcome resource for social work students studying the social work degree. Both academics teaching in this field and practitioners could benefit from this resource. The book is a refreshing and coherent read. -- The British Journal of Social WorkTable of ContentsAcknowledgements: A Professional and Personal Dedication. Introduction. 1. Disability and Impairment: Theory and Practice. 2. Stigma, Need and Service Provision. 3. The Impact of Childhood Disability: The Family Experience. 4. The Impact of Childhood Disability: Professional Understanding. 5. Support Across Early Life Transitions. 6. Siblings of Disabled Children. 7. Listening to Children with Special Needs. 8. Support Groups for Children and Young People. 9. A Positive Framework for Empowerment and Inclusion in Social Care. Appendix: The Research Process. References. Index.

Read more less

Book SynopsisThis book tells the stories of nine disabled leaders who, by force of personality and concrete achievement, have made us think differently about disability. Whatever direction they have come from, they share a common will to change society so that disabled people get a fair deal. There are compelling biographies of:· Sir Bert Massie: public servant· Lord (Jack) Ashley: Labour politician· Rachel Hurst: activist and campaigner· Tom Shakespeare: academic· Phil Friend: entrepreneur and business consultant· Peter White: broadcaster· Mat Fraser: actor, musician and performer· Andrew Lee: activist and campaigner· Dame Tanni Grey-Thompson: Paralympic champion Defying Disability is based on extensive interviews with the subjects and the people who know them. It marks their similarities and differences, the forces that drove them to achieve, the impact they have had on policies and practice, and how the modern history of disability in the UK has been played out in their lives. Defying Disability is not just a good read; it will inform professionals in the field, students in disability studies, disabled people, their families and carers, and everyone interested in disability politics and policies.Trade ReviewThere are a lot of acronyms in this book but don't be put off - this is not a dry and dusty academic volume. The actions and opinions of these outspoken people will challenge your perceptions of disability and achievement, and will ultimately enable you to form your own opinion on where you stand in the disability debate. -- Link (Assoc for Spina Bifida and Hydrocephalis)If you feel you need a nudge or even a mighty kick to get more politically active in the disability movement, read this. The nine men and women interviewed in the book are giants in the disability world, dazzling in their achievements, and demonstrate how we need people who believe in what they are doing in the face of criticism and are bolshy or tenacious enough to push on with it. -- One in Seven (RNID)Based on extensive interviews with the subjects and the people who know them, the new book Defying Disability tells the stories of nine disabled leaders who, by force of personality and concrete achievement, have mad us think differently about disability. Labour politician Lord Jack Ashley and Paralympic champian Dame Tanni Grey-Thompson are two of the nine leaders featured. Whatever direction they have come from, they share a common will to change society so that disabled people get a fair deal. -- MobiliseThis is an important insight into lives of nine brave people, who have, whatever their background fought for themselves and others; and in the case of some changed the lawand our way of seeing others. This book should be read by all. -- Internet Law Book ReviewsThis is an engaging and slightly edgy read by the former and founding editor of Disability Now... Written in a style that offers at the same time factual biography and personal narrative, this book will be of great interest to a wide audience. -- Disability NowA major contribution to our understanding of disability politics. -- The National Information ForumThis important book provides a fascinating insight into the achievements of nine disabled leaders and the development of British disability politics and practice over the past 40 years. The leaders profiled reveal both a range of approaches to tackling disabled people's exclusion, and differences in personal attitudes towards impairment and disability politics itself. In doing so, Defying Disabilty provides a more accurate reflection of the diversity of disability than some traditional disability texts. -- Claire Tregaskis, disability consultantThis book provides a fascinating insight into the lives of nine people who overcame the potential disadvantage of disability to achieve recognition, change and national acclaim. The story of motivation and unstoppable determination reflected by the lives of each of these disabled leaders is inspiring. The book is admirable in describing the power of the human spirit when not accepting limitations imposed by others, to strive beyond possible expectations. It paves the way forward in recognizing the rights and abilities of all disabled people. -- Peter Burke, Senior Lecturer in the Department of Social Sciences, Hull UniversityTable of ContentsAcknowledgements. Introduction. Chapter 1. Bert Massie: Public Servant. Chapter 2. Jack Ashley: Politician. Chapter 3. Rachel Hurst: Activist/Campaigner. Chapter 4. Tom Shakespeare: Academic. Chapter 5. Phil Friend: Entrepreneur. Chapter 6. Peter White: Broadcaster. Chapter 7. Mat Fraser: Actor/Performer. Chapter 8. Andrew Lee: Activist/Campaigner. Chapter 9. Tanni Grey-Thompson: Athlete. Chapter 10. Different Lives, Common Purpose.

Read more less

Book SynopsisFathers of disabled children can feel overlooked when the focus of much parenting support is aimed at mothers. Different Dads is a collection of inspiring personal testimonies written by fathers of children with a disability who reflect on their own experiences and offer advice to other fathers and families on the challenges of raising a child with a disability.The fathers featured represent a broad spectrum of experience. Their contributions reflect a wide range of cultures; some are single fathers, others are married adoptive fathers. What they all have in common are the challenges that face them and their families in raising a child with a disability. Issues explored include the reactions of family, friends and colleagues, how to deal with the organisations and professionals that support families with a disabled child, and the difficulty of being open about feelings in a culture that doesn't always expect men to have a sensitive or nurturing role.Offering direct and thoughtful perspectives on being a father of a child with a disability, this book will be a valuable source of support and information for families with disabled children, and also for health and social care professionals who work with these families.Trade ReviewThis book will offer invaluable insights for anyone concerned with families with a disabled child. The fathers talk movingly about how they responded when they realised their child was disabled – the grief, the sense of loss, the challenges, but above all the enduring love, the sense of pride and connection to their child, and the stories of what they have learnt and gained along the way'This book should give confidence and inspiration to health and social care professionals to engage with fathers'. -- Fatherhood Institute E-newsletterThis book is a must read for any parent who has a child with a disability. There is at least one story that families can relate to. Dads may also feel they are not alone, while mums may no realise the father's perspective. It is an easy read although the subject material is sometimes distressing. This is the reality and I believe a greater understanding will be developed.In Summary this book provides an excellent resource and is very informative. As a dad and a professional myself, I can recommend this wholeheartedly. -- GAP Good Autism PracticeIt is a great idea to draw together stories of fathers' experiences in bringing up disabled children. One of the ways parents manage to cope is to know that others have been through the same experiences. Then you learn that it isn't just about coping – there are positive stories to tell. -- David Cameron, Prime MinisterI found this incredibly moving and difficult to read without crying. It is impossible to read in one sitting, but good to dip into, to be reminded of how difficult the position can be. There are 21 stories of dads in different circumstances with disabled children. Some are married, or live with partners. Others are raising children alone. Some are divorced and having trouble keeping contact with their children. The conclusion is very useful, full of helpful hints on how to obtain support and do the right thing for the children. It is difficult, but not impossible to be the father of a child affected by disability…It is a very encouraging work, and well worth reading. -- Families Need Fathers“Us men” do not readily express our feelings and to have a book that expresses men's thoughts and feelings towards their own disabled child was a great opportunity to see whether there are other dads out there who feel like me. The book gives the reader an amazing insight to these 21 very different Dads' lives, each giving an account of their child's disability, their feelings, family background and their child's development. Each account ends with a piece of advice from these dads to other fathers and there are many various offers of advice, but the overwhelming sense of strength and optimism is clear and humbling to read…I certainly could connect and identify with many of these dads and would recommend it to other dads of children with hemiplegia to read because the overriding positive comments do make you reflect on your own well being: John (dad of two-year-old Rhiannon) says, “if able-bodied people had the same determination as disabled folk, then we would all be winners.” -- HemiHelpTable of ContentsForeword by The Right Honourable David Cameron MP. Introduction. Chapter 1: John. Chapter 2: Phil. Chapter 3: Andrew. Chapter 4: Rob. Chapter 5: Kash. Chapter 6: Simon. Chapter 7: Andrew. Chapter 8: Matthew. Chapter 9: Kevin. Chapter 10: Nigel. Chapter 11: Yuri. Chapter 12: Steve. Chapter 13: Jonathon. Chapter 14: Gordon. Chapter 15: Tony. Chapter 16: Paul. Chapter 17: Richard. Chapter 18: Mike. Chapter 19: Edward. Chapter 20: John. Chapter 21: Michael. Conclusion. Glossary of Terms. Index.

Read more less

Book SynopsisHuntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD.This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritising relationships and retaining a sense of humour.Trade Review`It's as readabale as Cosmo and as informative as a textbook. Funny, harrowing and thought-provoking in equal measure, it should be on the reading list of anyone with the slightest interest or involvement in Huntington's Disease.` -- bionewsAny counsellor might find themselves working with one or more of the six co-authors of this self-help book: Sandy, a journalist in her mid-40s who has Huntington's disease, her second husband; two sons, aged 25 and 15; her daughter-in-law and sister. Their accounts vividly describe the impact of Huntington's disease and their determination to live as fully as they can. Learning to Live with Huntington's Disease highlights feelings and issues relevant to a wide range of situations, especially where secrecy and denial are involved. As I learnt long ago from a young client in a hospice, even if you are free of the gene, nobody in a family with Huntington's disease escapes the illness. -- Healthcare Counselling and Psychotherapy Journal, October 2007Learning to Live with Huntington's Disease is a moving and informative account of one families experience of the condition. The accounts from all the book's contributors describe the emotional issues that can arise from being diagnosed with or having a loved one diagnosed with Huntington's disease, which provides those without first hand experience of living with the condition, some insight into what it is like. This book is very reader friendly, as it avoids complex terminology, making it well tailored for patients, relatives and healthcare professionals. Whilst the content of the book touches upon the cruel realities of living with Huntington's, some parts are quite optimistic and provide advice on ways of coming to terms with the challenges the condition brings. -- Linchpin, Derian Children's HospiceRemarkable! These "stories from the heart" are able to penetrate even the thickest of fogs that accumulate during the dark times in life. Profound personal insight is shared in a way that challenges all of us to work through the pain and isolation that accompanies stress to build a life worth living. I recommend this work of hope to everyone... HD families, health care workers, scientists, as well as the parents, siblings, spouses, and friends of all who face a health challenge.The candid stories offer distinct perspectives on living from many vantage points, be it the person with a terminal illness, the “lucky” survivor, the parent, the spouse, or the child. This family inspires us all to examine our “broken edges” as a means to healing, hope and strength.The prose depicts the clinical phenotype of Huntington's disease with a candor reminiscent of Oliver Saks' neurological teachings. Key components of the disease such as denial, unawareness, depression, motor unpredictability, the childhood capacity for coping, individual differences in addressing the unknown, and mindfulness are depicted with clarity. The reader is encouraged to “think outside of the box” when faced with apparent somber consequences. For instance, when forced to give up her independence via her drivers' license, Sandy brilliantly rekindles an old love and develops equine physiotherapy to safely exercise and revisit independence. I can't thank you all enough for the uplifting read I have had today—my week, and perhaps my year of work in HD, will certainly be better for it. -- Jane Paulsen, Professor of Psychiatry, Neurology, Psychology and Neurosciences, The Carver College of Medicine, The University of IowaThis is a moving true story of how people can find the inner strength to rise above it when their world is turned upside down. -- Richard BransonTable of ContentsThank-yous. Introduction: 'The Most Cruel Disease Known to Man'. 1. The Eye of the Storm: Sandy's Story. 2. The Lucky One? The Sister's Story. 3. Lost and Found: The Older Son's Story. 4. 'Is Everyone All Right?' The Younger Son's Story. 5. Eyes Wide Open: The Daughter-in-law's Story. 6.Mopping the Ceiling: The Husband's Story. 7. A Cruel Inheritance: Brian's Story. 8. Tips for Living with Huntington's Disease. Appendix: Useful Resources. References.

Read more less

Book SynopsisMen with Asperger's Syndrome, young and old, experience difficulty with social interaction, which can be a stumbling block when it comes to getting a girlfriend. Here is a book that demystifies the enigma of 'relationships' by explaining everything in Asperger-friendly terms (some of them mathematical, naturally).Asperger Meets Girl provides hope for all hopeless wooers by offering a choice of three interrelated abstract models for understanding boy-girl relationships. And, to make life easier, these models are presented in graph form where possible. The book also gives valuable practical tips for maximising one's chances of successfully developing a relationship, such as how to start a conversation without scaring the other person off, avoiding the inclination to stare and understanding the concept of 'personal space'.Serious, and seriously funny, this book will help bring happy endings to Asperger boys and make them laugh in the process.Trade ReviewA book that demystifies the enigma of relationships by explaining everything in "Asperger-friendly" terms. -- Current Awareness Service...invaluable and should be shown to all teenagers whether they have a diagnosis or not. -- Asperger East AngliaThere are some very important lessons in this book. -- Asperger UnitedTable of ContentsForeword. Preface.1 What problem am I trying to solve here? 2. A Nerd's Eye View of Human Sexuality. 2.1 Idea 1: The Space of Possibilities. 2.1.1 Plotting Some Points in the Space. 2.1.2 Old-fashioned Romance. 2.1.3 Swinging. 2.1.4 Student Fantasy. 2.1.5 Coming Up Roses. 2.1.6 Slippery When Wet 2.2 Idea 2: The Conventional Games. 2.2.1 The Conventional Male Game. 2.2.2 The Conventional Female Game. 2.2.3 And?. 2.2.4 Revisiting the Extracts. 2.3 Idea 3: Relationship Space. 2.3.1 Graphs of Relationship Space. 2.3.2 How Much Do You Love Me? Quantitative Attributes of Relationships. 2.3.3 Subjectivity of Relationships. 2.3.4 Intermission. 2.3.5 Defining the Centre. 2.3.6 Why Can't People Just Say What They Mean? 2.3.7 The Extracts Revisited (Again). 3. Things to Try. 3.1 The Collusive Relationship. 3.1.1 Why So Slow? 3.1.2 What Does This `Collusion' Involve? 3.1.3 Where Does It Get You? 3.2 How Sex Joins On to Real Life. 3.2.1 Sensuality. 3.2.2 Attention. 3.2.3 Power. 3.3 Strategic Preparation. 3.3.1 Get a Body. 3.3.2 Get a Persona. 3.3.3 Get a Look. 3.3.4 Your Fellow Men. 3.3.5 Platonic Women. 3.3.6 Good Persistence and Bad Persistence. 3.4 Tactical Preparation. 3.4.1 Tactical Goals. 3.4.2 Times and Places. 3.4.3 Your Fellow Men (Again). 3.4.4 Look (Again). 3.5 Contact. 3.5.1 Staring and Personal Space. 3.5.2 The Art of Apology 3.5.3 Conversation. 3.5.4 Your Feelings, Considered from a Tactical Point of View. 3.5.5 The Last Mile. 3.6 No, Actual Contact. 3.6.1 Confidence. 3.6.2 Decisiveness. 3.6.3 Herself in Particular. 3.6.4 Colluding Again. 4. Afterword. 5. Appendix: Some Supplementary Thoughts. 5.1 Theoretical Context. 5.1.1 Philosophy. 5.1.2 Psychoanalysis. 5.2 Cartesian Diagrams of the Space of Possibilities. 5.2.1 Old-fashioned Romance. 5.2.2 Swinging. 5.2.3 Student Fantasy. 5.2.4 Coming up Roses. 5.3 Suggested Para-academic Research. 5.3.1 Para-academic? 5.3.2 Numbers for the graphs. References.

Read more less

Book Synopsis'Asperger's Syndrome in Young Children is easy to read, with lots of practical ideas and advice, presented in a sympathetic manner. It would be most useful for teachers or professionals who are new to the field or parents who believe their child may be on the Asperger's syndrome spectrum. It is a valuable source of information on strategies for helping young children with Asperger's syndrome to realise their full potential.' - ChildrenNow This landmark book focuses on how AS presents in pre-school children. An essential guide for parents coming to terms with their child's AS diagnosis and for the professionals who work with this age group, it is unique in answering pressing questions specific to younger children. How can parents help their AS child to develop speech and language? What help is available at school and home? When, if at all, should a child be informed about AS? Including a useful summary of early childhood development stages, Leventhal-Belfer and Coe provide a diagnostic model based on assessment of the child in contrast to 'neurotypical' children, considering relationships at home, in school or in care. Their book shows how to develop tailored early intervention strategies and to assist parents, teachers and mental health professionals in making informed decisions to nurture the development of AS children.Trade Review'Asperger's Syndrome in Young Children is easy to read, with lots of practical ideas and advice, presented in a sympathetic manner. It would be most useful for teachers or professionals who are new to the field or parents who believe their child may be on the Asperger's syndrome spectrum. It is a valuable source of information on strategies for helping young children with Asperger's syndrome to realise their full potential.'-Children NowTable of ContentsAcknowledgments. Preface. Part I: Understanding Asperger's Syndrome in Young Children. 1. The World of the Young Child. 2. The World of the Young Child with Asperger's Syndrome. 3. The Diagnosis. 4. The Many Faces of Young Children with Asperger's Syndrome. 5. The Parents' Journey. Part II: Interventions. 6. Paths of Intervention: From Traditional to Alternative. 7. Parent-Child Therapy: An Intervention for Building Relationships, Lori Bond. 8. Building Connections with Peers: Therapeutic Groups. 9. Enhancing Relationships through Speech and Language Intervention, Christine Bate. 10. Building Connections through Sensory and Motor Pathways: Occupational Therapy, Teri Wiss. 11. Building Connections with the Child's School. 12. The Ongoing Journey. Appendix I: Diagnostic Criteria. Appendix II: Behavioral Strategies for Group Settings. Appendix III: Eligibility Criteria for Special Education in the United States. Appendix IV: Asperger's Syndrome Web Sites. Subject Index. Author Index.

Read more less

Book SynopsisThis short book, a collection of essays and poems, looks at the loneliness, frustration and sadness experienced, not by the person with the syndrome, but by their partners, parents and other family members: it is they who have to cope with the absence of communication, affection and empathy expected from a reciprocal loving relationship.'- Irish Journal of Medical ScienceThe difficulties faced by people with Asperger's Syndrome (AS) cannot be underestimated, but the emotional problems experienced by those who support them - partners, family and friends - are often over-looked. Focusing on what is referred to as the Cassandra phenomenon, where the neurotypical partner often needs more emotional guidance than the AS partner, this volume gathers together letters, thoughts and poems to give voice to the loneliness, frustration and love felt by many individuals who are close to one or more people with AS. Assembled by FAAAS Inc. (Families of Adults Afflicted with Asperger's Syndrome), a well-known support group specifically for family members, friends and loved ones of people with AS, this collection will provide the emotional support, insight and understanding needed to deal with the emotions that AS evokes within close relationships.Table of ContentsAcknowledgements. Terminology. Preface. 1. Asperger's Syndrome and its Effect upon the Families, FAAAS, Inc., USA, 2002. 2. Cassandra Phenomenon, FAAAS, Inc., 2000. 3. The Family Aspect of Asperger's Syndrome, Linda Demer, UCLA, 2002. 4. Things I have Learnt About Asperger's Syndrome…, Brenda Wall, UK, 2002. 5. Behind a Glass Wall, Marguerite Long, Australia, 1997. 6. Is Anyone Listening?, Karen E. Rodman, USA, 1997. 7. Be Careful What You Wish For, Anonymous, New Jersey, 2002. 8. Asperger's Dungeon, Dawn O'Neil, USA, 2002. 9. Living with an AS Son, E.G., USA, 2002. 10. A Commentary, Anonymous, USA, 2000. 11. A Failed Marriage, Anonymous. 12. Asperger's Syndrome, Obsessions, etc., Anonymous, USA, 2000. 13. Naked Hands, Kathy Read, USA, 2002. 14. Personal Reflections on a Relationship with an Adult who has the Symptoms of Asperger's Syndrome, Anonymous, USA, 2000. 15. When We Married, Anonymous, 2001. 16. When Cassandra was Very, Very Young, Judy Singer, Australia, 2002. 17. Roses and Cacti, Marguerite Long, Australia, 2000. 18. Loneliness Is…, Karen E. Rodman, USA, 1995. 19. Bobby…, Bobby's Mom, Vicki, USA, 2000. 20. Life With My AS Mother, Paula, Canada, 2002. 21. Disconnecting from the Treadmill, Regina, New York, 2001. 22. When Love is Not Enough, Brenda Wall, UK, 1997. 23. My Corner, Yvette Gerhardt, USA, 2003. 24. My Older AS Son…, Anonymous, New Zealand, 2002. 25. Tempest and Sunshine, Cynthia Marchant, USA, 1990. 26. AS Awareness: A Path Out of the Darkness, Debbie, USA, 2000. 27. Passive Aggression, Marguerite Long, Australia, 2002. 28. Six Generations of AS, A seventy-plus -year-young anonymous male, USA. 29. Trying to Describe our Situation, "Sharon", USA, 2000. 30. O Negative, Anonymous, USA, 2002. 31. Knowing is Understanding, Understanding is Accepting: A Note of Encouragement, Annemarieke, USA, 2002. 32. The End into a Beginning, Anonymous, USA, 2002. 33. Untitled, Maxine Aston, UK, 2002. 34. Come With Me, Dawn O'Neil, USA, 2002.

Read more less

Book SynopsisSharing the experience of bringing up a child with nonverbal learning disability (NLD), this warm and accessible book offers advice on subjects ranging across diagnosis and therapy, children's interaction with each other, suitable activities for a child with NLD and how to discuss NLD with children. An essential guide, this book will reassure, advise and inform parents and professionals who work with children with NLD.Trade ReviewA nicely-presented guide aimed at parents and social care staff, both of whom may need some informed and practical guidance on how to work with, support and interact constructively with children with nonverbal learning disability (NLD). -- Care and Health MagazineTable of ContentsForeword, Byron P. Rourke. 1. What's the Matter with Jimmy? 2. The Diagnosis and Dealing With It. 3. At Home: Parenting the NLD Child. 4. Managing `Inflow': The Kid in the Candy Store. 5. Persever-What? Fountain Soda and Batman. 6. Socialization: It's a Jungle Out There. 7. Teaching Social Skills. 8. Activities for the NLD Child. 9. NLD at School: Working with the System. 10. Discussing NLD with Your Child. 11. Living with NLD Every Day. 12. Trips, Holidays, Vacations. 13. Getting Involved: Support Groups, Septas, Workshops. 14. Seeking Outside Help for Your NLD Child. Afterthoughts. Acknowledgements. Resources. Bibliography. Index.

Read more less

Book SynopsisRaising NLD Superstars is essential reading for all those who come in to contact with children with non-verbal learning disorders (NLD). Instead of insisting upon the one size fits all model of intervention the author focuses on the individual nature of NLD children and offers practical, adaptable advice that will help them find their place both in the family and in wider social groups.The author shares her experiences of life as the parent of a child with NLD with humanity and humor. She looks not only at day to day practicalities such as making meal times easier for all the family and reaching compromises on inappropriate clothing choices but also at the long-term plan for independence. The book will help parents and carers to support children with NLD to reach their emotional and cognitive potential while taking into account the views and experiences of other family members.Trade ReviewRubinstien writes with passion and humour, and the book is quite a compelling read because of this. Information about NLD filters through, but mainly the book is like a supportive friend-someone who helps because they know what you are going through. All home educators know the value of shared experiences, so if you have a child with NLD this book will be an encouragement. -- Education OtherwiseRaising NLD Superstars is essential reading for all those who come into contact with children with non-verbal learning disabilities (NLD). It focuses on the individual nature of NLD children and offers practical, adaptable advice that will help them find their place both in the family and in wider social groups. The book will help parents and carers to support children with NLD to reach their emotional and cognitive potential while taking on board the views and experiences of everyone else in the family. -- Practical Professional Child CareMarcia Rubinstien has written a wonderful, hopeful, informative book about raising children with NLD to discover their competencies and achieve successand satisfaction in their lives. Marcia's realistic insights reflect her experiences both as a mother of a child with NLD and as an educator. Her understanding, warmth, compassion, and sense of humor come across on every page. This is a book that will be read and re-read by parents and professionals alike. -- Robert Brooks, Ph.D., Faculty, Harvard Medical School; author of The Self-Esteem Teacher, and co-author of Raising Resilient Children.Table of ContentsForeword, Pamela Tanguay. Introduction. 1. Getting the diagnosis. 2. Assets and deficits. 3. NLD-friendly homes. 4. All in the family. 5. Making sense of your senses. 6. School. 7. Food. 8. Clothing. 9. Holidays and vacations. 10. Hurrying. 11. Illness.12. Medical appointments. 13. Friends. 14. Graying up.15. Showing love. 16. Celebrating success. 17. Planning for the future. 18. From fantasy to reality. References. Index.

Read more less

Book SynopsisIn this clear and accessible introduction to autism, Alex Durig provides a host of ideas and examples that enable the reader to understand the phenomenon of autism, recognize different kinds of autistic perception and behaviour, and prepare for interaction with autistic people. To help `normal' people understand and lose their fear of autism, Durig discusses the notions of `slight' autism, being or becoming `autism-friendly', and the mental well-being of autistic people. The author explains how autistic perception `works' and how it yields autistic behaviours', to enable readers to see the world through the eyes of an autistic person, and thus change the way they perceive autism.Trade ReviewIn How to Understand Autism - The Easy Way, Alex Durig challenges the deficit approach that has highlighted autism for the last fifty years. Instead of being viewed in terms of its shortcomings Durig focuses on the positive aspects of ASD. -- Autism Association of the ACT IncMany education lawyers have had to become all too familiar with the impact autism can have on a child's education. But do we really understand what the condition means? In this clear and accessible introduction to autism, Alexander Durig provides a host of ideas and examples that enable the reader to understand the phenomenon of autism, recognize different kinds of autistic perception and behaviour, and prepare for interaction with autistic people. It is aimed at parents and teachers of autistic children, and at health, education and social care professionals. To help "normal" people understand and lose their fear of autism, Durig discusses the notions of "slight" autism, being or becoming "autism-friendly", and the mental well-being of autistic people. The author explains how autistic perception "works" and how it yields autistic behaviours, to enable readers to see the world through the eyes of an autistic person, and thus change the way they perceive autism. -- Education, Public Law and the IndividualDurig argues that when it comes to autism, professionals are continually trying to 'normalise' autistic behaviour and make sense of it from the perspective of someone who does not think about and perceive the world as someone who is autistic does. This is a mistake. We need to recognize that many of the behaviours that we observe in children and adults who are on the spectrum can be explained if we understand how autistic people perceive their world. Durig's ideas are interesting and remind us that there is a continuum of autistic behaviour. Simply describing an individual as 'autistic' does not explain their individuality. -- NAPLIC NewsletterIn this intriguing book Alex Durig vigorously explores the murky - almost mystical - borderland between autism and normality. Durig's well-written and creative challenge to conventional thinking about autism is sure to arouse controversy while it broadens perspectives. -- Bernard Rimland, Ph.D., Director, Autism Research InstituteAlex Durig presents a clear, alternative paradigm to professionals, parents, and adults who "don't get" autism. Durig is a seminal thinker. In explaining autistic perception and behavior, his insight is as significant a contribution to understanding human thought and behavior as the writings and teachings of L.S. Vygotsky, A.R. Luria, Herb Lovett, Tony Attwood and Deirdre V. Lovecky. Using a unique approach, Durig emphasizes the spectral nature of autism. He rejects the autism industry's misdirected medical/scientific stereotypic views about autism, approaches that fundamentally disparage and disrespect human differences. Durig is critical of "expert" characterizations wedded to terms implying the fix-it/cure it baggage of moralistic disapprobation such as disease, disorder, deficits, dysfunctional, and disabled. For professionals and lay readers alike, Durig explains why perceiving autistic individuals through the lens of "normalization" does not work. He clearly explains why medical, scientific, and education industry efforts to squeeze individuals on the spectrum into diagnostic boxes (that leak!) have accounted for documented, continued failed efforts to improve the quality of life of their clients/patients/students/children. By presenting autism as a different mental process of meaningfully perceiving the world, Durig proposes a model of individual human differences based upon two critical constructs: Social Thinking and Computer Thinking. Rather than using language and terms that have historically distorted experts' characterizations of autism, he presents the reader with a clear, intuitively correct visual chart model designed to enlighten the reader, and, for the first time, successfully explain human differences in perception and behavior in humanistic, empathetic terms. For anyone involved with autistic spectrum issues, Durig's book is a "must read". -- Roger N. Meyer, author of Asperger Syndrome Employment WorkbookAn interesting and informative book for parents and professionals. -- The SpectrumTable of ContentsIntroduction. 1. Social thinking and computer thinking. 2. How social thinking and computer thinking work together. 3. Exploring the experience of autism. 4. How to begin communicating with autistic people. 5. How we are all autistic to one extent or another.6. The practical side of understanding autism: tips for teaching and interacting with autistic people. Conclusion. References. Index.

Read more less

Book SynopsisWhen a new baby is born into a family, grandparents are excited about having a baby to enjoy and love. If the child is born with a disability, it can be difficult to know how to react and how best to help the child and the family as a whole. This book provides guidance on how to grandparent a child with special needs and give every grandchild the love and care they deserve and parents the added support they need.From coming to terms with a diagnosis, to helping with the transition from adolescence to adulthood, the book gives clear advice on grandparenting a child with special needs throughout their life. The author covers the medical, emotional and practical aspects of being a grandparent and explores important issues such as researching resources for specialized care, accessing financial and legal resources and, just as importantly, how to have fun and spend quality time with a grandchild with a disability. The book also addresses how to handle the diagnosis of a serious accident or progressive illness.Grandparenting a Child with Special Needs is a unique guide for grandparents keen to make a difference to the lives of their children and their grandchildren.Trade ReviewToday, grandparents frequently have to assume a major role in raising their grandchildren. Both parents have to work in many families. The emotional and physical challenge of raising a special needs child becomes the grandparents responsibility. This book presents Dr. Thompson's compassion and insight gained through her lifetime of working with these children and their care-givers. Her guidance will have a positive impact on grandparents as they become a major care-giver in the upbringing of their special needs grandchild. -- James C. Drennan, M.D., Orthopedic surgeon, Author of Orthopedic Management of Neuromuscular Disorders and former CEO of Carrie Tingley Hospital for ChildrenThis unique book, written by a highly experienced and caring pediatrician, addresses the important role of grandparents in raising children who have special needs...Those raising children with special needs, and the involved grandparents helping with those children, will welcome referral to this book, a copy of which might be a useful addition to the waiting room of any pediatrician. -- Kaiser Permanente JournalGrandparents trying to handle a child with special needs will find plenty of tips on how to effectively grandparent with love and care...Public libraries and health collections alike will find this an excellent pick. -- The Midwest Book ReviewTable of ContentsAcknowledgements. Introduction. Section I. Support for the Whole Family. 1. Coping with the Diagnosis. 2 Providing Help and Support to Parents. 3. Helping Siblings Cope. 4. Multiple Birth Grandchildren. 5. Parents' Separation and Remarriage. Section II. Grandparents Take Over. 6. Grandparents In Charge. 7. Helping Grandchildren with Dressing and Hygiene. 8. Helping Boost Your Grandchild's Self-Esteem. 9. Handling Social Occasions. 10. Having Fun with a Grandchild. 11. Traveling with a Grandchild. 12. Special Education. 13. Helping a Teen Transition to Adulthood. Section III. Medical and Legal Issues. 14. Finding the Best Medical Care. 15. Special Medical Problems and Treatments. 16. Researching Resources for Specialized Services. 17. Medical Questions and Answers. 18. Handling a Progressive Disease. 19. Legal and Financial Resources. Section IV. You Need Time Too. 20. Time Out for Grandparents. 21. Planning for the Future. Section V. Help from Others. 22. Questionnaire Answers from Parents and Grandparents. Epilogue. Helpful Websites. US Agencies for Children with Special Needs. UK Agencies for Children with Special Needs. US State Resources for Children with Special Needs. State Contacts for High-Risk Insurance .Toll-Free Numbers. Questionnaire for Parents and Grandparents. Notes.

Read more less

Book SynopsisIn the United States alone, there are roughly three million individuals living with a developmental disability, but less than a third are active in the labor market. This book provides a comprehensive approach to developing a successful jobs program for persons with developmental disabilities, drawn from the author's extensive experience and real success.The majority of persons with developmental disabilities are unemployed, underemployed, or still work in sheltered programs where it is almost impossible to reach their full potential. Job success is possible, but it requires a system based on a business model based on proven economics, rather than the traditional social services model. By employing a step-by-step procedure for gaining insight into the client, analyzing market opportunities, matching the client to a job, and supporting the client after placement, service providers can help individuals make a successful transition into good community-based employment.Job Success for Persons with Developmental Disabilities will be essential reading for profit and non-profit rehabilitation service organizations, private job development businesses, government funding agencies, special education job placement programs, transition specialists, and families of persons with developmental disabilities.Trade ReviewThe book is well structured and written in a clear stuyle... The practical tone fo the book clearly reflects Wiegan's many years experience in the field of supporting and progressing individuals with developmental disabilities. There are some sections of the book that are useful as a refresher for experienced Occupational Psychologists and as useful background for new Occupational Psychologists. -- Journal of Occupational Psychology, Employment and DisabilityTable of ContentsChapter 1. The Philosophy of Employment. Chapter 2. The Business Model. Chapter 3. Understanding Job Success. Chapter 4. Understanding the Client. Chapter 5. The Job Development Plan. Chapter 6. Individual Job Development. Chapter 7. Corporate Job Development. Chapter 8. Natural Supports. Chapter 9. Understanding the Job. Chapter 10. On the Job Training. Chapter 11. Job Coaching. Chapter 12. Financial Success. Chapter 13. Hiring and Training Staff. Chapter 14. Mythology. Chapter 15. Health, Diet, and Socialization. Chapter 16. Organizations, Structures, and Ethics. Addendum: Principles of Job Success. References. Index

Read more less

Book SynopsisThis valuable resource for people working with adults with learning disabilities provides over 60 sessions of fun and engaging activities that aim to entertain and stimulate the minds of people with learning disabilities.The sessions are divided into different types of activity including cookery, arts and crafts, drama and dance, and outside events. A comprehensive collection of varied and enjoyable activities, this practical book also contains useful tips to ensure that sessions run smoothly. All the activities are tried and tested by experienced practitioners and include a key advising the level of help required, wheelchair user suitability and any related health and safety issues involved. Ideal for use in social clubs or residential homes, this is an essential resource for professionals and volunteers working with adults with learning disabilities.Trade ReviewThis book is very practical in its approach, and it begins with a note on how to use it...This book can be used as a valuable general resource book. I found it to be very practical, with really useful tips and hints for any carer/leader of an activity programme. Activities need to be varied and interesting, and there are excellent ideas in this book for anyone starting off in the field of activation - they would find it a very useful resource... each activity is very structurally described and it would help in organising an activity session. I would recommend the book to anyone working with adults, either in activity centres or clubs. -- The Frontline of Learning DisabilityThis book is a fantastic resource, one which has truly inspired and helped us to become more creative when devising activities for adults with learning disabilities and has our full recommendation. Activities for Adults with Learning Disabilities can be used in a variety of settings and by a range of professionals, such as nurses, support workers and activity co-ordinators, as well as by friends, parents and carers... In conclusion if you are looking for a book on activities for adults with learning disabilites then look no further, as this is the only book we have come across that is instructive, user friendly and enjoyable. -- PMLD JournalActivities for Adults with Learning Disabilities is full of enough games, crafts and events to keep any social club busy for months... The book was written by two teachers who have been involved with Gateway clubs for many years... The book is a useful resource for any day centre or social club. -- ViewpointActivities for Adults with Learning Disabilities is a comprehensive and well written book. Authors Helen Sonnet and Ann Taylor have given, and continue to give, so freely of their time and energy to enhance the lives of people with a learning disability and to inspire other people so to do. This is an invaluable reference book and a 'must have' for all Gateway Clubs and similar organisations. -- Royal Mencap TrusteeTable of ContentsNote from the Authors. How to Use this Book. Chapter 1. Cooking. Small Cakes. Pizza. Flapjacks. Cookies. Bonfire Cakes. Rock Buns. Fruit Punch. Vegetable Soup. Chapter 2. Arts and Crafts. Christmas Name Plaques. Shell Pots. Calendars. Wax Wash Painting. Hanging Decoration. Pasta Candle Holders. Photo Frames. Door Handle Hangers. Name Badges. Art Competition. Chapter 3. Party Games. Adult Musical Chairs. Balloon Race. Musical Hats. Novelty Races. What's in the Cushion Case? Granny's Shopping Relay. Dog Bones. Chapter 4. General Games. Static Hockey. Skittles. Netball. Darts. Toss a Bean Bag. Goal Scoring. Hoopla. Computer Games. Picture Bingo. Feeling Good (exercise for the less mobile). Movement to a story. Chapter 5. Special Occasions. Bet a Challenge. Pancake Party. Valentine's Day Quiz. Easter Bonnet Parade. Right Royal Event. Indoor Fate. Fancy Dress Sponsored Walk. Make Your Own Harvest Supper. Awards Ceremony. Chapter 6. Drama and Dance. Talent Show. Country Dance. Imaginary outing. Act an Action. Drumming. Mime the Object. Strike a Pose. Sounds and Noises. Popular Dance Routines. Chapter 7. Outside Events. Barbeque. Short Walk Concluding in Pub Visit. Sea-side Visit. Sponsored Walk in a Local Park. Skittles and Sausage and Chip Supper.

Read more less

Book SynopsisGetting to Grips with Asperger Syndrome is a practical, problem-solving guide for those caring for or supporting an adult with Asperger Syndrome (AS). It will help them understand the condition and the difficulties it may cause, so that they can offer support in the most beneficial way.The book explains what AS is and why certain behaviours frequently occur: such as anxiety, fear of change and unusual sensitivities. Once behaviours and reactions are understood, many of the apparent problems become less troublesome, and difficulties can be avoided or easily-resolved. Practical strategies are offered to combat problems that may arise, and common issues that specifically occur with individuals diagnosed later in life are addressed.Easy-to-read and accessible, this book is a useful reference for friends and family of individuals with AS, as well as health and social care staff and students, whatever the level of training and experience.Trade ReviewThe success of this book is truly in the author's ability to convey in each chapter what Asperger Syndrome may look like on a day to day basis... In a remarkable way, the author is describing and illustrating the most insignificant and potentially trivial daily issues all of us encounter by through the eyes of the individual with Asperger Syndrome which transform these circumstances and situations into a true and rather different challenge... The book would be very useful and helpful to parents and other family members, educators and Para-professionals. A very well written, easy to read and rooted in reality exposure book that sheds light on the population of adults with AS which at times get forgotten. -- Journal of Autism Developmental DisordersTable of ContentsIntroduction. 1. What is Asperger Syndrome? 2. Differential Diagnosis. 3. Memory, Attention and Understanding. 4. Practical Difficulties and Everyday Tasks. 5. Language and Conversation. 6. Social Rules and Relationships. 7. Problem-solving and Coping with Change. 8. Coping with Anxiety and Other Emotions. 9. Obsessional Interests and Other Common Characteristics. 10. Needs and Service Development. Further Reading. Index

Read more less

Book SynopsisFragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome.This is a straightforward introduction that clearly explains the condition on both a scientific and practical level. With sections on diagnosis, symptoms and treatment, as well as discussions of various emotional and behavioural considerations, this guide covers all aspects of Fragile X syndrome, its implications, and the possibilities open to families affected by it. It demonstrates how, with the right therapies, progress can be made and emphasises how music can be used effectively to promote communication, interaction, fine motor skills and responsiveness in children with the condition.This is an essential reference tool for families of individuals with Fragile X syndrome, as well as therapists and healthcare professionals who are unfamiliar with the condition and are looking to find out more.Trade ReviewFernandez, a scientific advisor in the Spanish Fragile X Federation, and Aldridge, co director of the Nordoff-Robbins Zentrum, Witten, Germany, walk readers through the heredity aspects of Fragile X, its symptoms, diagnosing the syndrome, and appropriate interventions...Professionals may find more support here than parents, yet the lack of popular material on Fragile X means this is an important contribution. -- Library JournalTable of Contents1. What is Fragile X Syndrome? 2. Understanding Heredity: Genetic Factors and Inheritance. 3. The Common Symptoms of Fragile X Syndrome. 4. Associated Fragile X Syndromes: Primary Ovarian Insufficiency and Fragile X Tremor/Ataxia Syndrome. 5. Diagnosing Fragile X Syndrome and Its Implications. 6. Interventions for Fragile X Syndrome. 7. Talking with the Family. Glossary. Further Reading. Fragile X Weblinks.

Read more less

Book SynopsisAll Because of Henry picks up the lead from the international bestseller, A Friend Like Henry, which traced the childhood journey of Dale, the Gardner family and, of course, their amazing golden retriever Henry, who has finally helped Dale to communicate with the world. Now, we meet Dale again, aged seventeen, to find out where his story goes next. He is no longer the victim of severe classical autism, but a young man facing a challenging and uncertain future. Autism changes, but it never goes away. Dale is ready for the world, but is the world ready for him and for his peers? We also catch up with the rest of the family and find out how the challenges that they've faced have affected their lives. His sister, Amy, has a quite different diagnosis of high-functioning autism and has brought different problems. And against the backdrop of the adversity and prejudice they've suffered, Nuala's marriage is crumbling. But there's now a new four-legged friend in the family to help them through it all. Henry's legacy is a continuing and generous one. In the steps of that wonderful dog, their tale takes unexpected twists.Nuala finds a new life and career, which, to her surprise, is often beyond these shores. Their story did not end with Henry; it began, and it continues, in wit, warmth, heartbreak, and ultimately, in triumph.

Read more less

Book SynopsisHelp children to master emotional self-regulation and improve wellbeing with these activities. Based on traditional yoga breath and mindfulness exercises, each activity is adaptable for a range of abilities and they are also ideal for working with children with autism and other special needs.The book explains how being conscious of the breath is the key to unlocking calm during busy moments, and shows how this can be taught in a child-friendly way. Including activities such as lion breathing, bubble breathing, and sensory yoga games, children will love to learn self-regulatory techniques they can carry with them for life. Suitable for one-on-one and group work with children aged 4+.Trade ReviewMindful Little Yogis is an excellent, user-friendly book full of fun, practical ideas for children and young adults with special needs. As a movement therapist I particularly enjoyed the yoga postures and the Lazy Eight Breathing technique. The STAR model that divides each chapter is a very clever idea, reminding readers to be mindful throughout.A must-have book for anyone supporting individuals or groups. -- Cathy Underwood, Yoga and Inclusive Movement Therapist, SYT Yoga Alliance Professionals UKMindful Little Yogis is an essential guide to your daily practice, whether you are a parent, an educator, or carer in the field of special needs. It is written in a user-friendly way, with a clear understanding of what the students need. The techniques make you want to experiment with mindfulness and yoga right away. -- Mikaela Shalders, Paediatric Occupational Therapist and Sensory Integration SpecialistAn essential book to own if you would like to be guided through step-by-step some extremely practical and mindfully-structured lessons on your well-being journey, in a holistic way. You can trust that this book is going to guide you through your journey and that you will be able to spread the power of shining from within. -- Timea Viragh, SENCO Teacher and Yoga TeacherThe structure of Mindful Little Yogis makes it an effortless and adaptable book that can easily be picked up and put down ... The author is aware that each child is unique, which is reflected in the wide variety of practices, strategies and techniques illustrated throughout. Not only excellent for those working with all children and young people, this book is great for helping parents and carers to explore a variety of techniques to calm, regulate and soothe their child (and themselves). * NASEN Connect *Table of ContentsIntroduction. 1. Special Little Yogis. 1.1. What is SEN? 1.2. The Modern Day Classroom. 1.3. Mindful Yogis. 1.4. Everything Starts with the Breath. 2. Shine from Within. 2.1. The S.T.A.R. Model. 2.2. Stop. Part I: Take a Breath. 3. Mindful Breathing. 3.1. Be conscious of the breath. 3.2. How to Initiate the Practice. 3.3. Breathe. 3.4. Sensory. 3.5. Animals. 3.6. Shapes. 3.7. Sound. 3.8. Visualisation. 3.9. Body Flow. Part II: And... 4. Self-regulate and Flow. 4.1. Why Teach Kids Self-Regulation. 4.2. Upstairs Downstairs Brain. 4.3. Grounding. 4.4. Sensory Yoga. 4.5. Emotional Intelligence. 4.6. LEGO®-Based Therapy. 4.7. Calm Down Jar. 4.8. Music Therapy. Part III: Relax. 5. Positive Strategies. 5.1. Creating a Safe Space for Relaxation. 5.2. Positive Strategies in Action. 5.3 'Flipping Your Lid' Hand Model. Part IV: Final Reflections. 6. Conclusion. 7. Resources. 7.1. Developmental Skills. 7.2. Reading Bubbles. 7.3. Guided Imagery Scripts. 7.4. Progressive Relaxation Scripts. 7.5. Yoga Story. 7.6. Calming Strategy Visual. 7.7. Faces of Emotion. References.

Read more less

Book SynopsisThe emotional trauma that families go through when they find out their child has an autism spectrum disorder can feel like being plunged into darkness. Francesca Bierens is here to show that there is also a light at the end of the tunnel. Over a period of fourteen years, Francesca Bierens interviewed ten families of children on the autism spectrum. This book records their answers: how they felt, how they coped, and what gave them strength and solace. Each family discusses how they reacted when they found out their child had autism, and their feelings leading up to diagnosis. They share their positive and negative experiences of professionals, and describe the support that they received, often from grandparents, respite care givers, support groups and other parents. Two of the original children, now in their 20s, also talk about the experience of growing up with autism, and describe how their lives are now. Above all, Bierens' message, and that of the families she interviews, is one of inspiration and hope, showing that there is light, love and laughter along the way. Their stories should be read by anyone who is affected by or working with autism.Trade ReviewDrawing on interviews with ten families of children and adults on the autism spectrum, she weaves a wonderful tapestry of different skills, abilities, and experiences that better represent the full autism spectrum. There are great sections on how family life is changed and how these individual excel as adults… Strongly recommended for all parents of autistic children and their support network. -- Library JournalSome of the challenges recalled in these honest accounts included in the book, relive some of the darkest moments faced by these families and the strain place upon them. Yet the joy expressed at overcoming these challenges provides an overwhelming message of hope and a promising future for people with autism and their families...Target audience: Anyone affected by, or working with autism. People with autism, families, friends and carers of people with autism & health professionals working with people with autism...from a healthcare professionals viewpoint, one of the major benefits of this resource is that it gives a genuine insight into how everyday life can be, not only for the individual diagnosed with autism spectrum disorder, but also the other important people in their lives and how it can alter the relationships between them. Taking this into consideration, this book proves a valuable tool in helping a healthcare professional shape their approach to working with a person with autism, particularly when visiting the individual in their home environment where these relationships exist and everyday occurrences take place. The book also serves as a reminder that autism spectrum disorder is a condition that affects each individual differently and support that is tailored in such a way that reflects the individual needs of that person can lead to a future of hope and opportunities...as an Occupational Therapist looking to work in a holistic manner in line with the values of our profession, the book certainly meets its associated aim of providing those without firsthand experience with an understanding of how autism affects the individual and their family. -- COTSS PLD NewsletterThe book is ideal book for a time strapped parent and for those with an interest in autism; you can delve in and out without feeling confused. It is a gentle, slow, comforting and relaxing book that requires nothing of the reader... Overall I would recommend it as an easy, informative and quite charming little book. -- asteens.co.ukTable of ContentsPreface. Introduction. 1. Life Does Get Easier. 2. We're a Family. We Go Where She Can Go. 3. We are Not Going to Hide Our Children Away. 4. You Can't Try and Rush Them. 5. We've Been Able to Gradually Expand His Environment. 6. We Respect Her Right to Be Different. 7. You Need to Have Somewhere to Offload. 8. She is So Funny and Mischievous. 9. He's Gone Way Beyond Functioning in Society, He's Now Excelling.

Read more less

Book SynopsisThis book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author followed their lives as part of a 3-year research study, during which 10 people died. She spent extensive periods of time with them at their homes and day centres, in hospitals, hospices and nursing homes. In doing so, she gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers. How was each person's cancer diagnosed? How was their cancer and its implications explained to them? How much did they understand and how did they cope with treatment? What happened when they were dying? In answering these questions, the book exposes the suffering of people with learning disabilities at the end of their lives, but also their remarkable resilience and strength. In an optimistic final chapter, the author demonstrates how people with learning disabilities can best be supported at the end of life.This book will be an invaluable resource for anyone involved in the care and support of people with learning disabilities who have cancer and who are dying, including health and social care professionals, families and friends.Trade Review`This book is written by one of only a handful o people in the United Kingdom who specialise in researching the lives and experiences of people with learning disabilities who have cancer and is a valuable and much needed addition to the literature. It is also a commentary on contemporary care for people with learning disabilities, and the continuing struggle in accessing equitable care.` -- British Journal of Learning Disabilities, Liz Forbat, Cancer Research Centre, Department of Nursing and Midwifery, University of Stirling`This book is an account of vulnerable people with deteriorating health, made more vulnerable by their illness, struggling in an often insensitive system...Loss is an inevitable part of life for all of us but this book outlines the impact of loss on people with learning disabilities, often in devastating and subtle ways...I found it a very accessible book: its key element was that the research is presented in readable, detailed accounts of her observations over time as each person's illness progressed. This personal notebook, which relates her inner thoughts, doubts, confusion and sadness over people's pain, was very moving. The fact that at times she could not help and yet she was able to stay with that discomfort rather then cover it up is commendable, reading like a good psychotherapy session...I was surprised as I did not expect to be so affected by this book, nor to learn so much from it. I think the highest praise I can give Tuffrey Wijne is to say it is to my mind the seminal work on the learning disability and loss. I certainly hope it gets a wider audience outside the learning disability field, hopefully in the National Health Service.`Community Living, David O'Driscoll'This book will be an invaluable resource for anyone involved in the care and support of people with learning disabilities who are facing cancer or other life-threatening illnesses. And it also includes a helpful resource section at the end of the book.' -- Learning DisabilityTable of ContentsAcknowledgements. Foreword. Preface. 1. Three Stories. 2. Diagnosis and Treatment. 3. Truth-Telling and Understanding. 4. Family and Friends. 5. Unprepared Services, Inexperienced Carers. 6. Dependent Lives. 7. Resilience. 8. Dying and Beyond. 9. Learning Lessons. Appendix 1. The People in this Book. Appendix 2. Methods. References. Resources.

Read more less

Book SynopsisAn invaluable starting point for anyone encountering cerebral palsy for the first time, this book provides essential background information on causes, types and symptoms, as well as vital advice about the treatments, therapies and sources of support available. Practical tips on everyday considerations such as communication, diet and education will help parents achieve the best quality of life for their child. A final chapter explores options after compulsory education and how best to support a young person making the transition to independent adulthood. Using personal experience and case studies as sources of inspiration, as well as a comprehensive list of resources to signpost readers to further information, this positive handbook will help parents and professionals more fully understand cerebral palsy and the different options available to people with the condition.Trade ReviewThis book seeks to encourage ways for society to alter its stance over disability from being a problem to be solved to one where the needs of the individual are met by supporting the building of better relationships with the disabled... this is a comprehensive guide to the condition and will raise debate and provide parents and teachers with knowledge to support them to respond to the needs of those with CP in order to enable them to become more independent. -- SNIPSpecial educator, expert on augmentative communication, author, and mother of a young adult with cerebral palsy - Marion Stanton has done it all. While supporting her son's progress through medical, therapeutic, and educational interventions to supported independent living, Marion has accumulated a wealth of information which will help anyone who wants to ensure people with cerebral palsy achieve their full potential. -- Rosemary Crossley, Director, Anne McDonald Centre, MelbourneUnderstanding Cerebral Palsy provides a refreshing and systematic appreciation of a condition experienced by people across a wide variety of social contexts. However, unlike other publications this is not simply a medical account... but a book that very quickly contextualizes the unique ways in which the individual may experience and manage their cerebral palsy to live their life with support they consider effective. -- from the foreword by Joe Whittaker, Chair of the Alliance for Inclusive EducationTable of ContentsAcknowledgements. Foreword. 1. An Introduction to Cerebral Palsy. 2. Should Therapy and Treatment be your First Priority? 3. The Early Stages. 4. Management of Cerebral Palsy. 5. Special Considerations. 6. Alternatives to Verbal Communication. 7. Day to Day Life. 8. Complementary Therapy. 9. Informal Support, Social Factors and Disadvantage. 10. Education. 11. After School - What Next? Useful Addresses and Contacts.

Read more less

Book SynopsisWhen we tell someone that our child is autistic, the most common response is a sad face and an apologetic look. I hate it when people say "I'm sorry to hear that".Parenting a child on the autistic spectrum can be tough at the best of times, but few books take the time to celebrate the love and laughter an autistic child can elicit in their parents and those around them. In this warm, honest and laugh-out-loud tale of bringing up Bobby, now ten, Georgina Derbyshire shares and rejoices in his 'slightly different' childhood.As she outlines momentous events in Bobby's life, from the day he decided he was a dog (continuing life as a canine for a year afterwards), to the time he catapulted an innocent shopper into a mountain of strawberries, Georgina repeatedly challenges the perception of autism as an affliction, maintaining that neurotypical people often make far less sense. Through her light-hearted and hilarious storytelling, she reveals how social codes and psychological games make the neurotypical world a very confusing place to live in, more so than ever if you happen to be a young boy with a passion for rocks, tape measures and trains. This book is a must for anybody involved in the upbringing of an autistic child, whether they are in search of a little comfort, companionship, light relief - or all three.Trade ReviewStand up for Autism by Georgina J. Derbyshire is a delightful and light-hearted book about the author's son, Bobby, who has Autism... the author takes us on the insightful journey through Bobby's life and, in doing so, helps demonstrate how Autism is something that should be celebrated and embraced... This book is strongly recommended not only to parents and families with an autistic child, but also to anyone who comes into contact with or is planning to work with such families. -- Youth in MindA book that explains stammering in a concise, accessible manner and uses the voices of children and young people to explain how it feels from their viewpoint, clears up the myths that surround it and offers a wealth of advice as to how parents, teachers and friends can help and support, is surely a real treasure. This book does all that and more. -- Red Reading Hub - Jillrbennett's Reviews of Children's Books"Stand Up for Autism" is a book written by a mother, Georgina Derbyshire, about her own experiences of having a young son with autism.... It is a readable detailed narrative of a parent's experience, not just a mother's and that experiences' meaning to other relationships in Derbyshire's life. Using examples from her life with her son, Derbyshire addresses basic questions that families/parents might themselves go through: Should I explain my child to strangers? How do I manage my autistic child on a plane? How do I get to sleep? -- Journal of Autism and Developmental DisordersDerbyshire shares humorous anecdotes, as in a chapter titled "Barking at Parents and Toddlers," and disastrous trips to the supermarket; "not my idea of fun" the author says (a runaway cart; an unsuspecting shopper in the produce aisle). She relays snippets of the amusing daily she has with her son and conveys her tale with deliberate lightness and wit. -- Publishers WeeklyTable of ContentsPreface. Introduction - Why Have I Written This Book? 1. This is Bobby. 2. Barking at Parents and Toddlers. 3. Tape Measures, Sticks and Stealing Rocks. 4. Trolley Wars and Battles with Fruit. 5. Holiday Horrors and Disastrous Days Out. 6. Sleeping is Not an Option. 7. The 'A' Word is Not Autism.

Read more less

Book SynopsisParenting a child with Asperger syndrome is never easy, and adding ADHD to the psychological mix makes life even more difficult. In this searingly honest account of bringing up her son, Luke, Jan Greenman challenges common perceptions of a 'life with labels', and recalls her family's 18 year journey to the edge and back. Writing frankly about the medical issues of Luke's early years, including the impact of MMR and Ritalin, Jan recalls how Luke's diagnoses came about, and how life at The Edge, their aptly named family home, changed as a result. She describes the causes and effects of the behaviours associated with Luke's conditions, and the impact they had on each family member, including his younger sister, Abbi. The only predictable thing about Luke is his unpredictability, and Jan also takes a light-hearted look at some of his more unusual habits and obsessions. The book includes tips and advice from Jan, Abbi, and Luke himself, and the final chapters go beyond Luke's early years to look at his life as a teenager - his solo trip to Dubai, and subsequent encounter with customs, his expulsion from school, and the inspirational Headteacher who helped him to turn his life around. Life at the Edge and Beyond is a must for anyone involved in bringing up a child with Asperger syndrome, ADHD - or both. Parents will take from the family's successes, learn from their mistakes, and realize that, no matter how close to the edge they may feel, they are never alone.Trade ReviewThis is a deeply moving and thought-provoking account of the effect that we have on our loved ones - parents, siblings and wider relatives... Seeing behaviours and acts that many of us will have done from the neutral perspective of someone else can help with our own behaviours and actions, and in particular being aware of those around us and the effect we have upon them. -- Asperger UnitedThis is the best account I have read of the impact of autism on a family. Jan, Luke and Abbi give their different perspectives on their life so far, in challenging and insightful ways. Any parent would find this book fascinating. But every teacher, social worker, policy maker should be sat down in a room and made to read it! -- Professor Richard AshcroftWritten from the mother's point of view, with excerpts from her son Luke, I found this book to be engaging, informative, humorous and sometimes outrageous...I think this book will be an enjoyable and informative experience for readers. -- Support and Training for Exceptional Parents NewsletterThis is a story of hope, and parents will come away with the knowledge that even though they may feel like their life is teetering on the edge, they are not alone... While Luke's story is definitely an original one, the struggles and feelings of being overwhelmed and out of control will be familiar to families dealing with a child with autism spectrum disorder (ASD). The authentic voices of Greenman, Luke, and Abbi are invaluable in validating the feelings of all those living with ASD. -- Library JournalI found it fascinating to read about Luke and his family. I found the insights from Luke himself especially helpful. The book is very easy to read. It is almost like you are sitting in a room with the author and she is telling you about her life. It is always encouraging to know you are not alone. The author's honesty was incredibly refreshing. -- Tara's View on Books blogAny parent struggling with such a child will find this packed with practical tips not just from the author, but from the entire family. -- The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by James Gray MP. Introduction. Part I: 1991 to 2004. 1. A Very Good Place to Start: The Beginning. 2. The Nightmare Begins. 3. Going for Broke. 4. Savour the Moment. 5. Consequence, Cause and Effect. 6. Labelling of Luke: ADHD. 7. Turn on the Light: Language Taken Literally. 8. Black and White. 9. Labelling of Luke: Aspergers Syndrome. 10. Siblings: Abbi's Chapter. 11. Friend or Foe? 12. Professionals: Just the Few. 13. Sad, Mad but Not Bad. 14. Call me Nigel. 15. Education, War and Peace. Part II: 2004. 16. The End...of Life at The Edge. Part III: 2005 to 2007. 17. Beyond The Edge. Part IV: 2007 to 2009. 18. Life at The Edge Becomes a Book! 19. Nigel Mansell, Pinstripes and Parliament. 20. Dubai: Customs and Contraband. 21. Luke Tips over the Edge of Reason. 22. Trust, Trystan and Public Speaking. 23. Keith Lemon Has the Last Word, Literally!

Read more less

Book SynopsisIntensive Interaction is a highly effective approach for communicating and developing social interaction and engagement with difficult-to-reach individuals. This easy-to-use guide steers readers through the practical application of the approach, showing how positive results can best be achieved.The authors explain clearly how to prepare for, carry out and reflect on the use of Intensive Interaction with a client or family member. A multitude of key questions are addressed, including finding the right setting, evaluating progress and disengaging effectively at the end of a session. In the final section they consider some of the wider implications of the approach, such as developing confidence as a practitioner and incorporating Intensive Interaction into long-term care or educational planning.This practical and accessible book is a useful resource for speech and language therapists, occupational therapists, special school or further education teachers, social care professionals and anyone else caring for or working with people with social or communicative impairments. It will also be useful to practitioners already using the approach.Trade ReviewThis is a practical, enjoyable, easy-to-read guide, whose title does not do the contents justice. Stepping away from academia, this book is of equal value to those wishing to dip their first toe in as it is to those needing to structure substantial experience into bite sized pieces for training and supporting others... They address key questions of how to start, progress through and evaluate sessions, and finish with discussion of how to develop competencies. -- Speech & Language Therapy in PracticeIt offers a good workmanlike introduction to intensive interaction. It is non-technical and very accessible... It is clear that the writers have a deep knowledge and commitment to intensive interaction and these qualities underpin the worth of the book. This book is of value to those considering using intensive interaction in their work with people with profound and complex intellectual disability and as such may be considered a useful introduction to the subject. -- The Frontline of Learning Disability JournalTable of ContentsPreface. Introduction. What is Intensive Interaction? Who might benefit from Intensive Interaction? Why should you be considering using Intensive Interaction? Who else may you need to talk to about using Intensive Interaction? Chapter 1. What to Do and Think About Before Using Intensive Interaction. Where are you going to try to use Intensive Interaction - is this the best place? What kind of observation have you done with the person - is it enough? What are you going to try to achieve in the first few minutes? What are you hoping to achieve in the whole session? Is this the best time to try and start - does it have to be now? How long have you got - is it going to be long enough? Do you have any necessary resource items available? Chapter 2. What to Do and Think About Whilst Using Intensive Interaction. What can you do to engage someone - what techniques can you use? Thinking back to your observations - what have you learned, and what should you be looking for now? How do you know if the person is ready for Intensive Interaction? Is this the best time to try and start - does it have to be now? How do you approach the person - what do you do first? What should you be looking for as you go along? Do you always have to follow the other person's lead, or are there times when you can lead the activity in some way? Have you achieved what you hoped for so far - what responses have you had, and were these what you were expecting or not? Are you still being sufficiently observant of the person? This particular activity has been going on for quite a long time - should you change what you are doing or just keep going? What are you hoping to achieve in the whole session? How much direct mirroring should you be doing - and how creative can you be with this? What if the person gets bored of repeated routines - how would you recognise this and what could you do about it? Can you try something a little different to see how the person responds - if so, when and how, and what should it be? Do you still have the necessary resource items available? How will you know if you have achieved something worthwhile? How long have you got left - is it going to be long enough? How do you disengage with the person if it is going well and they really want to continue? Should Intensive Interaction be this easy or this hard? Chapter 3. What to Do and Think About After Using Intensive Interaction. What did you do to engage the person - what techniques did you use and what have you learned from this session? How did you know if the person was ready for Intensive Interaction, and was this a good time to start a session? How did you approach the person - what did you do first, and how was this received? What new behaviours did you observe from the person during this session? Did you achieve what you hoped for, and was it worthwhile? Were you sufficiently observant of the person? Did they, or might they have done something you didn't see? Could you use some different resource items to better effect next time? Did you have long enough? How did you disengage with the person? What was easy or hard about the session? Chapter 4. Some Final Issues to Consider When Using Intensive Interaction. Consider what you can do to develop your own competence and confidence as an Intensive Interaction practitioner. Consider how other people can be productively involved and supported in developing successful Intensive Interaction. Consider how Intensive Interaction can be used in the longer term, and how this issue is best addressed and organised. Chapter 5. What You Might Expect to Come From the Use of Intensive Interaction. Further Reading. Glossary. Appendix. References. Index.

Read more less

Book SynopsisPeople with learning disabilities are at greater risk of physical and psychiatric illness than the population at large, but their health needs are often not adequately supported. This book is a practical guide for those caring for people with learning disabilities living in community settings. It is designed to help the carers to better understand what the service users' health needs may be, how to recognise problems, and how to meet their needs. Chapter topics include physical health issues such as epilepsy, common health problems and diet and well-being; mental health issues such as dementia, depression, bipolar disorder and anxiety; and information related to common issues such as sleep and swallowing problems. The book also includes advice on screening programmes and health checks. Written in an accessible and straightforward style, this book will be an invaluable guide for anyone caring for someone with a learning disability, including social carers, health facilitators, community nurses and family carers.Trade ReviewThis handy volume provides a helpful and practical overview for carers and families alike who are keen to ensure they are meeting the physical and mental health needs of people with learning disabilities. Its accessible and open approach and the inclusion of an invaluable glossary of terms is ideal for those new to the issues but also provides useful material and signposting for those with more experience in the field. -- Steve Carnaby, Consultant Lead Clinical Psychologist with Westminster Learning Disability Partnership and Honorary Lecturer in Learning Disability at Kent University, UKThis helpful and comprehensive guide for carers and health facilitators highlights the key areas to consider in maintaining or improving the health of people with a learning disability. It covers physical and mental health issues, including the client's capacity to consent to treatment. -- Nursing StandardTable of ContentsForeword. Dr Elin Davis, Consultant Psychiatrist, Cornwall, UK. Section 1. The needs of people with learning disability. 1. About this book. 2. An introduction to learning disabilities. 3. Learning disabilities and physical health. 4. Learning disabilities and mental health. 5. Physical and mental health needs of people with Down's Syndrome. 6. Learning disability, health and the law. Section 2. Associated conditions and issues. 7. Epilepsy. 8. Sleep problems. 9. Swallowing problems. 10. Autism. Section 3. Accessing services. 11. Screening programmes. 12. Health checks. 13. When admission to psychiatric care is required. Appendix. Genetic causes of learning disability. Glossary. References.

Read more less

Book SynopsisLeaving home and moving to college or university can be a daunting experience. In this easy-to-use book, Rosemary Martin provides guidance and invaluable advice for students on the autism spectrum as they plan for and settle into college life.Packed with straightforward methods for coping and succeeding away from home, this book focuses on the particular needs of people with Asperger Syndrome, and covers every aspect of student life - from how to get up on time for lectures, to the art of living with other people and attending to the basics of personal health care. Rosemary Martin's helpful hints encourage everyone to make the most of student life in a style that suits them and reassure the reader that going to college is a big deal for every student, regardless of whether or not they are on the autism spectrum.This cheerful and pragmatic guide is an absolute must for any student on the spectrum about to embark on a university or college education.Trade ReviewAs I am mother of a son soon to leave the nest, I found it very encouraging. -- ASTeensWhile highlighting useful information and basic practical tips, the author writes with gentle humor and insight. Top Tips for Asperger Students: How to Get the Most Out of University and College, would be beneficial for every new student. -- Penny Hastings - Foreword ReviewsTable of ContentsAbout the Authors. Acknowledgements. Foreword. 1. Introduction. 2. The Daily Routine. 3.Managing Your Time. 4. Socializing. 5. The First Week at University. 6. Feeling Good About Yourself: The Physical Stuff. 7. Feeling Good About Yourself: The Mental Stuff 8. Money Matters. 9. Getting a Job while at University. 10. All About Food and Drink. 11. Managing Your Stuff. 12. Cleanliness is next to Godliness. 13. Living accommodation. 14. Getting about. 15. Studying. 16. Getting the most out of university. 17. Expanding Your Horizons. 18. The End (but it is just the beginning). Checklist: What to Take with You to University. Budget Planner. Useful Websites. References. Index.

Read more less

Book SynopsisPeople with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.Trade ReviewAs a long-term ME sufferer myself I can recommend this book- in particular its comprehensiveness and accessibility/readability, issues doubtless borne in mind by the author who is recovered ME sufferer. -- Ministry Today UKthe book is very strong on compassion, and the emotional aspects of being a friend/carer of someone with CFS/ME. There are sections for partners, parents, siblings, children and work colleagues. The author also tackles many practical issues relating to personal hygiene, food and nutrition, mobility, domestic tasks and money and employment. -- ME EssentialIf you ever wished there was a book you could give to a family member or a friend that would explain in detail what it really is like having ME, then this is that book. It is a book written specifically for the family, friends and carers of people with ME. Its aim is to help them understand this often misunderstood condition better and provides practical advice and support for not just the person with the illness but also to those around them... where the author excels at is explaining what it really feels like to have CFS/ME. She covers many useful areas, such as why it might be hard for a person with ME to talk about the condition, thus helping friends and family appreciate the different experiences and emotions that a person with ME is likely to be going through. Elizabeth Turp is a counsellor, as well as someone who has had ME herself, and her deep understanding of the condition really shows in this book... She starts by discussing all those emotions that a person can go through when their loved one becomes seriously ill. She then moves on to social relationships, explaining how and why ME can change them, a particularly valuable section I thought. There is also a section on communication, again very useful as it is a common experience for many people that they do not quite know what to say to someone who is seriously ill, or are afraid of saying the wrong thing. For someone familiar with the illness this may all seem quite obvious, but I am sure for someone new to the condition it is good to be able see they are not alone in having these kinds of problems... I think this is a very valuable and worthwhile book. It offers support for those people who are often in a difficult situation, trying to support someone who suffers from a potentially very long term illness. In such a situation, the main focus is, naturally enough, on the person who is ill, but it is all too easy to forget the carers and the problems and emotions that they are going through. If this book makes their life any more easier - and as a result, helps the person who is ill too - then the book has achieved its aim. -- West London ME Support GroupWriting a book about CFS/ME after having gone through the wringer of this illness is an enormous task. Turp has met this challenge with success. Her book should be read by those with CFS/ME who are trying to find a way out. It should be read by people who care for sufferers of CFS/ME, who want to understand, and who want to help the people they care about... It shines through in every page that she has likely borne the brunt of most or all of theses scenarios herself, and is bent on doing what she can to protect others from the experience. If you've come up against the brick wall that is Chronic Fatigue Syndrome/ME, having the disease yourself or loving someone who does, Turp's book is worth the read. Turp is practical above all else. In dealing with an illness that leaves the victim stymied and unable to function, perhaps unable to sit up in bed, and often unable to think clearly for any length of time, coping with even the simple basics of life can be beyond them. Turp is clear. The person living with Chronic Fatigue Syndrome/ME is in a dire position. If you know someone with CFS/ME, don't leave them to try to deal with it alone. And if you know someone with CFS/ME, read Turp's book, roll up your sleeves, and find a way to make their life more bearable. -- www.empowher.comPeople with CFS/ME are very much affected by what 'other people' think, say or do. If things don't go well, it is usually because those others don't know or understand, or just don't 'get it', perhaps feeling frightened, threatened or useless. Here is a straightforward and practical resource to fill those knowledge gaps, drawn from both personal experiences and professional insights'. -- Professor Tony Pinching, Associate Dean, University of Plymouth, UK.Giving this book to your caregivers and associates - family, friends, colleagues - can be a lifesaver, not only helping to increase your quality of life as a sufferer but that of those around you... Turp is an integrative counsellor who works in NHS primary care and private practice in the UK... She became ill with CFS/ME in 2005... The resulting book, written specifically for friends and family of the sufferer, includes her own experiences and case studies of others, and most importantly, wonderfully descriptive word pictures of how CFS/ME can affect an individual along with excellent advice on how others can be the support you need. Chapters of the book assist the reader in understanding how having a friend or family member with CFS/ME will change their own life, what kind of support and caring the sufferer may require, how to help the individual cope with the illness, and practical advice on helping with the requirements of daily living... Turp's excellent book is easy to read, comprehensive, full of compassion and packed with practical advice... I highly recommend that you buy at least one copy if you have CFS/ME, or if you are a caregiver for someone who does. It will make the lives of both of you so much better. -- PajamaDaze.com blogTable of ContentsAcknowledgments. Introduction. Why I have written this book and who it is for. My story. The different levels of CFS/ME: mild, moderate and severe. The whole person: CFS/ME, the body and the mind. 1. What is Chronic Fatigue Syndrome/ME? The Different Names for CFS/ME. The Symptoms. Stages of CFS/ME. What does it feel like to have CFS/ME? Why has my friend/relative not discussed this with me? How is it diagnosed? What causes CFS/ME? Treatment and management strategies. Conclusion. 2. CFS/ME and you (the friend of family member). Your reaction to the news. Changes in your relationship with the sufferer. Why it can be easy to say the wrong thing. Common misunderstandings. Support for you (the friend or family member). Conclusion. 3. Supporting your loved one to cope with the symptoms of CFS/ME. Helping with the physical symptoms. Helping with the cognitive symptoms. Helping with the emotional effects. Other factors that make coping with CFS/ME harder. Helping with making positive changes - treatment and management strategies. Preventing relapse and staying stable. Other things that can help. Conclusion. 4. Practical advice on how you can help with everyday life. Personal hygiene. Food and nutrition. Shopping. Mobility and travel. Domestic tasks, DIY and gardening. Money, employment and work. Caring responsibilities. Socialising and communication. Conclusion. 5. The top 10 tips on how you can help. Final note from the author. Resources/Directory of Support. References. Index.

Read more less

Book SynopsisPeople with Asperger Syndrome (AS) can be particularly at risk of developing mental health difficulties such as anxiety and depression. Here, adults with Asperger Syndrome speak out about their own experiences of mental health issues, offering sound advice for other Aspies and providing valuable insights for family, friends and also for mental health professionals. Touching on everything from difficulties at work and college to coping with low self-confidence, self-harm, alcohol, misdiagnosis, sectioning, counselling, medication and battles with mental health services, the book provides a window into how people with AS experience mental health issues, and what can be done to help. The individual accounts describe innovative coping strategies and methods for maintaining emotional and psychological wellbeing as well as practical advice on things like how to stay positive and deal with day-to-day stress and meltdowns. This is essential reading for adults with Asperger Syndrome, and their families and friends, and will be a useful resource for psychologists, psychiatrists, mental health service providers and other professionals who support adults with Asperger Syndrome.Trade ReviewI found several of the stories relevant to my own life and helpful in my understanding both of myself and of the situations - reading someone else's story gives you that bit of objectivity and so allows you to see the overall perspective more clearly. Well worth a read if you find such stories useful. -- Asperger UnitedI found this book hard to put down and in fact read it in one sitting, only pausing to replenish my tea mug... I enjoyed every account and found many to be both painful, informative and sometimes seriously funny with an enormous amount of self-deprecating humour and exceptional awareness of their own differences...This book is a gem and has much to teach us all however experienced we might feel ourselves to be, in an easy to assimilate format. All the accounts are well-written and all have a purpose. Buy it, enjoy and pass it on, particularly to mental health professionals. -- ASTeensAt last a book that honestly declares the reality of a population's Mental Health status. It will only be as we take the named issues seriously and act upon these that our mental health outcome for all involved, especially those with Autism Spectrum Conditions (ASC), has an opportunity for prevention rather than cure. Certain environments can be conducive to health, others not so. As professionals we dare not miss the messages contained within this book. To do so would be detrimental to the future of humankind. -- Dr. Wendy LawsonPeople who have Asperger's syndrome are at greater risk than the general population of developing a mental health problem. At last the story can be told of how life experiences, and especially being bullied, misunderstood and feeling lonely, can cause mental health problems for children and adults who have Asperger's syndrome. This book is essential reading for all staff employed in psychiatric services. Ignorance of Asperger's syndrome is no longer a valid excuse. -- Tony Attwood, author of The Complete Guide to Asperger SyndromeI found this book hard to put down and in fact read it in one sitting, only pausing to replenish my tea mug... I enjoy every account and found many to be both painful, informative and sometimes seriously funny with an enormous amount of self-deprecating humour and exceptional awareness of their own differences. Many of the contributors offered their own solutions, either revealed as part of their story or laid out in bullet points. The accounts are well written, each with their own style and character, all having needlessly suffered through the ignorance of those around them. A recurring theme is that trying to make someone on the spectrum into a neuro-typical person is harmful and damaging... It is an interesting read in its own right simply as a human interest book but is a must for anyone dealing with Aspergers professionally or personally, particularly mental health professionals. Anyone on the spectrum would probably relate to most of the accounts and feel comforted to hear their own experiences mirrored, particularly those with anxiety and depression. I also feel that it has much to offer all professionals who work with or may encounter those on the spectrum, helping them to understand why someone may react in a particular way. This book is a gem and has much to teach us all however experienced we might feel ourselves to be, in an easy to assimilate format. All the accounts are well-written and all have a purpose. Buy it, enjoy it and pass it on, particularly to mental health professionals. -- BFK BooksTable of ContentsIntroduction. 1. Mental Health Services and Me: What Worked, and What Didn't. Janet Christmas. 2. Coping with Depression: Positive Advice for Aspies. Debbie Allan. 3. My Fur-lined Bucket: Alternative Methods of Dealing with Mental Health Issues. E Veronica Bliss. 4. This Aspie Life: The Undiagnosed Aspie Experience. 8ball. 5. A Colourful Rainbow: Embracing Autism as a Neurological Difference, Rather than a Mental Health Disorder. Melanie Smith. 6. Getting the Right Diagnosis, and its Impact on Mental Health: Is this the Best the NHS Can Do? Cornish. 7. Positive Mental Attitude: Coping with Setbacks, Knowing Your Own Strengths, and Finding Happiness Any Way You Can. Dean Worton. 8. "It's all in your head": The Dangers of Misdiagnosis. Neil Shepherd. 9. A Fairytale Life It Isn't (AKA Chapter 9): Alcohol, Self-harm, and the Benefits of Exercise. Alexandra Brown. 10. "Getting My Life Back": A Mother's Struggle to Get Mental Health Services for Herself and Her Son. Anne Henderson. 11. A Week in the Life Of: Strategies for Maintaining Mental Health as an Aspie. Steve Jarvis. 12. My Plastic Bubble: Dealing with Depression, Anxiety, and Low Self-confidence. Wendy Lim. 13. The Art of Being Content: Asperger Syndrome, Buddhism, and Me. Chris Mitchell. 14. A Journey Looking for Answers About the Way I Am. Anthony Sclafani. 15. A Label that Fits: Diagnoses, Self-harm, and Mental Health. Natasha Goldthorpe. 16. Through the Looking Glass into Lynette Land: Making Humour Work. Lynette Marshall. 17. Mental Health and the Workplace: Dealing with Criticism, Coping with Stress, and Taking Control of Your Environment. Dr. Christopher Wilson.

Read more less

Book SynopsisIn People with Dementia Speak Out, twenty-three people from diverse backgrounds share their experiences of living with dementia. The contributors are honest about the frustrations and fears they face, but overall there is remarkably little self-pity and a great deal of optimism. The personal accounts demonstrate that with the right support at the right time, and above all with opportunities to continue to contribute to society in a meaningful way, it is possible to live well with dementia. These fascinating stories bring to life the characters behind the collective term 'people with dementia', and show that each person with dementia is a unique individual with their own personality, history, beliefs, cultural affinities and sense of humour, and their own way of adapting to the disabilities and opportunities which this condition confers. This unique collection of personal testimonies will be reassuring and encouraging for those coming to terms with a diagnosis of dementia, for their families and carers, and is essential reading for health and social care professionals at all levels.Trade ReviewPeople with Dementia Speak Out is a celebration of people living, loving, learning, changing and growing with dementia. It is a rich and multi-dimensional collection of first-person accounts from people living with dementia. Each story combines people's reflections on their life stories - which are hugely diverse - woven together with accounts of their growing awareness of difficulties and the impact of dementia on their lives. These stories are about identities and how dementia becomes another aspect of people's lives - but not the only aspect. This collection has been thoughtfully edited by Lucy Whitman, who usefully shares her reflections on a complex editorial process that succeeds in retaining the diversity of experience, personality and language style that in turn helps to convey the realities - the highs and lows of how dementia is incorporated into people's lives and identities - and the sheer resilience with which people respond to such major life changes. People's voices, wishes, hopes and concerns ring out from every page of this book. This is a must read for those who want to hear and understand the voices of people who are living with dementia. -- Rachael Litherland, Co-director, Innovations in Dementia CICAlthough I have read many books on dementia in the four years since I was diagnosed with Alzheimer's disease, seldom have I engaged with one which has informed and moved me as much as this one. Lucy and her co-authors will inspire, challenge, and yet reassure you in equal measure, whether you are affected by dementia personally, or are a professional caring for us. The people in this book "speak out" through story-telling, conveying a human narrative around living well with dementia. The message they all so sincerely convey is based upon everyone being different, with personhood at the centre, whilst sharing a common bond and a desire to reduce stigma and misunderstandings, and replace them with hope and belief. -- Keith Oliver, Dementia Service User Envoy, Kent & Medway NHS and Social Care Partnership TrustEveryone working in dementia care should read this important book. Powerful and moving, these stories drive home what must be the guiding principle of all our work: to see and know each person as an individual all the way from first contact to later difficult times. Many contributors relate a stark lack of support after diagnosis but there are bright lights of positive services too, highlighting especially how vital mutual support groups can be. -- Sue Benson, Managing Editor, Journal of Dementia CareIn a better world, Lucy Whitman's book would be required reading in schools. It brings alive the experience of living with dementia through the stories of people from all walks of life in the UK, and eloquently illustrates the theme of the 2013 report by the All Party Parliamentary Group on Dementia: Dementia does not discriminate. Importantly, Lucy has made every effort to ensure all the contributors tell their story in their own way. A valuable, evocative and commendable testimony to the importance of seeing the person, not the dementia. -- David Truswell, NHS Senior Project Manager & Trustee of Culture Dementia UKIt is clear from this book that people living with dementia are engaged in a daily struggle to retain their distinctive individual personalities and identities linked to their own specific histories and life stories. It is therefore gratifying to see the care, skill and subtlety deployed in this volume to capture the unique voices and turns of expression of the participants, including where these occasionally conflict with the conventions and norms of written Standard English. -- Dr Roxy Harris, Centre for Language, Discourse & Communication, Kings College LondonMake no mistake, this is a major work of scholarship, as well as taking us several steps forward in understanding the significance of dementia to individuals and their need for appropriate help. In her first book, Telling Tales about Dementia, Lucy Whitman established herself as a visionary communicator; this book raised awareness and respect for people with dementia and their families. It has influenced how we respond to their needs and has helped many, through the sharing and comparing of stories.In People with Dementia Speak Out she opens the book on life as seen by individuals actually living with dementia, bringing together the perspectives of 23 authors. She explains her methodology and influences in three illuminating appendices. The range is wide, with a mixture of older people and those who have early onset dementia, and contributors born in many different countries.These are not tales of sorrow and suffering. In every one, the main theme is the whole life story of the PERSON. Dementia comes as but one experience, one part of one period - the final period - woven onto and into a fabric which has lasted years.There is much wisdom here. These stories will bring smiles and tears, anger and determination. Most importantly they will spread a better understanding - and hopefully we will use this to best effect. -- Professor David Jolley, Consultant Psychiatrist and Honorary Reader in Old Age Psychiatry, University of ManchesterI read Lucy Whitman's first book - Telling Tales About Dementia: Experiences of Caring - and found it riveting. I frequently recommend it as essential reading for those working in this field. It presents an expertly edited text that accurately reflects a range of carer experiences. Shortly after its publication she mentioned to me that she was considering a 'sister' text that portrayed the experiences and narratives of people with dementia to which I stated that this would be an excellent accompaniment to Telling Tales. We are starting to see an emerging number of books that give first hand narrative to what it is to have dementia. People with Dementia Speak Out!, Lucy's second edited text, makes a valuable contribution to this small but growing body of knowledge. -- Karen Harrison Dening, Director of Admiral Nursing, Dementia UKTable of ContentsIntroduction. 1. Grandad - can you go and get a new brain? Graham Browne. 2. Are you sure you've got Alzheimer's? Alex Burton. 3. A doctor in search of a diagnosis. Jennifer Bute. 4. I'll ken it when I see it. Ross Campbell. 5. Liberation! Dizi Conti. 6. I'm gone older. Everything change. Romanina Contucci. 7. Riding the rollercoaster. Carol Cronk. 8. I still remember. Halide Eames. 9. I never get tired of dancing. Midge Flint. 10. They deal with everybody as an individual. Clarice Hall. 11. One place to another. Abdul Haque. 12. A double diagnosis. Brian Hennell. 13 Anybody been kind to me, it stays with me. Pearl Hylton. 14. Love me for who I am. Ann Johnson. 15. Down with Dementia. Sylvia Kahn. 16. Deciding to resist. Lazarus. 17. You keep-a-knockin' but you can't come in. Alex Lindsay. 18. The doors of perception. Edward McLaughlin. 19. Journey into Alzheimerland. Peter Mittler. 20. Who's afraid of the flying bombs? Lorna Moore. 21. Time to break the taboo. Rukiya Mukadam. 22. Something better. Mary Tall. 23. A Psychiatrist with Dementia. Daphne Wallace. Appendix I: Editing Challenges. Appendix II: Narrative Based Medicine. Appendix III: LGBT People with Dementia. Afterword by Graham Stokes.

Read more less

Book SynopsisFacing any type of change can cause confusion and anxiety for individuals with autism spectrum conditions. This book looks at the small transitions in everyday life that can be a big deal for a child with autism and offers simple and effective strategies to make change less of a daily challenge.Explaining why seemingly minor changes to routine can be emotionally distressing for children with autism, this book teaches parents practical solutions for coping with common transitions including switching from a weekday to weekend schedule, the changing of the seasons, and sleeping in a different bed when on holiday. With insights from the authors' personal experiences and helpful scripts, signs and sketches to use along the way, this book shows that with planning and preparation parents can reduce the stress surrounding change for their child and the whole family.This book is the perfect tool to help children with autism deal with change in a calmer and more confident manner and will be essential reading for parents and any professionals working alongside them.Trade ReviewI think many parents will find inspiration in this book and, for professionals, any insight as to children's and families' experiences can only be beneficial. -- British Journal of Occupational TherapyA hallmark of autism spectrum disorders (ASD) is difficulty with change. Parents John Smith and Jane Donlan join with 16-year-old son Bob Smith (co-authors, Create a Reward Plan for Your Child with Asperger Syndrome) to address the difficulties that they encountered together with Bob's resistance to change. Whether the change is large or small, Smith and Donlan have developed a strategy using a combination of scripts, signs, and sketches to help Bob, and others with ASD, navigate successfully.... The sample scripts, signs, and sketches, as well as Bob's input, make this a particularly meaningful and useful book. A great addition to any ASD collection; highly recommended. -- Library Journal ReviewsThis book vies for your attention literally from the minute you see the bold, colourful cover - and it doesn't disappoint... The chapters are short with good size paragraphs that are easy to read... hones and thought provoking. The strategies and techniques suggested throughout the book are extremely useful and manageable... the book is written in such a way that it would give you the confidence to try adapting the techniques to suit the needs of your child... The book is effortless to read as it is written in plain, everyday language... This book would be a perfect reference for parents or carers who need a guide to useful strategies and techniques that could be used or adapted to work for their child. It would also be excellent for anyone who is looking for a plain-speaking, comprehensive book on the subject of "everyday transition". I would definitely recommend it! -- Nasen SpecialThis is a positive self-help book written in an easily accessible style. -- Cerebra NewsbeatI think this book would be a useful resource for parents and carers. It is easy to read and the point are illustrated well with the use of case studies. It offers some very practical suggestions and gives examples throughout. -- Solent NHS Trust, "Shine for Members"Brilliant in its usefulness and accessibility to all readers, this book successfully addresses a huge issue. Life is all about change, and change is one of the biggest challenges for individuals with autism spectrum disorders. It is time that an entire book deals with this important issue. Authors Smith, Donlan, and Smith accurately describe how transitions affect individuals with autism spectrum disorders. They provide real life situations and solutions that work. Additionally, the authors provide valuable, practice proven tools, such as scripts and signs that may be used for a variety of transition situations. Helping Children with Autism Spectrum Conditions through Everyday Transitions is one of those books that may be considered a "must have". -- Dion E. Betts, Ed.D., author of Everyday Activities to Help Your Young Child with Autism Live Life to the Full and Superintendent of Schools, Boyertown Area School District, USAThis easy-to-read book shows a brave honesty and depth of understanding that can be borne only from individual experience. It is so useful to hear Bob's point of view and the book provides helpful practical ideas for every occasion that can be easily put into practice and more importantly might spark the turning point with a difficult issue. This book shows great understanding of the fact that the size of the change is not equal to the enormity of the challenge! It reaches to the sometimes bewildering experience and crucial issues that I hear parents of children with autism spectrum conditions talking about on a daily basis. The authors understand behaviour as a means of communication and represent the impact that the minutiae of everyday life can have on a young person with autism and their families. -- Chantal Blake, Clinical Psychologist, Werneth Primary Care Centre, Oldham, UKA jargon-free book that is easy to read. It recognises day-to-day dilemmas faced by families who have a child with autism. I was able to relate to the real-life experiences illustrated through the case studies, make sense of the practical advice and consider how it could apply to my own situation. -- Debbie Gainsborough, parent of a child on the autism spectrum, Lancashire, UKJohn Smith, along with his wife Jane Donlan and their teenage son with AS, Bob (the darling boy pictured on the cover of the book) have come up with a roadmap to help their son navigate the everyday things that can throw one off, such as getting ready for Christmas or planning a vacation to Florida... This book should have been around yesterday, so that I wouldn't have been so anxious and overstimulated at Christmas! -- Autism Society of Michigan NewsletterTable of ContentsIntroduction. Section 1: Issues Related to Change. 1. Autism/Asperger Syndrome: A Brief Overview. 2. Change. 3. Emotions. 4. Sensory Overload. Section 2: Examples of Times of Change and How to Use the Transition Techniques at these Times. 5. Weekends. 6. Vacations /Holidays. 7. Public Holidays and Festivals. 8. Other Examples of Times of Change. Section 3: Additional Techniques/Strategies to Use at Times of Change and with Autism in General. 9. Useful Tools to Use with Change: Scripts, Signs and Sketches. 10. General Advice. 11. Conclusion. Useful Resources.

Read more less

Book SynopsisSexual health and sexuality can be difficult subjects for parents and caregivers to broach with autistic children, made more challenging when children are at the severe end of the autism spectrum. Some parents may even question the validity of teaching sexuality to those who are severely autistic.This practical handbook guides you through the process of teaching about sex and sexuality, answering all of the most crucial questions, including: Why is it necessary to teach this subject to my severely autistic child? When is the right time to start talking about these issues? How detailed and explicit should I be? What methods are most appropriate? It addresses male and female issues separately and covers public and private sexual behaviours, sexual abuse, cross-gender teaching and liaising with school, in addition to the more obvious areas such as physical changes and menstruation. This will be the ideal guide to teaching about sexual issues for any parent, caregiver or health educator caring for a person on the severe end of the autism spectrum.Trade ReviewSexuality and Severe Autism... is a relatively short and accessible book written by a health care professional who is also the mother of a son on the spectrum and so can bring genuine insight to the topic. This book includes many important topics (e.g. public and private behaviours and sexual abuse), contains lots of practical advice and tactics and is respectful in focus. -- Davida Hartman for Autism Sex Education , http://autismsexeducation.wordpress.com/This is not simply a book that can educate and inform. Reynolds makes the point that the book is also about 'protection' and that severely autistic children need to possess a broad sexual knowledge, from knowing the correct names for body parts (and understanding their function in sex), to how to recognise and report abuse. -- Action for AspergersProvides a practical handbook to sex and sexuality, showing parents and educators how to impart the basics to even the most severely autistic child. -- Midwest Book ReviewThis book is an excellent guide for parents of children with more severe forms of autism struggling with how to talk about sexuality and keep their kids safe. Reynolds delivers an honest account of the issues sometimes faced by those with autism while providing practical strategies for tackling this somewhat taboo subject from the sensitivity and experience of a parent's perspective. -- Dr. Elizabeth Laugeson, author of The Science of Making Friends, Assistant Clinical Professor, UCLA, Founder and Director, UCLA PEERS ClinicI find this book to be informative and inspiring; I really hope parents, carers and professionals alike learn from it, in turn impacting positively on this key area of people's lives. -- Jo Hinchliffe, Family Planning Association Project OfficerTable of ContentsAcknowledgements. Preface. 1. The Context of Sexuality and Severe Autism. 2. A Framework for Teaching Sexuality. 3. Boys and Men. 4. Girls and Women. 5. Appropriate Behaviour. 6. Recognising and Reporting When Things Don't Seem Right. 7. Long Term Future. Appendices. References. Resources. Index.

Read more less

Book SynopsisWith a variety of case examples and contributions from experienced clinicians, this book introduces Cognitive Analytic Therapy (CAT) in practical, user-friendly language, and for the first time guides readers on how to use it with people with intellectual disabilities. CAT is increasingly recognised as an effective approach for working with people with intellectual disabilities. It focuses on observing and describing typical patterns of how the client relates to others, how they behave in relationships and how they see themselves. By considering how these patterns first developed and how they can be revised in a more constructive direction, CAT can encourage change to occur as the result of healthier relationships. The contributors describe in straightforward terms how CAT may be used with people with intellectual disabilities, and provide CAT tools adapted specifically for this client group. CAT and autism, CAT with people with intellectual disabilities in forensic settings and CAT with survivors of domestic abuse who have intellectual disabilities are also explored in detail. This is essential reading for any clinician wishing to use CAT with people with intellectual disabilities, including psychiatrists, psychologists, psychotherapists, social workers and support workers, as well as professionals across forensic services.Trade Review[This book] dissolve a division and steps into an unexpected richness where expressions labelled as 'difference' or 'disability' are witnessed compassionately, and looked at with shared curiosity and equality... It is moving as well as practical and engaging, and offers clear practical adaptations of CAT's working structure with many case illustrations and descriptions of adaptations of the CAT tools... I recommend all CAT therapists and other therapists to read this book. -- CAT, by Elizabeth Wilde McCormick, Psychotherapist and author * Journal of Association of Cognitive Analytic Therapy *The phrase 'I don't have the words' is often heard in therapy sessions as the therapist tries to attune to the client and their needs... Thus, the adapted tools of CAT can be helpful for any situation where the client and therapist are struggling to begin a conversation... This book has been long awaited and now the client's voice is beginning to be heard as the conversations commence. I can wholeheartedly recommend this book to anyone who seeks to learn more about CAT and how it can be used wherever words cannot be found or the conversation is faltering. -- from the foreword by Val Crowley, Consultant Psychologist and CAT PsychotherapistDuring the last thirty years we have witnessed a major change in provision of the psychological therapies for people who have intellectual disabilities (ID). Cognitive Analytic Therapy (CAT) became part of this process about fifteen years ago but very little has been published on it that was accessible to practitioners, families and service users. At last we have a detailed and accessible book which provides accounts of the development and use of CAT and guidance on its use with people who have intellectual disabilities. This book will inspire those who want to work therapeutically with people who have ID. It will open new doors as it will help to expand training and provision of therapists. It will demystify what CAT is and show how, with creativity, it can be made accessible to people who have ID and similar difficulties in a range of contexts. -- Professor Nigel Beail, South West Yorkshire Partnership NHS Foundation Trust & University of Sheffield, UKTable of ContentsDedication. Acknowledgements. Foreword by Val Crowley, Consultant Clinical Psychologist and CAT Psychotherapist. Part 1: Overview of Cognitive Analytic Therapy and People with Learning Disabilities. 1: Introduction. Julie Lloyd, Clinical Psychologist and Cognitive Analytic Therapist and Steve Potter, Psychotherapist, Coach, Trainer and Supervisor. 2. The Adaptation and Adoption of Tools in CAT for People who have a Learning Disability and their Carers. Philip Clayton, Cognitive Analytic Psychotherapist. 3. How CAT is being used in Services for People with Learning Disabilities. Julie Lloyd and Hilary Brown, Professor of Social Care, Canterbury Christ Church University, UK and Cognitive Analytic Psychotherapist. 4. Formulating and Working Therapeutically with the Concept of Learning Disability in the CAT Model. Jo Varela, CAT Practitioner and Consultant Clinical Psychologist. 5. Relational Intelligence. Steve Potter and Julie Lloyd. 6. The Helper's Dance. Steve Potter. 7. What Aspects of Intelligence are Needed to Understand the Concept of Reciprocal Roles? Julie Lloyd. Section 2 Using Cognitive Analytic Therapy in the Community. 8. The Problems of Caring and Being Cared For (or how to get your shoelaces tied for you). David Wilberforce, Lecturer at the University of Hull and the University of York, UK, and therapist and trainer in private practice. 9. Using CAT in a Systemic Context with Staff Teams: Reflections on the Process of Facilitating an Intervention. Helen Elford, Clinical Psychologist and Zoe Ball, Chartered Clinical Psychologist. 10. CAT and Behaviours that Challenge. Jo Varela. 11. Heroic or Stoic: Why do we try so hard, or give up so easily, in helping with severe autism? Julie Lloyd and Steve Potter. 12. What is the 2005 Mental Capacity Act and how can CAT help us to make sense of the decision-making process at its heart? Hilary Brown and Julie Lloyd. Section 3: Using Cognitive Analytic Therapy in Forensic Settings. 13. Behind the Mask: A Case Study of using CAT with a Woman with Learning Disabilities who Suffered Domestic Violence. Michelle Anwyl, CAT practitioner and Pamela Mount, Clinical Nurse Specialist, Psychological Treatment Service, North West Forensic Learning Disability Service. 14. CAT Integrated into a Therapeutic Community Approach. Philip Clayton and Simon Crowther, Clinical Psychologist. 15. A Group Approach: The Brooklands Offender Relationship Treatment Programme. Nicola Murphy, Senior Clinical Psychologist and Cognitive Analytic Therapist. 16. The Application of CAT both Therapeutically for Personality Disorder and Offending Behaviour, and Contextually within a Secure Service. Nicola Murphy. 17. CAT in Forensic Learning Disability Settings. Perry Morrison, Consultant Lead Clinical Psychologist, Forensic Learning Disability Service, Southern Health Foundation Trust. Afterword. Val Crowley, Phil Clayton, Julie Lloyd and David Wilberforce. The Editors. The Contributors. Glossary. Appendix I: The Psychotherapy File. Appendix II: The Psychotherapy File. Appendix III: The Psychotherapy File Adapted for People with Learning Disabilities. Appendix IV: Personality Structure Questionnaire. Appendix V: 1:1 CAT Care Plan with Nursing Staff. References. Index.

Read more less

Book SynopsisAutiPower! presents a series of candid interviews with adults on the autism spectrum that offers a unique insight into their work and life experiences. Through these inspiring accounts we hear of the many ways that people with autism have overcome challenges and used their autism traits for employment success.Despite his doctorate in Mathematics, Jaap struggled to keep many jobs before realizing that his intense attention to detail that was making him a slow worker became a strength once he learnt to set goals and communicate his progress. Wendy's autism is a big advantage as a special education teacher because she truly understands the children that she teaches. From software engineers, to company directors, to those who work in autism advocacy, the interviewees openly discuss the pitfalls and the positives of working life with autism. Also interviewed are autism professionals, career coaches and employers who discuss the value and great talents that people with autism bring to the workplace.Trade ReviewAutiPower! is like having lots of conversations with a whole bunch of interesting people involved either personally or professionally with autism. I learned many snippets of information all presented in a warm and personal format. I'd happily have a chat with any of these fascinating people! -- Sarah Hendrickx, Hendrickx Associates, freelance trainer, and consultant in autism spectrum conditions, author of several books on Asperger syndromeThe stories in this book provide real insight into how the autistic mind works. Readers will be encouraged and empowered by the many examples of resilience, perseverance and self-acceptance. -- Barbara Bissonnette, principal of Forward Motion Coaching and author of The Complete Guide to Getting a Job for People with Asperger's Syndrome and Asperger's Syndrome Workplace Survival GuideTable of ContentsIntroduction. 1. The Man Who Invented Himself. Jaap Brand. 2. The Woman Who Tries to Fend for Herself. Wendy Vinck. 3. 19. 'We Want Jobs'. Nita Jackson and Drew Miles. 4. 'We Need to Explain to Employers Where Profit Can be Made'. Annelies Spek. 5. 'Autism does Work'. Bram Barkhuysen. 6. Chicken Dish, prepared á l'Autiste. Ted and Thea de Laat. 7. 'I Can Make My Own Choices'. Robyn Steward. 8. The Interesting Experiment. Frank van Tiel. 9. 'We Need More Support' Maxine Aston. 10. About Trains, Comics and Cut-Backs. Elsbeth van de Ven. 11. 'Impossible Doesn't Exist, Impossible at This Moment Does'. Barbara de Leeuw. 12. 'If it is in my Interest, I will Tell'. Dominiek Heyvaart. 13. The Invisible Wheelchair. Karin Berman. 14. 'Let's Open Our Eyes'. Dirk Rombaut. 15. Society is Ready for It. Marcel Hurkens. 16. 'We Want to Be Ourselves!'. Carlo Post. 17. Survival in a Jungle of Information. Ben Kuijpers. 18. From Devil's Spawn to Philosopher. Jan Verhaegh. 19. 'Einstein had Asperger's, Didn't He?' Mark Ty-Wharton. Epilogue.

Read more less

Book SynopsisThis practical guide to effective public speaking for professionals with Asperger Syndrome (Autism Spectrum Disorder) provides tailored advice on using your Asperger strengths to your advantage and overcoming areas of challenge to find your public speaking voice.Written by a business leader with Asperger Syndrome, it includes guidance and hands-on tools for preparation, research and delivery of successful speeches and presentations. It addresses all the key areas that can cause particular difficulty for people with Asperger Syndrome such as coping with anxiety, interpreting the facial expressions of your audience, awareness of your own body language as projected to others, sensory overload issues caused by the speaking environment, and surviving post-speech networking and social events.Whether giving a presentation at a meeting, hosting a corporate event, or delivering an autism awareness speech, this book provides all the guidance that professionals with Asperger Syndrome need to master public speaking.Table of ContentsIntroduction. 1. I Don't Need to Speak Publically Right Now. So Why Worry About It? PART I: Getting Ready for Public Speaking - Before You Need to Do It. 2. Defining the Asperger Challenges and Strengths. 3 Types of Public Speaking. 4. Early Coping Strategies. Part II: Key Elements For Successful Public Speaking. 5. Developing Your Public Speaking Voice. 6. Acknowledging Others. 7. How Do Inspirational Speakers Suceed?. PART III: Preparing for a Public Speaking Engagement. 8. Researching Your Audience. 9. Researching Your Topic. 10. Preparation of Your Material. 11. Personal Preparation. 12. Practical Issues Before You Speak Publically. Part IV: Delivering Your Speech. 13. Engaging Your Audience. 14. The Importance of Post-Speech Socialising and Networking. 15. Managing Sensory Overload Issues After Your Speech. Part V: Practical Tools for People on the Autistic Spectrum Preparing for Public Speaking. References. Further Reading.

Read more less

Book SynopsisAdvocating for an increased emphasis on evidence-based practice, this book describes and analyses a wide range of available Autism Spectrum Disorder (ASD) assessment measures. The author offers guidance on how to evaluate services and programmes and how to recognise which will be most effective in different scenarios for people with differing needs. A wide range of measures are reviewed in detail, including assessments used in situations often ignored in overviews relevant to ASD, such as assessments of internet addiction, response to traumatic stress, and criminal offending risk and witness credibility. This book is an invaluable resource to professionals who support people with ASDs, including social workers and teachers, and who are under increasing pressure to reliably assess which services, programmes and therapies are effective and fit-for-purpose.Table of ContentsIntroduction. Part I. General Issues. 1.1. Why would you buy a book like this? 1.2. Evidence-Based Practice (EBP). 1.3. Why the emphasis on making practice 'Evidence-Based'? 1.4. A different path - Comparative Evaluation research (CER). 1.5. What if there is no good evidence? 1.6. What sort of evidence do we need? 1.7. Who needs help? 1.8. Understanding the different diagnostic systems and their differences. 1.9. Why are these so important to know about? 1.10. How common is ASD, what services are needed, and do we have the capacity to meet this need? 1.11. Are evidence-based strategies available with known outcomes that should be achieved by routine services? 1.12. Why are some approaches adopted and others ignored? 1.13. We need 'Practice-Based Evidence' for 'Evidence-Based Practice'. 1.14. Assessments for those with ASD. 1.15. Key Questions. Part II. Core Areas in ASD and Assessment. 2.1. Cognitive Ability / Intelligence. 2.2. Communication. 2.3. Motor skills. 2.4. Executive Functioning. 2.5. Central Coherence. 2.6. Working Memory. 2.7. Theory of Mind / Mentalizing. 2.8. Issues with Eating and Drinking. 2.9. Sleep Difficulties. 2.10. Independent Functioning and Vocational Skills. 2.11. Social Skills. 2.12. Quality of Life. Part III. Non-Core Assessments. 3.1. Neuropsychological Test Battery Assessments. 3.2. Attention. 3.3. Behavioural Issues. 3.4. Restricted and Repetitive Stereotyped Behaviour. 3.5. Attention-Deficit Hyperactivity Disorder. 3.6. Self-Injurious behaviours. 3.7. Sensory Problems. 3.8. Anxiety. 3.9. Depression. 3.10. Obsessionality. 3.11. Fears and Phobias. 3.12. Trauma and Post-Traumatic Distress. 3.13. Risk of Offending. 3.14. Internet Safety, Addiction, Hacking, Cyberbullying. 3.15. Bullying and Social Difficulties. 3.16. Physical Pain and Distress. 3.17. Affection, Friendship and Loneliness. 3.18. Happiness. 3.19. Parental Stress. Part IV. Overview. Part V. Conclusions. Tables. Figures. Abbreviation. Names and Terms. Appendix A. Developing a Personal Profile. Appendix B. Sources of Test Materials. Appendix C. Behavioural Assessment and Single-Case Analysis. Index.

Read more less

Book SynopsisA highly readable, insightful and sometimes humorous account of autism assessment, diagnosis and life with a 'label'. Eva was diagnosed with Asperger Syndrome (ASD) at age 11 and is now a fun-loving, sociable 16-year-old. This book, co-written with her mother, a speech and language therapist, discusses their reasons for seeking a diagnosis, the process of being assessed, their reactions to the news and the impact it has had on Eva's life. It also considers how diagnosis has helped them find strategies to lessen the challenges of living with an ASD.Concluding that it doesn't really matter whether the name for the set of traits that characterise autism changes or what it changes to, this life-affirming book shows diagnosis to be a positive and empowering experience. It will be helpful to any family embarking on the assessment process as well as professionals looking for insight into a family's diagnosis journey.Trade ReviewThe most valuable insights into human behavior and thought come from individuals brave enough to tell their own tale. In Diagnosis Asparagus, we are fortunate to hear two voices sharing their reaction to finding out young Eva Penrose has Asperger's syndrome (AS)... The first voice is Cathie O'Halloran, who shares both her objective perceptions as a speech and language therapist and her subjective feelings as the mother of her co-author, young Eva…Eva's very insightful thoughts follow her mother's prose at the end of each chapter, with smart and well-articulated observations that are incredibly perceptive and wholly honest…Cathie and Eva have shared their world beautifully, and in so doing, they have paved the way and padded the comfort zone for Asparagus people everywhere. -- Liane Holliday Willey, author of Pretending to be Normal: Living with Asperger's Syndrome, Safety Skills for Asperger Women, Asperger Syndrome in the Family, and Asperger Syndrome in Adolescence (ed)Diagnosis Asparagus is a window into the life of one family, their path to seeking an ASD diagnosis for daughter Eva, and the bearing that has on her teenage years. I am asked often whether I think a child should be told about their diagnosis, and know many parents are concerned about seeking a diagnosis. This friendly, informal book is a great place for them to start. Young people on the spectrum will also get a lot out of reading a book about another young person. Cathie, as a speech and language therapist, has knowledge and skills which are incredibly well put to use in this book for explaining the diagnostic criteria (both old and new) and what they look like in everyday life. -- Robyn Steward, consultant, trainer and author of The Independent Woman's Handbook for Super Safe Living on the Autistic SpectrumWritten by a mother reflecting on her daughter, Eva's, diagnosis of ASD, it is a narrative interspersed with psychological information and anecdotal insights by both Eva and her mother Cathie, a speech & language therapist.It is a short and relatively easy read but does impart important messages especially from Eva's point of view. It aims to explain the nuances of engaging successfully in school and home life from a non-neurotypical point of view... I enjoyed this book immensely and will be recommending it to parents of children with a recent 'Diagnosis Asparagus' and would suggest that teachers with an interest in understanding school from a non-neurotypical point of view would benefit from reading it. -- Emma Paramor, Executive Headteacher * SEBDA *Table of ContentsPreface. A Note on Terminology. 1. Getting the diagnosis or ' I'm an Asparagus but I'm not green' . 2. Deciding on assessment or ' They must be weird too'. 3. Going through an assessment or 'Gloriously gabbling on'. 4. Some details about diagnostic criteria or 'Why Harry Potter would tie a pair of knickers to Hedwig's leg'. 5. Social communication or 'So how was your day?'. 6. Social imagination or ' a perfectly good squirrel'. 7. Sensory preferences and other stuff or 'brace yourself for the bullet points'. 8. Repetitive behaviours or 'repetitive behaviours...repetitive behaviours....repetitive behaviours'. 9. AS in the family or ' being Pollyanna'. 10. Sharing the news or ' being an ally for Asperger's'. 11. Strategies that help or 'you have stepped unknowingly in a massive pile of poo'. 12. Asperger's Syndrome or 'I'm the last of my kind'. 13. The Present and the Future or ' not barking like a dog'. Index.

Read more less

Book SynopsisLuke Jackson's unabridged and sparkling sequel to his best-selling user guide to adolescence Freaks, Geeks and Asperger Syndrome is the must-read handbook for teenagers and young adults on the autism spectrum. With devastating clarity, Luke focuses on the pitfalls involved in navigating the transition to adulthood, and the challenges of adult life. He covers everything from bullying and drugs to socialising, sex, negotiating relationships, and finding and keeping your first job.Trade ReviewSex, Drugs and Asperger's Syndrome is one of my favorite books this year. Luke Jackson provides the reader with an in-depth understanding of many relevant issues regarding both Asperger's Syndrome as well as autism in general. This includes employment, bullying, sexuality, relationships, and much more. The autism community and society as a whole will benefit greatly from these much needed discussions. -- Stephen M. Edelson, Ph.D., Executive Director, Autism Research Institute (autism.com), San Diego, CaliforniaWith wisdom beyond his years and the mastery of an expressionist artist, Luke guides the reader through the rocky shoals of successful transition from adolescence to adulthood as a person on the autism spectrum. A straightforward, honest must read for anyone seeking greater understanding of the coming of age of the human soul, autistic or otherwise. -- Stephen Mark Shore, Ed.D., Clinical Assistant Professor of Special Education at Adelphi UniversityThis is a brilliant book. Luke writes beautifully, engagingly and with wisdom. There is nothing he shirks, it is all there, all the drugs, all the pitfalls of relationships, all the social gaffes and mistakes, all described with humour and without judgement. -- Jude Ragan * Autistica *Reading Sex, Drugs and Asperger's Syndrome feels like having a conversation with an older brother or cousin. He advises without preaching, explains without boring and throws in enough jokes to make the entire reading experience thoroughly enjoyable... From bullying to drugs, employment to nights out, and mental health to sex, it includes the entire spectrum of life without judgement, leaving no stone unturned and rendering no subject taboo... Powerful, honest, funny and friendly, Sex, Drugs and Asperger's Syndrome is a must-read -- Penny Gotch * Disability Now *Jackson wrote Freaks, Geeks and Asperger ­Syndrome: A User Guide to Adolescence at age 13. Now he returns at age 26 to share all that he has learned, both the good and the challenging, about becoming an adult, living with Asperger's, and finding his place in the world. With candid humor, the author shares his experiences in becoming an adult and what that means to him. He explores the difficulties he and many others with an autism spectrum disorder (ASD) deal with, such as finding work, social scenes, bullying, drug use, sexual relationships, and friendships. A consistent message throughout is the acceptance of differences in yourself and others. Jackson encourages those on the spectrum to embrace and own those qualities that make them unique and to use them to their advantage. VERDICT Jackson's personal and brutally honest take on being an adult with ASD is eye-opening and refreshing. A valuable read for teens and adults with ASD as well as parents, siblings, employers, teachers, caregivers, friends, and partners of those on the spectrum. Jackson's view that ­acceptance of oneself is the first hurdle; welcoming others is key as well -- Library JournalI enjoyed reading Luke's book immensely and will be recommending it to the majority of my teen/young adult counselling clients in the hope that it will go some way towards assisting them through the years of 'storm and strife' that accompanies this particular passage of time. Luke has managed to cover many facets of 'growing up', including dating and sex among other things. However, his book is not for the parent who wishes to keep their 15-year-old wrapped in a blanket of innocence, for Luke tells it 'how it is', with a no holds barred approach. Using correct descriptors for body parts and various sexual acts, there is an absence of euphemisms. Luke writes from an autobiographical perspective, not claiming to be an expert. What is clear though is that he is an 'expert by experience' and conveys his knowledge deftly like a wise old professor! -- Elaine Nicholson * Action for Asperger's *Table of Contents1. Introduction. 1.1. Meet the Family. 1.2. A Layman's Guide to Asperger's. 1.3. Sensory Issues and Autism. 2. Pitfalls of Adolescence and Beyond. 2.1. Under Pressure. 2.2. Spoken Peer Pressure. 2.3. Unspoken Peer Pressure. 2.4. Coping with it All. 3. Work and Education. 3.1. Further Education and the After School Club. 3.2. Higher Education, Whatever That Is. 4. Bullying. 4.1. ...And How It Still Happens. 4.2. Preventative Measures. 4.3. Confidence is Key. 5. Going Out and Staying In. 5.1. New Places and New Faces. 5.2. Staying In: The Calm After the Storm. 5.3. Upping Your Dating Game. 6. Sex and Relationships. 6.1. Big Dumb Sex. 6.2. Relationships and How to Cope. 7. Growing Up. 7.1. Out with the Old and In with the New. 7.2. Employment and Coping with Unemployment. 8. Final Thoughts. Further Reading. Index.

Read more less

Book SynopsisAdvocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection.Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.Trade ReviewYou must read Christine Bryden's book if you have any connection with dementia (and even if you do not, because at some point you will). Christine speaks to us elegantly and forcefully from that other "country" of dementia as one of its leading ambassadors. She humanizes this condition, and takes you along on her journey through this territory. No one can truly say that they "understand" dementia until finishing this stirring and totally candid volume. Do so - today. -- Cameron J. Camp, Ph.D., Director of Research, Center for Applied Research in Dementia, Ohio, USAChristine's journey as a dementia advocate is truly remarkable. This collection of talks and presentations demonstrates the incredible progress that has been made as a result of her determination to make the world a more inclusive place for people living with dementia. I thank Christine for telling her story to the world, and share her hope that this book will help make this dream a reality. -- Marc Wortmann, Executive Director, Alzheimer’s Disease InternationalDementia is not a concept, an idea or a diagnostic category. It is a meaningful human experience that occurs within the lives of people who have hopes, dreams and expectations that are not bound by the limitations of failing neurology. In this book, Christine Bryden offers some deep insights into why we need to re-think dementia. Drawing on her own powerful narrative, she offers a way of re-narrating dementia which takes seriously the neurological, but refuses to be defined or reduced to it. As one reflects on the narratives and reflections presented within this book one is inevitably transformed, both in terms of one's thinking about dementia, but more profoundly in terms of realising the breadth and depth of what it actually means to be a human being and to live humanly in all circumstances. -- Professor John Swinton, Chair in Divinity and Religious Studies, University of Aberdeen, and author of ‘Dementia: Living in the Memories of God’Christine Bryden chronicles her two-decade journey living with a diagnosis of dementia, exploding myths and stereotypes along the way. Even in the face of cognitive struggles, Christine embodies personal growth, sharing her insights about the lived experience of dementia. Her inspirational journey of advocacy has evolved to co-founding an international movement on behalf of people who share the diagnosis, and more recently taking on traditional models of care and the need for inclusive communities. I can't wait for the next twenty years! -- G. Allen Power, MD, author of ‘Dementia Beyond Drugs’ and ‘Dementia Beyond Disease’Nothing About Us, Without Us! demonstrates powerfully that persons with dementia remain persons in the most fundamentally important ways. Christine Bryden, living with dementia for two decades, expertly teaches what helps and what hinders people diagnosed and communicates beautifully why the Golden Rule should be applied regardless of one's medical condition. The book will educate people with dementia, care partners, lay people, and professionals. -- Steven R. Sabat, PhD, Professor of Psychology, Georgetown University, author of ‘The Experience of Alzheimer’s Disease’ and co-editor of ‘Dementia: Mind, Meaning, and the Person’Christine Bryden speaks and writes with the conviction gained through her experiences of living with and challenging this disease over two decades, since diagnosis. Issues of stigma, care, hope and ways of living effectively with dementia are just some of the important topics she addresses. This collection of talks with slides will form a valuable resource for many: for people who have dementia, for their families, for care providers, and certainly for the wider community. -- Elizabeth MacKinlay, Centre for Ageing and Pastoral Studies, St Mark's National Theological Centre, School of Theology, Charles Sturt University, AustraliaDementia is the public health issue of the 21st Century. It is the second leading cause of death in Australia, and, in a few short years, will be the leading cause of death of women. Nothing About Us, Without Us! questions our automatic responses to dementia, providing a much-needed voice offering inspiration to those who feel "the curse of the pointing-bone of diagnosis". Through personal experience, Christine Bryden identifies misconceptions and prejudices in the way we view and treat people with dementia. People facing a future with dementia will find in this book, an intelligent, positive and authentic voice. -- James Vickers, Professor of Pathology, University of Tasmania and Chair of the Scientific Panel of the Alzheimer’s Australia Dementia Research FoundationChristine Bryden is an inspirational teacher. In this book she takes us through lessons that are deeply honest and simply put, coming from her lived experience and her breathtaking emotional intelligence. This should be compulsory reading for all professionals, people living with dementia and families affected by dementia. There is no us and them. There is only us. -- Professor Dawn Brooker, Director of the Association for Dementia Studies, University of Worcester, UK and author of 'Person-Centred Dementia Care'Christine Bryden, a person of great strength, a survivor with an indestructible spirit, a person living with dementia, invites us to "aspire to a new paradigm of dementia survival with dignity". The book is a chronicle of her life as an advocate who fights each day to retain her dignity and that of all people living with dementia. It is a testament of her consuming passion, to never let go, search for what remains and use it to the maximum. A compelling book for those who seek to better understand what it is like to walk in the shoes of a person with dementia. -- Frank J Schaper, Former CEO of Alzheimer’s Australia WA Ltd, Alzheimer’s Disease International Ambassador and Visiting Fellow of Queensland University of TechnologyTable of ContentsIntroduction. 1. Dementia diagnosis - pointing the bone. 2. Diagnosis, drugs and determination. 3. Insider's view of dementia. 4. Dementia diagnosis from an 'insider's' perspective. 5. Dancing with dementia. 6.Nothing about us, without us! 7. A bumpy ride. 8. The support that I need. 9. Stigma and fear. 10. I'm still here! 11. Coming out of the shadow. 12. A decade of change. 13. Lisa and I. 14. Dementia prison. 15. Living life to the full. 16. Mind your language - getting it right! 17. There has to be a better way! 18. Come dance with me! 19. Dementia - an interesting ride! 20. Who was I? Who am I now? Who will I be when I die? 21. Pastoral care of people with dementia.

Read more less

Book Synopsis"I knew this guy was out of the square. He was so far out, he was in the hexagonal prism that was past the triangle next to the square."When the author met her future husband, she was instantly charmed by his intensity, wacky conversation choices, and innate desire to create peculiar names. Seventeen years, one wedding, one baby and several adopted names later, it began to dawn on 'Herscue' that family jokes about her husband having Asperger's Syndrome may be closer to the truth than she had first imagined. Filled with moving and hilarious tales, one of which provides the origins of the author and her husband's adopted names, Herscue and Jomphrey, and their even stranger pronunciations, this personal account grapples with the highs and lows of a 25 year marriage to an Aspie husband.Trade ReviewWhen Herscue Met Jomphrey is a quirky, delightful, sometimes painful, darkly humorous account of a neurodiverse marriage. Narrating what it's like to live with an idiosyncratic Aspie husband, with unparalleled precision, insight and perfect timing, the book reads like the material of a standup comic! As entertaining as a popular novel, with the bittersweet pathos of film noir, I can imagine Aspies and their partners over the world knowingly nodding their heads. Clinicians alike would gain a deeper understanding of what really goes on inside a marriage where one person has Asperger's Syndrome. -- Eva Mendes, Asperger/autism specialist, couples counselor, and author of 'Marriage and Lasting Relationships with Asperger’s Syndrome: Successful Strategies for Couples and Counselors'The tale of Herscue and Jomphrey is not a tale of woe. It is a tale of hope, patience and commitment. Reading this book made me laugh, hold my breath in disbelief and nod my head in agreement. Bergenstreiml tells the story of her marriage to a very different and highly intelligent man with Asperger Syndrome. Their story is unique and unlike any that I have read; it is a joy to be able to share it with them. A must-have read for anyone seeking to develop a better understanding of AS/NT relationships. -- Maxine Aston, counsellor, supervisor and author of 'The Other Half of Asperger Syndrome (Autism Spectrum Disorder)'Table of ContentsPreface. 1. Introduction How to Catch an Aspie: A Fishing Tale. 2. The Glove that Fits: A Tale of Aspie Courting. 3. The Naming of Herscue and Jomphrey: A Tale of Baptism. 4. An Aspie Emerges: A Tale of Cracks. 5. An Aspie Diagnosis: A Tale of a Room Elephant. 6. The Man Who Times Forgot: A Tales of Aspie Navigation. 7. Aspie Organisation: A Tale of Filling the Boxes. 8. Rituals and Routines: A Tale of the Compulsive, the Disturbing and the Bizarre. 9. Sensory Integration: A Tale of Aspie Calibration. 10. A Touch of Tourette's: A Tales of Aspie Sound Seeking. 11. A Cast of Thousands: A Tale of Aspie Identity Crisis. 12. Tennis for One: A Tale of Aspie Communication. 13. Aspie Expectations: A Tale of Walls and Broken Pedestals. 14. 'In-to-me-you-see': A Tale of Aspie Bedtime Shenanigans. 15. The Twitch: A Tale of Near Aspie Murder. 16. Jomphrey and Humphrey: Tales of an Aspie Father. 17. One Foot In and One Foot Out: A Tale of Aspie Hokey Pokey. 18. Aspie Transitions: Tales from a Tardis. 19. Four Seasons in One Day: A Tale of Aspie Feelings. 20. There She Blows: A Tale of Battening down the Hatches. 21. An Asperger's and Coke Please: A Tale of Substance Use. 22. Holding back the Floodgates: A Tale of Aspie Armour. 23. My Aspie Vulnerability: A Tale of a Hole and a Plug. 24. Living Beyond the Bell Curve: A Tale of Mourning. 25. Getting the Aspie off my Chest: A Tale of Head Banging and Patch-working. 26. Gifts from an Aspie: A Tale of Silver Linings.

Read more less

Book SynopsisWritten by and for teens and young adults with Nonverbal Learning Disabilities (NLD), as well as for their parents, teachers, therapists, and others who care about them, and backed by the latest neuropsychological research, NLD from the Inside Out offers hundreds of useful tips on: - Organization and planning, including study skills- How to successfully navigate the transition from dependent child to independent adult - Creating more harmonious family and peer relationships- Changing disabling attitudes. The book will help teens and young adults to avoid the angst and pitfalls often associated with NLD. More than that, it offers real stories from now-thriving young adults who grew up with NLD - proof that a full and rewarding life lies ahead for those who are now struggling.Trade ReviewNLD From The Inside Out fully explains Nonverbal Learning Disability to anyone who has that diagnosis or who wants to understand it better. Michael Brian Murphy offers practical advice and strategies for school, relationships, and life after graduation. He writes with an authentic voice about a diagnosis that he shares with many other teens and adults. This inside look at NLD contains wisdom, clarity, and humor that will inspire those with NLD, as well as parents, teachers, and therapists. -- Judith Canty Graves and Carson Graves, co-authors of Parents Have The Power To Make Special Education WorkThis book will be an eye-opener for teachers, parents, and other interested readers. No doubt many will realize, "Ahhh, now I understand..." and, hopefully, that understanding will contribute to the success of children and adults with NLD. It's also a valuable resource for young people with NLD: real-life voices, experiences, and common sense. As the parent of an adult child with disabilities, I've learned that the true experts in the field are people with disabilities; Mr. Murphy's book ably demonstrates that fact. Bravo! -- Kathie Snow, Author of Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities (www.disablityisnatural.com)Of all the valuable information to be found in this work, as a therapist, I particularly recommend the chapter on 'What we want therapists and counsellors to know.' If you have NLD or know someone who is seeking support from a therapist, you will find it worthwhile to follow Murphy's suggestions and caveats. It is essential that the therapist to whom you turn be exceptionally knowledgeable about the disorder and be competent to provide the guidance that will help you overcome the distresses this disorder may cause you. -- Joseph Palombo, Director, The Joseph Palombo Center for Neuroscience and Psychoanalytic Social WorkTable of ContentsAcknowledgements. Disclaimer. Foreword. Preface to the Third Edition. Introduction. Part I: What is NLD?. 1. What is NLD?. 2. A Short History of NLD. 3. Diagnosing NLD. Part II: The NLD Brain. 4. Understanding Your NLD Brain. 5. Sensory Sensitivities and the NLD Brain. 6. Social Cues and the NLD Brain. 7. Executive Functioning and the NLD Brain. 8. NLD and Academics. Part III: What We Want You to Know. 9. What We Want Therapists and Guidance Counselors to Know. 10. What We Want Teachers and School Administrators to Know. 11. Talking to Parents About NLD. Part IV: Preparing for a Successful Life. 12. Preparing for Academic Success. 13. NLD, Friendships and Dating. 14. Life After High School. 15. It's a Wonderful Life - Even with NLD. Part V: The Big Questions. 16. The Politics of NLD.

Read more less