Coping with / advice about physical impairments / disability Books

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Book SynopsisMeet Jess, aka Touretteshero. Jess has Tourettes Syndrome.Welcome to Biscuit Land is a witty yet stirring first-hand account of dealing with the daily difficulties of Tourettes - a neurological disorder characterized by physical and verbal tics. Jess Thom shares a year of her life, detailing the entire spectrum of her experiences. From arm and leg tics that can occasionally be life-threatening to uncontrollable verbal outburst - she says the word 'biscuit' an average of 16 times per minute - Jess manages with the support of a close network of friends and family, as well as encountering strangers who can be unpredictably helpful and harmful.At once funny and shocking, tender and moving, this memoir provides a courageous and optimistic voice in the face of the major challenges, leaving readers with an inspiring message of resilience.

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Book SynopsisThe honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child''s success. Over and over, parents are being asked to reinvent the exact same wheels.According to the CDC, Every 4 minutes a baby is born with a birth defect in the United States. That''s 1 in 33. There''s no handbook for how to do this. Until now.Presented with empathy and humour, Everything No One Tells You About Parenting a Disabled Child: Your Guide to t

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Book Synopsis''Whenever I see Martino I am reminded of how little I know about life and death compared to him. How we don''t know what is within us or what may lie on the other side. I hope it''s as magical and beautiful as this book.'' RUSSELL BRAND''Raw, brave, heart-lifting.'' STEF PENNY, author of UNDER THE POLE STARWhen film producer Martino Sclavi began experiencing intense headaches, he attributed them to his frenetic lifestyle. As it turned out, he had grade 4 brain cancer and was given 18 months to live. After undergoing brain surgery - while awake - Martino found he had lost the ability to recognise words. His response was to close his eyes and begin to move his fingers across the keyboard to write this, an account of life before diagnosis and since. Martino defied all predictions, words read out to him by the monotone of a computerised voice he calls Alex. Learning to live in a new way. This book - that he has written but could not

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Book SynopsisWHEELS OF COURAGE reveals the never-before-told story of the world's first wheelchair athletes: U.S. soldiers, sailors, and Marines who were paralysed on the battlefield during World War II. They organised the first-ever wheelchair basketball teams within V.A. hospitals after the war, which quickly spread across the nation and changed the perception and treatment of disabled people. The book tells this story through the lens of three of these vets, describing their time in the military, their injuries, their recovery, and their role in creating wheelchair basketball. These men changed the narrative of disability, from pity for people whose lives were over to seeing them as capable people who happened to have a disability. Their doctors changed the way the medical community looked at and treated disabled patients by treating the whole patient instead of just trying to make the patient as comfortable as possible in a hopeless situation. And laws started changing to make the world more accessible to the disabled -- things we take for granted today, like sidewalk ramps. For the disabled, for sports fans, for veterans, for history buffs -- this is a narrative of hope, perseverance, and acceptance.

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Book SynopsisGiven the daily challenges of raising a child with autism, it’s easy for parents to lose themselves and for their overall quality of life to plummet. Susan Senator interweaves the voices of autism parents, researchers, and professionals to offer guidance and encouragement on how to find happiness and fulfillment in the midst of the struggles of raising an autistic child. Topics include: how to handle feelings of despair and hopelessness; finding fun, even during turbulent times; caring for your marriage; and finding a balance between accepting your child as he or she is and seeking new treatments. To learn  more about the author, visit her website at susansenator.com.

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Book SynopsisAt seventeen, Barbara’s daughter Jennifer is in a horrific car accident and sustains a traumatic brain injury that sends her into a two-week coma. Once she awakens, a unique disability presents itself: Jenn lacks any traditional method of communication. Unable to speak or function on her own, Jenn must relearn basic life skills in a rehabilitation facility while Barbara and her family struggle to piece together their lives, now forever changed.When it becomes clear that Barbara and her husband cannot care for Jenn on their own, they move her to a group home. Over time, three creative, lighthearted women become Jenn’s caregivers, and with their support Jenn reenters the community and experiences travel and adventure, all while capturing the hearts of those around her with her engaging and quirky personality.Despite her disability, Jenn connects with everyone in her life. And Barbara ultimately realizes that Jenn’s lack of language doesn’t stop her from having a voice. A touching memoir that strikes a delicate balance between sorrow and joy, heartbreak and triumph, More Than You Can See is Barbara’s story of moving beyond tragedy and discovering profound and fulfilling life lessons waiting for her on the other side.Trade Review“An affecting story of how a young woman’s traumatic brain injury took away her language but not her joy.”—Kirkus Reviews“This is a must-read memoir that will make you rediscover the strength of family.”—Readers’ Favorite “In this heartrending and deeply authentic emotional journey, a mother reveals inspiring creativity to help her profoundly injured daughter to live fully and with joy. Jenn Rubin brought whole communities together in love and compassion through the bright, glowing spark of her life force. This book is perfect not only for parents who want to learn from Barbara’s journey as a mother but also for all of us who need to be reminded that life is a gift and it’s up to us to cherish and celebrate every moment.”—Linda Joy Myers, president of the National Association of Memoir Writers and author of four books on memoir“This book will help readers understand the complexities of recovering from a traumatic brain injury and the healing that comes with time, patience, and endurance. The author weaves her story around the unique caregiving required for her daughter, who lacks any form of communication after her injury. Through laughter, tears, heartbreak, and triumph, the author translates the lessons she learned into a narrative that touches the heart and deepens the respect for survivors of TBI and what they have to teach us.”—Susan H. Connors, President/CEO, Brain Injury Association of America

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Book Synopsis"Are you beginning to see past the disability and starting to appreciate the gift?"In this unashamedly honest book, David J. Burns draws on his own lived experience of Autism Spectrum Disorder (ASD) to provide guidance on how to take advantage of the supposed disadvantage. The book is filled with often hilarious anecdotes, spanning the confusion of his early diagnosis, to his marriage and life with his four children, as David proffers his advice on how to cope with everything from school work to flirting. Part memoir, part guide, and written with a refreshingly funny outlook, this book can be picked up and dipped into whether you're looking for encouragement, practical coping strategies, or a perspective of life as seen through the lens of ASD.Trade ReviewDown-to-earth, funny and, above all, encouraging. -- Uta Frith, Emeritus Professor of Cognitive Development at UCLDo Lemons have Feathers? is an astonishing read; the insights David has and the extraordinary humour he injects into his writing make for a superb book that will entertain and educate simultaneously. If you have any interest in learning about autism from an individual perspective, or simply want to read a fascinating account of life as an autistic person, then this is the book for you. -- Dr Luke Beardon, The Autism Centre, Sheffield Hallam UniversityTable of ContentsAcknowledgements. Foreword by Andrew Sercombe. 1. Do Lemons Have Feathers?. 2. It's Not What I Planned. 3. The Angst of School Days. 4. University Challenge. 5. I Owe, I Owe, It's Off to Work I Go. 6. The Social Calendar. 7. A Shot in the Dark. 8. The Escape Plan. 9. The Ability to Fly. 10. Getting Through the Tough Stuff of Change. 11. Love, Sweet Love. 12. The World Needs Autism. 13. All It Takes Is A Little Bit of... Faith. 14. Help Sheets. 15. Can You Help?. About the Author.

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Book SynopsisAdults with Autism Spectrum Conditions (ASC) or a suspected diagnosis often have hidden needs that go unmet by public services. This book describes and analyses the Kent ASC enablement approach, a short-term intervention led by occupational therapy to promote people with ASC becoming more self-aware and self-sufficient outside of public services.Designed to teach adults with ASC strategies for controlling their sensory, motor-processing and social-communication needs and preferences, this person-centred approach gives them greater self-management over their lives. The book also provides an overview of a range of both professional and self-help tools and technologies which can be used by adults with ASC to increase independence and wellbeing. Case-studies demonstrate the transformative effects of enablement on daily life for adults with ASC. The book also provides recommendation for building on the enablement approach.Trade ReviewAn excellent read providing visionary insight into the potential that can be achieved via an enablement service for people with autism. The work will provide an excellent model for anyone wishing to enhance the interventions and outcomes for people on the autistic spectrum. -- Jane Miller, County Manager Occupational Therapy and Reablement, Kent County CouncilWith its unique combination of research data and illustrative case examples Autism and Enablement is a rich source of information and inspiration for everyone (not only occupational therapists, also other professionals, parents and even policy makers) looking for ways to increase the independence, relatedness and competence of young adults with autism. -- Peter Vermeulen, Autism Consultant and Lecturer at Autisme Centraal, BelgiumTable of ContentsIntroduction. 1. Understanding Autistic Spectrum Conditions and the Impact upon the Individual. 2. Identifying the Need for an ASC Enablement Approach. 3. An Occupational Therapy-led Enablement Approach. 4. Specialist ASC Enablement Research Results and Analysis. 5. Research Objectives Analysis, Key Learning and Recommendations. Final Comments. Bibliography.

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Book SynopsisThe A to Z of ASDs is a one-stop shop for adults on the autism spectrum in the form of an alphabetical guide to an array of challenging topics. From anxiety to zen meditation, compassion to self-esteem, dating to socializing (and everything in between), Aunt Aspie's wisdom and witty one-liners offer helpful advice for serious subjects. With tried-and-tested tips, Aunt Aspie shares some of the tough life lessons she's learnt so you can avoid making the same mistakes, and make informed choices on the issues that matter.Sometimes philosophical, often light-hearted and always informative, the practical information in this book will help you to navigate tricky life issues, and enable you to think through the more challenging questions facing people with ASDs.Trade ReviewAunt Aspie brings her refreshingly candid and sharp wit to words that provide life-changing advice in The A-Z of ASDs by Rudy Simone. Love it! -- Liane Holliday Willey, author of Pretending to be Normal and Safety Skills for Asperger WomenFrom A to Z, Aunt Aspie's advice will help you to evolve in a challenging world without stifling your differences. Aunt Aspie is the wise, gentle and understanding character every person with autism should have not far from their bedside table. -- Hugo Horiot, author, France...Whether you are on the autism spectrum or someone you know is or even if no one you know is and you just like learning about new things this is a great read. -- Vexing Circumstance blogTable of ContentsAcknowledgements. Introduction. 1. A. 2. B. 3. C. 4. D. 5. E. 6. F. 7. G. 8. H. 9. I. 10. J. 11. K. 12. L. 13. M. 14. N. 15. O. 16. P. 17. Q. 18. R. 19. S. 20. T. 21. U. 22. V. 23. W. 24. Y. 25. Z. References. Author Contact.

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Book SynopsisAddressing the often hidden, yet not uncommon, behaviour of faecal smearing among children and adults with autism and developmental and intellectual disabilities, this practical handbook shows how to tackle this often embarrassing and difficult issue in a positive way.Informing parents and caregivers of the many causes of smearing, the author offers tried-and-tested, everyday approaches for managing this behaviour. This supportive guidebook includes down-to-earth advice, helpful picture narratives, examples of how to prepare and use diary sheets for behaviour analysis, and practical exercises that can be carried out at home. There is also advice on what to do if a child ingests faeces, and dealing with persistent or recurring smearing. With a focus on positive low-arousal responses and featuring the voices of parents who have experience of their child's smearing, families will feel supported and confident in identifying the causes of smearing, and be able to choose and carry out appropriate preventative approaches. This will also be a useful resource for professionals who encounter smearing behaviour, including social workers and SEN and teaching staff.Trade ReviewThis book will help with understanding a condition that is distressing and challenging for both carers and professionals. It explores the underlying causes and gives practical approaches for help.Smearing is a topic that is rarely addressed, and this book will help to promote discussion and knowledge. -- Eve Fleming, Community PaediatricianTable of ContentsIntroduction. 1. What is smearing? 2. Causes of smearing. 3. How to manage smearing. 4. Eating faeces. 5. Recurrence of smearing and/or ingesting faeces. Appendices. References.

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Book SynopsisThe prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood.Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.Trade ReviewThis book will support young people with DMD and their families to find solutions ahead of problems, so that they can transition into adulthood with the best support possible, and make the most of all opportunities. -- Tyran Hawthorn, Trustee of DMD PathfindersThere is much to recommend this wide-ranging reference for the DMD community - from the importance of phonics mastery to job seeking. -- Deborah Robins, parent and Muscular Dystrophy Queensland AmbassadorThis truly is a go-to guide; written in such a clear format and with the breadth of important aspects of living with Duchenne. Following from Action Duchenne's learning and behavioural toolkit, this will prove an invaluable resource to the community and complements the forthcoming updated standard of care guidelines. Very positive and inspirational, a must read for all. -- Diana Ribeiro, Chief Executive Officer and Director of Research, Action DuchenneThis inspirational book goes 'above and beyond' the journey of the physical and medical challenges associated with Duchenne Muscular Dystrophy (DMD). Case studies that will touch your soul but inspire your heart. Offering refreshing, crisp, deeper perspectives supporting parents, teachers and clinicians; to focus on the individual person and not just their condition on their road to adulthood. -- Christopher Wilson, Deputy Head Teacher, Wilson Stuart School (Special Academy for young people with physical disabilities and complex medical needs)With medical interventions, boys with Duchenne are living into adult years. Traditionally, social and educational expectations have been lacking. This book will challenge your expectations as a parent or teacher. Encompassing neuro-developmental disorders associated with Duchenne, this book offers developmental recommendations for interventions, and empowers parents to successfully support boys into adulthood. -- Michelle Pomeroy, Developmental Educator and mother of a boy with DuchenneThis book is long overdue and will be a welcome resource for parents, caregivers, teachers and patients with Duchenne Muscular Dystrophy. It provides a compass with which to navigate the world of Duchenne Muscular Dystrophy, giving patients and caregivers the tools they need to manage the emotional, behavioural and learning challenges that sit alongside the physical realities of DMD. I found the chapter on talking to your children especially helpful, as I am very often asked by families when is the "right time" to tell their children. This books shows that although there is no right time, there are ways of addressing these unbelievably difficult conversations that will help. And there is lots else in the book to give parents the hope that their children can shoot for the stars and create as Dr Jon Hastie so movingly describes, a "fantastic life". -- Emily Crossley, Co-Founder and Co-CEO, Duchenne UK and Mum to Eli with DMDOur son, Fraser, is 17 and has DMD and ASD. He also has specific learning difficulties associated with DMD. I am sure that both parents and professionals would benefit greatly from this book. Many professionals who worked with Fraser in his early years, especially in mainstream educational settings, would have gained much from it. DMD is a rare condition and add to that the complications of behavioural and learning difficulties and there are few who have the skills and/or the will to go beyond the standard interventions. If they had had access to straightforward information about the issues and guidance on how to address them many difficulties would have been avoided. The book is a "go to" source of information, inspiration and signposting and will encourage parents to be more creative and assertive in trying to ensure their children have good lives. -- Julia Carr, GatesheadThis book gives an excellent overview of DMD and provides a very valuable guide to the journey made for both parents and professionals. It has concise easy-to-read details on the complexities that come with DMD and practical tips. I particularly enjoyed reading about the inspirational adults with DMD and would highly recommend this book to all affected by Duchenne. -- Claire Bosanquet, parent to two sons with DMDThe practical guidance included in this book, with chapters on behaviour, EHC plans, transitioning to adulthood and work, will be invaluable to all parents, educators and health professionals supporting a young person with DMD. It's a must read which you will return to again and again. -- Claire Binns, SENCO, Frederick Bremer School, WalthamstowThis book is an accessible and actionable study looking at the lesser known barriers to learning and behaviour that young people with DMD experience. It guides teachers and parents to explore how starting early, self-determination, wellbeing and aspiration really matter, not just the focus on physical health. Essential reading for anyone involved in developing aspirations for young people with DMD. -- Margaret Mulholland, Director of Development and Research, Swiss Cottage School Development and Research CentreTable of Contents1. Introduction: DMD in a New Landscape. Janet Hoskin. 2. Why Do Some Children with DMD Have Learning and Behaviour Difficulties? Kate Maresh and Francesco Muntoni. 3. What are the Learning and Behaviour Risks in DMD? Veronica Hinton. 4. The Physical Management of DMD in School, College and Beyond. Lianne Abbott and Victoria Selby. 5. Early Intervention for Reading and Learning. Janet Hoskin. 6. Behavior Solutions in DMD. James Poysky. 7. How to Talk to Children about DMD. David Schonfeld. 8. Having a Road Map for Life - Creating an Education, Health and Care Plan for Duchenne Muscular Dystrophy. Nick Catlin. 9. Taking Charge of Transition. Janet Hoskin and Celine Barry. 10. Getting the Life You Want as an Adult with DMD. Jon Hastie and Mark Chapman.

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Book SynopsisDyslexia won't stop you from writing your own success story.Discover the ten key traits which people with dyslexia have harnessed in order to reach success and self-fulfilment. Dyslexia brings both challenges and the potential gift of a unique skill set - through a combination of academic research and case studies, this book shows how you can use all of this to your advantage. From increasing your self-esteem to imaginative problem solving, each of the ten secrets to success is explained and brought to life through interviews with accomplished people describing how they have profited from a single star characteristic in realizing their goals.Approach the obstacles of dyslexia pro-actively, and unlock your potential with this inspiring step by step guide.Royalties from the sale of this book will be donated to the British Dyslexia Association.Trade ReviewThis is an interesting and insightful book which has been well researched and includes relevant case studies to illustrate key traits for the successful dyslexic. My own struggle with undiagnosed dyslexia at school certainly made me more determined and this has played an integral role in my achievements and success. -- Alais Winton, author of The Self Help Guide for Teens with Dyslexia and private tutor for young dyslexicsThis book provides a 'road map' for the 10% of the world's population who experience some degree of dyslexia, to help them fulfil their true potential. So have courage, be inspired, harness your energies and build positive strategies. The world needs the strengths and talents that dyslexic individuals can bring. -- Dr. Kate Saunders, C.E.O., British Dyslexia AssociationAn inspiring and really practical book, well written by someone who clearly has the expertise and experience of working with many wonderful people with dyslexia. This book is for anyone wanting examples of how talent, perseverance and commitment can lead to great success. -- Professor Amanda Kirby, Chair in Developmental Disorders at University of South Wales and author of How to Succeed in employment with specific learning difficultiesThis book contains fascinating information for people with dyslexia and anyone interested in helping them to achieve. Margaret Malpas makes it clear that high grades at school are not the only route to a fulfilling life, with detail on the significance of determination, rapport, listening skills and creativity. She even explains how procrastination can be useful. There are some truly inspiring nuggets in here to inspire and encourage, plus handy summaries for those not wanting to read it all at once. -- Margaret Rooke, author of Creative, Successful, Dyslexic: 23 High Achievers Share Their StoriesTable of ContentsPreface. 1. You must have determination. 2. You must have self-esteem. 3. You must have passion. 4. You need to find your niche. 5. You need to use your atypical problem-solving skills. 6. You need to make the most of your creativity. 7. You need to go with your empathy. 8. You need to use your verbal influencing skills. 9. You need to make effective, fluent use of coping strategies. 10. Family and mentors' assistance really matters. 11. To be self-fulfilled you have to find a balance. Appendix A. Research Questionnaire into Issues for Adults with Dyslexia/Sp.L.D. Appendix B. Notes on dyslexia and related conditions. Bibliography.

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Book SynopsisFor those growing up with an intellectual disability or autism, comfortable, safe and independent travel will prove an invaluable life skill. The key to pursuing fulfilling work and leisure activities and developing as an individual, it also brings a liberating level of self-sufficiency and reassurance of equality within society.Arriving at this goal can be daunting. Dr Gallimore's straightforward five-step system will guide parents and professionals through successful training for children of any age and ability. Focusing on understanding each child's individual goals and challenges, it gives you the 'ingredients' needed to fully prepare for each journey in advance, and shows how to judge when to step back and let the child progress alone. Addressing specific fears and obstacles that make travel difficult for children with learning difficulties, it sets out all the precautions necessary to safeguard children and others as they learn to reach their chosen destinations. Clear-cut and far-reaching, this book is enriched by Dr Gallimore's extensive experience as a psychologist, mobility specialist and travel-trainer. It is a heartening resource and will be necessary reading for anyone working with a child to get them on their path to independent travel.Trade ReviewDesirée Gallimore's well-structured lockstep 'bible' on travel-training will go a long way to alleviating the valid concerns and fears that plague families and carers when considering independent travel for people with a disability. She skilfully debunks many of the myths associated with independent travel whilst stressing the fact that it is a life changing/door opening event for people of all ages. This is an important and highly recommended book for all concerned with maximising the independence of every person with a disability. -- Eileen Lyons, Department of Education, Transition to Post School for Students with Disabilities, Northern SydneyIn this excellent volume Dr. Desirée Gallimore gives the reader the understanding and confidence to teach students safe and independent travel. The book engagingly balances great expertise with solid common sense applied to a vitally important topic. Congratulations to author and publisher for producing a winner! -- Dr. Michael Farrell, private consultant in special education and author of Educating Special Students (3rd edition)This book is must-read for everyone who provides travel instruction! An expert instructor describes the specialized teaching strategies and sequence of instruction she has used for decades. The case studies show how the crucial elements of an effective training program yield success. I recommend this invaluable resource to all of my colleagues. -- Bonnie Dodson-Burk, Certified Orientation & Mobility Specialist, Pittsburgh Public SchoolsTable of ContentsForeword. Preface. Acknowledgements. About the author. Introduction. Part One: Travel-Training - The Essentials. 1. A life priority: Safe & independent travel. 2. How to achieve safe and independent travel. Part Two: Travel-Training - The Ingredients. 3. Establishing the travel-training goal. 4. Planning and teaching a travel route. Part Three: Travel-Training - Important Considerations. 5. Techniques for Travel-Training. 6. Environmental Factors. 7. Road Crossing. 8. Other Very Important Travel-Training Skills. 9. Travel-Training in Schools with Student Groups with Disabilities. 10. Travel-Training Case Studies. 11. Appendices. 12. Index.

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Book SynopsisTelling your child about their autism diagnosis can be daunting. Will they be better off for knowing? What's the right way to tell them? Should you inform anyone else too?As a mother of two children on the spectrum, with over ten years' experience as a psychologist specialising in childhood autism, Raelene Dundon has all the tips you'll need. In this concise book, she sets out case studies, examples and resources that will equip you to make your own informed choices and help your whole family to live well with autism. Part One provides ways to tell children of different ages and development levels about their diagnosis, including photocopiable and downloadable worksheets designed to help diagnosed children understand autism, and gives advice on what to do if they react in a negative or unexpected way to the news. Part Two explores the pros and cons of sharing the diagnosis with others, including family, friends, school staff and your child's classmates, and guides you through what to do if others don't understand or accept the diagnosis.Trade ReviewA fantastic, comprehensive resource that answers the vast range of questions that parents can have about this important topic. All is sensitively and clearly explained, with real life scenarios, easy to use worksheets and troubleshooting for every eventuality. Highly recommended. -- Davida Hartman, Director and Senior Educational and Child Psychologist, The Children's Clinic, DublinTable of ContentsAcknowledgements. Preface. Part One - Talking to your child about their autism diagnosis. 1. Are you ready for 'the autism talk'? 2. What do you know about autism? Fact vs fiction. 3. Why tell your child they have autism? 4. When is the right time to talk to your child? 5. How do you tell your child they have autism? 6. What do you tell your child? 7. A personal journey. 8. The autism talk. 9. Troubleshooting. Part Two - Telling others about your child's autism diagnosis. 10. Why should I share my child's diagnosis with others? 11. Common concerns of parents. 12. Who should you tell about your child's diagnosis? 13. What should you tell others about your child? 14. How should you share your child's autism diagnosis? 15. Troubleshooting. Part Three - Resources. 16. Photocopiable worksheets. 17. Helpful books, videos and websites. Bibliography.

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Book SynopsisThis impressively honest book explores the effects a challenging disability or illness can have on the mind and personal relationships, and how friends, family and professionals can help.Illness or disability can isolate people by creating vast differences in their experiences where previously there were none. Friends and family can find themselves saying the wrong thing or awkwardly avoiding topics as a result. This book takes a candid look at how discomfort caused by an illness can strain a relationship between partners, families and professionals, as well as how understanding feelings of guilt or shame can transform a situation or relationship.The insights and advice offered in this book can help children and adolescents overcome anxiousness caused by a parent's condition, improve communication between partners and family members, and increase professionals' awareness of how a client feels about their situation.Trade ReviewA really sensitive and straightforward and yet comprehensive book. A great achievement on a really needed, under-acknowledged, yet massive and ever-present subject. -- Lionel Roth, Husband and carerBased on 35 years of experience, Julia Segal's book is an extremely important contribution to an issue that has or will touch many lives: the impact that illness has on relationships. A book that will not only be essential reading for professionals but should be read by all those trying to come to terms with the devastating impact of illness not just on the body but also on the mind. -- Marcus du Sautoy, Simonyi Professor for the Public Understanding of Science at the University of Oxford and author of What We Cannot Know.Julia Segal has distilled a professional lifetime of working closely with people who are undergoing illness to produce this timely book. We hear a lot these days about integrating physical and mental health. By keeping her focus on the emotional experience of illness what Segal offers us is a perspective that helps us appreciate what the person undergoing illness has always needed from professionals before our healthcare system became so disintegrated. We must all suffer illness, but not all of us are equipped to take up a vocation for caring for the ill. I expect that counsellors and psychotherapists who read this book to help them stay alongside people who are suffering illness will be immensely grateful for Segal's lightly worn learning and wisdom from experience, and her steadfast honesty and compassion. -- Jeremy Clarke CBE, Research Fellow, LSE; expert member NICE guideline for Depression, 2009 & 2017 and former national adviser, IAPT, NHS EnglandThe Trouble with Illness" is an essential read for any health care professional. Julia clearly explains the multitude of reactions to illness and disability and provides practical methods to help manage them. "The trouble with illness" comes to me at a time in my life where I find myself both personally and professionally a carer and it provided me with a fresh insight into disability that was both revealing and comforting at the same time. Read it. -- Susan Hourihan, Clinical Specialist Occupational Therapist, Queen Square University College London HospitalApproximately 15 million people in the UK are living with long-term illnesses and resulting disability. Add to that number the families, the professionals working in this field, local communities and as a society we are facing an epidemic of guilt, frustration, anger, distress, fear and worthless. Julia Segal has brought to our shelves one of the most important books of this decade and will be of considerable value to those whose work or life brings them into contact with illness or disability. Julia's candid writing style, together with those who share their stories brings normality and hope to those dealing daily with abnormal situations. This book gives the reader courage to face those feelings and thoughts about illness we prefer to keep hidden and engenders hope that they can try again tomorrow. -- Dr Anita Rose, Consultant Clinical NeuropsychologistChapter by chapter, Segal lays out the ways serious illness and disability can affect families and relationships, and suggests how those affected can be helped or help themselves. She gives vivid examples, and draws often on psychoanalytic ideas and insights, showing how useful they can be in helping us to understand the complexity of her subject. Counsellors and psychotherapists will find this book invaluable. -- Jim Pye UKCP (Reg), psychotherapist * BACP *Table of ContentsIntroduction. 1. Why does anything have to change? 2. Inner World / Outer World (theory) 3. Understanding. 4. Will we survive? 5. Illness, Disability and Sexuality. 6. Pain. 7. Grieving. 8. Damage to capacities to think or feel. 9. Parents. 10. Children. 11. Professionals.

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Book SynopsisWritten for busy foster carers and adoptive parents, this book provides a concise introduction to Autism Spectrum Disorder (ASD), and how to support a child with a diagnosis. It emphasises the common strengths children with ASD have, as well as offering strategies for any behavioural issues that are likely to arise, highlighting how these can be exacerbated by the care system and adoption process.The first part of the book looks at the different aspects of autism and the challenges it can pose for children and parents, providing strategies for managing difficulties at home and at school, using social stories, and reducing sensory input in a child's environment. The second part looks at issues that arise for fostered or adopted children, including placement transitions, contact, and explaining the past. It concludes with helping parents to think about self-care.Trade ReviewAdoption UK regularly supports adoptive parents who are struggling to decide whether their children has autism or an attachment disorder and what difference those two diagnosis might mean. This book will be invaluable to them as it provides a really helpful and simple description of how autism can present in different children, and how this can be similar to attachment difficulties. This book will help parents to get to know their child and their autism. It provides lots of real life examples and explores issues specific to adoption - such as moving from fostering to adoption. It will be invaluable bedside reading for many adopters. -- Ann Bell, Adoption UKAs an specialist autism professional, an adopter and an ex-foster carer, I found this book is a joy to read! It is rare that a book by professionals is so accessible. It will be a great resource for support workers, teaching assistants, care staff and professionals who want a book about autism and attachment that they can read easily, rather than academic text books. -- Heather Moran, Consultant Child Clinical Psychologist, Coventry and Warwickshire Partnership Trust, NHS UK Author of the Coventry GridAccessibly written and fantastically informative. The authors bring clarity and certainty to what is often a misunderstood and inaccessible word and present it in an easy and relatable form. -- Al Coates MBE, Social Worker/Trainer/SpeakerTable of ContentsPreface; 1: What Is Autism? 2: How Is Autism Assessed? 3: Overriding Principles For Parenting A Child With Autism; 4: Everyday Transitions At Home And School; 5: Placement Transitions & Contact; 6: Attachment & Belonging; 7: Life Story, Loss And Trauma; 8: Looking After Yourself; 9: Seeking Help And Resources; Appendix 1: Getting To Know My Child

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Book SynopsisWhat does an autism diagnosis mean for everyday family life? Explore different rooms in the home to better understand how children with autism experience daily activities, and what you can do to support their development.· Head to the bathroom for guidance on toilet training and introducing a calming bath time ritual. · Discover how to create a safe haven for your child in the bedroom chapter, with tips to try before bedtime to help ease anxiety.· Learn how to transform any corner of your home into a special place for sensory play, fun and learning· Settle down in the parents' corner for top advice on remaining cool, calm and collected in the face of obstacles. Co-written by a mum and a speech-language therapist, and with many more rooms to visit, this book breaks down the information that you need to know to support children with autism at home.Trade ReviewComing Home to Autism offers accessible and practical ideas, which you can try out tomorrow - no expensive resources needed! Together Tara and Rhian open up the world of living, loving, and supporting children with autism and their families. This is one of those books that you keep going back to; to be inspired, reassured, and delighted. -- Sophie Walker, Senior Practitioner, Mansfield Autism Statewide Service, Victoria, AustraliaThis book provides a much-needed practical guide that families and professionals can dip in and out of in order to learn more about development in children with autism. It is full of creative activities and strategies that can be used to support children with autism within their home environment. -- Alice Carter, Speech and Language Therapist, BSc Speech Sciences, MASL TIPAn open, honest, and positive book describing everyday life for families living with ASD. Full of common sense, reassuring advice - a real bible for those with newly-diagnosed children - and explained with humour and love. It's full of helpful tips and strategies that ALL families would benefit from! -- Zoe Garbarz, Inclusion Co-ordinator, Our Lady of Lourdes RC Primary School, UKA treasure for any parent of a child with ASD. My son Harry was diagnosed with ASD two years ago, and I was left feeling alone and confused. Reading this book has taken me from the isolation so many of us parents feel, to a community of care and understanding. This book is like a much-needed hug at the end of a bad day. -- Alli Mac Donnell, Model and Ambassador for Autism IrelandTable of Contents1. Introduction. 2. Parents' Corner. 3. The Bedroom. 4. The Kitchen. 5. Playroom. 6. The Bathroom. 7. The Sitting Room. 8. The Garden. 9. Out and About. 10. The Office.

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Book SynopsisRaising an autistic child comes with its own unique set of challenges, not least of which is dealing with the constant scrutiny of your parenting. This collection of stories from all corners of the globe celebrates the love, commitment and heroism of mothers of autistic people. These intimate accounts reveal both the differences in cultural attitudes, and the universality of the autism experience.Mothers from different cultural and socio-economic backgrounds speak out about the highs and lows of raising autistic children, and the shift in attitudes to autism as they watch their children enter adult life. Putting to bed the belief that autism is a result of poor parenting, this book not only lets parents know they are part of a supportive global community, it also highlights the positive aspects of autism and champions neurodiversity.Trade ReviewA wonderful collection of stories by parents from all over the world of their children's lives with ASD. These portrayals from different families and their different situations convey, as one parent wrote, 'Happiness and fulfillment of the dreams of our children with autism are in our hands'. As one reads through these stories, often with tears in one's eyes, we revel in their heroism, hard work, and joy, from what they and their children have achieved together. -- Gary B. Mesibov, Professor Emeritus, University of North CarolinaInspirational stories of unconditional love by mothers raising a child with autism into adulthood. Mothers who have tremendous strength and determination to achieve quality of life and happiness for their children and many other people with autism. An affirmation from around the world that mothers are the key to understanding their child's autism. -- Hilde De Clercq, Director of the Centre for Training on Autism Belgium, Parent, and AuthorTable of ContentsIntroduction. Maggi Golding (South Africa). 1. Carole and Jason (England). 2. Edith and Juan Jose (Colombia). 3. Irene and Pammy (South Africa). 4. Isabel and David (Spain). 5. Jackie and Joey (USA). 6. Jill and Michael (South Africa). 7. Joan and Jonathan (Australia). 8. Liz and Richard (England). 9. Mary and Kokeletso (South Africa). 10. Merry and Neeraj (India). 11. Petra and Michael (Namibia). 12. Samira and Fatima (Kuwait). 13. Shubhangi and Vishu (India). 14. Stephanie and Frank (England). 15. Thando and Tilsetso (South Africa).

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Book SynopsisProviding expert yet accessible guidance to parents of young autistic people who are going to college, this book helps parents support their child from application through to graduation. Covering social issues, independent living, academic challenges, student services and emotional wellbeing, this is the one-stop shop for advice on the transition from school to college or university. The book examines the skills that students need to live and function at college, and the skills parents need to let their teens navigate college without a parent as intermediary. It offers ways to combat common problems that affect the mental health of people on the spectrum, such as keeping up with homework, fast-paced classes, and complex social expectations. This book is for any parent considering college as an option for their child, disability service providers in colleges and for autistic students themselves.Trade ReviewLaurie has been working with high functioning children and adolescents on the autism spectrum and their families for 28 years and her experience and wisdom have contributed to writing a highly recommended guide for parents. The guide will encourage the mental health and well being of the college student who has autism as well as their parents. -- Tony Attwood, Minds and Hearts Clinic, BrisbaneDr. Leventhal-Belfer writes an indispensable guide for preparing children with autistic spectrum disorder going to college. Her years of experience and close connections with patient families lead to clear and concise recommendations for parents. Dr. Leventhal-Belfer shares a detailed and nuanced knowledge of the specific opportunities and requirements for obtaining academic and general accommodations through the university. -- Dr Michael F Haberecht, Staff Psychiatrist, Vaden Health Center, Stanford UniversityWe were very fortunate to have Dr. Laurie provide us with the guidance on how to help our son, who was diagnosed with ASD when he was very young. Dr. Laurie was there whenever we were faced with challenges related to ASD. "The Mental Health and Well-being of College Students on the Autism Spectrum: A Guide for Parents" is an invaluable resource and must-read for parents who have a college-bound child with ASD. Dr. Laurie's knowledge of the college environment helped our son navigate through the complex process and get the help he needed to successfully graduate college. -- JoAnn Mendonca, Alumni parent of Dr. Laurie’s Friends ProgramThis book can truly serve as a lifesaving guide to parents of individuals with ASD who are getting ready to embark on the scary journey of sending their child to college. Frank advice, from parents, individuals with ASD and therapist is provided, offering easy strategies for greatest success. -- Cheryl Klaiman Ph.D. Program Director, Diagnostic Services Marcus Autism CenterTable of ContentsForeword; Preface; 1: Being on the Spectrum; 2: The Transition to College-How Parents Can Help; 3: College Freshman Basics; 4: Emotional Challenges; 5: Mental Health Issues; 6: Mental Health Services in Today's Colleges; 7: Lessons Learned and Looking Forward; Appendices; References; Further Reading

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Book SynopsisA four-stage programme for parents and families looking to introduce a dog into their home for the therapeutic and practical benefits that can be brought to a child with autism, including development of communication skills and toilet training. Based on first-hand knowledge, the programme was created through the successful experience the author had bringing up two children at opposite ends of the autism spectrum.This guide is comprehensive and highly practical, with case examples, tips and advice throughout. It covers all aspects of responsible ownership and training of the dog as a companion dog, and it provides tips throughout the dog's entire life cycle. Accessible for families and professionals alike, this innovative programme can have a huge impact on the life of children with disabilities.Trade ReviewI can highly commend Nuala's programme as one that directly addresses the challenges faced by people with autism and their families. I look forward to watching it grow and benefit many more families. -- From the foreword by Jim Taylor, www.jimtaylorknowsautism.comTable of ContentsAcknowledgements; About the author; Adapting this program for other disabilities; Autism and Dogs by Jim Taylor; Postscript by Lorna Wing; Introduction. (Benefits of a dog for a child or adult with a disability or condition.); Dog checklist, is a dog the right intervention for your child and family?; Why this program?; Overview of Program; New stories of success. (Andy and Bailie; McKenzie and Heather.); Points to remember! Autism and learning difficulty child; Points to remember the ASD adult. 1. The Red Stage - What age, breed of dog is right for the child's disability?; 2. The Yellow Stage! (Where and how to source the dog.); 3.The Green Stage! Settling in of your dog and being a responsible owner; 4. The Blue Stage - Care of the senior dog; 5. Letting go! Afterword; Useful Resources; References

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Book SynopsisHaving a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.Trade ReviewA Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. -- Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosisA Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations for parents from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams. -- Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of MedicineTable of ContentsIntroduction. Part One: The Physical Realities of PANDAS, PANS and Related Conditions. 1. Your child has PANDAS or PANS - Now what? 2. What's happening in your child's brain: Medical Context of PANDAS/PANS. 3. Complex cases and comorbid conditions. 4. Common treatments and therapies for PANDAS/PANS. 5. Challenges in finding treatment for PANDAS/PANS. 6. Ensuring physical wellbeing: Nutrition and lifestyle support for PANDAS/PANS. 7. Managing relapse. Part Two: Living Well with PANDAS and PANS Symptoms. 8. Supporting mental well-being: Emotional and behavioral impact of PANDAS/PANS. 9. Managing Obsessive Compulsive Disorder (OCD) on a daily basis. 10. Managing separation and generalized anxiety. 11. Routines, supports and social skills. 12. Family self-care: Post-traumatic stress and support systems. Part Three: Planning, Advocacy and Communication. 13. Communicating and advocating effectively on behalf of your child. 14. Developing a strong educational plan for your child. 15. School supports, accommodations and adaptations. 16. Transitions, adolescence and adulthood with PANDAS/PANS. 17. Conclusion.

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Book SynopsisThis insightful book investigates the experiences of seven women with autism as they transition from childhood to adulthood, and how they make sense of that journey.Taken from the autobiographies of women including Liane Holliday-Willey and Temple Grandin, these accounts shine a light on issues unique to women with autism. Heather Stone Wodis provides a detailed and thoughtful exploration of their common experiences, and each story offers a new perspective that illuminates the diagnosis from a different angle. This is a fascinating look at how generational differences, such as access to the internet, can provide more avenues toward self-expression, political mobilization, and advocacy. It also explores the idea that, no matter the era, the unyielding support of family and a diagnosis in childhood can help girls with autism transition toward adulthood.Trade ReviewGirls with Autism Becoming Women helps establish a historical tradition of memoirs and autobiographies by people on the autistic spectrum. All of the texts analyzed by Stone are written with the urgency of survival at stake by those who find themselves entrapped in various systems of neurotypical oppression. This is a helpful guide for teaching texts that can now be used in multi-disciplinary university classrooms and the discussion helps yield an understanding of neuroatypicality as a form of artistic living interdependently with others. Stone brings her background in Psychology, Sociology, and Disability Studies to bear on the importance of these works. -- David T. Mitchell and Sharon L. Snyder, authors of Narrative Prosthesis: Disability and the Dependencies of Discourse and The Biopolitics of Disability: Neoliberalism, Ablenationalism, and Peripheral EmbodimentWodis details how girls on the Autism Spectrum transition from children to adults, recognizing seven women as a strong 'minority within a minority.' Education, careers, sexual development, and social networks paired with qualitative, interpretive research methodology validate fist-person autie-biographies. Her unique approach relies on grounded theory with systematic, constant comparison. Using Rosemarie Garland-Thomson's situated theory, she socially contextualizes ASD from neuroqueer identity to religious constraints. I applaud her support of autism as an equally valid form of neurological embodiment. I highly recommend this book to those interested in the intersection of Autism Spectrum Disorder and female gender issues. -- Telory D. Arendell, Associate Professor of Theatre and Dance, Missouri State UniversityTable of ContentsIntroduction. 1. Meet the Women. 2. Education. 3. Interests and Career Paths. 4. Sexual Development and Romantic Relationships. 5. Family, Friends and other Networks of Support. Conclusion.

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Book SynopsisAutism diagnosis can be an overwhelming time for many families. This is an accessible, easy to navigate guide for parents, answering the questions they may have before, during and after diagnosis. Written by a highly experienced author team, this book will support parents from the moment somebody mentions autism, through the diagnosis process and beyond. It provides reliable advice on every stage, with guidance on what to do during the long wait for assessment and diagnosis. Working from a pro-neurodiversity perspective it encourages parents to see beyond the diagnosis and to celebrate each child's unique personality and strengths. Combining information on medical diagnosis, educational needs and more, the book shares case studies and direct quotes from families to help parents to give their children the best start following an autism diagnosis, and help them to achieve their full potential. There is also a bonus downloadable chapter with information from the key professionals involved in the diagnostic process, so you know who you can turn to for the support and help you need.Trade ReviewParents who recognize that their autistic child is different to other children will find that this insightful and reassuring guide will help them to accommodate those differences at home, and also identify the team that can help their child acquire specific abilities. The explanations and wisdom will enable parents to navigate the new world of autism. -- Dr Tony AttwoodThere is a lack of well-written books to inform parents of children with autism. The explosion of content on the Internet has not helped and it is increasingly difficult for parents to separate the 'wheat from the chaff'. This book is accurate, comprehensive and written with empathy that acknowledges quite how stressful it is for parents to first suspect an autistic spectrum disorder in their child, and then to navigate the minefield of long waiting lists, and complex assessments. Many parents emerge at the end of these processes with a diagnosis but little support and wondering 'what next?'. This book will take those parents gently by the hand and cover both the core difficulties and also the often-neglected co-morbidities associated with autism. I recommend this book for all those families, whatever stage of the journey they are on, and for any professionals who want to understand the challenges of their families and children a little better. -- Professor Paul Gringras, Paediatric Sleep Medicine and Neurodisability, Evelina London Children's Hospital and King's College LondonTable of Contents1. Concerns, Fears and Challenges2. Childhood Development3. Brief Guide Through Differential Diagnoses4. Is This Autism? 5. The What, Why, Where and When of a Diagnosis6. Supporting Evidence7. Educational Input8. Diagnostic Pathways9. This Is Autism 10. Comorbidities and Implications Associated with Autism11. Evidence-Based Therapeutic Interventions12. Anxieties and Sensory Issues13. Behaviour14. Communication and Interaction15. Eating, Drinking and Nutrition 16. Education17. Getting Set Up18. Personal Care19. Family, Support and Self-Care20. Diagnosis Journeys21. A-Z of terms that may be relevant to Autism

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Book SynopsisA guide that makes spiritual principles and practices accessible to people living with disabilities so they can deepen their connection to God and live more joyful, intentional lives—written by an author with cerebral palsy.Allison Thompkins was born with cerebral palsy and a deep knowing that she has a mission in this life to advocate for the rights of disabled people—a group whose voices are often ignored or silenced.In this first-of-its-kind book, Allison addresses essential spiritual themes—like surrender, prayer, synchronicities, meditation, grace, gratitude, and authentic service—in a way that centers disabled readers and speaks to their particular life challenges. She weaves her lived experience and personal spiritual journey into teachings and wisdom, inviting the reader to see themselves in her story and encouraging them to create a strong relationship with God or Spirit or the Universe, supported by regular spiritual practice.The exercises at the end of each chapter include extensive access notes to allow readers who are blind, deaf, deafblind, or mobility restricted to build a personalized practice that works for them in the body they live in.

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Book SynopsisOur increased knowledge and appreciation of hypermobile Ehlers-Danlos syndrome (hEDS) has been making headlines across medical research and practice. Stretched to the Limits is the first text to apply this new understanding directly to midwifery. The book details the effects of hEDS on the different bodily systems, and the implications for pregnancy, labour, birth and postnatally. Midwives and doulas are likely, at some point in their careers, to come across women with this most common sub-type. hEDS affects at least 1 in 5,000 women but they frequently find themselves on a care pathway more suitable for those with other, rarer, subtypes such as classic EDS (cEDS) or vascular EDS (vEDS). Additionally, much of the advice detailed here will also help to support the 20% of the population with more generalised hypermobility. This book is, therefore, essential reading for empowering midwives and doulas to feel confident in their understanding of hEDS, so that they can best inform and support their clients and colleagues with the most appropriate care. It will also provide a valuable resource for those with hEDS to share with their care team and advocate for their needs when planning pregnancy and birth.Trade ReviewStretched to the limits is the missing link in information to families and health professionals alike. It explains the effects of EDS on all the systems of the body, and as a health professional gave me insight and information that was vital to holistic care. -- Linda Ayres, MidwifeThis book is a must-read for anyone with EDS, pregnant or not! I've learnt more from reading Stretched to the Limits than years of searching for answers from doctors and specialists. -- Josie Searle, Mother with EDSThis book is like no other textbook I have read before, it is both informative and reassuring. Offering clear explanations and recommendations for care. It is an essential read for health professionals and Doulas providing support to women with hEDS. -- Karen Mitchell, Infant Feeding Specialist, Birth & Postnatal Doula

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Book SynopsisChris and Gisela have been partners for twelve years. Four years ago Chris was diagnosed with Asperger syndrome. For Chris, this was an explanation of why he had always regarded himself as 'socially handicapped'. For Gisela, it meant coming to terms with a marriage in which there would never be an intuitive understanding despite Chris's good intentions. For the couple it was the beginning of a long and still unfinished process of learning to live with a disability regarded by some as incompatible with marriage.Trade ReviewThis fascinating book is a joint venture between Gisela and Chris. They have each written frankly of their own perceptions of their marriage and reflect with great sensitivity on the impact which Asperger's syndrome has had on their 12 years of living together. It is likely to be of particular interest to those involved in marital counselling.'If you are looking for a sensitive and enlightening insight into an 11-year-old marriage between a man diagnosed with Asperger's and his long-suffering wife, look no further than this excellent book... the heartening message is that, despite the immense obstacles - both within the marriage and from the lack of facilities available - here is a couple that have managed to go a long way towards bridging that "yawning chasm". -- Looking UP[When] one partner has Asperger syndrome, making the diagnosis can be problematic, but giving advice on coping and understanding the condition is even more problematic. That is why reading Chris and Gisela's book was so fascinating and helpful.They do not pretend that it is easy, but their factual information with some poignant yet amusing anecdotes make this an enjoyable, as well as informative, book to read. I would highly recommend the book for couples where one partner has Asperger syndrome and for professionals, not only those working in this field, but anyone who works with people with relationship difficulties. It is definitely on my list of recommended reading. -- CommunicationA humane and tender book…Chris's writing itself has done more to explain to me what Asperger syndrome involves than any `description' I have previously read…The book is hopeful without being soppy and brave without being boastful. -- Open MindThis book is the first to examine a successful marriage from both perspectives and provides knowledge that will be of value, not only to similar couples and individuals with Asperger Syndrome who are considering a relationship, but also the organizations that support relationships. -- from the foreword by Tony AttwoodThis book is the first of its kind and is an essential read for couples, parents and professionals involved or interested in gaining a deeper understanding into the uncharted territory of Asperger marriages. -- Maxine Aston, Relate Trainer and Couple Counsellor specialising in relationships affected by Asperger Syndrome and author of `The Other Half of Asperger Syndrome'.A very readable book, pastors may welll find it helpful for their own understanding, but also as a resource to pass on to couples concerned for their autistic child, as also to people suffering from this particular disability. -- Ministry TodayThis is a book of real value to people with a personal experience of AS and one which will also be reassuring to parents of children diagnosed with AS. I would particularly recommend it as a quick read to both social and health care professionals who are involved in making assessments, trying to understand the `person' and attempting to enable people with AS to achieve their own aspirations. -- Professional Social Work MagazineTable of ContentsForeword - Tony Attwood. 1. Introduction - Gisela. 2. Terminology - Gisela. 3. Relationships - Chris. 4. How we met - Gisela. 5. Diagnosis - Chris. 6. ICD-10 Criteria for Asperger Syndrome. 7. Diagnosis - Gisela. 8. Communication - Chris. 9. Communication - Gisela. 10. Affection, sentimentality and intimacy - Chris. 11. Intimacy, romance and intuition - Gisela. 12. Sex. 13. Living together - Chris. 14. Living together - Gisela. 15. Parenthood - Chris. 16. Parenthood - Gisela. 17. Social life - Chris. 18. Social life - Gisela. 19. Employment - Gisela. 20. The future - Chris. 21. Postscript - Gisela. Bibliography.

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Book SynopsisA practical tool for all job developers, this workbook presents strategies based on real situations and includes example exercises throughout. It draws on Steve Leach's thirteen years' practical experience in supported employment and is based on the principle of developing a client-centred approach to job development. It emphasizes the central importance of self-determination - ensuring that the individual makes their own choices to determine their future career.This flexible guide shows ways in which a support strategy can be developed in partnership with both employee and employer. Chapters are included on approaching and researching employers, establishing and improving the relationship between employee and employer, and on current debates in supported employment.The workbook also includes practical materials such as vocational profile forms, job analysis forms and support review charts. A comprehensive guide to delivering a supported employment service, it will enable professionals to support people with disabilities in finding and sustaining real jobs in real communities.Table of ContentsPreface. Introduction. 1. Initial Contact. 2. The Vocational Profile. 3. Job Search and Marketing. 4. Job Analysis. 5. Support Review Process. 6. Progression to Unsupported Employment. Appendices. References. Index.

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Book Synopsis`The book describes a potted history of Phillip's journey, and mainly focuses on the practical aspects of brain injury, rehabilitation, returning home and to work. If you have little or no knowledge of brain injury then this book is a good starting point, both for the brain injured person or their family/friends.'- Encephalitis Information Resource`This is an excellent book for both patients and staff to read and the message of hope is "whilst life will change after brain injury I need not necessarily be the end of quality life. There really is life after brain surgery.'- Stroke Newsletter`Fairclough's frank discussion of sexual problems following traumatic brain injury (TBI) and his feelings about the loss of his role as the family breadwinner will resonate with many male readers…Fairclough does not overtly seek to inspire or impress the reader, yet he communicates that not only can one's life continue after head injury, but also it can be a good and meaningful life at that.'-Brain Injury Journal`The book is clearly set out, easy to read, good value and has some useful references. This is a book therapists could suggest to families to provide information from a patient's perspective as it provides more practical help than most, but I would recommend that they read it first.' -Physiotherapy JournalOn November 7th 1994, Philip Fairclough fell fifteen feet from a ladder onto a concrete patio. The impact caused massive trauma to his head and the subsequent brain damage he suffered has radically changed his life.At first unable to dress himself, cross roads on his own or tell the time, Philip underwent an intensive course of rehabilitation and occupational therapy, which slowly restored many of the lost skills that he had once taken for granted. His account tells of the hurdles he faced and overcame while in residence at a rehabilitation centre, the difficulties of readapting to family life, and finally the emergence of his new vocation as a writer.Like most of us, Philip never expected that severe injury would happen to him - but from the first he decided not to give up. His courage, determination and the support of his family characterize this account, which interweaves his own story with practical information about brain injury. Members of the medical profession, physiotherapists, occupational therapists and counsellors will all find this account helpful and revealing - as will people affected personally by brain injury, and their families and friends.Trade Review`The writer gives invaluable insights into his journey, for example the changes he experienced in physical ability, thought, cognition, emotions and most valuably, his own perception of his experience...This book gives a clear overview of how valuable health and social care support is to someone who needs to find their way through a complicated and frightening system. I would recommend this book to professionals, families and carers. It explains what is happening to the injured person and the significant people who are part of their journey; the reader will gain invaluable professional guidance from a neew perspective. As a social work practitioner, I feel the urge to read the book again. It has given me insight from the soul, from a personal experience, and on that basis, this book is highly recommended.` -- Social Care and Neurodisability, Penny Lee, Social Worker working in a multidisciplinary team for people with physical disabilities and brain injury in LondonTable of ContentsPreface. 1. My Introduction to Brain Injury. 2. Brain Injury - The Facts and Some Statistics. 3. The Symptoms - The First Few Days. 4. Coping with Your Feelings. 5. Home Care or Care Unit? The Big Dilemma. 6. The First Few Weeks - From the Rehabilitation Unit to Home. 7. Long-Term Problems. 8. Sufferers Can Help Themselves. 9. Learning from the Experience of Brain Injury. 10. Caring - How to Cope. 11. Useful Information and Sources. 12. What of the Future? Some Hopes and Aspirations. In Conclusion. References and Further Reading. Useful Addresses.

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Book SynopsisIn this thought-provoking book, Jan Walmsley and Kelley Johnson discuss participative approaches to research and provide an up-to-date account of inclusive practice with individuals with learning disabilities. Drawing on evidence from two major studies, they explain how lessons learnt from inclusive research in the learning disability field are applicable to others working with marginalized groups. The authors examine the origins and the process of inclusive research, describing:* how and why it takes place* who carries it out* who funds it* how it is designed* how it relates to policy and practice.They look at the challenges inherent in this work, such as balancing the voice of the researcher with that of disabled participants and clarifying roles within research projects, and explore how it can become more inclusive and empowering. Providing valuable information and advice to researchers, policy makers and students as well as other health and social care professionals, this book presents a comprehensive examination of participative research in social care.Trade ReviewWalmsley and Johnson have presented us with an excellent book in Inclusive Research with People with Learning Disabilities. As the full title suggests, this book explores the past, present and futures of inclusive research with people with learning disabilities. This is done well.I found this book both intriguing and enjoyable. It is full of insight, fact and reference, and is written in a clear and illuminating style. In many places throughout this well-ordered text examples are usefully employed to highlight the discussion. Without a doubt, I think that this book is a timely addition to the area. It fills a gap in the literature and is clearly and authoritatively written. In my view it should be essential reading for anyone concerned with the lives of people with learning disabilities. -- British Journal Of Social WorkThis is a fascinating book, partly because of it's subject matter, partly because the very ambivalence it identifies among inclusive researchers is painfully played out on its pages. The authors aim to record, review and celebrate the achievements of inclusive research, but also to tackle the current `stifling' of debate about the very real challenges of involving people with learning disabilities in the research process. -- Social PolicyPolicy makers, researchers, practitioners and students should find in this reader some thought-provoking and authoritative information and advice on how to carry out truly inclusive research with people with learning disabilities. -- Care & Health MagazineFar more than a "how to do it" handbook. The pages are filled with thought-provoking suggestions, and nothing is taken for granted. The book was inspired by "questions we dared not ask", as the authors confess, and it does indeed consider a range of sensitive issues about power, ownership, initiation and value. -- Community CareTable of ContentsIntroduction: Reputable? Helpful?…and Inclusive? Part 1. Describing the Past. 1. Of Shoes and Ships and Sealing Wax and… Inclusive Research: Or Where Did It All Start? 2. Normalizing, Emancipating and Making a Stand. 3. Inclusive Research in Learning Disability: Beginnings. 4. Knowing the Elephant. Part 2. Exploring the Research Process. 5. Nothing About Us Without Us: Good Times Bad Times. 6. Living Safer Sexual Lives: Making Research Work. 7. What Matters to People with Learning Disabilities? 8. Managing Inclusive Research. 9. Who Uses it and How? 10. What Has Been Achieved. Part 3. Beyond Rhetoric to New Realities. 11. Beyond Rhetoric... 12. ...To New Realities. 13. Conclusion: Why Do It? References. Subject Index. Author Index.

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