Description
Book SynopsisHaving a child who suddenly develops PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep), PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) or related conditions such as encephalitis can be a daunting challenge for parents. This clear guide explains the symptoms and diagnosis of PANDAS and PANS, with treatment options and recommended strategies for supporting children at home, at school, and in community settings.
The book covers key symptoms including OCD, tics, anxiety, sensory issues and personality changes, with practical advice on medical management, nutrition, lifestyle, and addressing social and behavioural needs. Each chapter also includes handy sidebars with key information to remember, and action steps for overcoming challenges, managing relapse, family self-care and providing children with the best possible support.
Trade ReviewA Parent's guide to PANDAS, PANS and Related Neuroimmune Disorders is dramatic as it is revealing written by those on the front-line of these debilitating illnesses. This highly-readable guide forces us rethink our definitions of mental illness. Above all, this guide offers coping strategies, hope and optimism the general medical community is unable to give. -- Tim Sorel, Professor, University of Florida, Producer/Director of My Kid is Not Crazy: a search for hope in the face of misdiagnosis
A Parents' Guide to PANDAS, PANS and Related Neuroimmune Disorders will be a dog-eared, high-lighted, bookmarked constant companion for parents of children with PANS! It packs practical recommendations
for parents
from parents, with illustrative case vignettes, up-to-date information, and tools for navigating the journey to healing. It will help parents understand these disorders, work collaboratively with medical and educational professionals and care for their children and themselves. I will recommend it to my patients' families and their medical and educational care teams. -- Margo Thienemann MD, Director of PANS Program Psychiatry, Clinical Professor of Psychiatry, Stanford University School of Medicine
Table of ContentsIntroduction. Part One: The Physical Realities of PANDAS, PANS and Related Conditions. 1. Your child has PANDAS or PANS - Now what? 2. What's happening in your child's brain: Medical Context of PANDAS/PANS. 3. Complex cases and comorbid conditions. 4. Common treatments and therapies for PANDAS/PANS. 5. Challenges in finding treatment for PANDAS/PANS. 6. Ensuring physical wellbeing: Nutrition and lifestyle support for PANDAS/PANS. 7. Managing relapse. Part Two: Living Well with PANDAS and PANS Symptoms. 8. Supporting mental well-being: Emotional and behavioral impact of PANDAS/PANS. 9. Managing Obsessive Compulsive Disorder (OCD) on a daily basis. 10. Managing separation and generalized anxiety. 11. Routines, supports and social skills. 12. Family self-care: Post-traumatic stress and support systems. Part Three: Planning, Advocacy and Communication. 13. Communicating and advocating effectively on behalf of your child. 14. Developing a strong educational plan for your child. 15. School supports, accommodations and adaptations. 16. Transitions, adolescence and adulthood with PANDAS/PANS. 17. Conclusion.
