Description
Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.
Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields.
Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of
Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support
everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, Liminal
Uncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERC
Alma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *
Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story Collider
Highly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *
Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato Marks
Part I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi
2. Regaining Control, by Jenn Pickering
3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden
4. Dear Cassy, by Sami Chen
5. Sea Legs: Working Around Motion Sickness, by Amanda Heidt
Part II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer
7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White
8. Birds, Bees, and Anxieties, by Anonymous 1
9. My Brown Waterproof Boots, by Skylar Bayer
10. Hope Is My Anchor, by Furaha Asani
Part III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage
12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele
13. Christmas on Rangatira Island, by Sophie Fern
14. Living with a Rare Condition, by Sophie Okolo
15. Planning the Journey of a Lifetime, by Richard Wendell Mankin
Part IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 2
17. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis
18. The Day That Changed Everything, by Syreeta L. Nolan
19. Being the First and Only to Ask, by Amanda O’Brien
20. Lost in New Orleans, by Stephanie Schroeder
21. Ascending the Cinder Cone, by Divya M. Persaud
Part V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett
23. Suffer in Silence or Leave, by Emma Tung Corcoran
24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona
25. The Abyss, by Katie Harazin
26. Navigating the Curve, by Sunshine Menezes
27. Tidy Columns, by Olivia Bernard
Part VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek
29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco
30. The Ridge, by Gabi Serrato Marks
31. Who I Am, by Vincent Martin
32. The Best Place for My Hearing Aids Is on My Desk, by Michele Cooke
Conclusion: Aid to Navigation
Acknowledgments
Reflection and Discussion Questions
Further Reading and Resources
Glossary
Bibliography
About the Contributors
