Coping with / advice about physical impairments / disability Books

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Book SynopsisGiving and Taking Voice in Learning Disabled Theatre offers unique insight into the question of âvoiceâ in learning disabled theatre and what is gained and lost in making performance. It is grounded in the author's 18 years of making theatre with Different Light Theatre company in Christchurch, New Zealand, and includes contributions from the artists themselves.This book draws on an extensive archive of performer interviews, recordings of rehearsal processes, and informal logs of travelling together and sharing experience. These accounts engage with the practical aesthetics of theatre-making as well as their much wider ethical and political implications, relevant to any collaborative process seeking to represent the under- or un-represented. Giving and Taking Voice in Learning Disabled Theatre asks how care and support can be tempered with artistic challenge and rigour and presents a case for how listening learning disabled artists to speech encourages attunemTable of Contents1. Introduction: Giving and Taking Voice. 1, Part 2. Setting the Scene: The Shadow Whose Prey the Hunter Becomes 2. Community Theatre and Myths of Community 3. Dramatic Theatre and the Temporality of Learning Disabled Theatre 4. Intertextuality and Intermediality: Performing Responses to the Disabling of the City 5. Learning Disabled Performance Research: Ecologies, Histories, Philosophies 6. From the Theatre to the After Party

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Book SynopsisMainstream gerontological scholarship has taken little heed of people ageing with disability, and they have also been largely overlooked by both disability and ageing policies and service systems. The Handbook on Ageing with Disability is the first to pull together knowledge about the experience of ageing with disability. It provides a broad look at scholarship in this developing field and across different groups of people with disability in order to form a better understanding of commonalities across groups and identify unique facets of ageing within specific groups. Drawing from academic, personal, and clinical perspectives, the chapters address topics stemming from how the ageing with disability experience is framed, the heterogeneity of the population ageing with disability and the disability experience, issues of social exclusion, health and wellness, frailty, later life, and policy contexts for ageing with disability in various countries. Responding to theTrade Review‘The Handbook on Ageing with Disability is a long-awaited gem of information, research and insights into an area growing in importance but too long ignored. The co-authors are pioneers in this field and they have brought together an impressive international caste of experts. The myriad dimensions and the nuances of aging with a disability, whether intellectual, cognitive, physical, visual, or chronic – are brought together in a masterful collection of prescient chapters. This Handbook is destined to be the "bible" for all of us aging into and with various forms of limitations and disabilities and seeking the latest analysis, data, trends and understanding of this complex yet personal concern.’Fernando M. Torres-Gil, UCLA Professor of Social Welfare and Public Policy‘This Handbook fills a major gap in the knowledge base required to bridge the fields of aging with disability, certainly one of the major challenges for humankind in the XXI Century. The range of topics covered and populations discussed demonstrates the heterogeneity of the aging with disability population and the need for greater attention to common issues in these two areas of research, support and care. This book brilliantly culminates the extensive work the editors have led on this topic over the last 20 years.’Luis Salvador-Carulla, Head of the Centre for Mental Health Research at the Australian National UniversityTable of ContentsPart 1. Framing the Ageing with Disability Experience 1. Understanding Ageing with Disability Michelle Putnam, Caitlyn E. Coyle, Lydia P. Ogden, and Christine Bigby 2. Rethinking the Concept of Successful Ageing: A Disability Studies Approach Tove Harnett, Annika Taghizadeh Larsson, and Håkan Jönson 3. Ageing with Lifelong Disability: Individual Meanings and Experiences Over Time Lieke van Heumen 4. Integrating Critical Disability Studies and Critical Gerontology to Explore the Complexities of Ageing with Disabilities Hailee M. Yoshizaki-Gibbons 5. Social and Environmental Determinants of the Health of People with Disabilities Eric Emerson, Zoe Aitken, Hannah Badland, Nicola Fortune, Celia Green, and Jerome N. Rachele 6. Reducing the Shared Burden of Chronic Conditions among Persons Ageing with Disability and Older Adults in The United States Through Bridging Ageing and Disability Margaret L. Campbell and Michelle Putnam 7. Segmenting Ageing and Disability Policy: Ethical Concerns Jerome Bickenbach Part 2. Diverse Experiences of Ageing with Disability 8. Understanding the Experience of Growing Older with Cerebral Palsy Laura R. Moll and Cheryl A. Cott 9. Ageing with Deaf Blindness Peter Simcock & Jill Manthorpe 10. Ageing, Serious Mental Illness, and Perceptions of Self Over the Life Course Lydia P. Ogden 11. Ageing and Brain Injury: Long-Term Outcomes in Adults Angela Colantonio and Melissa Biscardi 12. Ageing with Multiple Sclerosis Marcia Finlayson, Michelle Ploughman, Julie Pétrin, & Roshanth Rajachandrakumar 13. Ageing When Being Autistic Hilde M. Geurts, Rebecca Charlton, and Lauren Bishop Part 3. Forwarding Social Inclusion 14. Community Participation and Engagement for Persons Ageing with Physical Disability Rachel Heeb, Courtney Weber, Jessica Dashner and Kerri Morgan 15. Design for One is Design for All: The Past, Present, and Future of Universal Design as a Strategy for Ageing-In-Place with Disability Jon A. Sanford & Elena T. Remillard 16. Support For Decision-Making As People Age With A Cognitive Impairment Terry Carney and Shih-Ning Then 17. Internalised Ageism And The User Gaze In Eldercare: Identifying New Horizons Of Possibilities Through The Use Of A Disability Lens Håkan Jönson, Annika Taghizadeh Larsson,and Tove Harnett 18. Creating Age And Disability Friendly Communities To Support Healthy And Meaningful Ageing Friedrich Dieckmann and Christiane Rohleder Part 4. Intellectual Disability As A Case Example 19. The Emergence Of Ageing With Long-Term Disability Populations Philip McCallion, Lisa Ferretti, and Mary McCarron 20. Health And Wellness Among Persons Ageing With Intellectual Disability Darren McCausland, Philip McCallion, and Mary McCarron 21. Retirement For People With Intellectual Disability: Policy, Pitfalls, And Promising Practices Christine Bigby 22. Family Caregiving For Adults Ageing With Intellectual And Developmental Disabilities Tamar Heller, Sumithra Murthy, and Catherine Keiling Arnold 23. Ageing With Intellectual Disability In Sweden: Participation And Self Determination Mia Jormfeldt and Magnus Tideman 24. Towards Untangling The Ageing Riddle In People With Intellectual Disabilities: An Overview Of Research On Frailty And Its Consequences Josje D. Schoufour, Dederieke Maes Festen, Alyt Oppewal, and Heleen M. Evenhuis 25. How To Avoid Early Frailty In People With Intellectual Disabilities? Heleen M. Evenhuis, Josje D. Schoufour, Alyt Oppewal, and Dederieke Festen 26. Dementia Care For Persons Ageing With Intellectual Disability: Developing Non-Pharmacological Strategies For Support Karen Watchman and Kate Mattheys 27. End-Of-Life Care For Adults With Intellectual Disabilities Teresa Moro and Jacqueline McGinley Part 5: Policies to Support Persons Aging with Disability 28. Responding To Changing Workforce Realities: One Profession’s Experience Fintan Sheerin, Philip McCallion, and Mary McCarron 29. Ageing In Place In Group Homes: An Australian Context Tal Araten-Bergma and Christine Bigby 30. Support, Service Policies, And Programs For Persons Ageing With Disabilities In Korea Kyung Mee Kim and Seung Hyun Roh 31. Trends In Integrating Long-Term Services And Supports In The United States Michelle Putnam and Caitlyn E. Coyle 32. Access To Assistive Technology In Canada Rosalie H. Wang and Michael G. Wilson 33. Ageing With Disability: Using Financial Mechanisms To Facilitate Intersectoral Collaboration David McDaid and A-La Park 34. Enabling A Good Old Age For People Ageing With Disability: Reflections On Progress Christine Bigby and Michelle Putnam

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Book SynopsisDisability, understood as culturally stigmatized bodily difference (including physical and mental impairments of all kinds), is a pervasive and permanent aspect of the human condition. While the biology of bodily difference is the proper study for science and medicine, the meaning that we attach to bodily difference is the proper study of humanists. The interdisciplinary field of Disability Studies has recently emerged to theorize social and cultural constructions of the meaning of disability. Although there has been an astonishing outpouring of humanistic work in Disability Studies in the past ten years, there has been virtually no echo in musicology or music theory. Sounding Off: Theorizing Disability in Music is the first book-length work to focus on the historical and theoretical issues of music as it relates to disability. It shows that music, like literature and the other arts, simultaneously reflects and constructs cultural attitudes toward disability.<Table of ContentsContents Foreword Rosemarie Garland-Thomson 1. Introduction Neil Lerner and Joseph N. Straus Part I. Narrating disability musically 2. Fever / Fragile / Fatigue: Music, AIDS, Present, and … Paul G. Attinello 3. Of Bodies and Narratives: Musical Representations of Pain and Illness in HBO’s W;t Maria Cizmic 4. Female Subjectivity, Disability, and Musical Authorship in Krzysztof Kieslowski’s Blue Kelly Gross 5. Dancing out of the Dark: How Music Refutes Disability Stereotypes in Dancer in the Dark Jennifer Iverson 6. The Horrors of One-Handed Pianism: Music and Disability in The Beast with Five Fingers Neil Lerner Part II. Performing disability musically 7. Stuttering in American Popular Song, 1890-1930 Daniel Goldmark 8. Learning to Hear Autistically Dave Headlam 9. Glenn Gould, Autistic Savant S. Timothy Maloney 10. Using a Music-Theoretical Approach to Explore the Impact of Disability on Musical Development: A Case Study Adam Ockelford 11. Melisma as Malady: Cavalli’s Il Giasone (1649) and opera’s earliest stuttering role Andrew Oster 12. The Organ of the Soul: Voice, Damage and Affect Laurie Stras Part III. Composing disability musically 13. Les Chansons des fous: On the Edge of Madness with Alkan Poundie Burstein 14. Finding Autism in the Compositions of a Nineteenth-Century Prodigy: Reconsidering Blind Tom Wiggins Stephanie Jensen-Moulton 15. Beyond Abnormality—Dis/ability and Music’s Metamorphic Subjectivities Marianne Kielian-Gilbert 16. Mental Illness and Musical Metaphor in the First Movement of Berlioz’s Symphonie fantastique Stephen Rodgers 17. Inversional Balance and the Normal Body in the Music of Schoenberg and Webern Joseph N. Straus

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Book SynopsisThe onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be.This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism.With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes:â Contextualising disability activism in global aTrade Review"...there really is something in this collection for most and I would recommend it to novice and experienced scholars and activists alike. Any volume which prioritises disability rights is always going to be of value, particularly in such an insecure disablist world. However, in a post Covid-19 world the need to keep disability rights at the forefront of public consciousness in the context of human rights is even greater." -Lisa Davies, Asylum MagazineTable of ContentsList of contributors Acknowledgements PART IIntroduction – contextualising disability activism Introducing disability activism Maria Berghs, Tsitsi Chataika, Kudakwashe Dube & Yahya El-LahibA virtual roundtable: re/defining disability activism with emerging global South disability activists Tsitsi Chataika (ed.), Samantha Sibanda, Abraham Mateta & Krishna Bahadur SunarPART IINeoliberalism and austerity in the global North 1 The impact of neoliberal politics on the welfare and survival of chronically ill and disabled people Mo Stewart2 ‘These days are ours’: young disabled people’s experiences of activism and participation in social movements Miro Griffiths3 The links between models and theories to social changes as seen and understood by activists and academics: what works? Joanne Sansome4 Figures: an artist-activist response to austerity Liz Crow5 As technology giveth, technology taketh away John RaePART IIIRights, embodied resistance and disability activism 6 Exercising intimate citizenship rights and (re)constructing sexualities: the new place of sexuality in disability activism Alan Santinele Martino & Margaret Campbell7 ‘I show the life, I hereby express my life’: activism and art in the political debate between social movements and institutions on D/deaf bodies in ItalyFabrizio Loce-Mandes8 Resisting the work cure: mental health, welfare reform and the movement against psychocompulsion Denise McKenna, Paula Peters & Rich Moth9 My disability, my ammunition, my asset in advocacy work Tafadzwa RugohoPART IVBelonging, identity and values: diverse coalitions for rights 10 Disabled mothers of disabled children: an activism of our children and ourselves Liz Crow & Wendy Merchant11 Dementia as a disability Kate Swaffer, Brian LeBlanc & Peter Mittler12 Voices from survivors of forced sterilisations in Japan: Eugenics Protection Law 1948–1996 Nagase Osamu13 Indigenous SpeciesKhairani BarokkaPART VReclaiming social positions, places and spaces 14 Disability sport and social activism Damian Haslett & Brett Smith15 Naples in the hands: activism for aesthetic enjoyment Ciro Pizzo, Carmela Pacelli & Maria Grazia Gargiulo16 Pissed off!: disability activists fighting for toilet access in the UK Charlotte Jones, Jen Slater, Sam Cleasby, Gill Kemp, Eleanor Lisney & Sarah Rennie17 Mobility-as-occupation: non-confrontational activism in Trinidad and Tobago Sylette Henry-BuckmirePART VISocial media, support and activism 18 The tragedy of the hidden lamps: in search of disability rights activists from the global South in the digital era Nqobani Dube19 ‘With the knife and the cheese in hand!’: a virtual ethnography of the cyber-activist disabled movement in Brazil and its transnational impact Marco Antonio Gavério, Anahi Guedes de Mello & Pamela Block20 Australia’s treatment of Indigenous prisoners: the continuing nature of human rights violations in West Australian jail cells Hannah McGlade21 ‘Lchad Poland’ and the fight against inequality: the role of internet advocacy in cases of a rare genetic condition Anna Chowaniec-RylkePART VIICampus activism in higher education 22 Beyond random acts of diversity: ableism, academia & institutional sites of resistance Stephanie J. Cork, Beth Douthirt-Cohen, Kelly M. Hoffman, Paul T. Jaeger & Amanda Strausser23 At the margins of academia – on the outside, looking in: refusing, challenging and dismantling the material and ideological bases of academia Armineh Soorenian24 Sensitisation: broadening the agenda to ‘include’ persons with disabilities Pragya Deora25 Rainclamation: how installation art can reclaim space, transform collective suffering into poetic resistance and bring aesthetics to disabled viewers Erin DavenportPART VIIIInclusive pedagogies, evidence and activist practices 26 Zimbabwean disability activism from a higher education perch: an uncertain present but exciting future Martin Musengi27 Research as activism?: perspectives of people labelled/with intellectual and developmental disabilities engaged in inclusive research and knowledge co-production Ann Fudge Schormans, Heather Allan, Donavon O’Neil Allen, Christine Austin, Kareem Elbard, Kevin John Head, Tyler Henderson, Karrissa Horan-LaRoche, Rainbow Hunt, Nathan Gray, Rex Marchi, Donna McCormick, Romeo Dontae Tresean Biggz Pierre & Sean Rowley28 Reinventing activism: evidence-based participatory monitoring as a tool for social change Marcia Rioux, Paula Campos Pinto, Dagnachew Wakene, Rados Keravica & Jose VieraPART IXEnabling human rights and policy: transition: international politics 29 Implementation of CRPD in the post-Soviet region: between imitation and authenticity Egle Sumskiene, Violeta Gevorgianiene & Rasa Geniene30 Swedish disability activism: from welfare to human rights? Marie Sépulchre & Lars Lindberg31 Gendered disability advocacy: lessons from the Girl Power Programme in Sierra Leone Emma Frobisher, Willem Elbers & Auma Okwany32 ‘We need not remake the past’: rebuilding the disability movement in Toronto, Canada Melissa GrahamPART XConclusion – the coming challenges and future directions 33 Causes and effects of claims for rights: why mainstreaming in Africa matters Kudakwashe Dube34 Unsettling realities and rethinking displacement: transforming settlement services for refugees, migrants and people with intellectual disabilities Natalie Spagnuolo & Yahya El-Lahib35 Disability futures: activism futures and challenges Maria Berghs, Tsitsi Chataika, Yahya El-Lahib & Kudakwashe DubeIndex

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Book SynopsisThis book explores the complex, evolving relationships between men, masculinities, and social welfare in contemporary context.It is inspired by themes examined in Men, Gender Divisions and Welfare', an edited collection published in 1998 by Popay, Hearn, and Edwards. While international policy agendas reflect a growing commitment to critically addressing the relations between men, masculinities, and policy, in policy and popular discussions, societies continue to grapple with the question of what to do with men?' This question reflects an ongoing tension between the persistence of men's power and control over welfare and policy development, alongside their ostensible avoidance of welfare services. The collection constitutes an up-to-date account of the gendered and social implications of policy and practice change for men, and their inherent contradictions and complexities, tracing both stability and change over the past 25 years.This book will appeal to students Table of Contents1. Introduction: men and welfare in contemporary viewPART 1: Men, gender divisions, welfare, and socio-historical change2. Young men and young masculinities: a transnational dialogue3. Parenting and patriarchy in the pandemic4. Men, work, and care in the UK in the wake of COVID-195. Men beneficiaries of housing and/or trapped in Greek family welfarePART 2: Fathering and diversity: a welfare lens in international perspective6. ‘I have a hard time not worrying about my son’: an intersectional analysis of men’s narratives on the meaning and the practice of full-time fatherhood in the United States7. Being a father and a refugee: new social worlds of welfare and integration8. Divorced fathers in Sweden: changed models of parenting and fatherhood9. Unmarried fathers and shared parenting in ireland and beyond: a matter of justice or care?PART 3: Contexts for addressing men’s welfare10. Absence of value: masculinity, disability, social class and alternative provision11. Male victims of sexual violence and their welfare in the criminal justice system12. ‘You’re a number, you’re not a person’: the experiences of welfare protocols for men experiencing mental distress13. 'A man in an intimate relationship – between the uncompromising and the permissive': men's social position and willingness to stay in an unsatisfactory intimate relationship14. A systemic perspective on father engagement with child- and family-related social work interventions in Israel15. No room to change? fatherhood, masculinities and child welfarePART 4: Men and their welfare across the lifecourse16. Men’s welfare beyond the state: working fathers’ experiences of childcare within the family in Soviet Ukraine17. Loneliness and men’s welfare across the lifecourse: aligning approaches with masculinity, friendships, and relationships18. Social participation and social support practices of older men from minoritised ethnic groups: lessons for social isolation and loneliness initiatives19. Caring, old age, and masculinities: men’s experiences of caring and maintaining social connections in later life

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Book SynopsisThis book explores the complex, evolving relationships between men, masculinities, and social welfare in contemporary context.It is inspired by themes examined in Men, Gender Divisions and Welfare', an edited collection published in 1998 by Popay, Hearn, and Edwards. While international policy agendas reflect a growing commitment to critically addressing the relations between men, masculinities, and policy, in policy and popular discussions, societies continue to grapple with the question of what to do with men?' This question reflects an ongoing tension between the persistence of men's power and control over welfare and policy development, alongside their ostensible avoidance of welfare services. The collection constitutes an up-to-date account of the gendered and social implications of policy and practice change for men, and their inherent contradictions and complexities, tracing both stability and change over the past 25 years.This book will appeal to students Table of Contents1. Introduction: men and welfare in contemporary viewPART 1: Men, gender divisions, welfare, and socio-historical change2. Young men and young masculinities: a transnational dialogue3. Parenting and patriarchy in the pandemic4. Men, work, and care in the UK in the wake of COVID-195. Men beneficiaries of housing and/or trapped in Greek family welfarePART 2: Fathering and diversity: a welfare lens in international perspective6. ‘I have a hard time not worrying about my son’: an intersectional analysis of men’s narratives on the meaning and the practice of full-time fatherhood in the United States7. Being a father and a refugee: new social worlds of welfare and integration8. Divorced fathers in Sweden: changed models of parenting and fatherhood9. Unmarried fathers and shared parenting in ireland and beyond: a matter of justice or care?PART 3: Contexts for addressing men’s welfare10. Absence of value: masculinity, disability, social class and alternative provision11. Male victims of sexual violence and their welfare in the criminal justice system12. ‘You’re a number, you’re not a person’: the experiences of welfare protocols for men experiencing mental distress13. 'A man in an intimate relationship – between the uncompromising and the permissive': men's social position and willingness to stay in an unsatisfactory intimate relationship14. A systemic perspective on father engagement with child- and family-related social work interventions in Israel15. No room to change? fatherhood, masculinities and child welfarePART 4: Men and their welfare across the lifecourse16. Men’s welfare beyond the state: working fathers’ experiences of childcare within the family in Soviet Ukraine17. Loneliness and men’s welfare across the lifecourse: aligning approaches with masculinity, friendships, and relationships18. Social participation and social support practices of older men from minoritised ethnic groups: lessons for social isolation and loneliness initiatives19. Caring, old age, and masculinities: men’s experiences of caring and maintaining social connections in later life

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Book SynopsisSensory-being: the enveloping of natural presentness and awareness in an unfolding sensory moment. Sensory Beings: people whose experience of the world, and meaning within it, is primarily sensory. Often these are people who do not have access to language.If you support someone who understands the world in a primarily sensory way, for example someone with PMLD or later stage dementia, you will recognise that they often face periods of time in which they are left without an activity they can access. This unique, practical guide helps you to plan and deliver sensory activities that lead people into a calm, focused state. You are even invited to let the person you support lead you into a state of sensory focus. Written by a leading sensory specialist this book will help you to: View the world as the person you support may view it, and identify times when a sensory-being activity may be appropriate. Understand how to select and create the most engaging, low cost, sensory foci to suit the specific needs of the individuals in your care. Effectively facilitate sensory-being sessions from start to finish so that the people you care for receive the full and many benefits of calm, focused time. Tried and tested in a diverse range of settings prior to publication, these techniques and practical tools have already helped many people provide an enriched experience of life for those in their care. Throughout the book you will find numerous case studies and insights from parents, carers, special school practitioners, therapists, research institutions and more so that you can benefit from this broad body of experience.Trade Review"Her years of experience combined with intuition and learning have brought Jo, I think, as close as anyone can, to being able to ‘get’ what the world is like for sensory beings.The book starts with ‘introducing sensory beings’. This is full of theory with explanations pitched at the less scholarly (like me) but without at any point a single note of condescension. There are sublimely mind-opening explanations, such as in chapter 2, taking us through the ’getting wired group’; ‘the ‘search & discover group’; the ‘explore and connect group’ through to the ‘specialising group’. They really make sense and ring true. And she’s managed to slip in a load of real science of how the brain works without frightening me away!She enables (for me anyway) a new and different kind of respect for sensory beings, through describing their world. Her analogies (learning the properties of metal; learning the useful sounds for a language) helped my understanding – and that’s just two from one page! It’s not that I didn’t have respect for sensory beings, but this book has given me a better lens through which to see them.Jo brings many insights into the best practice that should be out there – explaining why I am seeing what I'm seeing when I encounter the very best practice. I got a lot from the ‘practitioner insight’ boxes which are scattered throughout, as well as the many short case studies – some of them so inspiring!She uses wonderful phrases and descriptions which made me stop and think. ‘Parked time’ as an example – something that has long bothered me – but now I have the language for it and more ideas of what to do about it.Along with the glow I felt, reading Jo’s book, the satisfaction of learning and understanding more, there’s also the feeling of being pulled up sharply sometimes. She doesn’t pull her punches when questioning practice. And this is great too. At my school we have ‘The WHY imperative’, and Jo’s book supports this – asking why we are doing what we are doing at every point. Except Jo knows so much more than me about what works and why it does, and there are pearls of (hard-earned) wisdom throughout.Chapters 3 to 8 on stimuli for the senses are just astonishing – so many things to think about! However, Jo has made this digestible with a very clever and perceptive way of laying out all the ideas. (My feeling is that she has used her knowledge of the brain to work out what’s best for her readers!) Her idea works – there is an order – but, and this is close to my heart – it’s ‘not that you should seek to push people forwards’. It is that ‘in locating one experience tht appeals to an individual, you can look nearby in the sequence to find others also likely to appeal’. Typical Jo, common sense but brilliantly well thought-out common sense! As you’d expect, the chapters on making resources and facilitating time with sensory beings are creative and insightful – and cheap!! This book is written by someone with an outstanding intuition – but it’s more than that, it’s intuition with years of research, experience and a highly developed intelligence behind it. It’s a thoroughly human book, personal and thoughtful throughout. It’s also, without feeling like it is, a scholarly book, based on research. I feel a better practitioner already just for having read it. Congratulations, Jo." - Simon Yates, Leading Special School Practitioner"It's an inspired book written by someone who really "gets" it and is also able to share it. The respect she has for all humankind is so evident. I particularly loved Jo's use of language and her terminology. As a linguistic being, she has given me the tools to enable me to develop my thoughts and understanding" - Gill Warren, Special School Teacher"I enjoyed reading ‘Sensory-Being for Sensory Beings’ so much it was hard to put down! I read with delight that I, who have spent 30 years in a special school, have read something which puts into words all I believe in when it comes to planning and delivering sensory experiences. Words that can be used when justifying what I want to do, words that can be used to explain to why?, how? when others look at you as if you are from a different planet!It is a book I will definitely recommend to new staff, particularly those that have little or no experience of SEN or in deed PMLD." – Janet O'Sullivan Special School Teacher"Sensory Being for Sensory Beings outlines one technique amongst many which might help our learners connect with, learn and feel safe within their environments. It shows the importance of sensory stimulation, using and engaging the senses and being respectful and responsive to our learners’ independence and time." - Katherine Shearer, the SLD experience"With clear boundaries and well-placed words of encouragement, this book is as much a soothing massage for the brain (and the senses!) as it is a brilliant handbook for the classroom or home. Every EYFS setting should be using this daily." - EarlyArtsTable of ContentsIntroduction Chapter 1: Introducing Sensory Beings, Linguistic Beings and sensory-being Chapter 2: Sensory engagement and experience Chapter 3: Stimuli for the visual sense Chapter 4: Stimuli for the olfactory sense Chapter 5: Stimuli for the auditory sense Chapter 6: Stimuli for the gustatory sense Chapter 7: Stimuli for the tactile sense Chapter 8: Stimuli for the proprioceptive and vestibular senses Chapter 9: Foci for Sensory Beings with Dementia Chapter 10: Sensory makes Chapter 11: Facilitating sensory-being Chapter 12: Conclusion Appendices

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Book Synopsis“A renowned geneticist races against time to diagnose a malady that landed at his door… A complex, well-related story of medical detective work.” --KIRKUS   At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist after specialist, where at one point his 6'3' frame dropped to 115 lbs. For years, he underwent endless medical tests, but doctors told him there was nothing wrong. Then, finally, a diagnosis: Chronic Fatigue Syndrome, also known as myalgic encephalomyelitis.In the 80s, when an outbreak of people immobilized

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Book SynopsisThrough parenting a child with a disability, a father discovers patience, acceptance, and unconditional love.Trade Review"A riveting book: honest, fierce, and complex…A beautifully crafted, complex investigation into what it means to be fully human and fully loved, both as a parent and as a child. Everyone should read this book." -- Virginia Holman, author of Rescuing Patty Hearst: Growing Up Sane in a Decade Gone Mad"Parents of special-needs kids will find this story particularly inspiring, and its universal message of love and acceptance should speak to a much wider audience." -- Publishers Weekly"Beautiful Eyes is honest, sensitive, exquisitely observed. A memoir not just for the immediate family of a child with Down syndrome, but for the whole human family." -- Peggy Payne, author of Sister India"An unflinching look at [Paul’s] parenting experience… Paul’s book can help families in similar situations feel less isolated." -- Corbie Hill - Seattle Times

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Book SynopsisA New York Times Editors' Choice A Washington Independent Review of Books Favorite Book of 2021 A writer’s humorous and often-heartbreaking tale of losing his sight—and how he hid it from the world.Trade Review"It’s been a long time since I met such a thoroughly normal guy in a memoir…I’d buy him a beer anytime." -- Dwight Garner, New York Times"The Story of My Life by Helen Keller, Angela's Ashes by Frank McCourt, The Liars' Club by Mary Karr, Joan Didion's The Year of Magical Thinking, and I Know Why the Caged Bird Sings by Maya Angelou are among the memoirs that leave you breathless; they're books you keep and don't pawn off on your neighbor's yard sale. Now comes another keeper: Blind Man's Bluff by James Tate Hill." -- Kitty Kelley, Washington Independent Review of Books"Hill sketches these scenes in a spare, fuss-free way…[Y]ou root for him to hold on to the little bit of joy he's found—the colors in his life, for once, sharp and bright" -- Tommy Tomlinson, New York Times Book Review"A beautiful, sad, frustrating story about how frustrating, sad and beautiful life can be…[A] triumph." -- Ben Tanzer, Lit Reactor"Hill's honesty is endearing…The story he tells in Blind Man's Bluff is, to be sure, one of living with and not being defined by a disability. It's also much more, a story that should resonate with anyone who's just trying to figure out what life is all about." -- Linda C. Brinson, Greensboro News & Record"Disarmingly honest and funny…An inspiring, often incredible story that reminds us of the strength that come from vulnerability." -- Bookpage"A coming-of-age story worthy of its hero’s stellar VHS collection of ’80s and ’90s movies. Hill’s journey toward learning to live with his blindness will have you wincing, crying, sighing, and cheering right along with him—not to mention sharing in his love of Molly Ringwald, The Golden Girls, Prince, and Tom Cruise." -- Jennifer Keishin Armstrong, best-selling author of Seinfeldia"Told with humor and grace, Blind Man’s Bluff is a story of reinventions—ones both enormous and minute, ones both forced and earned. It’s also an education, and an illumination." -- Rebecca Makkai, Pulitzer Prize–finalist author of The Great Believers"Compelling and honest, James Tate Hill writes of the isolation, confusion, and longing for connection, which is what it means to be human. A gripping and unflinching journey of love, acceptance, and finding the courage to tell your own story." -- Alison Stine, author of Road Out of Winter"Reading Blind Man’s Bluff is like going out for coffee with your funniest friend. It’s also about which Golden Girl you’d most want your doctor to resemble, assuming that your doctor must resemble a Golden Girl. (The answer is Dorothy. Obviously.) It’s a smart, thoughtful, and hilarious book, and it will engage you from the first page to the last." -- Best-selling writer Carolyn Parkhurst, author of Harmony"Once I started reading, I couldn’t stop. Hill’s narratives on disability, pop culture, and just getting through life are filled with heartbreak, humor, and hope." -- Beth (Bich Minh) Nguyen, author of Stealing Buddha’s Dinner"Stirring…This moving account doesn't disappoint." -- Publishers Weekly

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Book SynopsisThe must-have New York Times bestseller that tells you what to do now for a child with autism, ADD, ADHD, OCD, and other disorders For any child with challenges, early intervention is essential and parents need a plan that they can implement right away. Jenny McCarthy, one of the country's leading autism advocates, has teamed up with top autism specialist Jerry Kartzinel, M.D., to offer a prescriptive guide to the healing therapies and treatments that have turned the lives of so many children around. While autism cases have grown a whopping 6000 percent since the 1970s, the medical community is still waking up to the epidemic and parents need tools to begin healing their children and educating their doctors, instead of waiting six months to a year to get an appointment with a specialist. In this book, parents will learn about the following: •The biomedical diet and supplement protocol •Where to find alternative therapies and how to i

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Book SynopsisOn paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know--in fact, he’s probably unlike any other person you know.Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.Many people look at Rob and see limitation, yet Rob sees opportunity: Opportunity to pursue his passion for football. Opportunity to change the way people perceive physical disability. Opportunity to serve as a role model for the hundreds of kids he’s coached over the years.Told with both humor and frankness, Who Says I Can’t? takes readers on Rob’s incredible journey, from his birth to loving parents who wanted to afford him every chance for happiness, tTrade Review'As the person who spent a full year with Rob documenting his every move for our ESPN documentary, I was shocked at how much more I learned about Rob and his journey. To anyone who has ever doubted themselves -- Rob's memoir is a must read!' - KRISTEN LAPPAS, Producer/Director ESPN FILMS'Coach Rob's story of overcoming adversity to achieve his dreams reminds us of the power we have as individuals to inspire those around us.' - DONALD DRIVER, Green Bay Packers All-Time Leading Receiver, Super Bowl Champion, Dancing with the Stars Champion and New York Times Bestselling Author'Even as ESPN and other media began to take an interest in Mendez's life, he emphasizes that, though his circumstances were extraordinary, he's more than just 'a limbless man who also happen[s] to be a football coach.' Readers will be riveted by this inspiring story.' -- Publishers Weekly'Born without limbs, this inspiring author shares tales from his life as a high-school football coach in the Bay Area. Now 32, Mendez became well known in 2019, when ESPN released a documentary about him, Who Says I Can't? Supported by remarkable parents who help him focus on what he can do, he doesn't dwell on how he needs help with everyday tasks. He knows that he's never going to be able to play football, but he sure can coach it and help young people realize their potential. Mendez's success earns him ESPN's Jimmy V Award, named after Jimmy Valvano, the North Carolina State basketball coach and TV broadcaster who was known for perseverance. Like Valvano, Mendez believes people need to do three things every day--laugh, think, and cry (tears of happiness count). 'Crying means you care,' he says. Mendez also writes about how he turns to the Bible for guidance. This memoir is also a love letter to football as Mendez clearly adores its intricacies along with the young players who embrace him and the sport.' * Booklist *'Who Says I Can't inspires us all to push through setbacks and never give up on our dreams.' - TOM BRADY, Seven-Time Super Bowl Champion, Four-Time Super Bowl MVP, Three-Time NFL MVP

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Book SynopsisThe idea to write to you was not an easy one. The scar from where the bullet entered my back is still there.   Jerry McGill was thirteen years old, walking home through the projects of Manhattan’s Lower East Side, when he was shot in the back by a stranger. Jerry survived, wheelchair-bound for life; his assailant was never caught. Thirty years later, Jerry wants to say something to the man who shot him.   I have decided to give you a name. I am going to call you Marcus.   With profound grace, brutal honesty, and devastating humor, Jerry McGill takes us on a dramatic and inspiring journey—from the streets of 1980s New York, where poverty and violence were part of growing up, to the challenges of living with a disability and learning to help and inspire others, to the long, difficult road to acceptance, forgiveness, and, ultimately, triumph.   <

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Book SynopsisTrade Review"Chiropractor Sinett offers a clearly written guide to his profession's perspective on relieving back pain. His version of this approach, the "Sinett Solution," is a three-part method, which treats structural, digestive, and emotional issues separately. The book consists of four sections, the first devoted to determining which categories of back pain apply, as well as reasons why previous treatments might have failed, such as incorrect diagnoses. In section two, Sinett delves into structural causes, distinguishing between localized issues where the problem is at the site of pain, and compensatory issues involving a "global spinal reaction" (as is often the case, in his opinion.) For remedies, Sinett includes detailed pictures of stretches and correct posture. Section three evaluates the effect of poor digestive function and provides dietary advice for eating well, complete with shopping lists and menus. The final section examines how emotional conflict and pressures can cause stress to manifest as back pain and includes relaxation exercises and "laws" for taking care of one's emotional health. Sinett has provided back-pain sufferers with a thoughtful and thorough approach to improving their health, in both body and mind." Publishers Weekly

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Book SynopsisParents, building on that foundation and acknowledging each person's contributions, interests, and aspirations, create an inclusive and resilient family.Trade ReviewThe authors show families how to be pragmatic and inclusive when solving problems and setting expectations. The real family stories and personal experiences of the authors, one of whom has such a disability, create an intimate and nonjudgmental tone with a degree of optimism that parents are likely to appreciate. A valuable resource for families looking for encouragement as they try to create an inclusive environment for their child with a physical disability. Library Journal I would highly recommend Just One of the Kids: Raising a Resilient Family When One of Your Children Has a Physical Disability as an addition to the library of any family that includes a child with a physical disability, as well as being a valuable resource to grandparents, extended family members, friends, and health care professionals who are part of this community. -- Sandra E. James Journal of Child and Family Studies This book is ideal for any parents or carers who are caring for children with physical disabilities. -- Emma Connolly Nursing TimesTable of ContentsPrefaceIntroduction: Raising Children—Resilient and Ready for AdulthoodPart I: In the BeginningThe Webers: A young family juggles the needs of twin boys, one with and one without a physical disability1. Getting the NewsThe Hamiltons: Raising teenagers in a blended family with humor, responsibility, and respect for differences2. Coming HomePart II: All in the FamilyThe Bowers: An athletic couple sort out what works for them in raising their only child, a serious student and accomplished wheelchair athlete3. Inclusive Parenting: Make It Work for YouThe Fishers: Parents working together to build family unity and protect their children while allowing them to take healthy risks4. Brothers and Sisters: Siblings Sharing Family Life with Physical Disability in the MixThe Brandons: A family devoted to faith, education, and unconditional love, inspired by Grandfather's example and bolstered by his support5. Grandparents: Seeing through a New LensPart III: Into the Wide WorldThe Sheridan-Wolfe Family: Two women build their family by adoptingchildren who have complex disabilities and helping them reach their potential6. Opening Doors to InclusionThe O'Briens: Parents working together to help their daughters develop individual talents, support one another, and practice their faith7. Letting One Dream Go to Let Another GrowResourcesNotesIndex

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Book SynopsisWhen their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being. For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows. The new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classiTable of ContentsForeword, by Joan Lenett WhinstonPrefaceAcknowledgmentsPART I.1. What Is Cerebral Palsy?2. An Overview of Early Child Development3. Medical Problems Associated with Cerebral Palsy4. Intellectual, Psychological, and Social Development5. Hemiplegia6. Diplegia7. Quadriplegia8. The Adult with Cerebral Palsy9. How the Health Care System Works10. Financing Care for the Child with Cerebral Palsy11. Navigating the Educational System12. Being an Advocate for Your ChildPART II.Taking Care of Yourself When You Care for OthersProtecting the Caregiver's Back: Basic Body MechanicsMaking Things Easier for You and Your ChildChoosing Appropriate SeatingChoosing and Using Car SeatsAbout Wheelchair MaintenancePressure Management AwarenessChoosing a StanderAbout Walkers and Gait TrainersAbout BracesChoosing the Correct ShoesIncreasing Independence with Service DogsManaging the SystemWorking with a Case ManagerLetters of Medical NecessityOccupations for Adults with Cerebral PalsyAbout HospitalizationKeeping Medical History RecordsLife Planning ProcessAbout CastsUsing Nutritional BoostersManaging Tube FeedingsProviding Oral CareToilet Training Your ChildGiving an EnemaGiving Rectal Medications or SuppositoriesSuctioning TechniquesPART III.From Achilles Tendon Lengthening to Vocational RehabilitationResourcesIndex

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Book SynopsisA fascinating book that is much more than a tragic personal story, more than a picture of how brain injuries will strain relationships with family, co-workers, health care professionals and a legal system not adequately empowered to respond to an individual's needs, let alone the thousands who have suffered long after their initial injury. All too often it seems few are able to overcome the adversities of such situations, to move on with their life, or to ultimately find a peace within themselves… but Alan J Cooper has done that with this book, reflecting on his life, so that his words may offer help and guidance to the many brain-injured people and their loved ones.Trade Review“Author Alan Cooper has found a form for real meaning as a brain-injured person. His story should be a must read for every health care professional.” —Laura Ford, Doctor of Education in Applied Psychology“Alan J. Cooper has captured the complex and intertwining tragedies of a brain-injured person . . . Brain Injury should be a mandatory reading for every Canadian and U.S. lawyer and student of law whose actions affect brain-injured persons.” —Anne Simpson, Q.C.

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