Disability: social aspects Books

Book SynopsisThis third edition of the leading textbook on personalisation considers key policy changes since 2009 and new research into the extension and outcomes of personal budgets. It is essential reading for students, practitioners and policy makers in social work and community care services.Trade Review"This book is essential reading for everyone involved in adult social care." British Journal of Social Work"A reminder of the optimistic origins of direct payments and personal budgets and an engaging account for new social workers of how these fit with the profession's origins and skills." Jill Manthorpe, Kings College London“This book is important to all who need to understand individuals’ rights to independence.” Community CareTable of ContentsIntroduction; History; Direct payments; The lessons of direct payments; Personal budgets; The lessons of personal budgets; Advantages of DP/IB; Possible barriers; Conclusion.

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Book SynopsisBringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).Trade Review“Jan Walmsley and Simon Jarrett have exercised a global reach in collecting diverse perspectives on the ways twelve nations have engaged the challenge of supporting people with intellectual disabilities to take their rightful place as citizens. The result is a gift to scholars and advocates alike.” John O’Brien, The Learning Community for Person Centered PracticesTable of ContentsIntroduction ~ Jan Walmsley, Simon Jarrett; Paradoxical Lives: Intellectual Disability Policy and Practice in Twentieth Century Australia ~ Lee-Ann Monk; Tracing the Historical and Ideological Roots of Services for People with Intellectual Disabilities in Austria ~ Gertraud Kremsner, Oliver Koenig and Tobias Buchner; Time of Paradoxes: What the Twentieth Century was like for People with Intellectual Disabilities living in Czechoslovakia/Czech Republic ~ Monika Mužáková and Iva Strnadová; Intellectual Disability in Twentieth-Century Ghana ~ Jane Abraham and Auberon Jaleel Odoom; A Greek Neverland: The History of the Leros Asylums' Inmates with Intellectual Disability (1958-95) ~ Danae Karydaki; Intellectual Disability in Hong Kong: Then and Now ~ Phyllis King Shui Wong; People with Intellectual Disabilities in the European Semi-Periphery: The Case of Hungary ~ Ágnes Turnpenny; People with Intellectual Disabilities in Iceland in the Twentieth Century: Sterilization, Social Role Valorization and ‘Normal Life’ ~ Guðrún Stefánsdóttir; Institutionalisation in Twentieth-Century New Zealand ~ Carol Hamilton; ‘My Life in the Institution’ and ‘My Life in the Community’: Policies and Practice in Taiwan ~ Yueh-Ching Chou; Intellectual Disability Policy and Practice in Twentieth-Century United Kingdom ~ Simon Jarrett and Jan Walmsley; From Social Menace to Unfulfilled Promise: The Evolution of Policy and Practice toward People with Intellectual Disabilities in the United States ~ Philip M. Ferguson.

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Book SynopsisBringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).Table of ContentsIntroduction ~ Jan Walmsley, Simon Jarrett; Paradoxical Lives: Intellectual Disability Policy and Practice in Twentieth Century Australia ~ Lee-Ann Monk; Tracing the Historical and Ideological Roots of Services for People with Intellectual Disabilities in Austria ~ Gertraud Kremsner, Oliver Koenig and Tobias Buchner; Time of Paradoxes: What the Twentieth Century was like for People with Intellectual Disabilities living in Czechoslovakia/Czech Republic ~ Monika Mužáková and Iva Strnadová; Intellectual Disability in Twentieth-Century Ghana ~ Jane Abraham and Auberon Jaleel Odoom; A Greek Neverland: The History of the Leros Asylums' Inmates with Intellectual Disability (1958-95) ~ Danae Karydaki; Intellectual Disability in Hong Kong: Then and Now ~ Phyllis King Shui Wong; People with Intellectual Disabilities in the European Semi-Periphery: The Case of Hungary ~ Ágnes Turnpenny; People with Intellectual Disabilities in Iceland in the Twentieth Century: Sterilization, Social Role Valorization and ‘Normal Life’ ~ Guðrún Stefánsdóttir; Institutionalisation in Twentieth-Century New Zealand ~ Carol Hamilton; ‘My Life in the Institution’ and ‘My Life in the Community’: Policies and Practice in Taiwan ~ Yueh-Ching Chou; Intellectual Disability Policy and Practice in Twentieth-Century United Kingdom ~ Simon Jarrett and Jan Walmsley; From Social Menace to Unfulfilled Promise: The Evolution of Policy and Practice toward People with Intellectual Disabilities in the United States ~ Philip M. Ferguson.

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Book SynopsisEstablishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the experiences of two groups rarely considered together in research people ageing with long-term disability and people first experiencing disability with ageing.Table of Contents1. Introduction Part 1: The context for disablement in older age 2. Defining disability 3. Literature: ageing, disability and lifecourse 4. Public policies on ageing and disability Part 2: Empirical findings 5. Disabling bodies 6. Disabling or enabling contexts 7. Responding to challenges 8. Comparison: disability with ageing and ageing with disability 9. Conclusion Methodological annexe

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Book SynopsisEstablishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the experiences of two groups rarely considered together in research people ageing with long-term disability and people first experiencing disability with ageing.Table of Contents1. Introduction Part 1: The context for disablement in older age 2. Defining disability 3. Literature: ageing, disability and lifecourse 4. Public policies on ageing and disability Part 2: Empirical findings 5. Disabling bodies 6. Disabling or enabling contexts 7. Responding to challenges 8. Comparison: disability with ageing and ageing with disability 9. Conclusion Methodological annexe

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Book SynopsisThe devolution of social care policy has led to key differences emerging between the UK's four care systems. This book presents research on the perspectives of social care policy makers within the UK's four care systems, concluding that when given equal capacity to reform, the systems in each nation may take radically different shapes.

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Book SynopsisDrawing on her own experiences with late-onset disability and its impact on her sex life, along with her expertise as a cultural critic, Jane Gallop explores how disability and aging work to undermine one''s sense of self. She challenges common conceptions that equate the decline of bodily potential and ability with a permanent and irretrievable loss, arguing that such a loss can be both temporary and positively transformative. With Sexuality, Disability, and Aging, Gallop explores and celebrates how sexuality transforms and becomes more queer in the lives of the no longer young and the no longer able while at the same time demonstrating how disability can generate new forms of sexual fantasy and erotic possibility.Trade Review"For Gallop, theory offers solace in the face of life’s difficulties, and the book is often quietly moving. . . . Her use of theory isn’t about blowing up previous thought; it’s about finding consolation, which literature or philosophy is often said to provide." -- Jeffrey J. Williams * Chronicle of Higher Education *“Overall, Sexuality, Disability, and Aging presents an insightful yet accessible analysis that combines wide-ranging theoretical work with rich interpretive material to carefully reveal the phallic temporalities that underpin contemporary stereotypes of aging and late-onset disability as sexual decline. The book’s cross-cutting relevance means that it will find productive readership across a wide range of scholars interested in queer, crip, gerontological, literary, feminist, or psychoanalytic theory.” -- Kazuki Yamada * Journal of Bodies, Sexualities, and Masculinities *"An inventive and captivating piece of scholarship. Bolstered by its original findings and the intricate theoretical maneuvers that Gallop makes throughout this text, the book is poised to be a valuable resource for scholars in the fields of queer theory, critical gerontology, and disability studies." -- Kyle Christensen * Women's Studies in Communication *"Sexuality, Disability and Aging is a vital read for those interested in disability and sexuality as it contributes to indispensable discussions whilst simultaneously offering an alternative framework with which to aid progression within the field. . . . Gallop has compiled an accomplished text which is forward-thinking, unorthodox and paves the way for further discourse within the realms of disability, and for this, she must be commended." -- Bev Pollitt * Disability & Society *“Gallop’s willingness to reflect critically on her own experiences and reactions . . . reinvigorates feminist psychoanalytic theory, but also productively bridges the silences around aging and late-onset disability endemic to both disability studies and queer theory.” -- Sarah Rainey-Smithback * Hypatia *"Gallop makes an important intervention in the study of late life sexuality by connecting it to radical, queer, and alternative temporalities. . . . It is my hope, and dare I assume Gallop’s hope as well, that this work serves as one of the foundational texts for an expanding collection of work that examines sexuality, disability, and aging through the lenses of crip, queer, aging, and feminist theory." -- Hailee Yoshizaki-Gibbons * Poetics Today *Table of ContentsAcknowledgments 1x Introduction: Theoretical Underpinnings 1 Crip Theory 1 Aging and Queer Temporality 5 Aging and the Phallus 13 The Queer Phallus 20 Anecdotal Theory 25 1. High Heels and Wheelchairs 31 The Story 31 The Ending 36 City Sidewalks 40 Feminism and High Heels 46 Gender and Disability 52 The Phallus in the Wheelchair 58 The Ending (Reprise) 64 2. Post-prostate Sex 67 The Story 67 Strange Temporalities 74 Pre-cum and the Coital Imperative 81 Resisting the Coital Imperative 92 Longitudinal Sexuality 95 Conclusion 103 The Phallus and Its Temporalities 103 Longitudinal Identities 107 Notes 113 Bibliography 127 Index 133

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Book Synopsis “We each have Skype accounts and use them to discuss [Moby-Dick] face to face. Once a week, we spread the worded whale out in front of us; we dissect its head, eyes, and bones, careful not to hurt or kill it. The Professor and I are not whale hunters. We are not letting the whale die. We are shaping it, letting it swim through the Web with a new and polished look.”—Tito Mukhopadhyay Since the 1940s researchers have been repeating claims about autistic people''s limited ability to understand language, to partake in imaginative play, and to generate the complex theory of mind necessary to appreciate literature. In See It Feelingly Ralph James Savarese, an English professor whose son is one of the first nonspeaking autistics to graduate from college, challenges this view. Discussing fictional works over a period of years with readers from across the autism spectrum, Savarese was stunned by the readers'' ability to expand Trade Review"Impassioned and persuasive. . . . A fresh and absorbing examination of autism." * Kirkus Reviews *"This idealistic argument for the social value of literature and for the diversity of autism as a condition is a rewarding endeavor. . . ." * Publishers Weekly *"This is a powerful book — one that really must be experienced. It is a book that unlocks doors to the many rooms of autism and is likely to surprise the thinking of anyone who steps into them. It carries within it the possibilities of new perspectives on literary work, a greater understanding of autistic neurology, and the chance to meet some remarkable individuals. Read it." -- Michael Northen * Wordgathering *"Savarese has produced a masterpiece, simultaneously dense and accessible. His voice moves freely—alternating among lyrical, narrative, and instructive—never losing the flow, never dipping into pedantry, never soaring too far toward the abstract for the reader to follow. Not only is this collection of essays brimming with the most important information and ideas about autism, it is a collaboration of rare beauty." -- Maxfield Sparrow * Thinking Person's Guide to Autism *"Savarese shows that literature—with its imagery, inclusivity, and rich detail—is a natural tent pole for a truly neurodiverse community, one populated by autists and neurotypicals alike. . . . The radical possibility this book ultimately offers is that the gap that has for so long existed between nonverbal autists and neurotypicals can be bridged through literature. Literature is, as Whitman said of himself, large, and contains multitudes." -- Ittai Orr * Synapsis *"Readers will find this book to be a work of art as Ralph Savarese not only exhibits an understanding of the beauty of teaching but also of the language of the autistic mind. Savarese’s literary creation demystifies the limits of the autistic mind by following five autistic adults through their interpretation of and response to classic literature. . . . Highly recommended. Advanced undergraduates and above; professionals and general readers." -- D. Pellegrino * Choice *"The sense of critical self-reflection is crucial to this enterprise, and is evident throughout the book. Thankfully, this never veers into self-indulgence; as such, [Savarese's] ethnographic work in this area is an exemplar to all those who study ‘others,’ as outsiders with situated knowledge." -- Alison Wilde * Disability & Society *"To imagine an autistic rhetoric or an autistic literature is to struggle, audaciously, against a legacy of neurotypical people failing to imagine autism as anything other than lack. That struggle is joined . . . by Ralph [James] Savarese, whose See It Feelingly gives us five extraordinary examples of autistic readers’ responses to literature. It’s like Norman Holland’s classic work of reader-response criticism, 5 Readers Reading . . . except with autism." -- Michael Bérubé * Public Books *"Powered by his enthusiasm for connecting with autistics and for representing the fullness of their humanity, See It Feelingly is that rare book in English studies that succeeds as creative nonfiction: a memoir of teaching non-traditional learners that makes a provocative claim for the primacy of the senses in reading literature." -- Dawn Coleman * Leviathan *"Savarese incorporates storytelling, memoir, and poetry into See It Feelingly, which you will read feelingly, from the opening line." -- Deborah Jenson * American Literature *"... See it Feelingly is a wonderful addition to contemporary work being done in critical autism studies and accessible education." -- Jennifer Marchisotto * Disabilities Studies Quarterly *Table of ContentsForeword / Stephen Kuusisto xi Acknowledgments xv Introduction 1 Prologue: River of Words, Raft of Our Conjoined Neurologies 15 1. From a World as Fluid as the Sea 23 2. The Heavens of the Brain 57 3. Andys and Auties 86 4. Finding Her Feet 122 5. Take for Grandin 155 Epilogue 191 Notes 197 Bibliography 247 Index 261

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Book SynopsisIn this revised and expanded edition of Medicine Stories, Aurora Levins Morales weaves together the insights and lessons learned over a lifetime of activism to offer a new theory of social justice, bringing clarity and hope to tangled, emotionally charged social issues in beautiful and accessible language.Trade Review"Morales’s book is an excellent tool for understanding some of the dynamics of social justice movements and should be part of activists’ survival kits against despair." -- Nylca J. Muñoz Sosa * Monthly Review *“Perhaps the most directly significant contribution of Medicine Stories...is Levins Morales’s framing of oppression as the most widespread and systematically reproduced source of trauma.... Medicine Stories maps the intimate and collective pathways of survival that communities and individuals find in the face of violence and injustice....” -- Corinne Lajoie * Journal of Literary & Cultural Disability Studies *Table of ContentsLibation v The Ground on Which I Stand Ecology Is Everything 3 Bigger Is Better 10 My Feminism 18 Identity and Solidarity 34 The Power of Story 42 The Truths Our Bodies Tell 47 The Historian as Curandera False Memories: Trauma and Liberation 55 The Historian as Curandera 69 Night Flying: Power, Memory, and Magic 89 What Race Isn't: Teaching about Racism 95 Raícism: Rootedness as Spiritual and Political Practice 99 The Politics of Childhood 104 Speaking in Tongues On Not Writing English 111 Forked Tongues: On Not Speaking Spanish 115 Certified Organic Intellectual 121 Ban Me! 127 Tribes The Tribe of Guarayamín 133 Taíno Citizenship 140 Speaking of Antisemitism 145 BDS and Me 154 Puerto Ricans and Jews 157 Privilege and Loss Class, Privilege, and Loss 175 Nadie la Tiene: Land, Ecology, and Nationalism 179 Torturers 192 Histerimonia: Declarations of a Trafficked Girl, or Why I Couldn't Write This Essay 197 The Long Haul Building Radical Soil 207 Circle Unbroken: The Politics of Inclusion 211 Tai: A Yom Kippur Sermon, 5778/2017 217 A Note From the Author 223 Index 225

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Book SynopsisFor almost sixty years, media technologies have promised users the ability to create sonic safe spaces for themselves—from bedside white noise machines to Beats by Dre''s “Hear What You Want” ad campaign, in which Colin Kaepernick''s headphones protect him from taunting crowds. In Hush, Mack Hagood draws evidence from noise-canceling headphones, tinnitus maskers, LPs that play ocean sounds, nature-sound mobile apps, and in-ear smart technologies to argue the true purpose of media is not information transmission, but rather the control of how we engage our environment. These devices, which Hagood calls orphic media, give users the freedom to remain unaffected in the changeable and distracting spaces of contemporary capitalism and reveal how racial, gendered, ableist, and class ideologies shape our desire to block unwanted sounds. In a noisy world of haters, trolls, and information overload, guarded listening can be a necessity for self-care, but Hagood arguTrade Review"Hagood points out that we now often talk about personal freedom in terms of what we don’t have to listen to, and he focusses, in the book, on our efforts to navigate sonic nuisances, and also the paradox of combating sound with more sound, in a world that has become loud enough to damage our health. . . . The stakes of Hush might seem small . . . But, once you begin to think about the relationship between the sound waves that constantly pass through us and the potential loss of self, you become more attuned to all the beckoning noises of modern life." -- Hua Hsu * The New Yorker *"Hush is provocative and insightful." -- Stephen Phillips * The Wire *"Hagood leaves us rethinking media theory, sound studies, and the definition of media." -- John F. Barber * Leonardo Reviews *"Hush is an important addition to the emerging field of sound studies. . . . Scholars of sound studies, digital media, broadcast media, disability studies, and those interested in the intersection of gender and race with media will find this book insightful." -- Jennifer Hyland Wang * Journal of Radio & Audio Media *Table of ContentsAcknowledgments vii Introduction. Hearing What We Want 1 Part I. Suppression 29 1. Tinnitus and Its Aural Remedies 31 Part II. Masking 73 2. Sleep-Mates and Sound Screens: Sound, Speed, and Circulation in Postwar America 75 3. The Ultimate Seashore: Environments and the Nature of Technology 116 4. A Quiet Storm: Orphic Apps and Infocentrism 148 Part III. Cancellation 175 5. Bose QuietComfort and the Mobile Production of Personal Space 177 6. Beats by Dre: Race and the Sonic Interface 198 Conclusion. Wanting What We Hear 220 Notes 235 References 245 Index 261

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Book SynopsisIn Black Madness :: Mad Blackness Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler''s Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson''s Midnight Robber theorizes mad Blackness and how Due''s African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigTrade Review"This book presents a valuable contribution to several disciplines. Recommended. Upper-division undergraduates through faculty." -- T. N. Allen * Choice *"Black Madness :: Mad Blackness is what happens when you get to take the road less traveled with a professional driver or go deep into the weeds with an expert botanist. You may feel out of your depth, but you’re assured by the fact that your traveling companion is extremely knowledgeable. . . . Pickens has called us all outside to play, to think deeply and without eventuality, to consider Blackness and madness – dare I say –irreverently, and we are all the better for it." -- Moya Bailey * Black Perspectives *“Pickens’s Black Madness :: Mad Blackness invites the reader to think about race and disability in Black American literature.... [It] invite[s] us to enter into what Pickens calls a ‘politics of curiosity,’ one that moves beyond dominant forms of mythmaking or the living nightmares of the carceral state, and to see the constellation of Black life, the impulse to rectify freedom and break the confines of mass incarceration.” -- Edna Bonhomme * Public Books *"A timely reimagination of how we read the intersection of Blackness and disability, opening up further possibilities for anti-ableist and anti-racist futures." -- Rhya Moffitt Brooke * MELUS *Table of ContentsPreface or About Face, Giving Face ix Introduction. What's Good? 1 Conversation 1. Making Black Madness 23 Conversation 2. A Mad Black Thang 50 Conversation 3. Abandoning the Human? 74 Conversation 4. Not Making Meaning, Not Making Since (The End of Time) 95 Notes 115 Bibliography 135 Index 149

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Book SynopsisIn The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development.Table of ContentsPreface/Acknowledgments vii Introduction: On Staying with the Terrible We 1 1. Disabled Histories of Trans 31 Holding Space 61 2. Trans, Feminism: Or, Reading Like a Depressed Transsexual 67 3. Some Dissociative Trans Masc Poetics 89 4. We's Company 117 Afterword/Elegy 143 Notes 151 Bibliography 171 Index 187

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Book SynopsisFor people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.Trade Review“In this exciting work Arseli Dokumacı offers compelling ethnographic interviews, journal entries, and her own experiences of difficulties with rheumatoid arthritis. Her accounts of the lives of her interlocutors are rich and evocative and form the basis for her idea of activist affordances: the everyday hacks that allow disabled people to manage the simplest of daily activities as they face a diminishing world of possible action and imaginaries. Addressing what it means to live with bodily challenges, Activist Affordances is critical disability studies at its intersectional best.” -- Faye Ginsburg, David B. Kriser Professor of Anthropology, New York University“Arseli Dokumacı reveals how people living with illnesses and disabilities navigate an inaccessible and ableist world by identifying the creativity, innovation, and resilience that goes into such navigation. Refusing the still-too-common notion that knowledge about disability is the province of medical experts rather than disabled people themselves, she brilliantly theorizes the accumulation of skills, negotiations, and hacks that disabled people discover to make their way in this world. And in this way, Dokumacı persuasively argues, they help concretize more accessible and just worlds.” -- Alison Kafer, author of * Feminist, Queer, Crip *"This book strikes a balance between academic rigor (i.e., theory) and practical relevance (i.e., practice). Readers will appreciate that many of the hacks discussed also come with pictures to help readers visualize the affordances. The book draws on a range of disciplines, including disability studies, anthropology, and design, to provide a comprehensive understanding of the complexities of disability activism. Recommended. Advanced undergraduates through faculty; professionals." -- G. Colosi * Choice *"Activist Affordances attunes readers to individual, everyday acts that could teach us how to create more habitable futures. Such a perspective opens new spaces for scholarly and political debates on activism, disability, and the preservation of the planet." -- Kostadin Karavasilev * LSE Review of Books *“[A] generative, thought provoking text … it will be exciting to follow how readers ‘make up, make real, and make do with’ this book’s innovative contributions.” -- Christine Sargent * American Ethnologist *Table of ContentsAcknowledgments ix Introduction 1 Part I. Shrinkage 1. Affordance Encounters Disability 31 2. Chronic Pain, Chronic Disease 55 3. The Habitus of Ableism 71 4. Planetary Shrinkage 87 Part II. Performance 5. A Theory of Activist Affordances 99 6. An Archive of Activist Affordances 119 7. Always in-the-Making 191 8. People as Affordances 205 9. Disability Repertoires 227 10. Speculations for a Shrinking Planet 237 Notes 253 Bibliography 293 Index 311

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Book SynopsisFor people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.Trade Review“In this exciting work Arseli Dokumacı offers compelling ethnographic interviews, journal entries, and her own experiences of difficulties with rheumatoid arthritis. Her accounts of the lives of her interlocutors are rich and evocative and form the basis for her idea of activist affordances: the everyday hacks that allow disabled people to manage the simplest of daily activities as they face a diminishing world of possible action and imaginaries. Addressing what it means to live with bodily challenges, Activist Affordances is critical disability studies at its intersectional best.” -- Faye Ginsburg, David B. Kriser Professor of Anthropology, New York University“Arseli Dokumacı reveals how people living with illnesses and disabilities navigate an inaccessible and ableist world by identifying the creativity, innovation, and resilience that goes into such navigation. Refusing the still-too-common notion that knowledge about disability is the province of medical experts rather than disabled people themselves, she brilliantly theorizes the accumulation of skills, negotiations, and hacks that disabled people discover to make their way in this world. And in this way, Dokumacı persuasively argues, they help concretize more accessible and just worlds.” -- Alison Kafer, author of * Feminist, Queer, Crip *"This book strikes a balance between academic rigor (i.e., theory) and practical relevance (i.e., practice). Readers will appreciate that many of the hacks discussed also come with pictures to help readers visualize the affordances. The book draws on a range of disciplines, including disability studies, anthropology, and design, to provide a comprehensive understanding of the complexities of disability activism. Recommended. Advanced undergraduates through faculty; professionals." -- G. Colosi * Choice *"Activist Affordances attunes readers to individual, everyday acts that could teach us how to create more habitable futures. Such a perspective opens new spaces for scholarly and political debates on activism, disability, and the preservation of the planet." -- Kostadin Karavasilev * LSE Review of Books *“[A] generative, thought provoking text … it will be exciting to follow how readers ‘make up, make real, and make do with’ this book’s innovative contributions.” -- Christine Sargent * American Ethnologist *Table of ContentsAcknowledgments ix Introduction 1 Part I. Shrinkage 1. Affordance Encounters Disability 31 2. Chronic Pain, Chronic Disease 55 3. The Habitus of Ableism 71 4. Planetary Shrinkage 87 Part II. Performance 5. A Theory of Activist Affordances 99 6. An Archive of Activist Affordances 119 7. Always in-the-Making 191 8. People as Affordances 205 9. Disability Repertoires 227 10. Speculations for a Shrinking Planet 237 Notes 253 Bibliography 293 Index 311

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Book SynopsisIn Intoxicated Mel Y. Chen explores the ongoing imperial relationship between race, sexuality, and disability. They focus on nineteenth-century biopolitical archives in England and Australia to show how mutual entanglements of race and disability take form through toxicity. Examining English scientist John Langdon Down’s characterization of white intellectual disability as Asian interiority and Queensland’s racialization and targeting of Aboriginal peoples through its ostensible concern with black opium, Chen explores how the colonial administration of race and disability gives rise to “intoxicated” subjects often shadowed by slowness. Chen charts the ongoing reverberations of these chemical entanglements in art and contemporary moments of political and economic conflict or agitation. Although intoxicated subjects may be affected by ongoing pollution or discredited as agents of failure, Chen affirmatively identifies queer/crip forms of unlearning and worlTrade Review“Intoxicated thinks about and through molecular intimacies. We are all chemically restrained, either structurally or voluntarily, some more the former than the latter. We are all too slow (or intoxicated), too fast (or agitated), and never quite right. ‘Take my hand,’ Mel Y. Chen invites the reader, ‘and slump, stumble, shake, and tumble with me.’ These alternate forms of cognition and movement promise new ways of knowing in the academy and beyond.” -- Cynthia Wu, Professor of Gender Studies and Asian American Studies, Indiana University“In the interlaced archives of toxicity, disability, and race, Mel Y. Chen brilliantly agitates the past and helps us unlearn and redistribute these key terms. The book gifts us with profoundly reorienting paths that undo, rather than reify, toxicity, pointing readers toward an alterwise of vibrating noninnocent transecologies of intoxicated intimacy.” -- M. Murphy, author of * The Economization of Life *Table of ContentsAcknowledgments ix Introduction. Intoxications, Intimacies, and Interformations 1 1. Slow Constitution: Down Syndrome and the Logic of Development 18 2. Agitation as a Chemical Way of Being 62 3. Unlearning: Intoxicated Method 100 Afterwards: Telling the End Not to Wait 142 Notes 165 Bibliography 177 Index

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Book SynopsisMargaret Price examines the experiences of disabled academics to show how attempts at providing individual accommodations actually impede rather than enhancing access.

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Book SynopsisIn Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rap

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Book SynopsisUses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumansLiterary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells's The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley's Brave New World, considers the valuation of disabled lives in Flannery O'Connor's The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro's Never Let Me Go. By analyzing novels puTrade ReviewLinett’s articulation of literature as a site of bioethical exploration offers new and essential inroads for conversations on disability. Moving past the ‘thought experiment,’ Linett positions literature as an alternative kind of thought laboratory, one far more interested in whose lives are valued when we think bioethically -- Alison Kafer, author of Feminist, Queer, CripThe book's writing is lucid, the structure is well organized, the research is meticulously conducted, and the main claims are masterfully argued. Literary Bioethics will be useful for those working in the fields of disability studies, literary studies, sociology, animal studies, age studies, and bioethics. It will be especially helpful for those trying to think through thorny questions having to do with justice for both disabled people and animals. * Disability Studies Quarterly *Ranging widely across the long twentieth century and skillfully weaving together disparate (and sometimes adversarial) disciplinary and critical perspectives, Literary Bioethics promises to persuade a broad array of readers of the distinctive value of literary ways of knowing as we strive toward justice for sentient lives. * Journal of Modern Literature *

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Book SynopsisA history of design that is often overlookeduntil we need itHave you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you've benefited from accessible designdesign for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life.In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they Trade ReviewAccessible America offers an important history of how and why design for disability has evolved and needs to evolve. * Curbed.com *This illuminating and thoughtful overview of the evolution of accessible design in the U.S. between the end of WWII and the late 1990s is a strong introduction to the topic...Williamson skillfully connects design concepts to changing social narratives; this work should reward readers interested in either topic. * Publishers Weekly *Williamson keenly emphasizes that the United States has led the world globally toward physical access and accessibility as acceptable and admirable natural and civil rights rather than annoying physical encumbrances that stand in the way...reading [this]can change lives. * Library Journal *Accessible America is handsomely produced and will appeal to readers interested in design, disability studies, and social history. -- CHOICEAmerica was once even less accessible than it is now, as historicized by Bess Williamson in her book Accessible America: A History of Disability and Design. Williamson uses her background in art and design to critique the ways that nationalism and idealism have driven material environments to reflect societal norms in the United States post World War II. She integrates analysis with historical images that exhibit how truly inaccessible this country has been throughout history, which she artfully points out as being in "response to a lack" for much of modern history. * Disability Studies Quarterly *Beautifully and engagingly written, Williamson's approach to the history of accessibility as a history of design is brilliant. Accessible America shows how disability advocates harnessed technological design in their quest for access and equality, paying particular attention to the connection between prosthetic devices and the 'universal' design that followed, illuminating both histories. Highly recommended. -- Douglas C. Baynton,author of Defectives in the Land: Disability and Immigration in the Age of EugenicsBess Williamson's engaging history of accessible design points the way to design as a tool for empowerment, critique, and self-expression that celebrates the diversity of human bodies. Disability is a culture, not a lack. -- Ellen Lupton,Curator of Contemporary Design at The Cooper Hewitt, Smithsonian Design MuseumBy unearthing, situating, and interpreting artifacts of accessible designfrom World War II to the rise of the Independent Living Movement to the post-ADA eraWilliamson's book offers a much-needed contribution to disability history as we know it while also reshaping it for the next generation of disability historians, designers, and activists. -- David Serlin,author of Replaceable You: Engineering the Body in Postwar AmericaWilliamson reveals the hidden history of how the Disability Rights Movement's struggle for inclusion rebuilt the world. Reaching back to activist veterans returning from World War II, through the Architectural Barriers Act of 1968, to ergonomics, universal design, and the Americans with Disabilities Act, Williamson shows us the transformed America that gives us the tools and pathways we all use every day to make our lives work better, and that the emergence of inclusive design and the world it makes is a tool for justice. -- Rosemarie Garland-Thomson,author of Extraordinary BodiesThe contents of this book are a win for historians of disability as well as for historians of technology, architecture, and design. * H-Net Reviews *Accessible America is a must-read for scholars of disability history and material culture ... Williamson’s design-centered approach charts an effective and compelling road map for future disability studies projects, and she suggests interesting possibilities for further research on the built environment and US disability history. * Winterthur Portfolio *A special strength of Williamson’s work is the emphasis on the role of people with disabilities as active agents of change in design [...] Accessible America manages to include the hidden stories of the history of disability-related design and places them in a wider context of technological, political, and social change, including the growing impact of the disability movement. * Technology and Culture *

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Book SynopsisASALH 2023 Book Prize FinalistReveals how disability and disablement have shaped Black social life in AmericaThrough both law and custom, the color line has cast Black people as innately disabled and thus unfit for freedom, incapable of self-governance, and contagious within the national body politic. Disabilities of the Color Line maintains that the Black literary tradition historically has inverted this casting by exposing the disablement of racism without disclaiming disability.In place of a triumphalist narrative of overcoming where both disability and disablement alike are shunned, Dennis Tyler argues that Black authors and activists have consistently avowed what he calls the disabilities of the color line: the historical and ongoing anti-Black systems of division that maim, immobilize, and stigmatize Black people. In doing so, Tyler reveals how Black writers and activists such as David Walker, Henry Box Brown, William and Ellen CraTrade ReviewIn this bold and timely study, Dennis Tyler shows that the color line is not just a twentieth century problem, but one that began in the era of slavery and extends to the ongoing racialization of police brutality and the health disparities of the COVID-19 pandemic. In Tyler’s account, the color line is not exclusively about race, but about the entanglement of blackness and disability. Drawing on a wide range of texts, he perceptively shows how disability was enlisted to shape conceptions of blackness in the United States, and a counter-tradition in which black authors confront what Tyler calls ‘disabilities of the color line’ to challenge racial injustice and demand redress. * Rachel Adams, Columbia University *For too long, a conceivable but unfounded myth has been endemic in disability studies: the idea that Black thinkers have distanced themselves from affiliations with disability in contesting the racist construction of Blackness as inherently disabled. Disabilities of the Color Line puts this theory to bed once and for all, establishing a robust record of Black intellectuals’ sustained and complex engagement with disability as both a stigma and a literal condition that white supremacist legal and political systems impose upon Black people. -- Elizabeth Bowen * Public Books, Editors' Choice 2022 *

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Book SynopsisHow can we learn to notice the signs of disability?We see indications of disability everywhere: yellow diamond-shaped deaf person in area road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms dis-attention.To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomenaincluding disability. By adding perception to the understanding of disability's materialization, Kerschbaum significantly expands our understanding of disability, accounting for its fluctuations and transformations in the semiotics of everyday life.Drawing on a set of thirty-three research iTrade ReviewThis engaging, accessible book builds on Stephanie Kerschbaum’s already-award- winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Signs of Disability offers an incredibly generative vocabulary for understanding the ways that disability matters: how we mark and signal it, how we ignore and hide it, how we powerfully inhabit and embody it through stories. Signs of Disability is a transformative book. * Jay Dolmage, University of Waterloo *A lovely, powerful read, Signs of Disability makes consequential, engaging, and evocative contributions to scholarship in disability studies and in rhetorical studies. The book’s theoretical and methodological interventions are significant and it offers cogent readings of texts, material culture, bodies, and more. Stephanie Kerschbaum tells powerful stories and draws readers deeply into the material life of disability and its signs. * Christa J. Olson, University of Wisconsin-Madison *

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Book SynopsisA much-needed look at the growth of emergency media and its impact on our livesIn an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an emergency. In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of emergency as an opposite of normal. Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archiTrade ReviewIn this moment, in which everything and nothing are simultaneously defined using the language of emergency, Elizabeth Ellcessor’s book is resonant, brilliant, timely, and compassionate, and helps to chart a way forward. Her analysis of emergency media and how they express specific articulations of technology, culture, and power as well as their connection to existing forms of white supremacy, disability justice, and misogyny are rigorous, and explain how our understandings of emergencies and the media with which we communicate that information have life and death stakes. * Shoshana Magnet, author of When Biometrics Fail: Gender, Race, and the Technology of Identity *Sirens blare. Maps blaze in alarming colors. Phones buzz stridently as pop-up alerts invade the screen. Media technologies index the presence of an emergency, putting us on alert, entreating us to leap into protective action. Yet as Elizabeth Ellcessor argues cogently in her timely, alarming, and ultimately reparative book, emergency media and the workers operating them also have the power to construct emergency—to cultivate panic, to amplify risk, to signal when we’ve tipped over into some unacceptably harmful, destructive, or costly deviation from the norm. Emergency media inform how ‘normality’ is defined, and whose norms become the standard. It thus has the capacity, as Ellcessor shows us, to cultivate a new norm that's more inclusive, just, and compassionate. * Shannon Mattern, author of Code and Clay, Data and Dirt: Five Thousand Years of Urban Media *

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Book SynopsisA much-needed look at the growth of emergency media and its impact on our livesIn an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an emergency. In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of emergency as an opposite of normal. Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archiTrade Review"In this moment, in which everything and nothing are simultaneously defined using the language of emergency, Elizabeth Ellcessor’s book is resonant, brilliant, timely, and compassionate, and helps to chart a way forward. Her analysis of emergency media and how they express specific articulations of technology, culture, and power as well as their connection to existing forms of white supremacy, disability justice, and misogyny are rigorous, and explain how our understandings of emergencies and the media with which we communicate that information have life and death stakes. " * Shoshana Magnet, author of When Biometrics Fail: Gender, Race, and the Technology of Identity *"Sirens blare. Maps blaze in alarming colors. Phones buzz stridently as pop-up alerts invade the screen. Media technologies index the presence of an emergency, putting us on alert, entreating us to leap into protective action. Yet as Elizabeth Ellcessor argues cogently in her timely, alarming, and ultimately reparative book, emergency media and the workers operating them also have the power to construct emergency—to cultivate panic, to amplify risk, to signal when we’ve tipped over into some unacceptably harmful, destructive, or costly deviation from the norm. Emergency media inform how ‘normality’ is defined, and whose norms become the standard. It thus has the capacity, as Ellcessor shows us, to cultivate a new norm that's more inclusive, just, and compassionate. " * Shannon Mattern, author of Code and Clay, Data and Dirt: Five Thousand Years of Urban Media *

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Book SynopsisThe role of disability and deafness in artDistressing Language is full of mistakeserrors of hearing, speaking, writing, and understanding. Michael Davidson engages the role of disability and deafness in contemporary aesthetics, exploring how physical and intellectual differences challenge our understanding of art and poetry. Where hearing and speaking are considered normative conditions of the human, what happens when words are misheard and misspoken? How have writers and artists, both disabled and non-disabled, used error as generative elements in contesting the presumed value of sounding good? Distressing Language grows out of the author's experience of hearing loss in which misunderstandings have become a daily occurrence. Davidson maintains that verbal confusions are less an aberration in understanding than a component of new knowledge.Davidson discusses a range of sites, from captioning errors and Bad Lip Reads on YouTube, to the deaf artiTrade ReviewDrawing on his own experience of increasing deafness, Davidson provides an engrossing look into the ways that slips or unusual forms of language can unexpectedly lead to new meanings and beauty. Distressing Language expertly weaves together modern poetry and fiction, popular culture, sign language art, theory, politics, and history, and is often as funny as it is profound. * Christopher Krentz, author of Writing Deafness: The Hearing Line in Nineteenth-Century American Literature *A highly original account of language, meaning, and sound, all framed through hearing loss. In Davidson’s account, meaning and value come from things not working the way they are supposed to. But rather than fetishizing technical glitch or aesthetic failure, he processes meaning through a disability hermeneutic. Throughout Distressing Language, the lines between poetry, sound art, and music are intentionally blurred and violated, while the meaning of sound is foregrounded as something especially important for those who have limited access to it. * Jonathan Sterne, McGill University *

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Book SynopsisWhat prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeierscholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndromedied of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology iTrade ReviewAsks questions such as, what is the line between illness and disability, and how can a parent deal with uncertainties? … Shares rarely heard stories from parents and prospective parents who have confronted challenging decisions about a fetus with Down syndrome … provides insight into a segment of the population rarely explored. * Library Journal *A thought-provoking book at the value of all human life … This book should reassure parents who choose to skip genetic testing or decide not to terminate pregnancies after learning their fetus may not be 'normal.' Like Piepmeier and her coauthors, they may well find unexpected joys in happy, loving kids. * Booklist *Unexpected is a beautiful, thoughtful, and challenging co-authored and deeply reflexive book. It engages the porous lessons of disability, debility, death and an enduring love that is at once familial and friendship-centered. Collectively, Alison Piepmeier recruits George Estreich and Rachel Adams into a profound conversation that narrates their experiences of raising children with Down Syndrome as an optic on injustice, advocacy, and social transformation through this most intimate of parent-child relations. -- Rayna Rapp, author of Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America

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Book SynopsisInsists on the importance of embodiment and movement to the creation of Black socialityLinking African diasporic performance, disability studies, and movement studies, Falling, Floating, Flickering approaches disability transnationally by centering Black, African, and diasporic experiences. By eschewing capital's weighted calculus of which bodies hold value, this book centers alternate morphologies and movement practices that have previously been dismissed as abnormal or unrecognizable. To move beyond binaries of ability, Hershini Bhana Young traverses multiple geohistories and cultural forms stretching from the United States and the Mediterranean to Sierra Leone, Nigeria, and South Africa, as well as independent and experimental film, novels, sculptures, images, dance, performances, and anecdotes. In doing so, she argues for the importance of differential embodiment and movement to the creation and survival of Black sociality, and refutes stereotypic notioTrade ReviewA stellar work of scholarship. Young is fearless in her questions and generous in her thinking, providing readers with the tools to imagine, critique, and speculate alongside her. She powerfully demonstrates the necessity of reading disability in context and transforms our understandings of disability and performance. * Alison Kafer, author of Feminist, Queer, Crip *Falling, Floating, Flickering demonstrates that Black sociality emerges from and can be reconsidered by foregrounding differential embodiment. Throughout the book, moments of tension, moving through rich theoretical ideas and difficult lived and performed embodiments, are followed by moments of relief, where Hershini Bhana Young offers not simply places to rest, but places to be invigorated. Reading this work is incredibly pleasurable, and I am grateful for its clarity and capaciousness. * Keguro Macharia, author of Frottage: Frictions of Intimacy across the Black Diaspora *

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Book SynopsisInsists on the importance of embodiment and movement to the creation of Black socialityLinking African diasporic performance, disability studies, and movement studies, Falling, Floating, Flickering approaches disability transnationally by centering Black, African, and diasporic experiences. By eschewing capital's weighted calculus of which bodies hold value, this book centers alternate morphologies and movement practices that have previously been dismissed as abnormal or unrecognizable. To move beyond binaries of ability, Hershini Bhana Young traverses multiple geohistories and cultural forms stretching from the United States and the Mediterranean to Sierra Leone, Nigeria, and South Africa, as well as independent and experimental film, novels, sculptures, images, dance, performances, and anecdotes. In doing so, she argues for the importance of differential embodiment and movement to the creation and survival of Black sociality, and refutes stereotypic notioTrade ReviewA stellar work of scholarship. Young is fearless in her questions and generous in her thinking, providing readers with the tools to imagine, critique, and speculate alongside her. She powerfully demonstrates the necessity of reading disability in context and transforms our understandings of disability and performance. * Alison Kafer, author of Feminist, Queer, Crip *Falling, Floating, Flickering demonstrates that Black sociality emerges from and can be reconsidered by foregrounding differential embodiment. Throughout the book, moments of tension, moving through rich theoretical ideas and difficult lived and performed embodiments, are followed by moments of relief, where Hershini Bhana Young offers not simply places to rest, but places to be invigorated. Reading this work is incredibly pleasurable, and I am grateful for its clarity and capaciousness. * Keguro Macharia, author of Frottage: Frictions of Intimacy across the Black Diaspora *

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Book SynopsisASALH 2023 Book Prize FinalistReveals how disability and disablement have shaped Black social life in AmericaThrough both law and custom, the color line has cast Black people as innately disabled and thus unfit for freedom, incapable of self-governance, and contagious within the national body politic. Disabilities of the Color Line maintains that the Black literary tradition historically has inverted this casting by exposing the disablement of racism without disclaiming disability.In place of a triumphalist narrative of overcoming where both disability and disablement alike are shunned, Dennis Tyler argues that Black authors and activists have consistently avowed what he calls the disabilities of the color line: the historical and ongoing anti-Black systems of division that maim, immobilize, and stigmatize Black people. In doing so, Tyler reveals how Black writers and activists such as David Walker, Henry Box Brown, William and Ellen CraTrade ReviewIn this bold and timely study, Dennis Tyler shows that the color line is not just a twentieth century problem, but one that began in the era of slavery and extends to the ongoing racialization of police brutality and the health disparities of the COVID-19 pandemic. In Tyler’s account, the color line is not exclusively about race, but about the entanglement of blackness and disability. Drawing on a wide range of texts, he perceptively shows how disability was enlisted to shape conceptions of blackness in the United States, and a counter-tradition in which black authors confront what Tyler calls ‘disabilities of the color line’ to challenge racial injustice and demand redress. * Rachel Adams, Columbia University *For too long, a conceivable but unfounded myth has been endemic in disability studies: the idea that Black thinkers have distanced themselves from affiliations with disability in contesting the racist construction of Blackness as inherently disabled. Disabilities of the Color Line puts this theory to bed once and for all, establishing a robust record of Black intellectuals’ sustained and complex engagement with disability as both a stigma and a literal condition that white supremacist legal and political systems impose upon Black people. -- Elizabeth Bowen * Public Books, Editors' Choice 2022 *

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Book SynopsisIntroduces key ideas and offers a sense of the new frontiers and questions in the emerging field of disability media studies Disability Media Studies articulates the formation of a new field of study, based in the rich traditions of media, cultural, and disability studies. Necessarily interdisciplinary and diverse, this collection weaves together work from scholars from a variety of disciplinary homes, into a broader conversation about exploring media artifacts in relation to disability. The book provides a comprehensive overview for anyone interested in the study of disability and media today. Case studies include familiar contemporary examplessuch as Iron Man 3, Lady Gaga, and Oscar Pistoriusas well as historical media, independent disability media, reality television, and media technologies. The contributors consider disability representation, the role of media in forming cultural assumptions about ability, the construction of disability via media technoTrade Review"A vital, spot-on collection, assembled with much care and attention,Disability Media Studiesencourages readers to & question ones training and reach toward interdisciplinarity." -- Petra Kuppers,author of Studying Disability Arts and Culture and The Scar of Visibility: Medical Performance an"An important contribution is Ellcessors chapter on conceptualizing access to media not only in relation to consumption but also in relation to production." * Choice *

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Book SynopsisWhat prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeierscholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndromedied of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology iTrade Review"Asks questions such as, what is the line between illness and disability, and how can a parent deal with uncertainties? … Shares rarely heard stories from parents and prospective parents who have confronted challenging decisions about a fetus with Down syndrome … provides insight into a segment of the population rarely explored." * Library Journal *"A thought-provoking book at the value of all human life … This book should reassure parents who choose to skip genetic testing or decide not to terminate pregnancies after learning their fetus may not be 'normal.' Like Piepmeier and her coauthors, they may well find unexpected joys in happy, loving kids." * Booklist *"Unexpected is a beautiful, thoughtful, and challenging co-authored and deeply reflexive book. It engages the porous lessons of disability, debility, death and an enduring love that is at once familial and friendship-centered. Collectively, Alison Piepmeier recruits George Estreich and Rachel Adams into a profound conversation that narrates their experiences of raising children with Down Syndrome as an optic on injustice, advocacy, and social transformation through this most intimate of parent-child relations." -- Rayna Rapp, author of Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America

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Book SynopsisDuring the early nineteenth century, schools for the deaf appeared in the US for the first time. This book places the growth of the Deaf community at the heart of the story of deaf education and explains how the unexpected emergence of Deafness provoked the pedagogical battles that dominated the field of deaf education in the nineteenth century.Trade Review[A] useful addition to the still-developing history of the nation's evolving deaf community. * The Journal of American History *R.A.R. Edwards' Words Made Flesh: Nineteenth-Century Deaf Education and the Growth of Deaf Culture is a brilliant study of the emergence of a deaf community in nineteenth-century America . . . . Beyond a more nuanced account of the emergence of the American Deaf community, this monograph is ultimately a revisionist history of the ongoing conflict over pedagogical methods in deaf education. Building on the established historiography produced by a small cadre of deaf historians, Edwards represents a new generation of scholarship in the field, offering a revisionist thesis of the ideas originally presented by Van Cleve and Crouch over twenty years ago. Words Made Flesh is a fine addition to New York University press's history of disability series. * Common-Place *[This book is] provocative, detailed, and a welcome examination of the emergence of a signing deaf culture. * American Historical Review *In this gracefully written book, Edwards offers both a fascinating narrative and a provocative, revisionist thesis.Scholars and general readers interested in the Deaf community and American cultural history will find it a rewarding read. -- Douglas Baynton,University of IowaWords Made Fleshis a stimulating, beautifully written, and thoroughly engaging book. -- James W. Trent * American Studies *Table of ContentsAcknowledgments Introduction 1 Thomas Hopkins Gallaudet and Laurent Clerc: A Yale Man and a Deaf Man Open a School and Create a World 2 Manual Education: An American Beginning 3 Learning to Be Deaf: Lessons from the Residential School 4 The Deaf Way: Living a Deaf Life 5 Horace Mann and Samuel Gridley Howe: The First American Oralists 6 Languages of Signs: Methodical versus Natural 7 The Fight over the Clarke School: Manualists and Oralists Confront Deafness Conclusion Notes Index About the Author

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Book SynopsisA history of design that is often overlookeduntil we need itHave you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you've benefited from accessible designdesign for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life.In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they Trade ReviewAccessible America offers an important history of how and why design for disability has evolved and needs to evolve. * Curbed.com *This illuminating and thoughtful overview of the evolution of accessible design in the U.S. between the end of WWII and the late 1990s is a strong introduction to the topic...Williamson skillfully connects design concepts to changing social narratives; this work should reward readers interested in either topic. * Publishers Weekly *Williamson keenly emphasizes that the United States has led the world globally toward physical access and accessibility as acceptable and admirable natural and civil rights rather than annoying physical encumbrances that stand in the way...reading [this]can change lives. * Library Journal *Accessible America is handsomely produced and will appeal to readers interested in design, disability studies, and social history. -- CHOICEAmerica was once even less accessible than it is now, as historicized by Bess Williamson in her book Accessible America: A History of Disability and Design. Williamson uses her background in art and design to critique the ways that nationalism and idealism have driven material environments to reflect societal norms in the United States post World War II. She integrates analysis with historical images that exhibit how truly inaccessible this country has been throughout history, which she artfully points out as being in "response to a lack" for much of modern history. * Disability Studies Quarterly *Beautifully and engagingly written, Williamson's approach to the history of accessibility as a history of design is brilliant. Accessible America shows how disability advocates harnessed technological design in their quest for access and equality, paying particular attention to the connection between prosthetic devices and the 'universal' design that followed, illuminating both histories. Highly recommended. -- Douglas C. Baynton,author of Defectives in the Land: Disability and Immigration in the Age of EugenicsBess Williamson's engaging history of accessible design points the way to design as a tool for empowerment, critique, and self-expression that celebrates the diversity of human bodies. Disability is a culture, not a lack. -- Ellen Lupton,Curator of Contemporary Design at The Cooper Hewitt, Smithsonian Design MuseumBy unearthing, situating, and interpreting artifacts of accessible designfrom World War II to the rise of the Independent Living Movement to the post-ADA eraWilliamson's book offers a much-needed contribution to disability history as we know it while also reshaping it for the next generation of disability historians, designers, and activists. -- David Serlin,author of Replaceable You: Engineering the Body in Postwar AmericaWilliamson reveals the hidden history of how the Disability Rights Movement's struggle for inclusion rebuilt the world. Reaching back to activist veterans returning from World War II, through the Architectural Barriers Act of 1968, to ergonomics, universal design, and the Americans with Disabilities Act, Williamson shows us the transformed America that gives us the tools and pathways we all use every day to make our lives work better, and that the emergence of inclusive design and the world it makes is a tool for justice. -- Rosemarie Garland-Thomson,author of Extraordinary BodiesThe contents of this book are a win for historians of disability as well as for historians of technology, architecture, and design. * H-Net Reviews *Accessible America is a must-read for scholars of disability history and material culture ... Williamson’s design-centered approach charts an effective and compelling road map for future disability studies projects, and she suggests interesting possibilities for further research on the built environment and US disability history. * Winterthur Portfolio *A special strength of Williamson’s work is the emphasis on the role of people with disabilities as active agents of change in design [...] Accessible America manages to include the hidden stories of the history of disability-related design and places them in a wider context of technological, political, and social change, including the growing impact of the disability movement. * Technology and Culture *

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Book SynopsisIn this collection of primary sources, Eugene Smelyansky highlights instances of persecution and violence, as well as those relatively rare but significant episodes of toleration, that impacted a broad spectrum of people who existed at the margins of medieval society: heretics, Jews and Muslims, the poor, the displaced and disabled, women, and those deemed sexually deviant. The volume also presents a more geographically diverse Middle Ages by including sources from Central and Eastern Europe as well as the Mediterranean. Each document is preceded by a brief introduction and followed by questions for discussion, making The Intolerant Middle Ages an excellent entrance into the lives and struggles of medieval minorities. Trade Review"The book contains a large number of interesting documents and should prove convenient for teaching undergraduate courses on its particular thematic sections. It will be particularly useful for courses on gender and sexuality." -- Lola Sharon Davidson, University of Technology Sydney * Parergon *“Smelyansky has chosen an excellent set of texts, including some that are unexpected and therefore especially interesting … The care with which Smelyansky treats his subjects, the persecutors and the persecuted, is admirable.” -- Deeana Copeland Klepper, Boston University * Speculum: A Journal of Medieval Studies *Table of ContentsAcknowledgments List of Illustrations Introduction Chapter 1: Precursors and Origins 1. Christians Accused of Participating in Scandalous Rituals 2. The Martyrdom of Saint Perpetua 3. Emperor Constantine Condemns Arianism 4. Saint Augustine on the Grounds for Religious Persecution 5. Christianity Triumphant: The Theodosian Code on Christianity and Paganism Chapter 2: Anti-Judaism and Persecution of the Jews 6. “Slay Them Not”: Saint Augustine on the Jews 7. Anti-Jewish Legislation from the Visigothic Code 8. The Massacre in Mainz at the Beginning of the First Crusade 9. Blood Libel: The Murder of William of Norwich 10. A Papal Response: Gregory X against the Blood Libel 11. Jewish Woman in a Christian Miracle Story 12. King Otakar II Promises Royal Protection to the Jews in Bohemia and Austria 13. Well-Poisoning Accusations against the Jews 14. Massacre of the Jews in Strasbourg Chapter 3: Heresy and Inquisition 15. Heresy in the Carolingian Word: Gottschalk of Orbais 16. Guibert of Nogent and the Heretics of Soissons 17. Hildegard of Bingen Preaches against Heresy 18. A Cathar Origin Story in the Testimony of Arnaud Sicre 19. Origins of the Waldensians 20. Canon of the Fourth Lateran Council Concerning Heresy 21. Inquisitor Bernard Gui at Work 22. Heretical Tricks: Inquisitor Nicholas Eymerich on the Art of Interrogation 23. Individual Resistance: Bernard Clergue 24. Cooperation and Resistance: Arnaud Sicre Infiltrates a Heretical Group 25. Papal Prohibitions against Beguines and Beghards at the Council of Vienne 26. The Fruits of Clerical Imagination: A Heretical Orgy 27. Persecutions of Waldensians in Late Medieval German Cities Chapter 4: External Others: Contacts, Intolerance, and the Making of Medieval Europe 28. Carolingian Conquest of Saxony: Two Perspectives 29. Gerald of Wales on the Irish 30. Papal Blessing for Henry II’s Conquest of Ireland 31. Keeping the Peace after the Conquest: Statutes of the Parliament of Dublin 32. Medieval Europe Old and New: Otto of Freising Describes Northern Italy and Hungary 33. Duke of Lithuania on the Teutonic Order Chapter 5: Interreligious Violence in the Mediterranean 34. The Martyrs of Cordoba 35. Depictions of Muslims in The Song of Roland 36. Ibn Jubayr on Sicily under the Christian Rule 37. Interfaith Coexistence in Crusader Jerusalem 38. Coexistence and Exclusion in the Siete Partidas 39. Pope Innocent III Forbids the Venetian Merchants to Trade with the Muslims 40. Frederick II’s Trade Agreement with Tunisia 41. Accusations against the Genoese Merchants in Service of the Mamluk Sultan Chapter 6: People on the Margins of Medieval Society 42. Agobard of Lyon: On the Baptism of Jewish Slaves 43. Poverty as Piety: The Rule of Saint Francis 44. Critique of the Mendicant Friars: William of St-Amour’s On the Dangers of the Final Days 45. Medieval Serfdom and Manumission 46. Punishments for Impregnating a Female Slave in Genoa 47. Discrimination against the Poor in Siena during the Famine of 1329 48. Living in Poverty in Florence 49. The World Turned Upside Down: Social Anxiety during and after the Plague 50. Wage Control after the Plague: Ordinance of the Laborers, 1349 51. Ordinances against the “Jews, Lepers, and Swine” and the Poor in Late Medieval London 52. Christine de Pizan on the Virtues of Toleration Chapter 7: Disease and Disability in Medieval Europe 53. Disability and Charity in Piers Plowman 54. False Disability on the Streets of London 55. Rules of the Maison-Dieu in Pontoise 56. Physician Gilbert the Englishman on the Symptoms of Leprosy 57. Humbert of Romans Preaches to the Lepers 58. Ritual of Exclusion for a Leper 59. The Leper Plot against Christendom, 1321 Chapter 8: From the Holy to the Sinful: Attitudes towards Women 60. A Prostitute Saint: Saint Mary of Egypt 61. The Trial of Thiota, A False Prophetess 62. The Life of Christina of Markyate 63. Women in the Sicilian Laws of Frederick II 64. Women and the Ideals of Courtly Love 65. Religious Life of Margery Kempe 66. Marital Problems: An Innkeeper’s Wife Leaves Him 67. Bernardino of Siena Preaches on Marriage Chapter 9: The Control of Sexuality 68. Laws of Justinian Concerning Same-Sex Acts and Blasphemy 69. A Cross-Dressing Saint: Marina/Marinus 70. Punishments for Illicit Sexuality from a Medieval Penitential 71. Prostitution and Religious Reform in Prague 72. Illegal Prostitution in London 73. Confession of a Muslim Prostitute in Valencia 74. Confession of Arnaud of Verniolle 75. The Trial of Katherina Hetzeldorfer 76. Testimony of Rolandina Roncaglia 77. Testimony of Eleanor/John Rykener

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Book SynopsisThis book is about the employment of people with disabilities in the United States and the important role of employer practices. Nearly one in five people report some form of disability, and they are only half as likely to be employed as those without disabilities. With the aging workforce and returning military veterans both contributing to increasing number of disabilities in the workplace, there is an urgent need for better ways to address continuing employment disparities for people with disabilities. Examining employer behaviors is critical to changing this trend. It is essential to understand the factors that motivate employers to engage this workforce and which specific practices are most effective. Disability and Employer Practices features research-based documentation of workplace policies and practices that result in the successful recruitment, retention, advancement, and inclusion of individuals with disabilities. The Cornell team whose work is featured in tTrade Review[T]his book provides valuable information to academic researchers, industrial employers, and policy makers. Researchers can use this book as a guide-line of seeking collaboration with employers who can provide data for academic studies. Employers can use this book to gain benchmark information and practical recommendations for recruiting and accommodating employees with disabilities.And policy makers can use this book to think through multiple elements when formulating a new policy regarding disability in the workplace. -- Xin Xuan Che & Weiwei Liu * Analyses of Social Issues and Public Policy *Table of Contents1. Disability and Employment: Framing the Problem, and Our Approach Susanne M. Bruyère, Sara VanLooy, Sarah von Schrader, and Linda Barrington 2. Engaging Employers as Stakeholders Linda Barrington 3. Exploring National Survey Data William A. Erickson, Arun Karpur, and Kevin F. Hallock 4. Using Administrative Data Hassan Enayati and Sarah von Schrader 5. Surveying Employers and Individuals with Disabilities William A. Erickson, Sarah von Schrader, and Sara VanLooy 6. Conducting Case Studies Lisa H. Nishii and Susanne M. Bruyère 7. Translating Knowledge to Practice, and the Way Forward Susanne M. Bruyère, Ellice Switzer, Sara VanLooy, Sarah von Schrader, and Linda Barrington

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Book SynopsisThe Other Welfare offers the first comprehensive history of Supplemental Security Income (SSI), from its origins as part of President Nixon's daring social reform efforts to its pivotal role in the politics of the Clinton administration. Enacted into law in 1972, Supplemental Security Income (SSI) marked the culmination of liberal social and economic policies that began during the New Deal. The new program provided cash benefits to needy elderly, blind, and disabled individuals. Because of the complex character of SSImarking both the high tide of the Great Society and the beginning of the retrenchment of the welfare stateit provides the perfect subject for assessing the development of the American state in the late twentieth century. SSI was launched with the hope of freeing welfare programs from social and political stigma; it instead became a source of controversy almost from its very start. Intended as a program that paid uniform benefits across the nation, it ended up repTrade ReviewThe Other Welfare is an excellent and insightful contribution to the study of federal and state interactions in social-welfare policy making and execution. In a few years its readers will want to return to it to trace the parallels between SSI and Obamacare. -- John E. Murray * Journal of Interdisciplinary History *Berkowitz and DeWitt offer an exceptionally fine history of SSI. Along with their descriptive project, Berkowitz and DeWitt offer a handful of historically informed lessons for SSI, including how the perceived 'deservedness' of program beneficiaries can profoundly affect how policies are understood and how they are 'reformed.'. -- Stephen Pimpare * The Journal of American History, *Berkowitz and DeWitt's story of SSI illuminates not ony the program's participants but also the largely uncharted territory of social poicymaking after 'the high tide of the expansive welfare state of the postwar and Great Society eras.' Drawing on recent multidisciplinary scholarship on the state and American political development, they point to new structures and actors shaping social policy in an age of political conservatism, market ascendancy, congressional restructuring, and media saturation. -- Jennifer Mittelstadt * The American Historical Review *For those familiar with the SSI program, the details in the book will shed some needed light on the legislative wrangling that produced the program's cumbersome and often confusing structure. For those unfamiliar with SSI, the book is a well-documented reminder of the difficulties of efficiently and effectively managing federal income support programs across changing political and social environments. -- Mary C. Daly * Journal of Economic Literature *In their masterful historical account of Supplemental Security Income (SSI), Edward D. Berkowitz and Larry DeWitt argue convincingly that disability benefits policy, though little studied by historians and political scientists, is at the heart of contemporary debate over the proper scope of government and its capacity to do good.. Drawing from archival material not previously available, Berkowitz and DeWitt's The Other Welfare is a marvelous book and their inquiry a timely one. Reformers of the left and right, academics, and policy analysts would do well to heed its lessons as our nation, amid great public doubt, partisan rancor, and budgetary pressures, rolls out the Affordable Care Act, one of the most ambitious pieces of social legislation since SSI. -- Jennifer L. Erkul * Journal of Children and Poverty *This unusual book provides an in-depth history of the administration of the Supplemental Security Income (SSI) program from its inception through 1996 and the Clinton administration. Berkowitz and DeWitt examine the pressures and compromises they witnessed from their respective professional positions.... The authors' proximity to the program enables them to report the details of political maneuvers and policy proposals few others could achieve. * Choice *This well-researched and insightfully argued history of the SSI program tells us how and why SSI failed to reinvent welfare and illuminates our understanding of U.S. social policy in several fundamental ways along the way. It shows that welfare policy—particularly in the U.S. political-cultural context of deserving and underserving poor—is inherently fraught with controversy.... In this sense, it takes its place in the venerable tradition of American Political Development. -- Benjamin W. Veghte * Journal of Sociology and Social Welfare *Table of ContentsPrefaceIntroduction1. Creating a New Welfare Program: The Politics of Welfare and Social Security Reform in the Nixon Administration2. A Year in Transition: Why Planning for the New Program Became Difficult3. Launching the Program: Why the Program Began Badly4. The Emergence of a Disability Program: How the Program's Fundamental Identity Changed5. The Continuing Disability Reviews: How the Politics of Controversy Hindered the Program6. The Courts and Other Sources of Program Growth: How the Program Expanded in a Conservative Age7. The Welfare Reform of 1996: How the Program Became Swept Up in the Narrative of Welfare Fraud and Abuse8. Post-1996 Developments: A Brief PostscriptConclusionNotes Index

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Book SynopsisIn Deaf in the USSR, Claire L. Shaw asks what it meant to be deaf in a culture that was founded on a radically utopian, socialist view of human perfectibility. Shaw reveals how fundamental contradictions inherent in the Soviet revolutionary project were negotiatedboth individually and collectively by a vibrant and independent community of deaf people who engaged in complex ways with Soviet ideology.Deaf in the USSR engages with a wide range of sources from both deaf and hearing perspectivesarchival sources, films and literature, personal memoirs, and journalismto build a multilayered history of deafness. This book will appeal to scholars of Soviet history and disability studies as well as those in the international deaf community who are interested in their collective heritage. Deaf in the USSR will also enjoy a broad readership among those who are interested in deafness and disability as a key to more inclusive understandings of being human and of languaTrade ReviewA compelling study of the Soviet deaf community.... Deaf in the USSR deserves to be widely read and suggests ways for the experiences of other minority and marginalized Soviet communities to be re-examined. * Times Literary Supplement *A landmark in the history of disability and the Soviet welfare state. A stunning first book, it covers the entire Soviet experience from a thought-provoking perspective. * AUSTRIAN TIMES *Shaw traces how deaf individuals challenged prevailing notions about their abilities and legal competence while also participating in the underlying goal of the Soviet project to transform "backward" masses into productive and literate citizens.... An important scholarly contribution to the field of deaf history. * Choice *Shaw's approach is, first and foremost, historically rigorous. With this, the first definitive account of deaf political advocacy throughout the Soviet twentieth century, Shaw has proffered a fertile platform for further scholarship. * Slavic Review *An outstanding work. [Deaf in the USSR] will be of considerable interest to a number of different kinds of readers. For historians of the Soviet Union, it addresses a little-known but potentially quite important aspect of Soviet history. For those interested in the history of deafness and the deaf, it offers fascinating insights into the unique case of deafness in post-revolutionary Russia.... The volume is well-written, cogent, and thoroughly grounded in both historical and archival sources. It is a significant contribution to the literature on the history of deafness and Deaf identity, and we have much for which to be grateful to Shaw. * Sign Language Studies *This is an important book for not just historians of Russia and the Soviet Union, nor only scholars of deafness and disability, but for researchers in all of these fields and beyond. * Journal of the History of Medicine and Allied Sciences *One of the strengths of Deaf in the USSR is its identification of—indeed, emphasis on—tensions that remained unresolved throughout the Soviet era. It is a testimony to Shaw's analytical rigor that she can keep all these dialectical balls in the air without succumbing to incoherence. * American Historical Review *Deaf in the USSR succeeds best in offering a deaf-centered, unique overview of the development of political identity of deaf people in urban Russia under the Soviet system, and is a significant contribution to the fields of Deaf Studies and Soviet History. * The Russian Review *Claire Shaw's excellent monograph traces a history of deafness—attitudes toward deafness, experiences of deafness—across the Soviet century. It is, above all, a history of shifting discourses about the senses... This is a valuable corrective to oversimplified narratives of Soviet ideology. -- Emma Widdis * KRITIKA *

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Book SynopsisIn Twenty-Two Cents an Hour, Doug Crandell uncovers the harsh reality of people with disabilities in the United States who are forced to work in unethical conditions for subminimum wages with little or no opportunity to advocate for themselves, while wealthy CEOs grow even wealthier as a direct result. As recently as 2016, the United States Congress enacted bipartisan legislation which continued to allow workers with disabilities to legally be paid far lower than the federal minimum wage. Drawing on ongoing federal Department of Justice lawsuits, the horrifying story of Henry''s Turkey Farm in Iowa, and more, Crandell shows the history of the policies that have led to these unjust outcomes, examines who benefits from this legislation, and asks important questions about the rise of a disability industrial complex. Exposing this complexwhich is rooted in profit, lobbying, and playing on the emotions of workers'' parents and families, as well as the pTable of ContentsPart I 1. The Stage is Set for Broken Promises 2. From Evil Intentions to Unintended Consequences 3. Subminimum Wages and Disability Rights 4. The Floor is Gone and Modern Lobbying Arrives Part II 5. The Olmstead Supreme Court Decision and Freedom Fighters 6. Early Adopters and Tearing Down Assumptions 7. Federal Policy as Catalyst, Barrier, and Duality 8. The Nightmare in Atalissa Part III 9. Boycotting Goodwill 10. Oregon, Rhode Island, and the Promise of a Way Forward 11. A Legislative Fix Was In 12. Ohio and the Future of Subminimum Wages

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Book SynopsisAmbassadors of Social Progress examines the ways in which blind activists from the Soviet Union and Eastern Europe entered the postwar international disability movement and shaped its content and its course. Maria Cristina Galmarini shows that the international work of socialist blind activists was defined by the larger politics of the Cold War and, in many respects, represented a field of competition with the West in which the East could shine. Yet, her study also reveals that socialist blind politics went beyond propaganda. When socialist activists joined the international blind movement, they initiated an exchange of experiences that profoundly impacted everyone involved. Not only did the international blind movement turn global disability welfare from philanthropy to self-advocacy, but it also gave East European and Soviet activists a new set of ideas and technologies to improve their own national movements. By analyzing the intersection of disability and politics, Ambassadors of Social Progress enables a deeper, bottom-up understanding of cultural relations during the Cold War. Galmarini significantly contributes to the little-studied history of disability in socialist Europe, and ultimately shows that disability activism did not start as an import from the West in the post-1989 period, but rather had a long and meaningful tradition that was rooted in the socialist system of welfare and needed to be reinvented when this system fell apart.

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Book SynopsisDespite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the wellbeing of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver. By the 1970s, a group of legislators and bureaucrats came to act as "political entrepreneurs." Motivated by personal and professional commitments, they were seen as experts leading a movement within the government. But as they increasingly faced obstacles to their legislative intentions, nascent disability advocacy and protest groups took the cause to the American people forming the basis of the contemporary disability rights movement. Drawing on extensive archival material, Pettinicchio redefines the relationship between grassroots advocacy and institutional politics, revealing a cycle of progress and backlash embedded in the American political system.Trade Review"David Pettinicchio has written a broad and ambitious study of the evolution of American disability policy and disability rights, incorporating changing policy approaches, governmental institutions, and social movement activities into his account. Drawing on legislative documents, policy debates, and sociological concepts, the book situates disability within broader social policy frameworks and political trends. It will be of interest to anyone seeking to understand the interplay of disability policies, politics, and rights within the context of American policy-making." -- Richard K. Scotch, Professor of Sociology, Public Policy, and Political Economy * University of Texas at Dallas *"This excellent addition to the policy feedbacks literature shows how federal policy helped disabled activists become fully mobilized citizens. But progress is not always linear. Recurrent retrenchment efforts mean that the push for civil rights for the disabled is incomplete, and their economic citizenship not yet fully realized. A must-read for those interested in social movements and citizen participation." -- Andrea Louise Campbell, Arthur and Ruth Sloan Professor of Political Science * MIT *"David Pettinicchio explains the odd but important development of disability politics and policy in the context of changing political alliances and definitions of civil rights. It's a compelling story, with lessons for advocates, policy makers, and anyone who wants to understand either group." -- David S. Meyer * University of California, Irvine *"Empirically, [this book] is a rigorous treatment of the successes and setbacks of the disability rights movement....A number of folks in our field...have discussed the importance of considering institutional actors, and what movement mobilization looks like from their point of view, rather than analyzing movements only from the perspective of movement actors. Pettinicchio does this admirably." -- Joshua A. Basseches * Mobilizing Ideas *"Politics of Empowerment is an important work that will both broaden the view of those interested specifically in the American disability rights movement and those more generally interested in social movements of all kinds." -- Stephen J. Meyers * Mobilization *"[A] meticulous historical and political account of the development of disability policy in the United States....I recommend this book to readers who are interested in understanding how people, politics, and governmental and organizational goals align to increase access and opportunity for marginalized groups." -- Catherine Kramarczuk Voulgarides * Contemporary Sociology *"Politics of Empowerment is a really, really good book. David Pettinicchio tells the story of disability policy in the United States with great care and close attention to detail....This book is both a specific history of disability policy as well as a broad story of the politics of social change....Politics of Empowerment is in many ways the best kind of scholarship: it generates new thinking and ideas, and it gives the rest of us a strong foundation to build upon." -- Jeremy R. Levine * American Journal of Sociology *Table of ContentsContents and Abstracts1The Political Evolution of Disability chapter abstractChapter 1 outlines the key tenets of the book's thesis: that disability rights entered into an already-defined agenda space revolving around social services and vocational rehabilitation. It did so by way of political entrepreneurs incrementally carving a path for rights to develop. These policies empowered a group of Americans once thought of exclusively as clients deserving of social services to be citizens entitled to civil rights. But, while it began as an elite-driven movement, disability rights would soon be threatened by policy rollbacks and retrenchment that ultimately mobilized a constituency to defend against these attacks. The political evolution of disability rights therefore provides an opportunity for contextualizing—in terms of time and space—the relationship between social movements, political entrepreneurship, policy shifts, and organizational transformations in the broader struggle for civil rights. 2It's Ability, Not Disability, That Counts chapter abstractChapter 2 further contextualizes the evolution of disability rights by examining the service-provision-dominated policy agenda in the first half of the twentieth century. Until the 1960s, a disability policy monopoly promoted a policy image emphasizing ability over disability—the idea that rehabilitation was necessary to overcome disability and create "good citizens." The chapter investigates the kinds of institutional constraints that prevented any significant policy reforms, requiring elites to pursue incremental policy changes. Political entrepreneurs championed the removal of architectural barriers, promoting equal access by using existing rhetoric about economic self-sufficiency through rehabilitation—and consequently laying the groundwork for rights to flourish. Ultimately, their efforts also helped frame the plight of a heterogeneous group as the common struggle of a community. 3Reshaping the Policy Agenda chapter abstractChapter 3 provides a systematic analysis of the kinds of institutional changes that helped political entrepreneurs extend the political discourse around disability to include civil rights. Beginning with the Great Society, the 1960s and 1970s saw an increasing number of congressional committees and administrative agencies involved in disability issues. While this helped gain disability a place on the agenda, it also generated conflict as different policy frameworks clashed. The chapter draws on the equal rights to transit debate as an example. Chapter 3 also points to the consequences of legislative change: that the way actors went about promoting a new logic around "the problem" of disability shaped policy outcomes, backlash, and most certainly the tools and motivations available to a political constituency to push for their rights. And, in mobilizing against political, economic, and social institutions, the disability rights movement necessarily challenged cultural understandings and meanings of disability. 4How Disability Advocacy Made Citizens out of Clients chapter abstractChapter 4 explains how disability organizations and policy coevolved. In the 1970s, the disability organizational sector underwent an advocacy explosion, as it adapted to a new rights-focused policy environment. Existing service-provision groups adopted political advocacy, alongside a proliferation of new advocacy organizations. The chapter illustrates the interdependent relationship between disability organizations and political entrepreneurs in protecting and advancing disability rights, especially when faced with growing backlash and political threats. Chapter 4 uses the transit debate, as well as educational mainstreaming, to situate the growing demand for advocacy as sympathetic elites confronted attempts to roll back rights. Changes in the disability voluntary sector encouraged the expansion of new mobilizing structures that would bring activists together. 5Politics Is Pressure chapter abstractChapter 5 looks at the rise of disability protest in the context of political threats to existing disability rights legislation. The disability rights movement in the government reflected critical structural and organizational transformations that politicized a constituency. Political entrepreneurs supplied the policy instruments around which disability groups helped mobilize everyday citizens with disabilities to champion their rights. The use of extra-institutional, disruptive tactics was not only necessary when institutional means became less available; it also drew public attention to the kinds of inequality disabled people faced. Educational mainstreaming, equal access to transit and Medicaid, and in-home care serve as salient examples of the decades-old unsettled issues that generated uncertainty and back-stepping, which fueled contentious politics and mobilized a movement. Chapter 5 points to this critical transformation in disability rights from an elite-driven movement in the government to a broader grassroots movement in the streets. 6Empowering the Government chapter abstractChapter 6 returns to the reasons why the disability rights struggle is, to this day, a story of unresolved policy entrenchment. The chapter highlights ongoing debates about integrating students with disabilities into regular classrooms and the continued fight over community-based care—key movement issues that are in deadlock. The same institutional configurations that allowed for policy innovation and political entrepreneurship also led to conflict, obstruction, retrenchment, and undesirable policy consequences. Indeed, the case of disability rights reveals the ways in which the duality in America's political institutions creates both the resources and the motivations for citizen action. The chapter speaks to current efforts to undermine policies like the ADA that are rooted in their political development, negotiation, compromise, and lack of enforcement. It also sheds light on the status of the disability rights movement today and the importance of citizen engagement in this civil rights struggle.

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Book SynopsisDespite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the wellbeing of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver. By the 1970s, a group of legislators and bureaucrats came to act as "political entrepreneurs." Motivated by personal and professional commitments, they were seen as experts leading a movement within the government. But as they increasingly faced obstacles to their legislative intentions, nascent disability advocacy and protest groups took the cause to the American people forming the basis of the contemporary disability rights movement. Drawing on extensive archival material, Pettinicchio redefines the relationship between grassroots advocacy and institutional politics, revealing a cycle of progress and backlash embedded in the American political system.Trade Review"David Pettinicchio has written a broad and ambitious study of the evolution of American disability policy and disability rights, incorporating changing policy approaches, governmental institutions, and social movement activities into his account. Drawing on legislative documents, policy debates, and sociological concepts, the book situates disability within broader social policy frameworks and political trends. It will be of interest to anyone seeking to understand the interplay of disability policies, politics, and rights within the context of American policy-making." -- Richard K. Scotch, Professor of Sociology, Public Policy, and Political Economy * University of Texas at Dallas *"This excellent addition to the policy feedbacks literature shows how federal policy helped disabled activists become fully mobilized citizens. But progress is not always linear. Recurrent retrenchment efforts mean that the push for civil rights for the disabled is incomplete, and their economic citizenship not yet fully realized. A must-read for those interested in social movements and citizen participation." -- Andrea Louise Campbell, Arthur and Ruth Sloan Professor of Political Science * MIT *"David Pettinicchio explains the odd but important development of disability politics and policy in the context of changing political alliances and definitions of civil rights. It's a compelling story, with lessons for advocates, policy makers, and anyone who wants to understand either group." -- David S. Meyer * University of California, Irvine *"Empirically, [this book] is a rigorous treatment of the successes and setbacks of the disability rights movement....A number of folks in our field...have discussed the importance of considering institutional actors, and what movement mobilization looks like from their point of view, rather than analyzing movements only from the perspective of movement actors. Pettinicchio does this admirably." -- Joshua A. Basseches * Mobilizing Ideas *"Politics of Empowerment is an important work that will both broaden the view of those interested specifically in the American disability rights movement and those more generally interested in social movements of all kinds." -- Stephen J. Meyers * Mobilization *"[A] meticulous historical and political account of the development of disability policy in the United States....I recommend this book to readers who are interested in understanding how people, politics, and governmental and organizational goals align to increase access and opportunity for marginalized groups." -- Catherine Kramarczuk Voulgarides * Contemporary Sociology *"Politics of Empowerment is a really, really good book. David Pettinicchio tells the story of disability policy in the United States with great care and close attention to detail....This book is both a specific history of disability policy as well as a broad story of the politics of social change....Politics of Empowerment is in many ways the best kind of scholarship: it generates new thinking and ideas, and it gives the rest of us a strong foundation to build upon." -- Jeremy R. Levine * American Journal of Sociology *Table of ContentsContents and Abstracts1The Political Evolution of Disability chapter abstractChapter 1 outlines the key tenets of the book's thesis: that disability rights entered into an already-defined agenda space revolving around social services and vocational rehabilitation. It did so by way of political entrepreneurs incrementally carving a path for rights to develop. These policies empowered a group of Americans once thought of exclusively as clients deserving of social services to be citizens entitled to civil rights. But, while it began as an elite-driven movement, disability rights would soon be threatened by policy rollbacks and retrenchment that ultimately mobilized a constituency to defend against these attacks. The political evolution of disability rights therefore provides an opportunity for contextualizing—in terms of time and space—the relationship between social movements, political entrepreneurship, policy shifts, and organizational transformations in the broader struggle for civil rights. 2It's Ability, Not Disability, That Counts chapter abstractChapter 2 further contextualizes the evolution of disability rights by examining the service-provision-dominated policy agenda in the first half of the twentieth century. Until the 1960s, a disability policy monopoly promoted a policy image emphasizing ability over disability—the idea that rehabilitation was necessary to overcome disability and create "good citizens." The chapter investigates the kinds of institutional constraints that prevented any significant policy reforms, requiring elites to pursue incremental policy changes. Political entrepreneurs championed the removal of architectural barriers, promoting equal access by using existing rhetoric about economic self-sufficiency through rehabilitation—and consequently laying the groundwork for rights to flourish. Ultimately, their efforts also helped frame the plight of a heterogeneous group as the common struggle of a community. 3Reshaping the Policy Agenda chapter abstractChapter 3 provides a systematic analysis of the kinds of institutional changes that helped political entrepreneurs extend the political discourse around disability to include civil rights. Beginning with the Great Society, the 1960s and 1970s saw an increasing number of congressional committees and administrative agencies involved in disability issues. While this helped gain disability a place on the agenda, it also generated conflict as different policy frameworks clashed. The chapter draws on the equal rights to transit debate as an example. Chapter 3 also points to the consequences of legislative change: that the way actors went about promoting a new logic around "the problem" of disability shaped policy outcomes, backlash, and most certainly the tools and motivations available to a political constituency to push for their rights. And, in mobilizing against political, economic, and social institutions, the disability rights movement necessarily challenged cultural understandings and meanings of disability. 4How Disability Advocacy Made Citizens out of Clients chapter abstractChapter 4 explains how disability organizations and policy coevolved. In the 1970s, the disability organizational sector underwent an advocacy explosion, as it adapted to a new rights-focused policy environment. Existing service-provision groups adopted political advocacy, alongside a proliferation of new advocacy organizations. The chapter illustrates the interdependent relationship between disability organizations and political entrepreneurs in protecting and advancing disability rights, especially when faced with growing backlash and political threats. Chapter 4 uses the transit debate, as well as educational mainstreaming, to situate the growing demand for advocacy as sympathetic elites confronted attempts to roll back rights. Changes in the disability voluntary sector encouraged the expansion of new mobilizing structures that would bring activists together. 5Politics Is Pressure chapter abstractChapter 5 looks at the rise of disability protest in the context of political threats to existing disability rights legislation. The disability rights movement in the government reflected critical structural and organizational transformations that politicized a constituency. Political entrepreneurs supplied the policy instruments around which disability groups helped mobilize everyday citizens with disabilities to champion their rights. The use of extra-institutional, disruptive tactics was not only necessary when institutional means became less available; it also drew public attention to the kinds of inequality disabled people faced. Educational mainstreaming, equal access to transit and Medicaid, and in-home care serve as salient examples of the decades-old unsettled issues that generated uncertainty and back-stepping, which fueled contentious politics and mobilized a movement. Chapter 5 points to this critical transformation in disability rights from an elite-driven movement in the government to a broader grassroots movement in the streets. 6Empowering the Government chapter abstractChapter 6 returns to the reasons why the disability rights struggle is, to this day, a story of unresolved policy entrenchment. The chapter highlights ongoing debates about integrating students with disabilities into regular classrooms and the continued fight over community-based care—key movement issues that are in deadlock. The same institutional configurations that allowed for policy innovation and political entrepreneurship also led to conflict, obstruction, retrenchment, and undesirable policy consequences. Indeed, the case of disability rights reveals the ways in which the duality in America's political institutions creates both the resources and the motivations for citizen action. The chapter speaks to current efforts to undermine policies like the ADA that are rooted in their political development, negotiation, compromise, and lack of enforcement. It also sheds light on the status of the disability rights movement today and the importance of citizen engagement in this civil rights struggle.

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Book SynopsisWhat does the term "reading" mean? Matthew Rubery's exploration of the influence neurodivergence has on the ways individuals read asks us to consider that there may be no one definition. This alternative history of reading tells the stories of "atypical" readers and the impact had on their lives by neurological conditions affecting their ability to make sense of the printed word: from dyslexia, hyperlexia, and alexia to synesthesia, hallucinations, and dementia. Rubery's focus on neurodiversity aims to transform our understanding of the very concept of reading. Drawing on personal testimonies gathered from literature, film, life writing, social media, medical case studies, and other sources to express how cognitive differences have shaped people's experiences both on and off the page, Rubery contends that there is no single activity known as reading. Instead, there are multiple ways of reading (and, for that matter, not reading) despite the ease with which we use the term. Pushing us to rethink what it means to read, Reader's Block moves toward an understanding of reading as a spectrum that is capacious enough to accommodate the full range of activities documented in this fascinating and highly original book. Read it from cover to cover, out of sequence, or piecemeal. Read it upside down, sideways, or in a mirror. For just as there is no right way to read, there is no right way to read this book. What matters is that you are doing something with it—something that Rubery proposes should be called "reading."Trade Review"By constructing a detailed map of mis-reading, Rubery argues for the value of non-normative reading experiences. Some differences are disabling, he recognizes, but others make visible aspects of reading that go unnoticed and unappreciated when they function smoothly."—Paul Armstrong, author of Stories and the Brain"Rubery uncovers the hidden history of neurodiverse reading (and non-reading). Drawing upon everything from clinical studies to life writing, this is a brilliant and remarkably original work that challenges and subverts a whole set of received wisdoms about how readers engage with books. After Reader's Block, you will never again make cozy assumptions about how and why people read."—Shafquat Towheed, coeditor of The History of Reading"An inclusive, beautifully formulated invitation to think of reading as a cluster of practices as prolific as the minds and the texts nourished in their combination. Rubery is one of the most sensitive and original scholars working with literature today."—Christina Lupton, author of Love and the Novel"This is a fascinating, innovative, and skillful book which presents its deep research and learning fluently and lightly. Thought-provoking, timely, and moving, Reader's Block is essential reading for those interested in disability studies and the history of the book."—Sophie Ratcliffe, author of The Lost Properties of Love"A thoughtful and timely survey of neuro-divergent readers' singular, complex, sometimes fraught relationship with the written word."—Daniel Tammet, author of Every Word is a Bird We Teach to Sing"Rubery gives us fresh eyes to grasp the semi-miraculous nature of the reading act in all its complexity and potential for transforming the life of every reader and the species itself."—Maryanne Wolf, author of Reader, Come Home"By its very nature, Reader's Block is designed for casual reading—and particularly for people interested in science, history, literature and neurodiversity."—Matthew Rozsa, Salon"Thinking about reading in terms of the different reading behaviors these essays about atypical readers document can help one achieve a broader, more inclusive understanding of what read actually means.... Recommended."—J. F. Andrews, CHOICE"Matthew Rubery's... remarkably well-researched catalogue of neurodivergent reading experiences reveals how many different ways brains can engage with texts, demonstrating that this seemingly quotidian activity is neither unitary nor widely understood."—Timothy Aubry, American Literary HistoryTable of ContentsIntroduction: The Unideal Reader 1. Dyslexia 2. Hyperlexia 3. Alexia 4. Synesthesia 5. Hallucinations 6. Dementia Epilogue

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Book SynopsisA philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires.The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.Trade Review"In this philosophically ambitious and deeply personal book, Joel Michael Reynolds exposes the ableist mistake that has afflicted philosophy at least since Socrates asked what makes a life worth living. To repair the damage done by that mistake, Reynolds exhorts us to stop looking for the worth of human lives in individual ‘normate’ bodies and to start building systems of access and care that make it possible for people with all sorts of bodies to flourish. Anyone committed to understanding what disability justice requires should read this book."—Erik Parens, director, The Hastings Center Initiative in Bioethics and the Humanities"Joel Michael Reynolds’s The Life Worth Living is the most insightful analysis of pain since Elaine Scarry’s The Body in Pain. His phenomenology of foreboding, beholdenness, bioreckoning, and disruption is brilliant. And his critical engagement with ableist assumptions that run throughout the history of thought and continue into contemporary medical discourses powerfully demonstrates that these discourses continue to conflate disability, pain, and harm in ways that devalue ‘disabled’ lives."—Kelly Oliver, Vanderbilt UniversityTable of ContentsIntroduction: The Ableist ConflationPart I. Pain1. Theories of Pain2. A Phenomenology of Chronic PainPart II. Disability3. Theories of Disability4. A Phenomenology of Multiple SclerosisPart III. Ability5. Theories of Ability6. A Phenomenology of AbilityConclusion: An Anti-Ableist FutureAcknowledgmentsNotesBibliographyIndex

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Book SynopsisThis vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.Trade Review"Decarcerating Disability is a groundbreaking feminist study of the affinities, interrelations, and contradictions between prison abolition and psychiatric deinstitutionalization. Emphasizing the need for a more expansive field of critical carceral studies, Liat Ben-Moshe compellingly demonstrates the important lessons we can discover through serious engagements with radical disability movements. Scholars and activists alike should read this book without delay!"—Angela Y. Davis, University of California, Santa Cruz"In Decarcerating Disability, Liat Ben-Moshe carefully and incisively models an intersectional approach to abolition grounded in feminist, queer, and crip of color critique. Moving beyond demands for inclusion and critiques of overrepresentation, Ben-Moshe makes a powerful and persuasive case for a disability studies that recognizes state violence as central to its work and the carceral industrial complex as a site for queer coalitions for racial and disability justice. In so doing, she paves the way for thinking not only disability and disability studies differently, but also liberation itself."—Alison Kafer, University of Texas at Austin"Decarcerating Disability is a must-read for anyone interested in understanding and dismantling the interlocking systems of incarceration that shape the contemporary political landscape and shorten so many lives. Liat Ben-Moshe shows how the effectiveness of abolitionist work has been limited by the marginalization of disability and anti-sanism analysis and advocacy. She not only exposes how much contemporary abolitionists have to learn from historical struggles for deinstitutionalization, she also demonstrates a more truly intersectional method of abolitionist scholar-activism that we urgently need. This book is both a corrective intervention and a path-breaking tool for developing better strategy toward the world that those who seek liberation are fighting to build."—Dean Spade, Seattle University School of Law"Ben-Moshe outlines how people fought for a new paradigm in mental health treatment before. Beginning in the 1960s, widespread deinstitutionalization sparked by disability activists shut down asylums across the country. Many see this movement now as a failure because it led to more people with mental illness being herded into jails and prisons. But Ben-Moshe argues that this was a pivotal step in abolition by grassroots organizing."—Teen Vogue"Examining decarceration and deinstitutionalisation within the same frame is vitally important...the book challenges us to think about the range of carceral facilities that exist."—Race & Class"A groundbreaking connection between disability justice and prison abolition."—Public Books "Decarcerating Disability should be read not only by students and scholars of African-American studies, criminology, critical theory, gender studies, law, or sociology, nor only by policy makers, but by all who are concerned about disability, gender, or racial justice."—American Journal of Sociology "Each chapter of Decarcerating Disability serves as a fantastic example of the knowledges, perspectives, and genealogies that are made possible when disability and madness are the lenses through which a queer of color critique is engaged."—Disability Studies Quarterly"Decarcerating Disability is an impressive text that powerfully argues for robust coalitional politics to challenge the logic of incarceration. Entire syllabi and reading groups can be structured around this text as Ben-Moshe opens up much to consider, especially how to effectively demand carceral-free futures, while also valuing disability. "—Ethnic Studies Review"Decarcerating disability: Deinstitutionalization and prison abolition is abold and challenging critical intervention, which puts critical disability studies, deinstitutionalisation, decarceration, and abolition theory and scholarship into closer conversation with each other. In so doing, the book has pushed these fields forward in new and, interesting ways. The book’s strongest contribution is its attempt to transform, redefine, and reframe what disability studies is and can be about, its appeal to frame and address issues of incarceration and decarceration as disability and carceral abolition issues, and the generative groundwork laid for fostering coalitional, liberatory politics and ideas."—Australian & New Zealand Journal of Criminology"[A]n important book that offers both a sweeping genealogy of disability and itsentangled history with race and incarceration, and rallying cry for abolitionism."—Journal of Constructivist Psychology"Ben-Moshe offers a detailed history of institutionalization and incarceration primarily in the United States. In putting institutionalization and incarceration in conversation, Ben-Moshe offers a larger consideration around the systems that keep certain individuals enclosed and the implications of deinstitutionalization as a movement versus louder for total prison abolition. A major intervention of Ben-Moshe’s book is the different approaches to and opinions of institutions as opposed to prison systems across the United States."—Work in Critical and Cultural TheoryTable of ContentsContentsList of Abbreviations Introduction: The Case for Intersecting Disability, Imprisonment, and Deinstitutionalization1. The Perfect Storm: Origin Stories of Deinstitutionalization2. Abolition in Deinstitutionalization: Normalization and the Myth of Mental Illness 3. Abolition as Knowledge and Ways of Unknowing4. Why Prisons Are Not “the New Asylums”5. Resistance to Inclusion and Community Living: NIMBY, Desegregation, and Race-Ability6. Political and Affective Economies of Closing Carceral Enclosures7. Institutional and Prison Reform Litigation: From Politicization to the Governable Iron CageEpilogue: Abolition NowAcknowledgmentsNotesIndex

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Book SynopsisA philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires.The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.Trade Review"In this philosophically ambitious and deeply personal book, Joel Michael Reynolds exposes the ableist mistake that has afflicted philosophy at least since Socrates asked what makes a life worth living. To repair the damage done by that mistake, Reynolds exhorts us to stop looking for the worth of human lives in individual ‘normate’ bodies and to start building systems of access and care that make it possible for people with all sorts of bodies to flourish. Anyone committed to understanding what disability justice requires should read this book."—Erik Parens, director, The Hastings Center Initiative in Bioethics and the Humanities"Joel Michael Reynolds’s The Life Worth Living is the most insightful analysis of pain since Elaine Scarry’s The Body in Pain. His phenomenology of foreboding, beholdenness, bioreckoning, and disruption is brilliant. And his critical engagement with ableist assumptions that run throughout the history of thought and continue into contemporary medical discourses powerfully demonstrates that these discourses continue to conflate disability, pain, and harm in ways that devalue ‘disabled’ lives."—Kelly Oliver, Vanderbilt UniversityTable of ContentsIntroduction: The Ableist ConflationPart I. Pain1. Theories of Pain2. A Phenomenology of Chronic PainPart II. Disability3. Theories of Disability4. A Phenomenology of Multiple SclerosisPart III. Ability5. Theories of Ability6. A Phenomenology of AbilityConclusion: An Anti-Ableist FutureAcknowledgmentsNotesBibliographyIndex

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Book SynopsisDeveloping a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human Twentieth-century neuroscience fixed the brain as the basis of consciousness, the self, identity, individuality, even life itself, obscuring the fundamental relationships between bodies and the worlds that they inhabit. In Unraveling, Matthew J. Wolf-Meyer draws on narratives of family and individual experiences with neurological disorders, paired with texts by neuroscientists and psychiatrists, to decenter the brain and expose the ableist biases in the dominant thinking about personhood. Unraveling articulates a novel cybernetic theory of subjectivity in which the nervous system is connected to the world it inhabits rather than being walled off inside the body, moving beyond neuroscientific, symbolic, and materialist approaches to the self to focus instead on such concepts as animation, modularity, and facilitation. It does so through close readings of memoirs by individuals who lost their hearing or developed trauma-induced aphasia, as well as family members of people diagnosed as autistic—texts that rethink modes of subjectivity through experiences with communication, caregiving, and the demands of everyday life. Arguing for a radical antinormative bioethics, Unraveling shifts the discourse on neurological disorders from such value-laden concepts as “quality of life” to develop an inclusive model of personhood that honors disability experiences and reconceptualizes the category of the human in all of its social, technological, and environmental contexts.Trade Review"Unraveling is a work of cultural reimagination. Matthew J. Wolf-Meyer knits together neurological, psychiatric, and neuroscientific theories about ‘the brain’ in this broad-based inquiry into ‘communicative disorders.’ He insists that the many possibilities and blocked channels of communication depend on the interdependency of subject, personhood, family, community, and polity. He joins leading scholars in disability studies and feminist theory, illuminating the thoroughly social nature of all embodied communication and thus its ethical and political reliance on making a world where differences are welcome."—Rayna Rapp, New York University"This is a book for our times—a deep dive into the problematics of personhood in relationship to the neurological. This book, alluringly readable, vigorously challenges our conceptions of what makes a human being human and advocates for an anti-neoliberal vision of complex selfhood that is not dependent on predictable norms. While this subject could lend itself to predictable advocacy, Matthew J. Wolf-Meyer stays ahead of the reader's assumptions and provides a new and thoughtful way of conceiving big questions concerning the very definitions of life, thought, value, and ethics. A must read for anyone interested in neurodivergence and disability in general."—Lennard J. Davis, author of Obsession: A HistoryTable of ContentsContentsPreface: Blind-Man-and-WorldIntroduction: Let’s Build a New Nervous System1. Neurological Subjectivity: How Neuroscience Makes and Unmakes People through Neurological Disorder2. Symbolic Subjectivity: How Psychoanalysis and the Communication of Meaning Disable Individuals3. Materialist Subjectivity: How Technology and Material Environments Make Personhood Possible4. Cybernetic Subjectivity: The Fusion of Body, Symbol, and Environment in the Facilitated Person5. Facilitated Subjectivity, Affective Bioethics, and the Nervous SystemEpilogue: Living and Dying in the Nervous System AcknowledgmentsNotesIndex

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Book SynopsisYoung adults with intellectual disability tell the story of their own experience of higher education How do students with intellectual disability experience higher education? Creating Our Own Lives addresses this question through the eyes of participants themselves. In relating their experiences and aspirations, these student perspectives mount a powerful challenge to assumptions that intellectual disability is best met with protection or segregation. Taken together, the essays expose and contradict the inherently ableist claim that individuals with intellectual disability cannot be reliable storytellers. Instead, their deeply informative stories serve as a corrective narrative. The first of the four sections, “Laying the Foundation: Why Everyone Belongs in College,” focuses on belonging and inclusion; the second, “Opening Up Possibilities: Overcoming Doubt and Uncertainty,” conveys the optimism of this generation of advocates through stories of personal hardship, hopeful perseverance, and triumph over adversity; the third, “Inclusion as Action: Diversifying Student Experiences,” supports the understanding of diverse student experiences in inclusive higher education; and the fourth, “Supporting Growth: Peer Mentoring and Advice,” offers guidance to those reimagining and creating educational spaces. Students with disabilities belong in higher education. Not only does this book serve as an important record of students enrolled in inclusive higher education programs, it is also an unprecedented resource, packed with information and inspiration both for parents seeking opportunities for their children and for individuals with intellectual disability who aspire to attend college. Contributors: Makayla Adkins, Olivia Baist, Brandon Baldwin, George Barham, Marquavious Barnes, Katie Bartlett, Steven Brief, De'Onte Brown, Meghan Brozaitis, Mary Bryant, Gracie Carrol, Taylor Cathey, Maia Chamberlain, Antonio E. Contreras, Kim Dean, Elizabeth Droessler, Katie Ducett, Keiron Dyck, Rachel Gomez, Deriq Graves, Micah Gray, Maggie Guillaume, Cleo Hamilton, Nathan Heald, Joshua R. Hourigan, Hannah Lenae Humes, Courtney Jorgensen, Eilish Kelderman, Kailin Kelderman, Kenneth Kelty, Kaelan Knowles, Karlee Lambert, Kate Lisotta, Rachel Mast, Elise McDaniel, Emma Miller, Jake Miller, Lydia Newnum, Brenna Mantz Nielsen, Carly O’Connell, Nadia Osbey, Stirling Peebles, Breyan Pettaway, Amanda Pilkenton, True Rafferty, Taylor Ruppe, Lawrence Sapp, Tyler Shore, Brianna Silva, Alex Smith, Elliott Smith, Phillandra Smith, Payton Storms, Allen Thomas, Kylie Walter, Stephen Wanser, Sayid Webb, Breana Whittlesey, Luke Wilcox, Adam Wolfond. Trade Review "I like Creating Our Own Lives because people with disabilities talked about being in college and shared their stories in their own words. And they really shared their experiences, not just about how everything is great, but about how it is to be in college and what Syracuse is like for people with disabilities. Beth Myers and Michael Gill also shared, and that made the book great to read."—Tia Nelis, Director of Policy and Advocacy, TASH Table of Contents Contents Introduction: Recognizing Student Voice in Inclusive Higher Education Michael Gill and Beth Myers Part I. Laying the Foundation: Why Everyone Belongs in College 1. I Want to Go to College Antonio E. Contreras 2. I Got In Taylor Ruppe 3. Adventures in Postsecondary Education Stirling Peebles 4. A Language to Open Adam Wolfond 5. “The Wanderer” and “This Is What I Sing” Steven Brief 6. My History of the Excel Program Alex Smith 7. Taking the Llama for a Walk and Other Things That Helped Us Olivia Baist and Kylie Walter Part II. Opening Up Possibilities: Overcoming Doubt and Uncertainty 8. Being Independent Has Risks: How to Recover When Something Terrible Happens Kailin Kelderman, Eilish Kelderman, and Mary Bryant 9. Spartan Kid: Journeys Brandon Baldwin 10. Best Experiences at IDEAL De’Onte Brown, Deriq Graves, Nadia Osbey, Breyan Pettaway, and Sayid Webb 11. Two Poems Carly O’Connell 12. Goal(s) in Common Hannah Lenae Humes 13. I Did What They Said I Couldn’t Allen Thomas 14. Climbing Higher and “From Mission Impossible to Mission Possible” Courtney Jorgensen 15. Inclusive College on Zoom? My Inclusive Higher Education 2020 Experience Stephen Wanser, Kate Lisotta, and Kim Dean 16. Inclusive College for All and How My Perception of My History Prof Changed Keiron Dyck 17. Qua’s GT Excel Life and “Never Give Up” Marquavious Barnes 18. Photo Essays and Selections from Student Leadership Conference 2019 Breana Whittlesey, Kaelan Knowles, Elise McDaniel, Kenneth Kelty, Katie Bartlett, and Rachel Mast Part III. Inclusion as Action: Diversifying Student Experiences 19. Hi, I’m Jake Miller Jake Miller and Katie Ducett 20. “BGWYN” and “Confidence with Curves” Taylor Cathey 21. Inclusive College Education Micah Gray, with Karlee Lambert and Lydia Newnum 22. My UC Perspective Joshua R. Hourigan 23. Phoenix Nation as in Spirit Cleo Hamilton 24. My Excel Story George Barham 25. #CreatingMyOwnLife Payton Storms 26. Inclusive College Education Makayla Adkins 27. My Story about Aggies Elevated at Utah State University Brenna Mantz Nielsen 28. Questions and Answers Lawrence Sapp 29. College Memories but Ready for What’s Next Amanda Pilkenton 30. Full Year of College Luke Wilcox 31. My Favorite Memories in College Elizabeth Droessler Part IV. Supporting Growth: Peer Mentoring and Support 32. Communicating Successfully in College Maia Chamberlain 33. True Rafferty Interviewed True Rafferty, with Nathan Heald 34. College Program Experience Gracie Carroll 35. Teaching, Assisting, Reflecting: Our Experience Working Together Phillandra Smith and Meghan Brozaitis 36. My Georgia Tech Excel Story Maggie Guillaume 37. Emma’s Journey Emma Miller 38. Come Read about My Awesome Journeys through Life Brianna Silva 39. My Social Experience throughout Georgia Tech Rachel Gomez 40. The Importance of Goals Tyler Shore 41. Support and Encouragement for the Ones Who Seek It Elliott Smith Coda: Why This Collection? Beth Myers and Michael Gill Acknowledgments Contributors

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