Health systems and services Books

Book SynopsisMigration is now firmly embedded as a leading global policy issue of the twenty-first century. Whilst not a new phenomenon, it has altered significantly in recent decades, with changing demographics, geopolitics, conflict, climate change and patterns of global development shaping new types of migration. Against this evolving backdrop, this Handbook offers an authoritative overview of key debates underpinning migration and health in a contemporary global context.The first major handbook in this field, this Handbook of Migration and Health provides a comprehensive global overview of issues relating to migration and health. The Handbook is organised into six main sections: theories and models of migration; rights and deservingness; vulnerability and precarity; specific healthcare needs and priorities; healthcare provision; and transnational and diasporic networks. Chapters focus on a wide range of migrant groups including refugees, asylum seekers, trafficked people, international students, healthcare workers, and diasporic communities.Bringing together the contributions of 58 leading researchers and drawing on case studies and examples from across the globe, the Handbook is intended as a scholarly, yet accessible reference tool for researchers, students, and practitioners interested in the field of migration and health.Contributors include: S. Bacci, L. Baldassar, C. Bennouna, J. Botfield, E. Chase, J. Cook, E. Duffell, R. Evans, J. Gideon, K. Hall, A.-C. Hoyez, D. Ingleby, H. Jayaweera, M.-A. Karlsen, M. Kilke, R. Labonté, Y. Lu, S. Mayell, L. Manderson, M. McKee, J. McLaughlin, C. McMichael, L. Merla, S. Meyer, P. Mladovsky, L. Newman, C. Newman, T. Noori, L. Núñez Carrasco, A. Odone, D. Oksen, S. Oram, M. Ormond, G. Ottosdottir, C. Packer, A. Pharris, O. Razum, B. Rechel, A. Reeske, A. Reid, V. Runnels, A. Sandgren, R. Shadwick, D. Sime, J. Spallek, D.L. Spitzer, L. Stark, J.E. Suk, A. Tianbo Zhang, T. Tillmann, F. Thomas, K. Vasey, J. Vearey, G.A. Williams, R. Wilding, S.S. Willen, H. Zeeb, A. ZwiTrade ReviewThe movement of people and populations is intrinsic to today's globalised existence, with complex health and wellbeing consequences for people on the move, for host communities and for global health economies. Yet programmatic approaches to addressing the wellbeing of migrants although badly needed remain poorly developed in many parts of the world. Through this book Felicity Thomas successfully crosses disciplinary boundaries to bring together an authoritative, coordinated and comprehensive approach to what is one of the major health issues of our time.' --Jane Anderson, Homerton University Hospital NHS Foundation Trust, UK'In this impressive volume, Felicity Thomas has orchestrated a comprehensive and cutting-edge contribution to the understanding of the relationship between migration and health. Drawing together experts from multiple disciplines, examining a wide range of pertinent issues, and developing innovative theoretical insights, the book offers much-needed clarity about a timely and complex global problem. Students, scholars, policymakers, and practitioners will all find much to learn in this superb collection.' --Daniel Jordan Smith, Brown University'With the rapid growth of international migration - whether through war, civil conflict, economic necessity or choice - there is a compelling need to understand the links between migration and health. Drawing on the latest research and powerful new theory, this remarkable book provides the first comprehensive account of these issues. A ''must read'' for researchers, students and activists interested in migration, mobility, population movement and health.' --Peter Aggleton, UNSW AustraliaTable of ContentsContents: PART I INTRODUCTION 1. Migration and health: an introduction Felicity Thomas PART II THEORIES AND MODELS OF MIGRATION 2. The link between migration and health Yao Lu and Alice Tianbo Zhang 3. Models of migration and health Jacob Spallek, Anna Reeske, Hajo Zeeb and Oliver Razum 4. Migration and health behaviour Hiranthi Jayaweera 5. Migration and health through an intersectional lens Denise L. Spitzer PART III RIGHTS AND DESERVINGNESS 6. Health-related deservingness Sarah S. Willen and Jennifer Cook 7. International health worker migration:issues of ethics, human rights and health equity Vivien Runnels, Corinne Packer and Ronald Labonté 8. Migration control and children’s access to healthcare Marry-Anne Karlsen 9. Socio-spatial dimensions of healthcare for newly-arrived migrants Anne-Cécile Hoyez and Felicity Thomas PART IV VULNERABILITY AND PRECARITY 10. The health and wellbeing of survival migrants Katherine Vasey, Lenore Manderson and Louise Newman 11. The health and wellbeing outcomes of former ‘unaccompanied minors’: shifting contours of vulnerability and precarity Elaine Chase 12. Human trafficking and health Siân Oram 13. Migrating to work at what cost? The cumulative health consequences of contemporary labour migration Stephanie Mayell and Janet McLaughlin 14. Occupational health and safety of migrant workers Alison Reid 15. Winds of change: climate change, migration and health Celia McMichael PART V SPECIFIC HEALTHCARE NEEDS AND PRIORITIES 16. Disability and chronic illness Gudbjorg Ottosdottir and Ruth Evans 17. Mental health and forced migration: the case of Chilean exiles in the UK Jasmine Gideon 18. Mobility, migration and generalised HIV epidemics: a focus on sub-Saharan Africa Jo Vearey 19. Infectious diseases in migrant populations in the European Union and the European Economic Area Gemma A .Williams, Anna Odone, Taavi Tillmann, Anastasia Pharris, Dina Oksen, Bernd Rechel, Philipa Mladovsky, Sabrina Bacci, Rebecca Shadwick, Teymur Noori, Andreas Sandgren, Erika Duffell, Jonathan E. Suk, David Ingleby and Martin McKee PART VI HEATHCARE PROVISION 20. Health and wellbeing in refugee camps Sarah Meyer, Cyril Bennouna and Lindsay Stark 21. Retirement migration and health: growing old in Spain Kelly Hall 22. Migrant children and young people’s ‘voice’ in healthcare Daniela Sime 23. Young migrants and sexual and reproductive healthcare Jessica R. Botfield, Anthony B. Zwi and Christy E. Newman 24. Cultural competence in migrant healthcare Felicity Thomas PART VII TRANSNATIONAL AND DIASPORIC NETWORKS 25. Transnational families, care and wellbeing Loretta Baldassar, Marjella Kilkey, Laura Merla and Raelene Wilding 26. Knowledge transfer in the ‘medical tourism’ industry: the role of transnational migrant patients and health workers Meghann Ormond 27. End of life care and death of migrants Lorena Núñez Carrasco Index

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Book SynopsisThis lucid and comprehensive book explores the ways in which the State, the market and the citizen can collaborate to satisfy people's health care needs. It argues that health care is not a commodity like any other. It asks if its unique properties mean that there is a role for social regulation and political management. Apples and oranges can be left to the buyers and the sellers. Health care may require an input from the consensus, the experts, the insurers, the politicians and the bureaucrats as well.David Reisman makes a fresh contribution to the debate. He argues that the three policy issues that are of primary importance are choice, equality and cost. He explores the balance between the patient, the practitioner and public opinion; the disparities in outcome indicators and access to medical care; and the escalation in prices and quantities at the expense of other areas of social life. Reisman concludes that, despite its significance for the individual and the nation, there is no single definition of health or health care. The maximand is a mix. Yet decisions have to be made.This thought-provoking and insightful book will be of use to students and scholars of public policy, social policy and health economics. It will also be of interest to medical practitioners who want to situate hard choices about health and illness in a broad multidisciplinary context.Trade Review'Too often health economics proceeds without serious consideration of the concrete challenges of health policy. David Reisman's new book does just the opposite: it starts with those challenges and shows what the economics of health care must be to address them. This makes the economics of health care inseparable from the ethics of health care. This book is highly recommended for clear and sensible thinking about the economics of health policy.' --John Davis, Marquette University, US and University of Amsterdam, the NetherlandsTable of ContentsContents: 1. Introduction 2. Good Health 3. The Invisible Mind 4. Inputs and Outcomes 5. The Individual 6. The Practitioner 7. The Public 8. The Logic of Insurance 9. Insurance: Public and Private 10. Equity and Equality 11. The Right to Health 12. Inequality and Health 13. Narrowing the Gap 14. Equalising Medical Care 15. The Cost of Care 16. Cost Containment 17. State, Market and Cost 18. Conclusion Index

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Book SynopsisHow good is the NHS, really? That is the question this book seeks to answer, as the health service emerges from the gravest crisis in its history with more money - but greater challenges - than ever before. During the pandemic, voters made extraordinary sacrifices to save the NHS from collapse. Thanks to these efforts and the dedication and bravery of the NHS workforce, hospitals were able to treat patients with coronavirus, but millions of others lost out. Now an exhausted and depleted NHS workforce faces a huge backlog. The gap between supply and demand for publicly funded healthcare has never been so wide. With record numbers waiting for treatment, the politicians' answer has been to spend ever more taxpayers' money. The question is whether throwing cash at the problem will work. Every day, millions of patients receive care that is fair, good or outstanding. In keeping with Nye Bevan's founding principles, the same treatment is available to rich and poor, free at the point of need. Public support for the concept remains overwhelming. Yet for every positive NHS experience there are negatives: care that is substandard, disjointed and arrives too late. A cult of secrecy surrounds errors and failings. Politicians on all sides dissemble and lie. This book seeks to strip away the spin and uncover the true state of the NHS: the good, the bad and the ugly. It explores an increasingly urgent question: in an era of pandemics, can the NHS provide the quality of service patients deserve?Trade Review"An insightful and thought-provoking guide to the challenges facing the NHS after it has been through the trauma of Covid, and as it looks ahead to how to embrace the rest of the twenty-first century. Much of the analysis and many of the stories will ring true to anyone who has experienced the NHS first-hand. Anyone who loves the NHS and wants to see it thrive would do well to read this book." - Rt Hon. Matt Hancock MP, Secretary of State for Health, 2018-21 "This is a brilliant account, exhaustively researched with a balanced assessment of the good, the bad and the ugly. It's a great narrative of how incredible our NHS can be but with chilling stories of the damage some patients have suffered and of a culture that is often closed and defensive. I hope this book will trigger an urgent debate about whether our NHS is as good as it can and should be - and what therefore should be done about it." - Sir Stephen Bubb, director of Charity Futures and the Oxford Institute of Charity "A tour de force ... This book is a balanced, thoughtful account which recognises the existence of vested interests within the health sector and its frighteningly challenging agenda of rising demand and expectations, workforce shortages and the urgent need to adopt new ways of working. It recognises the power and value of the great ideal that underpins the health service but is not starry-eyed about its prospects ... For anyone seeking a better understanding of how our most cherished institution really works and its prospects, this is a must-read." - Niall Dickson CBE, former chief executive of The King's Fund, the General Medical Council and the NHS Confederation "This is a truly insightful tour d'horizon which should rightly warn anyone away from silver bullets to solve issues facing the NHS. But anyone seeking to make sensible improvements will find much good sense in its pages." - Rt Hon. Jeremy Hunt MP, Secretary of State for Health, 2012-18

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Book SynopsisSolution focused practice offers proven ways of helping adults overcome a range of life difficulties, from physical and mental illness to learning disability and the challenges of old age. This book outlines the basic principles and techniques which can be used to identify people's strengths and abilities to overcome challenges, make their own decisions and achieve their goals. Using case examples of life challenges at every stage of adulthood, including problematic behaviours, trauma, loss and end of life care, it provides stimulating activities and questions that will help professionals develop constructive conversations with service users and help them find the solutions they need.This comprehensive guide is an essential introduction for all those working with adults in health and social care.Trade ReviewThe language the authors use is exemplary: loud and clear, no nonsense. I particularly like the reflective parts, with the kinds of questions a solution focused worker would ask their client. A book you should have in your library! -- Els Mattelin, therapist and co-author of Autism and Solution-focused PracticeThe practice activities in the book provide a wide range of questions we can use to ensure that clients feel they are being heard properly. It is an accessible book, which will be of use to anyone involved in multi-agency working. -- Kidge Burns, Solution focused practitioner, trainer and author of Focus on Solutions: A Health Professional’s GuideTable of Contents1. Useful conversations: Positive approaches to working with adults. 2. Taking people seriously. 3. Setting achievable goals. 4. Finding exceptions to problems. 5. Discovering people's strengths. 6. Scaling goals, progress and safety. 7. Bringing it all together.

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Book SynopsisThe significance of attachment theory for working with older people has been overlooked, and yet its importance is clear - evident in the experiences of people who struggle to adapt to new ways of living, to life with limiting health conditions, or to new social networks.This book explains how an understanding of attachment theory can empower health and social care staff, and improve the care of older people. It also serves as an accessible introduction to strengths-based working, covering principles and practice as well as key practice issues such as positive risk-taking, supporting people with dementia, working in end of life settings and working with whole families.With in-depth case studies depicting a broad span of experiences and easy to use tools for practice, this practical guide serves as an essential guide for all staff supporting older adults.This hands-on guide will help frontline workers convert this policy vision into practice.Trade ReviewApplying attachment theory to close relationships in later life is still a neglected topic (I say that with some experience because it was the subject of my PhD, and it was just as neglected then). This book goes a long way to stress the importance of recognising that attachment processes carry on until the end of life, when the loss of key attachment figures is more and more frequent. By introducing 'strength-based' and other contemporary ideas closely connected with attachment theory and research the authors have produced a very relevant and readable volume for practitioners from all disciplines. -- Professor David Shemmings OBE PhD, Director of the Attachment and Relationship-Based Practice ProjectThis book is an essential read for practitioners, supervisors, researchers and educators concerned with working with older adults. Attachment theory is about all of us, across the whole of our lives. Imogen Blood and Lydia Guthrie have written a richly rewarding and comprehensive volume, providing profound and useful insights and ideas for working systemically, holistically and humanely with older people. -- Clark Baim, Senior Trainer, Supervisor and PsychotherapistThis is a really important and timely book. It's essential that we inject the humanity back into our caring relationships, formal and informal. Too much attention is given to the architecture of care; rules regulations, protocols. Too little is done to support carers and care workers to foster the essential and deeply human relationships we'd like to see. Far to little understanding and recognition about how we as humans can be best engaged to bring our empathy, humanity and kindness to the fore. Blood and Guthrie draw on solid evidence to demonstrate why we have to change our culture around care, it's not about 'them' it's about all of 'us'. If we want care to be kind we have to make the system around it kind. Until we fully recognise the relational and human aspect to care we will continue to fail to create the conditions for kind of care we want for our loved ones and indeed ourselves. Bravo! -- John Kennedy, Independent Consultant and Commentator in Adult Social CareA final chapter (a real strength of the book) containseleven 'tools' for students and practitioners to adapt to their work with clear,accessible explanations alongside. The tools cover examples of motivationalinterviewing, life story work, genograms, 'my world' diagrams and so forth.Particularly strong and thought provoking is the authors' emphasis onattachment across the life cycle, and their application of this theory to olderpeople helps generally to challenge our thought processes in this area. Thisencourages critical attention to the ways in which we can 'dehumanise' olderpeople unintentionally through subconscious fears, our own attachmenthistories, and lack of time and space for reflection. * Journal of Practice Teaching & Learning *Table of ContentsIntroduction. Foreword. Preface. 1. An Introduction to Strengths-Based Practice with Older People. 2. Introduction to Attachment Theory. 3. Working with the Whole Family. 4. A Good Life in Care. 5. Maintaining Connections and Interests. 6. Positive Risk-Taking. 7. End of Life and Bereavement. 8. Reflective Supervision, Staff Well-Being, and Strengths-Based Leadership. Tools. Acknowledgements.

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Book SynopsisExploring creative ways to implement solution focused practice, this book is packed full of ideas to inspire ways of working with clients which focus on their strengths as a means to finding solutions.Outlining how and why strengths-based interviewing for solutions is effective, the book provides a wealth of different ways to apply key solution focused techniques. With exercises, sample questions and top tips for tricky situations, the authors show how to apply creative methods in a variety of different settings and with different service user groups. Suitable for use with children and adults, this accessible book will offer exciting ideas for those new to solution focused working as well as more experienced practitioners looking for inspiration.Trade ReviewI would recommend this book to anyone developing skills for solution-focused work in any aspect of client work. -- Dr. Alasdair J. Macdonald, retired consultant psychiatrist and family therapist; chair of a Dorset counselling charityWith this welcome new addition to the growing body of solution focused literature, Judith Milner and Steve Myers offer a very practical guide to solution focused practice with a range of client groups - whether this is with young children or elderly people living with dementia, and everyone in-between. The ideas are clearly articulated and illustrated with dialogue. Traditional methods from the founders of solution focused brief therapy are integrated with modern developments. Practical exercises reinforce the learning and help to locate the skills within the reader's own practice. I can recommend this book to those who are new to this elegant and effective way of helping people as well as 'old hands' such as myself who always can benefit from being brought back to basics. -- Andrew Callcott MA (SFBT); Psychological Therapist. Former Chair of UK Association for Solution Focused PracticeYet another supremely practical guide to solution focused practice from the creative Judith Milner and Steve Myers, which has plenty to offer to both the experienced and newcomers to the field. Plainly written and full of useful activities, it will be a welcome addition to any solution focused practitioner's bookshelf. -- Guy Shennan, independent consultant in solution focused practice and Chair of the British Association of Social WorkersCreative Ideas for Solution Focused Practice provides busy practitioners with an integrated, flexible model which links theory, context and skills that are underpinned by sound values and principles. The book is refreshingly grounded in the authors' practice experience and promotes an approach to working with people that encourages change and growth that is strength based, collaborative and outcome focused. The exercises are easily adaptable to a range of practice scenarios and the book is a great reminder that 'once we know what works, do more of it!' This is an excellent, easy-to-read resource written in an engaging style, which will inform and inspire all of us who are seeking to help and support people make better choices and lead rewarding lives. -- Dave Basker, Head of Quality and Practice Improvement, Children’s Services, Leeds City CouncilTable of ContentsIntroduction. 1. Solution Focused Philosophy. 2. Practice Principles and Techniques. 3. Specific Contexts. 4. Surviving Trauma and Violence. Resources.

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Book SynopsisGathering together thoughts and visions of experienced practitioners, academics, educators and strategic leaders from around the world, this edited volume sheds light on the nature of chaplaincy and its role and significance within ever-changing contemporary healthcare systems.A wide range of issues central to spiritual care delivery are covered, including reflections on what it feels like to be cared for by a chaplain through illness; the nature of chaplaincy as a profession; and how chaplains can engage with healthcare institutions in ways that have integrity yet are also deeply spiritual. The focus throughout is that chaplaincy should not only be guidance for people in distress, as a form of crisis intervention, but is rather about helping to promote wellbeing and enhance people's quality of life.Where specialisms tend to fragment systems and individuals, this book seeks to show that true health and wellbeing can only be found through a holistic approach, and shows how chaplaincy can bring this to the table. This book is for anyone who recognises the centrality of spirituality for wellbeing, and wishes to see what that might look like in practice.Trade ReviewThere is by now absolutely no doubt that the profession of chaplaincy (in an increasingly complex and secular world) is facing a watershed - with an ocean of creativity, relevance and sustainability on one side and a rapidly-drying riverbed of outdated approaches on the other. This new volume is a wide-ranging and well-informed look at the most relevant challenges, as well as possibilities, for influencing which way things will ultimately flow. If you are in the professional chaplaincy field and care even one drop about our future, read this collection. -- Rev. Dr. Amy Greene, Director, Center for Spiritual Care, Cleveland Clinic Health System, and Board Chair, 2018-2019, ACPE: The Standard for Spiritual Care and EducationThe voices and needs of patients - the most important focus of chaplaincy in healthcare - are connected with the challenges for the profession of a chaplain. The experiences of patients, chaplaincy practice, outcome-oriented research by chaplains and a theoretical underpinning of the profession are all presented in a unique, patient-centered way, for a broad public. -- Simon Evers, coordinator of the European Network of Healthcare ChaplaincySwinton and Kelly have drawn together important voices in spiritual care to produce this timely, stimulating and necessary collection. Here is a 'must read' for anyone involved in Health and Social Care Chaplaincy, helpfully alerting the reader to contemporary questions in a way that will stimulate further thought and debate. -- Rev Canon Dr Iain Macritchie, Programme Director for Spiritual Care and Chaplaincy, NHS Education for ScotlandChaplains and health care leaders from across the globe passionately convey diverse perspectives and bold invitations that are thought provoking and deserving of critical consideration. A must read for front line chaplains and health care leaders confronting chaplaincy care challenges and opportunities in the 21st century. -- Stephen D. King, Manager: Spiritual Health, Seattle Cancer Care Alliance, and Chair, Joint Research CouncilKelly and Swinton have together produced a milestone publication in Healthcare Chaplaincy. 28 experienced authors, both co-creating and conflicting, address key issues facing Chaplaincy today as healthcare and social paradigms rapidly shift. Many offer important standalone contributions, but together they weave a landscape from which the future shape of our Profession may well emerge. -- Dr. Simon Harrison, President, College of Health Care ChaplainsTable of ContentsIntroduction - Ewan Kelly and John SwintonPart 1: The essence of healthcare chaplaincy? What does spiritual need feel like?1. Living with a chronic long-term condition: 'I can reflect with chaplains about things I cannot share with others.' - Eva Buelens (KU Leuven, Belgium)2. Experience of spiritual distress in an acute setting: Living with perinatal loss - Daniel Robert Nuzum (Healthcare Chaplain and Clinical Pastoral Education Supervisor, Cork University Hospital, Ireland; Lecturer, Department of Obstetrics and Gynaecology, University College Cork, Ireland)3. What does spiritual need feel like? Experience of chaplaincy and spiritual care in mental health - Madeleine Parkes (Hospital Chaplaincy Team, Birmingham, UK)Part 2: The art of chaplaincy: is chaplaincy an art or science?4. Healthcare chaplaincy as professional artistry - Mark Stobert (Chair of UK Board of Healthcare Chaplaincy)5. Different Trains: liminality and the chaplain - Kevin Franz (Former Lead Chaplain for Mental Healthcare, NHS Greater Glasgow and Clyde, UK)6. The role of science in enhancing spiritual care practice - Daniel H. Grossoehme, Dmin, MS (Staff Scientist, Rebecca D. Considine Research Institute, Haslinger Family Pediatric Palliative Care Center, Akron Children's Hospital, USA)7. Outcomes in health and social care chaplaincy: core business or problematic necessity? - The Rev. George F. Handzo (Director, Health Services Research & Quality, HealthCare Chaplaincy Network, UK) and Steve Nolan (Princess Alice Hospice, UK)Part 3: Healthcare professionals? What kind of professionals are chaplains?8. Charting the journey towards professionalization in the UK - Derek Fraser (Cambridge University Hospitals, UK)9. We have taken off. Reflections on research and professionalization in healthcare chaplaincy in Europe - Anne Vandenhoeck (KU Leuven, Belgium)10. Contemporary sustainable building: architecture of chaplaincy and spiritual care - Hans Evers (Head Department of Pastoral Care, Leiden University Medical Center, Netherlands)11. A question of identity: What does it mean for chaplains to be healthcare professionals? - John SwintonPart 4: Researching Chaplaincy: what research is needed? How can it be grown?12. Advancing research in healthcare chaplaincy: why, how, who? - George Fitchett (Professor and Director of Research, Department of Religion, Health and Human Values, Rush University Medical Center, Chicago, Illinois, USA)13. The story of the Scottish patient reported outcome measure (PROM): an example of innovation, collaboration and education in chaplaincy research - Professor Austyn Snowden (Chair in Mental Health, Edinburgh Napier University and visiting professor, Leuven University, Belgium) and Iain Telfer (Royal Infirmary of Edinburgh)Part 5: Creative engagements14. The chaplain and organizational spirituality of church-sponsored healthcare institutions - Neil Pembroke (School of Historical and Philosophical Inquiry, The University of Queensland, Australia) and Raymond Reddicliffe (School of Historical and Philosophical Inquiry, The University of Queensland, Australia)15. Chaplaincy and its potential contribution to cultural transformation - Dr Kenneth J Donaldson (Consultant Nephrologist and Medical Director at NHS Dumfries and Galloway, UK) and Ewan Kelly16. Spiritual care and a new art of dying - Carlo Leget (University of Humanistic Studies, Utrecht, Netherlands)Part 6: Caring well, caring spiritually17: From interventions during ill health to enabling well-being and resilience: Community Chaplaincy Listening (CCL) - Timothy P Bennison (Department of Spiritual Care, NHS Forth Valley, UK)18: From person-centred to people-centred spiritual care - Jo Kennedy (Faith, health and social care sectors, Scotland, UK) and Ian Stirling (Hospice chaplaincy and spiritual care in Scotland, UK)19: Co-production and promoting spiritual wellbeing in mental health - Julian Raffay (Mersey Care NHS Foundation Trust, UK) and Don Bryant (Board of Mental Health Network)Part 7: Educating chaplains: what do chaplains need to learn to work in and influence 21st century healthcare systems?20: Formation and the intentional use of self: the chaplain's primary resource - Ewan Kelly21: Educating and equipping chaplains to practice in new paradigms - The Rev. David W. Fleenor (Director of Education, Center for Spirituality and Health, Icahn School of Medicine at Mount Sinai, NY, USA) and Ewan KellyPart 8: Shaping the future22: Strategic leadership in healthcare chaplaincy - Cheryl Holmes (Chief Executive Officer, Spiritual Health Association, Australia) and Ewan Kelly 23: Future directions - posing and living with questions - Ewan Kelly and John Swinton

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Book SynopsisTrans people in the UK currently face widespread prejudice and discrimination, from how they are described in the media to the lack of healthcare support they receive. This institutional bias is illustrated by the tragic case of Synestra de Courcy, who died following neglect and rejection from the NHS, leading her to sex work to fund her transition and dangerous self-medication. Charting Syn's life from childhood through to her untimely death aged just 23, Jane Fae exposes the gross institutional and societal discrimination trans people experience on a daily basis and its impact on the lives of trans people young and old. Promoting honest discussion and bringing these hidden issues into the light of day, this book is a must-read for anyone interested in trans rights and NHS accountability.Trade ReviewMasterful! Fae dissects an individual tragedy with a combination of compassion and surgical accuracy to shine a harsh light on the scandal of systemic neglect towards vulnerable young trans people. In the process she critiques the wider structural discourse in society that allows and even encourages it. -- Christine Burns MBE, author and retired transgender activistThis is an incredibly important book which weaves together the life-story of an individual let down badly by the existing system and the structural and systemic problems that define the system that processes the trans community and societies notion of dysphoria. What Fae does remarkably and sensitively is to humanise all of us, whilst examining waiting lists, costs and numbers, she honours our beautifully vibrant community, who are, time and time again, let down by a system which often view us with suspicion and mistrust. This is a must read. -- Juno Roche, writer and campaignerBy bringing together different people's perspectives on an individual life story and combining this with contextual information, Fae has produced a book that is educational yet also dynamic and humane. -- Jennie Kermode, Chair of Trans Media Watch and author of 'Transgender Employees in the Workplace'Transition Denied is written by a third party from a grieving mother's point of view trying to make sense of her daughter's transgender journey and her tragic early death. Synestra's journey should not go unacknowledged. It is a recommended read for a better understanding of a transgender person and shows the barriers that a transgender person has to negotiate. -- Kamilla Kamaruddin, GP Partner, East One Health Surgery, London * British Journal of General Practice *Table of ContentsA mother's view: foreword by Amanda DeCourcy. 1. Finding Trans. 2, Coming Out. 3. Girls just want to have fun. 4. Seeking Help. 5. Into the darkness. One final party.

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Book SynopsisThe NHS is in crisis - it's in record demand, and care services are at breaking point - but what if the solution to rescuing the NHS is in the hands of the patients themselves?In this refreshingly positive and remarkable book, David Gilbert shares the powerful real-life stories of 'patient leaders' - ordinary people affected by life-changing illnesses, disabilities, or conditions, who have all gone back into the fray to help change the healthcare system in necessary and inspiring ways. Charting their diverse journeys - from managing to live with their condition, and their motivation to change the status quo, right through to their successes in improving approaches to health and social care - these moving and courageous stories aim to motivate others to take back control and showcase the pivotal importance of patients as genuine decision-making leaders.Filled with hard-won wisdom and everyday heroism, The Patient Revolution challenges current discourse and sets out an empowering vision of how patient leaders can change the future of healthcare.Trade ReviewHealthcare has made huge progress in the last 70 years, but how much further could we have travelled if we'd let patients lead the charge? To design any treatment or service without hearing the voices of those who use it, and knowing what matters most to them, is to set ourselves up for failure. And yet patient involvement is a relatively recent idea. When I trained as a doctor in the mid-eighties, we commonly wouldn't tell some patients what their diagnosis was, for fear of upsetting them. Others were labelled 'not for resuscitation' without any discussion or agreement from them. And yet as this book amply illustrates, there are huge gains to be made from telling patients the whole truth and letting them take a lead in their care, and to take as much control and responsibility as they feel willing and able to do. The patient leaders here tell inspiring and sometimes frustrating stories, but they are all united by a desire to learn from their experience and to improve the experience of those who follow them. We desperately need their help if healthcare is to cope with the demands placed on it. This wonderful collection of insight and experience is a great place to start. -- Dr Phil Hammond, NHS doctor, journalist and author of ‘Staying Alive – How to Improve Your Health and Your Healthcare’At the beginning of my medical career, collaborations with service users barely existed. When they started to emerge, I have to admit I was sceptical. But as I grew older, and hopefully wiser, I started to wake up. Now I think they are indispensable. If anyone still needs convincing, read this book. I promise you won't regret it. -- Professor Sir Simon Wessely, President, Royal Society of MedicineDavid has shaped the purpose of Patient Leadership as a Patient Director in an NHS Service. Bringing his full and authentic self to the workplace David has truly located the Patient as an equal in the planning and delivery of NHS care. There is much for us all to learn from his experience. -- Samantha Allen, Chief Executive, Sussex Partnership NHS Foundation Trust'Extraordinary stories, extraordinarily well told' was my first reaction but that is not the point of this book. The point is that, sadly, the stories may be all too common. The people who have talked to David Gilbert about their experiences of healthcare have done us all a service, as has Gilbert in his sensitive presentation of their voices. We should all listen. -- Harry Cayton, former Chief Executive, Professional Standards AuthorityA profoundly important book about a social movement of patients who are also activists and entrepreneurs and who can make a vital contribution to the NHS. Having read the book, I am left wondering: 'Why doesn't the system wholeheartedly embrace patient leadership?'Perhaps it's all about power. A chief executive recently tweeted- without irony- that a red chair would sit empty during all executive meetings to remind board members of the importance of patient involvement. Please read this book, please reflect on it and please don't leave the red chair empty. -- Professor Alf Collins, Clinical Director for Personalised Care, NHS England and NHS ImprovementThis book is dangerously good. -- Richard Pemberton, Director of British Psychological SocietyI imagine that many readers have had the experience of making their own diagnosis based on information on the Internet, which is part of patient empowerment so that people can arrive better informed at their doctor's appointment. This book goes further by sharing the stories of 13 'patient leaders' who have drawn on their own experience to impact the National Health Service with its procedures, protocols and the general assumption that professionals know best and that change must come from the top down. In many cases, the patients have really been through the hoops and have shown immense resilience to come out the other side. What emerges is a model of partnership, advocacy and engagement, humanising institutions operating impersonally by the book. Sometimes this involves a process of infiltration but more often sheer persistence in the face of resistance and inertia... This approach certainly has a role to play in healing the healthcare system and inspiring readers with its stories. * Paradigm Explorer *The Patient Revolution is a powerful examination of patient engagement. Not only in its first-hand depiction of a broken healthcare system. But in its demonstration of the failure of traditional public and patient engagement. Focussed on the UK - more specifically, the NHS - it documents the hazardous fragmentation across the healthcare system and the acute disconnect with patients in a siloed approach to healthcare. At times, with dire consequences. On the one hand, in the documented experiences of inconceivable "bad care", to reuse Gilbert's words, that speak volumes of how traditional healthcare has failed the very people it is meant to serve. On the other hand, in the empty rhetoric of "patient-centric" approaches and "tick box" methods that have occupied decades of so-called patient engagement. As Gilbert writes, traditionally conceived patient and public engagement "buffers power by distancing patients from decision-making." Moreover, where engagement fails, ironically, it's attributed to "the lack of value that patients bring."But it is far from a negative lambasting. As the subtitle title suggests - "how we can heal the healthcare system" - it is an inspiring, activating collection, animated by the wisdom of experience of its 13 Patient Leaders, who have not only suffered at the hands of "bad care", but, remarkably, are dedicated to changing the system - often without recompense, at times disempowered, co-opted or stripped of any professional identity...It would be difficult to read this book and not be driven to activism. It signals a breakthrough in healthcare that moves beyond traditional engagement and uncovers the pioneering and transformative work of patient leaders in the UK. For engagement practitioners, this book helps understand questions we need to ask of any healthcare system - and not only limited to UK and the NHS - but globally. It also underscores how traditional engagement methods have failed, bottom line, by not valuing their most vital resource: patients. * Sally Hussey, Bang The Table *Compelling...there is much for us to think about when working with clients. * Therapy Today *Table of ContentsPreface: The Tale of the Jewel MerchantsIntroduction1. Michael Seres - You Have to be Three Times As Good2. Kate James - Making the Connection3. Dom Stenning - Jedi Master of Involvement4. Sibylle Erdmann - Transformers5. Alison Cameron - Crumbs from the Table6. David Festenstein - Walking the Talk7. Patrick Ojeer - Being Believed8. Karen Owen - HealthMaker9. Trevor Fernandes - The Tactics of Infiltration10. Lesley Preece - Tough Work11. Ceinwen Giles - The Amazing Fall from Grace12. Dominic Makuvachuma Walker - Dealing with Power13. David Gilbert - Outsider-Inside

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Book SynopsisThe definitive guide on providing support to transgender and non-binary people with physical disabilities and/or illnesses and mental illnesses. It provides advice on transitioning with a disability, hospital care, institutional care, at-home care, sex-specific service provision, data management and record-keeping, and fertility and reproduction.Trade ReviewThis is an excellent and comprehensive book for professionals at any level involved in the management or delivery of clinical and social care services. Read it before you encounter your first transgender or non-binary service user, with or without disabilities, and you won't go wrong. -- Christine Burns MBE, Author and Transgender ActivistThis book is a joy to read. Clear, straightforward, comprehensive: it sets out its stall with an economy and directness I can only aspire to. From trans basics (about which I already knew a lot) to the specifics and health and disability issues for trans people, this is an essential guide for anyone working in this area - from medics to social workers to teachers and policy makers - or just wishing to know more. -- Jane FaeTable of Contents1. Sex and gender: understanding transgender people. 2. Transgender people, disability and illness. 3. The transition process. 4. Transition and disability. 5. Transition and chronic illness. 6. Transitioning with a mental illness or learning disorder. 7. Physical health issues associated with being transgender. 8. Mental health issues associated with being transgender. 9. Sex-specific service provision. 10. Transgender people and pregnancy. 11. Data management. 12. Hospital care. 13. Institutional care. 14. At-home care. 15. Transgender people and disability benefits.

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Book SynopsisThere has been a surge in "Living Labs" in recent years including those focusing on the health and autonomy sectors. The aim of these innovative user-centered spaces is the emergence of products and services that meet market needs and support both the efficiency of public health and the competitiveness of enterprises. This book is the result of work involving both field practitioners and academic actors in human sciences and co-design. It highlights the good practices that arise within living labs despite their use of different approaches. This collaborative work has given rise to the Living Lab Health and Autonomy (LLSA) Forum and has allowed for an improved capacity to support an efficient development of this form of design for the actors of health and autonomy, but also of industry and of its investors. This book draws on their experience and the views of experts to illuminate their practices and gives better visibility and legibility to these new players. Table of ContentsPart 1. The Operational Reality of Co-design in LLSAs 1. The Living Lab: A Reality Belonging to a Collective History. 2. Running Co-design: Collaborative Projects and Co-design Sessions. 3. Problems and Methods of Involving Users in Co-development Projects. 4. Involving Industrialists. Part 2. Challenges of Co-design and Independent Living 5. Co-design: Methodologies for Investigating, Developing and Sharing Knowledge in View of New Solutions for Future Use. 6. Co-design and Health Technology Assessment: Controlling and Establishing Reproducibility. 7. The Purposes and Reality
 of Collective Appropriation of Social Innovation. Part 3. Diverse Perspectives on Co-design 8. Critique of the Living Lab Approach. 9. Co-design Methods. 10. Living Lab Approach and Learning. 11. Other Views. Part 4. The LLSAs’ and the Forum’s Value Added 12. LLSA Solutions. 13. LLSA Typologies.

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Book SynopsisHuman capital is embodied in human beings. It embraces the individual’s capacity to perform and enjoy activities that provide money and/or psychic income. Health behaviour affects human capital and is itself affected by the individual’s human capital. This volume consists of original theoretical and empirical contributions to our knowledge of the interdependence between Human Capital and Health Behaviour.Trade ReviewHealth, economics, and policy researchers from Europe, the US, Canada, and China provide eight articles drawn from papers presented at the Symposium on Human Capital and Health Behavior, held in Gothenburg, Sweden, in May 2016. They consider the relationship between human capital and health behavior, including the relationship between birth spacing and educational outcomes; the relationship between education and health; human capital and risky behavior, including the effects of maternal work incentives on teen drug arrests and a behavioral welfare economics approach to measure the impact of tobacco regulations on consumer welfare; the association between smoking cessation and health information and the effect of education on health behavior after screening for colorectal cancer; and the relationship between unemployment insurance and physical activity. -- Annotation ©2017 Ringgold Inc. * (protoview.com) *Table of ContentsIntroduction Prenatal investments and human capital development Chapter 1. Birth spacing and educational outcomes; Elaine L. Hill and David J.G. Slusky Education and health Chapter 2. Individual investments in education and health: Policy responses and interactions; Jared C. Carbone and Snorre Kverndokk Chapter 3. Causal effects of maternal schooling on child immunization in India; Prabal K. De Human capital and risky health behavior Chapter 4. Effects of maternal work incentives on teen drug arrests; Hope Corman, Dhaval Dave, Ariel Kalil and Nancy E. Reichman Chapter 5. Behavioral welfare economics and FDA tobacco regulations; Philip DeCicca, Donald Kenkel, Feng Liu and Hua Wang Information and health behavior Chapter 6. Educational heterogeneity in the association between smoking cessation and health information; Dean R. Lillard Chapter 7. The effect of education on health behavior after screening for colorectal cancer; Eline Aas and Tor Iversen Insurance and health behavior Chapter 8. Unemployment insurance and physical activity; Jonathan Cylus

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Book SynopsisThis book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines, and their implementation 'on the ground'. The case studies, therefore, focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations.Trade ReviewThis workbook is an essential tool for those committed to the hard work of scientific collaboration across steep global inequalities, and an inspirational example of engaged anthropology. --Johanna Crane, University of Washington, author of 'Scrambling for Africa: AIDS, Expertise, and the Rise of American Global Health Science'"

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Book SynopsisThis book is an essential resource exploring the concepts, theories and methods in consumer behaviour specifically applicable to the food and drink sector. Drawing examples from all continents, it provides you with accessible coverage and a truly global perspective of the particular characteristics of this industry. It offers clear explanations and applications of theoretical concepts, using specialised case studies and examples; features an introduction, learning objectives and summary in each chapter to hone your reading and revision; and provides you with companion online material including notes and self-assessment questions. This important new book is the perfect guide for students studying consumer behaviour or experience in food and drink as part of courses in agricultural or agribusiness management and economics, hospitality and tourism, business studies, food science and nutrition, or generic marketing and consumer studies. This book is enhanced with supplementary resources including multiple choice questions and longer revision questions, with answers.Table of ContentsChapter 1: Introduction – Overview of the global food and drink sector Chapter 2: Models of consumer behaviour Chapter 3: Consumer perceptions in food and drink Chapter 4: Consumer learning and memory in food and drink Chapter 5: Motivation and involvement in food and drink Chapter 6: Consumer personality in food and drink Chapter 7: Consumer self-concept in food and drink Chapter 8: Consumer attitudes in food and drink Chapter 9: Culture and sub-cultures in food and drink Chapter 10: Reference groups in food and drink Chapter 11: Social class in food and drink Chapter 12: Situational factors in food and drink Chapter 13: Organisational buying in food and drink Chapter 14: Adapting the marketing mix on the basis of consumer behaviour Chapter 15: Contemporary issues and future developments in food and drink

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Book SynopsisThis book is an essential resource exploring the concepts, theories and methods in consumer behaviour specifically applicable to the food and drink sector. Drawing examples from all continents, it provides you with accessible coverage and a truly global perspective of the particular characteristics of this industry. It offers clear explanations and applications of theoretical concepts, using specialised case studies and examples; features an introduction, learning objectives and summary in each chapter to hone your reading and revision; and provides you with companion online material including notes and self-assessment questions. This important new book is the perfect guide for students studying consumer behaviour or experience in food and drink as part of courses in agricultural or agribusiness management and economics, hospitality and tourism, business studies, food science and nutrition, or generic marketing and consumer studies.Table of ContentsChapter 1: Introduction – Overview of the global food and drink sector Chapter 2: Models of consumer behaviour Chapter 3: Consumer perceptions in food and drink Chapter 4: Consumer learning and memory in food and drink Chapter 5: Motivation and involvement in food and drink Chapter 6: Consumer personality in food and drink Chapter 7: Consumer self-concept in food and drink Chapter 8: Consumer attitudes in food and drink Chapter 9: Culture and sub-cultures in food and drink Chapter 10: Reference groups in food and drink Chapter 11: Social class in food and drink Chapter 12: Situational factors in food and drink Chapter 13: Organisational buying in food and drink Chapter 14: Adapting the marketing mix on the basis of consumer behaviour Chapter 15: Contemporary issues and future developments in food and drink

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Book SynopsisNEW UPDATED EDITIONIn this committed and compassionate book, Phil Hammond - a doctor, journalist, campaigner and patient - argues for a bidet revolution in the NHS - from the bottom up, with patients leading the charge. What we can do for ourselves to live well often far outweighs what modern medicine and the NHS can do for us. And when we do need to use the NHS, getting involved, speaking up and sharing our expertise can improve not just our care, but the care of others. We won't always succeed, but we can learn from failure as we try to get the best care possible in our precious and precarious health service. Dr Phil shares his own experiences of working in and investigating the NHS for 30 years, and combines it with the testimony and tactics of inspirational patients and carers. Some have survived and thrived in the NHS, some are planning a gentle death at home, and some have suffered greatly but are determined to improve the NHS so others don't have to.Trade ReviewWant to get the best from the NHS? How many strong, independent adults turn to shy, tongue-tied patients, and don't ask questions for fear of seeming presumptuous. I did when my kids were ill - and I'm a doctor! Now Dr Phil Hammond has written a fabulous practical guide in his book Staying Alive - how to get the best from the NHS. Like me, he loves the NHS - but he knows we all need some help to navigate our way through it. * Dr Sarah Jarvis, GP, writer and doctor for The One Show and www.patient.co.uk *If you use the NHS (i.e. all of you), you MUST read this book. If you're a doctor you NEED to read this book. If you're an NHS manager this book is VITAL. * Dr Chris Steele, GP and doctor for ITV's This Morning *This is a fantastic book about how to live well. Phil Hammond's goes beyond the usual tips about diet and exercise - we hear about the power of positive thinking, as well as how to get the best out of the health service. And this book is packed with real stories - from people who have become survival experts through their own experiences. Their stories are heartwarming, enlightening and useful. Phil Hammond has a knack of being brutally honest and very funny at the same time. This is quite simply the most useful book about health and the health service that I've ever read. * Alice Roberts *

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Book SynopsisThis volume of Research in the Sociology of Health Care analyses micro-level gender issues and other social factors impacting macro-level health care systems. Examining the health and health care issues of patients and providers of care both in the United States and in other countries, chapters focus on linkages to policy and population concerns as ways to meet global health care needs.Trade ReviewSociologists and other researchers specializing in women's health and welfare present their findings on issues related to gender and cancer, pregnancy and childbirth, the use of health care and gender, gender issues outside of the US and Europe, and other gender topics. Their topics include younger women with breast cancer and treatment decision-making: rethinking patient involvement and empowerment, relationship matters: an examination of educational and racial disparities in unintended pregnancy, weight loss surgery patients: gender-differentiated experiences of vanity stigma, gender differences in health care utilization among older adults in Barbados, and handling without care: women's health experiences in jail. -- Annotation ©2018 * (protoview.com) *Table of ContentsPart 1: Introduction to VolumeGender, Women and Other Social Factors in Health and Health Care; Jennie Jacobs Kronenfeld Part 2: Gender and Cancer Related Issues 1. Growth from Trauma: Gender Differences in Experience of Cancer and Long-Term Survivorship; Karen Powroznik, Irena Stepanikova and Karen S. Cook 2. Younger Women with Breast Cancer and Treatment Decision Making: Rethinking Patient Involvement and Empowerment; Karrie Ann Snyder, Alexander Tate and Ethan Roubenoff 3. Role of Cancer History and Gender in Major Health Insurance Transitions: A Longitudinal Nationally Representative Study; Katherine S. Virgo, Chun Chieh Lin, Amy Davidoff, Gery P. Guy Jr, Janet S. de Moor, Donatus U. Ekwueme, Erin E. Kent, Neetu Chawla and K. Robin Yabroff Part 3: Pregnancy and Childbirth 4. Dignity in Childbirth: U.S. Women’s Perception of Respect and Autonomy in Hospital Births; Jessica Liddell and Katherine M. Johnson 5. Relationship Matters: An Examination of Educational and Racial Disparities in Unintended Pregnancies; Andrea Bertotti Part 4: Use of Health Care and Gender 6. The Impact of Gender in the Decision Making Process to Undergo Certain Surgeries Compared to Uncertain Surgeries; DaJuan Ferrell 7. Trust in Health Care: Understanding the Role of Gender and Racial Differences Between Patients and Providers; Celeste Campos-Castillo 8. Weight Loss Surgery Patients’ Gender Differentiated Experience of Vanity Stigma; Patricia Drew 9. Are there Gender Differences in the Capability to Use Facilities of Care? A Multilevel Analysis of 22 Countries; Rania Fuadovna Valeeva and Piet Bracke Part 5: Gender Issues Outside of the US and Europe 10. Gender Differences in Health Care Utilization Among Older Adults in Barbados; Nekehia T. Quashie 11. Burundian Female Survivors of War (SOW): Views of Health Before, During and Post Conflict; Jenelle R Walker, Jeanne Nizigiyimana, Oluwasola Banke-Thomas, Eric Niragira, Yvette Nijimbere, and Crista Johnson-Agbakwu Part 6: Other Gender Topics 12. Health and Gender: Quantifying the Unquantifiable; L.F. Carver 13. Handled Without Care: Women’s Health Experience in Jail; Laura McKendy

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Book SynopsisThis book describes the events, activities and negotiations leading up to the 2016 UN General Assembly Special Session on international drug policy. A range of respected authors from International institutions, academia and civil society organisations detail the background to the negotiations and the outcome; and possible future scenarios for continued reform and change at the High Level Review in 2019. The chapters include consideration of the positions taken by blocs and nation-states at all points on the prohibition – reform continuum. Topics covered include discussions on the importance of human rights, access to essential medicines and the role played by cannabis in revealing the contradictions and divisions in both national and international contexts. The break-down of the previous international consensus on ‘the world drug problem’ is clearly described and analysed, as is the slow progress being made to the adoption of a human rights and health-based approach to currently illegal drugs. Consideration is also given to the nations and arguments which continue to defend prohibition and its repressive impacts on national populations, and the prioritising of geo-politics over population health this represents in practice. There are lessons and examples here for international politics and national policy reform.Trade ReviewSpecialists in international law and drug policy discuss how tensions between the objectives, assumptions, and activities at the local level are tearing apart the landscape of international drug policy. Among their topics are the death penalty for drug offenses: pulling back the curtain to expose a flawed regime, measuring the World Drug Problem: 2019 and beyond, deconstructing the Islamic bloc: the Middle East and North Africa and pluralistic drugs policy, the European Union in panglossian stagnation, and Switzerland: moving towards public health and harm reduction. -- Annotation ©2018 * (protoview.com) *Table of ContentsForeword; Michel Kazatchkine Introduction; Axel Klein and Blaine Stothard Chapter 1. The 2016 UNGASS on Drugs: A Catalyst for the Drug Policy Reform Movement; Ann Fordham Fordham and Heather Haase Chapter 2. The Death Penalty for Drug Offences: Pulling Back the Curtain to Expose a Flawed Regime; Gen Sander and Rick Lines Chapter 3. Measuring the ‘World Drug Problem’: 2019 and Beyond; David R. Bewley-Taylor and Marie Nougier Chapter 4. Improving Access to Internationally Controlled Essential Medicines in the Post-UNGASS, Agenda 2030 Framework; Katherine Irene Pettus Chapter 5. The Elephant in the Room: Cannabis in the International Drug Control Regime; Tom Blickman Chapter 6. Drug Policy in the Russian Federation: Do Control Policies Produce More Harm Than Drugs?; Mikhail Golichenko, Anya Sarang, Khalid Tinasti and Isabela Barbosa Chapter 7. Consensus and Contradictions in ASEAN: An Analysis of Southeast Asia at and After UNGASS 2016; Ricky Gunawan and Gloria Lai Chapter 8. Deconstructing the Islamic Bloc: The Middle East and North Africa and Pluralistic Drugs Policy; Maziyar Ghiabi Chapter 9. Breaking Ranks: Pioneering Drug Policy Protagonism in Uruguay and Bolivia; Jonas von Hoffmann Chapter 10. The Netherlands, Portugal and the Czech Republic: Political Perceptions and Legal Realities; Danilo Ballotta and Brendan Hughes Chapter 11. The European Union in Panglossian Stagnation; Caroline Chatwin Chapter 12. United States Drug Policy: Flexible Prohibition and Regulation; Zara Snapp and Jorge Herrera Valderrábano Chapter 13. West Africa; Leandre Banon and Maria-Goretti Loglo Chapter 14. Switzerland: Moving Towards Public Health and Harm Reduction; Frank Zobel and Larissa J. Maier Chapter 15. Epilogue; Mike Trace

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Book SynopsisThis is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults.Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from.We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.Trade ReviewBeautifully written and absorbing, Love, Learning Disabilities and Pockets of Brilliance shines a joyful light on the kind of good support that enables people to flourish. Sara Ryan's book is a heartening exploration of the extraordinary role families play in the lives of their loved ones and reveals the benefits - for everyone - when practitioners embrace their experience and knowledge. An essential, rewarding read for anyone who cares about their fellow humans. -- Saba Salman, journalist and editor of Made Possible: Stories of success by people with learning disabilities - in their own wordsThis book should become a seminal work, central to all social work training. It will teach you more in a single chapter about love, hope and uniqueness than any other core text you can hope to find. -- from the foreword, Elaine James, Learning Disabilities Commissioner and Rob Mitchell, Principal Worker

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Book Synopsis"And at that exact moment, the earth tipped, and we all slid into a parallel universe..."On Christmas Day 2016, the Jessops were just an ordinary family, but on Boxing Day, one near-death experience swept them all into the bewildering world of hospitals and serious illness, and their lives changed forever.Pulling Through is a handbook of everything Catherine has learned on their journey. It covers many practicalities, such as explaining hospital tests and scans, jargon-busting medical terms, finance, rehabilitation and more. But it also illuminates the emotional aspect of illness and how massively it affects family and friends. There are chapters on the power of nature, music, counselling, optimism and humour, and how to look after the mental health of both patient and carer. This is a book of hope, help and reassurance on every aspect of coping with life-changing illness in the family: the good, the bad, the funny, the sad, and the useful. If you, or someone you know, has a life-changing illness, then this book is here to help.Trade ReviewPulling Through is beautifully written, extremely moving, funny at times, and full of love. It brilliantly captures the fear and frustration of not knowing what is wrong and then the challenges of living with a new version of someone. It's also full of top practical advice. This will be hugely helpful for all kinds of carers and people facing a life-changing condition - and it's a great read. -- Simon Hattenstone, Guardian journalistBeautifully written and poignant ... full of hope and humour. This book offers a wealth of practical advice on how to negotiate your way through the complexities of the NHS and social and support services, and importantly how to take care of yourself as a carer. I personally learned a huge amount ... inspirational. -- Dr Victoria Singh-Curry, Consultant Neurologist, Imperial College and Chelsea and Westminster NHS TrustsEncephalitis is a thief! The Jessop family know only too well the stealth with which it approaches, the immediacy with which it strikes and the devastation it leaves in its wake. In Pulling Through they use their journey and experience to produce a bible from bedside to the return home for anyone who finds themselves affected by sudden-onset ill-health in their family. -- Dr Ava Easton, Chief Executive, Encephalitis SocietyI started reading this book in the garden on a lovely spring evening. I was gripped immediately. Suddenly I was transported to Catherine Jessop's Christmas 2016, when her husband's life and that of her whole family, was thrown into disarray by a dreadful illness I know only too well. Although I have studied the terrible brain inflammation, encephalitis, for 25 years, and met thousands of patients, I learnt a lot from this compelling narrative, about fear, hope, survival, endurance and above all love. -- Professor Tom Solomon, Professor of Neurology at the University of Liverpool and President of the Encephalitis SocietyWhen illness enters the life of a family, things rarely remain the same. Catherine Jessop's poignant and searingly honest account of how her family's life was thrown off course in the wake of her husband's diagnosis of encephalitis provides a wealth of essential practical information and tips for coping. It is a beacon of hope for others facing the rollercoaster ride of life changing illness - read and be guided by its wisdom. -- Dr Audrey Daisley, Consultant Clinical Neuropsychologist, OxfordI recognised so much in Catherine Jessop's story: the lottery of healthcare, the need to rapidly learn on the job how our health and social care systems work, the mundanity of many of the daily trials - such as hospital parking, the emotional roller-coaster, and the way life splits into 'before' and 'after'. And I cannot recommend Pulling Through highly enough. It covers really tough territory with honesty, insight, humour and a determination to support others who may suddenly find themselves plunged into this 'after' world - not only through encephalitis but any number of life-altering illnesses and conditions. Pulling Through is so much more than a guide to what happens next and how to survive it. It is a voice penetrating the chaos and muddle of navigating care with the message 'I've done this. I can help you do it too'. -- Jane Matthews, author of 'The Carer’s Handbook', Robinson 2019

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Book SynopsisChoosing a care home is one of the more emotional and expensive decisions that anyone ever has to make. You may be unprepared, inexperienced, under time pressure and in an emotional whirlwind. This book is designed to cut through this noise and offer clear, practical advice for anyone who has to make this crucial decision. Professor June Andrews looks at everything that you need to know, from first deciding whether care is needed for someone, to choosing a care home, to what happens next. She offers honest and sensible information about costs, quality of care and accommodation, and examines the finer details of what you might consider, such as food, décor, medical services and religious arrangements. A good care home is a reward for a life well spent, and providing that care is a joy for the people who do it well. Avoiding the pitfalls, and finding the right place is the first step.Trade ReviewPraise for Dementia: The One Stop Guide 'Exactly what is needed. Sensible advice from someone who really knows what she is talking about - I wish I'd had this book when my father was stricken with dementia. -- John HumphrysSo clear and practical ... this book will help families and friends of people with dementia all over the world, and be a support to those professionals who work to improve their difficult journey. -- Dame Judi DenchBrings together science, practice and lived experience of dementia into an invaluable * Psychologist *It is packed with helpful ideas and suggestions ... I would highly recommend it. * Nursing Times *

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Book SynopsisIn 1942 life expectancy at birth was 66 for women and 60 for men. Death was usually due to degenerative and infectious diseases. The greatest postwar success in the fight against disease was the establishment of the NHS and care that was free at the point of delivery. Life expectancy rose dramatically, but since 2011 incremental improvements have stalled and even, in some regions, begun to reverse. Infant mortality rates have crept up and the postcode lottery of health provision underscores the level of social inequality in the UK. Good health is not simply the absence of disease. It is the collective of physical, social and mental well-being. It is the product of nutrition and genetics, of healthy lifestyles and preventative health interventions. It is the interaction between the conditions in which we live, work, play and age. Yet access to many of the things that make and keep us healthy are not evenly distributed in the population. Achieving good health is then deeply entwined with all aspects of society and cannot simply be solved by policies in one area alone. In our rediscovery of Beveridge, the shadow of the pandemic looms large. It is has never been more urgent to address the underlying causes of Disease. And it has never been clearer that these determinants are not only social or physiological, but also political.Trade ReviewThis conceptually and empirically rich book outlines how health and disease have been unequally experienced across the country both before and during the Coivid-19 pandemic. It argues powerfully that we cannot go back to ‘business as usual’ and should instead harness a new ‘spirit of 45’ to truly build back better and reduce health inequalities. -- Clare Bambra, Professor of Public Health, Newcastle UniversityThis is an important and illuminating book that sheds light on two persistent and intractable calamities – our alarmingly low levels of population health and the injustice of inequalities in health. Read this book and feel your outrage, then read it again to focus on what we need to do to create transformative change. -- Kate Pickett, Professor of Epidemiology, University of York, and co-author of The Spirit LevelFran Pollock sets out the hard truth of how political choices have deprioritized ordinary people’s health and well-being and sets out how we can stand together to oblige leaders to protect us all. Reading her book shocks but also empowers us to act. -- Ben Phillips, author of How to Fight InequalityTable of Contents1. Introduction: a revolutionary moment 2. Disease: an evolving giant 3. Unequal health and the behemoth of today 4. From cradle ... 5. ... to grave: the problem of age 6. Inequity and inferiority: a dismantled health and social care service 7. Continuing challenges, contemporary crises 8. Shoring up “Assumption B”

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Book SynopsisPowerful new approaches and advances in medical systems drive increasingly high expectations for healthcare providers internationally. The form of digital healthcare - a suite of new technologies offering significant benefits in cost and quality - allow institutions to keep pace with society's needs. This book covers the need for responsible innovation in this area, exploring the issues of implementation as well as potential negative consequences to ensure digital healthcare delivers for the benefit of all stakeholders. This book offers a considered view on what a responsible innovation process might involve and how this will enable multiple stakeholders - users, medics, businesses and policymakers - to create a system of delivering better care at lower costs. Illustrated by international case studies, the contributing authors explore the dimensions of responsible innovation with patient engagement and the ways in which this can lead to better design, enhanced diffusion of knowledge and improvement in healthcare. A much-needed exploration of the role of innovation in healthcare with patients in mind, this book will be essential for academics in innovation, ethics, social entrepreneurship and healthcare studies.Trade Review'People ageing and the welfare society demand the intensive use of technology to provide a modern and sustainable care service. But the use of technology also raises new ethical questions about the way the knowledge is obtained and patients' privacy managed. This book is a benchmark on finding a solution to this challenge: taking advantage of the awesome possibilities of new technologies while respecting the privacy and dignity of the patient at all times. Congratulations.' --Jose Antonio Ondiviela, SmartCities Solutions Director, Microsoft, Western Europe'Medical care can be shifted towards a patient-centered innovation and care process. The editors of this book focus on an important aspect of this emergent system: digital health. Contributors especially focus on responsible ways digital health systems can be designed to protect patient privacy, and teach us a great deal about this important topic. A valuable book!' --Eric von Hippel, Massachusetts Institute of Technology, US'Based on major international research, this inspiring volume provides rich and suggestive insights into responsible innovation, often enabled by digital technologies and initiated by patients or caregivers. It is packed with observations, ideas and inspiring examples of value for researchers as well as innovators and managers within and beyond the health sector.' --Per Davidsson, Queensland University of Technology, AustraliaTable of ContentsContents: 1. Responsible Innovation in Digital Health Tatiana Iakovleva, Elin M. Oftedal and John Bessant 2. Responsible innovation as a catalyst of the firm innovation process Tatiana Iakovleva, Elin M. Oftedal and John Bessant 3. Challenges in healthcare - the changing role of patients Elin M. Oftedal, Tatiana Iakovleva and John Bessant 4. Empowering patients to innovate: the case of Patient Innovation Pedro Oliveira, Salomé Azevedo and Helena Canhão 5. Patient-initiated innovation - Evidence and research agenda Thomas Laudal and Tatiana Iakovleva 6. University of Virginia Health System’s MyChart: Supporting Patient Care and Research Bala Mulloth and Michael D. Williams 7. Design space in digital healthcare – the case of health information TV John Bessant, Allen Alexander, Danielle Wynne, and Anna Trifilova 8. Responsible Research and Innovation: Innovation initiatives for Positive Social Impact Raj Thapa and Tatiana Iakovleva 9. The Blink innovation story – viewed through the lens of responsible innovation Dagfinn Wåge and Andrea Marie Stangeland 10. Hitting the institutional wall – the journeys of three firms from idea to market Elin M. Oftedal and Lene Foss 11. The role of user-led regional innovation networks in shaping responsible innovation in eHealth. Lessons from the East of the Netherlands Kornelia Konrad, Verena Schulze Greiving and Paul Benneworth 12. Management of Stakeholders’ Knowledge for Responsible Research and Innovation Elisa Thomas and Luciana Maines da Silva 13. Responsible Innovation and Commercialisation in the University Context: A case study of an academic entrepreneur in digital healthcare Bernard Naughton and Lene Foss 14. Responsible innovation within the healthcare sector: Digital Therapeutics and WellStart Health Jill Kickul, Mark Griffiths, and Marissa Titus 15. The Future of Responsible Innovation John Bessant, Tatiana Iakovleva and Elin M. Oftedal Index

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Book SynopsisEvents have spiralled since the first edition of How to Dismantle the NHS in 10 Easy Steps. The junior doctors' strike, the Conservative victory in the 2015 general election, the Corbyn phenomenon, the unexpected Brexit vote and the arguably even more unexpected loss of the Conservative majority in 2017. Further, since writing the first edition, Dr. Youssef El-Gingihy found himself stricken with a life-threatening illness and the NHS doctor became the NHS patient. The fight to save the NHS transformed into a fight for his own life. Now, fully recovered, Dr. Youssef El-Gingihy returns to his 10 Easy Steps in order to strengthen his original argument and continue what Labour leader, Jeremy Corbyn, deems 'one of the most fundamental battles we face in a struggle for a British society that works for the many'. In the year of the 70th anniversary of the NHS, Dr El-Gingihy's insights have never been more vital as our national health service continues to be hit by the privatisation of public services. New expanded second edition with chapters on junior doctor's strikes and plans for US-style healthcare.

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Book SynopsisThe ebook edition of this title is Open Access and freely available to read online. This book reports on a project which studied of how primary care services are delivered to children. The study, the first of its kind, has been undertaken over three years, with 20 scientific partners, and an expert agent in each country. Chapters address key questions such as professional patterns, service structure, and e-health. But it also addresses cross-cutting issues which have emerged, such as equity, listening to children and parents, quality, children's increasing autonomy across the life course, and inter-professional coordination. Summarising the current policies for children's primary care in each country in the EU/EEA, authors consider the differences of structure and delivery, and of outcomes including financing, professional education, e-health and other supports. Trade ReviewThe Models of Child Health Appraised (MOCHA) project explored both the clinical aspects and wider aspects of primary child health care in Europe from 2015 to 2018. Researchers present their findings regarding such matters as models of primary care and appraisal frameworks, the limited inclusion of children in health and health-related policy, the conundrum of measuring children's primary health care, services and boundary negotiations for children with complex care needs in Europe, workforce and professional education, and national and public cultures as determinants of health policy and production. -- Annotation ©2019 * (protoview.com) *Table of ContentsForeword; Mitch BlairChapter 1. The MOCHA Project: Origins, Approach and Methods; Mitch Blair, Denise Alexander, and Michael Rigby Chapter 2. Models of Primary Care and Appraisal Frameworks; Mitch Blair, Mariana Miranda Autran Sampaio, Michael Rigby, and Denise Alexander Chapter 3. Listening to Young People; Kinga Zdunek, Manna Alma, Janine van Til, Karin Groothuis-Oudshoorn, Magda Boere-Boonekamp, and Denise Alexander Chapter 4. Child Centricity and Children's Rights; Kinga Zdunek, Michael Rigby, Shalmali Deshpande, and Denise Alexander Chapter 5. Equity; Mitch Blair and Denise Alexander Chapter 6. The Limited Inclusion of Children in Health and Health-Related Policy; Mitch Blair, Michael Rigby, Arjun Menon, Michael Mahgerefteh, Grit Kühne, and Shalmali Deshpande Chapter 7. The Invisibility of Children in Data Systems; Michael Rigby, Shalmali Deshpande, Daniela Luzi, Fabrizio Pecoraro, Oscar Tamburis, Ilaria Rocco, Barbara Corso, Nadia Minicuc, Harshana Liyanage, Uy Hoang, Filipa Ferreira, Simon de Lusignan, Ekelechi MacPepple, and Heather Gage Chapter 8. The Conundrum of Measuring Children's Primary Health Care; Ilaria Rocco, Barbara Corso, Daniela Luzi, Fabrizio Pecoraro, Oscar Tamburis, Uy Hoang, Harshana Liyanage, Filipa Ferreira, Simon de Lusignan, Nadia Minicuci Chapter 9. Measurement Conundrums: Explaining Child Health Population Outcomes in MOCHA Countries; Heather Gage and Ekelechi MacPepple Chapter 10. Services and Boundary Negotiation for Children with Complex Needs; Maria Brenner, Miriam O’Shea, Anne Clancy, Stine Lundstroem Kamionka, Philip Larkin, Sapfo Lignou, Daniela Luzi, Elena Montañana Olaso, Manna Alma, Fabrizio Pecoraro, Rose Satherley, Oscar Tamburis, Keishia Taylor, Austin Warters, Ingrid Wolfe, Jay Berry, Colman Noctor, and Carol Hilliard Chapter 11. School Health Services; Danielle Jansen, Hanneke Vervoort, Annemieke Visser, Sijmen A. Reijneveld, Paul Kocken, Gaby de Lijster, and Pierre Andre Michaud Chapter 12. Primary Care for Adolescents; Pierre-Andre Michaud and Danielle Jansen Chapter 13. Workforce and Professional Education; Mitch Blair, Heather Gage, Ekelechi MacPepple, Pierre-Andre Michaud, Carol Hilliard, Anne Clancy, Eleanor Hollywood, Maria Brenner, Amina Al-Yassin, and Catharina Nitsche Chapter 14. E-Health as the Enabler of Primary Care for Children; Michael Rigby, Grit Kühne, and Shalmali Deshpande Chapter 15. Affiliate Contributors to Primary Care for Children; Denise Alexander, Uttara Kurup, Arjun Menon, Michael Mahgerefteh, Austin Warters, Michael Rigby, and Mitch Blair Chapter 16. The Transferability of Primary Child Health Care Systems; Paul Kocken, Eline Vlasblom, Gaby de Lijster, Helen Wells, Nicole van Kesteren, Renate van Zoonen, Kinga Zdunek, Sijmen A. Reijneveld, Mitch Blair, and Denise Alexander Chapter 17. National and Public Cultures as Determinants of Health Policy and Production; Kinga Zdunek, Mitch Blair, and Denise Alexander Chapter 18. Bringing MOCHA Lessons to Your Service; Magda Boere-Boonekamp, Karin Groothuis-Oudshoorn, Tamara Schloemer, Peter Schröder-Bäck, Janine van Til, Kinga Zdunek, and Paul Kocken Chapter 19. Evidence to Achieve an Optimal Model for Children's Health in Europe; Mitch Blair, Michael Rigby, and Denise Alexander

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Book SynopsisArtificial intelligence (AI) is revolutionizing every aspect of human life including human healthcare and wellbeing management. Various types of intelligent healthcare engineering applications have been created that help to address patient healthcare and outcomes such as identifying diseases and gathering patient information. Advancements in AI applications in healthcare continue to be sought to aid rapid disease detection, health monitoring, and prescription drug tracking.Advancement of Artificial Intelligence in Healthcare Engineering is an essential scholarly publication that provides comprehensive research on the possible applications of machine learning, deep learning, soft computing, and evolutionary computing techniques in the design, implementation, and optimization of healthcare engineering solutions. Featuring a wide range of topics such as genetic algorithms, mobile robotics, and neuroinformatics, this book is ideal for engineers, technology developers, IT consultants, hospital administrators, academicians, healthcare professionals, practitioners, researchers, and students.

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Book SynopsisIn the last decades, the importance of performance management in healthcare organizations has progressively increased. Patient organizations can play a strategic role by providing peer support and education, filling service provision gaps within public healthcare. As experts of their own pathologies, organized patients can aid research and development projects and provide the policymakers with input from the patients' perspectives. Despite these advantages, patient organizations still face criticalities including low political attention at a national and peripheral level, scarce management skills, planning, control, fundraising, and professionalism.Managing Patients' Organizations to Improve Healthcare: Emerging Research and Opportunities delivers emerging research that raises awareness about the contribution of patient organizations in the healthcare process within regulatory authorities, public, and healthcare managers and improves patients' managerial and healthcare professional skills for more efficient and effective processes of care. Featuring coverage on a broad range of topics such as organizational management, patient value, and quality healthcare, this book is ideally designed for policymakers, healthcare administrators, medical practitioners, researchers, academicians, students, and industry professionals seeking current research on public policy management and healthcare management.

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Book SynopsisSelf-tracking is a rapidly growing area of study and will play an important role in the future of how we understand health change and responsibility. Understanding the personal and social dimensions of tracking within households improves our understanding of health consumption and knowledge, particularly during significant global crises. Ignoring the household context of health or focusing solely on individual tracking behaviour is no longer an option. Household Self-Tracking During a Global Health Crisis provides a comprehensive and straightforward account of deeper health narratives managed through data tracking within households formed during a global health crisis. The book examines the contextual, personal, and social factors surrounding health tracking, including the commercialization of Covid19 health tracking, public data tracking, and health-surveillance issues, from a social science perspective. Inequalities in health, as well as expanded concepts of fitness and illness management, are highlighted as part of a significant shift in how we understand and integrate home health regimes, and how this is made possible by the incorporation of household biometric data tracking. Household Self-Tracking During a Global Health Crisis will assist researchers interested in self-tracking and health technologies, as well as postgraduate students studying psychology, medicine, social science, and business. Hardey explores several personal insights as well as research which may be unfamiliar to some social scientists, helping situate new perspectives and understanding.Table of ContentsIntroduction: Self-tracking construction of health Chapter 1. Description of household tracking study Chapter 2. Visualising tracking and responding to digital bodies Chapter 3. Tracking entangled with health expertise Chapter 4. Caring and tracking Chapter 5. Consuming with tracking: Food habits and eating Chapter 6. Intergenerational narratives with tracking Conclusion: Transformations with self-tracking Epilogue: Self-tracking with pets

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