Disability: social aspects Books

Book SynopsisInUndoing Suicidism,Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidismquestions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidTrade Review“Undoing Suicidism is a tremendous contribution to theorizations of living and dying. It is unsettling in the most productive manner and driven by a profound abolitionist philosophy of desires for death as the grounds for a richer, more responsive politics of life. Baril offers a compelling vision of justice for suicidal people that demands rethinking some of the most cherished ideals of liberal personhood.”—Jasbir K Puar, author of The Right to Maim: Debility, Capacity, Disability“In this important book Alexandre Baril offers a queercrip reframing of (assisted) suicide that explains and critically intervenes in suicidism (the oppression of suicidal people) and ableist, sanist, and ageist arguments about assisted suicide. Justice, care, and support for suicidal people requires questioning what Baril calls ‘compulsory aliveness’ and listening to, rather than criminalizing and pathologizing, suicidal people. This is an extraordinary and well-researched book. Baril’s care-full approach to this difficult topic makes a crucial contribution to queer, trans, feminist, and crip theories and challenges readers to rethink dominant responses to suicide.”—Kim Q. Hall, Professor of Philosophy, Appalachian State University, and author of Queering Philosophy“Undoing Suicidism is a daring, original, and paradigm-shifting book that directly challenges the taken-for-granted idea that suicidal thoughts and actions are unnatural, undesirable states that should always be prevented. Grounded in queer, trans, Mad, and crip theoretical frameworks, and deeply informed by the author’s first-hand experience as a suicidal person, Baril imagines a radically different world where the well-documented harms caused by suicidism and preventionist logic are replaced with practices of compassion and solidarity, which grant all people the freedom to explore, express, live with, and sometimes die by, suicide.”—Jennifer White, Professor in the School of Child and Youth Care at the University of Victoria, and lead editor of Critical Suicidology: Transforming Research and Prevention for the 21st Century"[A] provocative critique of 'suicidism,' a form of 'structural oppression' that stigmatizes people who want to die.... Baril argues that the desire to die is valid and that assisted suicide should be available in some form to all 'suicidal people, regardless of their dis/abilities, health or age.'... Readers may agree with some of the author’s carefully argued points about the structural obstacles suicidal people face, and yet struggle to accept both his contention that 'there are no good or bad reasons for wanting to die' and his jarring critiques of 'compulsory aliveness.' This is sure to spark debate."—Publishers Weekly

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Book SynopsisDrawing on contemporary and historic literary and media examples of Western colonialism and Anglophone writings, Disability, the Environment, and Colonialism traces how the perverse nature of colonialism continues to dominate the globe today. The editor and contributors provide a careful analysis of the intersection of disability, the environment, and colonialism to understand issues such as eco-ableism, environmental degradation, homogenized approaches to environmentalism, and climate change. They also look at the body as a site of colonial oppression and environmental exploitation. Contributors: Holly Caldwell, Matthew J. C. Cella, John Gulledge, Memona Hossain, Nancy J. Hirschmann, Iain Hutchison, Andrew B. Jenks, Suha Kudsieh, Gordon M. Sayre, Jessica A. Schwartz, Anna Stenning, Aubrey Tang, Alice Wexler, and the editor.

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Book SynopsisDrawing on contemporary and historic literary and media examples of Western colonialism and Anglophone writings, Disability, the Environment, and Colonialism traces how the perverse nature of colonialism continues to dominate the globe today. The editor and contributors provide a careful analysis of the intersection of disability, the environment, and colonialism to understand issues such as eco-ableism, environmental degradation, homogenized approaches to environmentalism, and climate change. They also look at the body as a site of colonial oppression and environmental exploitation. Contributors: Holly Caldwell, Matthew J. C. Cella, John Gulledge, Memona Hossain, Nancy J. Hirschmann, Iain Hutchison, Andrew B. Jenks, Suha Kudsieh, Gordon M. Sayre, Jessica A. Schwartz, Anna Stenning, Aubrey Tang, Alice Wexler, and the editor.

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Book SynopsisUsing rare interviews with former inmates and workers, institutional documentation, and governmental archives, Claudia Malacrida illuminates the dark history of the treatment of mentally defective children and adults at the Michener Centre in Red Deer, Alberta.Trade Review'Malacrida draws from a vast amount of documentation. Her book is packed with statistics and academic writing but leavened with direct testimony from inmates and staff. ...valuable for anyone with an interest in this dark period of institutional history.' -- Nelle Oosterom Canada's History Magazine, June-July, 2015Table of Contents1. Introducing the Michener Centre 2. Entering the Gulag, Leaving the World 3. Dehumanization as a Way of Life 4. Ordinary and Extraordinary Violence 5. Resisting the Institutional Order 6. Broken Promises: Education in the Institution 7. Training, Exploitation, and Community Dependency 8. Bad Medicine: Drugs, Research, and Ethics 9. Eugenics and Sexuality 10. But That's All in the Past, Isn't It? Appendix I: Research Participants - Biographical Information Appendix II: History, Power, and Access to Knowledge

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Book Synopsis‘We have to assume that the mind is working no matter what it looks like on the outside. We can’t just judge by appearance…If you take away the label they are human beings.’ Ed MurphyWhat does it mean to be ‘mentally retarded’? Professors Bogdan and Taylor have interviewed two experts, ‘Ed Murphy’ and ‘Pattie Burt,’ for answers. Ed and Pattie, former inmates of institutions for the retarded, tell us in their own words.Their autobiographies are not always pleasant reading. They describe the physical, mental, and emotional abuses heaped upon them throughout their youth and young adulthood; being spurned, neglected, and ultimately abandoned by family and friends; being labelled and stigmatized by social service professionals armed with tests and preconceptions; being incarcerated and depersonalized by the state.Ed and Pattie survived these experiences—evidence, perhaps, of the indefatigable will of

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Book SynopsisThis is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability.Trade Review“This book is a significant contribution to the study of ageing and disability from a life course perspective. It provides a fascinating, theoretically well-informed treatise of how older people make sense of disability.” Professor Rafael Lindqvist, Uppsala University, Sweden“This significant and original collection will change perspectives on the interplay between ageing and disability in ways that will be wholly beneficial to older people and policy making alike.” Joanna Bornat, Emeritus Professor, The Open UniversityTable of ContentsAgeing with disability – An introduction ~ Eva Jeppsson Grassman and Anna Whitaker; Time, age and the failing body. A long life with disability ~ Eva Jeppsson Grassman; Disability, identity and ageing ~ Lotta Holme; Is it possible to ‘age successfully’ with extensive physical impairments? ~ Annika Taghizadeh Larsson; Being one’s illness: on mental disability and ageing ~ Per Bülow and Tommy Svensson; In the shade of disability reforms and policy – parenthood, ageing and life-long care ~ Anna Whitaker; Ageing and care among disabled couples ~ Cristina Joy Torgé; Living and ageing with disability – summary and conclusion ~ Anna Whitaker and Eva Jeppsson Grassman.

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Book SynopsisThis unique and topical companion provides expert analyses that explore the interface between criminal justice and mental health. It consolidates scholarly analysis of theory, policy and practice and practical debates, in addition to the theoretical and ideological concerns surrounding risk assessment, treatment, control and management.Trade Review"An excellent reference point for students, researchers and practitioners and importantly offers an insight into crucial debates around each subject in addtion to simple definitions." Prison Service Journal“In a bloated criminal justice system, where mental health is by far the biggest issue, this important book ought to be a required resource for all those interested in mental health; especially those in power who have influence in a system and structure that poses significant challenges for all involved.” Eric Allison,The Guardian prisons correspondent"Key to understanding the 'care versus control' debate. The readers can contront the issue of how a legislative-led criminal justice system deals with mental health." Ashley Tiffen, University of Cumbria.“An original contribution that bridges an important gap in the criminal justice literature and reference base. This volume will be of interest to students, academics, policy makers and practitioners across multiple fields – criminology & criminal justice, social policy, social work and community justice.” Professor Majid Yar, University of Hull?“A highly pertinent, useful and user-friendly book. A must for personal and institutional libraries.” Professor Dave Holmes, University of Ottawa"Useful for reference purposes." Anne Robinson, Sheffield Hallam University.Table of ContentsEditor’s Introduction; Companion entries A-Z; List of campaign groups and their website URLs; Legislation and Policy Index;

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Book SynopsisAn exploration of the relationship between madness, distress and disability, bringing together leading scholars and activists from Europe, North America, Australia and India.Trade Review"An enjoyable and thought-provoking introduction to the relationship between mental health problems and disability." Critical Social Policy"Significant and a must for undergraduates and postgraduates in the fields of sociology, social theory and social policy." Disability and Society"A rewarding and frequently compelling read that does not shy away from grappling with the uncertainties surrounding its field of inquiry." LSE Review of Books"'Distress', 'disability', 'impairment', 'madness', 'recovery' – all are stress tested for their meanings and their options for social activism rehearsed. This is an invaluable book for students of the perennialy contested topic of mental health." David Pilgrim, Liverpool University"This text brings together insights from critical disability studies, mad studies and politicised analyses of mental health to develop a theoretical, empirical and activist response to wider conditions of disablement. The authors clearly demonstrate the potency of theory and the centrality of activism and this book will be of interest to anyone interested in developing politics in a time of austerity" Dan Goodley, Sheffield UniversityTable of ContentsForeword ~ Jenny Morris; Introduction ~ Bob Sapey, Helen Spandler and Jill Anderson; Part One: Disjunctures between disability and madness; Unreasonable adjustments? Applying disability policy to madness and distress ~ Helen Spandler and Jill Anderson; What we talk about when we talk about disability: making sense of debates in the European user/survivor movement ~ Jasna Russo and Debra Shulkes; Inconvenient complications: on the heterogeneities of madness and their relationship to disability ~ Nev Jones and Timothy Kelly; Unsettling impairment: mental health and the social model of disability ~ William J Penson; Part Two: Theorising distress and disablement; Towards a socially situated model of mental distress ~ Jerry Tew; The Capabilities Approach and the social model of mental health ~ Jan Wallcraft and Kim Hopper; Psycho-emotional disablism in the lives of people experiencing mental distress ~ Donna Reeve; Part Three: Applying social models of disability; Psycho-emotional disablism, complex trauma and women’s mental distress ~ Shelley Briggs and Fiona Cameron; Linking ‘race’, mental health and a social model of disability: what are the possibilities? ~ Frank Keating; Social models of disability and sexual distress ~ Meg John Barker and Alex Iantaffi; The social model of disability and suicide prevention ~ Helen Spandler interviews David Webb; Part Four: Universalising disability policy; Advancing the rights of users and survivors of psychiatry using the UN Convention on the Rights of Persons with Disabilities ~ An interview with Tina Minkowitz; UN Convention on the Rights of Persons with Disabilities: out of the frying pan into the fire? Mental health service users and survivors aligning with the disability movement ~ Anne Plumb; The global politics of disablement: assuming impairment and erasing complexity ~ China Mills; Disabilities, colonisation and globalisation: how the very possibility of a disability identity was compromised for the ‘insane’ in India ~ Bhargavi V Davar; Part Five: Meeting places; Neurodiversity: bridging the gap between the Disabled People's Movement and the Mental Health System Survivors' Movement? ~ Steve Graby; Distress and disability: not you, not me, but us? ~ Peter Beresford; 'It’s complicated': blending disability and mad studies in the corporatising university ~ Kathryn Church; Solidarity across difference: organising for democratic alliances ~ Mick McKeown and Helen Spandler; Beyond the horizon: the landscape of madness, distress and disability ~ Jill Anderson, Helen Spandler and Bob Sapey.

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Book SynopsisAn exploration of the relationship between madness, distress and disability, bringing together leading scholars and activists from Europe, North America, Australia and India.Trade Review"An enjoyable and thought-provoking introduction to the relationship between mental health problems and disability." Critical Social Policy"Significant and a must for undergraduates and postgraduates in the fields of sociology, social theory and social policy." Disability and Society"A rewarding and frequently compelling read that does not shy away from grappling with the uncertainties surrounding its field of inquiry." LSE Review of Books"'Distress', 'disability', 'impairment', 'madness', 'recovery' – all are stress tested for their meanings and their options for social activism rehearsed. This is an invaluable book for students of the perennialy contested topic of mental health." David Pilgrim, Liverpool University"This text brings together insights from critical disability studies, mad studies and politicised analyses of mental health to develop a theoretical, empirical and activist response to wider conditions of disablement. The authors clearly demonstrate the potency of theory and the centrality of activism and this book will be of interest to anyone interested in developing politics in a time of austerity" Dan Goodley, Sheffield UniversityTable of ContentsForeword ~ Jenny Morris; Introduction ~ Bob Sapey, Helen Spandler and Jill Anderson; Part One: Disjunctures between disability and madness; Unreasonable adjustments? Applying disability policy to madness and distress ~ Helen Spandler and Jill Anderson; What we talk about when we talk about disability: making sense of debates in the European user/survivor movement ~ Jasna Russo and Debra Shulkes; Inconvenient complications: on the heterogeneities of madness and their relationship to disability ~ Nev Jones and Timothy Kelly; Unsettling impairment: mental health and the social model of disability ~ William J Penson; Part Two: Theorising distress and disablement; Towards a socially situated model of mental distress ~ Jerry Tew; The Capabilities Approach and the social model of mental health ~ Jan Wallcraft and Kim Hopper; Psycho-emotional disablism in the lives of people experiencing mental distress ~ Donna Reeve; Part Three: Applying social models of disability; Psycho-emotional disablism, complex trauma and women’s mental distress ~ Shelley Briggs and Fiona Cameron; Linking ‘race’, mental health and a social model of disability: what are the possibilities? ~ Frank Keating; Social models of disability and sexual distress ~ Meg John Barker and Alex Iantaffi; The social model of disability and suicide prevention ~ Helen Spandler interviews David Webb; Part Four: Universalising disability policy; Advancing the rights of users and survivors of psychiatry using the UN Convention on the Rights of Persons with Disabilities ~ An interview with Tina Minkowitz; UN Convention on the Rights of Persons with Disabilities: out of the frying pan into the fire? Mental health service users and survivors aligning with the disability movement ~ Anne Plumb; The global politics of disablement: assuming impairment and erasing complexity ~ China Mills; Disabilities, colonisation and globalisation: how the very possibility of a disability identity was compromised for the ‘insane’ in India ~ Bhargavi V Davar; Part Five: Meeting places; Neurodiversity: bridging the gap between the Disabled People's Movement and the Mental Health System Survivors' Movement? ~ Steve Graby; Distress and disability: not you, not me, but us? ~ Peter Beresford; 'It’s complicated': blending disability and mad studies in the corporatising university ~ Kathryn Church; Solidarity across difference: organising for democratic alliances ~ Mick McKeown and Helen Spandler; Beyond the horizon: the landscape of madness, distress and disability ~ Jill Anderson, Helen Spandler and Bob Sapey.

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Book SynopsisThe British Welfare State initially seemed to promise welfare for all, but excluded millions of disabled people. This book examines attempts in the subsequent three decades to reverse this exclusion. It also provides the first major analysis of the Disablement Income Group and the Thalidomide campaign.Trade Review"Hampton’s monograph is important because it is the first to comprehensively synthesize the policy material on post-war disability. It will be essential reading for those in the growing field of disability history, providing much-needed and accessible context for the actions of central government." Twentieth Century British History"I hope and expect that this interesting contribution from Jameel Hampton...will reach the wide and diverse audience it deserves and also stimulate much-needed further research." - H-Disability"For the first time Hampton shows how disabled people, neglected by the post-war welfare state, changed things from the 1960s by campaigning, like other excluded groups, achieving inclusive reforms in the 1970s." Patricia Thane, Kings College London"Thoroughly researched and cogently argued, Disability and the Welfare State in Britain is a remarkable achievement. Hampton’s excavation and elucidation of archival material related to the Disability Income Group, as well as other key players in the debates over disability and statutory welfare in Britain in the twentieth century, is both important and impressive. Yet, readers with little experience in disability history, the history of twentieth-century Britain, or the modern welfare state, may find Hampton’s attention to detail daunting. Each chapter is so rich with information that one might find it most advantageous to attack the book one chapter at a time, formulating questions and critiques as one moves through this incredibly stimulating text. Given the seeming comprehensiveness with which Hampton articulates welfare debates within their specific contexts throughout the twentieth century, one can safely assume that Disability and the Welfare State in Britain will no doubt serve as an important benchmark for years to come." Michael Rembis, University of Buffalo, This Year's Work in Critical and Cultural Theory, Oxford University PressTable of ContentsForeword by Nicholas Timmins; Introduction; The Old Regime: Provision before the Welfare State; Promotional Welfare, 1948-63; The Emergence of the General Classes, 1964-9; Cinderella of the Welfare State: Legislation for the General Classes, 1970-2; The Final Days: Disability at the End of the Welfare State, 1973-9; The Last Waltz: Epilogue; Summary and Conclusions, 1948-79.

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Book SynopsisEPUB and EPDF available Open Access under CC-BY-NC-ND licence. Led by the disability movement's concern with the employment choices faced by disabled people, this controversial book uses sociological and philosophical approaches, as well as international examples, to critically engage with possible alternatives to paid work for disabled people.Trade Review"Grover and Piggott offer a compelling challenge to those who view paid work as the only route out of poverty for disabled people. Their book should be essential reading for scholars of disability studies and social policy, and for policy makers interested in supporting disabled people." Colin Lindsay, University of StrathclydeTable of ContentsDisabled people, work and welfare ~ Chris Grover and Linda Piggott; Part One: Changing constructions of disability and welfare; Disabled people, conditionality and a civic minimum in Britain: reflections from qualitative research ~ Ruth Patrick and Deborah Fenney; Doing the 'hard yakka': implications of Australia's workfare policies for disabled people ~ Alan Morris, Shaun Wilson and Karen Soldatic; Part Two: Social policy, work and disabled people; Why are the policies and organisations seeking to help disabled people access work failing? ~ Bruce Stafford; Disabled people, welfare reform and the balance of rights and responsibilities ~ Dan Heap; Disabled people and employment in Poland ~ Monika Struck-Peregończyk; Disability and employment in the United States: the intersection of healthcare reform and welfare-to-work policy ~ Randall Owen, Robert Gould and Sarah Parker Harris; Social dialouge, partnership and the Danish model of activation of disabled people: challenges and possiblities in the face of austerity ~ David Etherington and Jo Ingold; Part Three: Assistance and access to paid work; Employment experiences and outcomes of young people in Scotland who are deaf or hard of hearing: intersections of deafness and social class ~ Mariela Fordyce and Sheila Riddell; Supply- and demand-side policies and the employment of learning disabled people in Britain ~ Sarah Woodin; How can integrated services help sick and disabled people remain in employment? Findings from an evaluation of an in-work support service in the North of England ~ Jon Warren, Kayleigh Garthwaite and Clare Bambra; Part Four: Alternatives to, and validated lives beyond, paid work; Thinking differently about 'work' and social inclusion for disabled people ~ Edward Hall and Robert Wilton; A right not to work and disabled people ~ Chris Grover and Linda Piggott; Disability, work and welfare: the disappearance of the polymorphic productive landscape ~ Alan Roulstone; Part Five: Conclusion; Themes in Disabled people, work and welfare ~ Chris Grover and Linda Piggott.

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Book SynopsisThis third edition of the leading textbook on personalisation considers key policy changes since 2009 and new research into the extension and outcomes of personal budgets. It is essential reading for students, practitioners and policy makers in social work and community care services.Trade Review"This book is essential reading for everyone involved in adult social care." British Journal of Social Work"A reminder of the optimistic origins of direct payments and personal budgets and an engaging account for new social workers of how these fit with the profession's origins and skills." Jill Manthorpe, Kings College London“This book is important to all who need to understand individuals’ rights to independence.” Community CareTable of ContentsIntroduction; History; Direct payments; The lessons of direct payments; Personal budgets; The lessons of personal budgets; Advantages of DP/IB; Possible barriers; Conclusion.

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Book SynopsisThis third edition of the leading textbook on personalisation considers key policy changes since 2009 and new research into the extension and outcomes of personal budgets. It is essential reading for students, practitioners and policy makers in social work and community care services.Trade Review"This book is essential reading for everyone involved in adult social care." British Journal of Social Work"A reminder of the optimistic origins of direct payments and personal budgets and an engaging account for new social workers of how these fit with the profession's origins and skills." Jill Manthorpe, Kings College London“This book is important to all who need to understand individuals’ rights to independence.” Community CareTable of ContentsIntroduction; History; Direct payments; The lessons of direct payments; Personal budgets; The lessons of personal budgets; Advantages of DP/IB; Possible barriers; Conclusion.

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Book SynopsisBringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).Trade Review“Jan Walmsley and Simon Jarrett have exercised a global reach in collecting diverse perspectives on the ways twelve nations have engaged the challenge of supporting people with intellectual disabilities to take their rightful place as citizens. The result is a gift to scholars and advocates alike.” John O’Brien, The Learning Community for Person Centered PracticesTable of ContentsIntroduction ~ Jan Walmsley, Simon Jarrett; Paradoxical Lives: Intellectual Disability Policy and Practice in Twentieth Century Australia ~ Lee-Ann Monk; Tracing the Historical and Ideological Roots of Services for People with Intellectual Disabilities in Austria ~ Gertraud Kremsner, Oliver Koenig and Tobias Buchner; Time of Paradoxes: What the Twentieth Century was like for People with Intellectual Disabilities living in Czechoslovakia/Czech Republic ~ Monika Mužáková and Iva Strnadová; Intellectual Disability in Twentieth-Century Ghana ~ Jane Abraham and Auberon Jaleel Odoom; A Greek Neverland: The History of the Leros Asylums' Inmates with Intellectual Disability (1958-95) ~ Danae Karydaki; Intellectual Disability in Hong Kong: Then and Now ~ Phyllis King Shui Wong; People with Intellectual Disabilities in the European Semi-Periphery: The Case of Hungary ~ Ágnes Turnpenny; People with Intellectual Disabilities in Iceland in the Twentieth Century: Sterilization, Social Role Valorization and ‘Normal Life’ ~ Guðrún Stefánsdóttir; Institutionalisation in Twentieth-Century New Zealand ~ Carol Hamilton; ‘My Life in the Institution’ and ‘My Life in the Community’: Policies and Practice in Taiwan ~ Yueh-Ching Chou; Intellectual Disability Policy and Practice in Twentieth-Century United Kingdom ~ Simon Jarrett and Jan Walmsley; From Social Menace to Unfulfilled Promise: The Evolution of Policy and Practice toward People with Intellectual Disabilities in the United States ~ Philip M. Ferguson.

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Book SynopsisBringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).Table of ContentsIntroduction ~ Jan Walmsley, Simon Jarrett; Paradoxical Lives: Intellectual Disability Policy and Practice in Twentieth Century Australia ~ Lee-Ann Monk; Tracing the Historical and Ideological Roots of Services for People with Intellectual Disabilities in Austria ~ Gertraud Kremsner, Oliver Koenig and Tobias Buchner; Time of Paradoxes: What the Twentieth Century was like for People with Intellectual Disabilities living in Czechoslovakia/Czech Republic ~ Monika Mužáková and Iva Strnadová; Intellectual Disability in Twentieth-Century Ghana ~ Jane Abraham and Auberon Jaleel Odoom; A Greek Neverland: The History of the Leros Asylums' Inmates with Intellectual Disability (1958-95) ~ Danae Karydaki; Intellectual Disability in Hong Kong: Then and Now ~ Phyllis King Shui Wong; People with Intellectual Disabilities in the European Semi-Periphery: The Case of Hungary ~ Ágnes Turnpenny; People with Intellectual Disabilities in Iceland in the Twentieth Century: Sterilization, Social Role Valorization and ‘Normal Life’ ~ Guðrún Stefánsdóttir; Institutionalisation in Twentieth-Century New Zealand ~ Carol Hamilton; ‘My Life in the Institution’ and ‘My Life in the Community’: Policies and Practice in Taiwan ~ Yueh-Ching Chou; Intellectual Disability Policy and Practice in Twentieth-Century United Kingdom ~ Simon Jarrett and Jan Walmsley; From Social Menace to Unfulfilled Promise: The Evolution of Policy and Practice toward People with Intellectual Disabilities in the United States ~ Philip M. Ferguson.

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Book SynopsisEstablishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the experiences of two groups rarely considered together in research people ageing with long-term disability and people first experiencing disability with ageing.Table of Contents1. Introduction Part 1: The context for disablement in older age 2. Defining disability 3. Literature: ageing, disability and lifecourse 4. Public policies on ageing and disability Part 2: Empirical findings 5. Disabling bodies 6. Disabling or enabling contexts 7. Responding to challenges 8. Comparison: disability with ageing and ageing with disability 9. Conclusion Methodological annexe

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Book SynopsisEstablishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the experiences of two groups rarely considered together in research people ageing with long-term disability and people first experiencing disability with ageing.Table of Contents1. Introduction Part 1: The context for disablement in older age 2. Defining disability 3. Literature: ageing, disability and lifecourse 4. Public policies on ageing and disability Part 2: Empirical findings 5. Disabling bodies 6. Disabling or enabling contexts 7. Responding to challenges 8. Comparison: disability with ageing and ageing with disability 9. Conclusion Methodological annexe

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Book SynopsisThis volume fills an overlooked gap in adult safeguarding - the digital arena - in providing a comprehensive and accessible analysis of best practice in safeguarding vulnerable adults online.Table of Contents1. Introduction 2. The Context of Online Safeguarding 3. Online Participation vs Protection and the Mental Capacity Act 2005 4. The Legacy of Re A and Re B 5. The Safeguarding Dystopia 6. Pro-harm Content Online 7. ‘What Works’ in Safeguarding Adults Online? Understanding the Actors and the Networks 8. Some Conclusions References

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Book SynopsisIn this fascinating work of literary and cultural history, Alex Benson takes the concept of sound-blindness' as an opening onto other stories of listening, writing, and power - stories that expand our sense of how a syllable, a word, a gesture, or a song can be put into print, and why it matters.

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Book SynopsisDrawing on her own experiences with late-onset disability and its impact on her sex life, along with her expertise as a cultural critic, Jane Gallop explores how disability and aging work to undermine one''s sense of self. She challenges common conceptions that equate the decline of bodily potential and ability with a permanent and irretrievable loss, arguing that such a loss can be both temporary and positively transformative. With Sexuality, Disability, and Aging, Gallop explores and celebrates how sexuality transforms and becomes more queer in the lives of the no longer young and the no longer able while at the same time demonstrating how disability can generate new forms of sexual fantasy and erotic possibility.Trade Review"For Gallop, theory offers solace in the face of life’s difficulties, and the book is often quietly moving. . . . Her use of theory isn’t about blowing up previous thought; it’s about finding consolation, which literature or philosophy is often said to provide." -- Jeffrey J. Williams * Chronicle of Higher Education *“Overall, Sexuality, Disability, and Aging presents an insightful yet accessible analysis that combines wide-ranging theoretical work with rich interpretive material to carefully reveal the phallic temporalities that underpin contemporary stereotypes of aging and late-onset disability as sexual decline. The book’s cross-cutting relevance means that it will find productive readership across a wide range of scholars interested in queer, crip, gerontological, literary, feminist, or psychoanalytic theory.” -- Kazuki Yamada * Journal of Bodies, Sexualities, and Masculinities *"An inventive and captivating piece of scholarship. Bolstered by its original findings and the intricate theoretical maneuvers that Gallop makes throughout this text, the book is poised to be a valuable resource for scholars in the fields of queer theory, critical gerontology, and disability studies." -- Kyle Christensen * Women's Studies in Communication *"Sexuality, Disability and Aging is a vital read for those interested in disability and sexuality as it contributes to indispensable discussions whilst simultaneously offering an alternative framework with which to aid progression within the field. . . . Gallop has compiled an accomplished text which is forward-thinking, unorthodox and paves the way for further discourse within the realms of disability, and for this, she must be commended." -- Bev Pollitt * Disability & Society *“Gallop’s willingness to reflect critically on her own experiences and reactions . . . reinvigorates feminist psychoanalytic theory, but also productively bridges the silences around aging and late-onset disability endemic to both disability studies and queer theory.” -- Sarah Rainey-Smithback * Hypatia *"Gallop makes an important intervention in the study of late life sexuality by connecting it to radical, queer, and alternative temporalities. . . . It is my hope, and dare I assume Gallop’s hope as well, that this work serves as one of the foundational texts for an expanding collection of work that examines sexuality, disability, and aging through the lenses of crip, queer, aging, and feminist theory." -- Hailee Yoshizaki-Gibbons * Poetics Today *Table of ContentsAcknowledgments 1x Introduction: Theoretical Underpinnings 1 Crip Theory 1 Aging and Queer Temporality 5 Aging and the Phallus 13 The Queer Phallus 20 Anecdotal Theory 25 1. High Heels and Wheelchairs 31 The Story 31 The Ending 36 City Sidewalks 40 Feminism and High Heels 46 Gender and Disability 52 The Phallus in the Wheelchair 58 The Ending (Reprise) 64 2. Post-prostate Sex 67 The Story 67 Strange Temporalities 74 Pre-cum and the Coital Imperative 81 Resisting the Coital Imperative 92 Longitudinal Sexuality 95 Conclusion 103 The Phallus and Its Temporalities 103 Longitudinal Identities 107 Notes 113 Bibliography 127 Index 133

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Book Synopsis “We each have Skype accounts and use them to discuss [Moby-Dick] face to face. Once a week, we spread the worded whale out in front of us; we dissect its head, eyes, and bones, careful not to hurt or kill it. The Professor and I are not whale hunters. We are not letting the whale die. We are shaping it, letting it swim through the Web with a new and polished look.”—Tito Mukhopadhyay Since the 1940s researchers have been repeating claims about autistic people''s limited ability to understand language, to partake in imaginative play, and to generate the complex theory of mind necessary to appreciate literature. In See It Feelingly Ralph James Savarese, an English professor whose son is one of the first nonspeaking autistics to graduate from college, challenges this view. Discussing fictional works over a period of years with readers from across the autism spectrum, Savarese was stunned by the readers'' ability to expand Trade Review"Impassioned and persuasive. . . . A fresh and absorbing examination of autism." * Kirkus Reviews *"This idealistic argument for the social value of literature and for the diversity of autism as a condition is a rewarding endeavor. . . ." * Publishers Weekly *"This is a powerful book — one that really must be experienced. It is a book that unlocks doors to the many rooms of autism and is likely to surprise the thinking of anyone who steps into them. It carries within it the possibilities of new perspectives on literary work, a greater understanding of autistic neurology, and the chance to meet some remarkable individuals. Read it." -- Michael Northen * Wordgathering *"Savarese has produced a masterpiece, simultaneously dense and accessible. His voice moves freely—alternating among lyrical, narrative, and instructive—never losing the flow, never dipping into pedantry, never soaring too far toward the abstract for the reader to follow. Not only is this collection of essays brimming with the most important information and ideas about autism, it is a collaboration of rare beauty." -- Maxfield Sparrow * Thinking Person's Guide to Autism *"Savarese shows that literature—with its imagery, inclusivity, and rich detail—is a natural tent pole for a truly neurodiverse community, one populated by autists and neurotypicals alike. . . . The radical possibility this book ultimately offers is that the gap that has for so long existed between nonverbal autists and neurotypicals can be bridged through literature. Literature is, as Whitman said of himself, large, and contains multitudes." -- Ittai Orr * Synapsis *"Readers will find this book to be a work of art as Ralph Savarese not only exhibits an understanding of the beauty of teaching but also of the language of the autistic mind. Savarese’s literary creation demystifies the limits of the autistic mind by following five autistic adults through their interpretation of and response to classic literature. . . . Highly recommended. Advanced undergraduates and above; professionals and general readers." -- D. Pellegrino * Choice *"The sense of critical self-reflection is crucial to this enterprise, and is evident throughout the book. Thankfully, this never veers into self-indulgence; as such, [Savarese's] ethnographic work in this area is an exemplar to all those who study ‘others,’ as outsiders with situated knowledge." -- Alison Wilde * Disability & Society *"To imagine an autistic rhetoric or an autistic literature is to struggle, audaciously, against a legacy of neurotypical people failing to imagine autism as anything other than lack. That struggle is joined . . . by Ralph [James] Savarese, whose See It Feelingly gives us five extraordinary examples of autistic readers’ responses to literature. It’s like Norman Holland’s classic work of reader-response criticism, 5 Readers Reading . . . except with autism." -- Michael Bérubé * Public Books *"Powered by his enthusiasm for connecting with autistics and for representing the fullness of their humanity, See It Feelingly is that rare book in English studies that succeeds as creative nonfiction: a memoir of teaching non-traditional learners that makes a provocative claim for the primacy of the senses in reading literature." -- Dawn Coleman * Leviathan *"Savarese incorporates storytelling, memoir, and poetry into See It Feelingly, which you will read feelingly, from the opening line." -- Deborah Jenson * American Literature *"... See it Feelingly is a wonderful addition to contemporary work being done in critical autism studies and accessible education." -- Jennifer Marchisotto * Disabilities Studies Quarterly *Table of ContentsForeword / Stephen Kuusisto xi Acknowledgments xv Introduction 1 Prologue: River of Words, Raft of Our Conjoined Neurologies 15 1. From a World as Fluid as the Sea 23 2. The Heavens of the Brain 57 3. Andys and Auties 86 4. Finding Her Feet 122 5. Take for Grandin 155 Epilogue 191 Notes 197 Bibliography 247 Index 261

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Book SynopsisJane Gallop explores how disability and aging are commonly understood to undermine one's sense of self and challenges narratives that register the decline of bodily potential and ability as nothing but an experience of loss.Trade Review"For Gallop, theory offers solace in the face of life’s difficulties, and the book is often quietly moving. . . . Her use of theory isn’t about blowing up previous thought; it’s about finding consolation, which literature or philosophy is often said to provide." -- Jeffrey J. Williams * Chronicle of Higher Education *“Overall, Sexuality, Disability, and Aging presents an insightful yet accessible analysis that combines wide-ranging theoretical work with rich interpretive material to carefully reveal the phallic temporalities that underpin contemporary stereotypes of aging and late-onset disability as sexual decline. The book’s cross-cutting relevance means that it will find productive readership across a wide range of scholars interested in queer, crip, gerontological, literary, feminist, or psychoanalytic theory.” -- Kazuki Yamada * Journal of Bodies, Sexualities, and Masculinities *"An inventive and captivating piece of scholarship. Bolstered by its original findings and the intricate theoretical maneuvers that Gallop makes throughout this text, the book is poised to be a valuable resource for scholars in the fields of queer theory, critical gerontology, and disability studies." -- Kyle Christensen * Women's Studies in Communication *"Sexuality, Disability and Aging is a vital read for those interested in disability and sexuality as it contributes to indispensable discussions whilst simultaneously offering an alternative framework with which to aid progression within the field. . . . Gallop has compiled an accomplished text which is forward-thinking, unorthodox and paves the way for further discourse within the realms of disability, and for this, she must be commended." -- Bev Pollitt * Disability & Society *“Gallop’s willingness to reflect critically on her own experiences and reactions . . . reinvigorates feminist psychoanalytic theory, but also productively bridges the silences around aging and late-onset disability endemic to both disability studies and queer theory.” -- Sarah Rainey-Smithback * Hypatia *"Gallop makes an important intervention in the study of late life sexuality by connecting it to radical, queer, and alternative temporalities. . . . It is my hope, and dare I assume Gallop’s hope as well, that this work serves as one of the foundational texts for an expanding collection of work that examines sexuality, disability, and aging through the lenses of crip, queer, aging, and feminist theory." -- Hailee Yoshizaki-Gibbons * Poetics Today *Table of ContentsAcknowledgments 1x Introduction: Theoretical Underpinnings 1 Crip Theory 1 Aging and Queer Temporality 5 Aging and the Phallus 13 The Queer Phallus 20 Anecdotal Theory 25 1. High Heels and Wheelchairs 31 The Story 31 The Ending 36 City Sidewalks 40 Feminism and High Heels 46 Gender and Disability 52 The Phallus in the Wheelchair 58 The Ending (Reprise) 64 2. Post-prostate Sex 67 The Story 67 Strange Temporalities 74 Pre-cum and the Coital Imperative 81 Resisting the Coital Imperative 92 Longitudinal Sexuality 95 Conclusion 103 The Phallus and Its Temporalities 103 Longitudinal Identities 107 Notes 113 Bibliography 127 Index 133

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Book SynopsisIn this revised and expanded edition of Medicine Stories, Aurora Levins Morales weaves together the insights and lessons learned over a lifetime of activism to offer a new theory of social justice, bringing clarity and hope to tangled, emotionally charged social issues in beautiful and accessible language.Trade Review"Morales’s book is an excellent tool for understanding some of the dynamics of social justice movements and should be part of activists’ survival kits against despair." -- Nylca J. Muñoz Sosa * Monthly Review *“Perhaps the most directly significant contribution of Medicine Stories...is Levins Morales’s framing of oppression as the most widespread and systematically reproduced source of trauma.... Medicine Stories maps the intimate and collective pathways of survival that communities and individuals find in the face of violence and injustice....” -- Corinne Lajoie * Journal of Literary & Cultural Disability Studies *Table of ContentsLibation v The Ground on Which I Stand Ecology Is Everything 3 Bigger Is Better 10 My Feminism 18 Identity and Solidarity 34 The Power of Story 42 The Truths Our Bodies Tell 47 The Historian as Curandera False Memories: Trauma and Liberation 55 The Historian as Curandera 69 Night Flying: Power, Memory, and Magic 89 What Race Isn't: Teaching about Racism 95 Raícism: Rootedness as Spiritual and Political Practice 99 The Politics of Childhood 104 Speaking in Tongues On Not Writing English 111 Forked Tongues: On Not Speaking Spanish 115 Certified Organic Intellectual 121 Ban Me! 127 Tribes The Tribe of Guarayamín 133 Taíno Citizenship 140 Speaking of Antisemitism 145 BDS and Me 154 Puerto Ricans and Jews 157 Privilege and Loss Class, Privilege, and Loss 175 Nadie la Tiene: Land, Ecology, and Nationalism 179 Torturers 192 Histerimonia: Declarations of a Trafficked Girl, or Why I Couldn't Write This Essay 197 The Long Haul Building Radical Soil 207 Circle Unbroken: The Politics of Inclusion 211 Tai: A Yom Kippur Sermon, 5778/2017 217 A Note From the Author 223 Index 225

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Book SynopsisFor almost sixty years, media technologies have promised users the ability to create sonic safe spaces for themselves—from bedside white noise machines to Beats by Dre''s “Hear What You Want” ad campaign, in which Colin Kaepernick''s headphones protect him from taunting crowds. In Hush, Mack Hagood draws evidence from noise-canceling headphones, tinnitus maskers, LPs that play ocean sounds, nature-sound mobile apps, and in-ear smart technologies to argue the true purpose of media is not information transmission, but rather the control of how we engage our environment. These devices, which Hagood calls orphic media, give users the freedom to remain unaffected in the changeable and distracting spaces of contemporary capitalism and reveal how racial, gendered, ableist, and class ideologies shape our desire to block unwanted sounds. In a noisy world of haters, trolls, and information overload, guarded listening can be a necessity for self-care, but Hagood arguTrade Review"Hagood points out that we now often talk about personal freedom in terms of what we don’t have to listen to, and he focusses, in the book, on our efforts to navigate sonic nuisances, and also the paradox of combating sound with more sound, in a world that has become loud enough to damage our health. . . . The stakes of Hush might seem small . . . But, once you begin to think about the relationship between the sound waves that constantly pass through us and the potential loss of self, you become more attuned to all the beckoning noises of modern life." -- Hua Hsu * The New Yorker *"Hush is provocative and insightful." -- Stephen Phillips * The Wire *"Hagood leaves us rethinking media theory, sound studies, and the definition of media." -- John F. Barber * Leonardo Reviews *"Hush is an important addition to the emerging field of sound studies. . . . Scholars of sound studies, digital media, broadcast media, disability studies, and those interested in the intersection of gender and race with media will find this book insightful." -- Jennifer Hyland Wang * Journal of Radio & Audio Media *Table of ContentsAcknowledgments vii Introduction. Hearing What We Want 1 Part I. Suppression 29 1. Tinnitus and Its Aural Remedies 31 Part II. Masking 73 2. Sleep-Mates and Sound Screens: Sound, Speed, and Circulation in Postwar America 75 3. The Ultimate Seashore: Environments and the Nature of Technology 116 4. A Quiet Storm: Orphic Apps and Infocentrism 148 Part III. Cancellation 175 5. Bose QuietComfort and the Mobile Production of Personal Space 177 6. Beats by Dre: Race and the Sonic Interface 198 Conclusion. Wanting What We Hear 220 Notes 235 References 245 Index 261

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Book SynopsisIn Black Madness :: Mad Blackness Therí Alyce Pickens rethinks the relationship between Blackness and disability, unsettling the common theorization that they are mutually constitutive. Pickens shows how Black speculative and science fiction authors such as Octavia Butler, Nalo Hopkinson, and Tananarive Due craft new worlds that reimagine the intersection of Blackness and madness. These creative writer-theorists formulate new parameters for thinking through Blackness and madness. Pickens considers Butler''s Fledgling as an archive of Black madness that demonstrates how race and ability shape subjectivity while constructing the building blocks for antiracist and anti-ableist futures. She examines how Hopkinson''s Midnight Robber theorizes mad Blackness and how Due''s African Immortals series contests dominant definitions of the human. The theorizations of race and disability that emerge from these works, Pickens demonstrates, challenge the paradigTrade Review"This book presents a valuable contribution to several disciplines. Recommended. Upper-division undergraduates through faculty." -- T. N. Allen * Choice *"Black Madness :: Mad Blackness is what happens when you get to take the road less traveled with a professional driver or go deep into the weeds with an expert botanist. You may feel out of your depth, but you’re assured by the fact that your traveling companion is extremely knowledgeable. . . . Pickens has called us all outside to play, to think deeply and without eventuality, to consider Blackness and madness – dare I say –irreverently, and we are all the better for it." -- Moya Bailey * Black Perspectives *“Pickens’s Black Madness :: Mad Blackness invites the reader to think about race and disability in Black American literature.... [It] invite[s] us to enter into what Pickens calls a ‘politics of curiosity,’ one that moves beyond dominant forms of mythmaking or the living nightmares of the carceral state, and to see the constellation of Black life, the impulse to rectify freedom and break the confines of mass incarceration.” -- Edna Bonhomme * Public Books *"A timely reimagination of how we read the intersection of Blackness and disability, opening up further possibilities for anti-ableist and anti-racist futures." -- Rhya Moffitt Brooke * MELUS *Table of ContentsPreface or About Face, Giving Face ix Introduction. What's Good? 1 Conversation 1. Making Black Madness 23 Conversation 2. A Mad Black Thang 50 Conversation 3. Abandoning the Human? 74 Conversation 4. Not Making Meaning, Not Making Since (The End of Time) 95 Notes 115 Bibliography 135 Index 149

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Book SynopsisTherí Alyce Pickens examines the speculative and science fiction of Octavia Butler, Nalo Hopkinson, and Tananarive Due to rethink the relationship between race and disability, thereby unsettling the common theorization that they are mutually constitutive.Trade Review"This book presents a valuable contribution to several disciplines. Recommended. Upper-division undergraduates through faculty." -- T. N. Allen * Choice *"Black Madness :: Mad Blackness is what happens when you get to take the road less traveled with a professional driver or go deep into the weeds with an expert botanist. You may feel out of your depth, but you’re assured by the fact that your traveling companion is extremely knowledgeable. . . . Pickens has called us all outside to play, to think deeply and without eventuality, to consider Blackness and madness – dare I say –irreverently, and we are all the better for it." -- Moya Bailey * Black Perspectives *“Pickens’s Black Madness :: Mad Blackness invites the reader to think about race and disability in Black American literature.... [It] invite[s] us to enter into what Pickens calls a ‘politics of curiosity,’ one that moves beyond dominant forms of mythmaking or the living nightmares of the carceral state, and to see the constellation of Black life, the impulse to rectify freedom and break the confines of mass incarceration.” -- Edna Bonhomme * Public Books *"A timely reimagination of how we read the intersection of Blackness and disability, opening up further possibilities for anti-ableist and anti-racist futures." -- Rhya Moffitt Brooke * MELUS *

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Book SynopsisJonathan Sterne offers a sweeping cultural study and theorization of impairment, in which experience is understood from the standpoint of a subject that is not fully able to account for itself.Trade Review“In this intimate critical phenomenology, Jonathan Sterne shows us that the agential subject of disability studies is interpretive, nonstandard, somewhat unreliable, and nevertheless political. Diminished Faculties is at once an account of the lived experience of impairment and an inventory of what it can engender. Crip humor, technological hacks, imaginary archives, and material metaphors form the myriad registers of Sterne's authorial voice.” -- Aimi Hamraie, author of * Building Access: Universal Design and the Politics of Disability *“Offering a compelling account of the phenomenology of impairment, this fascinating, brilliant, and witty book will take disability studies in at least three new directions.” -- Michael Bérubé, author of * The Secret Life of Stories: From Don Quixote to Harry Potter, How Understanding Intellectual Disability Transforms the Way We Read *“With its capacious, unpressured mode of being, theorizing, and storytelling, this profound book teaches us how to think and how to be.” -- Kathleen Stewart, coauthor of * The Hundreds *"Diminished Faculties is a lyric, genre-bending book, that is forcefully argued, rendered beautifully, and will open the path for further research. It is deeply generous both to reader and future scholar, as Sterne’s work always is. But additionally, this is a book that so many have needed, and need now, a way of situating the present emergency in a much longer, political history." -- Hannah Zeavin * boundary 2 *"A new book by Sterne is a seismic event, an idea drop so heavy that it takes time to fully process. Sterne is preternaturally skilled at taking apart prosaic, everyday objects . . . connecting them to history and culture and formulating elegant arguments that make you see and hear the world in new ways. His scholarship is rigorous, but he also maintains a fluid, approachable style that isn’t dry, as much academic prose tends to be. . . . His wide-ranging, cross-disciplinary outlook is not only instructive, but also empowering and inspiring." -- Geeta Dayal * 4Columns *"An intimate and rigorous journey, indispensable for anybody who wants to engage with the issue of disability in media and reflect on its importance for organisations, accessibility and inclusion." -- Domenico Napolitano * punt0org *"So often disabled people are expected to clarify to others what is wrong with them, a pedagogical task that more sophisticated critical explorations of disability can’t quite accomplish. But through his multi-genre approach, Sterne is able to assert and justify his existence while studying the cultural and technological forces that shape it. This is why it’s gratifying to read disability scholarship written by disabled scholars." -- Sophia Stewart * The Baffler *"A triumph from beginning to end. . . . The use of humility and humor, specifically sourced from the collective and individual lived experiences of disabled people (i.e. crip humor), is a major strength of the manuscript. Sterne is also skillful at bringing disability scholars into conversation with one another and engaging readers interactively as interlocutors." -- Meryl Alper * New Media & Society *"A thoughtful analysis of originality and imagination in the midst of so-called diminished faculties. . . . Sterne’s exploration of what constitutes valued labor within the academy is particularly illuminating. Sterne also provides useful resources on impairment theory and extensive notes and references providing an excellent foundation for future research in the subject area." -- Nancy Hansen * H-Disability, H-Net Reviews *"Diminished Faculties offers a new theoretically and methodologically accessible impairment theory as a political phenomenology of bodies and technologies. The book provides a rigorous study of technology, hearing, and voice with respect to impairment. In addition, Sterne engages with his own lived experiences of diminished faculties in speech, voice, hearing, and the feeling of wellness. . . . The book is not only insightful, but also funny and quite quirky." -- Slava Greenberg * Film Quarterly *"Sterne’s exploration of experiences of speech and hearing across theory, autoethnography, art practice, and activism makes Diminished Faculties a rigorous yet personal account of impairment as an inherent part of human embodiment." -- Dorothy R. Santos * Public *Table of Contents1. Degrees of Muteness 1 2. Meet the Dork-o-Phone 41 3. In Search of New Vocalities: An Imaginary Exhibition 69 4. Audile Scarification: On Normal Impairments 117 5. There Are Never Enough Spoons 157 Impairment Theory: A User's Guide 193 Credits 209 Notes 217 Bibliography 249 Index 281

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Book SynopsisIn The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development.Table of ContentsPreface/Acknowledgments vii Introduction: On Staying with the Terrible We 1 1. Disabled Histories of Trans 31 Holding Space 61 2. Trans, Feminism: Or, Reading Like a Depressed Transsexual 67 3. Some Dissociative Trans Masc Poetics 89 4. We's Company 117 Afterword/Elegy 143 Notes 151 Bibliography 171 Index 187

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Book SynopsisFor people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls “activist affordances.” Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people’s activist affordances present the potential for a more liveable and accessible world for all of us.Trade Review“In this exciting work Arseli Dokumacı offers compelling ethnographic interviews, journal entries, and her own experiences of difficulties with rheumatoid arthritis. Her accounts of the lives of her interlocutors are rich and evocative and form the basis for her idea of activist affordances: the everyday hacks that allow disabled people to manage the simplest of daily activities as they face a diminishing world of possible action and imaginaries. Addressing what it means to live with bodily challenges, Activist Affordances is critical disability studies at its intersectional best.” -- Faye Ginsburg, David B. Kriser Professor of Anthropology, New York University“Arseli Dokumacı reveals how people living with illnesses and disabilities navigate an inaccessible and ableist world by identifying the creativity, innovation, and resilience that goes into such navigation. Refusing the still-too-common notion that knowledge about disability is the province of medical experts rather than disabled people themselves, she brilliantly theorizes the accumulation of skills, negotiations, and hacks that disabled people discover to make their way in this world. And in this way, Dokumacı persuasively argues, they help concretize more accessible and just worlds.” -- Alison Kafer, author of * Feminist, Queer, Crip *"This book strikes a balance between academic rigor (i.e., theory) and practical relevance (i.e., practice). Readers will appreciate that many of the hacks discussed also come with pictures to help readers visualize the affordances. The book draws on a range of disciplines, including disability studies, anthropology, and design, to provide a comprehensive understanding of the complexities of disability activism. Recommended. Advanced undergraduates through faculty; professionals." -- G. Colosi * Choice *"Activist Affordances attunes readers to individual, everyday acts that could teach us how to create more habitable futures. Such a perspective opens new spaces for scholarly and political debates on activism, disability, and the preservation of the planet." -- Kostadin Karavasilev * LSE Review of Books *“[A] generative, thought provoking text … it will be exciting to follow how readers ‘make up, make real, and make do with’ this book’s innovative contributions.” -- Christine Sargent * American Ethnologist *Table of ContentsAcknowledgments ix Introduction 1 Part I. Shrinkage 1. Affordance Encounters Disability 31 2. Chronic Pain, Chronic Disease 55 3. The Habitus of Ableism 71 4. Planetary Shrinkage 87 Part II. Performance 5. A Theory of Activist Affordances 99 6. An Archive of Activist Affordances 119 7. Always in-the-Making 191 8. People as Affordances 205 9. Disability Repertoires 227 10. Speculations for a Shrinking Planet 237 Notes 253 Bibliography 293 Index 311

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Book SynopsisIn Intoxicated Mel Y. Chen explores the ongoing imperial relationship between race, sexuality, and disability. They focus on nineteenth-century biopolitical archives in England and Australia to show how mutual entanglements of race and disability take form through toxicity. Examining English scientist John Langdon Down’s characterization of white intellectual disability as Asian interiority and Queensland’s racialization and targeting of Aboriginal peoples through its ostensible concern with black opium, Chen explores how the colonial administration of race and disability gives rise to “intoxicated” subjects often shadowed by slowness. Chen charts the ongoing reverberations of these chemical entanglements in art and contemporary moments of political and economic conflict or agitation. Although intoxicated subjects may be affected by ongoing pollution or discredited as agents of failure, Chen affirmatively identifies queer/crip forms of unlearning and worlTrade Review“Intoxicated thinks about and through molecular intimacies. We are all chemically restrained, either structurally or voluntarily, some more the former than the latter. We are all too slow (or intoxicated), too fast (or agitated), and never quite right. ‘Take my hand,’ Mel Y. Chen invites the reader, ‘and slump, stumble, shake, and tumble with me.’ These alternate forms of cognition and movement promise new ways of knowing in the academy and beyond.” -- Cynthia Wu, Professor of Gender Studies and Asian American Studies, Indiana University“In the interlaced archives of toxicity, disability, and race, Mel Y. Chen brilliantly agitates the past and helps us unlearn and redistribute these key terms. The book gifts us with profoundly reorienting paths that undo, rather than reify, toxicity, pointing readers toward an alterwise of vibrating noninnocent transecologies of intoxicated intimacy.” -- M. Murphy, author of * The Economization of Life *Table of ContentsAcknowledgments ix Introduction. Intoxications, Intimacies, and Interformations 1 1. Slow Constitution: Down Syndrome and the Logic of Development 18 2. Agitation as a Chemical Way of Being 62 3. Unlearning: Intoxicated Method 100 Afterwards: Telling the End Not to Wait 142 Notes 165 Bibliography 177 Index

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Book SynopsisMargaret Price examines the experiences of disabled academics to show how attempts at providing individual accommodations actually impede rather than enhancing access.

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Book SynopsisIn Disability Worlds, Faye Ginsburg and Rayna Rapp chronicle and theorize two decades of immersion in New York City’s wide-ranging disability worlds as parents, activists, anthropologists, and disability studies scholars. They situate their disabled children’s lives among the experiences of advocates, families, experts, activists, and artists in larger struggles for recognition and rights. Disability consciousness, they show, emerges in everyday politics, practices, and frictions. Chapters consider dilemmas of genetic testing and neuroscientific research, reimagining kinship and community, the challenges of “special education,” and the perils of transitioning from high school. They also highlight the vitality of neurodiversity activism, disability arts, politics, and public culture. Disability Worlds reflects the authors’ anthropological commitments to recognizing the significance of this fundamental form of human difference. Ginsburg and Rap

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Book SynopsisUses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumansLiterary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells's The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley's Brave New World, considers the valuation of disabled lives in Flannery O'Connor's The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro's Never Let Me Go. By analyzing novels puTrade ReviewLinett’s articulation of literature as a site of bioethical exploration offers new and essential inroads for conversations on disability. Moving past the ‘thought experiment,’ Linett positions literature as an alternative kind of thought laboratory, one far more interested in whose lives are valued when we think bioethically -- Alison Kafer, author of Feminist, Queer, CripThe book's writing is lucid, the structure is well organized, the research is meticulously conducted, and the main claims are masterfully argued. Literary Bioethics will be useful for those working in the fields of disability studies, literary studies, sociology, animal studies, age studies, and bioethics. It will be especially helpful for those trying to think through thorny questions having to do with justice for both disabled people and animals. * Disability Studies Quarterly *Ranging widely across the long twentieth century and skillfully weaving together disparate (and sometimes adversarial) disciplinary and critical perspectives, Literary Bioethics promises to persuade a broad array of readers of the distinctive value of literary ways of knowing as we strive toward justice for sentient lives. * Journal of Modern Literature *

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Book SynopsisA history of design that is often overlookeduntil we need itHave you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you've benefited from accessible designdesign for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life.In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they Trade ReviewAccessible America offers an important history of how and why design for disability has evolved and needs to evolve. * Curbed.com *This illuminating and thoughtful overview of the evolution of accessible design in the U.S. between the end of WWII and the late 1990s is a strong introduction to the topic...Williamson skillfully connects design concepts to changing social narratives; this work should reward readers interested in either topic. * Publishers Weekly *Williamson keenly emphasizes that the United States has led the world globally toward physical access and accessibility as acceptable and admirable natural and civil rights rather than annoying physical encumbrances that stand in the way...reading [this]can change lives. * Library Journal *Accessible America is handsomely produced and will appeal to readers interested in design, disability studies, and social history. -- CHOICEAmerica was once even less accessible than it is now, as historicized by Bess Williamson in her book Accessible America: A History of Disability and Design. Williamson uses her background in art and design to critique the ways that nationalism and idealism have driven material environments to reflect societal norms in the United States post World War II. She integrates analysis with historical images that exhibit how truly inaccessible this country has been throughout history, which she artfully points out as being in "response to a lack" for much of modern history. * Disability Studies Quarterly *Beautifully and engagingly written, Williamson's approach to the history of accessibility as a history of design is brilliant. Accessible America shows how disability advocates harnessed technological design in their quest for access and equality, paying particular attention to the connection between prosthetic devices and the 'universal' design that followed, illuminating both histories. Highly recommended. -- Douglas C. Baynton,author of Defectives in the Land: Disability and Immigration in the Age of EugenicsBess Williamson's engaging history of accessible design points the way to design as a tool for empowerment, critique, and self-expression that celebrates the diversity of human bodies. Disability is a culture, not a lack. -- Ellen Lupton,Curator of Contemporary Design at The Cooper Hewitt, Smithsonian Design MuseumBy unearthing, situating, and interpreting artifacts of accessible designfrom World War II to the rise of the Independent Living Movement to the post-ADA eraWilliamson's book offers a much-needed contribution to disability history as we know it while also reshaping it for the next generation of disability historians, designers, and activists. -- David Serlin,author of Replaceable You: Engineering the Body in Postwar AmericaWilliamson reveals the hidden history of how the Disability Rights Movement's struggle for inclusion rebuilt the world. Reaching back to activist veterans returning from World War II, through the Architectural Barriers Act of 1968, to ergonomics, universal design, and the Americans with Disabilities Act, Williamson shows us the transformed America that gives us the tools and pathways we all use every day to make our lives work better, and that the emergence of inclusive design and the world it makes is a tool for justice. -- Rosemarie Garland-Thomson,author of Extraordinary BodiesThe contents of this book are a win for historians of disability as well as for historians of technology, architecture, and design. * H-Net Reviews *Accessible America is a must-read for scholars of disability history and material culture ... Williamson’s design-centered approach charts an effective and compelling road map for future disability studies projects, and she suggests interesting possibilities for further research on the built environment and US disability history. * Winterthur Portfolio *A special strength of Williamson’s work is the emphasis on the role of people with disabilities as active agents of change in design [...] Accessible America manages to include the hidden stories of the history of disability-related design and places them in a wider context of technological, political, and social change, including the growing impact of the disability movement. * Technology and Culture *

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Book SynopsisASALH 2023 Book Prize FinalistReveals how disability and disablement have shaped Black social life in AmericaThrough both law and custom, the color line has cast Black people as innately disabled and thus unfit for freedom, incapable of self-governance, and contagious within the national body politic. Disabilities of the Color Line maintains that the Black literary tradition historically has inverted this casting by exposing the disablement of racism without disclaiming disability.In place of a triumphalist narrative of overcoming where both disability and disablement alike are shunned, Dennis Tyler argues that Black authors and activists have consistently avowed what he calls the disabilities of the color line: the historical and ongoing anti-Black systems of division that maim, immobilize, and stigmatize Black people. In doing so, Tyler reveals how Black writers and activists such as David Walker, Henry Box Brown, William and Ellen CraTrade ReviewIn this bold and timely study, Dennis Tyler shows that the color line is not just a twentieth century problem, but one that began in the era of slavery and extends to the ongoing racialization of police brutality and the health disparities of the COVID-19 pandemic. In Tyler’s account, the color line is not exclusively about race, but about the entanglement of blackness and disability. Drawing on a wide range of texts, he perceptively shows how disability was enlisted to shape conceptions of blackness in the United States, and a counter-tradition in which black authors confront what Tyler calls ‘disabilities of the color line’ to challenge racial injustice and demand redress. * Rachel Adams, Columbia University *For too long, a conceivable but unfounded myth has been endemic in disability studies: the idea that Black thinkers have distanced themselves from affiliations with disability in contesting the racist construction of Blackness as inherently disabled. Disabilities of the Color Line puts this theory to bed once and for all, establishing a robust record of Black intellectuals’ sustained and complex engagement with disability as both a stigma and a literal condition that white supremacist legal and political systems impose upon Black people. -- Elizabeth Bowen * Public Books, Editors' Choice 2022 *

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Book SynopsisHow can we learn to notice the signs of disability?We see indications of disability everywhere: yellow diamond-shaped deaf person in area road signs, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Stephanie L. Kerschbaum argues that disability may still not be perceived due to a process she terms dis-attention.To tell better stories of disability, this multidisciplinary work turns to rhetoric, communications, sociology, and phenomenology to understand the processes by which the material world becomes sensory input that then passes through perceptual apparatuses to materialize phenomenaincluding disability. By adding perception to the understanding of disability's materialization, Kerschbaum significantly expands our understanding of disability, accounting for its fluctuations and transformations in the semiotics of everyday life.Drawing on a set of thirty-three research iTrade ReviewThis engaging, accessible book builds on Stephanie Kerschbaum’s already-award- winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Signs of Disability offers an incredibly generative vocabulary for understanding the ways that disability matters: how we mark and signal it, how we ignore and hide it, how we powerfully inhabit and embody it through stories. Signs of Disability is a transformative book. * Jay Dolmage, University of Waterloo *A lovely, powerful read, Signs of Disability makes consequential, engaging, and evocative contributions to scholarship in disability studies and in rhetorical studies. The book’s theoretical and methodological interventions are significant and it offers cogent readings of texts, material culture, bodies, and more. Stephanie Kerschbaum tells powerful stories and draws readers deeply into the material life of disability and its signs. * Christa J. Olson, University of Wisconsin-Madison *

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Book SynopsisA much-needed look at the growth of emergency media and its impact on our livesIn an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an emergency. In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of emergency as an opposite of normal. Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archiTrade ReviewIn this moment, in which everything and nothing are simultaneously defined using the language of emergency, Elizabeth Ellcessor’s book is resonant, brilliant, timely, and compassionate, and helps to chart a way forward. Her analysis of emergency media and how they express specific articulations of technology, culture, and power as well as their connection to existing forms of white supremacy, disability justice, and misogyny are rigorous, and explain how our understandings of emergencies and the media with which we communicate that information have life and death stakes. * Shoshana Magnet, author of When Biometrics Fail: Gender, Race, and the Technology of Identity *Sirens blare. Maps blaze in alarming colors. Phones buzz stridently as pop-up alerts invade the screen. Media technologies index the presence of an emergency, putting us on alert, entreating us to leap into protective action. Yet as Elizabeth Ellcessor argues cogently in her timely, alarming, and ultimately reparative book, emergency media and the workers operating them also have the power to construct emergency—to cultivate panic, to amplify risk, to signal when we’ve tipped over into some unacceptably harmful, destructive, or costly deviation from the norm. Emergency media inform how ‘normality’ is defined, and whose norms become the standard. It thus has the capacity, as Ellcessor shows us, to cultivate a new norm that's more inclusive, just, and compassionate. * Shannon Mattern, author of Code and Clay, Data and Dirt: Five Thousand Years of Urban Media *

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Book SynopsisA much-needed look at the growth of emergency media and its impact on our livesIn an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an emergency. In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of emergency as an opposite of normal. Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archiTrade Review"In this moment, in which everything and nothing are simultaneously defined using the language of emergency, Elizabeth Ellcessor’s book is resonant, brilliant, timely, and compassionate, and helps to chart a way forward. Her analysis of emergency media and how they express specific articulations of technology, culture, and power as well as their connection to existing forms of white supremacy, disability justice, and misogyny are rigorous, and explain how our understandings of emergencies and the media with which we communicate that information have life and death stakes. " * Shoshana Magnet, author of When Biometrics Fail: Gender, Race, and the Technology of Identity *"Sirens blare. Maps blaze in alarming colors. Phones buzz stridently as pop-up alerts invade the screen. Media technologies index the presence of an emergency, putting us on alert, entreating us to leap into protective action. Yet as Elizabeth Ellcessor argues cogently in her timely, alarming, and ultimately reparative book, emergency media and the workers operating them also have the power to construct emergency—to cultivate panic, to amplify risk, to signal when we’ve tipped over into some unacceptably harmful, destructive, or costly deviation from the norm. Emergency media inform how ‘normality’ is defined, and whose norms become the standard. It thus has the capacity, as Ellcessor shows us, to cultivate a new norm that's more inclusive, just, and compassionate. " * Shannon Mattern, author of Code and Clay, Data and Dirt: Five Thousand Years of Urban Media *

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Book SynopsisThe role of disability and deafness in artDistressing Language is full of mistakeserrors of hearing, speaking, writing, and understanding. Michael Davidson engages the role of disability and deafness in contemporary aesthetics, exploring how physical and intellectual differences challenge our understanding of art and poetry. Where hearing and speaking are considered normative conditions of the human, what happens when words are misheard and misspoken? How have writers and artists, both disabled and non-disabled, used error as generative elements in contesting the presumed value of sounding good? Distressing Language grows out of the author's experience of hearing loss in which misunderstandings have become a daily occurrence. Davidson maintains that verbal confusions are less an aberration in understanding than a component of new knowledge.Davidson discusses a range of sites, from captioning errors and Bad Lip Reads on YouTube, to the deaf artiTrade ReviewDrawing on his own experience of increasing deafness, Davidson provides an engrossing look into the ways that slips or unusual forms of language can unexpectedly lead to new meanings and beauty. Distressing Language expertly weaves together modern poetry and fiction, popular culture, sign language art, theory, politics, and history, and is often as funny as it is profound. * Christopher Krentz, author of Writing Deafness: The Hearing Line in Nineteenth-Century American Literature *A highly original account of language, meaning, and sound, all framed through hearing loss. In Davidson’s account, meaning and value come from things not working the way they are supposed to. But rather than fetishizing technical glitch or aesthetic failure, he processes meaning through a disability hermeneutic. Throughout Distressing Language, the lines between poetry, sound art, and music are intentionally blurred and violated, while the meaning of sound is foregrounded as something especially important for those who have limited access to it. * Jonathan Sterne, McGill University *

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Book SynopsisWhat prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeierscholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndromedied of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology iTrade ReviewAsks questions such as, what is the line between illness and disability, and how can a parent deal with uncertainties? … Shares rarely heard stories from parents and prospective parents who have confronted challenging decisions about a fetus with Down syndrome … provides insight into a segment of the population rarely explored. * Library Journal *A thought-provoking book at the value of all human life … This book should reassure parents who choose to skip genetic testing or decide not to terminate pregnancies after learning their fetus may not be 'normal.' Like Piepmeier and her coauthors, they may well find unexpected joys in happy, loving kids. * Booklist *Unexpected is a beautiful, thoughtful, and challenging co-authored and deeply reflexive book. It engages the porous lessons of disability, debility, death and an enduring love that is at once familial and friendship-centered. Collectively, Alison Piepmeier recruits George Estreich and Rachel Adams into a profound conversation that narrates their experiences of raising children with Down Syndrome as an optic on injustice, advocacy, and social transformation through this most intimate of parent-child relations. -- Rayna Rapp, author of Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America

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Book SynopsisInsists on the importance of embodiment and movement to the creation of Black socialityLinking African diasporic performance, disability studies, and movement studies, Falling, Floating, Flickering approaches disability transnationally by centering Black, African, and diasporic experiences. By eschewing capital's weighted calculus of which bodies hold value, this book centers alternate morphologies and movement practices that have previously been dismissed as abnormal or unrecognizable. To move beyond binaries of ability, Hershini Bhana Young traverses multiple geohistories and cultural forms stretching from the United States and the Mediterranean to Sierra Leone, Nigeria, and South Africa, as well as independent and experimental film, novels, sculptures, images, dance, performances, and anecdotes. In doing so, she argues for the importance of differential embodiment and movement to the creation and survival of Black sociality, and refutes stereotypic notioTrade ReviewA stellar work of scholarship. Young is fearless in her questions and generous in her thinking, providing readers with the tools to imagine, critique, and speculate alongside her. She powerfully demonstrates the necessity of reading disability in context and transforms our understandings of disability and performance. * Alison Kafer, author of Feminist, Queer, Crip *Falling, Floating, Flickering demonstrates that Black sociality emerges from and can be reconsidered by foregrounding differential embodiment. Throughout the book, moments of tension, moving through rich theoretical ideas and difficult lived and performed embodiments, are followed by moments of relief, where Hershini Bhana Young offers not simply places to rest, but places to be invigorated. Reading this work is incredibly pleasurable, and I am grateful for its clarity and capaciousness. * Keguro Macharia, author of Frottage: Frictions of Intimacy across the Black Diaspora *

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Book SynopsisInsists on the importance of embodiment and movement to the creation of Black socialityLinking African diasporic performance, disability studies, and movement studies, Falling, Floating, Flickering approaches disability transnationally by centering Black, African, and diasporic experiences. By eschewing capital's weighted calculus of which bodies hold value, this book centers alternate morphologies and movement practices that have previously been dismissed as abnormal or unrecognizable. To move beyond binaries of ability, Hershini Bhana Young traverses multiple geohistories and cultural forms stretching from the United States and the Mediterranean to Sierra Leone, Nigeria, and South Africa, as well as independent and experimental film, novels, sculptures, images, dance, performances, and anecdotes. In doing so, she argues for the importance of differential embodiment and movement to the creation and survival of Black sociality, and refutes stereotypic notioTrade ReviewA stellar work of scholarship. Young is fearless in her questions and generous in her thinking, providing readers with the tools to imagine, critique, and speculate alongside her. She powerfully demonstrates the necessity of reading disability in context and transforms our understandings of disability and performance. * Alison Kafer, author of Feminist, Queer, Crip *Falling, Floating, Flickering demonstrates that Black sociality emerges from and can be reconsidered by foregrounding differential embodiment. Throughout the book, moments of tension, moving through rich theoretical ideas and difficult lived and performed embodiments, are followed by moments of relief, where Hershini Bhana Young offers not simply places to rest, but places to be invigorated. Reading this work is incredibly pleasurable, and I am grateful for its clarity and capaciousness. * Keguro Macharia, author of Frottage: Frictions of Intimacy across the Black Diaspora *

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Book SynopsisIntroduces key ideas and offers a sense of the new frontiers and questions in the emerging field of disability media studies Disability Media Studies articulates the formation of a new field of study, based in the rich traditions of media, cultural, and disability studies. Necessarily interdisciplinary and diverse, this collection weaves together work from scholars from a variety of disciplinary homes, into a broader conversation about exploring media artifacts in relation to disability. The book provides a comprehensive overview for anyone interested in the study of disability and media today. Case studies include familiar contemporary examplessuch as Iron Man 3, Lady Gaga, and Oscar Pistoriusas well as historical media, independent disability media, reality television, and media technologies. The contributors consider disability representation, the role of media in forming cultural assumptions about ability, the construction of disability via media technoTrade ReviewA vital, spot-on collection, assembled with much care and attention,Disability Media Studiesencourages readers to & question ones training and reach toward interdisciplinarity. -- Petra Kuppers,author of Studying Disability Arts and Culture and The Scar of Visibility: Medical Performance anAn important contribution is Ellcessors chapter on conceptualizing access to media not only in relation to consumption but also in relation to production. * Choice *

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Book SynopsisIntroduces key ideas and offers a sense of the new frontiers and questions in the emerging field of disability media studies Disability Media Studies articulates the formation of a new field of study, based in the rich traditions of media, cultural, and disability studies. Necessarily interdisciplinary and diverse, this collection weaves together work from scholars from a variety of disciplinary homes, into a broader conversation about exploring media artifacts in relation to disability. The book provides a comprehensive overview for anyone interested in the study of disability and media today. Case studies include familiar contemporary examplessuch as Iron Man 3, Lady Gaga, and Oscar Pistoriusas well as historical media, independent disability media, reality television, and media technologies. The contributors consider disability representation, the role of media in forming cultural assumptions about ability, the construction of disability via media technoTrade Review"A vital, spot-on collection, assembled with much care and attention,Disability Media Studiesencourages readers to & question ones training and reach toward interdisciplinarity." -- Petra Kuppers,author of Studying Disability Arts and Culture and The Scar of Visibility: Medical Performance an"An important contribution is Ellcessors chapter on conceptualizing access to media not only in relation to consumption but also in relation to production." * Choice *

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Book SynopsisWhat prenatal tests and down syndrome reveal about our reproductive choicesWhen Alison Piepmeierscholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndromedied of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology iTrade Review"Asks questions such as, what is the line between illness and disability, and how can a parent deal with uncertainties? … Shares rarely heard stories from parents and prospective parents who have confronted challenging decisions about a fetus with Down syndrome … provides insight into a segment of the population rarely explored." * Library Journal *"A thought-provoking book at the value of all human life … This book should reassure parents who choose to skip genetic testing or decide not to terminate pregnancies after learning their fetus may not be 'normal.' Like Piepmeier and her coauthors, they may well find unexpected joys in happy, loving kids." * Booklist *"Unexpected is a beautiful, thoughtful, and challenging co-authored and deeply reflexive book. It engages the porous lessons of disability, debility, death and an enduring love that is at once familial and friendship-centered. Collectively, Alison Piepmeier recruits George Estreich and Rachel Adams into a profound conversation that narrates their experiences of raising children with Down Syndrome as an optic on injustice, advocacy, and social transformation through this most intimate of parent-child relations." -- Rayna Rapp, author of Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America

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Book SynopsisDuring the early nineteenth century, schools for the deaf appeared in the US for the first time. This book places the growth of the Deaf community at the heart of the story of deaf education and explains how the unexpected emergence of Deafness provoked the pedagogical battles that dominated the field of deaf education in the nineteenth century.Trade Review[A] useful addition to the still-developing history of the nation's evolving deaf community. * The Journal of American History *R.A.R. Edwards' Words Made Flesh: Nineteenth-Century Deaf Education and the Growth of Deaf Culture is a brilliant study of the emergence of a deaf community in nineteenth-century America . . . . Beyond a more nuanced account of the emergence of the American Deaf community, this monograph is ultimately a revisionist history of the ongoing conflict over pedagogical methods in deaf education. Building on the established historiography produced by a small cadre of deaf historians, Edwards represents a new generation of scholarship in the field, offering a revisionist thesis of the ideas originally presented by Van Cleve and Crouch over twenty years ago. Words Made Flesh is a fine addition to New York University press's history of disability series. * Common-Place *[This book is] provocative, detailed, and a welcome examination of the emergence of a signing deaf culture. * American Historical Review *In this gracefully written book, Edwards offers both a fascinating narrative and a provocative, revisionist thesis.Scholars and general readers interested in the Deaf community and American cultural history will find it a rewarding read. -- Douglas Baynton,University of IowaWords Made Fleshis a stimulating, beautifully written, and thoroughly engaging book. -- James W. Trent * American Studies *Table of ContentsAcknowledgments Introduction 1 Thomas Hopkins Gallaudet and Laurent Clerc: A Yale Man and a Deaf Man Open a School and Create a World 2 Manual Education: An American Beginning 3 Learning to Be Deaf: Lessons from the Residential School 4 The Deaf Way: Living a Deaf Life 5 Horace Mann and Samuel Gridley Howe: The First American Oralists 6 Languages of Signs: Methodical versus Natural 7 The Fight over the Clarke School: Manualists and Oralists Confront Deafness Conclusion Notes Index About the Author

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Book SynopsisA history of design that is often overlookeduntil we need itHave you ever hit the big blue button to activate automatic doors? Have you ever used an ergonomic kitchen tool? Have you ever used curb cuts to roll a stroller across an intersection? If you have, then you've benefited from accessible designdesign for people with physical, sensory, and cognitive disabilities. These ubiquitous touchstones of modern life were once anything but. Disability advocates fought tirelessly to ensure that the needs of people with disabilities became a standard part of public design thinking. That fight took many forms worldwide, but in the United States it became a civil rights issue; activists used design to make an argument about the place of people with disabilities in public life.In the aftermath of World War II, with injured veterans returning home and the polio epidemic reaching the Oval Office, the needs of people with disabilities came forcibly into the public eye as they Trade ReviewAccessible America offers an important history of how and why design for disability has evolved and needs to evolve. * Curbed.com *This illuminating and thoughtful overview of the evolution of accessible design in the U.S. between the end of WWII and the late 1990s is a strong introduction to the topic...Williamson skillfully connects design concepts to changing social narratives; this work should reward readers interested in either topic. * Publishers Weekly *Williamson keenly emphasizes that the United States has led the world globally toward physical access and accessibility as acceptable and admirable natural and civil rights rather than annoying physical encumbrances that stand in the way...reading [this]can change lives. * Library Journal *Accessible America is handsomely produced and will appeal to readers interested in design, disability studies, and social history. -- CHOICEAmerica was once even less accessible than it is now, as historicized by Bess Williamson in her book Accessible America: A History of Disability and Design. Williamson uses her background in art and design to critique the ways that nationalism and idealism have driven material environments to reflect societal norms in the United States post World War II. She integrates analysis with historical images that exhibit how truly inaccessible this country has been throughout history, which she artfully points out as being in "response to a lack" for much of modern history. * Disability Studies Quarterly *Beautifully and engagingly written, Williamson's approach to the history of accessibility as a history of design is brilliant. Accessible America shows how disability advocates harnessed technological design in their quest for access and equality, paying particular attention to the connection between prosthetic devices and the 'universal' design that followed, illuminating both histories. Highly recommended. -- Douglas C. Baynton,author of Defectives in the Land: Disability and Immigration in the Age of EugenicsBess Williamson's engaging history of accessible design points the way to design as a tool for empowerment, critique, and self-expression that celebrates the diversity of human bodies. Disability is a culture, not a lack. -- Ellen Lupton,Curator of Contemporary Design at The Cooper Hewitt, Smithsonian Design MuseumBy unearthing, situating, and interpreting artifacts of accessible designfrom World War II to the rise of the Independent Living Movement to the post-ADA eraWilliamson's book offers a much-needed contribution to disability history as we know it while also reshaping it for the next generation of disability historians, designers, and activists. -- David Serlin,author of Replaceable You: Engineering the Body in Postwar AmericaWilliamson reveals the hidden history of how the Disability Rights Movement's struggle for inclusion rebuilt the world. Reaching back to activist veterans returning from World War II, through the Architectural Barriers Act of 1968, to ergonomics, universal design, and the Americans with Disabilities Act, Williamson shows us the transformed America that gives us the tools and pathways we all use every day to make our lives work better, and that the emergence of inclusive design and the world it makes is a tool for justice. -- Rosemarie Garland-Thomson,author of Extraordinary BodiesThe contents of this book are a win for historians of disability as well as for historians of technology, architecture, and design. * H-Net Reviews *Accessible America is a must-read for scholars of disability history and material culture ... Williamson’s design-centered approach charts an effective and compelling road map for future disability studies projects, and she suggests interesting possibilities for further research on the built environment and US disability history. * Winterthur Portfolio *A special strength of Williamson’s work is the emphasis on the role of people with disabilities as active agents of change in design [...] Accessible America manages to include the hidden stories of the history of disability-related design and places them in a wider context of technological, political, and social change, including the growing impact of the disability movement. * Technology and Culture *

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Book SynopsisMadness is a sin. Those with emotional disabilities are shunned. Mental illness is not the church’s problem. All three claims are wrong. Heather H. Vacek traces the history of Protestant reactions to mental illness in America, revealing how two distinct forces combined to thwart Christian care for the whole person.Trade ReviewVacek has written a scholarly jeremiad in which she has weighed her co-religionists' responses to mental illness in the moral balance and found them wanting. The organization of the book highlights what she persuasively argues is a perennial gap between belief and practice in her faith community...The prose is clear, the documentation thorough, and her stance heartfelt." - Lawrence B. Goodheart, Bulletin of the History of Medicine "This timely and deeply moving study has garnered wide media attention. It shows how American Protestants have addressed and, more often, failed to address mental illness in their congregations." - The Christian Century "I recommend this book, and especially its final chapter, to pastors and church leaders who are seeking to reflect on and develop a congregation's ministry among people with mental illnesses, whether they be church members or strangers. It will also appeal to readers with an interest in the history of American mental health attitudes and practices, or, more generally, the history of Christian influences on American society." - Christine Guth, Anabaptist Disabilities Network "Vacek's book serves as an important reminder of how conceptions of mental illness and the structure of care for the mentally ill has a long and complicated history, shaped by everything from religious reformers, the emerging field of professionalized medicine, and the evolution of often grossly underfunded state institutions." - David Eagle, Sociology of Religion "In sum, Vacek combines top-notch historical inquiry with a concern for effective theological responses to mental suffering. She carefully contextualizes the lives of her subjects in relation to broad religious and medical trends, and her in-depth biographical studies facilitate insightful, comparative analysis. The book is accessible to a broad audience and represents an excellent addition to the growing scholarly literature addressing the intersection of religion, medicine, and healing." - Joseph Williams, Journal of the History of Medicine and Allied Sciences "Madness is a fine accomplishment, weaving together a theological point with historical analysis." - Sean Cosgrove, Journal of Religious History "A text that will be read profitably both within the academic community and outside it." - Jeremy Bonner, Journal of Ecclesiastical History "Vacek has written an important text for professors of pastoral counseling/clinical pastoral education and students in divinity and theological schools to disentangle church history and understand what it is they believe about the role of churches and clergy in the accompaniment of people with mental disabilities." - Corrine C. Bertram, H-Net Reviews in the Humanities & Social Sciences "… Madness is a fascinating read and of particular interest to historians, mental healthcare practitioners, and those researching the intersection between medicine and religion." - E. Janet Warren, Perspectives on Science and Christian Faith "We live in an era of ever more interest in religion and medicine, yet religious studies has produced remarkably few monographs on the relationship between religion and mental health. The historical breadth of Vacek's book offers a wide-angle lens on this relationship, tracing major shifts as well as detailing turns both disturbing and promising. Aware both of the importance of history and the variety of communities such studies might reach, Vacek offers a thoughtful starting point for future scholarship and engagement." - Philippa Koch, The Journal of ReligionTable of Contents Introduction: Christianity and Mental Illness 1. Making Theological Sense out of Suffering, Sin, and Sickness: Cotton Mather 2. Christian Vocation and the Shape of the Secular Profession: Benjamin Rush 3. Advocating for the Helpless, Forgotten, and Insane: Dorothea Dix 4. Reclaiming Religious Authority in Medicine: Anton Boisen 5. A Passionate Plea to Engage Finds Lukewarm Reaction: Karl Menninger Conclusion: Suffering, Stigma, and Hospitality

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