Palliative medicine Books

Book SynopsisAs a part-time hospice volunteer, Eric Lindner provides companion care to dying strangers. They're chatterboxes and recluses, religious and irreligious, battered by cancer, congestive heart failure, Alzheimer's, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he's not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lTrade ReviewIn this endearing and personal book, Attorney and entrepreneur Lindner details his experiences volunteering in hospice with colorful storytelling, practical advice, and encouragement for those coming to terms with the end of life. As a new volunteer, Lindner learns that there are 5300 hospices in the U.S. and they rely heavily on volunteers. While Lindner’s early training included “dos and don’ts,” he tends to follow his own path, causing some raised eyebrows and, in one case, nearly landing himself in a lawsuit. Still, Lindner’s heart is in the right place and he soldiers on with a positive attitude, especially given that a hospice volunteer never knows what he’s stepping into. One thing is for certain, a hospice volunteer must deal with profound moral dilemmas and emotional issues. Lindner’s open access to patients combined with his hectic travel schedule has him receiving calls at all times of day and night and on various continents and he’s frank about these life and death issues. Lindner takes on this heavy subject from a special perspective and he does so eloquently, providing insight and inspiration to those who read along. * Publishers Weekly *Author Eric Lindner's debut is somewhat like an Irish wake. There are tears, but also joy and surprising levity. His writing honors and gives voice to those intensely personal moments that patients and their loved ones endure and find reasons to celebrate. . . .Lindner urges us to be still, present and listen with all our sensory antennae to the winks and whispers, hugs and mumbles, sighs and chuckles of those on the cusp of the Hereafter. The unspoken, the look, the long deep breath, the tear in the corner of the eye, and the tight grip of the hand—these are the unspoken things that speak volumes. As a 'companion caregiver,' he ushers us into the lives of seven special patients, illuminating what's relevant to and for the dying—and the living. As far as the dying are concerned, Lindner observes, one of the most relevant things 'is preserving a shred of privacy and dignity, which can be tough when you're incontinent, your wig's on backward, or you can't find your false teeth.' . . . Lindner is an honest teacher, not one to shy away from highlighting his own foibles. Yet he demonstrates how all of us, even the most 'unskilled,' can help alleviate pain and suffering -- while learning great lessons in the process. He brings to us patients with whom we can all sympathize and identify. Lindner's stories echo Khalil Gibran, who said, 'Pain breaks the shell that encloses understanding.' * The Huffington Post *Hospice Voices: Lessons For Living at the End of Life is a memoir written by a lay hospice volunteer who shares with us his moving story of spending time with those facing their mortality. It's a beautiful book, deeply instructive to the professional and layperson alike. ... Hospice Voices is a truly beautiful work of love, written in heartfelt and genuine prose that clearly demonstrates Lindner's love and respect for his clients, as well as his clear-eyed views on mortality and illness, not to mention his own internal process during the course of his volunteering. Rather than the words of a professional, Lindner's book is a love song written by a layperson; a love song infused with understanding, pathos, authenticity and raw honesty. Sharing deeply about his family, his own life, as well as his young daughter's experience of being diagnosed with thyroid cancer, the author's personality shines brilliantly through his flowing, simple yet moving prose. I highly recommend Hospice Voices for anyone who has experienced the death of a loved, expects to experience the death of a loved one, or who thinks that they themselves may die one day. Does that seem like I'm recommending it to everyone? I most certainly am. * Digital Doorway *This is an honest, pull no punches look at coming to terms with the one thing we will all do—die. In this well-documented and highly-readable book, Lindner proves an adept chronicler of the individual human stories that make up his journey to understand that beauty and grace can exist at the end stages of life. Lindner deftly reminds us of the power of the small things, the simple gestures and the importance of dignity for those that face a terminal situation. Throughout the book, we meet people approaching the end of life in their own individual ways, with different measures of love, faith and family. This book simultaneously opened my heart and broke it as each story taught me how hope and dignity can exist even in terminal situations. As a hospice volunteer, Lindner teaches us all that the ability to ease and bear witness to someone’s journey at the end stage of life is perhaps the ultimate gift one human can give another. -- Lee Woodruff, NY Times #1 Bestselling AuthorHeart attacks, strokes, and heart failure claim more lives than any other disease state. Over my career I've seen my share of sadness due to the ravages of end-stage cardiovascular disease. But I've also seen terminal patients and their loved ones wring out great joy and meaning in the final months of life. This book is joyful, insightful, witty, and truly meaningful. It tugged at my heart, tickled my funny bone, and served up numerous insights and tips that had escaped me when trying to advise patients and their families. What a marvelous set of stories that should be read by all adults. It inspires us to live life to the fullest and respect and learn from the past in order to better deal with future uncertainty. -- Roger S. Blumenthal, M.D., FAHA, FACC, Kenneth Jay Pollin Professor of Cardiology; director at Johns Hopkins Ciccarone Center for the Prevention of Heart Diseas; author of many works including Preventive Cardiology: Companion to Braunwald’s Heart DiseaseAs a physician who cares for the chronically ill and dying I all too often see people who are alone in the midst of their suffering. Trained volunteers, like Eric Lindner, play such an immensely important role in providing that companionship to the patient. His book reminds all of us that we are invited to attend to others – not to change them, not to judge them, not to fix them. We are there simply to listen and to be witnesses to the suffering and joy of others in their living and in their dying. Presence to others, as Lindner describes so poignantly in his book, is a transformative sacred act for the patient and for the companion. Eric Lindner’s book inspires all of us to enter the sacredness of living and dying with openness and courage. -- Christina M. Puchalski, MD, MS, FACP; director of George Washington University’s Institute for Spirituality and Health; professor of George Washington University School of Medicine and Health SciencesThis book intrigued me because of the author’s pledge to donate 100% of his profits to charity. His book moved me because it's an illustration that there are many ways we can provide love and justice in this world. We think of love in our daily affections for those close to us. We think of justice in the work of social movements. But all religions teach that at the heart of justice is love, hospitality, and kindness to strangers. It is hard to imagine a better example of exactly that than this book, and in reading it, one comes away knowing that as in sacred scripture, Lindner has encountered and served angels themselves. -- Timothy L. Fort, PhD, JD, Everleigh Professor of Business Ethics, Kelley School of Business, Indiana University; author of many works including Business, Integrity, and Peace: Beyond Geopolitical and Disciplinary BoundariesEric Lindner gives voice to those in their final days so that we may better listen, love, and learn from their example. A must read for any caregiver - volunteer or family. -- Vince Evans, MSW, Vice President of Patient Services, Hospice of the ValleyBeautiful, funny, poignant. I was mesmerized. -- Sen. Mark Warner (D-VA)I started Hospice Voices and read it straight through. I was deeply moved by the extraordinary people I met in the book. -- Will Schwalbe, author of the New York Times bestseller, The End of Your Life Book ClubI love this book! It’s a brilliant story…well-told. -- John Toal, BBC RadioEric Lindner’s book Hospice Voices: Lessons for Living at the End of Life is a powerful testament to hospice volunteers. The Post’s article and Lindner’s book are the best gifts one can give to a family suffering through one of life’s most difficult moments. * The Instrumentalist *"This book may be of interest to anybody who works in palliative care, and of particular value to those who coordinate our volunteers and to the volunteers (and trainee volunteers) themselves." * International Association for Hospice & Palliative Care *Table of ContentsAcknowledgements Preface 1: An Aptly Named Caregiver 2: Find the Key That Unlocks Empathy 3: Adversity Crumbles When Laughed At 4: Ownership Isn’t All That it’s Cracked Up to Be 5: Talk Less, Communicate More 6: We’re Only as Sick as Our Secrets 7: Have Guns, Will Travel 8: Live Discharge 9: DOs and DON’Ts

Read more less

Book SynopsisConventional coping strategies can be pushed to their limits when people find themselves in situations of suffering, illness, and dying. Moved beyond their everyday consciousness, individuals often have spiritual experiences of grace and encounters with the transcendent or the divine. The author shows how care providers can support patients in their suffering and how they can recognize patients' spiritual experiences. Explaining different types of experiences of transcendence such as seeing angels or feelings of otherness and presence, this book will be of valuable use to professionals working in palliative and spiritual care, such as spiritual caregivers, therapists, nurses, and physicians. The book entails a new approach to spiritual care which opens a space of hope wherein grace may happen even amid pain, suffering, illness and dying.Trade ReviewEvery word of this rich and profound account of Renz's important and valuable research with the dying rings true. Monika is a courageous and inspirational pioneer. Her challenging work is worthy of the closest attention, extending the boundaries of human wisdom where we all need to go. -- Larry Culliford, author of ‘The Psychology of Spirituality’, and, ‘Much Ado about Something: a vision of Christian maturity’.A bold ethnographic inquiry into palliative care patients' experiences of hope and grace that transcends conventional reason, language, and cultural boundaries of the ego-based self. Hope and grace are not specific states or goals but contemplative processes of belonging with recognizable qualities that can inform compassionate palliative practices. -- Bruce L. Arnold, Ph.D., University of Calgary, Canada.There is a great value for the patient in these theological musings from this music therapist, psychotherapist, and spiritual counsellor. They have the power to lift us beyond fear and pain. Renz unravels this mode of thinking. it can assist carers and medical staff, because it facilitates the work of injecting new hope and comfort into the milieu of the dying.This book is not always an easy read, owing to its academic approach to dying. But it has a positive spin. It shows that dying and the proximity of death can flow into a close relationship with God and his holy angels. That said, it could perhaps benefit from having fewer patient-related case studies and more analytic material from Renz. -- Revd David Bryant * Church Times *Table of ContentsIntroduction. 1. Spirituality is Experience. 2. Between Two Worlds: The Liminal Sphere and Its Laws. 3. Hope for Grace. 4. Experience of Transcendence as Reality and Grace. 5. Experiences of Angels and Darkness. 6. Experiences of God and the Divine. 7. Being or Relationship?. 8. Spiritual Care between Psychotherapy and Pastoral Care. 9. Spiritual Care Interventions. Appendix. References.

Read more less

Book SynopsisPortrait therapy reverses the traditional roles in art therapy, utilising Edith Kramer's concept of the art therapist's 'third hand' to collaboratively design and paint their clients' portraits. It addresses 'disrupted' self-identity, which is common in serious illness and characterised by statements like 'I don't know who I am anymore' and 'I'm not the person I used to be'. This book explores the theory and practice of portrait therapy, including Kenneth Wright's theory of 'mirroring and attunement'. Case studies, accompanied by colour portraits, collages and prose-poems, provide insight into the intervention and the author highlights the potential for portrait therapy to be used with other client groups in the future.Trade ReviewThis intriguing book turns the art therapy lens in the reverse direction - the art therapist painting portraits co-created with seriously ill clients, to help revalidate their self-identities. It is a fascinating book, thoroughly researched and well written. -- Marian Liebmann, art therapistTable of ContentsForeword. Acknowledgements. Part I. Focusing the Gaze. 1. Setting the Scene: Introducing Portraiture as a 'Third Hand' Intervention. 2. Priming the Canvas: A Phenomenological Approach to Depicting Subjectivity. 3. Selecting the Medium: Portraiture as a Therapeutic Tool. Part II. Collaborative Case-Studies. 4. Portrait Therapy as a Collaborative Intervention: Paint Me This Way! 5. Increasing the Patients' Creative Capacity to Adapt to Illness. 6. Mirroring and Attunement through Portraiture: Intersubjective and Symbolic Ways of Knowing, Being and Relating. 7. Making Special, Making Meaning: Increasing the Lived Experience of Homelike-Being-in-the-World and Ontological Security. Part III. Portrait Therapy Protocol and Evaluation Methods. 8. A Therapist's Manual: The Three Phases of Portrait Therapy. 9. Making Connections: Evaluating Portrait Therapy. 10. Afterword: Drawing Conclusions. Appendix 1. Images used in the Portrait Reference Album (PRA). 2. Semi-structured end of project interview (EPI) questions used to evaluate portrait therapy. References.

Read more less

Book SynopsisThis book brings together music therapists who have worked in the challenging and rewarding world of children's palliative care. Examining techniques from working just with the breath, to technological advances in music therapy such as assistive recording and electronic downloading, it highlights the benefits music therapy can bring when working alongside children and young people. Drawing on the knowledge of expert music therapists, the book provides accessible guidance that practitioners can apply to their own work, including on professional development as part of a multi-disciplinary team, service evaluation, and managing publicity in the hospice setting. It addresses work with different client groups, such as teenagers, and discusses therapy with family members, including siblings. Music therapists and healthcare practitioners will be provided with the tools to reflect on their own professional challenges and deepen their understanding of the important role of music therapy in this sector.Trade ReviewMusic Therapy in Children's Palliative Care illustrates very strongly how music therapists use the strength of music to support children and families who are experiencing challenging and life changing circumstances. This book demonstrates how well music therapists offer the opportunity to create lasting memories when a child is dying. Both the child and the family are having to come to terms with loss. This book portrays the complexity of anticipatory grief and discusses offering a safe place to fully face and feel the pain and helplessness of bereavement. Music therapy allows children and families to express their feelings without words. I strongly believe the benefits from music therapy are unlimited creating a bond between child and family. This is only achieved by the amazing flexibility demonstrated by the music therapists in this book. I learnt a great deal when reading this book. -- Beverley Barclay MBE, Clinical Lead for ellenor's Children Hospice at Home serviceAs Patron of Jessie's Fund, I am so pleased to see this second book on music therapy and children's palliative care following in the footsteps of 'Jessie's Fund In Action'. It's heart-warming to know that this fantastic work carries on in the UK and that it continues to develop to meet the growing needs of a very complex client group. The dedicated music therapist contributors clearly love working in hospice and palliative care, and are a real inspiration - just like the children they work with. -- Maxine PeakeTable of ContentsIntroduction. 1. I'm here, I'm with you, I see you, I'm listening. Working with the breath with life limited and life threatened children. 2. Balancing the Public and Private: Music Therapy in a Children's Hospice. 3. Working in the Multi-Disciplinary Team. 4. Evaluating music therapy services in children's hospices. 5. Are we singing from the same song sheet?: The scope and provision of music therapy in children's hospices. 6. Fostering the relationship between parent and child using music therapy. 7. From small beginnings: Music therapy in the community setting for children and young people with cancer. 8. Performing, sharing and celebrating life: An exploration of the value of performance in a joint music therapy and community music project in a children's hospice. 9. Continuing to Sing: Music therapy, Identity and Empowerment in Young Adult's Palliative Care. 10. The screams crashed into silence: A therapeutic songwriting project for young adults with life-limiting illnesses.

Read more less

Book SynopsisUse of the arts in palliative care settings is a powerful and effective way of addressing the practical, psychological, social and spiritual issues faced by service users in end-of-life care.The Creative Arts in Palliative Care uncovers the possibilities for using the creative arts and provides guidance on how to implement arts projects successfully. Part 1 focuses on designing objectives for the creative arts in palliative care - such as self-fulfilment, social participation, diversion from pain and other common symptoms - and managing creative arts services. Part 2 demonstrates the theory and principles in practice, with detailed case studies: each chapter draws on a real-life project, the approaches it employed and the outcomes achieved.This book will be essential reading for healthcare professionals, arts practitioners and all those involved in providing palliative care services.Trade Review`The book is a brave and sensible move by Hartley and Payne. Brave, in encouraging more "group think" from professions often in conflict regarding issues of funding or professional boundaries. Sensible, because the common ground for these professions, creativity, has so much to offer palliative care: a book of this kind has long been needed to celebrate and promote the potential of the work these professions do.' -- British Journal of Music Therapy, Julian O'Kelly, day hospice manager and music therapists at the Princess Alice Hospice, Esher, Surrey, UK`This book would be useful to those who are hoping to establish creative arts practices in this field in a range of locations, and would be of particular help to those who may be managing such projects and who fell they have little or no experience or expertise in this field.` -- hospice information bulletin, Kate Powis, lecturer and researcher at St Helena Hospice, ColchesterI highly recommend this book to anyone involved in palliative care: administrators, nurses, social workers, caregivers, families, creative artists, therapists, and students...This book is moving, practical, and inspiring to all those dealing with chronic illness, pain, death, and dying. -- Art TherapyThis book was incredibly informative. It strove to inform, inspire and educate 'artists' to work in palliative care, and gave the tools and strategies to us for success... I recommend this book to any creative arts therapists who wish to work in palliative care, or want to brush up on some strategies for wearing their 'business hats' and increasing their practice hours. -- Canadian Art Therapy Association JournalThis book provides a credible and informative account of the contribution of the creative arts in palliative care. It is an accessible read for those with experience in this field, and will be of interest to people studying therapeutic media beyond standard medical approaches in a palliative care context, as well as those keen to explore and understand more about the life-affirming and life-enhancing potential of creative art. -- Writing in EducationThis book is an invaluable starting point, and hopefully a catalyst for more of the kind, bridging the gap between the paucity of literature and the richness of opportunities that the creative arts offer for personal transformation, increased well-being and social inclusion in palliative care. -- European Journal of Palliative CareThe Creative Arts in Palliative Care is a forward-thinking text which integrates management, treatment and community building aspects of creative arts in palliative care. I highly recommend The Creative Arts in Palliative Care. This book is a must read for artists, therapists, volunteers, managers and directors who specialize in working with patients and caregivers who are facing end of life. -- Nordic Journal of Music TherapyThis book is a valuable resource giving information in a collection of articles that, taken together, support the justification for including creative arts in the services offered to those who are facing the end of life. -- Journal of Palliative CareTable of ContentsAcknowledgements. Part I: Developing Creative Arts in Palliative Care. 1. Introduction - The Creative Arts in Palliative Care. Nigel Hartley and Malcolm Payne, St Christopher's Hospice, London. 2. Managing Creative Arts and Artists in Healthcare Settings. Nigel Hartley. 3. The Palliative Care Community - Using the Arts in Different Settings. Nigel Hartley. 4. Exhibiting, Promoting and Funding the Arts in Healthcare Settings. Nigel Hartley. 5. Research and Audit in Palliative Care Creative Arts. Malcolm Payne. Part II: Experiences of Creative Arts in Palliative Care. 6. Experiences of Creative Arts in Palliative Care - Introduction to Part II. Malcolm Payne. 7. Pottery and Painting. Lynn Harmer, St Christopher's Hospice, London; Greenwich Community College, South London. 8. Craft Work. Adrian Butchers, St Christopher's Hospice, London. 9. Digital Arts. Marion Tasker, St Christopher's Hospice, London. 10. Art Therapy. Samantha Dobbs, St Christopher's Hospice, London. 11. Community Arts. Virginia Hearth, St Christopher's Hospice, London.. 12. Beginning to Work as a Community Artist in Palliative Care. Mick Sands, St Christopher's Hospice, London. 13. Music Therapy in the Community. Tamsin Dives, St Christopher's Hospice, London. 14. Music and Music Therapy at St Christopher's Hospice - An Evaluation Study. Abi Gill, National Society for Epilepsy, Buckinghamshire. 15. Conclusion. Malcolm Payne and Nigel Hartley. Bibliography. Contributors. Suppliers. Subject Index. Author Index.

Read more less

Book Synopsis…members of the caring professions need all the counselling skills that we can muster. Readers of this book will end up feeling less helpless in the face of death but we should not expect to find communication easy. “What can we say?” Once we think we know what to say we are wrong. Rather this book will help us to learn when to speak of dying and when not to, what not to say and when to keep silent and wait patiently for what gliding instructors call an 'up-draught'. We must start from wherever the other person may be and we must take the time and trouble to discover the language with which this person speaks about death and dying, the assumptions they make and their needs and wishes to speak or not to speak.– From the Foreword by Dr Colin Murray Parkes, Life President of Cruse Bereavement CareGood counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people.Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home.Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.Trade Review[...] Working with patients on carers, "Speaking of Dying" is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hand-on guide will be an invaluable companion to anyone working in palliative care. -- Counselling MagazineA worthwile work that would be of value to any professional working in pallative care. -- Nursing StandardThis is a very practical guide to counselling in the palliative care setting. It is clearly written and well set out and the experiences of the author as a trained counsellor and palliative medicine specialist shines through. -- Palliative CareA most useful text for anyone training to work in the palliative care field. -- International Association for Hospice and Palliative Care NewsIn this excellent book, Heyse-Moore draws on his experience as a practised listener and specialist in palliative medicine. -- The Church TimesThis book will be a valuable addition to both personal bookshelves and to libraries. It will be valued by those working in pallative care and also particularly by those for whom speaking of dying remains a challenge. -- Plus Quarterly Magazine of Christian Council on AgeingThe author's years of experience as a palliative medicine specialist allows for an insider's view of how to work with the dying. From how to break the news of a terminal illness to a patient to euthanasia questions and working with other healthcare providers and family members, SPEAKING OF DYING is a recommended pick for any college-level collection strong in counseling guides. -- James A. Cox, Editor-in-Chief, The Midwest Book ReviewTable of ContentsAcknowledgements. Foreword by Dr Colin Murray Parkes. Introduction. PART 1: Fundamentals of Counselling Skills 1. Terminology. 2. Meeting. 3. Attending Skills. 4. Core Counselling Skills. 5. Psychological Approaches. PART 2: Palliative Care Issues 6. Breaking Bad News. 7. Working with Emotions. 8. Euthanasia. 9. Family Matters. 10. Spiritual Distress. 11. The Sick Psyche. 12. Staff Support. Conclusion. References. Recommended Reading List. Resources. Subject Index. Author Index.

Read more less

Book SynopsisAdvances in medical science and technology are saving the lives of more children worldwide than ever. Some survive and live out a normal life expectancy, others have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their healthcare systems are prepared. This book opens a global discussion of these issues. Extending Rita Pfund's text Palliative Care Nursing of Children and Young People, it invites paediatric palliative care professionals, parents and children from around the globe to share their knowledge and experience. This book is of vital interest to palliative care professionals, parents, policy makers and academics. It is an important move towards ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio-economic class have equal and guaranteed access to comprehensive paediatric palliative care services.Table of ContentsSection 1: A Global overview. Section 2: Focusing on families — hearing the evidence. Section 3: Minimizing Crisis Points in Paediatric Palliative Care. Section 4: Supporting transitions. Section 5: Evidence / knowledge transfer into practice.

Read more less

Book Synopsis'Healthcare professionals spend much of their time listening to stories of sickness related by patients and their families. It thus seems appropriate that drama, which is primarily concerned with exploring narratives, change and crises and relies, like the clinical situation, on communication, is an ideal medium for healthcare professionals to gain new insights into care.' From the Introduction Good communication forms the heart of patient-centred care and is the cornerstone of a trusting relationship. Enhancing Compassion in End-of-Life Care Through Drama explores a broad range of plays from Greek tragedy to the present day and investigates how particular theatrical dynamics help to understand complexities in the setting of end-of-life care. It examines fresh ways to interpret the action and subtext represented on the stage and finds symmetries in a clinical context. It is ideal for use in a range of educational contexts, with practical ideas for workshops and summaries of key concepts in each chapter. This book will motivate all members of the multidisciplinary palliative care team including palliative care professionals, doctors, nurses, psychologists, spiritual advisers and social workers. Although based in the setting of palliative care, the learning points are relevant to all areas of clinical practice.Table of ContentsForeword. Introduction. Communication: King Lear. Care : The Caretaker. Connection: Journey's End. Choice: Antigone. Change: Little Eyolf. Concealment: All my Sons. Crises: Blasted. Complexity: Cloud9. Culture: Behzti. Cooperation: Drama and healthcare education. Combination: Virtue ethics: The Good Doctor. Acknowledgements.

Read more less

Book SynopsisIs there a place for palliative care within mental health? This inspirational book offers an excellent foundation for integrating best-practice specialist palliative care into serious and enduring mental health service delivery. The shared practice values and vision between these two disciplines provide an optimistic starting point from which to address the lack of palliative care service delivery in mental health practice. Focusing on the similarity in philosophy between palliative care and mental health practice, it incorporates: . person-centred practice . relationship-based connectedness . a belief in compassionate care . respect for autonomy and choice . quality-of-life issues. The book addresses the practice skills needed in preparation for competent intervention and treatment. Each chapter develops a theoretical framework which is supported by practical application. Both professionals and students of palliative care will find the interactive text and practical case studies especially valuable, as will the professional working in substance use. Its userfriendly approach will appeal to a wide range of readers in various related disciplines. 'While it could be assumed that mental health has a lot to offer palliative care, we both [feel] that palliative care could offer more to mental health practice...It is a neglected area. There is little or no literature related to palliative care within serious mental health practice, and that which does exist relates to care of the dying in terms of cancer.' From the PrefaceTrade Review'Overall this is an impressive book that has the potential to be immensely helpful to generalists as well as specialist practitioners in both fields. It will serve to open up the debate and clarify the reality surrounding the consistent misunderstandings that still exist in both areas of practice, and as such it deserves to be widely read.' Robert Becker, Independent lecturer and author in palliative care, International Journal of Palliative NursingTable of ContentsPreface. About the editors. List of contributors. Terminology. Cautionary note. Other books by the editors. Acknowledgements. Dedication. Embracing palliative care-mental health. The Tidal Model. Application of transcultural theory to practice: the Purnell Model. Ethics. Psychological impact of serious and enduring mental health. Caring relationships. Hope and coping. Spirituality. All of me: embracing sexuality as a dimension of care. Assessment. Pain management. Managing restlessness and agitation at the end-of-life. End-of-life. Living with loss. Serious substance use problems and palliative care. Looking after yourself and colleagues. Index.

Read more less

Book SynopsisThis thought provoking and highly practical book is not just about caring for the dying within mental health, but also applying the quality care and practice of palliative care within mental health practice. Multidisciplinary in its approach, it focuses on intervention, treatment, care and practice, and the similarities in practice between palliative care and mental health. This common ground is an excellent foundation for integrating palliative care into mental health care, practice and service delivery, succinctly covering all aspects of psychological, physical, social, spiritual, sexual and emotional health. Featuring authoritative contributions from international experts, each chapter develops a theoretical framework before broadening its scope to include application in practice - addressing what, when, where and why with a definite focus on implementation in practice. Self-assessment exercises, advice for further reading, ideas for reflective practice and summaries of key points are also included, aiming above all else to improve the relationships, responses, care and practice necessary to be effective in interventions and treatment with those experiencing mental health concerns and dilemmas. Ideal for all health, social, psychological, legal and spiritual care students and professionals wanting sound theoretical and practical guidance, this book is highly recommended for General Practitioners and General Practice Registrars, healthcare assistants studying NVQ and health visitors. Educationalists, managers and service developers in health and social care will also appreciate its solution-focused, practical approach.Trade Review"…a useful read for all adult and mental health nurses…"—Nursing TimesTable of ContentsPreface. About the editors. List of contributors. Terminology. Cautionary note. Other books by the editors. Acknowledgements. Dedication. Palliative care within mental health: the need. Compassion, respect and dignity. Overcoming ethical dilemmas. Overcoming cultural dilemmas. The family. End-of-life. Assessment. Pain management. The young person and suicide. Long-term mental health. Dementia, Alzheimer's and confusion. Creutzfeldt-Jakob Disease and palliative care. Euthanasia, assisted suicide and mental health. Palliative care and substance use: special considerations. The heart of care and caring. Index.

Read more less

Book SynopsisPeople with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals working with them. This book describes not only what can be done to ensure maximum quality of life for those in the final stages of the illness, but also how best to support those involved in caring for them.Emphasising the importance of being attuned to the experiences and needs of the person with dementia, the authors explain why and how they should be included in decisions relating to their end of life care. Practical strategies for ensuring physical and emotional wellbeing are provided, drawing on useful examples from practice and providing solutions to potential challenges that carers and family members will face. Dilemmas surrounding end of life care are explored in detail, including the moral dilemma of medical intervention, and the authors suggest ways of supporting family members through the process in terms of providing information, helping them adjust to change and loss, and involving them in their relative's care, and at how care staff can be supported through appropriate education and training, team building and information-giving.This is an essential resource for anyone who wishes to provide compassionate, person-centred care for a person with dementia as they approach the end of life, including care staff, nurses, social workers and related professionals.Trade ReviewThis splendid book contains practical information - clinical, psychological, social, legal, social, spiritual and ethical - which is combined with wisdom and background understanding so that a thoroughly holistic picture emerges. It also encourages thought about training in the complex field of end of life care for people living with dementia. -- Julian C. Hughes, RICE Professor of Old Age Psychiatry, University of BristolThis book offers concise and practical guidance on caring for people with dementia who are reaching the end of their lives, promoting dignity and the needs of lay (family and friend) and professional carers. It offers clear learning outcomes, case studies and examples of good practice to bring this knowledge into every day care. -- Dr Elizabeth Sampson, Reader, Marie Curie Palliative Care Research Department, University College LondonThe care of people with advanced dementia is an increasingly important area of end-of-life care. This book provides a practical and well referenced overview of the key issues, using accessible case studies to illustrate key points. I look forward to using it in palliative care education and as an excellent source for reference. -- Jane Seymour, Professor of Palliative and End of Life Care, School of Nursing and Midwifery, University of SheffieldThere are lots of books being published about dementia right now and most do add value to the body of literature available but not all are as readable and accessible as the new offering from the University of Bradford's School of Dementia Studies. [...] Murna Downs and her team should be commended for this book [...]. -- Celia Di Cicco * Princess Alice Hospice *Table of ContentsForeword. Introduction. 1. Transitions. 2. Promoting Dignity and Physical Wellbeing at the End of life. 3. Promoting Dignity and Emotional Wellbeing at the End of Life. 4. Supporting Families through Advanced Dementia and End of Life. 5. Supporting the Health and Social Care Workforce to Provide End of Life Care for People with Dementia. References. Index.

Read more less

Book SynopsisThe many unfounded myths and fears that surround working with people at the end of their lives are dispelled in this thoughtful book, and the authors provide both practical and emotional support for those involved in caring for dying patients. The book covers everything from the philosophy behind the practice to the diverse roles in the multi-disciplinary team, as well as current challenges and opportunities facing end of life care, with an emphasis on how therapy and arts therapies can be integrated effectively. It also looks at palliative care models that address all aspects of a patient's wellbeing and conveys the latest research and challenges in the field, bridging the gap between theory and the realities of working with patients on a daily basis. Using material from artists and therapists working in the field, the varying demands of inpatient, outpatient and home care are described, as well as the processes of bereavement, how to handle the practicalities of loss and the help that therapists can give at this stage. How artists and therapists with experience of working at the end of life can be involved in other areas of care such as supporting older people in care homes and those living with dementia is also discussed. The book also introduces the important area of health promotion, and how there is a growing responsibility to change people's attitudes towards death, dying and bereavement. Clear, practical examples are given as to how this might be achieved. Full of professional advice and career guidance, this book will be an invaluable tool for those working with patients nearing the end of life and those considering working in this area, as well as students in training.Trade ReviewThis important book describes practical ways for therapists, artists and arts therapists to set about delivering an effective professional offering in a wide variety of end of life care settings; ranging from outpatient services, inpatient units, the community and care homes and across all illnesses including dementia. The book is a pragmatic, realistic and forthright guide to the difficulties and rewards of being a rather unusual, sometimes isolated, often poorly understood professional; a sort of mythical tiger burning bright in the sometimes impenetrable forest of the efficient demands of medical and nursing structures…This is a brave book and now, more than ever, all practitioners in the field of end of life care need to initiate courageous conversations if we are to meet ever growing need. -- from the foreword by Professor Dame Barbara Monroe, Chief Executive, St Christopher's GroupHartley has produced a poignant, compelling and practical guide for therapists, artists and arts therapists who work, or wish to work, with people at the end of life. This book blends concerns about history and policy, with practical discussions about inter-professional working, self-care, and evaluation in work with dying, death, and bereavement. An essential reference for practitioners. -- Allan Kellehear, PhD, AcSS, Professor of Community Health, Middlesex University, UKIn this wonderfully honest and realistic book, Nigel Hartley uses the experience of arts therapists working in end of life care to pose crucial questions for therapists, organisations and society in building a patient-led and effective service. He faces head on the particular issues raised by the current political and economic climate, and offers a wealth of practical advice. -- Jessica Rose, psychotherapist and author of Psychology for Pastoral Contexts: A Handbook (SCM) and Sharing Spaces?: Prayer and the Counselling Relationship (DLT)Nigel Hartley's book brushes aside the mystique of music and arts therapy, showing clearly how and why they work. As well as providing a full overview of current practice, he makes positive suggestions for encouraging teamwork and communication, and his highly readable style is shot through with compassion for patients, families and therapists themselves. -- Sarah Walker PhD, broadcaster, musician and writerAn important account stemming from the Anniversary Centre at St Christopher's Hospice - open daily for 13 hours for patients, family, friends and the public. An amazing development from the traditional nurse-led 10am-3pm, Monday-Friday Day Centre. A great example of TEAM-work - Together Everyone Achieves More. For anyone who wants to get beyond the bedpan and the drug round, this is essential reading. -- Dr Robert Twycross DM FRCP, Director of palliativedrugs.com Ltd.This book would serve as a useful introduction to anyone working in end-of-life care or considering it. The first section of the book deals with history, policy and current challenges... The second part is a series of chapters that discuss most aspects of end-of-life care in a variety of settings... This is an insightful review of what working in end-of-life care is all about. Whilst directed to those from the creative arts, anyone who works in end-of-life care, or is considering it, will be better off for reading it. -- IAHPC (International Association for Hospice & Palliative Care)Table of ContentsPart 1: History, Policy and Current Challenges. 1. Introduction. 2. The Model and Philosophy of Hospice and End of Life Care. 3. Strategic and Current Challenges. Part 2: Teamwork, Communication and Working in Different Contexts. 4. Working as Part of a Multi-disciplinary Team. Tamsin Dives and Nigel Hartley. 5. Working with Inpatients. Andy Ridley and Nigel Hartley. 6. Working with Day and Outpatients. Mick Sands and Nigel Hartley. 7. Working in Community Settings. Gerry Prince and Nigel Hartley. 8. Bereavement and Loss. Gini Lawson and Nigel Hartley. Part 3: Starting Out, Looking After Yourself, Research and Development. 9. Getting Started. Roberto Sanchez-Camus and Nigel Hartley. 10. Looking After Yourself. Marion Tasker and Nigel Hartley. 11. Research and Evaluation. Giorgos Tsiris and Nigel Hartley. 12. Final Thoughts and Some Handy Hints and Tips. Index.

Read more less

Book SynopsisThis sensitive and compassionate book provides older people who are nearing the end of life and their loved ones, as well as the professionals who work with them, with a greater depth of understanding of spiritual issues surrounding death and dying. Illustrated with the experiences of many older people, it explores important themes such as grief and loss; fear; pain, distress and suffering; acceptance; transcendence; prayer; the healing of relationships; and intimacy, and shows that the final journey towards death can be one of the most spiritually meaningful times in the life of an older person - a time in which there is still hope, and in which the person who is dying and their loved ones can grow spiritually, strengthened by the difficult times they face together. Spiritual issues for older people with dementia who are nearing the end of life are also explored, as are ethical and moral issues in death and dying, and the ways in which bereaved partners and relatives may come to terms with the loss of a loved one.This concise and accessible book will be a valuable resource for those in the caring professions and a rich source of guidance and support for older people who are nearing the end of life and their families.Trade Review(...) this book provides a gentle but emotive introduction into preparing for the final journey of life. -- Journal of Community Nursing...both of these books (Spirituality and Personhood in Dementia by Albert Jewell and Palliative Care, Ageing and Spirituality by Elizabeth Mackinlay), (...) are infused with glimpse of grace and courage, can inspire the reader to give thanks and cherish all that is good, and to live life as fully as we are able, even in the midst of frailty. -- The Waythis is a book which anyone involved in this area could read with real profit - and pass on to others. Strongly recommended. -- PlusMacKinlay's skills as a nurse and priest are reflected in the simple and compassionate opening up of the questions and some of the consequent feelings that surround this important dimension of our living. -- Church TimesIn a culture that tends to assume that the only meanings that can be associated with death are profoundly negative, the idea of a good death for elderly people is not always apparent. Elizabeth MacKinlay sees things differently. In this book she teases out a different way of looking at and understanding death and dying. Death is not an enemy or even something that necessarily has to be feared. Rather, death is a meaningful movement towards a positive goal. Religion and spirituality are vital aspects for the achievement of such a goal. This book helps us all to see death and dying differently and in seeing these things differently, we can learn to practise more compassionately. -- Professor John Swinton, Chair in Divinity and Religious Studies and Professor in Practical Theology and Pastoral Care, University of Aberdeen, ScotlandThe phrase 'a good death' seems ridiculous, but what is really meant is a good approach to death, with minimal physical pain, and the best chance of mental and spiritual calm to face the end. Not an easy task and therefore a book such as this containing helpful advice and real examples can be a useful aid to not only professionals perhaps facing palliative care for the first time, but also to families and friends who can have much to offer in bringing comfort and ease... This book, by being non-technical is also of value to the relatives and friends of those approaching the end of their mortal life. -- GoodBookStall.org.ukTable of ContentsPreface. Introduction: About growing older, dying and death. 1. Grief and loss: A part of life. 2. Fear of dying. 3. The final life career: Is this only a time of waiting for death? Or is there something more? 4. Acceptance that death will come. 5. Pain, distress and suffering. 6. Prayer. 7. Responding to meaning: symbol and ritual. 8. Transcendence in the process of death and dying. 9. Healing of relationships. 10. Intimacy and dying. 11. Dementia and dying. 12. Ethical and moral issues in death and dying. 13. The final days and hours of the journey. 14. Learning to live without my partner. Further reading. Appendices. Index.

Read more less

Book SynopsisAs someone approaches the end of their life, it is vitally important that they receive quality care and support, that their wishes are met, and that they are treated with dignity and respect. Pathways through Care at the End of Life is a comprehensive guide to providing excellent, person-centred end of life care. Following a pathway from initial conversations about end of life to care in the last days of life and after death, it covers assessing need and planning care, co-ordinating care between different agencies, and ensuring quality in different settings, such as at home, in a hospice, or in hospital. Good practice guidance on communication, ensuring the person's needs are met, support for their family and how to facilitate a good death is given. Case studies illustrate real life practice, and questions throughout each chapter encourage reflective practice. This book will be essential reading for all those working with people at the end of life, such as nurses, social workers, GPs and home carers, as well as students in these fields.Trade ReviewThis book draws on the rich experience and combined expertise of the authors to offer a resource for all those supporting people on their end of life pathway…[G]lobally we find a remarkable consistency across cultures of what people want when they are dying. They want care which manages distressing symptoms in the most effective way; they want to be treated with compassion, dignity and respect; they want to have the opportunity to set their affairs in order and to be surrounded by those people who are important to them. The implication of meeting those needs, as the core message of this book proclaims, is that end of life care is everybody's business. -- From the Foreword by Professor Sir Mike Richards, Chief Inspector of Hospitals, Care Quality Commission, UKThis clearly written and comprehensive book will be a valuable source of information and resource for any professional or student interested in improving the practical delivery of end of life care. It describes the methodologies, development and successes of the ground breaking national strategy for End of Life Care launched in England in 2008. The material is brought to life with case studies and best practice examples and reflection is encouraged through the use of 'stop and think' questions. -- Barbara Monroe, Chief Executive, St Christopher's Hospice, UKThis book provides a comprehensive, up-to-date, research-based account of multi-professional practice in end-of-life care from different professional perspectives. Its authoritative knowledge base relies on the work of the National End of Life Care Programme in England's Department of Health over several years. Its strong focus on flexible, holistic quality of care will make it valuable for specialist and general practitioners in hospital and community health and social care services. -- Malcolm Payne, consultant in social work and end-of-life care and author of Social Work in End-of-Life and Palliative CareThis book elegantly captures how the relatively new focus on 'end of life care' provides a conceptual framework with which to think in a different way about meeting these new needs and has led to change on a wide front…Readers can find interesting synopses of interdisciplinary perspectives on death, dying and epidemiological transition, together with up to date advice about best practice in care planning, communication and coordination of services; all set out in a highly accessible manner. In their discussions, the authors do not shy away from delineating new challenges ahead that will require all of us to work together to continue to transform end of life care so that it better meets the needs of all those facing death, whatever their age or diagnosis, and wherever they are cared for. -- Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham, UKTable of ContentsAcknowledgements. 1. The Context and Philosophy of End of Life Care. 2. Discussions as the End of Life Approaches 3. Assessing Need and Planning Care. 4. Co-ordination of Care. 5. Delivery of High Quality Care in Different Settings. 6. Care in the Last Days of Life. 7. Care after Death. 8. Quality End of Life Care for All. References. Index.

Read more less

Book SynopsisWithin the last decade music therapists have developed their work with people who have life-threatening illnesses and with those who are dying. This book presents some of that work from music therapists working in different approaches, in different countries, showing how valuable the inclusion of music therapy in palliative care has already proved to be.It is important for the dying, or those with terminal illness, that approaches are used which integrate the physical, psychological, social and spiritual dimensions of their being. The contributors to this book emphasize the importance of working not only with the patient but with the ward situation, friends and family members. By offering patients the chance to be creative they become something other than patients - they become expressive beings, and there is an intimacy in music therapy that is important for those who are suffering. Many of the contributors write in their own personal voice, providing a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. Contributors describe their work with both children and adults living with HIV/AIDS, cancer and other chronic degenerative diseases.Trade ReviewMusic therapy is still in the process of establishing its role in the UK palliative care movement. On balance, this publication can only help to inspire more therapists to work in the field, and to communicate their experiences to a wider audience. The personal approach to writing adopted by many of the authors is both highly accessible and absorbing. With this publication the voice of music therapy speaks clearly, providing a highly recommended account of this exciting and challenging area of work. -- British Journal of Music TherapyIn this pioneering book, David Aldridge presents chapters by an international range of music therapists who have extended the field to include work with patients suffering from the final stages of life-limiting illness. The result is an attractive volume that charts a fresh and innovative approach to problems faced by palliative care patients which will appeal to health care professionals as well as music therapists…I woud highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It offers a well-referenced, accessible and sensitively written contribution to the field. -- European Journal of Palliative CareThis book brings together the first published volume of many music therapists working with different approaches in different countries. It provides an extremely comprehensive insight into the approaches used by music therapists working within a variety of palliative care settings and a diversity of client groups and life-threatening conditions. The text is supplemented by very moving case studies. The book indicates clearly the power of music, its effect and the associations we hold with music throughout our lives. It is a multidimensional medium which has tremendous impact on our past, present and future lives. It provides a therapeutic tool within palliative care which by its varying dimensions has a potential value for individuals who are struggling with their present life-threatening or life-limiting circumstance. It is an essential read for anyone wishing to discover the potential value of music therapy within palliative care. -- British Journal of Occupational Therapy`Here is a book for the therapist, musician or student seeking a broard perspective on the practical application of music therapy. It is written by a range of practioners working in a variety of settings, each bringing a new vision to the interested reader. All aspects of music therapy are here represented, icluding listening, performance, composition (music and words) and milieu. Examples abound of different approaches to this most personal of therapeutic strategies - whether to complement pain relief, to provide an enjoyable undertaking for patients to join with each other and with their families and friends or as a diversionary activity. The thought provoking methods described from the practioner's view allow the reader to sit on sessions of music-making with patients turned musicians in a most exciting manner. It is this readability which will encourage the non-music therapist and non-therapist musician. Here are clear descriptions of successful methods in listening to music, in performning and composing with children and with older people. Lively imprtomptu 'jam' sessions are explored, carefully recalling instrumentation's and levels of musical expertise. Planned programmes of considerable complexity are described, allowing the reader to develop an understanding of the processes involved. A patient who wants me to compile a tape of his favourite music as a parting gift for his family, or the woman who has written words for a song but needs some help in composing a special tune. These cameos of practice are well presented and organised into a readable collection. They offer sufficient detail to encourage the well endowed music therapist while having sufficent non-technical material to allow access to the less musically inclined reder. This book is well referenced, offering a clear path to follow for those wishing to learn more. The subject and author indexes allow access to any vaguely recalled part of the book. -- RostrumI would highly recommend this book as an inspiring addition to the literature on the use of creative therapies in palliative care. It is slim (160 pages), well-written and highly readable, even to those who have no previous experience in the field. -- Marie Curie NewsThis book explores music therapy's enhancement of palliative care - giving voice to nine currently unpublished Music Therapists. The writers work in many settings - hospices, hospitals, paediatric oncology wards, AIDS support centres - in diverse countries throughout the world. But this diversity blends into a harmonious and inspiring book. -- Grief MattersThis book presents clinical writing from music therapists working using different approaches in various countries. It introduces the reader to different aspects of music therapy. The book contains in-depth case discussions rather than quantitative research analysis… Although entitled Palliative Care the book covers a wide spectrum of cancer stages, degenerative illnesses, HIV/AIDS, as well as, working with children and adults. The book illustrates the different areas where Music Therapy could work as part of a multi-disciplinary team. -- Irish Social WorkerThe contributors seek to emphasise the importance of working not only with the patient but with the ward situation, friends and family members; many write in their own personal voice, offering a particular insight which will be valuable not only to other music therapists seeking to enrich their own ways of working, but to all those involved in caring for the sick and the dying. -- Progress in Palliative CareTable of ContentsIntroduction, David Aldridge. 1. Music Therapy and the Creative Act, David Aldridge, Chair of Qualitative Research in Medicine, University of Witten/Herdecke, Germany. 2. Music Therapy as Milieu in the Hospice and Paediatric Oncology Ward, Tryge Aasgaard, Asistant Professor, Oslo College; Music Therapist, Ullevl, The National Hospital, Hospice Louisenberg, Oslo, Norway. 3. Lyrical Themes in Songs Written by Palliative Care Patients, Clare O'Callaghan. 4. Creativity and Communication Aspects of Music Therapy in a Children's Hospital, Beth Dun, Senior Music Therapist, Royal Children's Hospital, Melbourne. 5. Music Therapy at the End of Life: Searching for the Rite of Passage, Bridget Hogan. 6. Music Therapy in Chronic Degenerative Illness: Reflecting the Dynamic Sense of Self, Wendy Magee. 7. Music: A Means of Comfort, Susan Weber, Music Therapist, Johannes Hospiz der Barmherzigen, Munich; Lecturer in Music Therapy, Ludwigs Maximilian University, Munich. 8. Music Therapists' Personal Reflections on Working with Those Who Are Living with HIV/AIDS: `Almost the Definition of God', Nigel Hartley, Senior Music Therapist, Sir Michael Sobell House; London Lighthouse; Nordoff Robbins Centre, London. 9. Music Therapy with HIV Positive and AIDS Patients, Lutz Neugebauer. 10. The Implications of Melodic Expression for Music Therapy with a Breast Cancer Patient, Gudrun Aldridge, Lecturer, University of Witten/Herdecke, Germany. 11. Writing and Therapy: Into a New Tongue, Rob Finlayson.

Read more less

Book SynopsisA Long Walk Home is Rachel Clark’s evocative and moving account of her treatment and experiences with health professionals in Britain and Australia while she was living with, and dying from, cancer. It includes an Epilogue by her twin sister Naomi Jefferies, and learning points for health professionals by John Hasler and David Pendleton.Table of ContentsIntroduction: orienteering and oncology. Inside out and upside down – diagnosis. Ice magic – chemotherapy. Pick 'n' mix - alternative therapies and options. Roots and roses - origins and image. All the King's horses – surgery. Tattoos and technology – radiotherapy. England's pastures green - coming home. A panoramic view - the background picture. The messages for health professionals. Epilogue.

Read more less

Book SynopsisThe quality of cancer and palliative care is going through unprecedented change and development as a result of policy initiatives. The impact of these policies on education is unparalleled and it is essential that clinicians and educationalists are aware of the policy formation processes and educational strategies that meet the demands of these changing times. This book takes a holistic approach to patient care and draws on the diverse experience in hospices and highlights best practice to present a comprehensive and practical guide. However, it does more. New topics are given an educational perspective; those with limited educational experience are given sound advice; the implication of policy change is outlined. This is an important book and one which should be read by all clinicians, educators and managers responsible for improving services in cancer and palliative care. Table of ContentsThe impact of health and social policy on cancer and palliative care education. Clinical governance in 'face to face' and 'on-line space' palliative care education. Public education. Specialist and advanced nursing practice. Post Shipman - the impact on developing education in cancer and palliative care pain management. Death anxiety and death education: a brief analysis of the key issues. Nurses perceptions of spirituality and the implications for nursing care and education. Art and artistry in practice - a reflective account. The role of psycho-neuroimmunology in cancer and palliative care education. Complementary therapies and community nurses - implications for educational planning. Cancer and palliative care - evidence-based practice. Life review - an educational perspective. Humour in cancer and palliative care: an international perspective. An overview of hospice education.

Read more less

Book Synopsis

Read more less

Book SynopsisDer Mensch und seine Leiderfahrung sind nicht eindimensional auf den Körper bezogen, sondern vielschichtig zu begreifen. Schmerzen treffen uns in unserer ganzen Existenz. Josef Raischl und Dorothea Bergmann weiten das Verständnis von Schmerzen und definieren Dimensionen des spirituellen Schmerzes, die jeweils Erfahrungen des Mangels oder der Entfremdung umfassen. Wesentlich geht es um spirituelle Themen wie Sinnverlust, Versöhnung mit anderen und mit sich selbst, Hoffnung, transzendentale Verankerung. Spiritualität wird dabei als ein weit über religiöse Bindung hinausreichendes Phänomen aufgefasst. Auf Basis des Konzepts der Gestalttherapie und dem umfassenden System des mittelalterlichen Philosophen und Theologen Bonaventura zeigen die Autoren Wege, in der Begleitung Schwerkranker mit spirituellem Schmerz umzugehen.

Read more less

Book SynopsisPalliative medicine and hospice work have developed in many ways over the past few years. This has also led to dying, death and mourning being perceived and discussed more intensively in society. When meeting and accompanying seriously ill and dying people, including those around them, topics such as pain, physical symptoms, psychosocial problems, experiences of suffering, parting, death and grief are omnipresent. One of the main tasks of those working in the palliative and hospice sectors is dealing with grief. The manual explains the possibilities and limits of grief encounters and grief counseling and provides answers to numerous questions about the phenomenon of grief.In addition to imparting basic theoretical knowledge to understand grief, practical ways and strategies for dealing with grief are shown as well as questions of guilt, despair, search for meaning and longing that arise again and again.

Read more less

Book Synopsis

Read more less

Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

Read more less

Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex

Read more less

Book SynopsisBishop argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death.Trade Review“The book’s interdisciplinary nature, along with its careful analyses combined with concrete stories of real human struggles with death and dying, no doubt, will be of interest to those engaged in medicine, bioethics, philosophy, theology, and debates concerning public health policies; but all those interested in the place of the body in modern technoscientific culture will find it engaging and cogent.” —Per Caritatem". . . this book will prove to be a seminal, conversation-changing monograph especially in bioethics and philosophy of medicine. . . . It will challenge the fundamental presuppositions that structure most courses in bioethics or death and dying. It is certainly a must-read for scholars and graduate students in these fields, but with guidance, it is an accessible and important text to use with undergraduates interested in bioethics or theology and medicine as well." —Modern Theology"This is a genuinely novel approach that invites one to completely reassess why healthcare institutions and professionals function as they do. It also invites us to question how our lives are shaped by our anticipated deaths. . . . This is not an easy book, but it is worth devoting time to reading it and thinking about the questions it poses. It is beautifully written and carefully argued, and instead of shying away from difficult and potentially disruptive issues in modern medicine it exposes them and challenges us to think again." —Times Higher Education“In this evocatively titled book, physician Bishop joins his Catholic sensibility with a Foucaldian analysis of medicine and power to expose the ambiguities and complexities of contemporary end-of-life issues. . . . Bishop examines issues such as how the need for donated organs since the 1950s has shaped care of the dying in troubling ways, the contesting passions surrounding the Terri Schiavo case, and the trivialization of the religious lives of caregivers and dying patients as wrought by the professionalization of palliative care.” —Library Journal"The Anticipatory Corpse: Medicine, Power, and the Care of the Dying [is] a compelling read and a groundbreaking work in philosophy and bioethics. Written by physician, bioethicist, and philosopher Jeffrey P. Bishop, the book presents an eloquent argument as to how the profession’s care of dying persons has evolved as well as a provocative and insightful critique of the present state of such care. . . . The Anticipatory Corpse . . . is engaging, provocative, and difficult to put down. . . . For physicians, lawyers, philosophers, chaplains, nurses, and other professionals whose work is centered on life’s final chapter, I wholeheartedly recommend this book." —Journal of the American Medical Association“Jeffrey Bishop . . . takes the reader on a journey into the past to provide insight into how the dead body plays an integral and unrecognized role in the present state of medicine in his book . . . . He argues that the corpse is the end of the practice of medicine.” —Journal of Medical Humanities“It is hard to overestimate the importance of Bishop’s book, not least because of the unchallenged, well-nigh hegemonic place occupied by medicine in western culture . . . . The theological acuteness and pastoral warmth that flow through Jeffrey Bishop’s book make it the most compelling argument for the superiority of this type of humane medicine over the ubiquitous and utterly flaccid ‘biopsychosociospiritual’ pretensions of modern medical practice. But as a challenge to the story of western liberalism, and the central place of medicine within it, The Anticipatory Corpse is also the most important book of 2011.” —ABC Religion and Ethics“The Anticipatory Corpse is interesting, provocative and important—one of the most novel contributions to the field of bioethics of the last several decades. Bishop has many illuminating new things to say about the ethics of medical care for the dying. In the process, he helps to explain why bioethics itself is in such a sad state.” —America"In this brilliant book, Jeffrey Bishop, who is both a physician and a philosopher, turns his clinical and analytical gaze on medicine. His diagnosis is bleak: 'There is something rotten in the heart of medicine.' Nine of the ten chapters are devoted to the diagnosis, showing the source and history of the disease and some of its symptoms, always focusing on how medicine approaches death and care for the dying. . . . In the last chapter, he turns his attention to therapeutic possibilities for medicine and raises a series of provocative questions, the most provocative of which is the last line of his book: Might it not be that only theology can save medicine?" —The Christian Century“The Anticipatory Corpse has the potential to become a classic in the field of medicine. . . . Bishop’s critique of contemporary medical practices and the fundamental philosophical questions underlying them are a stark reminder that the practices of medicine—many of them very good indeed—should not become ends in themselves.” —Ethics and Medicine

Read more less

Book SynopsisNow in its second edition, this is the only book on occupational therapy in oncology and palliative care. It has been thoroughly updated, contains new chapters, and like the first edition will appeal to a range of allied health professionals working with patients with a life-threatening illness.Trade Review"I would recommend this practical text to both students and professionals in the field." (British Journal of Occupational Therapy, 2007)Table of ContentsList of Contributors ix Foreword xi Derek Doyle, MD, OBE Preface xiii Acknowledgements xiv Introduction xvii 1 What is Cancer? 1 Jill Cooper 2 Challenges Faced by Occupational Therapists in Oncology and Palliative Care 11 Jill Cooper 3 Occupational Therapy Approach in Symptom Control 27 Jill Cooper 4 Occupational Therapy in Anxiety Management and Relaxation 41 Jill Cooper 5 Occupational Therapy in the Management of Breathlessness 51 Jill Cooper 6 Occupational Therapy and Cancer-Related Fatigue 61 Daniel Lowrie 7 Client-centred Approach of Occupational Therapy Programme – Case Study 83 Gemma Lindsell 8 Occupational Therapy in Paediatric Oncology and Palliative Care 107 Claire Tester 9 Occupational Therapy in HIV-related Cancers and Palliative Care 125 Will Chegwidden and Camilla Hawkins 10 Occupational Therapy in Neuro-oncology 145 Helen Barrett and Julie Watterson 11 Occupational Therapy in Hospices and Day Care 161 Anne Bostock, Shelley Ellis, Sara Mathewson and Lilias Methven 12 The Use of Creativity as a Psychodynamic Activity 175 Kathryn Boog 13 Measuring Occupational Therapy Outcomes in Cancer and Palliative Care 189 Gail Eva Appendices 201 Glossary 239 Glossary-Abbreviations 247 Index 249

Read more less

Book SynopsisAspects include psychosocial, spiritual and physical needs of the patient. Care and treatment are considered in a multidisciplinary and complementary way. Patient centered coverage considers treatment and care of the dying in all settings in major diseases. A highly integrated approach to pain and symptom control, including complementary therapies.Trade Review“However, I have found myself referring to this book in recent months far more than some of the bigger, more established, textbooks – and if the measure of a good book is how well-thumbed the pages become, then the author is on to a winner. (European Journal of Palliative Care, 2010) "The author's warmth, enthusiasm and concern for patients, their families and the professionals who care for them, combined with her scholarship, shine throughout this book. I recommend it to anyone with an interest in the care of people approaching the end of their lives in any setting." (Palliative Medicine, 2009) "This book will be a very welcome addition to the undergraduate curriculum for clinicians seeking to specialize in palliative care." (International Journal of Palliative Nursing, 2009) "There is a wealth of knowledge and experience for nursing students and newly qualified nurses seeking direction.... I would recommend this for reference on general medical wards and units where patients are receiving end of life care." (Nursing Standard, April 2009) Table of ContentsForeword x Contributors’ biographies xii Acknowledgements xv Dedications xvi 1 Historical and cultural perspectives on the evolution of palliative care 1 Key points 1 Introduction 2 Death in society 2 Dame Cicely Saunders and the origins of contemporary palliative care 3 An international perspective 6 Defi nitions 8 End-of-life care national programme 12 Culture 15 Service user involvement 18 Conclusion 19 Main implications for practice 19 Suggested further reading 19 2 Facing progressive disease and death 21 Key points 21 Psychosocial care 22 Partnership – maintaining the balance 23 Approaches to care 24 Giving the bad news 26 Denial/avoidance 29 Anger 32 Anxiety 33 Depression 33 Social pain 35 Conclusion 35 Main implications for practice 36 Suggested further reading 36 3 Communication skills 37 Key points 37 The impact of good communication 38 The impetus to teach communication skills 38 Facilitative styles 40 What Howard taught me about nursing dying people 45 Helpful strategies 46 Communicating with people with dementia 56 Conclusion 57 Main implications for practice 57 Suggested further reading 58 4 Self-awareness and self-care 59 Key points 59 Saving a life versus stealing a death 60 Facing death 62 Making space for decision-making 64 Self-awareness 66 How much did Nicky impact on my life? 68 Self-care 69 Main implications for practice 72 Suggested further reading 72 5 The sick role and partnership working 73 Key points 73 Introduction 73 Partnership care – what does it mean? 75 The sick role 76 Face-to-face partnership: attention to information giving 78 Written information 81 Decision aids 82 Special needs 83 Conclusion 83 Main implications for practice 83 Suggested further reading 84 6 Hope and spirituality 85 Key points 85 Introduction 86 Hope research 86 Spirituality 94 Religious practices concerned with death 100 Conclusion 104 Main implications for practice 104 Suggested further reading 105 7 Finding resilience together 106 Key points 106 Resilience in health care 107 Patient groups 108 Psychoneuroimmunology 108 The expert patient 111 Conclusion 114 Main implications for practice 115 Suggested further reading 115 8 Living with dying 116 Key points 116 Introduction 117 Social death 118 Vulnerable groups 119 Informational needs 121 Being heard and feeling supported 122 Companionship 123 Intimacy and caring 125 Health needs 125 Diffi cult thoughts and letting go 127 Conclusion 128 Main implications for practice 128 Suggested further reading 129 9 Bereavement 130 Key points 130 Defi nitions 131 Untimely deaths 131 Bereavement and health 132 Grief theorists 134 Mourning practices in different cultures 141 Bereaved children 143 Old age 143 Bereavement and dementia 143 Solitary grief 144 Bereavement services 145 Conclusion 148 Main implications for practice 149 Suggested further reading 149 10 Pain and other major symptoms: an integrated approach 150 Key points 150 Pain theories 152 Psychological approaches 154 Physical approaches 158 Complementary therapies 163 Creative therapies 170 Conclusion 172 Main implications for practice 172 Suggested further reading 172 11 The history of the use of strong opioids for cancer pain 173 Key points 173 Studies and narratives 174 WHO analgesia ladder 177 Side effects 182 Alternative routes for administration of strong opioids 184 Conclusion 187 Main implications for practice 188 Suggested further reading 188 12 Concordance and advance care planning 189 Key points 189 Patient-centred care: concordance 190 Advance care planning 192 The Mental Capacity Act 2005 196 Main implications for practice 196 Suggested further reading 197 13 Eleven prevalent symptoms 198 Key points 198 History 198 Pain 199 Nausea and vomiting 206 Constipation 212 Diarrhoea 216 Anorexia 218 Fatigue 223 Breathlessness 227 Confusion 232 Insomnia 236 Anxiety 238 Depression 240 Conclusion 244 Main implications for practice 244 Suggested further reading 245 Addendum: Doloplus 2 Scale 245 14 Palliative issues in some common diseases 248 Key points 248 Gold standard for all 248 Doing the right thing at the right time 249 Conclusion 280 Main implications for practice 280 Suggested further reading 280 Contents ix 15 Palliative emergencies 282 Key points 282 Palliative emergencies 282 Other symptoms 286 Main implications for practice 287 Suggested further reading 287 References 288 Index 315

Read more less

Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181

Read more less

Book SynopsisViewing death as a natural event, hospices seek to enable people approaching mortality to live as fully and painlessly as possible. Award-winning medical historian Emily K. Abel provides insight into several important issues surrounding the growth of hospice care. Using a unique set of records, Prelude to Hospice expands our understanding of the history of US hospices.Trade Review"For those doing research on death and dying, this book is a must read; it provides a quick and easy-to-understand testimony from people experiencing hospice. Readers may gain inspiration on how to make death a more comfortable process for their patients, their families, or themselves." * Choice *"Emily Abel is a distinguished scholar of medicine, nursing, and caregiving. Her latest book, Prelude to Hospice, offers powerful testimony from patients at the moment when many realized that medical progress had limits, and that technology sometimes needs to give way to care. Her portrayal of Florence Wald shows her deep understanding of the changing role of nurses in the second half of the twentieth century. Anyone who wants to understand the origins of hospice in the United States, the challenges of caregiving, and the ways that today's dilemmas at the end of life were present at the origins of the palliative care movement should read her compelling new book." -- Carla C. Keirns, MD, PhD * historian and palliative care physician *"Emily Abel is one of the most respected, influential historians working on family care giving and now, more recently, death and dying." -- Patricia D'Antonio * director, Barbara Bates Center for the Study of the History of Nursing *"If you’re looking for a case study on a dysfunctional research and clinical team, hamstrung by hierarchy and hobbled by boundary violations, this book will leave your mouth ajar." * The Gerontologist *"Partly inspired by Cicely Saunders, [Florence Wald] knew there was a better way to care for the terminally ill and their families. But it was anything but an easy road. This book describes the personal, professional, institutional and societal hurdles she came up against." * IAHPC Newsletter/HospiceCare.com *"New Scholarly Books: Weekly Book List, June 8" by Nina C. Ayoub * Chronicle of Higher Education *“Abel’s book is a timely portrayal of one of the founders of the modern hospice movement. In learning about Ms. Wald, it is our responsibility as the reader to take the good, learn from the bad, and continue to build upon and evolve Ms. Wald’s legacy to embrace suffering, loss, and hurt with compassion and empathy.” * Omega *Table of ContentsContents Introduction 1 Setting the Stage 2 Doctor and Nurse 3 Caring across Cultures 4 Hope, Blame, and Acceptance 5 Making Sense of the Findings Conclusion

Read more less

Book SynopsisPalliative Care Nursing at a Glance is the perfect companion for nursing students, health and social care practitioners, and all those involved in palliative care delivery, both in the clinical and home setting.Table of ContentsContributors viii Preface xi List of Abbreviations xii About the companion website xiv Part 1 Introduction 1 1 Setting the scene 2Christine Ingleton 2 Managing the needs of family caregivers 4Philip J. Larkin 3 Principles of effective communication 6Alison Pilsworth and Martyn Geary 4 Advance care planning 8Christine Ingleton 5 Delivering palliative approaches in different care contexts 10Christine Ingleton 6 Integrated care pathways 12Christine Ingleton Part 2 Clinical applications 15 7 Principles of symptom management 16Philip J. Larkin 8 Best practice in pain management 18Pat Schofield 9 Managing pain 20Pat Schofield 10 Complex pain problems and treatment challenges 22Pat Schofield 11 Managing nausea and vomiting 24Jackie Robinson 12 Managing constipation 26Philip J. Larkin 13 Understanding depression 28Mari Lloyd-Williams 14 Understanding delirium and confusion 30Peter Lawlor and Katie Marchington 15 Managing myoclonus, tremors and muscle spasms 32Jackie Robinson 16 Managing lymphoedema 34Lorna Malcolm 17 Managing hypercalcaemia of malignancy 36Geraldine Tracey 18 Assessing and managing oral hygiene 38Philip J. Larkin 19 Caring for people with dysphagia 40Philip J. Larkin 20 Managing breathlessness 42Liz Darlison 21 Cough and haemoptysis 44Jackie Robinson 22 Explaining and exploring cachexia, anorexia and fatigue 46Cathy Payne 23 Continual subcutaneous infusion: using a syringe pump 48Philip J. Larkin 24 Emergencies: superior vena cava obstruction 50Joanna De Souza 25 Emergencies: haemorrhage 52Joanna De Souza 26 Emergencies: malignant spinal cord compression 54Joanna De Souza 27 Chemotherapy 56Clare Warnock 28 Radiotherapy 58Clare Warnock Part 3 Palliative care for all 61 29 Palliative care approaches in heart failure 62Gill Horne and Sarah Human 30 Palliative care approaches to chronic obstructive pulmonary disease 64Clare McVeigh 31 Palliative care approaches in motor neurone disease 66David Oliver 32 Palliative care approaches for people receiving dialysis 68Rachel Lewis and Helen Noble 33 Palliative care approaches for people with progressive kidney disease: a non-dialytic pathway 70Helen Noble and Rachel Lewis 34 Care of the patient following a stroke 72Tony Ryan 35 Principles of palliative care for older people 74Amanda Clarke and Paula Smith 36 Care of the person with dementia 76Tony Ryan 37 Care for people with mental illness 78Ann Sheridan 38 Care for people with learning disabilities 80Dorry McLaughlin 39 Care for the homeless person 82Brian Nyatanga 40 Care for people in prison 84Mary Turner and Marian Peacock Part 4 Professional roles in palliative care 87 41 Understanding rehabilitation in palliative care 88Cathy Payne 42 The social worker 90Niamh Finucane 43 The occupational therapist 92Deirdre Rowe 44 The physiotherapist 94Helena Talbot-Rice 45 Complementary and supportive therapy 96Philip J. Larkin 46 The clinical nurse specialist 98Liz Bryan 47 The advanced nurse practitioner 100Geraldine Tracey 48 The nurse consultant 102Jo Hockley 49 The chaplain 104Mark Cobb 50 The medical consultant 106Bill Noble Part 5 Ethical challenges in palliative care practice 109 51 Stress in palliative care nursing 110Liz Bryan 52 Responses to euthanasia and physician-assisted suicide 112Joanna De Souza 53 Withholding and withdrawing life-sustaining care 114Joanna De Souza 54 Recognising and planning for the terminal phase of life 116Pauline Ui Dhuibhir Part 6 Managing end-of-life care 119 55 Changing goals of care at the end of life 120Deborah Hayden 56 Managing respiratory secretions at the end of life 122Jackie Robinson 57 Care at the moment of death 124Michael Connolly 58 Spiritual perspectives at the end of life 126Mark Cobb 59 Bereavement 128Pam Firth Index 131

Read more less

Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.

Read more less