Palliative medicine Books
HarperCollins Publishers With the End in Mind How to Live and Die Well
Book SynopsisTHE SUNDAY TIMES BESTSELLERImpossible to read with dry eyes or an unaltered mindset' Sunday TimesIlluminating and beautiful' Cathy RentzenbrinkWhat if everything you thought you knew about death was wrong?How should we prepare for the facts of dying and saying our goodbyes?And what if understanding death improved your life?By turns touching and tragic, funny and wise, With the End in Mind brings together Kathryn Mannix ' s lifetime of medical experience to tell powerful stories of life and death.Trade Review‘It is incredibly moving, of course, but what it isn’t is miserable. Yes this is a book about death, but it is also a book about joy. There aren’t all that many books that change the way you see the world. This book really might. It will make you want to do a better job of loving and living. It will make you want to be kinder. And it will make you want to cherish every precious moment of your precious life.’Sunday Times ‘Extraordinary and profoundly moving. … Any reader will come away with the wish that they will be cared for at the end by someone with Mannix’s imaginative sympathy and matter-of-fact generosity of perception’Rowan Williams, New Statesman ‘Illuminating and beautiful … I shed a few tears but it’s not gut wrenching and Mannix weaves the light and dark strands of her experience with finesse. It’s essential reading for anyone who will encounter death, and that means all of us.’Cathy Rentzenbrink, The Times ‘I got to the end of Kathryn Mannix’s book with just one thought – I wish I’d been a palliative consultant … A reminder that talking about death is an Act of Love’Greg Wise ‘In the last few years, there has been a crowd of books by doctors, scientists and writers that have sought to show us different, kinder ways of ending: Atul Gawande, Oliver Sacks, Henry Marsh… the list is long. Now Kathryn Mannix joins this distinguished group. Mannix’s aim is to shed a soft, clear light on a subject too often avoided. Mild, tender and conciliatory, I would like her to be my compassionate, wise doctor when I lie dying.’Observer
£7.99
Oxford University Press Oxford Handbook of Oncology 4e Flexicover Oxford
Book SynopsisNow fully revised and in its fourth edition, the Oxford Handbook of Oncology has been the essential go-to guide for students and practitioners in oncology for over a decade. The scientific basis and diagnosis of cancers is covered, as well as drugs, biomarkers, and the presentation and psychosocial aspects of oncology. Concise, practical, and comprehensive, there is no better companion for both common conditions and challenging emergencies.The field of oncology has surged forward since the last edition was published and the Oxford Handbook of Oncology has been fully revised and updated to reflect these recent advances so you can be sure that the vital information you need is in your hands. This handbook incorporates changes such as the understanding of the science of cancer, novel therapies in breast, lung, renal, and melanoma, molecular sub-classification of common solid cancers, personalized therapy approaches, new agents in hard to treat cancers, the benefits of new technologies in Trade ReviewWritten by experts in the field to ensure that it is grounded in real life clinical practice, this Handbook provides a concise guide to all aspects of oncology for all students, nurses, and junior faculty responsible for the care of cancer patients, while also providing further reading and highlighting areas of controversy for those who need a more detailed understanding. * Anticancer Research *Table of Contents1. Multidisciplinary approach to cancer ; 2. Aetiology and epidemiology ; 3. Genetics of cancer ; 4. Surgical oncology ; 5. Principles of radiation oncology ; 6. Principles of chemotherapy ; 7. Principles of symptom control in palliative care ; 8. Late effects of radiotherapy and chemotherapy ; 9. Hormone therapy ; 10. Biological and targeted therapies ; 11. Clinical trials ; 12. Cancer prevention ; 13. Population screening for cancer ; 14. Thoracic cancer ; 15. Breast cancer ; 16. Colorectal cancer ; 17. Anal cancer ; 18. Upper gastrointestinal cancer ; 19. Endocrine cancers ; 20. Genitourinary cancers ; 21. Gynaecological cancer ; 22. Head and neck cancer ; 23. Tumours of the central nervous system ; 24. Skin cancer ; 25. Haematological malignancies ; 26. Bone and soft tissue malignancies ; 27. Cancer of unknown primary site ; 28. Paraneoplastic syndromes ; 29. AIDS-related malignancies ; 30. Childhood cancers presenting in adulthood ; 31. Overview of Acute Oncology ; 32. Spinal cord compression and bone marrow suppression ; 33. Superior vena cava obstruction and raised intracranial pressure ; 34. Stridor ; 35. Thromboembolic and cardiac emergencies ; 36. Obstruction ; 37. Biochemical crises ; 38. Complications of long-term central venous lines and chemotherapy extravasation ; 39. Novel therapeutic strategies ; 40. Gene therapy and immunotherapy for cancer ; 41. Biomarkers and Cancer ; Appendices
£36.09
Scribner Book Company This Is Assisted Dying: A Doctor's Story of
Book Synopsis
£18.00
Oxford University Press Oxford Textbook of Spirituality in Healthcare
Book SynopsisThe relationship between spirituality and healthcare is historical, intellectual and practical, and it has now emerged as a significant field in health research, healthcare policy and clinical practice and training. Understanding health and wellbeing requires addressing spiritual and existential issues, and healthcare is therefore challenged to respond to the ways spirituality is experienced and expressed in illness, suffering, healing and loss. If healthcare has compassionate regard for the humanity of those it serves, it is faced with questions about how it understands and interprets spirituality, what resources it should make available and how these are organised, and the ways in which spirituality shapes and informs the purpose and practice of healthcare? These questions are the basis for this resource, which presents a coherent field of enquiry, discussion and debate that is interdisciplinary, international and vibrant.There is a growing corpus of articles in medical and healthcare journals on spirituality in addition to a wide range of literature, but there has been no attempt so far to publish a standard text on this subject. Spirituality in Healthcare is an authoritative reference on the subject providing unequalled coverage, critical depth and an integrated source of key topics. Divided into six sections including practice, research, policy and training, the project brings together international contributions from scholars in the field to provide a unique and stimulating resource.Trade ReviewThis book is remarkable in its range and in its depth. The contributors are all leading experts in their particular fields, and anyone who masters the richness and detail of the 64 chapters will have acquired a genuinely comprehensive knowledge of the increasingly important area of the intersection between spirituality and healthcare. * Brendan Callaghan, SJ, from The Way, Vol. 55, No. 1, Jan 2016 *Table of ContentsForward ; Preface ; I Traditions ; 1. Medicine and Religion: A historical perspective ; 2. Buddhism: Perspectives for the contemporary world ; 3. Chinese Religion: Taoism ; 4. Christianity ; 5. Feminist Spirituality ; 6. Indian Religion and the Ayurvedic Tradition ; 7. . The Western Humanist Tradition ; 8. Indigenous Spiritualties ; 9. Islam ; 10. Judaism ; 11. 'New Age' Spirituality ; 12. Philosophy ; 13. Secularism ; 14. Sikhism ; II Concepts ; 15. Healthcare spirituality: A question of knowledge ; 16. Personhood ; 17. Belief ; 18. Hope ; 19. Meaning Making ; 20. Compassion: Luxury or Necessity? ; 21. Dignity: A Novel Path into the Spiritual Landscape of the Human Heart ; 22. Cure and Healing ; 23. Suffering ; 24. Ritual ; 25. Culture and Religion ; III Practice ; 26. Models of Spiritual Care ; 27. Healthcare Chaplaincy ; 28. Complementary, Alternative and Integrative Medicine ; 29. Restorative Medicine ; 30. Nursing ; 31. Faith Community (Parish) Nursing ; 32. Psychiatry and Mental Health Treatment ; 33. Social Work ; 34. Care of Children ; 35. Care of elderly people ; 36. Palliative Care ; 37. Spirituality and the arts: Discovering what really matters ; 38. Care of the Soul ; 39. Counselling ; 40. Dignity Conserving Care ; 41. Pastoral Theology in healthcare settings: Blessed irritant for holistic human care ; 42. Next Steps for spiritual assessment in healthcare ; IV Research ; 43. Methodology ; 44. Measures ; 45. On the links between religion and health: What has empirical research taught us? ; 46. Quality of Life ; 47. Cognitive Sciences: A perspective on spirituality and religious experience ; 48. Spiritual Well-Being Scale: Mental and Physical Health Relationships ; 49. Prayer and Meditation ; 50. Resiliency and Coping ; 51. Spiritual experience, practice and community ; 52. Policy ; 53. Healthcare Organizations: Corporate spirituality ; 54. Utility and Commissioning of Spiritual Carers ; 55. Social Care ; 56. Curriculum Development, Courses and CPE ; 57. Competences in spiritual care education and training ; 58. Guidance from the Humanities for Professional Formation ; 59. Training and Formation: A case study ; 60. Interdisciplinary teamwork ; 61. Ethical Principles for Spiritual Care ; VI Challenges ; 62. Contemporary Spirituality ; 63. The Future of Religion ; 64. The Future of Spirituality and Healthcare
£104.70
Health Professions Press,U.S. Transitions in Dying and Bereavement: A
Book SynopsisIn the new edition of this unique professional resource, hospice and palliative care team members—especially social workers and counselors—will find the empirical evidence and compassionate advice they need to provide excellent holistic psychosocial care to individuals who are dying or bereaved. Encompassing the journey through diagnosis, treatment, recurrence, palliative care, and bereavement, this guide describes appropriate interventions for each of the key transitions that more dying patients and their families face. Included throughout are personal reflections and experiences of social workers, counselors, and other team members, common major challenges to the healthcare team, and important considerations for each transition.Trade ReviewWendy Wainwright, M.Ed., has been working in the area of psychosocial palliative care locally, regionally, and nationally for over 30 years. She has been based at Victoria Hospice since 1983, beginning as a community counselor, then bereavement coordinator and manager of counseling services before becoming Director of Clinical Services. She is administrator for nursing and psychosocial services, overseeing a staff of RNs, LPNs, nursing unit assistants, counselors, social workers, and a spiritual care coordinator who work in cooperation with other clinical and non-clinical employees and volunteers to serve both patients and families from registration to bereavement. She has a bachelor's degree in sociology and a master's of education in counseling psychology. She has developed staff and volunteer training programs for VHS and educational materials for patients, families, and professionals. Ms. Wainwright is the author of numerous professional journal articles on counseling activities, child and parent support groups, and young people and death. Marney Thompson, M.A., has worked in various roles at Victoria Hospice since 1990, including as a volunteer, a group facilitator, and counsellor, and is currently Bereavement Program Coordinator. She has a bachelor's degree in child and youth care and a master's degree in human and social development. An experienced conference presenter of psychosocial palliative topics, she is also the author of various publications on bereavement published by the Victoria Hospice Society. Victoria Hospice is a relatively large hospice palliative care and bereavement program in a community of approximately 375,000 (Victoria, British Columbia).Founded in 1980, it has a staff of approximately 116 full-time, part-time, and casual (on-call) staff and more than 300 active volunteers. It is a registered charity that provides end-of-life care, education, and research focused on palliative treatment. Its nurses, counselors, spiritual caregivers, physicians, and trained volunteers provide comfort for the patient and support for the family rather than a cure for progressive and life-limiting illness. Care is offered in patients' homes, within a 17-bed in-patient unit, and as specific medical consultation to patients in other healthcare facilities. Victoria Hospice also offers bereavement support to families for up to one year following a death. Mission: To enhance the quality of life for those facing advancing illness, death, and bereavement through skilled and compassionate care, education, research, and advocacy.
£52.00
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£35.28
Oxford University Press Inc Intentionally Interprofessional Palliative Care
Book SynopsisStrong professional identities are key to healthy interprofessional teams. When each professional knows their distinctive role within the team, misunderstandings and defensiveness diminish and curiosity and supportiveness about the others'' unique contributions blossoms. This book explores the state of the art related to interprofessional palliative care practice and education and focuses on the unique synergy of interprofessional palliative care teams. It explores both the unique specialty contributions of each profession and the shared specialty palliative care activities that all professions on the team are expected to perform. With chapters written and edited by chaplains, nurses, physicians, social workers, and other professionals, this book includes in-depth literature review, theoretical frameworks for research, education, and practice, practical guidance for implementing educational and clinical program development, and inspiring descriptions of an aspirational future for intentionally interprofessional palliative care. Spanning three comprehensive sections, the first provides an overview of the discipline of palliative care, terminology, roles of team members, and theories of interprofessional collaboration. The second explores interprofessional palliative care education, beginning with theory and evidence and then application in academic settings, clinical learning environments, and continuing education. The third examines interprofessional practice in a variety of settings including hospice, hospital, outpatient clinics, and home.Readers from any profession or discipline who are interested in the essence of interprofessional education and practice will find value in the interprofessional approach to palliative care. Professors and teachers of pre-licensure health professions, graduate level courses, and continuing education courses will find Intentionally Interprofessional Palliative Care to be a valuable resource, both for profession-specific and interprofessional learner cohorts.
£55.00
HarperCollins Publishers Inc No Good Deed
Book Synopsis
£14.24
Oxford University Press Care of the Imminently Dying
Book SynopsisPalliative care is an essential element of our health care system and is becoming increasingly significant amidst an aging society and organizations struggling to provide both compassionate and cost-effective care. Palliative care is also characterized by a string interdisciplinary approach. Nurses are at the center of the palliative care team across settings and populations. The seventh volume in the HPNA Palliative Nursing Manuals series, Care of the Imminently Dying provides an overview of symptom management when a patient is reaching the end of their life. This volume covers delirium and the advantages of early diagnosis, determining the presence of dyspnea, death rattle, or cough, urgent syndromes that may appear the end of life, palliative sedation, and the withdrawal of life-sustaining therapies. The content of the concise clinically focused volumes in the HPNA Palliative Nursing Manuals series provides a quick-reference in daily practice and is an ideal resource for nurses preparing for certification exams.Table of ContentsChapter 1 ; Delirium ; Debra E. Heidrich and Nancy K. English ; Chapter 2 ; Dyspnea, Death Rattle, and Cough ; Deborah Dudgeon ; Chapter 3 ; Urgent Syndromes at the End of Life ; Barton T. Bobb ; Chapter 4 ; Sedation for Refractory Symptoms ; Patti Knight, Laura A. Espinosa, and Bonnie Freeman ; Chapter 5 ; Withdrawal of Life-Sustaining Therapies: Mechanical Ventilation, Dialysis, and Cardiac Devices ; Margaret L. Campbell and Linda M. Gorman ; Chapter 6 ; Self-Assessment Test Questions ; Judith A. Paice
£37.34
Oxford University Press Dignity Therapy
Trade ReviewThis is truly a remarkable book - it simultaneously brings together the best we know of the science of palliative care with the essence and best of compassionate care. * Jimmie C. Holland, Memorial Sloan-Kettering Cancer Centre *For all health professionals who find themselves struggling to help patients face the complex process of dying, this book is both a detailed roadmap and an extraordinary guide that dispels the myth that 'there is nothing else they can do.' Most importantly, the book sets a high standard for creating an environment that enables patients' exploration of personhood and suffering and enhances their dignity in the final days of their lives. * Kathleen M. Foley, Memorial Sloan-Kettering Cancer Centre *[This book] gives us all clear guidance to help our patients and their families to make meaning of their lives in a consistent and standardized manner. Because it will help us to better help our patients and their families, his work is a gift to palliative care clinicians everywhere. * Diane E. Meier, Director, Hertzberg Palliative Care Institute and Mount Sinai School of Medicine *Dignity Therapy is a rich blend of a deep understanding of the existential concerns of the seriously ill and dying, and an incredibly practical resource for clinicians. * Betty Ferrell, City of Hope Medical Centre *This is not your usual medical text - it is written with profound sensitivity, humanity, and wisdom that is both inspiring and practical. * Nathan I. Cherny, Shaare Zedek Medical Centre, Israel *In this elegant book, Harvey Chochinov shows how the interrelatedness of one human being with another affects an individual's intrinsic sense of dignity, and he examines the implications of this on the care environment. Every palliative care service will find this book enriching and will look with refreshed eyes on the work of providing care to others. * Baroness Ilora Finlay of Llandaff, Cardiff University, and Member, House of Lords, UK *[It] offers unique insight into the process of psychological dying and the opportunity for growth. I recommend it to anyone who is working in the helping professions and has the unique opportunity to be present as individuals create their own last chapter. * J. Donald Schumacher, National Hospice and Palliative Care Organization *This book is valuable to clinicians from all settings and fields, those involved in medical and nursing education, and those undertaking research to improve patient and family experience and care. * Irene J. Higginson, King's College, London *Dr. Chochinov's Dignity Therapy provides a practical way to implement one of the essential elements of any healthcare system and any relationship between a clinician or caregiver and patient who is seriously ill honouring the dignity of each and every individual. His book provides practical, evidence-based, yet sacred, interventions that allow for healing in the midst of suffering. * Christina M. Puchalski, The George Washington University School of Medicine and Health Sciences *Whether you are a professional who, like me, works in palliative care or in another setting, I recommend Chochinov's book as one to put on your reading list for the coming year. sDignity Therapy is an engaging read distinguished by its depth of insight and vibrant perspective. sDignity Therapy: Final Words for Final Days is a comprehensive, well-written, and engaging book, which provides a clear background and implementation guide for Dignity Therapy. It would probably be most useful for palliative care and hospice providers and for those of us in palliative care who are in a position to either implement or advocate for the implementation of a Dignity Therapy program. * Mercedes Pacheco, Journal of Palliative Medicine *What I like about it particularly is that it presents a subtle and powerful argument against euthanasia without in any way being overtly religious. * Francis Phillips, Catholic Herald d *Table of ContentsChapter 1: Dignity and the End of Life ; Why Study Dignity? ; Dignity and Empirical Research ; The Model of Dignity in the Terminally Ill ; Illness-Related Concerns ; - Level of Independence ; - Symptom Distress ; Dignity-Conserving Repertoire ; - Dignity-Conserving Perspectives ; - Dignity-Conserving Practices ; Social Dignity Inventory ; - Privacy Boundaries ; - Social Support ; - Care Tenor ; - Burden to Others ; - Aftermath Concerns ; References ; Chapter 2: Moving Dignity into Care ; How the Dignity Model Informs Dignity Therapy ; - Form ; - Tone ; - Content ; Dignity Therapy Revealed ; The First Clinical Trial is Published ; What about Families? ; Gold Standard Evidence ; Time to Move On ; References ; Chapter 3: Introducing Dignity Therapy to Patients and Families ; Patient Selection for Dignity Therapy ; Who Should Not Take Part in Dignity Therapy? ; Chapter 4: Doing Dignity Therapy ; Setting up the Dignity Therapy Session ; The Role of the Dignity Therapist ; References ; Chapter 5: The Generativity Document ; The Rationale for Editing Dignity Therapy Transcripts ; Transcribing the Audio-Recorded Interview ; Editing the Verbatim Transcript ; - Cleaning Up the Transcript ; - Clarifying the Transcript ; - Finding a Suitable Ending ; - The Patient Has the Final Say ; Chapter 6. From Start to Finish ; Chapter 7. Moving Forward
£68.40
Oxford University Press The Weeping Willow
Book SynopsisRiveting in their emotional clarity and utterly jargon free, these 30 stories from real life penetrate how we grieve and how we can help those who grieve- whether the griever is oneself, someone we care about, or a client or patient. Lynne Dale Halamish, an internationally respected grief counsellor with more than 20 years'' experience, and Doron Hermoni, a family physician, researcher, and educator, present vignettes from practice that show how death- lingering, unexpected, violent, or self-inflicted- and the loss of a relationship- to oneself or with a child, sibling, parent, mate, grandparent, or friend- give life to grief, together with the process by which each person fully encounters his or her grief. Each story is no more than two or three pages, and the authors follow each one with a short summary of its teachings and a selection of annotated recent references for those who wish to read more about a topic. Looked at in relief, the stories reveal a master grief counsellor at worTable of Contents1. You Dont Know Till You Ask: Jumping to Conclusions, Speaking to Children ; 2. The Weeping Willow: Children dealing with impending death ; 3. Who Will Go with Me to Torah?: Security following parental death ; 4. The Black Place: Talking about fears ; 5. The Tree: It is normal to grow after trauma ; 6. Give Me Permission to Die: Talking openly about death ; 7. The Silent Stage: Encouraging the bereaved to express themselves ; 8. Where is safe?: Repercussions of sibling death ; 9. Decision to live: Important decisions need conscious thought ; 10. Who's Next?: Taking children to funerals: when, what age, how ; 11. The Worst Death: Difference between losing a parent and losing a child ; 12. The last to know: The individuals right to know ; 13. What is freedom?: The unique perspective of the individual ; 14. Mailman: Learn and pass the knowledge on ; 15. I want attention: Classroom intervention after suicide ; 16. You Cannot Prepare: Rehearsal for grief and romanticizing death ; 17. I Can't Tell You: Getting someone to tell you something ; 18. Letting Go: Tacking chances with communication ; 19. What is the Gain?: Cost vs. Benefit ; 20. Body Language: The Clarity of Body Language ; 21. Harps in Heaven Accordions in Hell: Changing Perceptions ; 22. Waiting to Die: The Timing of Death ; 23. Where Did You Get My Number: Identifying the bereaved ; 24. Better to Remember Him as He Was: Who should be part of the mourning rituals ; 25. Waiting for Elijah: Normal grief responses ; 26. What Not to Say: How to act around grievers ; 27. What's Yours and What Isn't: Empathy, Boundaries, Identification ; 28. Laugh and the World Laughs: When you are dying, you are still alive ; 29. The Minefield: Normal Grief ; 30. I Want to Finish His Life for Him: Identification of bereaved siblings with the deceased
£25.64
Oxford University Press Paediatric Intensive Care
Book SynopsisOne in 70 children are admitted to paediatric intensive care (PIC) at some time during childhood. Most paediatric junior doctors will rotate through PIC, and will be involved in organising acute intensive care for critically ill children. The range of children and their illnesses going through PIC is vast, making it a hugely diverse specialty. A critically ill child will end up there regardless of their underlying disease, and as a result consultants in PIC must be true generalists and need to acquire knowledge and skills in all areas of paediatrics, as well as acquiring significant knowledge of anaesthesia and surgery. From setting up the ventilator, to managing low cardiac output, Paediatric Intensive Care gives practical and realistic advice for children''s doctors and nurses in intensive care. Information is presented in easily-accessible ''5 minute chunks'' to enable you to quickly get the answers you need, with extensive cross-referencing ensuring that different aspects of a particular clinical problem are fully covered. With detailed answers to specific problems and expert guidance on how to manage the complex issues faced in PIC, this handbook is an indispensible guide for all those who provide care to sick children.Trade ReviewThis very condensed but detailed handbook describes in its 43 chapters the anatomy, pathophysiology and treatment of conditions necessitating intensive medical care in neonates, infants and children... As the editors write this book is not just for intensivists, but should help also paediatric clinicians. * Inbar Kushnir, Editorial Manager; PER Volume 15 no.2 *Table of ContentsGENERAL INTRODUCTION TO PAEDIATRIC INTENSIVE CARE; ORGAN SYSTEM SUPPORT AND RELATED PRACTICAL PROCEDURES; SPECIFIC SPECIALTIES; COMPASSIONATE AND FAMILY-ORIENTATED CARE
£58.90
Oxford University Press Practical Management of Complex Cancer Pain
Book SynopsisThis new edition of the Practical Management of Complex Cancer Pain has been fully updated and expanded, with five new chapters on novel interventional techniques in cancer pain amelioration. The book provides advice on advanced pain management, emphasising the suitability and selection of patients for different invasive and complex procedures based on patient history. Case histories are included throughout the text to give the reader insight into the complexities of holistic management, with pain being only one component in the distress that cancer causes for both patients and families. The book also covers cancer pain management for patients in a community setting, and the collaboration between pain and palliative medicine. Concise, practical, and evidence-based, this guide is essential reading for all pain and palliative care specialists in the community, hospital, and hospice settings.Trade ReviewReview from previous edition Crisp and to the point. * Dr. Roger Woodruff, IAHPC Book Reviews *Winner of the BMA Medical Book of the Year Award 2015Table of ContentsA. Introduction and clinical cases 1: Michael Bennett: Definition and pathophysiology of complex cancer pain 2: Michael Bennett and Paul Farquhar Smith: Evidence based pharmacological approaches to management 3: Mahesh Choudhary: Neurolytic blocking agents 4: Paul Eldridge and Deepti Bhargava: Role of surgery in cancer pain management 5: Chinnamani Eswar: Oncological management of cancer pain 6: Arun Bhaskar: Pelvic pain 7: Manohar Sharma, Sanjeeva Gupta, and Lakshmi Vas: Chest wall pain from mesothelioma or lung cancer 8: Lakshmi Vas: Unilateral upper limb plexopathy pain caused by cancer 9: Kate Marley: Unilateral lower limb plexopathy related cancer pain 10: Hemkumar Pushparaj: Upper GI pain from invasive pancreatic cancer 11: Manohar Sharma and Sanjeeva Gupta: Multiple bone metastases/bone fracture related 12: JJohn Titterington, Louise Lynch, and Hemkumar Pushparaj: Intrathecal pump case history 13: Kate Marley and Manohar Sharma: Cancer survivor with pain progression B. Details of interventional techniques 14: Samyadev Datta: Basic procedure safety and patient considerations for cancer pain interventions 15: Dhanalakshmi Koyyalagunta and Arun Bhaskar: Sympathectomy for cancer pain 16: Kumar S V Das and Shubhabrata Biswas: Kyphoplasty and vertebroplasty for spinal metastasis pain 17: Manohar Sharma and Ashwin Vishwanathan: Cervical cordotomy (Fluroscopic and CT Guided technique) 18: John Titterington: Intrathecal drug delivery for cancer pain 19: Mahesh Chaudhari: Spinal neurolysis 20: Manohar Sharma and Lakshmi Vas: Interventions for head and neck cancer related pain 21: Paul Eldridge and Deepti Bhargava: Neurosurgical techniques for cancer pain 23: Dmitry Kruglov and Simon Thomson: Spinal cord stimulation for cancer related pain 24: Gaurav Sundar: Radiological tumour ablative techniques 25: Erlick Pereira and Abteen Mostafi: Radiofrequency brain lesioning for cancer related pain 26: Samyadev Datta: Radiofrequency ablation technique for metastatic spine disease 27: Mathew Brown: The role of High Intensity Focused Ultrasound (HIFU) in cancer pain management C. Collaboration between services 28: Kate Marley and Hemkumar Pushparaj: Role of collaboration between pain medicine and palliative care 29: Mathew Brown: Pain in cancer survivors 30: Eugene Choi, Priya Krishaswamy, and Umesh K. Gidwani: Control of complex pain at the end of life in hospice or community setting
£63.11
Oxford University Press, USA Care of the Dying
Book SynopsisEven for the most experienced healthcare professional, managing the last few days of life can be difficult. This unique book provides guidelines for the care of the dying based on the Liverpool Integrated Care Pathway for the Dying Patient (LCP).Trade ReviewReview from previous edition This is a book that should be widely read. As its title suggests, it provides the tools to make the sort of changes that make a difference. It would be of value to most hospital doctors, general practitioners in the UK and contains much interest for Europe and North America GPs and is packed with useful information . . . I would highly recommend this book to all those professionals involved in looking after dying patients. * European Journal of Cancer Care, 13 *This book deserves to be widely read and will hopefully lead to the more widespread use of the Pathway, or locally adapted versions of it, both within and without specialist palliative care units. * IAHPC Website *Table of ContentsIntroduction ; 1. What about Care Pathways? ; 2. What is the Liverpool Care Pathway for the dying patient (LCP)? ; 3. Symptom control in care of the dying: how can the Liverpool Care Pathway (LCP) influence symptom control?, How do you manage nausea and vomiting in the dying patient? and Comfort measures in the last hours or days of life ; 4. Ethical issues in care of the dying ; 5. Communication in care of the dying ; 6. Spiritual/religious issues in care of the dying ; 7. Supporting family and friends as death approaches and afterwards ; 8. Supporting children as death approaches and afterwards ; 9. Induction and implementation of the Liverpool Care Pathway for the dying patient (LCP) ; 10. Dissemination and sustainability strategy for the LCP programme - incorporating a model for national audit for care of the dying ; 11. International development of the LCP ; Appendix 1 - The Liverpool Care Pathway for the Dying Patient (LCP) Core Documentation ; Appendix 2 - Ongoing assessment of the plan of care ; Appendix 3 - Completed pathway ; Appendix 4 - Coping with dying leaflet
£48.45
Oxford University Press Individual MeaningCentered Psychotherapy for Patients with Advanced Cancer
Book SynopsisThe importance of spiritual well-being and the role of meaning in moderating depression, hopelessness and desire for death in terminally-ill cancer and AIDS patients has been well-supported by research, and has led many palliative clinicians to look beyond the role of antidepressant treatment in this population. Clinicians are focusing on the development of non-pharmacologic interventions that can address issues such as hopelessness, loss of meaning, and spiritual well-being in patients with advanced cancer at the end of life. This effort led to an exploration and analysis of the work of Viktor Frankl and his concepts of logotherapy, or meaning-based psychotherapy. While Frankl''s logotherapy was not designed for the treatment of patients with life-threatening illnesses, his concepts of meaning and spirituality have inspired applications in psychotherapeutic work with advanced cancer patients, many of whom seek guidance and help in dealing with issues of sustaining meaning, hope, and uTrade ReviewThis is a priceless resource for those working with patients with advanced cancer and other terminal illnesses. It expertly applies scientifically validated existential treatments in an accessible workbook format for busy practicing clinicians... Unlike so much literature on existential psychotherapy with its grand theories, this book shows how to work with dying patients step by step. Readers will be rewarded with a new-found confidence when working with dying patients... 5 stars! * Doody's Notes *Few would argue with the importance of helping patients sustain a sense of meaning, particularly in the last months of life as they confront death... Well, that's what these little treatment manuals are all about. A carefully developed and structured 8-week psychotherapeutic intervention, for individuals or groups, shown to be of benefit in randomized clinical trials... I was impressed by the potential value of these interventions. In the palliative care setting they could be facilitated by experienced nurses, social workers, counsellors, and pastoral care workers as well as physicians. * IAHPC News *Table of ContentsIntroduction: Treatment Overview ; a. General Guidelines ; b. Intervention Purpose and Goals ; c. Intervention Overview ; d. How to Use the Manual ; 1. Session 1. Concepts & Sources of Meaning: Introductions and Meaning ; 2. Session 2. Cancer & Meaning: Identity Before and After Cancer Diagnosis ; 3. Session 3. Historical Sources of Meaning: Life as Legacy that has been given [past] and Life as Legacy that one lives [present] and gives [future] ; 4. Session 4. Attitudinal Sources of Meaning: Encountering Life's Limitations ; 5. Session 5. Creative Sources of Meaning: 'Creativity, Courage & Responsibility ; 6. Session 6. Experiential Sources of Meaning: Connecting with Life ; 7. Session 7. Transitions: Reflection & Hopes for Future ; References ; Handouts ; Exercises ; Homework
£37.39
Oxford University Press Listening to Pain A Clinicians Guide to Improving Pain Management Through Better Communication
Book SynopsisIn this groundbreaking book, Dr. Fishman shows how communicating better with patients about their pain can help physicians create safer and more effective treatment strategies. Listening to Pain offers physicians a wealth of practical guidance about asking the right questions and assessing patient responses, including:-What questions to ask pain patients when they first present with pain-Using functional goals as outcome measures-Educating patients about the risks and benefits of treatment-Documenting patient consent and compliance with treatment regimens-How to manage difficult patientsTrade Review"This well-written book drives home the concepts that communication between physicians and pain patients is absolutely crucial and how necessary it is to adequately monitor these patients and maintain appropriate records. 100 - 5 Stars!" -- DOODY'STable of ContentsIntroduction: The Healing Art of Communication ; Chapter 1: Asking the Right Questions ; Step 1: Slow Down ; Step 2: Focus on the Whole Patient, Not Just the Pain ; Step 3: Use Reflective Listening Skills ; The Importance of Taking a Comprehensive ; History ; Focusing on Function ; The Balancing Act of Compassion and Vigilance ; Chapter 2: Focusing on Function ; The Myth of Zero Pain ; A Different Approach ; Monitoring Functional Changes ; 'Universal Precautions' in Pain Management ; Chapter 3: Keeping Track of Treatment ; Why Documentation is a Doctor's (and Patient's) Best Friend ; Elements of Effective Documentation ; Assessment ; Patient Education About Risks and Benefits of Therapy ; Physician-Patient Treatment Agreements ; Monitoring Functional Progress, Adherence, and Adverse Events ; Modifying Treatments Over Time ; Chapter 4: Dealing With Difficult Patients ; The Sources of Aberrant Behaviors ; Managing Aberrant Patient Behavior ; Coping With Specific Aberrant Behaviors ; Terminating a Relationship ; The Rewards of Perseverance ; Chapter 5: Clinician Survival ; Appendix: Resources for Pain Management ; Acknowledgments ; About the Author
£22.09
Oxford University Press Nature of Clinical Medicine
Book SynopsisClinical medicine, as a thinking discipline, is concerned not only with what clinicians do, but why. When physicians act in medicine they have some purpose or goal in mind. What they actually do and how they go about it is in the service of their purposes and their goals. Such goals cover a wide range of topics centering on patients, the doctor-patient relationship, the acts of doctoring patients, and the goals involved in being a physician among other physicians working within the institutions of medicine.The Nature of Clinical Medicine takes its direction from a catalog of goals of medicine that range from the expected diagnosis and treatment of diseases to wider concerns for patients, for physicians, and for medicine itself. The chapters are specific in teaching the kinds of knowledge that clinicians require in order to be able to achieve these goals. The central focus of the clinician and of this book is the patient. According to Eric Cassell, everything else, including the diseaseTrade ReviewReading Eric Cassells latest contribution to the medical humanities The Nature of Clinical Medicine is like sipping a fine glass of claret. It requires slow savoring in order to benefit fully from the insights that Dr. Cassell has distilled over a professional lifetime of clinical practice and careful reflection. Cassells book is full of deep insights and human wisdom borne from his rewarding career of treating and caring deeply for patients. * Hillel D. Braune, Theoretical Medicine and Bioethics, Vol. 36, No. 2 (2015) *Table of ContentsAcknowledgments ; Introduction ; Chapter 1. The Goals of Medicine ; Chapter 2. A Story about a Patient with Aortic Stenosis ; Chapter 3. What are Facts in Medicine? ; Chapter 4. Clarify the Chain of Events that Led to the Present State: The Case as a Narrative ; Chapter 5. The Case of Myra Manner ; Chapter 6. Examine Your Presuppositions and Preconceptions ; Chapter 7. Separate and Examine the Values at Issue ; Chapter 8. A Question of Judgment ; Chapter 9. The Patient, the Doctor, And the Relationship ; Chapter 10. Observation, Prognosis, and Prognosticating ; Chapter 11. Thinking in Medicine ; Chapter 12. Accepting the Challenge
£45.90
The University of Chicago Press And a Time to Die How American Hospitals Shape
Book Synopsis
£21.85
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£93.60
Columbia University Press The Handbook of LGBTQIAInclusive Hospice and
Book SynopsisThis book is an accessible, expert guide to incorporating LGBTQIA-inclusive practices into end-of-life care.Trade ReviewThe Handbook of LGBTQIA-Inclusive Hospice and Palliative Care is poignant and practice-changing, weaving together Kimberly Acquaviva’s expertise and her life experience. An essential read for clinicians to help them provide inclusive care for all hospice and palliative care patients, especially LGBTQIA people and their loved ones. -- Holly Yang, president, American Academy of Hospice and Palliative MedicineThis is not just a book, it’s a stepping stone that paves the way for change and champions a revolution in hospice and palliative care. A must-read for hospice and palliative care professionals. -- Dallas Ducar, president and CEO, TranshealthAcquaviva’s heartfelt book on LGBTQIA-inclusive hospice and palliative care not only provides actionable advice for health professionals but also touches the soul. Through messages from the author and her late wife, who battled ovarian cancer, it beautifully illustrates the importance of compassionate, inclusive end-of-life care. A truly transformative read. -- Austin Chiang, founding president, Association for Healthcare Social MediaWithin the pages of this book lies a resounding call to action—a plea for compassion that no healthcare professional should ignore. Having navigated the maze of serious illness and loss as a member of the LGBTQIA community, I can testify to the need for this book. My hope is that it finds its way into the hands of every hospice and palliative care professional so that every member of the LGBTQIA community can receive the high-quality, inclusive care we deserve in our most vulnerable moments. -- Jessica Halem, senior director, Eidos LGBTQ+ Health Initiative, University of Pennsylvania[A] thoughtful manual for care providers that acknowledges a broad variety of perspectives. * Foreword Reviews *What sets the handbook apart from other books for health care providers is that it uses everyday language, not an academic voice, to reach the largest audience. * C-Ville Weekly *Table of ContentsAbout Language in This BookAcknowledgmentsPrefaceIntroduction: From “Special Population” to Inclusion—A Paradigm Shift1. Self-Awareness and Communication2. Sex, Gender, Sexual Orientation, Behavior, and Health3. Understanding Attitudes and Access to Care4. The History and Physical Examination5. Shared Decision Making and Family Dynamics6. Care Planning and Coordination7. Ethical and Legal Issues8. Patient and Family Education and Advocacy9. Psychosocial and Spiritual Issues10. Ensuring Institutional Inclusiveness11. Advocating for Change Beyond the InstitutionGlossarySupplemental Reading ListAbout the Content Expert ReviewersReferencesIndex
£25.50
University of Notre Dame Press The Anticipatory Corpse
Book SynopsisBishop argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death.Trade Review“The book’s interdisciplinary nature, along with its careful analyses combined with concrete stories of real human struggles with death and dying, no doubt, will be of interest to those engaged in medicine, bioethics, philosophy, theology, and debates concerning public health policies; but all those interested in the place of the body in modern technoscientific culture will find it engaging and cogent.” —Per Caritatem". . . this book will prove to be a seminal, conversation-changing monograph especially in bioethics and philosophy of medicine. . . . It will challenge the fundamental presuppositions that structure most courses in bioethics or death and dying. It is certainly a must-read for scholars and graduate students in these fields, but with guidance, it is an accessible and important text to use with undergraduates interested in bioethics or theology and medicine as well." —Modern Theology"This is a genuinely novel approach that invites one to completely reassess why healthcare institutions and professionals function as they do. It also invites us to question how our lives are shaped by our anticipated deaths. . . . This is not an easy book, but it is worth devoting time to reading it and thinking about the questions it poses. It is beautifully written and carefully argued, and instead of shying away from difficult and potentially disruptive issues in modern medicine it exposes them and challenges us to think again." —Times Higher Education“In this evocatively titled book, physician Bishop joins his Catholic sensibility with a Foucaldian analysis of medicine and power to expose the ambiguities and complexities of contemporary end-of-life issues. . . . Bishop examines issues such as how the need for donated organs since the 1950s has shaped care of the dying in troubling ways, the contesting passions surrounding the Terri Schiavo case, and the trivialization of the religious lives of caregivers and dying patients as wrought by the professionalization of palliative care.” —Library Journal"The Anticipatory Corpse: Medicine, Power, and the Care of the Dying [is] a compelling read and a groundbreaking work in philosophy and bioethics. Written by physician, bioethicist, and philosopher Jeffrey P. Bishop, the book presents an eloquent argument as to how the profession’s care of dying persons has evolved as well as a provocative and insightful critique of the present state of such care. . . . The Anticipatory Corpse . . . is engaging, provocative, and difficult to put down. . . . For physicians, lawyers, philosophers, chaplains, nurses, and other professionals whose work is centered on life’s final chapter, I wholeheartedly recommend this book." —Journal of the American Medical Association“Jeffrey Bishop . . . takes the reader on a journey into the past to provide insight into how the dead body plays an integral and unrecognized role in the present state of medicine in his book . . . . He argues that the corpse is the end of the practice of medicine.” —Journal of Medical Humanities“It is hard to overestimate the importance of Bishop’s book, not least because of the unchallenged, well-nigh hegemonic place occupied by medicine in western culture . . . . The theological acuteness and pastoral warmth that flow through Jeffrey Bishop’s book make it the most compelling argument for the superiority of this type of humane medicine over the ubiquitous and utterly flaccid ‘biopsychosociospiritual’ pretensions of modern medical practice. But as a challenge to the story of western liberalism, and the central place of medicine within it, The Anticipatory Corpse is also the most important book of 2011.” —ABC Religion and Ethics“The Anticipatory Corpse is interesting, provocative and important—one of the most novel contributions to the field of bioethics of the last several decades. Bishop has many illuminating new things to say about the ethics of medical care for the dying. In the process, he helps to explain why bioethics itself is in such a sad state.” —America"In this brilliant book, Jeffrey Bishop, who is both a physician and a philosopher, turns his clinical and analytical gaze on medicine. His diagnosis is bleak: 'There is something rotten in the heart of medicine.' Nine of the ten chapters are devoted to the diagnosis, showing the source and history of the disease and some of its symptoms, always focusing on how medicine approaches death and care for the dying. . . . In the last chapter, he turns his attention to therapeutic possibilities for medicine and raises a series of provocative questions, the most provocative of which is the last line of his book: Might it not be that only theology can save medicine?" —The Christian Century“The Anticipatory Corpse has the potential to become a classic in the field of medicine. . . . Bishop’s critique of contemporary medical practices and the fundamental philosophical questions underlying them are a stark reminder that the practices of medicine—many of them very good indeed—should not become ends in themselves.” —Ethics and Medicine
£105.40
Little, Brown Spark With the End in Mind
Book Synopsis
£16.99
Open University Press A Practical Guide to End of Life Care
Book SynopsisAre you involved in caring for people at the end of their life? Do you have a role in supporting the families of those who are dying, or is this an area of your work you find personally difficult?This book is an accessible guide for all those working in health or social care and caring for people at the end of their lives. This will include people in roles such as healthcare assistant, hospice worker, volunteer, nurse or other carers.Written by experts with extensive experience in delivering high quality end of life care, this book is full of real life examples, reflection exercises and case studies. It also includes insights into what can help make a good death, and how to help support families at the end of life.The easy to read chapters emphasise treating people who are dying with dignity using a person centred approach.The book supports the delivery of quality care by recognising physical and non-physical symptoms, and thinking about various emotional and phTable of ContentsForewords Contributors 1. Thinking about dying – setting the scene 2. What does end of life care mean? 3. Where are people cared for and who is involved? 4. How can we communicate with people about dying? 5. What are the common physical symptoms at the end of life and how can we help? 6. What are the common non-physical symptoms at the end of life and how can we help? 7. How can we help families and carers? 8. How do people’s beliefs and values influence their dying? 9. What happens in the last hours of life? 10. What to do when someone dies and afterwards 11. How can we look after ourselves? 12. Frequently asked questions Glossary of helpful termsUseful websites, books and other resourcesReferences
£21.84
Taylor & Francis Ltd The Dying Patient in Psychotherapy
Book SynopsisThe Dying Patient in Psychotherapy is a powerful account of love and death within a psychotherapeutic relationship. The narrative traces one man's journey in psychotherapy and that of the analyst who accompanies him. The full-length description of an analysis demonstrates the developmental path of an erotic transference from its origins in infancy, through fantasies of sex and violence to mature erotic intimacy. The countertransference is considered with exceptional honesty as the analysis intensifies following the diagnosis of a life-threatening illness. A series of dreams rich in symbolic imagery traces the psychological situation as death approaches. A precursor to Schaverien's acclaimed book Boarding School Syndrome, the single case study demonstrates the enduring impact of early boarding. This second edition also includes an updated literature review, and new material regarding training and supervision, making it a valuable resource for training inTrade Review"The author is a wonderful story teller and the journey she describes is an excellent representation of the experiences of a psychoanalyst working effectively with a dying patient. She captures the challenges of this special analytic situation and describes the counter transferences that treating a dying patient elicits exceptionally well. She recommends supervision to aid the analyst with the problematic counter transference reactions. She also recommends flexibility with regard to the analytic frame and a focus on the here and now of the patient’s struggle to live. Finally she permits the relationship to become more real by revealing more about her reactions to the work but with great care not to burden the patient with her grief." Norman Straker MD, DLFAPA, Clinical Professor Weill Cornell Department of Psychiatry, Consultant at Sloan Kettering Cancer Center"This…excellent book…combines in a unique way theoretical issues, clinical insights, analytic technique, therapeutic skills in the context of a most moving and human story of life, love and death. This book is the finest example of Joy Schaverien’s characteristic style of writing which includes all these facets of an analytical encounter in a touching and most readable way."Professor Renos Papadopoulos, Jungian psychoanalyst, University of Essex and Tavistock clinic"A detailed account of a successful psychoanalysis with a dying patient… Because death is an extreme event that brings all of life into focus, Dr Schaverien’s examples of transference and dream interpretations reach far beyond the case she recounts. I recommend this book to any psychotherapist who wants to understand the therapeutic uses of the erotic transference."Polly Young-Eisendrath, PhD, author of Women and Desire, editor of The Cambridge Companion to Jung"Once again, Joy Schaverien has provided a brilliant combination of a rarely discussed subject, the case of a dying patient in psychoanalysis, together with an in depth examination and commentary of psychoanalytic theory and practice. Joy includes exploration and analysis of dreams, a Jungian perspective, throughout the analysis. Her valuable modern up-dated theories of boarding school trauma, and of course her expertise on countertransference and erotic transference. This 2nd edition surpasses the first in all respects and will appeal to experienced practitioners, trainees from many professions and populations, and participants in therapy."Professor Helen Odell-Miller OBE, PhD, Director of The Cambridge Institute for Music Therapy Research Anglia Ruskin UniversityReviews from the first edition"The importance of this book lies in bringing work with the dying into the mainstream of our work ... This humane and careful text is a tribute to the courage of both Schaverien and [the client] and a gift for the reader."Jeremy Weinstein, BACP-registered trainer, UKCP Gestalt psychotherapist: Counselling and Psychotherapy Journal'"... Joy Schaverien has risked having her heart … as well as her technique and intellect, open for scrutiny in a way that is both brave and inspiring ... One of the most instructive aspects of this book is that it enables the reader to enter into a detailed account of the management of an intense, at times merged, involvement with a patient, whilst being provided with intermittent glimpses of how the analyst's mind is working, how she is building her frame, and patrolling the boundaries ... The book is well structured. Its clear chapter headings and sub-headings, as well as a chronological list of the patient's dreams, are containing and form a useful reference guide.'"Hilary Lester, Training Analyst with the Society of Analytical Psychology: Journal of Analytical Psychology"In this book Joy Schaverien has given us one of the most moving accounts of an analysis that I have encountered ... she demonstrates a considerable gift for explaining the analytical process in terms that are accessible to the well-educated lay person in a way that does not detract from the account for the professional clinician ... I found the dream material and the way in which it was presented particularly moving and thought-provoking. I liked the way in which each dream was presented in its own right and the reader was given the opportunity to think about it, before encountering the patient's associations and the analyst's comments ... The book from first to last chapter contains a deeply moving and sensitive account of the analyst's inner process of holding the analytical frame in the most adverse of circumstances... this is a book, that …should not be missed."Margaret Wilkinson, retired Training Analyst with the Society of Analytical Psychology, Author of Coming into Mind: Journal of the West Midlands Institute of PsychotherapyTable of ContentsPart 1: 1. Psychotherapy with the Dying Patient 2. Intimacy Revealed: Establishing a Therapeutic Relationship 3.The House and Boarding School: Intimacy and Exile Part 2: 4. Dreams 5. Dreams and Diagnosis 6. Dreams and the Erotic Transference 7. The Erotic Transference and Countertransference 8. Sexual Attractions and Erotic Violence: Men Who Leave Too Soon Revisited 9. The Inner-World Parents: The Paternal Function and the Maternal Realm 10. Talking about Love, Sex and Death Part 3: 11. Boundaries and the Bereavement of Dying 12. Envy, Contamination and Countertransference 13. The Link Between Psychotherapy and Cancer 14. The Problems of Ending When the End is Death Part 4: 15. Breakdown, Boundaries and Hospital 16. The Hospice and Medication 17. Home 18. Supervision, Training and Countertransference Bereavement: Research Questions
£25.64
Taylor & Francis Ltd Textbook of Palliative Medicine and Supportive
Book SynopsisThis new edition provides the essential clinical guidance both for those embarking upon a career in palliative medicine and for those already established in the field. A team of international experts here distil what every practitioner needs to know into a practical and reliable resource.Trade Review'Many programs are discussed in detail, which enable readers to understand palliative medicine trends throughout the world and have an understanding of impactful strategies that have been helpful to patients, families, and clinicians. The history of the profession is also covered beautifully, invoking pride in how far the profession has advanced over thepast 50 years, starting with the early work of Dame Cicely Saunders.'Leah D Ward, MSN, MA, A-GNP-C, ACHPN (Aspire Health), Doody EnterprisesTable of ContentsList of contributors. The development of hospice and palliative care. Palliative care as a public health issue. Palliative care as a primary care issue. The future of palliative medicine. Palliative care and supportive care. Ethics in the practice of palliative care. Undergraduate education in palliative medicine. Graduate education for nonspecialists. Challenges of research in palliative and supportive medicine. The population: Who are the subjects in palliative medicine research?. Study designs in palliative medicine. Outcome measurement in palliative care. Ethics in palliative care research. Adoption of palliative care: The engineering of organizational change. Principles of measuring the financial outcomes of specialist palliative care programs. Population-based needs assessment for patients and those important to them, such as families. Models of palliative care delivery. Home palliative care. Palliative care unit. Multidimensional patient assessment. Tools for pain and symptom assessment. Quality of life assessment in palliative care. Pathophysiology of chronic pain. Causes and mechanisms of pain in palliative care patients. Opioid analgesics. Assessment and management of opioid side effects. Adjuvant analgesic medications. Alternative routes for systemic opioid delivery. Interventional pain procedures in palliative care. Pain management in pediatrics. Pain in the older adult. Neuropathic pain. Bone cancer pain and skeletal complications. Breakthrough (episodic) pain in cancer patients. Somatic symptoms, symptom clusters, and symptom burden. Pain in patients with alcohol and drug dependence. Cachexia–anorexia syndrome. Nausea/vomiting. Constipation. Jaundice. Malignant bowel obstruction. Endoscopic treatment of digestive symptoms. Mechanism, assessment, and management of fatigue. Breathlessness. Other respiratory symptoms (cough, hiccup, and secretions). Depression/anxiety. Delirium. Sleep disturbances in advanced cancer patients. Counseling in palliative care. Hope in end-of-life care. Dehydration and rehydration. Fever, sweats, and hot flashes. Pruritus. Infections in palliative care. Pediatric palliative wound care: The unique anatomy and physiology of neonatal skin. Mouth care. Fistulas. Assessment and management of lymphedema. Hypercalcemia. Hemorrhage. Spinal cord compression. Clinical features and management of superior vena cava syndrome. Acute pain and management. Suicide. Cancer: Radiotherapy. Chemotherapy, hormonal therapy, targeted agents, and immunotherapy. Integrative medicine in supportive and palliative care. Neurological diseases. End-stage congestive heart failure. Geriatric palliative care. Advanced chronic obstructive pulmonary disease. Other infectious diseases: Malaria, rabies, tuberculosis. Practical resources for palliative care development in countries with limited resources: An IAHPC perspective. Prognostic indicators of survival. Palliative sedation. Staff stress and burnout in palliative care. Spiritual care. Family caregivers and cultural sensitivity. Bereavement. Children of palliative care patients. Neutropenic fever. Side effects of radiation therapy. Cardiac and pulmonary toxicities of treatments. Oral complications of cancer therapies. Dermatologic side effects. Peripheral neuropathy and neurotoxicity. Sex and sexuality. Managing communication challenges with patients and families. Supportive and palliative care for patients with HIV infection. Implantable cardiac devices. Supportive care for patients with advanced chronic kidney disease. Palliative care in the emergency department. Optimal Symptom Management in Hematopoietic Stem Cell Transplantation. The end of therapy: Building the psychosocial and spiritual bridges to survivorship. Rehabilitation in the acute and chronic care setting. Long-term cognitive function. Gonadal functions and reproductive health. Pulmonary rehabilitation. Index.
£199.50
John Wiley & Sons Inc Occupational Therapy in Oncology and Palliative
Book SynopsisNow in its second edition, this is the only book on occupational therapy in oncology and palliative care. It has been thoroughly updated, contains new chapters, and like the first edition will appeal to a range of allied health professionals working with patients with a life-threatening illness.Trade Review"I would recommend this practical text to both students and professionals in the field." (British Journal of Occupational Therapy, 2007)Table of ContentsList of Contributors ix Foreword xi Derek Doyle, MD, OBE Preface xiii Acknowledgements xiv Introduction xvii 1 What is Cancer? 1 Jill Cooper 2 Challenges Faced by Occupational Therapists in Oncology and Palliative Care 11 Jill Cooper 3 Occupational Therapy Approach in Symptom Control 27 Jill Cooper 4 Occupational Therapy in Anxiety Management and Relaxation 41 Jill Cooper 5 Occupational Therapy in the Management of Breathlessness 51 Jill Cooper 6 Occupational Therapy and Cancer-Related Fatigue 61 Daniel Lowrie 7 Client-centred Approach of Occupational Therapy Programme – Case Study 83 Gemma Lindsell 8 Occupational Therapy in Paediatric Oncology and Palliative Care 107 Claire Tester 9 Occupational Therapy in HIV-related Cancers and Palliative Care 125 Will Chegwidden and Camilla Hawkins 10 Occupational Therapy in Neuro-oncology 145 Helen Barrett and Julie Watterson 11 Occupational Therapy in Hospices and Day Care 161 Anne Bostock, Shelley Ellis, Sara Mathewson and Lilias Methven 12 The Use of Creativity as a Psychodynamic Activity 175 Kathryn Boog 13 Measuring Occupational Therapy Outcomes in Cancer and Palliative Care 189 Gail Eva Appendices 201 Glossary 239 Glossary-Abbreviations 247 Index 249
£51.26
John Wiley & Sons Inc Palliative Care An Integrated Approach
Book SynopsisAspects include psychosocial, spiritual and physical needs of the patient. Care and treatment are considered in a multidisciplinary and complementary way. Patient centered coverage considers treatment and care of the dying in all settings in major diseases. A highly integrated approach to pain and symptom control, including complementary therapies.Trade Review“However, I have found myself referring to this book in recent months far more than some of the bigger, more established, textbooks – and if the measure of a good book is how well-thumbed the pages become, then the author is on to a winner. (European Journal of Palliative Care, 2010) "The author's warmth, enthusiasm and concern for patients, their families and the professionals who care for them, combined with her scholarship, shine throughout this book. I recommend it to anyone with an interest in the care of people approaching the end of their lives in any setting." (Palliative Medicine, 2009) "This book will be a very welcome addition to the undergraduate curriculum for clinicians seeking to specialize in palliative care." (International Journal of Palliative Nursing, 2009) "There is a wealth of knowledge and experience for nursing students and newly qualified nurses seeking direction.... I would recommend this for reference on general medical wards and units where patients are receiving end of life care." (Nursing Standard, April 2009) Table of ContentsForeword x Contributors’ biographies xii Acknowledgements xv Dedications xvi 1 Historical and cultural perspectives on the evolution of palliative care 1 Key points 1 Introduction 2 Death in society 2 Dame Cicely Saunders and the origins of contemporary palliative care 3 An international perspective 6 Defi nitions 8 End-of-life care national programme 12 Culture 15 Service user involvement 18 Conclusion 19 Main implications for practice 19 Suggested further reading 19 2 Facing progressive disease and death 21 Key points 21 Psychosocial care 22 Partnership – maintaining the balance 23 Approaches to care 24 Giving the bad news 26 Denial/avoidance 29 Anger 32 Anxiety 33 Depression 33 Social pain 35 Conclusion 35 Main implications for practice 36 Suggested further reading 36 3 Communication skills 37 Key points 37 The impact of good communication 38 The impetus to teach communication skills 38 Facilitative styles 40 What Howard taught me about nursing dying people 45 Helpful strategies 46 Communicating with people with dementia 56 Conclusion 57 Main implications for practice 57 Suggested further reading 58 4 Self-awareness and self-care 59 Key points 59 Saving a life versus stealing a death 60 Facing death 62 Making space for decision-making 64 Self-awareness 66 How much did Nicky impact on my life? 68 Self-care 69 Main implications for practice 72 Suggested further reading 72 5 The sick role and partnership working 73 Key points 73 Introduction 73 Partnership care – what does it mean? 75 The sick role 76 Face-to-face partnership: attention to information giving 78 Written information 81 Decision aids 82 Special needs 83 Conclusion 83 Main implications for practice 83 Suggested further reading 84 6 Hope and spirituality 85 Key points 85 Introduction 86 Hope research 86 Spirituality 94 Religious practices concerned with death 100 Conclusion 104 Main implications for practice 104 Suggested further reading 105 7 Finding resilience together 106 Key points 106 Resilience in health care 107 Patient groups 108 Psychoneuroimmunology 108 The expert patient 111 Conclusion 114 Main implications for practice 115 Suggested further reading 115 8 Living with dying 116 Key points 116 Introduction 117 Social death 118 Vulnerable groups 119 Informational needs 121 Being heard and feeling supported 122 Companionship 123 Intimacy and caring 125 Health needs 125 Diffi cult thoughts and letting go 127 Conclusion 128 Main implications for practice 128 Suggested further reading 129 9 Bereavement 130 Key points 130 Defi nitions 131 Untimely deaths 131 Bereavement and health 132 Grief theorists 134 Mourning practices in different cultures 141 Bereaved children 143 Old age 143 Bereavement and dementia 143 Solitary grief 144 Bereavement services 145 Conclusion 148 Main implications for practice 149 Suggested further reading 149 10 Pain and other major symptoms: an integrated approach 150 Key points 150 Pain theories 152 Psychological approaches 154 Physical approaches 158 Complementary therapies 163 Creative therapies 170 Conclusion 172 Main implications for practice 172 Suggested further reading 172 11 The history of the use of strong opioids for cancer pain 173 Key points 173 Studies and narratives 174 WHO analgesia ladder 177 Side effects 182 Alternative routes for administration of strong opioids 184 Conclusion 187 Main implications for practice 188 Suggested further reading 188 12 Concordance and advance care planning 189 Key points 189 Patient-centred care: concordance 190 Advance care planning 192 The Mental Capacity Act 2005 196 Main implications for practice 196 Suggested further reading 197 13 Eleven prevalent symptoms 198 Key points 198 History 198 Pain 199 Nausea and vomiting 206 Constipation 212 Diarrhoea 216 Anorexia 218 Fatigue 223 Breathlessness 227 Confusion 232 Insomnia 236 Anxiety 238 Depression 240 Conclusion 244 Main implications for practice 244 Suggested further reading 245 Addendum: Doloplus 2 Scale 245 14 Palliative issues in some common diseases 248 Key points 248 Gold standard for all 248 Doing the right thing at the right time 249 Conclusion 280 Main implications for practice 280 Suggested further reading 280 Contents ix 15 Palliative emergencies 282 Key points 282 Palliative emergencies 282 Other symptoms 286 Main implications for practice 287 Suggested further reading 287 References 288 Index 315
£41.36
John Wiley and Sons Ltd Palliative and End of Life Care for Children and
Book SynopsisWith a focus on palliative care provision across a range of different clinical settings, Palliative and End of Life Care for Children and Young People is a comprehensive new resource that explores care in the home, the hospice and hospital.Trade Review“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.” (Doody’s, 8 March 2013) “If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012) “Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012) “This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012) “This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012) “The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012) Table of ContentsParticipants viii Foreword xii Preface xiii Acknowledgements xv Abbreviations xvi 1 Palliative and End of Life Care for Children and Young Adults 1 2 Home-based Palliative and End of Life Care 15 3 Hospice-based Palliative and End of Life Care 49 4 Hospital-based Palliative and End of Life Care 87 5 Preparation for the End of Life, Bereavement and Emotional Support 117 6 The Implications for Policy and Practice 155 Appendix: Methodology 169 References 175 Index 181
£32.36
Penguin Putnam Inc That Good Night
Book Synopsis
£14.40
McGill-Queen's University Press Tuberculosis Then and Now
Book SynopsisOne-third of the world's population is infected with the TB bacillus and up to ten per cent of these individuals will go on to develop tuberculosis. This title focuses on the changing medical, social, and cultural understanding of the disease and engages in a wider debate about the role of narrative in the social history of medicine.
£30.39
Johns Hopkins University Press The Medical Care of Terminally Ill Patients The
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£67.00
Johns Hopkins University Press The Medical Care of Terminally Ill Patients
Book SynopsisEnck places great emphasis on enhancing the quality of life while addressing the most common symptoms of terminal illness.Trade ReviewA very well thought out and organized professional book... A thorough book for physicians. -- Carolyn Whitman, M.S., R.N. Inside GCM This Second Edition demonstrates the enormous advances that have been made in the understanding of the treatment of the terminally ill. It provides the clinician with a clear, readable and practical guide to managing clinical problems at the end of life. -- Roger Woodruff International Association for Hospice and Palliative Care Newsletter We can congratulate and thank [Dr. Enck] for adding to the comfort and care of a great many of our fellow human beings as death draws near. Doody's 3-Star ReviewTable of ContentsContents: Preface to the Second Edition List of Abbreviations 1. The Prognostication of Survival Cancer Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrome (AIDS) Central Nervous System Anoxia Advanced Pulmonary Disease Heart Disease Summary I. The Management of Symptoms Common Among Dying Patients 2. General Symtoms of Dying Patients Pain Gastrointestinal Symptoms Nausea and Vomiting Anorexia and Cachexia nutritional Probllmes Hydration Constipation Central Nervous System Symptoms Delirium Depression Systemic Symptoms Dyspnea Urinary Incontinence Pressure Sores Summary 3. Other Problems of Patients with Cancer Malignant Intestinal Obstruction Malignant Dysphagia Neuromuscular Dysfunction Malignant Ulceration Summary 4. Other Problems of Patients with Nonmalignant Diseases Dementia Motor Neuron Disease Acquired Immunodeficiency Syndrom (AIDS) Chronic Vegetative State Advanced Pulmonary Disease Heart Disease Summary 5. Palliative Surgery Principles of Preoperative Care Principles of Operating for Advanced Cancer Principles of Postoperative Care Indications for Surgery Summary II. The Management of Pain 6. An Overview of Pain Management Principles of Pain Management The Ladder Approach Managing the Complications of Pain Treatment Summary 7. Opioids Oral Morphine Parenteral Opioids Alternative Routes of Administration Summary 8. Adjuvant Analgesic Drugs Anticonvulsants Phenothiazines Antidepressants Antihistamines Steroids Antibiotics Amphetamines Butyrophenones Summary 9. Complications of Pharmacologic Therapy Opioids Nonsteroidal Anti-inflammatory Drugs Summary 10. Bone Pain Pathopysiolgoy Radiation Therapy Pharmacotherapy Summary References Index 11. Surgery and Other Nonpharmacologic Interventions to Manage PainSurgery Acupuncture Transcutaneous Electrical Nerve Stimulation Relaxation Techniqu eComplimentary/Alternative Medicine Summary III. The Management of Symptoms During the Last Few Days 12. The Final Moments Terminal Symptoms and Their Managment Drug-Induced Terminal Sedation Summary 13. Issues Concerning the Sustaining of Life Do Not Resuscitate Advance Directives Physician-Assisted Suicide and Euthanasi aSummary References Index
£29.70
Rutgers University Press Prelude to Hospice Florence Wald Dying People
Book SynopsisViewing death as a natural event, hospices seek to enable people approaching mortality to live as fully and painlessly as possible. Award-winning medical historian Emily K. Abel provides insight into several important issues surrounding the growth of hospice care. Using a unique set of records, Prelude to Hospice expands our understanding of the history of US hospices.Trade Review"For those doing research on death and dying, this book is a must read; it provides a quick and easy-to-understand testimony from people experiencing hospice. Readers may gain inspiration on how to make death a more comfortable process for their patients, their families, or themselves." * Choice *"Emily Abel is a distinguished scholar of medicine, nursing, and caregiving. Her latest book, Prelude to Hospice, offers powerful testimony from patients at the moment when many realized that medical progress had limits, and that technology sometimes needs to give way to care. Her portrayal of Florence Wald shows her deep understanding of the changing role of nurses in the second half of the twentieth century. Anyone who wants to understand the origins of hospice in the United States, the challenges of caregiving, and the ways that today's dilemmas at the end of life were present at the origins of the palliative care movement should read her compelling new book." -- Carla C. Keirns, MD, PhD * historian and palliative care physician *"Emily Abel is one of the most respected, influential historians working on family care giving and now, more recently, death and dying." -- Patricia D'Antonio * director, Barbara Bates Center for the Study of the History of Nursing *"If you’re looking for a case study on a dysfunctional research and clinical team, hamstrung by hierarchy and hobbled by boundary violations, this book will leave your mouth ajar." * The Gerontologist *"Partly inspired by Cicely Saunders, [Florence Wald] knew there was a better way to care for the terminally ill and their families. But it was anything but an easy road. This book describes the personal, professional, institutional and societal hurdles she came up against." * IAHPC Newsletter/HospiceCare.com *"New Scholarly Books: Weekly Book List, June 8" by Nina C. Ayoub * Chronicle of Higher Education *“Abel’s book is a timely portrayal of one of the founders of the modern hospice movement. In learning about Ms. Wald, it is our responsibility as the reader to take the good, learn from the bad, and continue to build upon and evolve Ms. Wald’s legacy to embrace suffering, loss, and hurt with compassion and empathy.” * Omega *Table of ContentsContents Introduction 1 Setting the Stage 2 Doctor and Nurse 3 Caring across Cultures 4 Hope, Blame, and Acceptance 5 Making Sense of the Findings Conclusion
£33.30
Springer Publishing Company Palliative Care Nursing
Book Synopsis
£96.89
University of Missouri Press The Care of the Dying Patient
Book SynopsisOffers advice and solutions to professional caregivers or family members confronted with incurable illness and death. This title covers diverse aspects of end-of-life care across multiple disciplines, offering a broad perspective on such central issues as control of pain and other symptoms, spirituality, and special concerns regarding the elderly.
£21.80
Boone Publishing, LLC Fixing You Neck Pain and Headaches
£15.14
Taylor & Francis Ltd Modern Hospice Design
Book SynopsisThe new edition of this acclaimed book comprehensively updates its timely advocacy of the need for good quality palliative care, today more necessary than ever. Rooted in the social history of the care of the elderly and terminally ill, Modern Hospice Design: The Architecture of Palliative and Social Care takes cognisance of the new conditions of social care in the 21st century, principally in the UK, Europe and North America. It does so with regard to the development of new building types, but also in response to new philosophies of palliative care and the status of the elderly and the dying. Benefitting from a clearer methodological approach and conceptual framework, the expanded book allows a broad section of readers to navigate the text more easily. At its core is a public discussion of a philosophy of design for providing care for the elderly and the vulnerable, taking the importance of architectural aesthetics, the use of quality materials, the porousness of deTrade ReviewWhat reviewers have said about Ken Worpole's most recent books:Last Landscapes: the architecture of the cemetery in the West'One of the most thought-provoking books of the year.'THE INDEPENDENT'An intensely personal analysis, supported by wonderful photographs.' THE ARCHITECTS' JOURNAL, BOOKS OF THE YEAR'A richly humane and engrossing book which incorporates a huge range of sources: he quotes anthropologists, novelists and a wealth of thinkers. The result is a work that is warm, compassionate, intelligent and thought-provoking.'BUILDING DESIGNModern Hospice Design: the architecture of palliative care‘Ken Worpole traces a path out of the darkness and into the light: from the Victorian asylum or sanatorium, devised to punish the sick, to the hospice movement and its assertion that even those who can't be made well by clinical medicine are entitled to be treated by the medical profession with not just dignity but something like love.’THE TIMES LITERARY SUPPLEMENT‘This concise, well-referenced book encourages the reader to consider whether design can foster hope…Worpole’s book speaks directly to designers and health care professionals to take this opportunity to engage with the deeper issues of ritual and occasion.’JOURNAL OF DESIGN HISTORYTable of Contents1. A new world of palliative and social care 2. A house at the end of life 3. Be kind quickly: how the modern hospice movement changed (nearly) everything 4.The brief is everything 5. Public faces and private places 6. Everything gathered in one room 7. Open to the world and to life 8. In a hospice garden 9. The evening land
£121.50
Taylor & Francis Rising to the Challenge of Life After Cancer
Book SynopsisRising to the Challenge of Life After Cancer: Expert Advice for Finding Wellness is an easy-to-read self-help guide for people facing cancer diagnosis and treatment. Following an effective Q&A format and based on a unique Wellbeing Essentials framework, it offers a valuable âdip in and outâ approach with signposting to evidence-based guidance on major challenges that those diagnosed with cancer and their family and friends may face. If you or someone close to you has had a cancer diagnosis, then this book is for you.With a focus on wellness and taking control, questions addressed include âIs there a best way to cope with cancer?â, âWhat strategies can help me make an informed decision about treatment?â, âWhat is prehabilitation and how can this help me?â, and âWho am I now?â. The book covers an array of essential guidance from maintaining social health and wellbeing, to accessing care and support in the community. It is written for both those living with or beyond canc
£18.99
Taylor & Francis Ltd Harnessing Hope in Managing Chronic Illness
Book SynopsisHarnessing hope is fundamental to adapting to a chronic illness or palliative illness, and this fascinating book provides a new framework that will enable physiotherapists and other healthcare professionals to engage with patients to create better interactions and outcomes for rehabilitation.Based on extensive research into how patients express their experiences, it identifies those factors that influence how hope can be used to benefit an interaction. It also considers central questions to illustrate how interactions can be psychologically mapped to assess emotions, adjustment, and hope. The book then features practical guidance on how to integrate the idea of hope into therapeutic conversations with patients, fostering acceptance and adaptation to the present, and looking towards the future.This book will interest any practitioner working with patients experiencing chronic pain or palliative illness, as well as students across physiotherapy, occupational therapy, and
£47.49
John Wiley and Sons Ltd Palliative Care Nursing at a Glance
Book SynopsisPalliative Care Nursing at a Glance is the perfect companion for nursing students, health and social care practitioners, and all those involved in palliative care delivery, both in the clinical and home setting.Table of ContentsContributors viii Preface xi List of Abbreviations xii About the companion website xiv Part 1 Introduction 1 1 Setting the scene 2Christine Ingleton 2 Managing the needs of family caregivers 4Philip J. Larkin 3 Principles of effective communication 6Alison Pilsworth and Martyn Geary 4 Advance care planning 8Christine Ingleton 5 Delivering palliative approaches in different care contexts 10Christine Ingleton 6 Integrated care pathways 12Christine Ingleton Part 2 Clinical applications 15 7 Principles of symptom management 16Philip J. Larkin 8 Best practice in pain management 18Pat Schofield 9 Managing pain 20Pat Schofield 10 Complex pain problems and treatment challenges 22Pat Schofield 11 Managing nausea and vomiting 24Jackie Robinson 12 Managing constipation 26Philip J. Larkin 13 Understanding depression 28Mari Lloyd-Williams 14 Understanding delirium and confusion 30Peter Lawlor and Katie Marchington 15 Managing myoclonus, tremors and muscle spasms 32Jackie Robinson 16 Managing lymphoedema 34Lorna Malcolm 17 Managing hypercalcaemia of malignancy 36Geraldine Tracey 18 Assessing and managing oral hygiene 38Philip J. Larkin 19 Caring for people with dysphagia 40Philip J. Larkin 20 Managing breathlessness 42Liz Darlison 21 Cough and haemoptysis 44Jackie Robinson 22 Explaining and exploring cachexia, anorexia and fatigue 46Cathy Payne 23 Continual subcutaneous infusion: using a syringe pump 48Philip J. Larkin 24 Emergencies: superior vena cava obstruction 50Joanna De Souza 25 Emergencies: haemorrhage 52Joanna De Souza 26 Emergencies: malignant spinal cord compression 54Joanna De Souza 27 Chemotherapy 56Clare Warnock 28 Radiotherapy 58Clare Warnock Part 3 Palliative care for all 61 29 Palliative care approaches in heart failure 62Gill Horne and Sarah Human 30 Palliative care approaches to chronic obstructive pulmonary disease 64Clare McVeigh 31 Palliative care approaches in motor neurone disease 66David Oliver 32 Palliative care approaches for people receiving dialysis 68Rachel Lewis and Helen Noble 33 Palliative care approaches for people with progressive kidney disease: a non-dialytic pathway 70Helen Noble and Rachel Lewis 34 Care of the patient following a stroke 72Tony Ryan 35 Principles of palliative care for older people 74Amanda Clarke and Paula Smith 36 Care of the person with dementia 76Tony Ryan 37 Care for people with mental illness 78Ann Sheridan 38 Care for people with learning disabilities 80Dorry McLaughlin 39 Care for the homeless person 82Brian Nyatanga 40 Care for people in prison 84Mary Turner and Marian Peacock Part 4 Professional roles in palliative care 87 41 Understanding rehabilitation in palliative care 88Cathy Payne 42 The social worker 90Niamh Finucane 43 The occupational therapist 92Deirdre Rowe 44 The physiotherapist 94Helena Talbot-Rice 45 Complementary and supportive therapy 96Philip J. Larkin 46 The clinical nurse specialist 98Liz Bryan 47 The advanced nurse practitioner 100Geraldine Tracey 48 The nurse consultant 102Jo Hockley 49 The chaplain 104Mark Cobb 50 The medical consultant 106Bill Noble Part 5 Ethical challenges in palliative care practice 109 51 Stress in palliative care nursing 110Liz Bryan 52 Responses to euthanasia and physician-assisted suicide 112Joanna De Souza 53 Withholding and withdrawing life-sustaining care 114Joanna De Souza 54 Recognising and planning for the terminal phase of life 116Pauline Ui Dhuibhir Part 6 Managing end-of-life care 119 55 Changing goals of care at the end of life 120Deborah Hayden 56 Managing respiratory secretions at the end of life 122Jackie Robinson 57 Care at the moment of death 124Michael Connolly 58 Spiritual perspectives at the end of life 126Mark Cobb 59 Bereavement 128Pam Firth Index 131
£38.49
Taylor & Francis Ltd (Sales) Life at Home for People with a Dementia
Book SynopsisLife at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships â that is, the diversity of people living with a dementia â enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved. Trade Review‘This is an exciting, innovative and hugely informative book that is not afraid to face up to the symbolism of home and its place in the everyday lives of people with dementia and their families’. - Professor John Keady, The University of Manchester, UK Table of ContentsList of figures; List of tables; Foreword – a poem; Foreword; Acknowledgements; Chapter 1: Introduction; Part One: Understanding Life at Home; Chapter 2: Citizenships: The diversity of people living at home; Chapter 3: Enabling life at home; Chapter 4: Rethinking self-management and dementia; Part Two: Towards Social Justice; Chapter 5: Ethics and care for people with a dementia at home; Chapter 6: Technological enhanced care and citizenship; Chapter 7: Sharing responsibilities; Chapter 8: Care Manifesto; Index
£35.14
Taylor & Francis The International Handbook of Art Therapy in
Book SynopsisThe International Handbook of Art Therapy in Palliative and Bereavement Care offers a multicultural and international perspective on how art therapy can be of help to individuals, groups, families, communities, and nations facing death and dying as well as grief and loss.Over 50 art therapists from around the world write about the transforming power of art therapy in the lives of those facing terminal illness, dementia, loss, and grief. They offer practical descriptions and techniques for working with adults and children to guide professionals, including those new to using art therapy and creative approaches in end-of-life care services. This international handbook is essential reading for arts therapists, social workers, medical personnel, faith leaders, and psychologists interested in a collaborative and accessible approach to working with patients and families affected by loss.Trade Review"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's Kids"Michèle Wood and colleagues present a rigorous and compelling argument for art therapy as a key tool in the palliative care arsenal. They offer an international, critical, and inclusive account of its value for patients, families, and staff in palliative care. This book presents a cross-cultural view of the discipline, approaching the field in a scholarly way. It will be of interest to all multidisciplinary members of the palliative care team, as well as patients."Faye Gishen, PhD, BSc, FRCP, SFHEA, FAcadMedEd"Why is art therapy so effective in alleviating distress and suffering? How do art therapists support the palliative and bereavement care communities? These questions and more are expertly addressed in this comprehensive collection of chapters, covering the range of issues and detailing the ways in which art therapists from diverse settings around the world are uniquely equipped to help."Donna Betts, PhD, ATR-BC, past president, the American Art Therapy Association; clinical research advisor, Creative Forces, National Endowment for the Arts Military Healing Arts Network; adjunct associate professor of art therapy, George Washington University"This book assembles a team of internationally-renowned art therapists who share a commitment to rigorous, analytically-derived but non-polarized expositions of their work. The contributors reflect on many aspects of art therapy, demonstrating how it can address spiritual needs in different groups of patients approaching the end of life. It is both illuminating, moving and intensely practical."Professor Sheila Payne, emeritus professor, International Observatory on End of Life Care, Lancaster University"This book is a valuable initiative, bringing together such a diverse range of voices and contexts. It will undoubtedly make a significant contribution to the field of art therapy in palliative and bereavement care."Jill Westwood, PhD, MA (RCA), PG Dip Art Therapy, BA (Hons), fine art HCPC registered art psychotherapist; programme convenor, Department of Social, Therapeutic & Community Studies, Goldsmiths, University of London"Art therapy in palliative and bereavement care is a rich and multifaceted practice. Art therapists who support patients and their families at the end of life must find courage in the face of suffering and hope in the healing power of creative engagement. Helping patients tell their stories while there is still time, express the truths of relationships, and leave behind an intentional legacy are among the gifts of this work. This handbook offers principles, research and case examples from art therapists in a dozen countries, including work with children, adults, hospice, community, and prison populations, and bereavement support for families. The topics included reflect the nuances of adapting art therapy practice to different cultures and belief systems. The handbook is an inspiring resource for any art therapist working in palliative care."Tracy Councill, art therapy program director, Pediatric Hematology-Oncology, Georgetown/Lombardi at Tracy's KidsTable of ContentsList of Figures List of Tables Preface Foreword SECTION ONE: ART THERAPY WITH INDIVIDUALS Chapter 1 Deepening the Inner World: When Art Therapy Meets Spiritual Needs Chapter 2 The Spiritual in Art Therapy at the End Of Life Chapter 3 Snapshot of Practice: Art Therapy and Acquired Visual Loss Chapter 4 Art Therapy and Juvenile NCL Chapter 5 Blurry Vision: Introducing Art Therapy to Palliative Care Patients Chapter 6 Snapshot of Practice: A Case of Individual Art Therapy Chapter 7a Religious Practice in Russia, Medical Settings, And End of Life Rituals Chapter 7b Addressing End of Life Care, Loss, And Bereavement in The Russian Federation Chapter 8 Stillbirth: Mourning Unspeakable Loss with Art Therapy And EMDR Chapter 9 The Empathic Mirror: Healing Grief and Loss Through Portrait Therapy at End of Life Chapter 10 Utilizing Tablet Computers in Art Therapy for Young People with Chronic and Life-Limiting Illnesses Chapter 11 Connecting and Belonging: Using Technology for Art Therapy in Palliative Care Chapter 12 Snapshot of Practice: Art Therapy in Hospice: The Florence Experience in Italy SECTION TWO: ART THERAPY FOR GROUPS, FAMILIES AND COMMUNITIES Chapter 13 Snapshot of Practice: Art Therapy in Paediatric Oncology Chapter 14 Art Therapy, Community Engagement, & Living and Dying Chapter 15 A Chorus of Angels, the Ripple of Water, and the Weight of Stone: Art Therapy and Artwork which Cradle both Family Carers and their Relative with Dementia Chapter 16 Snapshot of Practice: Researching the Outcomes of Art Therapy For Caregivers Of Patients At End-Of-Life Chapter 17 Wading in Knee Deep – The Art Therapist in Different End-Of-Life Settings Chapter 18 Coming Up for Air: Art Therapy with Children Affected by Childhood Cancer Chapter 19 An Art Therapist’s Approach to Total Pain Chapter 20 The Power of Creative Expression and Ritual: Integrating Art Therapy into A Bereavement Camp Chapter 21 Saying Goodbye: Grieving Families Chapter 22 ‘Time to Unwind’: Meitheal at the Crossroads - An Open Art Therapy and Music Therapy Group on the Specialist Palliative Care Inpatient Unit Chapter 23 Group Art Therapy using Telemedicine Technology for Patients Undergoing Chemotherapy Chapter 24 Snapshot of Practice: Mind-Body Art Grief Group Chapter 25 Beginning at The End SECTION THREE: ART THERAPY FOR CROSS-CULTURAL ENCOUNTERS, NATIONAL TRAGEDIES, AND DISENFRANCHISED GRIEF Chapter 26 Snapshot of Practice: Private Practice Art Therapy in Dubai Chapter 27 Art Therapy in Prison Hospice: A Compassionate Bridge Chapter 28 Killing Time: The Dying Art Therapy Group in A High Secure Hospital Chapter 29 Disenfranchised Grief: The Impact of Grief In The Military Chapter 30 Feeling the Pulse: An Art Therapist’s Response To Tragedy Chapter 31 Communitas & Soul-Healing: Arts Therapy Within the Loss-Upon-Loss of Natural Disaster Chapter 32 Snapshot of Practice: Notes on Palliative Care Art Therapy in Singapore Chapter 33 Healing Wounds - Meeting Māori At End of Life Chapter 34 Art Therapy’s Contribution to Alleviating the HIV Burden in South Africa Chapter 35 Narratives East West – Art Therapy in A Hospice in Northern India: A Patchwork of Cross-Cultural Encounters GLOSSARY Appendix ART THERAPY ASSOCIATIONS WORLDWIDE LIST OF CONTRIBUTORS Index
£90.24
Taylor & Francis Ltd End of Life Communication
Book SynopsisThis book examines the dialectic between fictional death as depicted in the media and real death as it is experienced in a hospital setting. Using a Terror Management theoretical lens, Davis and Crane explore the intersections of life and death, experience and fiction, to understand the relationship between them. The authors use complementary perspectives to examine what it means when we speak and think of death as it is conceived in cultural media and as it is constructed by and circulates between patients, health professionals, and supportive family members and friends.Layering analysis with evocative narrative and an intimate tone, with characters, plot, and action that reflect the voices and experiences of all project participants, including the authors' own, Davis and Crane reflect on what it means to pass away. Their medical humanities approach bridges health communication, cultural studies, and the arts to inform medical ethics and care.Table of Contents1. A Mortality Tale: Narrative Management of Death 2. Death as Vertigo: The Day Time Stood Still 3. Death as Disequilibrium: Things that Go ‘Bump’ in the Night 4. Death as a Cry for Help: An Unimaginable Prayer 5. Death as a Horrible Other: A Relationship with the Other Side 6. An Ode to Childhood’s Joy: An Antidote to the Hyperreality of Death 7. Death as a Jokester: The Last Laugh 8. Death as a Relationship: Death, Love, and Loss 9. Death as a Lover: Eternal Flame 10. Death as a Weapon: Dying for a Cause 11. Death as a Foe: Waging War on Death 12. Death as a Roommate: Living with Death 13. Death as a Way of Life: Living Death 14. Death as a Threshold: Letting Go Coda
£35.14
John Wiley and Sons Ltd Care of the Dying and Deceased Patient
Book SynopsisThis is a practical, accessible guide for nurses on the management and care of the dying and deceased patient. It outlines the practicalities and legal issues associated with death, the principles of caring for a patient who is dying, and the principles of dealing with death, both expected and unexpected. Care of the Dying & Deceased Patient explores all the practical issues surrounding death, including symptom control, resuscitation, organ donation, how to break bad news, the last offices, cultural issues, post mortems and documentation issues. It also explores both the legal and ethical issues involved- including withholding/withdrawing treatment, assisted euthanasia, patient's property, wills etc. SPECIAL FEATURES A practical guide to the management of the dying and deceased patient Of use to all nurses and nursing students Accessible and user-friendly Written by an expert in the field Table of ContentsForeword. Contributors. Chapter 1 Care of the dying patient: a guide for nurses (Dan Higgins). Chapter 2 Symptom control at the end of life (Louisa Hunwick, Shareen Juwle and Glen Mitchell). Chapter 3 Do not attempt resuscitation decisions (Elaine Walton and Philip Jevon). Chapter 4 Ethical issues (Fiona Foxall). Chapter 5 Complementary therapies in palliative care (Rachel McGuinness). Chapter 6 Relatives witnessing resuscitation (Melanie Humphreys). Chapter 7 Organ donation (Rachel Hodge and Liz Armstrong). Chapter 8 Breaking bad news (Dan Higgins). Chapter 9 Last offices (Dan Higgins). Chapter 10 Legal issues of death (Richard Griffith). Chapter 11 Post mortems and inquests (Cassam Tengnah). Chapter 12 Record keeping (Philip Jevon). Index.
£30.56
Johns Hopkins University Press Living Well with a Serious Illness
Book SynopsisA practical guide for understanding how palliative care can improve quality of life for patients and their caregivers. Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care. Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand what palliative care entails how to access the support they need when going through a serious illness what questions Table of ContentsForeword by Sunita Puri, MDIntroduction: David's Story1. What is Palliative Care?2. Barriers to Palliative Care: Taking Care of the Person Versus Fighting the Disease3. How We Want to Die: Palliative Care's Benefits for Patients and Their Loved Ones4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family6. Putting it All Together: Creating an Action Plan for When the End is Near7. Spirituality and Well-Being: Care of the Spirit Matters Too8. Grief: Tapping into Restorative Sources After Goodbye9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can DoEpilogue: David's Legacy—The Kanarek Family FoundationResourcesAcknowledgmentsAbout the AuthorIndex
£15.68
Johns Hopkins University Press A Gift of Time
Book SynopsisNow updated and expandeda gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experiencefrom receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: Expands the content substantially to incorporate new research and guidelines Features additional vignettes from more tTable of ContentsIntroduction1. The New: Receiving Your Baby's Diagnosis2. What Now? Making Decisions about Continuing Your Pregnancy3. The Emotional Journey: Grieving and Adjusting to Your New Path4. Waiting with Your Baby: Settling in for the Rest of your Pregnancy5. Making Medical Decisions: Choosing Care for Your Baby6. Getting Ready: Preparing for Your Baby's Birth, Life, and Death7. Welcoming Baby: Birth Experiences and Meeting Your Baby8. Saying Goodbye: Holding On and Letting Go9. Continuing Your Journey: After Your Baby Dies10. ReflectionsAppendix: Sample Outline for a Perinatal Palliative Care Birth PlanNotesIndex
£22.50
Elsevier Health Sciences Textbook of Interdisciplinary Pediatric
Book SynopsisIntends to inform interdisciplinary teams about palliative care of children with life-threatening illness. This title addresses domains such as language and communication, symptoms and quality of life, and the spectrum of life-threatening illnesses. It shows how a collaborative, interdisciplinary care strategy benefits patients and their families.Table of ContentsFundamentals Needs Assessment Interdisciplinary Care and Symptom Control The Team Approach and the Family Research and education
£60.29
Rowman & Littlefield Hospice Voices
Book SynopsisAs a part-time hospice volunteer, Eric Lindner provides companion care to dying strangers. They're chatterboxes and recluses, religious and irreligious, battered by cancer, congestive heart failure, Alzheimer's, old age. Some cling to life amazingly. Most pass as they expected. In telling his story, Lindner reveals the thoughts, fears, and lessons of those living the ends of their lives in the care of others, having exhausted their medical options or ceased treatment for their illnesses. In each chapter, Lindner not only reveals the lessons of lives explored in their final days, but zeroes in on how working for hospice can be incredibly fulfilling. As he's not a doctor, nurse, or professional social worker, just a volunteer lending a hand, offering a respite for other care providers, his charges often reveal more, and in more detail, to him than they do to those with whom they spend the majority of their time. They impart what they feel are life lessons as they reflect on their own lTrade ReviewIn this endearing and personal book, Attorney and entrepreneur Lindner details his experiences volunteering in hospice with colorful storytelling, practical advice, and encouragement for those coming to terms with the end of life. As a new volunteer, Lindner learns that there are 5300 hospices in the U.S. and they rely heavily on volunteers. While Lindner’s early training included “dos and don’ts,” he tends to follow his own path, causing some raised eyebrows and, in one case, nearly landing himself in a lawsuit. Still, Lindner’s heart is in the right place and he soldiers on with a positive attitude, especially given that a hospice volunteer never knows what he’s stepping into. One thing is for certain, a hospice volunteer must deal with profound moral dilemmas and emotional issues. Lindner’s open access to patients combined with his hectic travel schedule has him receiving calls at all times of day and night and on various continents and he’s frank about these life and death issues. Lindner takes on this heavy subject from a special perspective and he does so eloquently, providing insight and inspiration to those who read along. * Publishers Weekly *Author Eric Lindner's debut is somewhat like an Irish wake. There are tears, but also joy and surprising levity. His writing honors and gives voice to those intensely personal moments that patients and their loved ones endure and find reasons to celebrate. . . .Lindner urges us to be still, present and listen with all our sensory antennae to the winks and whispers, hugs and mumbles, sighs and chuckles of those on the cusp of the Hereafter. The unspoken, the look, the long deep breath, the tear in the corner of the eye, and the tight grip of the hand—these are the unspoken things that speak volumes. As a 'companion caregiver,' he ushers us into the lives of seven special patients, illuminating what's relevant to and for the dying—and the living. As far as the dying are concerned, Lindner observes, one of the most relevant things 'is preserving a shred of privacy and dignity, which can be tough when you're incontinent, your wig's on backward, or you can't find your false teeth.' . . . Lindner is an honest teacher, not one to shy away from highlighting his own foibles. Yet he demonstrates how all of us, even the most 'unskilled,' can help alleviate pain and suffering -- while learning great lessons in the process. He brings to us patients with whom we can all sympathize and identify. Lindner's stories echo Khalil Gibran, who said, 'Pain breaks the shell that encloses understanding.' * The Huffington Post *Hospice Voices: Lessons For Living at the End of Life is a memoir written by a lay hospice volunteer who shares with us his moving story of spending time with those facing their mortality. It's a beautiful book, deeply instructive to the professional and layperson alike. ... Hospice Voices is a truly beautiful work of love, written in heartfelt and genuine prose that clearly demonstrates Lindner's love and respect for his clients, as well as his clear-eyed views on mortality and illness, not to mention his own internal process during the course of his volunteering. Rather than the words of a professional, Lindner's book is a love song written by a layperson; a love song infused with understanding, pathos, authenticity and raw honesty. Sharing deeply about his family, his own life, as well as his young daughter's experience of being diagnosed with thyroid cancer, the author's personality shines brilliantly through his flowing, simple yet moving prose. I highly recommend Hospice Voices for anyone who has experienced the death of a loved, expects to experience the death of a loved one, or who thinks that they themselves may die one day. Does that seem like I'm recommending it to everyone? I most certainly am. * Digital Doorway *This is an honest, pull no punches look at coming to terms with the one thing we will all do—die. In this well-documented and highly-readable book, Lindner proves an adept chronicler of the individual human stories that make up his journey to understand that beauty and grace can exist at the end stages of life. Lindner deftly reminds us of the power of the small things, the simple gestures and the importance of dignity for those that face a terminal situation. Throughout the book, we meet people approaching the end of life in their own individual ways, with different measures of love, faith and family. This book simultaneously opened my heart and broke it as each story taught me how hope and dignity can exist even in terminal situations. As a hospice volunteer, Lindner teaches us all that the ability to ease and bear witness to someone’s journey at the end stage of life is perhaps the ultimate gift one human can give another. -- Lee Woodruff, NY Times #1 Bestselling AuthorHeart attacks, strokes, and heart failure claim more lives than any other disease state. Over my career I've seen my share of sadness due to the ravages of end-stage cardiovascular disease. But I've also seen terminal patients and their loved ones wring out great joy and meaning in the final months of life. This book is joyful, insightful, witty, and truly meaningful. It tugged at my heart, tickled my funny bone, and served up numerous insights and tips that had escaped me when trying to advise patients and their families. What a marvelous set of stories that should be read by all adults. It inspires us to live life to the fullest and respect and learn from the past in order to better deal with future uncertainty. -- Roger S. Blumenthal, M.D., FAHA, FACC, Kenneth Jay Pollin Professor of Cardiology; director at Johns Hopkins Ciccarone Center for the Prevention of Heart Diseas; author of many works including Preventive Cardiology: Companion to Braunwald’s Heart DiseaseAs a physician who cares for the chronically ill and dying I all too often see people who are alone in the midst of their suffering. Trained volunteers, like Eric Lindner, play such an immensely important role in providing that companionship to the patient. His book reminds all of us that we are invited to attend to others – not to change them, not to judge them, not to fix them. We are there simply to listen and to be witnesses to the suffering and joy of others in their living and in their dying. Presence to others, as Lindner describes so poignantly in his book, is a transformative sacred act for the patient and for the companion. Eric Lindner’s book inspires all of us to enter the sacredness of living and dying with openness and courage. -- Christina M. Puchalski, MD, MS, FACP; director of George Washington University’s Institute for Spirituality and Health; professor of George Washington University School of Medicine and Health SciencesThis book intrigued me because of the author’s pledge to donate 100% of his profits to charity. His book moved me because it's an illustration that there are many ways we can provide love and justice in this world. We think of love in our daily affections for those close to us. We think of justice in the work of social movements. But all religions teach that at the heart of justice is love, hospitality, and kindness to strangers. It is hard to imagine a better example of exactly that than this book, and in reading it, one comes away knowing that as in sacred scripture, Lindner has encountered and served angels themselves. -- Timothy L. Fort, PhD, JD, Everleigh Professor of Business Ethics, Kelley School of Business, Indiana University; author of many works including Business, Integrity, and Peace: Beyond Geopolitical and Disciplinary BoundariesEric Lindner gives voice to those in their final days so that we may better listen, love, and learn from their example. A must read for any caregiver - volunteer or family. -- Vince Evans, MSW, Vice President of Patient Services, Hospice of the ValleyBeautiful, funny, poignant. I was mesmerized. -- Sen. Mark Warner (D-VA)I started Hospice Voices and read it straight through. I was deeply moved by the extraordinary people I met in the book. -- Will Schwalbe, author of the New York Times bestseller, The End of Your Life Book ClubI love this book! It’s a brilliant story…well-told. -- John Toal, BBC RadioEric Lindner’s book Hospice Voices: Lessons for Living at the End of Life is a powerful testament to hospice volunteers. The Post’s article and Lindner’s book are the best gifts one can give to a family suffering through one of life’s most difficult moments. * The Instrumentalist *"This book may be of interest to anybody who works in palliative care, and of particular value to those who coordinate our volunteers and to the volunteers (and trainee volunteers) themselves." * International Association for Hospice & Palliative Care *Table of ContentsAcknowledgements Preface 1: An Aptly Named Caregiver 2: Find the Key That Unlocks Empathy 3: Adversity Crumbles When Laughed At 4: Ownership Isn’t All That it’s Cracked Up to Be 5: Talk Less, Communicate More 6: We’re Only as Sick as Our Secrets 7: Have Guns, Will Travel 8: Live Discharge 9: DOs and DON’Ts
£11.69
