Disability: social aspects Books

Book SynopsisThe first book to be written on the Judge Rotenberg Center and their use of painful interventions to control the behavior of children and adults with disabilities. For more than forty years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. Advocates and lawyers have filed complaints and lawsuits to both use them and ban them, scientists have written hundreds of articles for and against them, and people with disabilities have lost their lives and, some would say, lived their lives because of them. There are families who believe deeply in the need to use aversives to control their children’s behavior. There are others who believe the techniques used are torture. All of these families have children who have been excluded from numerous educational and treatment programs because of their behaviors. For most of the families, placement at the Judge Rotenberg Center is the last resort. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions. It chronicles and analyzes the events and people involved for over forty years that contributed to the inability of the state of Massachusetts to stop the use of electric shock, and other severe forms of punishment on children and adults with disabilities. It is a long story, sad and tragic, complex, filled with intrigue and questions about society and its ability to protect and support its most vulnerable citizens. Trade Review"A history of the notorious Judge Rotenberg Center in Massachusetts, and the fight to ban the use of electric shock treatment and other severe punishments on disabled children and adults. This is a historical case study that remains sadly relevant, as aversion therapies are still encouraged in many places." * The Bookseller *“. . . . An in-depth, riveting, and devastating account of violent treatments known as aversives, used at the Judge Rotenberg Center. Nisbet’s painstakingly detailed history insists that we must not look away—as too many have done—from these horrific stories.” * Isis *“A history of the notorious Judge Rotenberg Center in Massachusetts, and the fight to ban the use of electric shock treatment and other severe punishments on disabled children and adults… An incredibly well-documented book.” * Masslive *"This important book brings to light the shameful history of torturous methods used on individuals with developmental disabilities. If animals or prisoners of war had been subjected to this torture, the perpetrators would have been charged with felony cruelty to animals or war crimes. I am hopeful that by exposing what has occurred at the Judge Rotenberg Center, this work will finally bring this sad chapter of our history to an end." -- Temple Grandin, author of Thinking in Pictures"Nisbet provides important insights into the present-day use of aversive interventions and the ongoing struggle for disability justice. Highly recommended. General readers through faculty; professionals.” * Choice *Table of ContentsList of IllustrationsForewordAcknowledgmentsChapter I. A Long StoryChapter II. How We Got to This PlaceChapter III. Encouraged to Expand to CaliforniaChapter IV. Pushing BackChapter V. The Death of VincentChapter VI. The Food and Drug Administration Permits the Use of Electric Shock on People with DisabilitiesChapter VII. Here Comes National Institutes of Health: A National Outcry After the Office for Children’s and Mary Kay Leonard’s Loss to BRIChapter VIII. Staging the Next BattlegroundChapter IX. Bad Faith or Responsible Government: Another Attempt to Limit the Use of AversivesChapter X. ContemptChapter XI. More Legal Issues and Advocates Take Action: Weiss and NisbetChapter XII. The FDA Bans the Electric Shock Device: A Final Ruling? Weiss and NisbetEpilogueChronologyEndnotesBiographical Note

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Book SynopsisWherever we live or whatever we do, disability will always be a part of us. With increasing age, we will all surely encounter disability. Disability can arise from age or outside forces, such as a traffic accident. It is estimated that more than a billion people, or about 15% of the world's population, live with some form of disability. Disability research is therefore important not only for the individual and the family, but also for the society to adapt and facilitate a better quality of life for this segment of the population. For example, research from the United States found significant disparities in the prevalence of disability between urban and rural residents, with rural residents having the highest prevalence of disability. Such epidemiology and survey research can be important tools for public health and can guide policy makers to allocate budgets, service facilities and expertise. In this book, we have gathered recent disability research from around the world that we hope will be of interest to the reader.Table of ContentsIntroduction; Disability and Research; Health, Illness and Disability; Inclusive Education of Children with Disabilities; Being a Parent with Visual Impairment; Burden of Injury Disparity Borne by Developing Countries; Services to Children with Visual Impairment and Disability; Disability Employment Experiences in India; Language Skills and Effects of Stimulation with Physical Exercises on Selected Coordination Abilities; Modelling Predictors of Stroke Disease in South Africa; Predicators for Complications Post Total Knee Replacement Surgeries; Pathological Demand Avoidance in an Adult with Autism Spectrum Disorder and Sex Offending; About the Editors; About the National Institute of Child Health and Human Development in Isreal; Index.

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Book SynopsisThe Transition to Retirement (TTR) program aims to help older people with long-term disability gradually build an active and socially inclusive retirement lifestyle through volunteering and participating in mainstream community groups. Members of these groups are trained to act as mentors and provide support. The three-year TTR research project and subsequent years of TTR service delivery have shown that this approach is feasible and has enduring positive outcomes for people with disability, mentors and community groups.The TTR manual and video material aim to make these benefits available more widely. They provide implementation details for all components of the TTR program, as well as practical tips and accounts of individual participant's experiences. DVD stories and video clips illustrate key issues. Planning forms are also included, together with an explanation of the process of teaching a person with long-term disability to use public transport independently. The TTR program is consistent with Australia's National Disability Insurance Scheme (NDIS) which focuses on building community participation and independence, and with the National Disability Strategy's emphasis on promoting social inclusion in community settings.Trade Review"The book 'Transition to Retirement: A Guide to Inclusive Practice' is a world leading exemplar of a project that can address this inequality for older adults with intellectual disabilities ... A strength of this manual is that it has been written alongside staff from a local charity who have implemented the Transition to Retirement project adding sound advice regarding the enablers as well as the barriers to implementing this project in practice ... I would highly recommend this book to educators, researchers, commissioners and service providers and it should be on the bookshelves of everyone concerned with how adults with intellectual disabilities age in order to plan a more active and inclusive retirement." -- Laurence Taggart -- Journal of Policy and Practice in Intellectual Disabilities' ... the book is clear and concise, and will be a useful resource for its primary audience of social care workers who provide employment support services.' -- Elizabeth Perkins -- Learning Disability Practice' ... the manual is set within the Australian context, [but] the themes and practical suggestions are transferable to other countries and cultures and, all in all, it is a good guide to have to hand.' -- Rachel Forrester-Jones -- Tizard Learning Disability Review'Its scientific foundation is its strength, and the disciplined approach to its construction circumscribes its initial claims to validity and utility. Here we have a clear first step in a standardised manual for a best practice. The TTR needs and deserves to be followed in research as it is applied ... ' -- Michael Millington -- The Australian Journal of Rehabilitation CounsellingTable of ContentsAcknowledgements Foreword Introduction Abbreviations Section 1: background 1. Disability, ageing and transition to retirement 2. Promoting retirement 3. Laying the groundwork in the community Section 2: constructing the reality 4. Planning 5. Locating a group for an individual 6. A new routine 7. Recruiting and training mentors 8. Monitoring and ongoing support Section 3: broader issues 9. Conclusions Readings Appendix A: travel training Appendix B: forms About the authors Index Transition to retirement DVD

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Book SynopsisLeave it to a dog to put the “human” back in “humanities” In September 2020, Rod Michalko wrote to friend and colleague Dan Goodley, congratulating him on the release of his latest book, Disability and Other Human Questions. Joking that his late guide dog, Smokie, had taken offense to the suggestion that disability was purely a human question, Michalko shared a few thoughts on behalf of his dog. When Goodley wrote back—to Smokie—so began an epistolic exchange that would continue for the next seven months. As the COVID-19 pandemic swept across the world and the realities of lockdown-imposed isolation set in, the Smokie letters provided the friends a space in which to come together in a lively exploration of human-animal relationships and to interrogate disability as disruption, disturbance, and art. Just as he did in life, Smokie guides. In these pages, he offers wisdom about the world, love, friendship, and even The Beatles. His canine observations of human experience provide an avenue into some of the ways blindness might be reconceptualized and “befriended.” Uninhibited by the trappings of traditional academic inquiry, Michalko and Goodley are unleashed, free to wander, to wonder, and to provoke within the bonds of trust and respect. Funny and thoughtful, the result is a refreshing exploration and re-evaluation of learned cultural misunderstandings of disability.Table of Contents An Introduction from the Authors The Letters Afterword Acknowledgements Bibliography Notes

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Book SynopsisAn explosive book that exposes the abuses of institutionalization."How many brothers and sisters do you have?" It was one of the first questions kids asked each other when Catherine McKercher was a child. She never knew how to answer it.Three of the McKercher children lived at home. The fourth, her youngest brother, Bill, did not. Bill was born with Down syndrome. When he was two and a half, his parents took him to the Ontario Hospital School in Smiths Falls and left him there. Like thousands of other families, they exiled a child with disabilities from home, family, and community.The rupture in her family always troubled McKercher. Following Bill's death in 1995, and after the sprawling institution where he lived had closed, she applied for a copy of Bill's resident file. What she found shocked her.Drawing on primary documents and extensive interviews, McKercher reconstructs Bill's story and explores the clinical and public debates about institutionalization: the pressure to "shut away" children with disabilities, the institutions that overlooked and sometimes condoned neglect and abuse, and the people who exposed these failures and championed a different approach.Trade Review"A gut-wrenching chronicle of a not-so-distant history, when society warehoused its most vulnerable members. With grace and clarity, McKercher turns in a courageous memoir as she investigates what happened to her baby brother Bill, who was born with Down Syndrome in the 1950s. Sent to a "hospital school" from the age of two, Bill becomes the powerful lens through which McKercher explores her family's experience. Unsentimental and unflinching, Shut Away will make you weep for all the Bills and the crucial lessons humanity cannot afford to ignore from his story." -- Carolyn Abraham, author of The Juggler's Children"McKercher's meticulous research and precise, understated prose creates an unforgettable history of children placed in overcrowded, understaffed, and sometimes violent living conditions, and a searingly honest portrait of a family ruptured by the decision to send Bill away. Above all, Shut Away is a moving portrait of a brother." -- Judy McFarlane, author of Writing with Grace: A Journey Beyond Down Syndrome

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Book SynopsisDisAppearing offers a relational orientation to disability studies. From encounters with disability and disabled people in educational settings from elementary school to university, in novels and other texts, in hospitals and policing, in dance, on the street, and in community centres, as well as in considerations of injury and healing, and life and death, the chapters in this collection explore a variety of cultural scenes of disability. By doing so, this collection reveals what disability can mean through scenes of its dis/ appearance and demonstrates how to remake these meanings in more life-affirming ways.Encouraging critical engagement with how disability is noticed and lived, the many chapters, as well as poetry, narrative, and a podcast transcript, reveal the meaning of disability appearing and disappearing in everyday life and beyond. Bringing together the work of scholars, artists, and activists, many of whom identify as disabled, DisAppearing encourages students to approach disability differently and to reimagine its appearance in the world.Engaging, political, artistic, and philosophical, this text, with an emphasis on the Canadian context, is an invaluable resource for disability studies students and instructors.Table of Contents Alternative Thematic Table of Contents List of Figures Foreword, by Rod Michalko Introduction Part I: DisAppearing DisAbility: Demonstrations in Theory and Practice Editors' Introduction Chapter 1: Disappearing Promises: The University's Unfortunate Framing of Disability, by Tanya Titchkosky Chapter 2: Nativity, by Hanna Herdegen Chapter 3: Navigating Borderlands: Deaf and Hearing Experiences in Post-Secondary Education, by Sammy Jo Johnson & Sarah Beck Chapter 4: Let Me Hear You Say Black Lives Matter, by Thomas Reid Part II: DisAppearing DisEmbodiment Editors' Introduction Chapter 5: Between Peace and Disturbance: Anorexia, Control, and Embodiment, by Madeleine DeWelles Chapter 6: Disabling Curricular Encounters: The Barriers in Barrier-Free Access, by Maria Karmiris Chapter 7: Ghosts, Mice, and Robots: Disappearing the Autistic Person, by Helen Rottier, Ben Pfingston, & Josh Guberman Chapter 8: Performing Dyslexia in Contemporary Japan, by Satsuki Kawano Chapter 9: Tuning Goes Frig, by Sid Ghosh Part III: DisAppearing Drama Editors' Introduction Chapter 10: Blind Perception: DisAppearing Blindness … with a Twist, by Devon Healey Chapter 11: Embracing the Gesture: A Dance of the Ordinary and its Extra, by Jose Miguel Esteban Chapter 12: Shapeshifting: Navigating the Social Construction of Multiple Disability Identities, by Steve Singer Chapter 13: Charles Darwin and Me/Chronic Illness Dictionary, by Diane Driedger Part IV: DisAppearing Departures, Diagnoses, and Death Editors' Introduction Chapter 14: The Impositions of Forgotten Wor(l)ds: Rehabilitation and Memory Loss, by Lindsay Gravelle Chapter 15: The DisAppearances of Deafness in Early Childhood Diagnostic and Intervention Practices, by Tracey Edelist Chapter 16: Diagnosing Despair: Constructing Experience through Psychiatric Hegemony, by Efrat Gold & Sharry Taylor Chapter 17: An Autist Amongst Exceptionalities, by Joey Tavares Chapter 18: Disappearing Disability: Disability MAiD Invisible, by Nancy Hansen Chapter 19: The Pill Box Shuffle, by Leanne Toshiko Simpson Part V: DisAppearing Dreams Editors' Introduction Chapter 20: The Infinity of the Encounter: Deafness, Disability, Race, and the Sound of Re-Story, by Elaine Cagulada Chapter 21: "Where are the goddamn pens?": And Other Disappearances in Writing Intellectual Disability, by Chelsea Temple Jones Chapter 22: Are You My Homi? Close (Autistic) Encounters of the Third Kind, by Maya Chacaby Chapter 23: Magic Wand, by Lynn Manning Contributor Biographies Index

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Book SynopsisIncluding people with disabilities fully into Canadian society, with the rights enjoyed by non-disabled people, requires a fundamental social transformation, not simply "fixing" some bodies. It requires deep changes in the attitudes, cultural images and policies that make people with disabilities invisible, set them aside, undermine or reject their contributions and value, and justifies their neglect, abuse and death. This shift involves the simple recognition and honouring of the dignity, autonomy and rights of all people, including those who experience disabilities.In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society. Disability rights can and does increase access to and inclusion in critical areas like education, employment, transportation, telecommunications and health care. Additionally, Stienstra identifies new approaches and practices, such as universal design, disability supports and income supports, that can transform Canadian society to be more inclusive and accommodating for everyone.

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Book SynopsisIn most Canadian provinces, people with severe physical disabilities are simply warehoused in nursing homes, where many people, especially in the age of homecare, are in the final stages of their lives. It is difficult for a young person to live in a home geared for death; their physical assistance needs are met, but their social, psychological, and emotional needs are not. Jen Powley argues that everyone deserves to live with the dignity of risk.In Making a Home, Powley tells the story of how she got young disabled people like herself out of nursing homes through developing a group home for adults with severe physical disabilities. This book makes a case for living in the community and against dehumanizing institutionalization.

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Book SynopsisEverything you need to know about recognising and diagnosing ADHD in women, and how to live a full and fulfilling life after When Julie Legg was diagnosed with ADHD at age 52, suddenly her life made sense. Bringing together her own experience along with research studies and personal stories from other Kiwi women with ADHD, this book is a go-to reference no matter where you are in your journey.It covers the different presentations of ADHD, understanding how the brain works, why girls are underdiagnosed, traits and triggers, the value of an assessment, choosing (or not) medication, freeing yourself from shame, and tips for living and thriving with ADHD.Dispelling myths and opening a lid on the real experiences of the one-in-twenty women who have found their own missing piece, The Missing Piece is an informative and empowering guide to knowing and loving yourself.

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Book SynopsisThis is the story, in words and pictures, of Blind Veterans UK, an organization that was founded 100 years ago by Sir Arthur Pearson, who was himself blind, during the First World War, in order to bring hope and practical help to British and Allied servicemen blinded in the service of their country. It also tells of how light from the torch which Pearson lit in 1915 spread to all corners of the earth, to which his beloved St Dunstaners returned, having 'graduated' from the mother organization in Regent's Park - for example, Australia, New Zealand, Canada, South Africa. Herewith are accounts of the lives of many St Dunstaner's/Blind Veterans, who each in his or her unique way, triumphed over blindness, together with a unique collection of photographs, including those provided by Blind Veteran's UK, by the Pearson family, and by the families of St Dunstaners throughout the world. And this includes the story of my own grandfather, Thomas Waldin, who was himself a St Dunstaner.Table of ContentsBlind Veterans UK; Author's Note; Acknowledgements; Preface; 1, Arthur Pearson: Early Life. 2, Pearson's Weekly. 3, Pearson's Fresh Air Fund. 4, Pearson Remarries: Frensham Place. 5, Pearson the Newspaper Proprietor. 6, Pearson and the Search for the Giant Sloth. 7, C. Arthur Pearson Ltd. 8, Pearson and the Scout Movement. 9, Pearson and the National Institute for the Blind. 10, Pearson and the Founding of St Dunstan's. 11, The Newcomer to St Dunstan's. 12, St Dunstan's Goes from Strength to Strength. 13, Types of Eye Injury and their Treatment. 14, Pearson's Brainchild in Operation. 15, Aftercare. 16, Gladys Cooper and St Dunstan's. 17, Pearson and the Secret of His Success. 18, The 'Chief ' Visits the Front. 19, Further Developments at St Dunstan's. 20, The Armistice and Beyond. 21, Some British St Dunstaners. 22, Some St Dunstaners from Overseas. 23, Pearson and Helen Keller. 24, Richard King Huskinson. 25, Death of the 'Chief '. 26, St Dunstan's Without Pearson. 27, The Second World War. 28, The Great Work Continues. 29, Post-War Timeline of Events. Epilogue; Appendices; Endnotes; Bibliography; Index.

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Book SynopsisMany amputees want to know how it feels to be able to cycle, and some even want to be professional amputee cyclists. The disability market offers many options for amputee cycling. This book shows you how to get started and take those exciting first steps on your way to a higher level of mobility and independence. The contributions in this collection are written by some of the best-known amputee cyclists in the world, including Margaret Biggs, Rajesh Durbal, Mark Inglis, and Keira Roche. Their achievements are nothing short of remarkablewhether cycling around a velodrome at the Paralympics or around the world raising funds for charity. This guide offers great advice from experts and ordinary cyclists alike for arm, leg, combination, and all matters of amputee cycling. The book includes tips not only on the vast arrangement of two wheelers, but also tricycles, recumbents, handbikes, tandems, unicycles, electric bikes, and more specialized cycling forms designed for the disability market. The book offers practical tips and stories, imagery, photographs, and much more to help you or a loved one firmly connect with cycling as an activity that can be done despite a disability.

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Book SynopsisDisability can be either an ascribed status or an achieved status and its combination with other statuses will affect the person's social experiences. The term intersectionality has been used most often to discuss the ways in which the dual and simultaneous statuses of 'black' and "female' exist as facets of social structure and culture, interact in both those spheres, and affect individuals in ways which neither one does separately. Little attention has been paid to disability in this context, despite the many parallels to race and gender. This volume challenges critical thinking about the interrelationships with disability. It questions if the concepts and methods of intersectionality can be applied to disability at all or if they can be applied in the same way. The authors debate whether different conception of intersectionality would fit the disability context better and if there are methodologies which could be used to examine it. A variety of empirical evidence about situations in which disability intersects with other roles are also examined.Table of ContentsList of Contributors. Introduction: Disability and intersecting statuses. At the intersection of feminist and disability rights movements. From equality in difference to human diversity claims. Intersectionality and the disability: Some conceptual and methodological challenges. Unmet needs and quality of support for parents of transition-aged youth: Differences by disability group, age, and household income. Has the parent experience changed over time? A meta-analysis of qualitative studies of parents of children with disabilities from 1960 to 2012. Disability and participation: assessing employment and education outcomes in the National Health Interview Survey (2010). Aging into disability beyond 50: the impact on labor force participation and earnings. “You’re so short!”: the stigma (and disability) of being a short woman. Wear and tear: the social production of disablement in construction workers. Social class and learning disabilities: Intersectional effects on college students in New York City. Disability, gender and caste intersections in Indian economy. About the authors and editors. Disability and Intersecting Statuses. Research in Social Science and Disability. Research in Social Science and Disability. Copyright page.

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Book SynopsisPhysical structure, economic expectation or social relationship norms developed within various cultures can either restrict or support the participation of individuals with disabilities in society. The influence of environmental factors can vary significantly according to context, characteristics or by action difficulty. The objective of this volume is to identify and address environmental issues that support or restrict the participation of persons with functional limitations in society, either at the micro, meso or macro levels. The papers address both individual, societal, national and international levels of environment and shed new light on the processes involved with creating or modifying these environmental supports or barriers. Several papers approach the societal and intra-societal levels. The volume is separated into four parts; part one focuses on the larger disability environment from an international, national and community perspective, the second includes important theoretical and methodological approaches; section three highlights reviews of the environmental literature and the final section addresses personal experience with environmental barriers.Table of ContentsDisabled Persons Associations at the Crossroads of Two Organizational Environments: Grassroots Groups as Part of an International Movement and Local Civil Society. The Experience of Environmental Barriers among Adults with Disabilities: A National Description. Assessing and Comparing the Accessibility of Community Environments: A Feasibility Study. Disability, Rehabilitation Research and Post-Cartesian Embodied Ontologies – Has the Research Paradigm Changed?. Schelling’s Checkerboard and Computer Simulators’ Predictions of Spatial Isolation of Group Homes for Persons with Disabilities. Exploring the Feasibility of Using “Google Street View” to Assess the Accessibility of Community Environments: Developing Definitions and Observational Protocol for Image Recognition and Classification. The Effects of Professional Discourse on Disability 1931–2009: Environments of Inclusive and Restricted Participation. Using a Rapid Scan to Assess the Need for a Scoping Review of the Literature on the Environment and Disability. Examining Macro and Meso Level Barriers to Hiring Persons with Disabilities: A Scoping Review. ‘I Can Reinvent Myself Out Here’: Experiences of Nature Inclusion and Mental Well-Being. Encounters with Inaccessibility: The Contexts Women with Spinal Cord Injury Face when Seeking Gynecological Health Care. An Examination of Systems-Level Barriers to Employment for Persons with Vision Loss. Introduction: Environmental Contexts and Disability. List of Contributors. Copyright page. Environmental Contexts and Disability. Research in Social Science and Disability. Environmental Contexts and Disability. About the authors and editors.

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Book SynopsisThrough a series of thematic chapters, Julie Anderson explores the nature of injured and disabled bodies before, during and after the Second World War. Beginning at the end of the First World War and finishing with the publication of the Piercy Committee's report in 1956, the book examines medical practice, State support, societal attitudes and cultural meanings surrounding disabled war veterans and civilians. The book focuses on the embodied nature of the rehabilitative process, its gendered nature and the concentration on bodily fitness during the war. Using a series of case studies, this wide-ranging book seeks to understand the processes, methodology and practice of rehabilitation for those injured and disabled in war, and reflect on its adoption in post-war Britain.War, disability and rehabilitation in Britain will interest historians of medicine, war and disability studies.Trade Review'Julie Anderson is one of the leading historians working in the area of Disability Studies...This book is essential reading for anyone interested in military medicine. It directly addresses the debates about whether ‘war is good for medicine’... 'War, Disability and Rehabilitation' in Britain is a meticulous and often riveting story of pain,politics and rehabilitation.'Professor Joanna Bourke, Social History of Medicine, May 2012, Joanna Bourke, Social History of Medicine, 31 January 2012|'a welcome addition to the growing field of disability history of early to mid-twentieth-century Britain ... informative reading for all students of disability history and rehabilitation.'Dee Hoole, H-Disability August, 2013 -- .Table of ContentsAcknowledgementsList of illustrationsList of tablesIntroduction1. Unfortunates: Disability 1900-392. Attitude: Disabled ex-servicemen after the First World War3. Soul: Rehabilitation in the Second World War4. Fit: The process of rehabilitation5. Men: Masculinity and rehabilitation6. Revealed: Women and rehabilitation7. Nation: Rehabilitation and the stateConclusionBibliographyIndex

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Book SynopsisIn this groundbreaking book, Jill Harshaw explores the spiritual experiences of people with profound intellectual disabilities with regard to their capacity to enjoy life-giving spiritual experiences in their own right. The author expertly argues that our thinking of spiritual life needs to start not with our assumptions about people who are unable to speak for themselves, but with what we can know about God. Stimulating a much-needed discussion, this book explains why we need to respect individuals with profound intellectual disabilities as spiritual persons, and stop seeing them simply as care-receivers or uncomfortable reminders of human vulnerability. Calling for a more critical approach in practical theology, this book invites a deeper, genuinely inter-disciplinary dialogue between new and traditional theological fields, and asks why, after more than 30 years of intellectual disability theology, the impact on church life remains minimal so that debates around the right to basic inclusion continue to dominate. The questions raised in this book not only move the discussion forward, but will spark a change on how the Church approaches inclusiveness.Trade ReviewGod Without Words probes deeply into the methodological and theological obstacles to understanding the spiritual experience of people with profound intellectual disability to discover we have to ask even more primordial questions about how God reveals Godself at all. The result is a wide-ranging scriptural, philosophical, and theological inquiry into the God who would be perceived by human flesh despite the limitations of cognition. What was intended as an intervention in the arena of intellectual disability has ripple effects in Christian theology as a whole. -- Amos Yong, professor of theology & mission, Fuller Theological Seminary, and author of Theology & Down Syndrome: Reimagining Disability in Late Modernity (2007)God Beyond Words has significance for and beyond studies in theology and various experiences of disability. Jill Harshaw provides new insights into the spiritual lives of people with intellectual disabilities and she challenges us more broadly to rethink how diverse spiritualities can be researched. This is a very important book that should be read as widely as possible. -- Dr Wayne Morris, Associate Dean, Faculty of Humanities, Head of Theology and Religious Studies, University of Chester, author, Theology without Words, co-author, Making a World of DifferenceJill Harshaw offers a stimulating book which will interest all people who accompany others in their experience of faith as growth in trust, as well as emergent belief. It will appeal beyond those already familiar with disability theology among Christians and others. -- Anthony Kramers * Health and Social Care Chaplaincy *This challenging and potentially life-changing book is both a tribute to what Harshaw's daughter has taught her, and testimony to the power of theology to illumine the lives and lighten the load for those whose duty of care can also be, by God's grace, a positive joy. -- The Rt Revd Dr John Saxbee, former Bishop of Lincoln * Church Times *Table of ContentsAcknowledgements. Introduction. 1. A Brief Contextual Survey of Disability in Society and Theology. 2. The Role of Qualitative Research in Intellectual Disability Theology. 3. Issues of Theological Language. 4. Theological Objections and Possibilities. 5. Arguments from Scripture. 6. The Mystical Experience of God. 7. Conclusion. Bibliography.

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Book SynopsisMeet Maria - a woman with Multiple Sclerosis (MS). Maria tells the story of her holiday with her husband Ben, her children Cara and Dino, and Teddy the dog, which was interrupted when she began to feel dizzy, exhausted and weak. She explains how this led to her diagnosis and describes what MS is, how it affects her daily life and what others can do to help.This illustrated book will be an ideal introduction to MS for children from the age of 7, as well as older readers. It will help family, friends and carers to better understand and explain MS, and will be an excellent starting point for group discussions.Trade ReviewAngela Amos has written this book from the heart. The straightforward language describes in an authentic way what Multiple Sclerosis (MS) is, and how it may impact different members of a family, including the person diagnosed with this degenerative disease. It is a poignant story that will speak to both parents and children about feelings that are sometimes difficult to acknowledge and explain and the delightful illustrations help with this too. -- Dr. Lynne Souter-Anderson, Director of Bridging Creative Therapies Consultancy and author of 'Touching Clay, Touching What? The Use of Clay in Therapy' and 'Making Meaning, Clay Therapy with Children and Adolescents'Table of Contents1. Meeting Maria and her family. 2. Becoming ill. 3. Receiving a diagnosis. 4. Professionals who can help. 5. Treatment. 6. How MS affects the family. 7. How Maria manages MS. 8. What is MS? 9. Different kinds of MS. 10. Recommended reading, websites and organisations.

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Book SynopsisPeople with intellectual disabilities are particularly vulnerable to sexual abuse, and offering them psychological support at the earliest possible moment greatly increases their ability to cope with the event and return to daily life. This book provides a complete, structured, evidence-based programme for providing this help to survivors of sexual abuse with developmental disabilities, both adults and children. Step-by-step session plans, as well as comprehensive background information and downloadable worksheets, provide the means by which to offer effective help to clients and recover their feelings of safety and trust. Sessions are also included for helping parents and caregivers to cope with their own reactions and emotions on the discovery of the abuse. Each session is adaptable for the needs of people with severe, moderate and mild intellectual disabilities in order to provide exceptional care to every individual who needs it.Trade ReviewThis important book considers a whole system approach when supporting the needs of individuals with learning difficulties who experience sexual abuse. Practical exercises appropriate to mild, moderate and severe learning difficulties provide a containing and therapeutic experience for the individual at different stages in the recovery process. Essential reading for professionals, parents and caregivers. -- Dr Martina Higgins, former social work manager and co-author of Disability and Child Sexual Abuse: Lessons from Survivors' Narratives for Effective Protection, Prevention and TreatmentThis book is the first of its kind to provide a practical guide for those caring for individuals with intellectual and developmental disabilities in the aftermath of the discovery of abuse. Its approach is unique in that it teaches and empowers those who know the victim best, to support the victim and provide timely - nearly immediate - support, information and guidance. The great thing is that those who provide this support, among them the parents, do not require a degree or extensive training! One can work directly from the book and provide needed support. In addition, the book provides updated information on abuse including incidence and prevalence, vulnerability factors, and empowerment strategies for the direct and indirect victims. I strongly recommend this book. -- Dr. Nora Baladerian, licensed psychologist and author of the Risk Reduction WorkbookTable of ContentsForeword. Acknowledgements. 1. The SOS Handbook. 2. Sexual Abuse of People with an Intellectual Disability. 3. The Legal Framework in Cases of Sexual Abuse of People with an Intellectual Disability. 4. Trauma and Coping with Trauma. 5. Psychological First Aid for Clients with Intellectual Disabilities After Sexual Abuse. 6. Handbook for People with a Mild or Moderate Intellectual Disability. 7. Handbook for People with a Severe Intellectual Disability. 8. Support for Parents of Victims of Sexual Abuse with an Intellectual Disability. 9. Support for Healthcare Professionals Working with Victims of Sexual Abuse. 10. General Information Exercises and Psycho-education. 11. About the Authors.

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Book SynopsisMaking new friends at work can be tricky - it's tough to predict how people will react to certain situations. This 'choose your own response' book can show you how these situations could potentially play out. Some endings are positive and some less so, and the book includes explanations about why particular outcomes may have occurred, so you can learn to avoid those situations. The best part is you can go back and see how a different choice can change the outcome of the story!Trade ReviewI love this book. It is such a helpful, practical teaching tool at just the right length! -- Robyn Steward, author of The Independent Woman's Handbook for Super Safe Living on the Autistic Spectrum.Innovative and appealing, the 'choose your own adventure' style gives the reader a good idea of what to expect when trying to befriend colleagues in the workplace. -- Paul Jordan, author of How to start, carry on and end conversationsPlanning can be key for autistic people, and this book allows you to plan for potentially difficult situations without falling in to the trap of overthinking. -- Paddy-Joe Moran author of Communicating Better with People on the Autism Spectrum: 35 Things You Need to Know

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Book SynopsisThis book describes the Moulster and Griffiths nursing model and demonstrates how learning disability nurses can use it in practice. It provides an effective framework to assess, plan, reflect on and evaluate person-centred care, considering the complex needs of people who have learning disabilities, their families and their carers.Trade ReviewThe authors have produced a book that will not just help nurses practice in a person centred, evidence based and outcome focused way but to also articulate and be explicit about their contribution and the evidence on which they base their practice. This book gives you the tools to apply the model in practice and demonstrate the impact of the learning disability nurse. A key text for nurses and students, this will be a go-to-guide for many years to come. -- Hazel Powell, Nursing Officer for Mental Health and Learning Disability, Welsh Government / Nurse Director Mental Health and Learning Disability, Abertawe Bro Morgannwg University Health BoardIt is great to have a text that is entirely focused on learning disability nursing and, most importantly, on supporting practitioners to improve and enhance their practice in a person-centred, reflective and evidence based manner. A must read for all those involved in learning disability nursing. -- Ruth Northway, Professor of Learning Disability Nursing, University of South WalesThis book provides a refreshing and contemporary focus on the Moulster-Griffiths Model of Nursing. It shines a timely spotlight on the skills and knowledge of the learning disability nurse providing person centred, systematic support to individuals. It will equip students with a clear framework for meeting the holistic health needs of the people they serve but also a useful guide to reflection and personal development. This guarantees its pertinence to learning disability nurses throughout their career. A fantastic resurgence of a nursing model. -- Jo Lay, Associate Director of Student Education, School of Healthcare, University of LeedsI thoroughly enjoyed reading this book which demonstrates the person centred and holistic care which are the hallmarks of learning disability nursing. The evolution of the model and the development of the Health Equalities Framework could not have been better timed. The case students are especially poignant and bring the model to life. The combination of this well thought out model with the latest research will assist nurses improve the healthcare, experience and health outcomes for people with learning disabilities. It is the book to go to for learning disability nurses and students. -- Professor Ben Thomas, London South Bank UniversityWhat does a learning disability nurse do? The Moulster and Griffiths book speaks with passion and integrity, clearly articulating the role of the learning disability nurse and how they support people with learning disabilities to access health care and overcome health inequalities.If you want to understand person and family centred nursing practice, this is the book for you. The Moulster and Griffiths Nursing Model provides a road map for person and family centred nursing practice. It speaks with passion and integrity from the perspective of a person with learning disabilities, family members and experts from practice. A must read for anyone working to reduce the health inequalities that people with learning disabilities face. -- Rebecca Chester MBE, MSC, Post Graduate certificate Academic Practice, RNLD, DiPSWTable of Contents1. Introduction. 2. The Model. 3. Using the Model in Practice. 4. Summary.

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Book SynopsisThis book tells the story of Lyn's House, inspired by Jean Vanier, founder of the L'Arche communities. It is a small Christian house of hospitality and friendship in Cambridge, set in an open community of volunteers and supporters. This is a moving account of its origins and development, and of the friendships it enables.Trade ReviewOnce you have established the theological priority of being with, you need detailed examples and practical wisdom that make clear how being with transforms discipleship, ministry and mission. Those are precisely what this inspiring book provides. These pages offer a vivid and moving witness to what truly incarnational living means and to the rewards it offers. -- Samuel Wells, Vicar of St Martin-in-the-Fields and author of A Nazareth ManifestoTable of ContentsIntroduction. Part 1: Called into Community. Chapter 1: Jean Vanier and a Community in Cambridge, Deborah Hardy Ford (St Andrew's Cherry Hinton) Chapter 2: Sharing in Community, Judith Gardom (University of Cambridge) Chapter 3: Living in Community that Embraces Others, E.S. Kempson (University of Cambridge) Part 2: A Wisdom of Community. Chapter 4:Building Community Beyond Us and Them, Daniel Smith (University of Cambridge) Chapter 5: Wisdom's Call, Suzanna R. Millar (University of Edinburgh) Chapter 6: The Spirit speaks to the church: Shabbat Wisdom, Deborah Hardy Ford (St Andrew's Cherry Hinton) Part 3: Discerning Community Today. Chapter 7: Community as a Sign of Hope, Philip S. Powell (Jubilee Centre) and Ian M. Randall (Cambridge Centre for Christianity Worldwide) Chapter 8: Experiments in Friendship, Patrick McKearney (University of Cambridge) Chapter 9: Why L'Arche? Why Lyn's House? What next?, Theresia Paquet and David Ford (University of Cambridge) Bibliography

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Book SynopsisDefining the role of a job coach, this book sets out EU-wide training standards for helping people with disabilities gain and maintain meaningful employment.The book includes the perspectives of both people with disabilities and their job coaches, offering first-hand experience of the specific issues faced by those who want to enter the competitive open jobs market. It describes how to provide bespoke support for people with an intellectual disability, physical disability, as well as for autistic people and individuals with mental health conditions. Guidance on functional assessment, task analysis, collaborating with employers and training for new and student job coaches is also included.Trade ReviewThis book offers a unique combination of expertise and personal experiences from a broad range of stakeholders...I wholeheartedly recommend this book to all those interested in the subject area of job coaching. -- From the Foreword by Norman Sterritt DMS, MBA, Progression to Employment Service Manager, Triangle Housing Association and Chair, Northern Ireland Union of Supported EmploymentThis book brings us closer to the world of people with disabilities and the work of job coaches. -- From the Foreword by Blazej Piasek, Warsaw, PolandTable of ContentsForeword by Blazej Piasek. Foreword by Norman Sterrit. Preface. 1. What is a job coach for adults with disabilities? Dr Ewa Matuska, Chair of Management, Pomeranian University, Poland. 2. Having a job coach: An insider perspective. Dr Lyn McKerr, Centre for Behaviour Analysis, Queen's University Belfast, UK, and Caterina Metje, Fachhochschule Münster, Germany 3. Job coaches for adults with mental health conditions. Professor Hanns-Rüdiger Röttgers, Fachhochschule Münster, Germany. 4. Job coaches for adults with physical and sensory disabilities. Trish MacKeogh, Dublin Institute of Technology, Ireland, and Marcia Scherer, Centre for Behaviour Analysis, Queen's University Belfast, UK. 5. Job coaches for adults with intellectual disabilities. Dr Ewa Matuska. 6. Job coaches for adults on the autism spectrum. Dr Lyn McKerr and Professor Karola Dillenburger, Centre for Behaviour Analysis, Queen's University Belfast, UK. 7. On-the-job functional assessments. Angelika Anderson, School of Psychology, Faculty of Arts and Social Sciences, The University of Waikato, New Zealand. 8. Dealing with crisis and challenging behaviours. Dr Brian Fennell, Curry College, Milton, MA, USA and Professor Karola Dillenburger. 9. Collaborating with employers. Dr Lucie Procházková, Institute for Research in Inclusive Education, Masaryk University, Czechia, and Dr Helena Vadurová, Institute for Research in Inclusive Education, Masaryk University, Czechia. 10. Being a job coach: An insider perspective. Dr Lyn McKerr and Karola Dillenburger. 11. Guidelines for training job coaches. Marea de Bruijn, Beroepsvereniging Jobcoaches Nederland, Netherlands.

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Book SynopsisThis collection of narratives from autistic adults is structured around their decades of experience of life, covering 20s, 30s, 40s, 50s, 60 and 70s+. These are varied and diverse, spanning different continents, genders, sexualities and ethnicities, yet the author highlights the common themes that unite them and skilfully draws out these threads. Each chapter is based on accounts from one age group and includes accounts from people of that age, giving an insight into the history of autism and signifying how gaining a diagnosis (or not) has changed people's lives over time. The book is about ageing with an autistic mind, and helping the reader find connections between neurotypical and neurodiverse people by acknowledging the challenges we all face in our past, present and futures.Trade ReviewUniquely covering a lifespan and intersecting a range of communities and cultures; This book adds to the growing voice of an enormously diverse population of people who've spent a lifetime suppressing who they are, in order to fit into a world that fears difference. -- Kieran Rose, theautisticadvocate.comToo often, we forget that roughly 75% of Autistic people are adults. Our Autistic Lives is invaluable because it offers intimate insights from Autistic adults in every decade of life, to their seventies and beyond. Ratcliffe's book is crucial reading for understanding autism across the lifespan. -- Maxfield Sparrow, author of The ABCs of Autism Acceptance and No You Don’t: Essays from an Unstrange MindTable of Contents1. Introduction; 2. Our 20's; 3. Our 30's; 4. Our 40's; 5. Our 50's; 6. Our 60's; 7. Our 70's and Beyond

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Book SynopsisThis book provides a comprehensive outline of the major parent training programs for parents of children with intellectual or developmental disabilities (IDD), including Autism Spectrum Disorder.Parents or primary caregivers spend the most time with a child, and training them in behaviour management and intervention strategies is critical to improving a child's behaviour, to helping them to learn new skills, and to reduce parental stress. Authored by eminent specialists in the field and written for researchers and clinicians supporting or treating families, each chapter focuses on one of the key evidence-based parent training programs - from Incredible Years® and Positive Family Intervention through to Pivotal Response Treatment and Acceptance and Commitment Therapy. Each chapter provides a breakdown that features an introduction to the model, evidence for the model, a full description of the model, a discussion of implementation and dissemination efforts, and concluding comments. Grounded in research, this definitive overview provides the evidence and guidance required for anyone considering investing in or running a parenting program.Trade ReviewThe parent child relationship is one of the most durable and important in life. Using evidence-based strategies to support parents in creating a beautiful family life, as well as contributing to the child's long term well-being, is a noble cause; Guastaferro and Lutzker have provided us with the tools to start this process. This book creates a space for loving, scientifically-grounded, and inclusive parent training for families of all backgrounds and life experiences. I am delighted that this resource is available to professionals supporting families. Its impact will be lasting. -- S. Ala’i, PhD, BCBA-D, Associate Professor, Department of Behavior Analysis, College of Health and Public Service, University of North TexasTable of ContentsIntroduction. Chapter 1: Pivotal Response Treatment and Parent Education. Lynn K. Koegel, professor, Stanford School of Medicine, Brittany L. Koegel, & Robert L. Koegel, researcher, Psychology and Behavioral Sciences at Stanford University. Chapter 2: Positive Family Intervention: Using Optimism to Overcome Obstacles to Successful Parenting. V. Mark Durand, professor, University of South Florida St. Petersburg, Shelley Clarke, research associate, University of South Florida-Tampa, & Julia Strauss, graduate assistant, Vanderbilt University. Chapter 3: Incredible Years Training for Families with Children with Developmental Disabilities, Laura Lee McIntyre, professor, University of Oregon & Mallory Brown, psychologist. Chapter 4: The Early Start Denver Model: Parent Adaptation. Melissa A. Mello, therapist and trainer at the MIND Institute, Meagan R. Talbott, postdoctoral fellow, UC Davis MIND Institute, & Sally J. Rogers. Chapter 5: Padres en Acción: A parent education program for Latino parents of children with ASD. Sandy Magana, professor, University of Texas at Austin, Wendy Machalicek, professor, Department of Special Education and Clinical Sciences at the University of Oregon, Kristina Lopez, assistant professor, School of Social Work at Arizona State University, & Emily Iland, adjunct professor, Department of Special Education at California State University, Northridge. Chapter 6: Effective Delivery of PCIT with Children who have an Intellectual and Developmental Disorder. Susan G. Timmer, research scientist, University of California Davis, Brandi Hawk, psychologist, University of California Davis, & Anthony J. Urquiza, professor, University of California Davis. Chapter 7: A Parent Education Program Designed to Enhance the Developmental Growth of Infants at-risk for Autism. Ronit M. Molko-Harpaz, founder, Empowering Synergy Inc, & Kate Guastaferro, assistant research professor, The Pennsylvania State University. Chapter 8: Using Acceptance and Commitment Therapy for Parents of Children with Autism Spectrum Disorder. Kenneth Fung, clinical director, Asian Initiative in Mental Health Program at the Toronto Western Hospital, Lee Steel, coordinator, Extend-A-Family, Kelly Bryce, nurse, Surrey Place Center, Johanna Lake, psychologist, York University, & Yona Lunsky, professor, Department of Psychiatry at the University of Toronto.

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Book SynopsisEmployees with an Autism Spectrum Disorder (ASD) may be hugely beneficial to a workforce, but it can be difficult for individuals with no formal training to manage these employees successfully. This definitive guide will help managers and colleagues successfully interact with and support these professionals on the autism spectrum so as to ensure mutual success.Integrate Autism Employment Advisors use their experience advising employers on how to successfully employ professionals on the autism spectrum to identify the everyday challenges faced by employees with ASD in the workplace and sets out reasonable, practical solutions for their managers and colleagues. Barriers to productivity are highlighted, such as the sensory environment, miscommunication, and inadequate training of colleagues. Easy-to-implement strategies to adapt the working environment are provided, such as agreeing on non-verbal cues to signal ending a conversation or establishing parameters for appropriate email length. This book is an essential resource for anyone who works with professionals on the autism spectrum. It will allow them to engage with and support their colleagues on the autism spectrum in a respectful way and help them achieve a greater level of working success.Trade ReviewMarcia Scheiner and Joan Bodgen's excellent book is a very valuable guide to the challenges that people with autism face in the workplace, balanced with the assets and gifts that they bring to the workplace. Employers and fellow employees will find her book highly readable and helpful in knowing how to accommodate a colleague with autism, acknowledging their disability (which can often be misunderstood) and coming up with ways to make reasonable adjustments for them. In doing so, this will help ensure the workplace is inclusive for people with autism. In turn, the employer will benefit from the talents in people with autism, in excellent attention to detail, perfectionism, going the extra mile, and innovative ways of looking at information. -- Professor Simon Baron-Cohen, Director, Autism Research Centre, Cambridge UniversityThis book is a great asset for organizations and practitioners involved in autism at work employment programs. It outlines some of the challenges that people on the spectrum face in the workplace and provides managers with strategies to deal with those challenges. It is must read for any organization embarking on the neuro-diversity journey. -- Michael Fieldhouse, Dandelion Program Executive, DXC.technology Adjunct Professor Cyber Security, La Trobe UniversityAn Employer's Guide to Managing Professionals on the Autism Spectrum stands out for its comprehensive and contemporary presentation of information. Its delivery of crisp situational guidance makes it unique and especially useful in today's competitive landscape, where employers are looking to tap into this unexplored talent pool. I highly recommend this book to be read not just once, but to be at the ready for managers to create a strong work environment and elicit great performance from those who are on the spectrum. -- James Mahoney, Executive Director, Head of Autism at Work, JP Morgan Chase & CompanyThis book offers an accessible and clear overview for supervisors, co-workers, and individuals on the autism spectrum about how to improve the employment experience for professionals with autism. It provides a useful look at why there is increased interest in improving employment outcomes for this group, potential issues to anticipate, and ways to improve the likelihood of a successful job match and improved outcomes in retention and advancement over time. -- Susanne M. Bruyere, Director, K. Lisa Yang and Hock E. Tan Institute for Employment and Disability, Cornell University ILR SchoolTable of Contents1. Getting Started. 2. The Autistic Professionals. 3. Disclosure and Types of Employees on the Spectrum. Part I. Social Issues at Work. 4. Talking. 5. Social Interaction. Part II. Work Performance. 6. Organization. 7. Time Management. 8. Work Quality. 9. Emotional Regulation. Part III. Sensory Issues at Work. 10. Sensory Overload. Epilogue: The Spectrum of Autism.

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Book SynopsisThis insightful book investigates the experiences of seven women with autism as they transition from childhood to adulthood, and how they make sense of that journey.Taken from the autobiographies of women including Liane Holliday-Willey and Temple Grandin, these accounts shine a light on issues unique to women with autism. Heather Stone Wodis provides a detailed and thoughtful exploration of their common experiences, and each story offers a new perspective that illuminates the diagnosis from a different angle. This is a fascinating look at how generational differences, such as access to the internet, can provide more avenues toward self-expression, political mobilization, and advocacy. It also explores the idea that, no matter the era, the unyielding support of family and a diagnosis in childhood can help girls with autism transition toward adulthood.Trade ReviewGirls with Autism Becoming Women helps establish a historical tradition of memoirs and autobiographies by people on the autistic spectrum. All of the texts analyzed by Stone are written with the urgency of survival at stake by those who find themselves entrapped in various systems of neurotypical oppression. This is a helpful guide for teaching texts that can now be used in multi-disciplinary university classrooms and the discussion helps yield an understanding of neuroatypicality as a form of artistic living interdependently with others. Stone brings her background in Psychology, Sociology, and Disability Studies to bear on the importance of these works. -- David T. Mitchell and Sharon L. Snyder, authors of Narrative Prosthesis: Disability and the Dependencies of Discourse and The Biopolitics of Disability: Neoliberalism, Ablenationalism, and Peripheral EmbodimentWodis details how girls on the Autism Spectrum transition from children to adults, recognizing seven women as a strong 'minority within a minority.' Education, careers, sexual development, and social networks paired with qualitative, interpretive research methodology validate fist-person autie-biographies. Her unique approach relies on grounded theory with systematic, constant comparison. Using Rosemarie Garland-Thomson's situated theory, she socially contextualizes ASD from neuroqueer identity to religious constraints. I applaud her support of autism as an equally valid form of neurological embodiment. I highly recommend this book to those interested in the intersection of Autism Spectrum Disorder and female gender issues. -- Telory D. Arendell, Associate Professor of Theatre and Dance, Missouri State UniversityTable of ContentsIntroduction. 1. Meet the Women. 2. Education. 3. Interests and Career Paths. 4. Sexual Development and Romantic Relationships. 5. Family, Friends and other Networks of Support. Conclusion.

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Book SynopsisCurrent research in Sociology of Disability has a tendency to assume that very little written in this area until the last 20 years. However, this is not always the case. In part the lack of awareness of older writing occurs because of the ease of computerized searching for recent references or a sense that newer is better. It also reflects the assumption that Sociology as a field has ignored either disability as a social phenomenon or treated it solely as a medical phenomenon. While theorists and introductory textbooks have tended [and still tend] to ignore disability as a non-medical phenomenon and especially as a structured source of inequality, that does not mean that no attention was paid to disability in the earlier years. Rather, interest in disability from a sociological point of view exists as early as the late 1800s. The purpose of this volume is to explore that literature, with an eye towards encouraging current scholars not to ask “the same old” questions but to use the older writings as a basis for revolutionary as well as evolutionary thinking. What do the older writings tell us about what questions we should be asking, and what research we should be doing, today?Trade ReviewThis work unites US contributors in sociology, social sciences, and disability studies (most affiliated with the American Sociological Association) to offer sociological perspectives on the conception of disability. The first part of the book surveys pioneering thinkers and works that reveal how the conception of disability was framed in the early years of the American Sociology Society. Several chapters are devoted to the work and ideas of Erving Goffman; other key figures discussed include Spencer Cahill, Saad Nagi, and Irving Kenneth Zola. Later chapters look for insight in theory and research that was not originally centered on the conceptualization of disability. Topics in these chapters include the sociology of deafness, studies on the sibling disability experience, and a review of research on the social experience of parenting disabled children. -- Annotation ©2017 * (protoview.com) *Table of ContentsForeword - Sara E. Green Introduction: An Historical Overview of Sociology Looking at Disability: What Did We Know and When Did We Know It? - Sharon N. Barnartt Invisibility, Visibility, Vilification, and Near Silence: The Framing of Disability in the Early Years of the American Sociological Society - Thomas J. Gerschick and J. Dalton Stevens How Erving Goffman Affected Perceptions of Disability Within Sociology - Sharon N. Barnartt Managing the Emotions of Reading Goffman: Erving Goffman and Spencer Cahill Looking at Disability - Sara E. Green Conceptual Issues in Disability: Saad Nagi’S Contribution to the Disability Knowledge Base - Barbara M. Altman Back to the Future: Irving K. Zola’S Contributions to the Sociology of Disability - Melissa Jane Welch Bringing Our Bodies and Ourselves Back in: Seeing Irving Kenneth Zola’S Legacy - Susan E. Bell a Messy Trajectory: from Medical Sociology to Crip Theory - Justine Egner the Sociology of Deafness: A Literature Review of the Disciplinary History - Laura Mauldin and Tara Fannon Renaming the Wheel: Social Model Constructs in Older Sociological Literature - Rosalyn Benjamin Darling the Sibling Disability Experience: An Analysis of Studies Concerning Nonimpaired Siblings of Individuals with Disabilities from 1960 to 1990 - Morgan Sanchez Struggles and Joys: A Review of Research on the Social Experience of Parenting Disabled Children - Sara E. Green, Rosalyn Benjamin Darling and Loren Wilbers

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Book SynopsisIn austerity Britain, disabled people have become the favourite target. From social care to the benefits system, politicians and media alike have made the case Britain's 12 million disabled people are a drain on the public purse. In Crippled, leading commentator Frances Ryan exposes the disturbing reality, telling the story of those most affected by this devastating regime. This includes a paralyzed man forced to crawl down the stairs because the council wouldn't provide accessible housing; the malnourished woman sleeping in her wheelchair; and the young girl with bipolar forced to turn to sex work to survive. Through these personal stories, Ryan charts how in recent years the public attitude towards disabled people has transformed from compassion to contempt: from society's 'most vulnerable' to benefit cheats. Crippled is a damning indictment of a safety net gone wrong, and a passionate demand for an end to austerity measures hitting those most in need.Trade ReviewFrances Ryan reminds us what real investigative journalism looks like - except that this is a book, compelling in the case it makes. Vulnerable, disabled people are treated with conscious cruelty by politicians who have closed their eyes to the despair they have caused. We know that the welfare state has been almost wrecked, but Frances Ryan's impeccable research shows, in detail, what this means in the daily lives of those with disabilities. Keep this book on your shelves, refer it often, and use the ammunition in its pages to bring back compassion and dignity for all our citizens.' -- Ken Loach, director of I, Daniel Blake"This devastating depiction of the impact of austerity on disabled people should shake our political system to its foundations. Frances Ryan forensically exposes the scandalous politics that have left so many disabled people cold, hungry, living in poverty and pain and often suicidal. It's a cry from the heart but more importantly it's a determine demand for change." -- John McDonnellRyan is an expert in her field. Furthermore, as a disabled person writingabout disabled peopleas rights and issues, her voice is a vital additionto the debate. Essential reading. -- Baroness Tanni Grey-ThompsonNo one has done more to shed light on how austerity is harming disabled peoples lives. This book is so important, it should be read at least by every policy maker in the country. -- Jess Phillips, MPFrances Ryan reminds us what real investigative journalism looks like - except that this is a book, compelling in the case it makes. Vulnerable, disabled people are treated with conscious cruelty by politicians who have closed their eyes to the despair they have caused. We know that the welfare state has been almost wrecked, but Frances Ryan's impeccable research shows, in detail, what this means in the daily lives of those with disabilities. Keep this book on your shelves, refer to it often, and use the ammunition in its pages to bring back compassion and dignity for all our citizens. -- Ken Loach, director of I, Daniel BlakeThis devastating depiction of the impact of austerity on disabled people should shake our political system to its foundations. Frances Ryan forensically exposes the scandalous politics that have left so many disabled people cold, hungry, living in poverty and pain and often suicidal. It's a cry from the heart but more importantly it's a determined demand for change. -- John McDonnell'A fascinating insight into the harsh realities of living as a disabled person in the 21st century. A must read for anyone with a conscience' -- Lee Ridley, Lost Voice Guy"I wish I could force everyone in the UK to read this book. It's a ferocious, thoroughly substantiatedindictment of this government's maltreatment of its disabled children, women and men. It's not a secret that austerity is a choice, but Frances Ryan intimately maps this calculated evil and the cost, in lives, it exacts." -- Rob DelaneyA brilliant, bitter blend of polemic and reportage that is certainly worthy of Orwell but which, more importantly, is eminently worthy of the betrayed citizens whose lives have been blighted by Tory austerity. It's high time a writer should do our disabled friends, family, colleagues and neighbours justice. It is forensic in its condemnation. It will make you rage. -- Lucy Rhiannon CosslettFiercely angry, compulsory, and shocking reading - shining a vital light on the cruelty austerity Britain has meted out to those with disabilities. Do not look away. Read this and fight back. -- Angela ClarkeFrances and her columns were a constant source of inspiration as we researched and prepared I, Daniel Blake. She never loses sympathy for the human experience, nor lets the personal story undermine the razor sharp analysis of power. Crippled is another stunning piece of investigative journalism. It does make the blood boil, and cuts right through the propaganda. -- Paul Laverty, Screenwriter of I, Daniel BlakeA devastatingly on-point critique of austerity politics and the worsening attitudes towards those with disabilities. * Morning Star *A devastating look at both the policies that impact disabled people and the toxic rhetoric behind them - and what needs to change to make it right. * Vice *In Crippled, Frances Ryan, a fine journalist, broadcaster and campaigner for disability rights, robustly stacks up the evidence that ought to put politicians - especially chancellors - in the dock. -- Yvonne Roberts * Observer *Crippledis a timely read that could bring anyone out of a Brexit news-induced stupor. * politics.co.uk *Comprehensively and competently dissects the spin behind austerity, and its most unpardonable effects. -- https://www.leftlion.co.uk/read/2019/june/live-review-dr-frances-ryan-crippled-waterstones/ * LeftLion *A powerful polemic * Guardian *This powerful book by respected journalist, Frances Ryan is the perfect wake-up call for anyone sleep-walking through austerity -- Simon Duffy * Fabian Review *A blistering polemic, full of telling details. * Guardian *A powerful book ... Austerity kills and it is killing disabled people. Ryan does a brilliant job of describing the human costs. * Fabian Society *Frances Ryan's Crippledpowerfully brings into sharp focus the lived experiences of disabled people. -- Sam Smethers * Fawcett Society *Timely * Red Pepper *Everyone should read this book * Labour Briefing *A powerful statement of a compelling social issue ... [that] should be noted for the personal reading lists of students, academia, political activists, government policy makers, and non-specialist general readers. -- Susan Bethany * Midwest Book Review *Read [Crippled], get angry and act: some of society's most marginalised people are depending on it. * Independent *Ryan takes us on a tour of Britain to demonstrate how the rights of disabled people have been curtailed. Crippled marshals wide-ranging research and on-the-ground reportage as well as bristling with anger. It's sobering, but fundamentally necessary. * Financial Times [for the audiobook edition] *

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Book SynopsisA darkly comic and moving reflection on what it means to be human in a world where nothing is certain, from the award-winning Oxford professor'The best book about multiple sclerosis'THE TIMES'An outstanding feat'SUNDAY TIMESWe all have trapdoors in our lives. Sometimes we jump off just in time ... But sometimes we are unlucky. My own trapdoor was hidden in the consulting room of an Oxford neurologist.When the trapdoor opened for Robert Douglas-Fairhurst, he plummeted into a world of MRI scans, a disobedient body and the crushing unpredictability of a multiple sclerosis diagnosis. But, like Alice tumbling into Wonderland, his fall did something else. It took him deep into his own mind: his hopes, his fears, his loves and losses, and the books that would sustain, inform and nourish him as his life began to transform in ways he could never have imagined.From Kafka to Barbellion, this is a literary map of the journey from the kingdom of the well to the land of the sick, and forwards into a hopeful future. It's an ode to great writing, to storytelling, to science and to the power of the imagination.Trade ReviewMetamorphosis is the best book I have read about multiple sclerosis, and that is because it is about so much more... It is simply a beautiful piece of writing. * The Times *A pitch-perfect memoir: stylish, erudite, touchingly honest and darkly funny. -- Jacqueline Wilson, author of The Story of Tracy BeakerAn outstanding feat of bravery and brio... A buoyantly written, piercingly perceptive book. * Sunday Times *A beautiful and devastating portrayal of a life-changing diagnosis... It is what the best writing should be: a book that will stay with you for life. -- Natalie Haynes, author of A Thousand ShipsThe writing is all elegance and wit. * The Times, *2023's Top 50 Non-Fiction Books* *An account of living with multiple sclerosis that is both deeply literary and painfully honest as it charts his journey into ill health. * Financial Times, *Summer Reads of 2023* *Heartening and unexpectedly gripping... An immensely powerful book... It persuasively builds the case for the ability of stories to offer hope and solace; to help us become ourselves, over and over, even in extremis. * Spectator *Written by an entertaining storyteller and offers a rare insight into a situation that few people will have to face, but that it does us good to contemplate. * Mail on Sunday *While this book deals with distress, physical pain and uncertainty, its wry humour and lightness of touch make it anything but a misery memoir... Superb. * Times Literary Supplement *Douglas-Fairhurst has written a memoir that is not miserable. It's funny and raw... Magical: pages speed by, fuelled by the author's formidable intellect. * Financial Times, *Book of the Week* *

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Book SynopsisThis honest, to-the-point guide illuminates the experience of young Autistic girls and explores the situations they can easily fall victim to.Powerful case studies show how easily misunderstandings can arise for Autistic girls and help the reader to identify common patterns of abuse.Providing professionals with access to safeguarding strategies that are straightforward to implement and highly effective, this is essential reading for everyone who wants to better understand the challenges faced by this vulnerable group, and ensure they have access to the same opportunities to secure a good education and build safe and happy relationships as their peers.Trade ReviewAs a super proud Nana and advocate to my awesome autistic 11 year old grandson Carly's insight, lived experience and practical strategies, all delivered with empathy, humour and a 'you can do it' attitude have been invaluable. You might not have Carly on speed text like me, but you do now have this book. A must read for any parent, carer, friend or professional who wants to better understand safeguarding in a wider context to protect an autistic young person. -- Melanie Bryan OBE, DL, HFIOEE, FRSACarly Jones MBE packs this book with her personal insights in autism and her extensive, professional experience as an advocate for autistic girls and women. Her passion to enable each and everyone of us to safeguard autistic people, is evident throughout the book, which is written with compassion and creativity. Safeguarding Autistic Girls is a frank call to action, that cannot be ignored. -- Oriana Morrison-Clarke, Neurodevelopmental Services Manager (NHS)Alive with personal insights and the experiences of many, Carly's much-needed book illuminates the vulnerability of autistic girls and young women in modern society. The range of tested tips and strategies provided - from an autistic insider's perspective - make this a must-read for any professional in the field. -- Dr Ruth Moyse, Institute of Education, University of ReadingTable of ContentsChapter 1 - The Current Situation; 1 Why Are Autistic Girls Vulnerable?; 2 Team Diagnosed Vs Team Undiagnosed; 3The Autistic lens Vs the Mental Health lens; 4 The Problem with the Educational System; 5 We Can't Carry On this way; Chapter 2 The Risk To Autistic Girls' Safety; 1 Sexual Abuse; 2 Bullying and Mate Crime; 3 Teen Pregnancy; 4 Radicalisation and Gangs; 5 Childhood Marriage and Domestic Violence; Chapter 3 How to Identify a Girl at Risk; 1 Masking; 2 Drink and Drug Use; 3 Eating Disorders; 4 The Common Scapegoat; 5 Burnout; Chapter 4 Tried and Tested Strategies for Support; 1 Working With Individuals; 2 Working with other Professionals; 3 Keeping an Intersectional Mindset; 4 Working with the Family; 5 The Lifesaving Gift of a Peer Group; Chapter 5 Designing and Sustaining a New Blueprint ; 1 The Untapped Oil; 2 Ideas for the Educational System; 3 Employment and Media4 Equal Access to Safeguarding in Healthcare; 5 Access to Justice and Legislation Loopholes

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Book SynopsisThe relationship between metal and disability isdistinctive. Persisting across metal's sub-genres isa preoccupation with exploring and questioning theboundary that divides the body that has agencyfrom the body that has none. This boundary is onethat is familiar to those for whom the agency of thebody is an everyday matter of survival. Metal'spreoccupation with unleashing and controllingsensorial overload acts both as an analogue ofneurodiversity and as a space in which those whoare neurodivergent find ways to understand andleverage their sensory capacities.Metal offers potent resources for the self-understanding of people with disabilities. It doesnot necessarily mean that this potential is alwaysexplored or that metal scenes are hospitable tothose with disabilities. This collection is disability-positive, validating people with disabilities asdifferent but not damaged. While metal scholarswho contribute to this collection see metal as aspace of possibility, in which dis/ability and otherintersectional identities can be validated andunderstood, the collection does not imply that thepossibilities that metal affords are alwaysactualised. This collection situates itself in a widerstruggle to open up metal, challenging its powerstructures; a struggle in which metal studies hasplayed a significant part.

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Book SynopsisAn Open Access edition of this book is available on the Liverpool University Press website and through Knowledge Unlatched.Disability and the Posthuman is the first study to analyse cultural representations and deployments of disability as they interact with posthumanist theories of technology and embodiment. Working across a wide range of texts, many new to critical enquiry, in contemporary writing, film and cultural practice from North America, Europe, the Middle East and Japan, it covers a diverse range of topics, including: contemporary cultural theory and aesthetics; design, engineering and gender; the visualisation of prosthetic technologies in the representation of war and conflict; and depictions of work, time and sleep. While noting the potential limitations of posthumanist assessments of the technologized body, the study argues that there are exciting, productive possibilities and subversive potentials in the dialogue between disability and posthumanism as they generate dissident crossings of cultural spaces. Such intersections cover both fictional/imagined and material/grounded examples of disability and look to a future in which the development of technology and complex embodiment of disability presence align to produce sustainable yet radical creative and critical voices. Trade Review‘Alas, I have no space to say more than that this is a beautifully produced book both as an aesthetic object and as a thought-provoking text. Together with its compelling scholarship, the reading experience of Murray’s Disability and the Posthuman could scarcely be bettered.’Margrit Shildrick, Lambda'Murray makes a strong case that to understand modern film, literature, and contemporary society, people who have not thought much about disability studies should do so ... Murray's book provides many helpful ideas for this exploration.' Arthur Blaser, Disability Studies Quarterly

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Book SynopsisAn Open Access edition of this book is available on the Liverpool University Press website and through Knowledge Unlatched.Disability and the Posthuman is the first study to analyse cultural representations and deployments of disability as they interact with posthumanist theories of technology and embodiment. Working across a wide range of texts, many new to critical enquiry, in contemporary writing, film and cultural practice from North America, Europe, the Middle East and Japan, it covers a diverse range of topics, including: contemporary cultural theory and aesthetics; design, engineering and gender; the visualisation of prosthetic technologies in the representation of war and conflict; and depictions of work, time and sleep. While noting the potential limitations of posthumanist assessments of the technologized body, the study argues that there are exciting, productive possibilities and subversive potentials in the dialogue between disability and posthumanism as they generate dissident crossings of cultural spaces. Such intersections cover both fictional/imagined and material/grounded examples of disability and look to a future in which the development of technology and complex embodiment of disability presence align to produce sustainable yet radical creative and critical voices. Trade Review‘Alas, I have no space to say more than that this is a beautifully produced book both as an aesthetic object and as a thought-provoking text. Together with its compelling scholarship, the reading experience of Murray’s Disability and the Posthuman could scarcely be bettered.’Margrit Shildrick, Lambda'Murray makes a strong case that to understand modern film, literature, and contemporary society, people who have not thought much about disability studies should do so ... Murray's book provides many helpful ideas for this exploration.' Arthur Blaser, Disability Studies Quarterly

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Book SynopsisBy exploring the economic and social value of disabled people with positive entrepreneurial traits and adaptive skills, this innovative book breaks away from normative entrepreneurial studies to recognise the overlooked value in disabled entrepreneurs.In the study of entrepreneurship, the social tendency to disregard people with disabilities has caused a paucity of knowledge about the successful ventures of disabled people worldwide. Seeking to improve public understanding of disabled entrepreneurs, this pioneering book re-evaluates their identity, value and contribution beyond economic, cultural and geographical contexts. Chapters explore disabled entrepreneurs from non-Western economies and marginalised social segments, with a focus on emphasising the importance of disabled women entrepreneurs from developing economies as agents of change for society and the economy. Exploring the push and pull factors that exist for disabled people in the entrepreneurial ecosystem, chapters disassemble the socially institutionalised barriers to important sources of value creation by disabled entrepreneurs.With a global scope, this book will prove invaluable for students and scholars of entrepreneurship and business management. With expert insights into innovative practices and evidence-based policymaking from a range of disabled entrepreneurs, it will be a vital resource for entrepreneurs looking to build and grow inclusive and successful ventures.Table of ContentsContents: Introduction to the Research Handbook on Disability and Entrepreneurship xix Shumaila Yousafzai, Wilson Ng, Shandana Sheikh and Thomas Coogan PART I THE PUSH AND THE PULL FACTORS FOR DISABLED ENTREPRENEURS 1 Follow your dreams? Push and pull motivations of entrepreneurs with disabilities in Hungary 2 Sara Csillag, Zsuzsanna Gyori, Anna Laura Hidegh and Carmen Svastics 2 “Underdog” entrepreneurs? Identifying processes of opportunity creation among visually impaired founders of new ventures 20 Wilson Ng 3 Creating my own job: Australian experiences of people with disability with microenterprises, self-employment and entrepreneurship 35 Simon Darcy, Jock Collins and Megan Stronach 4 The push and pull of entrepreneurship for individuals with autism spectrum disorder 59 Eric Patton 5 Entrepreneurial activity among disabled entrepreneurs with visible and invisible impairments: a literature review 77 Wilson Ng 6 Entrepreneurship and disability: research in a Spanish university 85 Rosa M. Muñoz, Yolanda Salinero and M. Valle Fernández 7 Awareness and attitudes towards social entrepreneurship among university students and disabled people: the case of the Czech Republic 99 Ondřej Kročil, Richard Pospíšil and David Kosina PART II ENTREPRENEURIAL ECOSYSTEM: BARRIERS AND FACILITATORS 8 Enterprising? Disabled? The status and potential for disabled people’s microenterprise in South Korea 114 Se Kwang Hwang and Alan Roulstone 9 Designing public policy to support entrepreneurial activity within the disabled community in Ireland 131 Thomas M. Cooney 10 How entrepreneurs with physical and mental health challenges can benefit from an entrepreneurial ecosystems approach 143 Mirza Tihic, Gary Shaheen and Felix Arndt 11 The role of government policies in establishing a conducive entrepreneurial environment for disabled entrepreneurs in China 160 Tiansheng Yang, Shandana Sheikh, Shumaila Yousafzai and Xiangxin Yang 12 The need for an inclusive entrepreneurial ecosystem for women with disability in Pakistan 182 Shandana Sheikh 13 Disabled women entrepreneurs and microfinance: a road less travelled (for a reason)? 196 Nadeera Ranabahu and Farzana Aman Tanima 14 A preliminary analysis of the impact of COVID-19 on the mental wellbeing of entrepreneurship students 208 Sylvie Studente, Filia Garivaldis and Wilson Ng 15 The hidden entrepreneurs: disability and entrepreneurship in Kazakhstan 221 Shumaila Yousafzai and Yerken Turganbayev 16 Inclusive entrepreneurship in Palestine: context and prospects of people with disabilities 238 Wojdan Omran and Leila Farraj PART III THE IDENTITY AND CONTRIBUTION OF DISABLED ENTREPRENEURS 17 The making of a (dis)abled entrepreneur: an entrepreneurial identity perspective 247 Mukta Kulkarni and Yangerjungla Pongener 18 The opportunity to contribute: disability and the digital entrepreneur 262 Tom Boellstorff 19 Disabled entrepreneurs creating value in Iran’s entrepreneurial ecosystem 279 Vahid Makizadeh, Shumaila Yousafzai, Siavash Aein Jamshid and Adel Mohebbi 20 The contribution of disabled entrepreneurs in the Sultanate of Oman 297 Eric V. Bindah Index

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