Disability: social aspects Books

Book SynopsisAnne's sister Becky was born in 1958, long before most people had even heard of autism. Diagnosed with "emotional disturbance," Becky was subjected for much of her childhood to well-meaning but futile efforts at "rehabilitation" or "cure," as well as prolonged spells in institutions away from her family.Painting a vivid picture of growing up in small-town America during the Sixties, Anne describes her sister's and her own painful childhood experiences with compassion and honesty. Struggling with the separation from her sister and the emotional and financial hardships the family experienced as a result of Becky's condition, Anne nevertheless found that her sister had something that "normal" people were unable to offer. Today she is accepting of her sister's autism and the impact, both painful and positive, it has had on both their lives.This bittersweet memoir will resonate with families affected by autism and other developmental disorders and will appeal to everyone interested in the condition.Trade ReviewThis is a gripping book about a family's survival to get their daughter disgnosed. When they finally receive a disgnosis they are told it is autism. It takes you through the journey from when Becky was a baby until she was in her forties. It covers all the challenges the family encounter just to survive and some of the rewards they receive for being persistent. Readers will be won over by the herat-warming story of this family, who have usually encountered some of the same roadblocks as other families coping with autism. -- Good Autism PracticeThe journey from early childhood through puberty and into adulthood is movingly documanted in a frank and critical way... This book shows how autism can have an impact on siblings and their efforts to reconcile their own developmental needs with the challengeing demands of a sister with autism. -- DebateTable of ContentsIntroduction. Chapter One. Chapter Two. Chapter Three. Chapter Four. Chapter Five. Chapter Six. Chapter Seven. Chapter Eight. Chapter Nine. Chapter Ten. Chapter Eleven. Chapter Twelve. Chapter Thirteen. Chapter Fourteen. Chapter Fifteen. Chapter Sixteen. Chapter Seventeen. Chapter Eighteen. Afterword.

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Book SynopsisFamilies of Adults with Autism is a collection of real-life stories of people on the autism spectrum growing up, as told by their parents and siblings.The individual accounts explore the challenges that families of people with autism have faced, and the techniques they have used to improve the quality of their children's lives, from mega-doses of vitamins and dietary changes to intensive interaction. The contributors also relate how they have worked with their children or siblings to help them to function at their highest possible level, be it showing an awareness of their environment, holding down a full-time job in a local store, competing in the Special Olympics, or achieving international recognition as an artist.This book will offer practical and heartwarming advice to families who are affected by autism spectrum disorders, and provide insights for professionals working with people with ASDs.Trade ReviewThis is a very moving collection of stories, as is the story of its publication, but it is also full of information, determination and hope. -- GAPI recommend this book to any social worker or social work student -- in fact, anyone who wants to get a feeling for what it is like to live with and care for an individual with ASD. -- British Journal of Social WorkA collection of real-life stories of people on the autism spectrum growing up, as told by their parents and siblings. -- Current Awareness ServiceTable of ContentsForeword. Stephen M. Edelson, PhD, Director of the Autism Research Institute, USA. 1. Helen Landalf. Helen Landalf, daughter of Dr Bernard Rimland. 2. Joan H. Goble, M.D. Joan H. Goble, pediatric opthamologist. 3. Jean and Michael Curtin. Jean, mother of Michael and Michael Curtin, writer. 4. Katie Dolan. Katie Dolan, activist, president of Seattle ASA. 5. John Henley. John Henley, father of Sean. 6. Gerda McCarthy. Gerda McCarthy, Director-founder, International Autistic Research Organization/Autism Research Ltd. 7. Toby Arenberg. Toby Arenberg,Co-founder, Jay Nolan Community Services. 8. Raymond Gallup. Raymond Gallup, Co-founder and Director, Vaccine Autoimmune Project. 9. Julie Gallup. Julie Gallup, daughter of Ray. 10. Clara Claiborne Park. Clara Claiborne Park, author. 11. Carol Croke. Carol Croke, Co-founder, The Autism Society of Oregon. 12. Matthew DeLuca. Matthew DeLuca, father of Peter. 13. Jinny and Bill Kemmel. Jinny and Bill Kemmel, parents of Bill. 14. Elaine Woodruff. Elaine Woodruff, mother of Kristina Woodruff, artist with autism. 15. Ann Laferty-Snowhook. Ann Laferty-Snowhook, Co-founder, Jay Nolan Community Service. 16. Jordan Snowhook. Jordan Snowhook, son of Ann. 17. Elizabeth Snowhook. Elizabeth Snowhook, daughter of Ann.18. Kim Oakley. Kim Oakley, writer. 19. Irina Lobkovitz. Irina Lobkovitz, mother of Henry. 20. Kristin Zhivago. Kristin Zhivago, mother of Michael. 21. Sue Swezey. Sue Swezey, Co-founder, San Francisco Bay Area Chapter, Autism Society of America. 22. Edith P. Gray. Edith P. Gray, mother of Michael. 23. Beth Sposato. Beth Sposato, editor, `The A Book: A Collection of Writings from ASA ADVOCATE, 1979-89'. 24. Sharon Lettick Crotzer. Sharon Lettick Crotzer, daughter of Amy Lettick, Founder of Benhaven 25. Ruth C. Sullivan. Ruth C. Sullivan, PhD, founder of Autism Services Center and first president of ASA. 26. Toshiko Lyons. Toshiko Lyons, mother of Edmund. 27. Sally Graham. Sally Graham, mother of Edward. 28. Lawrence Stream. Lawrence Stream, doctor and father of LW. 29. Maxine Richards. Maxine Richards, mother of Randy. 30. Arlene J. Paster. Arlene Paster, Co-founder, Jay Nolan Community Services 31. Mary Laird Flanagan. Mary Laird Flanagan, former president, ASA Long Island. 32. Dr. and Mrs. William K. Henry. Rev William K. Henry, Ed.D., and Jan Henry, wife and mother of Andrew. 33. Francine M. Bernstein. Francine H. Bernstein, founder of the BLARE House Program. 34. Dorothy Beavers. Dr Dorothy Beavers, author of Autism; Nightmare Without End. 35. Jim Cockey. Jim Cockney, composer. 36. Audrey Flack. Audrey Flack, artist.

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Book SynopsisIn the United States alone, there are roughly three million individuals living with a developmental disability, but less than a third are active in the labor market. This book provides a comprehensive approach to developing a successful jobs program for persons with developmental disabilities, drawn from the author's extensive experience and real success.The majority of persons with developmental disabilities are unemployed, underemployed, or still work in sheltered programs where it is almost impossible to reach their full potential. Job success is possible, but it requires a system based on a business model based on proven economics, rather than the traditional social services model. By employing a step-by-step procedure for gaining insight into the client, analyzing market opportunities, matching the client to a job, and supporting the client after placement, service providers can help individuals make a successful transition into good community-based employment.Job Success for Persons with Developmental Disabilities will be essential reading for profit and non-profit rehabilitation service organizations, private job development businesses, government funding agencies, special education job placement programs, transition specialists, and families of persons with developmental disabilities.Trade ReviewThe book is well structured and written in a clear stuyle... The practical tone fo the book clearly reflects Wiegan's many years experience in the field of supporting and progressing individuals with developmental disabilities. There are some sections of the book that are useful as a refresher for experienced Occupational Psychologists and as useful background for new Occupational Psychologists. -- Journal of Occupational Psychology, Employment and DisabilityTable of ContentsChapter 1. The Philosophy of Employment. Chapter 2. The Business Model. Chapter 3. Understanding Job Success. Chapter 4. Understanding the Client. Chapter 5. The Job Development Plan. Chapter 6. Individual Job Development. Chapter 7. Corporate Job Development. Chapter 8. Natural Supports. Chapter 9. Understanding the Job. Chapter 10. On the Job Training. Chapter 11. Job Coaching. Chapter 12. Financial Success. Chapter 13. Hiring and Training Staff. Chapter 14. Mythology. Chapter 15. Health, Diet, and Socialization. Chapter 16. Organizations, Structures, and Ethics. Addendum: Principles of Job Success. References. Index

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Book SynopsisGetting to Grips with Asperger Syndrome is a practical, problem-solving guide for those caring for or supporting an adult with Asperger Syndrome (AS). It will help them understand the condition and the difficulties it may cause, so that they can offer support in the most beneficial way.The book explains what AS is and why certain behaviours frequently occur: such as anxiety, fear of change and unusual sensitivities. Once behaviours and reactions are understood, many of the apparent problems become less troublesome, and difficulties can be avoided or easily-resolved. Practical strategies are offered to combat problems that may arise, and common issues that specifically occur with individuals diagnosed later in life are addressed.Easy-to-read and accessible, this book is a useful reference for friends and family of individuals with AS, as well as health and social care staff and students, whatever the level of training and experience.Trade ReviewThe success of this book is truly in the author's ability to convey in each chapter what Asperger Syndrome may look like on a day to day basis... In a remarkable way, the author is describing and illustrating the most insignificant and potentially trivial daily issues all of us encounter by through the eyes of the individual with Asperger Syndrome which transform these circumstances and situations into a true and rather different challenge... The book would be very useful and helpful to parents and other family members, educators and Para-professionals. A very well written, easy to read and rooted in reality exposure book that sheds light on the population of adults with AS which at times get forgotten. -- Journal of Autism Developmental DisordersTable of ContentsIntroduction. 1. What is Asperger Syndrome? 2. Differential Diagnosis. 3. Memory, Attention and Understanding. 4. Practical Difficulties and Everyday Tasks. 5. Language and Conversation. 6. Social Rules and Relationships. 7. Problem-solving and Coping with Change. 8. Coping with Anxiety and Other Emotions. 9. Obsessional Interests and Other Common Characteristics. 10. Needs and Service Development. Further Reading. Index

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Book SynopsisFrom the liberation of the electric wheelchair to the ignominy of discrimination and incarceration, there have been both great advances and terrible setbacks for disabled people in Britain over the last fifty years. Hard-hitting and hilarious, personal and poignant, CripTales comprises six fictional monologues portraying some very real experiences. From negotiating friendships and personal assistants, navigating the benefits system, and experiencing sexual fulfilment, they challenge the view that having a disability is a problem or ‘not normal’. Normal doesn’t exist! CripTales was commissioned by the BBC and broadcast on BBC Four and BBC America in 2020 to mark the twenty-fifth anniversary of the UK’s Disability Discrimination Act, which criminalised discrimination against disabled people in many areas of life. The production had disabled people at its core – as writers, directors and actors of all six monologues. Mat Fraser, the series’ Creative Director, said, ‘Disabled voices have been shut out of mainstream TV drama for too long and this is a chance to showcase some of the wonderful, inventive, funny, dramatic, sexy and sobering potential available… We called the series CripTales, as the word ‘crip’ has been taken by the disabled community as a self-empowering title since the late ’80s, and these are authentic stories and tales from people who identify as Deaf and Disabled people and who are embedded in disabled community.’Trade Review'Hilarious and wise and gentle and furious all at once' * The Times *'Moving and authentic… succeeds both as a collective artistic statement, and as an unusually in-depth experience in disability awareness… an emotionally complex, topically diverse series that makes a strong statement for the disability experience and disabled artists’ unique ability to interpret it' * Forbes *'A brilliant, shocking, and funny collection… feels like a significant step forward' * Culture Whisper *'Sharp, dark and unexpected all at once… these monologues give Alan Bennett a run for his money' * The i paper *'Thought-provoking, amusing and touching' * Financial Times *

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Book SynopsisImagine a world without sight. Is it dark and gloomy? Is it terrifying and isolating? Or is it simply a state of not seeing, which we have demonised and sentimentalized over the centuries? And why is blindness so frightening? In this fascinating historical adventure, Broadcaster and author Selina Mills takes us on a journey through the history of blindness in Western Culture to discover that blindness is not so dark after all. Inspired by her own experience of losing her sight as she forged a successful journalistic career, Life Unseen takes us through a personal and unsentimental historical quest through the lives, stories and achievements of blind people - as well as those sighted people who sought to patronize, demonize and fix them. From the blind poet Homer, through the myths and moralising of early medieval culture to the scientific and medical discoveries of the Enlightenment and modern times, the story of blindness turns out to be a story of our whole culture.Trade ReviewWritten with wit, warmth and razor-sharp insight, this book should be essential reading for anyone with an interest in blindness, history, society, culture and beyond. -- Anna Bonet * Non-fiction book of the month, The i *Informative, heartfelt … This admirable book dispels myths around the condition. -- Martin Chilton * The Independent *Spirited, irreverent … Life Unseen offers an illuminating peek into one woman’s world, and asks searching questions of us all in terms of the different ways in which we perceive our world. There are no glib answers because blindness, as Life Unseen demonstrates, is a subject riven with ambiguity and complexity. In this important and hugely enjoyable book, Mills clears away some of the myths and injustices that surround it. -- Susan Flockhart * The Herald *It’s an extraordinary account of blindness, the mythology that surrounds it, the fallacies and taboos connected to it, and the attitudes towards it throughout the ages. Written by an author who is herself blind, it’s filled with fascinating information, practical insights and teaching moments about the nature of imagination, language and perception of our world. -- Joanne Harris * The Guardian *Selina Mills’s defiant book is a thundering challenge to our sighted notions of blindness, a resounding battle cry for a revolution in our age-old perceptions of being blind that should be read by sighted people everywhere. -- Wendy Moore * Times Literary Supplement *A beautiful, tender and inspiring book about seeing the world in a different way. * Peter Frankopan *Spirited … [A] powerful memoir-cum-manifesto. -- Ysenda Maxtone Graham * The Spectator *A powerful and erudite social history of blindness in the Western world interwoven with an extraordinarily moving but unsentimental account of her own gradual life-long descent into blindness. -- Julia Hamilton * The Catholic Herald *A much-needed and powerful examination of what it is to be blind. -- Simon Evans * Choice *Selina Mills de-mystifies blindness both in its material reality as well as its manifold superstitions. That she does this with wit and intelligence makes this a superb and memorable read. * Stephen Kuusisto, Syracuse University, USA *An original, well-researched work that provides superb insight into the world of people with visual impairment. * Hektoen International *What is it like to be blind-or nearly blind? In this enchanting, quirky memoir, Selina Mills leads us through her life among the curious, pitying, and well-wishing sighted. Anecdotes from myth, religion, literature, and medicine reveal the blind as devil, prophet, victim, genius, exhibit, disabled—and clown. The book’s cheerful revelation is that the blind are ‘ordinary’, that darkness is not all dark. * Janet Todd *Selina Mills crafts a compelling narrative that illuminates and animates the story of a community that has always existed but has been relegated to the margins and the shadows. Mills takes readers along on her personal journey as she comes to terms with her own blindness with candor and warmth. She shares her fears, her irritation, her rage, and yes, her joy, as her contemporary story resonates with the lives of famous and lesser known blind writers, musicians, inventors and leaders from the past and present. This book will help to reform the image of blindness from a tragedy that must be overcome to simply another facet of human diversity. * Georgina Kleege, University of California, Berkely, USA *The metanarrative of blindness hangs over us all, invites us to identify as sighted or blind, and thus to follow numerous binary assumptions that pertain to everything from sexuality to epistemology. Life Unseen helps to disrupt the myths, tropes, and stereotypes of the metanarrative via the often under-rated power of memoire. As such, the book makes an important contribution to blindness studies. * David Bolt, Professor of Disability Studies and Interdisciplinarity at Liverpool Hope University *This is a wonderfully refreshing account of blindness. With a winning mix of wit and erudition, Mills cuts through the stereotypes and clichés of blindness to give us a funny, touching and memorable account of her quest to understand why blindness gets such a bad press. Part history, part memoir, Mills’s writing takes us through an alternative history of blindness whilst reflecting with honesty and beauty on her personal journey into sight loss. A significant contribution to the field of critical blindness studies. * Hannah Thompson, Royal Holloway University of London, UK *Selina Mills achieves that finest of balances in Life Unseen, to discuss important intellectual and social issues in an entertaining and occasionally light-hearted way. Through an examination of topics such as schooling, a love of reading and writing and the popular need to cure blindness, Mills examines trends both current and historical, providing a very real experience of the cultural concept of blindness and what it is to be a blind person. * Simon Hayhoe, University of Bath, UK *I have been waiting, and hoping, for a book like this one. In Life Unseen, Selina Mills engages the myths and realities of blindness in ways that are both deeply researched and powerfully personal. Challenging stereotypes that have accrued over centuries, honoring the experiences of blind people past and present, Mills offers us a cultural history of blindness that is welcoming, whip smart, and surprisingly witty. This is a must read, and a very pleasurable read, for anyone interested in what blindness means and why blindness matters. * Vanessa Warne, University of Manitoba, Canada *This is a deeply personal and remarkably courageous book, exploring historical and literary constructions of blindness as manifestations of heroism or tragedy which set blind people apart from society as distinctly ‘others’. It argues convincingly that such stereotypes should be aside so that blind people can voice their own diverse experiences as ordinary human beings. * Anna Sapir Abulafia, Oxford University, UK *Table of ContentsPrologue: Close Your Eyes Chapter 1: Imagining It - Nandy and Mythic Heroes Chapter 2: Living With It – Dark Versus Light Chapter 3: Faking It – False Eyes, False Devils Chapter 4: Fixing It – The Lure of the Cure Chapter 5: Learning It – Educating "The Blind" Chapter 6: Reading It – Pure Fiction Chapter Seven: Inventing it – Who Decides What You See? Conclusion: What is Blindness Anyway? Index

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Book SynopsisDomestic violence is encountered by disabled women more frequently than non-disabled women, yet disabled women are less likely to receive appropriate services, and there has been little research on their experiences and how this problem can be addressed.This book, drawing on the first UK national study of disabled women who have suffered domestic violence, highlights the experiences of these women, the nature of the violence perpetrated against them, and the seriousness and range of its impacts. The book draws attention to the gaps in services for disabled women and discusses how professional responses should be developed and improved, pointing to current examples of good practice. It includes first-hand accounts from disabled women and includes contributions from leading disabled women activists.This book will be important reading for students, practitioners, policymakers and academics in the fields of disability and domestic violence.Trade Review...this book is a valuable and timely examination of disabled women's experience of domestic violence. -- Disability & SocietyDisabled women face multiple challenges and discrimination, both in their experiences of domestic and sexual violence, and in gaining access to appropriate services….I hope this book will be a wake-up call for professionals and activists in all relevant statutory and voluntary agencies to review our own policy approaches and ensure that in all our local consultations and strategic planning, the findings and messages in this book, and the voices of disabled women survivors, are heard. -- From the Foreword by Nicola Harwin, Chief Executive, Women's AidTable of ContentsForeword by Nicola Harwin CBE, Chief Executive of Women's Aid Federation of England. 1. Introduction. 2. What the research tells us: A story of gaps and lacks. 3. Disabled women's experiences of domestic violence and abuse. 4. Professional responses to disabled women affected by domestic violence. 5. Understanding our history: the personal is political (Brenda Ellis and Ruth Bashall). 6. Nothing about us without us: policy and practice (Ruth Bashall and Brenda Ellis). 7. Ideas for moving forward: good practice and recommendations. 8. Looking more widely: strategic agendas and incorporating issues for disabled women experiencing domestic violence. 9. Conclusions.

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Book SynopsisLosing a loved one and coping with the subsequent adjustments that follow are a difficult fact of life, but people with learning disabilities face specific difficulties in processing and managing these changes. Adopting an integrative approach, this book acknowledges the importance of helping relationships in supporting this vulnerable group through periods of loss and bereavement.The author explains how to engage the person with a learning disability in talking therapy by creating an open dialogue. Common signs of stress, factors to consider in assessing risk and advice on how best to approach difficult subjects are presented. The role of supervision in counselling and issues surrounding terminal illness are also discussed, and practical solutions offered.Professionals working in the field of learning disabilities, such as counsellors, therapists, carers and health and social care students will find this informed guide beneficial in communicating and supporting people with learning disabilities.Trade ReviewThe book provides in depth information on the impact of loss and how this affects all aspects of an individual's life... The case studies provide practical examples and the key points at the end of each chapter assist with emphasising the main messages... There is practical advice for professionals and carers on how to discuss the impact of loss and bereavement with individuals with learning disabilities, including ways to communicate and the use of simple, clear and unambiguous language. The book also addresses the impact of loss for adults with autism and those who have additional communication needs which is particularly useful... The book would be a practical resource for occupational therapists, support staff and students. -- College of Occupational Therapists Section for Learning DisabilityThere are so few books on this very important subject, so it is wonderful to see anew publication. Robin Grey is a new voice amid the small group of practitioners and researchers who have been working in recent years to highlight and address some of the complexities of supporting people with learning disabilities through bereavement.The book is written by an experienced practitioner who has firsthand experience of this issue. It is accessible and welcoming to readers who may be put off by more academic texts. Its aim is very clearly to guide others supporting bereaved people with learning disabilities. -- Bereavement Care, Noelle Blackman, Deputy chief executive, RespondRobin Grey's book is rooted in his practical experience working in day and residential services for people with learning disabilities... While I am very familiar with these ideas, Grey writes about them in a straightforward, helpful and concise manner. -- Community LivingTable of Contents1. Introduction and overview. 2. How bereavement and loss can be different in learning disabilities. 3. Stages of loss. 4. Assessment. 5. Developing understanding around bereavement and loss. 6. Therapeutic tasks. 7. Working with families. 8. The carer's role in bereavement. 9. Working with clients who have additional communication needs. 10. Role of supervision. 11. Working with terminal illness. 12. Remembering and anniversaries. Useful organisations and resources. Further reading. Index.

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Book SynopsisLeaving home and moving to college or university can be a daunting experience. In this easy-to-use book, Rosemary Martin provides guidance and invaluable advice for students on the autism spectrum as they plan for and settle into college life.Packed with straightforward methods for coping and succeeding away from home, this book focuses on the particular needs of people with Asperger Syndrome, and covers every aspect of student life - from how to get up on time for lectures, to the art of living with other people and attending to the basics of personal health care. Rosemary Martin's helpful hints encourage everyone to make the most of student life in a style that suits them and reassure the reader that going to college is a big deal for every student, regardless of whether or not they are on the autism spectrum.This cheerful and pragmatic guide is an absolute must for any student on the spectrum about to embark on a university or college education.Trade ReviewAs I am mother of a son soon to leave the nest, I found it very encouraging. -- ASTeensWhile highlighting useful information and basic practical tips, the author writes with gentle humor and insight. Top Tips for Asperger Students: How to Get the Most Out of University and College, would be beneficial for every new student. -- Penny Hastings - Foreword ReviewsTable of ContentsAbout the Authors. Acknowledgements. Foreword. 1. Introduction. 2. The Daily Routine. 3.Managing Your Time. 4. Socializing. 5. The First Week at University. 6. Feeling Good About Yourself: The Physical Stuff. 7. Feeling Good About Yourself: The Mental Stuff 8. Money Matters. 9. Getting a Job while at University. 10. All About Food and Drink. 11. Managing Your Stuff. 12. Cleanliness is next to Godliness. 13. Living accommodation. 14. Getting about. 15. Studying. 16. Getting the most out of university. 17. Expanding Your Horizons. 18. The End (but it is just the beginning). Checklist: What to Take with You to University. Budget Planner. Useful Websites. References. Index.

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Book SynopsisAdopting a predominantly psychological approach, this book provides carers with up-to-date information and resources to provide appropriately individualised care to people with learning disabilities who self-injure. Understanding and Working with People with Learning Disabilities who Self-Injure synthesises traditional (behavioural) and newer (psychological) approaches to understanding self-injury, drawing on psychoanalytic and social theory to provide practical guidelines for more sustained and effective support. It suggests that motivations for self-injury may be similar for people with and without learning disabilities, and draws on case work examples to suggest person-centred techniques that encourage communication – particularly important with people who do not use verbal communication - and recovery. The book covers a range of specific needs, including people with autism who self-injure, and emphasises the views of people with learning disabilities themselves and their families about what has worked best, and why. At the end of each chapter, a variety of practical implications for the provision of support are given.This book is for those supporting people with learning disabilities who self-injure and will be a useful resource for social workers, psychologists, counsellors, learning support workers, nurses and social and health care students.Trade ReviewThis welcome book on self-injury has been put together by some of the best practitioners working with people with learning disabilities in the UK today. They have succeeded in bringing together social, psychological and service-user perspectives to inform our understanding and develop our skills. I am delighted to recommend it. -- Baroness Sheila Hollins, Executive Chair, Books Beyond Words and crossbench life peerTable of ContentsAcknowledgements. 1. Introduction. Andrew Lovell, University of Chester, UK and Pauline Heslop, University of Bristol, UK. Part 1. 2. Dimensions of Self-injury. Andrew Lovell and Pauline Heslop. 3. Social Approaches to Understanding Self-injury. Pauline Heslop. 4. Psychoanalytic Approaches to Understanding Self-injury. Pauline Heslop and Richard Curen, Respond, UK. 5. The Voice of Experience: People with Learning Disabilities and their Families Talking About How They Understand Self-injury. Pauline Heslop and Fiona Macauley, Bristol Crisis Service for Women, Bristol, UK. Part 2. 6. Minimising Harm. Helen Duperouzel and Rebecca Fish, Calderstones NHS Trust, UK. 7. What People with Learning Disabilities Say Helps Them. Pauline Heslop and Fiona Macaulay. 8. Family Voices. Andrew Lovell. 9. Psychoanalytical Approaches in Practice I. Valerie Sinason, Clinic for Dissociative Studies, UK. 10. Psychoanalytical Approaches in Practice II. Noelle Blackman, Respond, UK and Richard Curen. 11. Self-injury and Loss of Sense of Self. Phoebe Caldwell, Intensive Interaction practitioner. 12. A Relational Approach to Understanding Our Responses to Self-injury. Gloria Babiker, University of Bath, UK. 13. Conclusion. Pauline Heslop and Andrew Lovell. References. Contributors. Index.

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Book SynopsisParties and celebrations can be highly challenging for children and teens on the autism spectrum and they can often feel reluctant to participate. This book shows that if parties embrace the differences intrinsic to autism, and are planned carefully, they can be inclusive events enjoyed by all.Drawing on personal experience with her son, the author highlights aspects of conventional parties that can heighten the anxieties of those on the spectrum and outlines practical solutions to these issues. The book covers considerations for party invitations, prizes, food and venues and includes chapters suggesting activities for age groups 2-8, 9-12 and teenagers. This book will empower parents and caregivers to plan stress-free parties with ease, enabling those on the autism spectrum to develop social skills and self-confidence – and most importantly, have fun!Trade ReviewThis book is about how to get the best "party" deal for your autistic child/children and the best "party" future. The author recognises that social events like parties can often expose an autistic child in a cruel and harmful way, and her aim is to mitigate any damage in this respect... Reynolds understands from a 'in your shoes' perspective, which is a position which gains much respect in the autism community... she shares her best tips and practice. -- Action for Asperger'sReynolds book has good flow and structure throughout'A former nurse and counselor, a mother of an autistic child, Reynolds knows first-hand the difficulties of attending social engagements with a youngster who is on the spectrum. Here she offers a concise and practical guide to important considerations for hosting or attending parties.... Not only will parents of autistic children find helpful suggestions for parties, but any family hosting a child with autism would do well to review Reynolds's work and see how they can best make appropriate accommodations. Recommended for all libraries.' -- Library JournalI really liked the fact that the book was broken down from children to teens and higher and low functioning, giving different ideas for both, from simpler formats with not many activities, to more complex ones. -- Netbuddy.co.ukIt's great to have a "checklist" style guide to planning and attending parties for kids on the autism spectrum. As a mom who, without much forethought, invited a whole class full of autistic kids over for a fun afternoon, I can say that a little pre-planning can go a long way. Especially helpful are the specific recommendations for menus, activities and pre-planning. Bounce houses, trampolines, swimming pools and soft play centres are all ideal for non-competitive, low-stress venues for kids who enjoy sensory experiences but may have a tough time with organized games or social activities. -- Lisa Jo Rudy, author of Get out, Explore, and Have Fun! How Families of Children with Autism or Asperger Syndrome Can Get the Most out of Community Activities and writer for www.autismafter16.com and www.authenticinclusion.orgGiving or attending parties with a child on the autistic spectrum can be immensely challenging, and what should be fun for both of you can end up in distress and chaos. This practical book is full of sensible and useful advice for anticipating every problem and negotiating the way around it, written by one who knows exactly what she's talking about - a mum, of course. -- Jane Asher, President of the National Autistic SocietyTable of ContentsAcknowledgements. Introduction. 1. Difficult Aspects of Conventional Parties. 2. Home Versus Public Venues. 3. Using Party Invitations as Visual Aids. 4. Examples of Party Plans. 5. Considering Sensory Issues and Developmental Level at Parties. 6 Challenging Aspects of Party Food. 7. Party Bags, Favours and Prizes. 8. Party Activities for 2-8 Year Old Children with ASD. 9. Party Activities for 9-12 Year Old Children with ASD. 10. Parties for Teenagers with ASD. 11. What to do When Things Go Wrong. 12. Conclusions, Further Advice and Support. Appendix 1. Diagnosis of Autism Spectrum Disorders. Appendix 2. The Picture Exchange Communication System (PECS). Appendix 3. Makaton. Appendix 4. Visual Cues. Appendix 5. Social Stories. References.

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Book SynopsisThis book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible.An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.Trade ReviewThis is an excellent book. It is thought provoking, and well-structured. It enables the reader to develop better insights into the impact of receiving bad news, not just for people with learning disabilities, but also in mainstream life. It deserves a place on everyone's bookshelf. -- Bereavement CareIrene Tuffrey-Wijne has written a thoroughly researched and clinically sound primer on how to break important, life-changing news to people with intellectual disabilities...This is a wise book deeply embedded in scholarly research and direct patient care and I commend it to everyone concerned about someone with intellectual disability and their future. -- Baroness Sheila Hollins, Professor of the Psychiatry of Learning Disability at St George's, University of London, and a crossbench life peer in the House of LordsI found this book a pleasurable read, despite the delicate subject matter. It is clearly written and is full of examples that are instantly recognisable in my daily practice. The book highlights the importance of helping clients understand bad news situations regardless of their level of intellectual disability, and proves how including a client's support network in the process can be crucial in ensuring that bad news is successfully relayed. Practical and easily accessible, this book finally provides us with a set of solid guidelines to support our practice! -- Marja Oud, palliative care lead and unit manager in a residential facility for people with intellectual disabilities, NetherlandsAs a parent, I wish I had been able to use this book by Dr Irene Tuffrey-Wijne when my daughter was slowly dying. Her guidelines are realistic, reassuring and rooted in a deep understanding of the highly individual needs of people with intellectual disabilities. It makes total sense to me that breaking bad news is a process, not an event. It demonstrates that it is possible to support someone with intellectual disabilities to come to terms with painful issues. -- Jan Sunman, parent carer and participant in Dr Irene Tuffrey -Wijne's researchTable of ContentsForeword by Professor Baroness Sheila Hollins. Section 1: Background. 1. Introduction. 2. Intellectual Disabilities. 3. What Is Bad News? 4. Breaking Bad News: Knowledge, Skill and Guidelines So Far. 5. Why We Need New Guidelines for Breaking Bad News. Section 2: Guidelines for Breaking Bad News. 6. Overview of the Guidelines. 7. Component 1: Building a Foundation of Knowledge. 8. Component 2: Understanding. 9. Component 3: People. 10. Component 4: Support. Section 3: Using the Guidelines. 11. How Can We Break the Knowledge Down into Chunks? 12. When Can We Start Building Knowledge? 13. Who Can Give Chunks of Knowledge? 14. Who Should Be Told? 15. How Much Can Someone with Intellectual Disabilities Understand? 16. Communicating with People with Intellectual Disabilities. 17. Can Someone Be Harmed By Receiving Too Much Information? 18. Sudden Bad News. 19. What If People Disagree about Breaking Bad News? 20. Some Further Advice. Section 4: Examples of the Model in Practice. 21. Introduction to the Examples. 22. Example A: Jeremy and Christine have cancer. 23. Example B: Ahmed and Carol have to move. 24. Example C: Moira, Ben and Isabel's friend has dementia. Section 5: Appendices. Appendix 1: Flow Chart: A One-Page Overview. Appendix 2: Ten Guiding Questions. Appendix 3: The Mental Capacity Act. Appendix 4: Resources. References.

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Book SynopsisExploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience.This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life.Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.Trade ReviewPersonally and professionally loss and bereavement present us with challenges not least acknowledging our common human responses whilst at the same time recognising individual experiences. In presenting theory and exploring its application to individualised support this book responds to this challenge making a timely and helpful contribution to supporting people with intellectual disabilities in an often neglected area of practice. -- Ruth Northway, Professor of Learning Disability Nursing, University of South WalesI commend the authors on the insights and practical suggestions, underpinned by theoretical explanations and the use of evidence-based research. This book should be a valuable resource to practitioners and students in services that seek to compassionately support people with intellectual disabilities to continue to grow and have fulfilling lives after experiences of loss. -- From the Foreword by Professor Owen Barr, Head of School of Nursing, University of UlsterLoss and death are inescapable parts of life's rich tapestry; and it is a sad reality that people with intellectual disabilities are often excluded from exploring sensitive issues that surround loss and death. This is why, for me, this book is so valuable, for we are slowly but surely moving to a new era as to how this group of people make sense of loss and death and how we can support them. Through a series of well-constructed chapters that consolidate issues surrounding loss for people with intellectual disabilities, the book moves on to provide a unique evidence-based text that will be of considerable value to all those who work with people with intellectual disabilities, so that they might be helped to better understand loss and death as inescapable parts of life; in much the same ways as other citizens. The editor has successfully brought together a range of eminent and authoritative contributors who present a range of issues from the broad based nature of loss, particularly in relation to this population, and the contextual nature of appropriate care and support. I believe that this ground breaking and unique book will be of considerable value as a resource to practitioners and students alike who seek to support people with intellectual disabilities with compassion through their experiences of loss. ...[T]he editor and contributors are to be congratulated on the production of a highly relevant and contemporary text that I have no hesitation in both endorsing and recommending to all involved in supporting and, or, caring for people with intellectual disabilities through the experience of loss and death. -- Bob Gates, Professor of Learning Disabilities, University of West London, Institute for Practice, Interdisciplinary Research and Enterprise (INSPIRE) and Editor of the British Journal of Learning DisabilitiesThis work, edited by Professor Read, does not shrink from addressing challenging topics including a person's sense of being deprived of rights and journeying through life's transitions. Some journeys are planned while others are unexpected or unwelcome, but all need to be sensitively addressed. Every health, social and educational professional/carer should read this text so as to be able to effectively support people with intellectual disabilities through life defining and shaping times. -- Jim Blair, Consultant Nurse Intellectual Disabilities, Great Ormond Street Hospital, Associate Professor Kingston and St. George’s Universities, and BILD Health AdvisorEditor Sue Read has assembled a strong international team of authors from the UK, Ireland, USA and Australia that includes researchers, clinicians, a parent and a woman with an intellectual disability, so providing multiple perspectives on key issues. The primary focus is on people with intellectual disabilities, but importantly several chapters focus on the needs and experiences of caregivers (both family members and disability service staff). The book is characterised by empathy and compassion, with a consistent emphasis on similarities not differences. Issues are contextualized through analysis of theories about death and bereavement, as well as through emphasising the spectrum of responses to death and dying. This is a practical book with information about assessment and instruments, as well as practice tips. Most chapters include an individual story or detailed case study. Without exception these are very sensitively told and of immense assistance in understanding and responding to the issues in human terms. Those providing personal or professional support to a person with an intellectual disability who has experienced loss will find this book a rich and rewarding source of information, practical ideas and inspiration. -- Roger Stancliffe, Professor of Intellectual Disability Centre for Disability Research and Policy, The University of Sydney, AustraliaTable of ContentsAcknowledgements. Foreword by Owen Barr, Head of School of Nursing, University of Ulster, UK. Contributors. Introduction. Sue Read, Professor of Learning Disability Nursing, Keele University, UK. Part I: Theoretical Perspectives. 1. Loss in the Caring Context. Sue Read. 2. Living with Loss. Sue Read and Mary Davies, a woman with intellectual disabilities and member of Reach, UK. 3. Grief and Mourning. Sue Read. 4. Complicated Grief. Philip Dodd, Director of Psychiatry, St. Michael's House, Clinical Senior Lecturer, Trinity College Dublin and Senior Lecturer, Centre for Disability Studies, University College Dublin, Ireland, and Noelle Blackman, CEO of Respond and Research Fellow, University Hertfordshire, UK. 5. Spirituality. William Gaventa, Director of Community and Congregational Supports, Elizabeth M. Boggs Center on Developmental Disabilities and Associate Professor, UMDNJ-Robert Wood Johnson Medical School, Georgia, US. 6. Psychological Support in Health Care. Helena Priest, Senior Lecturer, Keele University and Research Director, Doctorate in Clinical Psychology, Staffordshire University, UK. Part II: Contemporary Practice Issues. 7. Loss and Resilience. Linda Machin, Honorary Research Fellow, Keele University, UK. 8. Working Creatively to Facilitate Loss. Sue Read. 9. Caring Fatigue. Ted Bowman, Adjunct Professor, University of Minnesota (Family Education) and University of Saint Thomas (Social Work), Minnesota, US. 10. Supporting Professional Carers. Michele Wiese, Research Associate, University of Sydney, Australia. 11. Advocacy, Empowerment and Communication. Patsy Corcoran, REACH Coordinator, Asist Advocacy Services, UK. Part III: Specialist Contexts and Considerations. 12. Loss, the Family and Caring. Mike Gibbs, Lecturer in Learning Disability Nursing, Keele University, UK. 13. Loss and People with Autism. Rachel Forrester-Jones, Reader in Health, Community and Social Care, Tizard Centre, UK. 14. Loss in Forensic Environments. Ben Hobson, Clinical Psychologist, National High Secure Learning Disability Service, Rampton Hospital, UK, Sue Read and Helena Priest. 15. Supporting Children and Young People with an Intellectual Disability and Life-Limiting Conditions. Erica Brown, Senior Lecturer in Early Childhood, Institute of Education, University of Worcester, UK. 16. Loss and End of Life Care. Karen Ryan, Consultant in Palliative Medicine, St Francis Hospice and Mater Hospital and Senior Investigator, All Ireland Institute of Hospice and Palliative Care, Suzanne Guerin, Centre for Disability Studies, University College Dublin and All Ireland Institute of Hospice & Palliative Care and Phil Larkin, School of Nursing and Midwifery, University College Dublin and All Ireland Institute of Hospice & Palliative Care, Ireland. 17. Living with Shattered Dreams – A Parent's Perspective. Mandy Parks, parent of a daughter with severe disabilities, UK. 18. Research, Inclusivity and Marginalised Groups. Sue Read. Conclusion. Sue Read. References. Index.

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Book SynopsisMany health and social care professionals today feel untrained, fearful and ill-equipped to support their disabled patients, clients and service users in their sexual lives. The result is that disabled people can be left feeling frustrated and afraid that their sexual needs will be forever unrecognised and unmet. This is a straight-talking guide to supporting disabled people with their sexual lives. It covers the range of difficulties disabled people experience, from physical limitations to problems such as lack of acceptance, knowledge and skills. The real difficulties professionals experience are also covered with positive suggestions, and a chapter on communication discusses how to discuss sex. Sections follow on the sexual services available to help, and the wide range of sexual diversities which disabled people can and do enjoy. A chapter by Claire de Than covers the law.This clear, down-to-earth guide will be essential reading for all those working with or supporting disabled people, from care home workers and managers to social workers, medical staff and therapists.Trade ReviewPeople with disabilities have, too often, been denied sexual happiness and expression. Although attitudes are slowly changing, there is a long way to go. Tuppy's helpful anecdotes and lack of jargon make for an inspiring read which will give practitioners the confidence to discuss sex with their disabled clients. -- Helen Dunham, PSHE SEN Teacher and Shada MemberTuppy deserves national recognition for decades of challenging our collective neglect of the emotional, social and sexual needs of people with impairments. In the face of media, fashion and beauty industry promotion of perfect bodies, which cruelly makes disabled people 'outsiders', Tuppy has tirelessly campaigned and developed resources for the hundreds of thousands of UK people whose needs for friendship, affection and sex we marginalize and ignore. -- Andy Beckingham, FFPH, Consultant in Public HealthOur sex lives have been censored, ignored and unsupported, and Tuppy suggests many simple, respectful and clever ways in which this can be turned around. I hope her insightful book can contribute to improve the sex lives of many previously isolated or sexually frustrated disabled people. -- Mat FraserThis book is relevant to a broad range of professionals coming into contact with a broad range of disabled people. Whether physically, visually or hearing impaired, or with learning difficulties, deaf-blind or those with ME, social anxiety or Asperger's syndrome. This remarkable book will support all. -- Maria Oshodi, VI Artistic Director and CEO of ExtantTable of ContentsPreface. 1. Disabled People's Sexual Needs. 2. Difficulties Disabled People Face. 3. Difficulties Health and Social Care Professionals Face. 4. The Law. 5. Supporting Young Disabled People and their Parents. 6. Communication. 7. Specific Professions and the Allied Therapies. 8. Sexual Services. 9. Sexual Diversity. Postscript. Index.

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Book SynopsisThis book demonstrates very clearly how the personalisation of support and services works in practice. The authors describe how Jennie, a young person with autism and learning difficulties, was supported through the transition from school to living independently using simple, evidence-based person-centred planning tools. Jennie's story illustrates the importance of quality person-centred reviews, dispels the many myths surrounding Individual Service Funds and personal budgets and demonstrates how families, schools and other agencies can work collaboratively to help young people with disabilities move into adulthood with more choice and control over their lives, and with better life prospects. Practical pointers for readers to apply to their own circumstances are included, and the book contains helpful examples of the key person-centred thinking tools. Anyone involved in supporting children and young people with disabilities as they approach adulthood, including parents and carers, SENCOs, teachers, social workers and service providers, will find this to be essential reading. More generally, it will be an informative resource for those seeking a better understanding of how personalisation and person-centred planning work in practice.Trade ReviewThis book is intended for anyone involved in supporting young people with disabilities as they approach adulthood. -- Autism eyeThis is a much-needed resource for families and professionals and is especially helpful at a time when people are considering the implications and opportunities relating to the new SEND (Special Educational Needs and Disability) system set out in the Children and Families Bill... One of the top ten Preparing for Adulthood messages is that local areas should "raise aspirations for a fulfilling life, by sharing clear information about what has already worked for others". Thank you Jennie, Suzie, Helen and Jennie's circle for sharing your experiences. This book will help local areas achieve this and ensure other young people and families have positive experiences of moving into adulthood and better life chances. -- from the foreword by Nicola Gitsham, Programme Manager, Preparing for AdulthoodAs President of The Association of Directors of Children's Services (ADCS) for the year 2013/14, I have been privileged to work closely with a number of key people in central government departments, with colleagues across the voluntary and independent sectors and with other local authorities. There is enormous commitment across the country, at all levels, to bring about a culture change in the way we identify strengths and needs, and provide support to children with additional needs and their families. Suzie's story reinforces my view that significant change should and can happen, and we must make it happen. -- from the afterword by Andrew Webb, President of The Association of Directors of Children's Services Ltd (ADCS) and Corporate Director, Services for People, Stockport CouncilThis is clearly going to be a useful - and inspiring - resource for anyone wishing to support a person they care for to live the life they choose. What I like about it is that it goes beyond the rhetoric of personalisation to make it a reality by showing how those who know the person best can come up with creative and innovative solutions to overcome some of the barriers traditional thinking might put in the way of progress. The 'Circle of Support' is a particularly powerful idea. -- Mark Lever, Chief Executive, National Autistic SocietyAs a mother of two sons with autism, I feel gratitude to Suzie Franklin for setting out so clearly the path she and her daughter Jennie have taken... This book shows how Jennie's team, headed by Suzie, have achieved an excellent outcomes through "Jennie-centred" planning... given the right kind of living environment, with all their priorities and idiosyncrasies taken into consideration, they can lead rich, fulfilling, interactive lives.Personallisation in Practice explains the process step by step, while at the same time painting a vivid picture of Jennie's vibrant, life-enhancing personality. This is an immensely useful book for parents and professionals -- Charlotte Moore, author of George And Sam- Autism in the Family * Children and Young People Now *This book provides essential information for families and professionals to help them support young disabled people to make the most of the personalisation agenda, and gain more choice and control over their lives. Person-centred planning is a key part of this process... this book is refreshing... packed with references to more in-depth information... this book is a great resource, demonstrating good practice and useful tips and tools to make personalisation a reality for many more people. -- Maria Chambers, executive principal, Scope * Children & Young People Now *This book deals with the first author's personal experiences of personalisation. It tells the story of her daughter,Jenny, from the diagnosis of autism through to independent adulthood, focusing on how personalised services can be set up for the transition from school to adulthood. The second author has been heavily involved in the government personalisation agenda... It is valuable that the challenges the author faced, both practical and emotional, are also included, as this offers the reader ideas about how to overcome similar challenges... The book is easy to read, well structured, and divided into logical chapters that are easy to access. It could be readcover-to-cover very quickly, which is ideal for busy parents and professionals.It would be of use for professionalsworking in transition services or, perhaps even more so, parents looking ahead to supporting their child in thetransition to adulthood. -- Kirsty Gilmour, Occupational Therapist, The Evelina London Childrens' Community OT Service * British Journal of Occupational Therapy *Table of ContentsForeword by Nicola Gitsham. Introduction. 1. Early Years. 2. Transition and Person-Centred Reviews. 3. Jennie's 'Circle of Support'. 4. Thinking About a Personal Budget and Developing Jennie's Support Plan. 5. Finding Jennie a Place to Live. 6. Finding the Provider. 7. Getting the Right Staff for Jennie. 8. Training and Supporting Staff to be 'Jennie Experts'. 9. Making it all Happen - Person-Centred Reviews and Change. 10. Two Years On - A New Path. 11. Our Advice for Families, Providers and Local Authorities. Afterword by Andrew Webb. Appendix: Person-Centred Planning Tools. Index.

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Book SynopsisThis best practice guide provides a blueprint for managing seamless transitions between services for young people aged 16-25 with additional needs, including learning disabilities, physical disabilities, complex health needs and sensory impairments. The authors cover a wide range of transitions, including moving from children's to adult's services, from school to college, leaving education and gaining work experience and employment and supporting young people to live independently. They include key information on policy and legislation, the statutory duty of local authorities and health, housing and education agencies, and describe the impact of the new Education, Health and Care (EHC) Plans. With a wealth of practical, common sense guidance for navigating this complex area of work in a timely, efficient and cost-effective manner, the book will guide practitioners and students step-by-step through the process of managing transitions, highlighting best practice and providing evidence-based models to ensure the best possible outcomes for service users and their families. An essential resource for all those involved in supporting young people with additional needs through transitions, including social workers and social work students, occupational therapists, speech and language therapists, health professionals and special education teachers.Trade ReviewOf great value not only because of its comprehensive coverage and detailed illustrations of timely issues in welfare and social service provision for young persons with disabilities... but also because of its step-by-step guidance for service delivery. This is particularly informative and helpful to the helping professionals in China, especially those working on the frontline in service planning for young persons with special needs. -- China Journal of Social WorkTransitions are notoriously difficult times for young people, their families - and especially so for those with disabilities. All too often the heavy case load pressures on staff mean that key legal requirements are overlooked and valuable relationships are lost when key professionals 'move on' during the perpetual reorganisations that occur in health and social care.A book spelling out the key good practice, policy and legal requirements during the transition process is long overdue and most welcome. It is all the more important given the major legal and policy changes that flow from the enactment of both the Children and Families Act 2014 which creates new and detailed obligations on social services authorities in relation to disabled children, their carers and young carers negotiating the transition process. -- Luke Clements, Cerebra Professor of Law, Cardiff Law SchoolTable of ContentsAcknowledgements. 1. Why is Achieving Successful Transitions for Young People with Disabilities so Important? Jonathan Monk, Young Adults Team, Worcestershire County Council, UK. 2. Transitions and Special Educational Needs. 3. Transitions and Children's Services. 4. Transitions and Personalisation. 5. Transitions and Employment. 6. Transitions and Housing. 7. Transitions and Health. 8. Transitions and Decision Making. 9. Transitions and Carers. Conclusion. Appendix 1: Benefits Table. Appendix 2: Sample One Page Profile.

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Book SynopsisChild Protection and Parents with a Learning Disability provides the practical knowledge that professionals need in order to understand common intellectual disabilities and how they might affect parenting capability. It presents clear guidance on how to carry out effective assessments and explains how interventions might differ when working with parents who have a learning disability. It covers a broad spectrum of disabilities, including borderline conditions and Autism Spectrum Disorder. The book also explores a number of emotional and mental health issues that can occur alongside learning disabilities, such as ADHD, anxiety, depression, and attachment disorders, to show how they should be understood in the context of cognitive abilities and the parenting role. Empowering practitioners to make informed decisions about children's welfare, this is a must-have guide for all professionals working with families where a parent is affected by a learning disability.Trade ReviewPenny Morgan's book provides a detailed insight into the lives of parents with learning disabilities, borderline learning disabilities, mental health support needs and autism. It clearly describes these groups of parents' vulnerability, individuality and the complexity of their situations, while also providing workers with an understanding of the types of issues that these parents may well face. A wide range of strategies that workers can use to make their practice more effective and enabling are provided. This book should be read by the wide range of practitioners, including frontline parenting support workers and health professionals as well as child protection professionals, who work with parents so that services are able to respond to the needs of these vulnerable groups of parents. -- Beth Tarleton, Norah Fry Research CentreAn invaluable guide for social workers working with learning disabled parents in the child protection context, providing an in depth analysis as to how learning disability can affect parenting and how best to engage with and find the right support for the client. The book is full of practical tips on how to make learning a positive and non-threatening experience, and how to plan and deliver an appropriate assessment. It also provides a very useful reference tool for the family lawyer tasked with considering whether their client has been assessed fairly and sensitively and given an opportunity to change within an informed and 'managed' framework. -- Abigail Bond, Barrister at St John’s Chambers and Author of 'Care Proceedings and Learning Disabled Parents'Table of ContentsChapter 1: Introduction. Chapter 2: Mild learning disability and how it affects parenting. Chapter 3: Borderline learning disability and parenting. Chapter 4: Mental health and learning disabilities. Chapter 5: Autistic spectrum disorder. Chapter 6: Parenting, emotions and attachment. Chapter 7: The assessment process. Chapter 8: Working with families. Chapter 9: Conclusions.

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Book SynopsisYoung people with autism spectrum disorders (ASD) often feel uncomfortable and anxious in social situations, but socializing with classmates and colleagues can be made easier - and more enjoyable - with Guiding Toward Growth group sessions.John Merges' simple yet effective program for teaching social enjoyment skills is based on the concept that there are ten hurdles that make it challenging for people with ASD to enjoy social interaction. This book guides the reader through planning, running, and assessing group sessions that have been designed to help participants overcome these hurdles, interact with confidence, and ultimately enjoy more independent and fulfilling lives. As social interaction is a vital element of any work environment, this book also teaches young adults with ASD an important employment skill.This adaptable book can be used with a wide range of ages and communicative abilities, and will be an invaluable resource for all professionals working with groups of children and young people with ASD.Trade ReviewReaders can refer to the final section of the book for vivid descriptions of the fun activities and even templates for parental permission letters and game boards... He offers novice practitioners helpful tips and ways of conceptualizing working with groups on the spectrum. -- Journal of Autism Developmental DisordersThis book is structured well and easily accessible. The refreshing focus throughout is on supporting young people with autism spectrum disorders to develop the skills needed to enjoy interaction. There is also an emphasis on supporting young people to develop skills that will allow them to function better within the workplace.The information provided would allow an experienced practitioner to set up and run the groups described.This book would be very useful for speech and language therapists working with children with autism spectrum disorders within educational and community settings. -- Speech & Language Therapy in PracticeJohn's work aids people in understanding the barriers that interfere with social interaction and gives people clear, profound ways to improve social functioning. He keeps the 'fun' in functional. -- Janet L. Oliver, M.A., Neurodevelopmental SpecialistJohn Merges has a wealth of knowledge in working with and advocating for individuals with Autism Spectrum Disorders Students who have attended reported their enjoyment in the social interactions and the friendships that they have developed during the group. Elements of John's strategies can be readily applied and duplicated in the school setting. -- Lynn Peal, Autism Resource Specialist, Mounds View School District, MinnesotaJohn has developed a key for teachers and students to have FUN while learning how to read the map of our complex social world. Bravo! -- Kathy Stuhler, MEd, Autism Specialist and Special Education TeacherThe best thing I have ever done for [my children]... I hope to continue to have them involved for a long time. -- Parent of two Funjoyment group participantsTable of ContentsAcknowledgments. Part I Introduction and Guiding Principles. 1. Beginnings. 2. Enjoyment - A Skill. 3. The Band of Regulation. Part II The Hurdles. 4. Introduction to the Hurdles. 5. Keeping Things the Same. 6. Attention Challenges. 7. Emotional Regulation Problems. 8. Organization Deficits. 9. Language Processing Issues. 10. Associative Thinking. 11. Sensory Sensitivities. 12. "Unlearning" Rituals. 13. Stereotyping by Neurotypical Individuals. 14. Motivational Deficits. Part III FunJoyment Groups. 15. Introduction to FunJoyment Groups. 16. Concepts Important in All Groups. 17. School-Based Groups for Five-, Six-, and Seven-Year-Old Youngsters. 18. School-Based Groups for Seven- through Eleven-Year-Old Youngsters. 19. School-Based Groups for Junior High and High School Students. 20. Notes About Community-Based Groups. 21. Community-Based Groups for Ten- and Eleven-Year-Old Youngsters. 22. Community-Based Groups for Junior High and Senior High Students. 23. Community-Based Groups for Older High Students and Young Adults. Part IV Materials and Activities. 24. Sample Permission Letters. 25. Scoreboard. 26. Activities for Five-, Six- and Seven-Year-Olds. Big Dice. Ask to Play. Charades. Ask for Help. Ask to Share. Interrupting an Adult. Bean Bag Toss. Activities for All Other Groups. A Through Z Game. Apples to Apples. Bean Bag Toss. Bocce Ball. Dominion. First/Last Game. Frisbee. Golf. Imaginiff. In a Pickle. Introductory Questions. Killer Bunnies. Kinder Bunnies. Loaded Questions. Mr. M's Minefield. Mr. M's Uno. Moose in the House. Password. Perudo. Pick It. Pit. Question Cards. Smart Ass. Sort it Out. Tsuro. Turnabout. Twenty Questions. Up the River.

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Book SynopsisDuring adolescence social development and social status among peers is of crucial importance. For teenagers with Autism Spectrum Disorders (ASD) social interaction does not come naturally and often needs to be carefully learned. This workbook provides guided strategies to help those with ASD engage and connect with other people at home, school, work, at social gatherings and in the community.Using a restaurant menu as a template, The Social and Life Skills MeNu guides readers through each step of a conversation with starter statements to initiate conversation, main course topics to convey the purpose of the interaction, and treats that bring the exchange to a close. Packed with questionnaires, discussion logs and hypothetical social scenarios, this workbook encourages students to think through their responses and consider the consequences of what they say and how others might react. By practicing these easy techniques students can improve self-awareness, increase self-confidence and build on their daily life skills.This book will be a life-changing tool for all teenagers and young adults with social cognitive disorders, as well as their parents and the teachers and other professionals who work with them.Trade ReviewIt is a large text format with A4 size paper making it very easy to read and assimilate... Overall this is a useful addition to the other workbooks already available in this area... So for those parents wishing to take the plunge and to start their own small group, this book is worth adding to your collection at the research phase. It is also to be recommended for any therapists and schools who educate and support those on the spectrum. -- AS TeensThis is an excellent practical workbook using an ingenious, informative and entertaining format. -- Tony Attwood, author of Asperger's Syndrome and The Complete Guide to Asperger's SyndromeAn informative and well-designed workbook for teens with Asperger's Syndrome. By combining her personal experience and knowledge of Asperger's, Karra has developed practical and innovative strategies for ASD adolescents to enhance social interactions, while practicing daily life skills. The Social and Life Skills MeNu is an excellent resource. A must-have for parents and professionals. -- Joey Travolta, Creative Director of Inclusion Films, film-making workshops for adults with developmental disabilities, CaliforniaTable of ContentsAuthor's note. What's Inside this Workbook. 1. Menu Scenarios. Prepare to communicate socially. Prepare to communicate socially. Problem-solving social situations. Food for thought. Good social communication details. Lacking social communication details. Appropriately persistent. Overly persistent. Socially aware. Socially unaware. Accepting responsibility in a social setting. Not accepting responsibility. Create your own social scenario dialogue. Chapter 1 summary. 2. Starter MeNu Topics. Project your thoughts, feelings, and ideas appropriately. Project your thoughts, feelings, and ideas appropriately. Topic planning MeNu principles. Practice using the social MeNu. Social scenario setting. Personality test activity. Activity 1: Practice using social MeNu templates. Social situation activity. Social situations. Difficult social situations. Topic planning discussion questions. Chapter 2 summary. 3. MeNu Practicing Topics. Practice your social exchanges with others frequently. Practice your social exchanges with others frequently. Social scenario discussion questions. Chapter 3 summary. 4. Favourites and Special MeNu Topics. Produce an effective level of communication. Produce an effective level of communication. Social conflict discussion questions. Chapter 4 summary. 5. Adding Combinations, Sides, and Specials to Your . Conversation MeNu. Prepare, project, practice, produce. Tips and tricks for social conversations. Movie topic. Sports topic. Computer gaming topic. Chomping at the tidbits. Adding combinations, sides, and specials discussion questions. Chapter 5 summary. 6. MeNu Options. Using social skills with life skills. Using social skills with life skills. Applying social skills to life skills. Doctor's appointment. Dental appointment. Getting ready for school. Haircut. Text messaging and email. Yellow Pages as a resource. Calendar scheduling. Complete and turn homework in on time. Bank transaction. Monthly budget. Market shopping. Preparing dip. Contact local gas and electric company. Laundromat. Wash vehicle. Change smoke detector batteries. Public transportation ticket purchase. Library book return. Restaurant reservation. Restaurant dining conversation. MeNu options discussion questions. Chapter 6 summary. MeNu Templates. Resources.

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Book SynopsisThis book redefines the issue of disability as a social rather than an individual problem and considers the implications of this view for the provision of services and for social work practice. It looks at the experience of people with disabilities in society, and the influence that their organisations have had on service provision. The authors discuss the implications of this in a variety of different settings and across the life cycle.The contributors to this book include disabled people, practitioners, professionals and academics.Trade ReviewEeminently readable. This book should be read by anyone involved in strategic planning in health or the personal social services, as well as fieldwork staff. -- TherapyRedefines the issue of disability as a social rather than an individual problem and considers the implications of this view for the provision of services and for social work practice. -- Disability NewsAn excellent introduction to the culture of social services departments, and how this shapes the provision they make for disabled people. -- British Journal of Learning DisabilitiesOliver's book is an important one for social work practitioners, academics and activists in the disability movement. -- Australian Social WorkRaises a number of pertinent issues and questions for social workers and other professionals working with people with disabilities. -- Special Education PerspectivesTable of ContentsForeword, Tom Clarke. Editorial, Mike Oliver. 1. The social context of disability, Vic Finkelstein. 2. The changing context of social work practice, Bob Sapey and Nadja Hewitt. 3. Disability and new technology, Paul Cornes. 4. Social work practice in traditional settings, Patrick Phelan and Simon Cole. 5. Social work in an organisation of disabled people, Etienne d'Aboville. 6. Housing and independent living, Bernie Fiedler. 7. Social work with disabled children and their families, Philippa Russell. 8. Disabled young people, Michael Hirst, Gillian Parker and Andrew Cozens. 9. Disability in adulthood - the OPCS reports, Paul Abberley. 10. Ageing with a disability, Gerry Zarb.

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Book SynopsisBehavioural Concerns and Autistic Spectrum Disorders: Explanations and Strategies for Change is a practical and comprehensive account of how people who attract autism labels can come to behave in ways that give rise to serious concerns in other people and, sometimes, themselves. The authors identify the range of needs that may be expressed through behaviours that cause concern and provide strategies for addressing both needs and behaviours. These strategies are based on extensive research and on the authors' own clinical experience.Each aspect of need is analysed in detail. General principles for dealing with these needs are presented, and in each case a 'tips and hints' section offers more specific help on possible solutions. Included in the appendices are advice on identifying the factors behind a behaviour that causes concern and guidance on how to ensure that support services are delivering what they should. This is a book that will be essential reading for all those working or living with autistic people.Trade ReviewBehavioral Concerns and Autistic Spectrums Disorders: Explanations and Stratagies for Change is a practical and comprehensive account of how people who attract autism labels can come to behave in ways that give rise to serious concerns in other people and sometimes themselves. The authors identify the range of needs that may be expressed through behaviours that cause concern and provide strategies for addressing both needs and behaviours. Each aspect of need is analysed in detail. General principles for dealing with these needs are presented and in each case a 'tips and hints' section offers more specific help on possible solutions. Included in the appendices are advice on identifying the factors behind a behaviour that causes concern and guidance on how to ensure that support services are delivering what they should. This is a book that will be essential reading for all those working or living with autistic people. -- ContactClements and Zarkowska's book is filled with parental and professional insights that only come from years of experience. The clinical wisdom makes Behavioural Concerns & Autistic Spectrum Disorders: Explainations and Stategies for Change a great addition to the library of anyone interested in Autism Spectrum Disorders. -- Journal of Autism Developmental Disorders.Table of ContentsGeneral introduction. PART 1: PERSPECTIVES UPON THE ISSUES. 1. A view of autism. 2. Beyond autism - understanding human behaviour. PART 2: HELPFUL PRACTICES. 3. Maintaining a safe environment. 4. Understanding. 5. Social relating. 6. Well being. 7. Competence. 8. Obsessions. 9. Sensitivities. 10. Motivation. 11. Responding to behaviour - some additional thoughts. PART 3: MAKING IT HAPPEN. 12. Expectations. 13. Implementation. 14. Service provision issues. Appendix 1: Autism - supporters' help to explore the difficulties. Appendix 2: Identifying factors involved in a behaviour which gives cause for concern. Appendix 3: Constructive behavioural support - service evaluation guide. Resources. Index.

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Book SynopsisThis book is an excellent guide for human resource personnel who can tap unto pool of dedicated workers. Overall this is a good book for persons diagnosed with Asperger Syndrome and high functioning autism to better understand themselves. It is also an educational guide for vocational counselors and human resource personnel as it provides in-dept guidance about these potential dedicated employees.'- OAARSN Book Reviews'This practice manual will enable people diagnosed with Asperger's Syndrome and high functioning autism to deepen their self understanding and appreciate their value as working individuals. The workbook contains practical exercises with clear explanations and examples of how to use them... A personal wish list.'- Contact'The text is written in an accessible, non-academic style and provides useful background information on Asperger syndrome and the problems individuals may encounter. It contains a useful bibliography and Internet resource section. Although it is concerned with people with Asperger syndrome, there is much that is relevant to others with cognitive impairments.This text would be a useful purchase for those working in supported employment and for university libraries.'- British Journal of Occupational TherapyThis practical manual will enable people diagnosed with Asperger Syndrome and high functioning autism to deepen their self-understanding and appreciate their value as working individuals. Through step-by-step self-assessment, the reader is encouraged to engage actively in a self-paced exploration of their employment history, and ultimately to identify the work best suited to their personal needs, talents and strengths. The workbook contains practical exercises, with clear explanations and examples of how to use them. It leads the reader to identify and explore:* three jobs they have held in different life periods* their interests, skills and talents, and their application to work* their style of learning and style of work* the social skills required by specific jobs, as identified by other people than the autobiographer* the AS characteristics which further and impede work performance* successful and unsuccessful survival strategies* issues around diagnosis and disclosure which affect life at work and outside it* creative problem solving for the present and the future - a personal wish list.Asperger Syndrome Employment Workbook will also be an essential guide for professionals, career advisors and vocational counsellors as it provides in-depth guidance and research on fulfilling employment for adults and adolescents with Asperger Syndrome and high functioning autism.Table of ContentsForeword, by Tony Attwood. Introduction. PART ONE: THE ISSUES INVOLVED. 1. Three Jobs. 2. Diagnosis, Disclosure and Self Advocacy. 3. Social Skills. 4. Learning and Work Styles. 5. Interests, Skills and Talents. 6. My Work and Asperger Syndrome. 7. Personal Tools and Strategies. 8. My Wish List. PART TWO: WORKBOOK INSTRUCTIONS. Introduction to this Workbook. 1. Three Jobs. 2. Social Skills. 3. Learning and Work Styles. 4. Interests, Skills and Talents. 5. My Work and Asperger Syndrome. 6. Personal Tools and Strategies. 7. Diagnosis, Disclosure and Self-Advocacy. 8. My Wish List. PART THREE: THE WORKBOOK. 1. Three Jobs. 2. Social Skills. 3. Learning and Work Styles. 4. Interests, Skills and Talents. 5. My Work and Asperger Syndrome. 6. Personal Tools and Strategies. 7. Diagnosis, Disclosure and Self-Advocacy. 8. My Wish List. Appendix 1: Asperger Syndrome Characteristics. Appendix 2: Internet Resources. Bibliography. Index.

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Book SynopsisIndividuals with developmental disorders are seven times more likely than other people to come into contact with police and their responses to encounters with the law may not always be socially appropriate. How can the needs and responses of people with autism spectrum disorders be reconciled with the duties of the police to serve and protect the community? In this book, private investigator and autism advocate Dennis Debbaudt provides essential information for both groups. He explains how typical manifestations of autism spectrum disorders, such as running away, unsteadiness, impulsive behavior or failure to respond, may be misunderstood by law enforcement professionals, with serious consequences. For individuals with ASDs, he offers advice on how to behave in encounters with police and other law enforcement professionals. Aimed at raising awareness and facilitating communication between people with autism and law enforcement professionals, this much-needed book will be a valuable resource for both communities.Trade ReviewThe book highlights some important issues that UK police forces will do well to learn from -- The Journal of Adult ProtectionIn this book Dennis Debbaudt provides essential information for both groups. I highly recommend this book specially for the police and mall security people although it is quite useful for the caregivers too. -- OAARSN Book ReviewsTable of ContentsSection 1: The Law Enforcement Perspective. 1. Introduction. 2. Autism Recognition and Response. 3. Interview and Interrogation of Persons with Autism. 4. Victims with Autism 5. Law Enforcement Training Programs. 6. Conclusion. Section 2: The Citizen's Perspective. 7. Introduction. 8. Safety at Home and in the Community. 9. Victim and Law Enforcement Awareness for Persons with Autism and Advocates. 10. Advocacy for Offenders with Autism Spectrum Disorders. 11. Collaborative Autism Awareness Campaigns. 12. Conclusion. References. Index.

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Book SynopsisPeople with developmental disabilities sometimes behave in ways that others, or they themselves, regard as problematic. This original book is about what practitioners can do to make sense of behaviors, in order to support clients more effectively.The author offers practical strategies for gathering and analysing information about behaviors, in partnership with the individual concerned, in order to gain a useful understanding of why a particular behavior occurs. The inclusion of case histories, with corresponding behavior plans, clearly demonstrates the real-life application of assessment methods.With its strong emphasis on the importance of establishing equitable, respectful relationships between professionals and people with learning disabilities, this is a book that professionals involved in the lives of people with developmental disabilities will find invaluable.Table of ContentsPreface. 1. Establishing the assessment agenda. 2. Relationships in assessment: The empathy mode. 3. Relationships in assessment: The analytic mode. 4. The tool box, John Clements and Neil Martin. 5. Extracting meaning from the information gathered. 6. The Behavioural Explorer Assessment System, John Clements and Neil Martin. 7. The stories we can tell. 8. Organizing the practice. 9. Last words. Appendix 1: Behaviour recording charts. Appendix 2: Clements Rapid Assessment Protocol. Resources. Index

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Book SynopsisThis publication will help all service providers to ensure that disabled children and young people with additional support needs can access services and lead a life as part of their local community, focusing on children who have behaviour that challenges as a result of either a severe learning disability and/or autism.Drawing on and including examples of good practice from across the country, Making it work for children with behaviour that challenges illustrates the ways in which all agencies can work together to develop local policies and procedures to ensure that the needs of this group of children are met in a coordinated and child-centred way.Making it work for children with behaviour that challenges is one of two companion publications detailing good practice in both inclusive and specialist settings across education, health, social care and leisure.

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Book SynopsisThis book will increase your confidence in and enhance your understanding of how to engage effectively and ethically with all of the multi-faceted individuals who make our working lives such a privilege.' Claire Johnson, CDI Head of Professional Development and Standards, RCDP and CDI, ICCI and NICEC FellowTransform your career guidance practice to meet the unique needs of all of your clients.The need for specialised career guidance for individuals with an impairment, health condition, learning support need or disabling factor has never been greater. This dedicated guide supports career development professionals to successfully adapt their practice to ensure it is inclusive of people with a variety of needs. Written by two hugely knowledgeable and widely respected authors with considerable expertise in the field of careers guidance and inclusion, this definitive guide offers: Real-world case studies:to demonstrate proven, real-life techniques employed by professionals in their practice and illustrate their methods Actionable insights:with tools, techniques and strategies to help overcome specific challenges, including non-verbal communication and literacy difficulties Professional standards: closely mapped against industry training benchmarks for career professionals Accessibility:written in a clear, engaging and accessible format, it has illustrations throughout to support different learning styles. Drawing on real-world, tried-and-tested techniques, this comprehensive handbook equips career development professionals with the tools they need to provide effective guidance, foster inclusivity and improve accessibility.

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Book SynopsisUniversity should be among the best years of your life but we know moving away from home can be daunting, made even worse if you struggle with your health. This survival guide is designed to be an informal introduction to uni life aimed at students with chronic illnesses or disabilities.

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Book SynopsisThe contributions in this book shed critical light on the shaping, negotiation, and creation of inclusive conditions of local authorities and localities. The authors analyse policy programs and reflect on their inclusive or exclusive effects in European and non-European contexts. Despite a number of global effects, which come about through supra-locally made decisions and influence the scope of action on the ground, many contributions emphasize the crucial role of the municipal level for a successful realisation of inclusion.

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Book SynopsisProviding an innovative and accessible perspective on how civil rights legislation affects the lives of ordinary Americans, this work argues for a radical new understanding of rights. The study is based on interviews with those who had experienced discrimination on disability issues.

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Book SynopsisThis study reviews two decades of research on mental disorder and presents empirical and theoretical work which aims to determine more accurate predictions of violent behaviour.Table of ContentsPreface List of Contributors 1: Toward a Rejuvenation of Risk Assessment Research John Monahan, Henry J. Steadman. 2: Anger as a Risk Factor for Violence among the Mentally Disordered Raymond W. Novaco 3: Impulsiveness and Aggression Ernest S. Barratt 4: Psychopathy as a Risk Marker for Violence: Development and Validation of a Screening Version of the Revised Psychopathy Checklist Stephen D. Hart, Robert D. Hare, Adelle E. Forth. 5: Mental Disorder, Substance Abuse, and Community Violence: An Epidemiological Approach Jeffrey W. Swanson 6: Psychotic Symptoms and the Violent/Illegal Behavior of Mental Patients Compared to Community Controls Bruce G. Link, Ann Stueve. 7: Delusions and Violence Pamela J. Taylor, Philippa Garety, Alec Buchanan, Alison Reed, Simon Wessely, Katarzyna Ray, Graham Dunn, Don Grubin. 8: Hallucinations and Violence Dale E. McNiel 9: Personality Disorders and Violence Thomas A. Widiger, Timothy J. Trull. 10: Demographic and Case History Variables in Risk Assessment Deidre Klassen, William A. O'connor. 11: Social Networks, Social Support, and Violence among Persons with Severe, Persistent Mental Illness Sue E. Estroff, Catherine Zimmer. Designing a New Generation of Risk Assessment Research Henry J. Steadman, John Monahan, Paul S. Appelbaum, Thomas Grisso, Edward P. Mulvey, Loren H. Roth, Pamela Clark Robbins, Deidre Klassen. Index

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Book SynopsisTrade Review“Baynton, challenging the conventional historiography, argues that the selective phase of American immigration policy, despite its heavy reliance on the ­sensible-sounding ‘public charge’ standard, was no less discriminatory. During those years, he demonstrates, immigration officials could and did customarily invoke this standard to rule out such ‘defectives’ as women unaccompanied by male providers and members of races with supposed ‘predispositions’ to criminality. Even those with ‘objective’ physical impairments (as the Americans with Disabilities Act would underscore many years later) were incapable of work only if you made certain assumptions about how workplaces were to be structured. So beware ‘reasonable’ justifications for immigration policies, Baynton warns.” * New York Times *“Focusing on immigrant experiences in New York, Baynton explains how ideas about genetics, disability, race, family life, and employment worked together to exclude an extraordinarily diverse range of men and women from the shores of the US.” * New Scientist *“In Defectives in the Land, Baynton extends his groundbreaking inquiries into how we’ve arrived at what we think of as disability in contemporary America. Baynton’s is an elegant and incisive analysis of the ways our developing nation evolved cultural practices and attitudes to make ‘disability’ a concept that gave meaning and status to people who have illnesses, industrial injuries, military wounds, or simply the unexpected forms of human variation life presents. Baynton presents us with the familiar history of American modernization as the creation of modern disability, showing us the shifting criteria for what counts a human ‘defect’ and what that means in the lives of people who bear such stigma.” * Rosemarie Garland-Thomson, Emory University *“A well-researched, original, and engaging study. Baynton argues that historians of North American immigration have failed to appreciate the importance of disability in the web of immigration restriction. To correct this failure, he maintains that disability joined race, disease, ‘poor physique,’ and poverty to form the ingredients of ‘degeneracy.’ Beautifully written and based on rigorous scholarship, Defectives in the Land will be of great importance and interest to historians of immigration and disability—and beyond.” * James W. Trent, Gordon College *“Defectives in the Land is a supple example of the ways that ‘disability’ has never been a term with a singular or unified meaning, but a term that has been—and continues to be—misused, abused, and exploited by a range of historical actors and institutions for their own ends. By using deliberately loaded conceptual categories—defective, handicapped, ugly, dependent—to organize his chapters, Baynton’s book opens up the deep interrelationships between disability and familiar analytical categories within immigration history, social history, and political history.” * David Serlin, University of California, San Diego *“In this slim volume, Douglas C. Baynton forcefully and convincingly argues that, in the late nineteenth and early twentieth centuries, U.S. immigration law and policy had as its core purpose the exclusion of “defective” immigrants who failed to meet eugenic standards of physical, mental, and moral fitness. In doing so, he successfully challenges standard historical interpretations. . .It is a “must read” for historians of immigration.” * Bulletin of the History of Medicine *Table of ContentsIntroduction 1 Defective 2 Handicapped 3 Dependent 4 Ugly Conclusion Notes Index

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Book SynopsisTraces how disabled people came to be viewed as biologically deviant. This book explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self. The author reveals cracks in the social production of human variation as aberrancy.

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Book SynopsisViolence is an inescapable through-line across the experiences of institutional residents. While Canada closes many of its large-scale facilities, institutional violence continues to spill over into community settings. Population Control explores the relational conditions that give rise to this violence across all spaces of care.Trade Review“In bringing together diversely situated experts on institutional violence from across Canada, Population Control offers a serious advance in state-of-the-art research relating to endemic institutional violence in Canada. This collection significantly helps us recognize how care and loathing function across different spatial and temporal locations to structure our social and political responses to unruly populations, not only to advance scholarly knowledge but also to support the afterlives of those who have been institutionalized and provide urgently needed evidence against insidious forms of trans-institutional violence that persists beyond the closure of total institutions.” Kelly Fritsch, Carleton University and co-editor of Disability Injustice: Confronting Criminalization in Canada

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Book SynopsisA guidebook for career counselors and employers to help them deal productively with LD/ADD adults. This book is useful as a supplementary text for graduate courses in career counseling. It synthesizes the two fields of LD/ADD diagnosis and career assessment into a methodology and provides background knowledge.Table of Contents1: Invisible Handicaps 2: Process and Structure 3: Diagnosis of Language Disability in Adults 4: Memory Problems Visual/Spatial Deficits, and Dyscalculia 5: Emotional and Social Dynamics in the LD Client 6: Cognitive Function in ADD Adults 7: Emotional and Social Dynamics in ADD Adults 8: The Therapeutic Approach to the Career Assessment 9: Methodology for the Career Assessment 10: Personality Assessment of ADD Clients Using the MMPI-2 16 PF, and MBTI Tests 11: Selecting a Good-Fit Job 12: Job Coaching for LD and ADD Clients 13: Case Studies of Clients with Language Disabilities 14: Case Studies of Clients with a Memory Disorder 15: Case Studies of Clients with Attention Deficit Disorder

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Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

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Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

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Book SynopsisTrade Review​"Between Fitness and Death is essential reading for scholars of health, racialization, and law in the world of Atlantic slavery, and it also gestures toward important future directions for scholars of slavery and race, more generally." --Black Perspectives "Bringing together a wide array of sources with carefully crafted interpretive insight, Between Fitness and Death is a tremendous accomplishment. . . . Hunt-Kennedy provides a theoretically innovative framework for future scholarship on how enslaved people in the British Caribbean and beyond perceived of and operated in relation to the disabling power of slavery. Between Fitness and Death deserves wide-readership." --Middle Ground Journal"Stefanie Hunt-Kennedy's Between Fitness and Death is an excellent introduction to disability studies for scholars rooted in histories of slavery and of the Caribbean." --H-Slavery"Between Fitness and Death is an engaging theoretical assessment of the ideology of racial difference in American slavery. It is a helpful contribution to the growing battery of factors that historians must consider when assessing prejudice during the period. . . . Between Fitness and Death<.i> adds fresh insight into the origins of anti-Black racism, as well as a helpful guide to its enduring legacy." --Journal of African American History"A compelling argument that colonial racialization and brutality are significant factors in the history of disability . . . Hunt-Kennedy's fascinating and important study will challenge future academics to look beyond fitness and death and rethink our assumptions about how anti-Black racism and abelism have developed in the Western World." --H-Disability​"In revealing the pervasiveness of disability among enslaved people and the various associations between blackness and disability, Hunt-Kennedy provides a new way of looking at the archives of slavery. Between Fitness and Death furthers our understanding of Caribbean slavery." --Journal of Interdisciplinary History​"Slavery relied on the ever-present humanity of the enslaved. By suggesting a framework of disability, Hunt-Kennedy presents a conceptual shift that centers the human, while showing how the conditions of slavery undermined the abilities of Africans. Required reading for Caribbean scholars and scholars around the globe interested in slavery.”—Sasha Turner, author of Contested Bodies: Pregnancy, Childrearing, and Slavery in Jamaica​"Hunt-Kennedy’s innovative take on the connections between disability and bondage underscores how embodiment, ability, and difference combined to shape ideologies of slavery and understandings about who could be enslaved. Essential reading for anyone interested in the intertwined histories of enslavement and race in the Atlantic World."--Jenny Shaw, author of Everyday Life in the Early English Caribbean: Irish, Africans, and the Construction of Difference ​"This provocative and powerful study . . . makes important contributions to understanding Caribbean slavery." --Choice

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Book SynopsisExploring the disability history of slavery Time and again, antebellum Americans justified slavery and white supremacy by linking blackness to disability, defectiveness, and dependency. Jenifer L. Barclay examines the ubiquitous narratives that depicted black people with disabilities as pitiable, monstrous, or comical, narratives used not only to defend slavery but argue against it. As she shows, this relationship between ableism and racism impacted racial identities during the antebellum period and played an overlooked role in shaping American history afterward. Barclay also illuminates the everyday lives of the ten percent of enslaved people who lived with disabilities. Devalued by slaveholders as unsound and therefore worthless, these individuals nonetheless carved out an unusual autonomy. Their roles as caregivers, healers, and keepers of memory made them esteemed within their own communities and celebrated figures in song and folklore. Prescient in its analysis and rich in detail,Trade Review"This original work adds an important new voice to conversations about slavery, disability, and medical history. Exceptional analysis of an understudied topic" --Library Journal (starred review)"Addressing an often-overlooked aspect of the experiences of enslaved people, Barclay intricately examines the connection between racism, disabilities and slavery, as well as the legacy it left behind, in this important and well-researched volume." --Ms. Magazine"The Mark of Slavery is not simply a study of disability discourse. Rather, the book examines disability as both a discourse about race and slavery and as a lived experience affecting the lives of thousands of enslaved people." --Black Perspectives"While many of the racist and ableist discourses seemed to be contradictory and nonsensical, Barclay skillfully demonstrates how each of the narratives work together to create a larger, long-standing co-constitution of Blackness, disability, and dependency. . . . After reading this book, it is near impossible to consider race in America as anything separate from disability and ableism. . . . Compelling." --Ethnic and Racial Studies"Jenifer Barclay offers us a powerful, deeply researched, and rich study of the meanings of disability in the antebellum South. The sheer breadth of literature that this work speaks to is impressive. . . . The Mark of Slavery is a critical intervention into fields that have ignored or marginalized disability." --American Nineteenth Century History"Barclay's study is a well-researched investigation of nineteenth-century cultural debates on race and the body. Disability scholarship has flourished in recent years, and Barclay's book is a welcome contribution to the field." --Journal of Southern History"Highly recommended." --Choice"Barclay's deft handling of disability through her archival research, the brilliance of her scholarship on the ways that blackness becomes synonymous with disability, her skillful use of Black Critical Disability Studies as a methodological framework, and clear and persuasive prose allows us greater insight into the debilitating effects of slavery as a disabling device for its victims."--Deirdre Cooper Owens, author of Medical Bondage: Race, Gender and the Origins of American Gynecology

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Book SynopsisA beautifully told and unique recollection of life as the child of immigrant Jews in the Bronx and as the child of deaf parentsTrade Review"This is a man revealing himself, touched and startled by his act of exposure, discovering and offering the old truth: every life matters. Reminding us of this is what memoir does best. . . . An engrossing contribution to the genre."--Margaret Diehl, New York Times Book Review"Davis's new memoir focuses on how his parents' deafness affected him. He writes frankly about the difficulties he encountered, such as his inability to call his parents when he needed comfort during the night and his having to serve as their interpreter. . . . The writer also infuses his writing with humor and the sense of love and respect he developed for his parents. . . . Davis's descriptions of the richness and complexity of sign language are the most fascinating portions of the book. Highly recommended."--Library Journal"Good memoirs with staying power are hard to find any year. One of this year's very best is . . . My Sense of Silence. Davis succeeds brilliantly in doing many things. His is an outstanding personal and cultural study of deafness as well as a savvy and moving intellectual and political autobiography."--The Bloomsbury Review"A truly poetic reflection flanked by Davis's ambivalent and unresolved childhood. . . . Davis blends so much painstaking detail into his writing, pulling at the reader's emotions as he processes his own odd experience. The book convincingly paints the struggles of a young man who must 'recover the child, deaf-self' that he leaves behind 'merging it with [a] hearing self.'"--The Minnesota Daily"A provocative and personal odyssey of growing up with deaf parents, remarkable for its candor, humor and originality. Davis's memories are passionate and fierce as he pieces together the stories of his family, probing the elusive relationships between childhood and adult life. Highly recommended."--Paul Preston, author of Mother Father Deaf: Living between Sound and Silence and co-director of the National Resource Center for Parents with Disabilities

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