Coping with / advice about chronic or long-term illness or conditions Books
Cinnamon Press Mother and Son
Book SynopsisHow does a family survive when their sixteen-year-old son is diagnosed with Temporal Lobe Epilepsy, a condition that comes with episodic paranoid schizophrenia: hallucinations, delusions…? When the family is that of Marie Dullaghan and her son Aidan, the willingness to negotiate the strangest behaviour, and resilience to live with the shadow that suicidal ideation might become a knock on the door whenever Aidan took off, was extraordinary. And just as extraordinary was the fact that Aidan somehow made his way through A levels and a BA in Fine Art, while his mother did her own degree in photography. With a degree show to prepare for, Marie began to reconstruct some of the worst and most bizarre moments with Aidan’s help. The conversations and healing that came from this adventure in art were remarkable. The images, always more art than biography, became a sequence of re-imagined narratives going beyond any pretence of historical accuracy to give viewers a rare and authentic insight into this journey of mother and son. The powerful images were shown at exhibitions and then put away. Until, Marie revisited them whilst in lockdown in Malaysia, this time through the medium of poetry. The resulting book opens a deep and poignant conversation around mental health. Moving across the emotional range of despair, terror and bewilderment, it becomes a testimony to healing, empathy and hope. Mother and Son is a triumph of both art and poetry, but most of all a triumph of the human spirit.
£13.49
Cornerstone With You Forever
Book Synopsis'A stunning mix of hilarious tropes, swoony romance and lovable, relatable characters. A must read for every romance lover!' Ali Hazelwood, author of The Love HypothesisAxelRooney Sullivan is sunshine incarnate. Warm, bright, always smiling, she's the last person I have any business desiring. I've done everything possible to keep my distance... until a charades game gone wrong brought that to a grinding halt.Since then, steering clear of Rooney has been impossible, and the woman who was once avoidable has become the last thing I needed: temptingly within reach.RooneyAxel Bergman is a gorgeous grump who doesn't have the time of day for me. Somehow, I've kept my crush hidden ... well, until I kissed him.My life is a mess, and the last thing I need is to embarrass myself further with the man who avoids me like it's his job rather than painting modern masterpieces . But it seems the universe has a different plan as we unexpectedly find our paths - and problems - converging. And we've come up with one very unexpected solution...A sunshine and grump, marriage of convenience romance about a shy artist on the autism spectrum, and a smiley smartypants who has a chronic IBD.Praise for Chloe Liese:'I could curl up in Liese's writing for days, I love it so' Helen Hoang, author of The Kiss Quotient'Absolute romantic perfection' Christina Lauren, author of The Unhoneymooners
£9.49
Parthian Books Ward Nine: Coronavirus: One Woman's Story
Book SynopsisAlys Morgan was admitted to hospital on the 19th of April, with an unexplained sickness which had rendered her too weak to move. The next day she was diagnosed with Covid-19 - though staff understood her symptoms as little as the virus itself. This is one woman's account of a pandemic no-one seemed prepared for - from the bed of a north-Wales hospital struggling to care for its multiplying patients. It's a story of mothers and daughters, isolation and survival, love and loss. But most of all, it's a testament to everything we owe those providing care - and comfort - on the new front line.
£8.54
Hawksmoor Publishing Master Your Chronic Pain: A Practical Guide
Book SynopsisThis book looks at a different strategies for managing persistent pain, including the benefits of mindfulness meditation, overcoming a fear of exercise, and ways to improve sleep. It uses principles from Acceptance and Commitment Therapy (ACT) which has been established as a highly effective therapeutic approach in the management of chronic pain.
£15.19
The Conrad Press Incurable Optimists: Getting the better of
Book SynopsisThis book, ‘Incurable Optimists’, may be the only book that will tell you what it is actually like to live with Parkinson’s disease. Written by people whose lives have been impacted by Parkinson’s, these true tales are valuable examples of how one can live one’s best possible life with this difficult condition. The tales are from those newly diagnosed and from others who have lived with Parkinson’s for more than thirty years. Michael McDonald, whose working life had been helping large companies solve complex problems, recognised the pressing need for this book during Zoom sessions with the Parkinson’s group in Canterbury, UK. The members of the group had all met previously at various therapy sessions, but they had never told their stories to each other or shared their personal challenges and solutions. As soon as they did, and word got around, many other helpful tales began arriving from all over the world. Prepare to be inspired!Table of ContentsForeword – Incurable Optimists 7 Prologue 11 The salesman’s tale 13 The accountant’s tale 16 The intrepid traveller’s tale 22 The physiotherapist’s tale 27 The specialist nurse's tale 33 A tribute to our best friends 38 The carer’s tale 42 The mountaineer’s tale 46 The headteacher’s tale 49 The wife’s tale 54 The writer’s tale 62 The beauty therapist’s tale 66 The systems analyst’s tale 71 The historian’s tale 77 The cartoonist’s tale 86 The public health inspector’s tale 88 Another carer’s tale 91 The golfer’s tale 93 The nurse’s tale 95 The dance teacher’s tale 102 The finance manager’s tale 105 The librarian’s tale 114 The editor’s tale 119 The solicitor’s tale 122 The red sports car driver’s tale 126 The doctor’s tale 130 A daughter’s tale 132 The friend’s tale 134 The tale of the person with Parkinson’s, or is it Lewy Body Dementia? 138 A tale of diagnostics 141 A tale of diagnosis 150 The constipator’s tale 151 Getting there in the end 156 The cruciverbalist’s tale 158 Diagnostic quiz 163 Epilogue 169 Incurable Optimists - compiled by those who know. 171
£9.49
Eyewear Publishing A Petit Mal
Book SynopsisWhen Ana Maria Caballero's young son is diagnosed with epilepsy, her family collides with the reality of illness, but also with Western medicine. A Petit Mal follows the narrative arc of this blunt collision, one that plunges its readers into multiple alternative methods of healing and the spiritual implications therein. Caballero's boldly innovative book unfolds as a page-turner, one whose topics are especially relevant to audiences interested in wellness, not as yet another banner, but as a committed, practical approach to life.
£12.59
Eyewear Publishing Until We Knew: Life With MND/ALS and FTD
Book SynopsisUntil We Knew is a poignant self-depiction of one woman''s dilemma in love and grief. Thehusband of Elisabet O Klint was not yet sixty when he was diagnosed with ALS andfrontotemporal dementia (FTD). This notebook, a retrospective diary, is about the year theyfought against his illnesses and lived with this sorrow. In her autobiographical story, Klintallows us to accompany her through life as it happened, with the aid of notes jotted downretrospectively in her diary. Her words grip the reader as she brings to life the struggle thatdeveloped when her husband faced two life-threatening diseases with no cure. She hoped tobe able to understand these illnesses and the suffering of her husband. More than that, shehopes the one who is facing a similar situation can get comforted and helped. I felt supported by many but unnecessarily lonely too. My husband was not yet sixty when diagnosed with ALS and frontotemporal dementia (FTD).Both of which we knew nothing about before the slow and challenging path towardsdiagnoses.I dream that I am speaking for both of us and that we are listening together to the story that Iam telling. I watch him smiling, laughing, and gesticulating to show his feelings. Could Ihave made him any happier, more comfortable, or more secure? Or was he happy perhaps,and even thankful deep inside that I was there for him the entire time? Which of his actionswere really his own, and which resulted from his illnesses? I took care of him and theincreasing needs as the diseases progressed. These are terminal illnesses with expected andunexpected developments. A day-to-day roller coaster. Each day full of emotions, someconflicting. A continues battle for someone who disappears. By sharing our story, I hope to contribute and raise awareness of FTD and ALS. I wish thesepages can somehow educate. I''m convinced that certain areas in healthcare could improveby much with small changes.
£12.59
Exisle Publishing The Chronic Pain Couple: How to be a joyful
Book SynopsisThe struggle to maintain joy & a fulfilling relationship while coping with chronic illness and pain is a serious problem for millions of people today. Australian entrepreneur and health professional Karra Eloff draws on academic research and her own pursuit of joy in spite of suffering to bring this trailblazing, compassionate, low-energy and practical path to a remarkable new normal, for you and your chosen human/partner. On average, one in five adults suffer from chronic pain. In older people, the number rises to three in five. Most of these people don't realise they don't have to settle for a survival-based coexistence with their partner or bury their hopes for success and joy under a mountain of heat packs or duvets.Chronic illness or pain, according to Karra, need not hold you back from experiencing personal joy and success. It is possible to forge a path to remarkableto move the dial of a relationship challenged with chronic pain from embattled and exhausted to joyful and passion-filled. This is possible through small, practical changes that require little energy but make a big impact in the areas of: CommunicationMental healthIntimacyPersonal SuccessIf you experience chronic pain or love someone with a chronic illness this book is for you. If you are a health professional seeking practical advice for people with chronic pain, this book is for you.
£19.99
BenBella Books Breath from Salt: A Deadly Genetic Disease, a New
Book SynopsisRecommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.Trade Review"I couldn't put the book down." —Bill Gates “A thorough and engrossing saga packed with information, Breath from Salt is really about the transformative power of hope. It arrives at just the right moment, when too many of us have forgotten what human faith, ingenuity, and relentless determination can accomplish.” —Dan Fagin, author of the Pulitzer Prize–winning Toms River “Beautifully written, Breath from Salt brings to life the amazing story of a passionate community that dared to dream, work together, and take extraordinary risks to bring life-saving treatments to those with cystic fibrosis. Timely and important, the breakthroughs described in this book are likely to accelerate cures for many other genetic diseases.” —Dr. Preston W. Campbell, former president and CEO of the Cystic Fibrosis FoundationTable of ContentsContents Introduction Part IChapter 1: Hello, Joey 1974Chapter 2: The Treatment Plan 1974Chapter 3: Case 44: Babies Hospital, New York City 1935Chapter 4: A New Disease 1936–1937Chapter 5: An Equal Opportunity Disease 1938–1942Chapter 6: Christmas Homecoming 1974–1977Chapter 7: The Sweat Test 1943–1960Chapter 8: A Tribe of Desperate Parents 1950–1955Chapter 9: Lessons from Polio 1955–1960Chapter 10: The Registry 1960–1966Chapter 11: The Therapist 1977Chapter 12: A Disease in Search of Ideas 1964–1980Chapter 13: The Hitman Cometh 1979–1982Chapter 14: Salt and Water 1970–1981Chapter 15: Salty Boy 1981–1983Chapter 16: Birth of an Advocate 1984 Chapter 17: Out of Many, One 1978–1984 Part 2Chapter 18: The Gene Hunters 1980–1984Chapter 19: Lucky Number Seven 1984–1985Chapter 20: Kate 1986Chapter 21: To Screen or Not to Screen Newborns 1985Chapter 22: Michigan 1985Chapter 23: Joey’s Long Goodbye 1986Chapter 24: Mad Pursuit 1987Chapter 25: The Gene 1989Chapter 26: Runny, Like Water 1989–1994Chapter 27: Venture Philanthropy—A New Way to Fund Drug Development 1977–1999Chapter 28: The Gene Is the Medicine 1989–1991Chapter 29: Transforming the Lungs 1992–2003Chapter 30: First-in-Human Trials 1992–1993Chapter 31: The Beall Curve 1996 Part 3Chapter 32: The Joey Fund 1989–1999Chapter 33: A Network for Developing Therapeutic Drugs 1997–1998Chapter 34: Aurora 1998–1999Chapter 35: The Gates Open 1987–2000Chapter 36: A Tale of Four Families—CF in the New Millennium 1999Chapter 37: The Takeover 2001Chapter 38: Getting the Band Together 2001–2003Chapter 39: Pay to Play 2002–2004Chapter 40: Molecular Architects of Vertex West 2004–2005Chapter 41: Rat to Man 2003–2004Chapter 42: A Christmas Gift 2004–2005Chapter 43: The Lucky Four 2005–2007Chapter 44: The Doorman Launches the Era of Genetic Medicine 2007–2008Chapter 45: Disruption Fall 2008Chapter 46: Tasting like Average People 2010–2012Chapter 47: Milestones to a Cure 2004–2015Chapter 48: Tackling the Common Mutation 2004–2013Chapter 49: What Mutation Are You? 2013–2014Chapter 50: The Mother of All Deals 2014Chapter 51: Very Personal Clinical Trials 2021–2017Chapter 52: The Triple 2015–2017Chapter 53: The Home Stretch 2018Chapter 54: The Leftovers 2015–2020Chapter 55: A New Generation 2017–2020 Epilogue 2019–2020 AcknowledgmentsTimelineEndnotesAbout the Author
£19.79
Woodhall Press Chronic: A Memoir
Book SynopsisIn this powerful debut, Rebecca Dimyan details her experience with endometriosis, a chronic disease which effects one in ten women worldwide. This painful condition takes an average of seven years to be diagnosed and has no proven cure. Most women will undergo multiple surgeries, take countless painkillers and other drugs, and will still endure regular pain and other complications. With honesty, vulnerability, and sometimes humour, Dimyan explores the ways the condition has impacted her experiences, her body, her pain, and her joy. She takes her audience on an emotional journey through her teenage years, early twenties, and into her thirties as she becomes a professional woman, wife, and mother. Dimyan blends research, anecdotes, and advice as she shares the relief she’s found through alternative treatments and holistic medicine. Chronic isn’t just a story about one woman’s illness, it is a memoir about all the pain, pleasure, heartbreak, friendship, love, and hope she experiences on her path to healing.
£16.16
Springer-Verlag Berlin and Heidelberg GmbH & Co. KG Unlearn Pain: The Successful Techniques And
Book SynopsisThis book shows concrete techniques and exercises of psychological pain management, with which it is possible to reduce pain permanently. It is aimed at all pain patients who want to actively manage pain and at all therapists and doctors who want to support their patients in this. The more than 30 successful techniques and exercises, such as mindfulness exercises, relaxation techniques or hypnosis procedures, can be used alone at home without a doctor or therapist. Each exercise is explained step-by-step and simply, is scientifically recognized, has no side effects, and is effective regardless of the cause or location of the pain. The book also provides a wealth of background information on the development of pain and numerous practical tips. The 4th edition is completely updated.Table of ContentsPreliminary remarks.- Test: How much is your everyday life determined by pain?- Part I: What you should know about pain.- Part II:Exercises and techniques for coping with pain.- Part III: Changes in unfavourable behaviour.- Service section: Copy template for a pain protocol.- Contact details of various pain relief societies.- Literature. Index.
£23.74
