Alzheimer’s, dementia and Parkinson’s disease Books

Book SynopsisBased on the findings of in-depth research and on the author's long-standing experience of working with people with dementia, this ground-breaking book provides fresh perspectives and ideas for policy and practice. In the first part of this extensively referenced and up-to-date book, Michael Bender examines the scientific status of the terms 'dementia', 'Alzheimer's' and 'multi-infarct dementias' and concludes that there is little convincing scientific evidence to justify their continued use. He suggests that in order to develop adequate psychological and social models of dementia, a number of perspectives, such as the intrapsychic, the interpersonal and the contextual, need to be developed.Drawing on contemporary theoretical concepts including multiple selves, personal construct theory, intrapsychic survival and the effect of historical and political factors on older people's well being, the author calls for a more positive and constructive approach to improving the lives of people with dementia. He emphasises the importance of the individual's social context; the problems they are facing and their reactions to those problems; their life history and interpersonal relationships and discusses the process of assessment, finally developing techniques that allow the person with dementia to describe their experience, helping to ameliorate cognitive losses.Taking an honest look at what we really know about dementia and how we can learn more, this innovative book will make essential reading for medical and mental health practitioners, researchers and students working in the field.Trade ReviewThis book [is] a valuable resource for specialist dementia care nurses, therapists and social care workers, for university lecturers and could be usefully included in reading lists for formal education programmes most probably at masters' level. -- Dementia: The International Journal of Social Research and PracticeI can strongly recommend this thoughtful text as essential reading for health care professionals who are keen to understand the experiences of people with "remediable or enduring cognitive losses" and how they can be helped. -- London Centre for Dementia Care NewsAn approachable and stimulating read for practitioners, researchers, students, indeed anyone working in the field of dementia. -- The Journal of Dementia CareThis academic book looks at the psychology of dementia and questions the validity of the terms such as "Alzheimer's", "dementia" and "multi-infarct dementias". The author proposes techniques that allow the person with dementia to describe the experience, helping to ameliorate cognitive losses. -- Ageing MattersExplorations of Dementia is an in-depth and challenging work that will reward the professional reader. -- Age Action IrelandTable of ContentsIntroduction. Part I: The Scientific Status of the Standard Paradigm and its Implications. 1. The Scientific Status of the Standard Paradigm. 2. How is the Standard Paradigm Maintained? 3. The Effects of the Paradigm: The Rise of Memory Clinics. Part II: A Framework for Understanding the Individual. 4. How Can we Understand the Person Who is Experiencing Cognitive Loss(es)? Part III: Perspectives of Understanding. 5. Old in Britain Today. 6. Psychosocial Explanations of Disorientation. 7. Difficulties and Problems, with Sally Robbins. 8. Cycles of Negotiation. 9. The Context of Assessment: Before the Professionals. 10. The Client's Position. 11. Insight, `Inconsistency' and Selves. 12. Interpersonal and Intrapsychic Survival, with Sally Robbins. Part IV: Futures. 13. In Practice. 14. Ways Forward. 15. Entrances and Exits. Appendices. References. Index.

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Book SynopsisThis is a book for those actively engaged in or interested in spiritual ministry to persons with dementia. Shamy draws heavily upon her experience, making this book very personal in its approach. I appreciated this style, feeling that the anecdotes anchor the book in the realm of what can be done rather than the theoretical world of the "maybes". The main concepts of the book, those of spirituality, retained through dementia, and personal worth should be acceptable to people of most world faiths.'- Leveson Newsletter'This is an important book that has much to offer at a variety of different levels. It ranges from deep philosophical thinking to practical recommendations... a book that should be bought, digested and used frequently.'- Christian Council on Ageing'Contains valuable material. The passages that attempt a definition of spirituality, and the stories about persons with dementia and how they have been helped to greater well-being, are relevant and excellently done. The spirit of Eileen Shamy shines out from these pages and carries its own message of passionate concern. One of the book's greatest strengths is its stories, which are unfailingly well-told and apposite.'- Ageing and SocietyDrawing on her years of experience as a clergywoman working with older people in care settings, Eileen Shamy discusses how pastoral work can help to develop holistic care for those suffering from dementia and related conditions - care which involves understanding of their spiritual as well as physical needs.This sensitive and informative book provides guidelines for pastoral visits to people with dementia, showing how to empathise with, understand and support individuals during a visit. Emphasising the importance of retaining dignity and freedom of choice for people with dementia, it also presents practical advice about memory cueing and provides frameworks for leading worship for those with dementia.A useful resource for a variety of people involved in pastoral care with older people, whether professionals or volunteers, this book provides inspiration from a respected author in the field of psychogeriatric care.Table of ContentsForewords. Introduction. 1. Through a Door of Hope: Or Eyeballing the Challenges 2. Understanding Alzheimer's Disease and Other Primary Dementias. 3. The Spiritual Dimension of Care. 4. Worship for People with Alzheimer's Disease and Related Dementias. 5. Being Present to the Person with Dementia: The Pastoral Conversation. 6. Caring for the Care-givers. 7. A Statement of Hope: The Field in Anathoth. Appendices. References. Index.

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Book SynopsisThere has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.'- Christian Council on Ageing'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care.Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process.I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.'- London Centre for Dementia Care Newsletter'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of DementiaplusExamining important issues in dementia research and care that are often neglected or marginalized, the contributors to this book provide fresh perspectives on current practice. The authors put dementia care into a socio-cultural framework, highlighting the impact of social change on dementia care over the last two decades and challenging current stereotypes.The contributors address the implications of power relationships between carers and people with dementia and discuss a broad spectrum of issues, including:* the sexuality of people with dementia* communication and risk taking* people with dementia from minority ethnic groups* faecal incontinence* dementia care and practice in remote rural communities.Taking an in-depth look at dementia research and service development, this book makes essential reading for practitioners, researchers and students working in the field of dementia care.Table of ContentsIntroduction, Dr Anthea Innes, Dr Carole Archibald and Charlie Murphy, University of Stirling. Part 1. Dementia and Social Change. 1. Dementia and Social Change: Views from a Sociologist of the Community, Professor Colin Bell, University of Stirling. 2. Rural Communities, Dr Anthea Innes and Dr Kirsty Sherlock, University of Stirling. 3. Improving Domiciliary Care for People with Dementia and their Carers: The Raising the Standard Project, Noni Cobban, University of Stirling. Part 2. Marginalised Socio-Cultural Issues in Dementia. 4. The Role of Spirituality in Providing Care to Dependent Elders Among African American Care-Givers, Professor Peggye Dilworth Anderson, University of North Carolina at Chapel Hill. 5. Death and Dying, Sylvia Cox, University of Stirling, and Karen Watchman, Scottish Down's Syndrome Association. 6. Sexuality and Dementia: Beyond the Pale?, Dr Carole Archibald. Part 3. Marginalised Dementia Care Issues. 7. Faecal Incontinence, Christian Müller Hergl, Meinwerk-Institut, Germany. 8. Social Exclusion (and Inclusion) in Care Homes, Errollyn Bruce, University of Bradford. 9. Risk Taking, Jill Manthorpe, University of Hull. Part 4. Representations and Re-presentations of People with Dementia. 10. Top-Dogs and Under-Dogs: Marginalising Problematic Voices, Dr Rik Cheston, University of Bath. 11. Images, Contructs, Theory and Method: Including the Narrative of Dementia, Dr Gillian McColgan, University of Stirling. 12. Reaching out with the Arts: Meeting the Person with Dementia, Clare Craig, Northern College, Barnsley and John Killick, University of Stirling. Part 5. Future Directions. 13. Medical Perspectives, Michael Bradbury, Professor Clive Ballard and Dr Andrew Fairburn, Newcastle General Hospital. 14. Social Science Theory on Dementia Research: Normal Ageing, Cultural Representation and Social Exclusion, Professor John Bond, Lynne Corner and Ruth Graham, University of Newcastle. 15. Social Science Perspectives on Dementia Research: Intersectionality, Wendy Hulko, University of Stirling. 17. Dementia and Social Inclusion: The Way Forward, Professor Caroline Cantley, Northumbria University and Professor Alison Bowes, University of Stirling. References. Index.

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Book SynopsisThe volume has ambitious scope and covers almost all potential supports and services. Most of the chapters have been written by professionals who work with people with dementia and their families, and most are British social workers and professionals allied-to-medicine (occupational therapy, physiotherapy and speech and language therapy).'- Ageing and Society'Marshall, in her introduction, states that the aim of the book is to strengthen the link between rehabilitation and dementia and to encourage the understanding that people with dementia do benefit from rehabilitation and treatment. The book clearly meets this aim with the contributors offering convincing arguments for the conceptualisation of dementia care as rehabilitation and the potential for improvements in symptoms and in quality of life for people with dementia... The book is accessible, easy to read, informative and provides practical information and new ideas useful for practitioners, services providers, commissioners and policy makers.'- Social Policy'This book has much to offer a range of professionals and those teaching them at post-qualifying levels.'- Journal of Interprofessional Care'The chapters give us a real and honest appraisal of the pains and possibilities of dementia. And David Jolley ends his chapter with what could be seen as a surprising statement that "Life with dementia is worth Living". His ideas sum up the tone of the book which asserts that people with dementia still have much to give but need help in order to maintain health, safety and dignity, and offers various practical therapeutic models that have been worked out in different settings... throughout the book we are encouraged to keep the person with dementia at the centre of care and to see them as a unique individual with a disability who needs help.'- Perspectives on Rehabilitation and Dementia'Service planners could gain from dipping in to this collection and testing the extent to which their current plans reflect the thinking shared by the authors. The importance of team working is stated throughout, and in an era of partnership working this provides yet another useful policy book on which to hang revised plans'- Community Care'Contributions from people with dementia and their families provide the central core of the text and anchor it firmly in reality. There is a unanimously positive approach to rehabilitation. Many of the authors focus on self esteem and confidence with many references to the need of teamwork. They also share the positive view of people with dementia, which concentrates on personhood focussing upon the whole person, drawing upon their strengths as well as taking into account declining abilities in some areas. This book is strongly recommended for health care professions, particularly nursing courses.'- London Centre for Dementia Care News 'The book explores the positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches. It includes many different perspectives from a diverse group of professionals, carers and practitioners, and people with dementia themselves.'- Working with Older PeoplePerspectives on Rehabilitation and Dementia offers new insights into the application of a well-established approach and set of skills to a group of people who have traditionally been thought not to benefit from them. Indeed people with dementia have missed out on physical and psychological rehabilitation very substantially. This book demonstrates that rehabilitation has positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches.The perspectives in this book are those of a very diverse group of professionals, carers, and people with dementia themselves. Professional backgrounds and the settings in which they work are diverse and include both academics and practitioners. The voices of people with dementia underline the importance of seeing how they understand rehabilitation for themselves.Professionals in almost all caring professions - nursing, physiotherapy, occupational therapy, acute, geriatric and psychiatric medicine, psychology, social work and rehabilitation - will increasingly find themselves working with people with dementia. They need to be alert to the latest thinking on approaches and interventions. This book provides a readable course text for understanding both their own professional contribution and that of others in the team.Trade Review'The book explores the positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches. It includes many different perspectives from a diverse group of professionals, carers and practitioners, and people with dementia themselves.' - Working with Older PeopleTable of ContentsForeword. Part One: Perspectives on the Field as a Whole. 1. Perspectives on rehabilitation and dementia. Mary Marshall. 2. Why do people with dementia become disabled? David Jolley, Dementia Plus, Wolverhampton City Primary Care Trust and University of Wolverhampton. 3. The historical context of rehabilitation and its application to dementia care. Suzanne Cahill, Dementia Services Information and Development Centre, Dublin and Trinity College, Dublin. 4. Intermediate care: The new pathway to rehabilitation or widening the chasm? Kate Read, Executive Director, Dementia Plus. 5. Rehabilitation for people with dementia: pointers for practice from the evidence base. Gail Mountain, School of Health and Social Care, Sheffield Hallam University. Part Two: Perspectives of People with Dementia and their Carers. 6. Rehabilitation: a carer's perspective. Susan Fleming, Joint Dementia Initiative, Falkirk. 7. Tedious no more! Morris Friedell, formerly University of California, Santa Barbara. 8. Some views of people with dementia. The PROP Group. 9. Our views on rehabilitation. Tom and Sheila Davis. Part Three: Specific Professional Perspectives. 10. The role of physiotherapy in dementia rehabilitation. Larissa Kempenaar, School of Health and Social Care, Glasgow Caledonian University. 11. Dementia in primary care: think rehab. Ian Greaves, GP and Wolverhampton University.12. Rehabilitation after acute physical illness. Peter Murdoch, Falkirk Royal Infirmary and Dementia Services Development Trust, Community Mental Health Team for Older People, Dundee. 13. The role of occupational therapy. Christine Davidson, Tayside Primary Care NHS Trust and Rona Bissell, Community Mental Health Team for Older People, Dundee. 14. Speech and language therapy. Joy Harris, Mental Health Team East and Midlothian. 15. Speech and language therapy work in the Sonas groups. Claire Black, speech and language therapist. 16. Dementia and rehabilitation: a CPN perspective. Ken Barlow, Community Mental Health Team, Dumfries and Galloway. 17. The contribution of social work to the rehabilitation of older people with dementia: values in practice. Maria Parsons, City of Westminster Council. Part Four: Specific Settings. 18. An Australian Model of Community Dementia Care. Barry Wiggins and Jenny Fahy, Hammond Care Group. 19. The Central Aberdeenshire Experience. Carolyn Marshall, Central Aberdeenshire Community Dementia Team, with case profiles by Allison Black, care manager, Grampian Primary Health Care. 20. Rehabilitation in acute medical settings: a nursing perspective. Sarah Rhynas, School of Nursing Studies, University of Edinburgh. 21. The role of specialist care homes. Susan Nixon, Falkirk Council Nursing and Social Work Services. Part Five: Specific Interventions. 22. Fit for life or fit for nothing: the contribution of Life Story Work. Faith Gibson, University of Ulster. 23. Cognitive rehabilitation for people with dementia. Linda Clare, University College, London, and Camden and Islington Mental Health and Social Care NHS Trust. 24. Rehabilitation: environmental aids and adaptations. Mary Marshall. 25. The role of medication in the rehabilitation of people with dementia. Cesar Rodriguez, consultant old age psychiatrist, Angus. 26. One size does not fit all: person-centred approaches to the use of assistive technology. Stephen Wey, Intensive Home Treatment and Rehabilitation Team. Part Six: Specific Difficulties. 27. Pain and dementia. Jose Closs, School of Healthcare Studies, University of Leeds. 28. Urinary continence rehabilitation in the person with dementia. Helen Leslie, Carrick Care Homes. 29. Dementia and visual impairment: good practice in rehabilitation work. Jim Crooks, Specialist Rehab Services for Blind and Partially Sighted People. Conclusion. 30. Learning about rehabilitation and dementia from many perspectives. Mary Marshall. Contributors. Subject Index. Author index.

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Book SynopsisThis book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia.Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition.Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.Trade Review`Aimed at families and carers, I found the content of this book to contain a vast amount of information, well written and understandable to those people who may be experiencing dementia for the first time. The chapters describe the experiences of dementia using a number of real-life examples which bring this person-centred book to life. It explores issues of communication, mood and behaviour problems, management guidelines and has a chapter on the family and the problems they experience, including feelings of guilt.The author bases this book not only on his professional outlook as a psychogerontologist and clinical psychologist, but also as a son, whose own father suffered with dementia. It brings the book to a more interesting level for me knowing the author has lived through the personal effects of dementia.' -- Signpost`This well-structured guide offers nine chapters about dementia, written for relatives, carers and professionals… This book offers a clear, simple overview of this complex disease process.' -- Dementia: The International Journal of Social Research and Practice`The Simplicity of Dementia has much to offer in terms of thoughtful, practical advice on caring for someone with dementia.' -- Ageing and Society, Cambridge Journals`The author provides a very person-centred approach to discussing the experience of dementia and offers guidelines for family caregivers and professional cares. This jargon-free text includes the voices of relatives, people with dementia and nurses…Very clear explanations are provided to explain personality changes caused by the disease such as: anxiety, blame, suspicious behaviour, depression and hoarding of foods or goods. These are crucially dealt with early in the book and explained sympathetically from the point-of view of the person with dementia… This is essential reading for anyone who is involved in caring for a person with dementia. It is much more readable than a textbook- not one scan picture in sight. The theme is people- their expereices as sufferers, family caregivers or professional carers. It is pocket size and the chapters can easily be read at intervals. The insights gained will clearly increase the satisfaction of caring for the person with dementia'. -- London Centre of Dementia Care`Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with Dementia and those around them'. -- Working with Older PeopleTable of ContentsPreface. 1. What is dementia? 2. The simple logic behind dementia 3. The experience of dementia 4. Communication. 5. Mood problems: Aggression, depression and suspicion 6. Behaviour problems: Clinging behaviour, wandering and nocturnal unrest 7. Management guidelines and activities 8. The family: The hidden victims 9. Feelings of guilt. References. Subject Index. Author Index.

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Book SynopsisClive Beaumont was diagnosed with Younger Onset Dementia at age 45, when his children were aged just 3 and 4. He had become less and less able to do his job properly and had been made redundant from the Army the year before.Clive's wife, Helen, tells of how she and the rest of the family made it through the next six years until Clive died: the challenge of continually adapting to his progressive deterioration; having to address the legal implications of the illness; applying for benefit payments; finding nursing homes; and juggling her responsibilities as a wife, a mother and an employee. She also describes the successful founding and development of The Clive Project, a registered charity set up by Helen and others in a bid to establish support services for people with Younger Onset Dementia.Younger Onset Dementia is comparatively rare, but not that rare. This story is for the family and friends of people with the condition, for the people themselves, and for the professionals working with them.Trade ReviewThis book is as engaging and enlightening as it is poignant and tragic, I personally could not put it down, I was so drawn to the heady mixture of its compelling human story, coupled with an easy, conversational readability. This book belongs to the burgeoning genre in mental health writing of client/user (or in this case, carer) narrative, and adds in no little way to that body of authority, especially covering the much less heralded arena (both clinically and in terms of publicity) of younger onset dementia. -- Mental Health NursingClive's wife Helen lays bare each raw aspect of her husband's condition and treatment: the tardy arrival of a proper diagnosis, the way Clive was shedding his life skills just as their children were acquiring theirs, the bewildering prejudices of the benefits system and the grief of having to find long-term care for him outside the home.Heartfelt, yet unsentimental, the result is a rare and illuminating account of trying to live and cope with this shattering condition.For anyone trying to understand the problems of dementia in younger people, this excellent book should be the first thing on their reading list. -- Nursing StandardTable of ContentsForeword. 1. Beginnings. 2. The Old Clive. 3. Diagnosis. 4. Dealing with the Diagnosis. 5. Coping with Dementia. 6. Sinking. 7. Nursing Homes. 8. Final Harbour. 9. The Start of the Clive Project. 10. The Present.

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Book SynopsisReminiscence is a vital way to stimulate communication and promote confidence and self-worth in people with dementia. This practical guide is designed to give those who care for people with dementia a clear sense of how reminiscence can be used to greatly improve their quality of life.The book explores how reminiscence can contribute to person-centred dementia care and contains detailed descriptions of activities that can be used in a group setting, for one-to-one reminiscence at home or in a variety of care settings. Based on ideas developed and tested internationally over a period of ten years, the book offers imaginative approaches to reminiscence and a wealth of resources for use in a wide range of situations. The book includes advice on organising a reminiscence project and provides a useful planning tool for group sessions.Remembering Yesterday, Caring Today highlights the value of reminiscence for those with dementia and is an essential guide to good practice for family and professional carers.Trade ReviewThis is an exceptionally important book that celebrates the interdependency of human beings, the virtues of the education of carers and the positive treatment of people with dementia... In describing in exquisite and profound, but necessary, detail how to create and re-create a wonderfully sensitive approach to caring for people with dementia, the authors have conveyed some of the most important research findings of the past twenty years in the context of a programme to support the strengths and well-being of people with dementia. At the same time, the programme they describe serves to educate carers to support and revel in demonstrations of their loved ones' strengths... This is a book that can add greatly to the lives of all concerned and I recommend it highly. -- Dementia JournalResearch and writing on dementia have never been more timely and necessary as the condition increasingly emerges as an international public health problem which transcends national, family, personal, professional and cultural boundaries, as is noted in the foreword to this practical, accessible and readable manual (page 9). Positive in tone this book presents realistic advice and useful resources based on knowledge distilled from considerable experience of working with a group all too easily socially excluded and marginalized... This is a very practical book, a manual for facilitators and carers to implement their own RYCT programme of activities and as such it functions very well... I would recommend this manual as a useful addition to the library of anyone facilitating sessions in the field of dementia. -- DramatherapyThis book is an excellently comprehensive and practical resource bursting with ideas and good, useable advice. If you're serious about using reminiscence properly (and all care homes should be) I thoroughly recommend this book. -- Caring TimesAny Health library strong in dementia care "best practice" guides will welcome this focus on the tool of reminiscence and its ability to support people with dementia. From how it works to stimulate communication to how professionals and family members alike can use reminiscence to maximum effectiveness both at the group and individual level, this is a key acquisition for any working with dementia patients - and their loved ones. -- The Midwest Book ReviewRemembering Yesterday, Caring Today culminates work spanning some ten years on the use of reminiscence with people with dementia. Essentially practice-based, this book is a clear guide to organising and structuring reminiscence sessions. It offers an optimistic and dynamic challenge to dementia care-giving. -- Professional Social WorkTable of ContentsForeword by Faith Gibson, Emeritus professor of Social Work, University of Ulster. Preface by Bob Woods, Professor of Clinical Psychology of Older People, University of Wales Bangor. Introduction. 1.Dementia and Reminiscence: Current Thinking. 2. Reminiscence in Dementia Care. 3. Reminiscence Skills and Methods.4. Remembering Yesterday, Caring Today: A Programme and an Approach. 5. Organising a Reminiscence Project. 6. Training for the Project Team and Family Carers. 7. Reminiscence Sessions: Retracing the Life Course. 8. Final Comments and Future Hopes. Appendix : Useful Documents. References. Index.

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Book SynopsisFor the increasing number of people diagnosed with dementia each year, treatment in the early stages can make a significant difference to their quality of life. This book provides examples of psychosocial interventions: taking into consideration the individual, social and environmental aspects of the person's life.It looks at ways of providing support at the time of diagnosis and goes on to explore a variety of interventions and services for the treatment of early dementia. Bringing together the knowledge and experiences of professionals from both the UK and Europe, the contributors describe interventions for both psychological and practical problems with case examples such as memory support groups, art therapies and assistive technologies for use in the home.This accessible book will be essential reading for practitioners and carers working with those with early dementia and will be extremely useful in both professional development and for those new to dementia care.Trade ReviewThis is quite an achievement for a book about evidence-based practice. It is humane, thoughtful and inspiring; appropriate reading for any professional working in dementia care. -- HCPJ, Sara Perren, Psychodynamic counsellor and group therapistThankfully Moniz-Cook and Manthorpe in Early Psychosocial Interventions in Dementia provide commissioners and practitioners with a goldmine of evidence-based practice with which to change, develop and deliver a range of psycho-social dementia services and interventions. -- The Journal of Ageing & SocietyThis is a wonderful book available just at the right time. Every Memory Service should have several copies to use as framework reminding us what can be done - and what must be done. Teams can use them for shared study and planning. We can then add our own wisdom to the existing chapters and perhaps write a few more through the exercise of reflective audit and operational research. -- Dementia PlusAs a publication it is both timely and encouraging... The book's emphasis throughout is upon early dementia. It is devoutly to be hoped that the forthcoming implementation of the strategy will incorporate some of the evidence-based "interventions" (non-medical treatments/services) described in the book. At the very least there is so much of value that should be included in the training of all working in the field. A prime example is the excellent chapter on what (and how) to tell people with dementia about their diagnosis.This is a major contribution that brings much encouragement. -- PlusThis book offers a fascinating insight into the range or creative and helpful interventions being developed qith and for people living with a dementia... A book of this type is to be warmly welcomed, given the scarcity of evidence-based practice in psycho-social interventions, and the challenge of implementing interventions that have demonstrably improved the lives of people living with a dementia. -- British Journal of Social WorkThis excellent book considers early psychosocial interventions at the time of diagnosis, cognition and memory-oriented support, psychological and social support, and the service developments in which these interventions can be based. -- Nursing StandardThere is so much of value that should be included in the training of all working in the field. This is a major contribution which brings much encouragement. -- Christian Council on AgeingContributions from health and social care professionals from the UK and Europe are cleverly combined to offer a comprehensive, informative and interesting account of tried and tested interventions for the person with early dementia... The easy to read guidance and advice will appeal to the busy professional, this book works well when read as a whole but is also perfect for quick reference. The guidelines for choosing the appropriate psychosocial interventions are set out clearly in a table which briefly explains the aim, the task, the intervention and relevant chapter for further reading... An essential read for every professional working with people with early dementia. -- Division of Clinical Psychology Forum.Table of ContentsList of illustrations. Acknowledgements. 1. Introduction: Personalising psychosocial interventions to individual need and context - Esme Moniz-Cook, University of Hull, UK, and Jill Manthorpe., King's College London, UK. Part I: Support at the time of diagnosis. 2. What do we tell people with dementia about their diagnosis and how do we tell them? - Hilary J. Husband, University of East Anglia, UK . 3. Timely psychosocial interventions in a memory clinic - Esme Moniz-Cook, University of Hull, UK,Gillian Gibson, Jas Harrison and Hannah Wilkinson, all Hull Memory Clinic. Part II: Cognitive and memory support. 4. Working with memory problems: cognitive rehabilitation in early dementia - Dr Linda Clare, University of Wales Bangor, UK. 5. Cognitive stimulation for people with mild cognitive impairment and early dementia - Dr Inge Cantegreil-Kallen, Jocelyne de Rotrou and Anne-Sophie Rigaud, all Broca Hospital, Paris, France. 6. GRADIOR: A personalised computer-based cognitive training programme for early intervention in dementia - Manuel Franco, Intras Foundation, Spain, Kate Jones, University of Wales Bangor, Bob Woods, University of Wales Bangor and Pablo Gomez, Intras Foundation, Spain. 7. Memory groups for people with early dementia - Molly Burnham, UK. 8. Health technologies for people with early dementia: the ENABLE project - Suzanne Cahill,Trinity College, Dublin, Emer Begley, Trinity College, Dublin, and Inger Hagen, Oslo, Norway. Part III: Psychological, emotional and social support. 9. Group psychotherapy for people with early dementia - Richard Cheston, University of Bath, UK. 10. Art therapy: getting in touch with inner self and outside world - Steffi Urbas, Alzheimer Therapiezentrum der Neurologischen Klinik, Bad Aibling, Germany. 11. A host of golden memories: individual and couples group reminiscence - Irene Carr, Princess Elizabeth Hospital, Guernsey, Karen Jarvis, Humber Mental Health Teaching NHS Trust, Hull, UK, and Esme Moniz-Cook. 12. Developing group support for men with mild cognitive difficulties and early dementia - Jill Manthorpe and Esme Moniz-Cook. 13. Group psycho-educational intervention for family carers - Rabih Chattat, University of Bologna, Italy, Marie Gianelli, University of Genova, Italy, and Giancarlo Savorani, S. Orsola-Malpighi University Hospital, Bologna, Italy. Part IV: Developing evidence-based psychosocial support services. 14. The Meeting Centres Support Group Programme - Rose-Marie Droes, Institute for Research in Extramural Medicine, Amsterdam, The Netherlands, Franka Meiland, VU University Medical Center, Amsterdam, The Netherlands, Jacomine de Lange, Trimbos-Institute, Rotterdam, the Netherlands, Myrra Vernooij-Dassen, Centre for Quality of Care Research, Nijmegen, the Netherlands, and Willem van Tliburg, VU University Medical Center, Amsterdam, the Netherlands. 15. Personalised disease management for people with dementia: the primary carer support programme - Myrra Vernooij-Dassen, Maud Graff, the Alzheimer's Center, Nijmegen, the Netherlands, and Marcel Olde Rikkert, University Medical Center, Nijmegen, the Netherlands. 16. Carer interventions in the voluntary sector - Georgina Charlesworth, University College London, UK, Joanne Halford, UK, Fiona Poland, University of East Anglia, UK, and Susan Vaughan, UK. List of contributors. Index.

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Book SynopsisMemory loss can create problems in every aspect of a person's life. The challenge of communicating thoughts and feelings can be made even harder by other people's negative perceptions of dementia.This book provides practical guidance for coping with progressive memory loss, and includes examples of real people who have faced similar challenges. These stories highlight both good and bad ways to deal with the problems that arise, and are also useful for describing the experiences of memory loss to friends and family. The authors suggest ways of maintaining physical and mental health by staying active and engaged in society. They also offer techniques for improving communication, preserving self-esteem and overcoming the stigma associated with memory loss.A Personal Guide to Living with Progressive Memory Loss offers inspiration and advice for anyone in the early stages of dementia. It also provides useful insight for family and friends who wish to offer support for a loved one affected by progressive memory loss.Trade ReviewThis book provides practical guidance for coping with progressive memory loss and includes examples of real people who have faced such challenges. These stories highlight both good and bad ways to deal with the problems that arise and are also useful for describing the experiences of memory loss to friends and family. The authors suggest ways of maintaining physical and mental health by staying active and engaged in society. They also offer techniques for improving, communication, preserving self-esteem and overcoming the stigma associated with memory loss. -- Human GivensThis book presents us all with a challenge to see that we have a real part to play in helping dementia suffers maximize the quality of their lives. They emphasise this in commending hope. "Hope lets you continue to celebrate who you are as a person. Hope is worth striving for and keeping in your life". Amen to that, I warmly commend this book which can enlarge our understanding and encourage us in our care of all who suffer from Progressive Memory Loss. -- Plus Magazine (Christian Council on Ageing)The information is concise and easy to read with the use of individual experiences from support groups to help others in similar situations. It enables people to understand the process of loss that occurs and how an individual can remain in control of their lives, with support, for as long as possible. Not only does this help sufferers, but also those who care for them, to understand the experience from the perspective of the person with the diagnosis. Maintaining the individual's personhood requires not stepping in early to take away roles too quickly. By reading this book, you are able to get a sense of a positive outlook on what could be such a negative experience; it is quite uplifting. It is not end but just the beginning of a new and very different chapter in the lives of that person, their family and friends. -- SignpostThe book speaks to people diagnosed with diseases that cause progressive memory loss, a resource guide to help them to manage the disease and consider different treatments... The core of this manual are the four chapters on staying active and functional, staying physically healthy, staying mentally healthy and, most importantly, finding hope. The chapters include constructive discussions about medication and non-medical treatment and meeting self-care needs. The emphasis is on normal living. Utilising social support and emphasizing the health benefits of non-medication treatments. Checklists, non-sentimental illustrations and a comprehensive bibliography complement this excellent text. Strongly recommended. -- London Centre for Dementia CareThis book empowers people living with dementia, signposting hope, choice and a life to be lived. I wholeheartedly recommend it. -- John Keady PhD RMN, Professor of Older People's Mental Health Nursing The University of Manchester/Bolton, Salford and Trafford Mental Health NHS Trust and Co-Editor of Dementia: the International Journal of Social Research and PracticeExpert gerontological nurses Burgener and Twigg have collaborated to produce a uniquely-focused, incredibly informative and thoughtful book to assist persons primarily in the early stages of dementia better adjust to and manage their disease. Although the contents are clinically and empirically based, the book is highly readable and practical, and provides broad-based treatment options and hope to newly diagnosed persons with dementia and those who love and care for them. -- Kathleen C. Buckwalter, PhD, RN, FAAN, Sally Mathis Hartwig Professor of Gerontological Nursing and Research Director of The University of Iowa John A. Hartford Center of Geriatric Nursing ExcellenceA Personal Guide to Living with Progressive Memory Loss serves as a commitment to inclusive education and is a landmark self-help book that focuses on the needs of the person with the diagnosis. It expands what is currently offered to people with memory loss in a sensitive and contemporary way. A must have for every memory clinic and health and human service agency. -- Linda L. Buettner, Professor at the University of North Carolina at Greensboro, Alzheimer's Association Early Stage Task ForceThis book is rare, if not unique, in that its stated audience is people diagnosed with diseases that caure progressive memory loss and difficulty with thinking.In the developing culture of wellbeing and recovery for older with mental health needs this text clearly gives examples of how people with progressive memory loss can take control (with or without the assistance of those around them) to shape their own lives. For this alone I would recommend this book. -- Older People and Occupational TherapyTable of ContentsIntroduction. 1. What Progressive Memory Loss Means to You: Claiming the Diagnosis. 2. Maintaining Personhood. 3. Maintaining Important Roles in Your Life. 4. Understanding the Stigma of Progressive Memory Loss: Managing Your Responses to the Behaviors of Others. 5. Communicating with Others. 6. Staying Active and Functional. 7. Staying Physically Healthy: Managing Physical Illnesses, Medications, and Self-Care Needs. 8. Staying Mentally Healthy: Managing Memory Loss and Impaired Thinking. 9. Finding Hope. References. Bibliography. Index.

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Book SynopsisEngagement in meaningful activity is an important aspect of human existence, regardless of one's cognitive abilities. Even in the later stages of dementia, people can still be engaged in activities at a level that allows them to be successful. In fact in these later stages, where cognitive abilities may be waning, the need for activity becomes greater, as cognitive stimulation helps preserve what skills remain. For care staff looking after older people, many of whom may have some degree of dementia, coming up with ideas for activities of a suitable level to keep their residents engaged and stimulated can be challenging.The Activity Year Book solves this problem, offering week by week themed activities. From Valentine's Day quizzes to Bonfire Night word searches, it has activities relating to every important date in the calendar, and also encourages reminiscence and discussion around these events. This book will be invaluable to care staff looking for a simple way of improving the lives of their residents, week by week, all year round.Trade Review... there is a genuine air of spontaneity throughout: the co-authors, with many years of experience, have certainly brought a sense of purpose to their publication. The occasional joke also lightens the tone, which can often become quite earnest in other similar, somewhat duller but well-meaning collections... Highly recommended. -- Working with Older People, Stephen Weekes, Book Reviews EditorFor those NAPA members who are always on the search for activity ideas, here is a wonderful resource to dip into. The Activity Yearbook offers week by week themed activities that can be easily used by all members of the care staff team. From Valentine's Day quizzes to Bonfire Night word searches, the book is filled with fun activities relating to many of the important dates in the calendar, including those in Scotland, Ireland and Wales. They also encourage reminiscence and discussion around these events. The authors also give practical tips on how to run a group and organise activities effectively. -- NAPA Living Life, Sally KnockerThis resource has the potential to improve the quality of life and activity levels of older people in care and should be a must have for all care homes. There is certainly enough material in this book to last much longer than a year which makes it a valuable resource for activity organisers/carers in residential or day services for older people. -- COTSS PLD, Pauline Peacock Specialist Occupational TherapistI enthusiastically recommend this Week by Week Guide for Use in Elderly Day and Residential Care to all who work in such settings or anyone who leads a Church or Community Centre group for a fun session...The activities suggested in this book are designed to help group leaders provide this beneficial stimulus and encourage them to use their own imaginations to adapt, to develop extra activities and themes. -- Plus Quarterly Magazine of Christian Council on AgeingYou may think this book's a bit pricey but it's a treasure trove of ideas and would be well worth the outlay for any care home. It is packed with activities of all sorts and I heartily recommend it. -- Standards for PracticeThe Activity Year Book is for care staff looking after older people who have some degree of dementia, and offers a range of activity ideas key to keeping them engaged and stimulated.. .A fine survey packed with fun ideas. -- The Midwest Book ReviewTable of ContentsIntroduction: Getting Started. 1. January - Twelfth Night; Winter; Burn's Night/St Andrew's Day; Animals in Winter. 2. February - When We Made Our Own Fun; Valentine's Day; Chinese New Year; Planting for Spring. 3. March - St David's Day; Houses and Homes; St Patrick and Ireland; The Equinox, Clocks and Time. 4. April - Easter: A Moveable Feast; Spring Cleaning; Birds, St. George. 5. May - May Day; May Ball; Whitsuntide; Folklore and Customs. 6. June - The Weather; Dog Days; The Stars and the Moon in June; Royal Ascot; Garden Party. 7. July - Sport; Weddings; Holidays and Honeymoons; Local Traditions. 8. August - Food, Glorious Food; Antiques; Pubs and Inns; Soaps. 9. September - Schooldays; Harvest Festival; What's in a Name?; Autumn; Newspapers and Current Affairs. 10. October - Healthy Body, Healthy Mind; Animals and Pets; Trafalgar Day; Halloween. 11. November - Bonfire Night; Rememberance Day; Colours; Famous Men and Women/St Andrew's Day. 12. December - Favourite T.V. and Radio Shows; The Local Flea Pit or Going to the Cinema; Musicals and Panto; Christmas Time; New Year and Calendars.

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Book SynopsisAlthough currently many people with dementia are not given the opportunity to receive professional counselling, this book explores the value of counselling for men and women living with this condition and how it enables them to make sense of their lives and their notions of themselves. The author explores the pervasive myth that all experiences of living with dementia are entirely negative and shows counsellors and carers how a person-centred counselling experience can have positive outcomes for those with dementia and the people who care for them.Based on the author's own experiences of counselling people with dementia, the book covers the fundamentals of the counselling process and precisely what a person-centred approach entails. The book then brings together several theories of counselling such as the role of the 'spiritual' in the counselling relationship; working with concepts of relational depth and configurations of Self; and the author's own theories of relating to a person's spiritual core. Accumulating findings from over 20 years of counselling experience in both the UK and the US, this book explores the importance of the Self and recognising each individual's worth and value. Dialogue from the author's counselling experiences is used to illustrate the person-centred counselling approach.Providing a comprehensive guide to person-centred counselling for people with dementia, this book gives an illuminating perspective on the subject and will be of value to counsellors, health and social care professionals, carers, people with dementia and their families.Trade ReviewThe importance of this short book is out of proportion to its size... It is the fruit of over 20 years of counselling experience by one individual in the United Kingdom, and United States of America; years in which she has been a pioneer in providing a one-to-one service for persons with dementia, and also working with family members... It is difficult to do justice to this book in a brief review. It is the kind I go through with pencil poised to underline a word, a phrase or sentence... this is a book that you cannot afford to be without. -- The Journal of Ageing & SocietyLipinska's book is both heartening, as there is a dearth of such services in the UK, and timely, with new National Strategies for Dementia published in England and imminent in Scotland (where dementia is already a priority) offering hope that this situation will change. -- HCPJ (Healthcare Counselling and Psychotherepy Journal)This is a worthwhile read and certainly succeeds in making the point that people with dementia are people and should be respected as such - This is for their benefit and ours. There may be a role for specialists personal counsellors within mainstream services. In addition the counselling approach and techniques described here can and should be adopted by professionals as a core component of their therapeutic armoury. -- Dementia Plus websiteWe've been waiting a long time for someone to write a definitive text on counselling persons with dementia. Now Danuta Lipinska has done it, and it is even better than we had hoped for. -- John Killick, co-author of 'Communication and the Care of People with Dementia'She challenges the pervasive negative assumptions associated with dementia. She reminds us all that those with dementia are first and foremost persons of dignity, worthy of being honored with our respect. With warmth and humor, Danuta shares the clarity of her vision of honoring the wholeness of the person, and the unique experiences of their history, always encouraging full expression of their feelings and frustrations, their strengths and their struggles. Her book demonstrates the power of listening, and the patience of not hurrying silence. She creates a therapeutic environment that honors the tenacity of the human spirit, and allows them to... Speak the unspeakable, confront the unimaginable, and yet hold on to the residual Self, the emerging Self. This book will open your heart with hope. If you are a caregiver, a family member, a friend, a therapist or allied medical professional, it will offer you a fresh perspective to consider, and be a great resource. -- Dwight Webb, author of The Soul of CounselingThis valuable book challenges us to raise our expectations, to believe in a person's capacity for growth and change despite even because of failing memory. This is a book about hope, respect and love. -- Cynthia Ransley, Lecturer in Social Work, Integrative Psychotherapist and Tutor, Metanoia Institute, LondonLipinska writes: "Making sense of self, if only for the moment, and if only for a moment in time, acknowledges, affirms and accepts the client's real Self by being able to share who she once was in the context of who she has become". This book shows that not only is this work possible, but it is of incredible value. It has deepened my knowledge and my desire to work with individuals who have dementia and with their carers. -- Therapy TodayTable of ContentsDedication. Foreword by Brian Thorne, Emeritus Professor of Counselling, University of East Anglia, UK. Acknowledgements. Introduction. 1. In the Beginning. 2. 'Standing Tall' and Other Lessons of Stature. 3. The Purpose of Counselling: Why Counsel People with Dementia? 4. The Process of Counselling: How Does It Work? 5. What is the Counselling Experience Like? 6. Who is the Client? 7. Communicating with One Another. 8. Essential Spirit-Core Relating. Epilogue. References. Additional Recommendations.

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Book Synopsis*Highly Commended in the Popular Medicine category at the 2012 British Medical Association Book Awards*The simple sensation of touching someone's hand can have a powerful therapeutic effect. Hand massage is a positive and meaningful way of reaching out and providing comfort to those who are elderly, ill or nearing the end of life, and it can be particularly effective for people with dementia who may respond well to positive non-verbal interaction.This book offers inspiration for all caregivers looking for an alternative way to support and connect with a family member, friend or patient in their care. It teaches an easy 30 minute hand massage sequence and offers clear instructions and detailed illustrations to guide the reader through each step. Combining light massage strokes with focused awareness, and paying close attention to points on energy pathways, this book introduces a structured way of sharing touch that is grounded in Western and Eastern massage traditions. Gentle touch therapy is ideal for healthcare professionals and family members alike, and has been shown to have physical and emotional benefits for both the giver and the receiver.Trade Review*Highly Commended in the Popular Medicine category of the 2012 BMA Medical Book Awards*'provides thoughtful and evidence based advice and tuition on working with this client group, and a reminder of the importance of seeing a person as a "whole" and not just their condition.' -- College of Occupational Therapy Specialist Section, Older People NewsletterThis is a clever little book in that it carefully balances Eastern philosophy of the body-energy-spirit system of integrative care with evidence-based studies focusing on the effectiveness and benefits of hand massage... Take My Hand is a book that we can all use - practitioners, daughters and sons, husbands and wives, sisters and brothers - to provide those we care for with the gift that is free but most valuable: our comforting touch. -- Dementia UK and Inside Palliative CareWhile massage and yoga may seem a little bit too "alternative" to some readers, these two books make a very good case for their use in care homes. They both put forward simple and unthreatening exercises that can be led by staff at any level. I would recommend starting any such program (massage or yoga) by getting staff to learn and appreciate the techniques by practicing on each other - a good way to begin a team meeting. -- Caring TimesGoldschmidt and van Meines' book will give new hope, direction and skills to those who want to help their fellow human beings as they face some of life's greatest challenges. Caregivers will find practical information on ways to use touch and hand massage to ease the suffering and enhance the quality of life for those who are terminally ill or who have advanced dementia. With its exceptionally clear and straightforward directions (and edifying illustrations) for carrying out the hand massage, this book is a natural for inclusion in long-term care in-service classes. -- Nanette A. Kramer, Ph.D., Clinical Geropsychologist, Brooklyn, New YorkFor family members who wonder 'what can I do?' [this book] offers profound information about a simple yet deeply meaningful way to connect with loved ones who have dementia or are at the end of life. -- Megan Haungs, licensed acupuncturist and massage therapist, and former Dean of the Acupuncture Program at Swedish Institute, College of Health Sciences, New YorkMuch more than a how-to book, Comforting Touch in Dementia and End of Life Care is really an open invitation to the transformative experience of providing simple, conscious touch to loved ones who are in one way or another slipping away from us. Drawing from sources as varied as mindfulness practices, research, Chinese Medicine, and moving personal stories, the authors provide caregivers with a clear path to offering simple hand massage, and to the benefits and profound sense of connection that often result. -- Lucy Liben, Dean of the Massage Therapy Program at Swedish Institute, College of Health Sciences, New YorkIn my work at the nursing home I found that when I used a hand massage it helped residents feel calm and cared for. It was like meditating, or taking a drink of cool water, creating a sense of peace and quiet. We discovered that when we share touch we not only send a message, we also receive one. That's what this approach is all about. -- Hermine Mitchell, certified nursing assistant, St. Alban's, New YorkTable of ContentsAcknowledgements. Part 1. A Sense of Connection. 1. Your Radiant Sea. 2. Sharing the Benefits of Touch. 3. The Body as Particles and Waves. 4. A Tangible Spirit. Part 2. Focusing Your Touch. 5. Physical and Energetic Qualities of the Hand. 6. Before You Begin: Observing Best Practices. 7. Elements of a Session. 8. A Hand Massage Sequence. 9. At a Glance: The Sequence and Reminders. Part 3: The Reality of Practicing. 10. Ten Challenges to Sharing Touch. 11. Adapting for Different Needs. 12. Comforting Touch in End of Life Care. Resources. References. Index.

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Book Synopsis*Winner in the Health and Social Care category at the 2012 British Medical Association Book Awards*Risk is central to professional practice, assessment and decision-making in dementia care. Yet theories of risk are often complex and difficult to translate into everyday practice. This book outlines some of the key issues in risk perception, assessment and management in dementia care in a way that is both practical and accessible to a wide range of practitioners. It develops an approach to risk that promotes choice for people with dementia whilst also acknowledging the complex challenges care providers face. The authors provide an overview of the legislative framework currently in place, and of the ethical dilemmas which may emerge in practice. Frameworks for informed and balanced decision-making are offered, and the importance of including the person with dementia, their family, and care providers in decision-making is emphasised. Throughout the book, case studies are used to illustrate effective negotiation and practical solutions to risk dilemmas in practice. This book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails.Trade ReviewThe strength of this guide is that it rests on authentic experiences and practice encounters in health and social care. This has resulted in an accessible text suitable for people who have attended various 'risk training' events and those who have not. -- International Journal of Integrated CareThe appearance of this little text, packed with insights, could not e more timely. Forming the latest in the helpful series of Bradford Dementia Group Good Practice Guides, the book's authors tackle core issues for the assessment and management of risk for people who live with dementia... It is to be hoped that the authors in future will give more consideration to issues that are only touched on briefly in the book, due no doubt to lack of space. These include the intriguing topic of resilience among older people and the difficult challenge of recasting societal values associated with age and ageing. One knotty problem is how the positive connotations of the notion of living well with dementia, which these researchers rightly favour, can be effectively translated into the wider structures of the UK's diverse polity. -- DementiaA very practical book which offers a way of viewing risk that is not black and white. -- Dementia Newsletterthis book provides a useful, easy-to-follow guide for practitioners who are involved with delivering services to people with dementia, wanting to better understand and navigate the complexities of risk assessment and management. -- Journal of Ageing & SocietyThis practical book outlines some of the key issues in risk perception, assessment and management in dementia care. It includes an overview of the current legislative framework and discusses ethical dilemmas. The author proposes frameworks for informed and balanced decision-making, and emphasises the importance of including the person with dementia, their family and care providers. -- Journal of Dementia CareAnother useful and progressive good practice guide from the Bradford Dementia Group which will help you to understand risk and thereby to support residents to take - and live well with - risks. -- Caring TimesThis book draws greatly on research undertaken by the various authors identifying risk from the perspective of people with dementia and their carers alongside their general practitioners... This book promotes quality of life for people with dementia and their families to live well; looking at evidence based practice and "situated decision making" and offers models for identifying risks and impacts from a quality of life perspective... Designed for practitioners, this book sits well alongside other books that promote the person centred approach and views of quality of life for people living with dementia. -- Patricia Cunliffe, Practice Supervisor, Gerontology Social Work * Aotearoa New Zealand Social Work *Table of ContentsForeword. Part I: Introduction. 1. Key Issues in Risk and Dementia Care. Living and risk. Living well with dementia. Our background. Principles and aims. Part II: Different Views on Risk. 2. Living with Dementia: Living with Risk. Introduction. Perceptions and differing views. Dementia care and risk in developing countries. The views of people with dementia and carers. Everyday life. Summary. 3. Working with Dementia: Working with Risk. Introduction. Risk in dementia care practice. Risk dilemmas. Legislative framework. Balancing risk assessment. Summary. Part III: Risk and Your Practice. 4. Risk Management. Introduction. The importance of process. Risk framework. Risk communication. Risk assessment and management framework. Summary. 5. Developing Practice in Risk Management in Dementia Care. Introduction. Risk in promoting quality of life. Professional development and decision making. Changing society - matters of value. Future directions. Conclusion. Appendix. References. Index.

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Book SynopsisProviding people with dementia with opportunities to engage in creative activity can play a crucial role in maintaining and enhancing communication, and in reinforcing personhood and identity. This thoughtful book describes how people with dementia, and the people who work with and care for them, can foster and develop a creative approach, and provides rich and varied ideas for creative activities. The authors explore the concept of creativity - what exactly it is, its particular relevance for people with dementia and how to get into the creative 'flow'. They introduce a range of creative art forms, including poetry and story-telling, collage, drama, music-making, photography, textiles and working with wood and metal, and suggest possibilities for employing them in a range of settings, and with people of all abilities. Consideration is given to the practicalities of facilitating such creative work, including how to organise and run sessions, how to involve people with dementia and their carers, and how to reflect upon the experience. Practice examples are included throughout the book, as well as the comments and observations of people with dementia, and many examples of the artwork and poetry the authors have created with people with dementia over the years. Brimming with ideas, suggestions and helpful guidance, this is an essential resource for all those who work with people with dementia, and an inspiring read for people with dementia and their families.Trade ReviewKillick and Craig must be applauded for their truly inspirational practical guide on Creativity and Communication in Persons with Dementia. This book is a true celebration of the power of the arts for people living with dementia and is drawn on the authors' own experiences and wisdom. -- Ageing and SocietyKillick and Craig must be applauded for their truly inspirational practical guide on Creativity and Communication in Persons with Dementia. This book is a true celebration of the power of the arts for people living with dementia and is drawn on the authors' own experiences and wisdom. Killick and Craig assert that whilst there has been significant financial investment in biomedical research, the care of people living with dementia has been notably overlooked, to the detriment of wellbeing and affirmation of identity and self-esteem. This book attempts to redress this imbalance and is aimed at anyone (with any level of artistic talent!) with an interest in working alongside people living with dementia in a creative capacity, be they practitioners, volunteers, family members or researchers. -- Journal of Ageing & SocietyIt is refreshing to have a book written where the outlook is of dementia having few barriers of boundaries on creativity... I find this book an inspirational read; it presents a wealth of ideas, suggestions, guidance and experience in the field of creativity and dementia. Most importantly it demonstrates how persons with dementia and those around them can gain from engaging in creativity activity. -- SignpostWhatever John Killick writes concerning dementia is eminently worth reading, perhaps even more so when he co-authors a book with another expert in the field... The present publication (...) will be invaluable for activities organisers in care homes and community-based projects, and of considerable interest to anyone caring for a person with dementia... The book is both insightful and practical -- Plus - Christian Council on AgeingWe can be sure that any book with John Killlick as author or co-author is going to be good. Not just good but inspirational. Killick sparks the creativity in all of us and care homes can be such lively places with people exploring a wide variety of creative activities: music, dance, poetry, drama, storytelling, painting, ceramics, sculpture, textiles, photography. All of these and others are offered by the authors. Just wonderful stuff: exciting, imaginative, and practical. -- Caring TimesThis charming, erudite book presents a wealth of experience about the arts and dementia in a readable and helpful form. The two authors are acknowledged experts with long experience of using a wide range of arts in this field. The book is therefore well grounded in practice and full of inspirational stories. It is also a treasure trove of ideas, suggestions and helpful guidance. -- Mary Marshall, Professor Emeritus, University of StirlingThis book left me speechless. For years, after being diagnosed with dementia, I moaned that not enough attention is paid to creativity in dementia. Little did I know, a work was in progress. As said inside, it is not meant to be comprehensive, but it covers a lot of ground. I couldn't put it down. You won't either. -- James Mckillop MBE, founding member of the Scottish Dementia Working GroupJohn and Claire's timely book shows why being engaged and entertained by singing, looking at paintings, taking photographs, dancing and other activities offers a bridge to joy, satisfaction and self identity for people with dementia. Brimming with ideas, research, reflection, and practice examples and woven throughout with comments and observations of people with dementia, it's an inspiring, effortless read not only for a wide range of health and social care practitioners, but, importantly, for artists and performers, whose work can help those experiencing a crisis of self, reconnect with life and living. -- Maria Parsons, Director, ARTZ UK: Artists for AlzheimersThis book is like the most colourful toolbox, crammed with a rich variety of materials begging to be used. John and Claire describe a magnificent mix of creative ideas, helpful insights and beautiful personal accounts from their experiences of working creatively with people living with dementia. Their enthusiasm is infectious; anyone who reads this will be inspired and excited to employ the creative strategies within. The book is about relationships; it is about developing sensitivities to be empathic, creative, opportunistic and communicative with people who have dementia and above all it is intensely human. John and Claire bring extraordinary clarity to the ways that they both work with people showing us how to gently gain empathy, use creative media and act as instruments to make tangible other people's words, meanings and feelings. The book will bring insight and inspiration to readers from any background. It will be a valuable tool to me in my continuing practice and I urge you to join me in taking John and Claire's advice, to let go of our assumptions of what we think we can achieve and to throw ourselves into these wonderful ideas. -- Dr Jayne Wallace, Senior Lecturer, School of Design, Northumbria UniversityFor practitioners convinced of the value of creative activity, this book will be a valuable resource. The authors offer many thought-provoking accounts and personal insights. -- Nursing StandardThere are currently many books available on communication with people experiencing dementia. This one is distinctly different, both in its approach and how it links creative thought and activities into the whole process of communication. More importantly it delivers what it say on the tin - it is 'A practical guide'. The essence of this book is not the various techniques and equipment (though these are described with admirable clarity) but how creativity and communication are fundamental to the human spirit. This book would benefit anyone working with or caring for individuals experiencing dementia, including informal carers. For health or social care professionals to whom the practical use of creativity to enhance communication is relatively new, this is a motivating and inspirational book. -- Jane Buswell * The Journal of Dementia Care *Table of ContentsIntroduction. Part I: Why the Arts? 1. What is Creativity? 2. What the Arts Can Do. 3. Getting in the Flow. Part II: What's on Offer. 4. The Food of Love: The Language of Music. 5. Moving in the Moment: Dance. 6. Giving Voice: Writing Poetry. 7. Making it all up: Improvisation and Other Dramas. 8. Telling Stories. 9. Conversations in Paint. 10. Playing with Mud: Ceramics and Clay. 11. Working with the Hard Stuff: Wood, Metal and Glass. 12. Textured Journeys: Exploring the Potential of Textiles. 13. Between Memory and Imagination: Collage and Life-Story Work. 14. Further than the Eye can See: Photography. 15. Putting the IT into Creativity. 16. Space and Place. 17. Taking it all in: Audience Involvement. Part III: Making Things Happen. 18. Getting Real. 19. Starting Out. 20. Drilling Down to the Detail. 21. Giving Creativity a Shape. 22. Measuring Success. 23. Making Space for your own Creativity. Part IV: Living it Out. 24. All Together: The Arts as Identity. 25. Beyond Grass. 26. Two Residencies. 27. Putting on the Ritz. 28. Ian and Me-ness. 29. Alan: Quick-change Artist. 30. Painting with Olivia. Conclusion. Further Reading. Index.

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Book SynopsisReminiscence is a valuable tool for the professional carer as well as those who are looking after a family member or friend. It enhances and enriches the care relationship, and benefits both the person being cared for and the carer. This fully-updated fourth edition is full of practical information on planning and running successful reminiscence work. It will enable carers and health and social care practitioners to develop the attitude, knowledge, understanding, values and skills they need to use reminiscence with people of all ages, either individually or in groups, and in residential or community settings. Topics covered include reminiscence with individuals and couples, inter-generational reminiscence, reminiscence with individuals from minority ethnic groups and reminiscence with people with sensory and learning disabilities, dementia, depression and terminal illness. This book is the ideal starting point for any professional taking up reminiscence work, as well as for those who wish to deepen their knowledge and increase their ability to help those they care for in less formal ways.Trade ReviewThis handbook is extremely full, informing and inspiring with detailed and helpful ideas to give reminiscence work depth and seriousness. It is aimed at a variety of professionals and volunteers, to support people of all ages, including family, friends and other staff... I have come away from reading this book having much deeper respect for reminiscence work, and wishing I had this book to hand all those years ago. -- DramatherapyNow updated and in its fourth edition, this is the standard and comprehensive volume on reminiscence by the leading authority on the subject. It is, perhaps, more suited to the specialist reminiscence worker (paid or unpaid). Nevertheless reminiscence plays such an important part in all sorts of care work that the manager or someone leading on integrating the use of memory and life-stories in the whole work of a care home would find this book very helpful. A feature of the new edition is the inclusion of reminiscence for all ages, even children. -- Caring TimesThis book would prove to be an invaluable tool to anyone involved in reminiscence work, from paid carers or family members to trained professionals... There is a natural flow to the chapters, making it easy to follow, and each chapter takes you through specific learning outcomes, key points and application exercises along with well-referenced further reading topics.I found there was a strong focus on the benefits of reminiscence work, looking at different client groups and group dynamics and working with couples and clients from different cultural backgrounds. One of the key issues for me was the need to pre-plan sessions, not to carry them out ad hoc, and to vector into the plan any expected outcomes; however, if the opportunity does arise then an unprompted spontaneous session must be seized "as the moment may not come again". The chapters are very diverse, covering reminiscence work with many client groups including people who are depressed, those with learning disabilities and people with sensory impairments. One of the areas covered that I found particularly interesting was carrying out reminiscence work with people who are coming to the end of their life and those recently bereaved, and how this helps to celebrate their life and also helps to deal with the loss and grief process. Finally the instructions relating to staff training and the forms provided to document sessions will prove invaluable to anyone with supervisory responsibility for staff teams currently or wanting to engage in any form of reminiscence work. -- Community CareThis book provides information on all aspects of reminiscence work... for practitioners involved with individuals, groups and diverse communities... In this, the fourth edition of the book, emphasis is being made on working with people who are depressed, who have learning difficulties and with people in palliative care and facing the end of their life. The book is designed as a handbook and the reader is guided through each chapter which has its own learning outcomes, a summary of key points and application exercises... This is a well-structured and accessible book and one I would confidently recommend to practitioners in social work and other human service areas... She wisely promotes recognitionof human development and the way in which we all grow throughout the life cycle when doing reminiscence work, and she constantly stresses the place of respect and hope in reminiscence work -- Aotearoa New Zealand Social WorkThis may prove a very useful resource for those family members or professionals working alongside or in partnership with loved ones or service users who are experiencing memory loos or memory recall problems... This book is both a useful handbook and a reference tool - I can see that it will have many applications in a variety of settings. It is sensitively and well written,describing "memory as the invisible history of the self". i found it to be a very honest book, admitting that on occasion some people do not want to remember. -- Carolyn Taylor-Score, CAFCASS Enhances Practitioner * Professional Social Work *Table of ContentsAbout the Author. Acknowledgements. 1. The Transforming Nature of Reminiscence. 2. Growing Throughout the Life Cycle - A Challenge for All Ages. 3. What is Reminiscence Work? 4. Why Encourage Reminiscence Work? 5. How to Begin Reminiscence Work - The Planning Phase. 6. Reminiscence work with Groups - The Beginning, Middle and Ending Phases. 7. Reminiscence and Life Review Work with Individuals and Couples. 8. Reminiscence and Oral History in Community Development. 9. Reminiscence with People from Minority Ethnic Groups. 10. Intergenerational Reminiscence Work. 11. Reminiscence with People with Dementia and Their Carers. 12. Reminiscence with People who are Depressed. 13. Reminiscence with People with Hearing, Sight and Speech Disabilities. 14. Reminiscence with People with Learning Disabilities. 15. Reminiscence with Terminally Ill and Bereaved People. 16. Staff Development, Training, Quality, Evaluation and Research Issues. References. Appendix - Recording Forms. Index.

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Book SynopsisPositive shifts in attitudes mean that emphasis is now being placed on the person with dementia and their personal relationships, rather than the illness. There is also growing recognition of the significance of a person's spiritual life in forming an essential basis for their sense of identity, and in providing them with a resource for coping. Offering an inter-disciplinary approach to spirituality and personhood in dementia care, the contributors to this book are leading practitioners and researchers in the field. They provide both a theoretical structure and a practical understanding of the essential role that spirituality can play in the affirmation of personhood and identity, and of ways in which the spiritual well-being of people with dementia can be nurtured. This thought-provoking book includes chapters approaching the subject from Christian and Buddhist perspectives, discussion of inter-faith relations, and of what spirituality might mean for those not part of any faith tradition. This will be valuable reading for nurses, care workers, care commissioners and pastoral support professionals interested in a more holistic and contemplative approach to caring for people with dementia.Trade Review...an informative and stimulating collection of essays that will enable any reader to be better informed about dementia. -- Modern Believing - The Journal of Liberal Journal...both of these books (Spirituality and Personhood in Dementia by Albert Jewell and Palliative Care, Ageing and Spirituality by Elizabeth Mackinlay), (...) are infused with glimpse of grace and courage, can inspire the reader to give thanks and cherish all that is good, and to live life as fully as we are able, even in the midst of frailty. -- The WayEach reader will benefit differently from the various chapters according to their present needs for understanding: every chapter has something to offer... There is much in this book to make one reconsider deep-rooted prejudiced thinking about dementia. -- Journal of Ageing & SocietySpirituality and Personhood in Dementia... is a superb collection of 18 wide-ranging and sometimes very challenging essays on dementia from which eventually some 30% of us will suffer. Although in some ways a specialist book, it would benefit any pastor. -- Ministry Today UKThis book would be useful for any individual interested in the topics it covers, due to the varying backgrounds of people writing the chapters. -- Signpost"Aspies on Mental Health" brings together a collection of 17 personal accounts which highlight these frustrations, including difficulties in gaining an appropriate diagnosis, lack of available post-diagnostic support, reactions from society, as well as coming to some sort of personal understanding of their diagnosis... the book offers important advice for the autism community, health professionals and families. The voice of those with Asperger's Syndrome is of paramount importance in influencing policy and practice and this book provides a great step in opening up that debate. -- Joanna Griffin, Chartered Counselling PsychologistSpirituality is seen as no longer the exclusive right of those with recognised religious belief systems. In many ways this is a considerable move forward.A key theme in the book is not to speculate or judge people in terms of stereotypes. I recommend this book to nurses, carers and managers looking for a more holistic and contemplative approach to care. -- Nursing StandardsDoctor Jewell's introductory chapter is a master-class in how to introduce such a collection. Not for him a tedious listing of who will say what, why and how. He has messages to convey and does so in a structure of his own design, decorated and informed by reference to the chapters which will follow and to the wider world of literature... There are eighteen essays, each with an individual author. All but three come from the UK. Dr Jewell's first compilation was ground breaking and can be seen to have been a major influence releasing the subsequent publication of many books and learned papers on the subject of spirituality, religion and late life and its associated pathologies. Thinking, speaking and writing on these subjects now has the benefit of all that has been said between times. The current collection includes many cross-references to colleagues contributing to this and other publications, often from the supportive Jessica Kingsley stable... This is a valuable collection of essays. It will become a favourite resource for teaching in lay and professional circles. -- Dementia UKAlthough there are many contributors to this text, there is a consistent harmony running through the chapters. The emphasis on relationships, personhood, and quality of care, the fear of dementia and the faith which sustains people living with dementia are beautifully illustrated... Everyone involved with persons with dementia will find this book an invaluable tool in understanding and meeting the needs of the people about whom they are concerned. -- International Journal of Person Centered MedicineSpirituality & Personhood in Dementia confronts the central issue of dementia: the change in personhood experienced by those suffering from its conditions and by those who live with them or care for them, and what we can do about it. Every chapter in this book offers hope: not of a cure, but of human coping with conditions which seem to take away everything we understand as human... It is a book packed with intelligent commentary and fascinating practice; it has the poetry of life stories and personal encounters, the prose of academic reflection and debate on issues most avoid but again and again, a simple message: the person with dementia is still a person, not a relic from the past but living now. -- plus (Quarterly Magazine of Christian Council on Ageing)Generally we don't pay sufficient attention to the spiritual life of care home residents. It is noticeable that homes that have a strong religious and/or spiritual belief or culture often provide residents with great support and purpose. This book has eighteen varied chapters all of which will get you thinking and will help you to develop the important spiritual element of care work. -- Caring TimesTable of ContentsPreface. 1. Introduction, Albert Jewell, retired Methodist minister, former Pastoral Director, MHA Care Group, Derby, UK. 2. Maintaining a Sense of Personhood in Dementia: A Personal View, Daphne Wallace, retired Consultant Old Age Psychiatrist. 3. A Carer's Perspective, Marianne Talbot, Director of Studies in Philosophy, Oxford University, UK. 4. Walking With a Person into Dementia: Creating Care Together, Elizabeth MacKinlay, Anglican priest and Director of the Centre for Ageing and Pastoral Studies, St Mark's National Theological Centre, Canberra, Australia, and Professor in the School of Theology, Charles Sturt University, Australia. 5. Becoming a Friend of Time: A Consideration of How we May Approach Persons with Dementia through Spiritual Sharing in the Moment, John Killick, Poet and Writer in Residence for Alzheimer Scotland. 6. To Live and Do and Help: A Life That's Worthwhile - Reflections on the Spiritual Meaning of Generosity for People Living with Dementia, Padmaprabha Dalby, Consultant Clinical Psychologist, Sussex Partnership NHS Foundation Trust, UK. 7. Voicing the Spiritual: Working with People with Dementia, Harriet Mowat, Managing Director, Mowat Research Ltd, Aberdeen, Scotland. 8. New Directions in Cognitive Behavioural Therapy for Older People with Dementia and Depression, Paul Green, Cognitive Behavioural Therapist, Yorkshire, UK. 9. Gathering and Growing Gifts through Creative Expression and Playfulness, Susan McFadden, Professor of Psychology, University of Wisconsin Oshkosh, USA. 10. The Holistic Care of Older People in Care Homes, Gaynor Hammond, Baptist Minister and Dementia Project Worker, Leeds, UK. 11. Making the Journey Together: Palliative Care of Persons with Dementia, Wendy Shiels, Dementia and Palliative Care Coordinator, Melbourne, Australia. 12. Loving Attention: Chaplaincy as a Model of Spiritual Care for those with Dementia, Margaret Goodall, Methodist minister and Chaplaincy Advisor for MHA Care Group, UK. 13. Resilience Promotion and its Relevance to the Personhood Needs of People with Dementia and Other Brain Damage, Murray Lloyd, retired geriatrician. 14. Sounding the Depths: A Reflection on the Challenge to Religious Belief and Practice, Brian Allen, Chaplaincy Team Leader, Northumberland, Tyne & Wear NHS Foundation Trust. 15. 'They Maintained the Fabric of this World': Spirituality and the Non-religious, Malcolm Goldsmith, retired Church of England Minister. 16. Being in the Moment: Developing a Contemplative Approach to Spiritual Care with People who have Dementia, John Swinton, Church of Scotland Minister and Professor in Practical Theology and Pastoral Care, School of Divinity, History and Philosophy, King's College, University of Aberdeen, UK. 17. Personhood, Personalism and Dementia: A Journey of Becoming, Clive Baldwin, Senior Lecturer in Social Work, University of Bradford, UK. 18. A Situated Embodied View of the Person with Dementia: Where does the Spiritual Come in?, Julian C. Hughes, Consultant in Old Age Psychiatry, North Tyneside General Hospital, UK. References. Index.

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Book SynopsisLosing the ability to communicate can be a frustrating and difficult experience for people with dementia, their families and carers. As the disease progresses, the person with dementia may find it increasingly difficult to express themselves clearly, and to understand what others say. Written with both family and professional carers in mind, this book clearly explains what happens to communication as dementia progresses, how this may affect an individual's memory, language and senses, and how carers might need to adapt their approach as a result. Advocating a person-centred approach to dementia care, the author describes methods of verbal and non-verbal communication, techniques for communicating with people who can not speak or move easily, and strategies for communicating more effectively in specific day-to-day situations, including at mealtimes, whilst helping the person with dementia to bathe or dress, and whilst out and about. Exercises at the end of each chapter encourage the carer to reflect on their learning and apply it to their own circumstances, and guidelines for creating a life story with the person with dementia as a means of promoting good communication are also included. This concise, practical book is essential reading for family caregivers, professional care staff, and all those who work with, or who are training to work with, people with dementia.Trade ReviewEvery caregiver for someone aged or living with any form of dementia would benefit from reading McCarthy's book for its practical wisdom. I would also strongly recommend this book as a reference for students in allied health, aged and dementia care training programs. I imagine seeing this book sitting comfortably on a home, study or office coffee table - somewhere is easy reach! -- The Australian and New Zealand Journal of Family TherapyThis book covers many important areas and succeeds in rendering care of the person with dementia in accessible language. The book is not just readable, but usable, so deserves to be readily applied in day to day care. -- metapsychology online reviewsThis extremely practical book helps people involved in the care of people with dementia who are encouraged to think less about inspection procedures, commissioning and health and safety and to focus on identifying how we fee about the people we care about we are encouraged to get in touch with the emotional needs of people living with dementia. This is no sentimental thesis, but an excellent guide for families and professional caregivers to understand the communication problems which can affect someone with advance dementia. Lots of practical suggestions are included as well as the vital advice on caring for oneself. -- The International Journal of Person Centered MedicineThe fact that exercises and questions are incorporated into each chapter helps to promote the readers' understanding of the material presented by allowing them to reflect on their prior learning and apply this to real-life situations... It is(...) a useful and accessible resource for anyone who work with people with dementia as well as for family caregivers and students. -- Community CareImagination and empathy are commended by McCarthy as key to providing care. He rightly stresses that listening carefully to what we hear is an essential element in communication. We all live in hope that others may listen to what we mean rather than hearing only what we say. -- plus (Quarterly Magazine of Christian Council on Ageing)This paperback is a further valuable addition to an ever-increasing market of information providing publications, and as such it is an interesting and informative read. -- SignpostThis little book is about communication. It is suitable for staff at all levels, providing sensible guidance for communicating well in the ordinary situations of daily living: showering, mealtimes, dressing, going to the toilet, going out, getting bored and making mistakes. -- Caring TimesBernie McCarthy is a Clinical Psychologist who works in dementia care in Australia. He has been greatly influenced by Dawn Brooker (now of Worchester), Tom Kitwood and the Bradford Dementia Group. He uses their work and publications to inform his own practices in care and teaching. It is from these that he has put together this modest, readable text which contains many acknowledgements to these original thinkers and sources. -- Dementia UKMcCarthy writes in a warm personal style with a minimum of technical language even when outlining ways in which different areas of the human brain functions in everyday life. Each chapter includes an example of a real life situation someone with dementia might find themselves in and concludes with some questions for the reader to test their grasp of its contents. It is good to see that the final chapter is on the topic of caring for yourself... Imagination and empathy are commended by McCarthy as key to providing care. He rightly stresses that listening carefully to what we hear is an essential element in communication. We all live in hope that others may listen to what we mean rather than hearing only what we say. -- Christian Council on AgeingThis practical book to assist people caring for those with dementia. It covers the brain and its effect on language and behaviour in people with dementia. It talks about person-centred care and the need to be flexible to individual needs rather than apply a "one size fits all" approach... easy to read and practical... I would definitely recommend this book to anyone working in the field of dementia, whether in a paid capacity or as a friend or family member. -- Caz Thomsen, Capital and Coast District Health Board * Aotearoa New Zealand Social Work *Table of ContentsIntroduction. 1. Communication. Sometimes it's a struggle. Dementia and the brain. Exercise 1.1. 2. The Person-centred Way - VIPS. VIPS - Value. Exercise 2.1. VIPS - Individual. Exercise 2.2. VIPS - Perspective. Exercise 2.3. VIPS - Social. Exercise 2.4. 3. Components of Communication. Empathy, imagination and defensiveness. Verbal communication. Exercise 3.1. Nonverbal communication. Exercise 3.2. 4. Relating with People who Cannot Speak or Move. Managing our own needs. Exercise 4.1. 5. Specific Situations. In the shower. At mealtimes. Dressing. Going to the toilet. Going out. Getting bored. Making mistakes. Exercise 5.1. 6. Caring About You. When you have reached your limit. Staying away from your limit. Keeping up your social life. Daily routine with space for your needs. Carers get depressed sometimes. What resources do you have? Exercise 6.1. Conclusion. Appendix. Signs of well-being. Signs of ill-being. References. Index.

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Book SynopsisPerson-centred dementia care relies on leadership that supports the ongoing process of learning about and valuing individuals, their feelings, strengths and needs, and using this knowledge to enhance wellbeing and create a positive care environment. With a strong practical focus and many helpful case examples, this book will equip readers with the practical skills, knowledge and confidence necessary to lead person-centred dementia care. The areas explored are relevant across a wide range of care settings, and to all those in, or starting, either a managerial or non-managerial leadership role within a dementia care service. Topics covered include the key goals for person-centred dementia care, and the type of leadership approach most likely to bring them to fruition; common barriers to person-centred dementia care, and how leaders can identify and combat them; how to nurture, support and empower staff; how to maximise the effectiveness of verbal and written communications; and how as a leader to respond to challenging situations and risk. This accessible book is essential reading for all those with a formal or informal leadership role within a dementia care service, including managers, deputy managers, team leaders, service managers and experienced care staff involved in leading or mentoring others.Trade ReviewThe author says herself, modestly, that many of the ideas will be familiar to many readers, but I believe they will never before have seen them laid out with such clarity, in such an orderly way and with such attention to the detail and the everyday reality of running a service. -- Nursing Times websiteShe looks at the barriers, examines how to empower and support, focuses on learning, communication, challenges, and achieving your vision as a leader. This is a includes many thoughtful insights and much useful advice. -- Caring TimesThis book provides a timely and grounded overview of the key skills required of leaders and how these skills can be acquired and enhanced. I have no doubt that Leadership for Person-centred Dementia Care will become one of the cornerstones guiding our movement to ensure that people live well with dementia. -- from the Foreword by Professor Murna Downs, Chair in Dementia Studies and Head of Bradford Dementia Group, University of BradfordDeveloping leaders who can combine passion with the skills to influence, encourage, direct, keep in line, win over and inspire their fellow workers to really give their best in this complex field is vital in dementia care services. Buz Loveday's thoughtful guide will be a real asset to all aspiring leaders. -- Sue Heiser, Retired Head of Residential Services, London Borough of CamdenLeadership for Person-Centred Dementia Care is not just another book on dementia care. It is an invaluable tool for successfully challenging negative norms and practices, making our journey in planning and delivering excellence in dementia care purposeful, rewarding and focused on the person who places trust in our care. -- Farah Afshari, Director, Care and Support Shop LimitedThis book provides clear guidance for those working with people with dementia. It provides practical advice both to leaders and non-leaders on how to work towards person-centred dementia care. This book will be invaluable to all those within the care profession as well as social workers and those on social work training. -- Selina Twum, Senior Practitioner, London Borough of NewhamLeadership for person-centred dementia care, is relevant to all in a leadership role (formal or informal) in a dementia care service... It covers the key goals for person-centred dementia care, and the type of leadership approach most likely to bring them to fruition; common barriers to person-centred dementia care, and how leaders can identify and combat them; how to nurture, support and empower staff; how to maximise the effectiveness of verbal and written communications; and how as a leader to respond to challenging situations and risk. The book has a practical focus and includes many case examples. -- The Journal of Dementia CareTable of ContentsForeword by Professor Murna Downs. Introduction: Beginning the Journey. 1. Focusing on the Goals of Person-Centred Dementia Care. 2. Identifying the Barriers to Person-Centred Care. 3. Empowering and Supporting Staff. 4. Creating a Learning Culture: The Role of Training and Reflective Practice. 5. Ensuring Effective Communication with Staff, Families and Professionals. 6. Working Together to Respond to Feelings and Needs. Conclusion: Moving Forward. References. Index.

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Book SynopsisFocusing on theoretical, policy and practice issues which are increasingly identified as key priorities, the contributors to this important book examine the ways in which dementia care is evolving around the globe. They explore the latest theory underpinning dementia care, the applications of this theory in dementia care research and how this research is influencing and shaping practice. Written by practitioners, policy influencers and researchers who draw on case studies from the UK, the USA, Canada, Australia, France, India and Malta, the book forms the basis for a worldwide dialogue of interdisciplinary initiatives and ideas. Insights into how policy and regional and national dementia strategies are developed, and the range of innovative approaches that can be taken in practice, mark a positive step towards ensuring that the needs of people with dementia around the world are met, both now and in the future. This book makes essential reading for practitioners, researchers, policy makers and students in the field of dementia care.Trade ReviewThis edited volume takes a welcome approach to review current issues in dementia care, providing a broad-based view of the conceptualisation of dementia, policy and practice... it is refreshing to read a book in which the focus is on the real world, in which we struggle to implement policy and provide the best possible services. -- British Journal of PsychiatryThe book is carefully edited, and meticulously referenced and indexed. The result is a model of good practice in the presentation of theory and research. -- Church TimesAfter all these years, dementia has truly come of age, and we can use the current policy interest and increased awareness to continue to make change happen on the basis of real evidence and information about what actually makes a difference. -- from the Foreword by Professor June Andrews, Director, Dementia Services Development Centre, University of Stirling, UKAn often surprisingly frank exploration of the development and implementation of policy, the nature of dementia and innovations in practice, written by international experts who are actively working in the field. It reflects the progress made in the last two decades and highlights the huge problems that are yet to be solved in a world where the increasing numbers of people with dementia may not be balanced by increasing resources. -- Professor Richard Fleming, Director, NSW/ACT Dementia Training Study Centre, University of Wollongong, AustraliaTable of ContentsForeword, Professor June Andrews, Director, Dementia Services Development Centre, University of Stirling, Scotland. Introduction. Part I. Conceptualising Dementia. 1. Towards a Holistic Approach for Understanding Dementia, Anthea Innes, Senior Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland. 2. Developing Evidence for Action: Dementia Care in Canada, Scott Dudgeon, Chief Executive Officer, Alzheimer Society of Canada. 3. Epidemiology: An Overview of Current and Predicted Epidemiological Factors Shaping Dementia Care, Nicola Coley, Postdoctoral researcher, Institut National de la Santé et de la Recherche Medicale (INSERM)-Toulouse III University UMR1027, Department of Epidemiology and Public Health, Toulouse University Hospital, France; Claudine Berr, INSERM research Director, INSERM-Montpellier University Research Unit UMR1061, Department of Neurology, Montpellier University Hospital, France; and Sandrine Andrieu, Professor of Epidemiology and Public Health, INSERM-Toulouse III University UMR1027, Department of Epidemiology and Public Health, Toulouse University Hospital, France. 4. Integrated Care and Treatment of Dementia: Defining Best Practice for the Twenty-first Century, Laura Telford, foundation year doctor in geriatric medicine, Victoria Hospital, Kirkaldy, Scotland; Emily Gallagher, foundation year doctor in geriatric medicine, Victoria Hospital, Kirkaldy, Scotland; and Emma Reynish, Consultant Physician in Internal Medicine and Geriatrics, Victoria Hospital, Kirkcaldy, Scotland and Honorary Professor in Dementia Studies, University of Stirling, Scotland. Part II. Policy Development. 5. Policy to Enable People with Dementia to Live Well with Dementia: Development of the National Dementia Strategy for England, Sube Banerjee, Professor of Mental Health and Ageing, Institute of Psychiatry, King's College London, England. 6. Three Alzheimer Plans in France (2008-2012), Marie-Jo Guisset Martinez, Programmes Manager, Fondation Médéric Alzheimer, France. 7. Implementing a Regional Strategy: The Fife Dementia Strategy, Louise McCabe, Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland. 8. Challenges of Developing a Dementia Strategy: The Case of Malta, Charles Scerri, Lecturer in Neuropathology and Neuropsychopharmacology, University of Malta. Part III. Innovative Approaches to Care. 9. The Function of Memory Clinics and Post-diagnostic Services for People Newly-diagnosed with Dementia and their Families, Fiona Kelly, Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland; and Paulina Szymczynska, Research Associate, Dementia Services Development Centre, University of Stirling, Scotland. 10. Bridging the Gap for Dementia Care in India, Amit Dias, Assistant Professor, Department of Preventive Medicine, Goa Medical College, India. 11. Evaluating the Impact of Environmental Design Features on Physical Activity Levels of Individuals with Dementia Living in Residential Accommodation, Loren deVries, Transitional Nurse Practitioner, The Garrawarra Centre, New South Wales, Australia; and Victoria Traynor, Associate Professor, School of Nursing, Midwifery and Indigenous Health, Australia. 12. Innovative Dementia Training in the Deep South of the United States, Christopher Jay Johnson, PhD, retired Professor, Family Therapist and Researcher; and Roxanna H. Johnson, Aging Consultants, Inc., USA. Conclusion. The Contributors. Subject Index. Author Index.

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Book SynopsisThis groundbreaking book is based on the findings of the first major study on spiritual reminiscence work with people with dementia. Carried out over a decade, the study confirmed spiritual reminiscence to be an effective means of helping people with dementia to find meaning in their own experience, and interact in meaningful ways with others. The authors present the evidence for the efficacy of spiritual reminiscence with this group, and drawing on examples demonstrate its many benefits, as revealed by the study, including the affirmation of identity and worth whilst promoting resilience and transcendence; reducing levels of depression; and giving people with dementia a voice with which to express grief, despair, joy, wisdom, insight and humour. Specific practice issues are addressed, including how to maximise communication and nurture connections during sessions; the role of symbol, ritual and liturgy and how to design an effective spiritual reminiscence program. Transcripts of sessions are included throughout the book as examples, providing unprecedented insight into how people with dementia experience spiritual reminiscence, and encouraging reflective practice. The book closes with a set of suggested questions and discussion topics which can be used as the basis of a six week program. Providing theory and the latest research as well as a wealth of practical information and examples to guide practice, this book will be of interest to dementia care practitioners and activity coordinators, pastoral carers, aged care chaplains, practical theologians, students, academics and researchers.Trade ReviewSpiritual reminiscence is a way of telling a life story with emphasis on meaning... A total of 113 older adults with dementia, living in aged-care facilities, participated in this study described in this book... the book describes, different views of ageing in our society... By examining concepts of spirituality and transcendence in later life, they explore ageing as a spiritual journey... The research described in the book has demonstrated that interaction in those with dementia are significantly increased following group work in spiritual reminiscence... Providing spiritual care is about tapping into the concept of spirituality; core meaning, deepest life meaning, hope and connectedness...The book is highly recommended for practitioners involved with people who have dementia. This valuable contribution to dementia care provided in this text should be an essential tool for chaplains, care home leaders and all the professionals who need the insights provided here to change attitudes and empower people with dementia. -- European Journal for Person Centered healthcare (EJPCH)This book is not a heavy philosophical exploration of meaning, but a practical reflection on years of supporting dementia sufferers. It draws heavily on first hand encounters and much of it is dedicated to airing the voices of those who participated in the author's programme. It offers practical advice to those wishing to use spiritual reminiscence as a means of supporting sufferers, but is also a v laudable resource for those seeking references for further research into this developing area of care. The book shows that spiritual reminiscence for those beginning the frightening journey into a future shaped by dementia is a valuable tool in helping them come to terms with their fears, their future and questions of meaning... The main positive impact of this book on reading it was the reminder that dementia sufferers may loose much of their functioning abilities, but never their humanity and that the search for meaning in life is far too important a topic to be left to philosophers. -- Nice.orgThe book provides an original and thought-provoking insight on managing dementia through spirituality and reminiscence. Whilst it rarely stipulates specific interventions and programs, it enables the reader to journey between evidence and experience, gently hypothesising and questioning fundamental approaches that may have been engrained in one's approach... This well-written book is suitable for carers, health professionals and staff working with or learning about persons with dementia. Students will also benefit greatly from this book, by engaging in a foundationally strong and evidence-based approach to caring for persons with dementia. The book is affordably priced and should attract readership both internationally and interprofessionally. -- Australian Journal on Ageing Book prizeThe book is highly recommended for practitioners involved with people who have dementia. This valuable contribution to dementia care provided in this text should be an essential tool for chaplains, care home leaders and all the professionals who need the insights provided here to change attitudes and empower people with dementia. This paperback book for permanent study is great value for money in contrast to a very expensive training course. -- The International Journal of Person Centered MedicineThe writers' understanding of "spiritual reminiscence" makes a further and significant advance in person-centred care. The verbatim reports of group work on finding meaning in life will be startlingly revealing... The book sounds a clarion call to care providers to be willing to take the next step in changing the culture of care for the better... easily accessible chapters... this book goes a long way towards fulfilling the authors' objective which is, in the title of the final chapter, that of Changing Attitudes and Empowering People with Dementia. -- plusThis vibrant account draws us into dialogue with the lively voices of people with dementia, inviting us to make connections with their humour, their hopes and their fears. Rather than theories about dementia, the authors prompt us to engage with the person, carrying their stories. The authors take us to the heart of dementia care: our common humanity. -- Associate Professor Rosalie Hudson, Charles Sturt UniversityThe authors' understanding of 'spiritual reminiscence' makes a further and significant advance in person-centred care. The verbatim reports of group work on finding meaning in life will be startlingly revealing to those who may think that people with dementia are little more than 'non-persons' incapable of any personal growth. The book sounds a clarion call to care providers to be willing to take the next step in changing the culture of care for the better. To effect this a practicable strategy and detailed programme are offered. -- Albert Jewell, retired Methodist ministerThis book is (...) a practical reflection on years of supporting dementia sufferers... It offers practical advice to those wishing to use spiritual reminiscence as a means of supporting sufferers, but is also a valuable resource for those seeking references for further research into this developing area of care. -- Rev Peter Davies, Hospital Chaplain * Signpost *The book provides practitioners with a thorough understanding of the theory and practice and provides many case studies to demonstrate the value of spiritual reminiscence in helping people to find meaning in the experience of dementia... This accessible guide to spiritual reminiscence work is recommended for dementia care practitioners, pastoral carers, aged care chaplains, activity coordinators and anyone else concerned with the wellbeing of people with dementia. -- The LampTable of ContentsPreface. Acknowledgements. Part I: Building the Evidence for Spiritual Reminiscence: Research and Theory. 1. An Introduction to Spiritual Reminiscence. 2. Current Understandings of Dementia and Implications for Care. 3. Investigating Spiritual Reminiscence. Part II: Listening to Those with Dementia: The Findings. 4. Autonomy and the Older Person with Dementia. 5. Resilience and Transcendence. 6. 'You've Got to Laugh!' 7. Wisdom and Insight. 8. People with Dementia in Multicultural Settings. 9. Hope and Despair Among Those with Dementia. 10. Grief is Part of Life. 11. A Theology of Dementia - Elizabeth MacKinlay. Part III: Practice of Spiritual Reminiscence. 12. Maximising Effective Communication. 13. Making Connections. 14. Ritual, Symbol and Liturgy. 15. Designing a Program for Finding Meaning and People with Dementia. 16. Changing Attitudes and Empowering People with Dementia. Appendix I: Group Topics for Spiritual Reminiscence. Appendix II: Mini Mental State Examination Scores for Participants. References. Index.

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Book SynopsisThis important book simply but persuasively demonstrates why we should provide the opportunities for people with dementia to experience the great outdoors. It also gives a voice to people with dementia who have felt the benefit of getting closer to nature. The contributors explore many different ways in which people with dementia can experience and interact with nature through pursuits such as farming, gardening and walking, and the book includes a chapter on the therapeutic, life-enhancing effects of activities with animals. The book includes descriptions of projects and initiatives from around the world that have revolutionised the everyday experience of people with dementia, and made a real difference to their quality of life. Illustrated with photographs amply demonstrating the power of nature to lift the spirits and enrich life, the book will be an inspiring guide for relatives, carers and professionals who want to help people with dementia lead a richer life, experience nature fully and enjoy its many accompanying benefits.Trade ReviewProviding a compelling case for both the need for therapeutic intervention, delivered through the medium of the great outdoors and the need to see the service user as a person first, this text is a timely reminder in these figure focussed times that as therapists we have more to offer than a focus simply on service users daily routines. -- College of Occupational Therapy Specialist Section, Older People NewsletterMany of us are fearful of dementia and its implications, and these fears are often translated into being overprotective. We can find ourselves de-skilling people who are already losing their abilities - all in the name of keeping them safe. This book challenges the assumptions underpinning this approach, with beautifully written essays from a range of contributors... Everyone involved in the care of individuals with dementia, or with their relatives, will benefit from reading this book. Many of the sections include good references for those who wish to study further ~This is not a textbook as such. Instead, it provides thoughtful inspiration and suggestions. -- Nursing StandardsI found the book an inspiration in terms of current practice that incorporates the natural world into care and therapeutic treatment. By giving voice to first-person narratives of those experiencing dementia to articulate the benefits they experience through contact with the natural world in all its myriad form, as well as contributions from professionals and carers, the book weaves effortlessly between different narrative and perspectives remaining true to a holistic vision of care where the natural world is central. -- Journal of Ageing & SocietyJane Gilliard and Mary Marshall are to be congratulated on plugging a real gap in the literature with this very readable book -- Plus - Christian Council on Ageinga fascinating book with many good ideas from several countries. Care homes can be such stuffy and unnatural places, unhealthy for mind, body and spirit, but, increasingly, there are homes where the garden and livestock are an everyday, all-season, parts of the place, and essential to the culture of care. None of us can live well or fully without some "fresh air on our faces". -- Caring TimesHow can one accept that people with dementia are deprived of the so simple and yet essential pleasures of relating to Nature when the solutions are there, in this rich and inspiring book? -- Marie-Jo Guisset Martinez, Programmes Manager, Foundation Médéric AlzheimerTable of ContentsIntroduction. Jane Gilliard and Mary Marshall. 1. Dementia, Spirituality and Nature. Malcolm Goldsmith, author of In A Strange Land and Hearing the Voice of People with Dementia and former Research Fellow, Dementia Services Development Centre, University of Stirling, Scotland. 2. Sunlight and Daylight. David McNair, Director of Lighting, Dementia Services Development Centre, University of Stirling, Scotland. 3. Living with Dementia through the Changing Seasons. Neil Mapes, Director of Dementia Adventure CIC, Essex, UK. 4. The Forget Me Not Centre. Linda Hughes, Lead Occupational Therapist, Forget Me Not Centre, Swindon, UK. 5. From Demedicalisation to Renaturalisation: Dementia and Nature in Harmony. Peter Whitehouse, Geriatric Neurologist, The Intergenerational School and Case Western Reserve University, USA, Danny George, Department of Humanities, Penn State College of Medicine, USA, Johanna Wigg, The Vicarage by the Sea, Inc., Maine, USA and Brett Joseph, Environmental Educator and Farmer/Permaculturalist, Center for Ecological Culture, Inc., Ohio, USA. 'A Walking Panacea.' Brian and June Hennell. 6. Farming for Health: Exploring Benefits of Green Care Farms for Dementia Patients. Simone De Bruin, Researcher, National Institute for Public Health and the Environment, Bilthoven, the Netherlands, Simon Oosting, Assistant Professor, Department of Animal Sciences, Wageningen University, the Netherlands, Marie-José Enders-Slegers, Department of Clinical and Health Psychology, Utrecht University, the Netherlands and Jos Schols. 7. No Roof but the Sky Above My Head. James McKillop, MBE. 8. Animal Assisted Activities (AAA) for People Living with Dementia. Marcus Fellows, Chief Executive, BCOP, UK and Ann Rainsford. 9. Gardening and Dementia. Members of the Park Club, Age Concern Exeter, UK and Rachael Litherland, Innovations in Dementia, CIC, UK. 10. Allotments. Lorraine Robertson, Alzheimer Scotland. 'Things Aren't What They Used to Be.' Trevor Jarvis. 11. Creativity Outdoors. Claire Craig, Art and Design Research Centre, Sheffield Hallam University, UK. 12. The Therapeutic Mountain: The AlzheimUr CENTRE (Murcia, Spain). Halldóra Arnardóttir, PhD Art Historian and Javier Sánchez Merina, Architect, Sarq Architecture Office and Hospital Virgen de la Arrixaca, Murcia, Spain. 13. Three Voices. Scottish Dementia Working Group. 14. Arne Naess: A Reflection. Peter Whitehouse, Geriatric Neurologist, The Intergenerational School and Case Western Reserve University, USA. 15. Nature, Spiritual Care and Dementia from an Asian Perspective. Manjit Kaur Nijjar and carers. 'Up and Away' and 'An Eyeshot in Summer.' John Killick, Poet and Writer in Residence for Alzheimer Scotland. Concluding Reflections. Jane Gilliard and Mary Marshall. The Editors. The Contributors. Index.

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Book SynopsisIn People with Dementia Speak Out, twenty-three people from diverse backgrounds share their experiences of living with dementia. The contributors are honest about the frustrations and fears they face, but overall there is remarkably little self-pity and a great deal of optimism. The personal accounts demonstrate that with the right support at the right time, and above all with opportunities to continue to contribute to society in a meaningful way, it is possible to live well with dementia. These fascinating stories bring to life the characters behind the collective term 'people with dementia', and show that each person with dementia is a unique individual with their own personality, history, beliefs, cultural affinities and sense of humour, and their own way of adapting to the disabilities and opportunities which this condition confers. This unique collection of personal testimonies will be reassuring and encouraging for those coming to terms with a diagnosis of dementia, for their families and carers, and is essential reading for health and social care professionals at all levels.Trade ReviewPeople with Dementia Speak Out is a celebration of people living, loving, learning, changing and growing with dementia. It is a rich and multi-dimensional collection of first-person accounts from people living with dementia. Each story combines people's reflections on their life stories - which are hugely diverse - woven together with accounts of their growing awareness of difficulties and the impact of dementia on their lives. These stories are about identities and how dementia becomes another aspect of people's lives - but not the only aspect. This collection has been thoughtfully edited by Lucy Whitman, who usefully shares her reflections on a complex editorial process that succeeds in retaining the diversity of experience, personality and language style that in turn helps to convey the realities - the highs and lows of how dementia is incorporated into people's lives and identities - and the sheer resilience with which people respond to such major life changes. People's voices, wishes, hopes and concerns ring out from every page of this book. This is a must read for those who want to hear and understand the voices of people who are living with dementia. -- Rachael Litherland, Co-director, Innovations in Dementia CICAlthough I have read many books on dementia in the four years since I was diagnosed with Alzheimer's disease, seldom have I engaged with one which has informed and moved me as much as this one. Lucy and her co-authors will inspire, challenge, and yet reassure you in equal measure, whether you are affected by dementia personally, or are a professional caring for us. The people in this book "speak out" through story-telling, conveying a human narrative around living well with dementia. The message they all so sincerely convey is based upon everyone being different, with personhood at the centre, whilst sharing a common bond and a desire to reduce stigma and misunderstandings, and replace them with hope and belief. -- Keith Oliver, Dementia Service User Envoy, Kent & Medway NHS and Social Care Partnership TrustEveryone working in dementia care should read this important book. Powerful and moving, these stories drive home what must be the guiding principle of all our work: to see and know each person as an individual all the way from first contact to later difficult times. Many contributors relate a stark lack of support after diagnosis but there are bright lights of positive services too, highlighting especially how vital mutual support groups can be. -- Sue Benson, Managing Editor, Journal of Dementia CareIn a better world, Lucy Whitman's book would be required reading in schools. It brings alive the experience of living with dementia through the stories of people from all walks of life in the UK, and eloquently illustrates the theme of the 2013 report by the All Party Parliamentary Group on Dementia: Dementia does not discriminate. Importantly, Lucy has made every effort to ensure all the contributors tell their story in their own way. A valuable, evocative and commendable testimony to the importance of seeing the person, not the dementia. -- David Truswell, NHS Senior Project Manager & Trustee of Culture Dementia UKIt is clear from this book that people living with dementia are engaged in a daily struggle to retain their distinctive individual personalities and identities linked to their own specific histories and life stories. It is therefore gratifying to see the care, skill and subtlety deployed in this volume to capture the unique voices and turns of expression of the participants, including where these occasionally conflict with the conventions and norms of written Standard English. -- Dr Roxy Harris, Centre for Language, Discourse & Communication, Kings College LondonMake no mistake, this is a major work of scholarship, as well as taking us several steps forward in understanding the significance of dementia to individuals and their need for appropriate help. In her first book, Telling Tales about Dementia, Lucy Whitman established herself as a visionary communicator; this book raised awareness and respect for people with dementia and their families. It has influenced how we respond to their needs and has helped many, through the sharing and comparing of stories.In People with Dementia Speak Out she opens the book on life as seen by individuals actually living with dementia, bringing together the perspectives of 23 authors. She explains her methodology and influences in three illuminating appendices. The range is wide, with a mixture of older people and those who have early onset dementia, and contributors born in many different countries.These are not tales of sorrow and suffering. In every one, the main theme is the whole life story of the PERSON. Dementia comes as but one experience, one part of one period - the final period - woven onto and into a fabric which has lasted years.There is much wisdom here. These stories will bring smiles and tears, anger and determination. Most importantly they will spread a better understanding - and hopefully we will use this to best effect. -- Professor David Jolley, Consultant Psychiatrist and Honorary Reader in Old Age Psychiatry, University of ManchesterI read Lucy Whitman's first book - Telling Tales About Dementia: Experiences of Caring - and found it riveting. I frequently recommend it as essential reading for those working in this field. It presents an expertly edited text that accurately reflects a range of carer experiences. Shortly after its publication she mentioned to me that she was considering a 'sister' text that portrayed the experiences and narratives of people with dementia to which I stated that this would be an excellent accompaniment to Telling Tales. We are starting to see an emerging number of books that give first hand narrative to what it is to have dementia. People with Dementia Speak Out!, Lucy's second edited text, makes a valuable contribution to this small but growing body of knowledge. -- Karen Harrison Dening, Director of Admiral Nursing, Dementia UKTable of ContentsIntroduction. 1. Grandad - can you go and get a new brain? Graham Browne. 2. Are you sure you've got Alzheimer's? Alex Burton. 3. A doctor in search of a diagnosis. Jennifer Bute. 4. I'll ken it when I see it. Ross Campbell. 5. Liberation! Dizi Conti. 6. I'm gone older. Everything change. Romanina Contucci. 7. Riding the rollercoaster. Carol Cronk. 8. I still remember. Halide Eames. 9. I never get tired of dancing. Midge Flint. 10. They deal with everybody as an individual. Clarice Hall. 11. One place to another. Abdul Haque. 12. A double diagnosis. Brian Hennell. 13 Anybody been kind to me, it stays with me. Pearl Hylton. 14. Love me for who I am. Ann Johnson. 15. Down with Dementia. Sylvia Kahn. 16. Deciding to resist. Lazarus. 17. You keep-a-knockin' but you can't come in. Alex Lindsay. 18. The doors of perception. Edward McLaughlin. 19. Journey into Alzheimerland. Peter Mittler. 20. Who's afraid of the flying bombs? Lorna Moore. 21. Time to break the taboo. Rukiya Mukadam. 22. Something better. Mary Tall. 23. A Psychiatrist with Dementia. Daphne Wallace. Appendix I: Editing Challenges. Appendix II: Narrative Based Medicine. Appendix III: LGBT People with Dementia. Afterword by Graham Stokes.

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Book SynopsisChristine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.Trade ReviewHer story is remarkable and humbling... This complex condition affects each individual differently, but Christine Bryden, in a clear and lucid overview, is able to explain in detail what happens to the brain and what varying symptoms this may produce. -- The WayThis book's great strength, apart from the vivid and moving testimony of one who is facing up to the challenge of dementia with faith and courage, is the challenge to us in the church that underlies it all. Longevity, and the increasing incidence of dementia, are a call to us in CCOA and the churches to ensure that we continue to raise awareness of the need for understanding and trained pastoral care, in respect of those who suffer from dementia together with their carers. The book includes a helpful description of the types of dementia and resources, in terms of literature and organisations, that can help. I commend this book as a helpful source of better understanding of the plight of dementia sufferers and a means of prompting us to respond with the informed care that they require. -- Plus - Quarterly magazine of Christian Council on AgeingBryden becomes a campaigner for social change for those affected by dementia in Australia. It is a moving and inspiring book. -- Church Timesa very readable book about dementia, told through the personal experience of a sufferer rather than a carer. -- the Journal of Health Care ChaplaincyI am delighted that this book of a first-hand account of dementia is being republished. I know it has been inspirational for many who have dementia and for their families. These days, most people say that they know someone who has dementia, and it is my hope that Christine's words will be read by many others, who will also find inspiration in her journey, her strength and her faith, which have carried her through all this time. -- from the Foreword by Elizabeth MacKinlayChristine’s story is one of inspiration and strength. A single mother with Alzheimer's disease and three young daughters: all that and only in her mid-40s facing another decade of life if she’s lucky. But she’s already jumped her greatest hurdle - that of facing the unknown. Christine has put that greatest of fears behind her. Who will she be when she dies? A mother remembered and revered by her family and a woman who gave a great deal of herself to strangers. -- Mike Munro, Australian television presenterI read this book in several sessions over the course of one day and found it a moving and compelling read... I can heartily recommend it for those in the early stages of Alzheimer's or dementia, and to their carers. -- GoodBookStall.co.ukTable of ContentsForeword by Elizabeth MacKinlay. Preface. The Diagnosis. 1. I'm too young! 2. The first signs. 3. The second opinion. Who Will I Be When I Die? 4. At least you can't die from it! - wrong!. 5. You look so well! - if only I had cancer! 6. A terminal illness - so why are we ashamed of it? What's It Like, Having Alzheimer's? 7. Clinging to a precipice with my fingernails. 8. From 'super-memory' to losing the plot. 9. A confusion of sight and sound. 10. A jumble of words. 11. Life's essentials. An Adventure into the Unknown. 12. Trying to be prepared. 13. My car's an alien spaceship! - and other oddities. 14. From 'super-mum' to dependent mum. 15. A scary road ahead? Where to Now? 16. Our fifteen minutes of fame. 17. Do I really believe in healing? A Postscript - A God of Surprises! 18. I'm getting better! 19. A 'miracle cure'? Thank God God's in Charge! 20. Getting onto 'God's roller-coaster'. 21. Why me - and why Alzheimer's, God? 22. Is God a 'bandaid'? 23. Am I afraid of dying? Appendix. What is Alzheimer's disease?

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Book SynopsisPersonalisation builds on person-centred care to focus on how people with dementia can have more choice and control over decisions affecting them, and be supported to be part of their communities.This practical guide explains how to deliver personalised services and support for people with dementia through simple, evidence-based person-centred practices. The authors clearly explain personalisation and current person-centred thinking and practice, providing many vivid examples of how it has been achieved in community as well as residential care settings. They guide the reader through using a range of person-centred practices. Strategies for ensuring a good match between the person with dementia and the staff and volunteers supporting them are also described. In the final chapter, the reader is introduced to Progress for Providers, a photocopiable tool for tracking progress in delivering appropriate personalised support for people with dementia living in care homes.This is essential reading for dementia care practitioners and managers, as well as social and health care workers, community workers and students.Trade ReviewA refreshingly readable book, feels and looks like a text book but reads like a supportive coaching manual. Very in-depth but that doesn't distract from the clarity of the writing style... Too many highlights really including - "one-page profiles", "personalisation" and "person centred practices" because they have resonance across all spheres of Nursing. They make you sit up, think and reflect on your own work. Chapter 5 "matching staff and clarifying responsibilities" is my highlight. Suggesting how matching staff characteristics with persons living with dementia, develops a win-win relationship... I would like to see everyone involved in elder care have access to a copy of this book. That's not just care staff, but non-care support staff too. It will be appropriate across all levels of nursing from NVQ support staff to ward managers and service providers. -- Nursing TimesThe person-centred practices outlined in this book show how to deliver genuine personalisation, where what is important for the person is balanced with what is important to the person's wellbeing. It is about the stuff that makes a life worth living: each person as an individual with their own needs, wishes, and dreams to be recognised and met... In the current economic climate, it is even more important that we make sure personalisation is about real choice and service. It is not, and must not be seen as, a way of cutting funding. I therefore warmly welcome the timely publication of a book that seeks to ensure we always see the person and not the dementia . -- from the Foreword by Jeremy Hughes, Chief Executive of the Alzheimer's SocietyThis is a really useful book. All those supporting people with dementia in their own homes or within care homes will find this helpful. The person-centred thinking tools prompt readers to see what is really important to help people live their lives. On the surface level the tools are a format for planning care delivery. They are deceptively simple. They are never more than one page long but on a deeper level they help caring staff ask the sorts of transformational questions that pinpoint what is really important for the person. The worked examples are very real and moving and underscore that this is not just a paper exercise. This is essential reading for all advocates of person-centred care. -- Professor Dawn Brooker, Director of the University of Worcester Association for Dementia StudiesTable of ContentsForeword by Jeremy Hughes. Introduction. 1. About this Book - and Arthur. 2. Personalisation and People Living with Dementia with Martin Routledge, Head of Operations, In Control, UK 3. Knowing the Person - One-Page Profiles. 4. Choice and Control in Practice. 5. Matching Staff and Clarifying Responsibilities. 6. Acting on What is Working and Not Working. 7. Further Reflection, Learning and Action. 8. Past and Future - Life Stories and Future Wishes. 9. Being Part of the Community. 10. Putting it All Together - John's Story. 11. Getting Started and Progress for Providers. Appendix: Progress for Providers: Checking Your Progress in Delivering Personalised Support for People Living with Dementia in Care Homes. References. Index.

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Book SynopsisWhat do national dementia strategies, constantly evolving policy and ongoing funding difficulties mean for people living well with dementia? Adopting a broad and inclusive approach, Shibley Rahman presents a thorough critical analysis of existing dementia policy, and tackles head-on current and controversial topics at the forefront of public and political debate, such as diagnosis in primary care, access to services for marginalised groups, stigma and discrimination, integrated care, personal health budgets, personalised medicine and the use of GPS tracking. Drawing on a wealth of diverse research, and including voices from all reaches of the globe, he identifies current policy challenges for living well with dementia, and highlights pockets of innovation and good practice to inform practical solutions for living better with dementia in the future. A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields.Trade ReviewI congratulate Shibley on writing a book that brings together so many of the challenges facing people who are living with dementia, their families, and professionals from many different disciplines, and takes them forward in a critically thoughtful way. This is a book that truly points the way to a future where living better is a reality for everyone affected by dementia. -- Beth Britton, Freelance Campaigner, Consultant, Writer and BloggerThis new book is an immaculately researched guide to living with dementia in England in the 21st century, covering the subject from policy to lived experience, but always with consideration and compassion. There is no better introduction to the challenges and complexities that dementia brings to individuals, families and society. -- Geoff Huggins, Director of Health and Social Care Integration, Scottish GovernmentThis book is informative and challenging in equal measure. It not only provides a thorough analysis of the issues currently facing dementia care, but it also offers a refreshing and thoughtful critique of the many challenges. Each chapter carefully combines research evidence, practice issues and policy influences, and contextualises these within the experience of those living with dementia, including their carers.Whilst this book is complex and thought-provoking - I believe it is a highly welcome counterbalance to current thinking on how to improve the lives of all those who are affected by dementia. It will force the reader to challenge their own thinking about dementia, not just as an illness but as a social construct, and as such I would highly recommend it. -- Rachel Thompson, Professional & Practice Development Lead for Admiral Nursing, Dementia UKShibley Rahman follows his first brilliant book on dementia with this fascinating publication, containing insight and empathy in equal measure. This book will help readers - health professionals and the public alike - to understand people in their lives with dementia, guiding you through everything you ever wanted to know about dementia and could possibly want to ask. Shibley guides you through the challenges of caring for people and living with dementia. He doesn't shy away from the topics that are uncomfortable, but he also gives space to examples of good living and practice that leave the reader with hope and positivity. -- Jenni Middleton, editor, Nursing TimesI commend Shibley for this valuable addition to the current thinking and discussion on what it is to live with dementia. This text builds quite significantly on his original work and continues to challenge professionals on issues of importance for families affected by dementia. I find his frank and open style refreshing, unreserved in his willingness to question both the semantics used in practice and assumptions that are too easily made on what it might be like to live with dementia. -- Karen Harrison Dening, Director of Admiral Nursing, Dementia UKThis is a well-written, extensively researched, easy to read and important book for anyone interested or working with dementia. Rating: Highly recommended. -- Fenella Lemonsky, mental health service user researcher, Mental Health TodayI would highly recommend this book to anyone who is interested or has contact with people living with dementia.A particular strength of this book is the connection of policy to practice and practical implications. There are a number of examples where good practice can help to inform practical solutions for the future, making this a book that has value and use on many levels. A further asset is the conclusion chapter. This excellent summary draws everything together from the previous chapters under key themes and really helps to pull this book together.I would highly recommend this book to anyone who is interested or has contact with people living with dementia; health and social care professionals, public health workers, service commissioners and researchers and students in this field. This is also a book that would be useful to members of the general public as well. -- Lynne Partington, head of research, Evaluation and Technology, The End of Life Partnership, Cheshire * Nursing Times *A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields. -- StudentNurse.netThis is a well-written, extensively researched, easy to read and important book for anyone interested or working with dementia. -- Fenella Lemonsky * Mental Healthy Today *Table of ContentsForewords by Kate Swaffer, Chris Roberts and Beth Britton. Acknowledgements. Preface. Introduction. 1. Stigma, Citizenship and Living Better with Dementia. 2. Culture and Diversity in Living Well with Dementia. 3. Global Strategies for Living Well with Dementia. 4. What Might Living Better with Young-Onset Dementia Mean? 5. Delirium and Living Well with Dementia. 6. Care and Support Networks for Living Well with Dementia. 7. Eating and Living Well with Dementia. 8. Incontinence and Living Well with Dementia. 9. How is 'Whole Person Care' Relevant to a Person Living Well with Dementia. 10. Inequalities and Living Better with Dementia: A Focus on Housing. 11. Does GPS Tracking Have a Role to Play in Living Well with Dementia? 12. Rights-Based Approaches, Personal Budgets and Living Well with Dementia. 13. Art, Music and Creativity for Living Well with Dementia. 14. Explaining the Triggering of Memories in People Living Well with Dementia. 15. Innovation, Antipsychotics and Living Well with Dementia. 16. Promoting Leadership for Living Well with Dementia. 17. Conclusion. References. Index.

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Book SynopsisHow can positive psychology approaches help us to understand the process of adjustment to, and living well with dementia?As accounts of positive experiences in dementia are increasingly emerging, this book reviews current evidence and explores how psychological constructs such as hope, humour, creativity, spirituality, wisdom, resilience and personal growth may be linked with wellbeing and quality of life in dementia. Expert contributors from a range of academic and clinical backgrounds examine the application of positive psychological concepts to dementia and dementia care practice. The lived experiences of people with dementia are central to the book, and their voices bring life to the ideas explored, highlighting how positive experiences in dementia and dementia care are possible.Trade ReviewIn this brilliant benchmark work, the insights of Positive Psychology are finally examined in the lives of those who experience dementia. Positive Psychology focuses on a set of character strengths that contribute to human flourishing, but it has never been applied to deeply forgetful people. Herein we find chapters that for the first time carefully examine the experience of dementia with regard to well-being, hope, humor, creativity, resilience, spirituality and wisdom. No, this is above all NOT in the least bit pollyannaish. People with dementia really do draw on these strengths as they navigate their predicament, and they do so surprisingly deep into their illness. Building on the tradition of Tom Kitwood, Steven Sabat, and myself, this book shows us with unmistakable clarity and good science that there is a deeper and more hopeful way of looking at the person underneath dementia that we often miss. This book is a work of genius. All who care about the dignity of deeply forgetful people should read with excitement! I can assure the reader that this is a bold, necessary and compelling new pathway for future research and for sensitive caring. Bravo on a well-researched field-creating book! -- Stephen G. Post, PhD, Author of The Moral Challenge of Alzheimer Disease and Founding Director of the Center for Medical Humanities, Compassionate Care, and Bioethics, Stony Brook University School of MedicineWhilst not underestimating the challenges dementia throws at the individual, this book highlights the crucial benefits of positive approaches in helping us to face those very challenges, as opposed to the medical view which is often very negative. -- Wendy Mitchell, living with dementia and blogger at Which Me Am I TodayTable of ContentsForeword by Christine Bryden. Preface. 1. Ageing, Health and Positive Psychology. Elspeth Stirling, Clinical Psychologist, UK. 2. A Positive Psychology Approach to Dementia. Dr Chris Clarke, Research Tutor, Department of Psychological Health and Wellbeing, University of Hull, UK, Dr Emma Wolverson, Academic and Research Tutor, Department of Psychological Health and Wellbeing, University of Hull and Professor Esme Moniz-Cook, Professor of Clinical Psychology, Center of Dementia Research and Practice, University of Hull. 3. Wellbeing in Dementia. Dr Alison Phinney, Associate Professor, School of Nursing, University of British Columbia, Canada. 4. Hope and Dementia. Emma Wolverson and Chris Clarke. 5. Humour and Dementi. Chris Clarke and Helen Irwin, University of Hull. 6. Resilience and Living Well with Dementia. Phyllis Brady Harris, Ph.D., Professor and Chairperson, Department of Sociology, Director of Aging Studies, John Carroll University, USA. 7. Growth. Emma Wolverson and Kirsty M. Patterson, University of Hull. 8. Creativity and Dementia. John Killick. 9. Spirituality and Wisdom. Andrew Norris and Professor Bob Woods, Director, Dementia Services Development Centre (DSDC), Bangor University, UK. 10. Positive Psychology and Relational Dementia Care: Creating an 'Enriched Environment'. Tony Ryan and Mike Nolan. 11. Positive Experiences in Dementia Caregiving. Dr Catherine Quinn, REACH: The Centre for Research in Ageing and Cognitive Health, School of Psychology, College of Life and Environmental Sciences, University of Exeter, UK. Index.

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Book SynopsisAdvocating for dementia for 20 years, Christine Bryden has been instrumental in ensuring that people with dementia are included in discussions about the condition and how to manage and think about it. This collection of her hard-hitting and inspiring insider presentations demands 'nothing about us, without us!' and promotes self-advocacy and self-reflection.Provocative and insightful, the pieces included in the book address issues that demand attention, and will change the way dementia is perceived, and the lives of people with dementia and their families.Trade ReviewYou must read Christine Bryden's book if you have any connection with dementia (and even if you do not, because at some point you will). Christine speaks to us elegantly and forcefully from that other "country" of dementia as one of its leading ambassadors. She humanizes this condition, and takes you along on her journey through this territory. No one can truly say that they "understand" dementia until finishing this stirring and totally candid volume. Do so - today. -- Cameron J. Camp, Ph.D., Director of Research, Center for Applied Research in Dementia, Ohio, USAChristine's journey as a dementia advocate is truly remarkable. This collection of talks and presentations demonstrates the incredible progress that has been made as a result of her determination to make the world a more inclusive place for people living with dementia. I thank Christine for telling her story to the world, and share her hope that this book will help make this dream a reality. -- Marc Wortmann, Executive Director, Alzheimer’s Disease InternationalDementia is not a concept, an idea or a diagnostic category. It is a meaningful human experience that occurs within the lives of people who have hopes, dreams and expectations that are not bound by the limitations of failing neurology. In this book, Christine Bryden offers some deep insights into why we need to re-think dementia. Drawing on her own powerful narrative, she offers a way of re-narrating dementia which takes seriously the neurological, but refuses to be defined or reduced to it. As one reflects on the narratives and reflections presented within this book one is inevitably transformed, both in terms of one's thinking about dementia, but more profoundly in terms of realising the breadth and depth of what it actually means to be a human being and to live humanly in all circumstances. -- Professor John Swinton, Chair in Divinity and Religious Studies, University of Aberdeen, and author of ‘Dementia: Living in the Memories of God’Christine Bryden chronicles her two-decade journey living with a diagnosis of dementia, exploding myths and stereotypes along the way. Even in the face of cognitive struggles, Christine embodies personal growth, sharing her insights about the lived experience of dementia. Her inspirational journey of advocacy has evolved to co-founding an international movement on behalf of people who share the diagnosis, and more recently taking on traditional models of care and the need for inclusive communities. I can't wait for the next twenty years! -- G. Allen Power, MD, author of ‘Dementia Beyond Drugs’ and ‘Dementia Beyond Disease’Nothing About Us, Without Us! demonstrates powerfully that persons with dementia remain persons in the most fundamentally important ways. Christine Bryden, living with dementia for two decades, expertly teaches what helps and what hinders people diagnosed and communicates beautifully why the Golden Rule should be applied regardless of one's medical condition. The book will educate people with dementia, care partners, lay people, and professionals. -- Steven R. Sabat, PhD, Professor of Psychology, Georgetown University, author of ‘The Experience of Alzheimer’s Disease’ and co-editor of ‘Dementia: Mind, Meaning, and the Person’Christine Bryden speaks and writes with the conviction gained through her experiences of living with and challenging this disease over two decades, since diagnosis. Issues of stigma, care, hope and ways of living effectively with dementia are just some of the important topics she addresses. This collection of talks with slides will form a valuable resource for many: for people who have dementia, for their families, for care providers, and certainly for the wider community. -- Elizabeth MacKinlay, Centre for Ageing and Pastoral Studies, St Mark's National Theological Centre, School of Theology, Charles Sturt University, AustraliaDementia is the public health issue of the 21st Century. It is the second leading cause of death in Australia, and, in a few short years, will be the leading cause of death of women. Nothing About Us, Without Us! questions our automatic responses to dementia, providing a much-needed voice offering inspiration to those who feel "the curse of the pointing-bone of diagnosis". Through personal experience, Christine Bryden identifies misconceptions and prejudices in the way we view and treat people with dementia. People facing a future with dementia will find in this book, an intelligent, positive and authentic voice. -- James Vickers, Professor of Pathology, University of Tasmania and Chair of the Scientific Panel of the Alzheimer’s Australia Dementia Research FoundationChristine Bryden is an inspirational teacher. In this book she takes us through lessons that are deeply honest and simply put, coming from her lived experience and her breathtaking emotional intelligence. This should be compulsory reading for all professionals, people living with dementia and families affected by dementia. There is no us and them. There is only us. -- Professor Dawn Brooker, Director of the Association for Dementia Studies, University of Worcester, UK and author of 'Person-Centred Dementia Care'Christine Bryden, a person of great strength, a survivor with an indestructible spirit, a person living with dementia, invites us to "aspire to a new paradigm of dementia survival with dignity". The book is a chronicle of her life as an advocate who fights each day to retain her dignity and that of all people living with dementia. It is a testament of her consuming passion, to never let go, search for what remains and use it to the maximum. A compelling book for those who seek to better understand what it is like to walk in the shoes of a person with dementia. -- Frank J Schaper, Former CEO of Alzheimer’s Australia WA Ltd, Alzheimer’s Disease International Ambassador and Visiting Fellow of Queensland University of TechnologyTable of ContentsIntroduction. 1. Dementia diagnosis - pointing the bone. 2. Diagnosis, drugs and determination. 3. Insider's view of dementia. 4. Dementia diagnosis from an 'insider's' perspective. 5. Dancing with dementia. 6.Nothing about us, without us! 7. A bumpy ride. 8. The support that I need. 9. Stigma and fear. 10. I'm still here! 11. Coming out of the shadow. 12. A decade of change. 13. Lisa and I. 14. Dementia prison. 15. Living life to the full. 16. Mind your language - getting it right! 17. There has to be a better way! 18. Come dance with me! 19. Dementia - an interesting ride! 20. Who was I? Who am I now? Who will I be when I die? 21. Pastoral care of people with dementia.

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Book SynopsisHow can carers and relatives support a person's identity, relationships and emotional wellbeing through changes that occur in the later stages of dementia?Drawing on over ten years' experience of working with people with dementia, Karrie Marshall provides a toolkit of tried and tested creative activities to support communication and relationships. Activities are vast and varied, with outdoor activities such as bird-watching and star-gazing aimed at supporting physical health, artistic activities such as collage creation to support identity, and musical activities such as sounds and voice warm-ups to support self-expression.Marshall also sensitively covers end of life care for people with dementia, explaining how emotional support can be provided through gentle breathing activities and even puppetry, as well as covering the legal importance of power of attorney.Trade ReviewThis book offers a different perspective in caring for those with dementia. Through a creative approach the author shows how it is possible to make connections and build relationships, with and without words. The process is described step-by-step, making it a valuable resource for anyone involved or interested in this field of work. -- Julie Simmons, Adult Learning Strategy Officer, High Life Highland, InvernessA Creative Toolkit for Communication in Dementia Care is a valuable resource for caregivers. You'll learn important tips for connecting and better communication with someone who has dementia. The book is inspirational, practical, and educational. It demonstrates how creative communications in caregiving can support the well-being of people with dementia. -- Berna Huebner, Founder and Director, Hilgos FoundationAs a person with dementia I know many of my peers will lose the ability to verbally communicate, but that does not mean we lose our intelligence. It is pleasing to know that the importance of non-verbal language is highlighted in this book. Ignorance, social isolation and boredom are issues we face. But by following the great advice in this book you will have the necessary toolkit to give people every opportunity to communicate and take part in worthwhile physical and mental activities that will bring hours of enjoyment for the person with dementia and, just as importantly, you the carer. -- Tommy Dunne, person living with dementiaEach person's experience of dementia is unique. This book, based on many years of first-hand experience, will help us all to find our own unique way to use creative approaches in caring. It will be an invaluable resource to support and inform our work. -- Keith Walker, Executive Director, Befrienders Highland LtdThis book is outstanding-worth buying, worth borrowing from the library, worth reading carefully. -- Bob Kahn * Bob’s Books *Table of ContentsIntroduction. 1. Supporting Identity. 2. Supporting Memory. 3. Supporting Relationships. 4. Supporting Physical Health. 5. Supporting Self Expression. 6. Support for when a person seems confused. 7. Support for mental and emotional wellbeing. 8. Supporting independence. 9. Support for end of life connections. 10. Session planning. Planning activities, Reflecting on practice, Risk assessments. Appendix 1: Advanced Care Plan. Appendix 2: Activities Plan. Appendix 3: Risk Assessment.

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Book SynopsisPresenting simple and cost-effective solutions for maintaining and improving mealtime abilities, this book discusses the practical aspects of eating and drinking as part of person-centred dementia care.Due to cognitive decline, changes in mealtime abilities can lead to malnutrition and related issues for people with dementia, alongside feelings of powerlessness and isolation. This research-informed book explains how to make the most of mealtimes for increased nutritional intake, socialising, and food enjoyment, in a range of care settings. The book covers topics such as the physical act of eating and drinking, creating a comfortable and friendly dining environment, using appropriate tableware, and dealing with common issues such as problems with swallowing and choking.Table of ContentsForeword. 1. Dementia and Mealtimes. 2. Mealtime abilities in Dementia. 3. Assessing and Preserving Mealtime Abilities in Dementia. 4. Independence and Dignity at Mealtimes: The Ability to Eat and Drink. 5. Practical Interventions Section One: Enhancing Independence and Dignity at Mealtimes. 6. Preferences and Choice at Mealtimes: The Sensory Experience. 7. Practical Interventions Section Two: Augmenting Preferences and Choice at Mealtimes. 8. Oral Abilities and Behaviours: The Relation to Swallowing Difficulties. 9. Practical Interventions Section Three: Managing Oral Abilities and Behaviours. 10. Meal Behaviours: Effect of the Mealtime Environment. 11. Practical Interventions Section Four: Supporting Meal Behaviours through Adjusting the Mealtime Environment. 12. Summary and Conclusions. References. Index.

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Book SynopsisWritten for all those concerned with providing services for people with dementia and their families, this book explores the idea that communication is not only possible but also vital to the understanding and the development of services. Based on a series of interviews with sufferers and professionals working in the field, on an extensive literature search, and on a consultative document which was sent out to over a thousand people, Hearing the Voice of People with Dementia discusses ten key points:· the possibility of communication;· the disempowering experience of dementia;· the different ways in which people are affected;· the need to respect peoples' sense of sense of time and place;· the importance of knowing a person's `life story';· the effect of environmental and other factors on the process of communication;· the non-verbal ways in which people with dementia communicate;· the means of communicating through `challenging behaviour';· possibilities of group work;· the value or harm of sharing a diagnosis.Practical advice and suggestions based on the research into these key areas are offered to help professionals gain a greater understanding of dementia and develop skills which aid communication.Trade ReviewThis comprehensive, clear and compassionate book should be on the shelves of all counsellors and tutors... His welcome stress on the unique nature of each person permeates the book. -- CounsellingInformative and revealing a challenging and at times very moving book. -- The Health Service JournalThis is a fascinating book written as a result of some in-depth qualitative research and a process of consultation with in the United Kingdom. The literature has been reviewed extensively and the author of the book applies his interpretation sensitively and analytically. His wide use of the literature from both the sciences and the humanities and the analysis of responses from a small group of those involved in caring for persons with dementia. Written largely from a social perspective and of much use to social workers employed in the field of aged care, the book raises a number of interesting issues and poses an even larger number of intriguing questions that have yet to be pursued more fully. Suggestions are made throughout the book about how human service professionals an enter into the world of a person with dementia. Quoting from a wide range of sources, both primarily and from the literature, this discussion is sensitive and thoughtful and raises a number of issues particularly for health professionals. This book is written primarily for a general readership, but will be of much use to social workers, nurses, medical practitioners, and those with dementia and their families. It is a useful book for the reference library in all healthcare institutions and social services offices. -- International PsydrogeriatricsThis book focuses on the service response to older people with care needs and is a useful and accessible text that practitioners and trainers may wish to read themselves and recommend. The book is a mine of useful comments and observation and could stand as a model of how to translate research findings (the origin of his work) into a relevant practitioner text. I would not be surprised moreover if some families with relatives with dementia did not find this a most moving and helpful text. Goldsmith's work builds on practitioners' experiences to inform those working now or in the future about the possibilities for major advances in listening to the voice of people who have been stereotyped as beyond dialogue and discussion. -- British Journal of Social WorkThe reader is given a wide range of perspectives on how to communicate with people with dementia... this is an easy read and raises the reader's awareness about what it must be like to experience dementia. I feel this book would be very useful for people who want to know more about dementia and communication. -- Nursing TimesTable of ContentsPreface (Mary Marshall).Introduction. 1.The echoes return slow. 2.Hearing views about services. 3.Is there anyone in there? 4.Different people are affected in different ways. 5.Communication is possible. 6.Disempowerment. 7.A sense of time and pace. 8.The value of life story. 9.The effect of the environment. 10.Nonverbal communication. 11.Challenging behaviour. 12.Group work. 13.To tell or not to tell - is that the question? 14.A reflective conclusion.

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Book SynopsisDespite the growth of interest in dementia and dementia care over the past two decades, services and interventions for younger people with dementia and their carers remain, on the whole, fragmented and poorly developed. The focus of social, psychological and biomedical research has been almost exclusively on older people and their carers.The first book to address the subject in its own right, Younger People with Dementia addresses good practice and stimulates an agenda for change. The contributors explore the implications for younger people with dementia and their families at personal, planning and service-development levels. Arguing that information from the wide range of existing practice and clinical knowledge can be shared and built upon, the contributors call for a collaborative, interprofessional and multi-disciplinary approach to all stages of the provision of services.Trade ReviewOne of the joys of book reviewing is that occasionally one is offered a book that gets everything right. Younger People with Dementia is such a book. The subject matter is of increasing concern and this treatment is timely. The book is well produced by a specialist publisher. Its contributors contribute readable English, with a notable absence of jargon. Both editors have written widely on the subject themselves and have chosen and ordered the contributors with great care. An impressive bibliography is also included. -- Community PractitionerThis volume of writing is extremely timely and benefits from the substantial dementia care practice, research and service evaluation experience of the editors, Sylvia Cox and John Keady. Recommended reading for service planners everywhere. -- Signpost ReviewsThis is the first book to address the subject in its own right. The contributors explore the implications for younger people and their families at personal, planning and service development levels. The contents are very necessary reading for all those concerned in dementia care and raise important interprofessional issues…The book is very well referenced, giving many suggestions for further reading on particular subjects. The style is clear and readable throughout. In my own opinion the book is essential reading for all concerned with providing care for younger people with dementia. -- Journal of Interprofessional CareThis book is not one to be just read. Because of its academic nature it is to be studied, discussed with colleagues and used as a reference tool. It embraces medical, sociological and psychological approaches in addressing and understanding the particular needs of persons with younger onset dementia. "Younger" is defined as being anyone under the age of 65, and particularly those in their third, fourth, fifth and sixth decade. In addition to scholarly essays, there are also many accounts from people with dementia as well as their caregivers…What we especially like about this book is the collaborative effort of various disciplines from several countries. As it is not limited to national boundaries, it gives a window into writings and practices from around the world…The result is an impressive and informative book from which all of us working in the Alzeimer's community can benefit. Sylvia Cox and John Keady are to be commended for taking on the task of editing this excellent book…This is a timely book that argues that "information from the wide range of existing practice and clinical knowledge can be shared and built upon; the contributors call for a collaborative, interprofessional and multidisciplinary approach to all stages of the provision of services." This they have accomplished with their contributions to this book. -- Early Alzheimer'sTable of ContentsForeword by Professor Mary Marshall, Dementia Services Development Centre. Introduction, Sylvia Cox and John Keady. PART ONE: SETTING THE SCENE. 1. Assessment and Service Responses for Younger People with Dementia, Jane McLennan, Royal Victoria Hospital Edinburgh and the University of Stirling. 2. Epidemiological Issues and Younger People with Dementia, Kirstie Woodburn, Royal Edinburgh Hospital. 3. Needs Assessment: Individual and Strategic Care Planning, Gregor McWalter and Jim Chalmers, Information and Statistics Division, NHS Scotland. 4. Opportunities and Threats: Multi-Agency Perspectives and Person-Centred Planning, Sylvia Cox. PART TWO: SPECIFIC CONSIDERATIONS. 5. HIV and Related Brain Impairment, Steve Jamieson, Bethlem and Maudsley NHS Trust, London. 6. Huntington's Disease, Roseanne Cetnarskyj and Mary Porteous, West General Hospital, Edinburgh. 7. Learning Disability and Dementia, Sally-Ann Cooper, St Mary's Hospital Rockingham Forest NHS Trust. 8. Alcohol-Related Brain Impairment: An Approach to the Problem in Victoria, Australia, Simon Crowe, La Trobe University, Melbourne. PART THREE: DEVELOPING AN INDIVIDUAL UNDERSTANDING. 9. Dark Head Amongst the Grey: Experiencing the Worlds of Younger People with Dementia, John Killick, Westminster Health Care and the University of Stirling. 10. Negotiating Care-Giving and Employment, Dianne Seddon, University of Wales, Bangor. 11. Young Carers: Individual Circumstances and Practice Consideration in Dementia Caregiving, Jane Gilliard, Dementia Care, Bristol. 12. Family Caregiving and Younger People with Dementia: Dynamics, Experiences and Service Expectations, John Keady, University of Wales at Bangor and Mike Nolan, University of Sheffield. 13.Designing for Younger People with Dementia: The Needs of Younger People with Dementia, Gretta Peachment, Homes of Peace, Western Australia. PART FOUR: PRACTICE DEVELOPMENTS. 14. Younger People with Dementia: Psychosocial Interventions for Individuals and their Families, Bob Woods, University of Wales, Bangor. 15. Support Groups for People in the Early Stages of Alzheimer's Disease, Robyn Yale, San Francisco. 16. Training and Younger People with Dementia: A Shared Learning Perspective, Alan Chapman, Dementia Services Development Centre. 17. Changing the Mindset: Developing an Agenda for Change, Sylvia Cox and John Keady. Index.

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Book SynopsisUsing the latest ideas on good practice from the Bradford Dementia Group, Anthea Innes provides a complete and concise guide to running a training programme for dementia care workers. She begins with a brief outline of the key factors to consider prior to the design, delivery and implementation of a programme. In particular the book stresses the importance of getting to know the care setting in which the trainees will practise, to ensure that the training has direct relevance to participants.The author then discusses the theoretical and practical issues involved in designing the training programme, including advice on how best to tailor it to the audience, and highlighting the practical points a trainer needs to consider when delivering a programme. She considers the problems that arise when attempting to convert theory into practice, as well as factors that can help training be relevant and acted upon. The book concludes with a discussion about the best means of evaluating a training programme and its impact on practice.Trade ReviewIts 16 chapters are all of a length that should not intimidate the reader and while many are heavily referenced, they still retain an accessible style. -- Community CareThis book builds upon the author's experience of delivering training courses to carers in Nursing and residential homes. I would recommend it as an aide memoire for those preparing or engaged in practice development. In as much, its utility is not restricted to one clinical setting, although dementia care workers will find the specific examples helpful. -- International Journal of Geriatric PsychologyAnthea Innes has used her own experience of working with Anchor Trust positively. She has blended theoretical aspects with a practical approach. The approach has been designed in a user-friendly way. Each chapter is well presented with case illustrations. Ms Innes provides a concise guide to running a training programme. This includes key factors such as design, delivery and evaluation programme... The importance of the person-centred approach is also emphasized. Running courses in nursing/care homes needs careful planning and the evaluation process is important.The writer has emphasized this throughout the book... Residential workers working across the client groups will benefit by the approach advocated by Innes. -- BulletinUsing the latest ideas on good practice from the Bradford Dementia Group, Anthea Innes provides a complete and concise guide to running a training programme for dementia care workers. The format is very clear and easy to follow. It explores the theories and practical issues that are needed when planning a training programme for dementia care workers. The information provided is relevant and up to date looking at care plans, assessments, staff action plans and obstacles that may need to be looked at in different care settings. Chapter 6 looks at evaluation and is particularly very helpful. Case studies are used as examples of situations that staff may come across in a work situation. Anthea Innes is to be congratulated on producing this excellent book which will I am sure be an important tool in many a trainer's toolbox. It will be a very useful source of reference to care staff and others that are working on N.V.Q.'s and other courses. -- Professional Social Work... provides a thorough look at all the stages of the training process, and is a good checklist of the complex variety of tasks and skills involved. -- Ageing and SocietyTable of ContentsIntroduction. 1. Getting started. 2. Getting to know the setting. 3. Designing the training programme. 4. Delivering the training programme. 5. Transferring training into practice. 6. Evaluating the training programme. References. Index.

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Book SynopsisA practical resource written specifically for social care professionals working with people with dementia and their families, this book gives guidance on person-centred good practice throughout the care process from the initial diagnosis, through day care, respite care, long-term care, and death and attachment.The guide will enable social workers to manage their cases effectively and empathetically, making appropriate, culturally sensitive decisions and acting as advocates for this growing client group. It contains essential background material about the financial and legal context, including an explanation of the relevance of the Mental Health Act 1983. The author locates weak points in current provision and makes practical suggestions for future developments. Social Work and Dementia will enable social services to meet the needs of older clients experiencing dementia, and to understand, apply and contribute to new developments in their care.Trade ReviewThis short book is directed at social workers and seeks to improve their capacity for reflection about the best approaches to practice in dementia care... A practical resource written specifically for social care professionals working with people with dementia. -- Age ActionThroughout the book she appeals as a fellow practitioner rather than researcher... this is an engaging approach. -- Ageing and SocietyThis book gives guidance on person-centred good practice in the process from the point of initial diagnosis. It is a practical resource written specifically for social care professionals working with people with dementia. -- Age Action BulletinTibbs' case for developing dementia specific services and her outline for a key role for social work practitioners is a welcome addition to the field, particulary in this time of great organisational change facing health and social care services. The book presents clear and cogent arguements for good professional practice, illustrated with case examples. Contemparary social work's adoption of the care management approach does not in Tibbs' opinion meet the needs of people with dementia. The task-specific and short term nature of care management fails to provide a continuing service for people with dementia and their families. Instead Tibbs' argues for a disability model of care that considers people with dementia as a specific group-including both younger and older people with dementia.This requires specialist training, the development of a "one-stop shop" service, a multidiciplinary approach, recognition for the need of on-going support and person-focused assesment practices. And it is imperative, in Tibbs' veiw, that social work plays a central role in these services. This book presents a helpful guide to practitioners in developing such services and as such is to be recommended. -- Mental Health TodayTable of ContentsForeword by Murna Downs. 1. Introduction. 2. The Journey through Care. 3. The Historical and Legal Context. 4. Good Practice in Social Work with Dementia. 5. The Emotional and Social World of the Person with Dementia. 6. Cultural Difference. 7. Directions for the Future. Appendix I. A Short Guide for the Management of Finances for a Person with Dementia. Appendix II. Some Useful Contacts for Social Workers. References. Index.

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Book SynopsisThis unique guide provides a much needed overview of dementia care. With a strong focus on the importance of patients and families, it explores the multifaceted meaning behind patient wellbeing and its vital significance in the context of national policy. Adopting a positive, evidence-based approach, the book dispels the bleak outlook on dementia management. Its person-centred ideology considers fundamental areas such as independence, leisure and other activities, and end-of-life care - integrating the NICE quality standard where relevant. It also places great emphasis on patient environment including practical home and ward design, the importance of gardens, and sensory considerations. All public and health care professionals will be stimulated by Rahman's outstanding assimilation of theory and practice. Patients, their families and friends will also find much for inspiration and practical assistance.Trade Review"I would recommend this book 100%. It just makes sense to read. This will appeal to so many professionals going to be involved in the care of the elderly. And anyone who is doing research in this field should go through this book too."–BMA Medical Book Awards ProgrammeTable of ContentsDedication. Acknowledgements. Foreword by Professor John Hodges. Foreword by Sally Ann Marciano. Foreword by Professor Facundo Manes. Introduction. What is 'living well with dementia'? Measuring living well with dementia. Socio-economic arguments for promoting living well with dementia. A public health perspective on living well in dementia, and the debate over screening. The relevance of the person for living well with dementia. Leisure activities and living well with dementia. Maintaining wellbeing in end-of-life care for living well with dementia. Living well with specific types of dementia: a cognitive neurology perspective. General activities which encourage wellbeing. Decision-making, capacity and advocacy in living well with dementia. Communication and living well with dementia. Home and ward design to promote living well with dementia. Assistive technology and living well with dementia. Ambient-assisted living well with dementia. The importance of built environments for living well with dementia. Dementia-friendly communities and living well with dementia. Conclusion.

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Book SynopsisThis is a love story from start to finish, Irene and Rachael's. Based on the diaries of Rachael Dixey who looked after her civil partner Irene after she developed early onset Alzheimer's disease, the book opens with the lines: Irene, Alzheimer's and me - Alzheimer's came between us. It does that, drives you and the love of your life apart, going your separate ways because you cannot follow. That's the story really, that's it. The end. But it is also the beginning of the story, which shows how life can still be lived despite losing a life partner to dementia, and how to cope emotionally and practically with a disease that robs you of your loved one a thousand times before they die. The story charts the daily decline and inexorable loss of Irene to dementia. With the dramatic deterioration in Irene's health Rachael turns from lover and soul mate to career and, finally, single woman. Eventually, no longer able to cope with Irene at home, she makes the agonizing decision to allow Irene to be put in a care home. There she spent her last six years. When she died aged 66, the couple had spent half their life together.This book is a powerful and moving account of the progression of dementia, and raises serious questions about how our society cares for those who develop the disease, especially at a young age and in the gay, lesbian community. It also deals with loss and grief, during the illness and afterwards. Their memoir will be invaluable for anyone affected by dementia, those working in mental health and those caring for a loved one with a life-changing and incurable illness. Our Dementia Diary tells with brutal honesty of love, loss and life with Alzheimer's and opens up discussion of how dementia can be handled better."

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Book SynopsisThis book is not about the past, which has gone. Or the future, which is uncertain. But it is for those who want to improve the lives of people with dementia and themselves in the Here and Now. The book is not written by an expert but by a man seeking to find new approaches concerning dementia who wishes to share his discoveries. Killick steers clear of any sort of medical terminology and instead nurtures the often neglected aspects of dementia, thereby reinforcing to the reader that these are of no lesser importance. In recognition that we are all in this together, Killick gives equal prominence to quotations from, and conversations with, people with dementia and their carers.Trade ReviewHugely influential. THE JOURNAL OF DEMENTIA CARE His vast experience and wisdom is distilled into this small book. THE JOURNAL OF DEMENTIA CARE Tell succinctly and compellingly the other side of the story of dementia. THE JOURNAL OF DEMENTIA CARE Brilliant book. THE JOURNAL OF DEMENTIA CARE, Nov/Dec 2013

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Book SynopsisConducted in collaboration with neurologists, gerontologists and psychologists, the project aims to provide an image-based therapeutic tool to improve the well-being of senile dementia patients.

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Book SynopsisConducted in collaboration with neurologists, gerontologists and psychologists, the project aims to provide an image-based therapeutic tool to improve the well-being of senile dementia patients.

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Book SynopsisSo far as we are aware, there has never been a book before with this title or aim. This may be because no-one has been foolhardy enough to attempt one! And it is true that this is a story in mid-flow, even perhaps still near the beginning. But the subject is so complex, and surrounded with so many misconceptions that, even in a truncated form, it needs to be told. John Killick has chosen a simple but effective format. Each of the nine main chapters focuses on an individual or individuals (twelve in number) who, in his view, have made significant contributions to our knowledge. The message is one of hope. Although the medical model has yielded little in the way of advances, that is not true of psychosocial initiatives. This little book tells the hidden story of positive approaches, and those who have devoted their lives to finding alternative creative solutions to one of today’s great challenges. If your life is at all touched by dementia, you should be reading it.Trade ReviewThis lively book will open doors to what we do know, providing immediately available insights to the casual reader and references to the sources for those who wish to dig deeper. PROF. RICHARD FLEMING PRAISE FOR DEMENTIA POSITIVE Hugely influential. THE JOURNAL OF DEMENTIA CARE His vast experience and wisdom is distilled into this small book. THE JOURNAL OF DEMENTIA CARE Tells succinctly and compellingly the other side of the story of dementia. THE JOURNAL OF DEMENTIA CARE A must-read as a step towards making life better for people with dementia. DR SANDRA DAVIS, GERONTOLOGIST This book is exceptional… it says exactly what I think and try to say. KEITH OLIVER, PERSON WITH DEMENTIA

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Book SynopsisAuch bei Demenz gilt: Niemand ist allein krank

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Book Synopsis

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Book SynopsisDrawing from the latest medical research, Dr. Richard Furman helps readers understand dementia and Alzheimer's and shows them how to make lifestyle changes that can reduce the likelihood of developing these diseases.

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Book SynopsisA groundbreaking exploration of the sociology of dementia with contributions from distinguished international scholars and practitioners. Organised around the four themes of personhood, care, social representations and social differentiation,Table of ContentsNotes on contributors vii 1 Ageing, dementia and the social mind: past, present and future perspectives 1Paul Higgs and Chris Gilleard 2 Relational citizenship: supporting embodied selfhood and relationality in dementia care 7Pia Kontos, Karen-Lee Miller and Alexis P. Kontos 3 Shifting dementia discourses from deficit to active citizenship 24Linda Birt, Fiona Poland, Emese Csipke and Georgina Charlesworth 4 Narrative collisions, sociocultural pressures and dementia: the relational basis of personhood reconsidered 37Edward Tolhurst, Bernhard Weicht and Paul Kingston 5 Power, empowerment, and person-centred care: using ethnography to examine the everyday practice of unregistered dementia care staff 52Kezia Scales, Simon Bailey, Joanne Middleton and Justine Schneider 6 Institutionalising senile dementia in 19th-century Britain 69Emily Stella Andrews 7 Dichotomising dementia: is there another way? 83Patricia Mc Parland, Fiona Kelly and Anthea Innes 8 When walking becomes wandering: representing the fear of the fourth age 95Katherine Brittain, Cathrine Degnen, Grant Gibson, Claire Dickinson and Louise Robinson 9 Re-imagining dementia in the fourth age: the ironic fictions of Alice Munro 110Marlene Goldman 10 Social class, dementia and the fourth age 128Ian Rees Jones 11 Precarity in late life: rethinking dementia as a ‘frailed’ old age 142Amanda Grenier, Liz Lloyd and Chris Phillipson Index 155

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Book SynopsisPractical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life Trade ReviewThe text is enriched with stories of Kenny's own family (her mother died of dementia) and from numerous other patients and families, which brings what she has to say to life. She does not pull any punches about dying and death and all the problems they bring, but she does so in a kind and caring way . . . I think this book will be very helpful to many people . . . If your work in palliative care involves significant numbers of patients with dementia, this book will give you plenty to reflect on.—Dr. Roger Woodruff, International Association for Hospice & Pallatative CareTable of ContentsPrefaceIntroduction1. Understanding the End and the Need for Letting Go2. Preparing to Let Go: Emotions of Caring3. Making Decisions for Others4. Legal Aspects of Decisions5. Complex Medical Decisions6. Decisions About Places of Care7. Changing Care Needs in the End of Life8. Changing Needs for the Caregiver/Partner at the End of Life9. Active Dying10. Afterloss and Adjustment

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Book SynopsisPractical, essential advice about making tough decisions for people with end-stage dementia. Each year, more than 500,000 people are diagnosed with dementia in the United States. As stunning as that figure is, countless family members and caregivers are also affected by each diagnosis. Families are faced with the need to make vital end-of-life decisions about medical treatment, legal and financial matters, and living situations for those who no longer can; no one is prepared for this process. And many caregivers grapple with sadness, confusion, guilt, anger, and physical and mental exhaustion as dementia enters its final stage. In Making Tough Decisions about End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life Trade ReviewThe text is enriched with stories of Kenny's own family (her mother died of dementia) and from numerous other patients and families, which brings what she has to say to life. She does not pull any punches about dying and death and all the problems they bring, but she does so in a kind and caring way . . . I think this book will be very helpful to many people . . . If your work in palliative care involves significant numbers of patients with dementia, this book will give you plenty to reflect on.—Dr. Roger Woodruff, International Association for Hospice & Pallatative CareTable of ContentsPrefaceIntroduction1. Understanding the End and the Need for Letting Go2. Preparing to Let Go: Emotions of Caring3. Making Decisions for Others4. Legal Aspects of Decisions5. Complex Medical Decisions6. Decisions About Places of Care7. Changing Care Needs in the End of Life8. Changing Needs for the Caregiver/Partner at the End of Life9. Active Dying10. Afterloss and Adjustment

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Book SynopsisThe beloved best seller has been revised and expanded for the fifth edition.Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer’s, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer’s and that often what we have most to learn about is ourselves.

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Book SynopsisRemaining as wise and relevant as it ever was, this updated second edition brings professional care partners a wealth of new advice on how to incorporate the celebrated tenets of Best Friends™ into the everyday care of people with dementia. Using the best qualities of friendship—respect, empathy, support, trust, and humor—you can ensure the highest quality of life for the people in your care, making each day reassuring, enjoyable, and secure.In addition to explaining the basic elements of communication and caregiving Knack that are essential to the Best Friends approach, this revised edition includes all-new chapters on using the life story, planning activities, being successful when behaviors become challenging, getting the best from families and volunteers, and effectively creating and sustaining a Best Friends program.What’s New?The 2nd edition is substantially reorganized for the benefit of professional care partners and it features an all-new final section:Part 1:Introduces the building blocks of the Best Friends™ approach, including the Dementia Bill of Rights, the concept of relationship-centered care, and the core tenets of Best FriendsPart 2:Explains Best Friends in practice in formal care settings, with in-depth chapters on the life story, communication, caregiving Knack, activities, and challenging behavior.Part 3:Discusses how to create and sustain a Best Friends program as well as how to use volunteers and partner with families.Trade Review“An outstanding guide for anyone involved in the care of individuals with Alzheimer’s disease. The Best Friends™ method is an innovative, sensitive and unique approach that can greatly improve the quality of life for patients with the most devastating disease known to man.”—William R. Markesbery, M.D., past director, Alzheimer’s Disease Research Center and Sanders-Brown Center on Aging, University of Kentucky.“Virginia Bell & David Troxel are leaders in the field of aging. Their words will offer caregivers new ideas and new hope as they face the challenge of Alzheimer’s disease and dementia.”—Gloria H. Cavanaugh, former President & CEO, American Society on Aging“As a neurologist, I dream about the day that we will find a cure for Alzheimer’s disease. Until that time, the Best Friends approach is here to give families practical tools for bringing out the best in persons with Alzheimer’s disease. This is a well-written, insightful book that gives caregivers a life-affirming, practical framework for approaching this difficult disease. I recommend it to my patients and their families.”—Donna Masterman, M.D., Assistant Clinical Professor, Neurology UCLA Medical Center, Clinical Core Director of the UCLA Alzheimer’s Disease Research Center.[Bell and Troxel] have laid out a way of relating that is immediately accessible to all involved in dementia and a policy and programme for service provision. …Here is an initiative that is easy to understand and is within the immediate capacity of each of us to deliver.”—Journal of Dementia Care (on The Best Friends Approach to Alzheimer’s Care).

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Book SynopsisEnjoy the benefits and reduced stress that come from reconnecting people with dementia to lifelong activities they love. Using a strength-based approach, this guide shows step by step how to design meaningful, individualized activities that can be performed by a person with memory loss as independently as possible. Helpful assessment and implementation tools guide your efforts to identify a person’s optimal leisure activities and then tailor them to current skill levels. The resulting activity plans will effectively promote the well-being and self-identity of each person with memory loss. Downloadable resources include: Communication strategies and conversations starters Assessment forms Step-by-step implementation guides Sample activities adapted for early, middle, and late stages of dementia.

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