Alzheimer’s, dementia and Parkinson’s disease Books

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Book SynopsisBecoming a caregiver for someone with Alzheimer's disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciatedand yet noble role. It is heartbreaking to watch someone lose the very cognitive capacities that once helped to define them as a person. But because of the nature of these disorders, the only way to become an effective caregiver and cope with the role's many daily challenges is to become well-informed about the disease. With the right information, resources and tips on caregiving and working with professionals, you can become your own expert at both caring for your charge and taking care of yourself. In these pages, Marc Agronin guides readers through a better understanding of the changes their loved one may be going through, and helps them tap into the various resources available to them as they embark on an uncertain caregiving journey. Insisting that a caregiver also maintain his or her own health and well being, Agronin guides caregivers inTrade ReviewAccording to Agronin (Miami Jewish Health Systems), Alzheimer’s disease is currently the most common neurocognitive disease (NCD), and such cases are expected to quadruple worldwide within the next 50 years: surely the need for well-informed caregivers will also increase. Inspired by his long professional experience with NCD patients, Agronin offers an easy-to-understand guide for anyone who serves as a nonprofessional caregiver. An introduction briefly explains the book’s purpose and describes requisite yet attainable characteristics of caregivers. The bulk of the material offers definitions of NCDs, including their known or suspected causes; recommended courses of action to take as a disease intensifies; and best practices for maintaining a person’s quality of life. Equally important topics deal with respite time for the caregiver, possible legal matters, and long-term care. The final chapter is a convenient list of relevant organization names and contact information. . . . VERDICT This practical guide outlines a sensible approach to providing quality care and is therefore highly recommended for anyone who is committed to serving as a caregiver. * Library Journal *The Dementia Caregiver: A Guide to Caring for Someone with Alzheimer's Disease and Other Neurocognitive Disorders is an easy-to-read training manual for caregivers. The book helps readers gain a better understanding of what is happening to their loved one. * The Miami Herald *The Dementia Caregiver is an essential guide for anyone caring for a loved one affected with a dementing illness, like Alzheimer’s. Dr. Agronin has drawn on science and his extensive clinical experience to produce a readable handbook that offers technical and practical information for new and experienced caregivers. The book acknowledges that the caregiver has assumed a new role – what others have called “a new career;” this book is an enormously helpful caregiver job training manual. -- Kenneth Hepburn, PhD, Professor, Nell Hodgson Woodruff School of Nursing, Emory UniversityThe Dementia Caregiver is a well-organized, thorough and practical guide for caregivers. It is accessible to the layman, but would be useful to professionals, as well. It does not ignore difficult or delicate matters, nor does it neglect the importance of maintaining dignity for the affected person. I would consider this a useful addition to my library. -- Bette Ann Moskowitz, author of Do I Know You? A Family's Journey Through Aging and Alzheimer'sTable of ContentsINTRODUCTION 1: Normal and Abnormal Cognitive Changes 2: Seeking Answers: State-of-the-Art Evaluation 3: The Spectrum of Neurocognitive Disorders 4: Alzheimer’s Disease 5: Vascular Dementia 6: Frontotemporal Dementia 7: Dementia with Lewy Bodies 8: Neurocognitive Disorders Due to Medical Causes 9: Caregiving in Mild Stages 10: Caregiving in Moderate Stages 11: Caregiving in Advanced Stages 12: Depression, Anxiety, Sleep and Apathy 13: Agitation and Psychosis 14: Dealing with Medical Issues 15: Caring for the Caregiver 16: Legal Issues 17: Long-Term Care 18: Resources

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Book SynopsisDoes your memory change as you get older? It's common to be concerned about memory lapses, but how do you know if memory difficulties are normal or the beginnings of something more serious? Can dementia be prevented?Memory-wise explains how memory works and the changes that can occur as we age. It explains the sort of health, attitude and lifestyle factors that can lead to fluctuation in memory and provides practical tips to minimise their effects.Based on current research, Memory-wise examines memory during menopause and includes easy-to-follow suggestions for maintaining brain health, along with strategies for supporting memory in early dementia.We can all become more confident in managing memory. Memory-wise will help you to understand and nurture the most precious of resources - your memory.Table of ContentsIntroductionChapter 1 How memory worksChapter 2 How memory changes as we get olderChapter 3 What else affects memory? Health, attitude, lifestyleChapter 4 Memory during menopauseChapter 5 What can we do to reduce the risk of developing dementia?Chapter 6 Strategies for everyday memoryChapter 7 Working and learningChapter 8 What if it's dementia?Chapter 9 Changes in someone else's memory - what can we do?Chapter 10 Towards a memory-wise communityAcknowledgementsResourcesNotesIndex

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Book SynopsisEvery person living with dementia is entitled to the highest standards of wellbeing and health and social care services. This in-depth, evidence-based book identifies how outstanding quality integrated care might be achieved, whether in residential or home-based settings.Experienced dementia researcher Dr Shibley Rahman highlights the key contemporary underpinnings of integrated care that are required for wellbeing for living with dementia, including technology, staff performance, leadership, and intelligent regulation of services. The book addresses the major challenges to promoting person-centred care, and tackles difficult conversations around spirituality, sexuality and dying well. The crucial importance of promoting physical and mental health is emphasised. Taking into account recent developments in NICE guidelines and Cochrane reviews for dementia, this book presents an opportunity for all those involved in the provision of care for people with dementia to maintain a focus on delivering the best care possible, and to engage with the wider issues surrounding wellbeing. This book will be especially useful to commissioners following the NHS 'new models of care' "vanguards".Trade ReviewThis is a complex and difficult journey and Dr Rahman's book is like having an informed, interested, intelligent and profoundly humane friend by your side on the journey through. This book is a friend that is encyclopaedic in knowledge and who is not afraid to have opinions and to express them. We are part-way along the journey, we have come a long way but we have far to go. This book helps us reflect on where we are and the road we have travelled, all the better to plan and travel the road ahead. -- from the foreword by Sube Banerjee, Professor of Dementia, Brighton and Sussex Medical SchoolDr Shibley Rahman sets out what is best practice in language and attitude as well as care and support. He writes with great authority and humility about what people who have dementia, and their loved ones, face and how we could all do a great deal more to help them...This is a wonderful book, for students, health professionals, researchers, policy makers, politicians, families, and for people who may be in the early stages of the diseases that cause dementia. This is a book that challenges but also gives hope. Which I think is the greatest gift of all. -- from the foreword by Lisa Rodrigues CBE, writer, coach and mental health campaignerAs a nurse, specialising in the care of people with dementia, and those who care for and support them, this will be a 'go to' text; for reference and for revisiting important topics relating to practice...This book is an important milestone in the Dementia Care literature as it provides information to help us answer the difficult questions we face as professionals helping to support people and families. -- from the Afterword by Lucy Frost, Dementia Lead (Nurse Consultant)The third of Rahman's books on issues relating to dementia. Another must-read text that discusses the many and varied elements of what is required to enhance the lives and wellbeing of people with dementia. I particularly like his style of telling us what we can expect to learn from each section and suggestions for further reading. This, as well as the first two books from the author, is an essential read for all health and social care students in gaining an overview of caring in dementia -- Dr Karen Harrison Dening, Head of Research & Evaluation, Dementia UKShibley Rahman's last book in his trilogy on dementia represents a comprehensive and thought provoking tour de force through the subject matter - great reading for any health and social care professional, academic and interested lay person. Here is a perspective from an author who in himself integrates academic qualifications in medicine, law and management with a lived experience of disability. A unique read! -- Reinhard Guss, Chair, Faculty of the Psychology of Older PeoplePractitioners, family carers and people with dementia looking for a comprehensive resource about dementia need look no further. Few books combine detailed explanations about clinical aspects of dementia with policy analysis and yet remain so centred on people's individual experiences. This is an important resource for anyone who wants to understand more about providing better dementia support. -- Jo Moriarty, Senior Research Fellow, King’s College LondonAn absolute gem of a book. Through his career, Shibley Raman has been sequentially academic neurologist, service user, family carer and blogging activist. His learning and wisdom have been distilled into a highly readable, comprehensively referenced and bang up-to-date companion for anyone who needs to learn and understand about people with dementia and what can be done to help them, their families and professional carers to get the very best out of life. -- Robert Howard, Professor of Old Age Psychiatry, University College LondonThere can be no doubt that Enhancing Health and Wellbeing in Dementia should be essential reading for anyone with an interest in improving the lives, and rights, of people living with dementia. It is an important book which is both comprehensive and practical - no easy matter to achieve! His encyclopaedic span concludes appropriately with the primacy of person-centred approaches, the importance of dignity, quality and leadership - yes, yes, yes! -- Des Kelly OBE, Chair, The Centre for Policy on AgeingShibley's voice has emerged as an important one to take notice of within dementia care. His ability to draw together a huge range of knowledge from many different spheres of research, practice and policy and to use it to light our way rather than confuse us further is unique. -- Prof Dawn Brooker, Director of the Association for Dementia Studies at the Worcester University, UKThis important book continues our journey of what it means to see the person beyond their diagnosis of dementia, with a fresh focus on freedom, dignity and human rights. Dr Shibley challenges the idea that nothing can be done to improve dementia care. He brings practical thinking around how we can move towards truly integrated, person-centred ways of working - making a timely and valuable contribution to our collective understanding. -- Dr Helen Sanderson, author of Person-Centred Thinking with Older PeopleGreat book on integrated, person-centred dementia care. Clearly identifies issues often overlooked: importance of relationships in delivering good care; pivotal role of care homes in caring for people with dementia; and value of addressing staff needs so they can be in good relationship with others. It's not rocket science! -- Julienne Meyer CBE, PhD, RN, RNT, Professor of Nursing: Care for Older People City, University of London, Executive Director, My Home Life programmeTable of ContentsAcknowledgements. Foreword by Professor Sube Banerjee. Foreword by Lisa Rodrigues. Preface. 1. Preventing well and diagnosing well. 3. Overview of caring well. 4. Caring well: physical health and medication reviews. 4. Caring well: mental health. 5. Cognitive stimulation, cognitive rehabilitation and life story. 6. Oral health and swallowing difficulties. 7. Promoting wellbeing. 8. Sexuality and spirituality. 9. Research, regulation and staff. 10. Care homes and integrated care. 11. Supporting well and independence. 12. Dying well and end of life. 13. Living well at home. 14. Conclusion. Afterword by Lucy Frost. Index.

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Book SynopsisHighly Commended in Medicine in the 2018 BMA Medical Book AwardsPeople with dementia increasingly find themselves staying in hospitals for extended periods, often due to separate health issues. This best-practice guide presents healthcare staff with the information and tools needed to provide excellent person-centred care to people with dementia in hospital settings.This useful handbook includes information and innovative strategies on how to manage common issues, including communication, physical health needs, pain, eating and nutrition, working with carers and relatives, understanding behaviour and approaching the end of life. It also highlights ethical considerations such as human rights and dementia, making decisions and the Mental Capacity Act. Each chapter includes a case study, emphasising the person at the centre of care and providing examples of how hospital staff can work with people with dementia to ensure best practice.Trade ReviewThis book is an excellent reminder of why patient-centred care is important and desirable for everyone concerned with the outcomes of hospital admission for people with dementia. It outlines logical ways of delivering care that are supported by evidence and also makes the argument for efficiency which is important in the current climate. Its simplicity is its strength. -- Vicki Leah, consultant nurseThis book is both interesting and helpful in many different ways providing practical advice and possible solutions to help staff to consider the person and their psychological /social needs and not simply as the 'confused' patient with a physical ailment. This book should be on every shelf of every ward! -- Caroline Baker, Director of Dementia Care at Barchester Healthcare and author of Developing Excellent Care for People Living with Dementia in Care HomesStruggling to think of a situation with a higher risk of the loss of self and well-being than that experienced by people with dementia in acute hospitals, which is why this book, bringing to life an improved approach to care through personal narratives, is highly recommended and warmly welcomed. -- Tessa Gutteridge, Director of YoungDementia UKThis is essential reading for acute hospital healthcare professionals caring for people with dementia. Insightful case studies link evidence based frameworks to practical ways of improving care for people with dementia in hospital. Its accessible format means you can quickly dip into the issues relevant for you. -- Michelle Parker RN MSc BN (Hons), Lecturer in Adult Nursing, University of LondonTable of ContentsForeword by Professor Murna Downs. Introduction. 1. The Role and Importance of Carers in Hospital by Julia Jones and Nicci Gerrard. 2. Principles Underpinning Good Care. 3. Sylvia - How Should I Leave? Discharge and Community Support. 4. Sarah - Making Decisions. 5. Patrick - Communication. 6. John - Physical Health Needs. 7. Jaheem - Delirium. 8. Bridget - Pain. 9. Myrtle - Eating and Drinking. 10. Geoffrey - Getting Someone to Move (Enabling, Goal Setting, Engaging). 11. Kenny - Different Behaviour. 12. Frank - Environment. 13. Mariam - Boredom in Hospital. 14. Nicky and Denise - Approaching the End of Life. 15. Stan - Touch. References and Further Reading. Index.

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Book SynopsisProviding key information and insight into the experiences of people living with a diagnosis of young onset dementia, this book will increase the knowledge and skills of health and social care professionals in the early recognition, diagnosis and support of young people with dementia and their families.The book explores the experiences of people living with a diagnosis of young onset dementia through detailed case studies, and gives learning points to implement in practice for the better provision of appropriate support and care. It explains the need for adapting services which are often designed for older people, and how the complicated diagnostic process can lead to misdiagnosis among younger people. Key issues are considered, including at-risk groups, work and dealing with potential loss of employment, changes in personal and family relationships, readjusting life expectations and plans, and social isolation.Trade ReviewA significant addition which critically and constructively examines the key issues around Young Onset Dementia through lived and professional experience. Based upon knowledge being empowering this book will enhance the body of knowledge and help the movement towards greater support and understanding. I totally commend it to all interested in the subject. -- Keith Oliver, Alzheimer's Society Ambassador and KMPT Dementia EnvoyTable of Contents1. Introduction. 2. Promotion of health and prevention of ill health in reducing incidence of dementia. 3. Groups at increased risk of young onset dementia. 4. Why is it important to recognise and diagnose young onset dementia in a timely way? 5. The importance of timely post-diagnostic support and interventions following a diagnosis of young onset dementia. 6. Impact of young onset dementia on family relationships. 7. Lonely in a social world: Maintaining social connections in young onset dementia. 8. Meaningful occupation and activities. 9. Conclusions. Resources.

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Book SynopsisDespite being integral parts of all our identities, sexuality, sex and intimacy are what many would call the Last Taboo in dementia care, usually seen as 'problem behaviours' to be stopped and dealt with. Informed by a combination of accessible neuroscience and person-centred compassion, Danuta Lipinska's new book shows that the human need for intimacy, attachment and sexual expression is as important for supporting the wellbeing and personhood of people with dementia as communication and care. Considering the brain as the body's biggest sex organ, it examines the cognitive changes that occur in dementia and what these changes mean in the context of sexual behaviour and consent. Taking Carl Rogers' Core Conditions and Tom Kitwood's psychological needs of persons living with dementia as a starting point, Lipinska offers a unique model for person-centred conversations about sex and sexuality that we have not seen before.Trade ReviewWonderful ... The case studies are really helpful in helping us to understand all aspects of dementia, sex and wellbeing, and the points for reflection could also be used as part of an informative discussion or training session with staff. -- Caroline Baker, Director of Dementia Care, Barchester HealthcareA very valuable and informative volume, bringing together the two complex issues of sex and dementia ... that cannot, and should not, be ignored. -- Peter Wells, Accredited sex and relationship therapist and supervisor, Anglican Priest and Honorary CanonDanuta must be applauded for her sensitive and insightful book - it is refreshing and will go a long way to lifting the lid on a subject that is often dismissed and taboo. Well done and thank you Danuta! A must read for everyone. -- Karen Borochowitz, DementiaSA (www.dementisa.org) and Stuward (www.stuward.com)In addressing human sexuality and its manifold expressions, this book demonstrates that talking about a person's sexual needs can be a profoundly caring act and a deeply humanising process. In exploring the sexual self with compassion, respect and openness, Danuta's reflections on the subject help us to understand more about who we are and what matters to us. After reading this book it is very hard to imagine how anyone could offer person centred dementia care without considering the sexual needs and sexual identities of people living with a dementia. -- Luke Tanner, body psychotherapist and dementia care trainerHaving read this book I know that at least one of the author's goals was accomplished with me: I have been able to "reflect on (my) innermost thoughts and feelings... to gain a real sense of where (my) blind spots may be". Anyone in health and social care who works with people living with dementia (patients or carers) will benefit from her passion, experience and expert knowledge passed on in this book. -- Uruakanwa Ekwegh, Specialty Doctor in Medicine for older people * British Geriatrics Society blog *Table of ContentsForeword by Caroline Baker. Introduction. 1. Dementia and Wellbeing. 2. In the Beginning....Biology. 3. Responding to the need for sensuality, sexuality and intimacy. 4. Person-centred conversations about sex, dementia and wellbeing. 5. Explorations Through Training. Afterword by Sally Knocker. References.

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Book SynopsisPoetry is an engaging and inclusive activity for older people that can help develop memory, imagination and identity. This book provides guidance on setting up and monitoring poetry projects for people living with dementia in group care homes and individual families. It explains the benefits of creative expression for people with dementia, and shows how to facilitate poetry reading and writing groups in different environments.Specific techniques for introducing poetry to older people can be employed by family members or professional care staff to enhance the wellbeing of the individual living with dementia. The ethical issues of running poetry projects in dementia care are explored along with examples of poetry produced by individuals and groups, interviews with care workers, and case studies.Trade ReviewIn this wonderful distillation of long experience John Killick shows us the potential of poetry both as a way of stimulating discussion, and of enabling people with dementia to have a voice. Using his own work and that of colleagues, he provides careful guidance which will be invaluable. -- Professor Mary Marshall, Senior Consultant, HammondCareIn his book John shows how by being a skilled listener you can capture what seems to be garbled, mixed-up thinking and using literature knowledge, turn it into a work of art, and present this gift back to the person with dementia in the form of their own personal poem. I felt humbled by this work. -- Agnes Houston MBEJohn Killick's work over many years has shown how poetry, through many and varied means, can contribute massively to well-being for people living with dementia. This wise, clear guidance, with choice examples of poems and illuminating accounts, is sure to encourage and help others develop their skills in this rewarding area. -- Sue Benson, Managing Editor, Journal of Dementia CareIn this eminently accessible book, John generously and honestly offers a wealth of advice, guidance and resources that emanate from a lifetime of work in using poetry to hear the voices of people with dementia and to capture their lived experience. John carefully explains the craft of using poetry as a medium for positive person-centred work and in doing so makes this book compulsory reading for anyone involved or interested in poetry and dementia. -- Maria Pasiecznik Parsons, Chief Executive, Creative Dementia Arts NetworkDescribed as a practical guide, it is easy to read and yet conveys the complexity of the effects of the condition dementia and ways of using poetry effectively. His understanding and experience of the work gives authority to his explanation and I found it easy to grasp. [...] I felt that Killick summed up what is now the fundament of my practice when working with people of dementia, 'Acts of kindness are what people with dementia need' -- Clare Scott, Chair, Lapidus International * Lapidus Quarterly *Table of ContentsPart One: Introductory. Part Two: Reading Poetry. 2.1 What Poems to Choose. 2.2. Building a Programme. Part Three: Writing Poetry. 3.1. Group-Work and One-to-Ones. 3.2. How to Run Groups. 3.3. Examples of Group-Work Poems. 3.4. Why Do One-to-Ones? 3.5. How to do One-to-Ones? 3.6. The Art of Listening. 3.7. The Art of Transcribing. 3.8. The Art of Editing. 3.9. Ways of Sharing. 3.10. The Present Moment. 3.11. Portraits. Part Four: Issues Arising. 4.1. Ownership of Poems. 4.2. Truth-Telling. 4.3. Aims and Objects. 4.4. Therapeutic Approaches. 4.5. Support for the Poet. 4.6. Evaluation. Part Five: Postscript. Part Six: Resources. 6.1. Recommendations and References. 6.2. Books and Articles. 6.3. Organizations and Websites.

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Book SynopsisActivity and engagement are vital to our well-being throughout our lives and this continues to be just as true of people living with dementia.The activities presented in this book have been designed to provide meaningful engagement for residents, while respecting each individual resident's readiness to engage and participate. This approach to person-centred care has proven to be extremely effective: activities such as Namaste Care and Memory Cafés have engaged residents who had previously not responded to interventions, demonstrably showing an increase in their levels of well-being.Supported by case studies, each chapter will also recommend the best way to implement the ideas discussed in the care home environment and beyond.Trade ReviewVisiting the Memory Café and Other Dementia Activities is a very clear and practical guide to delivering support to people living with a range of dementias. The authors of this book have significant experience of supporting people living with dementia, and they have written a very practical and easily accessible resource. I recommend this book to both family carers and professionals. -- Professor Martin Green, OBE Chief Executive Care England, DH Independent Sector Dementia ChampionVisiting the Memory Café is much more than a roster of programs and therapies; it is a guide to a new way of thinking about how to best serve the individuals in our communities...practical, compelling, and highly readable. -- G. Allen Power MD, FACP, Geriatrician, Author, EducatorIt is admirable that Caroline Baker and Barchester Healthcare have committed themselves at both a national and local level to enriching the lives of the people they care for and Visiting the Memory Café serves as both their handbook and manifesto. Let us consider it a pledge. -- Matthew Berrisford, Charge Nurse at The Meadows Community Hospital * British Geriatrics Society blog *Table of ContentsIntroduction, Caroline Baker, Director of Dementia Care at Four Seasons Health Care. 1. The Importance of Getting to Know ME, Ann Marie Harmer. 2. Reminiscence in the Digital Age and its Influence, Claire Peart. 3. Namaste Care for Residents Living with Advanced Dementia, David Owen. 4. The Use of Dolls in Dementia Care, Jason Corrigan, Deputy Director of Dementia Care for Barchester Healthcare. 5. Memory Cafes - Educating and Involving Residents, Relatives and Friends, Jason Corrigan, Deputy Director of Dementia Care for Barchester Healthcare. 6. Linking Exercise and Wellbeing for People Living with Dementia, Phil Harper. 7. Imagination Gyms, Leon Smith. 8. Creativity: Incorporating Activity into Everyday Life in the Care Home, Deena Heaney. 9. Energising and Relaxing Environments, Caroline Baker, Director of Dementia Care at Four Seasons Health Care and Holly Rance.

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Book SynopsisThe innovative Newcastle Challenging Behaviour Model for dementia care has recently been updated, leading to new advances in the field. This revised second edition guide to assessment and treatment of behaviours that challenge associated with dementia includes these latest developments along with new sections on what have traditionally been considered controversial topics.The new chapters cover issues including:- End of life care- Use of therapeutic dolls - Lies and deception- Physical restraint during personal care- Racism towards care staffWith a particular emphasis on non-pharmacological approaches, this book details the range of behaviours common in individuals with dementia, along with the most effective assessment and treatment techniques for health care professionals.Table of ContentsPART I: Setting the Scene. 1. Introduction. 2. The Nature of Dementia. 3. An Introduction to Behaviours that Challenge and their Causes. PART II: Clinical Interventions for Behaviours that Challenge. 4. Clinical Approaches to Behaviours that Challenge. 5. Pharmacological Approaches. 6. Screening of Health Conditions Associated with Confusion and Behaviours that Challenge. 7. Communication and Interaction Training (CAIT) Programme for Carers. 8. The Use of Protocol Interventions in the Treatment of Behaviours that Challenge. 9 Psychological and Other Non-Pharmacological Approaches. 10. The Newcastle Model: An Illustration of a Specialist Team's Clinical Model. 11. Case Studies Using the Newcastle Model. 12. Service Development. PART III: Controversial Topics. 13. Racism in Care Settings: How Staff Cope with Racist Comments, Ian James & Katharina Reichelt, Newcastle Clinical Psychology Team. 14. The Use of Physical Restraint to Deliver Essential Personal Care to Incapacitated Older Adults with Dementia, Alan Howarth, Matt Crooks & Deborah Sells, Northumberland County Challenging Behaviour Team. 15. Use of Dolls in Dementia Care, Ian James & Jennifer Loan, Newcastle Challenging Behaviour Team. 16. Therapeutic Lying: A Rationale for Improving Therapists' Abilities to Lie, Ian James & Roberta Caiazza, Newcastle Clinical Psychology Team. 17. Behaviours that Challenge at the End of Life, Julian Hughes, RICE (The Research Institute for the Care of Older People). References.

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Book SynopsisThe CLEAR Dementia Care© model is an effective method of assessing behaviour that challenges, through an understanding that such behaviour may be a way of communicating unmet needs. This book explains the many factors that contribute to challenging behaviour and how a greater understanding of this can enhance quality of life and lead to better care for the person with dementia in both hospital and residential settings.Discussing how people with dementia have the same needs as everyone else, the book helps to understand dementia from the perspective of the person experiencing it. It features case studies with examples of how to interpret signs of distress and develop an appropriate intervention plan. The model includes person-centred assessment of cognition, life story and personality, emotional and physical wellbeing, activity and environment, and relationships. Also included are easy-to-use photocopiable assessment tools, proven to facilitate a more accurate understanding of behaviour.Trade ReviewFrances Duffy has presented us with a very clearly written account of a relatively new biopsychosocial model for understanding and fulfilling the needs of people with dementia. The CLEAR framework has recently been cited as an example of good practice in the British Psychological Society's briefing paper on treatments for Behaviours that challenge.CLEAR is an example of one of the new and exciting generations of nonpharmacological interventions, although its use of Behavioural charts provide it with an USP that makes it stand out from the others. In terms of the book itself, it provides a good account of the background to the needs of people with dementia, and the model is well illustrated with helpful examples of case studies. -- Ian A. James (PhD., MSc., BSc., C.Psychol) Trust Lead Challenging Behaviour Consultant Clinical Psychologist, UK'A complicated topic made simple'Frances cleverly combines theory with practical insights and examples about the behaviours that challenge people living with dementia. This book is an impartation from a woman who is a credible expert in this subject and it will challenge and encourage you to change the way you deliver care. -- Eleanor Ross, MBE, Assistant Director Nursing, HSC Public Health Agency, UKCombines a rounded and psychologically nuanced approach with practical strategies for supporting a person with dementia who is experiencing distressing behaviours. By encouraging the reader to put themselves in the shoes of the person, the book really gets to the heart of behaviours that challenge. Highly recommended for frontline staff supporting people with dementia. -- Bernadine McCrory, Alzheimer’s Society (Country Director - Northern Ireland)A fantastic resource for professional and family carers of people with dementia! Part 1 is a most accessible overview of the dementias and the brain that would also interest people with an early diagnosis. Part 2 is a treasure trove of materials that will facilitate training, empower carers and improve quality of life. -- Reinhard Guss, Dementia Workstream Lead, Faculty of the Psychology of Older People, British Psychological SocietyCLEAR builds the insight and competency of caregivers and professionals by enabling them to time-travel into the lives of people living with dementia, with compassion. It empowers understanding of the behavioural and psychological symptoms of dementia such as agitation, depression, apathy, repetitive questioning, psychosis, aggression, wandering and sleep problems.The complexity of these symptoms means that there is no 'one size fits all solution' and the CLEAR model provides the paradigm shift required to tailor support. This is a must read for all in health care settings and in the community. -- Linda Robinson, Chief Executive Age NITable of ContentsAcknowledgements. 1. Dementia and the Brain. 2. Types of Dementia. 3. Dementia and Loss. 4. Dementia and Sense of Self. 5. Understanding Behaviour. 6. Recording Behaviour. 7. What Do People with Dementia Need? 8. Domains of CLEAR Dementia Care©. 9. The Experience of Carers. 10. Supporting Care Staff. 11. Case Example Margaret. Appendices. References.

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Book SynopsisExamining recent research and practice on reminiscence, life review and life story work, this book offers critical accounts of the rapidly growing and extensive global literature, and highlights the continuing relevance and effectiveness of these therapeutic methods.The book includes examples of international practical projects, involving people of all ages, life circumstances, and levels of physical and cognitive functioning. Contributions from contemporary practitioners and researchers give a nuanced appraisal of the methods of engagement and creativity arising from the purposeful recall of our personal pasts. Chapters include reviews of technology, ethical issues including end of life care, working with people with mental health conditions, and working with people with dementia.Trade ReviewThis book will be invaluable, for its theoreticalunderpinnings as well as personal stories and practice-based guidance.However, the book's overarching focus on the stories that we all tell toourselves and others about past, present and future throughout ourlives means that it may well also appeal to a wider readership than moretraditionally narrow interpretations of 'reminiscence' or 'life story work'might suggest. * Journal of Practice Teaching & Learning *This forensically detailed book gets to the DNA of reminiscence and life review, combining reports of research studies with accounts of the application of different approaches in practice. It will be particularly useful for scholars and practitioners interested in the theory of reminiscence, drawing as it does on studies concerning the rationale and benefits of making sense of our lives, linking past to present and reconciling previous experiences. -- Ruth Eley, Dementia Action LiverpoolRead this book. The multiple perspectives are inviting, relevant, comprehensive, insightful, needed, scholarly and yet personal. -- Professor Bruce A. Stevens, Charles Sturt University, Australia and author of the Storied SelfTable of ContentsForeword by Barbara Haight. 1. Introduction. Faith Gibson, Emeritus Professor of Social Work, University of Ulster, UK and Associate Consultant, HammondCare Sydney, Australia. 2. Recent progress in reminiscence research. Thomas W. Pierce, PhD, Department of Psychology, Radford University, USA, and Ann Elliott, Department of Psychology, Radford University, USA. 3. Cochrane review of reminiscence interventions with people with dementia. Bob Woods, Emeritus Professor, Dementia Centre, University of Wales, UK. 4. Reminiscence and life review in later life: The Southampton longitudinal study. Peter Coleman, Emeritus Professor, Academic Unit of Psychology, University of Southampton, UK, Christine Ivani-Chalian, PhD, UK and Maureen Robinson, Independent Advocate for Older People, UK. 5. Developmental foundations of life-long reminiscing. Robyn Fivush, Professor, Department of Psychology, Emory University, USA and Dr Jordan Booker, Professor, Department of Psychology, Emory University, USA. 6. Reminiscence and life review work in Taiwan. Tsuann Kuo, Assistant Professor, School of Medical Sociology and Social Work, Chung-Shan Medical University, Taiwan. 7. Spiritual reminiscing in later life. Elizabeth MacKinlay, Adjunct Professor, St Marks Theological College, Charles Stuart University, Australia. 8. Loss of a loved one: Remembering the life and the dying days. Emily L. Mroz, Psychology Department, University of Florida, USA, and Susan Bluck, PhD, Associate Professor, Psychology Department, University of Florida, USA. 9. Guided autobiography: Scope, implementation, process, and international applications. Dr Cheryl Svensson, University of Southern California, USA, and Brian de Vries, Professor, Gerontology Program, San Francisco State University, USA. 10. Reminiscence, narrative, and the presence of meaning in life. Dr Jeffrey D. Webster, Psychology Department, Langara College, Canada. 11. The narrative self in the lived experience of dementia. Christine Bryden, PhD, Dementia Consultant, Australia. 12. Self-reminiscences of clinically depressed older adults and the tripartite functional model revisted. Philippe Cappeliez, PhD, Emeritus Professor, Psychology Department University of Ottawa, Canada. 13. Reminiscence, self and meaningful connections: A case example of 'Bill'. Kate de Medeiros, Associate Professor of Gerontology, Miami University, Ohio, USA, and Sara E. Stemen, Doctoral Associate in Gerontology, Department of Sociology and Gerontology, Miami University, Ohio, USA. 14. Sharing memories: Building communities through arts-based reminiscence. Marian Ferguson, Reminiscence Network Northern Ireland, UK and Dr Geraldine Gallagher, Reminiscence Network Northern Ireland, UK. 15. Creative exploration of the past in the present. Pam Schweitzer, Founder, European Reminiscence Network, UK. 16. Structured Life Review. Dr Juliette Shellman, School of Nursing, University of Connecticut, USA and Julia A. McNeil, RN, MSN/Ed, USA. 17. Life review: Lifespan development, meaning processes and interventions. Dr Gerben J. Westerhof, Psychology Department, University of Twente, Netherlands. 18. Memoir writing: The challenge of leaving a legacy. Mary O'Brien Tyrrell, President, Memoirs, LLC, USA. 19. The contribution of information technology to reminiscence, life review and life story work: The perspectives of people living with dementia and their families. Assumpta A. Ryan, Professor of Ageing and Health, Ulster University, UK. 20. Increasing the use of reminiscence and life review: Experiences with the development, implemtation and evaluation of an online certificate course. Dr Juliette Shellman, Loreina Yancura, Department of Family and Consumer Sciences, University of Hawaii at Manoa, USA, and Esther Gieschen, Program Manager & Interim Director, Center for Continuing Education, University of Wisconsin-Superior, USA. 21. Afterword by Faith Gibson.

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Book SynopsisSensory Stories contain just a few lines of text, and are brought to life through a selection of meaningful sensory experiences. They have been found to be highly effective in helping care for people with dementia, and can enable them to engage with their memories, life history and more, in a way that would otherwise not be possible. Despite these benefits, there is very little guidance on how to incorporate this approach in everyday care.This book looks at how sensory engagement can help someone with dementia feel safe and secure, minimise their anxieties, support their cognitive abilities, as well as other benefits. Full of practical advice, this book provides everything you need to put Sensory Stories into practice. Written at a level suitable for both family members and practitioners, this innovative book will be invaluable for anyone supporting a person with dementia.Table of Contents1. Introduction. 2. Sensory engagement and its relevance for people with dementia. 3. The benefits of sensory stimulation. 4. Sensory conversations. 5. Sensory stories. 6. Sensory support. 7. Sensory environments. 8. Sensory support for mental well being. 9. Conclusion

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Book SynopsisMany new pieces of technology can be beneficial to individuals living with dementia, including both hardware and software. This straightforward guide summarises the current research on this growing topic, and gives practical advice on how available technology can be used to improve the everyday lives of people with dementia.Looking at a range of available products, such as off-the-shelf computers and smartphones, to dementia specific applications and programs, it also addresses some common obstacles and barriers faced when introducing technology in dementia care. The past twenty years have seen an array of technologies developed to improve the day-to-day lives of people with dementia; this guide shows how they can be effectively used.Table of ContentsPreface. Part One: An Overview of Technology for Dementia. 1. An Introduction to Technology for Dementia. Arlene Astell, Professor of Neurocognitive Disorders, University of Reading UK, and Research Chair in Dementia, Ontario Shores Centre for Mental Health Sciences, Canada, Erica Dove, Research Assistant, Ontario Shores Centre for Mental Health Sciences, Canada, and Dr Alexandra Hernandez, Postdoctoral Researcher, Ontario Shores Centre for Mental Health Sciences, Canada. 2. Assessing the Needs of People with Dementia for Technology. Louise Nygård, Professor of Occupational Therapy, Karolinska Institutet, Sweden, Dr Camilla Malinowsky, Assistant Professor, Department of Neurobiology, Karolinska Institutet, Sweden, and Dr Lena Rosenberg, Assistant Professor, Department of Neurobiology, Karolinska Institutet, Sweden. 3. Ethical Issues in Technology for Dementia. Dr Jennifer Boger, Assistant Professor, Systems Design Engineering and Schlegel Research Chair for Technology in Independent Living, University of Waterloo, Canada, Professor Jeffrey Jutai, Interdisciplinary School of Health Sciences, University of Ottawa, Canada, Dr Anne Moorhead, Senior Lecturer in Health Communication, Ulster University, UK, Maurice Mulvenna, Professor of Computer Science, School of Computing, Ulster University, UK, and Dr Raymond Bond, Senior Lecturer in Data Analytics, Ulster University, UK. Part Two: Technology in the Lives of People with Dementia. 4. Life at Home and Technology With Dementia. Dr Grant Gibson, Lecturer in Dementia Studies, University of Stirling, UK. 5. Outdoor Life and Technology with Dementia. Dr Rens Brankaert, Assistant Professor, Eindhoven University of Technology, the Netherlands and Sandra Suijkerbuijk, Researcher, Vilans and Eindhoven University of Technology, the Netherlands. 6. Leisure Activities and Technology with Dementia. Dr Phil Joddrell, Research Associate, Centre for Assistive Technology and Connected Healthcare, University of Sheffield, UK, and Dr Sarah Smith, Research Associate, Faculty of Social Sciences, University of Sheffield, UK. 7. Technology Use by People with Dementia. Ken Clasper, Tom Hawkins, Ann Johnson, Keith Oliver, with Nada Savitch, Independent Consultant, London, UK. Part Three: Technology Ecosystem for Dementia. 8. Technology for Families of People with Dementia. Dr Emma Wolverson, Clinical Psychologist and Clinical Lecturer, School of Health and Social Work, Faculty of Health Sciences, University of Hull, UK, Rosie Dunn, Research Assistant, School of Health and Social Work, Faculty of Health Sciences, University of Hull, UK, and Caroline White, Research Associate, School of Health and Social Work, Faculty of Health Sciences, University of Hull, UK. 9. Technology for Organisations Supporting People with Dementia. Dr Julie Christie, Region Manager UK and Europe, Dementia Centre, HammondCare, UK and Professor Mary Marshall, Senior Consultant, Dementia Centre, HammondCare, UK. 10. Dementia-friendly Future. Dr Stephen Czarnuch, Assistant Professor, Department of Electrical and Computer Engineering/Discipline of Emergency Medicine, Memorial University, Newfoundland, Canada and Arlene Astell.

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Book SynopsisThis essential textbook on dementia care introduces the knowledge that nurses need, including the evidence base for practice and the guidance to transfer this newly acquired knowledge into everyday practice. Each of the 25 chapters are written by experts in the field of dementia care and are grounded in thoroughly researched, up-to-date evidence, have a direct bearing to nurse practice, and use case studies to give examples of application of the evidence to practice.It begins by introducing dementia as a diagnosis, a syndrome, and a set of diseases, signs and symptoms. It then deals with various principles that underpin dementia care, including person-centred care, behaviours that challenge, risk management, and understanding relationships affected by dementia. Finally, it assesses dementia care across a range of care settings, such as primary care, care homes, domiciliary care, acute hospital, and hospice services.Trade ReviewIt is far too easy to include 'dementia' in the nursing curriculum for student nurses and in CPD programmes for nurses, but it is quite another to ensure engagement with the diverse and complex needs of persons living with dementia and those affected by it. This book for nurses and nursing students should be the 'go to' resource in ensuring that all nurses have a sound starting point for understanding how to meet people living with dementia as 'persons' with all their diversity and complexity - just like the rest of us! -- Professor Brendan McCormack, Head of the Divisions of Nursing, Occupational Therapy & Arts Therapies, Queen Margaret University, ScotlandThis book is a valuable resource on best practice care for people with dementia. Its accessible chapters, authored by experts in the field, summarise the contemporary evidence-base and present practical case examples on a wide range of essential topics from diagnosis to end of life care. -- Professor Claire Surr, Director of the Centre for Dementia Research, Leeds Beckett UniversityTable of Contents1. What is Dementia? - Tom Dening and MB Sandilyn; 2. Diagnosis of dementia - Tom Dening and MB Sandilyn; 3. Medical treatment and management of patients with dementia - Tom Dening and MB Sandilyn; 4. Diagnosis and support for younger people with dementia - Hilda Hayo; 5. Best practice in caring for adults with dementia and learning disabilities - Chris Knifton; 6. Person-centred dementia care - Caroline Baker; 7. Person-centred communication - Jan Leeks; 8. Psychosocial approaches to behaviours that challenge - Esme Moniz-Cook; 9. Ethical issues in caring for a person with dementia - Julian Hughes and Aileen Beatty; 10. Using risk management to promote person-centred dementia care - Charlotte Clarke and Sarah Rynas; 11. Safeguarding - Jill Manthorpe and Stephen Martineau; 12. Sexuality in dementia - Jane Youell; 13. Supporting decision making in dementia - Jill Manthorpe; 14. Advance care planning in dementia - Karen Harrison-Dening; 15. Spirituality and dementia care - Helen Scott; 16. Supporting family and carers of people with dementia - Zena Aldridge; 17. Multi morbidity and frailty in dementia - Frances Bunn and Claire Goodman; 18. Delirium and dementia - Angela Moore; 19. Pain in dementia - Liz Sampson; 20. Pallaitive and end of life care in dementia - Karen Harrison Dening; 21. Care of people with dementia in the community - Jo Moriarty; 22. Care of people with dementia in a primary care setting - Steve Iliffe; 23. Caring for people with dementia in the acute hospital setting - Katie Featherstone and Andrew Northcott; 24. Care of people with dementia in the care home setting - Caroline Baker; 25. Caring for people with dementia in a hospice setting - Sharron Tolman

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Book SynopsisMusic is an essential tool in dementia care. This accessible guide embraces ways in which music can enhance the daily lives of those with dementia. It draws on the expertise of practitioners regularly working in dementia settings, as well as incorporating research on people with dementia, to help anyone, whether or not they have any musical skills or experience, to successfully use music in dementia care.Guiding the reader through accessible activities with singing, percussion, sounding bowls and other musical tools, the book shows how music may can be used from the early to late stages of dementia. This creative outlet can extend to inspire dance, movement, poetry and imagery. The chapters include creative uses of technology, such as tablets and personal playlists.The book also covers general considerations for using music with people living with dementia in institutional settings, including evaluating and recording outcomes.Living Well with Dementia through Music is the perfect go-to guide for music-based activities with people living with dementia.Trade ReviewThis book will change lives through the power of music. A compelling read for anyone involved in the care of a person living with dementia. A 'go-to-guide' crammed with informative, well-researched, and practical ways to empower, and enrich lives. Talented musicians, or total novices alike, we can all support the emotional and psychological needs of those in our care. -- Jann Gilliland, Former NHS Service Manager and Matron, Registered Mental Health Nurse, Specialist Dementia Care Unit Registered VolunteerInclusive, collaborative, creative, this book is not only a brilliantly rich resource for anyone using or wanting to use music with people living with dementia, it effectively demonstrates that we can all play a part in helping to make music a part of dementia care. Woven through the many of examples of how music can be used, in its many diverse and rich forms, we are helpfully reminded that music has the potential to be most beneficial and impactful when it's made in partnership with, rather than done to, people living with dementia. I would strongly urge anyone wanting to incorporate music into the care they provide for people living with dementia, whether they are care staff, relatives, activity coordinators, musicians, music therapists, trainers, commissioners, or those looking to develop their existing practice, to not only read this book but also put it into practice to help make music an essential part of dementia care. -- Grace Meadows, Director, Music for Dementia 2020This is the first book of its kind to provide caregivers and people with a dementia a research-inspired tool kit that practically spotlights the many benefits of singing and music and how to make use of them in one's daily life. The arts are not 'the frosting on the cake' but are very much part of supporting wellbeing and quality of life. The time is now for the arts to be recognised for their importance in the lives of those living with dementia and this book is a major contribution. -- Paul M Camic, PhD, PFRSPH, (Hon) Professor, UCL Dementia Research Centre; Prof Emeritus of Psychology & Public Health, Canterbury Christ Church UniversityTable of ContentsIntroduction. 1. Singing, Listening and Responding (Harriet Powell). 2. "Musical Lives" (Harriet Powell). 3. "Let's Liven it Up a Bit" (Catherine Richards). 4. Bringing Couples Together (Maggie Grady and Ruth Melhuish). 5. No Time like the Present (Harriet Powell). 6. The Use of Music to Inspire Dance and Movement (Nicola Jacobson-Wright). 7. What's in a Word? The Creature Use of Music and Poetry (Alison Acton). 8. Every Picture Tells a Story (Alison Acton). 9. "A Song a Day Keeps the Doctor Away" (Catherine Richards talking to Stuart Brown). 10. Becoming a Music Detective (Sarah Metcalfe). 11. It's Easy When You Know How! (Alison Acton). 12. A Harmony of Simple Beauties (Tobias Kaye). 13. The Use of Music in Institutional Environments (Melanie Burton). 14. Evaluating, Recording and Passing on Information on the Musical Responses and Needs of People Living with Dementia (Melissa Elliott and Catherine Richards). 15. The Use of Music in End of Life Care (Arash Bazrafshan). Appendix.

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Book SynopsisHow to live a full and rewarding life after a dementia diagnosis.Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness.Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.Trade ReviewA candid, moving account from a courageous man - this book gives thoughtful and at times heart-breaking insight into living with dementia. -- Victoria Derbyshire, award-winning journalist and broadcaster

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Book SynopsisWhat does a dementia diagnosis mean for an individual's sense of self? Christine Bryden shares her insider view on living with dementia and explains how a continuing sense of self is possible after diagnosis and as the condition develops.Encouraging a deeper understanding of how individuals live meaningfully with dementia, the book challenges the dominant story of people with dementia 'fading away' to eventually become an 'empty shell'. It explores what it means to be an embodied self with feelings and emotions, how individuals can relate to others despite cognitive changes and challenges to communications, and what this means for the inclusion of people with dementia in society.Trade ReviewChristine's insider account of dementia, focusing on the continuing sense of self in the disease, brings a powerful message of hope for people who have dementia, their families and health care providers. People with dementia are still people of worth, even in the face of increasing cognitive decline and memory dysfunction. -- Rev Prof Elizabeth MacKinlay, CAPS, Australian Centre for Christianity and Culture, St Mark's National Theological Centre and School of Theology, Charles Stuart UniversityChristine Bryden demonstrates powerfully that, despite dementia, her self and desire to improve her community are intact, that people living with dementia can enjoy mutually positive relationships with others and that we honor our own humanity ever more deeply when we honor the humanity of people living with dementia. -- Steven R. Sabat, Ph.D., Professor Emeritus of Psychology, Georgetown University, Washington, D.C., U.S.A.The question of what makes "me" me and how I can hold on to my sense of self in the midst of the challenges of dementia is to say the least, challenging. What is it that holds me in my selfhood and identity when I seem to be forgetting all of the old markers that held me in place? Christine Bryden offers a profound challenge to such false assumptions. Through narrative, personal reflection and enlightening philosophical reflection, Christine opens up fresh space for hope within which the complex cadences of personal and communal selfhood can be understood in ways that enable people truly to live with dementia. -- Rev. Professor John Swinton, Professor in Practical Theology and Pastoral Care, King's College University of AberdeenChristine Bryden is a remarkable woman, and a pioneering dementia advocate, one I am proud to call a friend. Will I Still Be Me? is a tribute to her continued commitment to improve the lives of all people with dementia, gives us hope, and deep insight into how her spirituality has supported her to live positively with dementia. Christine has given the world another great gift; her writing, her research and her appraisal of an insider's view of how dementia affects so much more than one individual. -- Kate Swaffer, Human Rights Activist and author of What the Hell Happened to My Brain?Table of Contents1. Am I losing my self? 2. Re-interpreted and re-packaged at diagnosis. 3. How can I write a book? 4. Challenging loss of self in dementia. 5. 'I who know that I exist inquire into what I am'. 6. Embodied self. 7. Relational self. 8. Narrative self. 9. Upheld by others in the fullness of our identity. 10. Who am I now if I no longer have dementia? 11. Conclusion. References.

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Book SynopsisThe book outlines a range of non-pharmacological therapies clinicians can adopt in their daily practice and sets out information and advice on each therapy and how to implement them in practice, illustrated with case studies and practical examples and drawing on the author's own clinical work. Many different therapies are discussed including Cognitive Behaviour Therapy (CBT), Neuro-Linguistic Programming (NLP), and farm and ranch therapy. Each has been chosen for its own particular benefits, including early stage dementia and rarer forms, while others can be applied more generally. Tying each therapy together are six key clinical approaches and models of intervention. The core of this is the Nightingale Psycho-Social Model of Support for Someone Living with Dementia. This person-centred approach focuses on the maintenance of meaningful occupation, platonic and intimate relationships, community involvement and maintaining life within normal patterns of behaviour. The new go-to book for clinicians, it is an invaluable tool for anyone looking for a wide variety of dementia therapies.

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Book SynopsisThis practice-focussed resource shows dementia care professionals how to harness resilience in their daily practice when working with people living with dementia. Nurturing and developing resilience can hugely improve quality of life for people living with dementia, and as such it is an important tool for practitioners to provide targeted, meaningful support that fits into the lives of people with dementia and care partners.This book guides readers through the key concepts of resilience within the context of dementia and explains the unique challenges and opportunities of developing resilience in this situation. It also provides real-world examples of resilience in dementia assessment and care and suggests clear frameworks for applying resilience in daily practice, as well as template assessment sheets. A practical and accessible resource, this book helps professionals ensure that people with dementia are treated as individuals actively engaged in their own lives and in the care which they receive.Trade ReviewStories of resilience in living with dementia are stories for us all. This practical, insightful and well-researched book brings this important concept to life and offers creative solutions to everyday situations. A topical and highly important book. -- Professor John Keady, Dementia and Ageing Research Team, The University of Manchester, UK and Founding Co-editor Dementia: The International Journal of Social Research and Practice (2002-2018)At a time of significant upheaval within the field of dementia care, this book provides a clearly stated and carefully reasoned framework to guide practice and deepen our understanding of the challenges of living with dementia. A compelling case is made for supporting and building people's resilience through dementia care practice. The author takes a hands-on approach, anchored in the lived experience of people with dementia, whose perspectives and voices are shared throughout. This excellent and accessible book will be an invaluable resource to dementia practitioners, students of health and social care and anyone with an interest in enhancing their skills and knowledge in supporting people living with dementia. -- Dr Richard Ward, Senior Lecturer in Dementia Studies, University of Stirling

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Book SynopsisDetailed knowledge and specific awareness of delirium is crucial in elderly care, due in part to the overlap with delirium and dementia. This introductory reference guide can be used by professionals and students to expand their understanding and skills in delirium care to better respond to the needs of people under their care. There are also detailed chapters on quality improvement and educational initiatives which will be of great help to the delirium workforce in delivering improved care.Setting out clear and accessible learning objectives, Rahman provides the essential information needed to improve care for those with delirium. Showing how to identify and correctly diagnose delirium, this book addresses different aspects of care including the management of delirium and the various interventions available, as well as ethics and safeguarding. It will also empower patients and carers to better understand delirium, and engage in the discourse of their care. As a widespread yet underrepresented issue, this book is a vital and much-needed resource.Trade ReviewIn healthcare, since knowledge is our main weapon, this book will serve valiantly in our fight against delirium. -- From the foreword, Prof. Sharon K. Inouye, MD, MPH, HarvardEssentials of Delirium should become a go-to text for frontline healthcare workers, policy-makers and others who seek a readable, clear and practice-orientated account of delirium. -- From the foreword, Prof. Alasdair MacLullich, Edinburgh,One of the golden tests of any medical book is 'Will it change your practice?' This book certainly can do this. -- From the afterword, Dr Amit Arora, Stoke

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Book SynopsisNamaste Care is a therapeutic approach to caring for those living with advanced dementia, focused on improving their quality of life through a simple, soothing and rewarding process. This step-by-step guide is for anyone looking to translate the principles of the Namaste Care approach successfully and professionally into a home or care setting, with an emphasis on the value of volunteers in the community in implementing this.The Namaste Care approach is focussed on giving comfort and pleasure to people with advanced dementia through sensory stimulation, especially the use of touch, and this book provides extensive guidance on every stage of the process, including harnessing community interest, recruiting and training volunteers, and managing pain and discomfort. In a time of ever-growing strain on healthcare resources, this practical guide is a timely reminder of the power and value of informal care and compassionate communities in helping to care better for people with dementia, and is essential reading for carers, professionals and family members.Trade ReviewNamaste Care seeks to engage people with advanced dementia through sensory input, especially touch, and to enrich their quality of life and is becoming well established in the care home sector in the UK. This exciting book by Nicola Kendall offers a strong and passionate template for how Namaste can be delivered to people with advanced dementia living in their own home by engaging volunteers and family members in its delivery. This book not only details their experiences and the compassion that has been a driver for the service but is also one that helps the reader to deliver Namaste Care themselves. This is a book I would recommend for family carers as well as services who wish to embrace this sensitive and innovative care approach. -- Dr Karen Harrison Dening, Head of Research & Publications, Dementia UKThis informative and thought-provoking book is packed with helpful guidance in supporting people to live well with advanced dementia. It is a must read for those who are working in care services and for those who are caring for individuals at home. -- Jackie Pool, Director of Memory Care, Sunrise Senior Living UKMore than a practical guide, this is a brilliant resource on Namaste Care - well written, insightful, providing a wealth of information. I recommend it wholeheartedly to anyone interested in Namaste Care. A timely publication given the rise in dementia and the need to harness compassion in our communities. -- Colette O’Driscoll, Namaste Care Manager, St Joseph’s HospiceAt a time when funding in health and social care is drastically reduced and the numbers of people living longer with dementia are increasing, this is an informed and inspiring handbook on how to address some of these issues. Training and building resilient communities is the key to allaying the fears around communicating with people with dementia and supporting carers who have often fallen through the net of care. I know this approach works, through St Joseph's Hospice I set up the first Namaste Care Service in the UK which involved home visits - it's difficult, a balance of risk but one of the most rewarding projects I have worked on. If you are interested in setting up a similar service, this book will give you the impetus, confidence and insight and leave a lasting impact on you and your community. -- Lourdes Colclough, Former Namaste Care Manager, St Joseph’s Hospice, now Macmillan Engagement ManagerA thorough and accessible guide. The subject is brought to life throughout with personal stories of how people living with advanced dementia can be supported to engage with the world and experience joy. -- Isabelle Latham, Senior Lecturer, Association for Dementia Studies, University of WorcesterAlways deeply respectful, often poignant and at times humorous, it sparkles with joyful moments and celebrations of life. To quote the author, "Embrace this (book) with gentle curiosity and enjoy the ride." I, for one, would like to go round again. -- Danuta Lipinska, Specialist in Ageing & Dementia Care, Training Consultant, Counsellor, Supervisor, 'My Home Life' Action Learning FacilitatorThis book is full of hope, humility and insight. Contributors draw from a rich and diverse range of theory, research and professional experience to share the practical wisdom of namaste care. -- Luke Tanner, Body psychotherapist & Dementia Care Trainer and ConsultantTable of ContentsForeword by Joyce Simard1. Introduction (including a case study contribution from Dr Trish Winter, family carer)2. What is Namaste Care?3. Admiral Nursing and the origins of the Namaste Care Project at St Cuthbert's Hospice - Sharron Tolman (Consultant Admiral Nurse, Dementia UK)4. Advanced dementia and assessment - Lisa Howarth (Admiral Nurse, St Cuthbert's Hospice, UK)5. Harnessing community kindness (With a contribution from Ann White MBE, Dementia Friends Champion, UK)6. Volunteers with heart - Barbara Edwards (Namaste Volunteer)7. Responding to Referrals - the initial visit assessment8. Life Stories9. Psychological needs of people with advanced dementia10. The Needs Led Model of Dementia Care - Julie Young (Advanced Nurse Practitioner, Northumberland, Tyne and Wear NHS Trust, UK)11. Carer needs12. Sensory Stimulation 13. Loving touch14. Communication15. Planning Namaste Care sessions16. Key learning themes (including a case study contribution by Chris Hayday, Occupational Therapist and Volunteer at St Cuthbert's Hospice)17. End of Life - Joanne Atkinson (Head of Health Continuing Workforce Development, Northumbria University, UK) and Dr Caroline Jeffery (GP and Senior Lecturer, Northumbria University, UK)18. ConclusionAppendix

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Book SynopsisThis new edited volume seeks to meet the growing need for ways to support people with dementia across the whole course and trajectory of dementia care, with a wide scope of expertise.The book addresses how practitioners and carers can apply psychosocial interventions - which take into consideration the individual, social and environmental aspects of a person's life - across this trajectory, right from the earliest stages through to practice in care home settings. Divided into four sections, each covers a different context in which people with dementia can be supported: at home; in community settings; family and carer support; and those in care homes and hospitals. In addition, there is a distinct focus throughout on evidence-based practice and its implementation in real-world settings. This book is essential reading for any practitioner and caregiver wanting to support people with dementia.Trade ReviewThis is a major handbook by respected authors of evidence-based practice with contributions from international studies covering a wide range of psychosocial interventions in dementia care. The theoretical underpinnings provide information on what works and also the challenges of implementing an asset based approach to supporting people newly diagnosed living at home through to those with advanced dementia in care settings. There is also the recognition of the equal importance of such interventions for family carers.This book seeks to reinforce the social model of disability with the evidence base which will support people living with dementia and their family carer(s) to continue to live meaningful lives participating in their chosen activities.This is a book I would recommend to professionals wishing to increase their knowledge and skills to offer new interventions for people affected by dementia. -- Jean Tottie, Director and Chair, Life Story Network / TIDEThis edited volume is much more than the sum of its parts. Not only are we introduced to a wide range of creative and innovative interventions, but the editors map out how they fit together, and how appropriate options can be offered to each individual, whether living in the community or in a care home, across their journey through dementia. -- Bob Woods, Emeritus Professor, Bangor UniversityThis book opens new windows for living well with dementia. Interventions target remaining capacities, give people with dementia a voice and stimulate engagement in meaningful activities and social contacts. They counteract learned helplessness. The introduction of the notion of preventable dementia paves the way to future integrated psychosocial interventions to prevent dementia. -- Prof. Dr. Myrra Vernooij-Dassen, Chair, INTERDEMTable of Contents1. Timely support for people with dementia: New Agendas and Challenges - Professors Jill Manthorpe (NIHR Health and Social Care Workforce Research Unit, Policy Institute at King's, King's College London) & Esme Moniz-Cook (Faculty of Health Sciences, University of Hull)2. Choosing psychosocial intervention for people with dementia and their families: Protocols for decision-making - Professor Esme Moniz-Cook and Dr Chris Rewston3. Counselling people with dementia and their families at home: The DAISY programme - Ms Ane Eckermann & Professor Gunhild Waldemar (The Danish Dementia Research Centre, Rigshospitalet, University of Copenhagen, Denmark) 4. Meeting Centres and Dementia Cafés: community-based initiatives and social engagement - Professor Rose Marie Droes (Department of Psychiatry, VU University Medical Centre, Amsterdam, The Netherlands) & Professor Rabih Chattat (Dipartimento di Psicologia Viale Berti Pichat 5, Bologna, Italy) & Professor Stefanie Auer (Danube-University Krems, Faculty of Health and Medicine, Department for Clinical Neurosciences and Preventive Medicine, Krems, Austria)5. Cognitive Stimulation Therapy (CST) for people with dementia living in the community - Dr Elisa Aguirre, Professor Aimee Spector (Division of Psychology & Language Sciences, University College London), Dr Amy Streater & Professor Martin Orrell6. Promoting participation in meaningful occupation - Professor Gail Mountain (University of Bradford, Bradford, UK) & Dr Sarah Kate Smith7. Goal-Oriented Cognitive Rehabilitation in Early-Stage Alzheimer's and Related Dementias - Dr Aleksandra Kudlicka (REACH: The Centre for Research in Ageing and Cognitive Health, University of Exeter, Exeter), Ms Suzannah Evans & Professor Linda Clare (REACH: The Centre for Research in Ageing and Cognitive Health, University of Exeter, Exeter) 8. Managing depression in people with early dementia: findings from a therapeutic trial - Professor Katja Werheid (Dept. of Psychology, Clinical Gerontopsychology, Humboldt-Universität zu Berlin, Germany), Dr Angelika Thöne-Otto (Clinic of Cognitive Neurology, University of Leipzig, Germany), Ms Johanne Tonga (Department of Old Age Psychiatry, Oslo University Hospital, Ullevaal, Norway) & Professor Alexander Kurz (Department of Psychiatry and Psychotherapy, Klinikum rechts der Isar, Technische Universität München, Germany)9. Using Assistive Technology in dementia care - Dr Franka Meiland, Dr Henriëtte van der Roest & Professor Rose-Marie Dröes (all Department of Psychiatry, VU University Medical Centre, Amsterdam, The Netherlands)10. Family meetings to prevent mood problems in family carers - Dr Karlijn J. Joling (VU University Medical Centre, Amsterdam, The Netherlands) & Professor Hein P.J. van Hout (Department of General Practice and Elderly Care medicine, Vrije University, Amsterdam, The Netherlands)11. Supporting the supporters: interventions to reduce family distress - Dr Ingun Ulstein (The Memory Clinic, Department of Geriatric Medicine, Oslo University Hospital, Ullevål, Norway), Professor Jill Manthorpe & Professor Esme Moniz-Cook12. Supporting People with dementia through music - Dr Alfredo Raglio (Department of Psychology, Catholic University, Milan, Italy), Dr Maria Gianelli, Professor Esme Moniz-Cook & Professor Jill Manthorpe13. Dancing with People with Dementia - Professor Iva Holmerová (Center of Expertise in Longevity and Long Term Care (CELLO), Charles University, Prague Czech Republic), Dr Hana Vanková, Dr Dana Hradcová, Mr Michal Šteffl & Mr Petr Veleta14. Psychosocial interventions to reduce depression and apathy among people with dementia living in care homes: Act in case of Depression - Debby Gerritsen (Radboud University Medical Center, Radboud University Nijmegen, The Netherlands) & Ruslan Leontjevas15. Improving the physical environment of care homes: the Eval'zheimer© model of intervention design guidelines - Dr Kevin Charras (Fondation Médéric Alzheimer, Paris, France)16. Making contact with people with severe dementia: miMakkus: a clowning intervention - Irena Draskovic (Radboud University Medical Center, Department of Neurosurgery, Radboud University Nijmegen, The Netherlands), Sytse Zuidema (University Medical Center Grooningen, The Netherlands), Annemieke van Brunschot (miMakkus foundation, Eindhoven, The Netherlands), Caren Mannens (miMakkus foundation, Eindhoven, The Netherlands) & Myrra Vernooij-Dassen (Radboud University Medical Centre, Scientific Institute for Quality of Healthcare Radboud University Nijmegen, The Netherlands)17. Promoting the enjoyment of food in dementia care: the Bon Appetit intervention in care homes - Dana Hradcová (Center of Expertise in Longevity and Long Term Care (CELLO), Charles University, Prague Czech Republic), Michal Synek, Iva Holmerová (Center of Expertise in Longevity and Long Term Care (CELLO), Charles University, Prague Czech Republic) & Jitka Zgola18. AwareCare: an awareness-based staff training intervention to improve quality of life for care home residents with severe dementia - Dr Catherine Quinn (University of Bradford; Bradford, UK) & Professor Linda Clare (REACH: The Centre for Research in Ageing and Cognitive Health, University of Exeter, Exeter)

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Book Synopsis"I open the garden gate, which creaks on old, worn hinges. The rose garden is peaceful but not silent. Bird song and the buzz of bees provide nature's melody. Somewhere in the distance, gentle music is playing and it relaxes me."Namaste Care offers compassionate care to people with advanced dementia through sensory input, comfort and pleasure, combining music, therapeutic touch, colour, food and scents. With ready-to-use structured sensory stories that are specially designed for people with advanced dementia, A Namaste Care Activity Book invites you to enhance your care through storytelling and sensory stimuli.Early chapters give an overview of the approach, exploring the effects of sensory stimulation in improving quality of life. With contributions from professionals across the field, chapters describe ways to engage the different senses, including aromatherapy, food and memory and therapeutic use of lighting. These are followed by a selection of themed stories, with ideas for sensory activities to support each one. In addition to guides for Namaste Care sessions, the book provides a starting point for writing your own stories tailored to the person for whom you are caring.Inspiring creativity and confidence in delivering Namaste Care, the activities provide valuable guidance in caring for and improving the lives of people with advanced dementia.Table of ContentsForeword by Rishi Jawahar- Director of Namaste Care International1.IntroductionSECTION 1-Inspiring creativity in Namaste Care 2.Namaste Care3.Sensory Stimulation4.Sensory Storytelling5.Cultural Diversity and the Namaste Care Approach- Colette O'Driscoll, St Joseph's Hospice and Lourdes Colclough, Marie Curie6.The Art of DyingSECTION 2- Supporting sensory approaches7.Safe use of essential oils- Andrea Lambell, PHD student, Durham University8.Therapeutic use of light- the Enlighten Project- Paul Chazot, Durham University9.A trip down memory lane through taste- Michele Kinleysides, Beamish Museum10.Connecting through touch- Susannah Thwaites, Occupational Therapist11.The universal joy of music- Richard Langdon, Namaste Care Volunteer12.Encouraging movement and exercise activities as dementia progresses- Magda Pasak, Physiotherapist, St Cuthbert's Hospice, DurhamSECTION 3- Sensory Stories and ActivitiesConclusionRecommended suppliersBibliography

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Book SynopsisAlice is becoming more and more forgetful. Her daughter Mandy is always on hand to help out, but is starting to feel the strain. One day a long-forgotten photograph stirs a memory and lures Alice back to the Crown Hotel in Blackpool, where she hopes for the chance to dance in the tower ballroom one last time. But when mother and daughter reach Blackpool, nothing is quite how Alice remembers, and she finds herself getting lost in the past. One Last Waltz is a beautifully written portrayal of a family coming to terms with complications caused by Alzheimer's disease. By turns sparkling with wit and heart-wrenching in its honesty, it's filled with vital and compassionate insight into the sufferings accompanying a disease that has blighted the landscape for so many.

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Book SynopsisPeople with dementia have often played a passive role in the investigation of their condition. The contributors to this book look at ways of redressing the balance and involving them in the research process. They describe the skills that researchers and care staff need, and the methods they can use, when seeking to draw out and validate the views of people with dementia successfully, and discuss the ways in which such views can be included in debates about dementia methodology and policy.The book focuses on a number of projects which have taken different approaches to working with people with dementia in research, including a chapter examining the difficult process of interviewing people with dementia whose first language is not English and a chapter describing a project which encourages people with dementia to participate in the analysis of the research findings. This varied and innovative book will help those in the fields of health and social policy, dementia research and dementia care to hear the voices of people with dementia more clearly, and to include their opinions more effectively in the provision of services.Trade ReviewThis book is an achievement with which all concerned should be justifiably proud. It will be utilized by many health care professionals to enhance their knowledge and understanding. -- SignpostIf you are about to embark on a piece of research that involves people with dementia in any way, this book …would provide helpful signposts, warnings and practical advice. -- Ageing and SocietyThis book contains a wealth of ideas that will greatly assist anyone designing research that aims to understand the perspectives of people with dementia and to involve them in the research process. It will also be of value to service providers engaged in projects to involve people with dementia in service planning and development. -- Cambridge University PressThis book breaks new ground in bringing together a range of well respected researchers, who have experience in research with people with Dementia... This is a potent and thought provoking book which should be essential reading for any person contemplating healt or social care research with people with dementia. It is accessible and easy to read and provides us with many of the clues we need if we are able to make emancipatory research a reality. -- Research Policy and Planning JournalThis book describes the "double jeopardy" of elderly people with dementia, who suffer by being both old and cognitively impaired... The ethical issues of including people with dementia in participatory research are extremly well covered... As a research interviewer I found the discussion of informed consent interesting and useful and endorse the need for clearer guidelines in this area. Professionals working with older people will find this book helpful and challenging as they develop services and research that seeks a more inclusive role for clients with dementia and their carers. -- International Journal of Geriatric PsychiatryIt is only relatively recently that the perspectives of the person with dementia has been actively sought, and there is still a considerable way to go. This edited volume brings together a range of reflective contributions from some of the researchers who are currently grappling with this issue... The range of contributions demonstrates the extent of the innovative and creative work that is currently being under-taken in this area, and the way in which this is stimulating reflection and the development of new approaches. -- The Journal of Dementia CareThis book looks set to be a constant and crucial companion to those involved in dementia research but could be more widely used by those undertaking consultation and participation projects. It offers an excellent overview of ethical and practical issues, which consent figuring largely as an issue which may prevent people with dementia from participation as much as protect them from undesired intrusion. -- The British Journal of Social WorkWhat leaps from the page is how positively people living with the diagnosis of dementia can experience contributing to research. The opportunity to speak about what is happening to them is clearly therapeutic, and, shamefully rare. -- Community CareThis book is a useful contribution to our understanding of very complex issues. -- Mental Health TodayTable of ContentsPart I: Ethical and practical issues of involvement. 1. Introduction: Including people with dementia in research: Methods and motivation, Heather Wilkinson, University of Stirling 2. Getting down to brass tacks: a discussion of data collection with people with dementia, Charlotte L. Clarke, University of Northumbria at Newcastle and John Keady, University of Wales. 3. Ethical issues in dementia care research, Helen Bartlett and Wendy Martin, Oxford Dementia Centre, Oxford Brookes University. 4. Including the perspectives of older people in institutional care during the consent process, Gill Hubbard, University of Stirling, Murna Downs, Bradford University and Susan Tester, University of Stirling. 5. Including people with dementia: advisory networks and user panels, Lynne Corner, University of Newcastle. Part II: The views of people with dementia. 6. Should people with Alzheimer's Disease take part in research? Elaine Robinson. 7. Did research alter anything? James McKillop. Part III: Methods and motivations. 8. Working with staff to include people with dementia in research, Kate Allan, University of Stirling. 9. Successes and challenges in using focus groups with older people with dementia, Claire Bamford, University of Newcastle with Errollyn Bruce, Bradford Dementia Group. 10. 'Nobody's ever asked how I felt', Rebekah Pratt, University of Stirling. 11. Don't leave me hanging on the telephone: Interviews with people with dementia using the telephone, Anne Mason, University of Stirling and Heather Wilkinson, University of Stirling. 12. Using video observation to include the experiences of people with dementia in research, Ailsa Cook, University of Stirling. 13. South Asian people with dementia: Research issues, Alison M. Bowes, University of Stirling and Heather Wilkinson, University of Stirling. References. Index.

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