Medicolegal issues Books

Book SynopsisIs there a crisis in Canadian health care? This book provides a concise introduction to the fundamentals of health care in Canada and examine various ideas for reforming the system sensibly.Table of ContentsForewordPreface1 Declining Public Confidence in Canada’s Health Care System2 What is Public and What is Private?3 Memes and Myths4 Canaries in the Mine: Waiting for Care5 Closer to Home and Out of Pocket: Shifting Sites of Care6 The Future: Rigid, Resilient, or Retail Reform ChoicesEndnotesIndex

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Book SynopsisIn Carefair, Paul Kershaw urges us to resist this private/public distinction, and makes a convincing case for treating caregiving as a matter of citizenship that obliges and empowers everyone in society.Trade ReviewThis is a book well worth reading. It squarely addresses a policy issue that is fundamental to the pursuit of quality and equity, it is theoretically engaged while making concrete policy proposals, and it is closely argued ... That stated, Carefair is an important and stimulating book. It should be widely read. -- Hugh Armstrong, Carleton University * Canadian Journal of Sociology Online, July-August 2006 *Table of ContentsContents Acknowledgments 1 Lamenting the Lazy Lavatory Syndrome: Political Theory, Policy,and Civic Virtue 2 The American ExpressTM Model of Citizenship: The Social LiberalTradition 3 The Celebrated Idiot: The Obliged Citizen 4 The Idiot’s Acumen 5 Premature Celebration 6 Private Time for Social Inclusion 7 Carefair 8 The Politics of Time 9 From LEGOTM to Teeter-Totter: Social Investment in Work-LifeBalance Notes References Index

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Book SynopsisIn Carefair, Paul Kershaw urges us to resist this private/public distinction, and makes a convincing case for treating caregiving as a matter of citizenship that obliges and empowers everyone in society.Trade ReviewThis is a book well worth reading. It squarely addresses a policy issue that is fundamental to the pursuit of quality and equity, it is theoretically engaged while making concrete policy proposals, and it is closely argued ... That stated, Carefair is an important and stimulating book. It should be widely read. -- Hugh Armstrong, Carleton University * Canadian Journal of Sociology Online, July-August 2006 *Table of ContentsContents Acknowledgments 1 Lamenting the Lazy Lavatory Syndrome: Political Theory, Policy,and Civic Virtue 2 The American ExpressTM Model of Citizenship: The Social LiberalTradition 3 The Celebrated Idiot: The Obliged Citizen 4 The Idiot’s Acumen 5 Premature Celebration 6 Private Time for Social Inclusion 7 Carefair 8 The Politics of Time 9 From LEGOTM to Teeter-Totter: Social Investment in Work-LifeBalance Notes References Index

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Book SynopsisFor decades, manufacturers from around the world relied on asbestos to produce a multitude of fire-retardant products. As use of the mineral became more widespread, medical professionals discovered it had harmful effects on human health. Mining and manufacturing companies downplayed the risks to workers and the general public, but eventually, as the devastating nature of asbestos-related deaths became common knowledge, the industry suffered terminal decline. A Town Called Asbestos looks at how the people of Asbestos, Quebec, worked and lived alongside the largest chrysotile asbestos mine in the world. Dependent on this deadly industry for their community's survival, they developed a unique, place-based understanding of their local environment; the risks they faced living next to the giant opencast mine; and their place within the global resource trade. This book unearths the local-global tensions that defined Asbestos's proud history and reveals the challenges similar resourceTrade ReviewA Town Called Asbestos is a crisp narrative that documents something close to manslaughter. If economic necessity saw mill employees literally work themselves to death, the recklessness of insurers and regulators remains inexplicable. -- Holly Doan * Blacklock’s Reporter *For those interested in the history of Asbestos, Quebec, this is the book to read. Thoroughly researched in the archives -- its is, after all, based on a doctoral dissertation -- A Town Called Asbestos situates this particular town within a broader context of resource communities. It also raises some important questions, not only about the survival of communities reliant upon a single major employer but also regarding our federal government's willingness to use its positive international profile to market a hazardous product to developing nations. Read this book and feel the author's moral outrage. -- Ryan O'Connor, a writer, a historical consultant, and the author of the J.J. Talman Award-winning The First Green Wave: Pollution Probe and the Origins of Environmental Activism in Ontario (UBC Press) * Canada's History, Vol. 97 No. 1 *...a fascinating and, at times, disturbing history of a Canadian mining industry’s incredible rise and devastating collapse. This history elucidates the complex relationships humans have with the physical (natural and industrial) environments around them and how individuals and communities create, nurture, and defend their sense of place...It is a vital contribution to our knowledge of Canadian natural resource industries and the people who made their collection possible. -- Elizabeth L. Jewett * American Review of Canadian Studies, Issue 46.4, December 2016 *Painstakingly researched with a compelling writing style, A Town Called Asbestos fulfills the promise of recent U.S. environmental histories that integrated histories of labour, public health, and environmental change into a single narrative. It is essential reading for anyone interested in labour, industrial or environmental history, or any person who wants to know why a deadly substance may persist behind the walls where they live and work. -- John Sandlos * Scientia Canadensis *In the middle of the environmental, medical, and political histories, van Horssen challenges and adds nuance to the existing historical narrative of the 1949 strike in Asbestos … She places it back within its local historical milieu showing how the strike arose in response to a confluence of grievances about local politics, health issues, and community relations. -- Robynne Mellor, Georgetown University * Labour / Le Travail *Table of ContentsForeword: The Long Dying / Graeme WynnIntroduction: Introducing Asbestos1 Creation Stories: Asbestos before 19182 Land with a Future, Not a Past, 1918–493 Negotiating Risk, 1918–494 Essential Characteristics, 1918–495 Bodies Collide: The Strike of 19496 “Une ville qui se deplace,” 1949–837 Useful Tools, 1949–838 Altered Authority, 1949–83Conclusion: Surviving Collapse: Asbestos Post-1983Notes; Bibliography; Index

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Book SynopsisThis intoxicating look at the history of drug regulation in Canada reveals how a variety of social and political forces converged at the turn of the twentieth century to transform both public attitudes toward, and access to, narcotics.Trade ReviewIn Malleck’s brilliant account we can see how commercial interests both combined and competed with professionals and sellers to influence Canada’s drug laws … As Canadians debate how marijuana should be designated—legal or illegal, medicine or recreational drug or both—Malleck provides a fascinating description of a similar journey taken by pain medications such as opium and cocaine at the beginning of the last century. His book provides a useful history to help us navigate today’s discussions about who should grow and sell safe and affordable marijuana. -- Colleen Fuller, a researcher and writer focused on health and pharmaceutical policy * Alberta Views *Malleck’s extensive use of primary sources convincingly establishes this context and describes the dominant origin story of Canada’s drug laws that has not frequently been told. -- Noah Wernikowski * Saskatchewan Law Review *Malleck vividly depicts how sensationalism, misunderstanding, and the threat to the practise of medicine fuelled the new concept of addiction distinct from insanity and moral depravity. Malleck’s scouring of all available records provides a rich understanding of how the social and cultural factors surrounding opium in Canada set the stage for the moral debate over drug use … His thorough analysis and ability to draw on a mountain of records to seamlessly tell the story provides the reader with a new found appreciation of the complex development of drug legislation in the modern era. -- Joel Rudewicz * Active History *[A] close study of how doctors, pharmacists, bureaucrats, and policy-makers wrestled over the control of opiates in the decades leading to the first Opium Act of 1908 … When Good Drugs Go Bad will be of interest to scholars exploring the history of drugs and their regulation while also adding to our understanding of state formation and professionalization during the nineteenth century. Its multi-regional focus on Quebec, Ontario, and British Columbia serves to nationalize these issues. Malleck also addresses and critically challenges the association in British Columbia between anti-Chinese sentiments and opium that, he argues, has distorted events by insisting that the Opium Act was a reaction to racial tensions. Instead, by broadening the regional lens, Malleck shifts the story to a contest over professional authority. -- Erika Dyck * BC Studies *When Good Drugs Go Bad deepens our understanding of the connections that could be so easily drawn between the body, race, medicine and the nation in early twentieth century Canada. -- Yvan Prkachin, Harvard University * Left History, Vol. 21 No. 1, Spring-Summer 2016 *[When Good Drugs Go Bad] is a well-written and well-researched book… Readers will learn much about the “awesome, awe-inspiring, and awful substance” that was opium... Readers may also find that Malleck’s discussion of “danger” and addiction fears with this drug in the nineteenth and early twentieth centuries resonates with today’s opioid debates. -- Shelley McKellar, University of Western Ontario * Pharmacy in History, Vol 60, No 3 *Table of ContentsIntroduction: Its Baneful Influences1 Medicating Canada before Regulation2 Opium in Nineteenth-Century Medical Knowledge3 Canada’s First Drug Laws4 Chinese Opium Smoking and Threats to the Nation5 Medicine, Addiction, and Ideas of Nation6 Madness and Addiction in the Asylums of English Canada7 Proprietary Medicines and the Nation’s Health8 Regulating Proprietary Medicine9 Drug Laws and the Creation of IllegalityConclusion: Baneful InfluencesNotes; Bibliography; Index

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Book SynopsisSince the introduction of the Canadian Charter of Rights and Freedoms in 1982, individuals and organizations have increasingly turned to the courts to try to bring about policy change in areas such as health care. Health Care and the Charter explores the systematic use of Charter litigation in the area of health care and the ultimate policy impact of the resulting judicial decisions. Christopher P. Manfredi and Antonia Maioni examine three of the most controversial Supreme Court decisions in recent years. Eldridge (1997) and Auton (2004) invited the Court to extend the scope of publicly funded services, while Chaouilli (2005) asked the Court to allow private health services. This book explores the paths that brought litigants to the Court, the arguments and evidence they mustered to support their positions, and the substance of the victory or defeat the Court provided them. The volume then assesses the ultimate impact of these cases in both Table of ContentsIntroductionThe Supreme Court and Health Policy: An OverviewEldridge v British Columbia: Effective Communication and the Sounds of SilenceAuton v British Columbia: Reversal of FortuneChaoulli v Quebec: The Last Line of Defence for CitizensConclusionNotes; Bibliography; Cases Cited; Index

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Book SynopsisThis volume highlights abortion experiences in the post-Morgentaler era and links new approaches to abortion history and research to the growing movement for reproductive justice.Trade ReviewAbortion is unique in that it ties together the perspectives of scholars in history, politics, and law, as opposed to other compilations that focus on works from one particular field, echoing the intersectionality of modern day reproductive justice framework. -- Megan Siu, Community Developer & Educational Specialist Centre, CPLEA * Canadian Law Library Review *[…][i]n 2019 it is ever more evident that a broader concept of reproductive justice is one that encompasses not only our reproductive health but legal, social and economic justice as well. This book helps move us in that direction. -- Amanda Le Rougetel * Herizons *Table of ContentsIntroduction / Shannon Stettner, Kristin Burnett, and Travis HayPart 1: History1 Different Histories: Reproduction, Colonialism, and Treaty 7 Communities in Southern Alberta, 1880–1940 / Kristin Burnett2 Not Guilty but Guilty? Race, Rumour, and Respectability in the 1882 Abortion Trial of Letitia Munson / Rebecca Beausaert3 Abortion and Birth Control on the Canadian Prairies: Feminists, Catholics, and Family Values in the 1970s / Erika DyckPart 2: Experience4 He Is Still Unwanted: Women’s Assertions of Authority over Abortion in Letters to the Royal Commission on the Status of Women in Canada / Shannon Stettner5 Abortion on Trial: Abortion Tribunals in the 1970s and 1980s / Beth Palmer6 The Dark, Well-Kept Secret: Abortion Experiences in the Maritime Provinces / Katrina Ackerman7 When Research Is Personal and Political: Researchers Reflect on the Study of Abortion / Marion Doull, Christabelle Sethna, Evelyne Morrissette, and Caitlin ScottPart 3: Politics8 Functionally Inaccessible: Historical Conflicts in Legal and Medical Access to Abortion / Frances E. Chapman and Tracy Penny Light9 Morgentaler and the Technological Production of Embodiment / Jen Rinaldi10 Between a Woman and Her Doctor? The Medicalization of Abortion Politics in Canada / Rachael Johnstone11 Subverting the Constitution: Anti-abortion Policies and Activism in the United States and Canada / Lori Brown, J. Shoshanna Ehrlich, and Colleen MacQuarriePart 4: Discourse and Reproductive Justice12 The Future of Pro-choice Discourse in Canada / Kelly Gordon and Paul Saurette13 Reproductive Justice in Canada: Exploring Immigrant Women’s Experiences / Laura Salamanca14 Toxic Matters: Vital and Material Struggles for Environmental Reproductive Justice / Sarah Marie WiebeConclusion / Kristin Burnett and Shannon Stettner

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Book SynopsisWhy, in the recent campaigns for universal health care, did organized labor maintain its support of employer-mandated insurance? Did labor's weakened condition prevent it from endorsing national health insurance? Marie Gottschalk demonstrates here...Trade ReviewAn explosively important book.... Marie Gottschalk's marvelous book... relieves us of the need to conjecture and hypothesize in trying to make sense of the little that we really knew of what was going on at the highest levels of the AFL-CIO ten years ago. She lifts the veil and at last we can all understand—and share in—the anger of those courageous union leaders within the federation who steadfastly stood firm for a universal, single-payer system of health care.... The working rank-and-file will ignore this book at their own peril. * The Harbinger *Gottschalk has written an incisive analysis of the failure of President Clinton's health reform proposal... Her account provides superior perspective on the debacle, because it roots the debate about employment-based health insurance plans in developments in labor-management relations and in the accommodation of leading Democrats to the business agenda that surged to the fore in the 1970s and 1980s. The book is written with verve and theoretical sophistication. * Industrial and Labor Relations Review *Gottschalk provides a thorough analysis of the political climate in which organized labor must operate. * Boston Book Review *In The Shadow Welfare State, Marie Gottschalk recounts labor's half century-long fight for decent health care coverage through both collective bargaining and political action. More than most writers, she brings these two sides of the coin together to analyze both the fragility of the private welfare state, even for those who are covered by it, and the closely related political weakness of labor in the U.S. * Labor Notes *Several solid studies of the failure of the Clinton health reform campaign of the early '90s attempt to assess the role of all the key players. Gottschalk, a University of Pennsylvania political scientist, focuses on the interaction of labor and business in that debate.... A cogent, provocative analysis of a particular battle that also raises larger questions for the future. * Booklist *This very well written and engaging book touches myriad issues in the history of labor, social democracy, and American political institutions.... All labor scholars will find her book a rich source of analysis and information on a wide variety of topics. * RI/IR, *

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Book SynopsisHow has France assure universal coverage while protecting patient and practitioner freedoms? What can Americans learn from the French experience, and what can the French learn from the U.S. example?Trade Review"The health care systems of France and the United States began the 20th century looking very much alike, then gradually moved in different directions while retaining a surprising number of common features. Dutton believes that both countries would benefit from taking a careful look at their similarities and differences. Both systems utilize a public/private mix of financing, maintain the fee-for-service basis for physician reimbursement, and hold out the ideals of physician practice autonomy and patient choice of doctor. Dutton says that the United States is almost inadvertently expanding coverage but with little planning; at the same time, the French are adapting U.S. managed-care techniques in an attempt to keep down costs and improve efficiency in a system already offering universal coverage. . . . This distinctive, readable, and well-organized history is recommended for public and academic libraries, especially where health-care reform is a hot topic."—Library Journal"In Differential Diagnoses Paul V. Dutton tells the story of two nations over the course of an entire century. This remarkable book is one part history, one part policy analysis, and it is held together by strong conceptual glue. Differential Diagnoses is distinguished by Dutton's smooth, jargon-free writing, its accessibility, its richness of anecdote, its blending of original archival research with synthetic research drawn from several disciplines, and its timely and level-headed diagnosis and prescriptions for change."—Timothy B. Smith, Queen's University"Paul Dutton exhibits superb scholarship and insight on the evolution of health care financing and organization in France and the United States. His lucid book demonstrates that France's health system is more relevant for the United States than the health systems of the usual suspects—Canada, Germany, and Britain. It should be read by all health policy analysts, scholars, and social reformers who are searching for ways to achieve universal health insurance coverage in the United States."—Victor G. Rodwin, Professor of Health Policy and Management, Wagner/NYU; and Director, World Cities Project, International Longevity Center-USA"By first exposing the stereotypes and then carefully exploring the distinct histories of health care provision in the United States and France, Paul Dutton provides unique and valuable insight into how both countries can better address their respective health crises."—Jeremy Shapiro, Fellow and Director of Research, Center on the United States and Europe, The Brookings Institution

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Book SynopsisSince the first fertilization of a human egg in the laboratory in 1968, scientific and technological breakthroughs have raised ethical dilemmas and generated policy controversies on both sides of the Atlantic. Embryo, stem cell, and cloning research have provoked impassioned political debate about their religious, moral, legal, and practical implications. National governments make rules that govern the creation, destruction, and use of embryos in the laboratorybut they do so in profoundly different ways.In Embryo Politics, Thomas Banchoff provides a comprehensive overview of political struggles about embryo research during four decades in four countriesthe United States, the United Kingdom, Germany, and France. Banchoff's book, the first of its kind, demonstrates the impact of particular national histories and institutions on very different patterns of national governance. Over time, he argues, partisan debate and religious-secular polarization have come to overshadow ethicalTrade ReviewAs Thomas Banchoff notes in Embryo Politics, 'the human embryo only slowly emerged as an object of ethical controversy.' This lucid and well-written book relates a comparative history of this controversy in the United States, United Kingdom, Germany, and France. -- Simon Cole * Technology and Culture *Banchoff does not fall prey to the allures of science fiction and he avoids sensationalism, but his book is sensational. It is an exciting read and should generate a great deal of public interest because it sets out with clarity the many strands, both ethical and political, that make up in vitro fertilization (IVF), stem cell research and cloning. -- Gail Grossman Freyne * Conscience *Banchoff's historical outline of these debates over embryo research and use is accurate and engaging, showing clearly how the different political backgrounds against which they took place shaped their later contours. He also addresses the difficult moral questions surrounding the moral status of embryos, how the law should respond to this status, and how these questions intersect with the need for biomedical progress where such 'progress depends on research on embryos. This is a very clear, well-written, engaging volume, and one that could be read with profit and interest by anyone curious about what is one of the most pressing debates of the moment. Summing Up: Highly recommended for all readership levels. * Choice *Table of ContentsIntroduction 1. The Emergence of Ethical Controversy 2. First Embryo Research Regimes 3. The Ethics of Embryonic Stem Cell Research 4. Stem Cell and Cloning Politics ConclusionBibliography Index

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Book SynopsisIn America's Welfare State, Edward Berkowitz offers a concise and informative historical overview of this costly and often frustrating area of domestic policy.Trade ReviewReaders of America's Welfare State will derive an excellent understanding of the complexity surrounding social welfare in the late 20th-century US. Upper-division undergraduates and above. Choice Useful for scholars and students both for its insights into the policy-making process and for its account of how American social policy arrived at the sorry state we find it in today. -- Jeffrey L. Davidson Contemporary Sociology A remarkably successful book... powerfully written and clearly of interest to scholars and policy experts alike. -- Ellis W. Hawley Labor History Berkowitz has gone behind the written statute and the official press release to find out who believed what and who did what to effect changes in the process and substantive aspects of welfare statism. This book is a worthy addition to the literature. -- Robert J. Lampman Industrial and Labor Relations ReviewTable of ContentsSeries Editor's ForewordPrefaceAcknowledgmentsChapter 1. IntroductionPart I. The Social Security CrisisChapter 2. Inventing Social Security, 1935Chapter 3. The Triump of Social Security, 1936-1954Chapter 4. The Day of ReckoningPart II. The Frustrations of Welfare ReformChapter 5. Welfare's State, 1935-1967Chapter 6. Welfare Restated, 1967-1988Part III. The Mirage of National Health InsuranceChapter 7. Medicare and Health Policy, 1935-1989Part IV. ConclusionChapter 8. Long-Term Care of the Welfare StateA Note on the SourcesIndex

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Book SynopsisBinstock Ethical Issues in Long-Term Care Nancy Neveloff Dubler American Culture and Long-Term Care Otto von Mering Forecasting the Future of Long-Term Care Dennis L. KodnerTrade ReviewThis wide-ranging book discusses the history, problem, and future prospects of long-term care in America. Inspired by the 1992 National Health Forum held at the University of Florica and edited by an interdisciplinary team from medicine (Cluff), anthropology (von Mering), and social gerontology (Binstock), it contains chapters by 15 authors who represent the diverse fields of history, ethics, social welfare, nursing, health policy, and health-care administration... Unlike so much literature in gerontology, the book is clear, straightforward, and well focused on practical issues, while maintaining a high standard of scholarship throughout. Both academics and service professionals will find it extremely useful. -- Else M. Kiefer Health Progress This book considers long-term care in the United States in a variety of contexts including accessability, needs assessment, and affected populations. The authors examine the history and evolution of long-term care through to the present and speculate about the future, asking questions such as what will future nursing home care entail, and what role will economic, political, and cultural factors play? Hastings Center Report The Future of Long-Term Care... is the product of the first National Health Forum held at the University of Florida in 1992. The book examines the developments that have brought long-term care to the fore as an area of substantial concern, as well as the factors that will likely make it even more pressing in the future. The book includes chapters written by a distinguished panel of gerontologists and health policy experts. Aging Network News Provides a broad view of the history of long-term care policies and programmes in the United States, highlights current issues, and assesses future prospects... this is a readable, well-referenced volume which presents a useful overview of LTC issues and policy perspectives. Ageing and SocietyTable of ContentsList of ContributorsPrefacePart I: Overview and History of the IssuesChapter 1. Issues Affecting the Future of Long-Term CareChapter 2. The Evolution of Long-Term Care in AmericaPart II: Populations Needing Care and Issues of Providing CareChapter 3. Older People, Dependency, and Trends in Supportive CareChapter 4. Trends Among Younger Persons with Disability of Chronic DiseaseChapter 5. The Role of Technology in Long-Term Care Chapter 6. Challenges in Providing Care for Persons with Complex Chronic IllnessPart III: Exploring the Future of Settings for CareChapter 7. The Evolution of the American Nursing HomeChapter 8. Care in the Home and Other Community Settings: Present and FuturePart IV: Social and Policy IssuesChapter 9. The Financing and Organization of Long-Term CareChapter 10. The Politics of Enacting Long-Term Care InsuranceChapter 11. Reflections on Some Ethical Issues in Long-Term CareChapter 12. American Culture and Long-Term CareEpilogueChapter 13. Foreseeing the Future of Long-Term Care: The Highlights and Implications of a Delphi StudyIndex

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Book SynopsisIn addition Malaria: Poverty, Race, and Public Health in the United States argues that malaria control was central to the evolution of local and federal intervention in public health, and demonstrates the complex interaction between poverty, race, and geography in determining the fate of malaria.Trade ReviewThis is a fresh (and plausible) explanation for the disappearance of another southern germ of laziness, and it is presented in a study that does a fine job of packaging its findings within a richly documented historical context. -- Kenneth F. Kiple Journal of Southern History Margaret Humphrey's monograph on malaria in America has a strong storyline and a well-articulated thesis. It combines modern knowledge of malaria transmission and the genetic basis of resistance with a sound appreciation of the social, geographical and cultural nuances of the disease in American history. -- W.F. Bynum Times Literary Supplement A fascinating story of the spread of malaria through the USA following its introduction in the 17th century, through its greatest geographical coverage in the 19th century. -- Allan Saul Nature Medicine The main purpose of this book is to carry out an in-depth dialogue on the mystery of malaria and its existence in some parts of the world and disappearance in another based on the historical facts... The insight that [this] history provides has enormous value for global health. Doody's Health Sciences Review [ Malaria] is a masterpiece and is recommended reading for anyone involved in or interested in health care. -- Ronald C.HamdyMDFRCPFACP Southern Medical Journal A complex and fascinating story of the social history of malaria. -- Elizabeth Fee American Historical Review Gracefully written, perceptive, and well-documented, it will make historians of medicine, public health, and the social history of the American South grateful for her efforts. Medical History The lack of jargon makes the book accessible to a wide audience. -- Leo B. Slater, PhD Journal of the History of Medicine 2005 Accessible to a wide audience. A great breadth and depth of research underpins each chapter. -- Leo B. Slater Journal of the History of Medicine 2006Table of ContentsAcknowledgmentsIntroductionChapter 1. The Pestilence That Stalks in DarknessChapter 2. The Mist Rises: Malaria in the Nineteenth CenturyChapter 3. Race, Poverty, and PlaceChapter 4. Making Malaria Control ProfitableChapter 5. "A Ditch in Time Saves Quinine?"Chapter 6. Popular Perceptions of Health, Disease, and MalariaChapter 7. DenouementNotesNotes on SourcesIndex

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Book SynopsisAssisted Living: Needs, Practices, and Policies in Residential Care for the Elderly brings together a group of nationally recognized experts to help define the types of residential care that should be encouraged and sets guidelines for selecting an appropriate type of facility.Trade ReviewThis study is the largest, most comprehensive study of residential care/assisted living ever undertaken. -- Georg Gottschalk Housing Studies The most comprehensive study of RC/AL ever undertaken... Policy makers, educators, advocates, and service providers along the continuum of care for older adults will find this work impressive. -- Susan Daggett Inside GCMTable of ContentsContents: Foreword, M. Powell Lawton Preface List of Contributors Introduction, Catherine Hawes Part I. Key Topics in Assisted Living 1. State Policy and Regulations, Robert L. Mollica 2. Residential Care/Assisted Living in the Changing Health Care Environment, Michael A. Nolin and Robert L. Mollica 3. Creating a Therapeutic Environment: Lessons from Northern European Models, Victor A. Regnier and Anne Copeland Scot t4. Staffing Problems and Strategies in Assisted Living, R. Tamara Hodlewsky 5. African American Use of Residential Care in North Carolina, Elizabeth J. Mutran, S. Sudha, Peter Reed, Manoj Menon, and Tejas Desai Part II. Diversity in Profile: Assisted Living in Four States 6. An Overview of the Collaborative Studies of Long-Term Care, Sheryl Zimmerman, Philip D. Sloane, J. Kevin Eckert, Verita Custis Buie, Joan F. Walsh, Gary Grove Koch, and J. Richard Hebel 7. Resident Characteristics, Leslie A. Morgan, Ann L. Gruber-Baldini, and Jay Magaziner 8. The Physical Environment, Philip D. Sloane and Sheryl Zimmerman 9. The Process of Care, Sheryl Zimmerman, J. Kevin Eckert, and Judith B. Wildfire 10. Aging in Place, Shulamit L. Bernard, Sheryl Zimmerman, and J. Kevin Eckert 11. Care for Persons with Dementia, Philip D. Sloane, Sheryl Zimmerman, and Marcia G. Ory 12. Economics and Financing, Sally C. Stearns and Leslie A. Morgan 13. Connectedness in Residential Care: A Qualitative Perspective, J. Kevin Eckert, Sheryl Zimmerman, and Leslie A. Morgan Part III. Future Directions in Assisted Living Emerging Issues in Residential Care/Assisted Living, Sheryl Zimmerman, Philip D. Sloane, and J. Kevin Eckert Index

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Book SynopsisBioethics in a Liberal Society is essential reading for all those interested in understanding how bioethics is practiced within our society.Trade ReviewMay's book is a helpful overview and introduction to the political framework of bioethics decision making within a liberal society. It touches explicitly on the issues of perceived and actual lack of competence, substituted decision making, advanced directives and the important roles of ethics committees and consultants. There is no doubt that this book marks an important contribution to the literature. -- Christopher Newell, Ph.D. MetapsychologyTable of ContentsContents: Preface Acknowledgments 1 Introduction: The Liberal Framework I Patient Autonomy 2 Patient Autonomy and Informed Consent 3 Patient Responsibility for Decision Making 4 Advance Directives: Extending Autonomy for Patients II Professional Rights of Conscience 5 Beneficence, Abandonment, and the Duty to Treat 6 Rights of Conscience in the Physician-Patient Relationship 7 Conclusion: Health Care Ethics Committees and Consultants in a Liberal Framework References Index

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Book SynopsisPresenting a wide array of perspectives, this book emphasizes the need to ensure that research into genetics research does not result in discrimination against people on the basis of their DNA.Trade ReviewBringing the concerns of different communities together in a single volume makes it possible to appreciate the mosaic of human issues more fully and forces us to anticipate the challenges that may arise-and that will require our attention-as the genetic revolution proceeds... A much needed antidote to the current genetic hoopla. -- Doris Teichler Zallen Journal of the American Medical Association A cautious look at the effects of genetic discoveries on society... The issues raised by this book are valid, and all scientists should be aware of them. I often found myself nodding in agreement. -- Jeffrey C. Long New England Journal of Medicine The authors present several thought-provoking issues in regard to prenatal genetic screening and selective abortion. It's a great contribution to the field. -- Fernando I. Rivera Contemporary Sociology This book superbly and successfully fills its purpose-to show the need for dialogue between researchers, health care professionals, communities, and individuals regarding various aspects of genetic technology. Choice 2003

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Book SynopsisIncorporating more than a decade of extensive research, Women under the Influence will help women, health care professionals, educators, and policy makers understand the scope of substance abuse in girls and women, the urgency of responding to the problem, the key points of intervention, and potential roads to recovery.Trade ReviewAn excellent starting point for patrons researching the topic, as it examines substance abuse in women of all ages. Library Journal 2006 The first of its kind and the product of 10 years of research. Southern Review of Books Thoughtfully examines the myriad factors that enhance vulnerability to substance-abuse problems across the life span and the unique challenges of life-stage transitions in women. New England Journal of Medicine 2006 This readable and useful treatise wil be a valuable resource on substance abuse for readers in a variety of disciplines. Choice 2006Table of ContentsForeword1. Pathways to Substance Abuse among Girls and Women2. Women and Smoking3. Women and Alcohol4. Women and Prescription and Illicit Drugs5. Pregnancy and Substance Abuse6. Getting Over the influence7. prevention and Policy Opportunities across the Life SpamAcknowledgmentsAppendix: ResourcesNotesIndex

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Book SynopsisThis original and progressive work affirms the urgent need for child advocacy and provides valuable guidance to those seeking to participate in efforts to help all children live healthier, happier lives.Trade ReviewDr. Palfrey presents a well-designed, articulate description of the political climate surrounding pediatric health care... Pediatric clinicians, politicians, students, and practitioners of health policy will be well-served by a read of this text to best understand what tools and information are needed. -- Bryan R. Fine, MD, MPH JAMA 2007 A must read if you are at all serious about health advocacy for children... thank you Judith Palfrey. Thank you for not shying away from the difficult issues, thank you for bringing it all together, and thank you for creating a must-read text... I am a better child health advocate after having read this book. -- George L. Askew, MD, FAAP Ambulatory Pediatrics 2007Table of ContentsAcknowledgmentsIntroduction1. Child Health Advocacy2. A History of Child Health Advocacy3. The Current Status of Child Health4. Clinical Advocacy5. Group Advocacy6. Legislative Advocacy7. Professional Advocacy8. Political WillAppendix: Resources OnlineNotesIndex

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Book SynopsisConcluding with a cautionary call for increased regulation, Reprogenetics introduces fact, history, and reason into a public discussion of complex and vexing issues.Trade ReviewAn essential reference, this also will extend into classroom discussion and debates. Midwest Book Review 2007 A useful addition to the library of anyone interested in reprogenetics and particularly the future of legislation and policy on research and application of reprogenetic technology. -- Constance Perry, Ph.D. Metapsychology 2008Table of ContentsList of ContributorsPrefacePart I: The Historical and Regulatory LandscapeChapter 1. On Drawing Lessons from the History of EugenicsChapter 2. Governmental Regulation of Genetic Technology, and the Lessons LearnedChapter 3. Oversight of Assisted Reproductive Technologies: The Last Twenty YearsPart II: Ethical Issues in ReprogeneticsChapter 4. Market Transactions in Reprogenetics: A Case for RegulationChapter 5. Stem Cells, Clones, Consensus, and the LawPart III: International Regulation of Reprogenetics Chapter 6. The Governance of Reprogenetic Technology: International ModelsChapter 7. Regulating Reprogenetics in the United KingdomChapter 8. The Evolution of Public Policy on Reprogenetics in CanadaPart IV: Regulating Reprogenetics in the United StatesChapter 9. A Brief History of Public Debate about Reproductive Technologies: Politics and CommissionsChapter 10. Possible Policy Strategies for the United States: Comparative LessonsChapter 11. The Development of Reprogenetic Policy and Practice in the United States: Looking to the United KingdomChapter 12. Reprogenetics and Public Policy: Reflections and RecommendationsIndex

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Book SynopsisThis work's insights into the nature and consequences of medical innovation contribute to the national debate on how best to protect patients while fostering innovation and securing benefits.Trade ReviewA captivating read for just about any thoughtful person, Innovation in Medical Technology could serve as an effective springboard for lively teaching sessions in a medical school or residency program, or as a provocative introduction to a course in medical ethics. -- Richard M. Stillman JAMA 2007 This volume serves as an introduction to legal and ethical issues that emerge from medical technological innovation, and to the boundary issues between medical research and clinical practice. It includes policy suggestions for regulation in this gray zone of practice between clinical care and research, as well as a short history of human subjects research. Choice 2008 The work provides both medical practitioners and academicians of various levels of experience with a helpful overview of the complicated dilemmas surrounding innovation in medicine. -- Jacob William Shatzer Ethics and Medicine 2010Table of ContentsPrefaceAcknowledgmentsIntroduction: The Need to Ask Questions about Innovation1. Distinguishing Innovative Medical Practice from Research2. The Modern History of Human Research Ethics3. Innovation in the Off-Label Use of Drugs4. Innovative Surgery5. Innovation in Assisted Reproduction6. Innovation in Neuroimaging7. Questions, Issues, and Recommendations Going ForwardConclusion: Final Thoughts on the Landscape of InnovationAppendix A: Directives for Human Experimentation: Nuremberg CodeAppendix B: World Medical Association Declaration of HelsinkiAppendix C: Description of Department of Health and Human ServicesRegulations for the Protection of Human SubjectsAppendix D: Participants in Lasker Forum on Ethical Challenges in Biomedical Research and PracticeNotesReferencesIndex

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Book SynopsisPart III confronts current policy approaches-such as Brazil's integration of rights, HIV/AIDS programming, and the contradictory and confounding global policies on illicit drugs-and offers recommendations for future programs and strategies.Trade ReviewMany of the case studies are powerful and hopeful... Recommended. Choice 2008 The strength of the book is the authors' and editors' insistence on 'evidence-based approaches' to abuse and harm. They explain why acquiring reliable evidence about the effects on health of abuses of human rights requires changing principles and methods that researchers in industrial countries take for granted. -- Daniel M. Fox, PhD JAMA 2008 The message of this book is clear... A rights-based analysis of our public health policies is a requirement of the times in which we live. -- William M. Valenti AIDS Reader 2008 The book is well constructed and provides insights into how to approach public health programs in unique situations where human rights violations constrain public health workers' ability to assist populations at risk... The examples in this book provide a set of tools to consider when we find ourselves in unique situations. -- Maryn Elizabeth Torner Doody's Review Service 2008 A good resource for students. It is a quick and interesting read. -- Catherine G. Chalin Canadian Journal of Public Health 2008 This engaging and important book is likely to interest a broad range of readers. -- Steven S. Coughlin European Journal of Public Health 2008 Valuable and enlightening... Mental health specialists will find here much to reflect about. Journal of Nervous and Mental Disease 2008 A good addition to the burgeoning literature on global health, and I would recommend it strongly to practitioners. -- Nana K. Poku Development in Practice 2008 The individual case studies are fascinating, and provide insight into the challenges of working in oppressive and dangerous environments. -- Kate van Dooren Critical Public Health 2008 Well researched and timely, and cites well-documented evidence. Journal of Health Care for the Poor and Underserved 2010Table of ContentsForeword, by Leonard S. RubensteinPrefaceContributorsList of AcronymsIntroduction: Human Rights and the Health of PopulationsPart I: Cases and Contexts1. Health and Human Rights in the Midst of a Drug War: The Thai Drug Uses' Network2. The Impact of Human Rights Violations on Health among Internally Displaced Persons in Conflict Zones: Burma3. Consequances of a Stalled Response: Iatrogenic Epidemic among Blood Donors in Central China4. Women's Health and Women's Rights: Selling Sex in Moscow5. Reducing Harm in Prisons: Lessons from the United States and WorldwidePart II: Methods6. using Molecular Tools to Track Epidemics and Investigate Human Rights and Disease Interactions7. Documenting the Effects of Trafficking in Women8. Documenting Sexual Violence among Internally Displaced Women: Sierra Leone9. The Crime of Genocide: Darfur10. Public Health Research in a Human Rights Crisis: The Effects of the Thai "War on Drugs"11. Maps in the Sand: Investigating Health and Human Rights in Afghanistan and Darfur12. Civil Conflict and Health Infromation: The Democratis Republic of CongoPart III: Policy13. From Human Rights Principles to Public Health Practice: HIV/AIDS Policy in Brazil14. Seeing Double: Mapping Contradictions in HIV Prevention and Illicit Drug Policy Worldwide15. Human Rights and Public Health Ethics: Responding to the Global HIV/AIDS pandemic16. Gender and Sexual Health Rights: Burma17. Advocacy Strategies for Affording the Right to HealthIndex

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Book Synopsis, Boston College.Trade ReviewAn excellent book... Will be exceedingly helpful to clinicians and nonclinicians who are involved in the development of public policy. JAMA 2008 Easily readable and well referenced... It is an excellent, well-thought-out resource for where the U.S. is on the issue of gerontology as it relates to ethics and public policy... Highly recommended. Choice 2008 A good survey of many aging society issues. Future Survey 2007 Some of the individual chapters are superb... contains some interesting original material as well as a useful synthesis of the literature... There is something in it for almost everyone. New England Journal of Medicine 2008 This book is well edited and presented, which makes reading it quite straightforward, even while taking on at times some complex issues. -- Karen Le Ball Age and Ageing 2008 This book... is unique in that it explores issues and challenges at hand with the current aging society through an 'ethical' lens, and brings together experts in a wide range of fields covering sociobiology, social work, economics, public policy, theology, public health, bioethics, nursing and neurology -- Erica Yoonkyung Journal of Sociology and Social Welfare 2009 There is something for everyone in this collection -- John Bond Aging and Society 2008 It is a compilation of multiple thought-provoking analyses of the status of elderly and the aging, and includes current and future ramifications. -- Susan Wegener Inside GCM 2008Table of ContentsList of ContributorsAcknowledgmentsIntroduction: The Science and Ethics of Aging WellPart I: Autonomy and End-of-Life Decisions1. The Legal Aspects of End-Of-Life Decision Making2. Assessing Compentency to Make Medical Decisions at the End of Life: Clinician and Patient Issues3. The Ethics of Long-Term Care: Recasting the Policy Discourse4. Religiosity and Spirituality at the End of Life: Challenges and OpportunitiesPart II: The Future of Family Responsibility5. The Family and the Future: Challenges, Prospects, and Resilience6. Long-Term Care, Feminism, and an Ethics of Solidarity7. Aging, Generational Opposition, and the Future of the FamilyPart III: Policies and Politics of Genrational Responsibility8. Minority Elders in the United States: Implications for Public Policy9. Allocating Resources for Lifelong Learning for Older Adults10. Transforming Age-Based Policies to Meet Fluid Life-Course Needs11. The Political Paradoxes of Thinking outside the Life-Cycle Boxes12. Is Responsibility across Generations Politically Feasible?Part IV: Health and Wealth: Whose Responsibility?13. Social Security Reform and Responsibility across the Generations: Framing the Debate14. Setting the Agenda for Social Security Reform15. A Summary of Saving Social Security: A Balanced Approach16. Assessing the Returns from the New Medicare Drug Benefit17. Prescription Drugs and Elders in the Twenty-first CenturyIndex

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Book SynopsisAddiction Treatment provides a solid foundation for understanding addiction as a treatable illness and for establishing a framework for effective treatment in the twenty-first century.Trade ReviewAn impressive and imperative read for students and professionals in the addiction field... Highly recommended. Choice 2008 Addiction Treatment provides a broad overview of where the field seems to be heading and achieves its goal by provoking debate over the best way to get there. JAMA 2008 The editors do an excellent job of putting together a collection of essays from leading experts in the field of addiction. The provocative essays and the way that the chapters are organized creates a book that is easy to read and will certainly stimulate thought and further discussion about what is possible for addiction treatment in the twenty-first century... An outstanding resource and is appropriate for students, health care professionals, researchers, policy makers, and laypersons interested in addiction science and health care policy. -- Mary E. Cooley Society for Research on Nicotine and Tobacco Newsletter 2008 The book does provoke thought and causes readers to contemplate a number of relevant questions. It will be most useful to those with a good understanding of both the science and public health policies surrounding the treatment for addictions. Doody's Review Service 2008 A valuable contribution to the literature. -- Christian Perring Metapsychology 2009 Addiction and Art may be the most important art book written this year. -- Bob Dugan Big ThinkTable of ContentsList of ContributorsPrefaceIntroduction: Drug Addiction in America: Challenges and OpportunitiesPart I. Treatment Models and Emerging Science1. Is Addiction a Problem of Self-Control?2. The P.R.I.M.E. Theory of Motivation as a Possible Foundation for the Treatment of Addiction3. A Future for the Prevention and Treatment of Drug Abuse: Applications of Computer-Based Interactive Technology4. Office-Based Treatment of Addiction and the Promise of Technology5. High-Impact Paradigms for the Treatment of Addiction6. New Approaches to the Treatment of Stimulant and Other Substance Abuse: A Behavorial Perspective7. Using Diminished Autonomy over Tobacco Use to Identify Smokers in Need of Assistance with Cessation8. New Directions for Tobacco Cessation Therapies9. Could Nutritional Factors Influence the Development and Maintenance of Addiction to Nicotine?Part II. Special Populations10. Addiction and Pregnancy11. Perspectives on the Risk-Benefit Ratio of Pharmacological Treatment for Adolescent Chemical Addiction12. The Inhibitory Effect of Insurance Statutes on the Provision of Alcohol Screening and Intervention Services in Trauma Center13. Addiction and Multiple Morbidities in HIV-Positive Patients14. Providing Access to Treatment for Opiod Addiction in Jails and Prisons in the United States15. Addiction Art and Science: Two Sides of Humanity16. Addiction, Recovery, and Art: My StoryPart III: Health Care, Social, and Policy Issues17. Advancing the Science Base for the Treatment of Addiction18. "Going UPstream": Thoughts for Substance Abuse Professionals19. In Praise of Stigma20. Addiction as Disease: Policy, Epidemiology, and Treatment Consequences of a Bad Idea21. Parsing the Future of Behavioral Intervention for Drug Abuse: Clinical Science and Policy22. Protecting Patient Confidentiality in Alcohol and Drug Treatments23. Deterring Sales and Marketing of Alcohol to Youth: The Role of Litigation24. How Social Policy Can Foster Advances in the Treatment of Addiction: Tobacco Smoke Pollution and the Hospitality Industry as an Example25. The Role of the Food and Drug Administration in Accelerating the Development and Release of New Medications for the Addictions26. Smoking Status as the New Vital Sign: Progress and ChallengesEpilogueIndex

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Book Synopsispopulation, and present a balanced-and reassuring-assessment of the future.Trade ReviewJames Schulz and Robert Binstock unquestionably take places of honor among the elders of the gerontological tribe. Decades of study, teaching, civic engagement, writing, and speaking to peers, lawmakers, and informed citizens have secured their reputations as knowledgeable, judicious, respected experts on the economics and politics of aging, respectively. -- W. Andrew Achenbaum, PhD Journal of Aging and Social Policy 2008 This is a useful primer for any person who wants a sneak preview of the difficult days ahead. -- Steve Goddard History Wire - Where the Past Comes Alive 2008 This timely book offers a worthwhile read for anyone interested in learning about the history of pension plans in the United States, their administration, and their economic impact on retirees. -- Marvin Pelaez Monthly Labor Review 2009 Highly recommended. Midwest Book Review 2008Table of ContentsPreface to the Paperback Edition1. Baby Boomers and the Merchants of Doom2. The Phony Threat of Population Aging3. The Search for Security with Dignity4. Dealing with Risk5. The Company Pension: Altruism or Self-Interest?6. The Pension Lottery: Personal Pension Accounts7. To Work or Not to Work: That Is the Question8. Health and Longevity: What Lies Ahead?9. A Gerontocracy? The Politics of Aging10. Framing the Issues for an Aging NationNotesIndex

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Book SynopsisThis volume is a useful resource for bioethicists, members of rural bioethics committees and networks, policy makers, teachers of health care providers, and rural practitioners themselves.Trade ReviewOf obvious value for those active in rural health care. It may be even more useful, however, for nonrural practitioners, ethicists, and members of ethics committees. Reading the essays in this volume is like acquiring a new set of glasses. It made me better able to perceive differences in how ethics can be considered based on culture, population, geographic challenges, and personal connections... An even bigger service may be the tools it provides to look differently at problems commonly thought to be understood. -- Myles N. Sheehan, SJ, MD JAMA An excellent scholarly examination of what rural people face in the world of health care. Midwest Book Review A welcome addition to this oft-neglected area of ethics. The collection is broad-ranging and well-designed. -- Robert Macauley Journal of Bioethical Inquiry The common thread among the essays is a bioethical perspective. Their common goal is to raise awareness among rural practitioners and other interested parties about the particular challenges that the rural environment presents. Health AffairsTable of ContentsList of ContributorsPrefaceIntroductionPart I: Overview of Rurality and General Ethical IssuesChapter 1. Rural-Urban Differences in End-of-Life Care: Reflections on Social ContractsChapter 2. The Challenges of Rural Health CareChapter 3. Ethics, Errors, and Where We Go from HereChapter 4. The Ethics of Allocating Resources toward Rural Health and Health CarePart II: Practitioners' VoicesChapter 5. Reflections on Fifty Years in Rural Health CareChapter 6. Serving the Underserved: Personal, Social, and Medical ChallengesChapter 7. Ethical and Sociocultural Issues in Rural Mental Health CarePart III: Specific Ethical Issues and SolutionsChapter 8. Ethical Dimensions of the Quality of Rural Health CareChapter 9. Building Bioethics Networks in Rural States: Blessings and BarriersChapter 10. Structural Violence in the Rural Context: The Ethical implications of Welfare Reform for Rural HealthChapter 11. Rural Geristric Bioethics: A Texas PerspectiveChapter 12. Supporting the Rural Physician: Processes and ProgramsIndex

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Book SynopsisThis volume is a valuable resource for public policymakers, health care agencies, providers who plan for large-scale emergencies, academics teaching disaster relief courses, and professionals working in this field.Trade ReviewWould make a solid addition to any collection concerning disaster planning, public health, or policy making. Choice 2010 An excellent book that brings together 26 essays showcasing the theory and practice of providing medical care in challenging situations during and after disasters. This book should be required reading for medical professionals and emergency responders who may be called upon to respond to disasters. It is also ideal for health and graduate students, researchers and policy makers. -- Tanya Gulliver Journal of Health Care for the Poor and Underserved 2010Table of ContentsAcknowledgmentsIntroduction. Hurricanes Katrina and Rita: Professionally Fulfilling, Personally PainfulChapter 1. Hurricanes Katrina and Rita, and Wilma and the Medically UnderservedChapter 2. Katrina Perspectives on the Environment and Public HealthPart I: What It was Like and What HappenedChapter 3. Persevering through the Storm: Educating Nursing Seniors in the Aftermath of KatrinaChapter 4. A Diabetes Pharmaceutical Care Clinic in an Underserved CommunityChapter 5. Dental Care as a Vital Service Response for Disaster VictimsChapter 6. Mental Health Interventions by Telephone with Katrina SurvivorsChapter 7. "They Blew the Levee": Distrust of Authorities Among Hurricane Katrina EvacueesChapter 8. Hospitals in Hurricane Katrina: Challenges Facing Custodial Institutions in a DisasterChapter 9. Hurricane Emergency Planning by Home Health Providers Serving the PoorChapter 10. Katrina and Vulnerability: The Geography of StressChapter 11. A Mobile Medical Care Approach Targeting Underserved Populations in Post–Hurricane Katrina MississippiChapter 12. Wading in the Waters: Spirituality and Older Black Katrina SurvivorsPart II: Assessment Chapter 13. The Hurricane Choir: Remote Mental Health Monitoring of Participants in a Community-basedChapter 14. Rapid Needs Assessment among Hurricane Katrina Evacuees in Metro-DenverChapter 15. Displacement of the Underserved: Medical Needs of Hurricane Katrina Evacuees in West VirginiaChapter 16. Hurricane Katrina's Impact on Pediatric and Adult Patients with Sickle Cell DiseaseChapter 17. Media Use and Information Needs of the Disabled During a Natural DisasterChapter 18. Adverse Health Outcomes after Hurricane Katrina Among Children and Adolescents with Chronic ConditionsChapter 19. News, Social Capital, and Health in the Context of KatrinaPart III: Looking to the FutureChapter 20. Mitigating the Health Effects of Disasters for Medically Underserved Populations: Electronic Health Records, Telemedicine, Research, Screening, and SurveillanceChapter 21. Katrina-Related Health Concerns of Latino Survivors and EvacueesChapter 22. Emergency Preparedness: Knowledge and Perceptions of Latin American ImmigrantsChapter 23. The Resuscitation of a New Orleans Substance Abuse Treatment Agency after Hurricane KatrinaChapter 24. Hurricane Readiness and Environmental Risks on the Bayous—an NIEHS Community-Based Pilot Project in South Terrebonne–Lafourche Parishes, LouisianaChapter 25. Re-establishing a Home after Katrina: A Long and Winding RoadChapter 26. Cultural Competency in Disaster Recovery: The Lessons of Hurricane Katrina for ServingAppendix. Films and Notable Books on the Hurricanes of 2005Index

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Book SynopsisBioethics in a Liberal Society is essential reading for all those interested in understanding how bioethics is practiced within our society.Trade ReviewMay's book is a helpful overview and introduction to the political framework of bioethics decision making within a liberal society. It touches explicitly on the issues of perceived and actual lack of competence, substituted decision making, advanced directives and the important roles of ethics committees and consultants. There is no doubt that this book marks an important contribution to the literature. -- Christopher Newell, Ph.D. MetapsychologyTable of ContentsContents: Preface Acknowledgments 1 Introduction: The Liberal Framework I Patient Autonomy 2 Patient Autonomy and Informed Consent 3 Patient Responsibility for Decision Making 4 Advance Directives: Extending Autonomy for Patients II Professional Rights of Conscience 5 Beneficence, Abandonment, and the Duty to Treat 6 Rights of Conscience in the Physician-Patient Relationship 7 Conclusion: Health Care Ethics Committees and Consultants in a Liberal Framework References Index

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Book SynopsisThis frank discussion of doping in sports includes accounts by former elite athletes and offers an illuminating exchange over the meaning and value of natural talents and genetic hierarchies and the essence of fair competition.Trade ReviewA fascinating book for those interested in sports studies, for athletes and other sport professionals, and even for armchair quarterbacks... Highly recommended. Choice 2010Table of ContentsList of Contributors Preface Acknowledgments Part I: Historical and Cultural ContextChapter 1. Putting Doping into Context: Historical and Cultural Perspectives Chapter 2. The Context of Performance Enhancement: An Athlete's Perspective Chapter 3. Reflections on the "Parallel Federation Solution" to the Problem of Drug Use in Sport: The Cautionary Tale of Powerlifting Chapter 4. The Role of Physicians, Scientists, Trainers, Coaches, and Other Nonathletes in Athletes' Drug UseChapter 5. Performance-Enhancing Technologies and the Ethics of Human Subjects ResearchChapter 6. Toward an Understanding of Factors Influencing Athletes' Attitudes about Performance-Enhancing Technologies: Implications for Ethics Education Part II: Conceptual Maps and Ethical ImplicationsChapter 7. Ethics and Endurance-Enhancing Technologies in SportChapter 8. Fairness in Sport: An Ideal and Its ConsequencesChapter 9. Annotating the Moral Map of Enhancement: Gene Doping, the Limits of Medicine, and the Spirit of SportChapter 10. Genetic Enhancement in Sport: Ethical, Legal, and Policy Concerns Chapter 11. In Search of an Ethics for Sport: Genetic Hierarchies, Handicappers General, and Embodied ExcellencePart III: Current and Future ScienceChapter 12. Genetic Doping in Sport: Applying the Concepts and Tools of Gene Therapy Chapter 13. Technologies to Enhance Oxygen Delivery and Methods to Detect the Use of These TechnologiesIndex

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Book SynopsisHumorous, sometimes acerbic, and always well informed, Sommer's thought-provoking book will change the way you look at health care in America.Trade ReviewAn ideal, nonalarmist first book on what needs reforming in American health care. Booklist 2009 Al Sommer, former Dean of the Johns Hopkins Bloomberg School of Public Health and a giant in the world of public health, has written a thought-provoking and insightful short course on the power of prevention. Indeed, the book is delightfully not just another treatise on universal access or the complexities of health insurance. Instead, it is a commonsense and concise case for the health benefits and cost savings that accrue from public health in all its breadth. -- Roberta B. Ness American Journal of Epidemiology 2010 In contrast to the confusing, politicized national conversation about health care, Sommer talks to the reader in a straightforward fashion. Washington Post 2010 This volume is a timely, easy-to-read, practical treatise on health care reform. Choice 2010 Alfred Sommer brings his vast global experience and applies his academic rigor and wit to look at contradictions inherent in the US health system, especially the disproportionate emphasis on expensive biomedical treatment of diseases over policy choices to invest in better social and economic environments that foster prevention and health promotion. This book is immensely timely, engaging and thought provoking-a must read. American Journal of Opthalmology 2010Table of ContentsPreface1. Genesis: From Few to Many—in Fits and Starts2. Disease Is the Sum of All Evils3. Genes: Sometimes "Destiny," Sometimes Not4. The Complex Nature of Causality5. The Consequences of Our Own Behavior6. Choosing the Healthier Lifestyle7. From Science to Policy: The Path Is Anything but Linear8. The U.S. Health Care System9. Who's Healthy? Who's Not? Why?NotesFurther Reading, Films, and Websites of InterestIndex

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Book SynopsisThis service-oriented guide supplies vital tools, informed tips, and provocative ideas for professionals, students, and policy makers involved in gerontology and geriatrics.Trade ReviewThis excellent source for practitioners and health care administrators will also be useful to students interested in long-term care facilities in any health area... Highly recommended. Choice 2011Table of ContentsForeword AcknowledgmentsIntroduction. Nursing Homes in the United StatesChapter 1. The Quality of Care in Nursing HomesChapter 2. Measuring the Quality of CareChapter 3. Factors Contributing to the Variability in the Quality of CareChapter 4. Persistent Citations for the Deficiency of Pressure UlcersChapter 5. Factors Influencing Residents' OutcomesChapter 6. Policies regarding Minimum Staffing LevelsChapter 7. The Relationship between Efficiency and the Quality of CareChapter 8. Improving Performance and the Quality of Life through Health InformaticsConclusion. Synthesis, Prospects, and Future DirectionsAppendix: Helpful Websites for Clinical Knowledge Management and the Quality of CareReferencesIndex

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Book SynopsisNarrative examples of common situations demonstrate how conversations about medical error can lead to healing.Trade ReviewProfessional health collections will consider this essential. Midwest Book Review 2011Table of ContentsForeword, by Lucian L. Leape, M.D.AcknowledgmentsIntroduction1. Medical Error through the Eyes of Clinicians, Patients, and Families2. What Is a Medical Error?3. A Brief Overview of the Patient Safety Movement4. Communicating about Adverse Events and Medical Error5. Supporting Clinicians in Disclosure: The Coaching Model6. Practice-Based Learning for Coaches and Clinicians7. Practical Guidelines for Disclosure8. Learning through Enacting9. The Broad Spectrum of Adverse Events and Medical Error10. Organizational Strategies for Improving Disclosure Practice11. Future Directions and Closing ThoughtsAppendix: Practical Guidelines for DisclosureAnnotated Bibliography of Key WorksReferencesIndex

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Book SynopsisPlanning and evaluating any health care program is a formidable task: how do you measure the health of a population? This fundamental question has been approached from various perspectives in medical, administrative, and economic studies. This book provides a guide to health measurement literature and relates it to Ontario's current and prospective policy choices and to the federal context of health indicators and indices to existing statistics in Ontario in a county-by-county survey of the province's health care. He also outlines the kinds of information essential to health assessment but not currently available.The book as a whole emphasizes the importance of health care measurement in the humane and efficient planning of health services. It will be of interest to all concerned with the practice of medicine in the 1980s and the planning of health services at the federal and provincial levels, as well as to those with a special interest in health from the economic, political

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Book SynopsisTrade Review"An important contribution to the fields of regulatory politics and food policy."—A. Bryce Hoflund, Political Science Quarterly"Thomas has written an exceptionally good synthesis of the history of food regulation in America and contextualized the changing regulatory regime. . . . This book's provocative arguments and detailed examples make it ideal for students and researchers of public health-related disciplines, food regulatory agencies, and those who are interested in American food safety regulations."—Fremont Hung, Food, Culture and Society"With this new awareness of the processes and politics behind the food in their pantries and refrigerators, readers of In Food We Trust will be hard pressed to subscribe to the myth of the safety of the national food supply."—Jessica Derleth, Journal of American Culture“Courtney Thomas has written a valuable and significant book that examines the evolving challenge of governing complex networked food safety systems that involve actors at multiple levels and with varied interests.”—Bryan McDonald, author of Food Security “In Food We Trust is as interesting as it is frightening. Like Upton Sinclair before her, Courtney Thomas is aiming for both the public’s mind and stomach and hits both spot on.”—Nik Heynen, professor of geography at the University of Georgia and coeditor of Neoliberal Environments: False Promises and Unnatural Consequences Table of ContentsList of IllustrationsPrefaceAcknowledgmentsIntroduction: A Twentieth-Century ProblemPart 1: The U.S. Food Safety Regulatory Regime1. Escape from the Jungle2. The Cranberry Crisis3. Science and Politics CollidePart 2: Crises, Scandals, and Food Safety Regulation4. Models of Food Safety Regulation5. Pandora's Jack in the Box6. From Spinach to GAPsPart 3: A New Regime for the Twenty-first Century7. The Peanut Butter Crisis8. The Future of Food SafetyEpilogue: A Twenty-first-Century MandateAppendix A. Recall List from 2008-9 Peanut OutbreakAppendix B. Food Safety Proposals before the 111th CongressNotesBibliographyIndex

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Book SynopsisThis book examines the structure and impact of the SARS epidemic, and its short- and medium-range implications for an interconnected, globalized world. In so doing, it poses a question of the greatest possible significance: Can we learn from SARS before the next pandemic?Trade Review"SARS in China not only makes a significant contribution to China studies but also provides important clues about the state of preparation for global health challenges such as avian flu."—China Review International"This book has lined up a remarkable team of authors to try to answer the question: what can we learn from SARS before the next pandemic? And its value lies in the significant issues that it has highlighted."—The China ReviewTable of ContentsContents Preface vii Contributors xi Introduction: SARS in Social and Historical Context 1 arthur kleinman and james l. watson Part I. The Epidemiological and Public Health Background 1. The Epidemiology of SARS 17 megan murray 2. The Role of the World Health Organization in Combating SARS, Focusing on the Efforts in China 31 alan schnur 3. SARS and China's Health-Care Response: Better to Be Both Red and Expert! 53 joan kaufman Part II. Economic and Political Consequences 4. Is SARS China's Chernobyl or Much Ado About Nothing? 71 tony saich 5. SARS and China's Economy 105 thomas g. rawski 6. SARS in Beijing: The Unraveling of a Cover-Up 122 erik eckholm Part III: Social, Moral, and Psychological Consequences 7. Psychological Responses to SARS in Hong Kong-- Report from the Front Line 133 dominic t. s. lee, m.d., and yung kwok wing, mrcpsych 8. Making Light of the Dark Side: SARS Jokes and Humor in China 148 hong zhang Part IV: Globalization and Cross-Cultural Issues 9. SARS and the Problem of Social Stigma 173 arthur kleinman and sing lee 10. SARS and the Consequences for Globalization 196 james l. watson Notes 205 Index 235

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Book SynopsisThis book examines the structure and impact of the SARS epidemic, and its short- and medium-range implications for an interconnected, globalized world. In so doing, it poses a question of the greatest possible significance: Can we learn from SARS before the next pandemic?Trade Review"SARS in China not only makes a significant contribution to China studies but also provides important clues about the state of preparation for global health challenges such as avian flu."—China Review International"This book has lined up a remarkable team of authors to try to answer the question: what can we learn from SARS before the next pandemic? And its value lies in the significant issues that it has highlighted."—The China ReviewTable of ContentsContents Preface vii Contributors xi Introduction: SARS in Social and Historical Context 1 arthur kleinman and james l. watson Part I. The Epidemiological and Public Health Background 1. The Epidemiology of SARS 17 megan murray 2. The Role of the World Health Organization in Combating SARS, Focusing on the Efforts in China 31 alan schnur 3. SARS and China's Health-Care Response: Better to Be Both Red and Expert! 53 joan kaufman Part II. Economic and Political Consequences 4. Is SARS China's Chernobyl or Much Ado About Nothing? 71 tony saich 5. SARS and China's Economy 105 thomas g. rawski 6. SARS in Beijing: The Unraveling of a Cover-Up 122 erik eckholm Part III: Social, Moral, and Psychological Consequences 7. Psychological Responses to SARS in Hong Kong-- Report from the Front Line 133 dominic t. s. lee, m.d., and yung kwok wing, mrcpsych 8. Making Light of the Dark Side: SARS Jokes and Humor in China 148 hong zhang Part IV: Globalization and Cross-Cultural Issues 9. SARS and the Problem of Social Stigma 173 arthur kleinman and sing lee 10. SARS and the Consequences for Globalization 196 james l. watson Notes 205 Index 235

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Book SynopsisTrade Review"In this defining ethnography of China's public health system and its complex relation to epidemics, Katherine Mason brilliantly describes health professionals, their struggles to be effective and ethical, the barriers they face, and how they animate the Chinese public health system as a lived reality. Infectious Change is an impressive contribution to both China studies and to medical anthropology!" -- Arthur Kleinman, Director * Harvard Asia Center *"Meticulously crafted, Infectious Change draws readers into the world of Chinese public health after SARS. Mason documents fundamentally different approaches to epidemic control among global, state, and local practitioners, including management of migratory populations, data collection, and ethics, arguing that global directives often stymie local efforts. This book elucidates why epidemic prevention everywhere must draw on local knowledge and practices." -- Margaret Lock * author of The Alzheimer Conundrum *"Infectious Change brings us for the first time before a hitherto unacknowledged consequence of the 2009 H1N1 crisis, and, at that, in one of the most epidemiologically critical regions of the globe today. It is this invaluable insight that should hold the attention not only of medical anthropologists but also of the wider global health community." -- Christos Lynteris * Medical Anthropology Quarterly *"This is an excellent, thought-provoking book, which will appeal to those with interests in contemporary China, medical anthropology, and histories of health and disease. It yields insights that will illuminate broader debates, such as those that pivot on the challenges inherent in promoting the "global" as a category in health." -- Robert Peckham * Bulletin of the History of Medicine *"Katherine Mason's book is an important contribution to the fields of Chinese studies and anthropology, joining a recent spate of excellent studies using the methods of anthropology to look at the intersections of public health, cultural practices and politics in China...Mason's book reminds us that implementing public health policy is never only about what is technically correct. It is about the cultural values and practices that govern relationships. It is also about understanding the power dynamics of the political system and generating the political will to construct an enabling environment and accountability mechanism to achieve it. In China, the tensions between centre and local are rarely resolved in favour of local and when new criteria for professional advancement are introduced, it results in the type of dysfunction so masterfully described by Mason." -- Joan Kaufman * China Quarterly *"In Infectious Change, Katherine A. Mason provides a captivating analysis of public health in China in the wake of SARS...Infectious Change is an insightful work that would be of interest to scholars of China and global health practitioners while also being accessible to a general academic reader. For China scholars, Mason makes a major contribution to the literature on public health." -- Emilio Dirlikov * Anthropological Quarterly *"Infectious Change presents a rich ethnographic account of how the Tianmai CDC works, how it would like to transform itself, and the barriers to doing so. It will make an excellent addition to courses on the anthropology of China or of global health because of the clarity of its ethnographic account and also because of the questions it opens up."––Elanah Uretsky, Asian MedicinTable of ContentsContents and Abstracts1Introduction chapter abstractThis chapter situates the reader in time and space and lays out the main arguments of the book. The author provides an overview of the recent history of public health in China, and describes the pseudonymous city of Tianmai. The author then suggests that due to key differences between professional responsibility as it is defined in the clinical and public health settings - particularly with regards to the aggregate nature of the public health "client" – a bifurcation of service and governance arose in Tianmai between a "common" being served and local populations being governed. The chapter lays out five "commons" that will be examined in the rest of the book: a civilized immigrant common, a professional common, a transnational scientific common, a global health common, and a global common. It also suggests that the Tianmai case can offer novel insights into the study of global health. 2City of Immigrants chapter abstractThis chapter takes a closer look at the immigrant city of Tianmai, and considers how the modern, cosmopolitan urban paradise that Tianmai's elites were trying to build included some and excluded others. In particular, the chapter examines the relationship – or lack thereof – between Tianmai's public health professionals and the city's enormous "floating population" of rural-to-urban migrants. The author shows how her interlocutors – former migrants themselves – refused to engage with migrant individuals, and actively maintained personal, moral, and professional boundaries between themselves and the floating population. This effectively divulged public health professionals of responsibility for the majority of the people who lived in their city and established them as "biological non-citizens" who had to be governed but could not be served. In doing this public health professionals worked to serve a civilized immigrant common of modern urban subjects that did not include the floating population. 3Relationships, Trust, and Truths chapter abstractThis chapter illustrates how the power to implement any given public health initiative in China was located within the webs of guanxi, or personal relationships, that public health professionals spun anew at the beginning of each project. Drawing on rich ethnographic description, the chapter takes the reader into the banqueting and other entertainment rituals that public health professionals engaged in almost daily in order to create and maintain these networks of reciprocal obligation and personalistic trust. The author then examines how a group of young, highly educated post-SARS reformers attempted to rid the public health system of guanxi, which they regarded as anti-scientific and akin to corruption. These reformers hoped to build a more transparent and reliable system of disease reporting and governance by establishing a professional common grounded in professionalized trust. 4Scientific Imaginaries chapter abstractThis chapter critically examines public health research and science in Tianmai. The author explores the efforts of Chinese public health professionals to advance their careers through scientific research, and discusses how in the wake of SARS, Chinese public health institutions dramatically increased their investments in scientific research – rendering publishable research a major focus of local public health work. Newly hired young people labored to produce the "quality" and "true" data that they associated with good science. They hoped that doing so would give them a chance to "develop themselves" as members of transnational scientific common, and to escape a local moral world that they felt was dominated by mimicry, deception, and instability. The chapter suggests that their approach to research provides a mirror through which public health researchers in other contexts could critically examine their own ethical practices, raising new questions about global research ethics. 5Pandemic Betrayals chapter abstractThis chapter provides an ethnographically rich eyewitness account of Tianmai's response to the 2009 H1N1 influenza pandemic, describing how public health professionals in Tianmai drew upon the lessons of SARS to mount what they thought would be an internationally lauded response to H1N1. In attempting to prove their pandemic preparedness capabilities and ensure a place among the global scientific elite, however, Tianmai's public health professionals instead found that their full admittance into a global health common and a global common remained elusive. The chapter discusses the professionals' difficulties in escaping their perceived status as a source, rather than a victim, of dangerous viruses; their use of disease control tactics that were portrayed abroad as excessive and unsophisticated; and their disappointment with the failure of their leaders and guanxi partners to act in the professional fashion that they had been trying to promote since SARS. 6Conclusion chapter abstractThe concluding chapter returns to the broader question of what professional responsibility can or should mean in public health and beyond, and asks how public health professionals in China could work to reconcile the "common" with the "population," and population needs with individual needs. The author uses the case of HIV/AIDS to examine the ways in which some public health professionals in Tianmai were experimenting with alternative interpretations of public health that broadened the boundaries of the common to allow in otherwise maligned groups, including rural migrants, gay men, and sex workers. The book ends by considering the implications of this ethnography for the study of public health – both local and global – more broadly.

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Book SynopsisTrade Review"In this defining ethnography of China's public health system and its complex relation to epidemics, Katherine Mason brilliantly describes health professionals, their struggles to be effective and ethical, the barriers they face, and how they animate the Chinese public health system as a lived reality. Infectious Change is an impressive contribution to both China studies and to medical anthropology!" -- Arthur Kleinman, Director * Harvard Asia Center *"Meticulously crafted, Infectious Change draws readers into the world of Chinese public health after SARS. Mason documents fundamentally different approaches to epidemic control among global, state, and local practitioners, including management of migratory populations, data collection, and ethics, arguing that global directives often stymie local efforts. This book elucidates why epidemic prevention everywhere must draw on local knowledge and practices." -- Margaret Lock * author of The Alzheimer Conundrum *"Infectious Change brings us for the first time before a hitherto unacknowledged consequence of the 2009 H1N1 crisis, and, at that, in one of the most epidemiologically critical regions of the globe today. It is this invaluable insight that should hold the attention not only of medical anthropologists but also of the wider global health community." -- Christos Lynteris * Medical Anthropology Quarterly *"This is an excellent, thought-provoking book, which will appeal to those with interests in contemporary China, medical anthropology, and histories of health and disease. It yields insights that will illuminate broader debates, such as those that pivot on the challenges inherent in promoting the "global" as a category in health." -- Robert Peckham * Bulletin of the History of Medicine *"Katherine Mason's book is an important contribution to the fields of Chinese studies and anthropology, joining a recent spate of excellent studies using the methods of anthropology to look at the intersections of public health, cultural practices and politics in China...Mason's book reminds us that implementing public health policy is never only about what is technically correct. It is about the cultural values and practices that govern relationships. It is also about understanding the power dynamics of the political system and generating the political will to construct an enabling environment and accountability mechanism to achieve it. In China, the tensions between centre and local are rarely resolved in favour of local and when new criteria for professional advancement are introduced, it results in the type of dysfunction so masterfully described by Mason." -- Joan Kaufman * China Quarterly *"In Infectious Change, Katherine A. Mason provides a captivating analysis of public health in China in the wake of SARS...Infectious Change is an insightful work that would be of interest to scholars of China and global health practitioners while also being accessible to a general academic reader. For China scholars, Mason makes a major contribution to the literature on public health." -- Emilio Dirlikov * Anthropological Quarterly *"Infectious Change presents a rich ethnographic account of how the Tianmai CDC works, how it would like to transform itself, and the barriers to doing so. It will make an excellent addition to courses on the anthropology of China or of global health because of the clarity of its ethnographic account and also because of the questions it opens up."––Elanah Uretsky, Asian MedicinTable of ContentsContents and Abstracts1Introduction chapter abstractThis chapter situates the reader in time and space and lays out the main arguments of the book. The author provides an overview of the recent history of public health in China, and describes the pseudonymous city of Tianmai. The author then suggests that due to key differences between professional responsibility as it is defined in the clinical and public health settings - particularly with regards to the aggregate nature of the public health "client" – a bifurcation of service and governance arose in Tianmai between a "common" being served and local populations being governed. The chapter lays out five "commons" that will be examined in the rest of the book: a civilized immigrant common, a professional common, a transnational scientific common, a global health common, and a global common. It also suggests that the Tianmai case can offer novel insights into the study of global health. 2City of Immigrants chapter abstractThis chapter takes a closer look at the immigrant city of Tianmai, and considers how the modern, cosmopolitan urban paradise that Tianmai's elites were trying to build included some and excluded others. In particular, the chapter examines the relationship – or lack thereof – between Tianmai's public health professionals and the city's enormous "floating population" of rural-to-urban migrants. The author shows how her interlocutors – former migrants themselves – refused to engage with migrant individuals, and actively maintained personal, moral, and professional boundaries between themselves and the floating population. This effectively divulged public health professionals of responsibility for the majority of the people who lived in their city and established them as "biological non-citizens" who had to be governed but could not be served. In doing this public health professionals worked to serve a civilized immigrant common of modern urban subjects that did not include the floating population. 3Relationships, Trust, and Truths chapter abstractThis chapter illustrates how the power to implement any given public health initiative in China was located within the webs of guanxi, or personal relationships, that public health professionals spun anew at the beginning of each project. Drawing on rich ethnographic description, the chapter takes the reader into the banqueting and other entertainment rituals that public health professionals engaged in almost daily in order to create and maintain these networks of reciprocal obligation and personalistic trust. The author then examines how a group of young, highly educated post-SARS reformers attempted to rid the public health system of guanxi, which they regarded as anti-scientific and akin to corruption. These reformers hoped to build a more transparent and reliable system of disease reporting and governance by establishing a professional common grounded in professionalized trust. 4Scientific Imaginaries chapter abstractThis chapter critically examines public health research and science in Tianmai. The author explores the efforts of Chinese public health professionals to advance their careers through scientific research, and discusses how in the wake of SARS, Chinese public health institutions dramatically increased their investments in scientific research – rendering publishable research a major focus of local public health work. Newly hired young people labored to produce the "quality" and "true" data that they associated with good science. They hoped that doing so would give them a chance to "develop themselves" as members of transnational scientific common, and to escape a local moral world that they felt was dominated by mimicry, deception, and instability. The chapter suggests that their approach to research provides a mirror through which public health researchers in other contexts could critically examine their own ethical practices, raising new questions about global research ethics. 5Pandemic Betrayals chapter abstractThis chapter provides an ethnographically rich eyewitness account of Tianmai's response to the 2009 H1N1 influenza pandemic, describing how public health professionals in Tianmai drew upon the lessons of SARS to mount what they thought would be an internationally lauded response to H1N1. In attempting to prove their pandemic preparedness capabilities and ensure a place among the global scientific elite, however, Tianmai's public health professionals instead found that their full admittance into a global health common and a global common remained elusive. The chapter discusses the professionals' difficulties in escaping their perceived status as a source, rather than a victim, of dangerous viruses; their use of disease control tactics that were portrayed abroad as excessive and unsophisticated; and their disappointment with the failure of their leaders and guanxi partners to act in the professional fashion that they had been trying to promote since SARS. 6Conclusion chapter abstractThe concluding chapter returns to the broader question of what professional responsibility can or should mean in public health and beyond, and asks how public health professionals in China could work to reconcile the "common" with the "population," and population needs with individual needs. The author uses the case of HIV/AIDS to examine the ways in which some public health professionals in Tianmai were experimenting with alternative interpretations of public health that broadened the boundaries of the common to allow in otherwise maligned groups, including rural migrants, gay men, and sex workers. The book ends by considering the implications of this ethnography for the study of public health – both local and global – more broadly.

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Book SynopsisPatients as Policy Actors offers groundbreaking accounts of one of the health field's most important developments of the last fifty years--the rise of more consciously patient-centered care and policymaking.Trade Review"This strong volume brings together contributors of different disciplinary and experiential backgrounds, broadening our understanding of how patient voices influence American health care policy." -- Elizabeth Toon * University of Manchester *"Patients as Policy Actors provides food for thought on the representation of patients’ voices in a variety of health care arenas. This edited anthology is both academic and intended to foster change. It evaluates patient effectiveness, from patients’ struggles to be heard to their successful mobilization of resources for shared interests." * Bulletin of the History of Medicine *"Despite all of the recent study of patient activism, there has been little attempt to synthesize its achievements and limitations—making the scholarship as fragmented as the activism itself. Patients as Policy Actors fills this void. It should be required reading for anyone interested in how individual patients might mobilize together to help effect meaningful health care reform in the United States." -- Barron H. Lerner, MD, PhD * When Illness Goes Public: Celebrity Patients and How We Look at Medicine *"A valuable, timely book. It is a guide to developments in the field, critical with the new federal health care law soon to become fully operational. Highly recommended." * Choice *"This is a fascinating book that greatly enhances our understanding of the complexities surrounding the place of the patient in modern health care." * Social History of Medicine *Table of ContentsIntroduction: Patients as Policy Actors, by Nancy Tomes and Beatrix HoffmanPart I. Voices of the Silent1. Solitary Advocates: The Severely Brain Injured and Their Surrogates, by Joseph J. Fins and Jennifer Hersh2. Physician-Patient Communication in the Care of Vulnerable Populations: The Patient's Voice in Interpersonal Policy, by M. Robin DiMatteo, Kelly B. Haskard-Zolnierek, Summer L. Williams, and Desiree Despues3. Is It Time to Push Yet? The Challenges to Advocacy in U.S. Childbirth, by Elizabeth Mitchell Armstrong and Eugene Declercq4. A Pound of Flesh: Patient Legal Action for Human Research Protections in the Biotech Age, by Lori Andrews and Julie Burger ChronisPart 2. From Individual to Collective5. From Outsiders to Insiders: The Consumer-Survivor Movement and Its Impact on U.S. Mental Health Policy, by Nancy Tomes6. "Don't Scream Alone": The Health Care Activism of Poor Americans in the 1970s, by Beatrix Hoffman7. The Canary in the Gemeinschaft: Using the Public Voice of Patients to Enhance Health System Performance, by Mark Schlesinger8. Patient Appeals as Policy Disputes: Individual and Collective Action in Managed Care, by Marc A. RodwinPart 3. How Patients Matter9. The Power of Us: A New Approach to Advocacy for Rare Cancers, by Amy Dockser Marcus10. Patients and the Rise of the Nurse-Practitioner Profession, by Julie Fairman11. A House on Fire: Newborn Screening, Parents' Advocacy, and the Discourse of Urgency, by Rachel Grob12. Measuring Success: Scientific, Institutional, and Cultural Effects on Patient Advocacy, by Steven EpsteinEpilogue: Principles for Engaging Patients in U.S. Health Care and Policy, by Rachel Grob and Mark SchlesingerNotes on ContributorsIndex

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Book SynopsisTrade Review"Gripping, tragic, cogent, emotional, and haunting, reading through these narrative accounts and Grob's interpretation of them achieves the effect of great sociological monographs." * Contemporary Sociology *"Newborn screening is a most interesting area that impacts each and every individual in countless ways. In this truly inspiring work, Grob has captured what others have not been able to write about the topic. Essential." * Choice *"Testing Baby does what sociology is meant to do—transform our understanding of everyday life, connect the personal to the structural, and challenge our thinking. A rare accomplishment" -- Barbara Katz Rothman * City University of New York *"Testing Baby is an excellent book for medical professionals—including physicians, social workers, and genetic researchers—as well as policymakers. A relevant and important contribution that sits at the interface of medical science, reproduction, and parenthood, Grob’s work will provoke further reflection regarding the future role of technology and genetic information for the human experience." * World Medical and Health Policy *"Grob provokes the reader to think deeply about a taken-for-granted aspect of the medicalization of reproduction in the United States." -- Rayna Rapp, PhD. * Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America *"Her accessible, Testing Baby,...may be the start of a differenc kind of policy conversation." * Health Affairs *"Rachel Grob's timely and insightful analysis explores how families actually experience newborn screening. It will be read with profit by anyone interested in issues raised by medical screening programs generally." -- Diane B. Paul * The Politics of Heredity: Essays on Eugenics, Biomedicine, and the Nature-Nurtur *Table of ContentsAcknowledgments Chapter 1. Saving Babies, Changing Lives Chapter 2. Diagnostic Odysseys, Old and New: How Newbord Screening Transforms Parents' Encounters with Disease Chapter 3. Specters in the Room: Parenting in the Shadow of Cystic Fibrosis Chapter 4. Encounters with Expertise: Parents and Health Care Professionals Chapter 5. A House on Fire: How Private Experiences Ignite Public Voices Chapter 6. Brave New Worlds: Visible in a Single Drop of Blood? Notes References Index

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