Medicine: HIV/AIDS, retroviral diseases Books

Book SynopsisDrawing on rich and poignant interviews with mothers who have been diagnosed HIV-positive, ""Contradicting Maternity"" provides a rare perspective of motherhood from the mother's point of view. Whereas motherhood is often assumed to be a secondary identity compared to the central figure of the child, this book reverses the focus, arguing that maternal experience is important in its own right. The book explores the situation in which two very powerful identities, those of motherhood and of being HIV-positive, collide in the same moment. This collision takes place at the interface of complex, and often split, social and personal meanings concerning the sanctity of motherhood and the anxieties of HIV. The book offers an interpretation of how these personal and social meanings resonate with, and also fail to encompass, the experiences surrounding HIV-positive mothers. Photographs, academic literature and the accounts of real women are read with both a psychodynamic and discursive eye, highlighting the contradictions within maternal experience, as well as between maternal experience and the social imagination. ""Contradicting Maternity"" will appeal to scholars, students and practitioners in psychology, the social sciences and the health professions. The sensitive and readable analysis will also be of interest to mothers, whether HIV-positive or not.Table of ContentsFacing the HIV-positive Mother; the Joys of Motherhood; finding the HIV-positive mother; minding Baby's Body; mother's mind; mother's body; Thula Mama; contradicting maternity.

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Book SynopsisFinalist for the LGBTQ Nonfiction Award from Lambda Literary Queers and trans people in the 1980s and early ‘90s were dying of AIDS and the government failed to care. Lovers, strangers, artists, and community activists came together take care of each other in the face of state violence. In revisiting these histories alongside ongoing queer and trans movements, this book uncovers how early HIV care-giving narratives actually shape how we continue to understand our genders and our disabilities. The queer and trans care-giving kinships that formed in response to HIV continue to inspire how we have sex and build chosen families in the present. In unearthing HIV community newsletters, media, zines, porn, literature, and even vampires, Forget Burial bridges early HIV care-giving activisms with contemporary disability movements. In refusing to bury the legacies of long-term survivors and of those we have lost, this book brings early HIV kinships together with ongoing movements for queer and trans body self-determination. Trade Review"Forget Burial is well worth reading. The most successful parts of this book take the reader inside the kitchens, bedrooms, prisons, art galleries, and hospital waiting rooms where people laughed, fought, loved, and sometimes died together. Fink makes a strong case that the early years of the HIV epidemic provide models for living joyously and communally despite the myriad ways capitalist institutions leave individuals to fend for ourselves. In the process of “unburying” the stories of historically marginalized people, Fink rightly and eloquently depicts disability as a generative force."— H-Net “What histories inter as past, Forget Burial bears forth to account for our present. Extending caregiving as a method, the book examines how early HIV archival narrations of trans and disability activisms resurface in later novels, film/video, and online networks. Whether displaying and eroticizing disabilities, or inventing safer sex, these negotiated HIV interdependencies transform state violence and biomedical stigma into kinships for ‘body self-determination’ that brandish mutual care and institutional access through our unfolding crises.”— Jih-Fei Cheng, co-editor of AIDS and the Distribution of Crises "Marty Fink’s Forget Burial is a vital, much needed contribution to HIV/AIDS scholarship. A wondrous cornucopia of theory, cultural artifacts – fiction, ‘zines, video, memoirs, painting, blogs and oral histories – analysis and archival uncovering, Fink’s work here is stunning when it makes connections to movements today. Forget Burial is both an act of superb scholarship and of love."— Michael Bronski, author of A Queer History of the United States for Young People "[A] creative and original study...this book offers historians both useful theoretical frameworks for thinking about HIV/AIDS, disability, and the role of mutual care as well as an exciting collection of sources to learn from."— Social History of MedicineTable of ContentsIntroduction: Taking Care Chapter 1: Silence = Undead: Vampires, HIV Kinship, and Communities of Care Chapter 2: Caregiving Collations and Gender Trash from Hell: Trans Women’s HIV Archives Chapter 3: Chosen Families: Rejection, Desire, and Archives of Care Chapter 4: The Gift of Dykes: Naming Desire in Rebecca Brown’s Narratives of Care Chapter 5: Queering Customs: Unburying Care in My Brother and ACE Conclusion: Forget Burial Acknowledgements Works Cited About the Author

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Book Synopsis With the development of effective antiretroviral therapies (ART) in the mid-1990s, HIV became a treatable although serious condition, and people who are adherent to HIV medications can attain normal or near-normal life expectancies. Because of the success of ART, people 50 and older now make up a majority of people with HIV in high-income countries and other places where ART is accessible. The aging of the HIV epidemic is a global trend that is also being observed in low- and middle-income countries, including countries in sub-Saharan Africa, where the greatest number of older people with HIV reside (3.7 million). While globally over half of older adults with HIV are in sub-Saharan Africa, we have little information about the circumstances, needs, and resiliencies of this population, which limits our ability to craft effective policy and programmatic responses to aging with HIV in this region. At present, our understanding of HIV and aging is dominated by information from the U.S. and Western Europe, where the epidemiology of HIV and the infrastructure to provide social care are markedly different than in sub-Saharan Africa. Aging with HIV in Sub-Saharan Africa addresses this gap in our knowledge by providing current research and perspectives on a range of health and psychosocial topics concerning these older adults from across this region. This volume provides a unique and timely overview of growing older with HIV in a sub-Saharan African context, covering such topics as epidemiology, health and functioning, and social support, as well as policy and program implications to support those growing older with HIV. There are very few published volumes that address HIV and aging, and this is the first book to consider HIV and aging in sub-Saharan Africa. Most publications in this area focus on HIV and aging in Uganda and South Africa. This volume broadens the scope with contributions from authors working in West Africa, Botswana, and Kenya. The range of topics covered here will be useful to professionals in a range of disciplines including psychology, epidemiology, gerontology, sociology, health care, public health, and social work.Table of Contents1. Foreword Mark Brennan-Ing 2. Epidemiology of HIV in the older African population F. Xavier Gómez-Olivé The HIV epidemic has been associated with a younger population, but this no longer holds true. Before effective treatment was available, AIDS mortality in sub-Saharan Africa was rising, peaking in the early 2000s. Then, with the introduction of antiretroviral therapy, life expectancy of people living with HIV increased. Their survival resulted in a higher prevalence of HIV in the over-50 population, creating a double burden of diseases, where HIV coexists with noncommunicable conditions. This double burden places extra stress on an already weak primary health system, especially in rural settings. Older people are also acquiring HIV. Prevention campaigns mainly target young people. People over 50 may therefore engage in high-risk sexual behavior that exposes them to infection, resulting in higher than expected HIV incidence. It is crucial to understand how older people perceive their risk of contracting HIV in order to institute effective preventive measures. 3. Multiple chronicities: Aging bodies, wellbeing, and chronic HIV in Eastern Africa Josien de Klerk The concept of multiple chronicities is used to argue that living with chronic HIV is not a singular experience. Building on ethnographic work in two rural settings (Tanzania) and an urban setting (Kenya), this chapter frames older people’s living with the virus as a social experience, blurring the distinction between being infected and being affected by loss and prolonged caregiving. In East African where HIV is endemic, older people’s personal and family histories with the virus shape the multiplicity of chronic HIV. The embodied experience of chronic HIV for older people is not only about how the virus behaves in the older body but also about the management of traumatic memories of caregiving and loss. HIV interplays with other chronic conditions, such as noncommunicable diseases and economic conditions. The presentation of a senior service model that acknowledges HIV as multiple chronicity exemplifies how models of HIV care could be developed in endemic contexts. 4. Comorbid conditions occurring in older adults on antiretroviral therapy (ART) in Botswana: A retrospective cross-sectional cohort study of patient data Kabo Matlho Although people over the age of 50 account for more than 20% of those living with HIV in Botswana, they are largely underrepresented in HIV research and tailored interventions. Yet the interaction of aging and HIV may involve an increased risk for and exacerbation of chronic illnesses such as tuberculosis (TB); cardiovascular, kidney, and liver diseases; diabetes; hypertension; and cancers, as well as cognitive decline. These comorbidities complicate treatment and potentially increase mortality. This study gauged the existence and magnitude of comorbidities within the aging HIV cohort in Botswana using data from patients age 35 and older who were on first-line antiretroviral therapy. The data show a higher rate of specific comorbidities in adults 50 and older compared with those age 35-49. TB was particularly prevalent in older men, and hypertension was most prevalent among older women. Multimorbidity is pronounced among those aging with HIV in Botswana. Guidelines and policies need to adapt to the changing demographics and evolving challenges. 5. Expectations of health and illness in older age through the lens of the HIV-epidemic in Uganda Joseph Mugisha & Janet Seeley We focus on how the experience of living through the HIV epidemic shapes older people’s responses to (and fears about) chronic illness and health emergencies such as the COVID-19 pandemic. Using the example of Uganda, we examine the ways in which the particular time people encountered HIV in their lives affects their understanding and perception of ill health and concerns about the risks HIV continues to pose. For example, older people who nursed their relatives through HIV-related illness prior to the availability of antiretroviral therapy (ART) continue to see HIV as a death sentence; those living with HIV and on ART, schooled in the discipline of taking their tablets daily, doubt the seriousness of conditions for which there is a curative treatment. We draw on the work of Leventhal and colleagues (2016) and concepts from the “Common-Sense Model of Self-Regulation” of how the response to information on an asymptomatic chronic condition may be shaped by people’s experience of other conditions, such as HIV. 6. Sexual behavior among older adults with HIV in sub-Saharan Africa Mark Brennan-Ing, Jennifer E. Kaufman, Kristen Porter, Catherine MacPhail, Janet Seeley, S. E. Karpiak, Francois Venter, Monica Kuteesa, Louise Geddes, & Joel Negin We have little information about sexual health among older adults with HIV (OAH) in sub-Saharan Africa, limiting our ability to mount effective secondary prevention efforts. This information is vital since adults remain sexually active well into old age and may be a vector for HIV and other sexually transmitted infections. We used data from OAH from Uganda (N=101) and South Africa (N=108) and made comparisons on sexual health and risk behaviors. Substantial proportions of OAH in both countries were sexually active, but there were significant differences in HIV disclosure and condom use. Findings suggest that secondary HIV prevention for OAH requires greater attention. Differences in sexual activity and sexual risk among OAH in South Africa and Uganda point to cultural and social influences, warranting caution against broad generalizations about OAH in sub-Saharan Africa. There is a need for tailored policy and programmatic solutions to address sexual health. 7. “Ask those who are ahead about a buffalo”: Well-being of grandparents with HIV in Uganda and South Africa Kristen Porter, Catherine MacPhail, Janet Seeley, S. E. Karpiak, Francois Venter, Monica Kuteesa, Louise Geddes, Joel Negin, & Mark Brennan-Ing Sub-Saharan Africa continues to be the region most profoundly affected by HIV/AIDS in the world. The United Nations (April 2019) reported that of 98 countries, it is most common for older adults to be living with younger children in countries of sub-Saharan Africa. Older sub-Saharan African adults are frequently involved in grandchild care, but little is known on how this impacts the grandparents’ well-being. While more is known about grandparents caring for HIV-positive grandchildren (i.e., “AIDS orphans”), the impact of caring for grandchildren on HIV-positive grandparents is nascent. This chapter draws upon a cross-sectional study of older grandparents living with HIV in Uganda and South Africa (N=209). Using a stress process framework, the role of potential stress factors (e.g., cohabitating with grandchild, comorbidities, health-related quality of life) on psychological well-being is examined. 8. Mental health in older people living with HIV in sub-Saharan Africa: A review and future research recommendations Charlotte Bernard & Nathalie de Rekeneire In sub-Saharan Africa, as elsewhere, increasing use of HIV medical services and antiretroviral therapy (ART) mean that HIV is now considered a chronic disease. With aging, people living with HIV experience not only physiological complications but also neuropsychological and social issues. Two mental health disorders are mainly observed in this population: HIV associated neurocognitive disorders (HAND) and depression. The prevalence of HAND remains high despite ART use, and the aging process may exacerbate it. Both HAND and depression negatively affect ART adherence, HIV outcomes, and quality of life. These public health issues could cause significant burden on healthcare systems and human resources, especially in sub-Saharan Africa, the world region least prepared to deal with HIV. This chapter presents a review of the current knowledge about neurocognitive impairment and depression in older people living with HIV in sub-Saharan Africa. We then propose recommendations for future research. 9. ‘The support keeps me strong’: Social support of older people living with HIV in South Africa Catherine MacPhail, Megan Mattingly, Victor Minichiello, Francois Venter, Stephen Karpiak, & Mark Brennan-Ing Much is known of the experience of older South Africans as caregivers and resources for younger generations affected by HIV, but less is known of social support experienced by those aging with HIV. This chapter presents data from qualitative interviews conducted with 15 South Africans over 50 years of age living with HIV in inner-city Johannesburg. Contrary to reports of stigma and lack of support in developed countries, the majority experienced amplified social and practical support within their families, if not outside of them, particularly from adult children. Women were additionally supported by siblings and men particularly by their spouses. Practical and physical support in daily tasks and other activities specifically associated with HIV was more commonly mentioned than emotional support. At the same time, participants noted that their own caregiving roles did not diminish. In particular, they continued to financially support extended family members, and women remained a significant source of domestic labor. 10. A comparison of social support resources among older adults with HIV in Uganda and South Africa Mark Brennan-Ing, Jennifer E. Kaufman, Kristen Porter, Catherine MacPhail, Janet Seeley, S. E. Karpiak, Francois Venter, Monica Kuteesa, Louise Geddes, & Joel Negin Research on older adults with HIV (OAH) finds they have high rates of comorbid conditions in addition to HIV, suggesting they will require increasing assistance from their informal social networks. But data are scarce on social network dynamics of OAH in sub-Saharan Africa. To address this gap, we examined social support resources among OAH from Uganda (N=101) and South Africa (N=108). There are significant differences between OAH in these two countries in the composition of their social networks, support provided, and perceptions of social support sufficiency. Despite high levels of informal support in both countries, sizable proportions felt that support from family and friends was insufficient to meet their needs. Given the significant differences between countries, research is needed to better understand the cultural/societal factors affecting social care among older adults with HIV in sub-Saharan Africa. Further, policy and program initiatives to meet unmet support needs are sorely needed. 11. Reprogramming HIV prevention and service provision for older adults Jepchirchir Kiplagat People age 50 and older represent 12% of people living with HIV (PLWH) in western Kenya, and the number is expected to rise. The situation calls for tailoring approaches to both prevention and care. To achieve the country’s goal of 80% of PLWH knowing their status, there is an urgent need to include older adults in prevention messaging and testing services. Door-to-door HIV testing and counselling would decrease travel and transportation barriers for older adults. In terms of care, it is challenging to manage HIV in addition to comorbid conditions that are common among older adults. When services are fragmented, seeking care for multiple conditions is expensive and makes adherence more difficult. In addition, both neurocognitive disorders and visual impairment affect medication adherence among older people – particularly those living alone. Meeting the needs of older adults will require transforming healthcare facilities to integrate services and sharing information between providers. 12. Policy innovations for an aging HIV epidemic in sub-Saharan AfricaRuth Finkelstein The population of older adults with HIV is approaching four million and will continue to grow in the foreseeable future. While the aging of HIV in sub-Saharan Africa and elsewhere represents a success story for antiretroviral therapy, this success also brings challenges, as these older adults have increasing needs for health and social care due to multimorbidity resulting from HIV and age-related chronic conditions. The aging of people with HIV in this region is further complicated by the lack of financial, healthcare, and community-based resources that support healthy aging, like those available in high-income countries. In this chapter, we outline several policy initiatives needed to support older adults with HIV in sub-Saharan Africa to meet the challenges of this aging epidemic.

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Book SynopsisThis report shows how community-led interventions are central to achieving the end of AIDS and to sustaining the gains into the future. People living with or affected by HIV have driven progress in the HIV response--reaching people who have not been reached; connecting people with the services they need; pioneering innovations; holding providers, governments, international organizations and donors to account; and spearheading inspirational movements for health, dignity and human rights for all. They are the trusted voices. Communities understand what is most needed, what works, and what needs to change. Communities have not waited to be handed their leadership roles -- they have taken the roles on themselves and held fast in their insistence on doing so. They have applied their skills and determination to help tackle other pandemics and health crises too, including COVID-19, Ebola and mpox. Letting communities lead builds healthier and stronger societies. This report shines a light on the underreported story of the everyday heroes of the HIV response. But it is much more than a celebration of the achievements of communities. It is an urgent call to action for governments and international partners to enable and support communities in their leadership roles.

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Book SynopsisEvery year on the occasion of World AIDS Day, 1 December, the Joint UN Programme on HIV/AIDS (UNAIDS) releases a report on pressing issues facing the global response to the AIDS pandemic. As the AIDS and COVID-19 pandemics collide, the 2021 World AIDS Day report warns that the colossal new challenges created by COVID-19 threaten the gains made against AIDS thus far. There have been substantial setbacks, particularly during the first six months of the crisis. People living with HIV are also at elevated risk of COVID-19-related morbidity and mortality. In many places, the upheaval caused by COVID-19 has summoned the inventiveness and resilience that have become hallmarks of the HIV response. HIV programmes that are well-resourced, willing to adapt, and anchored in strong community involvement have tended to cope the best. The Global AIDS Strategy 2021-2026 and the UN General Assembly's 2021 Political Declaration on Ending AIDS call on countries to address inequalities and close gaps. With no time to spare, those agreed actions are not being made at the required speed and scale. What is at stake is bigger than AIDS. During negotiations on a global framework for pandemic prevention, preparedness, and response, the hard-won successes and bitter failures from the response to AIDS have experiences to share. Those lessons must be quickly learned and applied to end AIDS within the next decade, to swiftly defeat COVID-19, and to proactively confront the pandemics of tomorrow

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Book SynopsisThe hunt for the origin of the AIDS virus began over twenty years ago. It was a journey that went around the world and involved painstaking research to unravel how, when, and where the virus first infected humans. Dorothy H. Crawford traces the story back to the remote rain forests of Africa - home to the primates that carry the ancestral virus - and reveals how HIV-1 first jumped from chimpanzees to humans in rural south east Cameroon. Examining how this happened, and how it then travelled back to Colonial west central Africa where it eventually exploded as a pandemic, she asks why and how it was able to spread so widely. From hospital intensive care wards to research laboratories and the African rain forests, this is the wide-ranging story of a killer virus and a tale of scientific endeavour.Table of ContentsPreface ; Introduction: a new disease ; 1. The puzzle of HIV-1 ; 2. Tracing HIV to its roots ; 3. The primate connection ; 4. From rain forest to research laboratory ; 5. Timing SIV cpz's jump to humans ; 6. A vital first step for HIV-1 group M ; 7. Beginning the epic journey ; 8. HIV-1 group M meets the challenge ; 9. Past, present, and future pandemics ; References ; Further reading ; Glossary

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Book SynopsisThis new and revised edition of Culture, Society and Sexuality brings together and makes accessible a broad and international selection of readings to provide insights into the social, cultural, political and economic dimensions of sexuality and relationships, and emerging discourses around sexual and reproductive rights. Clearly structured and presented, the book makes an extremely useful reference for students and researchers. Section one focuses on the social and cultural construction of sexuality as an emerging field of inquiry over the course of recent decades, and examines some of the most important theoretical insights and areas of investigation that have emerged as this field has developed. Section two links research on the construction of sexuality to a growing body of work on gender and sexuality in relation to a wide range of practical issues and contemporary social policy debates. It is an essential reader not only for students and researchers in tTable of Contents1. Introduction Section 1: Culture, Society and Sexuality Part 1: Conceptual Frameworks 2. Sexual Matters: On Conceptualizing Sexuality in History 3. Sexual Scripts 4. Anthropology Rediscovers Sexuality: A Theoretical Comment Part 2: Gender and Power 5. Gender as a Useful Category of Historical Analysis 6. ‘Gender’ for a Marxist Dictionary: The Sexual Politics of a Word 7. ‘That We Should All Turn Queer?’: Homosexual Stigma in the Making of Manhood and the Breaking of a Revolution in Nicaragua Part 3: From Gender to Sexuality 8. Discourse, Desire and Sexual Deviance: Some Problems in a History of Homosexuality 9. Thinking Sex: Notes for a Radical Theory of the Politics of Sexuality 10. ‘The Unclean Motion of the Generative Parts’: Frameworks in Western Thought on Sexuality Part 4: Sexual Identities/Sexual Communities 11. Compulsory Heterosexuality and Lesbian Existence 12. The Hijras of India: Cultural and Individual Dimensions of an Institutionalized Third Gender Role 13. Capitalism and Gay Identity Section 2: Sexual Meanings, Health, and Rights Part 5: Gender, Power and Rights 14. Masculinities and Globalization 15. Violence, Sexuality, and Women’s Lives 16. Reproductive and Sexual Rights: A Feminist Perspective Part 6: Sexual Categories and Classification 17. HIV, Heroin and Heterosexual Relations 18. An Explosion of Thai Identities: Global Queering and Re-Imaging Queer Theory 19. Bhai-behen, True Love, Time Pass: Friendships and Sexual Partnerships among Youth in an Indian Metropolis Part 7: Sexual Negotiations and Transactions 20. Masculinity and Urban Men: Perceived Scripts for Courtship, Romantic, and Sexual Interactions with Women 21. Some Traditional Methods are More Modern than Others: Rhythm, Withdrawal and the Changing Meanings of Sexual Intimacy in Mexican Companionate Marriage 22. Mobility, Sexual Networks and Exchange among Bodabodamen in Southwest Uganda Part 8: Contemporary and Future Challenges 23. Gendered Scripts and the Sexual Scene: Promoting Sexual Subjects among Brazilian Teenagers 24. HIV and AIDS-related Stigma and Discrimination: A Conceptual Framework and Implications for Action 25. Bracketing Sexuality: Human Rights and Sexual Orientation – A Decade of Development and Denial at the UN

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Book SynopsisThe Pocket Guide to AIDS is succinct review of HIV/AIDS from a human-interest perspective. Chapters focus on some of the common patterns and prevention of HIV transmission and debunks misconceptions about HIV and AIDS. Brief descriptions the human immune system and epidemiology of HIV are included. The cultural component of disease, treatment and living with AIDS is central to much of this Pocket Guide intended to synthesize, explain and de-mystify HIV and AIDS.Table of ContentsHIV/AIDS is Easy to Prevent. A Preventable Disease. Clean Needles in the Developing World. Mosquitos Do Not Spread HIV. Small Personal Choices and Big Results. The Root of the Problem. A Tale of Incomplete Hopes. To Fund or Not to Fund? That is Not the Whole Question. The Human Immune System: Multi-level Protection. Strain 1, Group M and the Epidemiology of HIV. What To Do and Not To Do? As Simple as ABC or ABCC? Alcohol and AIDS. HIV in the Age of the Desaperacidas. The Military-AIDS Complex: AIDS and International Security. Counting the Costs: More Deadly Than Military Conflict. "This is Not Your Land. Go Away AIDS": Music and Orphans. Cultural Differences and AIDS Awareness. AIDS and the Hispanic Community. Culture and AIDS Transmission: The Example of India. Indian Traditions, Women and HIV. Confession and Complaint: Bad, Worse and Worst. The Language of AIDS. These Died of AIDS. Etcetera: These are the Houses That AIDS Built. AIDS Personified.

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Book SynopsisIn the global race to reach the end of AIDS, why is the world slipping off track? The answer has to do with stigma, money, and data. Global funding for AIDS response is declining. Tough choices must be made: some people will win and some will lose. Global aid agencies and governments use health data to make these choices. While aid agencies prioritize a shrinking list of countries, many governments deny that sex workers, men who have sex with men, drug users, and transgender people exist. Since no data is gathered about their needs, life-saving services are not funded, and the lack of data reinforces the denial. The Uncounted cracks open this and other data paradoxes through interviews with global health leaders and activists, ethnographic research, analysis of gaps in mathematical models, and the author''s experience as an activist and senior official. It shows what is counted, what is not, and why empowering communities to gather their own data could be key to ending AIDS.Trade Review'Davis vividly shows that not everything that counts can be counted, and not everything that can be counted counts. As an anthropologist, a human rights activist and a former Global Fund official, Davis is an insider and an outsider, drawing a rich, nuanced and compelling portrait of the HIV response today.' Joseph Amon, Director of Global Health, Drexel University, Dornsife School of Public Health'In The Uncounted, Davis has successfully synthesized the complex decisions guiding bilateral and multilateral funding agencies in the HIV response. Given her own experience and that the book is informed by systematic reviews and key informant interviews, it is accurate while managing to provide a humanized narrative to international development.' Stefan Baral, Director of the Key Populations Program at the Center for Public Health and Human Rights'[The Uncounted] pushes those in global health governance to reflect on how data are selected and examined … offering not a neatly packaged set of solutions, but instead an inclusive opportunity to contest and remake data to be people-centered.' Hanna Huffstetler and Benjamin Mason Meier, Global Public Health'Davis provides a highly readable account of not only what these messy realities look like but, crucially, how tools of data governance work.' Sophie Harman, International Affairs'… must-read book for those academics and activists willing to get their head around the system of AIDS knowledge as well as the social and semantic spaces and new sets of relations that it sets in motion.' Julie Billaud, PoLAR: Political and Legal Anthropology Review'The book is wide in scope and deep in breadth … The Uncounted offers an important window into AIDS governance, opening up ways to study power and the construction of regimes of truth that shape our contemporary world. It should become a must-read book for those academics and activists willing to get their head around the system of AIDS knowledge as well as the social and semantic spaces and new sets of relations that it sets in motion.' Julie Billaud, PoLAR OnlineTable of Contents1. Contested indicators; 2. The uncounted: Key populations; 3. "Something more than data”; 4. Cost-effectiveness and human rights; 5. Modeling the end of AIDS; 6. Sustainability, transition and crisis; 7. Listening to women; 8. "So many hurdles just to leave the house"; 9. The Panopticon and the Potemkin; 10. Data from the ground up.

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Book Synopsis“Nathalia Holt presents a thorough account of the research that provides scientists with hope that a cure will one day be achievable... and her empathy shines through in her prose. This is as important a social history as it is a medical document.”—The Daily Beast Two patients—each known in medical history as the Berlin Patient—were cured of the HIV virus. The two patients’ disparate cures came twelve years apart, but Nathalia Holt, an award-winning scientist at the forefront of HIV research, connects the molecular dots of these cases for the first time. Scientists are known to maintain a professional distance from those they study, but sometimes scientists are not just investigators, they are caregivers, too. Cured illustrates that even in the era of high-tech and big pharma, the way doctors and patients communicate remains a critical ingredient in the advance of this science. Holt offers a kind of hope that the thir

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Book SynopsisIn this "frightening and fascinating masterpiece" (Walter Isaacson), David Quammen explores the true origins of HIV/AIDS.Trade Review"Compelling…[an] utterly gripping story." -- Abigail Zuger - The New York Times"To call David Quammen one of our greatest science writers is to belittle him. He is one of our greatest writers, period." -- Hampton Sides, best-selling narrative historian and editor at large at Outside magazine"[An] intense study of the origins of AIDS. With Sherlockian verve… Quammen’s portrait of the real ‘Patient Zero’… is a masterful summing-up of the evidence." -- Nathan Wolfe - Nature

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Book SynopsisWolinsky.Trade ReviewAs a model for viral evolution, this book is a gold mine. [It] should be used as a starting point for those who want to browse the huge literature on the subject... [and] to those who devise policies for the containment of the epidemic. European Molecular Biology Organization ReportsTable of ContentsContributorsPrefacePart I: Introduction to HIVChapter 1. Molecular Biology of HIVChapter 2. Global Diversity in HIVPart II: Molecular Methods For Studying HIV DiversityChapter 3. Phylogenetics and the Study of HIVChapter 4. Modeling the Molecular Evolution of HIV SequeuencesChapter 5. Statistical Approaches to Detecting Recombination Chapter 6. The Molecular Population Dynamics of HIV-1Chapter 7. Use of Phylogenetic Inference to Test an HIV Transmission HypothesisChapter 8. Coalescent Approaches to HIV Population GeneticsPart III: Case Studies of HIV EvolutionChapter 9. Levels of Diversity Within and Among Host Individuals Chapter 10. The Phylogenetics of Known Transmission HistoriesChapter 11. HIV Evolution and Disease Progression Via Longitudinal Studies Chapter 12. Perinatal HIV InfectionChapter 13. Determinants of HIV-1 Protein EvolutionChapter 14. Evolution of HIV-1 Resistance to Antiviral AgentsIndex

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Book Synopsis"Accompanied by updated references and resources, the sixth edition of The Guide to Living with HIV Infection offers new hope for people living with a virus that once left no hope at all.Trade ReviewAn excellent resource for a motivated patient... Written and compiled by people who have genuinely and carefully listened to their patients... An admirable achievement. AIDS Care Thoughtful and clearly written... [This] is a wonderful addition to the literature on HIV infection and will fill a very special need for many patients, their families and friends, and their providers. I recommend it highly. -- Gerald H. Friedland, M.D. Journal of the American Medical Association An excellent source of information for patients. -- Christine Jamjian Journal of Pain and Palliative Care Pharmacotherapy 2007Table of ContentsIntroduction: About This Book1. When First Diagnosed: Understanding and Communicating about HIV2. Preventing Transmission of HIV Infection: Understanding How HIV Is Spread3. HIV Infection and Its Treatment4. HIV Infection and Its Effects on the Emotions5. HIV Infection and Its Effects on Interpersonal Relations6. The Complications of HIV Infection and Their Treatment7. Options for Medical Care: Medical Personnel and Procedures8. Traditional Medicine9. Practical Matters: Making Legal, Financial, and Medical Decisions10. On Dying: Preparing for and Accepting Death11. On Living: Tactics for Preserving Mental Health12. What's AheadAppendixesA. Resources: Where to Go for HelpB. Understanding Tests for HIVGlossaryAcknowledgmentsIndex

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Book SynopsisAccompanied by updated references and resources, the sixth edition of The Guide to Living with HIV Infection offers new hope for people living with a virus that once left no hope at all.Trade ReviewAn excellent resource for a motivated patient... Written and compiled by people who have genuinely and carefully listened to their patients... An admirable achievement. AIDS Care Thoughtful and clearly written... [This] is a wonderful addition to the literature on HIV infection and will fill a very special need for many patients, their families and friends, and their providers. I recommend it highly. -- Gerald H. Friedland, M.D. Journal of the American Medical Association An excellent source of information for patients. -- Christine Jamjian Journal of Pain and Palliative Care Pharmacotherapy 2007Table of ContentsIntroduction: About This Book1. When First Diagnosed: Understanding and Communicating about HIV2. Preventing Transmission of HIV Infection: Understanding How HIV Is Spread3. HIV Infection and Its Treatment4. HIV Infection and Its Effects on the Emotions5. HIV Infection and Its Effects on Interpersonal Relations6. The Complications of HIV Infection and Their Treatment7. Options for Medical Care: Medical Personnel and Procedures8. Traditional Medicine9. Practical Matters: Making Legal, Financial, and Medical Decisions10. On Dying: Preparing for and Accepting Death11. On Living: Tactics for Preserving Mental Health12. What's AheadAppendixesA. Resources: Where to Go for HelpB. Understanding Tests for HIVGlossaryAcknowledgmentsIndex

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Book SynopsisFew diseases have provoked as many wild moralistic leaps or stringent attempts to measure, classify, and define risk and treatment standards as AIDS. In this book, the author documents the emergence of a diverse range of community-based, nongovernmental, and civil society groups engaged in patient-focused AIDS advocacy worldwide.Table of ContentsList of Tables and FiguresAcknowledgmentsAbbreviations1. Introduction2. Against Science and the Stigmatization of the "At-Risk" Body3. Against Pharma and the Intellectual Propertization of Life4. Against Governance and the Oligopolization of Power5. Against Community and the Expertization of Activism6. ConclusionAppendixNotesReferencesIndex

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