Medical ethics and professional conduct Books

Book SynopsisA host of ethical questions has arisen recently in response to the development of new reproductive technologies. This text helps students of theology, philosophy and health studies, as well as lay readers to find answers to these questions.Trade Review"The Prenatal Person is a welcome contribution to dialogue between adherents of Christian and secular approaches to controversial bioethical issues about the beginning of human life. It is refreshing to find a Catholic scholar addressing these issues in a way that does not rely heavily on religious teachings that only a Catholic could be expected to accept. This is a book I will recommend to my students, so that they can consider a reasoned approach that is very different to my own." Peter Singer, Princeton University "...there are many useful insights and The Prenatal Person is helped by attention to detail in medical matters." The TabletTable of ContentsPreface. Acknow;edgments. Part I: Foundations. 1. Morality for persons. Utilitarianism. Contemporary Concept of Person. Traditional Concept of Person. Survival of Traditional Morality. 2. Life, Health, Ethics and The Bible. Biblical Interpretations and Bioethics. Life, Health, Sickness and Death: Old Testament. Life and Healing: New Testament. Lilfe After Death in the Bible. Relevance of the Bible for Health Ethics. 3. Ethical Principles for Health Care. Christian Vision of Human Dignity. Respect for Human Life. Duty of Reasonable Care of Health and Life. Doing Good and Permitting Harm. Responsibilities of Healthcare Professionals. Christian and Secular Ethicists in a Democracy. Part II: Ethical Issues. 4. Human Embryo. Beginning of the Embryo. Research and Clinical Use of Embryos. Respect for the Embryo. Ethical Evaluation of the Use of Embryos in Research and Clinical Practice. 5. The Pregnant Woman and Her Fetus. Support for Pregnant Women. Embryonic and Fetal Mortality and Morbidity. Induced Abortion. Long-term Sequelae of Abortion. Fetus with Anencephaly. Ethical Evaluation of Issues During Pregnancy. 6. Infertility and Artificial Reproductive Technology. Infertility. Assisted Reproductive Technology and Ethics. 7. Prenatal Screening and Diagnosis. Prevalence of Fetal Congenital Malformations. Pregnant Women's Anxieties. Current Procedures. Therapeutic Benefits. Ethical Evaluation of Prenatal Screening and Diagnosis. 8. The Fetus. Fetal Therapies. Use of Fetal Tissue. Fetal Pain. Care of the Fetus and Ethics. 9. Newborns. Breastfeeding. Perinatal Mortality. Low Birthweight Babies. Delivery for HIV Infected Pregnant Women. Noenatal Transplants. Ethical Issues in the Treatment of Newborns. Notes. Select Bibliography. Glossary. Index.

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Book SynopsisA host of ethical questions has arisen recently in response to the development of new reproductive technologies. This text helps students of theology, philosophy and health studies, as well as lay readers to find answers to these questions.Trade Review"The Prenatal Person is a welcome contribution to dialogue between adherents of Christian and secular approaches to controversial bioethical issues about the beginning of human life. It is refreshing to find a Catholic scholar addressing these issues in a way that does not rely heavily on religious teachings that only a Catholic could be expected to accept. This is a book I will recommend to my students, so that they can consider a reasoned approach that is very different to my own." Peter Singer, Princeton University "...there are many useful insights and The Prenatal Person is helped by attention to detail in medical matters." The TabletTable of ContentsPreface. Acknow;edgments. Part I: Foundations. 1. Morality for persons. Utilitarianism. Contemporary Concept of Person. Traditional Concept of Person. Survival of Traditional Morality. 2. Life, Health, Ethics and The Bible. Biblical Interpretations and Bioethics. Life, Health, Sickness and Death: Old Testament. Life and Healing: New Testament. Lilfe After Death in the Bible. Relevance of the Bible for Health Ethics. 3. Ethical Principles for Health Care. Christian Vision of Human Dignity. Respect for Human Life. Duty of Reasonable Care of Health and Life. Doing Good and Permitting Harm. Responsibilities of Healthcare Professionals. Christian and Secular Ethicists in a Democracy. Part II: Ethical Issues. 4. Human Embryo. Beginning of the Embryo. Research and Clinical Use of Embryos. Respect for the Embryo. Ethical Evaluation of the Use of Embryos in Research and Clinical Practice. 5. The Pregnant Woman and Her Fetus. Support for Pregnant Women. Embryonic and Fetal Mortality and Morbidity. Induced Abortion. Long-term Sequelae of Abortion. Fetus with Anencephaly. Ethical Evaluation of Issues During Pregnancy. 6. Infertility and Artificial Reproductive Technology. Infertility. Assisted Reproductive Technology and Ethics. 7. Prenatal Screening and Diagnosis. Prevalence of Fetal Congenital Malformations. Pregnant Women's Anxieties. Current Procedures. Therapeutic Benefits. Ethical Evaluation of Prenatal Screening and Diagnosis. 8. The Fetus. Fetal Therapies. Use of Fetal Tissue. Fetal Pain. Care of the Fetus and Ethics. 9. Newborns. Breastfeeding. Perinatal Mortality. Low Birthweight Babies. Delivery for HIV Infected Pregnant Women. Noenatal Transplants. Ethical Issues in the Treatment of Newborns. Notes. Select Bibliography. Glossary. Index.

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Book SynopsisHow far should society go in permitting people to buy and sell goods and services? Radin addresses this controversial issue in an exploration of contested commodification. As a philosophical pragmatist, the author argues for an incomplete commodification, in which some contested things can be bought and sold, but only under regulated circumstances.Trade ReviewRadin's book is both complex in structure and highly nuanced in argument. Essentially it is a critique of existing theories of commodification that develops a distinctive approach to understanding commodification...Radin, like liberal political theorists, seeks a middle way between universalized commodification and universalized noncommodification, instead of a thesis of compartmentalized commodification she offers a thesis of 'incomplete commodification'...[An] insightful and rewarding book. -- Deryck Beyleveld * Journal of Law and Society *In this thought-provoking book Margaret Jane Radin asks us to consider whether there are some areas of social life which should be off-limits to the market, and whether some human interactions should be exempted from market-style forms of description and analysis. Although Radin is not the first theorist to address these issues, her eloquently written book contains some of the most sophisticated treatment they have received thus far. She convincingly makes the point that unless we transcend those models of human behaviour which characterize all human interactions as market exchanges, we may find ourselves unable to engage in the forms of valuing required for the maintenance and promotion of a humane society...The book represents a significant contribution to debate about the role of markets and market ideology in modern democratic polities. Future discussions of these issues will undoubtedly be influenced by Radin's work. -- A. J. Walsh * Philosophical Quarterly *Margaret Radin asks, why not put everything up for sale? Her answer is that doing so would impair human flourishing by compromising the social contexts needed for personhood. She offers a general approach to determining the ethical limits of markets and shows how it works in cases ranging from organ sales, prostitution, and commercial surrogate motherhood to the 'free marketplace of ideas,' compensation in torts, and public choice theories of democracy. Radin's contributions to this controversy are consistently illuminating and through provoking...For anyone interested in the ethical limitations of markets, this book is required reading. -- Elizabeth Anderson * Ethics *What does it say about us, and what does it do to us, when we talk about people as commodities to be traded in the market? Radin's profound, subtle, and disturbing book asks how the texture of our human world may be altered by ways of speaking and thinking, apparently innocuous and nicely scientific, that we import from market economics and use to characterize non-market behavior. A distinguished writer about property law, Radin avoids facile answers and stresses the complexity of the issue. Nonetheless, she leaves her reader with a warning: the models we use shape the people we may become. One day we may find to our grief (or, worse still, lack of grief) that our intellectual inventions have reinvented our world. -- Martha Nussbaum, University of ChicagoProfessor Radin has brought very considerable intellectual courage and perspicacity to bear on one of the most vexing and central issues in any liberal, market-based society--where should the market (and market rhetoric) end, and politics begin in the allocation of scarce resources? Law and economics scholars, who more or less assume the virtues of the private market, in most contexts, will be especially challenged by Radin's anlysis. Her book is also beautifully written and displays an elegance and lucidity that is absent in much modern legal scholarship. -- Michael J. Trebilcock, University of TorontoAt a time when belief in markets is ascendant throughout the world, Contested Commodities challenges--at the most fundamental level--the very idea of exchanging things for money. Margaret Jane Radin's arguments are subtle and nuanced, and her central claim about the potentially dehumanizing effects of exchange is powerful and important. No one in recent decades has made this case against the dominance of markets as well as Radin. -- David Strauss, University of Chicago

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Book SynopsisDemocrats and Republicans fight endlessly over health care, but neither side disputes one of the system’s most basic flaws: the foisting on patients of substantial costs through deductibles, copayments, and coinsurance. Marshalling a decade of research, Christopher Robertson shows why this model is dysfunctional and offers ideas for improvement.Trade ReviewRead this important and timely book. Then send it to every politician and health policy wonk you know. Your financial solvency and health depend on their learning what this book teaches. -- Arthur L. Caplan, NYU Langone Medical CenterA masterful forensic dissection of the self-imposed plague of health care financing, and options for potential cures. A must-read for all health care students, leaders, and elected officials. -- Richard Carmona, 17th Surgeon General of the United StatesIn this sweeping and superb book, Robertson exposes the dark side of an appealing American narrative: that giving insured patients ‘cost-sharing’ responsibilities is good for us all. Exposed reveals that doing so creates problems much bigger than the one it aims to solve. -- Michelle M. Mello, Stanford Law SchoolExposed forcefully and persuasively demolishes the shibboleth that the so-called ‘cost-share’ elements of insurance in the U.S. cut costs and improve healthcare decisions and outcomes. A must-read for anyone interested in making sense of the morass of U.S. healthcare. -- George Loewenstein, Carnegie Mellon UniversityA powerful argument against patient cost-sharing. Through extensive data, international experiences, and a deep dive into theory and philosophy, Exposed convincingly demonstrates that charging sick people is not only a blatantly unfair practice, but one that also has little financial benefit and risks further health impairment. -- Thomas Rice, UCLA Fielding School of Public HealthAn important addition to a debate that is sure to be front and center in the 2020 elections. -- Glenn Altschuler * Florida Courier *Compassionate, timely, content heavy, and incredibly well written…After reading it, one hopes that Robertson, one of the true expert voices in health law and policy, continues engineering creative ideas for years and years to come. -- Isaac D. Buck * Journal of Legal Medicine *

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Book SynopsisArgues that superstition become pervasive in contemporary culture. This title asks why people persist in superstitious convictions long after science has shown them to be ill-founded. It examines the controversies and concludes that science is the only way we have of understanding the world.Trade Review"Park writes with bemusement at human folly but also with outrage at the misappropriation of science."--Robert A. Segal, Times Higher Education "Park uses his personal story to great effect to champion scientific thinking. He also gets under its skin, to explain how, as well as what, science delivers."--Mark Henderson, Times (London) "For Princeton physicist Robert Park, science serves as a rapier for skewering all beliefs not sustained by empirical proof. Predictably, religion heads the list of targets ... [Park] pits experimental rigor not only against the creeds of antiquity but also against the irrationality of New Age gurus who evangelize for alternative medicines or extrasensory perception... Sure to spark sharp debate."--Bryce Christensen, Booklist "Parks' main target in the first part of his book is Christianity, especially its creationist and so-called intelligent-design offshoots. However, the world's other religions do not emerge unscathed... He takes on New Age beliefs, reserving particular scorn for those practitioners who add the word 'quantum' to unrelated topics like 'healing' to give themselves an imprimatur of scientific respectability... Both religious and non-religious scientists are sure to find something of interest in the rest."--Physics World "Genial anecdotal tales introduce each chapter, which are then followed with the cutting criticism of various pseudobelief systems. Dogmatic in his emphasis that science is the only way of knowing, Park weighs faith-based beliefs against scientific evidence and makes no allowance for other ways of knowing... The controversial content should provide debate material for the high school and young college crowd as well as the general public."--R.A. Hoots, Choice "With acerbic wit, Park, professor of physics at the University of Maryland, asks why we believe weird things even when no evidence supports our claims... A humanist and naturalist, Park asserts that science rejects appeal to authority in favor of empirical evidence."--Roy E. Perry, The Tennessean Bob Park is a sceptic's sceptic, a consummate critical thinker, a no-nonsense scientist who knows baloney when he detects it... Superstition is more than an entertaining romp through the weird and wonderful. It is an important contribution to the sceptical literature ... that every scientist needs to be aware of."--Michael Shermer, Nature Physics "Guns blazing, Park hunts down what he calls pseudo-science... I found myself enjoying much of this feisty book as a kind of entertainment that raises serious questions."--Evelyn Juers, AustralianTable of ContentsIntroduction: Lessons from a tree vii CHAPTER ONE: A BIGGER PRIZE 1 In which we discover scientists of faith CHAPTER TWO: THE SECRET OF LIFE 23 In which Darwin's theory of evolution by natural selection survives CHAPTER THREE: MIRACLE AT COLUMBIA 56 In which both sides pray for victory CHAPTER FOUR: GIVING UP THE GHOST 79 In which we search for the soul CHAPTER FIVE: THE SILENT ARMY 93 In which we search for an afterlife CHAPTER SIX: THE TSUNAMI GOD 104 In which the innocent suffer CHAPTER SEVEN: THE NEW AGE 116 In which anything goes CHAPTER EIGHT: SCHRODINGER'S GRAVE 129 In which quantum mysticism is found to be superstition CHAPTER NINE: THE BARBARY DUCK 142 In which the body heals itself CHAPTER TEN: THE DEER 161 In which the placebo effect is explained CHAPTER ELEVEN: THE MORAL LAW 188 In which we instinctively know right from wrong CHAPTER TWELVE: THE LAST BUTTERFLY 202 In which there is no place else to go Bibliography 217 Index 221

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Book SynopsisTrade ReviewOne of Library Journal's Best Sci-Tech Books, Health Sciences category for 2009 Recommended Reading, 2011 James A. Hamilton Award, American College of Healthcare Executives "No one who comes to Taming the Beloved Beast with an open mind can deny the intellectual and ethical power of the questions he poses. He probes issues central to resolving the enormous problems and inequities--not to mention the looming financial threats--that bedevil American medical care."--Beryl Lieff Benderly, Science "While bringing insightful ethical, social, political and economic perspectives to this timely, well-documented discourse of the ballooning costs of American health care and Medicare, Callahan concentrates on the growing costs of medical technology, which, along with uncontrolled governmental healthcare spending, threaten to drag this country into financial crisis... This excellent overview of reaching the goal of universal health care is a good resource for anyone concerned with the future of health care and its economics."--Library Journal "The rising cost of health care has preoccupied policy makers and the public for decades. Callahan contends that the principal cause of rising costs lies in Americans' infatuation with new medical technologies... Callahan argues that the U.S. must rethink the goals of medical technologies and accept new limits on the availability and appropriate use of expensive medical treatments."--Choice "This book reflects the author's expertise not only as a researcher but also as a philosopher. He presents his arguments, discusses alternatives, and anticipates counterarguments, all with ample citations... [T]his book will engage readers seeking to gain insight on health care reform and cost control from the perspective of a pragmatic philosopher."--Leslie R. Pyenson, Psychiatric ServicesTable of ContentsPreface ix Introduction 1 CHAPter 1: Medicare on the Ropes 10 CHAPter 2: Taming the Beloved Beast: Medical Technology 37 CHAPter 3: Getting Serious about Costs and Technology 67 CHAPter 4: Competition: The Fix That Will Fail 92 CHAPter 5: The Cohabitation of Medicine and Commerce 120 CHAPter 6: "Medical Necessity": An All-But-Useless Concept 143 CHAPter 7: Redefining "Medical Necessity": From Individual Good to Common Good 171 CHAPter 8: Getting Out from Under: The Politics of Pain 201 Coda 229 Notes 235 Index 257

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Book SynopsisThis unique publication, co-published with the King''s Fund, is about talk and action in health care rationing. It presents the latest thinking and practical experience in rationing today. Read about why rationing is inevitable, look at what the public thinks, and decide for yourself what action should be taken in the futureTable of ContentsIntroduction and context: introduction, Bill New; The rationing agenda in the NHS, Bill New; Responses to the rationing agenda, Jo Lenaghan. Section 1 Talk: The inevitability of rationing in the NHS, Chris Heginbotham; Public opinion and rationing - a review of the evidence, Jack Kneeshaw. The rationing debate: Devising a package of health care services the NHS is responsible for - for, Bill New; against, Rudolph Kelin; Maximising the health of the whole community - for, A.J. Culyer; against, John Harris; Rationing health care by age - for, Alan Williams; against, J. Grimley Evans; Central government should have a greater role in rationing decisions - for, Jo Lenaghan; against, Stephen Harrison; Rationing within the NHS should be explicit - for, Len Doyal; against, Jo Coast; Direct public and patient involvement in rationing - the possibilities for direct public involvement, Anna Coote; - the possibilities for direct patient involvement, Heather Goodare; The moral limits to public and patient involvement, Len Doyal. Section 2 Action: New Zealand priority criteria project, Hadorn, Holmes; Setting priorities - can Britain learn from Sweden? McKee, Figueras; Setting priorities - is there a role for citizen's juries? Lenaghan et al; The Asbury draft policy on ethical use of resources, Crisp et al; Responses to Asbury proposal, Thomasma et al; A purchaser experience of managing new, expensive drugs - interferon beta, Rous et al; How can hospitals ration drugs? Bochner et al; responses to Boshner et al.

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Book SynopsisOffers guidance on the ethical and legal issues that arise in the health care of patients under 18 years of age. This book reflects the questions most commonly raised by health professionals, including questions about consent, refusal of treatment and confidentiality.Table of ContentsList of cases. List of statutes and regulations. Membership of the Steering Group. Editorial Board. Introduction. An ethical approach to treating children and young people. The law on children, consent and medical treatment: England, Wales and Northern Ireland. The law on children, consent and medical treatment: Scotland. Confidentiality. Involving children and assessing a child's competence. Refusal of treatment and decisions not to treat. Mental health care of children and young people. Sensitive or controversial procedures. Research and innovative treatment. Health care in schools. Summary of good practice. Appendix 1: Examination or assessment for child protection purposes. Appendix 2: Useful addresses. Index

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Book SynopsisThis is a comprehensive discussion of the ethical issues involved in informing patients of their rights and participation in medical treatment and research. The 30 chapters provide reference on a subject of major importance in medical ethics.Table of ContentsThe Nuremberg Code and the Helsinki Declaration. The historical background. Human guinea pigs and the ethics of experimentation. Henry K Beecher and Marice Pappworth: Character in the development of modern research ethics. Extracts from Pappwroth and Beecher. Learning from unethical research: some recent scandals. Informed consent: the intricacies. Psychological support for patients undergoing breast cancer surgery. Evaluation of a stroke family care worker. Does HIV status influence the outcome of patients admitted to a surgical intensive care unit?. Doyal's original. Tobias' original. Letters from BMJ relating to the above articles. Other perspectives. Thrombolytic treatment for acute ischaemic stroke. Benatar and Benetar. Regulating informed consent within medical research. Medical research and the competent adult. Clinical research with children. Clinical research within psychiatry. Genetic research. Human reproduction and assisted conception. Epidemiological research. Surgical research. Issue in HIV and STDs. Human rights. Clinical trials, informed consent, and the boundaries of therapeutic discretion. Double standards. Rights and responsiblities of the individual. The teacher's perspective. Healthy volunteers. The consumer's view. The role of the effective communication in obtaining informed consent. Concluding analysis

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Book SynopsisColin Farrelly contemplates the various ethical and social quandaries raised by the genetic revolution. Recent biomedical advances such as genetic screening, gene therapy and genome editing might be used to promote equality of opportunity, reproductive freedom, healthy aging, and the prevention and treatment of disease. But these technologies also raise a host of ethical questions: Is the idea of genetically engineering humans a morally objectionable form of eugenics? Should parents undergoing IVF be permitted to screen embryos for the sex of their offspring? Would it be ethical to alter the rate at which humans age, greatly increasing longevity at a time when the human population is already at potentially unsustainable levels? Farrelly applies an original virtue ethics framework to assess these and other challenges posed by the genetic revolution. Chapters discuss virtue ethics in relation to eugenics, infectious and chronic disease, evolutionary biology, epigenetics, happiness, reproductive freedom and longevity. This fresh approach creates a roadmap for thinking ethically about technological progress that will be of practical use to ethicists and scientists for years to come. Accessible in tone and compellingly argued, this book is an ideal introduction for students of bioethics, applied ethics, biomedical sciences, and related courses in philosophy and life sciences.Trade Review“Past meets future. Farrelly uses the wisdom of the ancients in virtue ethics to provide a compelling analysis of the greatest challenges of our time. Virtue ethics has struggled to offer concrete guidance to action in practical ethics, but, in this new account, Farrelly shows how six virtues can advance debate on the most controversial issues and shed light on what is good for human beings.” Julian Savulescu, University of Oxford“Colin Farrelly’s Genetic Ethics fills a significant gap in the vast literature on its subject.” Allen Buchanan, Duke University

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Book SynopsisColin Farrelly contemplates the various ethical and social quandaries raised by the genetic revolution. Recent biomedical advances such as genetic screening, gene therapy and genome editing might be used to promote equality of opportunity, reproductive freedom, healthy aging, and the prevention and treatment of disease. But these technologies also raise a host of ethical questions: Is the idea of genetically engineering humans a morally objectionable form of eugenics? Should parents undergoing IVF be permitted to screen embryos for the sex of their offspring? Would it be ethical to alter the rate at which humans age, greatly increasing longevity at a time when the human population is already at potentially unsustainable levels? Farrelly applies an original virtue ethics framework to assess these and other challenges posed by the genetic revolution. Chapters discuss virtue ethics in relation to eugenics, infectious and chronic disease, evolutionary biology, epigenetics, happiness, reproductive freedom and longevity. This fresh approach creates a roadmap for thinking ethically about technological progress that will be of practical use to ethicists and scientists for years to come. Accessible in tone and compellingly argued, this book is an ideal introduction for students of bioethics, applied ethics, biomedical sciences, and related courses in philosophy and life sciences.

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Book SynopsisThis book reflects the complexity of ethical questions, but develops them in relation to a single general theme: that of the involvement of the elderly in the design of social policy and the research which affects them.Trade ReviewIt is a very useful aid for professionals in gerontology or in social work, for ethicists, ministers of religion, and for all who are connected with the formation of our perceptions on this most valuable and often most neglected segment of our society. -- Béla I. Somfai * Journal of Religious Gerontology *An interesting collection of essays that should appeal especially to those involved in the provision of care for aged people, or in the analysis of social policy, or in the development of ethical concepts which seem relevant in the modern hospital environment. -- Sidney Sax * Bioethics *A richness of insights that only an interdisciplinary approach can give. -- Helga Kuhse * Bioethic News *Table of ContentsAcknowledgments Contributors 1. Introduction to Principal Themes and Issues / Earl R. Winklerand James E. Thornton Part One: General Perspectives 2. On Reaching a New Agenda: Self-Determination and Aging / JaneA. Boyajian 3. Ethics and Aging: Trends and Problems in the Clinical Setting /David Roy 4. Ethical Aspects of Aging: Justice, Freedom, and Responsibility /John C. Bennett 5. Paradigms of Aging: Growth versus Decline / James E. Birrenand Candace A. Stacey 6. Cognitive Intervention in Later Life: Philosophical Issues /David F. Hultsch and Jane H. McEwan 7. The Calculus of Discrimination: Discriminatory ResourceAllocation for an Aging Population / Eike-Henner W. Kluge 8. Population Aging and the Economy: Some Issues in ResourceAllocation / Frank T. Denton and Byron G. Spencer Part Two: Specific Issues 9. The Right to Participate: Ending Discrimination Against theElderly / Donald J. MacDougall 10. Society and Essentials for Well-Being: Social Policy and theProvision of Care / Neena L. Chappell 11. Foregoing Treatment: Killing versus Letting Die, and the Issueof Non-Feeding / Earl R. Winkler 12. Foregoing Life-Sustaining Treatment: The Canadian Law ReformCommission and the President's Commission / AlisterBrowne 13. Proxy Consent for Research on the Incompetent Elderly /Barry F. Brown 14. Gerontology's Challenge from Its Research Population /Beverly Burnside 15. Civil Liberties and the Elderly Patient / Arthur Schafer 16.Narrative, Perspective, and Aging / C.G. Prado Part Three Bibliography / James E. Thornton, Anne D. Evans, MeganStuart-Stubbs, Gerry Bates General Index Index of Names

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Book SynopsisThe first historical study of morality and science in Canadian medicine, Medicine and Morality shows how moments of doubt in doctors’ impartiality resulted in changes to how medicine was done, and even to the very definition of medical practice itself.Trade ReviewKang’s analysis illuminates our current anxiety about the proper place of health care in public life. -- Viviane Fairbank * Literary Review of Canada *Table of ContentsIntroduction1 Toward a Theory of Medical Disinterestedness2 A Brotherhood of Scientific Gentlemen3 Building Bridges, Making Amends4 The Paradox of Medical PublishingConclusionNotes; Selected Bibliography; Index

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Book SynopsisA play about workplace relations among physicians, nurses, others who work in health care, and patients—and how their interaction affects the quality of patient care, for better or worse.Trade ReviewWhile many health care professionals lament the poor communication between doctors and nurses who jointly care for patients, the path to improve this remains unclear. In Bedside Manners, journalist, author, and visiting professor at the University School of Nursing Suzanne Gordon came up with a novel idea: use theater to tackle the intricacies of doctor-nurse relationships—where they succeed, where they fail, and where there are better solutions. -- Jessica Bylander, Senior Editor * Health Affairs *Table of ContentsForeword, by Lucian L. Leape, MD Acknowledgments Introduction, by Suzanne Gordon Part 1. Bedside Manners: The Play, by Suzanne Gordon and Lisa Hayes Cast of Characters About the Staging List of Scenes with Characters Introducing the Performance The Play Part 2. Bedside Manners: The Workbook, by Suzanne Gordon and Scott Reeves Introduction to the Workbook Producing the Play Actor's and Director's Tool Kit Production Checklist The Play as Interprofessional Curriculum Role-Play Activities Notes About the Authors

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Book SynopsisPart Three lays out societal choices regarding the allocation of resources for treatment, care, and research on dementia.Trade Review" Dementia and Aging will become a standard introduction to what Lewis Thomas called 'the disease of the century'... Gerontologists will benefit from reading [this] collection [dealing] with a multifaceted problem from diverse perspectives. Gerontologist The diversity of thought and opinions represented in this book is its major strength. the contributing authors are..acknowledged experts in their respective fields; the chapters are well written and edited. Each section provides insights into an important aspect of Alzheimer disease. Opposing views on euthanasia and alternative proposals for health care reform are fairly presented. the reader is left with a better understanding of the complex and evolving nature of decision-making required in the care of patients with Alzheimer disease. Annals of Internal MedicineTable of ContentsForewordPrefaceList of ContributorsChapter 1. The Challenges of DementiaPart I: Biomedical, Experiential, and Caregiving PerspectivesChapter 2. Dementia: The Medical PerspectiveChapter 3. The Experience of Being DementedChapter 4. Seeing and Knowing Dementia Chapter 5. Human Dignity, Dementia, and the Moral Basis of CaregivingPart II: Treatment Decisions, Advance Directives, and EuthanasiaChapter 6. Autonomy Revisited: The Limits of Anticipatory ChoicesChapter 7. A Critical View of Ethical Dilemmas in DementiaChapter 8. Mercy Killing of Elderly People with Dementia: A CounterproposalChapter 9. Euthanasia in Alzheimer's Disease?Part III: Caring For People With Dementia: Justice and Public PolicyChapter 10. Dementia and Appropriate Care: Allocating Scarce ResourcesChapter 11. The Politics of Developing Appropriate Care for Dementia Chapter 12. Alzheimer's Disease: Current Policy InitiativesIndex

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Book SynopsisThe story which unfolds in the book is a story both about the power of those ideals and about inescapable facts of old age that make those ideals problematic."Trade ReviewMoody's questioning and reassessment of the bioethics of geriatric care will provoke thoughtful argument. New England Journal of Medicine The main strength of Moody's work is the wealth of concrete detail he offers to demonstrate that, given the complexity of actual situations, abstract notions of rights and autonomy cannot be relied on for satisfactory analyses. Ethics A useful resource for particular areas of interest such as nursing home placement and consent in the nursing home setting. Health Progress A formidable, knowledgeable, wide-ranging treatise on the myriad ethical problems that confront us all in our now rapidly aging society. Pharos

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Book SynopsisThe last chapter is a new summary of practical solutions useful to family members and professionals.Trade ReviewWith this second edition of The Moral Challenge of Alzheimer Disease, Post has enlarged upon his original work in a way to make it even more useful and current. The updated version now gives a highly readable strategy for dealing with end-of-life issues, such as artificial tube feeding and dehydration. In his characteristically clear manner, Post equips us with the necessary facts and then cogently suggest how to proceed humanely and with absolute consideration of the person who should be at the center of concern. -- Peter M. Jucovey Perspectives in Biology and Medicine Post has provided a well-researched book with an outstanding bibliography that will be helpful to all caregivers as well as health care providers. The text provides information to guide readers before and during ethical and moral decision making and is very sensitive to the various emotions one endures when the diagnosis is AD. Health Progress In summary, then, Post proposes a new ethic in regard to terminal dementia care. The considerations proposed in this book offer a meaningful guide to both health care professionals and families in dealing with these special issues and advocate a natural death for these patients, freeing families from the sometimes enormous sense of guilt they encounter in making decisions about life extending interventions. Baylor University Medical Center ProceedingsTable of ContentsPrefaceAcknowledgmentsChapter 1. The Moral Challenge of Alzheimer Disease: Defining the TaskChapter 2. The Family Caregiver: Partnership in HopeChapter 3. Fairhill Guidelines on Ethics and the Care of People with Alzheimer DiseaseChapter 4. Genetic Education for a Too-Hopeful PublicChapter 5. The Humane Goal: Enhancing the Well-Being of Persons with DementiaChapter 6. Dying with Dignity: The Case Against Artificial Nutrition and HydrationChapter 7. An Argument Against Assisted Suicide and Euthanasia in the Context of Progressive Dementia Chapter 8. Toward a New Ethics of Dementia CareReferencesIndex

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Book SynopsisBioethics in a Liberal Society is essential reading for all those interested in understanding how bioethics is practiced within our society.Trade ReviewMay's book is a helpful overview and introduction to the political framework of bioethics decision making within a liberal society. It touches explicitly on the issues of perceived and actual lack of competence, substituted decision making, advanced directives and the important roles of ethics committees and consultants. There is no doubt that this book marks an important contribution to the literature. -- Christopher Newell, Ph.D. MetapsychologyTable of ContentsContents: Preface Acknowledgments 1 Introduction: The Liberal Framework I Patient Autonomy 2 Patient Autonomy and Informed Consent 3 Patient Responsibility for Decision Making 4 Advance Directives: Extending Autonomy for Patients II Professional Rights of Conscience 5 Beneficence, Abandonment, and the Duty to Treat 6 Rights of Conscience in the Physician-Patient Relationship 7 Conclusion: Health Care Ethics Committees and Consultants in a Liberal Framework References Index

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Book SynopsisThat is, the public was reassured by bioethical oversight of biomedicine; in reality, however, bioethicists belonged to the same mainstream that produced the doctors and researchers whom the bioethicists were guiding.Trade ReviewUltimately, the innovations and court decisions most associated with bioethics, Stevens shows, were less rooted in concern about the abuse of patients than in researchers' and biomedical institutions' desires for the freedom to pursue new medical technologies and their need for protection from legal liability. Bioethics has served more as a 'midwife' to new medical research and technologies than as a critic. These findings should concern all of us. Steven's critical analysis of bioethics is a valuable revision. -- Leslie J. Reagan American Historical Review An interesting and provocative book, well worth reading for the issues it raises as well as for the historical analysis of the bioethics movement. -- Audrey K. Gordon Perspectives in Biology and Medicine Bioethics in America merits our attention. It will encourage additional reflection on the sources and meaning of the rise of this new profession dedicated to moral arbitration. -- Raymond DeVries Journal of American History Stevens has a pithy prose style and a healthy willingness to challenge received wisdom. -- Robert Baker, Ph.D Journal of the History of Medicine A major contribution to the history of bioethics. ChoiceTable of ContentsContents: Prologue The Tradition of AmbivalenceChapter One The Culture of Post-atomic AmbivalenceChapter Two "Leaders of Leaders": The Hastings Center, 1969 to the PresentChapter Three Redefining Death in America, 1968Chapter Four "Sleeping Beauty": Karen Ann Quinlan and the Rise of Bioethics in AmericaEpilogue Conclusion and Outlook

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Book SynopsisProfessionals in need of such training and bioethicists will be interested.Trade ReviewProvides excellent material on a broad variety of ethical topics in clinical research. The editors are commended for the wise and diverse selection of articles and the broad range of sources of literature included. A lot of information is made available at a very affordable price. Quality Assurance Journal 2005 Many of the chapters easily deserve to be required reading... Most of the readings that have been chosen for the book can lay claim to being classics. They represent sophisticated thinking on various topics. -- Leonardo D. de Castro Bulletin of the World Health Organization 2004 One word will suffice to describe the book-outstanding. -- Sanjay A. Pai Current Science 2004Table of ContentsContents:Part I. Scandals and Tragedies of Research with Human Participants: Nuremberg, the Jewish Chronic Disease Hospital, Beecher, and TuskegeePart II. Ethical and Regulatory Guidance for Research with HumansPart III. The Ethics of Clinical Trial DesignPart IV. The Ethics of Research Participant RecruitmentPart V. Informed Consent in ResearchPart VI. Clinical Research with Special PopulationsPart VII. Special Topics in Research EthicsPart VIII. The Behavior of Clinical Investigators: Conflicts of InterestPart IX. Scientific MisconductPart X. Challenges to the Institutional Review Board System

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Book SynopsisTo fill this void, Frank and Glied suggest that institutional resources be applied systematically and routinely to examine and address how federal and state programs affect the well-being of people with mental illness.Trade ReviewOffers many insights beneficial to the informed reader. -- David Mechanic New England Journal of Medicine 2006 The authors are true to their word in providing an excellent overview of changes in the last 50 years. They provide compelling evidence that the condition of many, if not most, persons with mental illness has improved during that period. JAMA 2007 Will be of greatest interest to students of mental health economics, services, and policy, but clinicians interested in the relationship between health policy and everyday practice will also find it useful. -- Burton V. Reifler International Psychogeriatrics 2007 Provides a necessary counterpart to much overenthusiastic optimism surrounding recent development in psychopharmacology and the neurosciences. -- Bonnie Evans Journal of Mental Health 2008 Offers a fascinating... historical analysis of mental health policy. -- Ellen Dwyer History of Psychiatry 2008 Should be assigned to every practitioner, mental health clinician, administrator, and advocate - as well as every legislator and policy maker - concerned with the status of Americans with serious mental illness. -- William Fisher Psychiatric Services 2007 If one... has time to read one book on mental health policy this year, this should be the one. -- Roger Meyer Health Affairs 2007 A comprehensive assessment of changes in the life conditions and well-being of persons with serious mental illnesses over the past five decades. -- Janet R. Nelson Clergy Journal 2008 A well-written and important work that provides a definitive look at the past and a glimpse into the future of mental health policy in America. -- Kathleen Brown RN, MSN, PhD Nursing History Review 2009Table of ContentsForewordPreface1. Introduction2. The Population with Mental Illness3. The Evolving Technology of Mental Health Care4. Health Care Financing and Income Support5. The Supply of Mental Health Services6. Policy Making in Mental Health: Integration, Mainstreaming, and Shifting Institutions7. Assessing the Well-being of People with Mental Illness8. Looking Forward: Improving the Well-being of People with Mental IllnessNotesReferencesIndex

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Book SynopsisContaining helpful summaries and checklists throughout and based on Mazur's thirty years of research experience, this accessible and informative guide will give all IRB members the tools they need to protect human lives and facilitate the research process.Trade ReviewA well-written and informative narrative of the inner workings of IRBs. It is a must-read for those who are (or will be) members of an IRB and for those who need to submit a proposal. -- Maura Pilotti, Ph.D. Metapsychology 2007 An indispensable guide for both experienced and inexperienced IRB members... I would recommend it to any IRB member. Doody's Review Service 2007 Mazur's book provides IRB members with essential questions they should ask when reviewing proposed and ongoing studies. -- Karen J. Maschke New England Journal of Medicine 2007 The book contains an interesting perspective and a wealth of knowledge. It contains quite a lot of information for any single audience, but those who serve on IRBs can benefit greatly from reading and referring to Mazur's work. -- Alice Z. Frohna JAMA 2007 College-level holdings strong in medical and research issues or medical ethics will want this review. Midwest Book Review 2007 There is much to like about Evaluating the Science and Ethics of Research on Humans; its depth and sophistication... Not just Mazur's experience but the overall evolution of research administration is reflected in this volume. -- Kenneth A. DeVille Journal of Legal Medicine 2007 Every IRB member must read this book so that the participants of clinical trials benefit from it. -- Sanjay A. Pai Indian Journal of Medical Ethics 2008 The author applies extensive experience to illustrate the depth of ethical reflection that research proposals can generate and provides guidance on how reflection can be directed to decision making... Checklists in the text and appendices afford IRB members and officers the comfort of knowing that little, if anything, has been overlooked in discharging ethics review. -- Bernard M. Dickens, PhD Annals of Internal Medicine 2008 The analysis of a study's risk-benefit ratio is especially good. U.S. Dept. of Energy, Office of Biological and Environmental Research 2007 Contains helpful summaries and checklists throughout based on the author's thirty years of research experience. Issues in Law and Medicine 2008Table of ContentsPrefaceIntroduction: What Can the New IRB Member Expect?Part I: The IRB, Its Work, and Its Challenges1. What Is an IRB, and What Does It Do?2. Basic Terms and Concepts Used in IRB Work3. What Is Risk?Part II: The Scientific Protocol and the Informed Consent Form4. Prescreening of Proposals5. The Scientific Protocol6. The Informed Consent Form7. Recruitment, Selection, and Compensation of Study Participants8. Research involving Questionnaires and Surveys9. Protection of Participants' Privacy in Research Dataand SpecimensPart III: The Continuing Work of the IRB10. The Ethical Issues of Informed Consent11. Continuing Review, Communication, and Feedback12. Where Are IRBs Making Mistakes, and How Can We Minimize Mistakes?13. Strategies for Managing the IRB Workload and Supporting IRB Decision Making14. Decision-Making Capacity and Accountability in ResearchSummary: The IRB's Key RoleAppendix 1: A Check List for Reviewing a Scientific ProtocolAppendix 2: A Check List for Reviewing an Informed Consent FormNotesWebsite References for Cited DocumentsIndex

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Book SynopsisThis practical guide helps people navigate the important but often intimidating process of thinking about, and planning for, an uncertain future.Trade ReviewValuable resource. Columbia College Today 2007 A practical guide to help individuals make end-of-life decisions and communicate them to healthcare providers, family members, and other loved ones. UU World 2008 This practical guide helps people navigate the important but often intimidating process of thinking about, and planning for, an uncertain future. Exceptional Parent 2008 Doukas and Reichel achieve two things rarely seen in books geared toward the general public. First, they are uncommonly forthright... The second noteworthy achievement of Planning for Uncertainty is its compatibility with the family physician's worldview. -- David Satin, MD Family Medicine 2008 Planning for Uncertainty contacts much helpful information about advance directives and advance care planning. -- Ellen W. Bernal Philosophy, Ethics, and Humanities in Medicine 2008Table of ContentsPrefaceAcknowledgmentsIntroduction: What Every Person Needs to Know1. What the Patient Self-Determination Act Means to You2. When Is Treatment Beneficial and When Is It Not Beneficial?3. How Ethical Principles Affect Health Care Decisions4. The Value of Values5. How Advance Directives Work6. The Values History: Defining Your Health Care Values7. You, Your Family, and Health Care Decisions: Choosing a Proxy8. Signing Advance DirectivesAppendixLinks to Advance Directive Forms by StateOther Useful LinksMy Advance Directives for Future Medical TreatmentThe Values HistoryAdvance Directive in Brief CardIndex

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Book Synopsis, Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.Trade ReviewThis text would be helpful for teaching students in medicine, nursing, social work, and health care administration. -- Tina Kenyon, ACSW Family Medicine 2005 This book can be recommended to family caregivers, health care staff, and policy-makers-as well as to those teaching courses in health care, policy, and gerontology. -- Anne P. Glass Journal of Women and Aging 2006 A must read for those who are planning to work in the healthcare field and for those currently employed in it. -- Molly Ranney Journal of Women and Aging 2005 A well-researched and fascinating historical recount of the cultural differences between the family members, health professionals and policy makers... Recommended background reading for geriatric care managers and professionals seeking policy changes in caregiving. -- Kathleen Wall Inside GCM 2005 Editors Levine and Murray and their contributors demonstrate a broad understanding of the culture of caregiving and families. Choice 2005 The collaboration and talents brought together to write this book are phenomenal... This book should be considered an instrument in building and solidifying the bridge between caregivers and the medical community. -- David Sigel Baylor University Medical Center Proceedings 2005 Levine and Murray have taken us beyond complaining about conflicts and problems in providing healthcare across the cultural divide. Instead, they offer insights, knowledge, and, most important, direction for creating remedies to problems. -- Peggy Dilworth-Anderson, Ph.D. JAMA A well-written and thought-provoking book written by professionals in the health care industry, some who are family caregivers themselves. Family Caregiver Alliance The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers is a well-crafted book. -- Fahmida Hussain Journal of Health Care for the Poor and UnderservedTable of ContentsList of Contributors ForewordPrefaceIntroduction: Caregiving as a Family Affair: A New Perspective on Cultural DiversityPart I: Perspectives on Family Caregiving: Data, Diversity, and Personal ExperienceChapter 1. Family Caregivers and the Health Care System: Findings from a National SurveyChapter 2. On Loving Care and the Persistence of Memories: Reflections of a Grieving DaughterChapter 3. The Weight of Shared Lives: Truth Telling and Family CaregivingPart II: Home Care Past and PresentChapter 4. Family Caregiving in New England: Nineteenth-Century Community Care Gives Way to Twentieth-Century InstitutionsChapter 5. Nurses and Their Changing Relationships to Family CaregiversChapter 6. The Culture of Home Care: Whose Values Prevail?Part III: The Societal ContextChapter 7. Explaining the Paradox of Long-Term Care Policy: An Example of Dissonant CulturesChapter 8. Family Caregivers in Popular Culture: Images and Reality in the MoviesPart IV: Bridging the Gap among CulturesChapter 9. Integrating Medicine and the Family: Toward a Coherent Ethic of CareChapter 10. Project DOCC: A Parent-Directed Model for Educating Pediatric ResidentsChapter 11. Changing Institutional Culture: Turning Adversaries into PartnersConclusion: Building on Common GroundIndex

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Book SynopsisJones, Massachusetts General Hospital; Robert L. Martensen, Tulane University School of Medicine; Glenn Mitchell, University of Wollongong; Jenny Stanton, London School of Hygiene and Tropical Medicine; Gilbert Whittemore, independent scholar/attorney, BostonTrade ReviewOffers worthwhile lessons for contemporary researchers, scholars, and policy makers... [and] makes a strong case for adopting a broad perspective in the analysis of research ethics... Besides gaining a rich picture of past scientific practices, readers will be better equipped to monitor the continuing search of 'useful bodies' in our own era. -- Rebecca Dresser Nature Medicine 2004 Each chapter is a startling case study that examines the nature and degree of the state's involvement in human experimentation... With contributions by leading historians of medicine, science, and public policy, Useful Bodies will be of interest to ethicists, bioethicists and those engaged in the formulation of public health and policy. Issues in Law and Medicine 2004 The well-documented essays cite a rich body of sources. -- Susanna Cunningham Journal of Clinical Investigation 2004 This excellent volume treats human experimentation in Britain and the United States from 1920 to 1970. -- Londa Schiebinger American Historical Review 2004 Using specific examples of biomedical research in the 20th century, this collection addresses the role and treatment of the body by biomedical researchers. Choice 2004 These articles make a significant contribution to our understanding of the role of the state in human subjects research. -- Margot Iverson Journal of the History of Biology 2006 Although the chapters examine the tensions and moral ambiguities in research supported, sponsored, or performed by researchers in democratic states, the time period from which these cases are drawn makes a comparison with the research supported and performed by the Nazi government inevitable and disturbing. I highly recommend this book to those interested in the history and ethics of human experimentation. -- Lainie Friedman Ross Perspectives in Biology and Medicine 2005 Well-written and meticulously researched, these essays offer the historical context to understand and evaluate human experimentation. -- Karen Ross Journal of the History of Medicine and Allied Sciences 2005 With a refreshing lack of sensationalism, the essays offer fascinating details and perspectives on human experimentation conducted or funded by governments. -- Norman M. Goldfarb Journal of Clinical Research Best Practices 2007Table of ContentsContents:1. Making Human Bodies Useful: Historicizing Medical Experiments in the Twentieth CenturyPART I: What Is a Human Experiment? 2. Using the Population Body to Protect the National Body: Germ Warfare Tests in the United Kingom after World War II 3. Whose Body? Which Disease? Studying Malaria while Treating NeurosyphilisPART II: Who Experiments? 4. Human Radiation Experiments and the Foundation of Medical Physics at the University of California, San Francisco and Berkeley, 1937-1962 5. "I Have Been on Tenterhooks": Wartime Medical Research Council Jaundice Committee Experiments 6. See an Atomic Blast and Spread the Word : Indoctrination at Ground ZeroPART III: Whose Body? 7. Injecting Comatose Patients with Uranium: America's Overlapping Wars Against Communism and Cancer in the 1950's 8. Writing Wilowbrook, Reading Willowbrook: The Recounting of a Medical Experiment

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Book SynopsisThe first scholars to have access to Rock's personal papers, Marsh and Ronner offer a compelling look at a man whose work defined the reproductive revolution, with its dual developments in contraception and technologically assisted conception.Trade ReviewThe authors bring a man and a century to life as they recount two primary discoveries underlying women's still controversial reproductive rights. Publishers Weekly 2008 The Fertility Doctor provides a balanced portrait of a twentieth-century medical giant... They [Marsh and Ronner] deal deftly too with with the ironies that marked Rock's long career. -- Leslie Woodcock Tentler Commonweal 2008 This book will hold an important place in the archives of reproductive medicine. -- Alan H. DeCherney, M.D. New England Journal of Medicine 2009 Eminently readable... It gives an excellent account of his Boston Irish Catholic family background, his childhood, and his psychological maturation. -- Dr. John Shea, MD, FRCP(C) Catholic Insight 2009 Marsh and Ronner have written what is undoubtedly the most thorough and wide-ranging account we have yet on Rock's career and life. -- Bill Williams Conscience 2009 Using an impressive body of primary source material, Marsh (history, Rutgers Univ.-Camden) and Ronner (Univ. of Pennsylvania School of Medicine) depict Rock's life through his medical practice and research, both of which seem to define Rock as a person. Choice 2009 The book is most successful in its exploration of Rock's research... offer(s) scholars of American Catholicism a useful portrait of a committed Catholic who deliberately stretched and molded his faith to fit both a more modern world and his own conscience, long before the Second Vatican council made such flexibility more acceptable. -- Mary J. Henold Catholic Historical Review This is a well-researched and welcomed contribution to reproductive history. -- Nicole Howard, PhD Technology and Culture 2009 Enormously valuable. -- Leslie J. Reagan Journal of American History Marsh and Ronner provide us with a much enriched understanding of one of history's most remarkable gynecologists. -- James Reed Social History of Medicine 2010 Marsh and Ronner's collaborative efforts make for a fascinating and important study of Rock and his contributions to the science and culture of reproductive medicine. -- Wendy Kline Isis 2009 The biography of Rock provides detailed insight into the difficult challenges a doctor faced in pushing at the boundaries of reproductive health. -- Lara Marks Medical History 2010 A successful scientific biography. -- Catherine Carstairs Scientia Canadensis 2010Table of ContentsIntroduction1. Family Matters2. Choosing Medicine, Coming of Age3. New Discoveries in Human Reproduction4. Firing the First Shot in the Reproductive Revolution5. The World of the Patients6. The Fertility Doctor Meets the Pill7. The Era of the Pill Begins8. The Face and Voice of the Pill9. The Pill Falls from Grace10. A True VisionaryAcknowledgmentsNotesIndex

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Book SynopsisD.Trade ReviewA worthwhile addition to the core texts in the field of medical humanities. It is a valuable guide for teaching medical ethics and is worthy of a sequel. JAMA 2009 Should serve as a resource not only for teachers of bioethics courses but also for those engaged in understanding the relationship of the humanities to medicine and to bioethics... In addition, the book may prompt serious discussion of popular films that address complex topics and stories that have bioethical implications. -- Jeremy Sugarman Science 2009 Stimulating... each chapter has discussion questions that could be used equally well in the classroom or after watching a film at home with friends. -- James Paul Triple Helix 2009 The twenty-one essays, together with an excellent introduction by Shapshay, are a welcome addition to the bioethics literature, making up for some of the deficiencies of the usual case studies found in most bioethics text books. Most of the major distinctions, problems, and arguments which make up the field of bioethics are presented in uniformly well written essays typically focusing on a single film. Each essay is accompanied by study questions and excellent bibliographies. Metapsychology 2010Table of ContentsList of ContributorsPrefacePart I: On Babies, Test Tubes, and Sex the Old-Fashioned wayChapter 1. "I give Them What The Want – Either an Orphan or an Abortion": The Cider House Rules and the Abortion IssuesChapter 2. Reading Citizen Ruth Her Rights: Satire and Moral Realism in the Abortion DebateChapter 3. Homo Sapiens, Robots, and Persons in I, Robot and Bicentennial ManChapter 4. The Babe Vegetarians: Bioethics, Animal Minds, and Moral MethodologyPart II: The Quest for "Better" or Even "the Same" PeopleChapter 5. "No Gene for Fate?": Luck, Harm, and Justice in GattacaChapter 6. Lifting the Genetic Veil of Ignorance: Is There Anything Really Unjust About Gattacan Society?Chapter 7. Multiplicity: A Study of Cloning and Personal IdentityChapter 8. Is Ignorance Bliss? Star Trek: Nemesis, Cloning, and the Right to an Open FuturePart III: The Good LifeChapter 9. "Blessed Are the Forgetful": The Ethics of Memory Deletion in Eternal Sunshine of the Spotless MindChapter 10. Hacking the Mind: Existential Enhancement in Ghost in the ShellChapter 11. Commodification, Exploitation, and the Market for Transplant Organs: A Discussion of Dirty Pretty ThingsChapter 12. "She's DNR!" "She's Research!": Conflicting Role-Related Obligations in WitPart IV: Aging and the Good Death Chapter 13. "He Just Got Old": Aging and Compassionate Care in DadChapter 14. False Images: Reframing the End-of-Life Portrayal of Disability in Million Dollar BabyChapter 15. "I Can't Be Like This, Frankie, Not After What I've Done": Million Dollar Baby and the Value of Human LivesChapter 16. Providing Critical Care for a Big Fish at the End of Life: How Sidney Lumet and Tim Burton Cane Help Us Avoid Becoming the Next Terri SchiavoChapter 17. The Thanatoria of Soylent Green: On Reconciling the Good Life with the Good Death Part V: The Role of Theory and Culture in BioethicsChapter 18. "If You Could Cure by Killing One Person, Wouldn't You Have To Do That?" Utilitarianism and Deontology in Extreme MeasuresChapter 19. Talk to Whom? Redefining Autonomy in Talk to HerChapter 20. Stars and Triangles: Controversial Bioethics in Contemporary Spanish FilmChapter 21. Ikiru and Net-Casting in Intercultural BioethicsIndex

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Book SynopsisBioethics in a Liberal Society is essential reading for all those interested in understanding how bioethics is practiced within our society.Trade ReviewMay's book is a helpful overview and introduction to the political framework of bioethics decision making within a liberal society. It touches explicitly on the issues of perceived and actual lack of competence, substituted decision making, advanced directives and the important roles of ethics committees and consultants. There is no doubt that this book marks an important contribution to the literature. -- Christopher Newell, Ph.D. MetapsychologyTable of ContentsContents: Preface Acknowledgments 1 Introduction: The Liberal Framework I Patient Autonomy 2 Patient Autonomy and Informed Consent 3 Patient Responsibility for Decision Making 4 Advance Directives: Extending Autonomy for Patients II Professional Rights of Conscience 5 Beneficence, Abandonment, and the Duty to Treat 6 Rights of Conscience in the Physician-Patient Relationship 7 Conclusion: Health Care Ethics Committees and Consultants in a Liberal Framework References Index

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Book SynopsisThis short, smart analysis will engage scholars across academia.Trade ReviewEthical Imperialism is a remarkable accomplishment and a must-read for researchers and policy makers. It persuasively weaves together the scholarly, disciplinary, regulatory, and bureaucratic strands that account for today's 'omnipresent threat' to social research. Canadian Journal of Sociology This book ought to be required reading for those concerned about the political forces that make our work possible, and sometimes not possible at all. -- Susan B. Reverby American Historical Review [A]n impressive assessment of IRBs, from their tenuous beginnings in the early 1960s as a practical response to a perceived threat to the public from medical research to [their] present status as a threat to academic freedom in the social sciences... [A] significant contribution to those oral historians and related practitioners who would seek to challenge IRB's right and ability to adequately evaluate their research projects, particularly before the research has been conducted. Oral History Review A valuable contribution to the history of federal science policy and a useful critique of a system ill-suited to the uses to which it is being put. Journal of American History The book is a powerful indictment of the IRB regime. Law and Politics Book Review Exhaustively researched, drawing on... a wide array of sources. -- Donald N. Bersoff PsycCRITIQUES Thoroughly researched story of how IRBs came to be, how they came to adopt rules designed for medical, biological, and psychological researchers and then to apply them to the social sciences, how those rules became institutionalized, and how the rules protect universities rather than the people who serve as subjects and informants in social science research. Contemporary Sociology I highly recommended this book for its contribution to the discussion of academic freedom, social science research, and the regulation of research ethics. -- Ellen Marakowitz AAUP: Regulated ResearchTable of ContentsPrefaceList of AbbreviationsIntroduction1. Ethics and Committees2. The Spread of Institutional Review3. The National Commission4. The Belmont Report5. The Battle for Social Science6. Détente and Crackdown7. The Second Battle for Social Science8. Accommodation or Resistance?ConclusionNotesIndex

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Book SynopsisTrade Review"This is a landmark volume that sets the standard for any future collection in medical/health humanities. It is by turns authoritative, funny, edgy, creative and personal—sometimes all in one piece.” -- Thomas R. Cole * Director, McGovern Center for Humanities and Ethics, University of Texas-Houston Medical School *"It's about time! The field of medical humanities has been waiting for a reader, and this one is it. With an excellent array of essays in appropriate topics by top people in the field, this book should set the standard for the next ten years. It will prove fascinating to undergraduates, graduate students in both the humanities and the health sciences, and to the general public and particularly those who are or will be patients—which of course is everyone." -- Lennard J. Davis * editor of The Disability Studies Reader *"This bold, intelligent, and vitally comprehensive collection is a truly interdisciplinary achievement and an indispensible resource.Through twelve judiciously selected thematic clusters, Rutgers’s Health Humanities Reader consolidates this new subfield by capturing both the complexity and excitement of health humanities scholarship. An essential tool with practical applications both inside and outside the classroom." -- Andrea Charise, PhD * assistant professor of health studies, University of Toronto, Scarborough *"[This book] consists of nearly 50 chapters, some of which deal with classic medical humanities topics, such as the notions of health and disease and the theory of the body. The majority of the book centers on more contemporary—some would say postmodern—issues, such as gender and sexuality, disability, and aging. Recommended." * Choice *Table of ContentsPART I: DISEASE AND ILLNESS Chapter 1 Being a Good Story: The Humanities as Therapeutic Practice Chapter 2 Illuminating the It, Thee, and We of Disease and Illness:The Metamorphosis and Related Works Chapter 3 “This Weird, Incurable Disease”: Competing Diagnoses in the Rhetoric of Morgellons Chapter 4 My Quest for Health PART II: DISABILITY Chapter 5 Disability in Two Doctor Stories Chapter 6 Music and Disability Chapter 7 American Narrative Films and Disability: An Uneasy History Chapter 8 Standout PART III: DEATH AND DYING Chapter 9 When the Doctor Is Not God: The Impact of Religion on Medical Decision-Making at the End of Life Chapter 10 Postmodern Death and Dying: A Literary Analysis Chapter 11 Second-Degree Block: Poem and Commentary PART IV PATIENT-PROFESSIONAL RELATIONSHIPS Chapter 12 Social Studies: The Humanities, Narrative, and the Social Context of the Patient-Professional Relationship Chapter 13 Humanities and the Medical Home Chapter 14 Occupational Medicine PART V: THE BODY Chapter 15 The Virtues of the Imperfect Body Chapter 16 Seeing Bodies in Pain Chapter 17 Public Fetuses Chapter 18 More Body: A Performance for Five (or More) Bodies PART VI: GENDER AND SEXUALITY Chapter 19 Adult Intake Form Chapter 20 What Is Sex For? or, The Many Uses of the Vag Chapter 21 “I Always Prefer the Scissors”: Isaac Baker Brown and Feminist Histories of Medicine Chapter 22 Comics in the Health Humanities: A New Approach to Sex and Gender Education Chapter 23 I Am Gula, Hear Me Roar PART VII: RACE AND CLASS Chapter 24 Listening as Freedom: Narrative, Health, and Social Justice Chapter 25 Race and Mental Health Chapter 26 Law’s Hand in Race, Class, and Health Inequities: On the Humanities and the Social Determinants of Health Chapter 27 Dark Rooms of Our Souls PART VIII: AGING Chapter 28 “Old Age Isn’t a Battle, It’s a Massacre”: Reading Philip Roth’s Everyman Chapter 29 “Do You Remember Me?”: Construction of Alzheimer’s Disease in Literature and Film Chapter 30 Love in the Time of Dementia PART IX MENTAL ILLNESS Chapter 31 Narrating Our Sadness, with a Little Help from Humanities Chapter 32 Teaching Narratives of Mental Illness Chapter 33 Community Psychiatry and the Medical Humanities Chapter 34 Culpability PART X SPIRITUALITY AND RELIGION Chapter 35 Rites of Bioethics Chapter 36 Health and Humanities: Spirituality and Religion Chapter 37 Scientia Mortis and the ArsMoriendi: To the Memory of Norman Chapter 38 Meditations of an Anesthesiologist: Poem and Commentary PART XI: SCIENCE AND TECHNOLOGY Chapter 39 Andromeda’s Futures: A Story of Humanities, Technology, Science, and Art Chapter 40 Knowing and Seeing: Reconstructing Frankenstein Chapter 41 A Brief History of Love: A Rationale for the History of Epidemics Chapter 42 Calcedonies PART XII HEALTH PROFESSIONS EDUCATION Chapter 43 Teaching Autism through Naturalized Narrative Ethics: Closing the Divide between Bioethics and Medical Humanities Chapter 44 Courting Discomfort in an Undergraduate Health Humanities Classroom Chapter 45 The Medical Humanities in Medical Education: Toward a Medical Aesthetics of Resistance Chapter 46 In Defense of Cheaper Stethoscopes

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Book SynopsisScience and technology are advancing more rapidly than regulations or the law can interpret and integrate them into a supportive or regulatory framework. This book is written for all clinicians in the neurosciences specialties who need to examine and re-examine the ethical and legal implications of advances in clinical neurosciences. Trade Review"Medical, ethical and legal issues interact acutely in neurological patients, and Dr. Szalados’s book on these issues is vital reading for the administrators, nurses, physicians, lawyers and ethicists who care for them." -- Denham Ward * M.D., Ph.D. *Table of ContentsDisclaimer Dedication Preface I. Morality, Ethics, and the Law: An Overview of the Foundations of Contemporary Clinical Ethical Analysis II. Case Studies: Ethical and Legal Challenges in the Care of the Neurologically Injured Critically Ill Patient III. Civil Law and Liability: The Law of Medical Malpractice IV. Legal Reasoning, Legal Process, Legal Proof and Why it is Confusing to Clinician Scientists V. Regulatory Law and the Clinical Practice of the Neurosciences VI. Digital Medicine and the Data Revolution Managing Digital Distraction and EMR Liability While Leveraging Opportunities in Teleneurology and Telecritical Care VII. Developing and Leading a Sustainable High Reliability High Performing Unit: Theories of Quality, Teamwork, Medical Error and Patient Safety VIII. Neurolaw and the Integration of Neuroscience, Ethics, and the Law: The New Frontiers IX. Conclusions and Afterword Acknowledgements About the Author Index

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Book SynopsisOne of the most difficult issues that confronts veterinarians and staff today concerns the profession's obligation to the animal and the sometimes conflicting demands from clients, peers and society.Table of ContentsPreface to the Second Edition. Preface to the First Edition. Part I. Theory. Social, Personal, and Professional Ethics. Ethics1 and Ethics2. Ethical Vectors in Veterinary Medicine. The Anatomy of Ethical Decision Making. The Nature of Ethical Theory. Effecting Ethical Change. The Fundamental Question of Veterinary Ethics. New Patterns of Animal Use. Articulating a New Ethic for Animals. Veterinarians and the New Social Ethic for Animals. How Veterinary Medicine Should Respond to the New Ethic: The Case of Animal Research. Veterinarians and Farm Animal Welfare. Recent Progress. Veterinarians and Companion Animal Welfare. Subtle Advantages of Pursuing Companion Animal Welfare. The Changing Role of Companion Animals and Their Value. Pain in Veterinary (and Human) Scientific Medicine. Animal Distress and Animal Happiness. The Ethics of Critical Care. Aesculapian Authority in Veterinary Medicine. The Ethics of Alternative Medicine. Part II. Cases. Introduction. Case 1. Cow with Cancer Eye. Case 2. Substandard Husbandry for Sheep. Case 3. Fracture Fixation. Case 4. Farmer Using Illegal Growth Promotant. Case 5. Client Sells Known BVD Shedders. Case 6. Client Requests Dog Euthanasia Because She Is Moving. Case 7. Farmer Requests a Fetotomy. Case 8. Suspected Dogfighting. Case 9. Docking and Cropping of Dobermans. Case 10. Leaving a Sow Untreated. Case 11. Euthanasia of Cat Who Sprays. Case 12. Euthanasia of Treatable Horse for Insurance. Case 13. Euthanasia of Grieving Dog. Case 14. Supernumerary Teat Removal. Case 15. Breeder Seeking Euthanasia for Puppy with Overbite. Case 16. Veterinary Anatomist Spaying Farm Cats. Case 17. Breeder Asking for Anesthetics So She Can Crop Ears. Case 18. Penicillin Residue in Milk. Case 19. Marketing Heartworm Regimen. Case 20. Dairy Farmers Using Unauthorized Feed Additive Prescribed by a. Veterinarian. Case 21. Veterinarian’s Responsibility When a Dog Is Suspected to Be Overly Aggressive. Case 22. Painful Research Designed without Analgesia. Case 23. Clients Who Insist on Continuing Treatment for Failing Cancer Dog. Case 24. Tail Docking in Dairy Cattle. Case 25. Killing of Neonatal Buck Kids. Case 26. Veterinarian Discovers Violations in Religious Slaughter. Case 27. Using Information about Alternative Surgical Training in Hiring. Case 28. Pig Farmer Asking for Euthanasia Solution. Case 29. Feeding Kittens to Snakes. Case 30. Veterinarian Seeking Maternity Leave. Case 31. Surgical Procedures Performed by a Technician. Case 32. Veterinary Liaison with Pet Store Chain Providing Poor Animal Care. Case 33. Freeze-Firing Racehorses. Case 34. Performing Cat Castration on the Farm. Case 35. Irresponsible Veterinarian-Breeder. Case 36. Annual Rabies Vaccination. Case 37. Government Policy Regarding Export of Breeding Swine. Case 38. Improperly Labeled Prescriptions Swallowed by Child. Case 39. Referral Practice "Stealing" Clients. Case 40. Confidentiality and a Breeder Perpetuating a Line of Dogs with Seizures. Case 41. Should Veterinarians Be Required to Report Animal Abuse?. Case 42. Two Cases of Found Dogs. Case 43. Should a Biting Dog Be Adopted Out. Case 44. Euthanizing Sick Animals without their Owner’s Permission. Case 45. Partner’s Misdiagnosis. Case 46. Heavy Metal Toxicosis and Slaughter for Food. Case 47. Conflict of Interest. Case 48. Rabies Vaccine for Livestock. Case 49. Female Veterinarian Receiving Unwelcome Attention. Case 50. Female Veterinarian Offended by Colleagues’ Humor. Case 51. Client Refuses Euthanasia for Sick Cat. Case 52. Should Veterinarians Prescribe Drugs to Increase Productivity?. Case 53. Previous Practitioner Leaves Sponge in Dog’s Peritoneum. Case 54. Illicit Importation of Boar Semen. Case 55. Misreading of Radiograph. Case 56. Cattery Serving as Source of FIP. Case 57. Injured, Unowned Animal. Case 58. Writing Prescriptions for Branded Drugs in Return for Financial. Incentive. Case 59. Negligence of an Emergency Clinician in Treating Trauma, xx. Case 60. Poor Air Quality in Swine Barn. Case 61. Supplementing Income with Prescription Drugs. Case 62. Client’s Request to Euthanize His Dog after His Death. Case 63. Confidentiality and an Employee’s History of Drug Abuse. Case 64. Convenience Euthanasia of a Dog without Proper Permission. Case 65. Veterinarian Who Ignores Roundworms in Puppies. Case 66. Stray Tattooed Beagle. Case 67. Prescribing and Selling Pharmaceuticals. Case 68. Suspected Poisoning. Case 69. Euthanasia of Research Animal without Researcher’s Permission. Case 70. Anorexic Client Not Feeding Her Dog. Case 71. Improving Rural Euthanasia. Case 72. Second Commentary on Stray Tattooed Beagle. Case 73. Bull Mastiff with Osteosarcoma. Case 74. Financially Stressed Client and Annual Physical. Case 75. Botched Caesarean Section. Case 76. Farmer Asking Advice of "Experts". Case 77. Confidentiality in the Case of a Client Selling Sick Animals. Case 78. Conflict in Obligations to a Peer and a Client. Case 79. Reporting a Dog Being Used to Carry Drugs. Case 80. An Elderly Client Seeking "Unnecessary" Medical Advice. Case 81. A Cat Who Fractures Both Legs after a Surgical Procedure. Case 82. Can Annual Vaccinations Be Justified?. Case 83. An Organic Farmer Who Won’t Use Antibiotics for Foot Rot. Case 84. Using Woodchippers to Kill Chickens. Case 85. Should Shelters Place Animals in Less than Perfect Homes?. Case 86. Why Should We Worry about Animal Suffering Right before Death?. Case 87. "Good" versus "Natural" Death. Case 88. Is It Wrong to Modify Animals to Fit Production Systems?. Case 89. How Do Veterinarians Respond to Clients with Too Many Animals?. Case 90. Should a Veterinarian Wear Company Logos?. Case 91. Technicians Performing Management Procedures on Farm. Case 92. Extralabel Drug Use. Case 93. Animal Welfare versus Animal Rights. Case 94. Raw Diet. Case 95. Using an Elastrator on Older Bulls. Case 96. Finding Animals for Continuing Education. Case 97. Should Veterinarians Support Activist Groups?. Case 98. Auditability of Animal Welfare. Case 99. Producer Unwilling to Euthanize Sick Pigs. Case 100. Veterinarians and Laws Banning Pitbulls. Case 101. Giving Analgesics to Mask Pain in Horses. Case 102. Are Animals Raised in Confinement Happy in Confinement?. Case 103. Elderly Couple Adopting Many Animals. Case 104. The Ethics of Killing Healthy Animals. Appendix. References. Index

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Book SynopsisSzasz argues that the word schizophrenia does not stand for a genuine disease. He believes psychiatry has invented the concept as a sacred symbol to justify the practice of locking up people against their will.Trade ReviewSzasz argues that the word schizophrenia does not stand for a genuine disease, that psychiatry has invented the concept as a sacred symbol to justify the practice of locking up people against their will and treating them with a variety of unwanted, unsolicited, and damaging interventions. . . . Szasz is an incisive, exciting, and dramatic writer. He loves the clever analogy, the well-turned phrase, the dramatic surprise. Szasz is a valuable critic and agent provocateur. . . . Szasz has much to say which requires answering. Dr. Szasz mounts an incisive two-pronged assault on modern psychiatry and what he regards as its mirror-image, the ‘anti-psychiatry’ of R. D. Laing and his followers. . . . Timely and urgent reading.

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Book SynopsisAn exposition of the nature, possibilities and limitations of psychoanalytic treatment, defending the essence of psychoanalysis against moralistic and conformist misuse.

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Book SynopsisMillions of Americans, diagnosed mentally ill, are drugged and confined by doctors for non-criminal conduct, go unpunished for crimes they commit, and are supported by the state - not because they are sick but because they are unproductive and unwanted. This study re-examines such interventions

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Book SynopsisThe United States, and indeed the Western world, is bitterly divided on the issues of the right to die and euthanasia. This work provides an overview of the history of this topic, as well as the opinions surrounding it, ranging from the trial of Socrates in ancient Greece to the battle over the fate of Terri Schiavo in Florida.

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Book SynopsisUses insights from the philosophy of Ludwig Wittgenstein to rethink bioethics. While Wittgenstein produced little formal writing on ethics, this volume shows that, in fact, ethical issues permeate the entirety of his work. It brings startling insights and clarifications to contemporary ethical problems posed by the realities of modern medicine.Trade Review“Slow Cures and Bad Philosophers breaks new ground, contributing to a fresh understanding of familiar questions in and about bioethics. This is a high quality, useful work.”—Martin Benjamin, author of Splitting the Difference: Compromise and Integrity in Ethics and Politics“A startlingly original and very important collection of essays. Wittgenstein’s insights should help the field move away from fruitless battles and back to what its business really is: deepening our shared understanding of what would count as better health care and policy.”— Judith André, Center for Ethics and Humanities in the Life Sciences at Michigan State University“Carl Elliott always writes intriguing essays at the intersection between ethics, medicine, and general philosophy, so it is a real pleasure to have a new installment in his continuing reflections on the fascinating problems that arise in this territory. Aside from anything else, he writes well for the general reader, who can enjoy and learn from his work.”—Stephen Toulmin, University of Southern CaliforniaTable of ContentsAcknowledgments Abbreviations 1. Introduction: Treating Bioethics / Carl Elliott 2. Religion, Superstition, and Medicine / James C. Edwards 3. Patient Multiplicity, Medical Rituals, and Good Dying: Some Wittgensteinian Observations / Larry Churchill 4. “Unlike Calculating Rules?”: Clinical Judgment, Formalized Decision Making, and Wittgenstein / James Lindemann Nelson 5. Wittgenstein’s Startling Claim: Consciousness and the Persistent Vegetative State / Grant Gillett 6. Attitudes, Souls, and Persons: Children with Severe Neurological Impairment / Carl Elliott 7. Why Wittgenstein’s Philosophy Should Not Prevent Us From Taking Animals Seriously / David DeGrazia 8. Injustice and Animals / Cora Diamond 9. Bioethics, Wisdom, and Expertise / Paul Johnston 10. Wittgensteinian Lessons on Moral Particularism / Margaret Olivia Little 11. Wittgenstein: Personality, Philosophy, Ethics / Knut Erik Tranöy Notes on Contributors Index

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Book SynopsisA study of the mutually constituitive relations between Western biomedicine and Ango- American literature in the 20th and early 21st centuries, tracing the interwoven processes by which both fields have transformed the course of human life.Trade Review“Liminal Lives offers very strong and important theoretical insights into relationships between scientific knowledge and practice and literary production. Its innovative methodology creates possibilities for better communication and exchange between scientific, literary, and social scientific knowledge in a way that will be very useful to others interested in interdisciplinary science studies.”—Catherine Waldby, author of AIDS and The Body Politic: Biomedicine and Sexual Difference“A brilliant and provocative exploration of how biomedicine and literature, particularly science fiction, are together reconfiguring the very shape of the entire life span, producing adoptable embryos, giant babies, interspecies pregnancies, and regenerated old bodies—all in the context of a new and grim bio-economy in which hearts and kidneys are for sale and earrings are fabricated out of fetal remains.”—Kathleen Woodward, author of Aging and Its Discontents: Freud and Other Fictions“Susan Merrill Squier’s Liminal Lives is compelling, timely, imaginative, and wonderfully provocative.”—Priscilla Wald, author of Constituting Americans: Cultural Anxiety and Narrative FormTable of ContentsList of Illustrations xi Acknowledgments xiii Introduction: Networking Liminality 1 1. The Uses of Literature for Feminist Science Studies: Tracing Liminal Lives 25 2. The Cultured Cell: Life and Death at Strangeways 58 3. The Hybrid Embryo and Xenogenic Desire 89 4. Giant Babies: Graphing Growth in the Early Twentieth Century 112 5. Incubabies and Rejuvenates: The Traffic between Technologies of Reproduction and Age Extension 146 6. Transplant Medicine and Transformative Narrative 168 7. Liminal Performances of Aging: From Replacement to Regeneration 214 Coda: The Pluripotent Discourse of Stem Cells: Liminality, Reflexivity, and Literature 253 Notes 281 Works Cited 315 Index 335

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Book SynopsisAn ethnography focused on professional guinea pigs, healthy, paid research subjects who earn their living by participating in multiple Phase I clinical trials testing the safety of drugs in development.Trade Review“The book makes a compelling argument for why test subjects in the US should be given more protection - and I take my hat off to the author for arguing the case.” - Clint Witchalls, New Scientist“[An] intriguing and worrying book.” - Scott McLemee, Inside Higher Ed“[A]disturbing account. . . . The Professional Guinea Pig raises important questions.” - Meredith Wadman, Nature“Roberto Abadie has written an absorbing ethnographic study of clinical trials that focuses not on the clinic or the clinicians, the science or its development, but the research participants in phase one trials (the first stage of testing in humans). . . . [A] fascinating description of the subculture of regular drug-trial volunteers.” - Nathan Emmerich, Times Higher Education Supplement“The Professional Guinea Pig gives voice to volunteers skeptical of the current ethical protections in phase 1 trials, even as they endure the risks of those trials. . . . Readers will learn something about a fascinating counterculture. . . .” - Deborah R. Barnbaum, Nature Medicine“The Professional Guinea Pig tells a fascinating story at the entrepreneurial and pharmaceuticalized heart of neoliberal medicine. . . . It is a riveting read and makes important contributions to the anthropologies of neoliberalism, pharmaceuticals, and the body.” - Anne Pollock, American Anthropologist“Roberto Abadie has given us a deep, complex, and profoundly disturbing investigation into the dark underside of the clinical trials industry. The Professional Guinea Pig is not just ethnography. It is a call to action.” —Carl Elliott, author of Better than Well: American Medicine Meets the American Dream“The Professional Guinea Pig gives voice to volunteers skeptical of the current ethical protections in phase 1 trials, even as they endure the risks of those trials. . . . Readers will learn something about a fascinating counterculture. . . .” -- Deborah R. Barnbaum * Nature Medicine *“The Professional Guinea Pig tells a fascinating story at the entrepreneurial and pharmaceuticalized heart of neoliberal medicine. . . . It is a riveting read and makes important contributions to the anthropologies of neoliberalism, pharmaceuticals, and the body.” -- Anne Pollock * American Anthropologist *“[A]disturbing account. . . . The Professional Guinea Pig raises important questions.” -- Meredith Wadman * Nature *“Roberto Abadie has written an absorbing ethnographic study of clinical trials that focuses not on the clinic or the clinicians, the science or its development, but the research participants in phase one trials (the first stage of testing in humans). . . . [A] fascinating description of the subculture of regular drug-trial volunteers.” -- Nathan Emmerich * Times Higher Education *“The book makes a compelling argument for why test subjects in the US should be given more protection - and I take my hat off to the author for arguing the case.” -- Clint Witchalls * New Scientist *Table of ContentsA Note on Method ix Acknowledgments xi Introduction. A Guinea Pig's Wage: Risk, Body Commodification, and the Ethics of Pharmaceutical Research in America 1 1. Guinea-Pigging: The In/Formal Economy of Phase I Clinical Trials in Philadelphia 21 2. Market Recruitment, Identity, and Resistance among Professional Guinea Pigs 45 3. Local Knowledge and Risk Management among Professional Guinea Pigs 65 4. Big Pharma and HIV Clinical Trials: A Case Study 85 5. Strategies of Survival: HIV Clinical Trials and the Fight for Their Lives 97 6. From Prisoners to Professionals: A Brief History of the Clinical-Trial Enterprise 121 7. Ethics and the Exploitation of the Poor in Clinical Trials Research 137 Conclusion. Living in/off the Mild Torture Economy as Trial Subjects 157 Epilogue. Following Up: Robert Helms, Frank Little, Dave Onion, and Spam One Last Time 167 Bibliography 171 Index 181

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Book SynopsisAn ethnography focused on professional guinea pigs, healthy, paid research subjects who earn their living by participating in multiple Phase I clinical trials testing the safety of drugs in development.Trade Review“The book makes a compelling argument for why test subjects in the US should be given more protection - and I take my hat off to the author for arguing the case.” - Clint Witchalls, New Scientist“[An] intriguing and worrying book.” - Scott McLemee, Inside Higher Ed“[A]disturbing account. . . . The Professional Guinea Pig raises important questions.” - Meredith Wadman, Nature“Roberto Abadie has written an absorbing ethnographic study of clinical trials that focuses not on the clinic or the clinicians, the science or its development, but the research participants in phase one trials (the first stage of testing in humans). . . . [A] fascinating description of the subculture of regular drug-trial volunteers.” - Nathan Emmerich, Times Higher Education Supplement“The Professional Guinea Pig gives voice to volunteers skeptical of the current ethical protections in phase 1 trials, even as they endure the risks of those trials. . . . Readers will learn something about a fascinating counterculture. . . .” - Deborah R. Barnbaum, Nature Medicine“The Professional Guinea Pig tells a fascinating story at the entrepreneurial and pharmaceuticalized heart of neoliberal medicine. . . . It is a riveting read and makes important contributions to the anthropologies of neoliberalism, pharmaceuticals, and the body.” - Anne Pollock, American Anthropologist“Roberto Abadie has given us a deep, complex, and profoundly disturbing investigation into the dark underside of the clinical trials industry. The Professional Guinea Pig is not just ethnography. It is a call to action.” —Carl Elliott, author of Better than Well: American Medicine Meets the American Dream“The Professional Guinea Pig gives voice to volunteers skeptical of the current ethical protections in phase 1 trials, even as they endure the risks of those trials. . . . Readers will learn something about a fascinating counterculture. . . .” -- Deborah R. Barnbaum * Nature Medicine *“The Professional Guinea Pig tells a fascinating story at the entrepreneurial and pharmaceuticalized heart of neoliberal medicine. . . . It is a riveting read and makes important contributions to the anthropologies of neoliberalism, pharmaceuticals, and the body.” -- Anne Pollock * American Anthropologist *“[A]disturbing account. . . . The Professional Guinea Pig raises important questions.” -- Meredith Wadman * Nature *“Roberto Abadie has written an absorbing ethnographic study of clinical trials that focuses not on the clinic or the clinicians, the science or its development, but the research participants in phase one trials (the first stage of testing in humans). . . . [A] fascinating description of the subculture of regular drug-trial volunteers.” -- Nathan Emmerich * Times Higher Education *“The book makes a compelling argument for why test subjects in the US should be given more protection - and I take my hat off to the author for arguing the case.” -- Clint Witchalls * New Scientist *Table of ContentsA Note on Method ix Acknowledgments xi Introduction. A Guinea Pig's Wage: Risk, Body Commodification, and the Ethics of Pharmaceutical Research in America 1 1. Guinea-Pigging: The In/Formal Economy of Phase I Clinical Trials in Philadelphia 21 2. Market Recruitment, Identity, and Resistance among Professional Guinea Pigs 45 3. Local Knowledge and Risk Management among Professional Guinea Pigs 65 4. Big Pharma and HIV Clinical Trials: A Case Study 85 5. Strategies of Survival: HIV Clinical Trials and the Fight for Their Lives 97 6. From Prisoners to Professionals: A Brief History of the Clinical-Trial Enterprise 121 7. Ethics and the Exploitation of the Poor in Clinical Trials Research 137 Conclusion. Living in/off the Mild Torture Economy as Trial Subjects 157 Epilogue. Following Up: Robert Helms, Frank Little, Dave Onion, and Spam One Last Time 167 Bibliography 171 Index 181

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Book SynopsisIn Medicating Race, Anne Pollock traces the intersecting discourses of race, pharmaceuticals, and heart disease in the United States over the past century, from the founding of cardiology through the FDA's approval of BiDil, the first drug sanctioned for use in a specific race.Trade Review“Both provocative and important for the study of race and/in medicine. . . . Pollock’s book serves well in highlighting the importance of considering the entirety of the social world (including the biomedical) with the same political and moral concerns borne by more traditional social theory.” -- Colin Halverson * Somatosphere *"Medicating Race charts a new course in critical race studies in biomedicine, one that takes seriously the vital importance of healing, the 'durable preoccupation' with race, and the somatic toll of racism. Anne Pollock asks us to revisit some of our most cherished assumptions about race and biomedicine in this theoretically informed and usefully provocative exploration of the social meanings of heart disease."—Alondra Nelson, author of Body and Soul: The Black Panther Party and the Fight against Medical Discrimination“This book is masterfully performative and empirically rich, offering insight to scholars of race, feminist science and technology studies, medical anthropology and sociology.” -- Alexandra A. Choby * Sociology of Health & Illness *"Based on exceptionally thorough scholarship and full of thought-provoking ideas, Medicating Race addresses one of the most perplexing and contentious topics in biomedical research and medical practice during the past century: race and its implications for health, disease, and treatment. Anne Pollock is trained in science and technology studies and is sensitive to the complexities of knowledge, politics, markets, and social categories. In this original study, she reveals how the modern history of heart disease is intertwined not only with the emergence and growth of the field of cardiology but also with civil rights struggles, pharmaceutical drug development and marketing, and changing notions of the biological and social meanings of race."—Steven Epstein, author of Inclusion: The Politics of Difference in Medical Research“[Pollock] offers a richer contextualization of the way race figures in medicine that positions medical science not as an exclusive or absolute authority, but one among many forms of ordering and reasoning about the simultaneously social and technical world we inhabit. .. Pollock above all makes clear how different forms of knowledge, belief and reasoning are woven through the forms of collective organization and stratification sociology seeks to understand.” -- Erik Aarden * Sociology *“Pollock provides insights for scholars interested in the mechanisms by which ‘race’structures medical practice, scientific knowledge development and pharmaceutical capital in the USA. She develops a compelling historical account of the varied meanings and significance of ‘race’ in the longer development of medical knowledge and practices constitutive of heart disease and, by extension, the wider field of American medicine.” -- James T. Roanea * Global Public Health *Table of ContentsAcknowledgments vii Introduction 1 1. Racial Preoccupations and Early Cardiology 28 2. Making Normal Populations and Making Difference in the Framingham and Jackson Heart Studies 52 3. The Durability of African American Hypertension as a Disease Category 83 4. The Slavery Hypothesis beyond Genetic Determinism 107 5. Thiazide Diuretics at a Nexus of Associations: Racialized, Proven, Old, Cheap 131 6. BiDil: Medicating the Intersection of Race and Heart Failure 155 Conclusion 180 Notes 197 Works Cited 225 Index 253

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Book SynopsisIn Chagas Disease: History of a Continent’s Scourge, François Delaporte describes how the interaction of public health policy with medical knowledge and epistemological transformations in the period 1900-1935 can account for the discovery of a continental endemic. It also deconstructs the myths that surround a number of major medical discoveries in both Brazil and Argentina.Trade ReviewDelaporte’s brilliant historical exploration of Chagas' disease covers the decisive period of 1909-1935. The strength of the study is the exhaustive discussion of the scientific literature, the subtle examination of fundamental shifts in conceptual frameworks, and the unrelenting interrogation of the crucial role that chance and error play in scientific research. What Delaporte has written is a comédie humaine of post-colonial science.---—Carlo Caduff, King's College, LondonSeveral points about the discovery of Chagas disease as described in the book are striking. * —The Lancet *In this finely crafted monograph, Francois Delaporte tackles one of the most complex diseases, American trypanosomiasis, known as Chagas Disease. Through his skillful dissection, he shows how complicated its discovery actually was, and offers wonderful insights into the international dimensions of Brazilian medical science in the early twentieth century. It is good to have this important work available in English.---—W. F. Bynum, MD, PhD, FRCP, Professor Emeritus, University College LondonIf Delaporte is correct then Chagas did not discover the causative organisms of American trypanosomiasis, did not work out the life cycle in the bug and did not discover the disease. So why is he so revered? Delaporte thinks that this is because Chagas was an expert at reformulating the past by rewriting history. * —Parasitology *'Chagas Disease' is a page-turner, where the reader is invited to wonder what will happen next. * —International Studies in the Philosophy of Science *

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Book SynopsisConfidentiality and Its Discontents: Dilemmas of Privacy in Psychotherapy explores the human stories arising from the psychotherapist’s dual allegiance to patient and society. These dilemmas include the hazards of publishing a case study without the patient’s permission and the unexpected problems arising from the therapist functioning as a "double agent."Trade Review"Confidentiality and Its Discontents is an excellent account of confidentiality. It is a must-read for all clinicians, especially those who struggle with this issue as the actors in these stories did." -Journal of the American Psychoanalytic Association "Written by two of the leading individuals in the field, Confidentiality and Its Discontents is a clearly readable and well-argued account of the debates about confidentiality in psychiatry and psychoanalysis. The book is extremely well presented and adds immeasurably to the literature on the topic." -- -Sander Gilman Emory University "Confidentiality and Its Discontents provides careful descriptions and discussions of a range of privacy cases that demonstrate the rapidly-escalating problems associated with the supposed confidentiality of the psychotherapeutic relationship. Confidentiality and Its Discontents will be a useful and unique resource to many mental health training programs." -- -Paul Brinich Clin. Prof. (Emeritus), Depts. of Psychology and Psychiatry, University of North Carolina at Chapel HillTable of ContentsContents Acknowledgments Introduction 1. We Have Met the Enemy and He (Is) Was Us 2. The Buried Bodies Case: Lawyers Risk Their Careers to Defend Their Ethical Commitment to Client Privacy 3. The Case of Joseph Lifschutz: A Psychoanalyst in Jail 4. "The Angry Act": The Psychoanalyst's Breach of Confidentiality in Philip Roth's Life and Art 5. Angry Acts and Counteracts in Philip Roth's Life and Art 6. The Case of Jane Doe v. Joan Roe and Peter Poe: The Most Extensive Violation Ever of a Psychotherapy Patient's Privacy 7. The Anne Sexton Controversy: "There Is Nothing Like This in the History of Literary Biography" 8. The Tarasoff Case: Must the Protective Privilege End Where the Public Peril Begins? 9. Jaffee v. Redmond: The Supreme Court Speaks 10. The People v. Robert Bierenbaum: "Long-Ago Warnings Cannot Justify Abrogating the Privilege Covering Still Confidential Communications" 11. U. S. v. Sol Wachtler: "This Chief Judge Is Either Crazy or Criminal" Conclusion Works Cited Index

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Book Synopsis

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Book SynopsisPotter's definition of bioethics from Global Bioethics is, Biology combined with diverse humanistic knowledge forging a science that sets a system of medical and environmental priorities for acceptable survival.

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Book SynopsisHealth Care Professionalism at a Glance offers accessible coverage of an increasingly important aspect of medical and health professional education. This concise text includes how to identify and develop professional behaviours, how they are assessed, and how to challenge unprofessional behaviours.Table of ContentsContributors vii Preface ix Part 1 Professionalism in context 1 1 What is professionalism? 2 2 Health professionalism 4 3 Brief history of the profession of medicine 6 4 Becoming a professional 8 5 Role of regulatory and professional bodies 10 6 Fitness to practise and health for practice 12 7 Revalidation and remediation 14 8 Social media and the professional 16 Part 2 Learning to be a professional 19 9 The formal curriculum 20 10 Learning and teaching professionalism 22 11 Informal learning, role models and the hidden curriculum 24 12 Assessing professionalism 26 13 Principles of selection 28 14 Academic writing and plagiarism 30 Part 3 Professionalism in practice 33 15 Professional behaviours 34 16 Empathy, compassion and altruism 36 17 Handling emotions 38 18 Self-care: looking after your own health 40 19 Reflective practice 42 20 Ethics and the law 44 21 Evidence-based practice 46 22 Values-based practice 48 23 Cultural competency, sensitivity and safety 50 24 Dealing with bias and prejudice 52 Part 4 Working with patients 55 25 Patient advocacy 56 26 Patient safety 58 27 Relationships with patients 60 28 The nature of autonomy: patient and doctor 62 29 Boundary crossings and violations 64 30 Compliance, adherence and shared decision-making 66 31 Prescribing: medication and management 68 32 Communication 70 Part 5 Working with others 73 33 Written communication 74 34 Teamwork and interprofessional collaborative practice 76 35 Leadership and followership 78 Part 6 Professional issues and dilemmas 81 36 When things go wrong 82 37 Dealing with complaints 84 38 Case studies: professional dilemmas 86 References 87 Further reading 90 Index 92

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Book SynopsisEssential Clinical Oral Biology is an accessible guide to oral biology, introducing the scientific knowledge necessary to succeed in clinical practice.Table of Contents Contributors, xxx Preface, xxx About the companion website, xxx 1 An Introduction to the Human DentitionStephen Creanor 2 Oral EmbryologyStuart McDonald 3 Tooth DevelopmentStephen Creanor and Kamran Ali 4 EnamelPaul Anderson and Stephen Creanor 5 The Dentine-Pulp ComplexStephen Creanor, Christopher Tredwin and Taher Elgalaid 6 CementumStephen Creanor 7 Alveolar BoneStephen Creanor and Kamran Ali 8 The Periodontal Ligament (PDL)Vehid Salih and Svetislav Zaric 9 Oral MucosaKamran Ali 10 The GingivaEwen McColl and Stephen Creanor 11 Tooth eruption and development of the occlusionDeclan Millett and Stephen Creanor 12 The Salivary GlandsStephen Creanor and Kamran Ali 13 SalivaStephen Creanor and Kamran Ali 14 Maxillary SinusStuart McDonald, Stephen Creanor and Kamran Ali 15 The Temporomandibular JointStuart McDonald and Stephen Creanor 16 The TongueStuart McDonald and Stephen Creanor 17 Lymph Nodes of the Head and Neck and the TonsilsStuart McDonald 18 Dental Plaque and CalculusLouise Belfield 19 Dental Caries – the Biological BasisStephen Creanor 20 Introduction to Periodontal DiseaseGerry Linden and Lewis Winning Index, xxx

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Book SynopsisTrade ReviewFrom a Master's Student in Counseling Psychology- "I thought ethics would be arduous and full of technical terms and rules...This book was transformative in the way I look at ethics. It was so easy to read/understand and the layout made it so readable. i really appreciate the Journal Entry prompts and the Food for Thought prompts as well! Who knew I would find an ethics book I couldn't put down?!" Table of ContentsContents About the Authors viiiPreface ix Introduction 1 Part I Taking Stock Chapter 1- Basics of Awareness: Knowing Yourself and Your CoreChapter 2- Basics of Awareness: Privilege, Discrimination, Oppression, and Social JusticeChapter 3- The Process of Acculturation: Developing Your Professional Ethical Identity Chapter 4- Navigating the Ethical Culture of Psychotherapy Part II The Nuts and Bolts of Psychotherapy Ethics Chapter 5- Boundaries and Multiple Relationships in the Psychotherapy Relationship Chapter 6- Confidentiality: A Critical Element of Trust in the Relationship Chapter 7- Informed Consent: The Three-Legged Stool Chapter 8- Making the Most of SupervisionChapter 9- Ending Psychotherapy: The Good, The Bad and the Ethical Part III The Ethical Ceiling Chapter 10- Putting It all Together: Toward Ethical Excellence Appendix A: Possible Information to be Shared with Clients Appendix B: Policy AreasReferences

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