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Book SynopsisThis book examines transparency in the health context, including the many ethical and legal issues it raises. It will appeal to anyone interested in how transparency can transform existing health care policy frameworks, from the pharmaceutical industry, to Big Data, to concerns around patient privacy protections.Table of ContentsIntroduction Carmel Shachar, I. Glenn Cohen, Holly Fernandez Lynch and Barbara J. Evans; Part I. Transparency in Health and Health Care: Thematic Issues: Introduction Abigail R. Moncrieff; 1. Smashing into windows: 'the limits of consumer sovereignty in health care' Barry R. Furrow; 2. The interplay of privacy and transparency in health care: the HIPAA privacy rule as a case study Barbara J. Evans; 3. Transparency tradeoffs: priority-setting, scarcity, and health fairness Govind Persad; 4. Slightly hazy: transparency and the costs of too much information Oliver J. Kim; Part II. Transparency and Informed Consent: Introduction Luke Gelinas; 5. Transparency versus informed consent: the patient/consumer paradigms Craig J. Konnoth; 6. Transparency and financial conflicts: the uncertain case for sunshine Richard S. Saver; 7. Making religion transparent: the substance, process, and efficacy of disclosing religious restrictions on care Elizabeth Sepper; Part III. Transparency and Economics: Health Care Costs and Billing: Introduction Kristin M. Madison; 8. Transparency on prescription drug research expenditures: a lever for restraining pricing? Ameet Sarpatwari, Jerry Avorn and Aaron S. Kesselheim; 9. Is pharmaceutical price transparency an effective means to reduce high prices and wide variations? Marc A. Rodwin; 10. Price transparency: a contracts solution Wendy Netter Epstein; 11. Solving surprise medical bills Mark A. Hall; Part IV. Transparency and Innovation: Introduction Holly Fernandez Lynch; 12. Increasing the transparency of FDA review to enhance the innovation process Rachel E. Sachs and Thomas J. Hwang; 13. Transparency and clinical trial data sharing: legal and policy issues Barbara E. Bierer, Mark Barnes and Rebecca Li; 14. The European Medicines Agency's approach to transparency Stefano Marino and Spyridon Drosos; Part V. Transparency and Outcomes: Promoting Health and Safety: Introduction Gregory Curfman; 15. The role of transparency in promoting healthy behaviors: pros, cons, and perils of information sharing to foster personal responsibility in health care Anthony W. Orlando and Arnold J. Rosoff; 16. The role of transparency in patient safety improvement Michelle M. Mello, David M. Studdert, Brahmajee K. Nallamothu and Allen Kachalia; 17. Personal health records as a tool for transparency in health care Sharona Hoffman; 18. Nontransparency in electronic health record systems Jim Hawkins, Barbara J. Evans and Harlan M. Krumholz; 19. Transparency challenges in reproductive health care Dov Fox; Part VI. Challenges in Promoting and Measuring Transparency in Health Care: Introduction I. Glenn Cohen; 20. ERISA as a barrier for state health care transparency efforts Erin C. Fuse Brown and Jaime S. King; 21. Transparency and data sharing in clinical research and Big Pharma Jennifer E. Miller; 22. Promoting IRB transparency: about what, to whom, why, and how? Holly Fernandez Lynch; 23. Using disclosure to regulate PBMs: the dark side of transparency David A. Hyman and William E. Kovacic.

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Book SynopsisOver the past decades, public trust in medical professionals has steadily declined. This decline of trust and its replacement by ever tighter regulations is increasingly frustrating physicians. However, most discussions of trust are either abstract philosophical discussions or social science investigations not easily accessible to clinicians. The authors, one a surgeon-turned-philosopher, the other an analytical philosopher working in medical ethics, joined their expertise to write a book which straddles the gap between the practical and theoretical. Using an approach grounded in the methods of conceptual analysis found in analytical philosophy which also draws from approaches to medical diagnosis, the authors have conceived an internally coherent and comprehensive definition of trust to help elucidate the concept and explain its decline in the medical context. This book should appeal to all interested in the ongoing debate about the decline of trust - be it as medical professionals, medical ethicists, medical lawyers, or philosophers.Trade Review'Is a lack of trust in your doctor bad for your health? This book examines this question and the nature of trust. While doctors haven't become more fallible, trust in them is said to be declining. Is this decline real or imaginary, and what is responsible? How can trust be restored? The authors leave no stone unturned in answering these questions and exploring the interplay between expectation, risk and competence.' Daniel Simmen, Klinik Hirslanden, Zurich'This book, Trust in Medicine: Its Nature, Justification, Significance, and Decline, is now the starting point for all future work on trust in medicine. It is a significant and original contribution to the analysis and understanding of the concept of trust and its proper role in patient care. The collaboration between the authors, a physician and a philosopher, mean that the discussion is both theoretically rich but always tied to the realities of modern health care. This is exemplary bioethics, advancing the field and stimulating new avenues for future scholarship.' Angus Dawson, The University of Sydney'I thoroughly enjoyed reading Trust in Medicine: Its Nature, Justification, Significance, and Decline by Wolfensberger and Wrigley. It is a very clear example of how to do philosophical bioethics that engages closely with the empirical context and with practical clinical issues. The book thoroughly considers the philosophical literature on Trust and then, in a careful and strategic manner applies the lessons of that literature to the clinical context and the doctor- patient relationship. It is an extended piece of bioethics that will engage and challenge philosophers, bioethicists and clinicians. When we imagine applied philosophical bioethics, this is the kind of work that should come to mind.' Mark Sheehan, University of OxfordTable of ContentsPart I. Introduction: 1. Introduction; 2. Empirical evidence for the decline of trust; Part II. The Nature of Trust: 3. A critical analysis of existing definitions of trust in medicine; 4. Proposing a new type of definition: the pattern-based definition; 5. A Pattern-based definition of trust; 6. Differentiating trust from related concepts; 7. Adapting the definition of trust to different situations; Part III. Justification of Trust: 8. Justification of epistemic trust; 9. Justification of patients' trust in physicians; Part IV. Significance of Trust: 10. Instrumental utility of trust; 11. The moral value of trust; Part V. The Decline of Trust: 12. Reasons for the decline of trust; Part VI. Perspectives: 13. Can we restore trust? List of references; Index.

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Book SynopsisTable of ContentsPreface 1. A Brief History of Occupational and Environmental Medicine in the United States, Tee L. Guidotti, Manijeh Berenji, and Judith Green McKenzie 2. Schools of Thought in Occupational and Environmental Medicine, Tee L. Guidotti 3. Theory and Practice of Occupational and Environmental Medicine, Tee L. Guidotti 4. Relationships: Interactions with Other Fields and Specialties, Ifeoma Margaret Ama 5. Profiles: Practitioners in Action Paula A. Lantsberger Chang Rim Na Tanisha Taylor Ernest C. Levister Jr. Philip Harber Zeke J. McKinney Raúl Alexander Mirza Clarion E. Johnson J. Brent Pawlecki Pouné Saberi Wayne N. Burton 6. Corporate Sector and Private Practice, J. Brent Pawlecki and Paula A. Lantsberger 7. Practice Settings, Tee L. Guidotti and Raúl Alexander Mirza 8. Academic Occupational and Environmental Medicine, Judith Green McKenzie 9. Case Studies, Manijeh Berenji, Natalie P. Hartenbaum, Chang Rim Na, and Tee L. Guidotti 10. Core Controversies, Tee L. Guidotti 11. Classic Research in Occupational and Environmental Medicine, Tee L. Guidotti 12. Contemporary Research and Looking Ahead, How-Ran Guo 13. The Future of Occupational and Environmental Medicine, Tee L. Guidotti, William G. Buchta, Tanisha Taylor, Denece Kesler, Robert K. McLellan, Robert Bourgeois, and Bill Bruce Bibliography About the Editor and Contributors Index

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Book SynopsisKumaralingam Amirthalingam is Professor of Law at the National University of Singapore.

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Book SynopsisAutonomy is a vital principle in medical law and ethics. It occupies a prominent place in all medico-legal and ethical debate. But there is a dangerous presumption that it should have the only vote, or at least the casting vote. This book is an assault on that presumption, and an audit of autonomy's extraordinary status. This book surveys the main issues in medical law, noting in relation to each issue the power wielded by autonomy, asking whether that power can be justified, and suggesting how other principles can and should contribute to the law. It concludes that autonomy's status cannot be intellectually or ethically justified, and that positive discrimination in favour of the other balancing principles is urgently needed in order to avoid some sinister results. 'This book is a sustained attack on the hegemony of the idea of autonomy in medical ethics and law. Charles Foster is no respecter of authority, whether of university professors or of law Lords. He grabs his readers by their lapels and shakes sense into them through a combination of no-nonsense rhetoric and subtle argument that is difficult to resist.' Tony Hope, Professor of Medical Ethics, Oxford University 'This book is unlikely to be in pristine state by the time you have finished reading it. Whether that is because you have thrown it in the air in celebration or thrown it across the room in frustration will depend on your perspective. But this book cannot leave you cold. It is a powerful polemic on the dominance of autonomy in medical law, which demands a reaction. Charles Foster sets out a powerful case that academic medical lawyers have elevated autonomy to a status it does not deserve in either ethical or legal terms. In a highly engaging, accessible account, he challenges many of the views which have become orthodox within the academic community. This will be a book which demands and will attract considerable debate.' Jonathan Herring, Exeter College, Oxford University 'This is a learned, lively and thought-provoking discussion of problems central to the courts' approach to ethical issues in medical law. What principles are involved? More significantly, which really underlie and inform the process of seeking justice in difficult cases? Charles Foster persuasively argues, and demonstrates, that respect for autonomy is but one of a number of ethical principles which interact and may conflict. He also addresses the sensitive issue of the extent to which thoughts and factors which go to influence legal decisions may not appear in the judgments.' Adrian Whitfield QC. 'Introducing the Jake La Motta of medical ethics. Foster is an academic street-fighter who has bloodied his hands in the court room. He provides a stinging, relentless, ground attack on the Goliath of medical ethics: the central place of autonomy in liberal medical ethics. This is now the first port of call for those who feel that medical ethics has become autonomized.' Julian Savulescu, Uehiro Chair in Practical Ethics, University of Oxford. "This important book offers a robust challenge to anyone, whether lawyer or 'ethicist', who sees respect for autonomy as the only game in town. It argues eloquently and effectively that, on the one hand, despite the reverence paid to it by judges, in practice the law, even in the context of consent, weaves together a number of moral threads of which autonomy is merely one, in the pursuit of a good decision. It argues on the other hand, that were the day-to-day practice of law to be guided primarily by respect for autonomy, this would be wrong. Foster concludes that whilst, 'any society that does not have laws robustly protecting autonomy is an unsafe and unhappy one', so too would be a society in which too much emphasis was placed on respect for autonomy at the expense of other important moral principles. This is essential reading for anyone interested in the role of autonomy and indeed of medical ethics, in the law." Michael Parker, Professor of Bioethics, University of OxfordTrade Review...written in a very powerful and thought-provoking style and will be an intriguing read for anyone interested in understanding the wide range of concrete cases that Foster considers. ...if read open-mindedly and with a view to understanding the main principles used in biomedical contexts, Foster's book has the potential to make a distinctive contribution to the debate about the role of autonomy...he has undeniably produced a book that will inject some life into the often stale academic debates on the topic. Mirko Daniel Garasic Plurilogue August 2011 ...fresh, clear and eminently readable...This is a short book, passionately argued, which all those interested in medical law, and the rights and duties of patients and doctors, should read. You may disagree: you won't be bored. Bio-Science Law Review Vol 10, Issue 3, 2009 This is certainly a useful book for people wishing to understand some of the legal background in key areas of medical law...it is also worthy of consideration in its own right by anyone seeking an alternative perspective on autonomy in health care ethics. Vincent Mitchell Nursing Ethics 16 (6), 2009 This book provides an accessible critique of the principle of 'autonomy' in the context of medical law. As a lawyer himself, Charles Foster succinctly summarises the various legal issues arising, as the title suggests, from conception to death. Antony Blackburn-Starza BioNews Newsletter 5th January 2010 This book is an important challenge to the dominance of autonomy in medical ethics and law ... [it] will ... be a useful and thought-provoking resource for those studying or teaching medical law and ethics. Mark Campbell Triple Helix Easter 2010 This is an important addition to the ongoing ethical, as well as medico-legal debate regarding autonomy. Foster's work provides an excellent point of departure for those new to the area, as well as a rich source of reference material for subsequent investigations. Doug Morrison Medical Law Review June 2010 Are you a hirsute medical lawyer, with a low blood pressure and writer's block? Then this is the book for you. You will not have to read too many pages before your blood will be boiling, you will be pulling out your hair, and grabbing your keyboard to type a furious riposte. .. This book is a powerful challenge to the role that autonomy plays in medical law and ethics. The book demonstrates a wide-ranging understanding of the law. Few authors could hope to make as many sharp points as Foster does in such a short space of time. This must be the most fast-paced and easy-to-read book on the topic. For that reason it may well be of interest to students and no doubt lecturers will enjoy setting their chapters for students to read in order to provoke a response. Therein lies the strength of this book. It is a book that demands a reaction. Jonathan Herring Legal Studies Volume 30, No 2 Charles Foster's book provides a welcome addition to the literature by confronting some of these premises in the context of English medical law. Katri Lohmus Social and Legal Studies 19 (3) 2010 Charles Foster minces no words. Choosing Life, Choosing Death is a comprehensive and passionately argued attack against the "tyranny of autonomy" in medical ethics and law. Katharina Heyer The Journal of Law and Society Volume 45, Issue 1Table of ContentsPart 1: Principles Chapter 1: Autonomy: Challenging the Consensus Chapter 2: Other Contenders for a Voice Non-maleficence: Primum Non Nocere: Above All, Do No harm Beneficence Justice Professional Integrity Rights and Duties Chapter 3: Whose Autonomy? Part 2: Before Life Chapter 4: Reproductive Autonomy Should One Be Required to Reproduce? Should You Be Entitled to Have a Child? Applications to Adopt Applications by Prisoners Chapter 5: Abortion Chapter 6: Questions Raised by Reproductive Technology Part 3: Between Birth and Death Chapter 7: Confidentiality What Principles Are Embodied in the Law of Confidentiality? From Principle to Practice: Egdell, Genetic Counselling and Axon W v Egdell Genetic Counselling The Sue Axon Case Chapter 8: The Law of Consent Duty to Prevent Suicide: Reeves v Commissioner of Police for the Metropolis Autonomy Over One's Genitalia? R v Brown and Others The Caesarean Section Cases What Do We Mean When We Say 'I Want ...'? What is 'Relevant Information'? Patient Responsibility The Limits of Consent Incidental Findings on Operation Consent, Biobanks and the Effect of Analysing Consent Questions in ECHR Terms The Notion of Capacity Best Interests and Incompetent Adults Children Chapter 9: Litigation, Rights and Duties Chapter 10: Medical Research on Humans Chapter 11: The End of Life Part 4: After Death Chapter 12: Transplantation Xenotransplantation Live Donor Homotransplantation Post-Mortem Homotransplantation Chapter 13: The Ownership of Body Parts Tissue From the Living Tissue From the Living and the Dead Existing Holdings Who Can Give Consent? Chapter 14: Epilogue

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Book Synopsis'Caring and the Law' considers the law's response to caring. It explores how care is valued and recognised, how it is regulated and restricted and how the values of caring are reflected in the law. It does this by examining the law's interaction with caring in a wide range of fields including family, medical, welfare, criminal and tort law. At the heart of the book is the claim that the law has failed to recognise the importance of caring in many areas and in doing so has led to the costs and burdens of care falling on those who provide it, primarily women. It has also meant that the law has failed to protect those who receive care from the abuse that can take place in a caring context. The book promotes an ethic of care as providing an ethical and conceptual framework for the law to respond to caring relationships.Trade ReviewAlthough the laws and cases Herring discusses are from the United Kingdom, the book should have a broad philosophical and legal appeal to those interested in social justice and issues of care in other countries. The book reads as if it represents a lifetime of investigation into Anglo-American literature and British court cases on care and the law. Graduate students and practitioners alike would find its stories, philosophy, and analysis informative and moving. Those who specialise in one area of law may fruitfully dip into a single chapter because Herring carries his thesis explicitly and clearly through each section of the book. This is a carefully reasoned and widely researched book that makes a passionate plea for embracing the wider moral and social significance of a relational understanding of care where all of us should hold one another, society, and the state responsible for the human obligation of caring relationships. -- Adelaide H. Villamoare * The Law and Politics Book Review, Volume 23, No. 12 *If the law has a heart, this book is a more than adequate expression of its inner emotion, making it essential reading for all of those interested in or affected by legal intervention in this area. Given the author's accurate assertion that everyone cares or is cared for, that makes for a very wide potential readership indeed. -- Nicole Busby * Journal of Law and Society, Volume 40, Number 4 *... a thoroughly researched, extremely well-structured and highly thought-provoking text on how the law addresses – or does not, as the case may be – the issue of care. This is a book every law student and graduate should read to assist them to lay down a solid foundation upon which to build their future practice. -- Sue Field * Law Society Journal, Volume 51, Number 8 *It goes without saying that this is an excellent book – erudite, wide ranging and stimulating. Jonathan Herring is a leading legal scholar of our generation. -- Helen Reece * Social & Legal Studies, 23(2) *... a provocative look at the caring/law intersection that makes a worthwhile contribution to the ageing literature. -- Marshall B. Kapp * Care Management Journals, Volume 15, No.2 *This is an accessible, easy-to-read book; the structure is always clear, with everything signposted. Its socio-legal approach means that the realities of caring are never lost; instead arguments from scholars in a number of disciplines are not only set out well but also firmly placed in context. Concrete examples are used to assist (and sometimes amuse) the reader. -- Annika Newnham * Child and Family Law Quarterly *In this accessible and engaging book, Herring takes us on a journey into a world that lawyers often marginalise, yet it is a world that is of relevance to us all…[Caring and the Law] consolidates core scholarly activity, offers suggestions for improvement and reveals how and why caring relationships deserve more attention from policy makers and academics -- Grace James * Feminist Legal Studies *Caring and the law [has] immeasurable value in jolting one...out of traditional ways of thinking and bravely presenting a vision of a different world. -- Brian Sloan * Journal of Social Welfare and Family Law *Herring should be commented for his up-to-date research within this publication. -- Gary Spencer-Humphrey * Professional Social Work *Table of Contents1. Caring I. Introduction II. Title III. Ethic of Care IV. Real Life V. Politics and Care VI. The Structure of the Book 2. The Nature of Care I. Introduction II. Terminology III. The Disability Critique of Care IV. Paid and Unpaid Care V. Gender and Caring VI. The Status of Carers VII. The Extent of Caring VIII. Caring Relationships and Disadvantage IX Conclusion 3. Ethic of Care I. Introduction II. The Origins of an Ethic of Care III. Central Themes in an Ethic of Care Approach IV. Disputed Issues Surrounding an Ethic of Care V. Criticisms of an Ethic of Care VI. Ethic of Care and Law VII. Conclusion 4. State Support of Care I. Introduction II. The Political Background III. Why Care Matters to the State IV. The Basis of the Support V. The Nature of the Support VI. Defamilisation VII. Work-Life Balance VIII. Commodification IX. Current Law X. Government Reforms on Support for Carers XI. Future Funding of Care XII. The Role of the Courts XIII. Conclusion 5. Caring and Medical Law I. Introduction II. The Place of Carers in Medical Law III. Mental Capacity and Carers IV. Carers as Decision-Makers V. Mental Health Act 1983 and Carers VI. Human Tissue Act 2004 and Carers VII. Autonomy VIII. Bodies IX. Rationing X. Confidentiality XI. Personhood XII. Conclusion 6. Family Law and Caring I. Introduction II. Care at the Heart of Family Law III. Marriage IV. Parenthood V. Disputes over Children VI. Financial Orders VII. Unmarried Couples and Property Disputes VIII. Autonomy and Family Law IX. Conclusion 7. Caring and General Law I. Introduction II. Human Rights and Caring Relationships III. Carers and Tort IV. Carers' Employment Law Protection V. Conclusion 8. Caring and Abuse I. Introduction II. Recent Scandals III. Statistics IV. Defining Intimate Relationship Abuse V. The Causes of Intimate Abuse VI. Rights to Protection VII. Criminal Law VIII. Civil Law IX. Compulsory Intervention X. Prevention and Regulation XI. Conclusion 9. Conclusions I. Introduction II. Social Justice and Societal Well-Being III. The Nature of Care IV. The Relational Self V. Gender Care and Power VI. The Promotion of Caring Relationships VII. Care and Health VIII. Refocusing Family Law on Care IX. Care and Employment X. Care and Protection from Abuse XI. Final Thoughts

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Book SynopsisIn this new addition to the 'Debating Law' series, Emily Jackson and John Keown re-examine the legal and ethical aspects of the euthanasia debate. Emily Jackson argues that we owe it to everyone in society to do all that we can to ensure that they experience a 'good death'. For a small minority of patients who experience intolerable and unrelievable suffering, this may mean helping them to have an assisted death. In a liberal society, where people's moral views differ, we should not force individuals to experience deaths they find intolerable. This is not an argument in favour of dying. On the contrary, Jackson argues that legalisation could extend and enhance the lives of people whose present fear of the dying process causes them overwhelming distress. John Keown argues that voluntary euthanasia and physician-assisted suicide are gravely unethical and he defends their continued prohibition by law. He analyses the main arguments for relaxation of the law - including those which invoke the experience of jurisdictions which permit these practices - and finds them wanting. Relaxing the law would, he concludes, be both wrong in principle and dangerous in practice, not least for the dying, the disabled and the disadvantaged.Trade ReviewBoth Jackson and Keown are recognized experts in the field, and their positions are well known: thus the book contains (with merit) a wide variety of arguments and perspectives. And, although each author's presentation is different in his or her own way, the way in which each of them confront identical problems is one of the greatest values of the book. -- Ricardo Chueca * Law and Politics Book Review, Volume 23(2) *This highly accessible book reveals and critiques the flawed logic of the utilitarian mind with its view that human life has but instrumental value to be discarded when no longer of use, justifiable on the grounds that autonomy is to be respected even more than life. With echoes of the tactics used to force the decriminalisation of abortion, this book is a must read for anyone interested in deepening their understanding of the hotly disputed issue of assisted dying. -- unknown * LIFE Magazine *Both Jackson and Keown have put forward accessible and well-argued cases for their respective views. -- Alex Carlile * The Tablet *A concise and excellent summary of the current state of play in the debate about assisted dying. -- Roger Woodruff * International Association for Hospice and Palliative Care e-Newsletter *Both Jackson's and Keown's contributions are clearly presented and succinct, and provide learned representations of the polarised perspectives taken in the euthanasia debate. ... as a supplementary text, one which is used in conjunction with others to flesh out an area of study, it is invaluable. -- Jennifer Edwards * Medical Law Review, Volume 21 *Table of ContentsSeries Editor's Preface Acknowledgements – John Keown and Emily Jackson In Favour of the Legalisation of Assisted Dying by Emily Jackson I. Introduction II. Why We Should Try III. The Status Quo is Indefensible A. Double Effect B. Terminal Sedation C. 'Do Not Attempt Resuscitation' Orders D. Treatment Withdrawal E. Exporting the 'Problem' of Assisted Suicide F. The Euthanasia/Assisted Suicide 'Underground' and the Benefits of Regulation IV. Why Might Anyone Think We Shouldn't Try? A. The Sanctity and Value of Life B. Effect on Doctor–Patient Relationship C. Regulatory Difficulties V. What Might an Assisted Dying Law Look Like? A. Other Countries' Experience B. Process C. Method: Assisted Suicide or Euthanasia, or Both? D. Substance VI. What are the Consequences of not Trying? Against Decriminalising Euthanasia; For Improving Care by John Keown I. Introduction II. Definitions III. Ten Arguments For Decriminalisation A. Autonomy B. Compassion C. Legal Hypocrisy D. A Right to Suicide E. Public Opinion F. Legal Failure G. The Netherlands H. Oregon I. Religion J. Economics IV. Professor Jackson's Arguments A. Jackson 1 B. Jackson 2 V. The Joffe Bill A. The Bill B. Key Committee Recommendations Not Adopted C. Extension and Abuse VI. Conclusions

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