Geriatric nursing Books

Book SynopsisThe innovative Newcastle Challenging Behaviour Model for dementia care has recently been updated, leading to new advances in the field. This revised second edition guide to assessment and treatment of behaviours that challenge associated with dementia includes these latest developments along with new sections on what have traditionally been considered controversial topics.The new chapters cover issues including:- End of life care- Use of therapeutic dolls - Lies and deception- Physical restraint during personal care- Racism towards care staffWith a particular emphasis on non-pharmacological approaches, this book details the range of behaviours common in individuals with dementia, along with the most effective assessment and treatment techniques for health care professionals.Table of ContentsPART I: Setting the Scene. 1. Introduction. 2. The Nature of Dementia. 3. An Introduction to Behaviours that Challenge and their Causes. PART II: Clinical Interventions for Behaviours that Challenge. 4. Clinical Approaches to Behaviours that Challenge. 5. Pharmacological Approaches. 6. Screening of Health Conditions Associated with Confusion and Behaviours that Challenge. 7. Communication and Interaction Training (CAIT) Programme for Carers. 8. The Use of Protocol Interventions in the Treatment of Behaviours that Challenge. 9 Psychological and Other Non-Pharmacological Approaches. 10. The Newcastle Model: An Illustration of a Specialist Team's Clinical Model. 11. Case Studies Using the Newcastle Model. 12. Service Development. PART III: Controversial Topics. 13. Racism in Care Settings: How Staff Cope with Racist Comments, Ian James & Katharina Reichelt, Newcastle Clinical Psychology Team. 14. The Use of Physical Restraint to Deliver Essential Personal Care to Incapacitated Older Adults with Dementia, Alan Howarth, Matt Crooks & Deborah Sells, Northumberland County Challenging Behaviour Team. 15. Use of Dolls in Dementia Care, Ian James & Jennifer Loan, Newcastle Challenging Behaviour Team. 16. Therapeutic Lying: A Rationale for Improving Therapists' Abilities to Lie, Ian James & Roberta Caiazza, Newcastle Clinical Psychology Team. 17. Behaviours that Challenge at the End of Life, Julian Hughes, RICE (The Research Institute for the Care of Older People). References.

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Book SynopsisThe CLEAR Dementia Care© model is an effective method of assessing behaviour that challenges, through an understanding that such behaviour may be a way of communicating unmet needs. This book explains the many factors that contribute to challenging behaviour and how a greater understanding of this can enhance quality of life and lead to better care for the person with dementia in both hospital and residential settings.Discussing how people with dementia have the same needs as everyone else, the book helps to understand dementia from the perspective of the person experiencing it. It features case studies with examples of how to interpret signs of distress and develop an appropriate intervention plan. The model includes person-centred assessment of cognition, life story and personality, emotional and physical wellbeing, activity and environment, and relationships. Also included are easy-to-use photocopiable assessment tools, proven to facilitate a more accurate understanding of behaviour.Trade ReviewFrances Duffy has presented us with a very clearly written account of a relatively new biopsychosocial model for understanding and fulfilling the needs of people with dementia. The CLEAR framework has recently been cited as an example of good practice in the British Psychological Society's briefing paper on treatments for Behaviours that challenge.CLEAR is an example of one of the new and exciting generations of nonpharmacological interventions, although its use of Behavioural charts provide it with an USP that makes it stand out from the others. In terms of the book itself, it provides a good account of the background to the needs of people with dementia, and the model is well illustrated with helpful examples of case studies. -- Ian A. James (PhD., MSc., BSc., C.Psychol) Trust Lead Challenging Behaviour Consultant Clinical Psychologist, UK'A complicated topic made simple'Frances cleverly combines theory with practical insights and examples about the behaviours that challenge people living with dementia. This book is an impartation from a woman who is a credible expert in this subject and it will challenge and encourage you to change the way you deliver care. -- Eleanor Ross, MBE, Assistant Director Nursing, HSC Public Health Agency, UKCombines a rounded and psychologically nuanced approach with practical strategies for supporting a person with dementia who is experiencing distressing behaviours. By encouraging the reader to put themselves in the shoes of the person, the book really gets to the heart of behaviours that challenge. Highly recommended for frontline staff supporting people with dementia. -- Bernadine McCrory, Alzheimer’s Society (Country Director - Northern Ireland)A fantastic resource for professional and family carers of people with dementia! Part 1 is a most accessible overview of the dementias and the brain that would also interest people with an early diagnosis. Part 2 is a treasure trove of materials that will facilitate training, empower carers and improve quality of life. -- Reinhard Guss, Dementia Workstream Lead, Faculty of the Psychology of Older People, British Psychological SocietyCLEAR builds the insight and competency of caregivers and professionals by enabling them to time-travel into the lives of people living with dementia, with compassion. It empowers understanding of the behavioural and psychological symptoms of dementia such as agitation, depression, apathy, repetitive questioning, psychosis, aggression, wandering and sleep problems.The complexity of these symptoms means that there is no 'one size fits all solution' and the CLEAR model provides the paradigm shift required to tailor support. This is a must read for all in health care settings and in the community. -- Linda Robinson, Chief Executive Age NITable of ContentsAcknowledgements. 1. Dementia and the Brain. 2. Types of Dementia. 3. Dementia and Loss. 4. Dementia and Sense of Self. 5. Understanding Behaviour. 6. Recording Behaviour. 7. What Do People with Dementia Need? 8. Domains of CLEAR Dementia Care©. 9. The Experience of Carers. 10. Supporting Care Staff. 11. Case Example Margaret. Appendices. References.

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Book SynopsisThe book outlines a range of non-pharmacological therapies clinicians can adopt in their daily practice and sets out information and advice on each therapy and how to implement them in practice, illustrated with case studies and practical examples and drawing on the author's own clinical work. Many different therapies are discussed including Cognitive Behaviour Therapy (CBT), Neuro-Linguistic Programming (NLP), and farm and ranch therapy. Each has been chosen for its own particular benefits, including early stage dementia and rarer forms, while others can be applied more generally. Tying each therapy together are six key clinical approaches and models of intervention. The core of this is the Nightingale Psycho-Social Model of Support for Someone Living with Dementia. This person-centred approach focuses on the maintenance of meaningful occupation, platonic and intimate relationships, community involvement and maintaining life within normal patterns of behaviour. The new go-to book for clinicians, it is an invaluable tool for anyone looking for a wide variety of dementia therapies.

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Book SynopsisDetailed knowledge and specific awareness of delirium is crucial in elderly care, due in part to the overlap with delirium and dementia. This introductory reference guide can be used by professionals and students to expand their understanding and skills in delirium care to better respond to the needs of people under their care. There are also detailed chapters on quality improvement and educational initiatives which will be of great help to the delirium workforce in delivering improved care.Setting out clear and accessible learning objectives, Rahman provides the essential information needed to improve care for those with delirium. Showing how to identify and correctly diagnose delirium, this book addresses different aspects of care including the management of delirium and the various interventions available, as well as ethics and safeguarding. It will also empower patients and carers to better understand delirium, and engage in the discourse of their care. As a widespread yet underrepresented issue, this book is a vital and much-needed resource.Trade ReviewIn healthcare, since knowledge is our main weapon, this book will serve valiantly in our fight against delirium. -- From the foreword, Prof. Sharon K. Inouye, MD, MPH, HarvardEssentials of Delirium should become a go-to text for frontline healthcare workers, policy-makers and others who seek a readable, clear and practice-orientated account of delirium. -- From the foreword, Prof. Alasdair MacLullich, Edinburgh,One of the golden tests of any medical book is 'Will it change your practice?' This book certainly can do this. -- From the afterword, Dr Amit Arora, Stoke

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Book SynopsisNamaste Care is a therapeutic approach to caring for those living with advanced dementia, focused on improving their quality of life through a simple, soothing and rewarding process. This step-by-step guide is for anyone looking to translate the principles of the Namaste Care approach successfully and professionally into a home or care setting, with an emphasis on the value of volunteers in the community in implementing this.The Namaste Care approach is focussed on giving comfort and pleasure to people with advanced dementia through sensory stimulation, especially the use of touch, and this book provides extensive guidance on every stage of the process, including harnessing community interest, recruiting and training volunteers, and managing pain and discomfort. In a time of ever-growing strain on healthcare resources, this practical guide is a timely reminder of the power and value of informal care and compassionate communities in helping to care better for people with dementia, and is essential reading for carers, professionals and family members.Trade ReviewNamaste Care seeks to engage people with advanced dementia through sensory input, especially touch, and to enrich their quality of life and is becoming well established in the care home sector in the UK. This exciting book by Nicola Kendall offers a strong and passionate template for how Namaste can be delivered to people with advanced dementia living in their own home by engaging volunteers and family members in its delivery. This book not only details their experiences and the compassion that has been a driver for the service but is also one that helps the reader to deliver Namaste Care themselves. This is a book I would recommend for family carers as well as services who wish to embrace this sensitive and innovative care approach. -- Dr Karen Harrison Dening, Head of Research & Publications, Dementia UKThis informative and thought-provoking book is packed with helpful guidance in supporting people to live well with advanced dementia. It is a must read for those who are working in care services and for those who are caring for individuals at home. -- Jackie Pool, Director of Memory Care, Sunrise Senior Living UKMore than a practical guide, this is a brilliant resource on Namaste Care - well written, insightful, providing a wealth of information. I recommend it wholeheartedly to anyone interested in Namaste Care. A timely publication given the rise in dementia and the need to harness compassion in our communities. -- Colette O’Driscoll, Namaste Care Manager, St Joseph’s HospiceAt a time when funding in health and social care is drastically reduced and the numbers of people living longer with dementia are increasing, this is an informed and inspiring handbook on how to address some of these issues. Training and building resilient communities is the key to allaying the fears around communicating with people with dementia and supporting carers who have often fallen through the net of care. I know this approach works, through St Joseph's Hospice I set up the first Namaste Care Service in the UK which involved home visits - it's difficult, a balance of risk but one of the most rewarding projects I have worked on. If you are interested in setting up a similar service, this book will give you the impetus, confidence and insight and leave a lasting impact on you and your community. -- Lourdes Colclough, Former Namaste Care Manager, St Joseph’s Hospice, now Macmillan Engagement ManagerA thorough and accessible guide. The subject is brought to life throughout with personal stories of how people living with advanced dementia can be supported to engage with the world and experience joy. -- Isabelle Latham, Senior Lecturer, Association for Dementia Studies, University of WorcesterAlways deeply respectful, often poignant and at times humorous, it sparkles with joyful moments and celebrations of life. To quote the author, "Embrace this (book) with gentle curiosity and enjoy the ride." I, for one, would like to go round again. -- Danuta Lipinska, Specialist in Ageing & Dementia Care, Training Consultant, Counsellor, Supervisor, 'My Home Life' Action Learning FacilitatorThis book is full of hope, humility and insight. Contributors draw from a rich and diverse range of theory, research and professional experience to share the practical wisdom of namaste care. -- Luke Tanner, Body psychotherapist & Dementia Care Trainer and ConsultantTable of ContentsForeword by Joyce Simard1. Introduction (including a case study contribution from Dr Trish Winter, family carer)2. What is Namaste Care?3. Admiral Nursing and the origins of the Namaste Care Project at St Cuthbert's Hospice - Sharron Tolman (Consultant Admiral Nurse, Dementia UK)4. Advanced dementia and assessment - Lisa Howarth (Admiral Nurse, St Cuthbert's Hospice, UK)5. Harnessing community kindness (With a contribution from Ann White MBE, Dementia Friends Champion, UK)6. Volunteers with heart - Barbara Edwards (Namaste Volunteer)7. Responding to Referrals - the initial visit assessment8. Life Stories9. Psychological needs of people with advanced dementia10. The Needs Led Model of Dementia Care - Julie Young (Advanced Nurse Practitioner, Northumberland, Tyne and Wear NHS Trust, UK)11. Carer needs12. Sensory Stimulation 13. Loving touch14. Communication15. Planning Namaste Care sessions16. Key learning themes (including a case study contribution by Chris Hayday, Occupational Therapist and Volunteer at St Cuthbert's Hospice)17. End of Life - Joanne Atkinson (Head of Health Continuing Workforce Development, Northumbria University, UK) and Dr Caroline Jeffery (GP and Senior Lecturer, Northumbria University, UK)18. ConclusionAppendix

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Book SynopsisPeople with dementia have often played a passive role in the investigation of their condition. The contributors to this book look at ways of redressing the balance and involving them in the research process. They describe the skills that researchers and care staff need, and the methods they can use, when seeking to draw out and validate the views of people with dementia successfully, and discuss the ways in which such views can be included in debates about dementia methodology and policy.The book focuses on a number of projects which have taken different approaches to working with people with dementia in research, including a chapter examining the difficult process of interviewing people with dementia whose first language is not English and a chapter describing a project which encourages people with dementia to participate in the analysis of the research findings. This varied and innovative book will help those in the fields of health and social policy, dementia research and dementia care to hear the voices of people with dementia more clearly, and to include their opinions more effectively in the provision of services.Trade ReviewThis book is an achievement with which all concerned should be justifiably proud. It will be utilized by many health care professionals to enhance their knowledge and understanding. -- SignpostIf you are about to embark on a piece of research that involves people with dementia in any way, this book …would provide helpful signposts, warnings and practical advice. -- Ageing and SocietyThis book contains a wealth of ideas that will greatly assist anyone designing research that aims to understand the perspectives of people with dementia and to involve them in the research process. It will also be of value to service providers engaged in projects to involve people with dementia in service planning and development. -- Cambridge University PressThis book breaks new ground in bringing together a range of well respected researchers, who have experience in research with people with Dementia... This is a potent and thought provoking book which should be essential reading for any person contemplating healt or social care research with people with dementia. It is accessible and easy to read and provides us with many of the clues we need if we are able to make emancipatory research a reality. -- Research Policy and Planning JournalThis book describes the "double jeopardy" of elderly people with dementia, who suffer by being both old and cognitively impaired... The ethical issues of including people with dementia in participatory research are extremly well covered... As a research interviewer I found the discussion of informed consent interesting and useful and endorse the need for clearer guidelines in this area. Professionals working with older people will find this book helpful and challenging as they develop services and research that seeks a more inclusive role for clients with dementia and their carers. -- International Journal of Geriatric PsychiatryIt is only relatively recently that the perspectives of the person with dementia has been actively sought, and there is still a considerable way to go. This edited volume brings together a range of reflective contributions from some of the researchers who are currently grappling with this issue... The range of contributions demonstrates the extent of the innovative and creative work that is currently being under-taken in this area, and the way in which this is stimulating reflection and the development of new approaches. -- The Journal of Dementia CareThis book looks set to be a constant and crucial companion to those involved in dementia research but could be more widely used by those undertaking consultation and participation projects. It offers an excellent overview of ethical and practical issues, which consent figuring largely as an issue which may prevent people with dementia from participation as much as protect them from undesired intrusion. -- The British Journal of Social WorkWhat leaps from the page is how positively people living with the diagnosis of dementia can experience contributing to research. The opportunity to speak about what is happening to them is clearly therapeutic, and, shamefully rare. -- Community CareThis book is a useful contribution to our understanding of very complex issues. -- Mental Health TodayTable of ContentsPart I: Ethical and practical issues of involvement. 1. Introduction: Including people with dementia in research: Methods and motivation, Heather Wilkinson, University of Stirling 2. Getting down to brass tacks: a discussion of data collection with people with dementia, Charlotte L. Clarke, University of Northumbria at Newcastle and John Keady, University of Wales. 3. Ethical issues in dementia care research, Helen Bartlett and Wendy Martin, Oxford Dementia Centre, Oxford Brookes University. 4. Including the perspectives of older people in institutional care during the consent process, Gill Hubbard, University of Stirling, Murna Downs, Bradford University and Susan Tester, University of Stirling. 5. Including people with dementia: advisory networks and user panels, Lynne Corner, University of Newcastle. Part II: The views of people with dementia. 6. Should people with Alzheimer's Disease take part in research? Elaine Robinson. 7. Did research alter anything? James McKillop. Part III: Methods and motivations. 8. Working with staff to include people with dementia in research, Kate Allan, University of Stirling. 9. Successes and challenges in using focus groups with older people with dementia, Claire Bamford, University of Newcastle with Errollyn Bruce, Bradford Dementia Group. 10. 'Nobody's ever asked how I felt', Rebekah Pratt, University of Stirling. 11. Don't leave me hanging on the telephone: Interviews with people with dementia using the telephone, Anne Mason, University of Stirling and Heather Wilkinson, University of Stirling. 12. Using video observation to include the experiences of people with dementia in research, Ailsa Cook, University of Stirling. 13. South Asian people with dementia: Research issues, Alison M. Bowes, University of Stirling and Heather Wilkinson, University of Stirling. References. Index.

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Book SynopsisBased on the findings of in-depth research and on the author's long-standing experience of working with people with dementia, this ground-breaking book provides fresh perspectives and ideas for policy and practice. In the first part of this extensively referenced and up-to-date book, Michael Bender examines the scientific status of the terms 'dementia', 'Alzheimer's' and 'multi-infarct dementias' and concludes that there is little convincing scientific evidence to justify their continued use. He suggests that in order to develop adequate psychological and social models of dementia, a number of perspectives, such as the intrapsychic, the interpersonal and the contextual, need to be developed.Drawing on contemporary theoretical concepts including multiple selves, personal construct theory, intrapsychic survival and the effect of historical and political factors on older people's well being, the author calls for a more positive and constructive approach to improving the lives of people with dementia. He emphasises the importance of the individual's social context; the problems they are facing and their reactions to those problems; their life history and interpersonal relationships and discusses the process of assessment, finally developing techniques that allow the person with dementia to describe their experience, helping to ameliorate cognitive losses.Taking an honest look at what we really know about dementia and how we can learn more, this innovative book will make essential reading for medical and mental health practitioners, researchers and students working in the field.Trade ReviewThis book [is] a valuable resource for specialist dementia care nurses, therapists and social care workers, for university lecturers and could be usefully included in reading lists for formal education programmes most probably at masters' level. -- Dementia: The International Journal of Social Research and PracticeI can strongly recommend this thoughtful text as essential reading for health care professionals who are keen to understand the experiences of people with "remediable or enduring cognitive losses" and how they can be helped. -- London Centre for Dementia Care NewsAn approachable and stimulating read for practitioners, researchers, students, indeed anyone working in the field of dementia. -- The Journal of Dementia CareThis academic book looks at the psychology of dementia and questions the validity of the terms such as "Alzheimer's", "dementia" and "multi-infarct dementias". The author proposes techniques that allow the person with dementia to describe the experience, helping to ameliorate cognitive losses. -- Ageing MattersExplorations of Dementia is an in-depth and challenging work that will reward the professional reader. -- Age Action IrelandTable of ContentsIntroduction. Part I: The Scientific Status of the Standard Paradigm and its Implications. 1. The Scientific Status of the Standard Paradigm. 2. How is the Standard Paradigm Maintained? 3. The Effects of the Paradigm: The Rise of Memory Clinics. Part II: A Framework for Understanding the Individual. 4. How Can we Understand the Person Who is Experiencing Cognitive Loss(es)? Part III: Perspectives of Understanding. 5. Old in Britain Today. 6. Psychosocial Explanations of Disorientation. 7. Difficulties and Problems, with Sally Robbins. 8. Cycles of Negotiation. 9. The Context of Assessment: Before the Professionals. 10. The Client's Position. 11. Insight, `Inconsistency' and Selves. 12. Interpersonal and Intrapsychic Survival, with Sally Robbins. Part IV: Futures. 13. In Practice. 14. Ways Forward. 15. Entrances and Exits. Appendices. References. Index.

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Book SynopsisThis is a book for those actively engaged in or interested in spiritual ministry to persons with dementia. Shamy draws heavily upon her experience, making this book very personal in its approach. I appreciated this style, feeling that the anecdotes anchor the book in the realm of what can be done rather than the theoretical world of the "maybes". The main concepts of the book, those of spirituality, retained through dementia, and personal worth should be acceptable to people of most world faiths.'- Leveson Newsletter'This is an important book that has much to offer at a variety of different levels. It ranges from deep philosophical thinking to practical recommendations... a book that should be bought, digested and used frequently.'- Christian Council on Ageing'Contains valuable material. The passages that attempt a definition of spirituality, and the stories about persons with dementia and how they have been helped to greater well-being, are relevant and excellently done. The spirit of Eileen Shamy shines out from these pages and carries its own message of passionate concern. One of the book's greatest strengths is its stories, which are unfailingly well-told and apposite.'- Ageing and SocietyDrawing on her years of experience as a clergywoman working with older people in care settings, Eileen Shamy discusses how pastoral work can help to develop holistic care for those suffering from dementia and related conditions - care which involves understanding of their spiritual as well as physical needs.This sensitive and informative book provides guidelines for pastoral visits to people with dementia, showing how to empathise with, understand and support individuals during a visit. Emphasising the importance of retaining dignity and freedom of choice for people with dementia, it also presents practical advice about memory cueing and provides frameworks for leading worship for those with dementia.A useful resource for a variety of people involved in pastoral care with older people, whether professionals or volunteers, this book provides inspiration from a respected author in the field of psychogeriatric care.Table of ContentsForewords. Introduction. 1. Through a Door of Hope: Or Eyeballing the Challenges 2. Understanding Alzheimer's Disease and Other Primary Dementias. 3. The Spiritual Dimension of Care. 4. Worship for People with Alzheimer's Disease and Related Dementias. 5. Being Present to the Person with Dementia: The Pastoral Conversation. 6. Caring for the Care-givers. 7. A Statement of Hope: The Field in Anathoth. Appendices. References. Index.

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Book SynopsisThere has been a considerable and welcome growth of publications about dementia care and Jessica Kingsley Publishers has certainly played a very useful part in this growth... we need more not less of this quality of work and writing if society is to include those with dementia as full citizens.'- Christian Council on Ageing'The editors are to be congratulated on assembling a collection of contributions which make this book a milestone in the literature on dementia research and practice... [They] have collected papers on extraordinarily diverse issues and from a very diverse set of authors. Each of the chapters can be seen as an invaluable introduction to the topic area as well as addressing the main theme of the book. It is a milestone book because it manages to provide a snapshot of dementia studies at this moment in time and will, in my view, be widely quoted by policy makers, practice developers, researchers and trainers for the next few years... In such a treasure trove of approaches and issues it is hard to pick out the most striking... I would recommend this book: all readers of the journal will find chapters that they can use to improve dementia care.' - Journal of Dementia Care'What makes this particularly notable is that Innes, Archibald and Murphy have harnessed such individual voices to address so cogently. Together they address the core issues, all too often neglected or marginalized, in dementia research and care.Sexuality, communication, risk taking, ethnicity, incontinence and practices within remote rural communities are all subjects that draw threads from the very fabric of our society, and it is indicative of how wide the spectrum has broadened that these historically dispirit strands can be tackled constructively.' - Signpost'A diverse range of subjects are covered in a series of papers written by numerous professionals of standing from various disciplines... The subjects covered include ethnicity, spirituality, sexuality, dying with dementia (palliative care), faecal incontinence and risk-taking. There is a section addressing aspects of communicating with people with dementia and another covering the medical aspects of dementia that have not had much focus in recent years, such as hypertension and diabetes. Finally, there is a social science perspective, including discussing ways that people with dementia can be involved in the research process.I found the book easy to read and it is well written and clearly presented. Covering marginalized areas of practice, it offers food for thought for the reader and is a welcome addition to current literature'. - British Journal of Occupational Therapy'This book provides invaluable research results and innovative thinking which professionals studying gerontology and dementia care will find very useful throughout their careers.'- London Centre for Dementia Care Newsletter'The contributors to this volume examine the barriers to the consideration of social inclusion in the field of dementia studies and argue for the necessity of acknowledging the personhood of all individuals with dementia. The papers discuss the sexuality of people with dementia, communication and risk taking, and dementia care in remote rural communities, among other topics. The volume ends with suggestions for more inclusive values, service development, theory and research'. - Book News'The book, commendably, tries to look at marginalized issues within dementia, such as death and dying, sexuality and faecal incontinence.' - Mental Health Today'This is a book for the connoisseur. I wish I had contributed a paper. I wish I had read it even earlier. It will be appreciated by many people, from many backgrounds. This is the study of dementia and dementia-care grown to a new maturity. Chapters are original research papers, communicating new findings and analyses, set in the context of previous knowledge, well reviewed... Thanks to the editors and authors for this little gift. Let's be sure it is read widely.' - David Jolley, director of DementiaplusExamining important issues in dementia research and care that are often neglected or marginalized, the contributors to this book provide fresh perspectives on current practice. The authors put dementia care into a socio-cultural framework, highlighting the impact of social change on dementia care over the last two decades and challenging current stereotypes.The contributors address the implications of power relationships between carers and people with dementia and discuss a broad spectrum of issues, including:* the sexuality of people with dementia* communication and risk taking* people with dementia from minority ethnic groups* faecal incontinence* dementia care and practice in remote rural communities.Taking an in-depth look at dementia research and service development, this book makes essential reading for practitioners, researchers and students working in the field of dementia care.Table of ContentsIntroduction, Dr Anthea Innes, Dr Carole Archibald and Charlie Murphy, University of Stirling. Part 1. Dementia and Social Change. 1. Dementia and Social Change: Views from a Sociologist of the Community, Professor Colin Bell, University of Stirling. 2. Rural Communities, Dr Anthea Innes and Dr Kirsty Sherlock, University of Stirling. 3. Improving Domiciliary Care for People with Dementia and their Carers: The Raising the Standard Project, Noni Cobban, University of Stirling. Part 2. Marginalised Socio-Cultural Issues in Dementia. 4. The Role of Spirituality in Providing Care to Dependent Elders Among African American Care-Givers, Professor Peggye Dilworth Anderson, University of North Carolina at Chapel Hill. 5. Death and Dying, Sylvia Cox, University of Stirling, and Karen Watchman, Scottish Down's Syndrome Association. 6. Sexuality and Dementia: Beyond the Pale?, Dr Carole Archibald. Part 3. Marginalised Dementia Care Issues. 7. Faecal Incontinence, Christian Müller Hergl, Meinwerk-Institut, Germany. 8. Social Exclusion (and Inclusion) in Care Homes, Errollyn Bruce, University of Bradford. 9. Risk Taking, Jill Manthorpe, University of Hull. Part 4. Representations and Re-presentations of People with Dementia. 10. Top-Dogs and Under-Dogs: Marginalising Problematic Voices, Dr Rik Cheston, University of Bath. 11. Images, Contructs, Theory and Method: Including the Narrative of Dementia, Dr Gillian McColgan, University of Stirling. 12. Reaching out with the Arts: Meeting the Person with Dementia, Clare Craig, Northern College, Barnsley and John Killick, University of Stirling. Part 5. Future Directions. 13. Medical Perspectives, Michael Bradbury, Professor Clive Ballard and Dr Andrew Fairburn, Newcastle General Hospital. 14. Social Science Theory on Dementia Research: Normal Ageing, Cultural Representation and Social Exclusion, Professor John Bond, Lynne Corner and Ruth Graham, University of Newcastle. 15. Social Science Perspectives on Dementia Research: Intersectionality, Wendy Hulko, University of Stirling. 17. Dementia and Social Inclusion: The Way Forward, Professor Caroline Cantley, Northumbria University and Professor Alison Bowes, University of Stirling. References. Index.

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Book SynopsisThis accessible and authoritative book provides an invaluable guide to identifying, treating and preventing depression in later life.Jill Manthorpe and Steve Iliffe take a multidisciplinary approach and employ both medical and psycho-social models of depression. The medical model is used to identify symptoms, make diagnoses and work towards optimal treatment. Psycho-social perspectives provide insight into the scale and complexity of the condition and point to its social causes. The authors identify different levels of depression through in-depth analysis and consider the condition in relation to, but distinct from, dementia, psychosis and anxiety disorders, helping professionals to make the correct diagnosis. Supporting case studies show that depression, and the physical symptoms often linked to it, are amenable to treatment. The authors provide practical guidance for health and social care practitioners and suggest numerous coping strategies.This comprehensive book is essential reading for health and social care practitioners working with older people, their carers and families.Trade ReviewWinner of the Health Care for the Elderly category of the 2006 BMA Medical Book Competition'This is a very useful source text, easy to read , very thought provoking, and up-to-date.' -- British Journal of Social WorkThis book provides a clear, readable overview to this area and as such could be recommended as an introductory text for practitioners or as a resource for carers and sufferers. -- PSIGE NewsletterManthorpe and Iliffe are careful to spell out not just the personal costs of depression and the medical treatments available for it, but also the effects on family and other caregivers of depression, and they discuss non-medical ways of both preventing and treating depression. -- Metapsychology OnlineThe book is an easy-read and well supported by `practice examples' that emphasise the complexity of real-life situations. It is generally well referenced and makes use of authoritative sources to support its recommendations. -- Ageing and SocietyExpertly written by a professor of social work and an academic general practitioner, this is a very accessible, focused and insightful book examining the complex issue of depression in older people. The positive message from the book encourages professionals to see depression as a disability, rather than a disease. It considers that practitioners should respond to the needs of those with depression taking a life course perspective, aiming to ameliorate their problems, rather than focusing only on seeking a cure... An excellent book recommended for all practitioners working with older people in all health and social care settings. -- Journal of Community NursingOverall, this is a very interesting text that reminds and refreshes experienced practitioners of the issues in identifying, recognizing and effectively treating and preventing depression in late life. For new practitioners and students, it effectively and clearly sets out crucial themes and issues for clinical practice. The text is easy to read and unthreatening in its language and format; clearly highlighting practice examples and signposting specific chapters relating to particular themes. -- OTOP NewsletterDepression in later life is a guide to identifying, treating and preventing depression in later life…The authors provide practical guidance for health and social care practitioners and suggest numerous coping strategies. Depression in later life is for health and social care practitioners working with older people, their carers and families'. -- Working with older peopleThis book takes a multi-disciplinary approach to the issue of depression in old age using a medical and psychological model. It defines different levels of depression and considers it alongside dementia, anxiety disorders and psychosis. It looks at causes and symptoms and shows how depression can be amenable to treatment'. -- Ageing MattersTable of Contents1. Why focus on depression? 2. The impact of depression. 3. Helping depressed older people. 4. Depression and dementia. 5. Depression, anxiety and psychosis. 6. Suicide and self-harm. 7. Carers' support. 8. Prevention of depression. 9. Conclusion. References. Subject index. Author index.

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Book SynopsisThe volume has ambitious scope and covers almost all potential supports and services. Most of the chapters have been written by professionals who work with people with dementia and their families, and most are British social workers and professionals allied-to-medicine (occupational therapy, physiotherapy and speech and language therapy).'- Ageing and Society'Marshall, in her introduction, states that the aim of the book is to strengthen the link between rehabilitation and dementia and to encourage the understanding that people with dementia do benefit from rehabilitation and treatment. The book clearly meets this aim with the contributors offering convincing arguments for the conceptualisation of dementia care as rehabilitation and the potential for improvements in symptoms and in quality of life for people with dementia... The book is accessible, easy to read, informative and provides practical information and new ideas useful for practitioners, services providers, commissioners and policy makers.'- Social Policy'This book has much to offer a range of professionals and those teaching them at post-qualifying levels.'- Journal of Interprofessional Care'The chapters give us a real and honest appraisal of the pains and possibilities of dementia. And David Jolley ends his chapter with what could be seen as a surprising statement that "Life with dementia is worth Living". His ideas sum up the tone of the book which asserts that people with dementia still have much to give but need help in order to maintain health, safety and dignity, and offers various practical therapeutic models that have been worked out in different settings... throughout the book we are encouraged to keep the person with dementia at the centre of care and to see them as a unique individual with a disability who needs help.'- Perspectives on Rehabilitation and Dementia'Service planners could gain from dipping in to this collection and testing the extent to which their current plans reflect the thinking shared by the authors. The importance of team working is stated throughout, and in an era of partnership working this provides yet another useful policy book on which to hang revised plans'- Community Care'Contributions from people with dementia and their families provide the central core of the text and anchor it firmly in reality. There is a unanimously positive approach to rehabilitation. Many of the authors focus on self esteem and confidence with many references to the need of teamwork. They also share the positive view of people with dementia, which concentrates on personhood focussing upon the whole person, drawing upon their strengths as well as taking into account declining abilities in some areas. This book is strongly recommended for health care professions, particularly nursing courses.'- London Centre for Dementia Care News 'The book explores the positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches. It includes many different perspectives from a diverse group of professionals, carers and practitioners, and people with dementia themselves.'- Working with Older PeoplePerspectives on Rehabilitation and Dementia offers new insights into the application of a well-established approach and set of skills to a group of people who have traditionally been thought not to benefit from them. Indeed people with dementia have missed out on physical and psychological rehabilitation very substantially. This book demonstrates that rehabilitation has positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches.The perspectives in this book are those of a very diverse group of professionals, carers, and people with dementia themselves. Professional backgrounds and the settings in which they work are diverse and include both academics and practitioners. The voices of people with dementia underline the importance of seeing how they understand rehabilitation for themselves.Professionals in almost all caring professions - nursing, physiotherapy, occupational therapy, acute, geriatric and psychiatric medicine, psychology, social work and rehabilitation - will increasingly find themselves working with people with dementia. They need to be alert to the latest thinking on approaches and interventions. This book provides a readable course text for understanding both their own professional contribution and that of others in the team.Trade Review'The book explores the positive outcomes for people with dementia in terms of quality of life and self-esteem, especially if rehabilitation is seen as a positive philosophy of practice as well as a set of skills and approaches. It includes many different perspectives from a diverse group of professionals, carers and practitioners, and people with dementia themselves.' - Working with Older PeopleTable of ContentsForeword. Part One: Perspectives on the Field as a Whole. 1. Perspectives on rehabilitation and dementia. Mary Marshall. 2. Why do people with dementia become disabled? David Jolley, Dementia Plus, Wolverhampton City Primary Care Trust and University of Wolverhampton. 3. The historical context of rehabilitation and its application to dementia care. Suzanne Cahill, Dementia Services Information and Development Centre, Dublin and Trinity College, Dublin. 4. Intermediate care: The new pathway to rehabilitation or widening the chasm? Kate Read, Executive Director, Dementia Plus. 5. Rehabilitation for people with dementia: pointers for practice from the evidence base. Gail Mountain, School of Health and Social Care, Sheffield Hallam University. Part Two: Perspectives of People with Dementia and their Carers. 6. Rehabilitation: a carer's perspective. Susan Fleming, Joint Dementia Initiative, Falkirk. 7. Tedious no more! Morris Friedell, formerly University of California, Santa Barbara. 8. Some views of people with dementia. The PROP Group. 9. Our views on rehabilitation. Tom and Sheila Davis. Part Three: Specific Professional Perspectives. 10. The role of physiotherapy in dementia rehabilitation. Larissa Kempenaar, School of Health and Social Care, Glasgow Caledonian University. 11. Dementia in primary care: think rehab. Ian Greaves, GP and Wolverhampton University.12. Rehabilitation after acute physical illness. Peter Murdoch, Falkirk Royal Infirmary and Dementia Services Development Trust, Community Mental Health Team for Older People, Dundee. 13. The role of occupational therapy. Christine Davidson, Tayside Primary Care NHS Trust and Rona Bissell, Community Mental Health Team for Older People, Dundee. 14. Speech and language therapy. Joy Harris, Mental Health Team East and Midlothian. 15. Speech and language therapy work in the Sonas groups. Claire Black, speech and language therapist. 16. Dementia and rehabilitation: a CPN perspective. Ken Barlow, Community Mental Health Team, Dumfries and Galloway. 17. The contribution of social work to the rehabilitation of older people with dementia: values in practice. Maria Parsons, City of Westminster Council. Part Four: Specific Settings. 18. An Australian Model of Community Dementia Care. Barry Wiggins and Jenny Fahy, Hammond Care Group. 19. The Central Aberdeenshire Experience. Carolyn Marshall, Central Aberdeenshire Community Dementia Team, with case profiles by Allison Black, care manager, Grampian Primary Health Care. 20. Rehabilitation in acute medical settings: a nursing perspective. Sarah Rhynas, School of Nursing Studies, University of Edinburgh. 21. The role of specialist care homes. Susan Nixon, Falkirk Council Nursing and Social Work Services. Part Five: Specific Interventions. 22. Fit for life or fit for nothing: the contribution of Life Story Work. Faith Gibson, University of Ulster. 23. Cognitive rehabilitation for people with dementia. Linda Clare, University College, London, and Camden and Islington Mental Health and Social Care NHS Trust. 24. Rehabilitation: environmental aids and adaptations. Mary Marshall. 25. The role of medication in the rehabilitation of people with dementia. Cesar Rodriguez, consultant old age psychiatrist, Angus. 26. One size does not fit all: person-centred approaches to the use of assistive technology. Stephen Wey, Intensive Home Treatment and Rehabilitation Team. Part Six: Specific Difficulties. 27. Pain and dementia. Jose Closs, School of Healthcare Studies, University of Leeds. 28. Urinary continence rehabilitation in the person with dementia. Helen Leslie, Carrick Care Homes. 29. Dementia and visual impairment: good practice in rehabilitation work. Jim Crooks, Specialist Rehab Services for Blind and Partially Sighted People. Conclusion. 30. Learning about rehabilitation and dementia from many perspectives. Mary Marshall. Contributors. Subject Index. Author index.

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Book SynopsisThis accessible, interactive resource book encourages front-line staff working with dementia sufferers in nursing and residential settings to examine their working practice and modify it to where appropriate to meet best practice guidelines.Packed with photocopiable training exercises, discussion points and questions to prompt care workers to reflect on their style of work, this practical training manual also provides a framework for care work in line with statutory requirements and national training standards. It can be used as a self-training guide by carers, who can work through it at their own pace or under the supervision of a colleague, or by trainers running structured courses on good practice in dementia care. It is also suitable for use as a quick reference in daily practice.This comprehensive resource will provide useful guidance for all staff working face-to-face with people with dementia, whether in nursing, day-care or residential settings.Trade ReviewThis book is a timely addition for any care home and should be available in public libraries for those coping with a relative in their own home. It is jargon free and immensely practical and reassuring. Others have been there too - what a relief! The postscript says that the world owes a huge debt of gratitude to the care assistants who are so poorly paid. They are the people who bring hope and understanding to people so often lost in an alien world. They do it because they care. This book encourages further study and the opportunity to convert hard work into professional qualifications. Thank you Danny Walsh for sharing your expertise with us. -- Christian Council on Ageing Dementia GroupThis is an interesting publication that will be a helpful addition for practitioners working in a range of settings with people experiencing dementia. -- Dementia JournalWalsh tackles the issue of dementia care with rigour and comprehensiveness. There are 36 chapters, dealing with specific subjects and they achieve their aim in offering an accessible and interactive resource book for front line staff. I have tested the material with some of my care staff and found them to be of enormous use, in enabling carers to examine working practice and develop it to meet an individual's needs. This resource is an absolute must for anyone who wishes to develop the practice of dementia care. -- Leveson Centre NewsletterWell written and easy to use, it is comprehensive in scope, and contains a wealth of exercises that can be used on their own or as parts of a planned in-house training course. Walsh constantly encourages us to understand behaviour and to see things from the resident's angle so that we can get to the causes and respond in helpful and therapeutic ways. -- Caring TimesTable of ContentsIntroduction. What is dementia? How it affects us. Attitudes and needs. Communication. Reality orientation and validation. Individual care and client history. Person centred care. Activity. Reminiscence. Problem practice. Challenging behaviours. Normalisation and inclusion. Independence and good practice. Caring for carers. Environmental concerns. Medication and ethical issues. Learning from nursing. Problem solving and staff support. References and resources. Index.

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Book SynopsisThis book offers an accessible and sympathetic introduction for relatives, carers and professionals looking after or training to work with people with dementia.Drawing on the two `laws of dementia', the author explains the causes of communication problems, mood disturbances and `deviant' behaviours, with particular emphasis on how these are experienced by dementia sufferers themselves. Case examples demonstrate the typical symptoms and progression of dementia, and clear guidance is provided on how to support dementia sufferers at every stage and help them deal with the challenges posed by their condition.Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with dementia and those around them.Trade Review`Aimed at families and carers, I found the content of this book to contain a vast amount of information, well written and understandable to those people who may be experiencing dementia for the first time. The chapters describe the experiences of dementia using a number of real-life examples which bring this person-centred book to life. It explores issues of communication, mood and behaviour problems, management guidelines and has a chapter on the family and the problems they experience, including feelings of guilt.The author bases this book not only on his professional outlook as a psychogerontologist and clinical psychologist, but also as a son, whose own father suffered with dementia. It brings the book to a more interesting level for me knowing the author has lived through the personal effects of dementia.' -- Signpost`This well-structured guide offers nine chapters about dementia, written for relatives, carers and professionals… This book offers a clear, simple overview of this complex disease process.' -- Dementia: The International Journal of Social Research and Practice`The Simplicity of Dementia has much to offer in terms of thoughtful, practical advice on caring for someone with dementia.' -- Ageing and Society, Cambridge Journals`The author provides a very person-centred approach to discussing the experience of dementia and offers guidelines for family caregivers and professional cares. This jargon-free text includes the voices of relatives, people with dementia and nurses…Very clear explanations are provided to explain personality changes caused by the disease such as: anxiety, blame, suspicious behaviour, depression and hoarding of foods or goods. These are crucially dealt with early in the book and explained sympathetically from the point-of view of the person with dementia… This is essential reading for anyone who is involved in caring for a person with dementia. It is much more readable than a textbook- not one scan picture in sight. The theme is people- their expereices as sufferers, family caregivers or professional carers. It is pocket size and the chapters can easily be read at intervals. The insights gained will clearly increase the satisfaction of caring for the person with dementia'. -- London Centre of Dementia Care`Relatives and carers will find this book a source of essential information and encouragement to deal confidently with the difficulties posed by the condition both for people with Dementia and those around them'. -- Working with Older PeopleTable of ContentsPreface. 1. What is dementia? 2. The simple logic behind dementia 3. The experience of dementia 4. Communication. 5. Mood problems: Aggression, depression and suspicion 6. Behaviour problems: Clinging behaviour, wandering and nocturnal unrest 7. Management guidelines and activities 8. The family: The hidden victims 9. Feelings of guilt. References. Subject Index. Author Index.

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Book SynopsisThe correlation between 'disengagement' and illness in people with dementia living in long-term care settings is becoming more widely recognised, and developing and adapting front-line staff responses to the changing needs of individuals is a crucial factor in addressing this problem.This book presents a complete practical framework for whole person assessment, care planning and review of persons with dementia or signs of dementia (including those with learning disabilities) who are in need of, or already receiving, health and/or social support. The book provides photocopiable assessment forms, guidelines for carrying out the assessment, and suggestions for tailored interventions based on the profile that emerges from the assessment process. The authors also include a clear explanation of the five theoretical components of dementia that are considered in the assessment: health, biography, personality, neurological impairment and social psychology. This good practice guide will provide a step up to the challenge of providing person centred care as a minimum standard rather than just an ideal.Care workers in residential settings and social workers assessing clients for their support requirements will find this an essential resource.Trade ReviewIt is often easier to adopt the value of person-centred care without being clear what it means in terms of day-to-day practice reality. This book excels at being very clear about exactly what the processes involve and gives suggestions for how they should be undertaken. -- Research, Policy & PlanningLike many (but sadly not all) training materials, this guide is set out in a format that is easy to read and adapt. The section on cognitive ability is, as the authors comment, surprisingly absent in much training material for people supporting people with dementia. -- DementiaOne of the Bradford Dementia Goup good practice guides, this book will be well used by carers working with older people. It offers up-to-date and theoretically sound information, with practical assessment forms that can be photocopied... This is an excellent resource for staff in care homes who want a comprehensive guide to planning care for people with dementia. -- Nursing Standards, Gary Blatch, Dementia Strategy Manager, South Essex Partnership University NHS Foundation Trust, Southend-on-SeaI greatly enjoyed reading this well-presented, practice-orientated publication and positively recommend it. I agree with the authors that there has never been a better time to promote new ideologies and positive ways of working with people with dementia. -- Quality in Ageing and Older PeopleI found this book to be useful and practical. One of its strengths lay in its participatory intentions and if practitioners followed these guidelines, they would go a further step towards enhancing service user and carers' confidence in the purpose of planning and attention to sharing information on a more equal footing when thinking about how care and support can bre enriched within different environments. -- British Journal of Social WorkAt last, here's a superbly thought-out and designed tool and format for care planning... This book is truly a "good practice guide" and has all you need to use care planning properly, but you'll have to work at it because you have to understand what you're doing... Buy it and USE it!. -- Standards for PracticeThe whole ties things together very neatly and the book will be treasured by those who use it. Let us hope that this will be many, for these pages will help people turn good intentions into good practices. -- For Dementia PlusTable of ContentsAcknowledgements. Introduction. Chapter 1. What is Enriched Care Planning? Chapter 2. Life Story. Chapter 3. Life Style and Future Wishes. Chapter 4. Personality. Chapter 5. Health. Chapter 6. Capacity for Doing. Chapter 7. Cognitive Support Needs. Chapter 8. Life at the Moment. Chapter 9. Implementing and Reviewing Care. Index.

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Book SynopsisThis authoritative collection sets out the critical role and application of evaluation in identifying and developing good practice in a range of dementia care settings.The contributors discuss the evaluation of care at different levels and in various settings, particularly long stay care, covering evaluation methods, ethics, use of technology and the user's role in the evaluation process itself. Their contributions on evaluating aspects of dementia care ranging from life story work and environmental considerations to medication and dementia care mapping is a useful basis for the discussion of future challenges in evaluation of dementia care.Practical and theoretical, this wide-ranging text is essential reading for dementia care practitioners at all levels, as well as students and researchers interested in dementia care practice.Trade ReviewThere is a lot useful material in this book. The editors provide a clear introduction which defines the term 'evaluation', refers to different approaches and suggests why it is important in dementia care...This book will be useful to students of research methodology and professionals in dementia care who are interested in research. -- dementiaI would recommend this book to any occupational therapist new to working with clients with learning disabilities and dementia, and also to those developing and/or evaluating specific services for this population. -- College of Occupational TherapistsA Comprehensive and through work about ways to improve the lives of older people living with dementia. A reassuring book to have and a valuable resource for anyone embarking on a study of dementia care or designing a research programme in evaluation. -- Social Work and Social SciencesThis is an important contribution to further the view that the voices of people with dementia can be heard and that people with dementia can effectively help shape services. It is a highly readable book that tackles an often overlooked subject because of the very real difficulties that communication presents, and examines this by exploring in depth the ethical issues and current legislation which have a major impact on research within this current field. While laying out the challenges in facilitating this, it also presents a realistic view that this is achievable for people with dementia. -- RostrumInnes and McCabe (Dementia Studies, U. of Stirling, UK) gather together 14 essays for practitioners, students, and researchers interested in dementia care practice. The essays focus on evaluating dementia care and aspects of the process, such as setup, measurement and analysis, reporting results, and the implementation of recommendations. Other topics include policy contexts, technology, long stay care settings, ethics, and user involvement. Different settings and levels of evaluation are also discussed. Both author and subject indexes are provided. -- www.booknews.comThis book provides a comprehensive theoretical and methodological framework for the evaluation of dementia care, targeting nurses and other healthcare professionals with a specific interest in the domains of evaluative research and dementia. -- Nursing Older PeopleThe book is logically structured and has an impressive international flavour with contributors from Europe, the US and Scandinavia. The balance between theoretical chapters - for example addressing the policy context - and those focusing on practicalities of looking after people in long-stay care settings, is good. The discussion of user involvement is simple, insightful and grounded in the author's experience of evaluation services over the past 10 years. I have no doubt that I will dip in and out of this book for years. -- Community CareI found this collection of papers really useful, writes Les Bright because the editors have thought carefully about a potential readership of people busily engaged in organising and delivering services, with only limited time to read and add to the knowledge gained from their practice. -- Community CareOverall the text is professional without being too complex. It is easy to pick out areas of particular interest, with a sound reference section attached to each chapter to aid the reader in more extensive reading. I would suggest this is a good reference book for libraries and for departments considering evaluation a service or for any individuals undertaking research. -- College of Occupational Therapists Specialists SectionThe book is an important tool for practitioners at all levels, researchers and students interested in best practice. As a guide for occupational therapists this is a useful resource book and will assist in exploring the many ethical issues related to evaluating practice and raises questions on the use of internal versus external evaluators (something we all wrestle with). -- College of Occupational Therapists Specialists SectionTable of ContentsAcknowledgements. Part One: Contexts of Evaluating Dementia Care. 1. What is Evaluation? Anthea Innes and Louise McCabe, both at the University of Stirling, UK. 2. Problems in Evaluating Dementia Care. Caroline Cantley, University of Northumbria, UK. 3. Internal versus External Evaluation. Carolyn Lechner, Case Western University, Ohio, USA. 4. The Policy Context For Evaluating Dementia Care. Louise McCabe. Part Two: Evaluating Dementia Care: Practicalities and Reflections. 5. Evaluating Technology For Dementia Care. Alison Bowes, University of Stirling, UK. 6. Evaluating Long Stay Care Settings: The Environment. Helle Wijk, University of Gothenburg, Sweden. 7. Evaluating Long Stay Care Settings: A Study of a Life Review and Life Storybook Project. Faith Gibson, University of Ulster, Ireland, Barbara Haight and Yvonne Michel, both at the Medical University of South Carolina, USA. 8. Evaluating Long Stay Settings: Reflections on the Process with Particular Reference to Dementia Care Mapping. Anthea Innes and Fiona Kelly, both at the University of Stirling, UK. 9. Evaluating Long Stay Interventions: Concealment of Medication. Øyvind Kirkevold, Norwegian Centre for Dementia Research, Norway. 10. Evaluating the Experience of People with Dementia in Decision-Making in Health and Social Care. Jeanne Tyrrell, University of Grenoble, France. Part Three: Future Challenges in Evaluating Dementia Care. 11. Ethics, Evaluation and Dementia. Julie Christie, East Dunbartonshire Council, UK. 12. User Involvement in Evaluations. Charlie Murphy, Coordinator of the Glasgow Access Panel, UK. 13. Evaluation of Dementia Care in Resource-Scarce Settings. Jurate Macijauskiene, Kaunas University of Medicine, Lithuania. 14. Building on the Lessons of Evaluations. Louise McCabe and Anthea Innes. Index.

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Book SynopsisUnderstanding Learning Disability and Dementia covers all the essential issues in supporting a person with a learning disability when they develop dementia.Like the population at large, people with learning disabilities are living longer, and therefore an increasing number are developing dementia. Service providers, planners, doctors, social workers, carers and direct support staff need to be equipped with relevant knowledge prior to the onset of dementia, so that they can devise appropriate therapeutic interventions and coping strategies, including health and medication management and palliative care.This book will provide essential knowledge for anyone involved in the provision of services, assessment of need and direct care and support for dementia sufferers who also have a learning disability.Trade ReviewThe chapters are informative, well written and clearly structed, each with a summary paragraph so clinicians can decide if it's a relevant read...I really enjoyed this book. I learnt a great deal and am sure other clinicians new to this area will too. -- Speech and Language Therapy in PracticeThis book provides a good introduction to learning disabilities and dementia and will be of use to those working in dementia care as well as in learning disability services. -- PMLD LinkDiana Kerr's book defines learning disability and dementia and the relationship between the two, and examines the difficulties in reaching a diagnosis, especially in the early stages.The book provides powerful information, illustrated by case studies, about the support needs of individual patients, and about the challenges that carers may face. The information is delivered in a practical but insightful manner. Chapters focus on communication, challenging behaviour, medication, pain and dealing with relatives, carers and the frequently overlooked group, a patient's peers. The book highlights models of care and how to support someone during the later, difficult stages of their condition.Ms Kerr clearly has vast experience of working with people with a learning disability and those with dementia. This easy to understand book would make an excellent resource text for a community home staff team, NVQ student or a relative or carer of someone with this testing diagnosis. -- Nursing StandardAn examination of the issues which arise when a person with learning disabilities develops dementia. Aimed at professionals, planners and service providers. -- BILD NewsletterTable of ContentsIntroduction. 1. What is a Learning Disability? 2. What is Dementia? 3. Getting a Diagnosis. 4. Working with Different Realities. 5. Maintaining Good Communication. 6. Therapeutic Interventions. 7. Challenging Behaviour. 8. Responding to the Pain Needs of People with a Learning Disability and Dementia. 9. The Experiences and Needs of Peers. 10. Supporting People to Eat Well. 11. Creating Supportive Physical Environments. 12. The Role of Technology. 13. Late and End Stage Care. 14. Issues and Concerns for Relatives. 15. Some Issues in Relation to Medication. 16. Models of Care. A Plea for the Future. References. Subject index. Author index.

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Book SynopsisReminiscence is a vital way to stimulate communication and promote confidence and self-worth in people with dementia. This practical guide is designed to give those who care for people with dementia a clear sense of how reminiscence can be used to greatly improve their quality of life.The book explores how reminiscence can contribute to person-centred dementia care and contains detailed descriptions of activities that can be used in a group setting, for one-to-one reminiscence at home or in a variety of care settings. Based on ideas developed and tested internationally over a period of ten years, the book offers imaginative approaches to reminiscence and a wealth of resources for use in a wide range of situations. The book includes advice on organising a reminiscence project and provides a useful planning tool for group sessions.Remembering Yesterday, Caring Today highlights the value of reminiscence for those with dementia and is an essential guide to good practice for family and professional carers.Trade ReviewThis is an exceptionally important book that celebrates the interdependency of human beings, the virtues of the education of carers and the positive treatment of people with dementia... In describing in exquisite and profound, but necessary, detail how to create and re-create a wonderfully sensitive approach to caring for people with dementia, the authors have conveyed some of the most important research findings of the past twenty years in the context of a programme to support the strengths and well-being of people with dementia. At the same time, the programme they describe serves to educate carers to support and revel in demonstrations of their loved ones' strengths... This is a book that can add greatly to the lives of all concerned and I recommend it highly. -- Dementia JournalResearch and writing on dementia have never been more timely and necessary as the condition increasingly emerges as an international public health problem which transcends national, family, personal, professional and cultural boundaries, as is noted in the foreword to this practical, accessible and readable manual (page 9). Positive in tone this book presents realistic advice and useful resources based on knowledge distilled from considerable experience of working with a group all too easily socially excluded and marginalized... This is a very practical book, a manual for facilitators and carers to implement their own RYCT programme of activities and as such it functions very well... I would recommend this manual as a useful addition to the library of anyone facilitating sessions in the field of dementia. -- DramatherapyThis book is an excellently comprehensive and practical resource bursting with ideas and good, useable advice. If you're serious about using reminiscence properly (and all care homes should be) I thoroughly recommend this book. -- Caring TimesAny Health library strong in dementia care "best practice" guides will welcome this focus on the tool of reminiscence and its ability to support people with dementia. From how it works to stimulate communication to how professionals and family members alike can use reminiscence to maximum effectiveness both at the group and individual level, this is a key acquisition for any working with dementia patients - and their loved ones. -- The Midwest Book ReviewRemembering Yesterday, Caring Today culminates work spanning some ten years on the use of reminiscence with people with dementia. Essentially practice-based, this book is a clear guide to organising and structuring reminiscence sessions. It offers an optimistic and dynamic challenge to dementia care-giving. -- Professional Social WorkTable of ContentsForeword by Faith Gibson, Emeritus professor of Social Work, University of Ulster. Preface by Bob Woods, Professor of Clinical Psychology of Older People, University of Wales Bangor. Introduction. 1.Dementia and Reminiscence: Current Thinking. 2. Reminiscence in Dementia Care. 3. Reminiscence Skills and Methods.4. Remembering Yesterday, Caring Today: A Programme and an Approach. 5. Organising a Reminiscence Project. 6. Training for the Project Team and Family Carers. 7. Reminiscence Sessions: Retracing the Life Course. 8. Final Comments and Future Hopes. Appendix : Useful Documents. References. Index.

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Book SynopsisFor the increasing number of people diagnosed with dementia each year, treatment in the early stages can make a significant difference to their quality of life. This book provides examples of psychosocial interventions: taking into consideration the individual, social and environmental aspects of the person's life.It looks at ways of providing support at the time of diagnosis and goes on to explore a variety of interventions and services for the treatment of early dementia. Bringing together the knowledge and experiences of professionals from both the UK and Europe, the contributors describe interventions for both psychological and practical problems with case examples such as memory support groups, art therapies and assistive technologies for use in the home.This accessible book will be essential reading for practitioners and carers working with those with early dementia and will be extremely useful in both professional development and for those new to dementia care.Trade ReviewThis is quite an achievement for a book about evidence-based practice. It is humane, thoughtful and inspiring; appropriate reading for any professional working in dementia care. -- HCPJ, Sara Perren, Psychodynamic counsellor and group therapistThankfully Moniz-Cook and Manthorpe in Early Psychosocial Interventions in Dementia provide commissioners and practitioners with a goldmine of evidence-based practice with which to change, develop and deliver a range of psycho-social dementia services and interventions. -- The Journal of Ageing & SocietyThis is a wonderful book available just at the right time. Every Memory Service should have several copies to use as framework reminding us what can be done - and what must be done. Teams can use them for shared study and planning. We can then add our own wisdom to the existing chapters and perhaps write a few more through the exercise of reflective audit and operational research. -- Dementia PlusAs a publication it is both timely and encouraging... The book's emphasis throughout is upon early dementia. It is devoutly to be hoped that the forthcoming implementation of the strategy will incorporate some of the evidence-based "interventions" (non-medical treatments/services) described in the book. At the very least there is so much of value that should be included in the training of all working in the field. A prime example is the excellent chapter on what (and how) to tell people with dementia about their diagnosis.This is a major contribution that brings much encouragement. -- PlusThis book offers a fascinating insight into the range or creative and helpful interventions being developed qith and for people living with a dementia... A book of this type is to be warmly welcomed, given the scarcity of evidence-based practice in psycho-social interventions, and the challenge of implementing interventions that have demonstrably improved the lives of people living with a dementia. -- British Journal of Social WorkThis excellent book considers early psychosocial interventions at the time of diagnosis, cognition and memory-oriented support, psychological and social support, and the service developments in which these interventions can be based. -- Nursing StandardThere is so much of value that should be included in the training of all working in the field. This is a major contribution which brings much encouragement. -- Christian Council on AgeingContributions from health and social care professionals from the UK and Europe are cleverly combined to offer a comprehensive, informative and interesting account of tried and tested interventions for the person with early dementia... The easy to read guidance and advice will appeal to the busy professional, this book works well when read as a whole but is also perfect for quick reference. The guidelines for choosing the appropriate psychosocial interventions are set out clearly in a table which briefly explains the aim, the task, the intervention and relevant chapter for further reading... An essential read for every professional working with people with early dementia. -- Division of Clinical Psychology Forum.Table of ContentsList of illustrations. Acknowledgements. 1. Introduction: Personalising psychosocial interventions to individual need and context - Esme Moniz-Cook, University of Hull, UK, and Jill Manthorpe., King's College London, UK. Part I: Support at the time of diagnosis. 2. What do we tell people with dementia about their diagnosis and how do we tell them? - Hilary J. Husband, University of East Anglia, UK . 3. Timely psychosocial interventions in a memory clinic - Esme Moniz-Cook, University of Hull, UK,Gillian Gibson, Jas Harrison and Hannah Wilkinson, all Hull Memory Clinic. Part II: Cognitive and memory support. 4. Working with memory problems: cognitive rehabilitation in early dementia - Dr Linda Clare, University of Wales Bangor, UK. 5. Cognitive stimulation for people with mild cognitive impairment and early dementia - Dr Inge Cantegreil-Kallen, Jocelyne de Rotrou and Anne-Sophie Rigaud, all Broca Hospital, Paris, France. 6. GRADIOR: A personalised computer-based cognitive training programme for early intervention in dementia - Manuel Franco, Intras Foundation, Spain, Kate Jones, University of Wales Bangor, Bob Woods, University of Wales Bangor and Pablo Gomez, Intras Foundation, Spain. 7. Memory groups for people with early dementia - Molly Burnham, UK. 8. Health technologies for people with early dementia: the ENABLE project - Suzanne Cahill,Trinity College, Dublin, Emer Begley, Trinity College, Dublin, and Inger Hagen, Oslo, Norway. Part III: Psychological, emotional and social support. 9. Group psychotherapy for people with early dementia - Richard Cheston, University of Bath, UK. 10. Art therapy: getting in touch with inner self and outside world - Steffi Urbas, Alzheimer Therapiezentrum der Neurologischen Klinik, Bad Aibling, Germany. 11. A host of golden memories: individual and couples group reminiscence - Irene Carr, Princess Elizabeth Hospital, Guernsey, Karen Jarvis, Humber Mental Health Teaching NHS Trust, Hull, UK, and Esme Moniz-Cook. 12. Developing group support for men with mild cognitive difficulties and early dementia - Jill Manthorpe and Esme Moniz-Cook. 13. Group psycho-educational intervention for family carers - Rabih Chattat, University of Bologna, Italy, Marie Gianelli, University of Genova, Italy, and Giancarlo Savorani, S. Orsola-Malpighi University Hospital, Bologna, Italy. Part IV: Developing evidence-based psychosocial support services. 14. The Meeting Centres Support Group Programme - Rose-Marie Droes, Institute for Research in Extramural Medicine, Amsterdam, The Netherlands, Franka Meiland, VU University Medical Center, Amsterdam, The Netherlands, Jacomine de Lange, Trimbos-Institute, Rotterdam, the Netherlands, Myrra Vernooij-Dassen, Centre for Quality of Care Research, Nijmegen, the Netherlands, and Willem van Tliburg, VU University Medical Center, Amsterdam, the Netherlands. 15. Personalised disease management for people with dementia: the primary carer support programme - Myrra Vernooij-Dassen, Maud Graff, the Alzheimer's Center, Nijmegen, the Netherlands, and Marcel Olde Rikkert, University Medical Center, Nijmegen, the Netherlands. 16. Carer interventions in the voluntary sector - Georgina Charlesworth, University College London, UK, Joanne Halford, UK, Fiona Poland, University of East Anglia, UK, and Susan Vaughan, UK. List of contributors. Index.

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Book SynopsisFor people with dementia, the world can become a lonely and isolated place. Music has long been a vital instrument in transcending cognitive issues; bringing people together, and allowing a person to live in the moment. Connecting through Music with People with Dementia explains how a caregiver can learn to use melody or rhythm to connect with someone who may be otherwise non-responsive, and how memories can be stimulated by music that resonates with a part of someone's past. This user-friendly book demonstrates how even simple sounds and movements can engage people with dementia, promoting relaxation and enjoyment. All that's needed to succeed is a love of music, and a desire to gain greater communication and more meaningful interaction with people with dementia. The book provides practical advice on using music with people with dementia, and includes a songbook suggesting a range of popular song choices and a chapter focusing on the importance of caregivers looking after themselves as well as the people they care for.Suitable for both family and professional caregivers with no former experience of music therapy, and for music therapy students and entry level professionals, this accessible book will lay bare the secrets of music therapy to all.Trade ReviewSome publications cannot help but be straightforward - Rio's title provides adequate information, and perhaps more importantly, acknowledges that utilizing music is not necessarily the exclusive right of the qualified and certified music therapist. Anyone genuinely interested in therapeutic dementia care can take heart from its being "suitable for both family and professional caregivers with no former experience of music therapy". -- Journal of Mental HealthA book which can help by offering practical singing and music-making ideas and insights is a valuable, much needed resource. This straightforward and practical "self-study" book can certainly play a part in improving quality of life and interaction with others with the advice and support it offers to its aimed readership of professional and family caregivers, as well as music therapy students and practitioners. -- Approaches: Music Therapy & Special Music EducationThe book is easy to read and written in a format suitable for those new to this area of work... I would consider it a useful book for music therapy students and those working in residential and day care settings with its range of examples, checklists and guidance. -- Social Care and Neurodisability... the book provides compelling arguments as to why and how carers might use music-making to improve the day-to-day lives of those for whom they are caring...The book maps out a means of enriching the lives of people with dementia and those of their carers and is recommended for carers who have avoided using music because they do not feel qualified. -- Australian Journal of AgeingThe world can be isolated and lonely for people with dementia, and music has become key in bringing people together. Robin Rio's CONNECTING THROUGH MUSIC WITH PEOPLE WITH DEMENTIA: A GUIDE FOR CAREGIVERS shows how simple sounds and movement can engage such people, promote relaxation and enjoyment, and break down barriers. After reviewing these connections, caregivers are given a series of music exercises to follow. A fine pick for any library covering dementia care. -- The Midwest Book ReviewRio is a great enthusiast and shows how we can and do connect through music of all sorts - rhythms and movements, sounds and songs. Encourage your staff to sing with the residents; we've all got music in us. -- Standards for PracticeThis comprehensive book is easy to read and guides an inexperienced reader through the process of introducing and using music with people with dementia. -- COTSS PLD NewsletterTable of ContentsPreface. 1. Introduction. 2. All You Need to Know About Music. 3. Singing and Choosing Songs. 4. Making a Connection. 5. Putting What You Know to Use. 6. Stimulating and Relaxing Music Choices. 7. Memory and Associations. 8. Caring for Yourself. Songs. References Appendix: Song List, Recording Artists and Resources

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Book SynopsisAs we grow older, our need to be engaged in interesting activities does not diminish and is vital to our quality of life. How to Make Your Care Home Fun examines the need for activities for elderly people in care and offers a practical programme of entertaining activities that can be used in nursing and residential homes, day centres, rehabilitation centres and hospices.As well as suggesting a programme of activities for older people in care homes including arts and crafts, role-playing, gardening and cooking, it also takes the stance that 'activity nursing' should be integral to all personal care plans and not simply regarded as an add on to medical care. The author also examines how care homes are run and regulated in the light of recent legislation and considers the services provided by care homes and areas of potential deficiency. The book offers a wide selection of activities that can be used with people of all abilities and have greatly improved quality of life for elderly people in care.Highlighting the value of nursing that caters for an individual's physical, mental and emotional needs, this book is an ideal resource for care home professionals and anyone who is responsible for the well-being of elderly people in care.Trade ReviewI would certainly recommend this book a a resource within the care home as it would inspire an understanding of how simple activities are so important to the wellbeing of residents whithin the care home. -- dementia... this is a most certainly recommended book and ideal resource for any care providers needing some fresh insight and inspiration, especially those whose role it is to provide activities in a day care or residential setting. The book acts as a comprehensive guide to help make a care home fun and stimulating, and it has successfull highlighted the value of a quality of nursing whih aims to provide for an individual's physical, mental and emotional needs and overall quality of life. -- SignpostThis is a thoroughly practical handbook in paperback format - full of a variety of stimulating activities to use with a range of residents. This is a helpful tool in the work of meaningful care and continuing stimulus for our older citizens and one that care home staff will find to be a valuable asset. I warmly commend it. -- Plus Quarterly Magazine of Christian Council on AgeingThis pithy, readable book suggests ideas for everyday activities to enhance the wellbeing and quality of life of older people who live in care homes. -- Nursing StandardTable of ContentsForeword. 1. Introduction. 2. The Care Home Sector. 3. How Old is Old? 4. Why Activities Are Needed. 5. The Activities Organiser. 6. Arranging the Programme. 7. Activities. 8. Talking and Listening. 9. Keep Moving. 10. Role Play. 11. Reminiscence. 12. Everyday Occupations. 13. Music. 14. Arts and Crafts. 15. Discussions and Debates. 16. A Miscellany of Informal Activities. 17. Gardening. 18. Cookery. 19. Going Out. 20. Activities for People with Dementia.

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Book SynopsisEngagement in meaningful activity is an important aspect of human existence, regardless of one's cognitive abilities. Even in the later stages of dementia, people can still be engaged in activities at a level that allows them to be successful. In fact in these later stages, where cognitive abilities may be waning, the need for activity becomes greater, as cognitive stimulation helps preserve what skills remain. For care staff looking after older people, many of whom may have some degree of dementia, coming up with ideas for activities of a suitable level to keep their residents engaged and stimulated can be challenging.The Activity Year Book solves this problem, offering week by week themed activities. From Valentine's Day quizzes to Bonfire Night word searches, it has activities relating to every important date in the calendar, and also encourages reminiscence and discussion around these events. This book will be invaluable to care staff looking for a simple way of improving the lives of their residents, week by week, all year round.Trade Review... there is a genuine air of spontaneity throughout: the co-authors, with many years of experience, have certainly brought a sense of purpose to their publication. The occasional joke also lightens the tone, which can often become quite earnest in other similar, somewhat duller but well-meaning collections... Highly recommended. -- Working with Older People, Stephen Weekes, Book Reviews EditorFor those NAPA members who are always on the search for activity ideas, here is a wonderful resource to dip into. The Activity Yearbook offers week by week themed activities that can be easily used by all members of the care staff team. From Valentine's Day quizzes to Bonfire Night word searches, the book is filled with fun activities relating to many of the important dates in the calendar, including those in Scotland, Ireland and Wales. They also encourage reminiscence and discussion around these events. The authors also give practical tips on how to run a group and organise activities effectively. -- NAPA Living Life, Sally KnockerThis resource has the potential to improve the quality of life and activity levels of older people in care and should be a must have for all care homes. There is certainly enough material in this book to last much longer than a year which makes it a valuable resource for activity organisers/carers in residential or day services for older people. -- COTSS PLD, Pauline Peacock Specialist Occupational TherapistI enthusiastically recommend this Week by Week Guide for Use in Elderly Day and Residential Care to all who work in such settings or anyone who leads a Church or Community Centre group for a fun session...The activities suggested in this book are designed to help group leaders provide this beneficial stimulus and encourage them to use their own imaginations to adapt, to develop extra activities and themes. -- Plus Quarterly Magazine of Christian Council on AgeingYou may think this book's a bit pricey but it's a treasure trove of ideas and would be well worth the outlay for any care home. It is packed with activities of all sorts and I heartily recommend it. -- Standards for PracticeThe Activity Year Book is for care staff looking after older people who have some degree of dementia, and offers a range of activity ideas key to keeping them engaged and stimulated.. .A fine survey packed with fun ideas. -- The Midwest Book ReviewTable of ContentsIntroduction: Getting Started. 1. January - Twelfth Night; Winter; Burn's Night/St Andrew's Day; Animals in Winter. 2. February - When We Made Our Own Fun; Valentine's Day; Chinese New Year; Planting for Spring. 3. March - St David's Day; Houses and Homes; St Patrick and Ireland; The Equinox, Clocks and Time. 4. April - Easter: A Moveable Feast; Spring Cleaning; Birds, St. George. 5. May - May Day; May Ball; Whitsuntide; Folklore and Customs. 6. June - The Weather; Dog Days; The Stars and the Moon in June; Royal Ascot; Garden Party. 7. July - Sport; Weddings; Holidays and Honeymoons; Local Traditions. 8. August - Food, Glorious Food; Antiques; Pubs and Inns; Soaps. 9. September - Schooldays; Harvest Festival; What's in a Name?; Autumn; Newspapers and Current Affairs. 10. October - Healthy Body, Healthy Mind; Animals and Pets; Trafalgar Day; Halloween. 11. November - Bonfire Night; Rememberance Day; Colours; Famous Men and Women/St Andrew's Day. 12. December - Favourite T.V. and Radio Shows; The Local Flea Pit or Going to the Cinema; Musicals and Panto; Christmas Time; New Year and Calendars.

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Book SynopsisAlthough currently many people with dementia are not given the opportunity to receive professional counselling, this book explores the value of counselling for men and women living with this condition and how it enables them to make sense of their lives and their notions of themselves. The author explores the pervasive myth that all experiences of living with dementia are entirely negative and shows counsellors and carers how a person-centred counselling experience can have positive outcomes for those with dementia and the people who care for them.Based on the author's own experiences of counselling people with dementia, the book covers the fundamentals of the counselling process and precisely what a person-centred approach entails. The book then brings together several theories of counselling such as the role of the 'spiritual' in the counselling relationship; working with concepts of relational depth and configurations of Self; and the author's own theories of relating to a person's spiritual core. Accumulating findings from over 20 years of counselling experience in both the UK and the US, this book explores the importance of the Self and recognising each individual's worth and value. Dialogue from the author's counselling experiences is used to illustrate the person-centred counselling approach.Providing a comprehensive guide to person-centred counselling for people with dementia, this book gives an illuminating perspective on the subject and will be of value to counsellors, health and social care professionals, carers, people with dementia and their families.Trade ReviewThe importance of this short book is out of proportion to its size... It is the fruit of over 20 years of counselling experience by one individual in the United Kingdom, and United States of America; years in which she has been a pioneer in providing a one-to-one service for persons with dementia, and also working with family members... It is difficult to do justice to this book in a brief review. It is the kind I go through with pencil poised to underline a word, a phrase or sentence... this is a book that you cannot afford to be without. -- The Journal of Ageing & SocietyLipinska's book is both heartening, as there is a dearth of such services in the UK, and timely, with new National Strategies for Dementia published in England and imminent in Scotland (where dementia is already a priority) offering hope that this situation will change. -- HCPJ (Healthcare Counselling and Psychotherepy Journal)This is a worthwhile read and certainly succeeds in making the point that people with dementia are people and should be respected as such - This is for their benefit and ours. There may be a role for specialists personal counsellors within mainstream services. In addition the counselling approach and techniques described here can and should be adopted by professionals as a core component of their therapeutic armoury. -- Dementia Plus websiteWe've been waiting a long time for someone to write a definitive text on counselling persons with dementia. Now Danuta Lipinska has done it, and it is even better than we had hoped for. -- John Killick, co-author of 'Communication and the Care of People with Dementia'She challenges the pervasive negative assumptions associated with dementia. She reminds us all that those with dementia are first and foremost persons of dignity, worthy of being honored with our respect. With warmth and humor, Danuta shares the clarity of her vision of honoring the wholeness of the person, and the unique experiences of their history, always encouraging full expression of their feelings and frustrations, their strengths and their struggles. Her book demonstrates the power of listening, and the patience of not hurrying silence. She creates a therapeutic environment that honors the tenacity of the human spirit, and allows them to... Speak the unspeakable, confront the unimaginable, and yet hold on to the residual Self, the emerging Self. This book will open your heart with hope. If you are a caregiver, a family member, a friend, a therapist or allied medical professional, it will offer you a fresh perspective to consider, and be a great resource. -- Dwight Webb, author of The Soul of CounselingThis valuable book challenges us to raise our expectations, to believe in a person's capacity for growth and change despite even because of failing memory. This is a book about hope, respect and love. -- Cynthia Ransley, Lecturer in Social Work, Integrative Psychotherapist and Tutor, Metanoia Institute, LondonLipinska writes: "Making sense of self, if only for the moment, and if only for a moment in time, acknowledges, affirms and accepts the client's real Self by being able to share who she once was in the context of who she has become". This book shows that not only is this work possible, but it is of incredible value. It has deepened my knowledge and my desire to work with individuals who have dementia and with their carers. -- Therapy TodayTable of ContentsDedication. Foreword by Brian Thorne, Emeritus Professor of Counselling, University of East Anglia, UK. Acknowledgements. Introduction. 1. In the Beginning. 2. 'Standing Tall' and Other Lessons of Stature. 3. The Purpose of Counselling: Why Counsel People with Dementia? 4. The Process of Counselling: How Does It Work? 5. What is the Counselling Experience Like? 6. Who is the Client? 7. Communicating with One Another. 8. Essential Spirit-Core Relating. Epilogue. References. Additional Recommendations.

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Book SynopsisQigong is the centuries-old practice of moving vital energy (Qi) through the channels of the body, known as meridians, to promote vitality and health. Stephen Rath details current research and Traditional Chinese Medicine theory to show how Qigong practice can support cognitive functioning, as well as emotional and physical wellbeing, in people with dementia. Qigong for Wellbeing in Dementia and Aging presents a set of accessible Qigong exercises and breathing techniques adapted specifically for older people who may be frail or have limited mobility, which address specific symptoms associated with dementia. These include exercises for the hands and feet, exercises for releasing emotions through the Five Animal Sounds, seated exercises, and facial exercises. The exercises, contributed by the Natural Healing Research Foundation from their Senior Exercise Class in Hawaii, are presented with clear explanatory illustrations. The final part of the book describes the Chinese understanding of nutrition as an essential underpinning of good health into old age, and provides health-giving food and drink recipes for people with dementia based on these principles. There is also a helpful chapter on practicing Qigong to protect against caregiver burnout. This will be an invaluable book for care professionals, nurses, activity coordinators, and physical therapists, as well as people with dementia and their families.Trade ReviewAs the average human life span has steadily increased since the last century, dementia has become a major challenge to the wellbeing of the aging population. How to prevent, treat and improve dementia is a task our society faces. To solve this task, a combined effort is needed from different philosophies and medical fields - a place where the East meets the West...This book provides clear and concise information about Traditional Chinese Medicine (TCM) and Western Medicine in order to help readers understand Qigong's benefit for this illness. The format of the exercises are easy to understand and practice. I hope this book will bring new light in fighting dementia and improving the quality of life for our elders. -- Dr. Shi Cheng, MM (China), Dipl. Ac., Vice President and Co-Founder of Colorado School of Traditional Chinese Medicine (CSTCM), Denver, COThis book is an extraordinary and valuable source of information about natural healing fundamentals for maintaining good health and wellbeing. It reveals endured wisdoms and secrets more than five thousand years old. I personally benefited from using exercises and nutritional information that were explicitly described in the book - I retired from office at age eighty-eight.Although the target is dementia and aging, the information applies to all aspects of remaining fit and healthy. It is detailed, shared actual cases, easy to understand, and the exercise illustrations are precise. I urgently recommend this book to people of all ages who want to stay healthy. -- U.S. Senator Daniel K. Akaka (RET)Stephen Rath details current research and traditional Chinese medicine theory to show how qigong practice can support cognitive functioning, as well as emotional and physical well-being, in people with dementia. The book presents a set of exercises and breathing techniques adapted specifically for older people who may have limited mobility, which address specific symptoms associated with dementia. -- International TherapistTable of ContentsPreface. Introduction. Part I: A Natural Healing Approach to Dementia. 1. Western and Traditional Chinese Medicine (TCM) Perspectives on Dementia. 2. Examples of the Rejuvenating Power of Natural Healing. 3. Natural Healing for Emotional Wellbeing. 4. Rejuvenation for the Caregiver. 5. Conclusion. Part II: Exercises to Awaken Natural Healing. 6. Natural Healing Exercises Using the Hands and Feet. 7. Releasing Harmful Emotions through the Five Animal Forms. 8. Relaxation through Facial Energy Massage. 9. Twelve Sitting Exercises: Meditation and Motion to Move Energy through Your Body. Part III: Foods to Awaken Natural Healing. 10. Introduction to the Chinese Understanding of Nutrition. 11. Rejuvenating Foods. About Grandmaster Hong Liu. References. Index.

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Book SynopsisPeople with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals working with them. This book describes not only what can be done to ensure maximum quality of life for those in the final stages of the illness, but also how best to support those involved in caring for them.Emphasising the importance of being attuned to the experiences and needs of the person with dementia, the authors explain why and how they should be included in decisions relating to their end of life care. Practical strategies for ensuring physical and emotional wellbeing are provided, drawing on useful examples from practice and providing solutions to potential challenges that carers and family members will face. Dilemmas surrounding end of life care are explored in detail, including the moral dilemma of medical intervention, and the authors suggest ways of supporting family members through the process in terms of providing information, helping them adjust to change and loss, and involving them in their relative's care, and at how care staff can be supported through appropriate education and training, team building and information-giving.This is an essential resource for anyone who wishes to provide compassionate, person-centred care for a person with dementia as they approach the end of life, including care staff, nurses, social workers and related professionals.Trade ReviewThis splendid book contains practical information - clinical, psychological, social, legal, social, spiritual and ethical - which is combined with wisdom and background understanding so that a thoroughly holistic picture emerges. It also encourages thought about training in the complex field of end of life care for people living with dementia. -- Julian C. Hughes, RICE Professor of Old Age Psychiatry, University of BristolThis book offers concise and practical guidance on caring for people with dementia who are reaching the end of their lives, promoting dignity and the needs of lay (family and friend) and professional carers. It offers clear learning outcomes, case studies and examples of good practice to bring this knowledge into every day care. -- Dr Elizabeth Sampson, Reader, Marie Curie Palliative Care Research Department, University College LondonThe care of people with advanced dementia is an increasingly important area of end-of-life care. This book provides a practical and well referenced overview of the key issues, using accessible case studies to illustrate key points. I look forward to using it in palliative care education and as an excellent source for reference. -- Jane Seymour, Professor of Palliative and End of Life Care, School of Nursing and Midwifery, University of SheffieldThere are lots of books being published about dementia right now and most do add value to the body of literature available but not all are as readable and accessible as the new offering from the University of Bradford's School of Dementia Studies. [...] Murna Downs and her team should be commended for this book [...]. -- Celia Di Cicco * Princess Alice Hospice *Table of ContentsForeword. Introduction. 1. Transitions. 2. Promoting Dignity and Physical Wellbeing at the End of life. 3. Promoting Dignity and Emotional Wellbeing at the End of Life. 4. Supporting Families through Advanced Dementia and End of Life. 5. Supporting the Health and Social Care Workforce to Provide End of Life Care for People with Dementia. References. Index.

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Book SynopsisThe experiences and needs of residents and patients in nursing and care homes are very different at night, and this is particularly true for those with dementia. Yet nursing and care homes are not always inspected with the same rigour at night as they are during the day, and night staff do not always receive the same levels of training, resources and supervision as day staff. This book provides night staff, their managers and anyone else with an interest in care homes during the night with the information, knowledge and practical skills they need to deliver positive and appropriate care at night. The authors look at all of the issues that are particularly pertinent in caring for older people at night, including nutrition and hydration, continence, challenging behaviour, medication, night time checking, pain management and end of life care. They also look at the impact that working at night has on care staff, and offer practical suggestions to help them to safeguard their own health. The final chapter provides a set of night time care guidelines for inspectors that can also be used by managers to evaluate night time practices in their homes. This book is essential reading for night staff and their managers and employers, as well as inspectors of services, policy makers, and anyone else with an interest in the provision of care for older people.

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Book SynopsisFocusing on theoretical, policy and practice issues which are increasingly identified as key priorities, the contributors to this important book examine the ways in which dementia care is evolving around the globe. They explore the latest theory underpinning dementia care, the applications of this theory in dementia care research and how this research is influencing and shaping practice. Written by practitioners, policy influencers and researchers who draw on case studies from the UK, the USA, Canada, Australia, France, India and Malta, the book forms the basis for a worldwide dialogue of interdisciplinary initiatives and ideas. Insights into how policy and regional and national dementia strategies are developed, and the range of innovative approaches that can be taken in practice, mark a positive step towards ensuring that the needs of people with dementia around the world are met, both now and in the future. This book makes essential reading for practitioners, researchers, policy makers and students in the field of dementia care.Trade ReviewThis edited volume takes a welcome approach to review current issues in dementia care, providing a broad-based view of the conceptualisation of dementia, policy and practice... it is refreshing to read a book in which the focus is on the real world, in which we struggle to implement policy and provide the best possible services. -- British Journal of PsychiatryThe book is carefully edited, and meticulously referenced and indexed. The result is a model of good practice in the presentation of theory and research. -- Church TimesAfter all these years, dementia has truly come of age, and we can use the current policy interest and increased awareness to continue to make change happen on the basis of real evidence and information about what actually makes a difference. -- from the Foreword by Professor June Andrews, Director, Dementia Services Development Centre, University of Stirling, UKAn often surprisingly frank exploration of the development and implementation of policy, the nature of dementia and innovations in practice, written by international experts who are actively working in the field. It reflects the progress made in the last two decades and highlights the huge problems that are yet to be solved in a world where the increasing numbers of people with dementia may not be balanced by increasing resources. -- Professor Richard Fleming, Director, NSW/ACT Dementia Training Study Centre, University of Wollongong, AustraliaTable of ContentsForeword, Professor June Andrews, Director, Dementia Services Development Centre, University of Stirling, Scotland. Introduction. Part I. Conceptualising Dementia. 1. Towards a Holistic Approach for Understanding Dementia, Anthea Innes, Senior Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland. 2. Developing Evidence for Action: Dementia Care in Canada, Scott Dudgeon, Chief Executive Officer, Alzheimer Society of Canada. 3. Epidemiology: An Overview of Current and Predicted Epidemiological Factors Shaping Dementia Care, Nicola Coley, Postdoctoral researcher, Institut National de la Santé et de la Recherche Medicale (INSERM)-Toulouse III University UMR1027, Department of Epidemiology and Public Health, Toulouse University Hospital, France; Claudine Berr, INSERM research Director, INSERM-Montpellier University Research Unit UMR1061, Department of Neurology, Montpellier University Hospital, France; and Sandrine Andrieu, Professor of Epidemiology and Public Health, INSERM-Toulouse III University UMR1027, Department of Epidemiology and Public Health, Toulouse University Hospital, France. 4. Integrated Care and Treatment of Dementia: Defining Best Practice for the Twenty-first Century, Laura Telford, foundation year doctor in geriatric medicine, Victoria Hospital, Kirkaldy, Scotland; Emily Gallagher, foundation year doctor in geriatric medicine, Victoria Hospital, Kirkaldy, Scotland; and Emma Reynish, Consultant Physician in Internal Medicine and Geriatrics, Victoria Hospital, Kirkcaldy, Scotland and Honorary Professor in Dementia Studies, University of Stirling, Scotland. Part II. Policy Development. 5. Policy to Enable People with Dementia to Live Well with Dementia: Development of the National Dementia Strategy for England, Sube Banerjee, Professor of Mental Health and Ageing, Institute of Psychiatry, King's College London, England. 6. Three Alzheimer Plans in France (2008-2012), Marie-Jo Guisset Martinez, Programmes Manager, Fondation Médéric Alzheimer, France. 7. Implementing a Regional Strategy: The Fife Dementia Strategy, Louise McCabe, Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland. 8. Challenges of Developing a Dementia Strategy: The Case of Malta, Charles Scerri, Lecturer in Neuropathology and Neuropsychopharmacology, University of Malta. Part III. Innovative Approaches to Care. 9. The Function of Memory Clinics and Post-diagnostic Services for People Newly-diagnosed with Dementia and their Families, Fiona Kelly, Lecturer in Dementia Studies, School of Applied Social Science, University of Stirling, Scotland; and Paulina Szymczynska, Research Associate, Dementia Services Development Centre, University of Stirling, Scotland. 10. Bridging the Gap for Dementia Care in India, Amit Dias, Assistant Professor, Department of Preventive Medicine, Goa Medical College, India. 11. Evaluating the Impact of Environmental Design Features on Physical Activity Levels of Individuals with Dementia Living in Residential Accommodation, Loren deVries, Transitional Nurse Practitioner, The Garrawarra Centre, New South Wales, Australia; and Victoria Traynor, Associate Professor, School of Nursing, Midwifery and Indigenous Health, Australia. 12. Innovative Dementia Training in the Deep South of the United States, Christopher Jay Johnson, PhD, retired Professor, Family Therapist and Researcher; and Roxanna H. Johnson, Aging Consultants, Inc., USA. Conclusion. The Contributors. Subject Index. Author Index.

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Book SynopsisChristine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.Trade ReviewHer story is remarkable and humbling... This complex condition affects each individual differently, but Christine Bryden, in a clear and lucid overview, is able to explain in detail what happens to the brain and what varying symptoms this may produce. -- The WayThis book's great strength, apart from the vivid and moving testimony of one who is facing up to the challenge of dementia with faith and courage, is the challenge to us in the church that underlies it all. Longevity, and the increasing incidence of dementia, are a call to us in CCOA and the churches to ensure that we continue to raise awareness of the need for understanding and trained pastoral care, in respect of those who suffer from dementia together with their carers. The book includes a helpful description of the types of dementia and resources, in terms of literature and organisations, that can help. I commend this book as a helpful source of better understanding of the plight of dementia sufferers and a means of prompting us to respond with the informed care that they require. -- Plus - Quarterly magazine of Christian Council on AgeingBryden becomes a campaigner for social change for those affected by dementia in Australia. It is a moving and inspiring book. -- Church Timesa very readable book about dementia, told through the personal experience of a sufferer rather than a carer. -- the Journal of Health Care ChaplaincyI am delighted that this book of a first-hand account of dementia is being republished. I know it has been inspirational for many who have dementia and for their families. These days, most people say that they know someone who has dementia, and it is my hope that Christine's words will be read by many others, who will also find inspiration in her journey, her strength and her faith, which have carried her through all this time. -- from the Foreword by Elizabeth MacKinlayChristine’s story is one of inspiration and strength. A single mother with Alzheimer's disease and three young daughters: all that and only in her mid-40s facing another decade of life if she’s lucky. But she’s already jumped her greatest hurdle - that of facing the unknown. Christine has put that greatest of fears behind her. Who will she be when she dies? A mother remembered and revered by her family and a woman who gave a great deal of herself to strangers. -- Mike Munro, Australian television presenterI read this book in several sessions over the course of one day and found it a moving and compelling read... I can heartily recommend it for those in the early stages of Alzheimer's or dementia, and to their carers. -- GoodBookStall.co.ukTable of ContentsForeword by Elizabeth MacKinlay. Preface. The Diagnosis. 1. I'm too young! 2. The first signs. 3. The second opinion. Who Will I Be When I Die? 4. At least you can't die from it! - wrong!. 5. You look so well! - if only I had cancer! 6. A terminal illness - so why are we ashamed of it? What's It Like, Having Alzheimer's? 7. Clinging to a precipice with my fingernails. 8. From 'super-memory' to losing the plot. 9. A confusion of sight and sound. 10. A jumble of words. 11. Life's essentials. An Adventure into the Unknown. 12. Trying to be prepared. 13. My car's an alien spaceship! - and other oddities. 14. From 'super-mum' to dependent mum. 15. A scary road ahead? Where to Now? 16. Our fifteen minutes of fame. 17. Do I really believe in healing? A Postscript - A God of Surprises! 18. I'm getting better! 19. A 'miracle cure'? Thank God God's in Charge! 20. Getting onto 'God's roller-coaster'. 21. Why me - and why Alzheimer's, God? 22. Is God a 'bandaid'? 23. Am I afraid of dying? Appendix. What is Alzheimer's disease?

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Book SynopsisPersonalisation builds on person-centred care to focus on how people with dementia can have more choice and control over decisions affecting them, and be supported to be part of their communities.This practical guide explains how to deliver personalised services and support for people with dementia through simple, evidence-based person-centred practices. The authors clearly explain personalisation and current person-centred thinking and practice, providing many vivid examples of how it has been achieved in community as well as residential care settings. They guide the reader through using a range of person-centred practices. Strategies for ensuring a good match between the person with dementia and the staff and volunteers supporting them are also described. In the final chapter, the reader is introduced to Progress for Providers, a photocopiable tool for tracking progress in delivering appropriate personalised support for people with dementia living in care homes.This is essential reading for dementia care practitioners and managers, as well as social and health care workers, community workers and students.Trade ReviewA refreshingly readable book, feels and looks like a text book but reads like a supportive coaching manual. Very in-depth but that doesn't distract from the clarity of the writing style... Too many highlights really including - "one-page profiles", "personalisation" and "person centred practices" because they have resonance across all spheres of Nursing. They make you sit up, think and reflect on your own work. Chapter 5 "matching staff and clarifying responsibilities" is my highlight. Suggesting how matching staff characteristics with persons living with dementia, develops a win-win relationship... I would like to see everyone involved in elder care have access to a copy of this book. That's not just care staff, but non-care support staff too. It will be appropriate across all levels of nursing from NVQ support staff to ward managers and service providers. -- Nursing TimesThe person-centred practices outlined in this book show how to deliver genuine personalisation, where what is important for the person is balanced with what is important to the person's wellbeing. It is about the stuff that makes a life worth living: each person as an individual with their own needs, wishes, and dreams to be recognised and met... In the current economic climate, it is even more important that we make sure personalisation is about real choice and service. It is not, and must not be seen as, a way of cutting funding. I therefore warmly welcome the timely publication of a book that seeks to ensure we always see the person and not the dementia . -- from the Foreword by Jeremy Hughes, Chief Executive of the Alzheimer's SocietyThis is a really useful book. All those supporting people with dementia in their own homes or within care homes will find this helpful. The person-centred thinking tools prompt readers to see what is really important to help people live their lives. On the surface level the tools are a format for planning care delivery. They are deceptively simple. They are never more than one page long but on a deeper level they help caring staff ask the sorts of transformational questions that pinpoint what is really important for the person. The worked examples are very real and moving and underscore that this is not just a paper exercise. This is essential reading for all advocates of person-centred care. -- Professor Dawn Brooker, Director of the University of Worcester Association for Dementia StudiesTable of ContentsForeword by Jeremy Hughes. Introduction. 1. About this Book - and Arthur. 2. Personalisation and People Living with Dementia with Martin Routledge, Head of Operations, In Control, UK 3. Knowing the Person - One-Page Profiles. 4. Choice and Control in Practice. 5. Matching Staff and Clarifying Responsibilities. 6. Acting on What is Working and Not Working. 7. Further Reflection, Learning and Action. 8. Past and Future - Life Stories and Future Wishes. 9. Being Part of the Community. 10. Putting it All Together - John's Story. 11. Getting Started and Progress for Providers. Appendix: Progress for Providers: Checking Your Progress in Delivering Personalised Support for People Living with Dementia in Care Homes. References. Index.

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Book SynopsisPresenting the most up-to-date information available about dementia and intellectual disabilities, this book brings together the latest international research and evidence-based practice, and describes clearly the relevance and implications for support and services Internationally renowned experts from the UK, Ireland, the USA, Canada, Australia and the Netherlands discuss good practice and the way forward in relation to assessment, diagnosis, interventions, staff knowledge and training, care pathways, service design, measuring outcomes and the experiences of individuals, families and carers. The wealth of information offered will inform support and services throughout the whole course of dementia, from diagnosis to end of life. Particular emphasis is placed on how intellectual disability and dementia services can work collaboratively to offer more effective, joined up support. Practitioners, managers and commissioners will find this to be an informative resource for developing person-centred provision for people with intellectual disabilities and dementia and their families. It will also be a key text for academics and students who wish to be up-to-date with the latest research and practice developments in this field.Trade ReviewDr. Watchman has assembled a wide-reaching compendium of chapters touching upon and contemporizing a range of issues prevalent in the conversation on dementia and how it affects people with intellectual disabilities. The authors are drawn from among the leaders, innovators, and researchers in the social care field and their contributions help to encapsulate the 'state of the art' in this vexing area and will help us move to the next level in research and practice. A very commendable effort and a book that belongs in the hands of anyone concerned about how to best approach dementia among people with intellectual disabilities. -- Matthew P. Janicki, Ph.D., University of Illinois at Chicago and Co-Chair of the US National Task Group in Intellectual Disabilities and Dementia PracticesKaren Watchman has managed to bring together internationally renowned experts whose contributions are an intellectual tour de force from presenting the scientific evidence to making recommendations. This is a must read for anyone interested in changing perceptions, practice or policy for people living with intellectual disabilities and dementia. -- Jean Georges, Executive Director, Alzheimer EuropeThis book brings together the most up to date information that is available internationally, in relation to dementia and intellectual disabilities... through exploring individual case studies and more importantly what can be done to help shape future services and the potential implications. The wealth of information presented within the book will help to inform and support services throughout the whole course of dementia, from first diagnosis to end of life... provides useful information and suggestions with regards to specific activities that could be utilised through the different stages of dementia, as well as providing techniques in which to improve communication. -- George Dewis, Activities Special, HC One Ltd * NAPA, Living Life Magazine *Intellectual Disability and Dementia is a must read for everyone working with people with intellectual disabilities who have a diagnosis of dementia. It provides a wealth of information and is a very welcome contribution in this field of work. Karen Watchman (...) has experience of supporting people within both dementia care and intellectual disability services... This book offers the latest information, international research and evidence-based practice with contributors from the UK, Holland, Ireland, Canada, Australia and the US. -- Jayne Phillips, OT * Signpost *As the contributors include internationally renowned experts the text provides excellent teaching material for practitioners, academics with reference to current practice and developments in this area. Dr Watchman's book is an essential tool for the health and social care sector... The current volume is an important contribution to the literature on intellectual disability and dementia... The comprehensive nature of the volume in terms of its aims and scope make this publication highly recommended reading not only to all those colleagues involved in the health and social care of persons with intellectual disability and dementia, but also for the families and friends of those who suffer with these conditions. -- Dr Margot Lindsay, former Research Officer, London Centre for Dementia Care * European Journal for Person Centered Healthcare *Table of ContentsForeword by Diana Kerr. Introduction. Part I: The Association Between Intellectual Disability and Dementia: What Do We Know? 1. The Epidemiology of Dementia in People with Intellectual Disabilities. Amanda Sinai, Clinical Research Associate, Faculty of Brain Sciences, University College London, UK, Trevor Chan, Consultant Psychiatrist in Learning Disability, Oxleas NHS Foundation Trust, London, UK and Andrew Strydom, Senior Lecturer, Faculty of Brain Sciences, University College London, UK. 2. Understanding the Process: Links Between Down's Syndrome and Dementia. Liam Reese Wilson, Research Assistant and PhD Student, Cambridge Intellectual and Developmental Disabilities Research Group, University of Cambridge, UK, Tiina Annus, PhD Candidate and Research Assistant, Cambridge Intellectual and Developmental Disabilities Research Group, University of Cambridge, UK, Shahid Zaman, Consultant Psychiatrist, Cambridgeshire and Peterborough NHS Foundation Trust and Affiliated Lecturer, Department of Psychiatry, University of Cambridge, UK and Anthony J. Holland, Health Foundation Chair in the Psychiatry of Learning Disabilities, University of Cambridge, UK and Honorary Consultant Psychiatrist, Cambridgeshire and Peterborough NHS Foundation Trust. 3. The Outpatient Clinic for Adults with Down's Syndrome: A Model to Diagnose Dementia. Antonia Coppus, Erasmus University, Rotterdam, the Netherlands. 4. Medication Treatment of Dementia in People with Intellectual Disabilities. Ken Courtenay, Consultant Psychiatrist, London, UK and Nicole Eady, completing MSc in Psychiatric Research at University College London, UK. 5. Non-Pharmacological Interventions. Nancy Jokinen, School of Social Work, University of Northern British Columbia, Canada and Co-President of the British Columbia Psychogeriatric Association. 6. Living Life with Dementia. Sunny Kalsy-Lillico, Consultant Clinical Psychologist, Birmingham Community Healthcare Trust, UK. Part II: Experiences of Dementia in People with Intellectual Disabilities: How Do We Know? 7. The Perspective of People with Intellectual Disabilities. Noelle Blackman, Dramatherapist, Chief Executive Office of Respond and Honorary Fellow, University of Hertfordshire, UK and David Thompson, Founder of Growing Older with Learning Disabilities (GOLD) group. 8. Towards Understanding Individual Experiences of People Ageing with Down's Syndrome and Dementia. Karen Watchman, Alzheimer Scotland Lecturer in Dementia, University of the West of Scotland, UK. 9. Family Experiences of Supporting a Person with Down's Syndrome and Dementia in Australia. Rachel Carling-Jenkins, Research Fellow, Intellectual Disability Research Group, LaTrobe University, Australia, Christine Bigby, Research Programme Leader and Deputy Chair Academic Board, LaTrobe University, Australia and Teresa Iacono, Professor of Rural and Regional Allied Health, LaTrobe University, Australia. 10. Planning Ahead: Supporting Families to Shape the Future After a Diagnosis of Dementia. Christine Towers, Research and Service Development Manager, Foundation for People with Learning Disabilities, UK and Heather Wilkinson, Co-Director, Centre for Research on Families and Relationships, Director of Research and Knowledge Exchange and Head of Interdisciplinary Social Science, University of Edinburgh, UK. Part III: Service Planning: What Are We Going to Do? Sharing the Diagnosis of Dementia: Breaking Bad News to People with an Intellectual Disability. Irene Tuffrey-Wijne, Senior Research Fellow, St George's University of London, UK, Kingston University, UK and Maastricht University, the Netherlands and Karen Watchman, Alzheimer Scotland Lecturer in Dementia, University of the West of Scotland, UK. 12. Staff Knowledge and Training. Karen Dodd, Associate Director, Specialist Therapies: Learning Disabilities and Older Peoples' Mental Health Services and Consultant Clinical Psychiatrist, Surrey and Borders Partnership NHS Foundation Trust, UK. 13. Belief in a Place Called Home: Reflections on Twenty Years of Dementia Specific Service Provision. Leslie Udell, Interim Executive Director, Winniserv Inc., Canada. 14. Responding to the Challenges of Service Development to Address Dementia Needs for People with an Intellectual Disability and their Caregivers. Mary McCarron, Dean of the Faculty of Health Sciences, Trinity College Dublin, Ireland, Philip McCallion, Professor, School of Social Welfare, University of Albany, USA, Evelyn Reilly, Lecturer in Specialist Nursing (Dementia and Learning Disability) Trinity College Dublin, Ireland and Niamh Mulryan, Acting Clinical Director, Daughters of Charity Intellectual Disability Services, Dublin, Ireland. 15. Intellectual Disability and Dementia Services: Better Together or Apart? Susan Mary Benbow, Director, Older Mind Matters Ltd., UK, Moni Grizzell, Nurse Practitioner, Research Sister, and Visiting Lecturer, University of Wolverhampton, UK and Andrew Griffiths, Consultant in Older Adult Psychiatry, Black Country Partnership NHS Foundation Trust, UK. 16. Measuring Outcomes for Services and Individuals. Karen Dodd, Associate Director, Specialist Therapies: Learning Disabilities and Older Peoples' Mental Health Services and Consultant Clinical Psychiatrist, Surrey and Borders Partnership NHS Foundation Trust, UK. References. List of Contributors. Index.

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Book SynopsisExploring concepts of ageing, personhood, capacity, liberty, best interests and the nature and ethics of palliative care, this book will help those in the caring professions to understand and engage with the thoughts and arguments underpinning the experience of dementia and dementia care. Dementia is associated with ageing: what is the significance of this? People speak about person-centred care, but what is personhood and how can it be maintained? What is capacity, and how is it linked with the way a person with dementia is cared for as a human being? How should we think about the law in relation to the care of older people? Is palliative care the right approach to dementia, and if so what are the consequences of this view? What role can the arts play in ensuring quality of life for people with dementia? In answering such questions, Julian Hughes brings our attention back to the philosophical and ethical underpinnings of dementia care, shedding new light on the significance and implications for those in the caring professions, academics and researchers, and those living with dementia and their families.Trade ReviewIn this book, Julian Hughes makes a powerful and compelling case for a revolution in the treatment of people with dementia. He underscores the need to summon immediately the personal and political will to engage people with dementia as people who respond positively to the solicitude and open engagement provided by those deemed healthy. Viewing dementia and ageing in the broad scope of human life, yet without romanticising illness, Hughes challenges professional and lay carers to open their minds and hearts to create what Buber called, “I-Thou” relationships with people diagnosed with dementia, so as to improve the lives of all concerned. He does this on philosophically, ethically, sophisticated grounds as a philosopher, on medically sophisticated grounds as an old age psychiatrist, and on aesthetically sophisticated grounds as a humane, spiritually alive human being. This book will benefit many audiences, including, perhaps most importantly, people with dementia. -- Steven R. Sabat, Ph.D., Professor of Psychology at Georgetown University and author of The Experience of Alzheimer's Disease: Life Through a Tangled VeilJulian Hughes uses a rich combination of science, law, history, ethics and philosophy to illustrate the complex nature of dementia and how we view it. Through a series of fascinating case studies illustrating real life complex scenarios, and with superb clarity of writing, he gently challenges our current approaches to people with dementia – above all emphasising the need to see through the narrow illness to the broader person within. An excellent and stimulating book. -- John T. O'Brien, DM, F Med Sci, Foundation Professor of Old Age Psychiatry, University of CambridgeHow We Think About Dementia is a book directed at professionals or people who are familiar with research and medical terminology... Hughes identifies ethical concerns through the use of case studies. Within these case studies, circumstances are shared that bring to light challenges that may be encountered by caregivers... Services, ethical considerations, methods and barriers to care are covered well in the book from a professional perspective... the majority of the book provides a sense of direction for professionals (medical doctors, psychologists, psychiatric nurses, occupational therapists, etcetera) in caring for a patient with dementia. -- Lynne Trevisan, Assistant Professor, College of Health, Human Services, and Sciences, Ashford University * metapsychology online reviews *Table of ContentsPreface. Introduction. Part I: Ageing. 1. Our Changing Expectations of Life: What Do We Really Want? 2. Research, Ageing and Dementia. Part II: Personhood. 3. Memory: Inner or Outer? 4. I am still the same person. 5. The Body in Dementia. Part III: Capacity and Incapacity. 6. 'Capacity': What is it and so what? 7. Capacity Legislation in Practice: Balancing Personal and Polis. 8. Incapacity and Mental Disorder. Part IV: Palliative and Supportive Care. 9. Beyond Hypercognitivism. 10. Understanding the Language of Distress. 11. Ethics, Patterns, Causes and Pathways: In Pursuit of Good Palliative Care. 12. Intentions and Best Interests: Dying and Killing. Part V: Arts. 13. The Art and Practice of Memory and Forgetting co-authored with Ashley McCormick, artist, curator and educator. 14. In Praise of 'Negative Capability': Keats and Killick. Conclusion: Care – Solicitude and Solidarity. References and Further Reading. Index.

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Book SynopsisDemonstrating that it is essential to be sensitive to the cultural backgrounds of people with dementia in order to provide truly person-centred care, this book shows that it is possible to create culturally appropriate outdoor spaces and experiences that resonate with people with dementia on a fundamental level and are a source of comfort and wellbeing. Contributors drawn from a variety of backgrounds describe the significance of nature in the lives of people with dementia from diverse cultures, faiths, traditions and geographical locations, providing helpful insights into how access to the natural world may be achieved within different care settings. There are contributions from the UK (Scottish island, urban North East England and Norfolk farming communities), Canada, Norway, Japan, Australia, Sudan and South Africa, as well as a chapter on the specific difficulty of providing access to nature for people with dementia in hospitals. The voices of people with dementia and their carers are prominent throughout, and the book also contains evocative poetry and photographs of people with dementia enjoying nature and the outdoors in different contexts. A rich source of information and ideas for all those interested in creating culturally appropriate outdoor spaces and experiences for people with dementia, including dementia care practitioners, especially those at managerial level, policy makers, commissioners and those involved in designing and commissioning buildings and services.Trade ReviewThis book is a substantial addition to our knowledge about the importance of the natural environment to people with dementia. It offers a variety of fascinating and thought-provoking perspectives on different cultural and individual perceptions of nature and the outside world. With increasing realisation that it is possible to live well with dementia, this collection of papers should be essential reading on a vital but unexplored aspect of person-centred care. -- Richard Humphries, Assistant Director (Policy), The King's Fund, LondonMarshall and Gilliard challenge us to think beyond the threshold of the care home and what are all too often poorly utilised token corners of green. They address the consequences of being contained, constrained and chemically controlled, but at its heart is a demand to think big, listen and support people with dementia to benefit from getting outside; is that too much to ask? -- Colm Cunningham, Visiting Professor at the University of Salford and Director, HammondCare Dementia Centre, AustraliaThis wonderful book made my heart sing - a powerful exploration of the rich diversity of our lived experience of the outside world, the connection between mother nature and human nature and our collective need for breathing spaces that we recognise, that can bring a deep sense of familiarity, that let us know we are valid, that our place in a world we recognise is intact. Read this book and be inspired to connect people with dementia to outdoor spaces that will resonate with them – this will change their lives and bring them moments of peace, clarity and well-being. -- Andy Bradley, Founding Director, Frameworks 4 ChangeThis new book is a welcome and refreshing addition to the growing list of titles exploring the experience of dementia and what person-centered care is really about... I would recommend it highly to anyone who works with people with dementia on a day-to-day basis. -- British Journal of Neuroscience NursingTable of ContentsIntroduction: Why Do We Need to Understand Cultural Differences? 1. A Family's Perspective on Nature and Dementia: Using the Outdoors to Help the Inner Person. Beth Britton. 2. Nature for People with Dementia in Japan: Some Examples of Horticultural Activities in Japanese Care Homes. Hiroko and Yutaka Inoue. 3. Getting Out and About in the British Countryside: Dementia Adventure. Neil Mapes. Poem: On Aran by Patrick Brenchley. 4. Some South African Understandings of Nature. Margaret-Anne Tibbs. 5. Contact with the Natural World within Hospital Care. Sarah Waller and Abigail Masterton. 6. How Norwegian People with Dementia Experience Nature. Sidsel Bjorneby. 7. How People with Dementia Experience Nature in Rural and Island Scottish Communities. Gillean McClean. Poem: Taking to the Hills by Jean Howitt. 8. Digging Up the Roots: Nature and Dementia for First Nation Elders. Wendy Hulko. 9. A Sense of Place: An Anthroposophic Approach. Judith Jones. 10. Nature in the Lives of an Urban Population with Dementia in North East England. Karen Franks and Kate Andrews. 11. Memories of an Urban Childhood with a Nearby Wood. James McKillop MBE. 12. Dementia and Landscapes: Cultural Attitudes Towards Nature. Joan Domicelj. Conclusion: How Do We Make Outside Spaces Familiar and Life Affirming? List of Contributors. References. Index.

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Book SynopsisDispelling the myths about how personalisation works for people with dementia living in care homes, this book demonstrates how to introduce Individual Service Funds (ISFs), what works and what doesn't, and how to deal with difficulties and setbacks.Individual Service Funds are one way that people living with dementia can have a personal budget. The authors explain how they went about introducing the principles of ISFs to people living with dementia in a large care home in Stockport, without using any additional funding. They describe the person-centred practices used and the involvement of the council, commissioners, staff and families. Through clear and detailed stories and examples, they demonstrate the dramatic approach to quality of life for people with dementia the approach can deliver. There is a strong emphasis on managerial and organisational issues, including getting staff 'on board', providing adequate support, budgeting, building effective partnerships and implementing change.Providing helpful insights and examples for good practice, this book is essential reading for all those involved in providing personalised care for people with dementia living in care homes, including care staff, care home managers, local authority commissioners, service providers and policy makers.Trade ReviewThis book is packed full of stories that illustrate the outcomes for people that can result from deploying an ISF model. It focuses on the outstanding work that has been done at Bruce Lodge, a large care home for people with dementia now arranged as 43 separate ISFs, with every resident able to control a number of hours of support that are set aside for them to do the things they want, when and where they want... Delivering better outcomes is at the heart of all of these stories, and it is at the heart of this book... I feel sure that this book will help many more people to bring about these positive changes within services and within people's lives. -- from the foreword by Dr. Sam Bennett, Programme Director, Think Local Act PersonalTable of ContentsForeword by Dr Sam Bennett. 1. Introduction and Getting Started. 2. Plans and Processes. 3. Starting with Staff One-Page Profiles. 4. Individual Time. 5. Four Plus One Questions. 6. What Next? 7. Night Staff, Volunteers and Faith Communities. 8. Person-Centred Reviews and Working Together for Change. 9. What Changed? 10. Overall Impact and Lessons Learned. Appendix I: Example Agenda. Appendix II: One-Page Profile Standards for Borough Care. Appendix III: One-Page Strategy. Appendix IV: Dashboard. Index.

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Book SynopsisWhat do national dementia strategies, constantly evolving policy and ongoing funding difficulties mean for people living well with dementia? Adopting a broad and inclusive approach, Shibley Rahman presents a thorough critical analysis of existing dementia policy, and tackles head-on current and controversial topics at the forefront of public and political debate, such as diagnosis in primary care, access to services for marginalised groups, stigma and discrimination, integrated care, personal health budgets, personalised medicine and the use of GPS tracking. Drawing on a wealth of diverse research, and including voices from all reaches of the globe, he identifies current policy challenges for living well with dementia, and highlights pockets of innovation and good practice to inform practical solutions for living better with dementia in the future. A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields.Trade ReviewI congratulate Shibley on writing a book that brings together so many of the challenges facing people who are living with dementia, their families, and professionals from many different disciplines, and takes them forward in a critically thoughtful way. This is a book that truly points the way to a future where living better is a reality for everyone affected by dementia. -- Beth Britton, Freelance Campaigner, Consultant, Writer and BloggerThis new book is an immaculately researched guide to living with dementia in England in the 21st century, covering the subject from policy to lived experience, but always with consideration and compassion. There is no better introduction to the challenges and complexities that dementia brings to individuals, families and society. -- Geoff Huggins, Director of Health and Social Care Integration, Scottish GovernmentThis book is informative and challenging in equal measure. It not only provides a thorough analysis of the issues currently facing dementia care, but it also offers a refreshing and thoughtful critique of the many challenges. Each chapter carefully combines research evidence, practice issues and policy influences, and contextualises these within the experience of those living with dementia, including their carers.Whilst this book is complex and thought-provoking - I believe it is a highly welcome counterbalance to current thinking on how to improve the lives of all those who are affected by dementia. It will force the reader to challenge their own thinking about dementia, not just as an illness but as a social construct, and as such I would highly recommend it. -- Rachel Thompson, Professional & Practice Development Lead for Admiral Nursing, Dementia UKShibley Rahman follows his first brilliant book on dementia with this fascinating publication, containing insight and empathy in equal measure. This book will help readers - health professionals and the public alike - to understand people in their lives with dementia, guiding you through everything you ever wanted to know about dementia and could possibly want to ask. Shibley guides you through the challenges of caring for people and living with dementia. He doesn't shy away from the topics that are uncomfortable, but he also gives space to examples of good living and practice that leave the reader with hope and positivity. -- Jenni Middleton, editor, Nursing TimesI commend Shibley for this valuable addition to the current thinking and discussion on what it is to live with dementia. This text builds quite significantly on his original work and continues to challenge professionals on issues of importance for families affected by dementia. I find his frank and open style refreshing, unreserved in his willingness to question both the semantics used in practice and assumptions that are too easily made on what it might be like to live with dementia. -- Karen Harrison Dening, Director of Admiral Nursing, Dementia UKThis is a well-written, extensively researched, easy to read and important book for anyone interested or working with dementia. Rating: Highly recommended. -- Fenella Lemonsky, mental health service user researcher, Mental Health TodayI would highly recommend this book to anyone who is interested or has contact with people living with dementia.A particular strength of this book is the connection of policy to practice and practical implications. There are a number of examples where good practice can help to inform practical solutions for the future, making this a book that has value and use on many levels. A further asset is the conclusion chapter. This excellent summary draws everything together from the previous chapters under key themes and really helps to pull this book together.I would highly recommend this book to anyone who is interested or has contact with people living with dementia; health and social care professionals, public health workers, service commissioners and researchers and students in this field. This is also a book that would be useful to members of the general public as well. -- Lynne Partington, head of research, Evaluation and Technology, The End of Life Partnership, Cheshire * Nursing Times *A unique and cohesive account of where dementia care practice and policy needs to head, and why, and how this can be achieved, this is crucial reading for dementia care professionals, service commissioners, public health officials and policy makers, as well as academics and students in these fields. -- StudentNurse.netThis is a well-written, extensively researched, easy to read and important book for anyone interested or working with dementia. -- Fenella Lemonsky * Mental Healthy Today *Table of ContentsForewords by Kate Swaffer, Chris Roberts and Beth Britton. Acknowledgements. Preface. Introduction. 1. Stigma, Citizenship and Living Better with Dementia. 2. Culture and Diversity in Living Well with Dementia. 3. Global Strategies for Living Well with Dementia. 4. What Might Living Better with Young-Onset Dementia Mean? 5. Delirium and Living Well with Dementia. 6. Care and Support Networks for Living Well with Dementia. 7. Eating and Living Well with Dementia. 8. Incontinence and Living Well with Dementia. 9. How is 'Whole Person Care' Relevant to a Person Living Well with Dementia. 10. Inequalities and Living Better with Dementia: A Focus on Housing. 11. Does GPS Tracking Have a Role to Play in Living Well with Dementia? 12. Rights-Based Approaches, Personal Budgets and Living Well with Dementia. 13. Art, Music and Creativity for Living Well with Dementia. 14. Explaining the Triggering of Memories in People Living Well with Dementia. 15. Innovation, Antipsychotics and Living Well with Dementia. 16. Promoting Leadership for Living Well with Dementia. 17. Conclusion. References. Index.

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Book SynopsisHow can carers and relatives support a person's identity, relationships and emotional wellbeing through changes that occur in the later stages of dementia?Drawing on over ten years' experience of working with people with dementia, Karrie Marshall provides a toolkit of tried and tested creative activities to support communication and relationships. Activities are vast and varied, with outdoor activities such as bird-watching and star-gazing aimed at supporting physical health, artistic activities such as collage creation to support identity, and musical activities such as sounds and voice warm-ups to support self-expression.Marshall also sensitively covers end of life care for people with dementia, explaining how emotional support can be provided through gentle breathing activities and even puppetry, as well as covering the legal importance of power of attorney.Trade ReviewThis book offers a different perspective in caring for those with dementia. Through a creative approach the author shows how it is possible to make connections and build relationships, with and without words. The process is described step-by-step, making it a valuable resource for anyone involved or interested in this field of work. -- Julie Simmons, Adult Learning Strategy Officer, High Life Highland, InvernessA Creative Toolkit for Communication in Dementia Care is a valuable resource for caregivers. You'll learn important tips for connecting and better communication with someone who has dementia. The book is inspirational, practical, and educational. It demonstrates how creative communications in caregiving can support the well-being of people with dementia. -- Berna Huebner, Founder and Director, Hilgos FoundationAs a person with dementia I know many of my peers will lose the ability to verbally communicate, but that does not mean we lose our intelligence. It is pleasing to know that the importance of non-verbal language is highlighted in this book. Ignorance, social isolation and boredom are issues we face. But by following the great advice in this book you will have the necessary toolkit to give people every opportunity to communicate and take part in worthwhile physical and mental activities that will bring hours of enjoyment for the person with dementia and, just as importantly, you the carer. -- Tommy Dunne, person living with dementiaEach person's experience of dementia is unique. This book, based on many years of first-hand experience, will help us all to find our own unique way to use creative approaches in caring. It will be an invaluable resource to support and inform our work. -- Keith Walker, Executive Director, Befrienders Highland LtdThis book is outstanding-worth buying, worth borrowing from the library, worth reading carefully. -- Bob Kahn * Bob’s Books *Table of ContentsIntroduction. 1. Supporting Identity. 2. Supporting Memory. 3. Supporting Relationships. 4. Supporting Physical Health. 5. Supporting Self Expression. 6. Support for when a person seems confused. 7. Support for mental and emotional wellbeing. 8. Supporting independence. 9. Support for end of life connections. 10. Session planning. Planning activities, Reflecting on practice, Risk assessments. Appendix 1: Advanced Care Plan. Appendix 2: Activities Plan. Appendix 3: Risk Assessment.

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Book SynopsisIn this study the social construction of dementia is examined closely for the first time. Nancy Harding and Colin Palfrey show how Western society sees dementia as a disease, rather than a natural part of the ageing process. They take issue with the constructed view of the body as a machine, whose parts 'break down' and need replacement. Furthermore, the authors argue, the various explanations of the causes of dementia are nothing but speculation dressed up as theories, which serve only to confuse the carers.Based on an intensive three-year-long evaluation of a community care service for older people with dementia, `The Social Construction of Dementia' looks at the experience of users and providers alike, and provides a refreshing new viewpoint on the `disease' of dementia.Trade ReviewThe book deserves to be widely read by sociologists, medical practioners, social workers, nurses, and others: it provides alternative understandings of dementia upon which new forms of practice might be developed. Most important, however is the challenge with which the book confronts its readers: to deconstruct their own fears of ageing, dying and death, and reflect upon embeddedness of these fears in the contemporary culture of late capitalism. -- International Social WorkThis book constitutes and important challenge to the dominance of the bio-medical paradigm in dementia care today... written by theorists for theorists [i]t is certainly not an easy read, but for dementia care specialists sufficiently interested in the social-psychological debate to wade through some of the academic turgidity, it is worth the effort. It will, in addition, be a worthwhile reference text for students, researchers, and others outside the dementia field, who are interested in general issues of clinical reasoning and diagnosis. -- British Journal of Occupational TherapyAn alternative framework for understanding dementia is particularly welcome; the medical model has been unchallenged for too long... The arguments are persuasive, and supported by a wealth of literature. It is a book of the highest academic quality and integrity... [I] would unreservedly recommend it. -- Mental Health CareHarding and Palfrey's enlightening book has at its core a desire to provide a "new conceptual lens" through which interested professionals can understand dementia... using a combination of well chosen social-constructionist approaches, Harding and Palfrey subject to scrutiny key components of the way dementia is understood by the medical profession and by society... Drawing on rich examples from the literature, the authors provide compelling evidence for their claim that a root and branch reappraisal of dementia concepts is required. Comment and discussion sessions accompany each set of arguments, encouraging reflection and comprehension. The authors succeed in offering alternative frameworks for contextualising the place of people with dementia in society. -- Community Care... a useful book for those involved in academic work to have as a reference base. -- Registered HomesIn a systematic, thought-provoking and contentious way, they examine the "knowledge" and "truths" of: the medical model, the scientific construction of dementia and the sociology of the dementing body. All are scrutinised in terms of irrefutable evidence, most are found wanting. [This book] is a welcome and long overdue contribution to the "knowledges" of dementia. -- The Journal of Dementia CareTable of Contents1. Evaluating the Care of People with Dementia: Beyond the Biomedical Paradigm. 2. Methodological Framework: Social Constructionism. 3. What is Dementia? The Medical Model. 4. Interpreting Dementia: Psychological and Linguistic Models. 5. The Scientific Construction of the `Disease' of Dementia. 6. Medical Diagnosis and the Construction of Dementia. 7. Society and the Construction of Dementia: The Sociology of the Dementing Body. 8. The Social Construction of Dementia. Appendix. References. Further Reading. Index.

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Book SynopsisWritten for all those concerned with providing services for people with dementia and their families, this book explores the idea that communication is not only possible but also vital to the understanding and the development of services. Based on a series of interviews with sufferers and professionals working in the field, on an extensive literature search, and on a consultative document which was sent out to over a thousand people, Hearing the Voice of People with Dementia discusses ten key points:· the possibility of communication;· the disempowering experience of dementia;· the different ways in which people are affected;· the need to respect peoples' sense of sense of time and place;· the importance of knowing a person's `life story';· the effect of environmental and other factors on the process of communication;· the non-verbal ways in which people with dementia communicate;· the means of communicating through `challenging behaviour';· possibilities of group work;· the value or harm of sharing a diagnosis.Practical advice and suggestions based on the research into these key areas are offered to help professionals gain a greater understanding of dementia and develop skills which aid communication.Trade ReviewThis comprehensive, clear and compassionate book should be on the shelves of all counsellors and tutors... His welcome stress on the unique nature of each person permeates the book. -- CounsellingInformative and revealing a challenging and at times very moving book. -- The Health Service JournalThis is a fascinating book written as a result of some in-depth qualitative research and a process of consultation with in the United Kingdom. The literature has been reviewed extensively and the author of the book applies his interpretation sensitively and analytically. His wide use of the literature from both the sciences and the humanities and the analysis of responses from a small group of those involved in caring for persons with dementia. Written largely from a social perspective and of much use to social workers employed in the field of aged care, the book raises a number of interesting issues and poses an even larger number of intriguing questions that have yet to be pursued more fully. Suggestions are made throughout the book about how human service professionals an enter into the world of a person with dementia. Quoting from a wide range of sources, both primarily and from the literature, this discussion is sensitive and thoughtful and raises a number of issues particularly for health professionals. This book is written primarily for a general readership, but will be of much use to social workers, nurses, medical practitioners, and those with dementia and their families. It is a useful book for the reference library in all healthcare institutions and social services offices. -- International PsydrogeriatricsThis book focuses on the service response to older people with care needs and is a useful and accessible text that practitioners and trainers may wish to read themselves and recommend. The book is a mine of useful comments and observation and could stand as a model of how to translate research findings (the origin of his work) into a relevant practitioner text. I would not be surprised moreover if some families with relatives with dementia did not find this a most moving and helpful text. Goldsmith's work builds on practitioners' experiences to inform those working now or in the future about the possibilities for major advances in listening to the voice of people who have been stereotyped as beyond dialogue and discussion. -- British Journal of Social WorkThe reader is given a wide range of perspectives on how to communicate with people with dementia... this is an easy read and raises the reader's awareness about what it must be like to experience dementia. I feel this book would be very useful for people who want to know more about dementia and communication. -- Nursing TimesTable of ContentsPreface (Mary Marshall).Introduction. 1.The echoes return slow. 2.Hearing views about services. 3.Is there anyone in there? 4.Different people are affected in different ways. 5.Communication is possible. 6.Disempowerment. 7.A sense of time and pace. 8.The value of life story. 9.The effect of the environment. 10.Nonverbal communication. 11.Challenging behaviour. 12.Group work. 13.To tell or not to tell - is that the question? 14.A reflective conclusion.

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Book SynopsisDespite the growth of interest in dementia and dementia care over the past two decades, services and interventions for younger people with dementia and their carers remain, on the whole, fragmented and poorly developed. The focus of social, psychological and biomedical research has been almost exclusively on older people and their carers.The first book to address the subject in its own right, Younger People with Dementia addresses good practice and stimulates an agenda for change. The contributors explore the implications for younger people with dementia and their families at personal, planning and service-development levels. Arguing that information from the wide range of existing practice and clinical knowledge can be shared and built upon, the contributors call for a collaborative, interprofessional and multi-disciplinary approach to all stages of the provision of services.Trade ReviewOne of the joys of book reviewing is that occasionally one is offered a book that gets everything right. Younger People with Dementia is such a book. The subject matter is of increasing concern and this treatment is timely. The book is well produced by a specialist publisher. Its contributors contribute readable English, with a notable absence of jargon. Both editors have written widely on the subject themselves and have chosen and ordered the contributors with great care. An impressive bibliography is also included. -- Community PractitionerThis volume of writing is extremely timely and benefits from the substantial dementia care practice, research and service evaluation experience of the editors, Sylvia Cox and John Keady. Recommended reading for service planners everywhere. -- Signpost ReviewsThis is the first book to address the subject in its own right. The contributors explore the implications for younger people and their families at personal, planning and service development levels. The contents are very necessary reading for all those concerned in dementia care and raise important interprofessional issues…The book is very well referenced, giving many suggestions for further reading on particular subjects. The style is clear and readable throughout. In my own opinion the book is essential reading for all concerned with providing care for younger people with dementia. -- Journal of Interprofessional CareThis book is not one to be just read. Because of its academic nature it is to be studied, discussed with colleagues and used as a reference tool. It embraces medical, sociological and psychological approaches in addressing and understanding the particular needs of persons with younger onset dementia. "Younger" is defined as being anyone under the age of 65, and particularly those in their third, fourth, fifth and sixth decade. In addition to scholarly essays, there are also many accounts from people with dementia as well as their caregivers…What we especially like about this book is the collaborative effort of various disciplines from several countries. As it is not limited to national boundaries, it gives a window into writings and practices from around the world…The result is an impressive and informative book from which all of us working in the Alzeimer's community can benefit. Sylvia Cox and John Keady are to be commended for taking on the task of editing this excellent book…This is a timely book that argues that "information from the wide range of existing practice and clinical knowledge can be shared and built upon; the contributors call for a collaborative, interprofessional and multidisciplinary approach to all stages of the provision of services." This they have accomplished with their contributions to this book. -- Early Alzheimer'sTable of ContentsForeword by Professor Mary Marshall, Dementia Services Development Centre. Introduction, Sylvia Cox and John Keady. PART ONE: SETTING THE SCENE. 1. Assessment and Service Responses for Younger People with Dementia, Jane McLennan, Royal Victoria Hospital Edinburgh and the University of Stirling. 2. Epidemiological Issues and Younger People with Dementia, Kirstie Woodburn, Royal Edinburgh Hospital. 3. Needs Assessment: Individual and Strategic Care Planning, Gregor McWalter and Jim Chalmers, Information and Statistics Division, NHS Scotland. 4. Opportunities and Threats: Multi-Agency Perspectives and Person-Centred Planning, Sylvia Cox. PART TWO: SPECIFIC CONSIDERATIONS. 5. HIV and Related Brain Impairment, Steve Jamieson, Bethlem and Maudsley NHS Trust, London. 6. Huntington's Disease, Roseanne Cetnarskyj and Mary Porteous, West General Hospital, Edinburgh. 7. Learning Disability and Dementia, Sally-Ann Cooper, St Mary's Hospital Rockingham Forest NHS Trust. 8. Alcohol-Related Brain Impairment: An Approach to the Problem in Victoria, Australia, Simon Crowe, La Trobe University, Melbourne. PART THREE: DEVELOPING AN INDIVIDUAL UNDERSTANDING. 9. Dark Head Amongst the Grey: Experiencing the Worlds of Younger People with Dementia, John Killick, Westminster Health Care and the University of Stirling. 10. Negotiating Care-Giving and Employment, Dianne Seddon, University of Wales, Bangor. 11. Young Carers: Individual Circumstances and Practice Consideration in Dementia Caregiving, Jane Gilliard, Dementia Care, Bristol. 12. Family Caregiving and Younger People with Dementia: Dynamics, Experiences and Service Expectations, John Keady, University of Wales at Bangor and Mike Nolan, University of Sheffield. 13.Designing for Younger People with Dementia: The Needs of Younger People with Dementia, Gretta Peachment, Homes of Peace, Western Australia. PART FOUR: PRACTICE DEVELOPMENTS. 14. Younger People with Dementia: Psychosocial Interventions for Individuals and their Families, Bob Woods, University of Wales, Bangor. 15. Support Groups for People in the Early Stages of Alzheimer's Disease, Robyn Yale, San Francisco. 16. Training and Younger People with Dementia: A Shared Learning Perspective, Alan Chapman, Dementia Services Development Centre. 17. Changing the Mindset: Developing an Agenda for Change, Sylvia Cox and John Keady. Index.

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Book SynopsisUsing the latest ideas on good practice from the Bradford Dementia Group, Anthea Innes provides a complete and concise guide to running a training programme for dementia care workers. She begins with a brief outline of the key factors to consider prior to the design, delivery and implementation of a programme. In particular the book stresses the importance of getting to know the care setting in which the trainees will practise, to ensure that the training has direct relevance to participants.The author then discusses the theoretical and practical issues involved in designing the training programme, including advice on how best to tailor it to the audience, and highlighting the practical points a trainer needs to consider when delivering a programme. She considers the problems that arise when attempting to convert theory into practice, as well as factors that can help training be relevant and acted upon. The book concludes with a discussion about the best means of evaluating a training programme and its impact on practice.Trade ReviewIts 16 chapters are all of a length that should not intimidate the reader and while many are heavily referenced, they still retain an accessible style. -- Community CareThis book builds upon the author's experience of delivering training courses to carers in Nursing and residential homes. I would recommend it as an aide memoire for those preparing or engaged in practice development. In as much, its utility is not restricted to one clinical setting, although dementia care workers will find the specific examples helpful. -- International Journal of Geriatric PsychologyAnthea Innes has used her own experience of working with Anchor Trust positively. She has blended theoretical aspects with a practical approach. The approach has been designed in a user-friendly way. Each chapter is well presented with case illustrations. Ms Innes provides a concise guide to running a training programme. This includes key factors such as design, delivery and evaluation programme... The importance of the person-centred approach is also emphasized. Running courses in nursing/care homes needs careful planning and the evaluation process is important.The writer has emphasized this throughout the book... Residential workers working across the client groups will benefit by the approach advocated by Innes. -- BulletinUsing the latest ideas on good practice from the Bradford Dementia Group, Anthea Innes provides a complete and concise guide to running a training programme for dementia care workers. The format is very clear and easy to follow. It explores the theories and practical issues that are needed when planning a training programme for dementia care workers. The information provided is relevant and up to date looking at care plans, assessments, staff action plans and obstacles that may need to be looked at in different care settings. Chapter 6 looks at evaluation and is particularly very helpful. Case studies are used as examples of situations that staff may come across in a work situation. Anthea Innes is to be congratulated on producing this excellent book which will I am sure be an important tool in many a trainer's toolbox. It will be a very useful source of reference to care staff and others that are working on N.V.Q.'s and other courses. -- Professional Social Work... provides a thorough look at all the stages of the training process, and is a good checklist of the complex variety of tasks and skills involved. -- Ageing and SocietyTable of ContentsIntroduction. 1. Getting started. 2. Getting to know the setting. 3. Designing the training programme. 4. Delivering the training programme. 5. Transferring training into practice. 6. Evaluating the training programme. References. Index.

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Book SynopsisA practical resource written specifically for social care professionals working with people with dementia and their families, this book gives guidance on person-centred good practice throughout the care process from the initial diagnosis, through day care, respite care, long-term care, and death and attachment.The guide will enable social workers to manage their cases effectively and empathetically, making appropriate, culturally sensitive decisions and acting as advocates for this growing client group. It contains essential background material about the financial and legal context, including an explanation of the relevance of the Mental Health Act 1983. The author locates weak points in current provision and makes practical suggestions for future developments. Social Work and Dementia will enable social services to meet the needs of older clients experiencing dementia, and to understand, apply and contribute to new developments in their care.Trade ReviewThis short book is directed at social workers and seeks to improve their capacity for reflection about the best approaches to practice in dementia care... A practical resource written specifically for social care professionals working with people with dementia. -- Age ActionThroughout the book she appeals as a fellow practitioner rather than researcher... this is an engaging approach. -- Ageing and SocietyThis book gives guidance on person-centred good practice in the process from the point of initial diagnosis. It is a practical resource written specifically for social care professionals working with people with dementia. -- Age Action BulletinTibbs' case for developing dementia specific services and her outline for a key role for social work practitioners is a welcome addition to the field, particulary in this time of great organisational change facing health and social care services. The book presents clear and cogent arguements for good professional practice, illustrated with case examples. Contemparary social work's adoption of the care management approach does not in Tibbs' opinion meet the needs of people with dementia. The task-specific and short term nature of care management fails to provide a continuing service for people with dementia and their families. Instead Tibbs' argues for a disability model of care that considers people with dementia as a specific group-including both younger and older people with dementia.This requires specialist training, the development of a "one-stop shop" service, a multidiciplinary approach, recognition for the need of on-going support and person-focused assesment practices. And it is imperative, in Tibbs' veiw, that social work plays a central role in these services. This book presents a helpful guide to practitioners in developing such services and as such is to be recommended. -- Mental Health TodayTable of ContentsForeword by Murna Downs. 1. Introduction. 2. The Journey through Care. 3. The Historical and Legal Context. 4. Good Practice in Social Work with Dementia. 5. The Emotional and Social World of the Person with Dementia. 6. Cultural Difference. 7. Directions for the Future. Appendix I. A Short Guide for the Management of Finances for a Person with Dementia. Appendix II. Some Useful Contacts for Social Workers. References. Index.

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