Disability: social aspects Books

Book SynopsisThis book examines how an understanding of social-cultural and resource dynamics can inform the development of context-sensitive approaches to the early education and care of young deaf children, and the support of their caregivers. The authors investigate what it takes to facilitate deaf children''s progress through early childhood, focusing on language, communication, learning, and well-being in the sub-Saharan African context of Ghana. They provide a review and critical discussion of the existing knowledge base surrounding early childhood deaf education and examine traditional and contemporary perspectives on childhood deafness and caregiving that are meaningful to the African early childhood deaf education landscape. The book draws on the knowledge and understanding developed through a collaborative UK-Ghana research project that examined the Early Childhood Care and Education (ECCE) of young deaf children in Ghana. Examples from this project bring to life the issues surrounding ca

Read more less

Book SynopsisTrade ReviewNews nerds are the data journalists, news app developers, and web designers transforming how news stories are discovered and told. Allie Kosterich skillfully uses interviews, employment histories, trade press coverage, and conference proceedings to describe how these newsroom innovators have augmented reporting and changed accountability reporting for the better. If you've ever wondered who's behind the graphs, stats, and apps at news sites, this is the book that tells their tale. * James T. Hamilton, Hearst Professor of Communication, Stanford University *News Nerds is an ambitious and exciting book that reveals just how much the profile, roles, and skills of the professional journalist has fundamentally changed. Through an innovative mix of network career analysis, interviews, and analysis of the trade press, Allie Kosterich shows how news organizations have increasingly fashioned those wielding data, analytics, and technological skills into journalists creating new forms of journalism. Kosterich shows us how this has augmented the institution of journalism in the U.S., with sweeping implications for how the press navigates changing economic and technological contexts and its increasingly contested relationship with the public. * Daniel Kreiss, Edgar Thomas Cato Distinguished Professor, UNC Hussman School of Journalism and Media *News Nerds is an engagingly written and methodologically innovative analysis of an important ongoing transformation affecting the institution of journalism. Kosterich brings an incredibly impressive range of data sources and analytical approaches to bear to demonstrate how journalism has been restructuring itself in response to technological and economic change. This is institution-level scholarship of the highest order. * Philip M. Napoli, James R. Shepley Professor of Public Policy and Director of the DeWitt Wallace Center for Media & Democracy, Duke University *The rise of the news nerd is not so much a story of the revenge of the nerds saving journalism through data but is instead a reminder that institutions and professions adapt to change, and change doesn't just happen when new technologies emerge. Kosterich develops the concept of "institutional augmentation," moving beyond tired binaries of change outcomes in organizations, a theoretical contribution relevant to all industries that find themselves in the throes of technological upheaval. * Nikki Usher, author of News for the Rich, White, and Blue: How Place and Power Distort American Journalism *This book assesses the institutionalization of new types of editorial positions in US news organizations... The book is an excellent companion to Jason Whittaker's Tech Giants, Artificial Intelligence, and the Future of Journalism. Recommended for higher education journalism, mass communication, and visual arts programs. * Choice *Table of ContentsIntroduction: News Nerds Chapter 1: Institutional Change and the Profession of Journalism Chapter 2: Destabilization of Established Journalism Practices Chapter 3: Experimentation and Evaluation in the Profession of Journalism Chapter 4: Legitimization of News Nerds Chapter 5: Diffusion of News Nerds Chapter 6: Institutional Augmentation and the Future of News Nerds Appendix: Data and Methods Notes References Index

Read more less

Book SynopsisIn The Invented State, Emily Thorson argues that a problematic and understudied aspect of political misinformation reflects widespread public misperception about what the government does. Because much of public policy is invisible to the public, there is fertile ground for false beliefs to flourish, leading to the creation of what Thorson terms the invented state: systematic misperceptions about public policy. However, people get the facts wrong not because they are lazy, stupid, or blinded by partisan loyalty. Rather, misperceptions are created when three conditions are met: when citizens have incomplete information about an issue, when their own biases color their understanding of it, and when they feel that the issue is important. In other words, the invented state is created not just by exposure to explicit misinformation, but also by individuals'' cognitive errors. Correcting these policy misperceptions is highly effective at reducing false beliefs. In addition, providing people w

Read more less

Book SynopsisIn Building Theory in Political Communication, Gadi Wolfsfeld, Tamir Sheafer, and Scott Althaus present the first generalizable conceptual framework for political communication that is also falsifiable, explaining how media performance contributes to successful political performance across nations, regime types, and information systems. The book identifies three tensions in the current literature that have thus far prevented a general theory of political communication. The first is a vague understanding of what it means for media to exercise independence from politics. The second is a focus on media in wealthy, Western, and democratic countries. The third is a tendency to build interpretive frameworks that pose as theories, but that cannot be tested. To address these three tensions, this book adapts, refines, and extends the Politics-Media-Politics (PMP) principle, which states that variations in political ecosystems have a major impact on media systems, values, practices, and resourceTrade ReviewMany good ideas take a decade to mature. That is also the case in this book. Eminent colleagues Wolfsfeld, Sheafer, and Althaus have written a compelling and inspiring 'big picture' book. Their Politics-Media-Politics approach provides a broad framework and a refreshing lens through which to see political communication theorizing. The endeavour is ambitious and likely to inform a new decade of political communication scholarship. * Claes de Vreese, Professor of Political Communication, University of Amsterdam *In an era of increasingly complex media and political ecosystems, Wolfsfeld, Sheafer, and Althaus' theorizing offers a much-needed prism through which to view sociopolitical developments. Integrating disparate findings across fields and over time and space, their Politics-Media-Politics principle and conceptual map speak incisively to both democratic theory and practice. This big-thinking book is a must-read for anyone interested in understanding how our world operates today. * Patricia Moy, Christy Cressey Professor of Communication, University of Washington *I have often used the PMP principle in my work and teaching as it helps to understand and clarify the complex interactions between politicians and journalists. This ambitious book extends, updates, and deepens the original PMP framework so it can be used in more (non-Western) contexts and in today's political information environment. The authors sketch a sophisticated roadmap, supported by examples from across the globe, that will allow political communication studies to speak to each other and stay on track. * Peter Van Aelst, Professor in Political Communication, University of Antwerp, Belgium *This book provides the most ambitious attempt so far to integrate almost the entire field of political communication into a single framework. A truly erudite, well-written, and thought-provoking effort. * Stefaan Walgrave, Professor of Political Science, University of Antwerp *Table of ContentsChapter 1: The Politics-Media-Politics Approach Chapter 2: PMP and Election Campaigns Chapter 3: PMP, Violent Conflicts, and Peace Processes Chapter 4: PMP and Historical Changes Chapter 5: PMP and Comparative Political Communication Chapter 6: Using the PMP Approach to Assess Media: Performance in both Democratic and Autocratic Regimes Conclusion References Index

Read more less

Book SynopsisDoes the Internet fundamentally change the flow of politically relevant information, even in authoritarian regimes? If so, does it alter the attitudes and behavior of citizens? While there is a fair amount of research exploring how social media has empowered social actors to challenge authoritarian regimes, there is much less addressing whether and how the state can actively shape the flow of information to its advantage. In China, for instance, citizens often resort to rightful resistance to lodge complaints and defend rights. By using the rhetoric of the central government, powerless citizens may exploit the slim political opportunity structure and negotiate with the state for better governance. But this tactic also reinforces the legitimacy of authoritarian states; citizens engage rightful resistance precisely because they trust the state, at least the central government, to some degree. Drawing on original survey data and rich qualitative sources, Directed Digital Dissidence in AutTable of ContentsChapter 1 - The China Case: Strong State, Popular Contention, and the Internet Chapter 2 -The Chinese Internet: Citizen Awareness of Government Control Chapter 3 - What Does Directed Digital Dissidence Look Like? Critical Information Flows, Trust, and Support for Protest Chapter 4 - Social Media: The Battleground of the Information War Chapter 5 - Jumping Over the Great Firewall: A Threat to the Chinese Strategy Chapter 6 - The Digital Dissident Citizen: Who are the Wall Jumpers? Chapter 7 - Managing the Information War: Voices Heard from Beyond the Wall are Lost Chapter 8 - Digital Directed Dissidence in Action: Applications and its Limits Chapter 9 - Will Digital Directed Dissidence Keep Working? Appendices Notes References Index

Read more less

Book SynopsisA comprehensive introduction to the concept of the intact mind and how it affects disability policy and practice.The concept of the intact mind, first described in a 2006 memoir, refers to the idea that inside every autistic child is an intelligent, typical child waiting to be liberated by the right diet, the right treatment intervention, the right combination of supports and accommodations. The sentiment itself is not new. Emerging largely out of psychoanalytic theory dating back to the end of the 19th century, the intact mind was later amplified in memoirs, where parents wrote of their tireless efforts to free their children from the grip of autism. Though the idea gives hope to parents devastated by a child''s diagnosis, Amy Lutz argues that it has also contributed to widespread dismantling of services badly needed by severely disabled children and their families.In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current poliTrade ReviewThis is a fascinating book: It is forthright, it is honest, it is comprehensive, it is evidence-based. Importantly, this work tees up essential discussion of 'inclusion,' and how often it too relies on false hope, and distracts from our urgent need as a society to face the demands of guardianships and life-time supports we should be building for our autism community. * Bryna Siegel, PhD, Founder & Executive Director, Autism Center of Northern California; Professor, Child & Adolescent Psychiatry, University of California (Ret.) *Reading this brave, well-researched book I felt myself making a mental list of all the people to whom I'd recommend it. Lutz shows us the perilous seduction of the 'intact mind,' moving us through historic landmarks to the contested landscape in which we find ourselves today. With clarity of style and argument she shows how rhetoric transforms into policy, harming the very people those policies are meant to help. Her approach is one of deep empathy and understanding for those with severe autism, and their caregivers. * Deborah R. Barnbaum, PhD, author of The Ethics of Autism: Among Them but Not of Them and Professor of Philosophy, Kent State University *Amy Lutz bravely tackles the myth of the intact mind that has become so prevalent in modern autism dialogue. Lutz acknowledges that the intact mind mantra provides families critical 'high octane hope,' but also poignantly emphasizes the real-life consequences of blind adherence to dogma in terms of vastly reduced critical life opportunities for some of the most vulnerable individuals along the autism spectrum. A must-read for anyone truly committed to seeing all the faces of autism and optimizing care and long-term outcomes for everyone. * Lee Elizabeth Wachtel, MD, Professor of Psychiatry, Johns Hopkins School of Medicine *Table of ContentsPART I: THE HISTORY OF THE INTACT MIND Introduction Chapter 1: Valuing the Disabled Child: The Emergence of Disability Parent Memoirs Chapter 2: Whose Fault Is It? Psychoanalysis and the First Autism Parent Memoirs Chapter 3: Is There a "Key"? Biomedical Discourse and Second-Generation Autism Memoirs PART II: THE CASE STUDIES Chapter 4: The Battle Against Sheltered Workshops Chapter 5: The Erosion of Guardianship Chapter 6: The Resurgence of Facilitated Communication Conclusion

Read more less

Book SynopsisElizabeth Barnes argues compellingly that disability is primarily a social phenomenona way of being a minority, a way of facing social oppression, but not a way of being inherently or intrinsically worse off. This is how disability is understood in the Disability Rights and Disability Pride movements; but there is a massive disconnect with the way disability is typically viewed within analytic philosophy. The idea that disability is not inherently bad or sub-optimal is one that many philosophers treat with open skepticism, and sometimes even with scorn. The goal of this book is to articulate and defend a version of the view of disability that is common in the Disability Rights movement. Elizabeth Barnes argues that to be physically disabled is not to have a defective body, but simply to have a minority body.Trade ReviewI am happy to unequivocally say that this text makes a fascinating and groundbreaking contribution to feminist and disability philosophy. I would enthusiastically recommend this text to anyone interested in disability and philosophy, and especially to those new to philosophy. * Tessa-May Zirnsak, Metapsychology Online Reviews *Elizabeth Barnes' new book offers a much-needed philosophical discussion of disability capitalizing on relevant research in bioethics, feminist philosophy and disability studies. * Elena Fell and Natalia Lukianova, The Philosophical Quarterly *Elizabeth Barnes has written an interesting and important book about disability . . . Barnes has brought a new level of precision to a popular slogan and has then set about defending it with all the familiar tools of contemporary analytic philosophy . . . it remains to be seen where the debate goes next, but wherever it goes, future discussion will need to engage with the work of Elizabeth Barnes. * Jennifer Hawkins, Ethics *It is a thoughtful, thorough, and rigorous argument that nevertheless has an accessible style. It is not a book for a generalist audience, but could work quite readily in both undergraduate and graduate courses. Her attempt to moderate a path between the physical body and social constructivism, and to combat a generalized skepticism in the field of philosophy about the possibility that disability might be a good thing for some people, or at least a neutral thing, that lives of disabled persons are generally as rich, valuable, and worth living as those of nondisabled persons, and that such skepticism is "rooted in--often knee-jerk unreflective--stereotypes about what disabled lives are like" is an unapologetic and strong case for disability positivity. It is a valuable contribution to disability philosophy in particular, and philosophy in general. * Nancy J. Hirschmann, Hypatia Reviews *The Minority Body is a fascinating and compelling study of the concept of disability. Barnes redefines disability as a social phenomenon in a fresh way. Her revolutionary ideas compel us to look at the minority body without making value-judgments. * The Washington Book Review *In her engaging, powerfully argued, and good-humored book, Barnes seeks to illuminate the nature of physical disability, challenge the view that it has a negative impact on well-being, and defend a mere-difference view of disability . . . it is a wildly creative, rigorous, and ground-breaking work that represents a significant contribution to the on-going inquiry into the nature and value of disability. It would not be an exaggeration to claim that it is the most important single-authored book in philosophy of disability to come out of the analytic tradition in a generation. * Stephen M. Campbell & Joseph A. Stramondo, Notre Dame Philosophical Review *Table of ContentsPreface Introduction 1: Constructing Disability 2: Bad-difference/Mere-difference 3: The Value-Neutral Model 4: Taking Their Word for It 5: Causing Disability 6: Disability Pride

Read more less

Book SynopsisThis book offers a much-needed investigation of moral and political issues concerning disability, and explores how the experiences of people with disabilities can lead to reconsideration of prominent positions on normative issues. Thirteen new essays examine such topics as the concept of disability, the conditions of justice, the nature of autonomy, healthcare distribution, and reproductive choices. The contributors are Norman Daniels, Ellen Daniels Zide, Leslie P. Francis, Christie Hartley, Richard Hull, Guy Kahane, F. M. Kamm, Rosalind McDougall, Jeff McMahan, Douglas MacLean, Susannah Rose, Anita Silvers, Julian Savulescu, Lorella Terzi, David Wasserman, and Jonathan Wolff.Trade ReviewIn this thoughtfully assembled volume on philosophical issues in disability and disadvantage, editors Kimberley Brownlee and Adam Cureton have brought together an exciting mix of established and up and coming philosophers to address issues ranging from how to understand disability to whether and when to create children with disabilities * Rebecca L. Walker, Mind *Disability studies is an exciting and expanding field within philosophy and bioethics, and anyone interested in this rich area of research will find rewarding reading in this volume * Jeffrey Blustein, Journal of Moral Philosophy *Table of ContentsIntroduction ; 1. The welfarist account of disability ; 2. Disability, adaptation and inclusion ; 3. Vagaries of the natural lottery? Human diversity, disability and justice: A capability perspective ; 4. Disability among equals ; 5. An inclusive contractualism: Obligations to the mentally disabled* ; 6. No talent? Beyond the worst off!: A diverse theory of justice for disability ; 7. Understanding Autonomy in Light of Intellectual Disability ; 8. Respect Without Reason: Relating to Alzheimer's ; 9. Radical cognitive limitation ; 10. Disability, discrimination and irrelevant goods ; 11. Ethical constraints on allowing or causing the existence of people with disabilities ; 12. Impairment, flourishing and the moral nature of parenthood ; 13. Projected disability and parental responsibilities

Read more less

Book SynopsisDeaf around the World is a compendium of work by scholars and activists on the creation, context, and form of sign languages, and on the social issues and civil rights of Deaf communities. Renowned contributors such as James Woodward, Yerker Andersson, and Paddy Ladd offer new histories and overviews of major topics. Each chapter is followed by a response from a pre-eminent thinker in the field. The volume includes studies of sign languages and Deaf communities in Australia, Brazil, Britain, China, France, Germany, Ghana, India, Israel, Italy, Japan, Kenya, Myanmar, Nicaragua, South Africa, Southeast Asia, Sweden, Thailand, and the United States.Trade Reviewan extremely valuable publication which certainly delivers a global perspective on Deafhood * Sara Louise Wheeler, British Sociological Association *this book is a good example of how sign language research and deaf empowerment can and should go hand in hand, and would have great value as a set text in sign linguistics and deaf studies classes. * Connie de Vos and Nick Palfreyman, Journal of Linguistics *Table of ContentsACKNOWLEDGEMENTS; INTRODUCTION: WHY GO AROUND THE DEAF WORLD? GAURAV MATHUR AND DONNA JO NAPOLI; 1: SIGN LANGUAGE GEOGRAPHY CAROL A. PADDEN; 1 RESPONSE: SOME OBSERVATIONS ON RESEARCH METHODOLOGY IN LEXICOSTATISTICAL STUDIES OF SIGN LANGUAGES JAMES WOODWARD; 2: TWO TYPES OF NONCONCATENATIVE MORPHOLOGY IN SIGNED LANGUAGES GAURAV MATHUR AND CHRISTIAN RATHMANN; 2 RESPONSE: SOME OBSERVATIONS ON FORM-MEANING CORRESPONDENCES IN TWO TYPES OF VERBS IN ASL PAUL DUDIS; 3: SOURCES OF HANDSHAPE ERROR IN FIRST-TIME SIGNERS OF ASL DEBORAH CHEN PICHLER; 3 RESPONSE: MODALITY AND LANGUAGE IN THE SECOND LANGUAGE ACQUISITION OF AMERICAN SIGN LANGUAGE RUSSELL S. ROSEN; 4: GETTING TO THE POINT: HOW A SIMPLE GESTURE BECAME A LINGUISTIC ELEMENT IN NICARAGUAN SIGNING ANN SENGHAS AND MARIE COPPOLA; 4 RESPONSE: A POINT WELL TAKEN: ON THE TYPOLOGY AND DIACHRONY OF POINTING ROLAND PFAU; 5: ACQUISITION OF TOPICALIZATION IN VERY LATE LEARNERS OF LIBRAS: DEGREES OF RESILIENCY IN LANGUAGE SANDRA K. WOOD; 5 RESPONSE: A CRITICAL PERIOD FOR THE ACQUISITION OF A THEORY OF MIND? CLUES FROM HOMESIGNERS CYRIL COURTIN; 6: INTERROGATIVES IN BAN KHOR SIGN LANGUAGE: A PRELIMINARY DESCRIPTION ANGELA M. NONAKA; 6 RESPONSE: VILLAGE SIGN LANGUAGES - A COMMENTARY ULRIKE ZESHAN; 7: SIGN LANGUAGE HUMOUR, HUMAN SINGULARITIES, AND THE ORIGINS OF LANGUAGE DONNA JO NAPOLI AND RACHEL SUTTON-SPENCE; 7 RESPONSE: GESTURE FIRST OR SPEECH FIRST IN LANGUAGE ORIGINS? ADAM KENDON; 8: BEST PRACTICE FOR COLLABORATING WITH DEAF COMMUNITIES IN DEVELOPING COUNTRIES AMY WILSON AND NICKSON KAKIRI; 8 RESPONSE: DEAF MOBILIZATION AROUND THE WORLD: A PERSONAL PERSPECTIVE YERKER ANDERSSON; 9: HIV/AIDS AND THE DEAF COMMUNITY: A CONVERSATION LEILA MONAGHAN AND DEBORAH KARP; 9 RESPONSE: HIV AIDS AND DEAF COMMUNITIES IN SOUTH AFRICA: A CONVERSATION JOHN MELETSE AND RUTH MORGAN; 10: THE LANGUAGE POLITICS OF JAPANESE SIGN LANGUAGE (NIHON SHUWA) KAREN NAKAMURA; 10 RESPONSE: PLURALIZATION: AN ALTERNATIVE TO JSL HEGEMONY SOYA MORI; 11: SOCIAL SITUATIONS AND THE EDUCATION OF DEAF CHILDREN IN CHINA JUN HUI YANG; 11 RESPONSE: SOCIAL SITUATIONS AND THE EDUCATION OF DEAF CHILDREN IN INDIA MADAN M. VASISHTA; 12: DO DEAF CHILDREN EAT DEAF CARROTS? PAUL SCOTT; 12 FIRST RESPONSE: "WE'RE THE SAME, I'M DEAF, YOU'RE DEAF, HUH!" DONNA WEST

Read more less

Book SynopsisThe assessment and treatment of mental health concerns for Deaf individuals has been largely ignored and/or misunderstood by many mental health professionals. In Mental Health and Deafness, Margaret du Feu and Cathy Chovaz seek to rectify this by outlining current issues surrounding mental health and deafness. The book provides valuable information to professionals interested in expanding their knowledge of mental health and deafness, and the authors share their extensive clinical experience with the reader through a variety of case studies. The authors primarily focus on individuals who were born deaf or deafened early in life, but also describe the mental health aspects of acquired deafness and individuals with both deafness and blindness. Mental Health and Deafness begins by describing the historical and social context of deafness, and follows the life journey of a Deaf individual, focusing on parental reactions, language acquisition, and mental health disorders of children, adolescTrade Review...geared toward clinicians such as family physicians, psychologists, psychiatrists, and social workers who have little experience working with Deaf people...readers can expect to come away with a good basic understanding of mental health considerations when working with Deaf patients * Amanda OHearn, Journal of Deaf Studies and Deaf Education *Table of ContentsIntroduction ; Chapter 1. Deafness: The Facts ; Chapter 2. Deaf People in Society ; Chapter 3. Deaf Children: The Beginning ; Chapter 4. Psychological Development of Deaf Children ; Chapter 5. Educational Issues ; Chapter 6. Adolescence ; Chapter 7. Deaf Children and Adolescents: Assessment ; Chapter 8. Deaf Children and Adolescents: Mental Health Disorders ; Chapter 9. Deaf Children and Adolescents: Treatment ; Chapter 10. Mental Health of Deaf Adults: Introduction ; Chapter 11. Deaf Adults: Assessment ; Chapter 12. Physical and Organic Disorders & Intellectual Disability ; Chapter 13. Schizophrenia ; Chapter 14. Mood Disorders ; Chapter 15. Other Disorders ; Chapter 16. Deafened People: Mental Health ; Chapter 17. Deafblind People: Mental Health ; Chapter 18. Older Deaf Adults: Mental Health ; Chapter 19. Legal and Forensic Issues ; Chapter 20. Deaf Adults: Treatment ; Chapter 21. Services

Read more less

Book SynopsisProviding an innovative and accessible perspective on how civil rights legislation affects the lives of ordinary Americans, this work argues for a radical new understanding of rights. The study is based on interviews with those who had experienced discrimination on disability issues.

Read more less

Book SynopsisThis study reviews two decades of research on mental disorder and presents empirical and theoretical work which aims to determine more accurate predictions of violent behaviour.Table of ContentsPreface List of Contributors 1: Toward a Rejuvenation of Risk Assessment Research John Monahan, Henry J. Steadman. 2: Anger as a Risk Factor for Violence among the Mentally Disordered Raymond W. Novaco 3: Impulsiveness and Aggression Ernest S. Barratt 4: Psychopathy as a Risk Marker for Violence: Development and Validation of a Screening Version of the Revised Psychopathy Checklist Stephen D. Hart, Robert D. Hare, Adelle E. Forth. 5: Mental Disorder, Substance Abuse, and Community Violence: An Epidemiological Approach Jeffrey W. Swanson 6: Psychotic Symptoms and the Violent/Illegal Behavior of Mental Patients Compared to Community Controls Bruce G. Link, Ann Stueve. 7: Delusions and Violence Pamela J. Taylor, Philippa Garety, Alec Buchanan, Alison Reed, Simon Wessely, Katarzyna Ray, Graham Dunn, Don Grubin. 8: Hallucinations and Violence Dale E. McNiel 9: Personality Disorders and Violence Thomas A. Widiger, Timothy J. Trull. 10: Demographic and Case History Variables in Risk Assessment Deidre Klassen, William A. O'connor. 11: Social Networks, Social Support, and Violence among Persons with Severe, Persistent Mental Illness Sue E. Estroff, Catherine Zimmer. Designing a New Generation of Risk Assessment Research Henry J. Steadman, John Monahan, Paul S. Appelbaum, Thomas Grisso, Edward P. Mulvey, Loren H. Roth, Pamela Clark Robbins, Deidre Klassen. Index

Read more less

Book SynopsisTrade Review“Baynton, challenging the conventional historiography, argues that the selective phase of American immigration policy, despite its heavy reliance on the ­sensible-sounding ‘public charge’ standard, was no less discriminatory. During those years, he demonstrates, immigration officials could and did customarily invoke this standard to rule out such ‘defectives’ as women unaccompanied by male providers and members of races with supposed ‘predispositions’ to criminality. Even those with ‘objective’ physical impairments (as the Americans with Disabilities Act would underscore many years later) were incapable of work only if you made certain assumptions about how workplaces were to be structured. So beware ‘reasonable’ justifications for immigration policies, Baynton warns.” * New York Times *“Focusing on immigrant experiences in New York, Baynton explains how ideas about genetics, disability, race, family life, and employment worked together to exclude an extraordinarily diverse range of men and women from the shores of the US.” * New Scientist *“In Defectives in the Land, Baynton extends his groundbreaking inquiries into how we’ve arrived at what we think of as disability in contemporary America. Baynton’s is an elegant and incisive analysis of the ways our developing nation evolved cultural practices and attitudes to make ‘disability’ a concept that gave meaning and status to people who have illnesses, industrial injuries, military wounds, or simply the unexpected forms of human variation life presents. Baynton presents us with the familiar history of American modernization as the creation of modern disability, showing us the shifting criteria for what counts a human ‘defect’ and what that means in the lives of people who bear such stigma.” * Rosemarie Garland-Thomson, Emory University *“A well-researched, original, and engaging study. Baynton argues that historians of North American immigration have failed to appreciate the importance of disability in the web of immigration restriction. To correct this failure, he maintains that disability joined race, disease, ‘poor physique,’ and poverty to form the ingredients of ‘degeneracy.’ Beautifully written and based on rigorous scholarship, Defectives in the Land will be of great importance and interest to historians of immigration and disability—and beyond.” * James W. Trent, Gordon College *“Defectives in the Land is a supple example of the ways that ‘disability’ has never been a term with a singular or unified meaning, but a term that has been—and continues to be—misused, abused, and exploited by a range of historical actors and institutions for their own ends. By using deliberately loaded conceptual categories—defective, handicapped, ugly, dependent—to organize his chapters, Baynton’s book opens up the deep interrelationships between disability and familiar analytical categories within immigration history, social history, and political history.” * David Serlin, University of California, San Diego *“In this slim volume, Douglas C. Baynton forcefully and convincingly argues that, in the late nineteenth and early twentieth centuries, U.S. immigration law and policy had as its core purpose the exclusion of “defective” immigrants who failed to meet eugenic standards of physical, mental, and moral fitness. In doing so, he successfully challenges standard historical interpretations. . .It is a “must read” for historians of immigration.” * Bulletin of the History of Medicine *Table of ContentsIntroduction 1 Defective 2 Handicapped 3 Dependent 4 Ugly Conclusion Notes Index

Read more less

Book SynopsisTraces how disabled people came to be viewed as biologically deviant. This book explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self. The author reveals cracks in the social production of human variation as aberrancy.

Read more less

Book SynopsisThe Court of Last Resort looks at decision making in a mental-health court and at the dilemmas of treating mental illness while protecting patients' legal rights. Carol Warren spent seven years studying hearings in a large California court where people who had been involuntarily committed to institutions for psychiatric treatment could petition for their release. In this book she confronts questions of whether mental illness is real or only a label for societal control, whether the government should be involved in committing the deviant to institutions, and how the interaction of judges, psychiatrists, families, police, and other individuals and agencies affect the court's administration of mental-health law. Though the cases in this book fall under California's Lanterman-Petris-Short Act, Warren's analysis of conflicts between legal and medical models of behavior is of national and international importance both to sociologists and to the many professionals who work at the juncture of

Read more less

Book SynopsisViolence is an inescapable through-line across the experiences of institutional residents. While Canada closes many of its large-scale facilities, institutional violence continues to spill over into community settings. Population Control explores the relational conditions that give rise to this violence across all spaces of care.Trade Review“In bringing together diversely situated experts on institutional violence from across Canada, Population Control offers a serious advance in state-of-the-art research relating to endemic institutional violence in Canada. This collection significantly helps us recognize how care and loathing function across different spatial and temporal locations to structure our social and political responses to unruly populations, not only to advance scholarly knowledge but also to support the afterlives of those who have been institutionalized and provide urgently needed evidence against insidious forms of trans-institutional violence that persists beyond the closure of total institutions.” Kelly Fritsch, Carleton University and co-editor of Disability Injustice: Confronting Criminalization in Canada

Read more less

Book SynopsisViolence is an inescapable through-line across the experiences of institutional residents. While Canada closes many of its large-scale facilities, institutional violence continues to spill over into community settings. Population Control explores the relational conditions that give rise to this violence across all spaces of care.Trade Review“In bringing together diversely situated experts on institutional violence from across Canada, Population Control offers a serious advance in state-of-the-art research relating to endemic institutional violence in Canada. This collection significantly helps us recognize how care and loathing function across different spatial and temporal locations to structure our social and political responses to unruly populations, not only to advance scholarly knowledge but also to support the afterlives of those who have been institutionalized and provide urgently needed evidence against insidious forms of trans-institutional violence that persists beyond the closure of total institutions.” Kelly Fritsch, Carleton University and co-editor of Disability Injustice: Confronting Criminalization in Canada

Read more less

Book SynopsisIn this ground-breaking book, autism expert Chantal Sicile-Kira and her son Jeremy take on the challenge of planning for the full lifespan. Working together and drawing on the insights of others facing the same challenges, they offer real solutions to a host of difficult questions.Trade ReviewPraise for Autism Life Skills: 'Chantal Sicile-Kira has done a beautiful job of putting the voices of many people on the spectrum into one book.' - Temple Grandin, author of Animals in Translation and Thinking in PicturesTable of ContentsJeremy's Story - Making the Impossible Possible Seeing the Potential of Your Child and Helping Them Realize it Circle of Support - Absolute Necessity of Creating a Support Group Having a Fulfilling Emotional Life Finding the Right Living Arrangements - From In-house Care to Independence The Joy of Learning - Creating the Right Educational Environment Personal Needs: Friends, Relationships, and Love & Sex Search for Normalcy - Gauging Success for Yourself Planning for the Future

Read more less

Book SynopsisChallenging notions of what constitutes 'normal' and 'pathological' bodies, this ambitious, agenda-setting study theoretically reinvigorates disability studies by reconceptualising it as 'studies of ableism' focusing on the practices and formations of able-bodiedness to uncover what it means to be 'able' rather than 'disabled'.Table of ContentsForeword by Professor Dan Goodley PART I: COGITATING ABLEISM The Project of Ableism Internalized Ableism: The Tyranny Within Tentative Disability: Mitigation and its Discontents Love Objects and Transhuman Beasts?: Riding the Technologies PART II: SPECTRES OF ABLEISM The Deaf Trade: Selling the Cochlear Implant Print Media Representations of the 'Unco-operative' Patient: The Case of Clint Hallam Disability Matters: Embodiment, Teaching& Standpoint Pathological Femaleness: Disability Jurisprudence& Ontological Envelopment Disability Harm& Wrongful Life Torts Searching for Subjectivity: The Enigma of Devoteeism, Conjoinment and Transableism Afterword: From Disability Studies to Studies in Ableism?

Read more less

Book SynopsisA guidebook for career counselors and employers to help them deal productively with LD/ADD adults. This book is useful as a supplementary text for graduate courses in career counseling. It synthesizes the two fields of LD/ADD diagnosis and career assessment into a methodology and provides background knowledge.Table of Contents1: Invisible Handicaps 2: Process and Structure 3: Diagnosis of Language Disability in Adults 4: Memory Problems Visual/Spatial Deficits, and Dyscalculia 5: Emotional and Social Dynamics in the LD Client 6: Cognitive Function in ADD Adults 7: Emotional and Social Dynamics in ADD Adults 8: The Therapeutic Approach to the Career Assessment 9: Methodology for the Career Assessment 10: Personality Assessment of ADD Clients Using the MMPI-2 16 PF, and MBTI Tests 11: Selecting a Good-Fit Job 12: Job Coaching for LD and ADD Clients 13: Case Studies of Clients with Language Disabilities 14: Case Studies of Clients with a Memory Disorder 15: Case Studies of Clients with Attention Deficit Disorder

Read more less

Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

Read more less

Book SynopsisUncharted is a collection of powerful first-person stories by current and former scientists with disabilities or chronic conditions who have faced both successes and challenges because of their health.Trade ReviewUncharted is a crucial and timely collection exploring the lived experiences of scientists with a broad array of disabilities and chronic conditions. Bayer and Serrato Marks, alongside many brilliant contributors, share courageous and moving stories that will challenge and shift the way readers think about disability. The book offers companionship for scientists working under what can be isolating conditions as well as recommendations for improving access in STEM fields. Uncharted is a must-read call to action for scientists and their institutions to ensure a more inclusive and just future for all. -- Faith Kearns, author of Getting to the Heart of Science Communication: A Guide to Effective EngagementA hopeful, heart-wrenching kaleidoscope of stories. These personal essays vividly share experiences that have been ignored or silenced for too long. The contributors have given us a gift and an opportunity to think broadly and act boldly to support everyone, in all of our unique and changing needs. This expansive collection of first-person stories is a must-read for anyone who cares about scientific research and all the humans who do it. -- Liz Neeley, founder and CEO, LiminalUncharted is full of compelling narratives that illustrate the ingenuity and resilience of disabled scientists as well as the challenges they face, demonstrating the multifacetedness of their lived experiences. -- Lisette E. Torres, senior researcher, TERCAlma C. Schrage’s memoir of her conference-going and research fieldwork as a young, deaf biologist [is] one of the… best pieces in the volume. * Inside Higher Ed *Some of the most validating writing I have ever read. A sobering reminder of just how much work remains to be done in the service of a more accessible and inclusive scientific culture. -- Leslie Berntsen, director of education and research, The Story ColliderHighly recommended. Excellent for starting conversations about disability, bias, and ablism in STEM. * Choice Reviews, the American Library Association (ALA) *Table of ContentsIntroduction: Charting the Course, by Skylar Bayer and Gabi Serrato MarksPart I. Getting Underway1. Rolling to Freedom, by Mpho Kgoadi2. Regaining Control, by Jenn Pickering3. Changing Tides: What Does It Mean to Be Blind?, by Maureen J. Hayden4. Dear Cassy, by Sami Chen5. Sea Legs: Working Around Motion Sickness, by Amanda HeidtPart II. Between the Devil and the Deep Blue Sea6. A Safe Space, by Daisy Shearer7. When Fieldwork Doesn’t Work: A Broken Bildungsroman, by Lauren A. White8. Birds, Bees, and Anxieties, by Anonymous 19. My Brown Waterproof Boots, by Skylar Bayer10. Hope Is My Anchor, by Furaha AsaniPart III. Rallying the Crew11. The Place I Rest, by Alma C. Schrage12. Sometimes It Doesn’t Get Better, but That’s OK, Too, by Alexander G. Steele13. Christmas on Rangatira Island, by Sophie Fern14. Living with a Rare Condition, by Sophie Okolo15. Planning the Journey of a Lifetime, by Richard Wendell MankinPart IV. In the Heart of the Maelstrom16. The Butt Balloon, by Anonymous 217. This Is Wallace Alfred Russel Simonis, by Juniper L. Simonis18. The Day That Changed Everything, by Syreeta L. Nolan19. Being the First and Only to Ask, by Amanda O’Brien20. Lost in New Orleans, by Stephanie Schroeder21. Ascending the Cinder Cone, by Divya M. PersaudPart V. Reflections in the Water22. Thinking Beyond the “Social Model of Disability,” by Glyn Everett23. Suffer in Silence or Leave, by Emma Tung Corcoran24. (In)Visibly Eroding Bones, Bodies, and Landscapes, by Leehi Yona25. The Abyss, by Katie Harazin26. Navigating the Curve, by Sunshine Menezes27. Tidy Columns, by Olivia BernardPart VI. I Am the Captain of My Ship28. Broader Impacts, by Jennifer L. Piatek29. Doo hwił hóyéeda . . . : A Lesson Lost in Translation . . . , by Taylor Francisco30. The Ridge, by Gabi Serrato Marks31. Who I Am, by Vincent Martin32. The Best Place for My Hearing Aids Is on My Desk, by Michele CookeConclusion: Aid to NavigationAcknowledgmentsReflection and Discussion QuestionsFurther Reading and ResourcesGlossaryBibliographyAbout the Contributors

Read more less

Book SynopsisAN EXTRAORDINARILY MOVING AND ORIGINAL MEMOIR OF GROWING UP GAY AND DISABLED IN 1980s LONDONSHORTLISTED FOR THE SLIGHTLY FOXED BEST BIOGRAPHY PRIZE 2023 When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too heavy for his twenty-five-year-old artist parents and their happy, smiling baby.Growing up in south-east London in the 1980s, Emmett is spat at on the street and prayed over at church. At his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs. At his sixth form college for disabled students, he''s told he will be expelled if the rumours are true, if he''s gay.And then Emmett is chosen for a first-of-its-kind surgery in America which he hopes will ''cure'' him, enable him to walk unaided. He hopes for a miracle: to walk, to dance, to be able to leave the house when it rains. To have a body that''s eTrade ReviewVivid, engaging... this insightful memoir sheds light on the author's life as a disabled gay man who is often rendered invisible -- Andrew McMillan * Guardian *A frank and intimate memoir written with an incredible clear-eyed intensity * Claire Fuller *The magic of Emmett De Monterey's book is its disarming accessibility. Compulsive reading, unique, this beautifully crafted work is suffused with depth, affection, and remarkable observations. De Monterey is a profoundly gifted writer. * Charlotte Fox Weber *Exploring the reality of growing up gay and disabled in 1980s London, this beautiful memoir is as uplifting as it is devastating, and as funny and wise as it is profound. * iNews *Astonishing, illuminating and enriching. * Matt Cain *

Read more less

Book SynopsisTrade Review​"Between Fitness and Death is essential reading for scholars of health, racialization, and law in the world of Atlantic slavery, and it also gestures toward important future directions for scholars of slavery and race, more generally." --Black Perspectives "Bringing together a wide array of sources with carefully crafted interpretive insight, Between Fitness and Death is a tremendous accomplishment. . . . Hunt-Kennedy provides a theoretically innovative framework for future scholarship on how enslaved people in the British Caribbean and beyond perceived of and operated in relation to the disabling power of slavery. Between Fitness and Death deserves wide-readership." --Middle Ground Journal"Stefanie Hunt-Kennedy's Between Fitness and Death is an excellent introduction to disability studies for scholars rooted in histories of slavery and of the Caribbean." --H-Slavery"Between Fitness and Death is an engaging theoretical assessment of the ideology of racial difference in American slavery. It is a helpful contribution to the growing battery of factors that historians must consider when assessing prejudice during the period. . . . Between Fitness and Death<.i> adds fresh insight into the origins of anti-Black racism, as well as a helpful guide to its enduring legacy." --Journal of African American History"A compelling argument that colonial racialization and brutality are significant factors in the history of disability . . . Hunt-Kennedy's fascinating and important study will challenge future academics to look beyond fitness and death and rethink our assumptions about how anti-Black racism and abelism have developed in the Western World." --H-Disability​"In revealing the pervasiveness of disability among enslaved people and the various associations between blackness and disability, Hunt-Kennedy provides a new way of looking at the archives of slavery. Between Fitness and Death furthers our understanding of Caribbean slavery." --Journal of Interdisciplinary History​"Slavery relied on the ever-present humanity of the enslaved. By suggesting a framework of disability, Hunt-Kennedy presents a conceptual shift that centers the human, while showing how the conditions of slavery undermined the abilities of Africans. Required reading for Caribbean scholars and scholars around the globe interested in slavery.”—Sasha Turner, author of Contested Bodies: Pregnancy, Childrearing, and Slavery in Jamaica​"Hunt-Kennedy’s innovative take on the connections between disability and bondage underscores how embodiment, ability, and difference combined to shape ideologies of slavery and understandings about who could be enslaved. Essential reading for anyone interested in the intertwined histories of enslavement and race in the Atlantic World."--Jenny Shaw, author of Everyday Life in the Early English Caribbean: Irish, Africans, and the Construction of Difference ​"This provocative and powerful study . . . makes important contributions to understanding Caribbean slavery." --Choice

Read more less

Book SynopsisExploring the disability history of slavery Time and again, antebellum Americans justified slavery and white supremacy by linking blackness to disability, defectiveness, and dependency. Jenifer L. Barclay examines the ubiquitous narratives that depicted black people with disabilities as pitiable, monstrous, or comical, narratives used not only to defend slavery but argue against it. As she shows, this relationship between ableism and racism impacted racial identities during the antebellum period and played an overlooked role in shaping American history afterward. Barclay also illuminates the everyday lives of the ten percent of enslaved people who lived with disabilities. Devalued by slaveholders as unsound and therefore worthless, these individuals nonetheless carved out an unusual autonomy. Their roles as caregivers, healers, and keepers of memory made them esteemed within their own communities and celebrated figures in song and folklore. Prescient in its analysis and rich in detail,Trade Review"This original work adds an important new voice to conversations about slavery, disability, and medical history. Exceptional analysis of an understudied topic" --Library Journal (starred review)"Addressing an often-overlooked aspect of the experiences of enslaved people, Barclay intricately examines the connection between racism, disabilities and slavery, as well as the legacy it left behind, in this important and well-researched volume." --Ms. Magazine"The Mark of Slavery is not simply a study of disability discourse. Rather, the book examines disability as both a discourse about race and slavery and as a lived experience affecting the lives of thousands of enslaved people." --Black Perspectives"While many of the racist and ableist discourses seemed to be contradictory and nonsensical, Barclay skillfully demonstrates how each of the narratives work together to create a larger, long-standing co-constitution of Blackness, disability, and dependency. . . . After reading this book, it is near impossible to consider race in America as anything separate from disability and ableism. . . . Compelling." --Ethnic and Racial Studies"Jenifer Barclay offers us a powerful, deeply researched, and rich study of the meanings of disability in the antebellum South. The sheer breadth of literature that this work speaks to is impressive. . . . The Mark of Slavery is a critical intervention into fields that have ignored or marginalized disability." --American Nineteenth Century History"Barclay's study is a well-researched investigation of nineteenth-century cultural debates on race and the body. Disability scholarship has flourished in recent years, and Barclay's book is a welcome contribution to the field." --Journal of Southern History"Highly recommended." --Choice"Barclay's deft handling of disability through her archival research, the brilliance of her scholarship on the ways that blackness becomes synonymous with disability, her skillful use of Black Critical Disability Studies as a methodological framework, and clear and persuasive prose allows us greater insight into the debilitating effects of slavery as a disabling device for its victims."--Deirdre Cooper Owens, author of Medical Bondage: Race, Gender and the Origins of American Gynecology

Read more less

Book SynopsisA beautifully told and unique recollection of life as the child of immigrant Jews in the Bronx and as the child of deaf parentsTrade Review"This is a man revealing himself, touched and startled by his act of exposure, discovering and offering the old truth: every life matters. Reminding us of this is what memoir does best. . . . An engrossing contribution to the genre."--Margaret Diehl, New York Times Book Review"Davis's new memoir focuses on how his parents' deafness affected him. He writes frankly about the difficulties he encountered, such as his inability to call his parents when he needed comfort during the night and his having to serve as their interpreter. . . . The writer also infuses his writing with humor and the sense of love and respect he developed for his parents. . . . Davis's descriptions of the richness and complexity of sign language are the most fascinating portions of the book. Highly recommended."--Library Journal"Good memoirs with staying power are hard to find any year. One of this year's very best is . . . My Sense of Silence. Davis succeeds brilliantly in doing many things. His is an outstanding personal and cultural study of deafness as well as a savvy and moving intellectual and political autobiography."--The Bloomsbury Review"A truly poetic reflection flanked by Davis's ambivalent and unresolved childhood. . . . Davis blends so much painstaking detail into his writing, pulling at the reader's emotions as he processes his own odd experience. The book convincingly paints the struggles of a young man who must 'recover the child, deaf-self' that he leaves behind 'merging it with [a] hearing self.'"--The Minnesota Daily"A provocative and personal odyssey of growing up with deaf parents, remarkable for its candor, humor and originality. Davis's memories are passionate and fierce as he pieces together the stories of his family, probing the elusive relationships between childhood and adult life. Highly recommended."--Paul Preston, author of Mother Father Deaf: Living between Sound and Silence and co-director of the National Resource Center for Parents with Disabilities

Read more less

Book SynopsisTrade ReviewLoftis's book does an excellent job of bringing together a range of literary examples and thematizing them as representations of autism. In doing so, and combining this with a very detailed analysis of the works in question, this book contributes a great deal to both disability studies and literary criticism. * Journal of Literary & Cultural Disability Studies *In examining the concerns and misconceptions that drive depictions of people with ASD, Loftis sheds light on the representations that can lead to discrimination against those who have related conditions. * Library Journal *It is to be hoped that this engrossing book will encourage discussion and further work about fictional characters portrayed as autistic, even if not labeled as such. It is a book that will be of value to everyone interested in neurodiversity and the dangers of stereotyping. Itshould also appeal to any one who wants a different perspective on a favorite character. It is highly recommended reading. * H-Disability *Very useful for those interested in disability studies, cultural studies, and literature. . . . Recommended. * Choice *An important and necessary early step in bringing the study of autism into the field of literary studies. * Disability Studies Quarterly *A groundbreaking examination of autism. * Disability & Society *Table of ContentsIntroduction1. The Autistic Detective: Sherlock Holmes and his Legacy2. The Autistic Savant: Pygmalion, Saint Joan, and the Neurodiversity Movement3. The Autistic Victim: Of Mice and Men and Flowers for Algernon4. The Autistic Gothic: To Kill a Mockingbird, The Glass Menagerie, and The Sound and the Fury 5. The Autistic Child Narrator: Extremely Loud and Incredibly Close and The Curious Incident of the Dog in the Night-Time6. The Autistic Label: Diagnosing (and Un-Diagnosing) the Girl with the Dragon TattooAfterwordNotesIndex

Read more less

Book SynopsisDisabled persons' struggles for rights and recognitionTrade ReviewThis ethnography is quite accessible and would be appropriate for courses in applied, medical, and development anthropology, anthropology of globalization and cultural change, as well as to historians of disability, and gender studies scholars and students. * Anthropology of East Europe Review *Crafted with an interdisciplinary audience in mind, [this] volume will be of interest to historians of disability, Europe, and the Soviet Union, as well as to cultural and medical anthropologists. Written with accessibility in mind, Phillips weaves theoretical concerns into narrative accounts and historical and ethnographic detail. May 2011 * H-Disability *[This] entire study is a much-needed and welcome addition to the postsocialist literature and would fit well in anthropology, as well as interdisciplinary, courses on Russian and Eastern European studies. * somatosphere.net *Table of ContentsAcknowledgmentsIntroduction: Living Disability and Mobilizing Citizenship in Postsocialism1. A Parallel World2. Out of History3. Disability Rights and Disability Wrongs4. Regeneration5. Disability, Gender, and Sexuality in the Era of "Posts"ConclusionAppendix I: Notes on Terminology and MethodsAppendix II: List of Abbreviations NotesBibliographyIndex

Read more less

Book SynopsisProvides an integration of feminist theory with disability studiesTrade Review"Puts feminist theory and disability studies into conversation with one another, not simply to make for an 'additive' approach, but to transform both fields of inquiry." —Diane Herndl, Iowa State University"Hall's... collection is a fascinating and valuable contribution to our thinking, and comes at a crucial point in the consolidation of feminist bioethics' engagement with disability." —International Journal of Feminist Approaches to Bioethics"Feminist Disability Studies is a particularly solid collection due to the wealth of cross-genre essays and contributions housed within its pages, and its contributors draw from women’s studies, literary and cultural studies, ethnic studies, philosophy, and many other disciplines." —Global Comment"A volume of the highest scholarly quality that extends both feminist theory and disability studies." —Nancy Tuana, Pennsylvania State University"Feminist disability Studies... should be required reading in any course that deals with [femiminsm and disability]." —Feminist Collections"Each of the essays in this collection offers a valuable contribution in its own right. Read together, they make a strong case for the value, indeed necessity, of including disability perspectives in future feminist scholarship." —American Literary HistoryTable of ContentsAcknowledgmentsReimagining Disability and Gender through Feminist Disability Studies: An Introduction / Kim Q. HallPart 1. Toward a Theoretical Framework for Feminist Disability Studies1. Integrating Disability, Transforming Feminist Theory / Rosemarie Garland-Thomson2. Critical Divides: Judith Butler's Body Theory and the Question of Disability / Ellen SamuelsPart 2. Refiguring Literature3. Invisible Disability: Georgina Kleege's Sight Unseen / Susannah B. Mintz4. Revisiting the Corpus of the Madwoman: Further Notes toward a Feminist Disability Studies Theory of Mental Illness / Elizabeth J. DonaldsonPart 3. Interrogating Fitness: Nation, Identity, and Citizenship5. The Color of Violence: Reflecting on Gender, Race, and Disability in Wartime / Nirmala Erevelles6. Gwendolyn Brooks, World War II, and the Politics of Rehabilitation / Jennifer C. James7. Revising the Subject: Disability as "Third Dimension" in Clear Light of Day and You Have Come Back / Cindy LaCom8. A Heritage of Ableist Rhetoric in American Feminism from the Eugenics Period / Sharon Lamp and W. Carol CleighPart 4. Sexual Agency and Queer Feminist Futures9. Disability, Sex Radicalism, and Political Agency / Abby Wilkerson10. Debating Feminist Futures: Slippery Slopes, Cultural Anxiety, and the Case of the Deaf Lesbians / Alison KaferPart 5. Inclusions, Exclusions, and Transformations11. Disparate but Disabled: Fat Embodiment and Disability Studies / April Herndon12. Chronic Illness and Educational Equity: The Politics of Visibility / Karen Elizabeth Jung13. Res(Crip)ting Feminist Theater through Disability Theater: Selections from the DisAbility Project / Ann M. Fox and Joan LipkinContributorsIndex

Read more less

Book SynopsisExamines the rhetorical practices that generate and sustain discrimination against disabled people. Demonstrates how ableist values, knowledge, and ways of seeing pervade Western culture and influence social institutions such as law, sport, and religion.Trade Review“Cherney shows how the powerful but mostly invisible rhetoric of ableism shapes beliefs about disability. Carefully argued case studies—from The Exorcist, to the cochlear implant debate, to the Casey Martin controversy—illustrate how ableism operates through the warrants of ‘deviance is evil,’ ‘normal is natural,’ ‘body is able’ and across epistemic, ideological, and visual dimensions. They form the heart of the book, making it accessible and engaging for use in an undergraduate rhetoric or disability studies course.”—Cynthia Lewiecki-Wilson,coeditor of Embodied Rhetorics: Disability in Language and Culture“As illustrated in this rich examination of ableism in Western society, ableism’s tendency to adapt to different time periods and zeitgeists while naturalizing itself through rhetorical repetition means that Cherney’s study heralds a new field of inquiry that takes ableism, geographical specificity, and rhetoric as its nexus.”—Dominique Salas The Quarterly Journal of SpeechTable of ContentsContentsAcknowledgments1. The Rhetorical Dimensions of Ableism2. Fearing Disability and the Possession Narrative3. Ableism and the Cochlear Implant Debate4. Sport as Ableist Institution5. A Rhetorical Model of Disability Notes Bibliography Index

Read more less

Book SynopsisExamines the rhetorical practices that generate and sustain discrimination against disabled people. Demonstrates how ableist values, knowledge, and ways of seeing pervade Western culture and influence social institutions such as law, sport, and religion.Trade Review“Cherney shows how the powerful but mostly invisible rhetoric of ableism shapes beliefs about disability. Carefully argued case studies—from The Exorcist, to the cochlear implant debate, to the Casey Martin controversy—illustrate how ableism operates through the warrants of ‘deviance is evil,’ ‘normal is natural,’ ‘body is able’ and across epistemic, ideological, and visual dimensions. They form the heart of the book, making it accessible and engaging for use in an undergraduate rhetoric or disability studies course.”—Cynthia Lewiecki-Wilson,coeditor of Embodied Rhetorics: Disability in Language and Culture“As illustrated in this rich examination of ableism in Western society, ableism’s tendency to adapt to different time periods and zeitgeists while naturalizing itself through rhetorical repetition means that Cherney’s study heralds a new field of inquiry that takes ableism, geographical specificity, and rhetoric as its nexus.”—Dominique Salas The Quarterly Journal of SpeechTable of ContentsContentsAcknowledgments1. The Rhetorical Dimensions of Ableism2. Fearing Disability and the Possession Narrative3. Ableism and the Cochlear Implant Debate4. Sport as Ableist Institution5. A Rhetorical Model of Disability Notes Bibliography Index

Read more less

Book SynopsisA fictionalized narrative, in graphic novel format, of the author’s experiences as a quadriplegic following injuries he sustained from an accident.Trade Review“This plainspoken dispatch will appeal to anyone who has confronted unexpected medical challenges, providing an uplifting example of how to build a different but fulfilling life.”—Publishers Weekly“Though concise, Burkart’s ink drawings minimize nothing—neither the insecurities of the draftsman handling his tools, nor the doubts of the protagonist, Piedro.”—Jonas Engelmann Comic: The Magazine of Comics Culture

Read more less

Book Synopsis

Read more less

Book SynopsisA groundbreaking work that explores human size as a distinctive cultural marker in Western thoughtTrade Review“A compelling and innovative account of why size matters. . . Brings much-needed height and breadth to a neglected field.”—Louisa Yates, THES"A pleasure to read. Vallone constantly pushes her inquiries beyond period- or genre-boundaries to ask broad questions that concern us all, as human beings as well as professional specialists. Big & Small should rank alongside the best, most far-reaching studies of childhood and human culture available today."—Professor Rachel Falconer, University of Lausanne"Size matters. Whether our bodies are classed as "ordinary" or "extraordinary", such evaluations have a major impact on how we move through the world. Lynne Vallone's mediations on bodily size are both delightful and insightful. She has a formidable grasp of literary, scientific, and historical approaches to bodies, which she tackles with political as well as personal engagement. I loved reading this book."—Professor Joanna Bourke, Birkbeck, University of London.​"Big and Small is a fascinating and innovative work which deals with a topic we tend to overlook – size and human measure. Through a careful and thorough analysis of literature, art, and science from the eighteenth century to the present Vallone demonstrates that size matters in all aspects of our lives. Convincing and highly significant, her book will change our views of how we determine all aspects and values of bodies."—Jack Zipes, University of Minnesota"Vallone’s skill in moving between divergent bodies of material with such assured interdisciplinary gusto means that this is something of a magnum opus: the type of major scholarly achievement that only the best kind of critical mind is capable of producing after years of searching inquiry into a very broad range of sources drawn from literature, art history, sociology, and gender studies. An outstanding and resourceful work."—Prof. Joseph Bristow, Distinguished Professor of English, University of California, Los Angeles

Read more less

Book SynopsisA much-needed guide to dating--from apps to hooking up, sex, long-term relationships and more--from disabled essayist and author Jessica Slice and bioethicist Caroline Cupp.Disabled people date, have casual sex, marry, and parent. Yet our romantic lives are conspicuously absent from the media and cultural conversation. Sexual education does not typically address the specific information needed by disabled students. Mainstream dating apps fail to include disability as an aspect of one''s identity alongside race, ethnicity, gender identity, and sexual orientation. The few underutilized disability-focused apps are paternalistic and unappealing. Bestselling dating books do not address disability, and the few relationship books marketed to disabled people focus on the mechanics of sex rather than the complex interactions that create the conditions for it.In Dateable, disabled authors Jessica Slice Caroline Cupp team up to address the serious gap in the datin

Read more less

Book Synopsis

Read more less

Book SynopsisPULITZER PRIZE FINALIST • NEW YORK TIMES BESTSELLER • “Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism.”—Walter Isaacson, #1 New York Times bestselling author of The Code Breaker “Remarkable . . . A riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape.”—The Wall Street Journal (Ten Best Nonfiction Books of the Year) The inspiration for the PBS documentary, In a Different Key In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierc

Read more less

Book Synopsis

Read more less

Book SynopsisOliver Sacks was born in 1933 in London and was educated at Queen's College, Oxford. He completed his medical training at San Francisco's Mount Zion Hospital and at UCLA before moving to New York, where he soon encountered the patients whom he would write about in his book Awakenings.Dr Sacks spent almost fifty years working as a neurologist and wrote many books, including The Man Who Mistook His Wife for a Hat, Musicophilia, and Hallucinations, about the strange neurological predicaments and conditions of his patients. The New York Times referred to him as 'the poet laureate of medicine', and over the years he received many awards, including honours from the Guggenheim Foundation, the National Science Foundation, the American Academy of Arts and Letters, and the Royal College of Physicians. In 2008, he was appointed Commander of the British Empire. His memoir, On the Move, was published shortly before his death in August 2015.Trade ReviewThe Mind's Eye is about the possibility of recovery and the inexorable decline of the ageing individual. From this collision of incompatible truths, tragedy is made . . . making this Sacks's most powerful book to date. * Sunday Telegraph *Packed with wisdom, humour, extraordinary human stories and reflections on how we all perceive the world . . . He ends with a brilliant discussion of blindness and the ways in which blind people develop visual concepts. Heartily recommended’. * Reader’s Digest *

Read more less

Book Synopsis* Why has 'the discursive turn' been sidelined in the development of a social theory of disability, and what has been the result of this?* How might a social theory of disability which fully incorporates the multidimensional and multifunctional role of language be described?* What would such a theory contribute to a more inclusive understanding of 'discourse' and 'culture'?The idea that disability is socially created has, in recent years, been increasingly legitimated within social, cultural and policy frameworks and structures which view disability as a form of social oppression. However, the materialist emphasis of these frameworks and structures has sidelined the growing recognition of the central role of language in social phenomena which has accompanied the 'linguistic turn' in social theory. As a result, little attention has been paid within Disability Studies to analysing the role of language in struggle and transformation in power relations and the engineering oTrade Review"Most new books recycle existing thought, but occasionallya book comes along which offers a new set of ideas and a fresh perspective. This international compilation does both: it provides the familiar alongside the normal." - The Times Educational Supplement "Disability and the Dilemmas of Education and Justice pulls no punches. It is a relentless critique of our current special educational needs system and of those who work in it." - Special Children "A thought provoking and interesting book, that raises many valuable issues. Certainly worth a read for all involved in special education." - Education Review "I have for over 30 years been concerned with the education of students with a variety of disabilities and of various degrees of disability, andbelieved that I had acquired a knowledge of most of theproblems experienced by disabled people. However, after reading the essays containedin this book my eyes have been opened to a myriad of other problems experienced by them, and for me the essays have opened up new avenues of thought on education as it affects disabled students.The writing of this book has long been overdue." - EducationToday "...a must for students...It brings special needs into the wide cultural arena which seems to me to be where it must be located as we moveinto the twenty-first century." - British Educational Research Journal "This book is stronglyrecommendedto anyone involved in special education." - Educational Research "...a book that will inform and enlighten even the most veteran and knowledgeable members of the special education profession...At the same time, it is written in sufficient detail and with enough background information to allow its ideas to be accessible to newcomers or lay readers. Its authors'perspectives are fresh, informed by multiple sources and disciplines." - Qualitative Studies in EducationTable of ContentsSeries editor's prefaceIntroductionreclaiming language in disability studiesPart one: Personal narrativesInside aphasiaThe wind gets in my wayI am more than my wheelsDepressed and disabledsome discursive problems with mental illnessNarrative identity and the disabled selfPart two: The social creation of disability identityWhy can't you be normal for once in your life? From a problem with no name to the emergency of a new category of differenceUnless otherwise stateddiscourses of labelling and identity in coming outCarving out a place to actacquired impairment and contested identityDiscourse and identitydisabled children in mainstream high schoolsTransforming disability identity through critical literacy and the cultural politics of languageTalking 'tragedy'identity issues in the parental story of disabilityPart three: Cultural discoursesStudying disability rhetoricallyModern slogan, ancient scriptdisability in the Chinese languageBodies, brains and behaviourthe return of the three stooges in learning disabilityJoseph F. Sullivan and the discourse of 'crippledom' in progressive AmericaArt and lies? Representations of disability on filmWhat they don't tell people with learning difficultiesFinal accounts and the parasite peopleDisability discourse, the principle of optimization and social changeBiographical notesReferencesIndex.

Read more less

Book SynopsisFINALIST FOR THE 2023 PULITZER PRIZE FOR MEMOIR''An exquisite exploration of disability, identity and the human capacity to do (and be) more than we''ve ever dreamed'' Time''Gorgeously, vividly alive'' New York Times''Challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths'' Lit HubBorn with sacral agenesis, a visible congenital disability that affects her stature and gait, Chloé Cooper Jones had always found solace in what she thought of as ''the neutral room'' - a dissociative space in her mind that offered her solace and self-protection, but also kept her isolated. When she became pregnant (disproving her doctor, who had assumed it impossible), something necessary in her started to crack, forcing her to reckon with her defensive positionality to the world and the people in it. This prompted an odyssey across time andTrade ReviewEasy Beauty is bold, honest, and superbly well-written. Chloé Cooper Jones is ruthless in probing our weakest and darkest areas, and does so with grace, humor, and ultimately, with something one seldom finds: kindness and humanity. * André Aciman, author of Call Me By Your Name *Graceful, soul-baring * Melanie Reid, The Times *Gorgeous, vividly alive... In rejecting the dismissive gaze of others, Jones stands in the light of her own extremely able self -- Books of the Year * New York Times *What a gift of a book ... Easy Beauty has the rigor and precision of Joan Didion and Maggie Nelson and a forthright humor and naked truth all its own. * Sarah Ruhl, author of Smile *Perceptive, stylish, and darkly funny, Easy Beauty is an act of grace, and a reckoning. Chloé Cooper Jones is a remarkable writer - I would follow her mind anywhere. * Anna Wiener, author of Uncanny Valley *Chloé Cooper Jones is a writer whose work I don't read, but enter: she weaves her brainy, crackling interior into the sinews of a reality that is forever reminding its participants of the difficulty of living inside a body. Easy Beauty is the most humane book I have read in a long time: in her insistence that we bear witness to each other, Jones calls forth a better, and indeed more beautiful world. I loved this book. * Kristen Radtke, author of Seek You: A Journey Through American Loneliness *I recommend Easy Beauty to anyone who has wanted beauty badly, even without knowing quite what it is, but who could never seem to access it. At least, I'm that sort of anyone, and I could feel and recognize parts of myself in every moment of this book. Chloé Cooper Jones' writing pierces right through and lets a light in. * Mitski, singer-songwriter *In this ambitious and elegant book about seeing and being seen, Chloé Cooper Jones invokes thorny, theoretical material about identity, the social order, and how we measure human value, but her clarity and compassion invite all readers in. She has created a forceful and fresh point of view from which to anatomize power, access, and perception in her precise, unsparing prose. A necessary, relentlessly honest book that feels both of the moment and timeless. * Whiting Foundation Judges citation *Jones is a magnificent guide, fiercely sharp and fiercely human. This book is for anyone who wants to immerse into a world of beauty, who wants to get real about the roots of their desire, and who can't quite kick the habit of admiring the structures-and humans-who harm them. The questions she raises will resound in your head for a long time to come. * Lulu Fisher, author of Why Fish Don't Exist and host of Radiolab *This book is utterly remarkable. I was spellbound by the style, the ideas, the vulnerability, the talent. * Lydia Kiesling, author of The Golden State *Dazzling . . . Chloe Cooper Jones challenges society's rules of attraction with razor-sharp wit and intellect . . .[and) makes a brilliant case for the beauty of complexity * Starred Publishers Weekly *Exquisite. Here Pulitzer finalist Jones reflects on our standards of beauty from the perspective of a disabled woman whose rare congenital condition affects her stature and gait, and leaves her in constant pain. But it's ultimately motherhood that liberates her, and prompts her to re-examine the limitations she has accepted as givens. * O Magazine *Jones challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths. Blending journalism, philosophy, and memoir, it's a book that everyone will be talking about. * Lit Hub *A memoir full of insight as the author tries to wrestle understanding and ownership of herself from a world still eager to assert its sovereignty over the female body. * Jarred McGinnis, author of The Coward *A soul-stretching, breathtaking existential memoir chronicles her reclaiming of body, mind, and self . . . Superlative writing, rendering complex emotion and unparalleled insight in skilfully precise language. Her debut is a game-changing gift to readers. * Booklist, starred review *Despite doctors' dire predictions that she wouldn't live, walk or have children, she has done these things and more. Here, she probes the ways a culture determines a person's value and embarks on a journey to understand the myth of beauty and her own unintentional complicity in it. * Washington Post *The multiple depths that Jones plumbs in Easy Beauty results in a memoir that can't easily be classified. The same can be said for the book's author. Jones is a Pulitzer Prize finalist, a philosophy professor and a writer, who delves into her journey as a daughter, mother, wife and her search for a new way of seeing the world. In other words, her story is about the complexity of the human experience and the questions of identity and belonging that plague us all. * People Magazine *Inspired in part by the shift Jones saw in others' perceptions of her during her pregnancy, Easy Beauty challenges deep-seated assumptions about who gets to be capable, trustworthy, and desirable. * Bustle Magazine *Candid and truth-seeking, this memoir charts the act of refocusing and realigning the ways we view and interpret ourselves * NB Magazine *Achingly felt, Jones's writing is a revelation * Publishers Weekly, Best Books of 2022 *Easy Beauty is an exquisite exploration of disability, identity, and the human capacity to do (and be) more than we've ever dreamed * Time *Touching and often humorous... explores life from the perspective of those who don't conform to conventional beauty standards -- Charlotte Heathcote * Daily Record *Genius... Shifted my understanding of a world I've only experienced while able-bodied -- Best Memoirs of 2022 * Vulture *Moving, incisive... Jones resists sentimentality and is as unsparing of herself as she is of other people, and yet she writes with such graciousness. A wonderful debut -- Tomi Obaro * Buzzfeed News *Gorgeous, concise and often very funny... a gripping memoir about parenting, disabilities and figuring out what to do next... a philosophical masterpiece, written in the tradition of those who see philosophy not as a dry academic subject but as a way of life * Coachella Review *A masterpiece ... Cooper Jones uses the particulars of her own experience to formulate ideas that are at once universally applicable and genuinely profound * Irish Times *

Read more less

Book Synopsis''GORGEOUS, VIVIDLY ALIVE'' NEW YORK TIMES''BOLD, HONEST AND SUPERBLY WELL-WRITTEN'' ANDRÉ ACIMAN, AUTHOR OF CALL ME BY YOUR NAME''GRACEFUL AND SOUL-BARING'' MELANIE REID, THE TIMES''WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.'' SARAH RUHL, AUTHOR OF SMILEI am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living.So begins Chloé Cooper Jones''s bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others.It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey acrossTrade ReviewEasy Beauty is bold, honest, and superbly well-written. Chloé Cooper Jones is ruthless in probing our weakest and darkest areas, and does so with grace, humor, and ultimately, with something one seldom finds: kindness and humanity. * André Aciman, author of Call Me By Your Name *Graceful, soul-baring * Melanie Reid, The Times *Gorgeous, vividly alive... In rejecting the dismissive gaze of others, Jones stands in the light of her own extremely able self -- Books of the Year * New York Times *What a gift of a book ... Easy Beauty has the rigor and precision of Joan Didion and Maggie Nelson and a forthright humor and naked truth all its own. * Sarah Ruhl, author of Smile *Perceptive, stylish, and darkly funny, Easy Beauty is an act of grace, and a reckoning. Chloé Cooper Jones is a remarkable writer - I would follow her mind anywhere. * Anna Wiener, author of Uncanny Valley *Chloé Cooper Jones is a writer whose work I don't read, but enter: she weaves her brainy, crackling interior into the sinews of a reality that is forever reminding its participants of the difficulty of living inside a body. Easy Beauty is the most humane book I have read in a long time: in her insistence that we bear witness to each other, Jones calls forth a better, and indeed more beautiful world. I loved this book. * Kristen Radtke, author of Seek You: A Journey Through American Loneliness *I recommend Easy Beauty to anyone who has wanted beauty badly, even without knowing quite what it is, but who could never seem to access it. At least, I'm that sort of anyone, and I could feel and recognize parts of myself in every moment of this book. Chloé Cooper Jones' writing pierces right through and lets a light in. * Mitski, singer-songwriter *In this ambitious and elegant book about seeing and being seen, Chloé Cooper Jones invokes thorny, theoretical material about identity, the social order, and how we measure human value, but her clarity and compassion invite all readers in. She has created a forceful and fresh point of view from which to anatomize power, access, and perception in her precise, unsparing prose. A necessary, relentlessly honest book that feels both of the moment and timeless. * Whiting Foundation Judges citation *Jones is a magnificent guide, fiercely sharp and fiercely human. This book is for anyone who wants to immerse into a world of beauty, who wants to get real about the roots of their desire, and who can't quite kick the habit of admiring the structures-and humans-who harm them. The questions she raises will resound in your head for a long time to come. * Lulu Fisher, author of Why Fish Don't Exist and host of Radiolab *This book is utterly remarkable. I was spellbound by the style, the ideas, the vulnerability, the talent. * Lydia Kiesling, author of The Golden State *Dazzling . . . Chloe Cooper Jones challenges society's rules of attraction with razor-sharp wit and intellect . . .[and) makes a brilliant case for the beauty of complexity * Starred Publishers Weekly *Exquisite. Here Pulitzer finalist Jones reflects on our standards of beauty from the perspective of a disabled woman whose rare congenital condition affects her stature and gait, and leaves her in constant pain. But it's ultimately motherhood that liberates her, and prompts her to re-examine the limitations she has accepted as givens. * O Magazine *Jones challenges the unspoken social taboos about the disabled body, unpacking myths of beauty and our complicity in upholding those myths. Blending journalism, philosophy, and memoir, it's a book that everyone will be talking about. * Lit Hub *A memoir full of insight as the author tries to wrestle understanding and ownership of herself from a world still eager to assert its sovereignty over the female body. * Jarred McGinnis, author of The Coward *A soul-stretching, breathtaking existential memoir chronicles her reclaiming of body, mind, and self . . . Superlative writing, rendering complex emotion and unparalleled insight in skilfully precise language. Her debut is a game-changing gift to readers. * Booklist, starred review *Despite doctors' dire predictions that she wouldn't live, walk or have children, she has done these things and more. Here, she probes the ways a culture determines a person's value and embarks on a journey to understand the myth of beauty and her own unintentional complicity in it. * Washington Post *The multiple depths that Jones plumbs in Easy Beauty results in a memoir that can't easily be classified. The same can be said for the book's author. Jones is a Pulitzer Prize finalist, a philosophy professor and a writer, who delves into her journey as a daughter, mother, wife and her search for a new way of seeing the world. In other words, her story is about the complexity of the human experience and the questions of identity and belonging that plague us all. * People Magazine *Inspired in part by the shift Jones saw in others' perceptions of her during her pregnancy, Easy Beauty challenges deep-seated assumptions about who gets to be capable, trustworthy, and desirable. * Bustle Magazine *Candid and truth-seeking, this memoir charts the act of refocusing and realigning the ways we view and interpret ourselves * NB Magazine *Achingly felt, Jones's writing is a revelation * Publishers Weekly, Best Books of 2022 *Easy Beauty is an exquisite exploration of disability, identity, and the human capacity to do (and be) more than we've ever dreamed * Time *Touching and often humorous... explores life from the perspective of those who don't conform to conventional beauty standards -- Charlotte Heathcote * Daily Record *Genius... Shifted my understanding of a world I've only experienced while able-bodied -- Best Memoirs of 2022 * Vulture *Moving, incisive... Jones resists sentimentality and is as unsparing of herself as she is of other people, and yet she writes with such graciousness. A wonderful debut -- Tomi Obaro * Buzzfeed News *Gorgeous, concise and often very funny... a gripping memoir about parenting, disabilities and figuring out what to do next... a philosophical masterpiece, written in the tradition of those who see philosophy not as a dry academic subject but as a way of life * Coachella Review *A masterpiece ... Cooper Jones uses the particulars of her own experience to formulate ideas that are at once universally applicable and genuinely profound * Irish Times *

Read more less

Book Synopsis''Incredible insight with a transgressive, witty, spirit.'' COURTNEY LOVE''The most sensational read of 2022!'' GEMMA COLLINS''A breath of fresh air... I want so many people to read this!'' TRAVIS ALABANZA''Visionary'' VIV ALBERTINEA STYLIST MUST-READ FOR 2022Wellness is oppressive, self-love is a trap, hustling is a health risk and it''s all the patriarchy''s fault. Poor Little Sick Girls is THE book for femmes who are online and want more from activism and life.Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find Trade ReviewA crystal-clear mirror held up to contemporary feminism . . . Ione Gamble examines feminism's fourth wave and its intersections with the internet and capitalism, to brilliant effect . . .Gamble inventively and accessibly explores the roots of feminism as it exists materially today. * i News *A clear-sighted, critically needed skewering of hustle culture, wellness and modern feminism's blind spots, Ione pulls no punches in Poor Little Sick Girls. Everyone - and I mean everyone - should read this book. -- Yomi AdegokeA sizzling insight into how tropes about sick women and unacceptable bodies have been constructed throughout history through a cultural and personal lens. Ione writes with warmth, honesty and nuance, inviting the reader into a conversation that has, up until now, been afforded little space for exploration. -- Liv LittleI inhaled Poor Little Sick Girls in one sitting. This book is smart, addictive, wry and insightful. At a time when online discourse feels so muddled, Ione manages to pick through the weeds with characteristic humour and nuance. This is the anti-girlboss Bible and I love it. -- Daisy JonesA thrilling exploration of the relationships between bodies, abstract forces like language and stereotypes, and the material conditions that shape young adults' lives. Ione Gamble's incisive analysis of the last 15 years of social media, pop culture, and online feminism both illuminate the sources of present-day challenges and model a more liberatory way forward. By tracing the pieces of her self to facets of her environment, she demonstrates how much of a responsibility we have to one another - and that, for all the cynical powers that make our world, we also have the power to remake ourselves. -- Tavi GevinsonWhere so much online is generic and conformist, Ione Gamble's aesthetic and vision is anything but. A style icon and writer who seamlessly blends the esoteric and the obscure with popular culture as well as a commitment to many forms of social justice, her forthcoming book Poor Little Sick Girls is bound to be a treat! -- Emma DabiriOne of the sharpest, wittiest and most incisive thinkers of her generation. I always want to hear Ione's perspective on feminism, culture, and art - or just about anything -- Sirin KaleIone is fiercely unapologetic and a defining voice of our generation. It's especially powerful to see how her own experiences of living as a sick person intersect with her discussions on feminism. This will resonate with anyone who has ever been seen as "unacceptable" and decided to think critically about that. -- Cat White

Read more less

Book SynopsisThe Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability.Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, Trade Review"Covers an impressive range of topics. . . [and] a wealth of diversity in issues, perspectives, and arguments . . . . Overall, this book is an excellent resource, and should be considered by those designing university courses relating to bioethics [and] medical law and ethics."Heloise Robinson in Medical Law Review Table of Contents1. A Short History of Modern Medicine and Disability 2. Eugenics, Disability, and Bioethics 3. Theories of Disability 4. A Critical History of Bioethics 5. Methods of Bioethics 6. Disability Bioethics 7. Disability and the Definition of Health 8. The Lived Experiences of Illness and Disability 9. Abortion, Disability Rights, and Reproductive Justice 10. A Fatal Attraction to Normalizing 11. Being Disabled and Contemplating Disabled Children 12. The Wrongs of Wrongful Birth 13. Disability, Ideology, and Quality of Life 14. The Challenge of Chronic Pain 15. Chronic Illness and Well-Being 16. Disability and Aging Studies 17. Death, Pandemic, and Intersectionality 18. Disorders of Consciousness, Disability Rights, and Triage during the COVID-19 Pandemic 19. Bioethical Issues in Dementia and Alzheimer's Disease 20. Between “Aid in Dying” and “Assisted Suicide” 21. Theorizing the Intersections of Ableism, Sanism, Ageism and Suicidism in Suicide and Physician-Assisted Death Debates 22. Disability Bioethics and Race 23. Bioethics and the Deaf Community 24. Hunger Always Wins 25. Trans Care within and against the Medical-Industrial Complex 26. Defining Mental Illness & Psychiatric Disability 27. Research Ethics and Intellectual Disability 28. Inconvenient Complications to Patient Choice and Psychiatric Detention 29. Disability Bioethics, Ashley X, and Disability Justice for People with Cognitive Impairments 30. Feminist Theorizing and Disability Bioethics 31. Disability Bioethics and Epistemic Injustice 32. Disability Studies Meets Animal Studies 33. Improving Access within the Clinic 34. The Goals of Medical Technology 35. "Why insist on justice, why not settle for kindness?" Kindness, justice, and cognitive disability 36. Selections of Brilliant Imperfection

Read more less

Book SynopsisWhat happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capTrade Review'Making no humanist friends, Altermark's outstanding book disseminates the very ideals of citizenship that are peddled in the name of social inclusion but are revealed to be of the most pernicious kinds of thought that render people with intellectual disabilities surplus to requirements. Read this. Read it now.' - Daniel Goodley, Director of Research, The Universtiy of SheffieldTable of ContentsAcknowledgements; Part I: Introduction; Chapter 1. Post-Institutional; Chapter 2. Pathology; Part II: Citizenship; Chapter 3. Philosophy; Chapter 4. Discourse; Chapter 5. Control; Part III: Resistance; Chapter 6. Vulnerability; Chapter 7. Representation; Chapter 8. Ethics; Conclusions: Post-Institutional Critique; Appendix 1 References; Index

Read more less

Book SynopsisBuilding on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and âothersâ, including dyslexics, autistics and ADHDers.This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questTrade Review"This must-read research-based text represents a step-change in our understanding of neurodiversity; challenging old assumptions, generating new knowledge and understandings of importance to us all. Written by editors and authors who really know what they are talking about, and organised around five key themes, it builds on critical race theory, feminist and queer studies, connects with disability and Mad Studies, to explore a new and important field – Neurodiversity Studies."Peter Beresford, Professor of Citizen Participation at the University of Essex, UK, and Co-Chair of Shaping Our Lives, the national user led organisation."The increasing recognition that there is no 'normal' brain type against which all others must be judged pathological is having a transformative effect on every aspect of society: on employment, education, research, public policy, and how we conceive of the minds of other people. This book makes an important contribution to the evolving scholarly discourse around neurodiversity by centering the voices and experiences of neurodivergent people."Steve Silberman, author of the prize-winning "NeuroTribes: The Legacy of Autism and the Future of Neurodiversity". "There is SO MUCH here. The essays by Alyssa Hillary and Matthew Belmonte alone are worth the cost of the book. Neurodiversity advances, less like an army than like an ecosystem after a fire. Growth and renewal beyond measure."Ralph James Savarese, Professor of English, Grinnell College and author of "See It Feelingly: Classic Novels, Autistic Readers, and the Schooling of a No-Good English Professor"."Neurodiversity Studies: A New Critical Paradigm is interesting, enjoyable and thought provoking, and I think its theoretical discourse and positions have clear constructive practical implications which really matter."Dinah Murray, autism researcher and campaigner productiveirritant.org. "Neurodiversity Studies: A New Critical Paradigm provides a deep-dive into the complex world of autism and the neurologically different. Ranging through the humanities, social sciences, philosophy, ethics, and communication studies, among other areas, the book breaks new ground in the academic study of the inner worlds and sensoria of a significant portion of the population too often ignored politically while over-treated medically."Lennard J. Davis, Distinguished Professor of English at the University of Illinois at Chicago, School of Arts and Sciences, and also Professor of Disability and Human Development in the School of Applied Health Sciences and Professor of Medical Education in the University of Illinois College of Medicine, USA."This superb collection builds upon previous efforts of scholars and activists to decentre normative assumptions of what it is to be human and create an interdisciplinary discursive space, formulating neurodiversity studies as a new field of enquiry ... highly recommended would be an understatement!" Dr Damian Milton, Lecturer in Intellectual and Developmental Disabilities, University of Kent, National Autistic Society as Autism Knowledge and Expertise Consultant and chair of the Participatory Autism Research Collective (PARC). Table of ContentsIntroduction Curing Neurodivergence/Eugenics1. The Production of the ‘Normal’ Child: Neurodiversity and the Commodification of Parenting 2. Language Games Used to Construct Pathological Autism 3. Is There an Ethical Case for the Prevention and/or Cure of Autism? Neurodivergent Wellbeing4. Neurodiversity, Disability, Wellbeing 5. Neurodiversity in a Neurotypical World: An Enactive Framework for Investigating Autism and Social Institutions Cross-Neurotype Communication6. Neurodiversity and Cross-Cultural Communication 7. Understanding Empathy Through a Study of Autistic Life Writing: On the Importance of Neurodiverse Morality 8. Sensory Strangers: Travels in Normate Sensory Worlds Neurodiversity at Work9. Practical Scholarship: Optimising Beneficial Research Collaborations Between Autistic Scholars, Professional Services Staff and ‘Typical Academics’ in UK Universities 10. Designing an Autistic Space for Research: Exploring the Impact of Context, Space, and Sociality in Autistic Writing Processes 11. How Individuals and Institutions Can Learn to Make Room for Human Cognitive Diversity: A Personal Perspective from My Life in Neuroscience Challenging Brain-Bound Cognition12. Understanding Autistic Individuals: Cognitive Diversity not Theoretical Deficit Moving Forwards 13. Neuronormativity in Theorising Agency: An Argument for a Critical Neurodiversity Approach 14. Defining Neurodiversity for Research and Practice 15. A New Alliance? The Hearing Voices Movement and Neurodiversity Conclusion

Read more less

Book SynopsisThis book examines the role of disability in the right to political and social participation, an act of citizenship that many disabled people do not enjoy.The disability rights movement does not accept the use of disability to create limits on citizenship, which poses challenges for contemporary societies that will become ever greater as the science and technology of enhancing human abilities evolves. Comprised of eight chapters, three interludes, and a postscript written by leading scholars and disability rights activists, the book explores citizenship for people with disabilities from an interdisciplinary perspective using the United Nations Convention on the Rights of Persons with Disabilities (CRPD) as a point of departure and the concept of universal design as a strategy for actualizing full citizenship for all. Situating disability in its historical and cultural contexts, the authors offer directions for rethinking citizenship, including implications for access to the built environment, information and communication systems, education, work, community life and politics.This book will be of interest to all scholars and students working in disability studies, planning, architecture, public health, rehabilitation, social work, and education.

Read more less

Book SynopsisThis handbook provides an authoritative and up-to-date overview of Critical Autism Studies and explores the different kinds of knowledges and their articulations, similarities, and differences across cultural contexts and key tensions within this subdiscipline. Critical Autism Studies is a developing area occupying an exciting space of development within learning and teaching in higher education. It has a strong trajectory within the autistic academic and advocate community in resistance and response to the persistence of autism retaining an identity as a genetic disorder of the brain. Divided into four parts Conceptualising autism Autistic identity Community and culture Practice and comprising 24 newly commissioned chapters written by academics and activists, it explores areas of education, Critical Race Theory, domestic violence and abuse, sexuality, biopolitics, health, and social care practices. It will be of interest to all scholars and stude

Read more less