Coping with / advice about illness and specific health conditions Books

Book SynopsisThe book covers both caring for the terminally ill and the 'actual' bereavement, thus providing guidance on the whole process of counselling patients and their families. Case studies include examples from cancer, AIDS, suicide , murder and fatal accidents. Problems counsellors may face in their work are discussed and a chapter is devoted to the needs of the counsellor themselves.Trade Review'All nurses will be familiar with many of the case histories with which the book is well illustrated, many which relate directly to the environment of the practice nurse ... Although the book focuses on the counselling needed by the patient and family at times of death and bereavement many of the principles discussed and the techniques which are used have an enormous value in other circumstances such as following attempted suicide, alcohol abuse, depression, aggression or chronic anxiety. It is in these areas that the book may be of even greater use to the practice nurse.' Practice Nurse. ' "Thoughtful and practical" is how the publisher describes this book by three authors who have made a massive contribution to the development of contemporary bereavement care. This is a fair assessment. This book is written in a straightforward language, with many case studies which provide practical illustrations of approaches, but it retains a sense of the complexity of human beings and attempts to set any presumptions offered within a framework of recognising diversity.' Progress in Palliative Care.Table of Contents1. Families in transition. 2. The caring team. 3. Counselling skills. 4. Counselling for life-threatening illness. 5. Counselling the family before bereavement. 6. Counselling the family after bereavement. 7. Problems in counselling.

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Book SynopsisUp to 85% of the Asperger's population are without full-time employment, though many have above-average intelligence. Rudy Simone, an adult with Asperger's Syndrome and an accomplished author, consultant, and musician, created this insightful resource to help employers, educators, and therapists accommodate this growing population, and to help people with Asperger’s find and keep gainful employment.Rudy's candid advice is based on her personal experiences and the experiences of over fifty adults with Asperger's from all over the world, in addition to their employers and numerous experts in the field. Detailed lists provide balanced guidelines for success, while Rudy's "Interview Tips" and "Personal Job Map" tools will help Aspergians, young or old, find their employment niche. There is more to a job than what the tasks are: from social blunders, to sensory issues, to bullying by coworkers, Simone presents solutions to difficult challenges. Readers will be enriched, enlightened, and ready to work―together!Trade ReviewThis is a most timely book! I'm pleased to see someone finally write about the incredible value of employees with Asperger's Syndrome (they're wonderful employees). Based on her typical, thorough research and documentation, author Rudy Simone shows us how people with Asperger's and their employers can find mutual success in the workplace. This book is THE guide for how people on the spectrum can find jobs and succeed. It's MUST reading for employers, teachers, and those with Asperger's looking for work." —Craig Evans, Founder of AutismHangout.com"If I had read this book when I was in my twenties, I could have avoided many problems with coworkers. I truly believe that this book will help individuals on the autism spectrum get, and keep, the fulfilling jobs that they deserve." —Temple Grandin, Ph.D., world-famous autism expert and author of The Way I See It: A Personal Look at Autism and Asperger'sTable of Contents Introduction Chapter 1. Believe It AS can be invisible; this can confuse employers and co-workers People with AS may be told they don’t seem autistic; this is often invalidating Problems with adult diagnosis What the Employee Can Do What the Employer Can Do Chapter 2. The Big Consequences of Small Talk Small talk is difficult and the source of great discomfort Needing to know the ‘unspoken job requirements’ The AS view of small talk and its apparent importance over quality of work Social rituals, humor, hyperlexia People with AS like to work—they aren’t there to be popular What the Employee Can Do What the Employer Can Do Chapter 3. Bluntness, Blunders, Boundaries and Emotional… Detachment People with Asperger's have an irrepressible urge to inform Blunders, politics and appropriate topics of conversation at work Being misunderstood is a constant source of pain Being logical rather than emotional can make an AS person seem cold Being genuine is extremely important to the person with Asperger's What the Employee Can Do What the Employer Can Do Chapter 4. Please Do NOT Fill In The Blank Blank facial expression Trouble with facial recognition Eye contact Body language (incl. stimming) What the Employee Can Do What the Employer Can Do Chapter 5. Quiet Please Overstimulation and the need for quiet People with AS have a ‘fight or flight’ reaction to social contact Getting confused by noise The comorbid condition of post traumatic stress disorder The Asperger ability to focus Private workspace What the Employee Can Do What the Employer Can Do Chapter 6. Good Common Sense Environmental sensitivity – the canaries in the coal mine Visual overstimulation Fluorescent lights v. natural light Fresh air and temperatures What the Employee Can Do What the Employer Can Do Chapter 7. Trust me, I have Asperger’s Internal motivation and a diligent, perfectionist attention to detail The need for clear instructions Deadlines and flexibility within time frames; flexible hours Scrutiny v. trust impacts performance Telecommuting as a possible solution People with AS often work long hours and don’t need to be watched What the Employee Can Do What the Employer Can Do Chapter 8. Perfectionism and that Famous Asperger Arrogance People with AS are perfectionists Intentions often misunderstood (wanting to make it better v. complaining) Ability to perceive problems and what is wrong but not expressing it tactfully Fluid Intelligence v. Crystallized Intelligence (people with AS have higher FI) Feeling underutilized and underappreciated What the Employee Can Do What the Employer Can Do Chapter 9. Polyester Prisons, Neck-tie Nooses and High-heeled Hell Comfort is very important due to sensory issues Certain work requirements seem impractical Choosing what to wear AS skin sensitivity and food allergies What the Employee Can Do What the Employer Can Do Chapter 10. A Little R&R Goes a Long Way: Ritual and Routine Maintaining control over a situation is a stress management technique Little changes can cause big stress Withdrawal is one form of control Finding comfort in routine Rigid adherence to ritual or control can be mistaken for stubbornness What the Employee Can Do What the Employer Can Do Chapter 11. Don’t Tell Them Where You Heard This, But… People with Asperger's often become the subject of gossip Disclosure and/or keeping separate from the crowd doesn’t always help Often familiarity breeds contempt (as ‘quirks’ come out) The constant struggle to be accepted saps confidence over time Gossip often destroys a person’s enjoyment of their job Young or old, educated or not, we all gossip Females often possess a naivetÉ that is mistaken for flirting or promiscuity Getting along with coworkers is a major hurdle Some get more comfortable over time—acceptance is key What the Employee Can Do What the Employer Can Do Chapter 12. The High Cost of Low Behavior Bullies cost employers money: in sick pay, turnover rates, and lost productivity Definition of workplace bullying People with Asperger's are very likely to be bullied at some point and make easy targets The bully is sometimes the boss Inadequacies in legal protection What the Employee Can Do What the Employer Can Do Chapter 13. The Power of Praise Obvious positive reinforcement is necessary due to AS inability to read subtle cues Motivate people for the right reasons instead of punishing them for the wrong Positive reinforcement must be done in real time, not after the fact What people with AS want from their boss What the Employee Can Do What the Employer Can Do Chapter 14. Working with Natural Strengths and Interests Don’t push someone into a role they are unsuited for Social weaknesses can be career strengths An AS person might excel at just about any solitary activity in which they can control all the elements Job-sharing or job-pairing Medication controversy: AS is not psychological but neurological, although depression can and does occur as a comorbid symptom of Asperger's There is no pill to cure autism and many would not want to be cured of AS The Personal Job Map What the Employee Can Do What the Employer Can Do Chapter 15. Psychometric Testing and the New Segregation People with AS are non-conformist The rise of the Personality Test (PT) The controversy over PTs / unfair to autistics Examples from a PT The AS perspective of a PT The role of the maverick or eccentric in the workplace You can prepare for the PT What the Employee Can Do What the Employer Can Do Chapter 16. Asperger's and Education: Star-crossed Lovers? Despite high intelligence, love of learning, many have difficulty finishing school or getting a degree Universities lack awareness and resources AS employee may have abilities and intelligence greater than their education would indicate Lower level jobs often require people skills Switching jobs and careers several times is not unusual A degree is no guarantee if workplace concerns are not addressed and needs met What the Employee Can Do What the Employer Can Do Chapter 17. To Tell or Not to Tell, That IS the Question Disclosure Pros and Cons AS perspective Discrimination and protection What the Employee Can Do What the Employer Can Do Chapter 18. Bye Bye Black Sheep – Avoiding the Asperger Pre-emptive Strike Avoiding the preemptive strike of ‘quit before you fail’ Warning signs Reasons for early self-termination of employment (recap of issues) Lack of meaning in life and feeling suicidal Re-cap of all key advice and strategies for AS person Chapter 19. REACH to Succeed Explanation of acronym The AS person can’t expect the whole world to change around them Use the gifts of Asperger's to succeed Summary of the main points of the book Appendix A: Interview Tips for those with AS Appendix B: DSM-IV-TR Criteria for Asperger's Syndrome References Resources

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Book SynopsisThe Littlest Inventor is a brilliantly colored picture book featuring a smart, sensitive boy with sensory issues.These issues make it challenging to experience something most of us have no problem with, like a simple tripto the grocery store. But, by being both self-aware and proactive, the Littlest Inventor can help himself succeedin the very task he finds most difficult. He invents his own resources and tools to make the trip fun!For those with sensory processing disorder, life can often be overwhelming. But, when equipped withknowledge to help ourselves and confidence to be ourselves, life becomes not just manageable, but enjoyable.""There needs to be more emphasis on what a child can do instead of what he cannot do."" - Dr. TempleGrandinTrade ReviewThe Littlest Inventor takes the stigma off Asperger’s syndrome by advocating for inclusion in school and in public."- The Onconee Enterprise

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Book SynopsisDr. Temple Grandin’s pocket guide to older kids and young adults with autism!Dr. Temple Grandin is a doctor of animal science, professor at Colorado State University, best-selling author, autism activist, and consultant on animal behavior.She also invented the ""squeeze machine,"" a device to calm the sensory systems of those on the autism spectrum. The subject of the award-winning 2010 biographical fim Temple Grandin, she was listed in Time magazine amoung the world's one hundred most influential people.Have you ever wanted to get Temple's ideas on growing up as an OLDER child with autism? Now you can. Here, in this handy reference book, Temple gives an overview of what it is like to grow up and get a career with autism, tells how she overcame certain issues, gives useful tips, then answers your questions in an easy to reference Q&A.

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Book SynopsisChildren can learn about their own sensory processing through a variety of practical examples in this coloringbook. They'll learn how they are processing sensations throughout the day and gain an awareness andappreciation of their marvelous nervous system!Trade ReviewAt times, the level of detail is astonishing for a kid's book and the words used never pander to the very young but remain consistent and scientific. [...] Color my Senses by Paula Aquilla BSc, OT, DOMP is without a doubt the best book on the sensory system aimed at young children, but due to the language and detail, its usefulness extends well beyond the early years and it is equally suitable for older children who need an introduction to the senses."- Gavin Bollard, Life with Aspergers Blog"[A] simple book that neatly teaches children about their sensory system while they colour in the pictures. How many other books would introduce the concept of proprioception by suggesting, 'feel the position of your foot as it touches the ground' while offering a drawing of the same that readers can colour in?'.-Autism|eye

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Book SynopsisIn this illustrated book for children ages six through nine, and based on the article, ""How One Adult With SPDWants to Explain this Condition to Your Sensory Child"" (http://thebodyisnotanapology.com/magazine/how-oneadult-with-spd-wants-to-explain-this-condition-to-your-sensory-child/), SPD adult advocates Rachel and Kellywill lead kids and their parents through the basic ins-and-outs of what it means to have Sensory ProcessingDisorders(SPD).Sensory Like You features illustrated versions of Rachel and Kelly acting as guides for their young readers andserving as examples as they learn about their own SPD, undergo occupational therapy, cope with school,navigate friendships, and celebrate their own differences. In fact, the overarching focus of the book will be onacceptance as well as companionship. Through their older, trustworthy sensory guides, children will bereminded that it's okay to have SPD and they're not alone in how they perceive the sensory world.

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Book SynopsisLiving Normally with Dementia tells the successful story of Dagmarsminde, a small innovative nursing home in Denmark with a remarkable and life-affirming approach to dementia care.The philosophy and lived experiences of this model home are illustrated with real examples and vignettes from day-to-day care. The founder and staff offer a replicable approach to helping their residents with dementia enjoy a richer, more normal-feeling life than residents receiving the “usual care” in most settings. The staff, in turn, enjoy the professional rewards of following their calling to this work with confidence and compassion.Person-centered practices define the daily routine and include a focus on good nutrition, contact with nature, healthy physical activities, and as much independence in activities of daily living as possible. The needs and progress of each resident are paramount.From the time a new resident arrives at the home until the person has died, the goal of care is to help residentsThrive in a home where they are heard and respected at all timesHave a medication-free existence as much as possibleRemain independently mobile by walking without assistive devices unless absolutely necessaryEnjoy family-style dining with staff and residents togetherExperience ordinary sights and sounds of nature—from household pets to small farm animals, garden flowers, and nearby woodsThis book invites leaders, direct care partners, students, and families to immerse themselves in a home that operates very differently from traditional, institutional nursing homes. The goal is to help readers around the world envision new, more satisfying ways of working with people living with dementia and to explore new approaches in their own care homes.Table of Contents Preface Introduction to Dagmarsminde About the Author Acknowledgments DedicationPart I. The Rehabilitating and Stabilizing Phase The Move: Crossing the Threshold to a New Life Aesthetics: Balancing the Mind with DÉcor The Craft of Nursing: Good Judgment and Hands-on Care The Call to Service: The Selfless Workplace Tapering Off Medication: Purification and Stability Exercise: Active Residents Seize the Day Assistive Devices for Mobility Working with Energies: A Dynamic Balance The Circadian Rhythm: Open-eyed Residents The Routine: Together from Morning till Night Sanatorium Practices The Great Outdoors: Sensing at the Highest Level Nourishing Body and Mind Continuing Family Traditions Under Observation: Looking After the Health of Our Residents Part II. The Weakening Phase Swallowing Problems: When Eating Solid Foods is Difficult Approaching the End of Life Part III. The Final Phase Working with the Family The Dying Process The Wake

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Book SynopsisMake leisure time fun for all children and adults with autism spectrum disorders.Meaningful leisure time should be a part of the day that all look forward to enjoying. For many, it can cause anxiety and fear.This book provides comprehensive, structured strategies introducing meaningful leisure time to ASD children and adults, which they can practice at home, school, and in the community. This book has a wealth of ASD information, including forms and charts that will help to assess sensory needs; select ageappropriate activities and assist in determining the level of interest in specific activities; 48 “Activity Cards” for going to the park, playing games, and many more!Trade ReviewThis book provides structured strategies to introduce meaningful leisure time to children and adults with an ASD that they can practice at home, in school, and in the community. It includes forms and charts to assess sensory need and select age-appropriate activities." - Autism Eye "This resource should be on the bookshelves of all who love or work with ASD children and adults. It’s a well-written, user-friendly guide full of structured strategies to make leisure time fun instead of anxiety-provoking. If you are the parent of an autistic child who requires your constant presence and you find even attending to your personal needs (like taking a shower) difficult, you will value the time when your child learns to enjoy activities to entertain himself safely with minimal supervision.This is a resource to be used again and again. It has practical and comprehensive information to increase the quality of life of autistics and their families by guiding them to find personally meaningful and satisfying leisure pursuits. Because of its importance to quality of life, leisure is being included more and more in individual support plans (ISPs), individualized educational plans (IEPs), and other formal plans for those with ASD."- Frienshipcircle.org, 5 Books for Those Supporting Individuals with Autism and Sensory IssuesTable of Contents Preface Contents of This Book Revisions and Additions in the Second Edition How to Use This Book Chapter 1: Leisure and Autism Spectrum Disorder Importance of Leisure Engagement Nature of Autism Spectrum Disorder Three Individuals Featured in this Book Pattern of Leisure Engagement Summary Chapter 2: Components of Leisure Development The Immediate Component The Exposure Component The Training Component Interrelationship of the Components of Leisure Development Summary Chapter 3: Leisure Assessment Interviews Direct Observation Surveys Recording Leisure Pattern and Skills Summary Chapter 4: The Immediate Component of Leisure Development Key Elements of the Immediate Component Meaningful Engagement During Unstructured Time Sensory Preferences and Special Interests Untaught Materials and Activities with Minimal Supervision Formative Assessment Summary Chapter 5: The Exposure Component of Leisure Development Key Elements of the Exposure Component Discovery of New Leisure Interests Guidelines for Activity Selection Repeated and Supported Exposure to New Activities Formative Assessment Summary Chapter 6: The Training Component of Leisure Development Key Elements of the Training Component Leisure Activities and Related Skills Development Guidelines for Prioritizing Activities Systematic Training Formative Assessment Summary Appendices: Forms, Charts & Activity Cards Appendix Contents Appendix A. Leisure Behavior & Activities Lists Appendix B. Blank Forms for Assessment Appendix C. Support and Training Strategies Appendix D. Activity Cards References

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Book SynopsisThis book presents muscular dystrophy (MD) as a group of genetic diseases with a worldwide occurrence of about 1 in 3,500 births that causes muscle wasting and weakening. It describes Duchenne MD as the most common type of MD, almost exclusively affecting males at a rate of about 1 in 5,000 boys, and eight rarer types of MD that are categorized by age of onset, muscles affected, disease progression, severity of symptoms, and health complications. The author describes how physical examination, muscle biopsy, medical imaging, and genetic testing is used to diagnose MD He further explains the underlying causes of the various types of MD as mutations in genes that encode proteins needed for the development, function, maintenance, and replacement of muscle cells and illustrates patterns by which they are inherited.There is no treatment that can reverse the progressive deterioration of muscles caused by MD, but the book offers insight into drug treatments and physical therapies that help maintain muscle strength and reduce health complications. It concludes with explanations of promising new ways to treat or perhaps cure MD, including experimental drugs, stem cell therapy, and gene therapy.

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Book SynopsisThis book describes newborn screening as a public health program for the early detection of genetic disorders. It presents the recommended uniform screening panel (RUSP), a list of genetic disorders recommended by the U.S. government for states to include in newborn screening programs. The author describes the categorization of RUSP genetic disorders, discusses the symptoms and health complications of examples from each category, and explains clinical laboratory tests used for newborn screening. The book explores the underlying molecular genetic causes of genetic disorders, and how this information is used for genetic testing during newborn screening and diagnosis. It presents the patterns of inheritance of monogenic genetic disorders, and uses hypothetical family scenarios to illustrate them. Treatments and therapies for selected RUSP genetic disorders are described that illustrate the benefits of early diagnosis. The book describes future prospects for the prevention, diagnosis, and treatment of genetic disorders detected by newborn screening, including experimental drug treatments, the possibility of newborn genome sequencing, and gene therapy.

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Book SynopsisVaccinations provide an effective way to prevent fatal diseases or reduce their symptoms. This book highlights four infectious diseases: polio, tetanus, measles, and mumps. These four diseases are very harmful to human health and are difficult to treat after the infection because they are caused by a toxin or pathogenic virus. In all four cases, the disease exhibits different modes of transmission and progression of symptoms, which require unique treatment regimens. However, all cases can be prevented by vaccinations administered prior to infection.This book summarizes the symptoms and disease progression of all the four diseases and provides information about the toxin or virus that causes each disease. The ability to harness our immune system through vaccination is discussed in the context of disease prevention. Minor and infrequent risks associated with vaccination are also described, but the very dangerous misconception that vaccines cause autism or other major illnesses is strongly refuted.

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Book SynopsisThis concise book on endocrinology and diabetes deals with the core knowledge with emphasis on clinical application, bed side assessment, evaluation, and workup of such patients. It is richly loaded with lists and tables outlining the clinical features, diagnosis, and management. Diabetes and Endocrinology serves as an invaluable supplement for the preparation of undergraduate and postgraduate viva voce and bedside short and long case examination. Facts are outlined in tabulated format for easy access and learning. Photographs and figures are added where necessary to augment understanding. The book will provide relevant knowledge and clinical skills to diagnose and assess the patient's problem and address most clinical perils in the subject at the bedside.

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Book SynopsisDeals simultaneously with examination technique, detail pathophysiological principles, differential diagnosis and clinical interpretation, along with applied medicine about the common respiratory diseases. Medical students or postgraduates will learn history taking, clinical examination and find relevant applied medical knowledge needed for bedside assessment of the patient. This book will guide towards a correct diagnosis by history and examination, as well as provide relevant differential diagnosis, localize the disease, and identify the cause. It will fill this gap and inspire the reader to gain confidence not only in the performance of the examination but also to answer most bedside queries and problems and will serve as an indispensable resource for preparation of undergraduate and postgraduate viva and short and long case examination.

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Book SynopsisDiscusses arterial blood gases, pulmonary function tests, respiratory failure and radiology, and a picture quiz with multiple-choice questions related to pulmonology. Numerous diagrams and figures have been included to stimulate understanding and learning. It is complemented by volume one which includes the foundations of respiratory examination and applied medicine along with pathophysiological principles, differential diagnosis, and clinical interpretations. The brief facts given with each image will help answer most bedside queries and problems and will serve as an indispensable resource for preparation of undergraduate and postgraduate examinations. The book is a collection of facts and relevant details in the clinical assessment of patients with respiratory disorders.

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Book SynopsisFrank Nawroth thematisiert das Social Freezing und die zugehörige Beratung, die nicht nur Chancen, sondern auch denkbare Komplikationen und Grenzen der Methode aufzeigen muss. Zum Beispiel haben die gesellschaftspolitisch nicht optimal gelöste Problematik des möglichen Karriere-Nachteils einer berufstätigen Mutter oder die häufig bestehende Schwierigkeit, den geeigneten Partner zu finden, bei gleichzeitig verbesserten Kryokonservierungsmethoden dazu geführt, dass Frauen ohne medizinische Indikation über das Einfrieren ihrer Eizellen nachdenken. Die Technologie selbst ist seit Längerem Routine vor fertilitätsbeeinträchtigenden Therapien onkologischer Erkrankungen (Operation, Strahlen- und/oder Chemotherapie) im reproduktiven Alter.Table of ContentsGrundlagen der Methode.- Durchführung des Social Freezing.- Chancen, mögliche Komplikationen, Grenzen des Social Freezing.

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Book SynopsisPraxisnahe Anleitung zur optimalen Beratung und Betreuung von Kinderwunschpaaren, dafür steht das in dieser 3. Auflage erweiterte Autorenteam aus ausgewiesenen Spezialisten.Durchgehend aktualisiert führt das Buch seine Leser durch alle relevanten Themen und alles Wissenswerte zur Kinderwunschsprechstunde:- Grundlagen zu Physiologie und Familienplanung- Darstellung verschiedener Gegebenheiten in Fallbeispielen- Konkrete Praxistipps zu Beratung, Diagnostik und Therapie- Herangehensweise an unterschiedliche AusgangssituationenNeue Kapitel ergänzen die bewährte Zusammenstellung der Inhalte:- Fertilitätsprophylaxe bei malignen Erkrankungen- Rechtliche Aspekte der KinderwunschbehandlungTrade Review“… ein Werk, in dem das Basiswissen zum Thema Kinderwunsch in der gynäkologischen Praxis zusammengefasst, klare Empfehlungen zum Vorgehen bei typischen Fragestellungen erarbeitet werden und relevantes Wissen gebündelt, kurz und übersichtlich aufbereitet dargestellt wird ...” (in: Ärzte Zeitung, Heft 41, 17. April 2015)Table of ContentsPhysiologische Grundlagen.- Natürliche Familienplanung.- Hormonanalytik.- Systematischer Ansatz zur Diagnostik und Therapie bei Kinderwunschpaaren.- Lebensführung und Konzeptionschancen.- Grundlagen der ovariellen Stimulation.- Aufklärung zu Schwangerschaft und Geburt bei subfertilen Paaren.- Fertilitätsprophylaxe bei malignen Erkrankungen.- Anhang.

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Book SynopsisJane McLelland tenía solo 30 años cuando le diagnosticaron cáncer. Unos años más tarde estaba en fase 4 (o terminal) y se había extendido a sus pulmones. Le dieron una esperanza de vida de doce semanas, pero se negó a creer que no existieran medicamentos o terapias eficaces. Su formación científica le permitió examinar y asimilar cientos de artículos de investigación y la conclusión a la que llegó la dejó asombrada. Habría una nueva forma de tratar el cáncer entre la extrema toxicidad de la quimioterapia de dosis alta y las terapias alternativas? Una que pudiera sacar lo mejor de la medicina convencional, así como de la complementaria? Sería posible encontrar un tratamiento que privara a las células cancerosas de los nutrientes que necesitan como combustible? Existía la posibilidad de que ?algo? matara de hambre al cáncer, pero no a ella?Diecisiete años después, Jane está viva, llena de energía, salud, libre de cáncer y luchando para cambiar la forma en que se trata a los pacientes

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