Description
Book SynopsisHow the legalization of assisted dying is changing our lives. Over the past five years, medical aid-in-dying (also known as assisted suicide) has expanded rapidly in the United States and is now legally available to one in five Americans. This growing social and political movement heralds the possibility of a new era of choice in dying. Yet very little is publicly known about how medical aid-in-dying laws affect ordinary citizens once they are put into practice. Sociological studies of new health policies have repeatedly demonstrated that the realities often fall short of advocacy visions, raising questions about how much choice and control aid-in-dying actually affords. Scripting Death chronicles two years of ethnographic research documenting the implementation of Vermont's 2013 Patient Choice and Control at End of Life Act. Author Mara Buchbinder weaves together stories collected from patients, caregivers, health care providers, activists, and legislators to illustrate how they
Trade Review"A beautifully written, thought-provoking ethnography that traces how patients, family caregivers, health care providers, activists, and legislators navigate this new world in which MAID is a legal option. . . . This book is essential reading for courses on death and dying, health care, and bioethics and will be eye-opening for those caring for terminally ill loved ones or grappling with their own life-or-death decisions. . . . Highly recommended." * CHOICE *
“Buchbinder offers a compelling introduction to the complexity and inconsistency of ethical stances around life and death decision-making. In addition, she calls attention to the danger of reducing the forms of personhood and sociality produced through impending death to individual autonomy. And she shows the heart-wrenching consequences of unequal access to information and care in the United States. Scripting Death is a wonderful introduction to a pressing social issue.”
* Medical Anthropology Quarterly *
“"Buchbinder’s work is the latest of several highly accessible health related ethnographies that represent a resurgence of anthropology in which real people talk rather than ‘discourse,’ questions are asked rather than ‘interrogated,’ and the term ‘reinscribe’ does not appear. A welcome development." * The Hastings Center Report *
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Scripting Death provides a rich collection of Vermont stories about the challenges of organizing medical aid in dying, which serve as a microcosm of the broader problems faced by Americans in gaining access to health care." * Journal of Health Politics, Policy and Law *
Table of ContentsIntroduction
1. Scripting Choice into Law
2. Making Death
3. Starting the Conversation
4. Reconciling Assistance with the Physician's Professional Role
5. Access and the Power to Choose
6. Choreographing Death
Conclusion
Coda
Acknowledgments
Appendix: About the Research
Notes
References
Index
