Description
Book SynopsisâœIn this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.â
Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK
âœThis book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia â This is now the book that everyone who car
Table of Contents
Part 1. Theory and Everyday Life
1. Introduction: In anticipation – so what?
2. The “problem” of ethics
3. Ethical theories: Viva las virtudes!
4. Ethical approaches
5. Practical approaches: casuistry and values-based practice
6. An idea: patterns of practice
Part 2. Notions of Note
7. Stigma and resources
8. From autonomy to relational autonomy
9. From paternalism to solicitude
10. Dignity
11. Capacity and consent
12. Best interests
13. Personhood and citizenship
Part 3. Ethical research and principles
14. Dementia and ethics research
15. The Nuffield Council’s report
16. Research ethics, biomarkers and genetics
Part 4. Dilemmas in Practice
17. Diagnosis
18. Maintaining independence
19. Technology
20. Abuse
21. Accepting care
22. Behaviour
23. Forced care
24. Medication
25. Sexuality and intimacy
26. Truth-telling
27. Hospital admission
28. Food and drink
29. Antibiotics and infections
30. Ethics in the time of a pandemic
31. Resuscitation
32. Death and dying
Part 5. Conclusion
33. Putting it all together – patterns of practice
34. So what?
