Description

Book Synopsis
For decades, the field of bioethics has shaped the way we think about ethical problems in science, technology, and medicine. But its traditional emphasis on individual interests such as doctor-patient relationships, informed consent, and personal autonomy is minimally helpful in confronting the social and political challenges posed by new human biotechnologies such as assisted reproduction, human genetic modification, and DNA forensics.Beyond Bioethicsaddresses these provocative issues from an emerging standpoint that is attentive to race, gender, class, disability, privacy, and notions of democracya new biopolitics. This authoritative volume provides an overview for those grappling with the profound dilemmas posed by these developments. It brings together the work of cutting-edge thinkers from diverse fields of study and public engagement, all of them committed to this new perspective grounded in social justice and public interest values.

Trade Review
"A useful contribution. Gives both a name and a direction to a more socially conscious ethical and political framework to the controversial issues posed by developments in genomics." * Metapsychology Online Reviews *
"With the rapid development of new biotechnologies like CRISPR, Beyond Bioethics makes a timely call for a novel take on bioethics capable of addressing the significant sociopolitical implications of these technologies. . . . Bridging together thinkers across the humanities and sciences divide, Beyond Bioethics models a progressive, interdisciplinary approach to bioethics that extends beyond a focus on the individual toward a 'new biopolitics' of the global, the collective." * Somatosphere *
"As an argument for a particular focus in bioethics, with each chapter serving as a case providing an example of this focus, Beyond Bioethics is convincing. . . . covers a lot of theoretical ground, and is clear and enjoyable to read without sacrificing intelligence. It will certainly spark both scholarly discussion and student interest." * Quarterly Review of Biology *

Table of Contents
List of Illustrations
Foreword by Troy Duster
Acknowledgments
Note to Readers

Introduction - Osagie K. Obasogie and Marcy Darnovsky

Part I. The Biopolitical Critique of Bioethics: Historical Context
1. The Biological Inferiority of the Undeserving Poor - Michael B. Katz
2. Making Better Babies: Public Health and Race Betterment in Indiana, 1920–1935 - Alexandra Minna Stern
3. Eugenics and the Nazis: The California Connection - Edwin Black
4. Why the Nazis Studied American Race Law for Inspiration - James Q. Whitman
5. Constructing Normalcy: The Bell Curve, the Novel, and the Invention of the Disabled Body in the Nineteenth Century - Lennard J. Davis
6. The Eugenics Legacy of the Nobelist Who Fathered IVF - Osagie K. Obasogie

Part II. Bioethics and its Discontents
7. A Sociological Account of the Growth of Principlism - John H. Evans
8. Why a Feminist Approach to Bioethics? - Margaret Olivia Little
9. Disability Rights Approach toward Bioethics? - Gregor Wolbring
10. Differences from Somewhere: The Normativity of Whiteness in Bioethics in the United States - Catherine Myser
11. Bioethical Silence and Black Lives - Derek Ayeh
12. The Ethicists - Carl Elliott

Part II. Emerging Biotechnologies, Extreme Ideologies: The Recent Past and Near Future
13. The Genome as Commons - Tom Athanasiou and Marcy Darnovsky
14. Yuppie Eugenics - Ruth Hubbard and Stuart Newman
15. Brave New Genome - Eric S. Lander
16. Can We Cure Genetic Diseases without Slipping into Eugenics? - Nathaniel Comfort
17. Cyborg Soothsayers of the High-Tech Hogwash Emporia: In Amsterdam with the Singularity - Corey Pein

Part IV. Markets, Property, and The Body
18. Flacking for Big Pharma - Harriet A. Washington
19. Your Body, Their Property - Osagie K. Obasogie
20. Where Babies Come From: Supply and Demand in an Infant Marketplace - Debora Spar
21. Dear Facebook, Please Don’t Tell Women to Lean In to Egg Freezing - Jessica Cussins
22. The Miracle Woman - Rebecca Skloot

Part V. Patients As Consumers in The Gene Age
23. What Is Your DNA Worth? - David Dobbs
24. Should Patients Understand That They Are Research Subjects? - Jenny Reardon
25. Direct-to-Consumer Genetic Tests Should Come with a Health Warning - Jessica Cussins
26. Genetic Testing for All Women? Not a Solution to the Breast Cancer Epidemic - Karuna Jaggar
27. Welcome, Freshmen: DNA Swabs, Please - Troy Duster
28. Me Medicine - Donna Dickenson
29. Public Health in the Precision-Medicine Era - Ronald Bayer and Sandro Galea

Part VI. Seeking Humanity in Human Subjects Research
30. Medical Exploitation: Inmates Must Not Become Guinea Pigs Again - Allen M. Hornblum and Osagie K. Obasogie
31. The Body Hunters - Marcia Angell
32. Guinea-Pigging - Carl Elliott
33. Human Enhancement and Experimental Research in the Military - Efthimios Parasidis
34. Non-Consenting Adults - Harriet A. Washington

Part VII. Baby-Making in The Biotech Age
35. Generation I.V.F.: Making a Baby in the Lab—10 Things I Wish Someone Had Told Me - Miriam Zoll
36. Queering the Fertility Clinic - Laura Mamo
37. Reproductive Tourism: Equality Concerns in the Global Market for Fertility Services - Lisa Chiyemi Ikemoto
38. Make Me a Baby as Fast as You Can - Douglas Pet
39. Let’s Get Rid of the Secrecy in Donor-Conceived Families - Naomi Cahn and Wendy Kramer

Part VIII. Selecting Traits, Selecting Children
40. Disability Equality and Prenatal Testing: Contradictory or Compatible? - Adrienne Asch
41. The Bleak New World of Prenatal Genetics - Marcy Darnovsky and Alexandra Minna Stern
42. Have New Prenatal Tests Been Dangerously Oversold? - Beth Daley
43. Sex Selection and the Abortion Trap - Mara Hvistendahl
44. A Baby, Please: Blond, Freckles—Hold the Colic - Gautam Naik

Part IX. Reinventing Race in The Gene Age
45. Straw Men and Their Followers: The Return of Biological Race - Evelynn M. Hammonds
46. The Problem with Race-Based Medicine - Dorothy Roberts
47. Race in a Bottle - Jonathan Kahn
48. The Science and Business of Genetic Ancestry Testing - Deborah A. Bolnick et al.
49. All That Glitters Isn’t Gold - Osagie K. Obasogie and Troy Duster
50. High-Tech, High-Risk Forensics - Osagie K. Obasogie

Part X. Biopolitics and The Future
51. Die, Selfish Gene, Diem - David Dobbs
52. Toward Race Impact Assessments - Osagie K. Obasogie
53. Human Genetic Engineering Demands More Than a Moratorium - Sheila Jasanoff, J. Benjamin Hurlbut, and Krishanu Saha
54. “Moral Meanings of an Altogether Different Kind”: Progressive Politics in the Biotech Age - Marcy Darnovsky

Afterword by Patricia J. Williams
List of Contributors
Index

Beyond Bioethics

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A Paperback / softback by Osagie K. Obasogie, Marcy Darnovsky, Troy Duster

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    View other formats and editions of Beyond Bioethics by Osagie K. Obasogie

    Publisher: University of California Press
    Publication Date: 13/03/2018
    ISBN13: 9780520277847, 978-0520277847
    ISBN10: 0520277848
    Also in:
    Medical ethics and professional conduct Social and cultural anthropology Bioethics

    Description

    Book Synopsis
    For decades, the field of bioethics has shaped the way we think about ethical problems in science, technology, and medicine. But its traditional emphasis on individual interests such as doctor-patient relationships, informed consent, and personal autonomy is minimally helpful in confronting the social and political challenges posed by new human biotechnologies such as assisted reproduction, human genetic modification, and DNA forensics.Beyond Bioethicsaddresses these provocative issues from an emerging standpoint that is attentive to race, gender, class, disability, privacy, and notions of democracya new biopolitics. This authoritative volume provides an overview for those grappling with the profound dilemmas posed by these developments. It brings together the work of cutting-edge thinkers from diverse fields of study and public engagement, all of them committed to this new perspective grounded in social justice and public interest values.

    Trade Review
    "A useful contribution. Gives both a name and a direction to a more socially conscious ethical and political framework to the controversial issues posed by developments in genomics." * Metapsychology Online Reviews *
    "With the rapid development of new biotechnologies like CRISPR, Beyond Bioethics makes a timely call for a novel take on bioethics capable of addressing the significant sociopolitical implications of these technologies. . . . Bridging together thinkers across the humanities and sciences divide, Beyond Bioethics models a progressive, interdisciplinary approach to bioethics that extends beyond a focus on the individual toward a 'new biopolitics' of the global, the collective." * Somatosphere *
    "As an argument for a particular focus in bioethics, with each chapter serving as a case providing an example of this focus, Beyond Bioethics is convincing. . . . covers a lot of theoretical ground, and is clear and enjoyable to read without sacrificing intelligence. It will certainly spark both scholarly discussion and student interest." * Quarterly Review of Biology *

    Table of Contents
    List of Illustrations
    Foreword by Troy Duster
    Acknowledgments
    Note to Readers

    Introduction - Osagie K. Obasogie and Marcy Darnovsky

    Part I. The Biopolitical Critique of Bioethics: Historical Context
    1. The Biological Inferiority of the Undeserving Poor - Michael B. Katz
    2. Making Better Babies: Public Health and Race Betterment in Indiana, 1920–1935 - Alexandra Minna Stern
    3. Eugenics and the Nazis: The California Connection - Edwin Black
    4. Why the Nazis Studied American Race Law for Inspiration - James Q. Whitman
    5. Constructing Normalcy: The Bell Curve, the Novel, and the Invention of the Disabled Body in the Nineteenth Century - Lennard J. Davis
    6. The Eugenics Legacy of the Nobelist Who Fathered IVF - Osagie K. Obasogie

    Part II. Bioethics and its Discontents
    7. A Sociological Account of the Growth of Principlism - John H. Evans
    8. Why a Feminist Approach to Bioethics? - Margaret Olivia Little
    9. Disability Rights Approach toward Bioethics? - Gregor Wolbring
    10. Differences from Somewhere: The Normativity of Whiteness in Bioethics in the United States - Catherine Myser
    11. Bioethical Silence and Black Lives - Derek Ayeh
    12. The Ethicists - Carl Elliott

    Part II. Emerging Biotechnologies, Extreme Ideologies: The Recent Past and Near Future
    13. The Genome as Commons - Tom Athanasiou and Marcy Darnovsky
    14. Yuppie Eugenics - Ruth Hubbard and Stuart Newman
    15. Brave New Genome - Eric S. Lander
    16. Can We Cure Genetic Diseases without Slipping into Eugenics? - Nathaniel Comfort
    17. Cyborg Soothsayers of the High-Tech Hogwash Emporia: In Amsterdam with the Singularity - Corey Pein

    Part IV. Markets, Property, and The Body
    18. Flacking for Big Pharma - Harriet A. Washington
    19. Your Body, Their Property - Osagie K. Obasogie
    20. Where Babies Come From: Supply and Demand in an Infant Marketplace - Debora Spar
    21. Dear Facebook, Please Don’t Tell Women to Lean In to Egg Freezing - Jessica Cussins
    22. The Miracle Woman - Rebecca Skloot

    Part V. Patients As Consumers in The Gene Age
    23. What Is Your DNA Worth? - David Dobbs
    24. Should Patients Understand That They Are Research Subjects? - Jenny Reardon
    25. Direct-to-Consumer Genetic Tests Should Come with a Health Warning - Jessica Cussins
    26. Genetic Testing for All Women? Not a Solution to the Breast Cancer Epidemic - Karuna Jaggar
    27. Welcome, Freshmen: DNA Swabs, Please - Troy Duster
    28. Me Medicine - Donna Dickenson
    29. Public Health in the Precision-Medicine Era - Ronald Bayer and Sandro Galea

    Part VI. Seeking Humanity in Human Subjects Research
    30. Medical Exploitation: Inmates Must Not Become Guinea Pigs Again - Allen M. Hornblum and Osagie K. Obasogie
    31. The Body Hunters - Marcia Angell
    32. Guinea-Pigging - Carl Elliott
    33. Human Enhancement and Experimental Research in the Military - Efthimios Parasidis
    34. Non-Consenting Adults - Harriet A. Washington

    Part VII. Baby-Making in The Biotech Age
    35. Generation I.V.F.: Making a Baby in the Lab—10 Things I Wish Someone Had Told Me - Miriam Zoll
    36. Queering the Fertility Clinic - Laura Mamo
    37. Reproductive Tourism: Equality Concerns in the Global Market for Fertility Services - Lisa Chiyemi Ikemoto
    38. Make Me a Baby as Fast as You Can - Douglas Pet
    39. Let’s Get Rid of the Secrecy in Donor-Conceived Families - Naomi Cahn and Wendy Kramer

    Part VIII. Selecting Traits, Selecting Children
    40. Disability Equality and Prenatal Testing: Contradictory or Compatible? - Adrienne Asch
    41. The Bleak New World of Prenatal Genetics - Marcy Darnovsky and Alexandra Minna Stern
    42. Have New Prenatal Tests Been Dangerously Oversold? - Beth Daley
    43. Sex Selection and the Abortion Trap - Mara Hvistendahl
    44. A Baby, Please: Blond, Freckles—Hold the Colic - Gautam Naik

    Part IX. Reinventing Race in The Gene Age
    45. Straw Men and Their Followers: The Return of Biological Race - Evelynn M. Hammonds
    46. The Problem with Race-Based Medicine - Dorothy Roberts
    47. Race in a Bottle - Jonathan Kahn
    48. The Science and Business of Genetic Ancestry Testing - Deborah A. Bolnick et al.
    49. All That Glitters Isn’t Gold - Osagie K. Obasogie and Troy Duster
    50. High-Tech, High-Risk Forensics - Osagie K. Obasogie

    Part X. Biopolitics and The Future
    51. Die, Selfish Gene, Diem - David Dobbs
    52. Toward Race Impact Assessments - Osagie K. Obasogie
    53. Human Genetic Engineering Demands More Than a Moratorium - Sheila Jasanoff, J. Benjamin Hurlbut, and Krishanu Saha
    54. “Moral Meanings of an Altogether Different Kind”: Progressive Politics in the Biotech Age - Marcy Darnovsky

    Afterword by Patricia J. Williams
    List of Contributors
    Index

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