Description

On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

Table of Contents
  • Front Matter
  • 1 Introduction
  • 2 Current Approaches and Weaknesses of Those Approaches
  • 3 The Benefits of Data Sharing
  • 4 Issues and Challenges Associated with Data Sharing
  • 5 Possible Ways Forward
  • Appendix A: Agenda
  • Appendix B: Speaker Biographical Sketches

Principles and Obstacles for Sharing Data from Environmental Health Research: Workshop Summary

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Paperback / softback by National Academies of Sciences, Engineering, and Medicine , Health and Medicine Division

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Short Description:

On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the... Read more

    Publisher: National Academies Press
    Publication Date: 29/05/2016
    ISBN13: 9780309370851, 978-0309370851
    ISBN10: 030937085X

    Number of Pages: 114

    Non Fiction , Education

    Description

    On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

    Table of Contents
    • Front Matter
    • 1 Introduction
    • 2 Current Approaches and Weaknesses of Those Approaches
    • 3 The Benefits of Data Sharing
    • 4 Issues and Challenges Associated with Data Sharing
    • 5 Possible Ways Forward
    • Appendix A: Agenda
    • Appendix B: Speaker Biographical Sketches

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