Description
Book SynopsisThis is an authoritative overview for anyone encountering Postural Orthostatic Tachycardia Syndrome (POTS) - a dysfunction of the autonomic nervous system resulting in diverse symptoms experienced in an upright position that are relieved by lying down - and other types of acquired dysautonomia. It provides essential information on the symptoms, diagnosis and treatment in children and young people.
Post-viral syndromes can be extremely difficult to manage and the average individual spends two to three years accessing appropriate diagnosis. This book provides necessary information for parents and healthcare professionals on identifying POTS and other post-viral dysautonomia, the most common triggers, appropriate intervention and successful multi-disciplinary management in both short and long term situations. It also includes helpful tips and coping strategies for managing the syndrome at home and in educational and clinical settings.
Trade ReviewKelly McCracken Barnhill has created an easy-to-understand handbook that is suitable as a reference resource for medical professionals, parents, and patients. She has been successful in demystifying this complex syndrome through the use of well-researched explanations of up-to-date testing and discussions of treatment options presented in the crucible of first hand patient accounts. The reader will find this an invaluable guide through the maze of dysautonomia. -- Ainsley R Glenn, Founding Director, Dysautonomia Advocacy Foundation
Table of ContentsForeword by Fletcher Barnhill. Preface. 1. Background and Emerging Diagnosis. 2. Putting the Pieces Together: Making Sense of the Nonsensical. 3. Accessing Appropriate Diagnosis (And what does that truly look like?). 4. Appropriate Medical Treatment and Intervention. 5. Appropriate Supportive Therapeutic Intervention One: Diet. 6. Appropriate Supportive Therapeutic Intervention Two: Nutrition. 7. Appropriate Supportive Therapeutic Intervention Three: Physical Therapy, Reconditioning and Rehabilitation. 8. Appropriate Supportive Therapeutic Intervention Four: Counseling and Therapy. 9. Fostering Coping Strategies and Stress Management, for the Entire Family. 10. Navigating the Necessities of Life: Accommodations for Education and Activities. 11. Case Reports, Stories and Studies. 12. Case Study - How to Be a Zebra. Next Steps. Appendices. Resources for family, individual, and community support. References.
