Description
Book SynopsisA practical guidebook providing a case-based approach to neurobehavioral problems in people with Prader-Willi Syndrome (PWS). Includes extensive treatment plans and covers a range of issues such as anxiety, skin-picking, ADHD, disruptive behavior, mood disorders, and psychosis. A must-read for clinicians and caregivers helping individuals with PWS.
Trade Review'Prader-Willi syndrome (PWS) is more than just a rare genetic disorder. It is a complex syndrome with many challenging symptoms. Dr Singh not only names and describes these symptoms, he also provides practical recommendations for managing them. This book covers the spectrum of common behavioral problems seen in PWS in terms and language people without medical training can understand, and it delves deeper into the neuro-behavioral manifestations aimed at medical professionals who will care for patients with PWS. This book is a great reference tool for everyone from families who have just received their diagnosis to caregivers of older children experiencing many of these behaviors to medical professionals who will counsel these patients, parents and caregivers.' Paige Rivard, MBA, CEO Prader-Willi Syndrome Association, USA
'The Neuro-behavioral Manifestations of Prader-Willi Syndrome provides an in-depth look at those aspects of PWS that families struggle with every day. From anxiety to behavioral outbursts to frank mental illness, Dr Singh and colleagues provide insight and a holistic approach to managing some of the most difficult aspects of the syndrome. The chapters are written with sufficient detail to be highly informative for clinicians and health care providers who wish to become more knowledgeable about PWS, while the 'Note to Caregiver' section in each chapter will be particularly helpful for families. This book is bound to be an important and well-used resource for anyone caring for a person with PWS.' Theresa V. Strong, Ph.D., Director of Research Programs, Foundation for Prader-Willi Research
'In this book, Dr Deepan Singh, along with other contributors, has set out his perspective as a psychiatrist seeing people with PWS in the context of the American health system. I admire his commitment seeking to cover this complex area in these 15 chapters, which range widely in their content including topics as diverse as caregiver burden and the neurobiology of PWS. Importantly, Dr Singh draws upon particular areas of psychiatric knowledge applying them to our understanding of PWS.' Anthony Holland, Emeritus Professor, Department of Psychiatry, University of Cambridge, UK
Table of ContentsPreface; 1. 'Knowing your patient: a bio-psycho-social perspective'' Deepan Singh; 2. Caregiver burden in prader-willi syndrome Carole Filangieri and Deepan Singh; 3. Establishing a relationship with a mental health provider Carole Filangieri and Deepan Singh; 4. Sleep disorders in prader-willi syndrome Mary Cataletto, Sumit Bhargava and Deepan Singh; 5. Autism in prader-willi syndrome Deepan Singh and Emily Mozdzer; 6. Anxiety in prader-willi syndrome Deepan Singh and Emily Mozdzer; 7. Picking, hoarding, and elopement in prader-willi syndrome Deepan Singh; 8. Attention deficit/hyperactivity disorder in prader-willi syndrome Deepan Singh; 9. Agitation and aggression in prader-willi syndrome Deepan Singh; 10. Mood disorders in prader-willi syndrome Deepan Singh; 11. 'Psychotic disorders in prader-willi syndrome' Deepan Singh; 12. Psychopharmacology in prader-willi syndrome Deepan Singh, Emily Mozdzer and Aaron Pinkhasov; 13. A caregiver's perspective Nina Roberto, Deepan Singh and Carole Filangieri; 14. The neurobiology of prader-willi syndrome Deepan Singh; 15. Final reflections on the neurobehavioral manifestations of prader-willi syndrome Deepan Singh.
