Description
Book SynopsisThis book addresses the impact of genetic deafness/hearing impairment on people' s lives and those around them. It includes the perspectives of those who are deaf or hard of hearing as well as those working in the field. Professional topics include genetic counselling, social science, psychology, social work and - within medicine - audiological and ENT medical and audiological paediatrics. These practitioners are both hearing and hearing impaired.
The impact of deafness on children, those of working age and elderly people is discussed highlighting the specific effect of genetic factors. In particular there are chapters on deafblindness and otosclerosis and NF2 (a potentially lethal condition). The Who definitions and ICF are used as a framework for considering the effect on people' s lives of impairment and their participation in society.
This provides a bridge between the medical and social models of disability. Contributors write from both their professional and personal experience in order to try and address some of the issues raised by the real impact of genetic deafness on everyday life and how these can best be tackled by those working in the field.
Trade Review"...this thought-provoking book provides a comprehensive review of the literature..." (Bulletin, December 2005)
Table of ContentsList of contributors.
Preface.
Acknowledgements.
Chapter 1 Future perfect: social aspects of genetics and deafness - Lesley Jones.
Chapter 2Parents' attitudes towards genetic testing and the impact of deafness in the family - Anna Middleton.
Chapter 3 The International Classification of Functioning, Disability and Health as a conceptural framework for the impact of genetic hearing impairment - Dafydd Stephens and Berth Danermark.
Chapter 4 A common methodology for reviewing the impact of hearing impairment - Berth Danermark, Sophia Kramer and Dafydd Stephens.
Chapter 5 The impact of hearing impairment in children - Dafydd Stephens.
Chapter 6 A review of the psychosocial effects of hearing impairment in the working-age population - Berth Danermark.
Chapter 7 The psychosocial impact of hearing loss among elderly people: a review - Sophia Kramer.
Chapter 8 The impact of combined vision and hearing impairment and of deafblindness - Kerstin Moller.
Chapter 9 The effects of otosclerosis - Nele Lemkens.
Chapter 10 Psychosocial aspects of neurofibromatosis type 2 - Wanda Neary, Richard Ramsden, Gareth Evans and Michael Baser.
Chapter 11 Moving forward: a life of changes - Pathricia Lago-Avery.
Chapter 12 My genetic deafness - Jill Jones.
Glossary.
Index.
