Description
Book SynopsisWhen their child has cerebral palsy, parents need answers. They seek up-to-date advice they can count on to make sure their child has the best possible health and well-being. For three editions now, a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children have shared vital information through this authoritative resource for parents, who will turn to it time and time again as their child grows. The new edition is thoroughly revised to incorporate the latest medical thinking, including advances in diagnosis, treatment, and terminology. Every chapter includes new content on topics ranging from genetics to pain, temperature control, palliative care, why growth suppression is sometimes recommended, the Affordable Care Act, and how to make it easier for siblings to cope. Chapter 8 has been entirely rewritten to better help adolescents prepare for the transition to adulthood. New classification systems, such as the gross motor function classi
Table of ContentsForeword, by Joan Lenett Whinston
Preface
Acknowledgments
PART I.
1. What Is Cerebral Palsy?
2. An Overview of Early Child Development
3. Medical Problems Associated with Cerebral Palsy
4. Intellectual, Psychological, and Social Development
5. Hemiplegia
6. Diplegia
7. Quadriplegia
8. The Adult with Cerebral Palsy
9. How the Health Care System Works
10. Financing Care for the Child with Cerebral Palsy
11. Navigating the Educational System
12. Being an Advocate for Your Child
PART II.
Taking Care of Yourself When You Care for Others
Protecting the Caregiver's Back: Basic Body Mechanics
Making Things Easier for You and Your Child
Choosing Appropriate Seating
Choosing and Using Car Seats
About Wheelchair Maintenance
Pressure Management Awareness
Choosing a Stander
About Walkers and Gait Trainers
About Braces
Choosing the Correct Shoes
Increasing Independence with Service Dogs
Managing the System
Working with a Case Manager
Letters of Medical Necessity
Occupations for Adults with Cerebral Palsy
About Hospitalization
Keeping Medical History Records
Life Planning Process
About Casts
Using Nutritional Boosters
Managing Tube Feedings
Providing Oral Care
Toilet Training Your Child
Giving an Enema
Giving Rectal Medications or Suppositories
Suctioning Techniques
PART III.
From Achilles Tendon Lengthening to Vocational Rehabilitation
Resources
Index
