Description
Book SynopsisA family-led vision of what carers of people with dementia need and want to know. Supporting families and carers in their day-to-day life with dementia, this unique resource combines real stories from families with expert responses and advice for specific issues and concerns.
This resource is based on the real stories and real questions brought to the Admiral Nurse Dementia Helpline, peer support groups and clinical networks. Including questions around diagnosis, peer support, balancing risks, care transitions and end of life planning, the chapters are devised to support you, and give you the tools to live better, when dementia enters your life.
Trade ReviewA valuable resource for family and friends who find themselves taking on the mantle of looking after someone with dementia. The range of specialists provide a comprehensive resource of clinical information, advice, and guidance. * Ruth Eley, Chair of tide (Together in Dementia Everyday) and former social worker *
What a fantastic resource for families living with dementia. One of the hardest things for our family was feeling we were left to our own devices to deal with our new (ever-changing) normal as Dad's Young Onset Dementia evolved over time. The real-life stories help to reassure readers that they are not alone. The expert commentary gives practical advice on how to adapt family communication, activities, and expectations to improve the experience of living with dementia for everyone * Emma Crozier, Trustee of Dementia UK, Business consultant and coach *
Table of ContentsForeword.
Preface.
Admiral Nursing.
Chapter 1 - Consultation is key.
Chapter 2 - 'Discovering my mother through Alzheimer's' - Life Story.
Chapter 3 - 'I kept telling myself that he was still grieving for Mum' -
Diagnosing dementia in later life.
Chapter 4 - 'Getting a diagnosis is not easy'- Diagnosis of dementia under the age of 65.
Chapter 5 - 'Maintaining independence and autonomy' - Balancing the risks.
Chapter 6 - 'Planning ahead is so overwhelming' - Advance care planning.
Chapter 7 - 'Once he got a diagnosis the girls had to believe' - Distance and denial of dementia.
Chapter 8 - 'I feel as though I am going mad' - Overwhelming grief.
Chapter 9 - 'How does physical ill health affect people with dementia?' -
Understanding delirium.
Chapter 10 - 'I thought dementia was just about memory loss?' - Hallucinations.
Chapter 11 - 'He's run away with another woman' - False beliefs and delusions.
Chapter 12 - 'He'd sit in that blessed chair all day, he would' - Apathy in
Dementia.
Chapter 13 - 'Where is your father?' - Bereavement and dementia.
Chapter 14 - 'Time to go home now' - A story of sundowning.
Chapter 15 - 'Why is it so difficult to get NHS continuing healthcare funding?'
Chapter 16 - 'I just felt as though I had failed her when she needed me most' - Transition into a care home.
Chapter 17 - 'Dementia patients don't feel pain' - Palliative care and dementia.
