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Book SynopsisWinner of the 2021 PROSE Award for CLINICAL PSYCHOLOGY and PSYCHIATRY
Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: Why don''t patients take treatments that could save their lives?
The Wiley handbook of Healthcare Treatment Engagement offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-rea
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Adherence to long-term therapies is perhaps one of the most important issues that deserves the attention of all stakeholders in the health care field, including doctors, nurses, pharmacists, all health care providers, but also the pharmaceutical industry, health authorities and payers. Everyone agrees that patient adherence, especially for those with chronic diseases, is far from optimal, with catastrophic consequences for the effectiveness of care, which has made more progress in the last 50 years than in the 50 centuries before.
The originality of this book relies on the fact that it approaches the problem of adherence in a holistic way, going beyond the term adherence, which was itself already an advance over that of compliance. It proposes replacing it with a more general term, that of engagement. This concept reinforces the involvement of the patient, becoming a true agent in the management of his or her disease. In particular, it is necessary to distinguish between the different phases of this engagement, at the time of treatment initiation, implementation and, last but not least, persistence.
This book will be of interest to all care providers. Its ambition is to clarify through theoretical models the mechanisms of patient engagement in treatment, so that practical approaches can be identified to improve it, giving both general indications and specific applications to different groups of patients. An entire section of the book is devoted to care in different contexts: adolescence, the elderly, vulnerable people, the effect of social deprivation cognitive deficits and mental illness. At a time when digital technology and artificial intelligence are transforming the practice of medicine, this book shows their promises and limitations with remarkable intelligence (Chapter 30). Inevitably, the new demands of patients to become agents of their treatment require the development of the concept of shared medical decision making and Chapter 28 devoted to it is especially brilliant. It is this sharing which really defines the concept of engagement, which makes it inseparable from patient education, which truly finds its full meaning in engagement. It is through this process that trust is generated, which is the condition for real patient engagement. It requires that care providers become aware of the human nature of patients, combining the greatness of complex thought with the presence of cognitive and emotional bias. This book therefore sets out the conditions for the real implementation of a person-centered medicine.
—Professor Gérard Reach, Professor of Edocrinology and Metabolism, Paris 13 University & Head of the Endocrine Department, Avicenne Hospital, Bobigny, France
Table of ContentsForeword viii
Preface x
Notes on Authors xiii
Notes on Contributors xiv
Acknowledgments xxv
Introduction 1
Section I Background 15
1 Treatment Engagement and Adherence: A Review of the Literature 17
Christiana O. Oshotse, Hayden Barry Bosworth, and Leah L. Zullig
2 What Do Patients Want? Patient Satisfaction and Treatment Engagement 33
Ann E. Webb and Robin E. Gearing
3 Values‐based Practice and Patient Engagement: Linking Science with People 58
Bill (K.W.M.) Fulford
4 Informed Consent and the Law: From Patient Compliance to Patient Engagement? 75
Richard Huxtable
5 Assessing, Measuring, and Monitoring Treatment Engagement 92
Donald E. Morisky and Chia‐Hsin Emily Cheng
Section II Understanding Treatment Engagement 109
6 Addressing the Challenges of Neurocognitive Impairment (NCI) on Treatment Engagement 111
Roman Shrestha, Pramila Karki, and Michael Copenhaver
7 Self‐determination Theory and Autonomy Support to Change Healthcare Behavior 141
Martin S. Hagger and Cleo Protogerou
8 Attachment Theory, the Therapeutic Alliance, and Treatment Engagement 159
Katherine Berry and Adam Danquah
9 Clinical Case Formulation of Suboptimal Engagement 172
Lawrence Jones and Sunita Guha
10 The Contribution of Beliefs to Treatment Engagement 188
Vivian Auyeung, Lyndsay D. Hughes, and John A. Weinman
Section III Practical Approaches to Enhance Engagement 203
11 Medication and Treatment Beliefs as Determinants of Treatment Engagement 205
Rob Horne
12 Cognitive Behavioral and eHealth Approaches to Promote Engagement in Treatment 223
M. Bryant Howren, Anne I. Roche, and Alan J. Christensen
13 Enhancing Treatment Engagement Through Motivational Interviewing 243
Stanley R. Steindl and Jason P. Connor
14 Positive Approaches to Promote and Support Changes in Health Behavior 259
Emily G. Lattie and Anne Cohen
15 Communication Skills to Engage Patients in Treatment 274
Mollie A. Ruben, Danielle Blanch‐Hartigan, and Judith A. Hall
16 Understanding Some Psychodynamic Factors Involved in Suboptimal Engagement 297
Geoffrey P. Taylor and Deborah L. Cabaniss
17 Enhancing Wellbeing and Motivation for Staff Working with Patients Who Have Inconsistent or Challenging Engagement in Services 313
Alex Lord
Section IV Treatment Engagement in Specific Client Groups 335
18 Engaging Patients from Diverse Backgrounds in Healthcare Treatment 337
Aswita Tan‐McGrory, Andrea O. Madu, Karey S. Kenst, and Joseph R. Betancourt
19 Enhancing Treatment Adherence in Young People with Chronic Diseases 354
Michael A. Rapoff and Ali Calkins‐Smith
20 Enhancing Treatment Engagement in Older Adults 365
Jo Anne Sirey and Patricia Marino
21 Treatment Engagement and People with Intellectual Disability 381
Roger J. Stancliffe, Seeta Durvasula, Nathan J. Wilson, and Peter Lewis
22 Promoting and Maintaining Engagement in Substance Abuse Treatment 399
Nikolaj Kunøe
23 Working with People with Mental Health Difficulties to Improve Adherence to Medication 430
Thomas R.E. Barnes and Peter M. Haddad
24 Engaging Socially Excluded Individuals and Communities in Healthcare 455
Jed Boardman and David Morris
25 Understanding and Overcoming Barriers to Treatment Engagement in Lower‐income Countries 477
Andrew L. Ellner, Jessica L. Alpert, Chris Desmond, and Ashwin Vasan
Section V Designing and Delivering Services to Optimize Patient Engagement 503
26 Treatment Engagement: The Experience of Users of Health Services 505
Dolly Sen
27 Recovery from Ill Health from an Occupational Perspective 515
Wendy Bryant and Maggie Winchcombe
28 Achieving Patient Engagement Through Shared Decision‐making 531
Paul Barr, Glyn Elwyn, and Isabelle Scholl
29 Optimizing Service Delivery to Enhance Treatment Engagement 551
Sharon Lawn
30 Patient Engagement in Treatment in an Information Age 568
Fiona Stevenson and Maureen Seguin
31 Governing by Risk, or Why Interventions to Improve Health Fail 582
Paul Crawshaw
Afterword: Future Directions 597
Index 602
