Description
Book SynopsisThis multi-disciplinary and inclusive collection brings together theoretically informed and empirically focused research on sex, intimacy and reproduction in relation to young people and adults with life-shortening conditions.
Advances in healthcare mean that increasing numbers of young people with life-shortening conditions are transitioning into adulthood. Issues such as sex and intimacy, dating and relationships, fertility and having children are increasingly relevant to them and to the people that support them, including families, carers, practitioners and professional education, health and social care agencies. This three-part book explores the relevance and significance of this field, examines everyday experiences, and highlights the challenges faced by individuals and organisations in addressing the needs of such people in daily life and in the context of practice.
Drawing on perspectives from sociology, disability studies, epidemiology, health policy, psychothera
Table of Contents
Part One: Policy and regulation: National and international landscapes. 1.A changing population: Young adults with life-limiting or life-threatening conditions. 2.International policy and governance related to young adults with life-shortening conditions. 3.The regulation of sexual expression and joy: Complexities and contradictions. 4.British law, help or hinderance? Sexuality and disability. 5.A rite of passage? A UK perspective on transition for young people with life-shortening conditions. Part Two: Experiences of sex, intimacy and reproduction. 6.Life-long learning about sex on an uncertain life course. 7.Reasons to shag a cripple. 8.Disruptions, relationships and intimate futures: The unintended consequences of pandemic control. 9.Near-death issues and the impact on the sexuality of people with intellectual disabilities during the pandemic. 10.Navigating normativity: Understanding reproductive loss in the lives of young adults with shortened lives. Part Three: Reflections on researching sexual and reproductive intimacy. 11.Involving people with life-shortening conditions in research: Perspectives on co-production. 12.Research and governance in action: Implementing research on sex, intimacy and reproduction.
