Description
Book SynopsisThe symposium Family Dynamics, Family Therapy, and Pediatric Medical Illness, held at Downstate Medical Center on December 12 and 13, 1980, considered the impact of life-threatening illness in children and adolescents on intrafamilial dynamics. A group of experts addressed the practical and theoretical psychological and social issues facing pediatric patients and their families when con fronting chronic and severe childhood illnesses including brain damage, cancer, hemophilia, juvenile diabetes, and heart disease. The presentations and group discussions clearly revealed the complexity of physical and psychological problems posed by the seriously ill child with chronic disease for both the health care provider and the family. The conference proceedings confirm that quality care and treatment for the ill child requires the partici pation of a variety of health care disciplines repr
Table of ContentsThe Challenge of Pediatric Medical Illness to Family Theory and Family Therapy.- The Family and Medical Illness.- Section I.- 1. Family Treatment of Chronic Illness in a Child: Mutual Developmental Problems.- 2. Family Treatment is Here to Stay: Discussion of Dr. Berlin’s Paper.- 3. When do Families Develop Insight?: General Discussion.- Section II.- 1. Early Interventions for Families with Chronically Ill Children.- 2. Struggling for Survival: Discussion of Dr. Kaplan’s Paper.- 3. Treatment of the Family’s Denial of a Dying Child: General Discussion.- Section III.- 1. Death and Chronic Incapacity: Long Term Follow-Up on Adaptive Stresses in a Family.- 2. Ghosts in the Family: Discussion of Dr. Christ’s Paper.- 3. Mourning and Parentectomy: General Discussion.- Section IV.- 1. “Dis-Synchrony” of Coping Among Children with Cancer, Their Families, and the Treating Staff.- 2. “The Lord Brought Me Thru”: Discussion of Mrs. Christ’s Paper.- 3. Timely Reaching Out to Families: General Discussion.- Section V.- 1. Open-Heart Surgery for Congenital Heart Disease: Minimizing Adverse Psychological Sequelae in Families Facing Major High-Risk Surgery.- 2. Helping the Child and Family with Surgery: Discussion of Drs. Gabriel’s and Danilowicz’s Paper.- 3. Are Too Many “Laying on Hands?”: General Discussion.- Section VI.- 1. Family Systems Theory and Chronic Childhood Illness: Diabetes Mellitus.- 2. A Useful Guide to Families with Juvenile Diabetes: Discussion of Dr. Sargent’s Paper.- 3. Adolescence: An Extra Hurdle for the Diabetic: General Discussion.- Section VII.- 1. Prevention of Psychosocial Problems in Hemophiliacs.- 2. “Hemophiliac”--A Depersonalizing Term: Discussion of Dr. Mattsson’s Paper.- 3. Identity and the Label of Hemophiliac: General Discussion.- Section VIII.- 1. The Effect of a Child’s Chronic Illness on the Family.- 2. Years of Challenge: A Family Lives with Chronic Illness: Discussion of Dr. Rothenberg’s Paper.- 3. Extended Family: A Valuable Support: General Discussion.- Section IX.- 1. Issues and Challenges: Concluding Panel Discussion.- Contributors.
