Description
Book SynopsisPANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep) and PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) occur when an abnormal immune response produces brain inflammation, leading to unusual psychological symptoms in children. Symptoms can include OCD, tics, ADHD, anxiety disorders, sensory issues and marked personality changes.
This practical handbook explains how educators can distinguish between these symptoms and pre-existing conditions, and offers strategies for supporting students with PANDAS and PANS in school settings. Contributions from experts provide educators with the understanding needed to be able to collaboratively identify PANDAS and PANS, and carry out effective interventions. As the rate of incidence of PANDAS and PANS increases, this book will be an essential resource for school staff in getting to grips with these complex disorders and overcoming the challenges they present.
Trade ReviewDuring my thirteen years as an educational specialist working with medically fragile children, I have never encountered an illness as devastating on families and schools as PANDAS/PANS. It is difficult to plan a successful education program for children who are consistently inconsistent. This book will serve as a lifeline to teachers and families who are touched by the devastating diagnosis of PANDAS/PANS. The explanations and recommendations for an appropriate and flexible school program will help to support positive school outcomes for these children. -- Jeanne Kane, M.A., HEAL School Reentry Program Coordinator and Educational Specialist, Lucile Packard Children’s Hospital Stanford
This book finally gives a voice to those who are directly affected by PANS/PANDAS. After struggling in silence for years, this book tells the stories of families who have searched for diagnosis and shares critical information about medical and educational interventions. This book is the resource that families and educators have been waiting for! -- Jodi M. Duke, Ed.D., Assistant Professor of Special Education, George Mason University
Table of ContentsDedication. Acknowledgements. Foreword. Introduction. 1. What are PANDAS and PANS, and Why Do Educators Need to Know? Patricia Rice Doran, Ed.D., Assistant Professor of Special Education, Towson University, Maryland, USA. 2. Parent and Family Voices: Perspectives on PANDAS/PANS. Sarah Alleman, Wendy Nawara, Amy Corselius and Anonymous. Edited by Patricia Rice Doran. 3. Education Professionals' Voices: Perspectives on PANDAS/PANS. Megan DeRitter, M.Ed., Instructional Guide, Monarch Academy, Glen Burnie, MD, Mary Crombez, M.Ed., Laura Cook, LSW and Melissa Giampietro. 4. Medical History and Context of PANDAS and PANS. Margo Thienemann, M.D., Clinical Professor of Psychiatry, Stanford University School of Medicine, USA. 5. PANDAS/PANS in the General Education Classroom: Creating a Brain-Friendly Learning Environment. Darlene Fewster, Associate Professor of Special Education, Towson University and Patricia Rice Doran. 6. Collaborative Planning for Students with PANDAS and PANS. Patricia Rice Doran. 7. Academic Accommodations and Supports for Students with PANDAS/PANS. Amy Mazur, Ed.D., Retired Professor of Special Education, The George Washington University, Washington D.C., USA. 8. Sensory and Motor Considerations for Children with PANDAS/PANS. Janice Tona, Ph.D., OTR, Clinical Assistant Professor of Rehabilitation Science, The University of Buffalo-SUNY, USA. 9. Emotional and Behavioral Impact: Considerations for Planning and Practice. Kandace M. Hoppin, Ed.D., Assistant Professor of Special Education, Towson University. 10. Transition Considerations for Students with PANDAS/PANS. Kathleen Stein, Ph.D., Associate Professor of Special Education, Towson University. Afterword. Reimagining School Paradigms: What PANDAS/PANS Can Teach Us. Patricia Rice Doran. Appendices. Appendix A: Sample Physician Letter. Appendix B: PANDAS and PANS: Quick Facts for Teachers. Index.
