Description
Book SynopsisThis book brings together an international collection of experts in reproductive ethics, law, disability studies, and medicine to explore the challenging future of reproduction and children. From the medical to the social and from the financial to the legal, the authors explore the expanding impact of reproductive genetics on our society.
New advances in genetic technologies are revolutionizing the practice of reproductive medicine. We have expanded our ability to detect genetic changes in embryos and fetuses in ways that potentially allow to identify, treat, or prevent a growing range of diseases. The development of gene-editing technologies raises questions about the possibility of removing disease-causing variants from embryos before pregnancy implantation. The growing sophistication of prenatal genomic sequencing offers us glimpses into the whole genome of the developing fetus. And, the increasingly sophisticated science of 'gene matching' allows us greater and greater foreknowledge of how the genomes of two individuals will combine in a future child. This is an indispensable book on the newest developments in bioethics caused by the sciences.
Chapter 5 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.
Table of ContentsPart 1: Clinical Background.- Chapter 1. Women, Children, Families and the Translation of Genomics in Reproductive Medicine (Ruth M. Farrell).- Chapter 2. Practicing Prenatal Medicine in a Genomic Future: How the Practice of Pediatrics May (or may not) Change with the Introduction of Widespread Prenatal Sequencing (Volkan Okur).- Part 2: Voices of Disability.- Chapter 3. Eugenics or Not, Prenatal Genetic Testing’s Common Issues Need to be Addressed (Mark W. Leach).- Chapter 4. The Impact of Prenatal Screening on Disability Communities and the Meaning of Disability (Louise Bryant).- Chapter 5. An Expressivist Disability Critique of the Expansion of Prenatal Genomics (Chris Kaposy).- Part 3: Voices of Social Sciences and the Humanities.- Chapter 6. The Hypothetical Healthy Newborn (Rosemarie Garland-Thomson).- Chapter 7. The Good and the Goal of Pre-conception and Pre-natal Genetic Testing from a Catholic Perspective (Kevin Fitzgerald).- Chapter 8. Pathways to Affluence: Socioeconomic Incentives in Prenatal Testing and Abortion (Marsha Michie).- Part 4: The Future?.- Chapter 9. An Intelligent Parents Guide to Prenatal Testing: Having a Well-Born Child without Genomic Selection 3rd Edition, 2024 (David Wasserman).
